LAO Insert Summer 2013 - aksm - Lymphedema Association of

Lymphedema
Matters
A publication of the Lymphedema Association of Ontario
Summer 2013
President’s Report
Volume 16 Issue 3
by Kim Gagan
It’s been a very busy year at the LAO. I’m very excited to announce that our Board of Directors has expanded. This year we welcome four new faces to join
our small but mighty Board:
Dr. John Crawford joins us from Guelph. He is an
Associate Professor at the Canadian Memorial Chiropractic College and brings a wealth of experience to
the post.
Ben Ciallella is Managing Director at the National
Bank of Canada in Toronto. His financial expertise and
strategic thinking will no doubt prove very valuable in
his new role as Treasurer.
Matthew Fawcett brings strong interpersonal skills
and customer service experience to our board. His
commitment and enthusiasm are much appreciated.
Barbara Foster is an Investment Advisor with TD
Waterhouse. She brings with her excellent communication skills and vast experience volunteering with
charitable committees and Boards.
We look forward to the fresh ideas and enthusiasm
that these new members of our team will no doubt
bring to the table.
We recently held our Annual Full Day Planning Meeting
in May. Board Officers for this coming year were appointed as follows: Ben Ciallella was named Treasurer;
Janice Goldberg will continue in her role as Secretary;
Leona Dicasmirro will continue as Vice-President; and
I (Kim Gagan) am pleased to continue as President.
Our planning day was a chance to review our successes from the past year and focus on new goals.
We celebrated many successes the past twelve
months
Š We organized a fantastic fall conference that once
again attracted International presenters. Our conference was exceptionally well attended by both patients
and professionals. We received excellent feedback
from participants with an overall 95% satisfaction rating.
(From left to right) Top row: Dr. John Crawford, Janice
Goldberg, Barbara Foster, Matthew Fawcett, Kim Gagan, Ben
Ciallella; Bottom row: Anna Kennedy, Leona Dicasmirro, Fran
Suran, Ruby Kreindler
Š We published our Annual Resource Guide as well as
managed the production of four new issues of the national magazine and Lymphedema Matters. Pathways
has been very well received and is increasing the profile of lymphedema across Canada. The LAO is proud
to be managing this project on behalf of the Canadian
Lymphedema Framework.
continued on page 7...
815 2 Lymphedema Matters
Summer 2013
Executive Director Update
by Anna Kennedy
Matters newsletter. Drop us a line if you have ideas of
the type of news you would like to see covered in
future communications.
Website improvements
Be sure to check out the LAO website to
see changes we have made to make it
easier for our website visitors to find important resources. New buttons have
been added to the homepage on where
to find a therapist, how to locate a fitter
or product supplier, and which schools to
contact for lymphedema training.
Also new to our website, we have added
an option to buy or renew your membership online. Just click the “Join the LAO”
box on the homepage to fill our your
membership. You can also purchase or
renew your membership when you register for the conference - just click on the
“2013 Conference” box to learn more.
Partnering with other organizations
3M Canada sponsored a power breakfast at the Canadian Association of Enterostomal Therapy conference
recently in Toronto. I was honoured to be their guest
speaker and given the opportunity to promote awareness for lymphedema and the need for education.
We are very busy working on this years’ collaborative
national conference with the Canadian Lymphedema
Framework. Registration is now open, and delegates
will get the opportunity to hear from top experts on
lymphedema, including: Dr. Stanley Rockson, Dr.
Catherine McCuaig, Dr. Paula Stewart, and many
more. This year’s event will be held at the Sheraton
Toronto Airport and Conference Centre. Register now,
before the Early-bird deadline of September 1st!
Fundraising initiatives
We are currently organizing local fundraising events in
various communities and really need your help. With
no government funding, we rely on donations to support our operating expenses that produce the programs and services to the community. Please consider
ideas of how you can generate some donations for the
LAO. It can be as simple as organizing a street garage
sale or bake sale and donating the funds to the LAO.
Give us a call with your idea and we can support you
with flyers, posters and donor records etc. Or, if you
would like to join one of our already planned initiatives, let us know!
Communication
In an effort to be more connected on a regular basis
with our members – we hope you are enjoying our
regular electronic newsletters. These e-blasts ensure
that you stay informed of important news and events
between mailing of our quarterly Lymphedema
Summer 2013
Educational pamphlet
We are eagerly awaiting a new national
lymphedema educational pamphlet being
worked on by the Canadian Lymphedema
Framework. This educational tool will be
available to all provincial associations,
including the Lymphedema Association
of Ontario, to customize and distribute to
our key stakeholders. If you know of
lymphedema contacts who would benefit
from having these new pamphlets (i.e.
doctors, nurses, therapists, family members, or oncology clinics), please let us
know and we will reach out to them.
Books for Sale
We are always
encouraging our
key contacts at
hospitals in Ontario to purchase
two or three key
books about lymphedema for their patient libraries.
These books are valuable resources to newly diagnosed patients as well as experienced patients, caregivers and health professionals - there is something
for everyone.
You can help by asking the contact at the patient
library of your local hospital whether they would carry
lymphedema books and directing them to the LAO
website for a great selection of lymphedema books.
Summer Student
For the past six years the
LAO has been fortunate to
receive a subsidy from the
Canada Summer Jobs
Program to hire a university student. Our staffing
resources are limited, so
the support that a summer
intern gives, supplements
the work done by myself
and Shannon throughout the year. Aly Bishop, a second year Queens University BComm Student will be
focusing her efforts on helping us add more oncology
clinics, family physicians and other recipients to our
distribution list for lymphedema awareness flyers. She
will also support our fundraising efforts by creating
donor analysis and recruiting local businesses to donate supplies and services for our charity walk.
Lymphedema Matters
3
Ontario Lymphedema Certified Therapists
Barrie/Orillia
Etobicoke/West Toronto
Lana Boudreau RMT
705-716-0758
lana_boudreau@yahoo.com
Alison Glasbey RPT
416-251-2300
etobicokephysiosports@bellnet.ca
Cathy Petzoldt PT
705-794-3772
physio@me.com
Violetta Soffe RMT
Mobile 416-727-0020
violettasoffe@hotmail.com
Beaverton
Guelph
Sarah Cowley RN RMT
705-426-2894
Beamsville
Vivian Dim OT Reg(Ont) LLCC
289-897-8707
vivian@armmoretherapy.com
Brampton
Angela Hunt RMT LLCC ALT
905-495-7308
www.lymphedemawellnesscentre.com
Brantford
Pamela Monarch RMT
519-751-7096 ext.3414
www.pammonarchrmt.com
Burlington
Kimberly Boersen-Gladman RMT
905-332-6542
www.headtofootoasis.ca
Ramona Herman RMT ALT
905-319-2454
ramona@lara.on.ca
Durham Region
Jason Mandalentsis RMT ALT
289-388-6080
jason@durhamlymph.ca
Phyllis Christian RMT
905-721-3828
Mobile Therapist (Durham Region)
Renata DeForest RMT
519-993-2736 (cell)
renatarmt@bell.net
Kieu-Oanh Nguyen
519-837-2020/ 519-829-0282 (clinic)
www.guelphsportsmassage.com
Hamilton
Donna Lue Reise RN LANA
905-385-3176 or 905-523-4999
donnalue.reise@talspar.ca
Maureen Sawyer RPT
905-389-0869
www.msphysio.ca
Kingston/Brockville
Lynette MacKinnon RMT
613-507-3344
www.westendmassagetherapy.com
Jennifer Phillips RMT
Kingston 613-340-0306
Brockville 613-342-3333
Kitchener
Louise Danieli RMT
519-569-8555
qmtherapy@sentex.net
Janet Millward PT
Ayr, Ontario 519-632-9991
info@communityphysio.com
Swelling Solutions
519-749-0102 www.lymphcare.com
Catherine Burt RN, RMT ALT
Melody Southgate RMT
Rachelle Wright RMT CK ALT
London
Helen Murray RN London Lymphcare
Centre 519-913-0181
hlnmrr407@gmail.com
Midland/Penetang
Eryn Lorriman RMT
705-549-1700
www.georgianbaymassagetherapy.ca
Markham
Reshmi Cain RMT
905-471-5311
www.villagewellnessclinic.com
Ann DiMenna PT
Mobile-Toronto and Area 647-500-4771
www.anndimennaphysio.com
Milton
Rae Baron RMT
905-878-9041
raebaron@hotmail.com
Mississauga
Nancy Scagnetti RN RMT ALT
Mobile Therapist 905-607-8422
www.lymphedemawellnesscentre.com
Kimberly Tweedie RMT
416-569-5349
ktweedie@gmail.com
Newmarket
Rebecca Wilkinson RMT ADP ALT
905-830-9700
www.rebeccawilkinsonrmt.com
Legend—All therapists listed have all been trained in a LANA approved school where they received a minimum of
135 hours of post graduate training before obtaining their certification. The therapists are either Registered
Nurses (RN), Physiotherapists (PT), Occupational Therapists (OT) or Registered Massage Therapists (RMT) and
have provided proof of certification. Those who have certified in Aqua Lymphatic Therapy are indicated with ALT.
Disclaimer—Therapists pay a fee for listing their services. The LAO is not responsible for the services performed or
rates charged.
Fees—Hourly rates for lymphedema therapy can range from $70 to $140. Insurance plans will reimburse only to
the standard provincial rates of therapy that MLD is billed under. As an example, the Registered Massage Therapists Association of Ontario’s most recent standard rate is $93 for 60 minutes of treatment (including HST).
4 Lymphedema Matters
Summer 2013
North Bay
Richmond Hill
Susan Woodman RMT LANA
705-497-0683
caring_treatments@yahoo.ca
Sophia Finkel HD RMT
416-318-4135 Toronto & Richmond Hill
267 Finch Ave & 8905 Bathurst St
Oakville
St.Catharines
Caroline Bieze RMT LLCC
Oakville/Mississauga 905-339-3950
www.lymphatictherapist.ca
John Mulligan RMT LANA
905-687-1828
www.lymphedematherapist.com
Nancy Shoemaker RN RMT LLCC
905-465-2929
yourlymphcare@yahoo.ca
Cindy Schultz RMT
Port Health Clinic 905-684-6066
clcschultz@gmail.com
Ray Vickers RMT CK
Oakville/Milton 905-699-3451
rayvickersrmt@gmail.com
Sudbury
Orillia
Anne Dockendorff RMT
705-327-0457
annedockendorff@hotmail.com
Oshawa/Port Perry
Heather Cirone PT
Park Road Physio 905-438–1500
parkphysio@rogers.com
Chrystal Prosperi PT, ADP
705-522-0770
www.progressivetherapy.ca
Thornbury
Nadine Maraj-Nyiri RMT
416-569-2280 Mobile Therapy—GTA
Dalecliff Medical Centre
Petra Norris RN
416-841-3119 Toronto and Etobicoke
petra@connectandheal.ca
Catherine Paterson RMT
patersonRMT@ymail.com
647-351-2222 Yonge/Eglinton
Jo-Anne Racette RMT
416-465-8179
www.massageondanforth.com
Ly Raha RMT
416-446-5911
Lucy Romano RMT
Toronto Physiotherapy 416-792-5115
www.torontophysiotherapy.ca
Esther Epp-Kaethler RN ALT
519-599-6597
estherkaethler@hotmail.com
Toronto Lymphocare Centre
416-531-7612 or 705-458-2156
www.torontolymphocare.com
Tillsonberg
Niki Travers PT
647-701-5582 Spadina & Bloor
Massage Therapy Clinic
Jeanne Magashazi RMT
519-842-3702
jeanne.magashazi@gmail.com
Toronto
Ann Tustin RMT
416-460-4505 Yonge & Sheppard
Ann.tustin@sympatico.ca
Susan Sweetapple RMT
905-903-3850
susansweetapple@rogers.com
Sylvia Crowhurst RMT
416-537-3555
www.lymphaticdrainage.ca
Shanna Yee RMT
BayviewSheppard RMT 416-222-3768
shanna_yee_rmt@hotmail.com
Ottawa
Lisa Chau PT
Toronto Physiotherapy 416-792-5115
www.torontophysiotherapy.ca
Akari Yokokawa RMT
www.careforlymph.com Midtown/Mobile
akariyokokawa@gmail.com
Amy Xuemei Dai RMT
416-823-1559
www.amywellness.com
Unionville
Darlene Spence RMT
905-244-7223
www.burketonmassagetherapy.com
Catherine Croteau RMT
613-297-9325
www.croteaurmt.ca
Haley Rehab Clinic
613-422-5061 two locations
www.haleyrehab.ca
Louise Killens RPT
Mary Hutton RN
killensreid@rogers.com
Lindsay Davey PT
Toronto Physiotherapy 416-792-5115
www.torontophysiotherapy.ca
Monica McCarron RMT ALT
905-305-1411
www.labalaba.ca
Waterloo
Marnie Gallant RMT
416-732-5218 or 416-482-4476
mgallantrmt@gmail.com (Mobile)
Janmari Baas Ross RMT
519-884-4848
jbrossrmt@rogers.com
Danuta Valleau PT
519-534-1788
danuta@michaelmcluhan.com
Sasha Goudriaan RMT
416-523-8364
sashablij@yahoo.ca
Bernadette Tallon RMT
519-884-4848 btallonrmt@yahoo.ca
New Hamburg 519-662-9331
Sharon Evans ALT
Kinexions 519-371-8314
kinexions@bellnet.ca
Pam Hammond RMT
416-928-9650 Spadina & Bloor
Massage Therapy Clinic
Peterborough
Veronica Lelchuk RMT
416-315-0640
veronicarmt@gmail.com
Owen Sound
Janice Simmonds RMT
Ashburnham Massage
705-876-8561
Summer 2013
Lymphedema Institute of Toronto
416-929-9032 Dr. Sanjoy Kundu
www.lymphedemainstituteoftoronto.com
List your services here!
Send in the membership form
on the back page TODAY to
have your services listed in
the 2013 Annual Fall
Resource Guide
Lymphedema Matters
5
Lymphedema Association
of Ontario
Committed to improving
the lives of people
living with lymphedema
Medical Advisory Board
Miles Johnson PhD
Toronto Sunnybrook Centre
Ian Dayes MD
Hamilton Juravinski Centre
Robert Harris RMT CDT
Vodder International School
Donna Lue Reise RN CDT
Talspar Nursing Services
Susan Bowles RN
Odette Cancer Centre
International
Saskia Thiadens RN CDT
United States-NLN
Shetty Lee MD
Austria-Wittlinger Clinic
Neil Piller PhD
Australia-Flinders University
Board of Directors
Kim Gagan
Leona DiCasmirro
Janice Goldberg
Fran Suran
Ruby Kreindler
Dr. John Crawford
Barbara Foster
Ben Ciallella
Mathew Fawcett
Staff
Anna Kennedy
Executive Director
Shannon Moore
Outreach and Event Planner
Honorary Patron
Honourable David C. Onley
Lieutenant Governor of Ontario
Charitable Registration number
87165 5049 RR0001
4161 Dundas Street West
Toronto, Ontario M8X 1Y2
Toll Free: 1-877-723-0033
Fax: (416) 236-7604
info@lymphontario.ca
6 Lymphedema Matters
Corporate Members
3M Canada
www.3m.com
Academy of Lymphatic Studies
www.acols.com
Bauerfeind
www.bauerfeind.ca
BSN Medical - Jobst Inc.
www.jobst.com
Canadian Bandage Shoppe
www.cdnbandageshop.com
CertiCare
Ottawa 613-845-0168
Dr. Vodder School International
www.vodderschool.com
FarrowMed
www.farrowmedical.com
JoViPak
www.jovipak.com
Juzo
www.juzousa.com
Linotrade Ltd.
www.lympholino.com
Lymphedema Depot
www.lymphedemadepot.com
LympheDIVAs
www.lymphedivas.com
Norton School Lymphatic Therapy
www.nortonschool.com
Paradigm Medical Inc.
www.paradigmmed.com
Pascoe Canada
www.pascoecanada.com
Peninsula
www.lymphedema.com
Valco/Mediven
www.valco.ca
Wearease
www.wearease.com
Authorized Fitters
Absolute Health Care
Etobicoke 416-745-3303
Coulter’s Pharmacy London
www.coulterspharmacy.com
Med Support Pharmacy
www.dellpharmacy.com
McNiece T.E.N.S. Inc. SW Ontario
www.mcniecetens.ca
Renaissance Woman Georgetown
www.youngspharmacy.com
Shoppers Home Health Care
www.shoppershomehealthcare.com
The Nu Me Boutique Kitchener
www.numeboutique.com
Yurek Home Health London
www.yurekpharmacy.com
Support Groups
BRANTFORD - every second
Tuesday of the month.
Call Pam Monarch at
519-751-7096 x3414
KINGSTON - 5 times per year,
last Wednesday of a month.
Contact Sue Davies, Breast
Cancer Action Kingston
at 613-531-7912
WATERLOO REGION - last
Tuesday of each month at 7pm.
Call Melody Southgate at
519-749-0102
NORTH BAY - Lymphedema
Educational Workshop, once a
season. Call Susan Woodman
at 705-497-0683
OSHAWA - every 3rd Thursday
evening of the month, 7—9 pm.
For more information call
Hearth Place at 905-579-4833
OTTAWA - Both information sessions and exercise programs.
Call Breast Cancer Action
Ottawa at 613-736-5921 or
visit www.bcaott.ca
PETERBOROUGH - October 8th,
November 5tt: 6pm—7:30pm.
Jackson Creek Retirement. Call
705-876-3333 to register.
TORONTO - second Thursday of
the month, 10:00am—12:00 pm
at Wellspring. Call the LAO at
877-723-0033 toll free.
Lymphedema
Matters
is the official publication of the
Lymphedema Association of
Ontario (LAO).
Advertising
Queries about rates and deadlines for
advertising should be directed to the
LAO office.
Disclaimer
The LAO does not guarantee,
warrant or endorse any product or
service advertised in this
publication.
Summer 2013
Continued from page 1
Š We have started connecting with our members
more regularly through weekly e-blasts. Shannon
Moore (our indispensible Outreach and Event Planner),
has been sending electronic updates to all our members, to keep you informed as to what is new and exciting at the LAO. If you have not been receiving
these, please contact us to make sure we have your
most current e-mail. You can also now follow us on
Facebook and Twitter.
Š Our expanded use of technology continued at our
Annual General Meeting. We once again hosted this
meeting by webinar, allowing members from all across
the province to join us from the comfort of their
homes. We were grateful to Dr. Kathleen Francis, who
was our guest speaker and gave us an update on
lymphedema research initiatives.
Š Our fundraising through the Scotia Charity Challenge last fall raised over $22,000. This was largely
accomplished by a handful of people including our
Board members and their close family and friends.
Thanks to the teams in Kitchener, ThunderBay and
Niagara for holding their own local event. Although
this is an impressive amount for such a small group,
we hope to increase participation and donations this
year by holding our own walk, away from the crowds
and chaos of a downtown Toronto marathon. Check
out the back page for more details on where and when
this will be held, so that you can join us in Toronto or
in your local community.
We have some upcoming changes
This year, our beloved Executive Director, Anna Kennedy, announced her intention to scale back her involvement in the day-to-day operation of the LAO, to
allow more time and energy to her roles within the
lymphedema community at a Canadian and International level. This presents the LAO with a tremendous
challenge. Finding someone to replace Anna will be a
daunting task. She has been a remarkable driving
force in our organization and will be missed. Fortunately, Anna is not gone yet and she will be actively
involved in a transition plan to find and mentor her
replacement over the next 12 months.
This year, we must focus our goals
We no doubt have an interesting year ahead of us.
With the anticipated transition to a new Executive Director on the horizon, and a challenging economy, we
need to focus on strengthening our organization. We
must continue to build our membership, increase our
donations and double our fundraising efforts.
With all of our successes, the professional level of services we provide, and events we deliver, it is easy to
forget that we are still a very small organization. We
have two employees and a small, dedicated Board of
directors. We do not receive any government funding.
Everything we do, is funded by donations, membership fees and the modest revenues we attain from our
events and fundraising efforts.
This year we need everyone in the lymphedema community to pull together to support us. If we are to
continue to provide the high level of service that our
members have come to expect, we need your help.
If you are interested in lending a hand, please
give us a call. The larger our volunteer base, the
stronger we become. Please join us.
Kim Gagan is an Assistant Crown Attorney
and busy mother of 3 with a family history
of primary lymphedema. Kim was a founding LAO member in the mid-1990’s and
rejoined as LAO President since 2010.
Summer 2013
Lymphedema Matters
7
Sunday, September 29th, 2013
Help us help others...
For the first time we will be hosting our own walk in
Toronto, starting at the LAO office in Etobicoke. Join us in
promoting awareness by walking in a “sea of teal” while
raising funds.
Join us in
Toronto
Ottawa
Thunder Bay
and more...
•
•
•
•
All event donations support programs and services,
including our lymphedema help line, educational
initiatives, and the Big Book for Kids program.
Call us today to register: 1-877-723-0033
...one step at a time
Membership has its privileges
Your membership and donation make our work possible
Annual membership now offers two
valuable subscriptions for one low price
Name ______________________________ Street ________________________________________________
City ________________________ Province _______________________ Postal Code _____________________
Phone (day) ________________ (evening) ________________ Email _________________________________
1-Year
2-Year
Individual
† $50
† $95
Individual patients and their family members—annual membership fee includes an
annual subscription to Pathways, Canada’s Lymphedema Magazine, Lymphedema
Matters, as well as membership discounts to conferences and a single vote per adult
at the Annual General Meeting
Professional
† $150
† $275
Therapists, hospital staff, fitters and non-profit organizations; includes 5 copies of
each issue of Pathways, and the LAO local insert Lymphedema Matters, discounts to
conferences as well as notification of the AGM—non-voting member.
Therapist Listing
† $50
† $95
Added to the professional fee. Includes listing of services in newsletter and website
Corporate Listing † $250
n/a
Donation Amount † $250
† $100
□
Manufacturers and retailers; includes listing and website link on LAO’s marketplace
website plus listing in annual fall Resource Guide.
† $50
† $25
† Other ___________ Total Payment ______________
Cheque payable to the Lymphedema Association of Ontario
□ MasterCard
□
Visa
□
Amex
Card Number ______________________________________________ Expiry Date (mm/yy) _______________
Name on Card __________________________ Signature ________________________ Date ______________
Mail or fax your completed form to 4161 Dundas Street West, Toronto, Ontario M8X 1Y2
Š 416-236-7604