Tourette Syndrome - The November Group Administration Panel

Tourette Syndrome
Foundation of Canada
Annual Report
2007-2008
Tourette Syndrome Foundation of Canada
Annual Report 2007/2008
Embracing Canadians Living With Tourette Syndrome
What is Tourette Syndrome (TS)?
Tourette Syndrome is a chronic, genetically transmitted, neurological disorder characterized by tics – involuntary, rapid, sudden movements or
vocalizations (sounds or words) that occur repeatedly in the same way. The cause is unknown and therefore the cure eludes us. The most
common first symptom is a facial tic, such as rapidly blinking eyes or twitches of the mouth. Involuntary sounds such as throat clearing and
sniffing, or tics of the limbs, may also be initial signs of TS.
TS is a childhood-onset disorder that according to research-based figures, affects 1 in every 100 Canadians. Other disorders may accompany TS,
including Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD), Learning Disabilities, behavioural problems,
difficulties with impulse control, and sleep disorders.
Tourette Syndrome is not a learned nor chosen behaviour; rather, it is a neurological condition. While interventions and treatment do offer hope,
TS is a life-long condition that can make navigating the dynamics and expectations of family, school, social circles and eventually employment
very challenging. People with TS and related disorders are most
successful when they are surrounded by a supportive community that
recognizes the neurological nature of the syndrome.
Table of Contents
What is the TSFC?
The Tourette Syndrome Foundation of Canada (TSFC) is a national,
volunteer driven, charitable organization dedicated to helping
individuals with Tourette Syndrome and their families. Since 1976, the
TSFC has assisted in improving the quality of life for those with, or
affected by, Tourette Syndrome through education, advocacy, and
self-help.
At the TSFC, we work with people with TS, parents and siblings, other
family members, educators, health professionals, employers, and many
other members of the community who directly or indirectly influence
the quality of life that people with TS experience.
Our vision is a Canada where people with Tourette Syndrome lead
quality lives as accepted and valued members of an informed, tolerant
society.
Messages from the TSFC President and Executive Director . .1-2
Enlighten… TSFC Committees . . . . . . . . . . . . . . . . . . . . . . . . . . . .3
Educate… TSFC Programs and Services . . . . . . . . . . . . . . . . . . . .4
Empathize… Champions in Action . . . . . . . . . . . . . . . . . . . . . . . . .7
Financial Statements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8
Embrace… Our Donors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .11
The TSFC Organization . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .13
www.tourette.ca
President’s Message
ith building comes growth and our
efforts in 2007/2008 saw the seedlings
of some very promising initiatives begin to
sprout.
President’s Message
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Our organization flourished with the
opening of a new chapter in Kelowna,
British Columbia, and two more Contact
Representatives in Bracebridge, Ontario and
Truro, Nova Scotia. In addition, we’re in the
midst of reorganizing the national office to
include more staff in the areas of marketing
and communications to support our national
advocacy strategy.
As we look to the year ahead, we anticipate
further growth as we enhance TSFC’s
website. In our efforts to enlighten and
educate our communities, our website will
become the tool that cultivates
understanding and tolerance for those living
with, or affected by, TS and related
disorders. Through increased online
programs and supports for our members,
and the development of online pledging
capabilities and corporate challenges,
www.tourette.ca will help us advance our
public education and financial goals.
spirit is why people living with TS can lead
prosperous and meaningful lives.
What will the coming year’s landscape look
like? Through our national advocacy
strategy, we will be cultivating support from
the government, community, medical
professionals, educators, donors, sponsors,
and the general public. And, as support
from donors and partners grows, we will
expand our education offerings with new,
online programs accessible through our
website.
It will be a busy year for TSFC – one filled
with new opportunity and promising
prospects.
Thank you for supporting this very
important work.
Lorne W. Perrin
National President
TSFC is well-positioned for growth due to
the tireless efforts and passionate voices of
our board members, volunteers, donors,
partners and staff. Their dedication and
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Executive Director’s Message
hen I look back on the past year, a
common theme emerges. 2007/2008
was about our strength – reinforcing and
building relationships with our existing
partnerships and the development of new
alliances. Our efforts to reach out to our
partners and new friends also resulted in
gaining some positive exposure to policy and
decision makers.
E x e c u t i v e D i r e c t o r ’s M e s s a g e
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2
In January 2008, TSFC was invited to join
eleven other neurological charities in a new
project-based collaboration called
Neurological Health Charities Canada
(NHCC). The mission of the group is to
improve the quality of life for all people
living with a chronic brain condition by
elevating brain health to the top of the
agenda of all levels of government. In June
2008, TSFC was at the table when members
of the NHCC met with Canada’s Minister of
Health, The Honourable Tony Clement, and
over the coming year, TSFC will be part of
the group working with the Ministry of
Health and Long-term Care to develop an
integrated, province-wide neurological
strategy in Ontario.
TSFC volunteers are actively involved in
informing education policy across Ontario.
As members of their local Special Education
Advisory Committees (SEAC), they speak on
behalf of families living with TS and raise
important issues to improve the educational
experiences of our children. Through a
channel of committees and our seat on the
Provincial Advisory Committee, information
moves back and forth between the
community and the Ministry of Education.
We also built on our relationship with the
Canadian Police Research Centre (CPRC).
The CPRC sought us out for our input
around the issues of use of force and taser
gun safety. The TSFC used this opportunity
to educate the members of the CPRC on how
to recognize someone with Tourette
Syndrome, who might otherwise be
misunderstood in a contentious situation.
And finally, we welcomed the Canadian
Police Curling Association into our network
of friends when they named the TSFC as
their charity of choice to receive proceeds
from their annual bonspiel.
We look to the upcoming year as an
opportunity to shine an even brighter light
on Tourette Syndrome through our national
advocacy strategy, new education programs,
and the support of our even greater network
of partners and friends. Join us to learn more
about the Foundation and engage in our
work.
Rosie Wartecker
Executive Director
Enlighten…
TSFC Committees
hen ordinary people come together
with vision and purpose,
extraordinary things happen. Over the past
year, TSFC’s volunteer committees focused
their efforts on enlightening policy makers,
stakeholders, and the public on key issues
that affect people living with TS.
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Our first job is so often to help others
understand the Tourette experience and
shatter the myths and stereotypes that may
have shaped their perceptions. Our belief
is that through better understanding,
individuals and organizations can begin
the shift to creating a more welcoming and
supportive community for people living
with TS.
The year was filled with many notable
accomplishments for our committees on:
Adult Issues; Fund Development;
Marketing; Human Resources; Recognition;
Advocacy; Strategic Planning; and
Volunteer Development. Our Advocacy
Committee was particularly busy
responding to the results of a needs survey
that found that parents needed to better
understand and navigate the education
system to get the supports that their
children need. The Human Resources
committees’ focus was to look at our future
service needs and how to re-structure the
national office to meet the demands of our
stakeholders and move the organization to
the next level.
It is easy to see how even a small effort
can make a huge impact on people living
with TS. We value the passionate
individuals that make up our volunteer
committees and the difference they have
made in communities across Canada as
they tell the important stories about TS that
need to be heard.
The TSFC is always looking to recruit
volunteers to donate their time and talents
to the organization. The opportunities that
will unfold to increase understanding and
tolerance for TS are limitless – whether it’s
being a point of contact on our toll free
information hotline, assisting in the
distribution of TSFC materials to its
members, becoming a volunteer at TSFC
fundraisers, providing administrative
support to one of our chapters, or
advocating for those with TS to educators,
medical professionals or governments.
Enlighten...
TSFC
Committees
The personal rewards that come with
helping another human being are
immeasurable.
“Becoming a volunteer with the TSFC
provides me with a vehicle to apply my
professional skills and to help others who
are walking the path I have walked. It has
been a truly rewarding experience and I
highly recommend volunteering.”
Mrs. Janet Rumsey
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Educate… TSFC Programs and Services
he need for supporting people living with, and affected by, TS
and related disorders is overwhelming – last year we received
an average of 100 calls per month from individuals looking for
information and support. It is clear that we have to continue to
find innovative ways to reach out to the communities across
Canada, and enlighten and educate them about the important
work of the TSFC and its impact on the 1 in 100 Canadians that
live with this challenging disorder.
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TSFC’s programs and services are the best vehicles we have to
educate the public about TS and related disorders. The
experience for someone living with TS, and their family, can be
fraught with challenge and frustration. Our job is to help pave
the way for success by educating as many people as possible.
Resources and Support
Through our materials, website, and community outreach initiatives, we hope to facilitate understanding, patience, and tolerance.
Our goal is, and always will be, to make the world a place where a person living with TS can thrive. To this end, TSFC offers inservice training workshops as well as books and DVDs aimed at educating key audiences on how to help people with TS live
successful and meaningful lives.
In-Service Program
The in-service program is delivered across the country by TSFC volunteers. The majority of in-services are done in schools but we
also do colleges, universities and community groups. The benefit for children is substantial – we educate approximately 25-30
children when these in-services are done in the classroom, with about 15 -20 teachers benefiting at the same time. This service is in
high demand and across the country the need for this program far outweighs the number of volunteers we have to deliver it. With
more financial support, TSFC would increase the availability of this very effective educational program.
Understanding Tourette Syndrome: A Handbook for Families is a lifeline for families whose loved one has just received a diagnosis of
TS or a related disorder. This book is a comprehensive guide to: adjusting to the diagnosis; health care and treatments; dealing
with symptoms; social skills and behaviour; schools and programs; and recreation. Last year we distributed 300 copies of this
book to appreciative families across the country.
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The TSFC also provides the clinical community
comprehensive insight in diagnosing and treating TS
and related disorders through its Understanding
Tourette Syndrome: A Guide for Clinicians. Although
children are genetically predisposed to having TS,
the mean age of diagnosis is seven. There is much
work to do to ensure earlier diagnosis. Over the past
year, more than 700 medical professionals received
this resource across the country.
In 2007-2008, TSFC distributed more than 2,225
books and DVDs to families, educators, medical
professionals, and researchers across the country. In
addition, our database for our quarterly newsletter,
The Green Leaflet, continues to grow all the time.
www.tourette.ca
The TSFC website is fast becoming our most
informative and accessed resource for Canadians
living with TS, as well as those interested in learning
more about TS. Last year we tracked more than
45,900 visitors to the site.
One of our website’s greatest successes is the TSFC
Forum. This virtual café brings together the TS
community to share experiences – from triumphs to
concerns, to coping strategies to treatment, to
feelings and encouragement. More than 13,000
people logged on to this internet roundtable to view
and/or exchange ideas and information. Drop by
and visit some time
We hope to draw more visitors to our website this
upcoming year and encourage them to contribute to
our cause with the introduction of online fundraising
and pledging capabilities.
And, as financial support grows, so too will new
online education programs. This is a critical
development in delivering support and education to
people living with TS, and their families, from coastto-coast. Our aim is to ensure that people in need
have access to information and support regardless of
where they live.
Conferences and Training Sessions
n our ongoing efforts to reach out and speak to our
key audiences, TSFC organized its 2007 National
Conference Making Waves in Niagara Falls, Ontario on
September 29th to October 1st. More than 200 TSFC
families, facilitators and guests shared what has been
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C o n f e r e n c e s a n d Tr a i n i n g Se s s i o n s
Helping children with TS and related disorders
succeed in the classroom was why we created
Understanding Tourette Syndrome: A Handbook for
Educators. This book provides teachers and
administrators with information and strategies on
how to deal with and nurture the potential in a
student with TS and related disorders. Topics
include: how to approach TS in the classroom;
behaviour issues; the teacher’s impact; and
additional factors to consider at school. Last year,
more than 1,800 were sent to Canadian educators
either as a single publication or as part of the
Educator’s Resource Kit which contains a copy of the
handbook, a DVD, checklists and a faciliators’
booklet for teachers to self assess their capacity to
understand and learn from this material.
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Research
6
called “a life-changing experience.” Participants
took part in informative workshops and
presentations, including a session facilitated by Dr.
Aureen Pinto-Wagner on OCD and presentations by
Occupational Therapists and Psychologists on the
latest therapies and treatments. Highlights of the
conference included a keynote presentation by
world-class researcher Dr. Roger Kurlan, and
speeches by other experts on the subject of TS and its
related disorders.
financial support. It is only through the generous
contributions of donors and sponsors that we will be
able to one day realize this dream and offer our
resources to fund research.
In addition to the National Conference, TSFC
reached out to communities across the country,
participating in four conferences and training
sessions. We participated in hundreds of support
groups sessions and general meetings across the
country. We welcome these important opportunities
to shed some much needed light on the issues
surrounding people living with, and affected by, TS
and related disorders across Canada. Our biggest
challenge is keeping up with the demand for
information and training sessions. With the
introduction of online learning, we are optimistic
that we meet this ever-growing need.
“We heard about the TSFC, found support in our
local community and gradually lost the feeling of
being completely and utterly alone.” Shelley Gillen
Research
he TSFC recognizes the importance of research in
discovering better treatments, and ultimately a
cure for TS and related disorders. Our goal is to one
day become a substantial supporter of research that
uncovers a direct link to TS, its causes, treatment,
quality of life issues, outcome and psychosocial
issues. The only thing that stands in our way is
T
“When our son Jim was diagnosed with TS and
related disorders at the tender age of seven, there
was the denial, the guilt, and then with the support
of the TSFC came the understanding and the
healing.” Kathie James
“The Tourette Syndrome Foundation Annual
Conference is a useful and reliable resource for
teachers. It helps to bring insight into the workings
of a person or child living with Tourette, as well as
providing an ample supply of ideas and resources to
use in the classroom or school setting. This annual
conference is a great way to meet and greet other
people in the field, to hear their stories and how
different situations have been handled and what
they have learned along the way. It is amazing to be
able to listen to the many stories of achievement
that the TSFC has provided for so many people
across Canada. It is an uplifting, rewarding and
educational conference, which everyone should have
the chance to attend and learn from. You will not
leave the conference disappointed. However, I
guarantee you will leave a different person!”
Amanda Coulombe,
Glendale Public School,
Peel District School Board.
Empathize… Champions in Action
Laurentian Bank’s Annual Golf Tournament
he importance of fundraising efforts cannot be overstated. Our
ability to raise funds directly impacts the quantity and quality
of programs that we offer to the wider community. Funds also
support projects and advocacy efforts. We are very fortunate to
have tremendous support from many volunteers and donors;
however, the task at hand is significant, and the more support we
generate, the greater the difference we collectively make for people
with TS and their families.
ore than 200 enthusiastic golfers hit the links at Bond Head
Golf Club for the annual Laurentian Bank Corporate Golf
Tournament. The Tourette Syndrome Foundation of Canada was
their charity of choice and more than $20,000 was raised to fund
TSFC’s programs and services through this partnership.
T
We are grateful for support from our long-standing alliances and
new friends. In total, TSFC raised $579,700 to carry out our
mission. In addition, there has been considerable support from our
chapters who lent their helpful hands in any way they could – from
purchasing equipment to supporting conference bursaries to
supporting our youth leadership fund.
Last year’s exciting fundraising events included our muchanticipated golf tournaments:
14th Annual Tourette Syndrome
Golf Tournament
n June 17th, more than 204 avid golfers teed off at Woodington
Lake Golf Club for the chance to raise money and awareness
for Tourette Syndrome. This glorious day featured 27 holes of golf,
three $10,000 and two Chromehorse Motorcylce hole-in-one
competitions; raffle prizes; a sumptuous dinner; and silent auction.
The celebratory reception was hosted by Elliotte Friedman of CBC
Sports, who also lives with TS. More than $40,000 was raised on
the day, totaling $300,000 raised in its 14-year history. Special
thanks to our generous sponsors and the organizing committee for
their continued support and dedication to this event.
O
M
Our most heartfelt thanks go out to the sponsors, participants and
volunteers who helped make our 2007-2008 fundraisers a
resounding success!
“What a great day, well organized, wonderful volunteers. I’m
proud to be associated with such a professionally run event.”
Ronald Steinberg
Financial Statements
he following information is derived from audited financial
statements of the Tourette Syndrome Foundation of Canada. A
full set of audited statements is available upon request.
T
Nearly 66% of TSFC’s revenue comes from fundraising activities,
with 22% coming from donations. The graphs illustrate aspects of
the consolidated, audited financial statement for the 2007 fiscal
year. Revenues and expenses include the activities of all 32
affiliates across the country.
“Having Tourette syndrome should not stifle our aspirations or
make us feel incapable or unworthy; on the contrary, the fact that
we have gotten as far as we have demonstrates the kind of
diligence and strength of character that will be our greatest ally as
we make the leap towards achieving our dreams.”
Kirk Mathieson
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8
9
10
Expense/Administration
Revenue/Charitable
Administration 24%
Professional Fees and Amortization 5%
Programmes and Services 71%
Membership 5%
Donations 22%
Product Sales and Other 7%
Special Events and Fundraising 66%
Embrace…
Our Donors
inancial support from the
F
individuals and organizations
who share our vision makes the
work of TSFC possible. Like us,
they believe in a world where
people who live with, or are
affected by, TS are understood,
accepted, valued for their talents,
and are prosperous members of
society.
The following chapters have
shown exemplary support of
national programs and services
with their extraordinary
contributions: Edmonton, Greater
Vancouver, London, Victoria, and
Winnipeg.
On behalf of the TS community,
we give our most heartfelt thanks
to the individuals, organizations
and corporations who make it
possible to carry out our mission
for the benefit of people living
with TS.
$5,000+
The Estate of Margaret Loretto
The Estate of Elizabeth Muriel
Diment
$1,000 to $5,000
Jay Arieli
Sybil Berenstein
John Blimke
Central Okanagan Community
Foundation
Douglas and Brooke Coll
Daniel Gorman, M.D.
Helen & Arthur Iliffe
Samuel Marcuson
Linda Newton
Lorne & Verna Perrin
RBC Foundation
Janet Rumsey
David Stewart
Team Telus Cares
The Maycourt Club of Kitchener
Kay Wilen
Williams Family Foundation
$500 to $1,000
Adobe Systems Incorporated
Bank of Montreal (Kelowna)
Tina Blanchette
John Blimke
Lawrence Davis
Linda Chan
Ryan Clarke
Jack Farquhar
John Fogolin
Linda & Gerard Johnson
Kiwanis Club of Ottawa
Dr. PM Laughton
Dr. Duncan McKinlay
Dan Mills
Ontario Power Generation
Louisa Serne
The Co-Operators Group Ltd.
E Patricia Tsurumi
Rosie Wartecker
Sally Williams
Bill Wong
Vonnie Zupan
$250 to $500
Bell Canada Employee Giving
Program
Charles Benayon
Stuart Ellis-Myers
Joan Forsgren
David Green
Judy Gutoski
Barbara Hordern
Claudio La Civita
Gillian Leggett
Eric Macdonald
William Radford
Ray Robertson
Bob and Judy Rogers
Leo Smith
Ronald Steinberg
Arthur Sturge
Jay Thomblison
Harry Voigt
Karen Wiginton
Lois Wilson
$50 to $250
Gary Altman
Irene Anderson
Samuel I.A Anderson
Astron Specialty Metals Ltd
Atco I-tek
Ethel Axelson
R Avis
Ethel Axelson
Azrieli Foundation
Denise Bannerman Miller
Brian Barnes
Heather Barnett
Jill Barclay
Peter Baugh
Glen Benwood
Fay Blostein
Armand Boisjoli
Jean Boudreau
John Boulden
Lynn Bradbury
Lorne Brandt
Linda Brice
Peter Brimacombe
Daniel Brock
Kathy A. Brown
Violet Brown
Mary Ann Bullard
Caron Bullard
Susan Bullard
Betty Bulman
Yvonne Bur
Stephen Burditt
Caw Local 1520
Valerie Chapman
Paul Chazottes
Sharon Chatenay
City Tire & Auto Centre
Helen Constantine
Charles Cook
Pamela Cooper
Debbie Court
Frances Cronkwright
Richard Crowley
Len Dalman
Day & Ross Inc
Catherine Delaney
Darlene Devenny
Anne Demerling
Carey Dickie
April Dimond
Brian Dippie
Allan Dorfman
Barbara Drover
John R. Dubois
Eastern Edge Credit Union Ltd
Enbridge Pipelines Inc
Trina Epstein, Ph.D.
Yolanda Esposito
Brenda Evans
Diane Fast, M.D.
Terry Ferguson
Dr James J Flynn
Fiorina Folino
Bruce Forbes
Greg Forsgren
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Joan Forsgren
Mervyn Foster
Frances & David Rubin
Foundation
Jean Frandsen
Roger Frayne
Fredericton Appraisal Associates
Dan & Terri Gall
Jennifer Gamble
Rayne Garnsey
Marc Gerofsky
Patricia Gilbert
Patrick Gilmour
Cheryl Goldberg
Carol Gordon
Gary Gottlieb
Seymour Gould
Joseph G Gould
Jacqueline Gregg
Barbara Greig
Wanda Grift
Judy Gutoski
Faye Hall
Janice Hansen
David Hawthorne
Else-Britt Hedlund
Cynthia Hefferman
David Henriques
Adrienne Hill
Gregory Hill
Ray Hogan
Leigh Howell
Ernie Hudson
Catharine Huff
Jaime Hugessen
Patricia Hunter
Edward Hurta
John Ioannou
Erling & Joanne Iverson
Sabine Jean-Baptiste
Nicolas Jones
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Elias Kapetanios
Victor & Sherry Karasinski
Jack Kelly
Linda Kempo
Roy Kendall
Harold Kitchen
Maureen Klettl
Phyllis Koch
Karen Koroluk
Doug Kroeker
Elizabeth Lambert
Mark & Eileen Lanigan
MF Laughton
Chris Lebitt
Deanna Ledohowski
Jane Lemieux
Bill & Laura Locke
Linda Loewenthal
Ronald Macneill
Marguerite Macphee
Kathleen Mahe
Mary Margaret Mahoney
Douglas Mackie
Andrea Mailloux
Ken Male
Marilyn Marsh
David Martin
Andrew Massey
Bev McCullough
Randy McCoy
Holly McDonald
Paul McDonald
Valerie McDonald
Donelda McNally
Gerald Mercier
Allen Merritt
Michael Meixner
Dennis T Meyer
Marg Miller
William Mogk
Donna Moodie
Carol Morrison
Ruth Moscovitch
Yvonne Nielsen
Joseph Nolewajka
Roger Norman
Ed & Helen O'Brien
Kirk and Leslie O’Brien
Darlene Ott
Diane Painting
Patricia Price
Perry F. Pelletier Professional
Linda Philpott
Madeline & Gerry Popowich
Power Vac Services
Clarence & Angie Powley
Cindy Raamat
Virginia Rankin
Joanne Ravida
Janet Ravka
Santo Reda
Augusto Reyes
Monique Richard
Rideout Tool And Machine Inc
Vital Robergeau
Ray Robertson
Marge Runka
Ken Ryniak
Marco Sadori
Steven J. Sager
Roxanne Sali
Donna Saunders
Elizabeth Schamehorn
David Schnarr
Nicole Seguin
Perry Seidelman
Ken Shoemaker
Pushpa Singh
Mary Slobojan
Robert Smith
Margaret Smith
Debbie Sorrell
Dianne Stackhouse
Veronique Stefanica
Kay Stewart
James Stuckless
Christina Sulpizio
Elke Swantje
Linda Thompson
William Tillett
George Tilley
Patricia Tomas-Lowe
Toyota Canada Inc
Danielle Turpin
Wendy Tysall
Universal Studios Canada Ltd
Carolyn Van Order
Bryan Walsh
David Watling
Joan Wayman
John Weaver
Jeff Wenn
Glen Wilson
Diane Wood
Cathy Wylie
Elaine Wylie
Maureen Wirth
Samuel Yampolsky
Rosemary Yates
Barbara Young
Olga Zacharuk
Lawrence Zuker
Our People
Partners and
Friends of Note
e gratefully acknowledge the
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expertise and commitment of
our Board of Directors and staff
team.
Ampersand Printing
Aspiria
Broadcast Duplication Network
Canadian Police Curling
Association
Canad Inns
CISCO
CMI Canada Inc
Laurentian Bank
McCarney Greenwood LLP
PriceWaterhouseCoopers LLP
MSLaw
Osler, Hoskin & Harcourt
RBC Financial
Joseph Turkel
The Gap Foundation
The November Group
Warner Bros. Canada
Whittington Furniture Mfg.
We make every effort to ensure the
accuracy of this listing, while at the
same time respecting the privacy
of those who have chosen not to
have their names published. If we
have erred, please accept our
sincerest apologies for the
oversight.
2007/08 Board of
Directors
Lorne Perrin, President, Winnipeg,
MB
Cathy Wylie, Vice-President/Chair,
Volunteer Development, Munster,
ON
Ray Robertson, Secretary, London,
ON
Sybil Berenstein, Treasurer/Chair
Finance & Audit, Toronto, ON
Linda Newton, Past President,
Ottawa, ON
Doug Coll, Chair, Fund
Development Committee,
Mississauga, ON
Gordon Brown, Chair Adult Issues
Committee, Kitchener, ON
Kay Wilen, Chair Recognition
Committee, Richmond, BC
Janet Rumsey, Chair Marketing
Committee, St. John’s, NL
Patricia Tomas Lowe, Director,
Edmonton, AB
Charles Benayon, Director,
Thornhill, ON
Tina Blanchette, Director, Waterloo,
ON
Kirk O’Brien, Director, Kelowna, BC
Paul Sandor MD, FRCPC, Liaison
Professional Advisory Board,
Toronto, ON
Professional Advisory
Board
Dr. Paul Sandor, Chair, Toronto,
ON
Dr. Cathy Barr, Toronto, ON
Dr. Yves Dion, Sorel, QC
Dr. Joe Dooley, Halifax, NS
Dr. Roger Freeman, Vancouver, BC
Dr. Ross Greene, Newton Corner,
MA.
Dr. Gerald Levine, Barrie, ON
Sheryl Pruitt, M.Ed., Marietta, GA
Dr. Mary Robertson, London, UK
Dr. Gary Shady, Winnipeg, MB
Dr. Oksana Suchowersky, Calgary,
AB
Chapters
Greater Vancouver, BC
Thompson-Okanagan, BC
Victoria, BC
Edmonton, AB
Winnipeg, MB
Ottawa, ON
Greater Toronto, ON
Hamilton Region, ON
London, ON
Wellington-Waterloo, ON
Windsor, ON
Montreal, QC
Newfoundland Labrador, NL
Contact
Representatives
Prince George, BC
Nanaimo, BC
Comox, BC
Grande Prairie, AB
Regina, SK
Summerside, PE
Bracebridge, ON
Sudbury, ON
Peterborough, ON
Corner Brook, NL
Truro, NS
Halifax, NS
Resource Units
Calgary, AB
Brandon/Westman, MB
Fort Erie, ON
Charlottetown, PE
Staff
Rosie Wartecker, Executive Director
Kadija Sidibie, Member Service and
Communications Coordinator
Winnie Wong, Part time
Bookkeeper.
National Office
Tourette Syndrome
Foundation of Canada
#206, 194 Jarvis Street
Toronto, Ontario
Canada M5B 2B7
Telephone: (416) 861-8398
Toll Free: 1-800-361-3120
Facsimile: (416) 861-2472
Toll Free. 1-800-387-0120
E-mail: tsfc@tourette.ca
www.tourette.ca
13
Tourette Syndrome Foundation of Canada
#206, 194 Jarvis Street
Toronto, Ontario
Canada M5B 2B7
Telephone: (416) 861-8398
Toll Free: 1-800-361-3120
Facsimile: (416) 861-2472
Toll Free. 1-800-387-0120
E-mail: tsfc@tourette.ca
www.tourette.ca