February 2006 - The Difference Day Health Makes - Bailey

BAILEY-BOUSHAY HOUSE
A nursing residence and day health center operated by Virginia Mason Medical Center
for people living with AIDS
February 2006
The
difference
Day Health
makes
I
Adult Day Health client Darrell credits the Day Health program with changing his attitude about
taking AIDS medications.
More
clients
struggle to
stay on
life-saving
meds
n 2005 the Adult Day Health program
served 40 percent more clients than the previous year.
“It’s true that AIDS has become a manageable disease,” says Brian Knowles, executive
director of Bailey-Boushay House. “But it’s
only manageable,” he explains, “for people
who have a place to live and who probably
aren’t struggling with disabling psychiatric
disorders.”
Some ADH clients qualify for Medicaid, but
for various reasons, including work history,
many do not. An extra $100-200 more per
month from social security, or another funding source, can put their income just over the
qualifying limit set by Medicaid.
Last year, for the first time ever, Bailey-Boushay used its entire grant allocation before the
end of the year. This increase in ADH clients
creates a special challenge for Bailey-Boushay
in 2006: to find new ways to pay for the rise in
“uncompensated care.”
The easy answer to balance the books is for
BBH to start turning people away. But there is
a strong belief that this is not the right answer.
For ADH clients, managing AIDS medications
is an overwhelming task. The structure they
find in Day Health helps them stay on their
meds and stay out of the hospital. Often, it is
their last resort.
Continued inside
as often as food lines are open for the homeless.
After six weeks at Bailey, Rick reports having
“energy back but I still have bad days. If I eat
right, live right, and take my meds, it’s a pretty
decent day. The side effects do slow you.”
Jay used drugs and alcohol “to erase the pain
and dying thing,” he says, “but it wasn’t working so I quit all that. I came to Bailey
to get away from the streets. I
look like I’m ‘too clean to be
homeless’ because I do my
laundry here and take a
shower. I need to keep a
positive mind.”
“Coming to Bailey-Boushay lifted my spirits,”
Jay says. “The meds put me
back on track. And the food
and the hospitality—it’s all posi-
got her own apartment. But she still needed help.
tive.”
sick I was in the hospital.”
“My whole house was dark—I didn’t want the
sun to come in,” she says. “I couldn’t talk to
anyone. I kept things shoved inside. I didn’t want
anyone to know I had AIDS.”
She came to Bailey to ”get out of the house and
not be depressed all the time.” What she
“I
t takes all
the stress out to
found was a welcoming community
that was “glad to help me with
my depression and meds. I
felt right at home. And I’m
be here… Ninety
percent of the stuff
I need to access I
can get here.”
Personal safety
is a top issue
Isolated and alone, Angela came to Bailey-Boushay to
get help with her medications and found a supportive
community along the way.
When all else has failed
Darryl was homeless, frail, and using
drugs when he reached a turning
point. Though he’d repeatedly tried to take his AIDS
medications, he couldn’t
follow the strict daily
routine they require to be
effective.
“Before I came to
Bailey,” he says, “my drug
usage was 99 percent and my
meds only 30 percent. When I
hit a 100 pounds, I said ‘Something’s
got to change.’ I weighed more than that in
second grade.”
He gained 12 pounds in his first three weeks
in the Day Health program. And after a month,
he admits candidly, “I use drugs 30 percent of
the time and take my meds 98-99 percent of the
time.”
Coming to Bailey has changed Darryl’s attitude
about staying on his AIDS medications.
“It takes all the stress out to be here,” he says.
“I get one week of meds at a time, my doctor
appointments are set, and I don’t have to find
a pharmacy that has the meds in stock. And it’s
not just meds: it’s the dietician, food, psychiatrists. Ninety percent of the stuff I need to access
and living on the
streets “you’re
living a lie.”
Nick’s a returning Day
Health client who wanted
to live a more normal life.
“Twice I tried living without
Bailey,” he says. “I wanted to leave,
get a job, have my own place. Twice I got so
Nick has recognized his need for psychiatric
counseling and a supportive community. “This
Life on the streets is dangerous for all. Fear
for personal safety is magnified for people living
with AIDS.
“You can’t be yourself when you’re homeless,” Jay says. “People still think AIDS is
gay only—they don’t know about needles
and unprotected sex. You have to be
an actor.”
Darryl agrees. When you
are HIV-positive and living
on the streets “you’re
living a lie,” he says.
“On the bus we say we’re
‘going to BeeBee’s house’
to keep people from knowing
where we’re going.”
The Day Heath program is a safe place.
“I don’t have to talk code in here,” Darryl says.
W
hen you
are HIV-positive
very proud to be here.”
keeps me thinking straight, keeps me thinking I
want to take my meds,” he says.
Being treated with respect makes the difference
for Nick. “They see the whole
“T
hey see
the whole picture
picture here, not just
you,” he says.
“We can talk about what the doc said.”
Connection builds strength
and hope
Angela was homeless for 20 months before she
equal access for all
Bailey-Boushay has never turned away
a client for their inability to pay for services.
Today, Bailey-Boushay is seeking additional funding from all areas including public and private
sources to ensure continued equal access for all.
Everyone can help by giving additional donations
to the Uncompensated Care Fund at BBH this
year.
Homelessness trumps everything
with food and as often as four times a day—twice
They don’t shame
here, not just a drug “It feels good to
addiction. They
be in a place of
acceptance.”
don’t shame
you.”
Maintaining
I can get here.”
Rick and Jay worry about returning to life on
the street where “drugs and alcohol are an ongoing situation,” Jay says. Both are in temporary
housing right now.
“If you’re HIV-positive and homeless,” Rick
says, “you’re lucky not to end up in the hospital.” He was in Swedish Hospital for a week
before coming to Day Health last October.
“It’s hard to tote around all the pills and keep
on schedule on the street. I’ve even had my bag
with my meds stolen,” he says. “Taking AIDS
meds is hard on a homeless person.”
Many HIV/AIDS medications must be taken
a drug addiction.
Nick came to Bailey to get away from the streets. He now feels motivated to take his
meds and live a more normal life.
Residential Care at Bailey-Boushay
House: Sharing the Path of the Very Ill
B
ailey-Boushay Residential Care
Program (RCP) cares for the very
ill – those who need round the clock,
expert care.
“As AIDS becomes more chronic, we are seeing
a rise in the need for full-time care,” says RCP
Social Service and Rehab Manager, Ed Lorah.
“A person on HIV/AIDS meds may have stable
health and be doing okay, but if they contract an
infection, their weakened immune system may
not be able to fight it off. Today, our beds are
always full.”
Although today’s AIDS medications are powerful, they cannot work indefinately. If a bed
is available, patients dying from illnesses other
than HIV/AIDS may also be admitted to RCP
where the nurses and staff focus on the individual needs of their patients.
Bailey-Boushay’s philosophy for hospice care
is simple: to help the dying, and their loved ones,
prepare for death on their own terms. “I think of
our work with the dying as meeting residents on
a path and walking with them,” says Ed Lorah.
Briefs
Briefs
Briefs
Applause
Applause
Applause
Recent Gifts from:
“We follow their lead.”
As Bailey-Boushay continues to evolve to meet
the changing needs of HIV/AIDS patients and
clients, a particular ritual lives on – the tradition known as “the quilt.” When a resident dies
at Bailey-Boushay, a handmade quilt is laid over
the body in its honor. The quilt remains in place
when the body is escorted to the mortuary van,
and then the quilt is brought back to the room
and put over the empty bed. As loved ones gather
up the resident’s belongings and prepare to leave,
the quilt is quiet testimony to their loss, and a
symbol of comfort and family, peacefulness and
beauty.
Honorary Chair Steve Cain,
Waterfront Seafood Grill
Daniel Molina, Bailey-Boushay House
Chris Hartfield, Bandoleone
Jarrett Messenger, Bell Harbor International
Conference Center
Holly Smith, Cafe Juanita
Joseph Jiménez de Jiménez,
The Harvest Vine
Kaspar Donier, Kaspar’s Special Events
& Catering
James Drohman, Le Pichet
Marc Van Mulken, Lola
Scott Staples, Restaurant Zoë
Thierry Rautureau, Rover’s
Ted Mathesius, Sazerac
Walter Pisano, Tulio
A special thank you to Columbia Hospitality, managers of the Bell Harbor International Conference Center, for their continued support hosting our
Aboda
AmeriNet/Health Resource Services
The Basketball Club of Seattle
Estate of Paulyne Batchelor
Charles See Foundation
Crothall Services Group
Dalio Family Foundation, Inc.
Gilman Family Foundation
Glaser Foundation
Imperial Sovereign Court of Seattle
Kasin Family Foundation
Kelley-Ross Prescription Pharmacy
Marler Clark Attorneys at Law
The Medtronic Foundation
Microsoft Corporation
Nesholm Family Foundation
Office Depot
Premera Blue Cross
Estate of Terry Reiniger
Seattle Foundation
Woods & Associates
ZymoGenetics, Inc.
Volunteers Matthew Behrle and Rudy
Gillespie for decorationg the BBH lobby for the
holidays.
Molly, Stephanie and other instructors from
the Samarya Center for coming in every week to
work with Residents.
Holiday music from the Dickens Carolers,
Seattle Men’s Chorus Adonis Ensemble, and
the McGilvra School 4th grade class.
Michael Cupples and the Gillette Company
for donating health care and personal grooming
supplies for our clients.
Rover’s Restaurant and Chef Thierry
Rautureau for hosting the annual BBH Board dinner.
Living Room Concerts Performers: Julie
Baldridge (improvised violin music) and Horn
(Trombone quartet & guitar/violin duet).
2006 Chefs’ Dinner. Additional thanks to Presenting
Sponsor Marler Clark, LLP and our event underwriting sponsor MAC VIVA GLAM.
Bailey-Boushay House
Permanent Art Collection
Thank you to the following artists and donors
who contributed to the Bailey-Boushay House
permanent art collection on the 2nd and 3rd
floors of the Residential Care Program. We are
grateful to Judy Tobin and Gail Grinnell for
After a rousing round of applause, chefs (front row)
procuring all the artwork. Thank you for surJarrett Messenger, Joseph Jimenez de Jimenez, Walter
Pisano, Thierry Rautureau, (back row) Jason McClain, rounding us with beauty!
Steve Cain, and Ted Mathesius gather for a photo.
Chefs’ Dinner a Grand
Success
Nearly 450 guests attended the 14th annual
Bailey-Boushay House Chefs’ Dinner, raising a
record $160,000. Thank you to all of our guests
and the Chefs who made this dinner an amazing
success:
Juan Alonso
Kathryn Altus
Nita Brautlacht
Elizabeth Bryant
Rachel Brumer
Pat De Caro
Catherine Cook
Linda Davidson
Nancy Edelstein
Lucia Enriquez
Brittany Faulkner
Francine Seders
Gallery
Helen Gamble
Gail Grinnell
Paul Goode
Victoria Haven
Eva Isaksen
Karen Kosoglad
Lisa Harris Gallery
Bev Martin
Cameron Martin
Mia McEldowney
Beth Sellars
Matthew Sellars
James Sutherland
Whiting Tennis
Laura Thorne
Judy Tobin
The collection also contains work by Claudia
Fitch, Brian Kershisnik, Joe MacFarlane,
Shirley Scheier, and Bob Seng.
“Glisten 2003” by Nancy Edelstein is part of the
BBH permanent art collection.
NONPROFIT ORGANIZATION
U.S. POSTAGE
PAID
PERMIT NO. 4636
SEATTLE, WA
Operated by Virginia Mason Medical Center
2720 East Madison Street
Seattle, WA 98112
ADDRESS SERVICE REQUESTED
INSIDE:
The Difference Day Health Makes
what’s happening
February 14
Valentine’s Day
Drive by BBH and see our thank you to the
Community for all your support.
April 23-29
National Volunteer Appreciation Week
We are made to persist.
That’s how we find out who we are.
Tobias Wolff, ‘In Pharaoh’s Army’
May 13
Dreambuilders’ Ball
Dreambuilders Ball is an annual gourmet
dining and premier entertainment experience,
held at The Westin Seattle to benefit the Floyd
& Delores Jones Cancer Institute at Virginia
Mason Medical Center.
June 19
BBH Anniversary Party
Cafe Flora is a festive summer evening tradition. Enjoy delicious food, fine wines, cold
microbrews, music and terrific silent auction
items, all to benefit Bailey-Boushay House.
Upcoming Artist
Exhibits
In the BBH Lobby Space Gallery:
January and February – Ariel Vik
March and April – Lane Hill
Editor .................................................................................................... Jeanne Lamont
Contributors ..............................................................Ellie David and Jane Hensler
Graphic Design ....................................................................................Fusion Studios
Photography ..................................Paul Joseph Brown, and Team Photogenic
Homefront is published by the Bailey-Boushay
House Office of Development. For placement of
stories or information of community interest, please
contact:
Bailey-Boushay House
2720 E. Madison St.
Seattle, WA 98112
(206) 322-5300
www.virginiamason.org/bailey-boushay
Bailey-Boushay House does not discriminate against qualified persons
in admissions, services or employment on the basis of age, disability,
national origin, sex, sexual orientation or any other basis prohibited by
local, state, or federal law. These laws include, but are not necessarily
limited to, Section 504 of the Rehabilitation Act of 1973, the Civil Rights
Act, the Americans With Disabilities Act, the Washington State Laws
Against Discrimination, and the City of Seattle’s Anti-Discrimination
Ordinances.
Printed on recycled paper.
Copyright 2006 VMMC FORM 95574 (2-06)