The Parchment, Summer 2015 - The Arc of Livingston

Summer 2015
Volume 14, Issue 3
Mary Bennett:
Super Mom
and Worker
Mary
Bennett
is the provider for
a family of four,
including two young
children.
Despite
having an intellectual
disability
that
affects her cognitive
processes, Mary is
able to support — and
even pamper — her son and daughter thanks
to a combination of hard work, upbeat attitude,
and the ability to earn a living wage.
“My paycheck is important so that I can pay
the bills and get stuff for my kids,” Mary says,
with a smile. “My daughter and my son are
spoiled. My little girl loves ‘Frozen,’ and my
boy loves cars and planes. Nothing makes me
happier than bringing smiles to their faces.”
Mary has lived in a Dansville apartment since
the birth of her daughter, Serenity, nine years
ago. Her husband of 13 years, Ed, is preparing
to re-enter the workforce with assistance from
ACCES-VR transition planning, and presently
watches the children while Mary is at work.
She has experience in many different types of
jobs, but right now Mary’s specialty is janitorial.
She successfully holds down two cleaning jobs.
“Mary has become determined and very
independent,” says Job Coach Emily Austin.
“She walks to work, or rides her bike. When
I meet her there, she is focused on providing
good work. Even with the nastiest job, she’ll say
‘okay,’ and do it with a smile on her face.”
While she is certainly no stranger to janitorial
work (she won Hilltop Supported Employment’s
Employee of the Month in February of 2009),
Mary’s work history is largely customer-service
focused. In the early 2000s, she was employed at
a Rochester-area Wal-Mart, where she worked
in the gardening department, watering plants
and assisting customers. More recently, she
took a temp job at Finders Keepers, The Arc’s
thrift store in Mount Morris..........Cont. on pg. 7
Miskell to Lead Arc
as Executive Director
At its Wednesday, June 24 meeting, The Arc of
Livingston-Wyoming Board of Directors named Chief
Financial Officer/Associate Executive Director Martin
Miskell as the agency’s next Executive Director. Martin
will succeed Chris Peterson, who has been with The Arc
for 25 years, and had announced in summer of 2014 his
intention to retire.
date, projected for early October when he turns 62.
Public Relations Director Jeff Thomas anticipates a
smooth transition to Martin as the “face” of the agency,
with potential financial benefit to The Arc.
“Martin is incredibly well connected in the community,”
Jeff says. “Practically everyone knows him. Because he
is so plugged in, and he believes so strongly in
our agency’s missions, he’s a natural fundraiser.
Each year, he secures many thousands in
sponsorships for our golf tournament. And
when we needed to construct the new KidStart
building a few years, back, he was our most
successful fundraiser for our capital campaign.”
“I am very excited to take this next step and
honored that the board has expressed confidence
in my abilities,” Martin says. “I have enjoyed
working with Chris tremendously and intend to
continue to execute the strategies that have made
our agency successful. We have many challenges
ahead but we are well prepared to meet them.
We have a seasoned and dedicated senior
Beginning in 2010, Martin was a key member
management team and board, caring employees,
of The Arc’s first capital campaign, which
and a strong financial position. I look forward
Martin Miskell
raised $800,000 toward a needed new KidStart
to working with our board and employees to
building. He personally solicited individuals
continue to empower the extraordinary people we serve
and vendors resulting in the majority of contributions,
to experience the joys and challenges of life with dignity
and wrote and was awarded a $250,000 Head Start grant.
and independence.”
“Martin was very involved with the move from
Martin has been with The Arc since 2002 when he was
KidStart’s old home on the SUNY Geneseo campus to
hired as director of finance, a position that he held for five
the new Lehman Center in Groveland,” explains KidStart
years before being promoted to CFO.
Director Chris Lynch. “He was heavily involved with
purchasing the land, contracting with Krog Construction,
Martin’s tenure has corresponded to a period of
bank loans, etc. During the construction process Martin
significant growth for The Arc. The agency’s budget has
was very helpful to me by answering questions or giving
doubled, from just over $12 million to more than $26
me advice when dealing with the various agencies that
million, while administration costs have decreased from
KidStart is involved with.”
10.9 percent to 6.6 percent. Martin has collaborated
with program directors to improve and expand services
Recently, Martin was instrumental in securing
for program participants, including five new Residential
upgraded office space for The Arc’s Service Coordination
Homes, Supportive Apartments, and expansion of Day
team on the Livingston County campus in Mount Morris.
Programs, among other advances.
This allowed the team, which had been scattered in three
separate locations, to consolidate offices under one roof
“Martin’s business background and financial expertise,
without additional cost.
and his passion to improve the lives of the individuals we
serve, along with the fact that he has been our Associate
“Martin played a huge role in my recent office
Executive Director for the past few years make him a great
move,” says Service Coordination Director Jen Warner.
choice for this important position,” explains Arc Board
“Martin made some calls, and a short time later, he was
President Marcy VanZandt. “The Board of Directors is
accompanying me on some tours of possible offices for the
looking forward to working with Martin to make The Arc
MSC team. He was key in not only helping to secure our
of Livingston-Wyoming an agency of choice for services
current office location on the 5th floor of Building 1 on
for individuals with intellectual and other developmental
the Livingston County Campus, but also in working out
disabilities and for employment.”
the details of the lease. The MSC team now has very nice
centrally located professional office space that we are able
The Arc will now transition from Chris to Martin, a
to rent at a fair and reasonable cost, and Martin deserves
process that has begun in earnest with the search for a new
much credit for helping us get there.”
CFO. Chris has been flexible with his actual departure
Don’t forget to renew your membership using the enclosed envelope!
18 MAIN STREET MT. MORRIS, NY 14510
(585) 658-2828
WWW.LWARC.ORG
Page 2
Message
from the
President
The Arc kicked off the summer with
The Friends Fore Life golf tournament.
This event is one of my favorites because
Marcy VanZandt,
Board President
I see people who have supported the
agency in this event for many years. They
feel like family and that is what the Arc is all about! It was great to
see everyone. Thanks for making this an amazing day!
We have some other great events coming up. On August 13th, we
hope you will join us for Rockin’ the Arts, or visit us at the Wyoming
County Fair the week of August 15th. We will be in planning mode
for the Ramon Rocha Run/Walk on September 12th, and Harvest
Fest which will be October 7th at the Legion Hall in Warsaw.
And don’t forget our Membership Drive! For just one dollar you
can show your support for the individuals we serve! So please return
the enclosed membership envelope, and encourage your family and
friends to become members of the Arc of Livingston-Wyoming!
The Arc will also be in a stage of transition as we prepare for new
leadership! Congratulations to Martin Miskell who will be the Arc’s
new Executive Director. He will be working with Chris throughout
the summer as he prepares for his new role with the agency.
Comments
from the
Executive
Director
Farewell to one and all. I believe this
is my last address in The Parchment, and
now is the time to say goodbye.
Chris Peterson,
Executive Director
During 25 years at The Arc, we have seen great change. I
remember being hired as the Director of Manufacturing and
Hilltop was entirely devoted to workshop employment. The agency
had a small annual budget and our total employment was under
300 people. Our homes were few and the transportation fleet was
old and rusted. KidStart was known as Children’s Services and
operated in the Holcomb building at SUNY Geneseo. And, the
administration building was a production facility. Many of the
people we served then had lived in institutions, and they were still
new at joining their community.
The requirement that 50 percent of the Board be family members
is something that has always helped us. The natural tendency to
provide services that people with disabilities want is present at
every Board meeting and function. It is the component that sets
The Arc apart from other providers.
And… with Martin’s new position, we will be saying goodbye to
Chris Peterson! To say he will be missed, doesn’t seem to adequately
express how respected Chris is by staff, the community, and the
individuals we serve. We are thankful for his expertise over the past
25 years in making The Arc financially strong, for advocating for
exceptional services, and for the care and respect he has shown our
sons and daughters. Chris, thanks for your leadership. We all wish
you a happy, healthy retirement!
The agency has seen its ups and its downs. Luckily, I leave at a
time when we are in good financial condition. I certainly remember
those periods coping with worry over expenses exceeding income
and borrowing money to keep things going.
Become a Partner in Giving!
For more information please contact Marianne Betette, Coordinator of
Development and Planned Giving at (585)658-2828 Ext. 139, (585)5195617, or mbetette@lwarc.org.
Exciting progress is being made within our new Planned Giving
program. We are working with the national Arc as well as a company
called Crescendo Interactive that helps develop successful Planned Giving
programs. The marketing process will now begin by using many of the tools
that have been provided.
I leave The Arc with the deepest appreciation for staff, Board
members, and people receiving services knowing that many of you
are among my best friends. Thank you everyone.
A website for The Arc of Livingston-Wyoming’s Planned Giving program
is now up and active. The address is www.lwarclegacy.org, or you can simply
access it from any page of our primary Web site at www.lwarc.org.
The website has many tools and resources for understanding and
exploring ways to give. It has a free wills guide, which can help prepare
a will or change/update a will that is already in place. There are detailed
descriptions on the various ways to give to The Arc of Livingston-Wyoming.
By signing up on The Arc of Livingston-Wyoming’s Planned Giving website,
these tools can be received, in addition to an e-newsletter. The website also
contains information regarding how gifts can have tax benefits.
Press the green “Planned Giving” button to access
the Planned Giving Website at any time. Try it today!
THE ARC ’ S PARCHMENT SUMMER 2015 ISSUE
Page 3
Picture Page
“Friends Fore Life” Golf Tournament
It was a perfect day for golf Friday, June 26th at The Arc’s 21st annual “Friends Fore Life” tournament.
The first place women’s team had a score of 80.
They are (L-R): Kellie Kennedy, Deb Haefele, Penny
Peterson, and Samantha Geraci
The first place men’s team had a score of 58. They are (L-R):
Andy Gilkes, Glyn Hartigan, Derek Hicks, and Mike Strauss
Volunteers Steffanie Parks (left)
and Marianne Betette
All Smiles!
100 Cameras Project
Congratulations to our good friend Dr. Michael Gburek,
of Summit Family Dental Care, recipient of The Arc
Foundation Hero Award. “He is truly a gentle soul,”
commented one Arc Residential staff member. “One
gentleman at our house actually keeps photos of Dr.
Gburek! Right now, they are in safe keeping in his dresser
drawer. But for tor the longest time, they were hanging
on his wall!”
Award winning photographer/filmmaker Courtney Bent
brought her 100 CAMERAS PROJECT to Letchworth
State Park June 11-12. The project’s mission is to put 100
modified camera systems into the hands of 100 people
with disabilities throughout the U.S., bringing the vision
of these new photographers to life.
CLOCKWISE FROM TOP:
Matt Englert; Rose Piraino; Ricky Hatfield
“DR. MIKE” AND HIS STAFF, WITH ARC FOUNDATION BOARD
MEMBERS MARCY VANZANDT AND TIM MCCALLUM
July 4 Fun
Keeping cool and sharing laughs at the Seniors/Day Hab Independence Day picnic
at Letchworth State Park.
L-R: Jessica Scharet; Alicia Burley and Josh Dueppengiesser; Casey VanZandt
MIKE AND CAROL GBUREK
L E A R N M O R E AT W W W. L WA R C . O R G
Page 4
Annual Dinner Award Winners
The following people were honored at the 2015 Arc of Livingston-Wyoming Annual Dinner
Community Services Achievement Award: Charod Bryant
Charod Bryant is this year’s winner of the Residential
Program Achievement Award. Charod lives at the Warren
IRA in Warsaw, and he works at Hilltop Industries in the East
Avon site. Charod dreams of living in his own home someday
and starting a family, and, according to Adam Moore, Site
Supervisor, he is well on his way to learning the skills needed
to eventually accomplish those dreams. Since moving into the IRA in April
of 2006, Charod has made great strides with his social skills, and is becoming
more independent in the household and in the community. Adam reports
that Charod has grown tremendously, especially over the past year, and
everyone has noticed. Congratulations, Charod! We are very proud of you!
Robin is frequently brought up as a potential candidate for supported
employment, and she has in fact tried several different jobs in the community.
For a variety of reasons, Robin has not been successful at jobs in the
community and has always returned to the work center at Hilltop.
Drew Moran Community Involvement Award: Rose Piraino
Rose Piraino is the recipient of the Drew Moran Community
Involvement Award. Rose lives at the Hope IRA in Retsof,
and is a participant in the Day Habilitation Seniors Program.
Once a month, Rose can be found at our main office helping
to orient new staff as part of the agency’s “Welcome” training.
When she is not busy with helping with training or with her
Seniors Program, Rose can be found perusing the latest show
offerings at the Rochester Broadway Theatre League. Rose loves theatre!
She sees just about every show that comes to town, and often invites some
friends along. Her favorite shows include Jersey Boys, Wicked, Phantom
of the Opera, Annie, Lion King, Cinderella, Grease, Mary Poppins, and Les
Miserables. She is also past president of the local Red Hat Society, which is
part of the worldwide social organization. Rose is an outgoing person who is
quick to make friends – a real joy to be around! Congratulations, Rose!
Hilltop Placement Award: Jason Pierce
By Crik Christophel, Vocational Specialist
Jason began working through our Supported
Employment services in 2006 as he was finishing high
school. In the very beginning it was clear Jason was going
to be a star at work. His attendance was excellent, he was
able to work independently at his various jobs, and most importantly, he had
a positive work attitude.
Eric Byrd Award of Inspiration: Dan O’Leary
Dan O’Leary has been a true, quiet leader in his life,
exhibiting qualities of great intelligence, compassion and
kindness. Dan has been busily attending CP of Rochester
four days a week for more than 20 years. Lisa Abbott, Site
Supervisor and friend states, “Dan just keeps plugging along
and always has a smile on his face.” Dan has a quick wit, and
an ornery grin. Sometimes you wonder what he is up to in that sharp mind
of his. He is a bit of a teaser. Dan has balanced a life of activity, traveling to
program, friendships, and great wisdom he shares willingly and humbly with
others. Of special note was, of course, the endearing friendship he shared
with his friend Don Andrews. It spanned decades, which in today’s world
is a unique experience. Don and Dan were double trouble sometimes, but
they had a way of complementing each other and together they were a force.
Always polite, also very funny together, they stood together until the time
of Don’s passing. Dan showed all of us what a true friend is. He has a depth
of caring, compassion and acceptance that shone through his attitude and
actions with his friend, and as Don’s health started to fail, Dan stepped up to
be there right until the end. No doubt, it was of great comfort to his friend.
When asked during the Dragonfly Project what his wisdom for the world
would be, he answered, “To be kind, and grateful.”
Hilltop Achievement Award: Robin Parker
By Kellie Kennedy, Director of Day Services
Robin started working at Hilltop in 1992 at the age of 21
when she graduated from high school. Robin has always been
a very good worker in the work center who is able to complete
a variety of jobs and is able to produce at a fast pace. All the
production supervisors love having Robin assigned to their area because she
is able to get the job done!
One of Robin’s goals has been to speak up for herself; to be honest about
her opinions and let her Vocational Specialist know what she wants. Over the
past year, Robin has really embraced this goal and the advocacy movement
for work centers. Robin is vocal to anyone who asks (and some who don’t
ask) that she loves her job and never wants to leave the work center. She feels
empowered to say where she really wants to work.
Robin epitomizes the need for choice in where a person works.
In May of 2009 a position for a Bus Cleaner opened up in The Arc’s
Transportation Department. It was no surprise to all that had worked with
Jason when he was hired for this position. Transportation quickly realized
they had hit the jackpot with Jason. Jason has his driver’s license which
meant he could not only move the transportation vehicles around that he
needed to clean, but he could also make runs to outside vendors to pick up
parts the mechanics needed, thus freeing up the mechanics who normally
did this. When Transportation was in need of a substitute Bus Aide, they
asked Jason if he would be interested in taking on another responsibility.
Now when a Bus Aide is needed at the last minute Jason easily slips into the
role of an aide. Jason recently started working with trainees from our other
programs. They may shadow him as he works or may perform some of his
duties under Jason’s supervision.
Jason’s work shines through when preparing buses and vans for their DOT
inspections and the routine checks he makes to keep the buses and vans safe
for their occupants.
Jason’s independence and excellent time management shine through
daily as he adjusts his work priorities to get the job done. In fact, Jason has
developed his own Tracking Form to prioritize his work. He keeps himself
busy and is always on schedule while maintaining quality workmanship.
When Jason notices something that needs attention he will take the initiative
to resolve it himself or bring it to the attention of the appropriate person.
Jason recently celebrated his 6th year of employment with Transportation.
Day Hab Achievement Award: Carolyn Parmenter
By Debbie Snyder, Day Habilitation Coordinator
Carolyn is a delightful lady who joined Open Roads and
recently celebrated her 1 year anniversary there. When
Carolyn first joined the program, she was very shy and
apprehensive. Through the year that Carolyn has been with us,
we have watched her grow and embrace new experiences in
her life. Carolyn exhibits a great sense of humor and tolerance
for others. Carolyn has taken on the leadership role when she was elected by
peers for the President of the Red Hat Society. Carolyn enjoys reading, word
searches, cooking and embroidery. She also has a beautiful singing voice that
THE ARC ’ S PARCHMENT SUMMER 2015 ISSUE
Page 5
everyone enjoys listening to. Carolyn is a wonderful addition to our
program.
Randy Lakin Sportsmanship Award: Paul Zoeller
By Gary Buchanan, The Arc Recreation Program
Paul is a great example of the word sportsmanship.
He participates in the Arc bowling league and Special
Olympics bowling. If anyone observes or hangs out with
Paul, they will find out fast why he deserves this award. For the years that Paul
has been with us, I have never heard or seen anything less than being positive
and supportive with words of encouragement. Paul always has a great outlook
in whatever is going on. He is always cheering someone on or telling them
they will do better, even when he is not doing well himself. It is a pleasure to
have Paul with us and for him to set a great example for others to follow.
Jonathon Templeton Award for Special Olympics: Rachel Saraceni
Rachel has worked at Hilltop for the past four years as she attends school
and has been an active participant in Special Olympics. The following
appeared in The Livingston County News on July 13th 2014:
A Mount Morris girl won two swimming medals at the
2014 Special Olympics USA Games which took place June 14
to 21 at Princeton University in New Jersey.
Rachel Saraceni, 19, who is deaf and autistic, won a silver in
the 50m breaststroke and a bronze medal in 50m backstroke
during the Games. She also received fourth-place ribbons for the 50m relay
and freestyle.
Rachel, who has won more than 25 medals in local, regional and state
competitions, was part of Team New York. She competed against Special
Olympians from around the nation. The 2014 Games featured than 3,500
athletes, 1,000 coaches and delegates and 10,000 volunteers.
Rachel is a daughter of James Saraceni of Batavia and Seana MacIntyre of
Mount Morris and granddaughter of Anthony and Marcy Saraceni of Batavia
and Dick and Donna Ellis of York.
James Saraceni said attending the Games was a great experience and he is
very proud of his daughter. Also accompanying Rachel were her mother, her
mother’s boyfriend, her aunt and grandmother.
Rachel attended St. Mary’s School for the Deaf up to age 5 and then the
Rochester School for the Deaf until age 16. She attends Genesee Valley
Educational Partnership and has been in the student work program at Hilltop
Industries.
Community Members Recognized
The following businesses and community members were honored for
their commitment to individuals with intellectual and other developmental
disabilities at the 2015 Arc of Livingston-Wyoming Annual Dinner:
Staff Milestones
These Arc of Livingston-Wyoming employees were honored for
their dedication at the 2015 Annual Dinner:
Perfect Attendance — Alan Austin, Kim Biondolillo, Wanda
Caldwell, Penny Cartwright, Lindley Chapman, Dianne Cicero, Paula
Comstock, Gary Cornell, Louis Curry, Paula Dieter, Alyssa Evans, Christa
Hartigan, Lloyd Howe, Rebekah Hull, Megan Johnson, Crystal Kenyon,
Nicole Kershner, Brian Kingston, Wanda Krautwurst, Sandra Lamoy,
Kathy Lennox, Sally Luther, Caleigh McMonagle, Martin Miskell, Adam
Moore, Jim Mullin, Virigina Napier, Doug Nickerson, Diane Parker, Chris
Peterson, John Prospero, Valerie Quatermous, Michelle Rowe, Jason Ryan,
Megan Ryan, James Salamone, Deb Snyder, Susan Snyder, Fred Sorrentino,
Keith Sotile, Shawn Stewart, Cathy Sullivan, Cathy Tavernier, Jeff Thomas,
Deborah Tucker, Sally Urbonas, Patricia VanBuren , Judy Welch, Brenda
Zeches
5 Years of Service — Lisa Abbott, Alan Austin, Jessica Barnhart,
Stacey Baughman, Leta Button, Amber Carney, Mary Coniglio, Grant
Cox, Timothy Duboy, Daniel Gallagher, Ashley Hess, Laurie Hill, Jennifer
Hint, Megan J. Johnson, Ariel Middleton-Burdick, Barney Pedraza, Janet
Robinson, Megan Ryan, Susan Snyder, Katherine Spencer, Heather Taft,
Amy Wolfanger, Eugene Wolfanger, Morgan VanScooter
10 Years of Service — Lisa Beals, Robert Cummins, Samantha Geraci,
Katherine Grant, Amanda Hamler, Ruth Herring, Lloyd Howe, Sara
Milligan, Karen McColl, Brenda McNulty, Audrey O’Neil, Marc Pachuta,
Lucinda Parker, Rondee Pierson, Joshua Putney, Mandy Root, Harland
Spencer, Monica Stewart, Sally Taylor, Mary Tuso, Darlene Werth, John
Whitney
15 Years of Service — Lynette Blackmon, Timothy Chandler, Victoria
Cicero, Jody Dumbleton, Beckie Johnson, Tara Lehman, Martha Mix,
Karen Nelson, Sherrie Reilly, Kevin Smith, Stacy Storms, Karen Traczyk,
Sharon True, Donna Washburn
20 Years of Service — Donald Brown, Lisa Faulds, Cindy Hicks
25 Years of Service — Paula Dieter, Chris Peterson, Cathy Sullivan
Charles Elam Volunteer of the Year Award: Lisa Irwin
Arc Foundation Scholarship Winners:
- Livingston County: Michaela Schrader, Livonia High School
- Wyoming County: Livingston County: Michaela Schrader,
Livonia High School
Arc of Livingston-Wyoming Foundation Hero Awards:
-Annie Chwiecko, District Representative for New York
State Senator Pat Gallivan
- Barb Collins, Chief of Staff for New York State Assemblyman Bill Nojay
Community Partnership Awards:
- Livingston County: Hampton Inn Geneseo
- Wyoming County: Wyoming County Mental Health Department
Hilltop Industries Customer of the Year: Hasbro, Inc.
Hilltop Industries Employer of the Year: Covered Wagon Tours
L E A R N M O R E AT W W W. L WA R C . O R G
Page 6
A Picture Speaks
1,000 Words
By Karen Duboy
It is often said, “A picture is worth 1,000
words”. This is one of those pictures. For many
who know Matthew Duboy, they know he is a
simple kind of young man. He loves wearing his
jeans, t-shirts and sneakers. Matthew owns one
pair of black dress pants and a handful of nice
shirts. When it is extremely necessary for him to
dress up for a special occasion he can be forced to
wear the fancy clothes and he will argue with his
mother till the very bitter end.
Matthew Duboy
(Vicki Cicero Photography)
But there is one occasion when there is never
any disagreement about what to wear. That is
when Matthew has the chance to wear a tux.
What makes this story so special is the way the community treats Matthew.
Matthew is just an ordinary young man in the community. The day he goes
for his fitting at the Warsaw Dry Cleaners, the owner, Denise, and her daughter,
Monica, are so excited to see him come in for his fitting. They treat him with lots
of patience and care to be sure he looks his best for the special event that he will be
attending in a couple of weeks: The Arc of Livingston-Wyoming’s formal dance at
the Dansville Moose Lodge.
On the day he goes for his fitting, Matthew is confused because he wants to
walk out of the shop with his tux on. The event is not for a couple of days. Again
Monica is very patient, and makes sure Matthew’s tux looks very sharp. There is
another client getting his tux fit for a prom in a few days and because of Monica’s
professionalism dealing with both young men at the same time, no one in the
room is made to feel uncomfortable. This is a pleasant feeling for me, as Matthew’s
mom, because not everyone in today’s society has the ability to respect individuals
with intellectual development disabilities. For those that may not be aware,
Matthew was born with Down Syndrome.
The day comes and Matthew attends the formal. It takes Matthew two hours
to get ready but the time spent is well worth his smile and excitement. Before the
end of the evening, Matthew stops to see his friends the Mike Emerling Family in
Perry. Matthew has always been greeted by the family with lots of hugs and high
fives. The teenage girls have a friend who again treats Matthew just like one of
the gang. The good feeling in my heart is overwhelming. I’m moved by the way
we all learn to accept everyone in our community, regardless of our abilities or
special needs.
We stop in at Warsaw Tops to get some groceries, and many of the customers
acknowledge Matthew’s sharp dressed appearance. Witnessing this day is
Big Dogs, Big Hearts
A service organization at The Arc of Livingston-Wyoming once again
set their sights on fundraising that went to the dogs, raising money for the Big
Dogs, Big Hearts (BDBH) rescue. They donated over $450 to BDBH, which is
a volunteer organization that takes dogs from bad situations and shelters, and
places them in foster homes until they are able to be adopted. While reading
the profiles on the website, the dogs with special healthcare needs stood out
to the people from The Arc.
“We are so pleased and grateful for the generosity of everyone at The Arc
of Livingston-Wyoming in helping these wonderful dogs. Every one of them
matters to us, and we were touched that this meant something to others as
well. We will be putting this money to good use for the vetting, medications
priceless. Matthew has the opportunity to live a meaningful, integrated and
community life.
Matthew lives in a group home because he is young adult who wants to
live independently, and he attends a day program at The Arc of LivingstonWyoming to help build his skills. Matthew and his family made those
important life choices after careful consideration of what is best for Matthew.
Sadly, Governor Cuomo is pushing to change all of that. The Governor is
saying individuals with special needs are not being offered MEANINGFUL,
INTEGRATED, AND COMMUNITY employment opportunities.
I disagree. Even though Matthew and others work in specialized work
centers, it does not mean there are no other opportunities that can fill his
life with meaning. The Governor vetoed four bills last November that would
offer more living opportunities for individuals and families for housing.
Allow them to live in the community, because families cannot be caregivers
forever!
I just don’t understand why Governor Cuomo wants to take employment
away from NYS citizens who choose to work, and not focus on citizens
who choose not to work. There must be other Medicaid programs that
need to be revamped and dollars tightened. There must be ways for our
government to reduce spending in all Medicaid programs not just those that
help a targeted population. Mandated government programs as a whole
need to be reviewed. The Governor needs to look at all Medicaid mandated
programs and work with county, state and federal governments to weed out
the wasteful spending.
As a community, we need to let our Governor, legislators and public
officials know that stopping funding to The Arc of Livingston-Wyoming
will have a significant negative impact on our community, not only for the
individuals with intellectual disabilities, but the support staff, drivers, office
help and businesses that depend on contracts that The Arc fills. The Arc is
an important part of the local economy.
The Arc of Livingston-Wyoming is a strong business. It supports both
counties in so many ways that it is hard to imagine the negativity it could
have if the funding is stopped. Individuals with developmental disabilities
have many opportunities to be a part of the community without shutting
down work centers, or cutting funding. These individuals want to work, be
productive citizens and have a sense of pride in getting up every day with a
purpose. If the Governor goes through with the funding cuts, many of our
loved ones could be left sitting at home.
Many of Matthew’s friends in the community may not even realize what a
huge, positive impact they make in Matthew’s life. They are just being good
people. But together their words and actions open doors for individuals
with intellectual disabilities. As Matthew’s voice, please continue to speak
up to Albany and Washington. Tell them the choice is ours to make, not
Governor Cuomo’s. We want The Arc of Livingston-Wyoming to continue
as is because that is our choice. The Arc must be doing something right; it’s
been in business for more than 50 years!
and regular blood work that some of our dogs need, and thank each
person who helped with this fundraiser,” says Darcy Drons, Director, Big
Dogs Big Hearts Rescue.
The group held a picnic to celebrate their accomplishments for
the year thus far, which
was attended by Kathy
Allen, and the dog that she
adopted from BDBH, Lily.
Lily lives in Canandaigua
and has participated in the
dog sports of agility and
flyball, and volunteers with
The Ontario Arc as well as
a therapy dog.
THE ARC ’ S PARCHMENT SUMMER 2015 ISSUE
Page 7
The Unlikely Advocate
How My Photo Landed On the Side of A Box Truck
By Lisa Irwin
There was something different but very familiar about the trusty Hilltop
Industries delivery truck when it rolled into our Mount Morris parking lot
this morning.
It wasn’t the contents; as usual, the truck was used for pickup and
delivery of products packaged and assembled by the Hilltop workforce,
which is largely made up of hard working individuals with intellectual and
other developmental disabilities ... people like me. I’m a Hilltop worker,
and the president of Advocates Coming Together, our self-advocacy group.
No, this wasn’t a subtle change to the truck. It was a change meant to be
noticed by the public — and it certainly got me excited. A photo of yours
truly, almost eight feet in height, was plastered
across the side panel of its cargo area!
My picture, along with images of my co-workers
Mike and Robin, is part of an advertisement
promoting the hashtag #WorkChoice.
#WorkChoice was chosen by my fellow selfadvocates at The Arc of Livingston-Wyoming to
spread awareness on social media to keep work
centers like Hilltop open. Hilltop has been under
fire for about three years now by state officials who
have never even visited our work center.
community employment. There have been janitorial contracts, restaurants
jobs ... you name it. Sometimes, I lost focus. Other times, I gave it my best
shot, but I simply wasn’t cut out for the work.
The best job for me? That’s easy: working at the Hilltop work center.
At Hilltop, I get to do meaningful packaging and assembly work for
nationally recognized companies. I get paid fairly, based on my output. I
have a case manager and other knowledgeable, attentive staff. And I work
alongside friends. Some of them have disabilities, others do not. They are
my support system; my peers.
That’s why, three years ago, I began to speak out, for myself and for
others who can’t. And I haven’t stopped since.
Since taking up the fight against workshop closure, I have traveled to
Albany to meet with state lawmakers, and to Washington, DC to lobby at
the federal level. I’ve personally spoken with Assemblyman Bill Nojay, and
Senators Catharine Young and Patrick Gallivan,
who have all offered great support. I’ve been
quoted in the press. My co-workers and I have
gathered more than 2,800 signatures on a petition
that supports our cause.
Lisa Irwin, outside the Hilltop work center
We’ve come a long way in a pretty short time. The
state seems to be softening its stand on work centers,
from mandating blanket closures to transforming
them into the types of integrated environments
that we can all support. It’s never been more critical
that we keep the pressure on, but we are optimistic
and proud of our accomplishments.
I know this first-hand, because I’ve been in the
thick of the fight.
And now, here I am with my face on a truck, as
the poster girl for a hashtag.
Let’s get something straight: Just as I never thought that I would appear
eight feet high on a truck, I never imagined that I would be seen as a role
model or spokesperson for workers with disabilities.
The next time you roll by our Hilltop truck on your way to or from your
place of employment, please remember that Mike, Robin and I are not
just faces out of a photo clip book. We are your neighbors, with the same
values as you and your family. Like you, we made a choice to work in this
community, at jobs that are good fits for us.
I have been with Hilltop for 20 years, or approximately half of my life. I
have had my share of success, but I’ve also made mistakes, and things have
not always worked out for me.
In two decades with Hilltop, I have had countless opportunities for
Family and Work are Priorities
for Mary Bennett
Cont. from pg. 1
“I worked there when I was pregnant with my son,” Mary explains. “It
was nice because the customers would always ask me how I was doing,
especially as I got further along in my pregnancy. I was there right up until
I had my baby, a week before I was due. Because I like working, I wanted
to keep working for as long as I could.”
Shortly after the birth of her son, Alex, Mary felt that it was time to reenter the workforce once again.
“When I found a good job cleaning, that made me feel good again,” Mary
says. “I missed my son, because he was only three months old, but the
money from work would allow me to do special things for him and his
sister. Still, the first day away from Alex was really hard.”
Since that day, family has continued to be a driving force for Mary, and a
strong theme throughout her work life.
It’s our right. Why would anyone want to take that away?
Get to know us better. Join the discussion with #WorkChoice.
Her attitude toward co-workers could be described as motherly. She
loves to bake in her spare time, and has been known to share her culinary
creations at the workplace.
“That’s the mom in me,” Mary says. “It makes me feel good to share, and
people say that I’m always in a good
mood. They say, ‘Mary, even when
you’re mad, you’re happy.’”
“She’s a hard worker, and a good
mom,” summarizes Vocational
Specialist Kristen Maplesden, who
has worked with Mary for two years.
“Every time I see Mary on the job,
she’s always focused. If we ask her
to change something, or suggest a
change, she’s very open to it.”
“She also makes great banana
bread,” Kristen adds, with a laugh.
L E A R N M O R E AT W W W. L WA R C . O R G
Has your address changed or is your name spelled incorrectly? If so, please e-mail Tina Sick at tsick@lwarc.org
18 Main Street
Mt. Morris, New York 14510
Page 8
Upcoming Events
Thursday, August 13th
Saturday, September 12th
Wednesday, October 7th
The third annual
Rockin’ the Arts
gala and auction
will be Thursday,
August
13
at
the
Wadsworth
Homestead
in
Geneseo.
This
fundraiser,
This year’s Rockin’ the Arts
presented
by
will be hosted by News 10’s
Rebecca Leclair
Livingston
Arts
and
KidStart,
will benefit both children and arts
programming.
Tickets are $40 at
Wegmans, KidStart, and Livingston Arts
offices. Call Livingston Arts at 243.6785
It’s not too early to
begin training for the
2015 Ramon Rocha
5K Run/Walk! Mark
your calendar for
Saturday, September
12, 2015 at St. Mary’s
Arc IT Director Jim
Mullin crosses the
Church in Geneseo.
finish line at the 2013
Ramon Rocha 5K
This healthy event
Run/Walk
features a 3.1 mile
walk or run, along with prizes, music,
food, and t-shirts. Get the latest updates
at facebook.com/ramonrocharace.
The fourth
annual
Harvest
Fest food
tasting
e v e n t
prom i s e s
Harvest Fest organizers get ready
to be our
for the 10/7 event
biggest
and best! Save the date to celebrate
Wyoming County “from field to table”
Wednesday, October 7, 2015 at the
American Legion Hall in Warsaw Village
Park. To learn more, contact Tina Sick at
tsick@lwarc.org or (585) 658-2828 ext.
133.
THE ARC OF LIVINGSTON WYOMING