Hope for Tomorrow Personal Touch
Transcription
Hope for Tomorrow Personal Touch
For those supporting the mission of the Anne Carlsen Center New logo design inspired by Dr. Anne’s life and work page 4 Hope for Tomorrow Teen with autism gains new independence page 12 Personal Touch Center addressing more needs than ever with outreach program page 6 Summer 2008 www.annecenter.org Amber Roerick, a Prom Queen candidate, and Joseph Fuchs invite others to join them on the dance floor. Gary Olson, a Prom King candidate, danced the night away with Megan Roaldson. Prom Queen Nikki Blackler and her date, Erik Dirk, impressed everyone with their dance moves! Matthew Simpson and his date, Emily Bollinger, wasted no time hitting the dance floor, as they joined others in “Twistin’ the Night Away.” Twenty couples experienced a night to remember in late April as the Anne Carlsen Center hosted “Twistin’ the Night Away.” The fun, 1950s-themed prom featured a formal dinner, grand march, coronation and dance. ACC students and their dates enjoyed every minute of the special evening, as they lit up the dance floor and made memories to last a lifetime. Jimmy Brown and his date, Kaisa Lundgren, pose for pictures in front of the 1950s inspired backdrop. Katy Reis and Tyler DeMaine had a blast twistin’ to the rock and roll at Prom 2008! Ty Glass and Janelle Berg smile for the cameras, as they take their places center stage during the Grand March. MESSAGE FROM THE CEO Touching More Lives Center unveils fresh look, expanded services, and vision for the future Milestones are celebrated at the Center every single day, as our amazing students learn and grow. A child with autism, for years living in silence, speaks his first word. A youth in a wheelchair takes her first swim in a pool. A teenager uses a computer for the first time, with the help of assistive technology. Dr. Anne Carlsen understood the significance of all those accomplishments. Born without fully developed arms or legs, she was determined to lead a self-sufficient, productive life. As a teacher, administrator and mentor at the Center, she touched countless lives with her great courage, unwavering determination, and keen intellect. Because Dr. Anne’s impact was so great, the Center was named in her honor. This summer, Anne Carlsen Center for Children became the Anne Carlsen Center. This change reflects the many lives we touch on a daily basis, as we carry on Dr. Anne’s legacy of hope. In addition to caring for children, we offer expertise, guidance and compassion to young adults, families, caregivers and professionals. While we continue our tradition of excellence on our campus in Jamestown, we are expanding our outreach services to other parts of the state (see page 6). In June, we opened an outreach office in the city of Grand Forks. In that community, families of high-needs children don’t have to travel far to access our resources, expertise and caring staff. We can help keep families together by providing support and training in their homes and communities. By answering the tough questions and providing practical solutions, we give them the tools they need to build healthy, meaningful lives. We also serve young adults with developmental disabilities, giving each the opportunity to grow, learn, and become vital participants in community life. In the coming years, we will open outreach offices in the state’s other larger communities. Dr. Anne would be proud to see how we’ve grown, as we work to help more individuals with disabilities achieve the independence she so greatly cherished. She once said, “Empowerment is going from dependence to independence.” In this issue of The Ambassador (see page 7), you’ll see how we’ve empowered a young family, as the parents work to meet the needs of their 18-month-old twins. While we provide hope for the future, we also offer a visual reminder of our foundation of love and determination. Our new logo—a beautiful, inspiring design—helps us share Dr. Anne’s courageous life story (see page 4). This rich heritage defines us, as we work to focus on the abilities of each person in our care. We are confident that this logo will serve us well for years to come, as we strive to support and encourage individuals on their path to independence. Thank you for your role in shaping the lives of these remarkable individuals. Your heartfelt generosity helps us nurture abilities, change lives, and fulfill Dr. Anne’s vision for the future. Sincerely, Dan Howell Chief Executive Officer 2 THE AMBASSADOR G R A D U AT I O N 2008 our Anne Carlen Center (ACC) students marked the beginning of a new chapter of their lives in May. Dale Bachman, Jr., Zachary Hofmann, Gary Olson and Mark Poppenhagen were honored in a graduation ceremony in the Center auditorium, surrounded by proud family members, friends and ACC staff. “We will all meet new friends, caregivers and find new jobs,” said Dr. Sue Offutt, an ACC Board member and UND assistant professor. “But when you four go out, I know you will teach those you meet the love and compassion that you learned here.” Graduate Mark Poppenhagen and teacher Patrick Kellam tell stories and laugh at the reception following the graduation ceremony. “Don’t get your fingers near DJ’s mouth when he is eating those,” said Kenna. “You may lose a finger.” Mark, who first came to the ACC in 1998, is moving to Harvey following graduation. Patrick Kellam, who was also new to the staff when Mark first arrived, joined the youth by the pool on a hot July day. Graduate Gary Olson, joined on stage by ACC Education Director Michele Well, accepts his diploma from Dr. Sue Offutt. Gary’s diploma means he is returning to Bismarck where he can live near his mother, LaDonna. “We will miss you very much,” she added. “I’ve never met anyone who can spin in a circle while pushing a cart and not miss a beat,” said Kellam. “Staff tried it and they either fell or crashed the cart.” Graduate Dale Bachman, Jr., (DJ) is congratulated by ACC staff Kristy Bruner and Tom Kenna during the graduation ceremony. For DJ, his journey following graduation takes him to Valley City. Remembered for his practical jokes by Tom Kenna, a teacher at the Center, many of DJ’s high jinks came in the pool. “DJ was always a fan of activities like swimming,” said Kenna. “But he didn’t like to swim. Instead he liked to sit at the bottom of the pool, laughing, as (physical education instructor) Troy Duven went running across the water after him.” “Since Mark was having so much fun we decided to have supper by the pool,” Kellam said. “But Mark decided it was more fun to have supper in the pool. From then on, I was a pretty big fan of Mark.” Kellam would later become a teacher at the Center, having Mark in his classroom. Michele Well, the ACC education director, worked with Gary throughout his 13 years in Jamestown. “Students always looked up to you, literally and figuratively,” said Well. “One because you are 6'4", but they knew you caught on with tasks right away. You always kept us on our toes, and you taught students how to stay on task.” He was also remembered for his ravenous appetite, especially for Little Smokies. Zachary’s graduation marks a new chapter for the Center. Zachary is the first student to remain on the ACC campus following his graduation. “You have a number of roles,” said Home Life Services Director Gloria Jones to Zachary. “You are a son, an older brother, a grandson, nephew, cousin, friend, member of a community, and now you are a graduate.” Jones also recognized Zachary for being a good role model for his peers. “We could always count on you to be a leader,” she said. Graduate Zach Hofmann and his mom, Patty, smile for pictures following the graduation ceremony. Zach is the first student to stay with the Center following his graduation. ACC thanks all of the graduates for providing us with so many wonderful memories. You touched our lives in a special way, and we are very proud of all of your accomplishments. THE AMBASSADOR 3 ACC’s new logo celebrates Anne Carlsen’s legacy he life story of Dr. Anne Carlsen is inspiring to people of all ages and all abilities. Born in 1915 in Grantsburg, Wis., without forearms or lower legs, she triumphed over her physical disabilities, doing everything that her peers did. She learned to swim and play baseball. She walked or ran with the help of her kiddie car. Passionate about education, she graduated from high school at the age of 16, went on to college, and later earned her masters and doctorate degrees. During her 60-year career at the Anne Carlsen Center (ACC), she embraced the roles of teacher, principal, superintendent and mentor. Along the way, she became a world-renowned disabilities advocate, receiving countless awards and honors. In 1958 Anne received the President’s Trophy as the Handicapped American of the Year from then vice-president Richard Nixon. She received North Dakota’s highest honor, the Theodore Roosevelt Roughrider Award, in 1966. Her greatest joy, though, came from helping students become as successful and independent as they could be. Dr. Anne greatly valued independence and, using her arm stubs, managed a wide variety of tasks including eating, dressing herself, and driving a car. Determined to Write When she was six years old, Anne’s family gave her writing lessons, starting with her name. Using a tablet and a pencil, she traced her name over and over, until she was eventually able to write her name on her own. That very day, she went to the Grantsburg bank and proudly wrote “Anne Helen Carlsen” on the back of a check for five dollars—a gift for her sixth birthday. Anne worked hard at creating a beautiful and extremely legible signature. “It may take a little longer and it may be more difficult, but you can do almost anything if you work at it,” she said, urging others with disabilities to never give up. Our new logo design is inspired by Anne’s marvelous signature. Her elegant penmanship reminds us of her unwavering determination, courage, and refusal to let her physical impairments limit her in any way. She learned how to write without hands, and throughout her career at the Anne Carlsen Center, urged others to not let disabilities prevent them from living life to its fullest. “In our new logo, we really wanted to capture our proud heritage,” says CEO Dan Howell. “Dr. Anne’s beautiful signature offers a visual and constant reminder of her legacy. This rich history provides the building blocks for a promising future.” Anne passed away Dec. 22, 2002 at the age of 87, but her spirit lives on. ACC staff members have continued her labor of love by helping children and young adults achieve the greatest independence possible. We respect, encourage and empower individuals as they build full, meaningful lives. The Wind Beneath Our Wings Anne Carlsen is truly the wind beneath the wings of the Center. In our new logo, we combined her beautiful signature with the wings of a butterfly. The butterfly represents hope, transformations and new beginnings. It also symbolizes the independence that Dr. Anne so greatly valued and helped many achieve. The image of the butterfly has been associated with the Center since 2003. Our new, softer butterfly design creates a powerful and engaging visual experience. The viewer is actively involved in the picture and understanding what it is and what it means to them individually. It is first and foremost a butterfly, with the viewer “discovering” the silhouette. The silhouette could be that of a child or an adult. We touch so many lives, and our new logo illustrates the reach and the impact of our services. Nurturing abilities. Changing lives. Our new tagline, the phrase that defines us, is “Nurturing abilities. Changing lives.” Building on our previous tagline, “Changing Lives Forever,” it offers a defined purpose. Rather than dwelling on the disabilities, ACC looks beyond any limitations and focuses on the abilities of each person. We nurture those abilities through compassion and steady progress. “It is the kind of positive thinking and acting that Dr. Anne Carlsen demonstrated throughout her entire life,” says Howell. By nurturing abilities, we change many lives. The Anne Carlsen Center has grown into a comprehensive resource center, providing information, support, and training, as well as compassion and hope. As we work to improve the lives of children and young adults with disabilities, we have a lasting impact on parents, siblings, extended family, caregivers and professionals. A Promising Future Anne Carlsen touched countless lives with her courage, compassion, determination and faith. Her vision guides our efforts at the Center today. In an interview she once said, “I lead an ordinary life doing ordinary things.” We know how hard she worked to do those “ordinary” things, like writing and walking. But in the process, Dr. Anne became extraordinary. Determined to lead a self-sufficient and productive life, she proved where there’s a will, there’s a way. She inspired many with disabilities to use their talents and abilities to achieve the greatest independence possible. “Anne Carlsen was a tiny woman with a big presence…she really embodied that whole spirit of independence,” says Pastor JoAnne Moeller, the chaplain at ACC. “She helped others to be as independent as possible and to enjoy life as much as anyone else. She urged others to explore and to be aware of their gifts.” Dr. Anne worked tirelessly to increase awareness of the needs and abilities of those with physical and developmental impairments. She built the Center into a nationally-recognized provider for people with disabilities. “Independence is the greatest reward a person can have,” she said. “This has been, is, and will always be the mission of this great place.” Dr. Anne believed that anything is possible if you try hard enough. This courage and determination still guide us, as we work to carry on her inspiring legacy of hope. ACC brings expertise, compassion to communities across ND nne Carlsen Center (ACC) has a rich legacy of nurturing children and young adults with a wide array of disabilities. Since 1941 the Center has demonstrated the expertise and the passion for helping others enjoy the best possible quality of life. While meeting diverse and important needs on our Jamestown campus, we have become increasingly aware of significant needs outside of the ACC campus. Research conducted by North Dakota Center for Persons with Disabilities (NDCPD) concluded that there is a shortage of services, personnel and training in the state for those dealing with medical and behavioral challenges. We believe that ACC is uniquely qualified to fill this gap and drive the quality of disability services in North Dakota higher. Providing Easy Access The Anne Carlsen Center opened an outreach office in Grand Forks in June and has already begun serving families in that community. Over the next three years, the Center will establish a presence in other major communities in the state. “We want our resources and professionals to be within easy reach for families of individuals with high degrees of autism, severe behavioral challenges, or medical fragility,” says CEO Dan Howell. “Families will travel shorter distances to receive the help they need.” These outreach locations will not offer residential services. They will, however, offer a variety of supports and services that will make it possible for more children to continue living in their natural family environment. Keeping Families Together “Many families who want to keep their child in their home have a difficult time doing so,” says Rhonda Epplesheimer, ACC’s Family Resource Director. “They are asking for support and training. 6 THE AMBASSADOR We can help keep these families together by bringing our expertise to individuals where they are.” By offering support in the areas of daily living, self-care and behavior management, ACC makes it easier to build a home life of dignity and well-being. In both urban and rural settings, the Center is meeting multiple needs of families and providing practical help. Providing Meaningful Activities “As children grow, their needs will change, and we are equipped to meet those needs,” explains Howell. “We believe young adults should have more opportunities to live a full life as an integral member within a community.” The Anne Carlsen Center provides meaningful and individualized activities, helping those with disabilities develop the skills and connections needed to become vital participants in their communities. We offer training and support in areas such as: money management, shopping, appointments, transportation, spirituality, recreation, job options and volunteer opportunities. Exceptional Medical Care There are not a lot of residential options for some of our students once they graduate from the Center. In the past, many of those with complex medical needs have moved from ACC to a nursing home. As part of our expansion, the Anne Carlsen Center is now allowing students who are considered medically fragile to continue living on our Jamestown campus after they graduate. This year, one of our 2008 graduates is remaining on campus and will continue to benefit from our exceptional medical care and comfortable, home-like atmosphere. State-of-the-Art Training ACC has become aware of a pressing need for more training in Autism Spectrum Disorders, severe behavioral challenges, and the needs of the medically fragile. The Center is committed to providing a variety of in-depth training opportunities for families and professionals. Hope at Last ACC’s new outreach programs help family through troubled times We are hosting a series of major conferences focusing on Autism Spectrum Disorders. Renowned autism experts from across the country have been invited by ACC to share the latest research and treatment strategies. Our Jamestown Campus While the Anne Carlsen Center expands, we recognize the importance of our campus in Jamestown. Over the years, many children with disabilities have lived life to its fullest here, benefitting from our exceptional residential, therapeutic and educational services. For some students, this will continue to be the best fit for their needs and abilities. “We look forward to seeing many more children blossom in the safe, secure and loving atmosphere the campus provides,” says Marcia Gums, ACC’s Chief Operating Officer. The Journey Ahead This expansion of ACC services will provide families across North Dakota with more choices. They will have additional resources available to them, as they search for help and hope. “We recognize that each person has different needs and dreams for the future,” says Howell. “The Anne Carlsen Center has the depth of expertise and compassion to be a partner in life for so many. It is an honor to continue Dr. Anne Carlsen’s work, as we remain dedicated to nurturing abilities and changing lives.” When it comes to play time, Jaxon and Jaleigh both go for books and puzzles. Here Jennifer helps Jaleigh with reading, while Dusty and Jaxon talk about how to put a puzzle together. axon and Jaleigh Schneider could be any other set of twins. They laugh, they cry, they scramble for toys, and capture your heart with their soft blue eyes. But they are also miracles in their own way. Seeing them smile, move around their house, climb on their parents—all those everyday activities are hope fulfilled. You see, 18 months ago, Jaxon and Jaleigh began their lives nine and a half weeks earlier than expected. With the early start on life, came a series of medical emergencies. For a family excited for pregnancy and birth, there was also a fear that one or both of the children would not live past their original due date. “You find out you are pregnant and you are so excited,” recalled Jennifer. “You bring home a perfect baby and life goes on.” No one could have expected what the next year would bring. Early Troubles Confined to incubators and fed oxygen through respirators from birth, both babies suffered brain bleeds when they were one week old. Premature babies are at an increased risk for brain bleeds, and the earlier a baby is born can often determine the severity of that bleed. Normally, premature babies have a grade I or II. Jaxon and Jaleigh suffered Grade III bleeds, identified by ventricles becoming enlarged by blood and often leaving a child with long-term brain injuries. The babies were born at a hospital in Fargo, forcing the Jamestown couple to relocate temporarily with family in order to stay close to their children. Dusty, who works in Valley City, made the 60-mile drive each morning and evening exhausted, but knowing the family depended on his income. Often fighting the temptation of sleep while on Interstate, Dusty felt guilty that he was abandoning his wife with the family’s problems. Both parents were finding hope to be, at times, a fleeting emotion. But the family found strength in each other. “I’m not going to say it’s been easy on anybody,” said Jennifer. “It is exhausting. But you really learn to rely on each other, too.” The medical emergencies continued to pile up. In September, Jaleigh needed surgery when the skull plates in her head had closed too soon. In October, Jaxon was (continued) THE AMBASSADOR 7 (continued from page 7) suffering from what appeared to be a respiratory infection. Unexpected Role Reversal But after an ear, nose and throat doctor examined him, Jaxon was rushed into surgery. Not even a year old, his life was threatened again. Jaxon’s airway was being restricted as scar tissue had formed around his trachea. The after-effect from the ventilator that had previously kept him alive was now threatening his life. “The doctor told us on the outside Jaxon looks healthy,” said Jennifer. “Until you listen to his lungs. He is a fragile little boy.” It was a dramatic role reversal for Jaxon and Jaleigh. Sister had been the fragile child, while brother was the stronger one, the tough one. Suddenly Jaxon wasn’t the hearty one. After receiving the tracheotomy, Jaxon had to be admitted back into the hospital in November due to a respiratory infection. “I thought we were past all the problems and ready to be a family,” said Jennifer, adding that the respiratory issues explained some of the crying fits Jaxon had early on. “Last summer he was a cranky little boy. When we were thinking back, it made sense because he was having trouble breathing on his own and was compensating.” Jaleigh was accepted into the Head Start program, but with Jaxon’s trach, he could not follow his sister. It was then the family was put in contact with the Anne Carlsen Center for services for Jaxon. The red hair and the baby blues are pretty difficult to resist. That is what the Center staff discovered when providing 18-month-old Jaxon with his care. Initially, the family was reluctant to involve Jaxon with ACC, thinking he was not the type of child they helped. “I said that more than once,” said Jennifer. “He doesn’t have to go to the Anne Carlsen Center. He’s not that bad.” Jaxon plays with bubbles as part his speech therapy learning curriculum. Ann Albrecht, a therapist with the ACC, travels to see Jaxon and his sister, Jaleigh, each week. “Between the four of us, someone is always sick,” said Dusty with a laugh. “I’m on light duty for six months.” 8 THE AMBASSADOR Most of Jaxon’s care revolved around prevention and not treatment, as he was sporting the trach in the middle of winter. Undaunted by the new surroundings, Jaxon’s outgoing personality and captivating smile turned him into a bit of celebrity at the Center. “The staff just loved him being there,” said Jennifer. “He was in a stroller and would wave at everyone when we went down the hall. They loved it.” With Jaxon at the Center and Jaleigh with Head Start, Jennifer was able to return to her job and finish the school year. In April the family received the in-home nursing care they had been waiting for. Hope For the Future Jaxon, now without the trach, is spending all of his days at home, but that wasn’t the end of the relationship between the Center and the family. A therapist visits the Schneider’s house twice a week to help Jaxon and Jaleigh with speech and feeding development. All of the health problems haven’t gone away, but they aren’t as life threatening as they had been. Jaleigh has had ear infections on and off since the start of the year, but after what the family has endured, everyone is ready for a dose of what every kid goes through. Time Running Out Christmas marked one year since Jennifer took a leave from her teaching job. After 12 months, the family was starting to run out of time. Jennifer was in danger of losing her job, and the in-home nursing care they were counting on had been approved, but there was a gap between the hiring and training phases. Worse yet, Dusty had broken bones in both feet that were making it difficult to get through the workday and care for children who love to play in and outside of the house. “Everyone was so nice. They’d take pictures of what they were doing in the class and send them home. You could just see he was so happy,” said Jennifer. “I learned a lot.” “That is normal stuff,” said Jennifer. “We can handle that.” Enter the Center While Jaxon received in-home nursing care and some therapy, the family’s proximity to the Jamestown campus made it easier to bring him into the Center throughout the week. This also gave Jaxon the chance to learn and play with the Center’s youngest residents. “I think back to 12 or 13 months ago,” said Dusty. “I never thought we’d be at this point.” Jaxon has started walking and was up to nine steps by the end of May. Jaleigh was right behind, figuring out the standing part, but not quite ready for those first unassisted steps. “We didn’t get the perfect dream, the perfect situation,” Jennifer said. “But we wouldn’t trade it for anything.” Given in Memory of … Each and every donation we receive at the Anne Carlsen Center helps us continue our mission of supporting individuals and their families, as they pursue growth and fulfillment. In this edition and all future editions of The Ambassador, we will share those instances in which gifts have been given in memory of someone special. As these donors remember and celebrate the lives of those they have loved, they pour their love into the lives of all the students at ACC. Memorials gifted between Jan. 1, 2008 – March 31,’08 Given By In Memory Of Given By In Memory Of Given By In Memory Of Mrs. Irene Reidman Mrs. Bernice Aanderud Ms. Mavis Benson Ms. Mavis Benson Bernard and Marilyn Anderson David and Karen Kenner Orville and Lilly Bratvold Mrs. Mary Ellen Kulla Roger and Connie Anderson Ms. Judy L. Kulla Chad and Ninnette Anderson Ms. Bernice E. Anderson Mrs. Arlene Olson Mrs. Lillian Stromme Ms. Anne M. Wheeler Waldo and Marion Platte Oliver and Joyce Anderson Raymond and Marilyn Myers Marvin and Helen Johnson Karter and Vernis Krogh Karter and Vernis Krogh Bernyl and Nancy Nelson Alvin and Marie Storbakken Gordon and Loretta Domier C. William and Patricia Dennert Lowell and Amy Anderson Mrs. Marilyn Garrelts Senster and Janet Vangsness Mrs. Lucille E. Blomquist Rod and Karen Backman Gene and Kathleen Wiese Mrs. Muriel Hoplin Ms. Marcia Hoplin Ms. Harriet E. Olson Mrs. Helen McCormack Gerald and Elenore Borstad Gerald and Elenore Borstad Gerald and Elenore Borstad Gerald and Elenore Borstad Gerald and Elenore Borstad Gerald and Elenore Borstad Mrs. Edna L. Bott Mr. Robert W. Martinson Morris and Edna Mae Erickson Allan and Ardis Kuhlman Myron and Gertrude Pryor Ms. Mavis Benson Gordon and Ida Mae Smith Margaret and Julie Verplancke Mrs. Adeline M. Schaubert Lynn and Jeanette Kieper St. Luke’s Regional Medical Center Robert and Sharon Bolinder Hal and Mary Kay Bunderson Mrs. Janice M. Carlsen Dr. and Mrs. Donald B. Carlsen Neil and Diane Evans Irene E. Aadland Randell Aanderud Vernon Abel Florence Abel Mary A. Abrahamson Mary A. Abrahamson Dr. Theodore A. Amundson Greg S. Andersen Brooks H. Anderson Elmer L. Anderson George H. F. Anderson George H. F. Anderson George H. F. Anderson George H. F. Anderson George H. F. Anderson Anne Anderson Helen Askelson Charles B. Askew Robert H. Asplund Grace L. Barry Grace L. Barry Carol Bauer Leo J. C. Benda Grace N. Berglie Steven C. Berndt Lena M. Bertsch Randy Billings Nicole A. Blilie Maurice R. Blomquist Saige Blotske Arlan Boehm Romona I. Bohlin Romona I. Bohlin Romona I. Bohlin Sanford Borlaug Bill M. Borstad Bill M. Borstad Bill M. Borstad Charles W. Borstad Charles W. Borstad Charles W. Borstad Edna L. Bott James L. Brooks Gene D. Bryans Dorothy J. Bryn Gene Bucklin Louis Bukowski Jean D. Butterfield Frances Buxbaum Mabel Carignan Carla Albert Carlsen Armstead and Mary Evans Robert and Chris Horine Ms. Marianne N. Huss Ms. Judy L. Kulla Steve and Katherine Laney Joe and Becky Parkinson Ward and Cathy Parkinson Dr. Theodore and Linda Renna Rev. and Mrs. Conrad P. Sauer Richard and Rose Ann Splitter Mrs. Loretta M. Brown Mrs. Olivia A. Johnson Louis and Gladys Larson Mrs. Linette Korman Mr. and Mrs. Leslie P. Sorenson Eldon and Clara Jo Conant Robb and Deone Kulla Gerald and Aileen Behm Arthur and Lillian Moscatelli Mrs. Agnes R. Stewart Tex and Lynn Kraig C. William and Patricia Dennert Mr. Robert W. Martinson Ms. Shirley Jensvold Mrs. Dorothy B. Crandall Martell and Luella Stenberg Mr. Robert W. Martinson Ray and Peggy Wicklander Margaret and Julie Verplancke Al and Judy Dosch Clarence and Fern Rau Ms. Judy L. Kulla Mrs. Elsie Weber Mr. Bert J. Dunn Mrs. Evanell Taylor George and Debbie Greshik Ms. Adele M. Harrington Robert and Joan Kime Clarence and Irene Carlson Cleo and Claire Berdahl Mr. Kenneth D. Fandrey Dean and Sylvia Fatland Mrs. Helen McCormack Clarence and Irene Carlson Mr. Sam A. Kleinsasser Mrs. Lorraine Kirschenmann Mrs. Lorraine J. Boehler Wayne and Nadine Cole Ms. Shirley Jensvold Mrs. Phyllis A. Berntson Charles and Eileen Erickson Gaye Ketelsen Shirley Lindgren Donald and Elizabeth Shaw Pizza Ranch of Harvey Ms. Mary Beth Riesen Lowell and Amy Anderson Byron and Ardyce Ellingson Albert and Betty Carlsen Albert Carlsen Albert Carlsen Albert Carlsen Albert Carlsen Albert Carlsen Albert Carlsen Albert and Betty Carlsen Albert Carlsen Albert Carlsen Dr. Anne Carlsen Dr. Anne Carlsen Dora Carlsen Paul Carr Paul Carr Harlan L. Carter Sam Cebula Roger G. Cederstrom Selma O. Chivers Opal Christianson Mae R. Colby Jovan Conn Marjorie A. Cossette LaVonne Crandall Lawrence G. Crandall Kathryn E. Dahlen Barry Davis Ernie Dierks Dora Dobias Karen Jane Dosch Marlys Driggers Ernie Duff Ernie Duff Dorothy L. Dunn Tom L. Dwyer Philip A. Eckroth Eugene Edlund Vernon Espeseth Martin Evenrud Evalyn C. Evenson Lurline D. Fandrey Jan M. Fatland Raymond Fegley Walter J. Fehr Walter J. Fehr Ralph L. Fiechtner Ida Fischer Verona Flickinger Ludwig J. Foertsch Elsie Franz Floyd L. Frederick Floyd L. Frederick Floyd L. Frederick Nicolle J. Funk Sharon K. Galt Gloria Geiszler Josie M. Georgeson Josie M. Georgeson Ms. Mary K. Baumann Ms. Irene Reinhardt Mrs. Ruby M. DeLair George and Debbie Greshik Mrs. Mavis A. Wold Mrs. Joan Lindvall Byron and Ardyce Ellingson Mrs. Helen McCormack Mr. Robert W. Martinson Lorraine Hakanson Mrs. Elsie Weber Martin and Rhoda Huber Mr. Ivan J. Hansen Mrs. Clara A. Hanson Mr. Sam A. Kleinsasser Glen and Nathlie Miller Mrs. Rae Bloom Mrs. Elizabeth Hatter Mr. Robert W. Martinson Ms. Harriet E. Olson Waldo and Marion Platte Cleo and Claire Berdahl Joel and Karen Nelson Mrs. Mary Ellen Kulla Ms. Judy L. Kulla C. William and Patricia Dennert Mrs. Isla E. Herdahl P Simmental Ranch Drs. J. M. and Mary Meland Mr. Bill Hoffer Ms. Irene Reinhardt Reuben and Shirley Smith Mrs. Norma J. Swanson Ms. Carol Hoovestol Mrs. MarJean Schauer Oliver and Joyce Anderson Mrs. Juanita J. Dura Mr. Robert W. Martinson Mrs. MarJean Schauer Mrs. Vivian E. Irmscher Loren and Marian Richards Gordon and Ida Mae Smith Mrs. Olivia A. Johnson Jim and Mary Jondahl Mrs. Sophie Loftsgard Mrs. Helena K. Just Mr. Noel M. Nesheim Ervin and Orlene Henke Mr. Sam A. Kleinsasser Mrs. Evelyn Delmore Ronald and Sherry Krenz Mrs. Helen McCormack Mrs. Virginia L. Homan Lloyd and Gloria Peterson Wilbert and Muriel Smith Glenn and Connie Schwinkendorf Anna V. Goehring Marilyn Graf John Gray Joseph S. Greshik oan M. Groettum Lillian J. Gronaas Inga Grondahl Patricia Grueneich Leona V. Gutman Odell A. Hakanson Malayna R. Hamm Audber J. Hansen Helen M. Hansen Harry Hanson Lester J. Hanson Donald Harmer Paula Hartze Russell Hatter Oliver P. Haugen Oliver P. Haugen Malinda Heaney Lois M. Heesch Gladys Hegdahl Hazelle W. Helgeson Hazelle W. Helgeson Merrill J. Hemen Erwin Herdahl Patricia Hess Lenore Hobbs Rosella Hoffer Rosella Hoffer Carl B. Holtz Carl B. Holtz Richard Hoovestol Peter Hopfauf Dorothy I. Hunsberger Edwin Hust Helen H. Igoe Helen H. Igoe Theodore F. Irmscher Stanley Jacobson Oscar G. Janz Dave Johnson Owen O. Jondahl Nicholaas Jonk Helena K. Just Doris E. A. Kabanuk Edna Kaelberer Lonnie J. Kahl Genevieve Kammerer Ervin Kautzman Joyce Kerns Joyce Kessel Clarence W. Klein Magne J. Kleppen Esther M. Klusmann Albert Carlsen Albert Carlsen Albert Carlsen Albert Carlsen Albert and Betty Carlsen (continued on page 15) THE AMBASSADOR 9 How donating retirement funds benefits you & ACC id you know you may have set aside money that can be directed to your favorite charity? Every time part of your paycheck is put into your Investment Retirement Account (IRA), 401(k), or other qualified retirement plan, it can eventually be used to improve the lives of individuals with disabilities. “If you have an IRA retirement fund, this is an option or avenue that you can use to help your favorite charity and yourself at the same time,” says Shelley Nannenga, the Anne Carlsen Center Foundation Planned Giving Specialist. “Donations are what help us on a day-to-day basis.” Although Retirement Gift Plans (RGP) are sometimes given to heirs, it’s becoming a more common asset to be used for charitable giving. A charitable-based RGP is one way to take money out of an IRA without it being taxed. If you were to gift that same IRA to a spouse, son, or daughter it may be taxed heavily. “Many other assets will be distributed to family or other heirs free of income, capital gains or estate tax, but with the IRA frequently comes a very large income tax bill,” says 10 THE AMBASSADOR Heartland Trust Company Vice President Neil Jordheim. “All distributions from an IRA to an individual are taxable income.” Those taxes can be quite significant. Fortunately, in recent years, some of the hassle has been taken out of the process of donating an RGP to a charity. “We had a number of our clients take advantage of this gifting opportunity,” says Jordheim, who is a current member and past chairman of the Anne Carlsen Center Board of Trustees. “It allowed them to get the money out of the IRA without paying taxes to the IRS. It also saved them a small percentage of money because they didn’t have to withdraw the funds from the IRA, report the income, possibly lose some of the standard exemptions, and then write a check to the charity.” While an IRA rollover is one of the most common RGPs, other examples include gift annuities, bequest annuities, unitrusts, gifts of property or insurance, and stocks. The Future of RGPs Permitted in 2006 and 2007 with some limitations, RGPs may be authorized again in the final quarter(s) of 2008. Congress adjourned for 2007 without passing an extension to the Pension Protection Act incentive, creating a stalemate. House and Senate leaders now hope that an extension of the IRA charitable rollover will pass this year. “We hope by the end of the year we know if this is a tool that individuals and charities can use,” says Nannenga. If new legislation passes, all charities would be eligible to receive donations and, under the proposed legislation, donors could begin planned giving at age 591/2 instead of 701/2. Potential Advantages from an RGP You and the Anne Carlsen Center benefit from an RGP. When deciding to gift assets, factoring tax liabilities could lead to significant savings. “Retirement plan assets are subject to ordinary income taxation at both the federal and state levels,” says Jordheim. “For those in the highest tax bracket, that could total over 40 percent. In addition, if someone passes away with a taxable estate (greater than $2 million 2008) the retirement plan assets could also be subject to estate taxes up to 45 Bob Herman and his daughter, December, are recognized in May for becoming members of the Tree of Life, ACC’s symbolic thank you to its many supportive donors. percent. If an IRA owner names a charity as the full or partial beneficiary of the IRA, 100 percent of the money designated goes to the charity and no taxes are paid at the federal, state or estate tax levels.” Before establishing donations, please consult your tax or financial advisor to review information specific to your life. Discover the efficient way to help yourself, as well as others. When you are ready to donate, contact Shelley Nannenga at 701-952-5109 or toll-free at 1-800-568-5175. She can be reached by e-mail at shelley.nannenga@annecenter.org. “By rolling over your required distribution, it not only lowers your taxes, but it definitely benefits all of the children at the Anne Carlsen Center,” says Nannenga. “Your generous donations are helping provide services that give our students skills and hope for the future.” What you give to the Anne Carlsen Center will ensure amazing and unique opportunities, along with individualized attention from a nurturing staff. Their smiles say it all…your thoughtfulness ensures that students at ACC enjoy full, meaningful lives. You can get more information about making a retirement plan gift to the Anne Carlsen Center by completing the request form on the inside of the back cover and sending it to us in the enclosed envelope. You’ll find additional information about donating IRA rollovers and other retirement plan funds to ACC by going to ww.annecenter.org, and then clicking on the Foundation link. Select “Ways to Give” on the left column of the Foundation page. Determined to Make a Difference Williston man uses IRA rollover gift to help ACC children live life to its fullest ob Herman of Williston, N.D., knows how important it is to give back. Herman first started donating to the Anne Carlsen Center (ACC) in 2004. He made the decision to give after hearing about the many ways the Center improves the lives of children and young adults with disabilities. “I’m not a rich man,” he says, “but I’ve worked seven days a week for most of my life, and I’m fortunate that I can do this.” Most recently, Herman chose to make an IRA rollover gift to the Center. The IRA, he says, was an ideal asset for charitable giving. “It’s income I would have had to pay taxes on otherwise,” he explains. He encourages others to consider this giving option. Herman and his wife, Becky, and daughter, December, toured the Center in May. “The more I see of it, the more impressed I am,” he said during that visit. “The staff does a very good job. I think it’s wonderful that the Center exists.” Herman hopes that by making charitable giving a priority, he’s setting a good example for his three children—December, Shane and ConiLe. “I remember how my parents instilled those values in me,” he says. He says his experiences in life, such as a battle with leukemia, have made him even more determined to do as much good in this world as he can. “We’re on this earth to help each other,” he insists. Herman encourages others to explore the benefits of giving to ACC. THE AMBASSADOR 11 Teen with autism making remarkable transformation at ACC “The time was right for us, and it was right for him. It wasn’t that we gave up. It was all about hope and opportunity. We looked at the Center as if it was college for Chris.” Arlene LaCroix Chris’ mother This is the second in a series of articles in The Ambassador about 16-year-old Chris LaCroix and his experiences with autism. While Chris has faced some painful struggles, he has also enjoyed some meaningful victories. His parents and the Anne Carlsen Center (ACC) staff tell readers about this remarkable teenager. hris LaCroix faced a frightening threat to his health in February of 2006. What started out as a sore the size of a pencil eraser quickly turned into something painful and potentially deadly. The streptococcal infection in the fourteen year old’s ankle required three operations and a ten-day hospital stay. Early on, one of the biggest frustrations for Chris was not being able to share his thoughts and feelings. Now, he easily communicates with staff by pointing to pictures in his communication book. 12 THE AMBASSADOR Even after the danger had passed, the Bottineau, N.D., teenager was still suffering. For nine months, while he healed, he was unable to enjoy many of the activities he once loved, like swimming. “We had neurological testing done, and they said that he was depressed,” says Chris’ mom, Arlene LaCroix. “After his hospital stay, we couldn’t get him outside to the swings and the sandbox.” Concerns about Communication While the LaCroixs were excited for Chris, they realized their son had a lot of obstacles to overcome. His classroom teacher, Michele Well, says there were some struggles early on. Chris faced a life-threatening infection in his ankle when he was fourteen years old. His parents grew concerned when, even after his recovery, Chris seemed unhappy. For Arlene and Jerry LaCroix, it was heartbreaking to see their son endure so much. The strep infection was not the first major challenge Chris had faced. Chris was diagnosed with autism, a complex developmental disability that currently affects one in 150 children born, when he was five years old. Like others with the disorder, he experienced difficulties with verbal communication and social interaction. Other struggles included sensory problems, anxiety issues, tantrums and selfabusive behavior. The behaviors took a toll on Chris’ family. But what hurt the most was seeing that Chris was unhappy. “The time was right for us and it was right for him,” Arlene explains. “It wasn’t that we gave up. It was all about hope and opportunity. We looked at the Center as if it was college for Chris.” The staff found visual support to be the most effective way to help their new student communicate. By pointing to pictures, Chris could tell staff what he was hungry for, when he was finished eating, and when he was ready for dessert. Pictures of objects, places, activities and feelings were laminated and placed in a binder for Chris to take with him throughout the Center. Social stories, groups of pictures paired with words, informed Chris of the kind of activities he would be involved with, as well as the type of behavior expected in each situation. These visual aids greatly helped facilitate learning in the classroom, in the living areas, and in therapy sessions. “We’ve gotten to know Chris,” says Ron Bendewald, an ACC occupational therapist. “And Chris has gotten to know us. The communication is easier now. He’s more trusting. That’s a means of introducing more activities.” “Life is too short not to be happy,” the LaCroixs said. They had heard about the Anne Carlsen Center and decided to visit in July of 2006. They were impressed by the Center’s experience with autism, individualized education, excellent medical care, and nurturing atmosphere. The LaCroixs knew they had found a partner to help Chris build a more independent, meaningful life—a life filled with happiness. Chris began as a student in December 2006. classroom,” Michele remembers. “Early on, we thought he didn’t like the food on his plate to touch, so we would spread his meal out on five different plates. But he still wasn’t eating very much.” By taking field trips with ACC staff and classmates, Chris has become more at ease with social situations. A trip to teacher Michele Well’s farm sparked an interest in horses. “When he first came, he had very few communication skills,” she says. “If he couldn’t communicate with others, his first line of defense was to bite his hand or his shoulder. He would hit his head on the side of the door frame or the side of the table if we didn’t understand him.” That frustration also became apparent in the student lunchroom. “The first time he ate lunch at the Center, he took his whole plate, threw it into the garbage, and ran back to the “His behaviors have gone way down,” says Rachel Coppin, a speech/language pathologist at ACC. “He has a greater tolerance of the things that happen to him. His ability to cope has improved.” Steps to Success One of the biggest adjustments Chris made in his first few weeks at the Anne Carlsen Center was learning how to handle events in large, open areas, such as physical education class. At first, he would get to the gym door, look in, and run back to his classroom. Later, he would beat his head on the gym floor or water fountain and then run back to class. (continued) THE AMBASSADOR 13 (continued from page 13) Gradually, staff increased the amount of time Chris was spending in the gym. They started with five minutes, then 10 minutes, and worked their way up. Eventually, Chris was not only willing to spend the entire class period in the gym, he was even having fun. As Chris became less anxious and disruptive, he blossomed as a student. He enjoyed last year’s Cinco de Mayo celebration in his classroom. Chris also became more at ease in public places. Before, his parents had a difficult time taking him out into the community because Chris would throw tantrums or try to run away. “We were a ‘split family’ for many years,” Arlene remembers. The LaCroixs were not able to go to church or sporting events together, because someone always had to stay home with Chris. Arlene and Jerry are thankful for the high level of caring, dedication and training that the ACC staff has. “They really care for the children and respect their rights,” Jerry says. “The staff is exceptional,” adds Arlene. “They are there for the kids. They treat Chris as an individual. They give him what he is deserving of.” On field trips with ACC staff and classmates, Chris learned how to act appropriately at the mall and how to enjoy a meal at a restaurant. He began to understand social situations and develop appropriate responses. And the boy who once would not even set foot in the ACC gym, impressed everyone when, last year, he served a very important role in the annual Christmas program—an event held in the same auditorium as gym class. Chris was chosen to run the PowerPoint presentation for the hour-long program. The urge to run away was gone. It its place was calmness and confidence. More Independence for Chris As Chris has become less disruptive and more independent, Chris’ parents have become more hopeful for his future. “We aren’t young parents,” Jerry admits. “I turned 54 in April. We won’t be around forever. There are things that need to happen now for Chris.” As Chris continues to flourish at the Anne Carlsen Center, the LaCroixs look to the future with hope. “Before, Chris was so structured into our world that he wasn’t able to blossom in his own world,” Arlene admits. “Now he’s really blossoming.” And what has happened since Chris first arrived at the Anne Carlsen Center in December 2006 is what his parents call a remarkable transformation. “He’s happy!” Arlene says. “He’s much calmer. He’s into a routine.” And the nurturing, highly-structured setting at the Center has helped Chris’ true personality shine. An extremely creative and artistic student, he enjoys drawing and painting. But what has made the biggest impact is the way he treats others. 14 THE AMBASSADOR “Chris is a caring, young man and a good role model,” Michele says. “Our students teach us more than we teach them. We have learned that we need to step back and figure out their needs and focus less on our own needs. They teach us about what’s important.” Staff helped Chris grow more comfortable with large, open spaces— like the ACC gymnasium. He smiles during a ceremony in the gym, as Coach Troy Duven presents him with his track and field awards. In the next edition of The Ambassador, see how Chris has continued to blossom at the Anne Carlsen Center, participating in a wide array of activities that allow his strengths to shine. (continued from page 9) Given By In Memory Of Given By In Memory Of Given By In Memory Of C. William and Patricia Dennert Mr. Robert W. Martinson Mrs. Delfena Ballweber Neal and Phyllis Folstad Mrs. DiAnn Loll Mr. Robert W. Martinson Mrs. Winnifred L. 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Zimmerli Bonita THE AMBASSADOR 15 Dear Friends, The offices of the Foundation at the Anne Carlsen Center are in the far west end of the campus. It is a long walk to the front of the building where the administrative offices are located and many meetings are held. The distance doesn’t bother me at all. This walk is often the highlight of my day. I wish that every supporter of the ACC could make that trip with me. You would pass Jonas in the hall and try not to fall for his fake handshake gag. He “got” me several times in the first few weeks that I was here. You’d see Jimmy on his way to class. He is the student body president and appreciates being addressed as Mr. President. You might see Matt pedaling his bike down the hall with his therapist following closely behind. Matt is working hard and is very proud of his abilities! If you wander by the therapy area, you just may see Ty learning to pilot his motorized chair through doors and up to tables. You would be blessed to see Arianna’s beautiful smile when she arrives to class in the morning. I wish you could see all of the students as they learn, grow and succeed here at ACC. As each thrives, with the help of the loving and dedicated staff, they are proof that Dr. Anne Carlsen’s spirit guides our efforts today. Our supporters help ensure that Dr. Anne’s important work continues, as we empower those with disabilities and their families. Thank you for being a friend to these remarkable individuals! Sincerely, Dan Kunzman Foundation Executive Director ACC raises 30k for summer camp at annual benefit golf tournament Helped by 34, four-person teams and a host of time donated by volunteers, the Anne Carlsen Center raised just over $30,000 through its 26th Annual Benefit Golf Tournament on June 7 at Jamestown Country Club. Proceeds from the event will help send children with disabilities to summer camp. At Camp Grassick, near Dawson, ND, teens with a wide array of disabilities are given the chance to enjoy a variety of new adventures such as their first swim in a lake, hayrides, bonfires, talent shows, and of course, making new friends. 16 THE AMBASSADOR ACC resident Natasha Esch lines up a drive at the Jamestown Country Club. Throughout the day, Natasha got instructions on how to sharpen her game. ACC resident Jacob Williams gets behind the wheel of a golf cart and takes a couple of tournament participants for a ride. Earlier in the day, Jacob handed out appreciation gifts to team captains. BOARD OF TRUSTEES Sue Offutt, Ph.D. Chairperson Grafton, N.D. Thomas Rohleder Vice Chairperson Fargo, N.D. Bryon Dockter Prior Lake, Minn. Tim Flakoll Fargo, N.D. Eric Monson Fargo, N.D. Robert Montgomery, M.D. Fargo, N.D. Janet Seaworth Bismarck, N.D. Pat Traynor Anne Carlsen Center is partnering with Jamestown businesses in 2008, as we raise support for, and awareness of, our high-quality programs and services. Fargo, N.D. Seven businesses are participating in the special program, Kevin Wallevand Joel Fremstad Moorhead, Minn. Fargo, N.D. as we strengthen community ties and work together to Reesa Webb Harvey Huber Denver, Colo. improve the lives of others. Thank you, Community Jamestown, N.D. Robert Weiss Bruce Iserman Shorewood, Minn. Neil Jordheim Myra Quanrud, M.D. Ex Officio Fargo, N.D. Fargo, N.D. Pat McCullough Edina, Minn. Partners, for helping ACC continue our rich tradition of encouraging and empowering individuals of all abilities. Jamestown, N.D. Rev. Gordon Berntson Emeritus Fargo, N.D. A Division of Forum Communications Company SENIOR MANAGEMENT Dan Howell Chief Executive Officer Marcia Gums Chief Operating Officer Judy Kulla Chief Financial Officer Margie Johnson Human Resource Director Dan Kunzman Executive Director— Foundation THE AMBASSADOR Published by: Anne Carlsen Center 701 3rd St. N.W. Jamestown, ND 58401 1-800-568-5175 www.annecenter.org Brenda Scholten, Editor brenda.scholten@annecenter.org Kalen Ost, Assistant Editor kalen.ost@annecenter.org Paul Johnson, Designer paul@pauljohnsondesign.com The Ambassador is mailed, free of charge, to those supporting the mission of the Anne Carlsen Center. Notice of Non-Discrimination Policy: Make a Lasting Impact Your generosity helps provide hope and loving support for individuals with disabilities. I would like to visit with an Anne Carlsen Center representative about: _____ Making a retirement plan gift. _____ Establishing a Charitable Gift Annuity. Name _____________________________________________________________________ Anne Carlsen Center does not discriminate on the basis of race, color, national origin, age or disability in employment or services. Address ___________________________________________________________________ If you would like to be removed from our mailing list, please call 1-800-568-5175, ext. 167. Phone __________________________________________________ ______________ ______ City, State, Zip _____________________________________________________________ E-mail _____________________________________________________________________ Please return completed request form in the enclosed envelope. Pastor JoAnne Moeller provides spiritual nurturing to students and staff at the Anne Carlsen Center. Here she spends some precious time ministering to Taylor. Wolff Images. TM 701 3rd St. N.W. Jamestown, ND 58401-2971