Mar-Apr - Alzheimer`s Aid Society
Transcription
Mar-Apr - Alzheimer`s Aid Society
Alzheimer’s Aid Society’s FORGET-ME-NOT MARCH - APRIL 2015 A BI-MONTHLY PUBLICATION Volume 34 Issue 2 www.AlzAid.org IN THIS ISSUE: Dementia (Causes & Progressive Dementias)…..Mayo Clinic Staff….………2-3 President’s Message………………….Sheryl Ashby, CEO…………...………….…………4 A Rainbow World………...…….…...Jeanne Hess, RN, CGN………..…..……………….5 Tulips and Butterflies………………..Tiffany Paige…………...…………..…..…………….6 The Big Day of Giving………………………………………………….……………………………..7 Caregiver Support Groups………………………………….....……………..….……….……8-9 Special Interest Groups for the Patient………………….………………………………...10 Memorials………………………………………………………………………………………………..11 Alzheimer’s Café (Pictures) ……………Maryann Frantz….…..…….………………….12 The Alzheimer’s Aid Society would like to invite you to our next Alzheimer’s Café…………………………………………………….……………………….…….…….……………..13 Sundowning…………….Dr. Barbara Gillogly Ph.D., LMFT,CPG……………..14 & 15 Alzheimer’s Aid Society of Northern California 2641 Cottage Way, #4 Sacramento, CA. 95825 Phone 916-483-2002 Toll Free 800-540-3340 A Non-Profit, 501 (c)(3), Tax-Deductible Corporation Tax ID# 94-2721961 Dementia Causes and Progressive Dementias Mayo Clinic Staff People generally may develop symptoms after age 60, but some people may have earlyonset forms of the disease, often as the result of a defective gene. Although in most cases the exact cause of Alzheimer's disease isn't known, plaques and tangles are often found in the brains of people with Alzheimer's. Plaques are clumps of a protein called betaamyloid, and tangles are fibrous tangles made up of tau protein. Certain genetic factors also may make it more likely that people will develop Alzheimer's. Alzheimer's disease usually progresses slowly over about eight to 10 years. Your cogni- Causes By Mayo Clinic Staff Dementia involves damage of nerve cells in the brain, which may occur in several areas of the brain. Dementia may affect people differently, depending on the area of the brain affected. Dementias can be classified in a variety of ways and are often grouped by what they have in common, such as what part of the brain is affected, or whether they worsen over time (progressive dementias). Some dementias, such as those caused by a reaction to medications or an infection, are reversible with treatment. Progressive dementias Types of dementias that are not reversible and worsen over time include: Alzheimer's disease. In people age 65 and older, Alzheimer's disease is the most common cause of dementia. tive abilities slowly decline. Eventually, the affected areas of your brain don't work properly, including parts of your brain that control memory, 2 language, judgment and spatial becomes more common with abilities. Vascular dementia. Vascular dementia, the second most common type of dementia, occurs as a result of brain damage due to reduced or blocked blood flow in blood vessels leading to your brain. age. Lewy bodies are abnormal clumps of protein that have been found in the brains of people with Lewy body dementia, Alzheimer's disease and Parkinson's disease. Lewy body dementia symptoms Blood vessel problems may be caused by stroke, infection of a heart valve (endocarditis) or other blood vessel (vascular) conditions. Symptoms usually start suddenly and often occur in people with high blood pressure or people who have had strokes or heart attacks in the past. Several different types of vascular dementia exist, and the types have different causes and symptoms. Alzheimer's disease and other dementias also may be present at the same time as this dementia. Lewy body dementia. Lewy are similar to symptoms of Alzheimer's disease. Its unique features include fluctuations between confusion and clear thinking (lucidity), visual hallucinations, and tremor and rigidity (parkinsonism). People with Lewy body dementia often have a condition called rapid eye movement (REM) sleep behavior disorder that involves acting out dreams. body dementia affects approximately 10 percent of people with dementia, making it one of the most common types of dementia. Lewy body dementia 3 FORGET-ME -NOT PRESIDENT’S MESSAGE By Sheryl Ashby, CEO Have you ever gotten lost coming out of a large building, like a hospital for example, and couldn’t find your car? You probably just went out the wrong door. When you re-traced your steps and went out the correct door, it was then easy to find where you had parked your car. This kind of thing happens to all of us occasionally. Now, imagine feeling that panicked lost feeling most of the time. That is what a person with Alzheimer’s / Dementia feels most of the time. Imagine for example getting up in the morning. You know that you have something important to do. Everyone has something to do each day. Even children have things to do with their day. It may just be getting up, eating breakfast, dressing and then playing most of the day, but it is something to do. A person with Alzheimer’s / Dementia also knows that they have something to do with their day, they just don’t remember what it is. If they do remember what they are supposed to do, they may not know how to begin. It is a pretty scary thing to imagine what that must feel like. If we can remember that an Alzheimer’s / Dementia patient feels like that every day, it is much easier to have empathy for what they are experiencing. This is one of the reasons they become so attached to you, their caregiver. They need to be near you because they are now dependent on you to help them figure out their day and what it should consist of. You become their security. One of my very favorite web sites is ‘The Alzheimer’s Reading Room’. Mr. Bob DeMarco, who writes most of the articles there proposes living your lives the same way that you always did. Now, know that you will probably have to do things at a much slower pace. Keeping things as close to normal as you can makes life much easier on your Alzheimer’s / Dementia patient and because of that, it makes life easier for you. Our ‘Blue Book’ (the Practical Guide for the Alzheimer’s Caregiver) is an invaluable resource for you or anyone you my know who is a caregiver. If you don’t have a ‘Blue Book’, call our office at (916) 483-2002 or (800) 540-3340 and request a copy. This booklet contains material that will help you as a caregiver to cope with behaviors as well as other useful tips and advice. We at the Alzheimer’s Aid Society wish you well in your journey through Alzheimer’s / Dementia. Please contact us with any questions or concerns. Respectfully, Sheryl 4 A RaInbow World Jeanne Hess CGN Has anyone ever told you to “Brighten up”? or “Every gray cloud has a silver lining”? or “Cheer up, the sun is shining!”- friendly phrases that are meant to help us through a time of temporary hopelessness, but actually are based on scientific studies that colors just don’t seem so bright when we are experiencing depression. Lights and colors are so important to us so that when we wear and surround ourselves with colors that make us feel comfortable, our inner sense of wellbeing is enhanced and our mood altered and refreshed. As a caregiver you can transfer that spirit into your daily routine with a little imagination and an abundance of what the scientists call “guided imagery” Get out the family album and together look at photos of past vacations; the bold yellows, oranges and reds of an ocean sunset; soft muted mauves, pinks and lavenders of sunrise over a mountain cabin or the dynamite bright reds, blues and violets of flowers blooming along a botanical garden pathway. Soundtracks are another form of imagery that brings mental visions and impressions of color. 5 Christmas carols automatically recall vivid reds, bright greens and glistening whites. Romantic ballads reflect the glow of moonlight against a midnight blue sky twinkling with the pinpoint diamonds of distant stars. Melodious sounds of nature invoke memories of a gentle rippling stream in shades of crystalline blues or the crashing thunder of a foaming white waterfall. Colors affects the way we feel and interact with those around us by decreasing anxiety levels and instilling a sense of hope and optimism. Use it’s kaleidoscope of hues, shades and tints to “brighten” your day. Jeanne Hess RNCGN DO YOU BUY FROM AMAZON? Did you know that you can still buy from Amazon and have them donate .5% of your purchase price to a non-profit of your choice. Just go to Amazon Smile and they will let you name a non-profit agency you would like to donate to. We’d appreciate it if you would name the Alzheimer’s Aid Society. Thank You. 6 We can also take donations over the phone, so volunteers The Alzheimer’s Aid Society will be available to take donais participating this year in the tions and answer any questions; however, online donations are Big Day of Giving on preferred. May 05, 2015!! Donations begin at midnight This provides a great opportu- and can be made at any time on nity for us to raise money, acMay 05, 2015 but must be made quire new donors, and bring on this date! Incentive dollars awareness to our organization are given to organizations to and what we do here! Media make the impact of donations outlets will be broadcasting the stronger! event, and last year over $3 Please call the office with any Million dollars was raised to questions. help nearly 400 local nonprof- Give where your heart is!! its. Spread the word and thanks The Alzheimer’s Aid Society for your support!! has a goal to raise $10,000. Please help us by making a doPlease Help nation on May 05, 2015 on our the Alzheimer’s Aid Society Give Local Now page at by donating on givingedge.guidestar.org. Type “Alzheimer’s Aid SociMay 5, 2015 ety” in the Find Organizations box in the upper right and click The Big Day of Giving “DONATE NOW”. SAVE THE DATE!! VOLUNTEERS NEEDED: We need volunteers to answer phones for the Sacramento Office. These volunteers need to have experience Care-giving for a person with Alzeimer’s / Dementia. If you are interested, please call Ashley at (916) 483-2002. We need Support Group Facilitators in Turlock to facilitate a Patient’s Support Group. Give Sheryl Ashby a call at (916) 483-2002 to make arrangements for an interview, training and orientation. We also need a Caregiver Support Group facilitator for the Support Group that meets at Aegis in Carmichael. Please Call Sheryl Ashby at (916) 483-2002 if you are interested Thanks to all of you who are willing to help. 7 SUPPORT GROUPS Caring and Sharing since 1981 rd Auburn 1st and 3rd Friday Folsom 3 Wednesday Noon—1:30 pm Auburn Presbyterian Church 13025 Bel Air Drive Facilitator: Sue Galvez 530-878-2428 Amador County 6:30 – 7:30 pm Emeritus at Folsom 780 Harrington Way Facilitator: Jessica Beck 916-983-9300 Lake County Call Caroline Denny 4 Wed. 707-263-9481 10:00 am For information regarding Senior Center 229 New York Ranch Rd., Days, times and location Lodi 2nd Tuesday Jackson 2:00 pm Facilitator: Laurie Webb And 4th Thursday at 6:00 pm 209-223-0452 Emeritus at Austin Gardens Cameron Park 2150 W. Kettleman Ln. 3rd Tuesday, 6:00-7:30pm Facilitator: Mary Margaret Ponte Palmero Chappel 3081 Ponte Morino Dr. 209-333-8033 Facilitator: Leah Grundhoffer Manteca 3rd Saturday, 530-677-9100 1:00 pm & every Carmichael 1st Wed. Wednesday, 9:30 am 7:00 – 8:30 pm Merrill Gardens Aegis of Carmichael 430 N. Union Road 4050 Walnut Avenue Facilitator: Facility staff Facilitator: Max Perry 209-823-0164 916-483-2002 Manteca 3rd Wednesday Elk Grove Every Tuesday 12 noon 9:30 am Prestige Senior Living Emeritus at Elk Grove 1130 Empire Avenue 6727 Laguna Park Drive Facilitator: Taylor Mead Facilitator: Fay Peterson 209-239-4531 916-681-2982 Marysville 2nd Wed. Elk Grove 1:30—2:30 pm 2nd & 4th Thursdays 5pm Prestige Assisted Living The Commons at Elk Grove 515 Harris Street 9564 Sabrina Lane Facilitator: Sherri Banford Facilitator: 530-749-1786 Sharika Montenegro 916-683-6833 th 8 Orangevale Third Weds. 10:00am Eskaton FountainWood Village 8773 Oak Avenue Facilitator: Andrea Manning 916-988-2200 Placerville 3rd Monday 10:00 am Elder Options 82 Main Street Facilitator: Carol Heape 530-626-6939 Placerville 1st Tuesday 5:30 pm Gold Country 6041 Golden Center Court Main Library, Independent Living Suite Facilitator: Lalanea Escobar 530-676-1000 Rancho Murieta Every Wednesday 1:00—2:00 PM RMA Blulding Rancho Murieta Facilitator: Nan Parquette 916-354-2281 Roseville 1st Thursday 9:30 am Somerford Place 110 Sterling Court Facilitator: Facility staff 916-772-6500 Sacramento 1st & 3rd Thursday 11:30AM –1:30PM Gray Matters/DEARS 7604 Bellini Way Facilitator: Esther Thompson (916) 203-8385 FORGET-ME -NOT Sacramento Every Tuesday 10:30 am – 12:00 noon Alzheimer’s Aid Society 2641 Cottage Way #4 Facilitator Ruth Harris 916-483-2002 Sacramento Every Tuesday 2:00 pm—3:30 pm Alzheimer’s Aid Society 2641 Cottage Way, #4 Facilitator: Ruth Harris 916-483-2002 Stockton 3rd Tuesday 2:00 pm Golden Living Center, Portside 2740 N. California Street Facilitator: Armand Holland 209-466-3522 nd Stockton 2 Tuesday 10:00 am Somerford Place 3530 Deer Park Drive Facilitator: Chelease Adams 209-951-6500 Sacramento Every Wed. Tracy 3rd Tuesday 10:00am Revere Court 7707 Rush River Drive Facilitator: Facility Staff 916-392-3510 Sacramento Last Tue. Each Month 10:00am Golden Pond Senior Living 3415 Mayhew Road Facilitator: Ajna Glisic MS (916) 369-8967 Stockton Every Thursday 10:00—11:30 am Villa Marche Assisted Living 1119 Rosemarie Lane Facilitator: Carla Little 209-477-4858 6:00pm Emeritus at Heritage Place 355 Grantline Road Facilitator: Christina Wyatt 209-835-1000 Tracy 4th Thursday 6:00 pm Astoria Gardens 1960 W. Lowell (at Coral Hollow) Facilitator: Antonia Hoy 209-833-2200 Turlock Every Thursday 2:00—3:00 pm Covenant Village Community 2125 North Olive Avenue Facilitator: Max Perry PHONE: 800-540-3340 Note: Caregiver Support Groups listed in RED offer a patient group simultaneously. See page 10 for additional details regarding patient groups. 9 Vacaville 2nd Tuesday 1:00pm Emeritus of Vacaville 1111 Ulatis Drive Facilitator: Natalie Martin 707-447-7100 Yreka 1st and 3rd Tuesday 10:00am Oakridge Senior Park Clubhouse 400 Hiram Page Road Facilitator: Ronda Moser 530-459-3501 Yuba City 4th Saturday 10:00 am Summerfield Senior Care Center 1224 Plumas Facilitator: Mike Fortwengler 800-540-3340 THANK YOU FOR YOUR DONATIONS! Donations make our programming Possible. You support our ‘Blue Book’, Support Groups, Alzheimer’s Café’, and many other services benefiting the community. ? Did you know Estelle Getty of the Golden Girls had Alzheimer’s ? SPECIAL INTEREST GROUPS For the Patient PLACERVILLE Support Group for Early Stages Call Carol Heape if interested 530-626-6939 SACRAMENTO Now two meeting times: Every Tuesday, 10:30—Noon or Every Tuesday, 2:00—3:30 Alzheimer’s Aid Society 2641 Cottage Way, #4 Facilitator: Ashley Young and Sheryl Ashby (916) 483-2002 STOCKTON Support for memory impaired Every Thursday, 10:00—11:30 am Villa Marche Assisted Living 1119 Rosemarie Lane Facilitator: Carla Little, Steve Gianandrea & Sheryl Ashby 209-477-4858 Our patient groups offer : traditional support group brain exercise reminiscence programs and art therapy There are no fees for these groups Alzheimer’s Aid Society Like us on Facebook Did you know that Sir Winston Churchill had Alzheimer’s Do You Have an Old Car or Boat? Would you like to donate it to a good cause? Call the Alzheimer’s Aid Society (916) 483-2002 0r (800) 540-3340 10 FORGET-ME -NOT In Memory of: December 1 - February 10, 2015 DONATIONS RECEIVED Adeline Alexander Otto Anthony Nellie Ayers Bob Baron Elmo Biglieri Glann & Janice Camper Stanley Collier Anthony Dalessandro Oliver Dowd Ross Gannon Zetta Green Helen B. Grobbell Jim Hegarty Jeanne Huber Annabelle Isherwood Barbara Jetton June Johnson Deno Katsules Eunice Kostka Lupe Lopez Marie Lucas Betty Jane Manlove Earline Martin Mary Ann Mork Mary Neville Dorothy Ohm Wayne Pinard Walter & Mary Prybyla Lexie Marie Raye Harriet Rehn Georgia Riggs Rose Corral Riolo David Rosenlof Leland Schindler Catherine Schnur Leon Schnur Milton Schnur Theodore R. Sherburne Beverly Sickels Pauline Simons Robert Tennier Larry Turner Angela Vosberg Donald F. Weeks Helen Werner Eleanor ‘Fritzie’ Youngstedt In Honor of: Patricia Jones Famous People with Alzheimer’s Born in March and April March 2, Bill Quackenbush Ice Hockey Player March 3, James Doohan Actor March 3, Lee Radziwill Socialite March 7, Joseph Maurice Revel Composer March 11, Harold Wilson Prime Minister UK March 22, Marvin James Owen Baseball Player March 29, Arthur O’Connell Actor April 1, Ferenc Puskas Hungarian Footballer April 11, John Douglas French Brain Research April 19, Kay Swift Composer April 22, Glen Campbell Singer April 24, Willem de Kooning Artist April 26, A. E. van Vogt Science Fiction Author April 26, Frederick Law Olmsted Journalist April 28, Terence David John Pratchett Author April 30, Bobby Vee Singer (Teen Idol) 11 The Alzheimer’s Café With Maryann Frantz The Alzheimer’s Café is a European concept that we are initiating in California. Fun and Valentines At February’s Café. The Alzheimer’s Café is for the enjoyment of those diagnosed with Memory Loss, their loved ones and the Community is also invited to participate and learn more about those dealing with Memory Loss. 12 The Alzheimer’s Aid Society would like to invite you to come out and enjoy the fun at our next Alzheimer’s Café! These Alzheimer’s Cafes are the only program of its kind in California. The Cafes are for people who have a diagnosis of some kind of Dementia, their family members and interested members of the community. They focus on healthy eating, socialization, and stress reduction. This model of socializing is very popular in Europe, but we are the first such model in California. Persons afflicted with Alzheimer’s disease meet and socialize in a setting that is accepting and non judgmental; they get to experience a fun and stress free environment and are not faced with the social challenges that their disease poses. The family members also get a chance to socialize with other family members of Dementia patients with support from the community thus increasing understanding of this disease and the people it affects. Cafes include food, entertainment, and activities at no cost to you. These activities are specifically geared to reduce stress and benefit those dealing with Alzheimer’s disease, whether they are a patient or family member. These activities vary each month. Examples include art, massage, games, music and much more. If you turn to the “Alzheimer’s Café” page in this newsletter, you can find pictures of some of the activities the Alzheimer’s Café has done in the past. Again, we would like to invite you to come and participate with us at the next Alzheimer’s Café. Please RSVP to (916) 483-2002, we need to get a census to make sure that we have enough food. The dates for the next two Alzheimer’s Cafes are: March 12th & April 9th, they run from 2 to 4 pm. The Cafes are held at Fremont Presbyterian Church at 5770 Carlson Drive (at the corner of H. Street) Thank you for your support. Thank you for your Donations Your Support is Needed to further our Programs. The Alzheimer’s Café is just one of our many programs. 13 Recipes Needed We are in need of recipes for our cookbook. Thank you to Betty Reed, Fay Peterson, Ashley Young, and Samuel Perry for their contributions! If you have any recipes that you would like to submit, please send them in and we will include them in our cookbook. Thanks! You can mail them to the Alzheimer’s Aid Society 2641 Cottage Way #4 Sacramento, CA 95825. Please send them to the Attention of Ashley Young. Or you can email your recipes to ashley@alzaid.org. Thank you for helping us with this project. SUNDOWNING Barbara Gillogly, Ph.D., LMFT, CPG What Is It? Approximately one quarter of patients with Alzheimer’s-type dementia exhibit disruptive, restless, and/or confused behavior that tends to be more apparent in the late afternoon or early evening. The person may pace more, display increased anxiety, repeatedly ask questions and/or become more confused as to person and place. Why It Occurs No one knows for sure why sundowning occurs, but there are several hypotheses: * Being tired toward the end of the day. * Disturbance in the circadian rhythms of a patient * In a darker setting, people and objects may become less distinct which can lead to anxiety, fear, and/or 14 * Late afternoon is also a period of a natural drop in blood sugar that could lead to agitated behavior. What Can You Do About It? * Exposure to bright light during the day. Playing quiet, soothing music during the sundowning period—music previously enjoyed by the individual. * Increasing the light in the environment. * Offering a late afternoon snack containing some protein. * Minimizing sensory input— creating a calm, soothing environment. * Minimizing expectations of the person with dementia. Low doses of anti-anxiety medication may also be helpful. 15 2641 Cottage Way, #4 Sacramento, CA. 95825 OF NORTHERN CALIFORNIA Alzheimer’s Aid Society OR CURRENT RESIDENT AUBURN, CA. No. 25 PAID US POSTAGE NON PROFIT ORG