Patron - Breast Cancer Welfare Association Malaysia
Transcription
Patron - Breast Cancer Welfare Association Malaysia
Contents Patrons • Yang Mulia Raja Toh Puan Teh Zaitun Binti Raja Kamarulzaman • Puan Sri Datin Seri Dato’ Akmal Abdul Salam D.I.M.P. 2 3 Message from the President 4 BCWA Executive Committee • Annual General Meeting 5 5 Activities • Individual Psychosocial Support • Group Psychosocial Support • Non-medical Aids • Benefit Finding • Social Activities • Public Education and Awareness • Collaboration, Networking and Advocacy • Upgrading of Knowledge and Skills • Community Support 6 7 8 10 11 13 19 22 23 Acknowledgements 27 Cover: Photo reproduced with permission from Beth Meckley, USA BCWA ACTIVITY REPORT 2009 | 1 Patron Yang Mulia Raja Toh Puan Teh Zaitun Binti Raja Kamarulzaman has been the Patron since BCWA was formed in 1986, and has provided continuous support for the cause. Toh Puan has always found the time in her busy schedule to attend our functions. The Executive Committe and members of BCWA would like to record our gratitute and thanks to Toh Puan. 2 | BCWA ACTIVITY REPORT 2009 MESSAGE It has been an eventful 2009! I’m proud to say that we have recorded numerous milestones in 2009. This was the year that Breast Cancer Welfare Association (BCWA) launched its very own website, increased its staff strength to cater to its growing needs and introduced the New Patient Education session for newly diagnosed patients and above all the transition from a Klang Valley based Association to a national Association. Yes, BCWA is now known as BCWA Malaysia. This was also the year that BCWA carried out the Inaugural Jamuan Teh Malaysia (JAM), a tri-partnership with the Australian High Commission and National Cancer Society Malaysia. It is heartening to know that there is greater awareness on cancer and the early detection of breast cancer based on the response that we received for JAM. Volunteers at BCWA were hard pressed indeed to accommodate the numerous requests to carry out Breast Self Familiarisation Workshops throughout the year particularly during Pink October month. Patron Puan Sri Datin Seri Dato’ Akmal Abdul Salam D.I.M.P. Being a Patron to BCWA for more than four years has been a great journey with its share of sadness, joy and heartwarming experiences. The journey has been even more worthwhile as I have the blessings and support from my family with regards to my involvement in BCWA. As I feel blessed, I am also saddened by the fact that not every woman out there has the support from their spouse, family, friends and community at large. There is still prevalent amongst us the social stigma that a woman who has lost her breast to breast cancer has lost part of her femininity and is not quite a whole woman. There is a lot more that needs to be done to enhance public understanding of breast cancer and the attendant issues and problems faced by a newly diagnosed patient. The public at large need to change their mindset and be more supportive towards breast cancer survivors. A more open attitude towards breast cancer could encourage women living with breast cancer to come out and relate their experience and provide support for those that are about to start their breast cancer journey. This is in fact the main thrust of BCWA, where a survivor uses her experience to help another woman during her diagnosis, treatment and recovery from breast cancer. I hope to work with the team at BCWA to slowly change the perception of the Malaysian public in understanding breast cancer, to alleviate fear that breast cancer is a death sentence and to be more vocal in supporting this worthwhile cause. Women, be it wife, mother, sister, friend or even neighbour, figure prominently in everyone’s lives. They are the bedrock of human existence and the nurturing and dependable force in every household. I urge members of the public to come forward and support each and every woman in their live and let the woman know that you care and will be there for them when they need it the most. Breast cancer affects all Malaysians in some way, either directly or through someone you know closely therefore, everyone can make a difference no matter how small the act in supporting this cause. I look forward to a more eventful and meaningful 2010! BCWA ACTIVITY REPORT 2009 | 3 MESSAGE … our greatest strength lies in the contribution of our patrons and technical advisors, staff members and volunteers, as well as the executive committee members President Ranjit Kaur AMP All organisations count upon the contribution of their people as their greatest strength. Similarly, in BCWA, our greatest strength lies in the contribution of our patrons and technical advisors, staff members and volunteers, as well as the executive committee members. It is the exceptional contribution of time and effort of each of these individuals that makes the Association so special. Our volunteers have worked tirelessly, to create an environment of good governance and management. In 2009, we experienced changes for the better. On the office front we have strengthened our staff structure and numbers led by our Executive Director, Miss Jothy T. Govindan. Existing and new partnerships and collaboration locally and internationally now enable us to spread the word on early detection and also to continue to improve the quality of life for women with breast cancer. The launch of the Association’s website created an avenue for virtual connectivity and a link in relation to information, announcements and news regarding breast cancer issues and the Association’s development. Our response to changing demands in supportive care prompted us to introduce the New Patient Education sessions where newly diagnosed women gain useful information and knowledge to face the many challenges through the treatment and recovery process. We look forward to continue serving the community through our supportive care and public education programmes. Wishing all members and well wishers good health and happiness for 2010. 4 | BCWA ACTIVITY REPORT 2009 BCWA EXECUTIVE COMMITTEE Top, left to right: Ranjit Kaur, Chin Keat Yue, Siew Mei Quin, Lee Fay Ling, Margaret Lee, Bottom, left to right: Tammy Tam, Azizah Wayat, Ang Siew Lan, Jennifer Chong and Barbara Delaney In addition to their responsibilities as office bearers, the elected Executive Committee members (for March 2008 to March 2010), led subcommittees to ensure the development of the Association. President Ranjit Kaur - Training, Overall Management, National Collaboration, International Networking, Policy Issues Vice President/Secretary Chin Keat Yue - Public Education and Awareness Treasurer Siew Mei Quin - Finance, Young Survivors Executive Committee Lee Fay Ling Margaret Lee Tammy Tam Azizah Wayat Ang Siew Lan Jennifer Chong Barbara Delaney - Patient Support - Fundraising - Assistive Devices - Public Education and Awareness - Social Activities - New Patient Education - Sports and Dragon Boat Activities (upon invitation by the Executive Committee) Technical Advisors Dr Ednin Hamzah Dr Evelyn Ho Datuk Dr Ibrahim Wahid Dr Patricia Gomez Dr Teo Soo Hwang Prof Yip Cheng Har Lim Ching Wei - Palliative Care Physician - Consultant Radiologist - Consultant Oncologist - Consultant Breast Surgeon - Geneticist - Consultant Breast Surgeon - Legal Advisor Staff Executive Director - Jothy T. Govindan Projects Executive - Hoon Li Ping Public Education Executive - Melissa Archana John Volunteer Coordinator and Admin Assistant - Wong Mee Yee Annual General Meeting The 22nd Annual General Meeting was held at the premises of BCWA on 14 March 2009. A total of 56 members attended the meeting. BCWA ACTIVITY REPORT 2009 | 5 ACTIVITIES OF BCWA Support for Women with Breast Cancer PSYCHOSOCIAL SUPPORT Individual Psychosocial Support The Patient Support team consists of breast cancer survivors who are trained to provide psychosocial or emotional support to help individuals with breast cancer and their loved ones cope with life during and after diagnosis and treatment. Individual psychosocial support is offered in face-to-face sessions, through telephone and email. Patient Support Team volunteers visit patients in government and private hospitals regularly. They meet newly diagnosed patients, just before or after surgery, to help them and their families cope emotionally, mentally and physically with diagnosis, treatment and recovery. During the first visit, each patient is given a Comfy Kit which contains a temporary prosthesis (if needed), a stress ball, publications and a small carry bag. When the Comfy Kit was first launched in early 2004, it contained only a breast prosthesis, a stress ball and two publications entitled “Breast Cancer: How to Cope” and “We Have Breast Cancer Too.” But now, the number of publications has increased and they are available in three languages, namely, English, Bahasa Malaysia and Chinese. The titles currently available are as follows:• • • • • • Breast Cancer: How to Cope We Have Breast Cancer Too (English) Nutrition and Breast Cancer Exercise After Breast Cancer Breast Self Familiarisation (including Tamil) Information on BCWA (English and Bahasa Malaysia) 6 | BCWA ACTIVITY REPORT 2009 At present, the hospitals visited by the Patient Support Team volunteers include University Malaya Medical Centre (UMMC), University Malaya Specialist Centre (UMSC), University Kebangsaan Malaysia Medical Centre (UKMMC), Hospital Kuala Lumpur (HKL), Pantai Hospital Kuala Lumpur and Hospital Sg Buloh. Doctors from other government and private hospitals also refer their patients to BCWA for psychosocial support. The Patient Support Team volunteers also manage distress calls from individuals affected by breast cancer. In 2009 BCWA attended to 755 telephone calls, reached out to 552 breast cancer patients in hospitals and responded to 152 distress calls from all over the country. Most of the queries from calls and hospital visits include the following: • • • • • • • • • Uncertainty in breast cancer Emotional distress Diet and nutrition Exercise Care after surgery Chemotherapy Radiotherapy Prosthesis and its use Coping strategies Surviving cancer is hard, but bouncing back to normal life after cancer is even harder. The Patient Support Team volunteers make every effort to help women cope with their emotional and psychological distress which often accompanies a cancer diagnosis. In this regard, we engaged an intern counsellor (since September 2009) to offer counselling services on Mondays and third Saturdays. During his 15-week attachment with BCWA, the counsellor had over 12 consultations with breast cancer patients, including some with family members in face-to-face sessions and over the phone. ACTIVITIES OF BCWA Support for Women with Breast Cancer Group Psychosocial Support Therapeutic social and support activities are organised to help women with breast cancer cope and deal with their treatment and recovery, and eventually take control of their lives again. In these sessions, irrespective of educational, ethnic and social background, women with breast cancer are able to benefit from mutual support, fellowship and information on managing oneself. Group Sharing Sessions Group sharing sessions are held at 2:30pm on the third Saturday of each month where women and their families can seek solutions through mutual exchange of experiences and information on personal concerns and issues. These sessions facilitate a sense of camaraderie among the survivors where each newly diagnosed woman is able to get comfort, encouragement and reassurance from her peers. They also enable survivors to make new friends and continue their friendship outside the Association. The common issues discussed at the “New Patient Education Sessions” are: • Fear of treatment and concerns regarding the uncertainty in life after breast cancer • Breast reconstruction • Dietary concerns • Complementary therapies • Alternative treatment • Self and public image • Breaking the cancer news to other family members including children A total of 244 women with breast cancer attended the Group Sharing Sessions in 2009. Sarah attending to a patient during the New Patient Education session Group sharing session at BCWA premises New Patient Education Sessions The Executive Committee decided to expand BCWA’s services by introducing the “New Patient Education Session” which commenced in July 2009. It resembles an informal conversation on a one-to-one basis with a newly diagnosed woman together with or without her family members, and a Patient Support Team volunteer. The patient is encouraged to ask questions on coping and managing herself through breast cancer and making lifestyle choices. The privacy of the “New Patient Education Sessions” enables the newly diagnosed woman to be at ease and to express her feelings without any inhibition. In return, the volunteers are able to identify and address issues that really matter to the woman. Without the time limitation the New Patient Education Sessions allows the facilitation of quality counselling sessions. Subsequently, the newly diagnosed woman joins the Group Sharing Session when she is ready. Joining the Group Sharing session is symbolic of the decision to take a step forward. A total of 15 individuals have attended the New Patient Education Sessions since September 2009. BCWA ACTIVITY REPORT 2009 | 7 ACTIVITIES OF BCWA Support for Women with Breast Cancer 2 1. Temporary prostheses of different sizes 2. Mastectomy bras by BCWA 3. Thimble Thumb Team at work 1 NON-MEDICAL AIDS Prostheses BCWA offers free temporary prostheses of different sizes to women who have had a mastectomy (removal of the whole breast) before they are ready to be fitted with a silicone prosthesis. The temporary prosthesis which is inserted in the bra to maintain the shape of the breast, is included in the Comfy Kit. The feather-light weight and softness of the temporary prosthesis gives better comfort especially when the chest may still be sore after surgery and during/after radiotherapy. However, the temporary prosthesis is not ideal for long term use as it can go outof-shape easily and it is too light to maintain appropriate posture. Wearing an ill fitting and ultra light prosthesis can eventually lead to back problems. Better designed and heavier fibre prostheses are sewn by volunteers and offered at a minimum cost for women who cannot afford the silicone prostheses. These are made of either fibre or resin, or a combination of the two. A total of 544 prostheses were distributed out in Comfy Kits to breast cancer patients whilst 387 permanent prostheses were sold to breast cancer patients and survivors throughout 2009. 3 All prostheses available in BCWA are designed and stitched by the volunteers of the Thimble Thumb Team. The Thimble Thumb Team (TTT) gets together every Tuesday to design and sew fibre prostheses, give advice on modification of bras and help women with the fitting of both. TTT volunteers also practice their sartorial skills by designing and making casserole holders, pot holders, bags and other useful household items that are sold to raise funds for BCWA. BCWA also provides mastectomy bras at an affordable price and offers advice on modification to existing bras to accommodate the prostheses. A total of 399 mastectomy bras were sold in 2009. As a result of a donation of RM20,000 from Pantai Hospital Kuala Lumpur in October 2008, BCWA launched a prosthesis and mastectomy bra subsidy programme to supply bras and prostheses to breast cancer survivors from the lower income group. Candidates are identified by BCWA Patient Support Volunteers, nurses from the hospitals and prosthesis suppliers. One should see the surprise on the face of the newly diagnosed women when they are informed that they have been selected for this program. Some are even drawn to tears of gratitute when being fitted with the prosthesis and bra. BCWA also works closely with commercial suppliers of prostheses and mastectomy bras to enable woman to get good quality items. 8 | BCWA ACTIVITY REPORT 2009 ACTIVITIES OF BCWA Support for Women with Breast Cancer 1 2 1-3. Audio visual and reading materials at the library 4. Wigs for loan 3 4 Wigs Women undergoing chemotherapy generally experience temporary hair loss, in which case a woman may choose to wear a wig. BCWA gives out wigs on loan so that breast cancer survivors need not be burdened with the additional cost of purchasing this expensive hairpiece. Wigs are loaned out to survivors for eight months up to a year, or more at times. In order to ensure BCWA has sufficient wigs and taking into consideration the wear and tear, BCWA replenishes its stock of wigs every year from suppliers who specialise in making wigs for cancer patients. Used wigs that are in good condition are also accepted from donors. BCWA loaned out a total of 60 wigs in 2009. Reading Material A library of reading and audio visual materials covering information ranging from guidelines to narrations and rehabilitation are available in BCWA. Interested individuals are encouraged to visit the library and benefit from the abundance of educational and reference materials. In 2009, BCWA obtained permission from the Cancer Council Queensland to feature the following publications on BCWA’s official website. • • • • • • A Guide for Partners of Women with Breast Cancer After Breast Cancer Surgery: Looking Ahead Breast Reconstruction Eating Well, Being Active Tamoxifen Information Sheet Understanding Breast Cancer: Before, During and After Treatment Newsletter The Chatline is published and disseminated to members on a regular basis. In 2009, three editions of Chatline were published and circulated in April, July and December. BCWA ACTIVITY REPORT 2009 | 9 ACTIVITIES OF BCWA Support for Women with Breast Cancer 1 2 1. Celebrating Earth Hour at Sunway Hotel, Penang 6 2. Pretty Pink Crocs all in a row 5. Mission accomplished … arrival at Tanjong City Marina, Penang 7 4 3. MML proudly supporting the Pink Challengers in their challenge across the Penang Channel 4. The Penang Channel Challenge begins 3 5 6. Jubilation and celebration after accomplishing the Penang Channel Challenge 7. Almost there …the 2000m marathon race at the 1st Putrajaya International Dragon Boat Festival 2009 BENEFIT FINDING Dragon boat paddling for women living with breast cancer was introduced to BCWA in February 2005. Often breast cancer survivors are advised to avoid strenuous exercises and to refrain from activities requiring repetitive upper arm movements. Dragon boat paddling for women with a history of breast cancer started in 1996 as a result of a Canadian study to test the belief that repetitive upper body exercise in those treated for breast cancer reduces the risk of developing lymphoedema, a swelling of the arm and chest area that may develop after lymph node surgery and radiation therapy. Carefully monitored throughout training, paddlers showed marked improvement in both physical and mental health, several reported improved range of motion of their shoulders and no increase in the risk of lymphoedema. To our paddlers, facing the waves of the sea and pushing through the resistance of the water are synonymous with overcoming their battle with breast cancer, to give hope and strength to those currently battling the disease, and to signify the ability to bounce back and to lead vibrant and active lives after the physical and emotional trauma. Dragon Boat Paddling - Pink Challengers The Pink Challengers, the first Dragon Boat Paddling Team in Malaysia comprising breast cancer survivors was formed by BCWA in 2005. The Pink Challengers practice on weekends and participate in national and international races. The team stands by the theme “Paddle for Courage, Strength and Change”, giving support and encouragement to those who are in the “same boat,” 10 | BCWA ACTIVITY REPORT 2009 journeying through breast cancer diagnosis, treatment and recovery and, at the same time, demonstrating that there is indeed a meaningful and fulfilling life even after cancer. The key message that the Pink Challengers aim to bring to the public at large is “With early detection and timely treatment, one stands a chance to continue to live a normal and active life” thereby changing the attitude of the public towards breast cancer. Penang Channel Challenge, 29 March 2009 In March 2009, the Pink Challengers took a bold challenge to paddle across the 3.8 km stretch of the Penang Channel from Bagan Ajam in Butterworth to the Tanjong City Marina on the Penang Island. The feat, though completed in a sheer 32 minutes, took lengthy preparations, planning, training, networking, collaboration, and fundraising. Not only did they need to keep the team in shape, but they were also determined to drive home the message that, “There is life after breast cancer”. With the support of the local authorities, corporate companies, well-wishers and friends, the Penang Channel Challenge became a proud achievement for BCWA. 30th Penang International Dragon Boat Festival, 23 May 2009 With less than a two-month break, the Pink Challengers sprung into action again by participating in the 500m International Premier Race for the first time. Previously, the team only took part in breast cancer survivor races. Although the team did not win the race, participation in itself was an achievement for this group of gutsy ladies. ACTIVITIES OF BCWA Support for Women with Breast Cancer 5 1 2 1. Members having fun at the Deerland Park, Kuala Gandah 2. Yoke Leng bravely handling a slimy snake 4 3. Cool way to travel … on an elephant 4. Puan Sri Dato’ Akmal with participants at the Look Good Feel Better Workshop 3 1st Putrajaya International Dragon Boat Festival, 5-7 June 2009 Eager for more, the Pink Challengers took part in five races; at the inaugural Putrajaya International Dragon Boat Festival, namely the International Breast Cancer Survivors’ Race, Malaysia Ladies 22 Crew, Malaysia Ladies 12 Crew, International Women 22 Crew and 2000m Putrajaya International Challenge. They emerged second in the International Breast Cancer Survivors’ Race. Winning has never been a priority for the Pink Challengers. It is the determination to reach out to the public at large and to people who have been affected by breast cancer, which enables the Pink Challengers to strive to be “models of life and living”, full of grit, guts and fun despite breast cancer. SOCIAL ACTIVITIES Social activities, which also serve as informal therapeutic sessions, have been well-received among members of BCWA. The activities included craft sessions, self improvement activities and, visits to places of interest and culinary centres. Social activities which include survivors and family members have been found to be mutually beneficial, enabling the participants to spend quality time with their family, and, at the same time, they can also get to know the family members of other fellow survivors better. Some of the numerous social activities attended by BCWA members in 2009 are as follows: 5. Chu San receiving her lucky draw prize from Puan Sri Dato’ Akmal Look Good, Feel Better Workshop by Estee Lauder Companies, 5 August 2009 Estee Lauder Companies has been organising beauty makeover workshops annually for women with breast cancer. This fun-filled confidence-building workshop was well received in 2009, especially by those who were actively receiving treatment and who had just completed treatment. Looking good on the outside makes one feel good internally. In addition, chemotherapy can cause the skin to get dry and dull, with pigmentation and wrinkles becoming more visible. The survivors learned skin care and maintenance techniques. They were indeed very pleased with the portrait they each took back and some even commented that they looked better than their wedding photographs. This activity clearly provided a boost in selfconfidence and self-esteem for 11 new survivors who were transformed into magazine cover girls. Kuala Gandah Elephant Sanctuary Conservation Centre and Deerland Park, Pahang, 26 August 2009 Also known as the orphanage for elephants, the Kuala Gandah Elephant Sanctuary is steadily developing into one of the must-visit tourist attractions in Malaysia. Keen to explore this sanctuary, some 36 members and their family and friends signed up for this trip. Besides being a fun-filled event, it also served as an educational excursion as visitors learned factual information about elephants, the space conflict between human and wild elephants and the importance of elephant conservation. BCWA ACTIVITY REPORT 2009 | 11 ACTIVITIES OF BCWA Support for Women with Breast Cancer 3 1 2 1. Members feasting on the delicious seafood spread 2. Admiring orchids at the Orchid Farm in Bukit Melawati 3. Monti and Logi in action 4. Having fun at the Laughter Therapy Workshop 4 5 5. Members visiting Gardenia Bread Factory Bukit Melawati and a Seafood Feast, Kuala Selangor, 31 October 2009 Cleverly hidden in the outskirts of Selangor, one may wonder what there is to see and do in Kuala Selangor. This elusive town attracted 40 members and their family and friends to explore its hidden treasures. The Social Activities Organiser, an avid traveller herself, came up with an array of activities that left all participants satisfied at the end of the trip. The activities included a visit to a birds’ nest farm, an orchid farm, a paddy field, a mango orchard, and some sightseeing at Bukit Melawati. The trip culminated with a seafood feast in one of the fishing villages in Kuala Selangor which left all participants full and satisfied. Laughter Therapy, 21 November 2009 Laughing is therapeutic. Monti and Logi, famed for their political satire, conducted a session on Laughter Therapy. Some 31 members participated, just to be reminded that laughter is the best medicine; Laughter triggers the release of endorphins, the happy hormone, which makes one feel good, besides acting as the body’s natural painkiller. In fact, laughter therapy has been incorporated as complementary therapy in cancer treatment in some parts of the world. 12 | BCWA ACTIVITY REPORT 2009 Visit to Gardenia Bread Factory, 15 December 2009 According to a study www.OnePoll.com, the smell of freshly baked bread is top of the list for what makes Britons happy and it certainly can be ours too. A trip to the Gardenia Bread Factory garnered a total of 40 participants inclusive of their spouse and children. They were shown the whole bread-making process, a sneak peek into the factory’s operations, culminating with the distribution of free Gardenia Bread goodies for everyone. ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions January March Leno Corporation Berhad, Ipoh Royal Australian Air Force, Pulau Pinang Rotary Club Kelana Jaya University Tunku Abdul Rahman, Petaling Jaya Education is critical in changing behaviours regarding early detection and timely treatment of breast cancer. Public education programmes in the form of exhibitions, talks and workshops are conducted in different languages to educate the public on breast health awareness, including topics like breast self familiarisation, early detection of abnormal changes in the breast and living with breast cancer. These programmes are offered nationwide for all levels of the community including residents’ associations, service clubs, corporate companies, women’s groups, educational institutions and religious congregations. BCWA’s team of trained volunteers conduct public education programmes as well as train-the-trainer sessions. In 2009, BCWA’s team of volunteers delivered 45 presentations for more than 5,000 persons including girls, women and men of all ages. The presentation covered breast health, ways to do breast self familiarisation, adopting a healthy lifestyle and sharing of survivors’ cancer journey. One such event that requires special mention is Pink October, the breast cancer awareness month where exhibitions are organised jointly with Estee Lauder Companies and other partners at public venues in the Klang Valley. Educational materials pertaining to breast health are displayed for public view. BCWA’s public education materials on Breast Self Familiarisation are printed in four languages, namely, English, Bahasa Malaysia, Mandarin and Tamil and distributed to the public and to other breast cancer support groups in Malaysia. In 2009, 33,000 public education materials on Breast Self Familiarisation were distributed to the public. BCWA ACTIVITY REPORT 2009 | 13 ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions April Tunku Abdul Rahman College, Setapak St. John Ambulance at South City Plaza, Seri Kembangan Jalur Cahaya Sdn. Bhd., Shah Alam Golden Horses Health Sanctuary, Seri Kembangan Golden Horses Health Sanctuary, Seri Kembangan Hospital Kajang Berjaya Park Residents Association, Shah Alam Church of Jesus Christ of Latter Day Saints, Petaling Jaya June July Rakan Muda Seri Kembangan at New Era College, Kajang Primanora Medical Centre, Taman Tun Dr Ismail 14 | BCWA ACTIVITY REPORT 2009 ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions Kumpulan Ikram Sdn. Bhd.,Kajang International School Kuala Lumpur Sacred Heart of Jesus Church, Kuala Lumpur Villamay, Shah Alam St. John Ambulance at Summit, USJ DeGem, Bangsar August Australian High Commission, Kuala Lumpur Gudwara Sahib, Petaling Jaya Military Attaché Corp, Kuala Lumpur Lower Perak Club, Teluk Intan BCWA ACTIVITY REPORT 2009 | 15 ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions September Sanofi Aventis, Damansara Heights Total Sports Asia, Petaling Jaya Leo Burnett Malaysia Bangsar Village II Faculty of Business and Accountancy at University Malaya, Petaling Jaya Sikh Women’s Awareness Network (SWAN) at Sabha House, Kuala Lumpur October Estee Lauder Roadshow, The Gardens Harper’s Bazaar Pink Party at The Westin, Kuala Lumpur Estee Lauder Roadshow, Suria KLCC Awareness with HOGs at Hard Rock Cafe, Kuala Lumpur 16 | BCWA ACTIVITY REPORT 2009 ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions November Victoria Institution Old Boys Association ‘81, Kuala Lumpur Dati Wellness, Petaling Jaya Sikh Women’s Awareness Network (SWAN) at Gurdwara Sahib, Petaling Jaya Primanora CARES untuk Wanita Seminar by Primanora Medical Centre December SMK Convent, Sentul Sri Sathya Sai Centre, Petaling Jaya KBU Pink Bazaar, KBU International College Taman Muda Resident Representative Council with Area Youth Movement, Shah Alam Sensata Technologies Malaysia, Subang Jaya Panaron Sdn Bhd, Bandar Sri Damansara BCWA ACTIVITY REPORT 2009 | 17 ACTIVITIES OF BCWA Public Education and Awareness Tracking Our Whereabouts: Public Education/ Breast Health Awareness Talks/ Breast Self Familiarisation; Demonstrations and Exhibitions www.breastcancer.org.my We have Expanded! BCWA is continuously seeking to extend its supportive care services and creating greater awareness to a larger segment of society in Malaysia. This mission is now possible with the recent approval on BCWA’s name change by the Registrar of Societies. The Association which was previously known as Breast Cancer Welfare Association of Federal Territory and Selangor is now officially renamed Breast Cancer Welfare Association Malaysia. The Association hopes to make greater strides in creating a more breast health conscious society in Malaysia. 18 | BCWA ACTIVITY REPORT 2009 BCWA’s Virtual Presence In order to address the need for greater awareness and to reach out to various communities due to the diversity in geographical locations and age groups, BCWA launched its very own website, www.breastcancer.org.my in July 2009. The website not only aims to promote breast health but it also reaches out to younger women who are more IT savvy and rely on the internet for information. The website complements BCWA’s on-the-ground activities in educating the public on breast cancer, breast health and early detection of breast cancer. In addition, BCWA created its very own blog, www.bcwa.blogspot.com, to enhance interaction, knowledge sharing and exchange among BCWA members. To date the website has recorded 9,487 visitors since it went live. ACTIVITIES OF BCWA Collaboration, Networking and Advocacy 3 2 1. Guests at the Girls’ Nite Out 1 2. Natalie having a training session with the Pink Challengers 4 3. Li Ping at one of the Daffodil Day sites in Brisbane 4. Dr. Ednin, Prof. Yip, Ranjit, Tammy, Connie and Margaret at a dinner during the 15th UICC Reach to Recovery International Breast Cancer Support Conference in Brisbane, Australia BCWA contributes towards the improvement of the quality of life for women in general and women with breast cancer in particular through regular networking and constant communication with related organisations including government and private hospitals, Ministry of Health, Ministry of Women, Family and Community Development, cancer control organisations, breast cancer support groups, associations of health care professionals, hospices and palliative care services, women’s organisations, educational institutions and legal entities. Cancer Council Queensland (CCQ) BCWA has fostered a partnership with CCQ to improve the cancer control capacity of both organisations. The key strategies of this partnership lie in the exchange and collaboration of information, resources, literature, research, activities and expertise to enhance the development of staff and volunteers. International Union against Cancer (UICC) BCWA is a member of the International Union against Cancer (UICC) which is dedicated to global cancer control strategies. The knowledge transfer and development of BCWA’s staff and volunteers are fostered by the dissemination of UICC resources and information, Reach to Recovery Conferences and fellowship programmes. As part of the exchange programme, Ms. Natalie Wust, Community Fundraising Manager from CCQ visited BCWA in August to train staff and volunteers on potential fundraising strategies and to follow up on proposals she made during her visit in 2007. As a result, BCWA is implementing innovative fundraising events, namely, Girls Nite Out, Clip for a Cause and Orchid Day. Orchid Day, will be launched on 5 March 2010. It is modelled after Cancer Council Australia’s Daffodil Day, a successful fundraising programme since 1986. BCWA sent a staff member to CCQ to observe the Daffodil Day launch in 2009. This experience will be constructive in jumpstarting BCWA’s Orchid Day. As a key member of UICC, BCWA gains knowledge through updates on cancer control, research findings and the World Cancer Declaration. BCWA’s President, Ranjit Kaur is currently a member of the Board of Directors of UICC. In 2009, three members attended the 15th UICC Reach to Recovery International Breast Cancer Support Conference in Brisbane, Australia. In addition, BCWA President Ranjit Kaur, BCWA Technical Advisors Professor Yip Cheng Har and Dr Ednin Hamzah also attended the conference. At the conference, Professor Yip was awarded the 2009 RRI Medal for Health Professionals for her commitment to voluntary breast cancer support programmes. In 2009 both partners renewed this unique collaborative relationship which resulted in several desirable outcomes including capacity building of staff and volunteers. Malaysian Breast Cancer Council (MBCC) BCWA is a founding member of the MBCC, aiding the formation of a united front to facilitate the development of breast cancer control strategies in Malaysia. It centres on the issue of disseminating correct knowledge and evidence-based information on breast health and breast cancer, and, at the same time, demystifying the myths associated with breast cancer diagnosis, treatment, and prevention. BCWA ACTIVITY REPORT 2009 | 19 ACTIVITIES OF BCWA Collaboration, Networking and Advocacy 2 1. Volunteers and their care givers during the press conference at the Launch of HOPE Handbook for Cancer Caregivers 3 1 4 2. All ready for OPN, PC with HOGs looking stylish in their pink bras 3. The Pink Challengers roaring off with the HOGs to the Bangsar Village II during OPN 4. The HOGs at OPN 5 5. Models Margaret, Jing Yng, Christy, Zaharah and Carmen at the OPN Fashion show In November 2009, MBCC in collaboration with College of Radiology Academy of Medicine Malaysia, Venusbuzz and Lariche Community organised the Outrageously Pink Nite (OPN), which was last held in 2004. A breast cancer awareness event sponsored by Bansar Village II, OPN also served as a celebration of life for breast cancer survivors. The proceeds from OPN were channelled to the University Malaya Medical Centre Breast Cancer Fund. Ministry of Health The BCWA President is a member of the development committee of the Clinical Practice Guideline “Management of Breast Cancer” (2nd edition) under the Ministry of Health to improve health and supportive care for women with breast cancer. Malaysian Cancer Resource Hub Malaysian Cancer Resource Hub is a project supported by the American Cancer Society (ACS). It aims to act as a cancer information hub for the general public. This collaborative project involves a five-way partnership with the National Cancer Society of Malaysia, Malaysian Women’s Action for Tobacco Control and Health (My Watch), Hospice Malaysia, Cancer Research Initiatives Foundation and BCWA. This collaborative project is aimed at maximising limited resources to create a bigger impact in educating the public on cancer. This project is being finalised and is due to go online in 2010 hosted by the National Cancer Society of Malaysia. 20 | BCWA ACTIVITY REPORT 2009 National Council for Women’s Organisation (NCWO) NCWO launched its MenCare Book of testimonials in October 2009. BCWA collaborated by providing survivors for the panel session held during the launch of its vernacular editions of the MENCARE Book of Testimonials “HIS STORY HER STORY”. Malaysian Oncological Society The HOPE Handbook, A Guide for Cancer Caregivers is an initiative of the Malaysian Oncological Society (MOS) and Pfizer Malaysia. The handbook seeks to dispel common misconceptions and myths surrounding cancer and cancer care as well as to provide a guide on how caregivers can better understand the needs of their loved ones who are undergoing their cancer journey from diagnosis, treatment to recovery. BCWA assisted to identify cancer survivors and their caregivers who could contribute their experience and testimonies for this invaluable handbook. Australian High Commission The Australian High Commission has been supportive of BCWA’s dragon boat paddling activities. It has also taken the initiative to spearhead the inaugural Jamuan Teh Malaysia (JAM), a collaborative project between National Cancer Society Malaysia and BCWA. Her Excellency Ms Penny Williams, the patron of JAM has generously contributed her time and resources to this worthwhile cause. Collaboration: Kabul, Afghanistan, 2-8 August 2009 BCWA President Ranjit Kaur supported healthcare professionals to set up the Afghanistan Society Against Cancer. ACTIVITIES OF BCWA Collaboration, Networking and Advocacy 1 1. Kalpana (fourth from left) with the Thimble Thumb Team 2. Ergene staff working on the translation of BCWA materials 2 Ergene, Kyrgyz Republic Ergene, a cancer control non-governmental organisation in the Kyrgyz Republic has translated BCWA’s educational materials into the local language for their programme. The materials include “Exercise after Breast Surgery” and “Nutrition and Breast Cancer”. Educational Visit A Reach to Recovery volunteer, Mrs Kalpana Gupte from the Aastha Breast Cancer Group, Pune, India made an educational visit to BCWA on 16-21 May 2009. She gained invaluable knowledge on patient support programmes and prostheses-making. Knowledge Sharing Events BCWA staff and volunteers actively participated in the following knowledge sharing events: National 22-23 July 2009 Global Conference on Enhancing The Role of Philanthropy in Challenging Times, Kuala Lumpur 7–8 August 2009 Hospis Malaysia Palliative Care Workshop - Grief and Suffering, Petaling Jaya, Selangor 3 October 2009 Pantai Hospital Ipoh Ribbon of Life Medical Conference 5 December 2009 Seminar on PrimaNora CARES untuk Wanita International 22-25 June 2009 11th World Congress on Psycho-Oncology in Vienna, Austria 20-22 July 2009 Stop Cervical Cancer Conference in Capetown, South Africa 22-28 August 2009 Global Leaders Summit organised by the Lance Armstrong Foundation in Dublin, Ireland 4-5 September 2009 4th Bi-annual Breast Cancer Conference for Eastern Europe and Central Asia in Kyrgyzstan 3-5 November 2009 “Breast Cancer in the Developing World” Conference organised by Harvard School of Public Health, Boston, USA 9 August 2009 Hospis Malaysia Palliative Care Workshop- Facilitating Hope in Advanced Illness, Petaling Jaya, Selangor BCWA ACTIVITY REPORT 2009 | 21 ACTIVITIES OF BCWA Training 1 1-4. Reach to Recovery Training at BCWA 2 5-7. BSE Training Session to KBU Students and new volunteers at BCWA Premises 7 3 5 6 4 BCWA offers regular formal and informal training for volunteers, members of the public, medical students and healthcare professionals. In 2009, three major training sessions on breast health were conducted and attended by a total of 43 volunteers. Reach to Recovery Training, 31 July - 2 August Reach to Recovery Training is a training program for breast cancer survivors who have completed treatment and are ready to offer psychosocial support to help other women diagnosed with breast cancer. It is extended to volunteers in Malaysia and South East Asia and conducted at two levels, namely, basic and intermediate levels. Prostheses-making Training BCWA provides training in prostheses-making to ensure the ongoing supply of prostheses to women with breast cancer. The training is also extended to breast cancer support groups from other states who have indicated their interest in producing prostheses for survivors in their communities. BCWA organised a three-day basic-level Reach to Recovery Training on 31 July - 2 August 2009, which was attended by 15 breast cancer survivors. The training included theoretical sessions, skills building, role play and discussion sessions. Whilst this training equips the volunteers with skills and knowledge to offer psychosocial support to other women, it also offers therapy to the volunteers as they acknowledge and resolve their own psychological issues Breast Health Training for Trainers Breast Health Training is provided to volunteers who show an interest in volunteering for BCWA’s awareness road shows and public education programmes. It is conducted at two levels, namely, basic and intermediate, where the volunteers were trained on breast health awareness and breast self familiarisation methods. 22 | BCWA ACTIVITY REPORT 2009 4th Specialist Breast Care Nurse Course, 1 October 2009 Ranjit Kaur gave a lecture on Survivorship at the 4th Specialist Breast Care Course organised by Amanita Services Sdn. Bhd. Others BCWA conducts training for government and NGO staff such as nurses, students and other healthcare professionals as and when requests are received. The training mainly covers breast self awareness, communication skills and offering psychosocial support. ACTIVITIES OF BCWA Community Support 2 3 1. JAM Press conference at the Australian High Commissioner’s Residence on 13th July 2009 2. The official launch of JAM at the residence of Mrs Penny Williams 1 3. Jam hosted by Prince Court Medical Centre 5 4. JAM hosted by Manza at Prince Hotel and Residences 5. Volunteers getting the goodie bags ready for BCWA JAM 6. Ching Wei, calling for bids during an auction at JAM hosted by BCWA 6 The management and activities of BCWA are funded through membership subscription, which is nominal and through public donations, including annual donations from individuals and corporate organisations. Fundraising activities are critical for BCWA to continue with its services. In 2009, fundraising events reached out to people across Malaysia, engaging and involving them in various ways by which they could show their support for BCWA and its activities. BCWA thanks all well wishers for the invaluable support and contribution provided in 2009. Fundraising is also a tool to reach out to the community, to raise awareness and to educate the public on breast cancer. Jamuan Teh Malaysia (JAM) Modelled after the Cancer Council Australia’s Biggest Morning Tea, this event was initiated and supported by the Australian High Commission and co-organised by BCWA with the National Cancer Society of Malaysia (NCSM). It was officiated by Her Excellency Mrs Penny Williams, Australia’s High Commissioner to Malaysia at 4 her residence on 13 August 2009. The basic concept of this event is that anyone can host a tea party anywhere within the event’s time frame to help raise funds for these two cancer care organisations. They were also encouraged to simply support this event by attending the tea party or by purchasing the event’s keepsake items. A Host Kit which contained a host booklet, posters, flyers, donation forms, stickers, balloons, a donation box and FAQs was made available to anyone interested in hosting a tea party. This inaugural event attracted 36 hosts and raised nett proceeds of RM107,760.60 for both organisations. Some hosts came from as far as the northern part of West Malaysia. BCWA also hosted its very own JAM at BCWA’s premises and was attended by more than 80 guests. The emcee, Mr. Sham Sunder Binwani, a theatre celebrity and comedian, brought the tea party up a notch with his hilarious antics. The guests were kept entertained by an array of exciting activities such as lucky draw, auction and games with attractive prizes up for grabs. Since the guests had so much fun they vowed to participate next year, either as hosts or guests. BCWA ACTIVITY REPORT 2009 | 23 ACTIVITIES OF BCWA Community Support 2 1 1. 3 Lucky draw during the Girls Nite Out 2 and 3. Clip for A Cause at KBU College 4. Never too young to learn about breast health 5. Human pink ribbon at the Pink Walk 6. Cheque Presentation at the Estee Lauder Charity Gala Dinner 5 6 4 Girls Nite Out In 2009, BCWA introduced a new fundraising event, the Girls’ Nite Out, modelled after the Cancer Council Australia’s Girls’ Night In. Girls’ Nite Out at BCWA was hosted by Ms. Natalie Wust from Cancer Council Queensland. It was the first time that such an activity was organised at our premises. There was rip roaring laughter as members gamely participated in the “Name the Hunk”, “Peg Me Please” and “Cup Cake Decoration” contests. Lucky winners went home with attractive prizes from the Raffles draw. through various events organised in October. In 2009, a series of exciting activities was conducted in August and October. The activities included the Look Good, Feel Better Workshop, KL Tower Illumination, Walk for World Pink, Charity Golf, Charity Gala Dinner and Auction, and road shows during which breast self familiarisation pamphlets were distributed to the public. A total of RM402,000 was raised and divided amongst four organisations, namely; BCWA, Cancer Research Initiatives Foundation, College of Radiology and National Cancer Society of Malaysia. Clip for A Cause Another fundraising campaign adapted from Cancer Council Australia was ‘Clip for a Cause’, named after “Clip for Cancer”. It was hosted for the first time by the students of KBU International College at the KBU Pink Bazaar fundraising event. Six male students participated in this event during which three opted to wax their legs and three others shaved their heads bald. Pink Project with ACP Magazines BCWA was proud to support ‘The Pink Project’, an initiative by ACP Magazines and supported by its sister titles Harper’s BAZAAR, CLEO, The Malaysian Women’s Weekly and Cosmopolitan Malaysia. Pink October with Estee Lauder Companies Estee Lauder Companies has been supporting breast cancer awareness, care and research and at the same time raising funds in over 140 countries worldwide. The highlight of this campaign is in the month of October, which is the breast cancer awareness month. The partnership and support of the Estee Lauder Companies with BCWA for the past 13 years has been mutually beneficial and rewarding. This corporate organisation has consistently raised funds to help BCWA and other NGOs to reach out to the community 24 | BCWA ACTIVITY REPORT 2009 The objective of the project was to raise awareness on early detection of breast cancer through a nationwide educational campaign with the production of bilingual (English/Bahasa) breast self examination tent cards distributed at selected points-of-sale outlets and by BCWA through its own public education programmes. The magazine brands also carried extensive editorial features on the cause and support for the campaign. Pro bono ads developed by creative agencies such as Leo Burnett, Saatchi & Saatchi and Naga DBB on breast health awareness were accorded to BCWA and carried by the above titles in the October issue of the respective magazines. ACTIVITIES OF BCWA Community Support 1 2 5 1. ACP sister titles sporting the Pink Masthead in their October issue 2. Survivors and celebrity models at the Harper’s Bazaar Pink Party 3 3. Ranjit, Natasha Kraal and Celebrity models during Harper’s Bazaar Pink Party 4. PC and HOGs ariving in style at Hard Rock Cafe 5. PC and HOGs at Hard Rock Cafe 4 BCWA volunteers were also on hand to teach celebrity Henry Golding on how to do breast self familiarisation (BSF) for a video featuring Henry and celebrity Sharifah Amani teaching young ladies on how to do BSF. The video produced by Leo Burnett was hosted on ASKCLEO.com website for seven weeks across CLEO Malaysia and Singapore. Harper’s Bazaar hosted the Pink Party at the Westin Hotel for its partners, supporters and breast cancer survivors. Five Pink Project celebrities along with BCWA President Ranjit Kaur lit candles at the event and voiced their pledges of support towards raising awareness on breast cancer. BCWA also carried out an on-site Breast Self Familiarisation demo at the Pink Party for the guests present. The highlight of the event was on 30th October when ten members from our very own Dragon Boat Paddling team, the “Pink Challengers” dressed in their bright pink rashies and boas rode pillion with 20 Harley Davidson Bikers around the city centre before arriving in style at Hard Rock Café. The “Pink Challengers” then distributed public education flyers to patrons of Hard Rock Café. The Café staff got into the spirit of the campaign, sporting pink elements on their uniforms throughout the month. Pinktober with Hard Rock Café Kuala Lumpur BCWA partnered with Hard Rock Cafe Kuala Lumpur to help raise awareness for breast cancer throughout the month of October. The month long campaign, “Pinktober’ was Hard Rock Café’s worldwide initiative to create awareness and generate funds for breast cancer. Apart from the awareness campaign, collectibles such as special limited edition Hard Rock pins and T-shirts, were on sale to raise funds for breast cancer. BCWA ACTIVITY REPORT 2009 | 25 ACTIVITIES OF BCWA Community Support 2 3 1 1. Puan Sri Dato’ Akmal receiving the cheque for RM22,100 from VIOBA 81’ 2. Pink Challengers and LAJOO team 3. A friendly football match in the midst of action 4 4. Survivors at the jelly mould making workshop 5. Prize presentation at the launch of Gin & Jacqie Breast Cancer awareness bag 5 Mokthar Dahari Challenge The LAJOO team of Victoria Institution Old Boys Association ’81 (VIOBA) donned their football boots and participated in the Mokthar Dahari Challenge, a match to commemorate the late famed footballer. They brilliantly raised RM22,100 and generously allowed the Pink Challengers to score a goal during the friendly football match against the VIOBA team. Gin & Jacqie Breast Cancer Awareness Bag Print Design Competition A unique fundraising and awareness event, this project ran from July to the end of the year. It began with a bag print design competition, voting to select the winner and finally the launch of the bag with the winning design. The bags were sold at RM18 per piece to raise funds for BCWA. The uniqueness of this project was that participants were required to design a bag print that portrayed what breast cancer meant to them or how the design could help to promote breast cancer awareness. Participants were required to conduct research on breast cancer and indirectly this generated breast cancer awareness. The competition drew 180 entries and received a whopping 8,000 votes during the voting period. 26 | BCWA ACTIVITY REPORT 2009 Royal Selangor Jelly Mould Making Workshop Royal Selangor came back again this year with their signature fundraising event, the jelly mould making workshop and collected RM5,040 for BCWA. The workshop was officially launched with a bang with a number of local celebrities and politicians. The all men line-up wore pink aprons and tested their jelly-making skills. The workshop series ended with an invitation to BCWA members to participate in a fun-filled jelly making workshop. Besides creating their own jelly masterpieces, they also toured the Royal Selangor gallery and attended a short session at the School of Hard Knocks where they made their own pewter bowls. ACKNOWLEDGEMENTS BCWA acknowledges and extends its deepest appreciation to donors and supporters for their incredible generosity and contribution throughout 2009. Every contribution, great or small, is equally significant in making a difference in the lives of women with breast cancer in particular and women in general. With this support, BCWA has been able to improve the quality of supportive care and reach out to a larger population. Abdullah Ahmad ACP Asia Pte Ltd Adrian Foo Adrian Goh Agensi Penguatkuasaan Maritim Malaysia Airtime Management and Programming Sdn Bhd Alice Lee Amanita Services Sdn Bhd Andrew Abishegam Artmakr Asia Brands Global Sdn Bhd Asoma Technology Sdn Bhd Astro All Asia Networks plc Australian High Commission Azhari Hussen Badrulshah Ismail Bangsar Village II Beauty Unlimited Sdn Bhd Beth Meckley Body Perfect BOH Plantations Sdn Bhd Bolehman Theatre Cambridge A Levels, Taylor’s College Cancer Council Queensland Chan Shu Hui Chan Vy Sing Charles Wong Chef Wan Cheng Yue Ling Chew Chee Kong Chiah Kwong Way Chiam Tow Fei Chiang Han Hoong Chok Yean Hung Chong Cho Tan Christina Lau May Ling Chu Kum Hon Chua Lee Cheong Clarence Singam Colgate-Palmolive Marketing Sdn Bhd CzipLee Dato’ Dr Mohamed Ibrahim Bin A. Wahid Datin Nina Omar DeGem Berhad Delcol United Marketing Sdn Bhd Dennis Reginald Merrels Schokman Dr Ang Ghee Aik Dr Tan Wee Ming Dr Tee Lian Kim Dynamic Preso Sdn Bhd emmagem.com Ernest Lau Estee Lauder Companies Malaysia FCC Technology Sdn Bhd Fong Muntoh Frank Liang Genzyme Malaysia Sdn Bhd Glaxosmithkline Pharmaceutical Sdn Bhd Goh Hock Khang H.E. Ms Penny Williams, Australian High Commissioner to Malaysia Hup Seng Consolidated Bhd Hard Rock Café Kuala Lumpur Henry Golding Harley Owners Group,Malaysia Chapter Ho Hon Kit Hong Kong Sasa (M) Sdn Bhd HSBC Bank Malaysia Berhad Inner Secrets Jabatan Laut Wilayah Utara Jasa Export Transit Warehouse Sdn Bhd Jeffrey Low Jenny Wong JJ Resources (Malaysia) Sdn Bhd (gin & Jacqie) K.K. Lim and Associates Kalpana Gupte KBU International College Student’s Council Kelab Darul Ehsan Kelab Tasik Putrajaya Kevin Kiew KG Pastry Marketing Sdn Bhd Kong Kim Yihe Laura Ang Lay Peng Lee Cheng Ban Leno Corporation Berhad Leo Burnett Malaysia Leong Kok Keong Liaw Yit Loong Life Publishers Berhad Lim Chai Gaik Lim Ewe Leng Lim Zee King Lingkaran Luar Butterworth (Penang) Sdn Bhd Malaysian Australian New Zealand Association (MANZA) Malaysian Mosaic Berhad Mawarwati Alikazin Mdm Tham Yoke Lan Mdm Yong Lai Kuan Melor Travels Sdn Bhd Michael Lee Ministry of Women, Family and Community Development Mokanarani a/p Chellamuthu Mongoose Asia MST Golf Sdn Bhd Nanyang Press Holdings Berhad Natseven TV Sdn Bhd Nestle (M) Berhad Ng Jia Hui Ooi Hock Leng Oriental Daily Sdn Bhd Pacific West Sdn Bhd Pantai Hospital Kuala Lumpur Paul Nathan Penang Dragon Boat Association Penang Port Commission Penang Port Sdn Bhd Penang State Tourism Development, Cultural, Arts & Heritage Peninsular Freight Sdn Bhd Permanis Sandilands Sdn Bhd Petroliam Nasional Berhad (PETRONAS) Pinang Medical Centre Pink Jambu Polis Marin Wilayah Utara Prince Court Medical Centre Prince Hotel and Residence Kuala Lumpur Putrajaya Holdings QS Systems Sdn Bhd R.Ratneswary V. Rasiah Radio Televisyen Malaysia (RTM) Rambanda Herath Rotary Technical Services Sdn Bhd Royal Australian Air Force Royal Selangor Marketing Sdn Bhd Ryl Designs Sally Lim Sally Yong Sandvik Mining and Construction (M) Sdn Bhd Sanofi-aventis (Malaysia) Sdn Bhd Sean Oon See Lek Choo Sham Sunder Binwani Sharifah Amani Siah Siew Chuan Siau Pei Pei Sikh Women’s Awareness Network Sim Kay Huan Sim Kay Thiam Sim Keow Cheng Simon Lee Sin Chew Media Corporation Berhad Sistem Televisyen Malaysia Berhad (TV3) Star Publications (M) Berhad Stephanie Wong Sunrise Berhad Sunway Holdings Berhad Symphony Bro Solutions Sdn Bhd Tai Kin Ming Talent Plus Sdn Bhd (Red Tomato) Tan Hong Yak Tan Mee Ling Tan Yoke Hoe Tan Yoke Peng Tanjong City Marina Tay Chong Yoke Teh Ing Ruen Telerank Sdn Bhd Terence Moo Terence Yooi TGV Cinemas Sdn Bhd Tham Fook Wah Tham Kok Kuen Tham Kok Tai Tham Peng Choon Ti Chin Ming Toh Puan Datin Dr Hajah Aishah Ong Tony Lee Kok Wah Tunku Abdul Rahman (TAR) College Victoria Institution Old Boys Association ’81 LAJOO Team Wang Jun Lu Wijaya International Medical Centre Wong Chee Loke Wong Fong Wah Wong Pou Ying Wong See Hui Wong Wai Yee Wong Yee Hue X2 Sdn Bhd Xixili Intima Sdn Bhd Yang Chiew Yung Yap Chee Kim Yap Hui Kun Yap Jeon Yap Kien Teong Yap Lee Yean Yap Wai Leng Yap You Wai Yee Kei Wai Yokiee Wong Yoke Keng Zenith Projects Sdn Bhd Zuellig Pharma Sdn Bhd Zurinah Hasan BCWA ACTIVITY REPORT 2009 | 27 BREAST CANCER SUPPORT GROUPS IN MALAYSIA Breast Cancer Welfare Association Malaysia 5th Floor, Bangunan Sultan Salahuddin Abdul Aziz Shah 16 Jalan Utara, 46200 Petaling Jaya Selangor Tel : 603-7954 0133 Fax : 603-7954 0122 Email : info@breastcancer.org.my www.breastcancer.org.my Badan Sokongan Pesakit Kanser Seberang Jaya Jalan Tun Hussein Onn 13700 Seberang Jaya, Pulau Pinang Tel : 604-3827 234 H/P : 012-5867 7356 (Tey Kim Luan) Breast Cancer Support Society, Segamat JKR 49-B, Jalan Gudang Ubat 85000 Segamat, Johor : 607-9325 228 Tel Email : bcss_sgt@yahoo.com Website : www.freewebs.com / bcss_sgt Breast Cancer Support Society Kluang 4A, Jalan Kapur 86000 Kluang, Johor H/P : 012-7143 383 (Tan Sar Fee) 012-7119 378 (Jenny) Email : hocksgoh2@yahoo.com yeo_chieling@yahoo.com Kuantan IIUM Breast Centre Kuliah Of Medicine Jalan Hospital, 25150 Kuantan Pahang Tel : 609-5163 799 email : fitriliza@gmail.com Website : iium.edu.my / breast centre “Matahari” (Sarawak Breast Cancer Support Group) Lorong Maxwell 2, Jalan Maxwell Off Jalan Tun Abang Haji Openg 93000 Kuching, Sarawak Tel/Fax : 6082-411 137 Melaka Breast Cancer Support Group 2A, Jalan M8, Taman Merbok Bukit Katil 75450 Melaka H/P : 012-6255 327 (Guat) H/P : 019-6573 608 (Koot) : 012-2588 588 (Mdm Ewe - Mandarin) Email : siewmamkoot@yahoo.co.uk 28 | BCWA ACTIVITY REPORT 2009 Pahang Breast Cancer Support Group 7352 Taman Rotan Tunggal 27600 Raub, Pahang Tel : 609-3556 895 H/P : 013-9363 787 (Hajah Nora Abdul Hamed) Penang Breast Care Society Mount Miriam Cancer Hospital 23, Jalan Bulan, Fettes Park 11200 Tanjung Bungah Tel : 604-8932 156 H/P : 012-4902 552 (Mrs. Lee Chong Hai) Reproductive Health Association, Kelantan (ReHAK) (formerly known as Kelantan Family Planning Association) 4261-F, Jalan Kebun Sultan 15350 Kota Bharu, Kelantan Tel : 609-7432 407 / 7483 323 H/P : 019-9109 073 (Wong Mei Lin) Email : kfpa@streamyx.com Persatuan Pink Champion Perak 23, Persiaran Pulau Timur 5 Chandan Desa 31300 Ipoh, Perak Tel : 605-5484 333 ext 3821/3822 H/P : 012-5161 240 (Mardianah) H/P : 012-5066 829 (Ann Yee) Email : jiemee.design@gmail.com mybeekay@yahoo.com Sabah Family Planning Association 613, Jalan Family Planning Centre Off Jalan Kebajikan 88000 Kota Kinabalu, Sabah Tel : 6088-245 209 / 222 703 H/P : 019-8305 517 (Balbir Kaur) Email : sabahfpa@yahoo.com The Breast Cancer Support Group, Johor Baru 15, Jalan Rengas Taman Melodies, Johor Baru Tel : 607-3357 211 H/P : 016-7730 703 (Doris) Email : bcsgjbo4@hotmail.com Website : www.bcsgjb.org Terengganu Rakan Cakna Persatuan Perancangan Keluarga Terengganu 12-G, Jalan Engku Pengiran Anom 2 20300 Kuala Terengganu, Terengganu Tel : 609-6221 763 / 6248 071 Email : fpatrg@tm.net.my