Psychosis and Family Intervention handbook
Transcription
Psychosis and Family Intervention handbook
Authors: Diane Gosselin, M.S.W. Hélène Viau, B.A., Social Work Contributors: Christiane Bergeron-Leclerc, M.S.W. Marc-André Roy, MD, FRCP, Psychiatrist Xavier De Vriendt, MD, FRCP, Psychiatrist Julie Lesage, B.A., Social Work, Myreille St- Onge, Ph.D, School of Social Work, Laval University English translation: Elizabeth Doyle, Certified Translator Cover: La danse des bouleaux Hubert-Antoine Wallot, MD, FRCP, Psychiatrist Production: Department of Communications Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale The production of this document was made possible through the financial contribution of AstraZeneca, in the framework of its training support program. Legal deposit Bibliothèque et Archives nationales du Québec, 2006 Bibliothèque et Archives Canada ISBN 978-2- 922451-25-2 All rights reserved © 2006 2601, Chemin de la Canardière Québec, Québec Canada G1J 2G3 www.rgiffard.qc.ca FOREWORD When it was first thought to look at the family of a psychotic individual, as portrayed in psychoanalytical theory and in communication theories, the family system itself came under suspicion and was perhaps even considered to be a condition for triggering the psychosis. Like some English-speaking groups, also working with families confronted with psychoses, a team from the Social Work Department of the Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale has been working for almost twenty years with a somewhat different and innovative approach, that of joining forces with the family to help it overcome the difficulties of living with a psychotic relative. A family intervention handbook was designed to share this team’s wealth of experience gained from the many adjustments made along the way while dealing with their clients’ problems. At first, this handbook was intended for the families of clients suffering from chronic psychosis, and its emphasis was on psychoeducational activities. It was used by the families of a clientele of young psychotic adults, offering a systemic approach to problems, both valuable in its capacity to help understand the family’s distress and effective in remedying it. Having been, like the social work team of the Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale, in relation with these families for a number of years, I was able to see how profitable it was for them to be accompanied in an enlightened, systematic and ongoing way. This family intervention handbook has become their survivor’s kit and rekindled their hope. Although this family intervention handbook was designed with individuals suffering from psychosis in mind, the principles and intervention methods it proposes can be extended to other mental health clienteles and be used, we hope, as a reference handbook by several teams and an encouragement to many families. Xavier De Vriendt, MD, FRCP Psychiatrist Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 3 TABLE OF CONTENTS FOREWORD..................................................................................................................... 3 ACKNOWLEDGEMENTS................................................................................................. 5 TABLE OF CONTENTS ................................................................................................... 7 INTRODUCTION............................................................................................................... 9 CHAPTER 1 PSYCHOSIS.............................................................................................. 11 Definition of psychosis ................................................................................................ 11 Manifestations of psychosis ........................................................................................ 12 Types of psychosis...................................................................................................... 14 Possible causes of psychosis ..................................................................................... 15 Treatment of psychosis ............................................................................................... 16 CHAPTER 2 CLINIQUE NOTRE-DAME DES VICTOIRES ........................................... 17 Description of the program at the Clinique Notre-Dame des Victoires........................ 18 Roles and functions of the Social Work Department................................................... 20 CHAPTER 3 FAMILY INTERVENTION PROTOCOL .................................................... 23 Theoretical foundations............................................................................................... 23 Application................................................................................................................... 26 PHASE I: Alliance ................................................................................................... 27 Assessment of the impact of the illness on the family: the family burden ........... 30 Assessment of the family system ........................................................................ 31 PHASE II: Sharing of knowledge ............................................................................ 33 PHASE III: Integration of coping strategies ............................................................. 36 CHAPTER 4 ASSESSMENT INSTRUMENTS ............................................................... 39 Psychosocial and family assessment follow-up .......................................................... 40 Assessment of the family burden ................................................................................ 41 Assessment of the family's structure and functioning ................................................. 67 Rating scales............................................................................................................... 75 Report outlines .......................................................................................................... 101 CONCLUSION .............................................................................................................. 113 BIBLIOGRAPHY........................................................................................................... 115 APPENDIX: CONTENTS OF SIX MULTI-FAMILY MEETINGS..........................................119 Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 7 Intervention Handbook CHAPTER 1 PSYCHOSIS DEFINITION OF PSYCHOSIS Psychosis refers to a perturbed mental state, characterized by an ongoing inability to interpret reality, not attributable to cultural differences. It is mainly characterized by: • An impaired sense of reality and lack of judgement to varying degrees; • Disturbed mental functioning; • Appearance of first manifestations in early adulthood; • Brief, sporadic or prolonged periods. Roughly 3% of the population is affected. At the first manifestations of a psychotic episode, it is difficult to reach an accurate diagnosis. These first manifestations may lead to several different diagnoses. Clinico-diagnostic constellation of an early psychosis Depressive characteristics Delusional Disorder Schizophrenia Psychosis : Disorde Schizophreniforme Delirium Thought disorders Hallucinations Bizarre Behaviour Organic-based Disorder Substance-incluced Disorder Schizoaffective Disorder Bipolar Disorder Psychose Disoder Source: Grivois and Grosso, (1998) p 24. Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 11 CHAPTER 2 CLINIQUE NOTRE-DAME DES VICTOIRES 70 Dalhousie Suite 40 Québec, Québec G1K 4B2 Phone : (418) 694-2223 Fax : (418) 694-2003 E-mail : diane_gosselin_chrg@ssss.gouv.qc.ca helene_viau@ssss.gouv.qc.ca Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 17 CHAPTER 3 FAMILY INTERVENTION PROTOCOL THEORETICAL FOUNDATIONS Main studies involving psychoeducational intervention These studies have focused on four main areas or intervention targets by four research teams: • Crisis anticipation and resolution: Goldstein (1981), Los Angeles; • Modification of expressed emotion: Leff, Kuipers, Berkowitz, Eberlein-Vries and Sturgeon (1982) and (1990), London; • Communication and learning of problem-solving skills: Falloon, McGill, Boyd and Pederson (1987), Los Angeles; • Stress management: Anderson, Reiss and Hogarty (1986), Pittsburgh. These teams share a common goal: to reduce the environmental stressors around the psychotic individual and in his/her family. Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 23 CHAPTER 4 ASSESSMENT INSTRUMENTS To make it easier to understand how the assessment instruments are used and why the reports are completed, this chapter presents the tools developed and each of the instruments used. The form Psychosocial and Family Evaluation Follow-Up (page 40) is the evaluation checklist. Ideally, information should be gathered in two stages, once at the beginning and once at the end of the intervention. Next comes the questionnaire on Sociodemographic Information (page 42-46), including, at the end, some information on the respondents’ state of health (relatives or significant others). The section on the Assessment of the Family Burden (pages 47-65) follows, with three questionnaires covering the objective and subjective impact of the situation. Up to here, only the relatives or significant others playing a parental role complete the evaluation. Following this, an Assessment of the Family’s Structure and Functioning in daily living is conducted. The two selected instruments are among the most used in clinical research (Benoît, Malarewicz, Beaujean, Colas and Kannas, 1988). It should be noted that these instruments can be completed by all family members who are fourteen years of age and over. Although a version for clinicians exists, we opted for self-evaluation by each family member, which enables us to see how each member perceives the family’s functioning. Following these evaluations, a rating scale makes it possible to compile and interpret the information (pages 75-100), while two report outlines (pages 101-112) facilitate the professional’s clinical appraisal both in terms of evaluation and possible avenues for intervention. Centre hospitalier Robert-Giffard, Institut universitaire en santé mentale Page 39