science and values - Fondazione Sospiro

Transcription

science and values - Fondazione Sospiro
In cooperation with
SINPIA
10th National Conference
on the Quality of Life
for People with Disabilities
SCIENCE AND
VALUES
September 7th-8th, 2015
Università Cattolica di Milano
Presentation
The annual conference on the Quality of Life of persons
with disabilities, promoted by Fondazione Sospiro, with
the present edition reaches the 10th anniversary. In a
national scenario where opportunities and resources
dedicated to disabilities are being generally reduced, this
event highlights the need to continue along the path of
dedicating space, time, energy and passion, in particular,
to creating chances for exchange and mutual enrichment
and learning from different experiences. The themes that
will synthesize this decade of work are scientific method and personal values.
It is well known today that Evidence-Based Practices
are considered as the standard for any kind of service
provided to a person. However, there is still much confusion in our Country about the three main schools of
thought in this field: the empirical-experimental method,
the phenomenological-experiential approach and the
post-structuralist view (based on compliance with the
typical principles of social policies, like participation and
empowerment).
In the field of disability, it is probably necessary to accurately and sensibly integrate the different models in order to obtain high-value opportunities at all action levels,
and consequently build a set of guidelines to be used as
a baseline for the development of clinical and management policies.
In Italy, these processes are perhaps just at an initial stage
of development. The primary objective of Fondazione
Sospiro in proposing this event can be summarized with
a message dedicated to all the actors of this great stage
– operators and families: let us make our practical experiences available for the scientific world; this is the way
to promote a work fully based on personal values, those
of Persons with Disabilities, and those of staff members
and families.
The National Conference “Science and values” is
built on the presentations of over 50 clinicians and
researchers recognised as experts at national and international level. Monday morning 3 parallel workshops
will open the Conference, and from Monday afternoon
to Tuesday evening 3 lectures followed by 9 parallel
symposia will be fully available to participants.
The Conference includes on September 9 an important
workshop entirely dedicated to severe challenging behaviors.
The Scientific Committee
Serafino Corti, Mauro Leoni, Roberto Cavagnola, Francesco
Fioriti, Giuseppe Chiodelli, Giovanni Miselli
1st Pre-Conference Workshop
September 7th – h 9:00 – 12:30 – Room “Cripta”
Redesigning mandates and promoting quality
in the services for Persons with Disabilities
Chair: Carlo Francescutti
There are at least three main reasons at the basis of
the creation of this group and behind the proposal of
this workshop: 1) the development of evidence on the
effectiveness of treatments; 2) the emerging interest for
Quality of Life Models; 3) the consolidation of the ethical
and juridical vision of the condition of disability, which
accompanied and followed the approval of the UN
Convention for the Rights of Persons with Disabilities,
which has become a law of the Italian State since 2009
(Law 18/2009). These reasons require a radical change in
our approach to defining mandates and quality processes in the services for people with Neurodevelopmental
Disorders.
These services should be configured as resources for
self-determination, the exercise of rights, the development of abilities and human blossoming. They must be
designed as places where relationships and exchanges
are promoted, as “gyms” where one learns how to live
and be independent, as opportunities for real participation. It is within this spirit that UNI (Ente di Normazione
Italiano), the Italian organization for standardisation, has
started to review the body of rules that govern sector
services (UNI 11010) by opening a debate and a very
interesting discussion for the universe of persons with
disabilities, their associations, professionals and service
providers.
The following presentations will be given:
•
Franca Biondelli (State Secretary of Work and Social
Policies Ministry)
•
Marco Faini (Anffas Brescia Onlus)
•
Marco Tirabosco (Federsolidarietà)
•
Mauro Leoni (Fondazione Sospiro Onlus)
•
Nereo Zamaro (Director of Social Policies for the Region Lazio)
•
Eleonora Moretti (Delegate for Quality and Accreditation of the Region Tuscany).
2nd Pre-Conference Workshop
September 7th – h 9:00 – 12:30 – Room “Magna”
(Main Lecture Hall)
James W. Bodfish
Autism
Clinical practices for comorbid medical and psychiatric disorders and severe challenging behaviors
Chair: Maria Laura Galli
Autism is now considered to be a “spectrum” of conditions that vary in etiology, developmental course,
support needs, responsiveness to available interventions, and outcomes. Among the most challenging
and least understood manifestations are children and
adults with autism who also have medical and psychiatric co-occurring conditions and severe challenging
behaviors (aggression, self-injury, feeding problems,
wandering, etc). While complex and challenging,
work in this area is also providing new insights into
autism and new opportunities for autism intervention
and services. This presentation will focus on current
research findings in this area of autism, real-world
clinical lessons learned, and on the practical assessment and treatment procedures which can be implemented by service providers
James W. Bodfish
Is Professor of Psychiatry, Neurosciences, Hearing & Speech
Sciences and Special Education
at the Vanderbilt University
School of Medicine (USA). He is
a clinician at the Vanderbilt
Brain Institute. In his research
activity, he has focused on the
pathogenesis and treatment of
developmental disabilities, and
particularly on very severe behavioural disorders and dual diagnoses. He is the author of
articles, monographs, training systems, assessment scales.
He is the editor of the prestigious “Autism: The International
Journal of Research and Practice”. He has been designated by
the Senate for the Legislative Study Commission on autistic
disorders and he directs the International Congress on Movement Disorders.
3rd Pre-Conference Workshop
September 7th – h 9:00 – 12:30 – Room “Lazzati”
Fabio Celi
Working on challenging behaviours in the
classroom
Chair: Carlo Pascoletti
The workshop is aimed to train teachers and school
educators on the use of cognitive-behavioural procedures for the management of inadequate behaviours.
The presented methodology usually belongs for the entire scholastic period, and includes different stages: free
and systematic observation, definition of objectives,
selection of individualized strategies, implementation,
supervision and assessment of their efficacy.
During the workshop, participants will analyse the implementation of these methodologies in the daily activities of the classroom, with students with both disabilities and concurrent behavioural disorders, and with
students with primary behavioural disorders (i.e. attention deficit/hyperactivity disorders, oppositional defiant
disorder). The workshop will discuss the challenges of
these situations and present useful management strategies.
The workshop will focus on the emotional aspects connected with teacher training: how the teacher feels
when facing problems, and when their supports is actually working, when something positive is happening
and relationships shifts successfully.
Fabio Celi
He directs the entire Unit of Psychology at ASL-1 Massa e Carrara. He is Contract Professor in
Clinical Psychology at the Universities of Parma and Pisa. He is
the author of many publications
dedicated to children, with a
special focus on learning systems
in psychological disorders and
new technologies.
SOFTWARE, STIPENDI,
CONSULENZA E FORMAZIONE
CBA Group: la soluzione software dedicata integralmente alle disabilità, oggi adeguata al processo di dematerializzazione a norma di legge e firma
digitale.
CBA Group guida l’introduzione di molteplici
trasformazioni in ambito socio-sanitario con
tecnologie informatiche all’avanguardia, per
giungere ad efficienza e funzionalità oltre a una
concreta semplificazione nella gestione.
Cartella Socio Sanitaria CBA, sviluppata in stretta collaborazione
con Fondazione Sospiro Onlus è un software interamente dedicato
alla gestione delle disabilità particolarmente dettagliato e ricco di
specificità.
Recentemente introdotte le Web App per un utilizzo all’insegna
di portabilità e massima fruibilità, oggi CSS ha aperto la strada ai
temi attuali riguardo la firma digitale e la conservazione sostitutiva
a norma, offrendo, anche per questa obbligatorietà, una soluzione
adeguata.
La stretta collaborazione con Fondazione Sospiro, in fase di
avviamento del software, ha portato al perfezionamento di molteplici
dettagli attraverso svariati test funzionali. Competenze informatiche
e tecnologiche si sono unite a quelle scientifiche della Fondazione,
coniugando le necessità di carattere gestionale con aspetti umani
peculiari di questo settore.
L’Area Disabili è stata concepita con il preciso intento di fornire uno
strumento che, partendo dall’assessment, riesca a definire il progetto
di vita e i programmi d’intervento per le persone in condizioni di
disabilità psichica, sensoriale, fisica e motoria; prevede la presa in
carico globale con percorsi finalizzati che mirano a porre al centro
dell’attenzione la persona disabile considerandola “persona”, prima
che disabile.
Si tratta di una serie di osservazioni costruite attorno al singolo, dove
si è mantenuto fede alle linee guida nazionali AIRIM (Associazione
Italiana Studio Disabilità Intellettive ed Evolutive).
Numerose Strutture su tutto il territorio nazionale si sono affidate
a CBA per gestire la complessità metodologica e applicativa
nelle valutazioni di tali disabilità: ANFFAS, residenze per disabili
e realtà che operano offrendo servizi molto specifici, come
l’ambito riabilitativo e percorsi finalizzati all’inserimento lavorativo,
l’integrazione e l’inclusione sociale. Non solo, ci rivolgiamo
anche a Cooperative, Associazioni e Centri Diurni, abbracciando
completamente il settore disabilità.
A conferma della filosofia CBA, ricordiamo che il software è in
continua evoluzione per il raggiungimento di una sempre maggior
efficacia.
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Tel. 0464 491600 - Fax 0464 412299
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Conference – First Plenary Session
September 7th – h 14:00 – 16:00 – Room “Magna”
(Main Lecture Hall)
Miguel Angel Verdugo
Beyond human functioning:
Evidence-Based approaches and Quality of Life
Chair: Bernardo Dalla Bernardina
Quality of Life (QOL) models in the field of disabilities today impact both the research and the provision of services
for the person. As a consequence, all those who are supposed to take important decisions for the life of persons
with disabilities must base their choices on the best knowledge and experiences derived from human functioning
models, individualised support models and the QOL construct.
It is therefore indispensable to combine QOL models with
an approach based on evidence with the primary purpose of direct clinical, managerial and social policy decision-making processes, which must fulfil the criterion of
consistency with the values of the person with disability.
The use of evidence-based practices and QOL models
allow professionals to make a better and more efficient
use of the resources available: additionally, it corroborates
subjective and objective well-being indicators, and at the
same time supports professionals to describe the rationale, the methodologies and the tools used in the selected
processes.
Miguel Angel Verdugo
2009 from AAIDD.
Is a Professor and Director of the
Research Institute on Community
Integration of the University of
Salamanca (Spain). He also directs the information system on
disabilities of the Spanish Ministry of Health. He is a prolific and
prestigious author, with over 70
books published, assessment
tools developed and more than
400 scientific articles written. He
received outstanding recognition throughout his career, including the International Award
Conference – First Symposium
September 7th – h 16:00 – 18:00 – Room “Magna”
(Main Lecture Hall)
Promoting well-being experiences in the
school
Chair: Luigi D’Alonzo
a.
The Italian way to school inclusion
Raffaele Ciambrone - h 16.00
b.
School inclusion: 30 years of research
and experiences
Lucio Cottini - h 16.30
c.
Emotional learning: promote early treatment to enhance the Quality of Life
Daniele Fedeli - h 17.00
d.
Tempering behavioural approaches in
the classroom
Fabio Celi - h 17.30
Luigi D’Alonzo
is Full Professor of Special Pedagogy at the Università
Cattolica of Milan and director of the Centre of Studies
and Research on Disability and Marginality.
Raffaele Ciambrone
is the director of the central MIUR office for the school
integration of students with disabilities and other special
educational needs. He is the Italian representative at the
European Agency for special needs and inclusive education
and a contract teacher of Teaching integration.
Lucio Cottini
is Full Professor of General Teaching and Special Pedagogy at the University of Udine. He’s head of the “Autismo
Marche” project. He is a member of the scientific committees of several specialist journals.
Daniele Fedeli
is Associate Professor of Special Teaching and Pedagogy
at the University of Udine. He is the scientific director of
the “Educational Milestones” book collection published
by Edizioni Anicia of Rome.
Fabio Celi
directs the entire Unit of Psychology at ASL-1 Massa e Carrara. He is Contract Professor in Clinical Psychology at the
Universities of Parma and Pisa. He is the author of many
publications dedicated to children.
Conference – Second Symposium
September 7th – h 16:00 – 18:00 – Room “Lazzati”
Preferences, values and life paths
Chair: Paolo Moderato
a.
The assessment of preferences in severe
disabilities
Consiglia Antonazzo - h 16.00
b.
The assessment of preferences
Francesco Fioriti - h 16.40
c.
The assessment of values and life experiences through the Values Interview
Silvia Berna, Ramona Guarino - h 17.20
Paolo Moderato
is Full Professor of General Psychology and director of
the Communication, Behaviour and Consumption Institute of the IULM University. Past EABCT president, he is a
member of the Board of Trustees of the Cambridge Center
for Behavioral Studies, and President of IESCUM.
Consiglia Antonazzo
is staff manager (“Cooperativa Passo a due”) at Fondazione Sospiro (CR).
Francesco Fioriti
is consultant Pedagogist at Fondazione Sospiro. For years
he has worked in the world of disabilities with a particular interest for residential services, behaviour disorders,
and the use of psycho-educational strategies.
Silvia Berna
is nurse and behaviour analyst. She is staff and area manager at Fondazione Sospiro (CR).
Ramona Guarino
is staff manager (“Cooperativa Passo a due”) at Fondazione Sospiro (CR).
Conference – Third Symposium
September 7th – h 16:00 – 18:00 – Room “Cripta”
The right for the application of effective
treatments for autism in Italy
Chair: Aldina Venerosi
a.
The Guide-Line 21 of the Italian Ministry
of Health
Nicola Vanacore e Aldina Venerosi - h 16.00
b.
Italian experiences: “I CARE”, an experimental project for autism
Paola Codazzi - h 16.30
c.
Italian experiences: a sustainable treatment protocol
Maurizio Giuseppe Arduino - h 17.00
d.
Italian experiences: the MIPIA model
Davide Carnevali - h 17.30
Aldina Venerosi
is researcher in neurobiology at Istituto Superiore di Sanità (Rome). She is in charge with the national project
for a country-wide investigation on the services for the
diagnosis and treatment of children with pervasive developmental disorders.
Nicola Vanacore
is a neurologist and researcher at the National Center for
Epidemiology, Surveillance and Promotion of Health of
Istituto Superiore di Sanità (Rome). Since 2013 he has
been in charge with the National Guideline System.
Paola Codazzi
is psychologist and psychotherapist. She has been working at the Children Clinic of Fondazione Sospiro since its
creation in 2008. She is a consultant and a trainer.
Maurizio Giuseppe Arduino
is consultant Psychologist in charge with the Center for
Autism and Asperger Syndrome ASL-CN1 of Mondovì
(Cuneo). He coordinates the program for autism of the
Region Piemonte and has contributed to the National
round table for autism.
Davide Carnevali
is psychologist, BCBA behaviour analyst, a member of
MIPIA and a teacher at IESCUM. He works at the research and application of ABA.
Conference – Second Plenary Session
September 8th – h 9:00 – 10:00 – Room “Magna”
(Main Lecture Hall)
Trevor R. Parmenter
Quality of Life and services: is this combination feasible?
Chair: Carla Andreotti
Over the last century, the systems of beliefs and the related supports provided to the population with disabilities
have radically changed passing from a vision that considered them as dangerous people to another vision focused
on their incapacity to perform socially expected tasks.
This has been the scenario where services have developed and where the pace of existence was determined
by needs that were certainly not those of disabled people.
The “normalization” movement caused a quantum leap
in the cultural paradigm by describing the expectations
and desires of disabled people as similar to those of neurotypical people and initiated a path that led to a vision
of the people with disabilities as holders of rights and values. Far from being a perfect model, normalization was
exposed to the risk of a standardization of interventions,
responses and supports. It is precisely from these limits
that the reflection on the Quality of Life constructs has
originated. This plenary session will be a discussion on
the universality of QOL domains and the subjectivity of
indicators: persons with disabilities have the right, like anybody else, to be enabled to express their own original
project of life.
Trevor R. Parmenter
Is Professor Emeritus at the Sydney Medical School of the University of Sydney (Australia), where
for years he has directed Developmental Disability Studies and the
Royal Rehabilitation clinical centre. He is past president of the Association for the Scientific Study of
Intellectual and Developmental
Disorders (IASSIDD). He coworked with the World Health Organization (WHO). At present he
is dedicated to the themes of ageing and the planning of independence and works with families to the enhancement of
natural support networks and preparation to the subsequent
stages of direct parent support.
Conference – Fourth Symposium
September 8th – h 10:30 – 12:30 – Room “Magna”
(Main Lecture Hall)
Assessing and supporting the Quality of
Life of the family members
Chair: Caterina Gozzoli
a.
An investigation on the Quality of Life of
the family in an Italian population sample
Giovanni Michelini - h 10.30
b.
Values and resilience: ACT protocols for
the Quality of Life of the family
Giovanni Miselli - h 11.10
c.
Not only mum and dad: support for
grandparents and siblings
Marilena Zacchini - h 11.50
Caterina Gozzoli
is Associate Professor of Industrial and Organizational
Psychology at Università Cattolica del Sacro Cuore of
Brescia, where she teaches Psychology of Conflict and
Social-Organizational Psychology, Industrial and Organizational Psychology and Group Psychology. She is liaison
officer for Alta Scuola Agostino Gemelli.
Giovanni Michelini
is a psychometrist. He taught Statistics and Test Theory
and Techniques at the University of Parma. His research
activity is mainly focused on learning, behavioural disorders and intellectual disabilities, cognitive stimulation
and Alzheimer.
Giovanni Miselli
is psychologist, psychotherapist, PhD and behaviour
analyst. He works at AUSL of Reggio Emilia for the integrated regional project on autism. He is a member of
IESCUM and ACBS. His interests are related to contextual behaviour analysis and 3rd generation behavioural
psychotherapies.
Marilena Zacchini
a former member of the historical group of Enrico Micheli; she currently works as consultant for many autism
services in Italy and is responsible for the Clinic for the
assessment and treatment of autistic disorders for Fondazione Sospiro.
Conference – Fifth Symposium
September 8th – h 10:30 – 12:30 – Aula “Lazzati”
Psychiatric disorders and disability
Chair: Alessandro Zuddas
a.
Beyond behavioural disorders: psychopathology and disability
Jim Bodfish - h 10.30
b.
Evolution patterns in psychiatric disorders
Massimo Molteni - h 11.00
c.
Psychopharmacology: therapy or myth?
d.
The effect of psychoactive drugs on
learning
Giuseppe Chiodelli - h 11.30
Giovambattista Presti - h 12.00
Alessandro Zuddas
is Associate Professor of Child Neuropsychiatry at the
University of Cagliari and director of the Clinic of Child
and Adolescent Neuropsychiatry of the Psychiatric-Microcytemic Hospital (Cagliari, Italy) and is in charge with
the Center for the study of pharmacological therapies.
Massimo Molteni
is a child neuropsychiatrist in charge with the research
line Developmental Psychopathology and is the Director
of the IRCCS Eugenio Medea centre of Bosisio Parini, “La
Nostra Famiglia” association (Lecco, Italy).
Giuseppe Chiodelli
is psychiatrist, Director of the Medical Operating Unit of
the Disabiilty Department of Fondazione Sospiro. For
years he has dedicated to the theme of psychopharmacology and integrated intervention in the management
of behavioural disorders and in the prevention of physical and mental disorders.
Giovambattista Presti
is physician, psychotherapist, Associate Professor of General Psychology in the three-year degree course in Psychological Sciences and Techniques of the Kore University of
Enna. He is Fulbright Scholar in Residence at the Stanislaus
College CSU (USA).
Conference – Sixth Symposium
September 8th – h 10:30 – 12:30 – Aula “Cripta”
How to measure of the Quality of Life in
services for disability
Chair: Roberto Franchini
a.
How to assess personal outcomes: the
Life Opportunities Scale
Serafino Corti - h 10.30
b.
Severe disabilities and Quality of Life: the
St. Martins’ Scale
Miguel A. Verdugo - h 11.10
c.
From the Supports Intensity Scale to
analytical tools: the Analytic Scale of
Supports
Mauro Leoni - h 11.50
Roberto Franchini
teaches Special Psychology at the Cattolica University of
Brescia, directs Opera Don Orione and is a Past President
of AIRIM. He promotes and assesses the Quality of Life of
disabled persons.
Serafino Corti
directs the Disability Department of Fondazione Sospiro,
teaches Psychology of disabilities at the Cattolica University of Brescia. He contributes to the development of support interventions in the favour of families with disabled
children and organizational models.
Miguel Angel Verdugo
is Professor and Director of the Research Institute on
Community Integration (INICO) of the University of Salamanca (Spain). He directs the information system on disabilities of the Spanish Ministry of Health. He is a prolific
and prestigious author, with over 70 books, assessment
tools and more than 400 scientific articles published.
Mauro Leoni
psychologist and psychotherapist, works as a consultant
at Fondazione Sospiro. He is a Doctor of philosophy in
ID and behaviour analyst, and contract Professor at the
University of Pavia. He works as clinical consultant and
staff trainer for the services for people with Neurodevelopmental Disorders.
Conference – Third Plenary Session
September 8th – h 14:00 – 15:00 – Room “Magna”
(Main Lecture Hall)
Ivan Brown
Disability, family and Quality of Life
Chair: Antonella Costantino
The hope of improving life conditions has a long history
and remains a topical theme today. Recently, it has found
its expression and definition in the phrase “Quality of life”,
a construct that, in disabilities, is measured with a set of
indicators considered to be representative of this life condition.
The interest of science for this specific research sector has
the purpose of offering clinicians effective and efficient
practical strategies to obtain this subjective and objective
improvement. However, there are open issues that will be
tackled by this presentation: What characterizes a good
quality of life? Are there aspects of particular importance
in determining the QOL? Are there aspects universally
capable of enhancing or invalidating the QOL? To what
extent does the subjective point of view of the person
whose life is being assessed affect the condition of QOL?
Are there reliable tools to measure these aspects?
The emphasis will be placed on the theme of families, the
context where most studies on the Quality of Life have
been developed. Then the presentation will focus on the
evolution of the life of a family after the birth of a person
with disability and will try to describe the scenarios that
emerge under intensively stressful living conditions and
when valuable choices have to be made.
Ivan Brown
Is the director of the Academy for
Education, Teaching and Research
of IASSID, Professor of Disability
Studies at the Brock University of
Canada, and an internationally
recognized expert in the field of
disabilities as regards the Quality
of Life and the family. His scientific
activity is extremely rich: he published dozens of books and founded the prestigious Journal on Developmental Disabilities.
Conference – Seventh Symposium
September 8th – h 15:30 – 17:30 – Aula “Cripta”
Residential services and the Quality of Life
Chair: Marco Lombardi
a.
The experience of the Arduin Foundation
Remco Mostert - h 15.30
b.
The experience of the Agazzi Foundation
Fabrizio Giorgeschi - h 16.20
c.
The experience of Cascina Rossago
Francesco Barale - h 16.55
Marco Lombardi
is psychologist and works as consultant for La Nuvola
SCS and as researcher at the HoGent University of Gent
(Belgium).
Remco Mostert
has been working at the Arduin Foundation (NL) first
as social worker and then as trainer and expert in the
administration of the Personal Outcomes Scale and the
Supports Intensity Scale. He takes care of developing individualized life projects.
Fabrizio Giorgeschi
psychologist and psychotherapist, works at the institute
for rehabilitation “Madre Divina Provvidenza” of Arezzo,
where he is in charge of the operating unit for adults with
severe intellectual disabilities.
Francesco Barale
physician, neurophysiologist and psychiatrist, is Full Professor of Psychiatry and director of the Department of
Sciences of the Nervous System and Behaviour of the
University of Pavia, where he has founded and directs
the degree course in Psychiatric Rehabilitation Techniques. He is the president of Fondazione Genitori per
l’Autismo (a foundation for the parents of autistic children) and one of the promoters of the Cascina Rossago
experience.
Conference – Eighth Symposium
September 8th – h 15:30 – 17:30 – Aula “Lazzati”
Daily challenges
Chair: Roberto Keller
a.
Aggressiveness
Raffaella Giannattasio - h 15.30
b.
Self-injurious behaviors
Simone Antonioli - h 16.10
c.
Picacism
Roberto Cavagnola - h 16.50
Roberto Keller
physician, psychiatrist, child neuropsychiatrist and psychotherapist, directs the Clinic for Autistic Spectrum Disorders in the adult age of ASL Torino 2. He teaches at
the Specialization School of Clinical Psychology of the
University of Turn and is an active member of the Italian
Society of Psychiatry.
Raffaella Giannattasio
psychologist and behaviour analyst, is in charge of the
CABAU Center of Grottaglie (Taranto, Italy) and the
Center for children with autism of Fobap Brescia. She is
an ABA teacher and supervisor of IESCUM (Milan).
Simone Antonioli
is the technical director of Anffas Fobap Onlus and is in
charge of the “Francesco Faroni” children habilitation
center of Brescia.
Roberto Cavagnola
pedagogist, psychologist and psychotherapist, has been
working with intellectual disabilities for over 25 years,
with a special focus on severe disabilities and problem
behaviours. He is consultant at Fondazione Sospiro.
Conference – Ninth Symposium
September 8th – h 15:30 – 17:30 – Room “Magna”
(Main Lecture Hall)
Round Table
Towards an international consensus on the Quality of Life
Chair: Antonella Costantino
a.
Luigi Croce
b.
Trevor R. Parmenter
c.
Ivan Brown
d.
Miguel Angel Verdugo
Antonella Costantino
is child psychiatrist and president of SINPIA, director of
UONPIA of the IRCCS Foundation “Cà Granda” of Milan’s “Ospedale Maggiore Policlinico”. She studies augmentative communication and takes care of the organization of services.
Luigi Croce
is psychiatrist, psychotherapist and teaches at the Cattolica University of Brescia. He is also a medical director for
the SIR Consortium (MI) and is an AIRIM Past-President.
Trevor R. Parmenter
is Professor Emeritus in the Sydney Medical School of the
University of Sydney (Australia), where for years he has
directed Developmental Disability Studies and the Royal
Rehabilitation clinical centre. He is past president of the
Association for the Scientific Study of Intellectual and
Developmental Disorders (IASSIDD) and co-worked
with the World Health Organization (WHO).
Ivan Brown
is the director of the Academy for Education, Teaching
and Research of IASSID, Professor of Disability Studies at
the Brock University of Canada.
Miguel Angel Verdugo
is Professor and Director of the Research Institute on Community Integration of the University of Salamanca (Spain).
He also directs the information system on disabilities of the
Spanish Ministry of Health.
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con successo in ospedali, cliniche private, case di
riposo, oltre che in scuole e in università in Italia,
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Con un fatturato di gruppo di oltre 165 milioni di
Euro, Markas è una realtà in continua espansione
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prestigiosa classifica “Best Workplaces Italia 2014”
di Great Place to Work che ogni anno identifica i
migliori datori di lavoro in Italia e nel mondo.
Post-Conference Workshop (Sospiro)
September 9th – h 9:00 – 17:00
James W. Bodfish
Advances in the understanding, assessment,
and treatment of challenging behavior in
persons with intellectual disabilities:
Integrating behavioral, psychiatric and medical factors
Chair: Mauro Leoni
Children and adults with intellectual disabilities are at great
risk for the development of a variety of forms of challenging
behavior. These challenging behaviors, if not treated properly, can significantly detract from their quality of life. In the
past, competing ideologies and theoretical models (e.g. behavior versus biology, severe behavior versus psychopathology, genetic versus idiopathic syndromes, etc) have led to the
over-reliance on one assessment and treatment approach
and, in turn, incomplete models of care. More recent research in this area helps us see the complex set of factors that
can interact and lead to the emergence and maintenance of
challenging behaviors in persons with intellectual disabilities.
This workshop is designed to teach clinicians advanced
methods of behavioral and medical assessment and intervention for persons with intellectual disabilities and challenging behaviors. The workshop is divided into three parts:
Part 1: Understanding challenging behaviors: recent biobehavioral research in intellectual disabilities will be reviewed that will help to increase understanding of the
multiple factors (genetic, medical, psychiatric, behavioral/
environmental) that can lead to the development and maintenance of challenging behaviors like aggression, self-injury,
stereotyped behavior, and feeding problems.
Part 2: Advanced methods of behavioral assessment and
intervention: topics to be taught include: advanced observational methods and sequential data analysis techniques, reinforcer assessment, advances in behavioral and cognitive-behavioral intervention.
Part 3: Advanced methods for
assessing and treating medical and
psychiatric comorbidities: Topics
to be taught include: assessment
and treatment of pain and discomfort, assessment and treatment of
sleep disorders, assessment &
treatment of gastrointestinal disorders, assessment and treatment of
psychiatric disorders.
James W. Bodfish
Note: the fee for the workshop also includes the coffee break, lunch and didactic materials.
REGISTRATION FORM FOR THE
POST-CONFERENCE WORKSHOP
WITH JAMES W. BODFISH
Please, send this filled form and attach a copy of the payment receipt
for each participant using
fax 0372 620406; e-mail segreteria.corsi@fondazionesospiro.it
The undersigned
..........................................................................................................................
Born in ........................................................................................................ on .........................................
Taxpayer’s Code ...............................................................................................................................
Resident in
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Prov.
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Area Code
..................
Street address .................................................................. Phone ...............................................
E-mail
............................................................................................................................................................
Qualification
Profession
........................................................................................................................................
................................................................................................................................................
Registered in .............................................................................................................................................
With No. ....................................................... Province/Reg. ......................................................
Date
.........................................
Signature
.......................................................................
Please, send a copy of the payment slip of the fee (€ 120.00),
indicating “James W. Bodfish Workshop” as reason for the
payment made using either of the following methods:
• Postal payment slip in the favour of:
Istituto Ospedaliero di Sospiro ONLUS - c/c nr. 13100268
• Bank transfer:
IBAN: IT69K0623057030000043152438
If you need an invoice with different personal data, please
write to: segreteria.corsi@fondazionesospiro.it
HOW TO REACH US
FONDAZIONE SOSPIRO Onlus
Piazza Libertà, 2
26048 Sospiro (CR) - Italy
By Car:
Motorway “A21”, exit Cremona, follow the indications for
Ospedale Maggiore, then head towards Casalmaggiore–
Parma along the “via Giuseppina”.
By public transport:
Line buses (Cremona-Casalmaggiore line) depart from the
terminus at the Train Station of Cremona (via Dante). For
timetables visit
www.cremonatrasporti.it/Cremonatrasporti/Linee
For information, contact the Secretary’s Office at +39 0372 620323.
RINNOVA ENERGIA
è una società che
si occupa della gestione termica degli edifici sfruttando l’energia prodotta da fonti rinnovabili. Valuta,
progetta, installa
e gestisce sistemi di riscaldamento e teleriscaldamento utilizzando come fonte energetica il legno
direttamente prodotto e trasformato garantendo, di
conseguenza, funzionalità ed affidabilità del sistema. Il combustibile utilizzato cippato o pellet garantiscono ridotte emissioni e semplicità di gestione.
L’investimento, a carico di Rinnova, ha la finalità
di affiancare/bypassare il vecchio impianto affiancandolo con uno tecnologicamente avanzato, sia
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punto di vista ambientale.
RINNOVA ENERGIA SARL
Via Pozzi 42
26048 Sospiro (CR)
Tel. 0372 - 080713
info@rinnovaenergia.it
REGISTRATION FORM FOR THE
PRE-CONFERENCE WORKSHOP 2015
Please, send this filled form and attach a copy of the payment receipt for
each participant using
Fax 0372 620406; e-mail segreteria.corsi@fondazionesospiro.it
The undersigned
Born in
..........................................................................................................................
........................................................................................................
Taxpayer’s Code
Resident in
on
.........................................
...............................................................................................................................
.....................................................
Prov.
..............
Area Code
..................
Street address .................................................................. Phone ...............................................
E-mail
............................................................................................................................................................
Qualification
Profession
........................................................................................................................................
................................................................................................................................................
Registered in
With No.
.............................................................................................................................................
.......................................................
Province/Reg.
......................................................
is asking to be registered for:

Workshop 1: “Redesigning mandates and promoting quality in the services for persons with intellectual disabilities”

Workshop 2: “Autism: how to intervene in complex situations, when psychiatric disorders are associated with problem behaviours”

Workshop 3: “Autism: working on problem behaviours in the classroom”
Date
.........................................
Signature
.......................................................................
Please, send a copy of the payment slip indicating “PRE-CONFERENCE WORKSHOP” as reason for the payment made using either of the following methods:
• Postal payment slip in the favour of:
Istituto Ospedaliero di Sospiro ONLUS - c/c nr. 13100268
• Bank transfer:
IBAN: IT69K0623057030000043152438
If you need an invoice with different personal data, please
write to: segreteria.corsi@fondazionesospiro.it
Registration fees:
Before July 31st, 2015: € 40.00
After July 31st, 2015: € 50.00
(Prices are VAT inclusive)
REGISTRATION DEADLINE: September 1st, 2015
ECO THERM è un’azienda di Brescia specializzata nella progettazione, installazione,
manutenzione e conduzione impianti di riscaldamento, condizionamento, ventilazione,
idrosanitari, antincendio.
ECO THERM propone i propri servizi attraverso tecnologie d’avanguardia, prodotti di
qualità, prezzi competitivi e assistenza totale al
cliente. La politica aziendale si basa da sempre
sul binomio qualità/sicurezza. L’aggiornamento costante, l’utilizzo di sistemi d’avanguardia,
la formazione periodica degli operatori, il
supporto di fornitori esterni qualificati aggiungono valore al costante impegno di miglioramento produttivo e di mantenimento della
propria leadership tecnologica, obiettivi che
l’azienda si propone per assicurare sempre
un servizio di alta qualità e soddisfazione del
cliente.
LA STORIA • Viene fondata a Brescia nel
1981 da Gastone Dioni con l’intento di offrire
un servizio di qualità. Agli inizi opera per lo
più in città e provincia, ma negli anni seguenti
l'attività dell’azienda arriva a coprire tutto il
Nord Italia. Aumentano anche il numero dei
dipendenti e la varietà dei servizi offerti alla
propria clientela. Per rispondere alle più qualificate esigenze della tecnica degli impianti
industriali e civili e alle sfide della crescita, nel
1987 l'azienda si trasferisce nel nuovo stabile
di Brescia.
Nel 1998, la ECO THERM ha conseguito la
certificazione di qualità secondo la normativa
internazionale UNI EN ISO 9002. Tale processo ha portato a una puntuale riorganizzazione interna e ad un sistematico controllo di
tutte le attività operative svolte dalle singole
aree aziendali. È stato scelto un organismo di
certificazione internazionale, il DET NORSKE
VERITAS, per dare valore aggiunto al lavoro
svolto. Il sistema di gestione per la qualità certificato viene successivamente trasformato per
rispondere alla norma UNI EN ISO 9001:2000,
certificato da DNV ed implementato ogni
anno secondo obiettivi di miglioramento definiti dalla Direzione Generale ECO THERM.
Gastone è tuttora l’amministratore, affiancato
dal figlio Vittorio, ed ECO THERM continua
nel suo impegno di offrire un servizio di qualità, mettendo sempre al primo posto i propri
clienti, proponendo soluzioni che sappiano
coniugare innovazione, rispetto per l’ambiente, e competitività.
2015 CONFERENCE REGISTRATION FORM
Please, send this filled form and attach a copy of the payment receipt for
each participant using:
Fax 0372 620406; e-mail segreteria.corsi@fondazionesospiro.it
The undersigned
Born in
..........................................................................................................................
........................................................................................................
Taxpayer’s Code
Resident in
on
.........................................
...............................................................................................................................
.....................................................
Prov.
..............
Area Code
..................
Street address .................................................................. Phone ...............................................
E-mail
............................................................................................................................................................
Qualification
Profession
........................................................................................................................................
................................................................................................................................................
Registered in
With No.
.............................................................................................................................................
.......................................................
Province/Reg.
......................................................
is asking to be registered for the Conference
“TRA SCIENZA E VALORI” – SCIENCE AND VALUES
Date
.........................................
Signature
.......................................................................
Please, send a copy of the payment slip indicating “TRA
SCIENZA E VALORI” as reason for the payment made using
either of the following methods:
• Postal payment slip in the favour of:
Istituto Ospedaliero di Sospiro ONLUS - c/c nr. 13100268
• Bank transfer:
IBAN: IT69K0623057030000043152438
If you need an invoice with different personal data, please
write to: segreteria.corsi@fondazionesospiro.it
Registration fees include the lunch of Sept. 8th:
BEFORE JULY 31st, 2015
CONFERENCE:- Individual: € 90
- Institute registering 2 to 5 people: € 80
- Institute registering more than 6 people
(e Iscritti Convegno EAMHID Firenze): € 75 i.i.
- Students: € 30
AFTER JULY 31st, 2015
CONFERENCE:- Individual: € 110
- Institute registering 2 to 5 people: € 100
- Institute registering more than 6 people
(and those partecipating to EAMHID in Florence): € 95 i.i.
- Students: € 50
(Prices are VAT inclusive)
REGISTRATION DEADLINE: September 1st, 2015
SPONSORS
SIDIN
HOW TO REACH US
CONFERENCE VENUE
Università Cattolica Sacro Cuore
Aula magna, Largo Gemelli, 1 - Milano.
The University is located in the centre of Milan, between the underground
stations of Cadorna (Red and Green lines) and S. Ambrogio (Green line).
The conference venue can be reached with a 5-minute walk from both
stations.
By underground:
From the Milano Centrale train station, take the Green line, exit at S. Ambrogio. The University is behind the S. Ambrogio Basilica.
By bus:
50, 58 (stop S. Agnese).
By tram:
19, 20, 24 (stops along Corso Magenta).
For information, contact the Secretary’s Office at +39 0372 620323
ECM = Continuous Education in Medicine
ECM accredited event for all the medical and social professions.