kurt fearnley`s starring role
Transcription
kurt fearnley`s starring role
December 2010 | Volume 19 Issue 5 TIME TO CELEBRATE: INTERNATIONAL DAY OF PEOPLE WITH DISABILITY KURT FEARNLEY’S STARRING ROLE NATIONAL DISABILITY AWARD WINNERS FOOD, FASHION, TRAVEL & MORE! Call anyone, anytıme Internet relay calls are ideal if you are deaf or can’t hear well and have difficulty using your voice. To make a call, all you need is an internet connection – through a computer or mobile phone. You can even do it via instant messaging. So now, you can easily communicate with anyone, 24 hours a day, even when you’re on the move. To find out how to make a call, go to www.relayservice.com.au a phone solution for people who are deaf or have a hearing or speech impairment Mobility Ad-2.indd 1 26/9/07 12:38:29 PM Get more from your PC with Speech-to-Text Software Blue to Head oth ® set Inc luded New Faster, Better, Smarter Dragon NaturallySpeaking 11 Premium voice recognition software enables people with physical and learning disabilities to easily use a PC. 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SPeCIAL OffeR SAVe 25% • Assistive Technology for Students with Learning Disabilities: Dragon generates new excitement for writing and learning for students with learning disabilities such as dyslexia, dysgraphia, working memory issues and other cognitive challenges. Purchase Dragon NaturallySpeaking 11 Premium with Bluetooth headset before 31 December 2010 and pay only $299. Contact your Preferred Software Reseller for pricing, availability and other special launch offers exclusively for Government and Educational institutions or call 1300 550 716 for a Reseller nearest you. Copyright© 2010 Nuance Communications. All rights reserved. Nuance, Dragon and NaturallySpeaking are trademarks or registered trademarks of Nuance Communications, Inc. in the United States and/or other countries. All other trademarks referenced herein are the properties of their respective owners. Editorial Editor Carla Caruso editor@linkonline.com.au Graphic designer Rachel Constable Contact us P 08 8201 3223 F 08 8201 3238 PO Box 2100, Adelaide SA 5001 Contributions welcome Advertising Advertising manager Ian Smedman advertising@linkonline.com.au Subscriptions inside Subscriptions manager Mandy Vercoe (08) 8201 3223 subs@linkonline.com.au General and News Deadlines Link is issued five times a year: April, June, August, October and December. All material needs to be sent to Link six weeks before each issue is released. Printing Hyde Park Press ISSN 1447–2023 Copyright 2010. Please contact the editor for permission to reprint content from Link. The opinions expressed in Link do not necessarily reflect those of the editor, publishers or their agents. Cover Story 10 Link celebrates International Day of People with Disability, with ambassadors such as Kurt Fearnley, below, and National Disability Award winners. 10 www.inprint.com.au Link Magazine is designed and published at Inprint Design (abn 40 005 498 775), a non-profit organisation. It is produced without the assistance of government funding, relying only on sponsorship, advertising and subscriptions to continue its development. Cassettes/CD formats available Link is distributed via subscription (pg 48) Principal Sponsor Supporter Supporter Bronze Sponsor Link subscribers can now read Link online. Ring Mandy Vercoe on (08) 8201 3223 for details. www.linkonline.com.au Cover: Aussie athlete Kurt Fearnley. Photo: Serena Corporate Photography. Some images throughout the issue are courtesy of stock.xchng. 10 24 38 23 0 26 4 5 6 Ed’s letter and event snaps Letters Art news, including an exhibition by photographic artist Evangelia Karageorgos 8 9 14 15 16 18 20 23 24 Link news bites Senior news and hot products Sports news Melinda Smith communicates effectively Think for fitness: get fit without moving a muscle Maggie Gill in Africa Travelling with Bruce Mumford Anthea Skinner on life with tinnitus Alyssa Gill looks at why fashion can be blind guesswork for some December 2010 — Vol 19/5 26 29 30 32 34 36 38 40 42 45 46 47 48 Johnny Mackay tackles the “black dog” The musings of Peter Coulter Minda helps a large laundry service Turn up your stereo with disability radio shows Entertainment news and reviews Book review: Katrina Clark on Always Liza To Me Falafel balls recipe and Q&A with Jessica Ainscough Finding the right lawyer News in brief Breakthroughs Wayne Eckert tries stand-up comedy What’s on Subscribe to Link linkmagazine 3 from the editor This would have to be my favourite time of year! Summer, Christmas, New Year’s, my birthday (just thought I’d chuck the latter one in there!)... and, of course, the International Day of People with Disability on December 3. All around the globe, people are pausing to recognise the achievements and contributions of those with a disability on this very special day, which was first held in 1992. Well, at Link, we thought we’d join in the celebrations by dotting this issue with inspirational Aussies, who are ambassadors for the United Nationssanctioned day locally, as well as those who were presented with a gong at the prestigious National Disability Awards. Since 1996, the Australian Government has provided funds to promote and raise awareness of the International Day around Oz via the Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA). This year’s UN theme for the day is Keeping the promise: Mainstreaming disability in the Millennium Development Goals towards 2015 and beyond. Hear, hear - onwards and upwards! Event snaps Link Disability Magazine is now on Facebook. Become a fan! Aside from being a bi-monthly print magazine, you can also get regular Link updates on everything from news to events and opportunities via our Facebook page. Recently on Link on Facebook... I am having an exhibition of work on disability and language during the Adelaide Fringe Festival 2011. I would love your support! - Evangelia Karageorgos [Ed’s note: Check out our story on her on page 6.] Check out Bedford Group’s new Facebook page, facebook.com/BedfordGroup – Robin Hopkinson Carla Caruso, Link editor Send you event snaps to editor@ WE’RE ONLINE! linkonline.com.au The Credit Union Christ ma cheer to SA’s Murray Bri s Pageant royal family brought some festive dge Special School. Top R-L : Pageant princess Diana Bargwanna (closes t to camera), princess Van essa Wearn and prince Sam Furber. Pageant que en Katelyn Schulte, Isaac K. Carlino. Bottom L-R : Isaa and pageant king Luke c L. and pageant king Luk Diana Bargwanna and Wil e Carlino. Pageant princes bur. s 4 linkonline.com.au December 2010 — Vol 19/5 letters to link Winning letter - Art-venturous eBay helps I’d like to thank the Richard Llewellyn Arts and Disability Trust for its grant to allow me to attend Gerhard Ritter’s recent course in painting portraits in oil. I go to many garage sales and one in five has something I can sell. I buy items for one, five or 10 dollars and double my expenditure or more! The grant is administered by Arts SA of the State Government. I greatly appreciate the trust’s encouragement – its recognition of my developing ability and support for my ambition. I am on a disability pension and if I only had this miserable amount of money I would struggle to survive. Some weeks I might make only $50 [on eBay], but then I have made up to $350, so it does seem to vary. It is an easy and reliable second income. I’ve been studying art at the Art Venturous group for those with a disability or mental illness. It meets weekly at the Port Community Arts Centre. Earlier this year, I joined the printmaking class at the Parks Community Centre to pursue an artistic idea in another medium. I also intend to join the woodwork class soon. If Parks Community Centre closes – its future is still under review – that local venue and its facilities will be denied to me and others. One woman’s or man’s junk is another person’s treasure it may be still useful to another. And, eBay makes it easy to find a buyer for it. Your buyers aren’t just local, but they are national and international – I even sold a jar (an Aboriginal pottery piece from Uluru) to a Californian. Life is hard, but we can make it easier! Grantley Franklin, Alberton, SA Matt Elder, Waterfall Gully, SA Wheelchair help First of all, I just wanted to say what a wonderful magazine we all find Link at Disability and Mental Health Services. We read all the print off the pages! I am emailing regarding an article I read in one of your recent issues. It was profiling a new type of wheelchair, which was due to come on the market in June and had a difference in the undercarriage. If I remember correctly, this enabled the chair to also be used when the user is wishing to venture to the toilet. Could you please let me know if I am on the right track? If so, I might pursue it for one of our clients. Jenny Widdop, UnitingCare Wesley Adelaide, Mile End [Ed’s note: The wheelchair you’re referring to is the Freedom Wheelchair, designed by Lu Papi & Associates. For more info, head to lupapi.com.au.] Birthday congrats I wish to congratulate Link on your 30th birthday! What a great magazine and organisation - Inprint. I have worked in the disability sector for eight years and am constantly learning new information. Much of this has come from your magazine, even though I have had to beg, borrow and steal a copy up until now! I have decided to pursue a subscription to ensure I do not miss a copy in the future. Keep up the good work! Joan Altmann, Children, Youth and Women’s Health Service, SA December 2010 — Vol 19/5 Depression in the workplace I was very proud to read my daughter Catherine’s article, Tough Work, in the October issue of Link. It has been a great source of distress to our family to witness the negative impact on Catherine’s health as she has struggled to deal with the demands of the workplace. I think many people experience considerable stress and anxiety at times in their lives, dealing with the challenges of the workplace. Catherine is young, intelligent, well-educated and conscientious and she has great potential and she wants a job, where she can make a contribution and feel wellsupported. In Australia, over a million in people live with depression and another two million live with an anxiety disorder. There must be many others, who are in the same situation as Catherine. People with great potential are struggling everyday to cope in the workplace and to find employment, which values them enough to provide the support they require. Judi, Melbourne, VIC Send your letter to the editor: GPO Box 2100, Adelaide, SA, 5001 or email it to editor@linkonline.com.au Please include your postal address (not for publication). The best letter wins $50 By contributing a letter you authorise Link to publish it in the magazine or www.linkonline.com.au. Letters may be edited for length and clarity. All published contributions earn the author a free copy of the magazine, containing the letter (or current subscribers may specify that they would prefer their free magazine as an extension of their current subscription), provided a postal address is included with the original letter. Your name, suburb and state will be published with your letter unless you specify otherwise. linkmagazine 5 link | art Snap happy Disability and language will be explored at an exhibition, Male Female Disabled, at the 2011 Adelaide Fringe festival. The work is by emerging SA photographic artist Evangelia Karageorgos. She says: “After being told by a teacher at TAFE to be more personal with my work, I began exploring my experiences with my disability.” Up until that point, Karageorgos says she never really considered using disability in her work, as she didn’t want to be defined as a “artist with a disability”. “I believed that if I avoided the subject it would make everyone else not see my disability,” Karageorgos explains. “But, I now realise that if I want to be seen as a person first, I would have to educate people to help them change their understanding of disability.” Being inspired by the work of American collage artist Barbara Kruger, Karageorgos began developing work using disability text, her own photographs and common symbols found in society. She decided to present them on hand-made recyclable bags and as laminated prints. “Language is a tool that is used to separate people with disabilities from ‘normal’ society, and to negatively characterise their experiences as being different and separate,” Karageorgos explains. “I want this series of work to challenge society’s perception of people with disabilities and to challenge the widespread use of ‘disabalist’ language.” One dollar from every $10 made from this series will go to a disability service in South Australia. Karageorgos’ exhibition will be held at the Carclew Youth Arts Centre, North Adelaide, Monday to Friday, 9am to 5pm, from February 18 to March 13. Also check out her blog, creative-act.blogspot.com. 6 linkonline.com.au December 2010 — Vol 19/5 By the sea Sydney annual outdoor event Sculpture by the Sea included a series of tactile tours for people with low vision and people with intellectual disabilities in November. Guided tours through the Mark’s Park exhibition site encouraged people to interact and engage with a series of artworks, located in accessible areas. Accessible Arts and Sculpture by the Sea built on last year’s program by adding tactile tours in Easy English for people with intellectual disabilities, as well as running its audio-described tactile tours. On the margins Wesley Mission Brisbane’s creative initiative Art from the Margins has unveiled two exciting new initiatives, creating opportunities for disadvantaged Brisbane artists, who are homeless or living with disadvantage or disability. At its third exhibition, inaugural Heiser Gallery Professional Development Awards were handed to Brisbane artists Htoo Htoo Han, Francis Hefferan and Billy Thompson. Wesley Mission Brisbane board member Ian Airey says the awards will “give these emerging artists a tremendous opportunity to work closely with one of the recognised leaders in the Brisbane art world”. The mission has also established a permanent Art from the Margins collection of works by exhibition participants. The third exhibition attracted more than 350 works by 160 artists from as far away as Cape York and Tasmania. International call An art disability expo is calling for entries from international artists with a disability. From January 2011, five exhibitions will be held at the Centre Socio Culturel Prabbeli in Luxembourg under different themes: Friends and Lovers, Famous People, Abstract World, Catastrophes and Landscapes. For more info, email Herbert Maly at maly@cooperations.lu. December 2010 — Vol 19/5 From top to bottom: Sculpture by the Sea Louis Leigh Lucas’s Deer in Motion won the Wesley Mission Brisbane Award. Cary Davies’ Family was highly commended. linkmagazine 7 SA Children with a disability are 700 per cent more likely to be a target of abuse and parents should be given more tools to prevent this, South Australian MP Kelly Vincent says. “I have been informed of several tragedies in the past few weeks, where people with disabilities have suffered horrendous abuse,” the Dignity for Disability MP said in a statement. “We are working with government to prevent abuse at a systemic level, but I believe that every parent and carer needs to educate themselves and their children, in a developmentally appropriate way to stop these nightmares.” She said it was estimated that children with a disability are 700 per cent more likely to be a target of abuse. “While that is a frightening statistic, parents and carers can arm themselves, and the people they care for, with the tools to understand, recognise and report sexual abuse.” Photo: Matt Turner, The Advertiser Eye specialist is most inspirational NSW A young eye specialist who restores vision to blind people has triumphed over a field of celebrities at a magazine awards honouring inspirational women. Ophthalmologist Dr Katherine Smallcombe, 36, with the Fred Hollows Foundation, took top honours at the annual Cosmopolitan Fun, Fearless, Female Awards at a ceremony at the Sydney Opera House in September. Autism film to raise schools awareness NSW An autism awareness group, founded by parents, will receive $300,000 from the NSW government to make a film to educate schoolchildren about the disorder. NSW Premier Kristina Keneally said the documentary to be made by Autism Awareness will explain autism to schoolchildren and dispel myths. The film, which will take up to five months to make, is expected to begin showing in NSW classrooms in 2011. Community group ponders whether Bendigo’s disability-friendly VIC A second public meeting to discuss issues affecting the quality of life for people with disabilities and their carers was held in Bendigo in October. Concerns at the meeting, held by RigB (the Regional Information Group - Bendigo), included inadequate pedestrian crossings and walkways, problematic pavement surfaces in numerous locations throughout the area and a lack of public seating, handrails and steps. In addition, there were numerous concerns relating to the adequacy of disability parking and the availability of, and access to, an efficient public transport infrastructure. RigB has been collating and analysing the information. Women allege carer raped them VIC Three women with mental disabilities in state care say they were raped by a male carer. The Herald Sun newspaper says the Victorian women say they were raped in a Department of Human Services supported accommodation house and suffered bruises, scratches and trauma from the attacks. Police were investigating and a man had been suspended following the allegations. No jail time for drunk wheelchair driver QLD A serial drink-driver has avoided jail for crashing his motorised wheelchair into a police car while almost five times over the legal limit. Jean-Paul Escudie, 65, faced court after pleading guilty to his seventh drink-driving charge since 2005. No-one was injured and the incident caused minimal damage, but he was charged with drink-driving after recording a blood-alcohol reading of 0.232 per cent. Frenchborn Escudie was given a six-month suspended prison sentence. - Evan Schwarten Some of the news items are thanks to AAP. Children with a disability are targets for abuse, says MP Some of the news items are thanks to AAP. news bites Some of the news items are thanks to AAP. Some of the news items are thanks to AAP. senior news Hot items Lip service Melbourne’s Bill Mooney was paralysed from the shoulders down after a diving accident at 16 and has been in a wheelchair ever since. Despite once being a promising athlete, he hasn’t let his accident hinder him. Mooney, an ambassador for this year’s International Day of People with Disability, instead found an outlet in art and paints by using a brush in his mouth. Specialising in oil and water colour paintings of Australian landscapes and seascapes, his work has been exhibited and sold all over the world. In 1997, he won the prestigious Hebe Ransford Landscape Award and is a member of the Mouth and Foot Painting Artists. “I feel very fortunate to be able to provide a voice to encourage and celebrate the achievements of so many people out there living with disability doing incredible things,” Mooney says. World’s oldest man turns 114 A US citizen, believed to be the world’s oldest man, has celebrated his 114th birthday at a retirement home. Walter Breuning, born in 1896, worked as a clerk for the Great Northern Railway for 50 years. His wife, Agnes, a railroad telegraph operator, died in 1957. The couple had no children. Cover up Melbourne designer Julia Van Der Sommen has come up with a nifty, new idea as the weather warms – Sha-de fashion-savvy, sun protection wraps for women, which can be worn over clothing whenever the skin is exposed. They’re being supported by Louise White, the founder of the Emily Tapp Melanoma Foundation. Prices are from $59.95. Buy via emilysfoundation.org.au or sha-de.com. Bath time bliss Freedom Bath Lift Australasia has introduced the Aqua Joy Bath Lift in Oz, helping to reduce renovating costs for people with a disability. Instead of building an entirely new bathroom, the lift can be merely placed inside one’s existing bath and, via the push of a button, a bather can move downwards and upwards, allowing access into and out of the bath. Priced at $1495. freedombath.com.au Height adjustable Caredesign has introduced an innovative, vertically height-adjustable wash basin, making its use easier for a person of any height or disability. caredesign.com.au. Breuning gave a speech at an invitation-only birthday party, preaching tolerance. “With all the hatred in this world, in this good world, let us be kind to one another.” Grandparent-headed families will keep growing A report outlining the issues faced by grandparents, acting as full-time carers for their grandchildren, has been unveiled by the Council on the Ageing (COTA) NSW. NSW’s Minister for Ageing Peter Primrose said the number of families, where grandparents were the primary caregivers, was increasing, according to a report by the Disability Council of NSW. Minister Primrose said the NSW Government-funded report, Listening to Grandparents, showed these grandparents often faced major upheaval in their lives and severe financial and emotional strain. December 2010 — Vol 19/5 Listen easy Designed in Sweden and distributed in Australia by Tunstall Healthcare, the Bellman Audio Maxi can improve hearing in everyday life. Using digital technology, sound is clarified, amplified and background noise removed before being passed through the headphones. Priced at $264, plus $15 postage. Call 1300 760 333 or visit tunstallhealthcare.com.au. linkmagazine 9 cover story | international day of people with disability celebrate Time to The International Day of People with Disability is celebrated on December 3. Four inspirational Aussies are ambassadors this year, including athletes Gerrard Gosens and Kurt Fearnley, artist Bill Mooney and writer/comedian Catherine Deveny. Others are receiving National Disability Awards. The Australian Government has provided funds to promote and raise awareness of the day nationally through the Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA). For more, visit idpwd.com.au. Faces of our special day Milly Parker Milly Parker’s warm, bubbly nature is evident as soon as you meet her. When asked about the International Day of People with Disability, she gushes: “It’s one of my favourite days on the calendar. It’s just so gorgeous!” Parker, who acquired a brain injury after a car accident at age 21, is one of the International Day’s Breaking Down the Barriers faces. She’s also behind the gourmet dog treat business, Happy Yappers, which uses lovely ingredients like carob, vanilla yoghurt and free range eggs. It’s one of my favourite days on the calendar! Photo: FotoGroup Parker’s brain injury has meant memory and problem-solving issues 10 linkonline.com.au and a short attention span. But, she says: “As tough as it’s been, I wouldn’t change one single moment! It’s made me a better person… I can empathise with all sorts of different people and, perhaps, I wouldn’t have reached this point so early in my life [otherwise]. And, I’m definitely so much stronger for the experience.” For one, Parker says her business wouldn’t exist if it weren’t for her brain injury. “I was studying accounting at the time of my accident and I think, ‘Thank God’. It must have been divine intervention or something [laughs]! The irony was that the parts of my brain that were affected couldn’t deal with numbers anymore.” Giving up number-crunching, she hit on the idea of her pooch business when she got a pet golden cocker spaniel, Riley, and began making treats for her. “Riley was so instrumental in me feeling good about myself and changing my life. So now, on every packet of Happy Yappers, there’s a little logo, with an ‘R’ on a cloud – a little angel [representing the late pooch]!” Happy Yappers is sold in Harrods in London and will soon be at a major Australian retailer. For more, visit happyyappers.com.au. December 2010 — Vol 19/5 Gerrard Gosens This adventurer, who has been blind since birth, may have climbed Mount Everest, swum with sharks and flown a motor glider, but hitting the dance floor has proven his greatest challenge yet. Gerrard Gosens – an ambassador for the International Day of People with Disability – was a contender on Seven’s Dancing with the Stars last year. Having never danced before in his life, the Queenslander says: “It was very difficult to comprehend a lot of things - not only the various physical moves, but also the ‘facials’ that go along with dance as well.” Add that to the deafening noise of the live band and having a camera crew trailing his every move and it proved quite the feat. Even so, Gosens describes it as “an amazing journey” and still does exhibition dancing with his partner on the show, Jessica Raffa. Running though remains his first love. The three-time Paralympian will next compete in the IPC Athletics World Championships in New Zealand in January and hopes to make the London 2012 Paralympic Games his “fourth and final”. If you think you’re too small to be effective, you haven’t been bitten by a mosquito. His zest for life comes from a desire just to give things a go, he says. “I think there are many people in various positions, whether you have a physical disability or not, who often seem to focus on the obstacles… For me, regardless of being totally blind, it’s always been, ‘OK, there must be a way around something’. When I was December 2010 — Vol 19/5 flying a plane, it was having a co-pilot beside me, or climbing a mountain, it was working with a team.” Similarly, as a runner, Gosens competes with the help of a team of elite guide runners. Amid his busy schedule, Gosens is also a special projects manager for Vision Australia and is constantly looking for ways to improve the lives of people who are blind, like his young daughter, Taylor. “I have a very simple philosophy in life - if you think you’re too small to be effective, you haven’t been bitten by a mosquito!” Catherine Deveny Melbourne’s Catherine Deveny hasn’t let dyslexia stop her from carving out a successful career as a columnist, comedian and social commentator. And, she’s also revelling in her role as an ambassador of this year’s International Day. “Two of my sons and one of my siblings are dyslexic, my grandmother was deaf, my nephew has Asperger’s Syndrome and several people close to me suffer mental illness,” Deveny says. “I know what it is like to try to break down the barriers that are associated with having a disability.” linkmagazine 11 cover story | international day of people with disability National Disability Awards Winners The following award winners were recognised at a ceremony at Parliament House in Canberra on November 23. Minister’s Life Long Achievement Mary Guy, TAS (1942 – 2010) Mary Guy from Glenorchy, Tasmania, was an active local government leader, disability advocate, elder stateswoman, talented mouth artist, teacher, educator and public speaker. Awarded the Centenary Medal in 2001 for her services to Australia, Guy was instrumental in improving accessible transport by instigating changes to taxi legislation. Guy was also a key member of the Glenorchy City Council, Cosmos Recreational Services, Community Based Support, National Disability Services, the Tasmanian Disability Advisory Council and Nican. Guy passed away on February 2 this year, but will long be remembered. Young Disability Challenge Laura Miller, WA Laura Miller is an enthusiastic and outgoing 25-year-old, whose passion and commitment to the advancement of disability rights is clearly reflected. 12 linkonline.com.au Miller is a supervising case manager in the human rights division at the State Administrative Tribunal and the youngest member of the Disability Services Commission Board - both in WA. She played a crucial role in the development of Count Me In - a 17-year disability future directions strategy for WA. As well, her advocacy as a student at Curtin University has resulted in it making several on-campus improvements, including installing elevators with time-delayed closing doors. Small Business DCT Associates, SA DCT Associates develops and manufactures a range of systems, which improve the lives of people with a disability. Engineer Terence Cody has been at the helm since 1990. Products include epilepsy alarms, bed occupancy monitors, wandering alarms, stove isolation systems, a man-down detection system, emergency alarms and voice-activated emergency alarms. In 2001, the company was awarded second prize in the prototype category at the Institution of Engineers’ Better Technology Awards for its Vigil Aide Voice-Activated Control System. The system enables people, who cannot use their hands, to call for assistance. Large Business Coles Coles is one of Australia’s largest employers, with more than 100,000 employees across the country. The supermarket chain actively works to increase social inclusion of people with disability through its workforce. Coles has developed a partnership with Disability Works Australia and, over the last six years, has employed almost 2500 people with a disability across its stores nationally. Social Inclusion – Community Focus Sheila King, QLD Sheila King helped establish the Australia For All Alliance Inc, which works to overcome the barriers confronted in the day-to-day lives of people with a disability. In 2003, King drove a national survey, carried out by the alliance, on the lack of adjustable height examination beds in doctors’ surgeries. This research led to a national debate, which has resulted in doctors being required to have such beds by 2011. As a result of this research, King was a recipient of a Physical Disability Council of Australia’s Jeff Heath Annual Peer Award. Through another national survey, King and the alliance examined the difficulties confronting people with December 2010 — Vol 19/5 disability, when making holiday arrangements or visiting leisure venues. As a result of the survey, the alliance set up the website, australiaforall.com. Social Inclusion – School Focus Dianne McRoberts, QLD Dianne McRoberts is one of Queensland’s finest educators and advocates for students with disability. For the past 10 years, she has been the head of teaching and learning support at Brisbane’s St James College. Her advocacy in assisting students with disability has resulted in significant change at the school. McRoberts has also contributed to the wider Queensland Catholic education sector by developing a resource package, Embracing Diversity, to help schools assist students with disability. McRoberts has also helped nongovernment organisations, like the Endeavour Foundation. Local Government Ian Chill & Cairns Regional Council, QLD Ian Chill, the access and equity project officer at Cairns Regional Council, works hard to educate about accessibility, Australian building standards and codes, the Disability Discrimination Act 1992 and other legislation. This year, Chill initiated the council’s Inclusion – See the Real Me awareness project, which highlighted the importance of inclusion of people with disability. The council has also done such things as installing accessible hoists in public swimming pools and tactile ground surface indicators in public areas, as well as enabled the installation of decking and wheelchair matting at the beach. Accessible Housing Angela Roennfeldt, VIC Angela Roennfeldt is passionate about designing environments that are accessible to people of all abilities. She played a crucial role in the development of a purpose builthouse in Alphington, Victoria, for 10 people with acquired brain injury and complex medical and physical needs. Roennfeldt also helped modernise Victoria’s Planning Act by highlighting the barriers for people with disability. Her Churchill fellowship, Standards Australia Adaptable Housing Committee membership and involvement with the Australian Institute of Architects have also enabled her to be involved in a range of projects aimed at bringing universal housing design standards to the public. December 2010 — Vol 19/5 AWARD FINALISTS The runners-up were also worthy contenders, selected from more than 160 nominations across six award categories. • Minister’s Life Long Achievement Frank Hall-Bentick • Young Disability Challenge Timothy Sharp • Business – Small Focus Mandurah Taxi • Business – Large Focus Haigh’s Chocolate & ANZ • Social Inclusion – Community Focus Jenine Davis and Scouting For All & Restless Dance Theatre • Social Inclusion – School Focus Sandra Newbery and Cranleigh School • Local Government City of Playford & Penrith City Council • Accessible Housing Community Housing Limited & Landcom linkmagazine 13 sport Hero worship Paralympic gold medal winner Kurt Fearnley has, for the second year, taken on the role of ambassador for the International Day of People with Disability. He is one of four inspirational, high-profile ambassadors helping to raise awareness of the contributions made by people with or without disability to the disability sector. Fearnley was born without the lower portion of his spine, but that has been no barrier to his achievements, including recently conquering the Kokoda Trail in Papua New Guinea. He tackled the arduous 96km track to raise awareness for the health groups, beyondblue and Movember. “It has to be the toughest thing I’ve done,” he later said. Fearnley’s sporting achievements include completing 38 marathons (and winning 28), being a three-time Paralympian with three gold medals, a five-time World Champion, 2007 and 2009 Laureus World Sports Award Finalist, 2006 Commonwealth Athlete of the Year with a Disability, and 2009 NSW Young Australian of the Year. “It’s a privilege to be a voice for a group of people whose achievements are often overlooked,” Fearnley says. “There are so many people out there living with disability doing incredible things. The awards are a great way of acknowledging and encouraging these achievements.” [something], and then it becomes possible to go beyond your limits,” he said. The 42-year-old’s swim from Britain to France took only 13-and-a-half hours. - Oleg Cetinic, AAP The big time Adelaide’s William Jackson competed in the Tri-State Games, a week-long sporting event for people with a disability, thanks to a new website. To secure his place in the annual contest held in Victoria from November 7-12 - his friend and carer, Joanne Miller, raised funds to enable a support worker to get him there, with the help of the site, planbig.com.au. Entrants cannot compete in the sporting event without a support worker, and while volunteers give their time freely, funds are required to cover the cost of transport and accommodation. PlanBig is a site, where anyone with a plan or an idea can access the resources and support to make their plan happen in the real world. It’s an initiative of Bendigo and Adelaide Bank. Jackson competed at the event in carpet bowls, bocce, running, bean bag accuracy and swimming. Aussie Paralympian hangs up his sneakers Three-time Paralympian runner Heath Francis has retired from his sport. Photo: Serena Corporate Photography Limbless Frenchman eyes next epic swim After swimming across the English Channel, quadruple amputee Philippe Croizon is already dreaming of a new challenge: crossing from Europe to Africa in the Strait of Gibraltar. The Frenchman, who swims using leg prostheses with fins attached, also has an inspirational message for anyone discouraged or facing difficulties. “You only need to want 14 linkonline.com.au Francis lost his right arm after it was caught in a meat mincer on the family farm when he was just seven. He didn’t let it slow him down though - his sporting career spanned more than 10 years, with the Commonwealth Games in Delhi his final curtain call. Francis is the reigning Paralympic champion over 100m, 200m and 400m and has six gold medals to his name. December 2010 — Vol 19/5 profile | melinda smith More than words Melinda Smith might have difficulty communicating by speech, but she has no trouble getting her message across, Sheridan Forster writes. Melinda Smith’s typing is punctuated with proud smiles as she describes a 27-year-old woman, who attended a course she was instrumental in running. “She has recently started travelling by herself to Melbourne from Geelong and she continues to tell me and others that it changed her life.” Some may question the life-changing nature of travelling to Melbourne from Geelong. However, it is no mean feat for someone, who uses an electric wheelchair and communication device, and before attending the course had barely used public transport or gone to a shop by herself. Smith beams with the success of this story. Smith, also a woman who uses an electric wheelchair and a communication device (among many other forms of communication), is a community development worker with Scope’s Communication Resourse Centre in Victoria. The position was designed for a person, who had complex communication needs (difficulty communicating by speech alone) and could complement and extend the team of speech pathologists, an occupational therapist and other workers. Together, their goal is to increase community awareness and involvement of people with communication difficulties in society. In Smith’s eight years in the position, she has done this in more ways than December 2010 — Vol 19/5 would have been imaginable. Smith has interviewed local shopkeepers and been integral in developing communication accessibility in Centro Box Hill. She has been an adult role model at the Big Mouth Camp, a camp for children, who use communication devices. She has presented her work nationally and internationally and, in doing so, has used her travel experience to teach others about accessible travel. Problems have included wheelchair logistics (such as, having strong Brazilians carrying her over inaccessible precipices!) Dancing is the one thing that I feel like I’m so free to communicate with my real self without speech... it’s amazing. The 2007-8 project, Out of the Box – Using Technology to Follow Your Dreams, was another successful undertaking for Smith. The project, based on the Augmentative and Communication Empowerment (ACES) course delivered annually at Temple University’s Institute on Disabilities in the US, brought together half a dozen adults with disabilities to participate in intensive residential workshops. Smith supported people to express their dreams and to use technology and tenacity. One of her greatest contributions as a community development worker has been in the area of the arts. She has done this in many ways: through her poetry books and readings, art exhibitions and, most recently, dance performance and acting. Smith recently played the lead role in Perfectly Imperfect, a dance-drama looking at the ethics of parenthood for women with a disability. Staged at the Melbourne Theatre Company, Smith’s performance incorporated dance in and out of her wheelchair, her communication device, facial expressions, and vocalisations. Smith’s ability to show love, without a reliance on words, moved the audience to tears. “Dancing is the one thing that I feel like I’m so free to communicate with my real self without speech... it’s amazing!” she enthuses. In recalling all her accomplishments and dreams for the future, Smith says simply: “I do it because I love it.” linkmagazine 15 fitness | wendy bentley Mind over body Science proves you can get fit without moving a muscle, writes Wendy Bentley. A number of studies have shown that “thinking” about exercise can actually result in similar changes to the body as if the exercise was actually performed. By understanding the mechanics of thought and how each thought affects your body, you have the ability to improve your own health mentally and physically. Anyone with a disability knows that your health is most often dictated to you. The doctors, the insurance companies, the family, the carers, they all have their say. But what about you? Your thoughts matter and, in fact, if you believe in them strongly enough, they just may change your life! A thought repeated many times over becomes a belief and belief is powerful. It is so powerful that it is causing great distress for pharmaceutical companies, who are making millions of dollars from drug manufacturing. The reason is, in many clinical trials, the “placebo”, is proving to be more effective than the trial drug. As a daughter of a C3-4 quadriplegic, the discovery of belief in mind-over-body thinking brought tears of joy to my eyes. This is remarkable considering a placebo is an inactive drug used in a clinical trial as the control method by which all results are measured against. Some scientists conclude that a person’s belief that a drug will work is more powerful than the actual drug. As a fitness trainer and daughter of someone with C3-4 quadriplegia, the discovery of belief in mind-over-body thinking brought tears of joy to my eyes! It was a health magazine that published a study, showing people performing specific exercise and people imagining themselves performing it, actually achieved a similar amount of weight loss. Since reading that information, my life has been dedicated to bringing this type of healing to the world. Above: Wendy with father Ron Hallam. 16 linkonline.com.au October 2010 — Vol 19/4 top tips I have since discovered there is an abundance of scientific evidence to support the mind-over-body theory. In 1992, a study comparing training of voluntary muscle contractions, with imagined muscle contractions, discovered that the visualisation of muscle contraction alone produced a 22 percent increase in muscular strength. The scientific evidence does not stop there. Books such as The Biology of Belief by Dr Bruce Lipton, How Your Mind Can Heal Your Body by Dr David Hamilton and The Brain that Changes Itself by Norman Doidge list many scientific examples. Wendy Bentley is a holistic personal trainer specialising in exercise for the body, using nothing but the mind, and she has developed a series of audio exercise programs. For more, visit thinkforfitness.com. If you would like to put this theory to the test, here are my top five tips to get your butt into shape no matter what your physical circumstances: 1. Go to a quiet place, close your eyes and focus on your breathing to clear your thoughts and calm you. 2. Begin to imagine yourself doing any type of physical activity that you think might be fun. It could be walking, running, a weights session or surfing. It doesn’t really matter. 3. Really feel every movement you are making. For this to work, you must feel the movement. Feel every muscle contraction with every move you are making. Feel yourself sweating, feel your heart beating faster, feel your breathing speed up and feel the feel-good endorphins releasing through your body as a result of exercising. 4. Believe that you have actually done a real workout. Belief is the most powerful drug available. 5. Practise for at least 10 minutes every day. Getting Mobile Wheelchair Accessible Vehicles Auto Extras enjoy changing lives through our wheelchair van conversions. A van that carries wheelchairs and walking passengers can offer greater freedom and independence for families and groups who want the active lifestyle. Auto Extras undertakes the modification of vans to the exact requirements of each individual customer. For every situation involving mobility impairments and/or extra seating we offer the most flexible and practical solutions with a comfortable and professional finish. Auto Extras service includes: • Analysis and advice on each situation • Sourcing appropriate vehicles • Installation of loaders, restraints, seats and lighting For further information Please contact Auto Extras on: Phone: (07) 3252 3809 or 1800 811 626 Fax: (07) 3257 1459 Email: sales@auto-extras.com.au www.auto-extras.com.au December 2010 — Vol 19/5 linkmagazine 17 volunteering | maggie gill Africa calling Maggie Gill is volunteering as a physiotherapist through Australian Volunteers International at the Phelisanong centre. Earlier this year, Victorian physiotherapist Maggie Gill left home to travel to Lesotho in southern Africa to work with an organisation, known as Phelisanong. It runs a centre for orphans, vulnerable children and children with disabilities. Disability is still seen by many here as punishment for past wrongdoings. Lesotho is a small, mountainous country, home to the Basotho people. AIDS is taking a devastating toll on the area, with people dying in alarming numbers. In the foothills of the Maluti mountains, this remarkable community though has come together to provide a children’s home. Founded by villagers, who are HIV positive or have a disability, the indigenous-led, grassroots group understands on a personal level what the challenges are in living with HIV and disabilities. Since its inception in 2001, Phelisanong has grown to become one of the leaders in community development in Lesotho. Here, Gill writes about her role with the organisation… 18 linkonline.com.au The project On a terrain that requires tyres from “monster trucks” and powered wheelchairs unheard of in these parts, young people with significant movement disabilities are dependent on carers and fellow peers for assistance with all activities at Phelisanong. Physiotherapy services aim to provide options and alternatives for movement and activities of everyday life, helping young people to achieve their full potential. With disability still seen by many [locals] as punishment for past wrongdoings, some major aims are also to break down the stigma and misconceptions surrounding disability, integrate children with disabilities into their wider communities, and to recognise and celebrate the achievements and contributions that people with disabilities make. Village life With no electricity in my hut - and candlelight only doing so much to illuminate the room - going to bed early has become a routine! December 2010 — Vol 19/5 This is not so bad, considering the roosters and donkeys, along with the blasting horn of the bus from the mountains, have set the wake-up call for well before sunrise. For most, the day starts around 5am, with sweeping the yard (something I haven’t quite understood yet, given that it is all red dirt!), building a fire outside for cooking and the children preparing for school, which starts at 7.30am. The water is collected from the communal tap in the village and then heated on a gas cooktop to bathe in a bucket – also something I am yet to master! I am lucky to have some friends in “the city”, who let me use their twin-tub washing machine when I visit. As it turns out, I am no domestic goddess – all washing clothes in a bucket seems to do is substitute dirt all over my clothes for soapsuds’ stains! Getting to the city to wash my clothes is also a great adventure each and every time. The 130km trip takes anywhere between three and four-and-ahalf hours on public transport. The trip requires changing transport three times, usually at a different location each time, and the minibus taxi only leaves when it’s full. There is no such thing as a timetable, and so, if you are unlucky enough to just miss the last taxi to leave, you sit on the 16-seater bus and wait until there are 15 other people wanting to go in the same direction as you! This experience is not all bad, as there are always people trying to sell you fruit, fat cakes and topup airtime for your phone! And, of course, very few Lekhooa (meaning: white people) travel on the public taxis, so intrigue and conversation is never lacking. Add this to the deafening gospel music that blasts out of the speakers, until the bus shakes with vibration, and you really do have a different experience every time you travel! For more on Phelisanong or to donate, visit phelisanong. com. For volunteering, head to australianvolunteers.com. Now you’re thinking December 2010 — Vol 19/5 linkmagazine 19 travel | bruce mumford Goingfurther This is the third in a series on accessible travelling by Bruce Mumford. This issue, he tackles planning an interstate holiday. So, you’ve found doing short trips not as difficult as you feared? Maybe you survived a couple of nights away with only a few cuts and bruises? And now, you’ve caught the travel bug and are ready for a bigger trip? What about two weeks’ away interstate? My wife had always wanted to go to the Great Ocean Road and salary sacrifice had forced us to go on a big holiday to get the kilometres up on our new car. Above: Author Bruce Mumford is ready to go, wearing a “fashionable hat”! Photo: Louise Mumford. Right: Takeabreak.com.au. Holidayinspirations.com.au I had a journey worked out that looked pretty good on paper, but when I checked it closer using Google Maps (a good idea - maps.google.com.au), the road didn’t look so good, after all. And, it occurred to me then that Victoria is shaded green on my map to make it look different from NSW, not because it is lush everywhere... Google Maps is very useful as well, because you can enter the exact address of a place you are thinking of staying and then have a look around the area in real pictures. I’m amazed how they got all those little yellow men out there taking so many photos! I also started by going to the local travel agency and picking up a few tourist brochures on the areas we intended to visit. These are useful to get an idea of the significant sites and tourist spots, so I can include them in our itinerary – or, in some cases, avoid them. I visited the library too and borrowed some relevant books and travel guides. Guides like Lonely Planet are good for updated information - not only on places to stay - but also on attractions and places to eat (lonelyplanet.com). 20 linkonline.com.au December 2010 — Vol 19/5 Their information on accessibility is usually good too. I then worked out a route using NRMA’s Trip Planner (free on the internet - go to drivethere.com.au). It will give you distance between each stop, as well as information on local attractions and accommodation. We try to do no more than five hours’ driving between overnight stops - that way none of us get too tired. (And, yes, being a passenger and map reader can be quite exhausting - especially when my wife can get so annoyed with my well-intentioned navigational tips!) It also gives a reasonable amount of time to have a look around at points of interest and at our overnight destination. The thing about successful travelling is not to try and do too much of it at once. Once you’ve worked out your stops, it’s time to start booking accommodation. But before you do, it’s a good idea to get some travel insurance. This is a really good idea, because as accessible accommodation is not that easy to find, you need to book it when you can. But this means that if your trip is cut short by fires/ floods/wildebeest stampedes (and, in Australia, the first two are pretty common), then without travel insurance you’ve lost your deposits. It’s not very expensive either. We paid $112 for our family of four for two weeks and this has no excess and covers theft, lost luggage, hire car damage and a few other things, as well as lost deposits. December 2010 — Vol 19/5 You probably won’t bother paying extra for a pre-existing medical condition as, if you’re like me with MS, it won’t be covered anyway. We really just wanted to safeguard our deposits. You’ll find travel insurance easy enough on the internet. Just shop around and be careful you’re not paying extra by going through a thirdparty travel agent. We used Mondial as we have found them pretty good in the past (worldcare.com.au). Now, it was time for some serious research and to begin booking things. The internet is a fantastic tool for this. I made a pro-forma much like the one given in part 1 of this series (Link August) and copied it before emailing it out, making changes when necessary. for accommodation. The only purposebuilt accommodation for wheelchair access is called Fish Eye 9, fisheye9. com. I have also included a list of wheelchair-friendly accommodation providers in the Apollo Bay and Otways area as well. There is no wheelchair hire in the Great Ocean Road region. The closest facilities I know of are in Geelong or Melbourne. The Geelong contact details are at geelongmedical.com.au/ hireequipment.html...” Then, you need to go on searches for suitable accommodation. Many internet search engines are not specific enough and you can waste a lot of time contacting each property individually to check on their accessibility. If your trip is cut short by wildebeest stampedes, then without travel insurance, you’ve lost your deposits. A good place start your search is the local tourist offices. I began with Tourism Victoria (visitvictoria.com) and then was referred to the Great Ocean Road Visitor Information Centre, which was very helpful (visitgreatoceanroad.org.au). Don’t hesitate to inform them directly of your accessibility needs, as they are usually prepared with lots of useful information and can point you in the right direction for other requirements. The below correspondence came from Marika Mercer, the tourism officer at the Great Ocean Road Visitor Information Centre: “To follow are some properties that may be able to meet your requirements Apart from the tourist office suggestions, there are a number of specialist disability websites (such as, e-bility.com or australiaforall.com), but theses can be limited to places suitable mainly for those with more profound disabilities. I made a lot of use of the takeabreak. com.au website. Their search page allows you to specify the area, type of accommodation and accessibility. (At the ‘all holiday experiences’, tab-select ‘accessible’ or ’accessible by wheelchair AS1428’.) TakeABreak also has a useful holiday destinations page, which gives reviews and general information about many areas you might visit (again, choose ‘accessible’ in the ‘Experiences’ tab.) linkmagazine 21 I’ve also had an extremely good response rate from property managers on this site and the nature of their responses and their timeliness give you a good idea of what to expect. One owner, for example, replied after several days that he found my request “quite interesting”, but wondered if I’d be able to deal with the various levels and numerous steps in the apartment. Needless to say, I didn’t proceed. Others, however, were quite realistic and helpful, as below: “We would love to accommodate you and your family… However, I am not certain the facilities are wheelchair-friendly… I am unsure if a standard doorway is enough width for you to gain access. I have researched on the internet and [we] do not meet many of the criteria. accessibility is suitable for you (there’s a pro-forma guide for this too in the August Link issue). you.” This response was enough for me to know I’d manage but, for others, it could be impossible. Everyone’s access requirements are different and operators can’t be expected to cater for every kind of disability or to be able to mind-read your needs. Obviously, you don’t want to lash out on an expensive trip only to find once there that it’s impossible for you to get in (as I did once with a seaplane flight, as below!) So now, we’re almost ready to go. I’ve planned our route, got travel insurance, booked several places to stay, including a wheelchair-friendly stone cottage in the Grampians and an accessible lighthouse keeper’s cottage at Warrnambool, booked a helicopter flight over the Twelve (or whatever) Apostles and checked on equipment hire. “Our helicopter flights are accessible to people in a wheelchair, which will not be a problem. There would obviously be a small climb into the aircraft. However, we do have a step to assist In three weeks’ time, we’ll find out if this and the GPS is enough to compensate for my map-reading skills on the road... Your email has brought to my attention that I do indeed need to look at the facilities available for [people with a disability] as it must be frustrating for you to find that may places do not cater for wheelchairs. Every prospective guest is important and I do not like to deter anyone and realise that our accommodation does not provide the appropriate facilities.” When people put time and thought into their responses like this, I think it’s important to reply, expressing gratitude, even if you decide not to go ahead with a booking. In booking accommodation, always start with the busiest areas and the times (like weekends) that will be more difficult to get. If booking tours or attractions, you definitely should have personal contact with the operator to ensure 22 linkonline.com.au Photo: South Australian Tourism Commission There are no hand rails in the bathrooms or toilets and know there would not be enough room for a side transfer from the toilet to a wheelchair. On a positive note, there are no steps at the front or rear door it is all level with the outside. TRAVEL NEWS Art escape tours Feeling creative? Rawnsley Park Station in SA’s Flinders Ranges has long provided inspiration for artists. Its new Art Escape tours will continue this tradition by providing guests with the opportunity to learn from renowned botanical artist Gilbert Dashorst. The new tours cost $880 per person twin-share, including two nights’ accommodation in a onebedroom eco-villa, art classes and materials, a Sunset on the Chace tour, and some meals. The doors in the ecovillas are also wide enough for wheelchair access. To register for a 2011 tour, visit rawnsleypark.com.au or phone (08) 8648 0030. December 2010 — Vol 19/5 Illustration: Daniella Caruso, daniella-caruso.blogspot.com travel | bruce mumford opinion | anthea skinner Do you hear what I hear? Anthea Skinner reports on living with tinnitus. I’ve had tinnitus since I developed Meniere’s disease in my teens. Tinnitus is a whistling, ringing or buzzing sound that occurs within someone’s ears or head. It can be caused by damage in the inner ear from loud noises, traumatic injury, some drugs and some forms of hearing impairment, including conditions such as Meniere’s disease, otosclerosis and presbyacusis’. Tinnitus cannot be cured. While in some people it disappears naturally over time, others have to learn to live with it. There are two main factors in managing tinnitus: coping with hearing loss and learning to live with the noise. Coping with hearing loss In some cases, the buzzing in a person’s head becomes so loud that it drowns out the sounds of things going on around them. When this is the case, the tinnitus itself becomes a form of hearing impairment. Given that many people with tinnitus already have a degree of hearing loss, the extra noises in their head can compound this problem. Illustration: Daniella Caruso, daniella-caruso.blogspot.com Unlike many forms of hearing impairment, the levels of tinnitus a person experiences can change from day to day and even hour to hour, making it important to be aware of what is going on in your head, as well as what is going on around you in order to stay safe. When experiencing tinnitus, the most difficult sounds to distinguish are those that are similar to the noises in your ears. These means that even with mild tinnitus, it can be difficult to hear “white noise”, like approaching cars, rain on the roof or the sound of appliances like dishwashers. Developing strategies to cope with this is important, like being sure to look both ways before crossing a street and feeling for vibrations of appliances. I think of the noises in my head as my personal flock of crickets. Learning to live with the noise Many people with tinnitus become frustrated listening to the constant noise in their heads. It can cause anxiety and loss of sleep, which, in some cases, become more disabling than the physical symptoms. Tinnitus is often worst at night, when there are fewer background sounds to distract you from the constant buzzing. I have developed my own way of coping with the noise. At first, I tried to ignore it, but the more I tried to ignore it, the more frustrated I became. So, I tried a different tack. Instead of trying to ignore the sounds in my head, I made a conscious effort to listen to them. The buzzing is constant, but not unchanging. I often lie in bed pretending that I’m listening to a weird modern composition, taking note of minute changes in pitch and volume. After a few minutes of this, my mind usually drifts off to other topics and I am able to fall asleep, unworried by the sounds. I now think of the noises in my head as my personal flock of crickets, like secret pets that no one can hear but me. I can’t get rid of the noises in my head, so instead I have learnt to love them. December 2010 — Vol 19/5 linkmagazine 23 fashion | alyssa gill about fashion Having a fashionable eye doesn’t have to be beyond people with vision impairment, Alyssa Gill writes. In an image-obsessed society, keeping up with the latest fashion trends can be challenging enough. For some though, it can even be – well - blind guesswork! To understand the fashion-related challenges faced by people, who have a vision impairment, imagine being left in your local shopping centre with nobody to guide you. One challenge will present itself after another when trying to coordinate colours, textures, shapes, sizes, prints and accessories, with touch as your only tool! a magazine and later a website, which offers articles from skilled writers - both with and without vision impairment. (Find the online glossy, Fashionable Eye for The Blind Guy and Gal, at fashionableeye.com.) “When I was losing my sight, I became very depressed,” Ko recalls. “I stopped going out, caring about how I looked and how I presented myself. Over time, I started losing my fashion sense and then also my confidence. I decided that I needed to get back to where I was.” Fashion comes down to visual intuition. There are minimal support outlets to help people with vision impairment become fashion-savvy. New technology is Driven by a determination to share fashion with helping, such as the colour recognition iPhone the wider world of disability, Ko came to the app, Color ID, providing “temporary eyes” for realisation that through text alone, visuals like the shopper. fashion could be described quite successfully to those with vision impairment. The magazine However, self-expression in fashion requires has been around for four years and the website more than the partnership of possible for three years, generating more than 5500 colours, according to Austin Seraphin, a followers. blogger with vision impairment, who pens behindthecurtain.us. “It seems to me that It’s certainly on the money for fans like Melanie fashion comes down to visual intuition. I could Takkos. “I’ve never really been any good find things that both say ‘blue’, which logically with fashion and I’m sure having a vision should coordinate colour-wise, impairment doesn’t but a sighted person might still help. Fashionable Eye say: ‘Oh, I would wear the other is a great magazine, thing instead. It goes better.’ because it is written When I ask why, they say: ‘I by a bunch of young don’t know, it just does!’” people, who actually know what they are So, what other help is talking about!” available to people, who have vision impairment and want to build their fashion identity? Sydneysider Dawson Ko, 27, right, has created one such means. At 15, Ko developed Behcet’s disease, an incurable immune disorder, which resulted in him slowly losing his sight. Aspiring to maintain the confidence and identity he had developed through fashion, Ko created 24 linkonline.com.au December 2010 — Vol 19/5 opinion | johnny mackay ark ays Model depicted is in no way associated with this story. 26 linkonline.com.au December 2010 — Vol 19/5 Staying fit and healthy and finding a shoulder to lean on helped Johnny Mackay tackle the “black dog” that is depression, as he writes. It was all unexpected. Sure, life wasn’t grand, but you know it was pretty good, I thought. In retrospect, it seems like the changes took place overnight, though I am not sure that is true either. My best friend and lover of five years decided to take up relations with another man. This was enough to force me to explore my own personal difficulties, shortcomings and relative commitment issues. I discovered that I loved her more than I loved life - more than I loved myself. Unfortunately, my newfound passion for a life of solid relations with her and her alone - fell on deaf ears and I was told it was too late. More than anything the ‘weight’ of the hole inside me was incapacitating. The darkness was unbearable. The pain relatively inescapable. I say relatively because, as a previously active person, I liked to walk and run. Here and now though, I did it not because I wanted to, not because it made me feel better, but simply because I was able to disperse my thoughts and alleviate the crushing pain only when I was walking. Needless to say, in my ‘darkness’, I walked four to five times a day for 30 minutes to an hour each time. When I stopped, my blood and toxicity were almost touchable and seemed to ‘pool’ inside me. It was overwhelming. I had trouble thinking or talking about anything but my perceived troubles. I couldn’t walk on some days - literally. In the middle of correspondence study with university work, it took but a few days to fail and quit. While I knew I had to work to keep my house and pay my ongoing bills, my performance became quite poor. On some days at work, a simple carry of books from one shelf to another became unfathomably slow. On one day, I broke out in tears on the boss’s shoulder – she sent me home. From home, I refused to go anywhere and spent most of my time trying to cope with the pain and darkness. I became socially inept. And why would I want to be with people? Divulge the intricacies of my melancholy? As far as I was convinced, I had failed not once, but on so many deep and important levels. I couldn’t face anyone - including myself! I was 40 years old. Surely, I knew how to cope with life’s upsets? I was a creator, a philosopher, author and dreamer. How would this look against my passionate outgoing and usual self people knew? I was a male. Aren’t I supposed to be strong and look after the women and children in my community? And, I was a father. What sort of example was this to give my children? Consequently, I reached a stage of contemplation and planning, with suicidal thoughts. I was ready to end the nightmare. While my mother and sisters were greatly concerned for my wellbeing, I limited their contact deliberately. So too, the usual advice to “think of your children” or “your future” had no effect. December 2010 — Vol 19/5 linkmagazine 27 opinion | johnny mackay Having said that, I was lucky. A long-distance casual friend became my on-call phone support, a casual local friend became my new best friend and crisis confidant, and my own daughter (only 20 herself!) took time out to contact me every day and stay over with me a few times a week. I never asked one of those people to do what they did. They were simply the right people. It was good timing too, as things were just about to get worse - very much worse. I couldn’t walk on some days - literally. After a few sick days and a lagging performance, my boss called me into her office with the owner of the business to discuss their plan to support me – “You’re fired!” Though the position paid quite badly, this wasn’t something I needed. Not then. It was only a week later the engine in my van blew up, rendering it totally useless. I had no money to fix such a thing. Could it get any worse? My depression was a third bout after a serious patch around five years before and, another five years before that. [But] this was my worst hit by a long-shot. While it was ‘undiagnosed’ and may not officially be called clinical, it was certainly chronic – I didn’t need a doctor to tell me that. According to definitions currently available, it was psychotic depression, because it included audible hallucinations – hearing voices. The feelings of hopelessness, while manageable when walking, were unbearable when standing still. To cope, I began drinking – wine in general (cask), about two litres a night. It helped me sleep. I began cigarette smoking, which I had done when I was younger. This time, I smoked two packets a day and the anxiety of not smoking became worse than the toxicity I began to mirror in my stature, complexion, speech and clarity of thought. My two friends and my daughter had an intensive capacity to listen and let me drool unjudged or without question over and over the same path every hour, every day. This was coupled with the manic walking program I was unable to stop, so began my unintentional recovery program. I paid some prices too. I lost 12 kilos and looked ill. It only took a few months to get myself to a state of pretence and convince someone to hire me. Alas, my performance was still poor. I tried harder to no avail. The organisation this time, however, was supportive. I took counselling at their cost. Even though the first response was to get me on medication, I refused. Mainly I think, because it was an admission of defeat and honestly? I would rather die than be defeated by myself. The counsellor listened and listened and listened and I talked and talked and talked. 28 linkonline.com.au Occasionally, she would detect I had paused and offer input. Her biggest concern was the alcohol, and so, I agreed to buy bottles instead of casks. With such a non-existent budget, my consumption was inevitably reduced. She was, however, pleased I was walking and told me that, statistically speaking, walking three times a week, 20 minutes a day, was equal to a first course in anti-depressants. I figured I was on a sixth or seventh course! This time with her was well-spent. Like verbal vomit, I needed to cleanse and it took many sessions with the counsellor and my friends and my daughter. What a great privilege it is to have the honour of befriending someone, who will listen without question or judgement. Slowly, I began to analyse my life over and over and see that I had succumb to ‘building on the sand’ syndrome. I began to make sense of what I had done and what I must do. Nearly a year later, I began to plan building again but, this time, on rock. At that time I didn’t need or want anyone to give me permission or acknowledge the validity of my thoughts or plans. No, what I needed was exactly what I was already getting – unconditional love and support, listening, openness, honesty, and company. My boss called me into her office with a plan to support me... you’re fired! And today? I am sure most people would say I am healed, never to return and a better version by far of the person I was before that time. Of course, what doesn’t kill you makes you stronger, right? Well, I can only hope they are right. When all is said and done, I must understand that the possibility of my black dog returning is greater than for some. But, on the bright side, it seems that keeping oneself healthy and well, using the tools of nutrition, exercise and meditation, may offer protection of defiant proportions. And, at the end of the day, I will always have a choice. More than anything, a choice to pick up the phone or visit someone who I trust. And that is where you – my support person - comes in… Tasmanian Johnny Mackay is a father-of-three and a registered celebrant. He has worked with people with disabilities for eight years and, more recently, people living with mental illnesses. He is the author of Rebel Yell and Sonja’s Song. If you or someone you know is experiencing mental health issues, phone Lifeline on 13 11 14. December 2010 — Vol 19/5 opinion | peter coulter The musings of Peter Coulter Peter Coulter ponders the benefits of acupuncture - and language surrounding disability. Pins and needles I admit to being a skeptic as to whether acupuncture works or not. How shoving needles into yourself can relieve pain, inflammation, swelling, sleeplessness, bad temper and almost everything else, I could never contemplate. The placebo effect is something that I have never seen examined and I think that it’s possible that the reason my back doesn’t hurt so much is because those needles are hurting a lot more! A study by New York’s University of Rochester Medical Centre, reported in New Scientist, induced pain in mice - by pushing needles into their knee joints - and then analysed levels of a certain chemical, with and without acupuncture. The mice reported having only half the pain as before. This should perhaps be a new prerequisite for obtaining a job in a research institute: “You must be bilingual - fluent in mouse.” Short of asking the mouse how he feels, I do not know how to tell if he is feeling less pain. There is the functional MRI, of course, but this takes no account of whether said mouse is having a dream or is simply constipated. I am also having trouble equating a mouse with a human being - a needle to a mouse is a crow bar to you and me! You must be bilingual - fluent in mouse. Autism – spectrum or syndrome? I have often ended some of my lectures to university students with a simple, short line: “I have something that none of you have - a disability!” It is because of this disability - its nature and extent - that I work where I do and also makes me good at what I do. With many disabilities, the unfortunate and often misguided focus is on the disability - its severity and inherent difficulties. This is understandable, if wrong and severely limiting. I have just read an article in New Scientist from a person with autism. She works at a university in Canada doing research and claims that there are distinct advantages to being autistic, at least in her case. Some of these are an ability to focus on one thing at a time, a demonstrated ability to see things hidden in a maze of other information and an artistic ability beyond that of non-autistic people. She is not a “savant” and says that these are the exception rather than the rule. While recognising that those, who have autism, need social services and help, she stresses that there is another side to the coin. Many such people merely need some assistance and recognition of the heightened abilities they possess. The very name of the suite of disorders that the name encompasses – autism and ADHD - the varying degrees of severity of each disease and the apparently rather loose application of the diagnosis all conspire to make it very difficult to cope for the people so diagnosed. Look at the word, spectrum - it means a range or broad panacea of various things. A better and more accurate definition of the condition is needed and, with this, an education campaign to educate those who use and misuse it. Our medical system has what one might refer to as a “doctor spectrum disorder”! October 2010 — Vol 19/4 linkmagazine 29 link | disability enterprises No more missing socks When a large laundry service couldn’t keep track of smaller garments it teamed up with Minda to create the perfect partnership and solve the lost sock quandry. The culprit: socks! Sometimes the smallest things create the biggest problems. When SA’s Department of Families and Communities (DFC) set about reviewing their laundry tender, they wanted to know: could a commercial laundry supplier really manage the everyday household issue of ‘where is that missing sock?’ and, at the same time, provide a highly efficient commercial laundry operation? In answer to this question, Minda Laundry Services commenced its collaboration with International Linen in servicing the DFC laundry contract in December 2009. International Linen has a large number of aged care customers and along with the used sheets, pillow cases and blankets that are returned by this customer base, every now and again, along comes socks and many other items of personal linen. As a large commercial laundry, International Linen has the capacity to wash and iron in excess of 2000 sheets per hour but, as they discovered, has the ability to lose a pair of socks! By their own account, for International Linen to attempt to launder items of personal linen is like trying to land a jumbo aircraft at Parafield Airport – it is not a good fit! Being aware of Minda’s laundering facilities, International Linen approached the Minda laundry about providing a weekly service whereby Minda would pick up the various items of personal linen – launder them, sort them by location (if suitably labelled) and return them to the International Linen facility at Torrensville. Therefore, on the next delivery to one of the aged care customers, they could take along the freshly laundered items. International Linen is an industry-leading provider of commercial laundry services to the hospital and healthcare sector, processing many tonnes of laundry and linen every day. 30 linkonline.com.au Minda Laundry Services, on the other hand, is an operation set up with a completely different focus - that being to optimise the collection, sorting and tracking of laundered customerowned goods while simultaneously providing employment opportunities to people with a disability. The collaborative opportunity between the two organisations was born out of the unique mix of capabilities the two organisations have which, while very different in isolation, when combined, form a potent solution offering. The collaboration with International Linen was seen as a real opportunity to not only optimise the utilisation of Minda’s plant and equipment but, more importantly, it is the increase in laundering volumes that provides a secure source of employment for people with disability. The social benefits of this collaboration can also not be overstated. While International Linen and Minda Laundry Services might, at times, compete in the marketplace for laundry work, the reality is that the coming together of these two organisations allows each to focus on its core competency. This enables the combination of the two businesses to deliver the best possible solution to its customer, the DFC. Together, International Linen and Minda have overcome all the challenges of handling a mix of high volume standardised linen products, as well as dealing with the individualised services required when handling personal laundry items. The individualised service operates five times per week and includes all aspects of laundering such as sorting, washing and drying and separating items into ward allocations, identified by a colour-coded bag system and returned to the correct ward. The social benefits of this collaboration can also not be overstated. From the DFC’s perspective, as many of the personal items were gifts to residents, the loss of these garments can be quite an emotional issue for an elderly and quite often frail person. However, the value of this work can best be reflected in the words of those people who are employed as a result. December 2010 — Vol 19/5 Greg Evers is a supported employee working in the area of logistics. He says: “I enjoy going to the Julia Farr site (DFC) and picking up the laundry bags, which helps out the laundry.” Minda’s commercial laundry operations employ a total of 58 employees - 42 of these being people with a disability working in various supported employment roles. Regina Jalosjos, another supported employee at the Minda laundry, says: “I feel proud to be a valuable member of the team that is relied upon to complete the tasks that are required.” Phil Osborne, the manager of Disability SA’s hotel and ancillary services, says: “Working in the disability sector provides staff and clients with wonderful opportunities to improve services and quality of life for all associated with this unique sector. So, when assessing tenders for the linen, laundry tender for Highgate Park, one of the key evaluation criteria was social responsibility, which included consideration of service providers, who would involve or employ people with a disability. International Linen Services, with their plan to incorporate Minda in the laundry linen service, certainly offered that opportunity and has proven a very successful liaison. Highgate Park is receiving an excellent service while Minda staff are seen as happy and proud of their quality of work and service they provide.” According to Andrew Ramsey, the manager of Minda Commercial Enterprises: “This is a great example of how two organisations that are truly focused on delivering the best in customer service can deliver not only the best commercial outcome, but also an outstanding social outcome. Organisations so often look for great partnerships in business and, having only recently joined Minda, this is as good an example as I have seen anywhere”. Organisations so often look for great partnerships in business and… this is as good He adds: “What is exciting is that this is just one example of how Minda’s commercial enterprises can partner with external organisations to add value to the total service offering”. For more information on the laundry operations mentioned above, contact either Bernie Doyle, the general manager of health care for International Linen Services, on (08) 8234 5295 or Andrew Ramsey, the manager of commercial enterprises for Minda Incorporated, on (08) 8422 6398. Photo: Paul Dean of Minda, Heather Turner of International Linen, and Greg Evers of Minda. December 2010 — Vol 19/5 linkmagazine 31 entertainment | radio shows Community radio is a rich source of local talent, willing to share their diverse stories and experiences. There are programs all around the nation that hone in on disability news, views and events. Here’s just a few, as Andrew Blanchard reports. Shout Out Blu FM 89.1FM (Blue Mountains, NSW) The Shout Out show began a year ago in response to the 2009 report, Shut Out: The Experience of People with Disabilities and their Families in Australia. The report gave voice to the isolation and social segregation many people with disabilities and their families felt. With this in mind, the community radio program – on Wednesdays, 10am to 12 noon - was formed with the goal to “shout out” the gifts, talents and contributions of people with disabilities in the community. The hosts are David Cretney, who has years of working in the disability field with the Sylvanvale Foundation, and Kell Taylor, an enthusiastic volunteer and local musician, who is passionate about sharing people’s stories via the show. “We wanted to raise awareness of issues affecting people with disabilities and their families,” Cretney says. By forming a partnership with Blu FM and the Sylvanvale Foundation, the radio program has been able to feature the voices of community members - near and far. Andrew Blanchard has worked in the disability field for about three years. He regularly writes about film, disability, and the community. One of the show’s most inspiring guests was a young man, known as DJ Aaron. He was involved in a creative project at Camden Creative Studios, where he discovered a passion for mixing dance beats. DJ Aaron spoke on the show recently about how his support needs haven’t deterred him from discovering and expressing his talents. If you have a story to share with the program, contact weshoutout@gmail.com. More on the show at blufm.org.au. 32 linkonline.com.au December 2010 — Vol 19/5 The Wednesday Talk Program Phoenix FM 106.7FM (Bendigo and Central Victoria) Each Wednesday, Geoff Morris hosts a talk show on Phoenix FM - from 9am to midday - discussing disability issues and all things happening in the community. Morris is also the president of the station, which proudly features the diverse voices of the local area. Every week is different on Morris’ program, with a parade of guests taking their turn in the hot-seat. Morris’ conversational approach to interviews allows some incredible stories to be told, helping to attract a significant listening audience in the local community - and online. phoenixfm.org The Boldness 3CR 855AM (Melbourne) This show was started with the simple idea that boldness is a reflection of “the front” often required by people with disabilities to get what they want, rather than waiting for someone to give it to them. Taking a leaf out of the book of the popular BBC disability website, Ouch!, hosts Phin and Elvira have a funny and controversial approach to discussing human rights and disability issues. The Boldness is a podcast set up by Grit Media, as part of an initiative to bring disability information and issues into people’s homes. It’s broadcast every third and fifth Wednesday of the month, from 6pm. 3cr.org.au EthnicAbility 6EBA 95.3FM (Perth) Every Monday at 9pm, hosts Sanja Vuksanovic and Zel Ischel explore issues affecting people with a disability from an ethnic background on-air, giving advice and providing information. This page: Above: DJ Aaron spins decks on Blu FM’s Shout Out show. Below: Shout Out pianist Bill McMillian livens up each show with his quirky tunes. Opposite page: Shout Out’s David Cretney and Kell Taylor, with regular guest Valda Lang. The program features a plethora of guests, including service providers, carers, parents of children with a disability, and anyone else keen to share their stories. mrtawa.org.au/1/ethnicability.php. December 2010 — Vol 19/5 linkmagazine 33 entertainment & reviews Farmyard to fashion pack Between the pages Leila Sweeney is not just a contender from Nine’s The Farmer Wants A Wife. She’s also the designer behind the fashion label, Lass. She donates part of her profits to Down Syndrome NSW. Tell us why your label is ecofriendly. I grew up on a farm [in NSW’s Walcha] and I love nature... So, I decided to create garments from recycled fabrics and fibres. I even used my dad’s old work jeans for one dress! How did you come to share a house with a guy with Down syndrome, Tom? I hit it off as friends [with his housemate, Rozzi]… After later moving in with her and Tom, I realised there were so many things I was holding myself back from. There was nothing Tom wouldn’t do and I thought:, ‘This man is such a go-getter at life, I should be too!’ The only thing that ever made Tom upset was seeing other people he loved and cared about upset and I wanted to be more like that – happy with life... The day The Farmer Wants A Wife aired, I received a call from him at 2am, crying: ‘Leila, no, you can’t get married. No, no, no [laughs]!’ Did you end up finding love on The Farmer Wants A Wife? I didn’t find love with Devon, once he had chosen me as his ‘final girl’. I went and stayed with him for a week and, hmm... I saw that he was not the type of guy I was looking for and he felt the same about me! But, once the final filming day at the Hunter [Valley] was over, I went back to Walcha with farmer Charlie and Alli to the local Walcha show... Charlie introduced me to Sean McDougall, a Marcus Ag. College boy in Walcha, doing his work placement. Sean and I hit it off and have been dating ever since. So, I guess you could say, yes, I did find love from the show - just not in the normal fashion! For more, visit leilasweeney.com Sharon Kernot is a new writer-in-residence at the SA Writers’ Centre, helping people with a disability craft their words. Her role is thanks to funding from Arts SA’s Richard Llewellyn Arts and Disability Trust. Kernot’s the author of In the Shadows of the Garden and Washday Pockets (Ginninderra Press). Link spoke to her. What kind of writing help do you provide? As they have done in the past, I read and provide feedback on people’s work. I also provide information about workshops, writing groups, grants, mentoring programs, and publishing, self-publishing and print-on-demand opportunities. In previous years, an anthology has been produced of participants’ work, which meant that many people had their work published for the first time. I hope to do the same, if time permits. Your top tips for aspiring writers? Learn as much as you can from experienced writers. Read your work out loud – you’ll be able to hear all the clunky bits. Read lots of books in the genre you’re interested in – this is a good way to learn how other writers tackle the craft. Write often and don’t wait for inspiration. Turn up at the page or the screen and just write whenever you have the time. And, don’t forget to have fun! How hard is getting a first novel published? I don’t want to put people off but it really is very hard to get a novel accepted for publication – just ask the two novellength manuscripts sitting in my bottom drawer! Many mainstream publishers will only look at manuscripts that have come from a literary agent and, unfortunately, the catch-22 is that it is as hard to get an agent as it is to get a publisher. But, luckily, these days there are other options, such as e-publishing and self-publishing. And, for poets and short story writers, there are numerous mags and journals out there just waiting to publish new writers! For more, email the centre at sawriters@sawc.org.au. 34 linkonline.com.au December 2010 — Vol 19/5 Books Knowing Jesse by Marianne Leone (Simon & Schuster) US actress/writer Marianne Leone wrote this memoir to “celebrate [her son’s] life, to deal with his death, and to share him with others.” Jesse Cooper was an honour roll student, who loved to windsurf and write poetry. He also had severe cerebral palsy and quadriplegia, was unable to speak and wracked by seizures. He died suddenly at 17. Knowing Jesse: A Mother’s Memoir of Grief, Grace and Everyday Bliss looks at the stamp he had on the lives of Leone and her husband, Academy Award-winning actor Chris Cooper. Terminal Decline by Dr Mohamed Khadra (Random House) Bestselling author and Sydney University surgery professor Dr Mohamed Khadra has created a fascinating argument for re-evaluating the Australian health care system in his new book, Terminal Decline: A Surgeon’s Diagnosis of the Australian Health-Care System. The tome looks at the different government-driven health care reforms, which have led to the current system we have in place today. Dr Khadra argues it’s a system stifled by bureaucracy. He’s been a cancer sufferer himself, so has seen it through the eyes of both surgeon and patient. Wheels in Motion by Laura McGee NSW’s Laura McGee is in her mid-twenties and has cerebral palsy. She says: “My physical disability is quite severe, including being non-verbal. I access the computer via two head switches and a Morse code program.” Intrigued to find out more about her? Read her autobiography, which can be bought via bookpal.com.au. Or, check out her Facebook group, Laura McGee’s Wheels in Motion. DVD Carers’ Stories of Hope and Recovery by beyondblue Research suggests more than half of Australia’s carers have at least moderate depression – and a fifth of them have severe depression. Not-for-profit organisation beyondblue has released a free carers’ kit, which includes the DVD, Carers’ Stories of Hope and Recovery. It features the stories of everyday Aussies, who have cared for their partners and children with depression and/or anxiety. To order your free DVD and booklet or to find out more about depression, anxiety and where to get help, visit beyondblue.org.au or call 1300 224 636. December 2010 — Vol 19/5 Goss • Former Big Brother star Rima Hadchiti - a primordial dwarf belly dancer – has given birth to a baby boy, earning her the title, “Australia’s smallest mum”. Hadchiti’s tiny womb would only allow the bub to grow inside her for 29 weeks, according to ninemsn. Still, after a hospital stint, the premature baby is said to be fighting fit. Rima’s husband is of normal height, so their son is not expected to be short-statured. • An armless pianist, who uses his feet to play the keys, has won the first season of TV show China’s Got Talent. Liu Wei, 23, won over the audience with a rendition of James Blunt’s You’re Beautiful at the final. He lost both arms, aged 10, after being electrocuted during a hide-and-seek game. • NSW writer/filmmaker Robert Pickles was one of 20 artists selected by the Australian Network for Art and Technology to attend a workshop investigating “destination cinema” in October - filmmaking that immerses audiences in a full dome, with hemispherical screens and surround sound. • A collective of 88 dancers, musicians and artists, who are deaf, have become an acclaimed stage act, the China Disabled People’s Performing Art Troupe. Since forming in 1987, the troupe has performed in more than 40 countries and raised about AUD $750,000 for disability charities, according to Reuters. Website in focus This site is said to be for “babes, who just happen to have chronic illness”. American “editrix” Jenni Prokopy, pictured, created the site in 2005 to provide an online community for younger women with chronic health issues, who wanted to be their best. Prokopy was diagnosed at the age of 25 with fibromyalgia. The site offers hundreds of resources, plus fans can also sign up for its free newsletter. linkmagazine 35 book review | katrina clark Always Liza To Me By Cecilia Rice (Allen & Unwin, 2009) Reading Cecilia Rice’s book gave me a perspective on living with a child with a disability that shook my reality. As a mother of a 13-year-old daughter with Rett syndrome, I thought I knew it all. What I had never fully considered was the perspective of my other children as siblings to our Georgia. The author grew up as a twin in a family of six children. Cecilia’s parents’ first child survived only five hours. Their second, Elizabeth, was born with physical and intellectual disabilities and was also thought unlikely to survive. Cecilia and her twin sister were born only one year after Elizabeth. Their mother, an ardent Catholic, went on to have three more healthy children after the twins. embarrassing behaviour in a shopping centre or clearing her daughter of smeared excrement in a split second of inattention! With virtually no home help and five younger children to care for, Elizabeth was placed in care outside the family home from age six. I had expected this action to distinguish this family from my own in some way but, instead, I ached for Cecilia and her mother as I read of how traumatic it was to return Elizabeth to her place of care after each family outing. Elizabeth, referred to more fondly by her family as “Liza”, was never The love of a sibling is not the engulfing love of our mothers. Cecilia describes how her parents dished out their love on a “triage basis”, dealing with the demands of Elizabeth, who became more unpredictably violent and dangerous as each new baby was brought home from the hospital. I was personally able to identify all too easily with Cecilia’s mother’s desire to dictate routine and order in a house full of chaos. I recognised and respected her mother’s courage in seeking to hold her head up high while managing inappropriate and 36 linkonline.com.au abandoned. Her parents’ love and concern for her crossed the boundaries of distance and her place as a member of the family was always paramount. What surprised me most when reading Always Liza to Me was how each sibling was so affected by Elizabeth. How then are my own children affected by growing up with their youngest sister having physical and intellectual disabilities? Can I be so naïve as to continue to believe it is just a coincidence that my 18-year-old has chosen to study genetics at university? Do they look at me often as their ‘crazed mother’, focused solely on the intense needs of her child with a disability, campaigning in any ‘spare time’ to change policy and attitudes Australia-wide? I cried as I took comfort from Cecilia’s reflection that, in her own experience and in speaking with other siblings, although they love their sibling deeply, the love of a sibling “is not the engulfing, stretched love of our mothers”. She states: “It is a gentle, watchful love and we are not sorrowful.” ... Katrina Clark is the vice president of the Association for Children with a Disability in NSW (ACD NSW) and is a board director and secretary of Carers NSW. She was responsible for two new publications for ACD NSW, Through The Maze and Helping You and Your Family - information resources for families and therapists caring for a child with a disability. December 2010 — Vol 19/5 advertorial | bedford Bedford Catering for Generation Choice Emerging generations of people with disability or disadvantage are evolving with the times, demanding greater choice and challenging service providers to keep up. Bedford Chief Executive Max Dyason told colleagues at the recent Workability International Conference in Dublin that service providers must adapt to meet the demands of those they support, who are fast expecting better pathways, choice, access and quality from disability services. Mr Dyason said the prevalence of bundled services across all areas of life – from vast shopping centres to combining credit cards with an airline of choice - is changing the mindset of younger generations, including people with disability. “Each generation has distinct values, beliefs and motivations which have been borne from social, family, media and economic influences,” Mr Dyason said. “People with disability are no different. Young people with disability are becoming more aspirational and want more.” What’s more, mental health is on the rise, dual disability is more prevalent and disadvantage is further blurring the lines. As such, the ability to have adult services for distinct groups or highly specialised areas is reducing. Bedford is attempting to address these changes with what Mr Dyason termed its “Diversity Model”. In four years, Bedford has grown from operating four employment sites in Adelaide to 24 across metropolitan and regional South Australia. It now supports in excess of 3,000 South Australians with disability or disadvantage in employment, training, housing, recreation and life skills development – up from 520 a decade ago. Of this growth, one third has come from seven mergers that have occurred since 2006 aimed at facilitating a greater service offering. “Work and life are no longer separate elements, rather part of a whole person,” Mr Dyason said. “Whilst one organisation cannot be all things to all people, informal and formal partnerships, joint ventures or structured agreements between organisations can provide similar results. The days of single service organisations are probably numbered; people want the ability to transition seamlessly through a choice of service offerings.” He said that while the change is occurring gradually and organisations need not panic, it’s essential they consider the expectations of younger generations in order to remain relevant and viable. “Disability services of the future will need to be commercially competent, set competitive production and quality standards, challenge capabilities, become adaptive and responsive to the market and those they support and offer a diverse range of services,” Mr Dyason said. “Bedford is focused on offering a more relevant and contemporary approach that raises the profile of people with disability and helps individuals get what they want from life.” Bedford – proud sponsor of Link Disability Magazine link | food l e f a l a F s l l ba Ingredients 1 ½ cups of chickpeas 1 brown onion (chopped) 2 cloves garlic (crushed) 2 tbsp rye flour Coriander (chopped) Mint (chopped) 2 tsp curry powder 1 tsp cumin 1 tsp turmeric Lime juice Coconut oil Method Grind up the chickpeas in a food processor or juicer (if your juicer allows for this). Combine all the ingredients in a mixing bowl and mix together well. Form the mixture into balls, roughly the size of a golf ball. Put the balls in the fridge for half an hour (this will make them better to fry). Lightly fry the balls in coconut oil until cooked. They should be crisp and golden on the outside. Serve with yoghurt dressing, as below. Dressing Yoghurt Lime juice 1 small clove garlic (crushed) Mint (chopped) Coriander (chopped) Combine all ingredients in a bowl and serve with falafel balls. 38 linkonline.com.au December 2010 — Vol 19/5 A & Q Q&A with Jessica Ainscough Jessica Ainscough is behind The Wellness Warrior blog (thewellnesswarrior. blogspot.com) The mag journalist was diagnosed with a rare, aggressive cancer, Epithelioid Sarcoma, at age 22. She traded in her glamorous lifestyle to become a carrot juice-guzzling, yoga-loving vegan, with a passion for natural healing. (She recently blogged about being treated by Sunshine Coast osteopath and acupuncturist Hans Wild, who is vision impaired!) Her recipe’s left. How has your life changed since cancer? Gosh, almost every aspect of my life has changed! I quit my job at Dolly Magazine and moved from Sydney back to the Sunshine Coast. My diet is completely different. I am now vegan. I don’t eat sugar, salt and fat and I don’t drink alcohol anymore (I’m still having trouble accepting that last one). I now meditate every day, practise yoga and devote all my time to healing and living a healthy, balanced life. My priorities are completely different now. How long will you give yourself for recovery via the alternative cancer treatment, Gerson Therapy? Gerson tells their patients to stick to the therapy for a minimum of two years. My case is a little different though. I’ve been given about 18 months because I am young. My cancer is contained to just my arm and I have been dabbling in the therapy since I was first diagnosed over two years ago. I have been on the strict therapy of 13 juices a day, five coffee enemas a day, castor oil every second day and a strict set vegan diet for about five months. What is a coffee enema? It’s where you put coffee up your bum! Coffee enemas are designed to detoxify your liver. Our liver is our body’s major detoxifying organ and it is often overloaded with toxins. Coffee enemas help to stimulate the liver and increase bile production to excrete the toxins more rapidly. This is so important if you’re embarking on a major detox. If the toxins aren’t flushed out, they will just overburden the liver. Problem with your telephone, mobile phone or internet service? The Telecommunications Industry Ombudsman is a free and independent dispute resolution service for people with complaints about telecommunications or internet services. If you have tried to resolve a complaint with your phone or internet service provider, but are not making any progress then contact the TIO. The TIO may be able to help. December 2010 — Vol 19/5 TIO_YellowA5hor_col.indd 1 Website Freecall Freefax TTY Interpreter service www.tio.com.au 1800 062 058 1800 630 614 1800 675 692 131 450 linkmagazine 39 20/12/06 9:28:29 AM link | the law Finding the right Needing a lawyer can be a daunting prospect, so Simon Flower offers some tips for finding the right person to help you. There are many reasons why you may be looking for a lawyer to act on your behalf. Perhaps you need a will or want to contest a will. Or you were injured at work or in a car crash and now need medical treatment. Maybe you have been charged with a criminal offence that you didn’t do. lawyer Below are some ideas to help you find the right lawyer. Where to start? Find a phone number. • The best place to start is to phone the Law Society in your state or territory. The Society has lists of practitioners that deal with different legal problems. It is likely that they will give you the name and contact details of several lawyers, who specialise in dealing with your type of legal problem. • You could also look at the Yellow Pages (in print or online). While the pages for “lawyers” and “solicitors” are filled with many advertisements, you should be able to find someone to help you. • One tip: some of the best lawyers don’t advertise extensively. They rely on word-of-mouth referrals. Keep a look-out for smaller advertisements that can help you identify the right lawyer to help you with your case. • Ask someone you know who has had a similar legal problem. Perhaps their lawyer was very good at handling their legal problem. Perhaps their lawyer was one to avoid. A friend or loved one can be a great way to find a lawyer that can help you. • Lastly, you can use the internet to search and quickly generate the contact details of numerous lawyers. Just make sure they are in the state or territory relevant to your case. Once you have a phone number, contact your lawyer and make an appointment to see them personally. Choosing your lawyer Choose a lawyer with experience. • 40 linkonline.com.au Some lawyers choose to work in areas of law in which they have only limited experience. Usually, it is best to choose a lawyer, who has dealt with your kind of legal problem in the past. If they have confronted those legal issues before, chances are they will have the knowledge to assist you by providing a prompt service that leads to a good result. December 2010 — Vol 19/5 r Choose a lawyer, who you can rely on. • Legal cases always involve decisions made by judges or magistrates. Once that decision is made, it is often difficult and costly for the outcome to be changed on appeal. It is critical that you have a representative you can rely on to argue your case effectively on your behalf at all stages during your matter. Choose a lawyer, who provides you with a realistic estimate of disbursements. • It is important to understand the distinction between professional costs and disbursements. A fee or “cost” is the charge for your lawyer’s time. A disbursement is a charge for a cost incurred preparing for the case (eg. a doctor’s report or photocopying). Sometimes lawyers will offer a “no win, no fee” arrangement, but may require you to pay disbursements as the case progresses. • Remember that lawyers should provide you with an estimate of both costs and disbursements before you sign an agreement for that lawyer to act on your behalf. Choose a lawyer, who explains difficult legal concepts. • There is no point spending the next 12 to 24 months not knowing what is going on. Make certain you can communicate effectively with your lawyer and that your lawyer takes the time to explain difficult legal concepts to you. • You should also feel free to specify your preferred form of communication. Sometimes you may prefer to receive advice in writing, sometimes you would prefer a telephone conference or interview - the choice is yours to make. Choose a lawyer, who takes the time to see you personally. • It is true that lawyers are very busy during business hours - spending time in court and producing legal documents takes time. However, you should be able to see your lawyer personally when required. Maybe you need to update the lawyer with some fresh instructions, maybe you want an update. It is important to have a lawyer, who responds to your request for a personal, face-to-face meeting. Costs of using a lawyer Choose a lawyer, who provides you with a realistic estimate of costs. • Usually lawyers charge on the basis of an hourly rate. One unit every six minutes, 10 units for every hour. Hourly rates differ greatly from lawyer to lawyer and from state to state. It is important to remember that the lowest estimate of costs is not necessarily the most accurate. Sometimes the lowest estimate may be unrealistic and unlikely to be achieved at the end of the case. December 2010 — Vol 19/5 Ask whether the lawyer will charge you a fixed fee. • What is better than a realistic assessment of costs and disbursements? A fixed fee agreement. If a lawyer is prepared to commit to a fixed fee for their services it usually demonstrates detailed knowledge of that area of law and it certainly demonstrates a commitment to efficiently processing your matter. So the process of finding the right lawyer to deal with your case can, at first, appear quite daunting. However, by conducting the right research and making certain that you and your lawyer communicate effectively, you can ensure that you find the right help to resolve your case quickly. Simon Flower is a barrister and solicitor, who specialises in personal injury matters. For the past decade, he has worked for several leading plaintiff law firms in Adelaide and on behalf of the government at the Crown Solicitor’s Office. He has extensive legal experience and has represented clients in the Supreme Court of South Australia, District Court of South Australia, Administrative Appeals Tribunal, Workers Compensation Tribunal, Australian Industrial Relations Commission, Industrial Court of South Australia, Fair Work Australia and the Magistrates Court of South Australia. linkmagazine 41 news in brief other audio books, which they cannot read in electronic form. Scientists in Japan have developed a robot that can aid people with mild dementia by giving verbal reminders about such things as appointments and taking medicine. The US singer, who is blind, told the UN’s 184-nation World Intellectual Property Organisation that more than 300 million people who “live in the dark” want to “read their way into light”, and the current copyright system denies them an equal opportunity. The robot can recognise its master’s face and voice and speaks according to a specified schedule. It calls its master by saying his or her name and gives reminders, such as: “Today is the day you go to the day service centre, isn’t it?” If the robot hears the doorbell, it is able to alert its master. The creators plan to have it ready for use in five years. Wonder wants better audio books Stevie Wonder has pressed global copyright overseers to help people, who are blind or visually impaired, to access millions of science, history and 42 linkonline.com.au Men with disabilities bashed at bus stop Two men with disabilities were viciously bashed as they waited at a bus stop in Adelaide’s north-eastern suburbs in October, according to a report in The Advertiser. The men were approached by two other men, who attempted to rob them. One of the victims suffered a significant facial injury. The attackers, in their late teens, escaped empty-handed. NEW BOOK Is Your Child Overweight? by Dr Matt Sabin (Wilkinson Publishing) Childhood obesity continues to receive much media attention and this book arose from a need to put together a parents’ guide, which is both comprehensive and easily understandable. Author Dr Matt Sabin is a leading children’s specialist at The Royal Children’s Hospital Melbourne and the Murdoch Childrens Research Institute. December 2010 — Vol 19/5 Some of the news items are thanks to AAP. Robot to help patients with dementia MyGlucoHealth Some of the news items are thanks to AAP. Telstra Diabetes Management Online Service works with the MyGlucoHealth Bluetooth-enabled blood glucose meter to transmit, analyse and record blood sugar levels over a Next G mobile in real time. Using the MyGlucoHealth mobile application running on the mobile phone, diabetics are able to send blood glucose results from the meter via the Next G™ network to a secure online patient record. The online record makes it easy to view, track and analyse glucose readings, and provide access to a nominated carer and doctor to monitor results, intervene if necessary and remind the patients to test themselves regularly. The database automatically sends text updates and alerts to diabetics and their nominated carers for reading and medication reminders, or when glucose counts sit outside benchmark levels. Diabetes is a chronic disease that often lasts a lifetime and has no known cure. While it’s possible to live a normal lifestyle with diabetes, it needs to be carefully managed every day – taking time, practice, confidence and patience. MyGlucoHealth, the world’s first wireless Bluetooth glucometer, means that monitoring of blood glucose levels every day doesn’t have to be tedious and uncomfortable. It is now quick and convenient to manage so that diabetics can get on with everyday life. Telstra provides and supports MyGlucoHealth and the Diabetes Management Online Service across Australia to mobile phone subscribers. To use this service, each patient must have a supported compatible Telstra Next G mobile handset. More information, including compatible mobile phones, stockists and pricing, is published at www.myglucohealth.com.au MyGlucoHealth aims to make it easier for people with diabetes to deal with the disease on a day-to-day basis. Diabetes currently affects an estimated 1.7 million Australians, with around 275 new cases being reported each day. MyGlucoHealth WIRELESS METER MyGlucoHealth Transmits Results Using Wireless Bluetooth® Technology MyGlucoHealth Network Portal www.myglucohealth.com.au FOR THOSE WHO LIKE THE DETAILS, WE’VE GOT THEM HERE: ® Registered trade mark of Telstra Corporation Limited, ABN 33 051 775 556. TCON0987 Some of the breakthrough items are thanks to AAP. VISIT TELSTRA.COM.AU/DISABILITY/CATALOGUE, CALL 1800 068 424 (VOICE), 1800 808 981 (TTY) OR EMAIL DISABILITY@ONLINE.TELSTRA.COM.AU MAKING IT EASIER TO STAY CLOSE TELSTRA’S DISABILITY EQUIPMENT PROGRAM Telstra want to make communication as easy as possible for all of our customers. That’s why if you are elderly or have a disability, we offer a range of solutions to help, at no extra cost to a standard rental phone. So contact us to receive a brochure, or you can access it online at: www.telstra.com.au/disability/catalogue, Call 1800 068 424 (Voice), 1800 808 981 (TTY) or email disability@online.telstra.com.au FOR THOSE WHO LIKE THE DETAILS, WE’VE GOT THEM HERE: ® Registered trade mark of Telstra Corporation Limited, ABN 33 051 775 556. TCON0828_D_L TCON0828_Disability_285x210_D_L.indd 1 10/05/10 12:52 PM STCOM Some of the breakthrough items are thanks to AAP. breakthroughs UK: Herbal remedies given thumbs up Two herbal remedies used for centuries to alleviate anxiety have won the backing of scientists. Researchers found “strong evidence” that passionflower extract and kava both combat anxiety disorders. Pooled results from an analysis of 24 studies, involving more than 2000 participants, also indicated that combinations of the amino acids, L-lysine and L-arginine, may be useful anxiety remedies. But, the herbal medicine St John’s Wort, which is commonly taken to relieve depression, and magnesium supplements, were not found to be effective. The findings were published in the Nutrition Journal. - John von Radowitz US: Autism linked to jaundice in babies Infants born with jaundice are at much greater risk of developing autism, a study in October showed. The study, published in the US journal Pediatrics, found fullterm infants born in Denmark between 1994 and 2004, who had jaundice, were 67 per cent more likely to develop autism. Jaundice is seen in 60 per cent of term infants and usually resolves within the first week of life, but prolonged exposure to high bilirubin levels is neurotoxic and can cause lifelong developmental problems, the study says. Researchers also found the risk of autism was higher if the mother had had previous children, or, somewhat oddly, if the child was born between October and March. Brain “rust” a cause of Alzheimer’s Aussie scientists have made a significant advance in the understanding of Alzheimer’s disease, a condition they describe as an accumulation of brain “rust”. An imbalance in the metals needed for healthy brain function has been found at the root of the degenerative disease, which afflicts 10 per cent of people aged over 60. University of Melbourne pathology professor Ashley Bush and his research colleagues have traced the imbalance to the brain’s improper and related processing of zinc and iron. “Similar to actual rust, it involves an abnormal combustion of oxygen with iron,” Professor Bush says. While the research does not reveal the complete picture of the cause of Alzheimer’s disease, Bush says it had uncovered a vital “corner piece of the jigsaw puzzle”. – Danny Rose A filmmaker’s wired vision When Canadian filmmaker Rob Spence was told he would lose his badly damaged eye, he remembered the Six Million Dollar Man TV series and chased a strange and beautiful dream. He would have a prosthetic eye built to replace it, he decided, but the new eye would be a wireless camera and be used to make films. “I don’t know anyone, who has lost an eye and hasn’t considered getting a camera put in,” he says. “It’s kind of a natural progression.” Not so natural, it would appear, since the 38-year-old has become the first person in the world to actually follow through with the outlandish idea. Arriving in Melbourne to premiere his footage shot from the eye-camera for the Other Film Festival in August, Spence said the quality is about as good as a mobile phone. The difference is it’s all shot from his direct point-of-view, moves in the same direction he’s looking and even shows when he’s blinking. Known online as ‘Eyeborg’, Spence damaged his eye as a child, while trying to shoot a pile of manure with a gun. He became legally blind. He was able to keep his eye until five years ago. Spence called Melbourne scientists, working on the bionic eye project, and they put him in touch with a team of engineers at other centres. His device was recognised as Time Magazine’s 50 best inventions of 2009. - Steve Lillebuen Telstra is proud to sponsor Link Breakthroughs. STCOMCB0276 12:52 PM STCOMCB0276_Strip_Concept_3.indd 1 14/9/07 9:53:27 AM link | comedy Crack up! In October, I saw and took part in a remarkable event 14 people, all of whom had suffered mental illness in the past and still bore the scars, performing stand-up comedy routines to an audience of about 100 people. This happened at the Mercury Cinema in Adelaide. And, many of us had never performed before. Talking to some of the performers afterwards, many confessed to nerves, but all of us were glad that we did the course and the performance. All were well-received by, perhaps, a forgiving audience. Even more significant: this was the first attempt at using comedy in mental health in Australia. Run in the lead-up to and during Mental Health Week by the Mental Health Coalition of South Australia, it followed a similar program in Canada, conducted by David Granirer, a counsellor and stand-up comedian. Granirer said that his course and the performance were part therapy, part fun. In South Australia, the course took a different turn to its Canadian counterpart. Here, the classes featured improvisational Theatresports games and comedy writing techniques, taught by professional stand-up comedians. Writing comedy is not easy, so it may be surprising that 14 people were able to write material suitable for the performance. Many of us spoke about our experiences with mental illness, taking mock revenge against the professionals, who made our lives a misery. Others told stories based on their lives. The Adelaide courses were 12 weeks long. In Canada, they took 12 months to train the participants. 46 linkonline.com.au Wayne Eckert tries his hand at stand-up comedy during Mental Health Week. So, is it a new therapy, as claimed by David Granirer? It has not been tried out on people, who currently suffer a mental illness. About 30 to 40 people participated in the classes in Adelaide, but only 14 made the performance. It may not be a universal panacea, but being part of the classes was clearly therapeutic. It may be that mental health, as a type of disability, has finally caught up with what other performers with disabilities already know - that the disability arts can be an empowering experience for both performers with disabilities and their audiences. South Australia boasts many disability arts organisations, such as Restless Dance, Tutti Ensemble and No Strings Attached. This is not to cavil at this project’s marvellous success, which may be due to its innovative and unlikely focus, which pairs comedy with mental health. If we can show that we can laugh at ourselves, we may overcome the stigma. Plans are underway for the program to be repeated next year and the people, who performed in the show, are organising a follow-up during the Adelaide Fringe in February 2011. The Mental Health Coalition‘s aim is to reduce the stigma and discrimination associated with mental illness. It is taboo to laugh at people with disabilities, but we are still not accepted by the general community. If we can show that we can laugh at ourselves and our experiences, we may overcome the stigma and gain acceptance. Our thanks and congratulations go to tireless Mental Health Week co-ordinator Tracey Davis and her team and to the trainers, who included Jo Coventry, Mark Trenwith, Hew Parham, Seb Carboncini and Gus Lee. And, I give a personal note of thanks to everyone, who took part in the program, for laughing at my jokes! December 2010 — Vol 19/5 what’s on Royal Adelaide Hospital Disability Awareness Week 29 November 2010 Royal Adelaide Hospital, North Terrace, SA 08 8222 2191 or rah.squ@health.sa.gov.au Connect! 7th Annual Disability Arts Party 1 December 2010 11am-2pm Dunstone Grove, Stepney SA 08 8363 5970 or contact.us@nostringsattached.org.au Australian Disability Enterprise Open Day 1 December 2010 22 Albatross Street, Winnellie, NT 08 8947 0681 or admin@hpa.net.au Get DIS Party Started 2 December 2010 Revesby Workers Club NSW 1800 983 044 or companioncard@nds.org.au International Day of People with Disability 3 December of each year www.idpwd.com.au ParaQuad NSW Charity Golf Day 3 December 2010 Oatlands Golf Club, NSW 02 8741 5600 or www.paraquad.org.au House With No Steps - Celebrating International Day of People with Disability 3 December 2010 Sunshine Coast, Qld 07 5471 0072 or nhill@hwns.com.au Celebration of Ability 2010 Dance Party 3 December 2010 Wagga Wagga Dan 02 6921 9225 or dan_inc@bigpond.com Celebration of Ability 3 December 2010 540 Regency Road, Enfield, SA 08 8342 9168 or custserv@portenf.sa.gov.au Together Dreams Can Come True 3 December 2010 Great Eastern Highway, Burswood Entertainment Complex, Burswood, WA 08 9245 6575 or events@partnerandproposer.com.au Breaking Barriers Together 3 December 2010 High Street, Jandowae, QLD 07 4668 5688 or jandowaeags@gmail.com December 2010 — Vol 19/5 18th Annual Thirroul ‘Hands on Day’ - The Disabled Surfers Association of Australia Inc 4 December 2010 Terrigal Beach, NSW Ian 0421 601 222 or Michael 0418 420 620 ‘Having a Say’ Conference 2011 10 Decemeber 2010 Deakin University, Geelong Christine 03 9416 4003 or christine@valid.org.au The Cooking Show Recipe #1 - The things we like... 11 December 2010 Blackheath Area Neighbourhood Centre, NSW Julie Humphreys 0448 358 353 www.aarts.net.au/main-events/ ‘Come and Try’ - Bike/Trike Clinic for Novita 13 December 2010 Regency Park Centre, South Australia margaret.parkin@novita.org.au www.novita.org.au Carols by Candlelight 19 December 2010 Elder Park, Adelaide www.carols-sa.com.au See What I’m Saying Short Film Contest Ends 5 January 2011 www.seewhatimsayingmovie.com www.aarts.net.au/main-events/ NDS NSW Annual State Conference 2011 14-15 February 2011 Swissotel, Sydney www.nds.org.au/events Rural and Remote Australia 11th National Rural Health Conference Perth, WA 13-16 March 2011 www.ruralhealth.org.au Oska Bright 2011 call for entries 5th International Festival of Short Films made by people with learning disabilities. Entries close 30 April 2011 oskabright@carousel.org.uk www.aarts.net.au/main-events/ The 2nd Annual National Disability Summit 2011 4-5 May 2010 Melbourne Cricket Ground, VIC www.iir.com.au/conferences/healthcare/national-disabilitysummit/registration linkmagazine 47 Subscribe to Link and keep up to the minute on disability issues! 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