WFRtDS Newsletter 62 can be downloaded here.
Transcription
WFRtDS Newsletter 62 can be downloaded here.
CONFERENCE Issue SWISS CONFERENCE JUNE 13-16, A HUGE SUCCESS For four days, 105 delegates (and their partners) from 40 right-to-die societies in 30 countries met in Zurich to transact the business of the World Federation, to hear and give papers, to socialize, and to tour this charming and graceful city. Saskia Frei, President of EXIT Deutsche Schweiz, welcomes delegates at opening reception Bernhard Sutter, EXIT vicepresident and conference organizer, also served as tour guide before and after the conference. WORLD FEDERATION BOARD OF DIRECTORS 2012 - 2014 Neil Francis, President (Australia) Faye Girsh, Vice President and Newsletter Editor (USA) Berit Hasselmark, Secretary (Sweden) Ron Plummer, Treasurer (UK) Berit Hasselmark Rodney Syme August 2012 Faye Girsh Soichiro Iwao Soichiro Iwao (Japan) Jean Jacques Bise (Switzerland) Rodney Syme (Australia) Rob Jonquière, Communications Director Ron Plummer Jean Jacques Bise Neil Francis, WF President and President of Your Last Rights and Death with Dignity Victoria, Australia Rob Jonquiére World Right-to-Die Newsletter-1 NEW ORGANIZATIONS ADMITTED TO WF MEMBERSHIP SOARS (Society for Old Age Rational Suicide) – Based in England, established 2009, by Dr. Michael Irwin, to change the law so that elderly individuals suffering non terminal health problems can get a physician’s help to die. www.soars.org.uk Farewell Foundation – Based in Canada, established 2011, by Russel Ogden, to provide help in dying in the presence of unbearable suffering at the request of a competent individual, based on the Swiss model, when assisted dying becomes legal in Canada. www.farewellfoundation.ca Life Circle – Founded in 2012, in Bern, Switzerland, by Dr. Erika Preisig to offer services similar to those of Dignitas, but with an emphasis on keeping people alive as long as possible with palliative care. The Eternal Spirit Foundation will administer the program. www.lifecircle.ch Ultime Liberté – Founded in 2011, in France, to advocate for the right to an assisted death, without the help of a physician. http://ultimeliberte.fr RECIPIENTS OF 2012 WF AWARDS Health Professional Award FRANCO CAVALLI, Oncologist (and former member of the Swiss parliament). Kept assisted suicide on the political agenda in Switzerland, and has helped the RTD movements in France, Germany and Italy Tenrei Ohta Award LUDWIG MINELLI, Human rights attorney, Founder and Director of Dignitas, permitting non-Swiss citizens to obtain physician aid in dying in Switzerland Marilyn Seguin Award RUSSEL OGDEN, academic researcher on deathing methods, founder of Farewell Foundation, Canada 2-World Right-to-Die Newsletter Issue No. 62 OTHER WF BUSINESS A proposal was made to permit Individual Membership. Delegates authorized the board to present a plan to implement this by December. Currently the number of members equals the number of member organizations, but there has been interest from individuals who have no member organizations to belong to and would like to support the work of the WF. The Treasurer’s Report by Michael Irwin, indicated some discrepancies between dues from members of Right to Die Europe, where some member organizations chose to give their 1% of income to RTDE rather than the WF. The treasurer is authorized to resolve these discrepancies. Michael Irwin Neil Francis spoke about the use of computerized data to develop a data bank with information on our opponents, to better challenge them in debates and in the media. Ted Goodwin, WF Past President, delivered his address detailing the encouraging progress toward increasing choice in the world in the past two years. He warned, though, that unity of the WF is extremely important to maintain the progress that has been made. Ted Goodwin Rob Jonquiére, WF Communications Director, explained all the facets of the WF website (www.worldrtd.net), which are available to the public. He has developed this to become a hub of information, which can be shared by the member organizations. He requests data from members, so that it can be centrally located on the WF website. It will be available in several languages. Rob Jonquiére Future meetings: The meeting of Right to Die Europe will be held in Rome, June 2013, hosted by Libero Uscita. The next WF congress will be hosted in September, 2014, by the Final Exit Network in Chicago. GOOD NEWS DURING THE CONFERENCE: BRITISH COLUMBIA Adding to the celebratory atmosphere of the conference, on Saturday there was a favorable ruling by a Supreme Court judge in British Columbia, Canada. Responding to a case of a woman with ALS (Motor Neuron Disease) brought by the B.C. Civil Liberties Association, Judge Lynn Smith ruled that Canada’s laws against assisted dying are unconstitutional. Her ruling allows the Canadian parliament a year to draft new legislation. The plaintiff, Gloria Taylor, would be granted an exemption, and permitted to find a doctor to provide assistance if she chooses to end her life before before the end of a year. Russel Ogden, whose Farewell Foundation was one of the original plaintiffs, was congratulated by all for this victory. August 2012 Gloria Taylor World Right-to-Die Newsletter-3 PRESENTATIONS: PANELS, SPEAKERS, POSTERS From Thursday afternoon, where there were four speakers or panels, to the end of the day on Friday, which was a Public Day where the audience enlarged and simultaneous translation was available, there was a constant flow of information, debates, posters, and an impressive variety of approaches to the common problem of expanding end of life choices. Here are some highlights: Mr. Yukio Matsuo gave a moving account about his wife who was rendered uncommunicative, except through blinking, following an auto accident. Because a patient in Japan cannot refuse treatment, she lived almost 3 years, though expressing her wish to die. Sir Terry Pratchett spoke about his unusual form of dementia and his wish to know that he could end his life when he wished. Most of his speech was given by a friend but Sir Terry was around the conference and happily conversing with the media and fans. Sir Terry Pratchett Yukio Matsuo Richard N. Côté, author of “In Search of Gentle Death”, reviewed developments in the Americas, including the recent British Columbia decision and the energetic movement in Quebec. The US has had the Montana decision and the Final Exit Network cases. Dr. Alfonso Quintana’s public declaration of performing euthanasia in Colombia and the ADMD organization in Venezuela were discussed. Richard Côté Dr. Roger Kusch The situation in Germany was discussed by Dr. Roger Kusch, attorney and former Justice Minister. He indicated that several people have received assistance in dying through his organization, SterbeHilfeDeutschland. Dr. Philip Nitschke, head of Exit International based in Australia, argued that the availability of the means for a peaceful death would make it unnecessary for individuals to prove to anyone that their needs are worthy. In addition, legislative efforts are slow and restrictive. Dr. Philip Nitschke Ludwig Minelli, founder of Dignitas, made a case that prevention of suicide attempts, which are at least 10 times higher than actual suicides, could be accomplished by acknowledging that suicide could be a rational choice. A non-moralizing conversation about the wish to stop living and to offer assistance can prevent failed attempts. Ludwig Minelli Andreas Brunner, attorney general for the Canton of Switzerland, noted that the five Swiss organizations offering assistance in dying, have expanded the criteria beyond terminality, to chronic illness, and even old age. He advocates for a clearer definition of the practice of assisted dying, without restricting the practice. He envisions this beginning in Zurich and later to be adopted nationally. Beautiful Switzerland 4-World Right-to-Die Newsletter Issue No. 62 A VISIT TO DIGNITAS On Saturday morning Dignitas graciously invited people to a reception at their house outside of Zurich and, later, to their administrative headquarters in Forch. It was a beautiful day – the good news from Canada added to the joy of the occasion – and the hospitality was enhanced by excellent Croatian food and good wine poured by Ludwig Minelli himself. Sylvan Lully was the friendly guide and organizer. Sylvan Lully, Assistant to Mr. Minelli Faye Girsh, Ludwig Minelli and Dick MacDonald Dr. Libby Wilson who has helped many get to Dignitas thru FATE Delicious Croatian Spread The Dining AreaEnjoyed by Bina Divon and Nimrod Cinnamon from Lilach, Israel One of 3 bedrooms Mr. Minelli feeding the koi Back and front neighbors August 2012 World Right-to-Die Newsletter-5 SO MANY PEOPLE, SO LITTLE SPACE (Apologies to the many whose pictures did not fit on this page) Maria Palomba, FATE, UK Ans Baars, NVVE Dr. Chris Arnold, Germany Mirelle Kies, ADMD-L, Luxembourg Ellen Barfield & Larry Egbert, Final Exit Network Wendell Stephenson, Pres, Final Exit Network Maia Chenaux – Repond, Final Exit Zimbabwe Avd Wildenberg, NVVE, Netherlands Bev Hurelle, VES, New Zealand 6-World Right-to-Die Newsletter Jim Preece, Farewell Foundation Marthy Putz, ADMD Luxembourg Peter Warren, FATE UK Elke Baezner, DCHS, Germany Nathalie Andrews, ADMDFrance George Felos, Atty for Michael Schiavo Rossana Cecchi, Libera Uscita, Italy Aycke Smook, de Einder, Netherlands Katherine Svec, Dying with Dignity, Canada Issue No. 62 NU TECH MEETING (New technologies for self-Deliverance) Though not an official part of the World Federation program, NuTech has been meeting in conjunction with the conferences to introduce and evaluate new methods for self-deliverance, especially since medication has become increasingly difficult to obtain. A well-attended meeting on Saturday, heard 6 provocative speakers. ERGO (Derek Humphry, president) sponsored the program, which Faye Girsh organized and moderated. Richard Côté (USA), who gives an extensive history of NuTech in his book, “Search for Gentle Death”, introduced the session with a short slide show of methods developed by NuTech over the past 15 years, including the helium method (see page 8 for a review of his book). Dr. Boudewijn Chabot showed his new DVD on the use of helium and the making of an exit bag. He also discussed research on the decrease in oxygen consumption during the inhalation of helium (see page 8 for a review of the DVD). Dr. Chabot’s work on methods of dying, particularly non-medical methods, are well known to the RTD community (though some publications are in Dutch). Neal Nicol Boudejwin Chabot Neal Nicol (USA), long time associate of Jack Kevorkian’s, demonstrated his prototype of a selfadministered device, which compresses carotid arteries. This has not actually been tried on humans, but operates like a choke hold. John Todd (Australia) demonstrated a chemical method to generate carbon monoxide, based on Philip Nitschke’s coGenie. He states this has proved a successful, painless and rapid method. John Todd Tijn Hagen Tijn Hagens (de Einder, Netherlands) counsels people not accepted for VE, about alternate methods. He showed a chart of medications that can be more easily obtained than barbiturates, and can be taken in combination. He also describes the helium method, and refusal of food and fluids as alternatives. Dr. Rodney Syme (Australia) has helped people die and works to change the law. He asked what method would be used if they were successful in legalizing assisted dying. He pointed out that veterinarians use Nembutal routinely, and it is not expensive, but is completely unavailable for human use. Rodney Syme SWITZERLAND’S FIVE ORGANIZATIONS Though most countries do not have even one organization that can provide a peaceful death, Switzerland has 5 such organizations. Voluntary euthanasia is not permitted by law, but physician aid in dying has long been a legal option. Uniquely, the last 3 of these groups provide assistance to non-Swiss citizens. 1. EXIT Deutsche Schweiz (Zurich) 2. EXIT A.D.M.D. Suisse Romande (Geneva) 3. Dignitas (Zurich) 4. ExInternational (Berne) 5. Life Circle (Basel) Dr. Jerome Sobel, President, Exit ADMD Suisse Romande Life Circle is the latest addition to the World Federation. It was founded by Dr. Erika Preisig, who was working with Dignitas, but founded this new organization which also accepts non-Swiss members – but will stress the possibilities of palliative care, advance directives and terminal sedation to extend life, if possible. She established the Eternal Spirit Foundation to encourage doctors to accept assistance in dying. August 2012 Erika Preisig World Right-to-Die Newsletter-7 Books and dvds Book IN SEARCH OF GENTLE DEATH DVD THE HELIUM METHOD: Dying at Home with Helium by Richard N. Côté 2012, Corinthian Press 405 pages www.corinthianbooks.com by Boudewijn Chabot, M.D., Ph.D. Available at www.heliumdyingathome.nl In 3 languages: Dutch, English & German. This book is a new, highly readable, encyclopedic current history of the contributors to end of life choice. He does not dwell on the obvious legal changes, but gives thorough, well-researched accounts of developments, and individuals who are operating within and on the edge of the law. It is appropriate that this book make its debut at the WF conference showing, as it does so well, the universality of this effort, and the diversity of the many approaches invented to accomplish the ultimate civil liberty. Côté interviewed more than 100 people around the world, and has carefully documented legal decisions, research, and statistics. The book is a monument to many who might otherwise have receded into oblivion. A must read. This is a professionally acted and produced film, sensitively describing the use of the helium method, with a detailed description of how to make the hood and how to use the method. Narrated and described by a professional actor in an elegant home setting, it differs from the Final Exit DVD by Derek Humphry in a few details of bag construction. Dr. Chabot is well known in the RTD movement, and most recently for his research on non-medical methods. Final Exit Network 2014 WORLD CONFERENCE in CHICAGO Century Club With deepest gratitude to those who contributed $100 or more in the last 8 months: Dr. David Allan Janet Conn George Eighmey Irma Gawboy Faye Girsh Dr. Richard MacDonald Ron Plummer Lester Reinig Ruth von Fuchs You can contribute to the Century, or Millennium Club, or become a subscriber (US$20, or equivalent, for 2 years) by sending a check, made to World Federation, to: Faye Girsh, Editor 7811 Eads Ave., #108 La Jolla, CA 92037 USA This newsletter can be read and downloaded at www.worldrtd.net The editor can be contacted at fayegirsh@msn.com. Graphic Design and Printing by MILLENNIUM CLUB ($500 or more) Jean Cartnell (New Zealand) Thank you all!!! 8-World Right-to-Die Newsletter 1116 Silverado St., La Jolla, CA 92037 • Tel 858.454.3158 • Fax 858.454.2214 info@printomat.net • www.printomat.net Issue No. 62