Caring for Your Ostomy at Home
Transcription
Caring for Your Ostomy at Home
Caring for Your Ostomy at Home www.libertymedical.com • 1-877-812-7428 Welcome Home! It must feel good to sleep in your own bed again.You may be feeling anxious about caring for your ostomy at home. You and your family, most likely, have learned basic ostomy education in the hospital. Emptying your pouch is essential to learn because this is what you will be doing most often. As you continue to recover, changing your pouch will become easier. Home care nurses may be helping you practice ostomy care at home. If you are feeling sad about the ostomy, keep in mind that the surgery was necessary to correct or bypass a medical problem, whether on a temporary or permanent basis. This booklet will provide you with information and useful tips to ease your adjustment at home. Keep a positive attitude and take one step at a time. You will feel more confident once you care for your ostomy by yourself. Keep practicing, and before you know it, ostomy care will fit into your daily routine and you will return to your normal activities. Let’s Review, What is a Stoma? The stoma refers to the piece of intestine that you see on your belly. No matter what type of ostomy you have, stomas have common features. A normal stoma is: • Pink-red in color • Moist like the inside of your mouth • May slightly bleed when rubbed • May move and change shape • Without nerve endings for touch picture of normal stoma Even though a red stoma looks like it should hurt, it doesn’t! The stoma stays red and may bleed slightly when cleaned because of a rich blood supply within the tissues. After surgery, you may see sutures (stitches) around the outside of the stoma which will gradually dissolve. The stoma is also swollen after surgery which will decrease in size over 6-8 weeks. You will not have control over when the stoma will pass waste. When the waste is ready to leave the body, it will pass through the stoma into the pouch on your belly. The stoma is unique to you, depending on your body shape and the way the stoma was made. Your stoma may be: • Round, oval, or irregular in shape • Even with the skin, protrude above the skin level or pulled inward below the skin level • Located on either the left or right side of the belly www.libertymedical.com • 1-877-812-7428 How was your stoma made? • End stoma – The functioning end of the intestines is brought to the belly, is turned back on itself (like a turtleneck sweater) and is attached to the skin with sutures. There is only one opening to pass waste. The other end of the intestines is either removed, sutured closed, or is brought up to the belly as a second end stoma. Since the second stoma is non-functioning, it will only pass mucous. • Loop stoma – A loop of intestines is brought to the belly and usually a temporary device (rod or tube) holds the loop up until healing occurs. An opening is made only in the top part of the loop exposing two openings into the stoma. The functioning opening will pass waste, the other will pass mucous. Usually a loop colostomy or ileostomy is made when it is intended to be temporary. What Type of Ostomy do you Have? • Colostomy – a portion of the large intestines (colon) is rerouted to the belly to allow stool to exit a stoma. This is performed after a portion of the colon has been removed or bypassed. • Ileostomy – the ileum section of the small intestines is rerouted to the belly to allow stool to exit a stoma. This is performed after the colon has been removed or a section of the intestines is bypassed. • Urostomy – a passageway is made for urine to exit a stoma on the belly. This is performed when the bladder is removed or bypassed. Colostomy IIeostomy Urostomy www.libertymedical.com • 1-877-812-7428 Products Products You left the hospital wearing a pouch that was chosen for you by the WOC Nurse or hospital nurse. There are many types and brands of ostomy pouching systems and accessories on the market. Once you feel confident with your ostomy care, you may want to try other products. Sometimes, a change in products is necessary due to allergies, body changes, or insurance coverage. Let’s review some pouching options. A pouching system consists of a skin barrier and pouch. The skin barrier will be either a combination of a barrier disc and tape border or contain a full barrier backing. There are 2 types of pouching systems: • One-piece system – The skin barrier and pouch are combined and applied as one system. • Two-piece system – The skin barrier and pouch are separate pieces and can be applied separately or together. One-piece Two-piece A Two-piece B www.libertymedical.com • 1-877-812-7428 Skin Barrier The adhesive pectin disc is designed to fit closely around the stoma. This tan disc protects the skin and provides a seal to prevent leakage. It is essential for the barrier opening to be the right size around the stoma. Skin barriers come in various styles: cut-to-fit (you cut to the stoma size), pre-cut, and a moldable option. Here are tips to finding the correct size opening for the cut-to-fit style: • Use a measuring guide. • Find the hole on the guide that fits closest to your stoma without touching it. • Trace with a pen the selected hole on the back of the barrier. • Cut the barrier slightly larger than the traced hole. If your stoma is oval, cut a oval shape instead of round. If you are using a pre-cut or moldable skin barrier, follow the manufacturer’s guidelines for sizing. Skin barriers also come in a convex style. The barrier is shaped like a shallow bowl. Convexity is mainly used for stomas that are below skin level or are even with the skin to provide a better seal and increase wear-time. Pouches You, most likely, came home from the hospital with a basic postoperative pouch. The pouch is clear in order to observe the color and amount of waste. Now that you are home, your needs will change and more options are available to you. For instance, if you have a colostomy, you may want to switch to a beigecolored pouch with a filter to release and deodorize gas. Let’s review other options from various manufacturers: Drainable Pouches (for colostomy and ileostomy) • Pouch lengths 7”, 9”, 10”, 12” • Clear (transparent) or beige (opaque) • With or without filter • Integrated pouch closure or separate clamp, wide-outlet pouch tails • One or two-sided comfort panels • High output pouches with spout or integrated closure, 12” • Pediatric sizes Closed-end Pouches (usually for descending or sigmoid colostomy; 1-2 stools / day) • Beige (opaque) or clear (transparent) with or without filter, lengths 8”, 9” • Mini-Pouch with comfort panel, lengths 6”, 7” • Cap with filter • Pediatric sizes Urinary Pouches (urostomy) • Pouch lengths 7”, 9”, 10”, 12” • Clear (transparent) or beige (opaque) • Mini-pouch 6” length, transparent • Minicap, opaque (1/2-1 hour use – 100 cc urine) • Bendable tap or swivel tap • Pediatric sizes www.libertymedical.com • 1-877-812-7428 Accessories There are many ostomy accessories available on the market. These are products to aid in the care of an ostomy. Some common ones include: Pectin paste – Paste is used as an additional barrier to protect skin, increase pouch wear-time, and to fill in uneven surfaces around the stoma. Pectin powder – Powder provides a protective barrier for reddened, irritated skin. It also dries weepy skin or fills shallow wounds around a stoma before the application of the skin barrier. Powder can be sealed with water or a skin barrier wipe or spray. Skin barrier rings and strips – These are a variety of moldable, adhesive pectin rings and strips used as additional barriers to protect skin, increase wear-time, and to fill in uneven surfaces around the stoma. Skin barrier wipes / gels / sprays – These products provide a protective film on the skin under adhesives. These may also be used to seal pectin powder used on irritated skin around the stoma. Some brands contain alcohol which will cause temporary burning if the skin is open. No sting formulations are available to use without discomfort. Adhesive remover wipes – These wipes aid in the removal of adhesives and adhesive residue on the skin. Clean the skin with soap and water after using so the new barrier will stick to the skin. Belt – An ostomy belt provides additional security for those who desire extra support and better pouch wear-time. The belt should be worn at the level of the stoma. Learning Care Pouch Emptying You may wonder…how will I know when my pouch needs emptying? The pouch should be emptied when it is 1/3-1/2 full. It is important that the pouch does not become too heavy. It could pull away from the skin causing leakage. Overfilling may also create a bulge under your clothing. It doesn’t take long for you to sense pouch weight and the need for emptying. Pouches have various tail closures depending on the pouch type. A pouch draining stool may contain a removable clamp or may have a Velcro-like closure built into the pouch. Urinary pouches have a bendable or swivel spout. Here are some emptying tips: • Place a piece of toilet paper in the bowl to avoid splashing of pouch contents. • Sit on the back of the toilet so the pouch tail easily fits between your legs or you can stand or lean over the toilet. • After emptying, clean the pouch tail or spout before closing to avoid odor. www.libertymedical.com • 1-877-812-7428 Changing the Pouching System The first step in changing your pouching system is to gather supplies and place within easy reach. The bathroom is a logical place to perform ostomy care. It is important to see the stoma site by looking down at your belly or by looking in a mirror. Then carefully: • Empty your pouch before proceeding. • Gently remove the barrier from your belly by lifting the edge with one hand and pushing down on the skin with the other hand. It may work best to begin at the top of the barrier and work downward so you can see what you are doing. Water or adhesive remover wipes can assist with pouch removal. • Wipe the stoma and skin with toilet paper to remove waste. Gently wash the stoma and skin with warm water and a washcloth or paper towel. If using an adhesive removal wipe, clean the skin with mild soap and water to remove residue. • If needed, carefully shave unwanted hair around the ostomy site, using an electric razor. • Look at the stoma and skin to make sure all is healthy. Sometimes there will be temporary redness on the skin when you remove your pouching system. Pay attention to any areas that are sore. • If the skin around the stoma is irritated, apply pectin powder. Dust away excess powder and dab lightly with water or a skin barrier wipe and allow to dry. If the skin is normal, you can apply a barrier wipe if you have been instructed to do so. Allow the skin to dry well. • Re-measure the stoma. Make sure your skin barrier (two-piece) or one-piece pouch is ready to apply. If using a cut-to-fit system, cut the barrier or pouch slightly larger than the stoma size. • If using a second barrier, such as paste, adhesive ring or strip, apply either around the stoma or around the opening on the back of the barrier after removing the paper lining. • Apply the skin barrier or one-piece pouch over the stoma (after removing paper lining) and spend a few minutes pressing down around the stoma and the barrier. Apply the pouch onto the barrier if using a two-piece system. Cover the pouch with the warmth of your hand to increase the bond between the barrier and the skin. • Secure the pouch tail with a clamp or built-in closure, or close the spout on a urostomy pouch. www.libertymedical.com • 1-877-812-7428 The Do Not’s of Ostomy Care Don’t use gloves or gauze as in the hospital. Don’t use soaps with oils, creams, or fragrances. Don’t use baby wipes or towelettes with lanolin, oils, or fragrances. Don’t use alcohol or other chemicals to clean the stoma site. Don’t flush ostomy products in the toilet. Don’t forget to discard used products in a small plastic bag. The Do’s of Ostomy Care Do measure your stoma weekly for 8 weeks, then as needed. Do change your pouch when the stoma is least active, usually before eating and drinking. Do change your pouch at least 1-2 times each week. Do change your pouch promptly if itching, burning or leakage occurs. Do talk to your WOC Nurse if you are changing your pouch more often than expected. Do store ostomy supplies in a cool, dry place. Colostomy Colostomy To better understand your colostomy, let’s review the normal digestive system. Basically, the digestive tract is one long tube from the mouth to the anus. The organs that make up this tract have various sizes and functions. Mouth – starts digestion Esophagus – carries food to stomach Stomach – churns & turns food into liquid Small intestines – digests & absorbs nutrients; about 22 feet long Large intestines – (colon) absorbs water & stores stool; about 5 feet long; divided into sections: • Cecum – about 3 inches; appendix present • Ascending – right side belly • Transverse – extends across belly • Descending – left side belly • Sigmoid – lower left belly; s-shaped • Rectum – stores stool until passed • Anus – body exit for stool www.libertymedical.com • 1-877-812-7428 A colostomy (colon + ostomy) can be located anywhere in the colon. A colostomy is named for the section where the ostomy is present. For example, if the colostomy is located in the sigmoid part of the colon, it is a sigmoid colostomy. The more right-sided the colostomy is, the looser the stool will be. It will also require more frequent emptying of the pouch. Pouch emptying usually ranges from 1-3 times each day. If your anus has not been removed, it is normal for you to pass mucous at times through the anus. It may be watery or thick, varying in color from white, yellow or brown. You will get an urge to have a bowel movement and will pass mucous. Sit on the toilet and satisfy the urge. Stool Consistency Cecostomy - fluid stool Ascending colostomy - fluid to semi-fluid stool Transverse colostomy - mushy stool Descending colostomy - semi-mushy to formed stool Sigmoid colostomy - solid stool It is important to be aware that stool consistency will also vary depending on diet & fluids, medications, and activities. Once you are eating a well balanced meal and back to your routine activities, you will get a better sense as to your “new normal” stool consistency and frequency. Constipation and diarrhea can still occur with a colostomy. Reasons why constipation may occur include certain medications, not drinking enough fluids or eating enough fiber, just like before you had a colostomy. Increasing fluids and taking a mild laxative recommended by your doctor, may be helpful. Diarrhea can occur for a variety of reasons, such as viral or bacterial infections. Eating foods which thicken stool may be helpful, as listed in a later food table. Be aware that diarrhea can lead to dehydration. Increase your fluid intake during this time. Colostomy Irrigation Irrigating a colostomy is a method of control for those with a descending or sigmoid colostomy. Basically, a colostomy irrigation is an enema given into the stoma. The goal is to remove stool that would be passed that day. It takes time and patience to learn. Some people are controlled enough to only use a stoma cap instead of a pouch. If you are interested in this option, talk to your surgeon and WOC Nurse. It is important to be properly trained in the procedure. www.libertymedical.com • 1-877-812-7428 Ileostomy Ileostomy To better understand your ileostomy, let’s review the digestive system and how it has been altered with your surgery. Basically, the digestive tract is one long tube from the mouth to the anus. The organs that make up the digestive tract have various sizes and functions. Mouth – starts digestion Esophagus – carries food to stomach Stomach – churns & turns food into liquid Small intestines – absorbs nutrients; about 22 feet long; consists of 3 sections: • Duodenum – about 10 inches long • Jejunum – about 9 feet long • Ileum – about 12 feet long Large intestines – (colon) absorbs water & stores stool; about 5 feet long Anus – body exit for stool www.libertymedical.com • 1-877-812-7428 Usually an ileostomy (ileum + ostomy) is located in the lower part of the ileum near where the small intestine attaches to the large intestine. Because of this location, an ileostomy is usually located in the right lower part of the belly. Ileostomy stool will vary in consistency from liquid to pasty. It is normal to empty the pouch 4-6 times each day. If your anus has not been removed, it is normal for you to pass mucous at times through the anus. It may be watery or thick, varying in color from white, yellow or brown. You will get an urge to have a bowel movement and will pass mucous. Sit on the toilet and satisfy the urge. Conditions Unique to an Ileostomy • Stool from the small intestines contains digestive enzymes which are irritating to skin. It is very important to protect the skin around the stoma with a good pouching system. • Diarrhea can still occur. It is normal for ilestomy stool to be unformed, however if the stool volume increases and turns liquid, you may have diarrhea. Become familiar with foods that thicken stool, as listed later in the food table. It is also important to drink plenty of fluids (10-12 eight oz glasses daily) to avoid dehydration. Keep sport drinks available to help replace fluids. The symptoms of dehydration include: - Increased thirst - Dry mouth - Decreased amount of urine, darker urine - Muscle cramps, abdominal cramps - Weakness If symptoms of dehydration occur, increase fluids and notify your doctor. Sometimes, IV fluids are necessary. • Food blockage is possible with an ileostomy due to the smaller diameter of the small intestine. This can occur when high fiber foods have trouble passing through the stoma. Stool output will decrease, stop or turn liquid. Cramping, belly swelling, and stoma swelling are other symptoms. Actions to take if food blockage occurs: • Quit eating; drink warm fluids. • Apply larger opening pouch for stoma swelling. • Take a warm bath to relax belly muscles for blockage to pass. • Massage muscles gently around the ostomy or get in a knee-chest position and rock back and forth. • If the blockage does not pass over the next few hours or if you have nausea or vomiting, notify your doctor or go to the emergency room. • An abdominal x-ray will most likely be done. • Blockage can be relieved with a lavage procedure. The doctor or nurse will instill saline solution into the stoma through a catheter until the blockage is dislodged. • The belly may be sore for several days after the blockage is resolved. How to avoid? • Increased risk during the 8 weeks following surgery due to stoma swelling. • Avoid high fiber foods – see later food table. • Chew food well. • Eat potential problem foods in small amounts. • • Drink plenty of fluids. What to do? There are medications that may not be completely absorbed with an ileostomy. These include enteric-coated (hard) pills and time or extended release capsules. Discuss with your doctor and pharmacist. Laxatives should not be taken when you have an ileostomy. www.libertymedical.com • 1-877-812-7428 136829-Liberty_Txt.indd 1 7/7/11 8:26 AM Urostomy Urostomy To better understand your urostomy, let’s review the urinary system and how it has been altered with your surgery. The urinary tract consists of the kidneys, ureters, bladder and urethra. Urine is made in the kidneys and travels through small tubes called ureters to the bladder. Urine is stored in the bladder until it passes out of the body through the urethra. When the bladder is diseased or damaged, it may be removed, and a new system is created for urine to exit the body. The most common urostomy is called an ileal conduit. After the bladder is removed, a piece of small intestine (ileum) is isolated from the digestive tract to serve as a passageway (conduit) for urine. The ureters are attached to the ileal segment and one end is brought up to the belly as a stoma. The other end is sutured closed. The urine passes from the kidneys, through the ureters, out the conduit stoma into a pouch on your belly. www.libertymedical.com • 1-877-812-7428 After surgery, you may see small tubes called stents coming out of your stoma. These tubes are threaded through the stoma into the ureters to protect the surgical sites. Usually the tubes are removed in the doctor’s office several weeks after surgery. The urine from the ileal conduit will drain constantly. The urine will look cloudy at times due to mucous. The ileal conduit is made from small intestine and its job is to make mucous for lubrication. Over time, you may see a decrease in the amount of mucous in the urine. The ileal conduit stoma is usually located in the right lower part of the belly. Conditons unique to a urostomy • Dietary changes are not needed, other than drinking plenty of fluids, especially water (at least 8-10 eight oz glasses each day). There are foods that increase urine odor such as asparagus, seafood, and some spices. • A primary goal is to prevent urinary tract infections which can lead to kidney problems. Fluids flush the urinary system which decrease bacteria overgrowth. Urinary pouches contain an anti-reflux device to keep urine from bathing the stoma. Emptying the pouch regularly and using a night drainage system can also help. A night drainage system is a large urine collection bag or bottle with tubing that is connected to your pouch while you sleep at night. This keeps you from having to get up at night to empty your pouch. The collection bag or bottle must be emptied, rinsed, and allowed to dry every morning. Every few days the bag or bottle should be cleaned with a commercial urine cleanser or with a water-vinegar solution. Mix 3 parts water to 1 part white vinegar and allow the solution to soak for 1 hour. Make sure the drainage collection bottle or bag thoroughly dries. The symptoms of a urinary tract infection are: • Cloudy, dark urine (remember, mucous strands may also make the urine appear cloudy) • Strong smelling urine • Fever • Back pain in the area of the kidneys • Nausea and Vomiting • Fatigue Notify your doctor if these symptoms occur. You may have a urine culture done and be placed on antibiotics. www.libertymedical.com • 1-877-812-7428 Diet/ Activities Diet/Activities You can live an active lifestyle with an ostomy. You just have to believe that you can! It will take time and some adjustments, but you will be able to do normal things, like going out to eat, working and enjoying leisure activities. Let’s review how the ostomy will fit into your activities of daily living. Diet It is generally recommended eating a low fiber diet for the first 6 weeks after intestinal surgery. The intestines are swollen and it may be harder to pass high fiber foods. Gradually add foods back into your diet. Eat slowly and chew food well. Those with colostomies will later be able to eat what they want. Those with ileostomies will always need to be cautious with high fiber foods. High Fiber Foods Popcorn Celery Nuts Meats with casings (hot dogs, sausages) Fruits & vegetables with skins and seeds Mushrooms Coconut Dried fruits Chinese vegetables Cabbage family www.libertymedical.com • 1-877-812-7428 Become aware of the effects of food on your stool. There are foods that loosen stool, thicken stool, and those that cause gas and odor. The Effects of Food Foods that loosen stool Foods that thicken stool Foods causing gas and odor Fruit juices Applesauce Asparagus Baked Beans Bananas Cabbage family Spicy foods Boiled rice Dairy: Milk / Eggs / Cheese Cabbage Creamy peanut butter Fish Broccoli Tapioca pudding Corn Milk Potatoes without skins Dried beans and peas Raw vegetables & fruits Cheese Spicy foods Chocolate Pasta Carbonated drinks Fried foods Marshmallows Beer Gas & Odor It is normal to pass gas and have stool odor. If you have an ostomy that drains stool, you can no longer control when the gas will be released from the stoma. What causes gas can differ, however there are some general tips to know. • Gas can occur from swallowed air, such as drinking through a straw, chewing gum, talking while eating, sucking on hard candy, and smoking. • Get to know which foods cause YOU to have gas. Use the food table as a guide, but it can differ from person to person. • If you feel ready to pass gas through the stoma, place you arm over the stoma to muffle the sound. • Talk to your doctor or pharmacist if you need medication to reduce gas. • Get to know which foods cause odor, using the food table as a guide. • Pouches are made of odor-resistant material. You should not have odor when the pouch is properly in place. Odor will be present when emptying the pouch in the bathroom. The place where everyone has stool odor! • You can use a pouch with a filter which deodorizes and releases gas. • A pouch deodorant can be used in the pouch to reduce odor. There are also deodorants to take by mouth to eliminate stool odor. • Gas and odor are more bothersome for a colostomy than ileostomy. There is more gas forming bacteria in the large intestine. www.libertymedical.com • 1-877-812-7428 Bathing and Swimming Water will not harm or go inside the stoma. You can return to taking baths, showering, and swimming. Here are some water tips: • You can bathe with your pouch on or off. • One method is to bathe without a pouch on your change day and keep the pouch on for other days. If your skin barrier has a tape border, blot this dry with a towel or a use a hair blower on a cool setting. • If bathing without a pouch, use mild soap that does not leave a residue. • Check your pouch seal before swimming. Waterproof tape may be helpful on the barrier edges. • If enjoying a hot-tub, your pouch wear-time may decrease because of the heat. Clothing You will be able to wear your normal clothes after ostomy surgery. No one will know that you have an ostomy unless you tell them. Pouching systems are designed to be as flat as possible. Women can wear tight garments, such as pantyhose and panty girdles. Just be cautious about pressure from belts or tight clothing rubbing the stoma. You can wear your pouch inside or outside your usual underwear depending on your preference. There are companies that make specially designed ostomy underwear to provide fuller coverage and pockets for the pouch. Exercise/Sports Having an ostomy should not keep you from returning to exercise and sports you love. A few tips: • Ask your doctor when you can return to sports. • Return slowly to exercise until your strength returns. • Empty your pouch before starting an activity. • Pouch wear-time may be decreased with heavy exercise and perspiration. • If you engage in a contact sport, such as karate, talk to your doctor or WOC nurse. There are coverings on the market which can protect your stoma during such activities. Intimacy In time, you can return to a satisfying sexual relationship. It will not be the ostomy, but your attitude toward your ostomy that will affect your relationships with others. It is normal to feel sensitive about the change in your body image. Some surgical procedures can affect sexual function, which is usually discussed prior to surgery by your doctor and WOC Nurse. Some helpful tips when you feel ready: • Talk with your surgeon about when it is safe to resume sexual activities. • Be honest and talk with your partner about each others’ feelings and concerns. www.libertymedical.com • 1-877-812-7428 • Empty your pouch and check the pouch seal before proceeding. • Mini pouches are available to use for short periods of time, known as “passion pouches”! • Pouch covers and specially designed underwear and lingerie may enhance your comfort. • Seek professional help if you are unable to physically or emotionally return to a satisfying sexual relationship. Ask your doctor or WOC Nurse for assistance. Travel The most important thing about traveling is to not forget your supplies! Other tips include: • Carry extra supplies for unexpected events. • Carry a list of supplies with product names and Liberty Medical’s numbers in your purse or wallet. • Watch what you eat and drink in other countries. • If you are flying: – Pack your supplies in carry-on luggage. – Pre-cut your skin barriers to avoid scissors on the plane. • If you are driving: – Do not put supplies in the trunk where they will get overheated. – Make sure the seatbelt does not rub the stoma. You can protect the stoma with a small pillow or towel if needed. Skin Problems Skin Problems The skin around the stoma (peristomal skin) should look normal, without redness, rash or irritation. The skin will usually feel sore if it is damaged, but not always. Be sure to look at your skin at each pouching system change. There are various reasons why skin problems occur, some common ones are listed. • A pouching system that does not fit right may lead to leakage and skin problems. People with ileostomies have a greater risk for skin damage due to small intestinal enzymes in the stool. However, those with colostomies and urostomies can experience skin problems too. Skin damage may be redness, irritation or open, weepy skin. Some tips to prevent and treat skin problems include: – Re-measure the stoma regularly the first 8 weeks to down-size your barrier opening as your stoma shrinks. – Change your pouching system regularly before leakage. – Consider other pouching systems or accessories for a better fit. – Use pectin powder to treat skin until healed. – Contact your ostomy nurse or doctor if the skin does not heal. www.libertymedical.com • 1-877-812-7428 • Allergies can develop to any products you are using. This can occur anytime, even if you have been using the same product for a long time. The skin may itch, blister, develop a rash, or become weepy. The skin problem may match the shape of the product, such as under a tape border. Ostomy tips include: – Patch test products on the other side of your belly to check for redness, itching, and irritation after 48 hours. Change to another product if needed. – Talk with your WOC nurse or supplier for alternate products. – Contact your WOC nurse or doctor if the skin does not heal. • A skin infection can occur. Moisture at the ostomy site may contribute to a fungal infection (yeast) especially if you have recently been on an antibiotic. Symptoms include itching, redness, and rash with white or red bumps that continue to worsen without treatment. Tips include: – Treat the skin with antifungal powder prescribed by your doctor. – Change your pouching system more often during treatment. – Continue to treat the skin for a couple of weeks after the skin is normal. – Contact your doctor or WOC nurse if the skin does not heal. If any of the following problems occur, call your doctor: • Stoma turns darker in color • Stoma becomes longer • Excessive bleeding from the stoma or at the stoma-skin margin • No stool for 48 hours for colostomy; or 6 hours for ileostomy • Abdominal pain, cramps, severe diarrhea, and/or nausea & vomiting • Bulge that develop under or around your stoma • Peristomal skin problems that do not resolve. Support Resources This is All About ME ThissectionistobecompletedbyyouwiththehelpofyourWOC nurse,homenurseordoctor.Astimegoeson,youmayforget details.Youcanusethissectionasareference. My Surgery Ostomy Type: Colostomy___ Ileostomy______Urostomy______ Other____________ Stoma Type: End__________Loop__________ Twostomas____ Other____________ Name of Surgical Procedure:___________________________________ DateofSurgery________________________________________________ Hospital___________________________Phone#____________________ Address_______________________________________________________ Surgeon____________________________________________________ Phone#_________________________Fax#_________________________ WOC Nurse____________________________________________________ Phone#_________________________Fax#_________________________ Home Care Nurse______________________________________________ Agency________________________________________________________ Phone#_________________________Fax#_________________________ StomaSize___________Date_______________________ StomaSize___________Date_______________________ StomaSize___________Date_______________________ StomaSize___________Date_______________________ www.libertymedical.com • 1-877-812-7428 136829-Liberty_Txt.indd 2 7/7/11 8:26 AM My Ostomy Supplies Name_________________________________________________________ Phone Number________________________________________________ Website_______________________________________________________ Medicare Monthly Product Guidelines Quantity An Ostomy product listing with Medicare allowables is on the adjacent page. My Medications Primary Care Doctor____________________________________________ Phone #___________________________Fax #________________________ Address________________________________________________________ Allergies _______________________________________________________ Name of Medication 136829-Liberty_Txt.indd 3 Dosage Frequency Prescribing Doctor 7/7/11 8:26 AM Quick Reference Guide Ostomy Products Listing with Medicare Allowables Ostomy Product Quantity Allowed/Duration Pouches (closed) 60 per month Pouches (drainable) 20 per month Pouches (urinary) 20 per month Wafers (4 x 4) 20 per month Wafers (6 x 6) 20 per month Wafers (8 x 8) 20 per month Stoma cap 31 per month Lubricant 4 oz. per month Irrigation cone/bag 1 every 3 months Irrigation sleeve 4 per month Stomahesive paste 4 oz. per month Adhesive 4 oz. per month Adhesive remover (liquid) 8 oz. every 3 months Adhesive discs 10 per month Convex inserts 10 per month Ostomy belt 1 per month Appliance cleaner 16 oz per month Tape (depending on tape width) 1-2 rolls per month Skin barrier wipes 3 Boxes/50 every 6 months Ostomy deodorant, liquid or tablet No set allowable amount Drainage bottle 1 every 3 months Drainage bag 1 per month Ostomy absorbent packets 90 per month Medicare allowables may change. Liberty is not responsible for typographical errors. www.libertymedical.com • 1-877-812-7428 136829-Liberty_Txt.indd 4 7/7/11 8:26 AM Support Resources United Ostomy Association of America (UOAA) This is an association of affiliated, non-profit support groups committed to improving the quality of life for people who have, or will have an intestinal or urinary diversion. The Phoenix magazine, their official publication, is an ostomy patient magazine that is published four times a year. 1-800-826-0826 www.uoaa.org Wound, Ostomy, and Continence Nurses Society (WOCN) The professional organization of nurses who specialize in wounds, ostomies, and continence issues. Most hospitals have WOC Nurses (previously known as ET Nurses) to assist ostomy patients. For information regarding WOC Nurses in your area, contact national headquarters. 1-888-224-WOCN (9626) www.wocn.org American Cancer Society (ACS) An organization committed to fighting cancer through research, education, patient service, advocacy, and rehabilitation. 1-800-ACS-2345 www.cancer.org Crohn’s and Colitis Foundation of America, Inc. (CCFA) This is a non-profit, volunteer driven organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis. 1-800-932-2423 www.ccfa.org Liberty Medical Ostomy Supplier 1-800-921-9131 www.libertymedical.com or www.bestostomy.com Educational Content: Sally Matson, RN BSN MS CWOCN An ostomy nurse for 29 years, Sally has extensive experience both in adult and pediatric care. She has practiced in hospital, home health and skilled nursing facilities. www.libertymedical.com • 1-877-812-7428 136829-Liberty_Txt.indd 5 7/7/11 8:26 AM Visit us on the web at www.libertymedical.com © 2010-2011 Liberty Medical Supply, Inc. All rights reserved. Reproduction in whole or part without express written permission from the publisher is prohibited. Liberty Medical Supply, Inc., a Medco Health Solutions, Inc. company. This communication is not affiliated with Medco client programs or communications. Liberty and We Deliver Better Health are registered trademarks of PolyMedica Corporation. Ostomy back cover Rev.indd 1 7/7/11 8:23 AM
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