Annual Report 2013 - Huntington`s Disease Society of America

Huntington’s Disease
Society of America
Annual
Report
2013
Chief Executive Officer’s Message
Dear Friends,
From community services and education to advocacy and research the
Huntington’s Disease Society of America continues to make major strides
in 2013. Through grassroots initiatives on the local level to strategic
planning from the national office, HDSA has built a strong foundation for
future success.
And last, but certainly not least,
I would like to send a sincere thank
you to all the dedicated and passionate volunteers that make up HDSA.
From coast to coast, HDSA volunteers are on the front lines fighting to
raise funds and awareness for our
inspiring community. Our Team Hope
Walk program did an incredible job
this year and we know it will only be
bigger and better next year!
On April 3rd, Senator Kirsten Gillibrand and HDSA hosted a Research
Symposium that commemorated the 20th Anniversary of the discovery
of the gene that causes HD with the US Capitol dome serving as the
backdrop. The Symposium was the first noteworthy event in the two day
advocacy experience that brought advocates from 30 states not only to
hear from four of the original ‘gene hunters’ but also to bring their voices
to Capitol Hill to advocate for the Huntington’s Disease Parity Act
(HR1015/S723).
As we look back on the success from
this past year, please remember that
as the voice for the HD community, HDSA always strives to provide Help
for Today, Hope for Tomorrow for people with HD and their family. With
your help we can assist the more than 30,000 Americans with HD and
the 200,000 at risk of inheriting this devastating disease.
This past year HDSA formed the Scientific Advisory Board (SAB) provides
scientific review of research proposals to ensure that the research
programs at HDSA are scientifically sounds, pertinent and provide a high
impact to the HD Research community. We are confident that this is a
bold first step to improve HDSA’s research programs.
Thank you for all your support!
Sincerely,
Louise A. Vetter
Chief Executive Officer
HDSA 2013 ANNUAL REPORT
2
2013
Year In Review
TEAM HOPE WALKS
nS
ix Team Hope Walk training webinars have taken place in 2013, all
of which are available on the Extranet and Team Hope website. The
webinars covered topics such as Participant Fundraising, Sponsorships & Grants, Timelines for Success, Wrap Around Events, and
Year After Year Success.
2013 was an amazing year for the Team Hope Walk program. Tens of
thousands of people around the country walked side by side in over 102
communities to support the HDSA mission.
Thank you to our Chapters, Affiliates, volunteers, participants, teams, donors, and sponsors for your commitment, dedication, and support. With
your continued partnership, the Team Hope family has accomplished
milestones in 2013, including:
nS
even editions of the Team Hope newsletter “Footprints” have been
shared in 2013, highlighting each month’s Team Hope walks and
offering fundraising tips and advice, reaching over 25,000 people
across the country!
nO
ver $1.45 million dollars raised for the mission and programs of HDSA!
All of the Team Hope accomplishments could not have been possible without you, our committed, dedicated and selfless volunteers,
participants and donors. HDSA thanks you and invites you back again
for an even better 2014!
nO
ver 15,000 participants walked with us at Team Hope Walks across
the country.
n 1 02 Team Hope Walks were held in 2013, of which 18 were new Team
Hope Walks!
CONVENTION
nA
renovated Team Hope Walk website rolled out in August with updat-
On June 21-23, the 28th Annual HDSA Convention
was held in sunny Jacksonville, Florida at the beautiful Hyatt Regency Jacksonville. With more than 730
members of the HD community in attendance, Keynote Speaker Marc Holder, PhD (University of British
Columbia) gave a poignant speech on The Science of
Happiness. Dr. Michael Hayden, MD, PhD. (University
of British Columbia) served as the Research Forum Key
Note Speaker and discussed strides in HD research.
ed resources, materials, functionalities, and trainings to help the HDSA
community plan new Team Hope Walks and grow our current walk with
more fundraising and awareness.
New this year was the Chapter Awards Luncheon where the most
outstanding volunteers from across the country were acknowledged.
The Convention featured world-class workshops about HD care,
research, education and advocacy.
HDSA 2013 ANNUAL REPORT
3
RESEARCH
ADVOCACY
HDSA was proud to announce that in March 2013 a new HD research program was launched to provide financial support for investigator-initiated
research directed to better understand the biology of HD as it occurs in
humans. HDSA expects that the research will directly impact the lives of
persons with HD or help guide the future drug development for HD.
In March 2013 Adam Kinzinger (R-IL) and Bob Pascrell (D-NJ) introduced
the Huntington’s Disease Parity Act in the U.S. House of Representatives
as HR 1015. Thus far, the bill has garnered co-sponsorship from nearly 30
House legislators. In April 2013, Senator Kristen Gillibrand (D-NY) reintroduced the HD Parity Act in the Senate as S723.
The Donald A. King Summer Research Fellowships were awarded to Jenny
Lin of MIT and Jolene Luther of the University of Iowa. Jenny Lin will be
working with Drs. William Yang and Steve Horvath at UCLA on a project
entitled “A Systems Biology Approach to Analyze Huntington’s Disease”.
Jolene Luther will be working with Drs. Jane Paulsen and Hans Johnson
at the University of Iowa on a project called “MRI T2 Hypointensities as a
Biomarker in Prodroma HD”.
HDSA Advocacy has been very active on social media. In a two week
period, more than 1,000 people shared an HDSA petition to thank the two
House Champions who introduced the HD Parity Act of 2013.
HDSA also produces excellent advocacy resources such as, the Advocacy
Toolkit, Disability Application Toolkit and Genetic Information Nondiscrimination Act (GINA) Toolkit.
This year, researchers from Prana Biotechnology and UCSF have published
positive data on the small molecule, PBT2, in two different animal models
of Huntington’s disease. PBT2 is a novel compound that is known to cross
the blood-brain barrier, appears safe to humans and has demonstrated
neuroprotective effects in various brain disease models.
The results showed that PBT2 may positively impact cognition in Alzheimer’s disease, Prana set out to discover if PBT2 will have similar
effects in HD patients. PBT2 was tested in a Phase II clinical study called
Reach2HD for patients with early to mid-stage HD in Australia and the
United States.
Rep. Adam Kinzinger
(R-IL)
HDSA 2013 ANNUAL REPORT
4
Rep. Bob Pascrell
(D-NJ)
Sen. Kristen Gillibrand
(D-NY)
Statement of Financial Position
AS OF DECEMBER 31, 2013 AND 2012
ASSETS
2013
2012
Cash and cash equivalents
3,039,561
2,546,676
Investments, at fair value
563,280
580,191
Contributiions receivable, net
324,380
562,951
Pledges receivable, net
374,628
0
Prepaid expenses and deposits
120,502
86,329
Cash surrender value of life insurance
129,271
124,821
Property and equipment, net
49,728
77,867
Total Assets
4,601,350
3,978,835
LIABILITIES Accounts payable and accrued expenses
180,566
Accrued compensation
175,379
421,172
187,951
Research grants payable
1,547,370
798,848
Deferred rent
53,270
82,881
Obligation under capital lease
15,942
21,267
Deferred revenue
10,945
7,323
Total Liabilities
1,983,472
1,519,442
NET ASSETS
Unrestricted
Undesignated
(1,066,803)
Board-designated
510,152 (761,203)
510,196 (556,651)
Temporarily restricted
2,924,529 Permanently restricted
250,000 250,000
2,617,878 2,459,393
4,601,350 3,978,835
Total Net Assets
(251,007)
2,460,400
Total Liabilities And Net Assets
HDSA 2013 ANNUAL REPORT
5
Consolidated Statement of Activities
FOR THE YEARS ENDED DECEMBER 31, 2013 AND 2012
SUPPORT & REVENUE
2013
2012
Public donations
2,653,792 1,967,876 Foundation grants and corporate contributions
1,472,230 1,363,462 Federal campaign
286,049 298,203 Investment income
12,022 5,311 Donated services
187,265 340,735 Other
Total Support and Revenue
24,485 21,983 4,635,843 3,997,570 HDSA DOLLARS AT WORK
FIscal Year 2013 Functional Expenses
10%
27%
13%
EXPENSES
Program services:
Research
1,207,444 570,986 Community services
2,145,314 1,262,045 Education
1,532,395 1,544,895 Chapter development
1,056,693 1,071,126 5,941,846 4,449,052 20%
15%
Supporting services:
Management and general
817,947 832,279 Fundraising
1,120,500 1,524,435 1,938,447 2,356,714 Total Expenses
7,880,293 6,805,766 (3,244,450)
(2,808,196)
Change in net assets before non-operating income
Non-operating income:
15%
Special events:
Gross receipts
4,108,409 4,044,123 Less: direct costs
(705,474)
(618,928)
3,402,935 3,425,195 158,485 616,999 2,459,393 1,842,394 2,617,878 2,459,393 Net income from special events
n Family Services
n Education
n Research
n Fundraising
n Chapter Development
n Administration
Change in Net Assets
Net assets - beginning of year
Net Assets - December 31
HDSA 2013 ANNUAL REPORT
6
75 / 25: Mission / Administration Ratio
27%
20%
15%
15%
13%
10%
HDSA Leadership
HDSA NATIONAL BOARD OF TRUSTEES
Steven Seekins
Chair
Burbank, CA
Jang-Ho Cha, MD, PhD
Vice Chair
North Wales, PA
Larry Fisher
Treasurer
Potomac, MD
Theresa Hughes
Secretary
Bear, DE
Donald L. Barr
Chesterland, OH
Hugh de Loayza
San Francisco, CA
Samuel Frank, MD
Boston, MA
Michelle Gray, PhD
Birmingham, AL
HDSA MANAGEMENT
Steve Ireland
Wilmington, DE
Louise A. Vetter
Chief Executive Officer
Barbara Jacobs
Stamford, CT
Nadene Alleyne
Director of Financial &
Administrative Management
Arik Johnson, PsyD
Los Angeles, CA
Christopher Cosentino
Director of Marketing
& Communications
Rob Millum
El Cajon, CA
Debra Lovecky
Director of Program Services
& Advocacy
Arvind Sreedharan
Deerfield, IL
Leon Tibben
Andover, MN
Nancy A. Rhodes
Director of Field Development
& Operations
Daniel S. Vandivort
Riverside, CT
George Yohrling, PhD
Director of Medical
& Scientific Affairs
Roger A. Vaughan
Columbus, OH
David E. Waltermire
Cleveland, OH
HDSA 2013 ANNUAL REPORT
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Thank You to Our Generous Donors
Greta K. Abbott
Richard & Judith Agee
ThomasAlbanese
Ali Alsari
Steve & Lisa Altman
Mara A. Alvarez
Soumil Amin
Charles A.Anderson
Dale & Claudia Anderson
Karen Anderson
Karen & Cass Anderson
Frank Auf Der Maur
Jamelyn Ayers
Danny B. Babiy
Michael Barone
Donald L. Barr
Philip Bartley
Kathleen Bates
Cory Baughman
Estate of Patricia A. Bauman
Rick Beatty
Donald Becker
Gina Becker
Russ Becker
Estate of Barbara L. Bell
Ashok Behl, M.D., FACC
Michelle Bellissimo
Katherine Benson
Michael Berger
David Bergstrom
Steve Bergstrom
Kamal Bhakta
Andy Bishop
Michael Bittrick
Louis J. Bonacci
Larry W. Bonds
David Boren
Bill Born
Daniel Born
Mary C. Born
Michael J. Born
Janet Brady
Lucia & Louis Brandt
John & Melinda Bray
Bob Brockman
Jonathan L. Brown
WinnifredBrown
Judith Bruning
Kaycee Burnside
Mary S. Burton
William Busbin
David Buth
W.C. Caddoo
Estate of Charlotte F. Calhoun
John J. Calnan
Ned Cancelmo
Matthew Carcich
John & Holly Carney
Pamela Carter
Scott & Kathy Carter
Enrico Cascone
Lavonne Cashman
Bryan Caster
Jang-Ho Cha, M.D., Ph.D.
Joy B. Chadwick
Bryn Chafin-Ward
Robert Chambers
David J. Chao
Haynes Chidsey
Mary Chlebina
Marie Clay
Robert & Emily Clay
Cynthia Clefisch
Edward Cohen
Michele Cohn
Richard Collette
Patricia Conley
Jean C. Copeland
Jody Corey-Bloom
Robin Costantino
Michael L.Cozine
Karen Cresswell
Art & Nancy Cullman
Jeffrey & Annette Cullman
James & Phyllis Currans
Michael & Christine Curry
James Dalton
Marc Daniels
Guy & Mindy Decker
Matt Degnan
Hugh DeLoayza
Bassel Diab
Francis Donoghue
Estate of Rita Muriel Dougherty
David Downey
Elaine & Eugene Driker
Jean Duggan
James Dunn
Craig Edwards
Thomas Ehrsam
Thomas J. Ely
Ruth Endsley
Paul Epifanio
Carolyn Grant Fay
Robert Fazio
Norman Feuer
Michael S. Fiore
Lawrence Fisher
Mike Flory
Robert V. Fontanesi
Anne Fowler
Gerald A. Francese, Esq.
Samuel Frank
Scott Free
Cal Gabelman
Tom Gable
Virgina Glenday
Michael Goff
Ronald J. Goglia
Douglas Goin
HDSA 2013 ANNUAL REPORT
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Steve Gold
Nancy Goldring
Gene Gomberg
Donald Gooch
Bernice Gotlieb
Joseph Graffis
Michelle Gray, Ph.D.
Paul Griffith
Albert & Carolyn Grimaldi
Martha Grizzel
George E. Gudac
John Guhl
Peter S. Gyure
Jana Gyurina
Brock R. Hajdik
Tom Hamilton
Paul Harbaugh
Carol Meacham Harbour
Harold Harden
Kenneth Harges
Dudney Harris
Koaki Bailey Harris
Tony Hartling
Vicky Hediger
Barbara Heere
Estate of John Heidelmeier
Robert Heksch
James Hellmuth
John Henderson
William A. Hinde
Theo Hollier
Brian & Deborah Holloway
Cathy Holloway
William & Leslie Holmes
Spencer Holt
Carl Homer
Charles R. Horan
Doug Horn
Laura Housel
Tina Huang
Theresa & David Hughes
Estate of G. Mae Inglis
Bryan Inglish
Steven Ireland
Coletta Ruppe Ivy
Richard Jackson
Barbara Jacobs
Brent Jacobs
Martin Jacobson
William Jennings
Arik Johnson, Psy.D.
Owen B. Johnson
Richard Johnson
Wesley G. Johnston, Jr.
Elliott Johnstone
Brad Junco
Marcella J. Junco
Lawrence Justin
Edwin R. Kahler
Dennis Kajmowicz
Richard R. Karlen
Robert J. Karrow
Sarah Katerle
Carol Kauffmann
Glenn W. Kaun
Marc J. Keane
James L. Keating
Irwin A. Keller, M.D.
Alan A. Kenney
Randall F. Keogh
Felicia Kettler
Viki Kimsal
Jean D. Kinda
Joel Kingery
Barbara Kirsh
William G. Klein
William F. Kline
Denice Korcal
Sandra Kostyk
Pam & Dave Kruger
Douglas N. LaBelle
Barry Landau
Wayne Langen
David Langer
Joseph Langlois
John Larose
Julie Lawson Timmer
Patricia Leonard
George Letchworth
Daniel Leugers
Norma Levett
Mark Leyton
Evelyn Lieberman
Griselda Lopez
Kristy Lopresit
Michael Lotker
Nick and Kristen Luca
Annette Luckow
Laurence Luebke
David M. Lutken
John Lynch
Thomas Lyon
Sandra Lyons
Neil Manley
Kevin Marsh
Patrick Marsh
Chuck Marshall
Jon Marshall
Petronilo Martinez
Gertrude H. Marvin
Mary Mathews
Blair May
Dorla J. Mayer
Patrick K. McAuley
John McCaffrey
Patrick McCallum
Marilyn McCloskey
Matthew D. McCollough, M.D.
Susan & James McGann
Arnold & Harriet Meier
Jane S. Melzer
Jean A. Meyer
Glen Miller
Jonathan Stephen Miller
Mary Catherine Miller
Robert Millum
Ron Mize
Robert Moore
Katharine Moser
Donald Murray
Anna M. Nagy
Estate of Muriel Naudts
Jan Neil
Joe & Pam Nemec
Marie & Ronald Nemec
Monica Neubert
Mark and Barb Newland
Stacy Newman
Ethelyn M. Newton
John R. Oakland
Colleen M.O’Donnell
Kevin Osborn
David A. Oss
John O’Sullivan
Somashekar Pallegar
Christie Palmer
Nacy Panzica
George Parks
Ann M. Parrish
Debbie Parton
Josh Pell
Harold Pilskaln
Denise Podar
William Pollakov
Jennifer Pratt
Irene Purdon
Michael J. Quinn
C. Jay & Kathleen Rains
Lee and Jennifer Raphael
Stephen M. Rattner
Helen F. Reed
Anthony Rego
Michael & Beth Ann Resch
Leslie Rich
Aleta E. Riewe
Paul R. Riewe
Jay Riffkin
Greg Riner
Carly Ritter
Timothy Robert
Mary Robinson
Scott Robinson
Jack & Penny Rohrbach
Jeannine Roland
Calvin Rose
Charles Rose
Lynn Rosenthal Gerber
Mary Ross
Ted Ross
Estate of Helen B. Rostetter
Samuel S. Rowe
Joel Rubinson
Martha Ryan
Rachel Sanborn
James Sault
Russell Scarborough
Suzanne Scheu
Terri Schmidt
Joseph C. Schwanebeck
Bruce W. Scott
Wayne Seltzer
Lorril M. Senefeld
Kenneth P. Serbin
Robert Serpentini, Jr.
Christina Serra
Bradley Shipman
Faryar Shirzad
Steve G. Shore
Mike Shurtleff
Patrick & Suzy Simar
HDSA 2013 ANNUAL REPORT
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Kristine Skoglin
Sonia K. Slevinski
Jay Smart
A. J. Smith
Tiffany Smith
Kenneth Smolanoff
Michael R. Soland
Anne Spencer
Nancy Spiller
Craig Srajer
Arvind Sreedharan
Carie St. Onge
Michael Stamberger
Julie Steele
Douglass Steiger
Ross and Betty Sterling
Brian Stiff
William Strauss
Jessica Streeter
Julie Ann Struble
Irene C. Swanson
Cliff & Connie Swisher
Mary Ann Tally
Carol Terkoski
Michael Testa
Ronald F. Tetrault
Matt Thalman
George Thomas
Sean Thompson
David Thuleen
Phillip Toohey
Peter Trencansky
Holly Troschuk
Nancy Urbach
Rick Urban
Armando Urquidez
Robin Van Sickel
Kelly Van Vliet
Daniel S. Vandivort
Roger Vaughan, Jr.
Victoria Vermes
John Villios
AnthoniVisconsi II
Dominic Visconsi, Jr.
Dominic A. Visconsi
Kirsten Waldschmidt
Claire Walker
Karen Waller Cresswell
David Waltermire
Dan Warner
Albert A. Wassberg
John Weaver
Robert Weber
Walter Weber
Estate of Edith Weiner
Claudette C. Werner Poorman
Kent and Jonnie Westbrook
Dorothy Weston
Vicki Wheelock
Karen R. White
Raye G. White
Lee Whitley
Joleen Willey
Lisa K. Winkler
Brian Wishneff
Eda Wolack
Scott Wolstein
Edward Woods
Victoria C. Woodward
Cora Dee Wright
Nicholas Wunder
Elaine Yohrling
George & Jennifer Yohrling
Anne B. Young, M.D., Ph.D.
Marlene Zalutsky
Vicki M. Zeiba
Geoff Zimmerman
James S. Zito
Thank You to the Following Corporations
and Foundations for Their Generous Support
$500 - $4,999
A.T.A.P. Companies
ACT Oncology, LLC
Action Couriers Inc.
Active Network
Active Network
Adjuvo Medical Supply
Advanced Care Scripts Inc.
Advanced Healthcare Partners, LLC
Aesthetic Artistry Surgical
Aetna Foundation
AIG Matching Grants Program
Albany Society for the Adv. of Philanthropy
Alberici Constructors
All Family Care
Alliance Recovery Center
Alternative Recycling Systems LLC.
American Electrical Contracting, Inc
American Endowment Foundation
Ameriprise Financial Annual Giving Campaign
AMF Bowling Centers Inc.
Amitech Solutions, Inc
AmREIT
Ann Arbor Annuity Exchange, Inc.
Anthony L. Christy Memorial Golf Tournament
Antioch Building Materials
ArcelorMittal Matching Gifts Program
Argus Corporation
Arkansas Blue Cross Blue Shield
Arkansas Electric Coperative Corp
AseraCare Hospice & Palliative Management
AT&T Employee Giving Campaign
AT&T United Way (PSW)
Automatic Data Processing Inc.
Automatic Data Processing Inc.
Axemen Fire Fighter M/C NY
Ayelet Tours, Ltd.
Baker Hughes Foundation
Bank of America
Bank of America Matching Gifts Program
Bank of AmericaCharitable Foundation
Baptist Health South Florida
Bay Medical Center
Belle Forest Dental
Bemis Company Foundation
Big League Dreams USA, LLC
Black Gryphon
Bloomfield Vineyards
Blue Thunder Services
Boling Production Company, Inc.
Boris Realtors
Boston Financial Data Services
Bowes Imaging Center LLC
BP Fabric of America Fund
Breakpoint Services, LLC
Bremer Bank
Brentwood Fine Meats
Brittany Lynn Freitas Trust Fund
C S & P Technologies, LP
C.H. Evans Brewing Co. Inc.
California Joint Powers Insurance Authority
Canon Information Technology Services, Inc.
Cap Com Fed. Credit Union
Caring Voice Coalition, Inc.
Carpet USA LTD.
Cbeyond, Inc.
CBS Television Stations
CD Foodservice, Inc.
Cedar Rock Yoga Studio Inc.
Center for Neurorehabilitation services
Centerplate
Centric Health Resources
Channel Lumber
Charitybuzz
Charles Schwab
Charles Schwab Foundation
Chemistry Industrial Hygiene, Inc
Chevron Humankind Matching Gift Program
City Central Courier, Inc.
Clear Lake Telephone Company
Clocktower Entertainment, LLC
CMGRP, Inc.
HDSA 2013 ANNUAL REPORT
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CMS Mechanical Services, Inc.
Colorado Neurological Institute
Community Business Bank
Community Health Charities - Iowa
Community Health Charities WA.
Community Health Charities of California
Community Health Charities of Il.
Community Health Charities of PA
Community Health Charities of Texas
Community Health Charities Southeast
Community Health Charity
Community Health Charity of ME
Conco Pumping
Corporate Farmer, Inc.
County of Los Angeles
Courtyard By Marriott Downtown
Creston Industrial Sales, Inc.
Customers Bank
CVS Corporation
Darling’s Chevrolet
Dayton Andrews, Inc.
Direct Access Group Benefits Inc.
Discovery Bay Lions Club
Dorment
Dorsky Yue International
Downtown Ford
Dubuque Driving Range
Duluth Holdings, Inc.
E Evan Foundation Inc.
Earl M. and Margery C. Chapman Foundation
Eastern Virginia Medical School
Edward Jones
Eisner Amper LLP
Ellis Automotive, Inc.
Empire Merchants North, LLC.
Empire Wine & Spirits, LLC.
Employees Charity Organization of Northrop Grumman
Erie Federal Credit Union
Evotec
Fashion Playtes
Federal Savings Bank
Fidelity Charitable Gift Fund
First Choice Cleaning
First International Bank and Trust
First Service Bank
Fletcher Allen Health Care
Florida Health Sciences Center, Inc.
Franklin Templeton Investments
Frost Bank
Garfield Lodge No 569
Gate City Bank
GE United Way Campaign
Geico Philanthropic Foundation
Global Impact
Gold Wing Road Riders Association
Goldman, Sachs & Co.
Good Samaritan Society - University Specialty Center
Google Matching Gifts Program
Grabowski III
Grace Episcopal Church
Grainger
Grand Rapids Auto Auction
Great Plains Distributors, LP
Greenav Lubbock Owner, LP
Greystone
Ground Engineering
H & L Care Centers, Inc.
H.E.B.
Harvest Park Bowl
Hawthorne Manufacturing Co.
HCSS
HDSA Center of Excellence at Emory University
Health Diagnostic Laboratory Inc.
Henson Plumbin
HKG, LLP
Holyoke Credit Union
Home Acres Building Supply
Huntington Study Group, Ltd.
IBM Employee Services Center
IGive.com
Illinois Tool Works Foundation
ING
Integrated Benefits Solutions, Inc.
International Association of Firefighters
Isis Pharmaceuticals, Inc.
J & R Graphics
J. Calnan & Associates, Inc.
Jackson Lewis LLP
James C Jenkins
JK Group on behalf of the Lawrence Livermore
Johnson & Johnson
Jones & Mayer
Jordan Lawrence Group, LC
JV Ventures Inc.
KBK Sports
Kern Toyota/Scion
Keyser Karpentry, LLC
Kindred Healthcare Operating, Inc.
Klein Tools Charitable Foundation
Kohl’s Cares
Kohl’s Pacific Southwest Region
Kohl’s, Mid Atlantic Region
Kohl’s, New England Region
Koret Foundation
KP Financial Svcs Ops
Ladies Landscaping LLC
Lathrop Construction
Law Elderlaw, LLP
Leathernecks Tattoo
Lemonade Pi, Inc. DBA
LLagas Foundation
Lotemp Equipment Co.
Lovinguth
Lowell Health Care Center
Magic Hour Lighting & Grip., Inc.
Marriott International, Inc.
Martin Scott Wines
Mary Hitchcock Memorial Hospital
MathWorks
Menasha Corporation Foundation
Michael Skurnik Wines, Inc.
Middlesex School
Minnesota Independent Insurance Agents
Mission City Rebar, Inc.
Mobile Giving Foundation
Monsieur Touton Selection Ltd
Moore Engineering
Murdock United Methodist Church
National Health Council, Inc.
Network For Good
Newmark & Co Real Estate Inc.
Next Connect Communications, LLC
Northern Trust Company
HDSA 2013 ANNUAL REPORT
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Northland Eldger Law
Northrop Grumman Corporation
NStar Electric & Gas Corp.
Nuvasive
NW Preferred Federal Credit Union
Oak Bank
Oak Crest Health Care Services, Inc.
O’Connell Professional Nurse Service Inc.
Oge’s Oilfield Rentals, LLC
OhioHealth Parent
Omelette Partners, Inc.
Oracle Charity Account
Orange County Employees Association
Pacific Coast Companies Inc.
Pacific Life Foundation
Patriot Bank
People’s United Bank
Performance Business Forms and Specialty Products
Pfizer Foundation Matching Gifts Program
Phillips 66
Phoenix Graphics & Ceramics, Inc
Pleasant River Partners
Power Design Inc
Premier Heating
Premier Utility Services, LLC
Presko Insurance
Red Frog Events, LLC
REM Minnesota
Residence Inn Denver
Ripon College
Riverside Sheriff’s Association
Robert and Beverly Mecker Fund
Rochester Software Associates
Rogers Roofing
Ronald Nunn Farms
Rosenblum Development Corp.
Rosenfeld
Rotary Club of Bloomington Sunrise
Rovia, LLC
Russell & Ross Chiropractic Centre
Scheels All Sports
Schellinger Construction Co., Inc.
Seventhwing LLC
Shannon
Shatswell MacLeod & Co. P.C
Shellynn Enterprises, Inc.
Shofner Development LLC
Sierra health foundation
Sierra Health Services, Inc.
Sierra Nevada Brewing Company
Skinner Services, Inc.
Ski’s Pools
South Placer Heritage Foundation
Southern Michigan Pool Pros
Southern Paramedic Services, Inc
Southwest OK Affiliate HDSA
Spectex, LLC.
Spectra Energy Foundation
Spring Lakes Estates
St. Luke’s United Methodist Church
Stanford Hospital & Clinics
State Employees Community Campaign
State Street Foundation, Inc.
Sterling’s Vacuum Service
Stihl
Sundt Construction, Inc.
Sundt Foundation
Superior Felt & Filtration, LLC
Sweeney’s Grill & Bar
SWS Charitable Foundation, Inc.
Textron
T-Formation
The Barking Dog Lt.d.
The Bayou Fund
The Clorox Company Foundation
The Columbia Foundation
The GE Foundation
The Handle Bar
The Ironman Foundation, Inc.
The Kid’s Store
The L.A.M.P Foundation
The Nebraska Medical Center
The Nurture Foundation
The Rizzolo Group, Inc.
The Saint Paul Foundation
The Scire Family Foundation, Inc.
The Trustees of Funds of Bethesda
The Wallen Golf Benefit IRR Trust
The William H & Mattie Wattis Harris Foundation
The Wireless Zone Foundation for Giving, Inc.
Thornburgh Insulation
Tower Legal Group
Toyota
Trench Plate Rental Co.
Tri City Rentals
Trinity Emergency Medical Service
Trinity Health
Tristar Sporting Arms
Truist
Tucson Ear and Throat Associates
Uniforms Express
United of Greater Plymouth County Inc.
United Way
United Way of Central Jersey, Inc.
United Way of Greater Milwaukee
United Way of Northern New Jersey
United Way of Tarrant County
United Way of the Bay Area
United We Stand for Jason, Inc.
University of Alabama at Birmingham
University of California
University of Pittsburgh
Valero Energy Corp.
Valley Of The Sun United Way
VCU Health System
Verity Wines, LLC
Vertex Pharmaceuticals Inc.
Vision Wine Brands, LLC.
W.F. Young, Inc.
WakeMed Gives Employee Campaign
Weirs Beach Go-Kart Track, Inc.
Wells Fargo Advisors, LLC
Wells Fargo Community Support
Westin Westminster Hotel
Winchester Neurological Consultants
Winebow, Inc.
World Beverage
Xcel Energy Foundation
YourCause, LLC
YourCause, LLC PSW
YourCause, LLC Trustee for AOL, Inc.
Zajic Appliance Services
ZBI Employee Allocated Gift Fund
Auspex Pharmaceuticals, Inc.
Bank of the West
Bess Spiva Timmons Foundation Inc.
BP Foundation, Inc.
Charitable Auto Resources Inc.
Chase Card Services
Colorado State Fraternal Ladies Auxiliary Bingo Fund
ConocoPhillips Company
Crossroads Hospice
Elan Pharmaceuticals Inc.
Gammi Phi Beta
Give With Liberty
Heavy Construction Systems Specialists Inc.
Hoven Family Foundation Inc.
Medtronic, Inc.
Merck Partnership For Giving
Morgan Stanley
TEVA Pharmaceuticals
The Picerne Group, Inc.
Walmart
$10,000 - $24,999
Ace in the Hole Foundation, Inc.
American Legion Child Welfare Foundation
Apple Matching Gifts Program
Charitable Adult Rides & Services, Inc.
Community Health Charities
EDJ Associates, Inc.
JPMorgan Chase & Co.
Martha Washington Straus-Harry H. Straus Foundation
MetLife
Microsoft Matching Gifts Program
PGA TOUR, Inc.
Potlatch No 1
Raptor Pharmaceuticals
The Chrysopolae Foundation
Wells Fargo- PSW Region
Wilcox Pipe & Supply Co.
$25,000 - $49,999
William & Margaret Fern Holmes
$5,000 - $9,999
$50,000+
A.A. Will Corporation
Active Network, LLC
Albert & Ethel Herzstein Charitable Foundation
The Gies Foundation
CHDI Management, Inc.
Lundbeck Inc.
HDSA 2013 ANNUAL REPORT
12
A Special Thank You to the
HDSA Heritage Club
Estate of Barbara L. Bell
Estate of Charlotte F. Calhoun
Estate of Edith Weiner
Estate of G. Mae Inglis
Estate of Helen B. Rostetter
Estate of John Heidelmeier
Estate of Muriel Naudts
Estate of Patricia A. Bauman
Estate of Rita Muriel Dougherty
HDSA 2013 ANNUAL REPORT
13
Huntington’s Disease
Society of America
OUR VISION
A world free of Huntington’s disease.
OUR MISSION
To improve the lives of people with
Huntington’s disease and their families.
HUNTINGTON’S DISEASE
SOCIETY OF AMERICA
505 Eighth Avenue
Suite 902
New York, NY 10018
212 242 1968
Helpline: 800 345 HDSA
www.hdsa.org
hdsainfo@hdsa.org