2004-05 Spring: Issue #2

Transcription

Spring 2004-05
President’s Message p. 2
Research p. 3-4
Health Care Professional p. 5
Number 2
Managing Multiple Sclerosis p. 6-9
Advocacy p. 20
Special Events pp. 34-35, 37-39
Central Pennsylvania Chapter
Message of Love and Hope
I
Page 19
Page 22
Page 32
Page 37
magine being 12 years old,
your mom diagnosed with a
chronic illness and you
noticed a letter from the
National MS Society requesting
donations to help in the efforts of
research that is going on nationally and to help end the devastating
effects of multiple sclerosis. Most
children would not even have
noticed the letter, but Marcy Herr
is not like most children. Marcy
Herr, a seventh grader at Manor
Middle School in Lancaster
County, is someone who wanted
to make a difference and become
an active participant in the important call for help.
Marcy wanted to participate in
these very worthy fund raising
efforts however, Marcy stated, “I
didn’t have a job, so I didn’t have
any money to give.” That is when
Marcy got the idea to give
fundraising a try. She secretly
went into her mother’s address
book and proceeded to write a
letter to their closest relatives and
friends asking for prayers and to
help with her surprise, by making
a loving donation to the National
MS Society in honor of her mom.
In the letter, she described how
MS affects her mother, Lydia. She
also stated in her letter that the
money she raised would go
towards new drugs; research for a
cure, and to promote awareness.
She encouraged
“MARCY HERR,
their friends to
go to a web site a 12 year old,
for more inforis someone
mation about
who
multiple sclerosis. wanted to
The letter
make a
touched so many difference.”
hearts. Marcy collected over $900
in donations and presented her
surprise to her tearful mom at
Christmas.
Our thanks to Marcy and her
family for allowing us to share
with our readers how MS is seen
through the eyes of a child. Here
is a quote from Marcy that she
shared with us about her mom
and her family.
(continued on page 23)
SPRING
2004-05
MS Connection
(717) 652-2108 / (800) 227-2108
Chairman
Anthony J. Schiano
CHAPTER PRESIDENT
Message
from the
Chapter
President
T
Vice Chairmen
Ronald J. Drnevich
Brian Kauffman
Todd J. Shill
Thomas J. Sposito, II
hough having
multiple sclerosis Margie Adelmann
can significantly
change an individual’s life, it also
unites people with MS and all of their loved
ones in an extended family in A CIRCLE
OF HOPE, joining together to end the
devastating effects of MS. We have
numerous Partners in Hope in Central
Pennsylvania.
Past Chair
John M. Hubley
Secretary
Walter F. Froh
Treasurer
John Laudeman
Chapter President
Margie Adelmann
Newsletter Editor
Debbie Rios
The National Multiple Sclerosis Society
does not endorse products, services or
manufacturers. Such names appear
here solely because they are considered
valuable information. The National Multiple
Sclerosis Society assumes no liability for
the use of contents of any product or
service mentioned.
Information provided by the Society is
based upon professional advice, published,
experience and expert opinion. Information
provided in response to questions does not
constitute therapeutic recommendations or
prescriptions. The National Multiple
Sclerosis Society recommends that all
questions and information be discussed
with a personal physician. The National
Multiple Sclerosis Society is dedicated to
ending the devastating effects of MS.
© 2004 National Multiple Sclerosis Society,
Our partners are our VOICES OF HOPE,
keeping hope alive. They are MS clinicians
and investigators who serve as volunteers to
guide the Society’s research funding and
medical information. They are health-care
professionals who staff MS clinics or practice
in communities and volunteer on our many
professional committees. They are teenagers
who pitch in at fund-raising events. They are
people with MS who serve as self-help group
facilitators, friendly visitors, fundraisers, public policy advocates, and more. The Society
has corporate sponsors, major donors, and
grassroots contributors. Thanks to them, we
are here to provide support when someone
receives a diagnosis of MS.
A diagnosis of MS can affect the entire family’s life. In this issue of our newsletter you
will learn about some of the family programs we offer. FAMILIES FIND HOPE by
attending programs together or participating
together in our special events, like our MS
Walk. You can read about one of our special
families profiled in this issue. And you can
nominate a special person to be recognized
2
Toll-Free Number: 1 800 FIGHT MS
RESEARCH
Research Advocate Corner
B
iogen Idec Suspends Marketing
of Tysabri - The National
Multiple Sclerosis Society was
distressed to learn of the unfortunate adverse events that have occurred in
two patients treated with Tysabri in combination with Avonex in clinical trials. Our
deepest sympathies go out to both families. We commend the quick action
Biogen Idec and Elan Corporation have
taken in voluntarily suspending use of
Tysabri while they investigate the possible
link between Tysabri and PML (progressive multifocal leukoencephalopathy), a
rare but frequently fatal viral disease of the
brain. It will be disappointing if the investigation suggests that Tysabri cannot be
safely returned to the market as a therapy
for multiple sclerosis. There are five other
approved disease-modifying therapies
available for the treatment of MS. We are
reaching out through all avenues to advise
Society membership as new information
becomes available. For the FDA statement
on this matter, please visit:
http://www.fda.gov/cder/drug/advisory/na
talizumab.htm
Another study published in December,
2004 compared the nursing home experiences of African Americans and nonHispanic whites with MS. The researcher
found that African Americans did not
receive higher levels of the various therapies offered in nursing homes even
though they were more physically and
cognitively disabled than whites. The
researchers noted that the differences may
be due to many variables, such as a more
severe MS course, the presence of other illnesses (e.g., high blood pressure), an earli-
er age of onset and payment source. More
research is needed to
fully study the racial differences in multiple
sclerosis.
Sandra (Sandy)
O’Sullivan,
RN, MS
In a paper in the British
Medical Journal,
researchers reported on
a study investigating the possible relationship between the month of birth and the
risk of developing multiple sclerosis. The
findings were that more individuals with
MS were born in May and slightly fewer
than expected were born in November.
Researchers agree that people who have
genes that make them susceptible to MS
encounter something in their environment that acts as a “trigger” for the onset
of the disease. However, the slight link
between the birth month and the development of MS does not give any direct clues
as to the factors that might be involved in
the development of MS.
Studies of antioxidants to help prevent or
control MS are underway. The health benefits of these agents (prevent cancer, heart
disease, cataracts, etc) are known, but
could they also work in preventing or
stopping MS is the question under study.
Since vitamins A, C, and E are the antioxidants in wide use by the public this is an
important study. Antioxidants are known
to stimulate the immune system and since
MS is a disease with an overactive
immune system, it is widely accepted that
over-stimulation of the immune system
may be dangerous and should be avoided.
Much more study needs to be done before
(continued)
Visit our Website at: www.nationalmssociety.org/pac
3
SPRING2004-05
RESEARCH
(continued)
such agents can be considered safe and
effective treatments for people with MS.
The time when women with MS were discouraged from having children because it
might make their MS worse is long gone,
and pregnancy is no longer discouraged.
Pregnancy has now been found to be beneficial or non-threatening in most women
with MS. Research into the possible benefits of pregnancy on the woman with MS
are still on-going. Three studies were
reported at the 2004 Congress of the
European Committee for Treatment and
Research in MS. These studies found that
medications being used to reduce MS
relapses or progression were safe to use
during and after pregnancy, that hormone
fluctuations may be part of the increase in
relapses post delivery and that the administration of immunoglobulin antibodies
after delivery may reduce the relapses after
delivery.
As the population ages, so do persons
with MS. As a result a new study is beginning in Canada and the United Kingdom
testing a possible treatment for secondaryprogressive multiple sclerosis. A larger MS
Society funded study is exploring the
impact of aging on persons with MS and
identifying their health and quality of life
needs to develop strategies for improving
life for older persons with MS.
A clue has been found to the question of
why women develop MS more often than
men. Men have the gene variant that causes high levels of interferon gamma less
often than women. The research found
that if a gene is present that produces high
4
levels of interferon gamma, (i.e., in most
women) it may predispose you to developing MS.
In an Australian study reported in the
January, 2005 issue of the Journal of the
American Medical Association, it is suggested that the longer people (in the first six
years of life) were cumulatively exposed to
any siblings younger than two years, the
more reduced their risk of developing MS.
More study is needed to investigate
whether early exposure to infectious
agents is “protective” against the development of MS.
There is new progress in understanding
myelin repair. Myelin is the substance that
insulates nerve fibers and is a major target
of the immune attack that occurs in MS.
Myelin repair would help to alleviate the
nerve damage from MS and would be a
major development in the treatment of
MS. More information on the findings
will be forthcoming as they are published.
The National MS Society has given funding to new research in February. Geneinstruction of immune messenger proteins, immune cells that inhibit MS-like
disease in rodents and study of a rodent
model that develops a severe, unusual
form of MS-like disease in the brain and
not the spinal cord were funded.
Please continue to support the research
into this disease.
ASK THE HEALTH CARE PROFESSIONAL
Establishing an Effective Relationship
with your Health Care Professional
O
ne of the most common complaints I encounter in my work
with people confronted by illness – whether it’s MS or some
other chronic illness – involves some sort
of dissatisfaction with one or more of the
health care professionals involved in their
care. There are many reasons for this but
often, after more fully exploring the issue
with my client, I find that the problem
involves relational difficulties and a fundamental difference in understanding
between the patient and the health care
professional. Expectations are not always
the same and/or expectations may not be
clearly communicated. Consequently
both the patient and the health care professional may leave an encounter disappointed or unsatisfied.
Several decades ago, the role of physician
and patient was clear; the doctor was the
all-knowing healer and the patient was the
passive recipient of all the doctor had to
offer. Consequently there was less room
for misunderstanding. Nowadays few
health care professionals and few patients
accept this paternalistic form of health
care as ideal. Today, most people would
describe the ideal relationship between
health care professional and patient as
that of a team; professionals are the
experts on MS in general, people with MS
are the experts on their specific MS.
Working closely together, each team
designs the treatment package that best
fits this particular person with MS.
So what can you do to foster this kind of
relationship with your health care professional? First, know your job: You are the
expert on your life and
your MS. Pay attention to
yourself. Ask yourself
questions about your:
• Physical symptoms:
Janneke van
Beusekom,
What are they? What aggraLCSW
vates them and what
Therapist at Life
relieves them? Which
Management
symptoms are the most
Associates in
problematic for you?
Lancaster
Specializing
in
• MS medications: How
are you tolerating your MS chronic illness
medications? If you’re
having problems with them, what do you
want to do? Do you want to try another
medication? Do you want to stop it altogether because the side-effects aren’t worth
it? Or are you able to tolerate the sideeffects?
• Family and MS: How is MS affecting
you and your family? What’s the biggest
problem? How could a health care professional help you with that specific issue?
• Work and MS: The questions here are
similar to those for family and MS. How
is MS affecting your work? What’s the
biggest problem? How could a health
care professional help you with that?
Answering these questions for yourself
will have you prepared for your discussion
with your physician or other health care
professional. If you’ve done this kind of
self-examination – for example, you’ve
decided that fatigue is the physical symptom that’s the biggest problem right now,
you’re having side-effects from your
fatigue medication, fatigue is especially an
issue on week-ends when the kids are
5
MANAGING MULTIPLE SCLEROSIS
SPRING2004-05
Preventive Care: Are People With MS Getting It?
T
ooth decay, cancer, heart disease –
people with multiple sclerosis can
get them too. Are they
taking measures to prevent these conditions? This was
the question posed by William
Frey, PhD, and colleagues (WESTAT, Rockville, MD) in conducting
the “National Study of the
Utilization of Health-Promoting
and Preventing Measures
(HPPM) in MS,” a Health Care
Delivery and Policy Research
project commissioned by the
National MS Society.
“HPPM is a national issue, but there are a
number of issues specific to MS,” says Dr.
Frey. “Physicians’ recommendations might
be incompatible with what people can do.
For example, women who use wheelchairs
may not have access to a radiology facility
to get mammograms. Some research suggests that people with MS may only see a
neurologist, and not a general practitioner,
so non-neurological health issues may be
missed. We don’t know how extensive this
is and how it impacts preventive care.”
Frey and colleagues conducted interviews
with 2,554 people from the Society’s
membership list – a sample that reflected
a range of geographic regions and rural vs.
urban areas. By and large, individuals with
MS reported utilization of HPPM at levels
equal to or better than the general population. This finding suggests that, in most
cases, people with MS and their health
care providers are paying appropriate
attention to non-MS health issues.
• 19% of people with MS see only a neurologist for health care and do not have
another primary care physician –
a lower number than anticipated,
says Frey. However, it is important
to note that these individuals
were less likely (than those who
also had a primary care physician) to participate in preventive
measures such as cholesterol
checks, mammograms, pap tests,
and prostate screening.
• More than 98% of people with
MS have a health care plan
(health insurance, Medicare,
Medicaid, or enrollment in a managed
care organization). The few who did not
were less likely to use HPPM. (Frey speculates that this may be because HMOs and
similar plans require contact with a primary care physician.)
• Women with MS were more likely than
men to eat healthily, visit the dentist, and
undergo colorectal cancer screening.
• Although more than half of those with
MS did not follow recommendations of
the U.S. Preventive Services Task Force
(USPSTF) regarding screening for colorectal cancer (i.e., screening every five years
for people over the age of 40), they did so
more often than the general population.
People with MS exhibited lower levels of
high-risk behaviors (binge drinking, multiple sex partners, HIV risk behavior, and
cigarette smoking) than the general population. Frey points out that a “substantial
portion” of the MS population (21.6%)
indicated that they smoke, a percentage
only slightly lower than the general population (22.5%); nearly half of these smok(continued)
6
(continued)
ers said that their physician had counseled
them to quit smoking.
“We also found that access to care for people with functional limitations is a
tremendous issue,” says Frey. “Persons
who use wheelchairs had a lower probability of getting preventive services such as
a mammogram, getting weighed or visiting the dentist.”
Overall, this study provides good news:
people with MS engage in health care promotion or preventive measures as much
as or more than the general population.
An important goal for the future is to
work toward filling gaps in preventive care
through education and reform of health
care practices.
Preventive Care Recommendations for Adults with MS:
The Basic Facts
Medical Tests:
Blood Pressure & Pulse
Height & Weight (Technically not a
test, but important to track)
Hemoglobin, complete white blood
cell count with differential, platelets
and liver function test
Urinalysis
Chest X-Ray
Electrocardiogram (EKG/ECG)
Total skin exam
Dental Cleaning and Examination
Fasting Cholesterol (with HDL, LDL
& triglycerides)
Thyroid
Vision/Glaucoma
Recommendations:
Yearly if normal.
Yearly if normal. Assess for both under and over
weight problems.
Test at initiation of interferon therapy; repeat in
one month, then every three months thereafter.
Yearly and following the completion of treatment
for a urinary tract infection, as per physician
recommendation.
Discuss with health-care provider.
Discuss with health-care provider.
Discuss with health-care provider. Sun avoidance
and sunscreen use are recommended.
Every 6 months. (Note: If daily tooth care
becomes difficult, discuss with health-care
provider and consider electric appliances.)
Every 5 years starting at age 20.
Consider for women age 40 and older and for
anyone with symptoms of fatigue.
Every 2-4 years for ages 40-65, then yearly.
7
M A N AG I N G M U LT I P L E S C L E R O S I S
Medical Tests:
Stool for Occult Blood
Sigmoidoscopy/Colonoscopy
Hearing
Bone Density Test
PPD (purified protein derivative)
Fasting Blood Sugar
Women Only
Pap smear
Clinical Breast Exam (by health
care provider)
Self Breast Exam
Mammogram
8
SPRING2004-05
Recommendations:
Yearly (three stool guaiac cards) starting at age 50.
Every 5 years starting at age 50 for
sigmoidoscopy or every 10 years for colonoscopy.
Begin screening high-risk individuals earlier.
Consult with physician about frequency.
(Reference: America Cancer Society)
Every 5 years over age 50.
Once, for everyone with risk factors including
prolonged use of steroids or anticonvulsants, a
family history of osteoporosis, and a sedentary
lifestyle. Retest periodically, especially women
near onset of menopause.
Every 1-2 years if at high risk for tuberculosis
(including health-care workers, persons with HIV,
persons living in areas where TB is prevalent).
Every 5 years starting at age 20. More frequently
than every 5 years for those with risk factors such
as obesity or family history of Type II diabetes.
At least every 1-3 years for women who are or
have been sexually active and have a cervix. The
American Cancer Society recommends initiation
no later than age 21. Other organizations
recommend age 18 because of the high
prevalence of sexual activity.
Yearly.
Monthly.
Every 1-2 years starting at age 40. (The American
College of Obstetricians and Gynecologists
recommends every 1-2 years from age 40-49 and
annually over 50 years. The American Cancer
Society recommends annually starting at age 40.)
If there is a family history of breast cancer,
consult with a physician about appropriate
beginning age.
Medical Tests:
Men Only
Prostate exam (digital rectal exam)
PSA (prostate specific antigen) test
Clinical Testicular Exam (by health
care provider)
Testicular Self Exam
Recommendations:
Yearly starting at age 50, except for AfricanAmericans or those who have a family history of
prostate cancer, then start at age 40.
Yearly starting at age 50, except for AfricanAmericans or those who have a family history of
prostate cancer, then start at age 40.
Yearly.
Monthly. The American Academy of Pediatrics
recommends starting at age eighteen.
MS Learn Online – Upcoming New Webcasts
Participate Online Today!
M
S Learn Online programs premiere at 8:00 am Eastern Time
on their corresponding dates. Pre-registration is not required.
Programs and their written transcripts can be accessed at www.nationalmssociety.org/mslearnonline. Would you like to be notified of upcoming MS Learn
Online programs? Please send your email address to MSLearnOnline@nmss.org, and
you will receive an email notification the day the program is available for viewing.
Medicare Series
Premiere Date
Title
Introduction to Medicare
February 17, 2005
Medicare and Prescription
Drugs
March 3, 2005
Home Therapy Services
March 17, 2005
Addressing Your Concerns
April 7, 2005
Ask the Expert
Archived - available at
the above site.
The latest developments
on the Tysabri suspension
Featured Speaker
Judith Stein, Esq.
Executive Director
Center for Medicare
Advocacy, Inc.
Willimantic, CT
John Richert, MD,
Aaron Miller, MD
and Al Sandrock, MD
9
SPRING2004-05
Upcoming Programs
MARCH 2005
Aquatics for
Everyone - State
College
Date: The Spring Series will begin on
Monday, March 14, 2005 with the last session on Friday, May 6, 2005.
Time: The class sessions are Mondays,
Wednesdays and Fridays from 10:00 am 10:50 am for a period of 8 weeks. If a session is missed, it may be made up at
another class.
Location: State College Area YMCA, 677
West Whitehall Rd., State College
Questions: Call the Chapter Office at 717652-2108 or 1-800-227-2108
Exercise and You –
Honesdale
Date: Tuesdays (6
weeks)
• March 29
• April 5, 12, 19, 26
• May 3
Time: 1:00 pm - 2:00 pm
Location: Wayne Memorial Outpatient
Rehab, 6 Maple Ave., Honesdale (in the
Sturbridge Mall)
Scranton
Date: Tuesdays and
Thursdays (6 weeks)
• March 29,31
• April 5, 7, 12,
14,19, 21, 26, 28
• May 3, 5
Time: 11:50 am - 12:50 pm
10
Location: Allied Rehab, Charles Lugar
Outpatient Building, 475, Morgan Hwy,
Scranton
APRIL 2005
Wilkes Barre
Date: Tuesdays and
Thursdays (6 weeks)
• April 5, 7, 12,
14,19, 21, 26, and 28
• May 3, 5, 10 and 12
Time: 10:30 am - 11:30 am
Location: John Heinz Institute of Rehab
Medicine, 150 Mundy Street, Wilkes-Barre,
PA. Classes will be conducted in the
Pulmonary Center (across the street from
Krasons Clothing Store)
A Step Towards
Independence
Date: Wednesday, April
6, 2005
Time: 6:00 pm - 7:00
pm
Location: Chambersburg
Hospital, Lecture room A, Chambersburg
Exercise and You - York
Date: 1st and 3rd
Wednesday of every
month
April 6, 20
May 4, 18
June 1, 15
July 6, 20,
August 3, 17
September 7, 21
October 5, 19
November 2, 16
Time: 6:00 pm - 7:00 pm
Location: HEALTHSOUTH Rehab Hospital
of York, 1850 Normandie Drive, York
Aquatics for Everyone
- Williamsport
Date: The Spring
Series class will begin
on Monday, April 11, 2005 with the last
session on Friday, July 1, 2005.
Time: The class sessions are: Mondays,
Wednesdays, and Fridays from 1:00 pm 2:00 pm for a period of 12 weeks. If a session is missed, it may be made up at
another class.
Location: Williamsport Area YMCA, 320
Elimira St. Williamsport, PA
Walking A Straight Line
To Balance
Date: Wednesday, April
13, 2005
Time: 6:00 pm - 8:00 pm
Location: HealthSouth Of Wormleysburg,
840 North Front Street, Wormleysburg
(The center is in between “Your Place”
restaurant and “The American Legion” in
Wormleysburg)
MS and Vision: What I
Need To Know
Date: Thursday, April 14,
2005
Time: 7:00 pm - 8:30 pm
Location: Lancaster General Health
Campus, 2100 Harrisburg Pike, Lancaster,
3rd Floor conference room (enter main
entrance and take elevator to the 3rd floor)
How To Make Life with
MS Manageable
Date: Saturday, April 23,
2005
Time: 9:30 am - 1:00 pm
Location: Four Points by
Sheraton Harrisburg, 800
East Park Drive, Harrisburg, PA
Living and Learning
Alongside MS
Date: Saturday, April 23, 2005
Time: 9:00 am - 1:00 pm
Location: Ramada Inn, 20
Public Square, Betsy Ross
Room, Wilkes-Barre, PA
The Changing Face of
Multiple Sclerosis
Date: Saturday, April 23,
2005
Time: 10:00 am - 11:30 am
Location: Soldiers and
Sailors Memorial Hospital,
Board Room, 32-36 Central Ave.
Wellsboro, PA
(continued)
11
(continued)
Light and Gentle Yoga
Date: Thursday, April
28, 2005
Time: 6:00 pm - 7:00
pm
Location: United Church
of Christ, 5000 Devonshire Road,
Harrisburg, PA
Aquatics for Everyone –
Lancaster
Date: Fridays (8 weeks)
• April 29
• May 6, 13, 20 and
27
• June 3, 10 and 17
Time: 11:00 am -12:00 noon
Location: Lancaster Family YMCA, 572
North Queen Street, Lancaster
MAY 2005
History: It’s A Blast - A
Day At the Civil War
Museum
Date: Saturday, May 7,
2005
Time: 11:30 am - 3:30 pm
Location: The National Civil War Museum,
One Lincoln Circle at Reservoir Park,
Harrisburg, PA
12
SPRING2004-05
Tai Chi For
Everyone – State
College
Date: Mondays (5
weeks)
• May: 9, 16, 23
• June: 6, 13
Time: 6:15 pm - 7:15 pm
Location: State College Area Family YMCA,
677 West Whitehall Rd., State College, PA
A Way of Life Wellness
Fair
Date: Tuesday, May 10,
2005
Time: 3:00 pm - 6:00
pm
Location: Evangelical Community Health
Education Center, 7095 West Branch
Highway (Staples Plaza), Lewisburg, PA
Navigating the Maze
of Social Security
Date: Saturday, May
21, 2005
Time: 10:00 am 11:30 am
Location: HealthSouth Nittany Valley
Rehabilitation Center, 550 W. College Ave.
Pleasant Gap, PA
Everyday Living with
Multiple Sclerosis
Date: Tuesday, May 24, 2005
Time: 7:30 pm - 9:00 pm
Location: St. John’s United
Methodist Church, 2101
Newberry St. Williamsport,
PA
JUNE 2005
Reassuring Answers
to Frequently Asked
Questions About MS
Teleconference
Dates: Tuesdays: May
24, 2005 and June 7,
2005
Time: 7:00 pm - 8:30
pm
Location: By telephone in the convenience
of your home.
A Night At The Ball
Game
Date: Friday, June 3,
2005
Time: 5:30 pm - Until
End of Game
Location: Clipper Magazine Stadium,
Lancaster, PA
A Day At Knoebels
Amusement Park
Date: Saturday, May 28,
2005
Time: 10:00 am - 8:00 pm
Location: Knoebels
Amusement Park, Rt. 487,
Elysburg, PA
Family Getaway
“Western” Weekend
Date: Friday, June 3,
2005 - Sunday, June
5, 2005
Location: Pocmont
Resort, Bushkill, PA
Path Back From An MS
Attack
Date: Saturday, June 4,
2005
Time: 10:00 am - 12:00
noon
Location: Heritage Gills Golf Resort and
Conference Center, York, PA
Knocking Out Fatigue
Teleconference
Date: Tuesday, June 14,
2005
Time: 7:00 pm - 8:00 pm
Location: By telephone in
the convenience of your home.
13
CHAPTER NEWS
14
SPRING2004-05
Residents of Country Meadows of Hershey
selected the Society to be the beneficiary
of gift shop proceeds and donated $400
this past fall to the chapter.
Mary Full of Grace Society had a matching
fund project and participated in “Friends
Helping Friends” at Boscov’s in the
Harrisburg Mall and donated $600 to the
Society.
Jack and Esther Fuller, Campaign
Manager, accept an $1,800 check from
Matt Harman and Bray Funk. These
Shikellamy High School students assisted
with the Staff’s Place MS Golf Tournament
for their senior project.
MS Leadership Class of 2004 Honorary
Chair, Richard Lenny, Chairman,
President and CEO of Hershey Foods
Corporation (right) and MS Board Chair,
Tony Schiano (left) pose with top fund
raiser from the Harrisburg Class, Donald
Papson, Vice President, Hershey Foods
Corporation, who raised over $10,000 in
the 2004 Class.
CHAPTER NEWS
I
n honor of the 20th anniversary of
the Central PA MS Bike Tour, we
have custom designed a Voler cycling
jersey. The jersey will be available in
the following sizes: Men's and Women's
XS-XXXL. The cost of the jersey is $50 and
payment must be received with your
order. Orders can be placed until June 1,
2005.
To place your order, call Kerry at 1-800227-2108.
Members of the Swim team at University
of Scranton held their first Annual
“Swim-a-Thon” to benefit the Society and
raised $5,746.24. In two hours of swimming they swam a combined 249,000
yards, which is equivalent to 141.5 miles
or the distance up and down Mt. Everest
over 12 times!
On June 13th, 13 residents of the
Gettysburg area came together to fight MS
by walking toward a cure. They gathered
together to participate in a Walk that had
been organized and carried out by Trisha
Stouter, a senior at Fairfield High School.
Trisha planned the Walk from top to bottom, contacting local businesses for donations, distributing flyers throughout the
community and working to raise awareness for MS. She and her fellow walkers
raised a total of $248! Many local businesses, including State Farm, Sunny Ray’s,
Kenny’s Market and Giant gave donations
of food, drinks and prizes for this event.
Many thanks go out to Trisha and her fellow Walkers for their support!
15
SPRING2004-05
CHAPTER NEWS
Nominate A Loved One
M
S affects the whole family, and
everyone impacted by the
diagnosis makes accommodations and adaptations. There
are many people with MS and their
carepartners who deserve acknowledgement and recognition. The National
Multiple Sclerosis Society has an annual
tradition of honoring an outstanding
“Parent of the Year” and “MS Carepartner
of the Year.”
The Chapter is now accepting nominations for the 2005 award. Please submit
your letters of support, answering the
questions listed below, by April 15, 2005.
If you have any questions, please call
Debbie at 717-652-2108 or 1-800-2272108.
Parent of the Year
1. Pertinent Family Information: name,
address and phone number of individual being nominated; marital status of
nominee; and name and ages of children of nominee.
2. Describe activities that the candidate
participates in with their children
3. Show from the family's perspective,
why this person should be recognized
as Parent of the Year. (These can be in
the form of photos, pictures, letters or
stories).
4. What is the most important characteristic of the person that makes them
outstanding as a parent?
5. Include the name, address and phone
number of the person submitting the
nomination.
16
Carepartner of the Year
1. What is your relationship to the nominee?
2. How long has s/he acted as a caregiver?
3. Describe his/her responsibilities as a
carepartner.
4. Please describe why you have decided
to nominate this person; please share
with us their story. These can be in the
form of photos, pictures, letters or stories).
5. Include the name, address and phone
number of the person submitting the
nomination.
CHAPTER NEWS
N E W S YO U C A N U S E
New Resources for Families
T
TIMMY’S JOURNEY TO UNDERSTANDING MS
Timmy’s Journey to Understanding MS is an animated cartoon
that shares a little boy’s (Timmy) adventure learning about MS.
David Lander is the voice of Captain S’myelin, who is Timmy’s
guide on his journey. This 15-minute cartoon is an excellent
resource to talk to children about MS. Call the chapter at 1-880-227-2108 or 717652-2108 to borrow this video or DVD.
WEBSITES FOR CHILDREN AND TEENS
The Manitoba Division of the Multiple Sclerosis Society of Canada has
developed websites for children and teens with have a parent with MS, as
well as a site for parents with MS. Not only do the sites have information
on multiple sclerosis, they also have bulletin/message boards and chat
rooms for registered users to participate in. The site for children ages 512 (Let’s Talk MS for Kids) is www.msforkids.com; the site for teens (Let’s
Talk MS for Teens) is www.msforteens.com; and the site for the parents is
www.msforparents.com.
A staff member of the Manitoba Division monitors the message boards and the
chat rooms. The staff person reviews all questions and responses on the message
board before they are posted, so as to ensure the privacy, safety and confidentiality
of the person writing. All questions and responses are posted within a 24-hour
period. The division is currently in the process of organizing dates for upcoming
chats.
TEENS SPEAK OUT MAGAZINE
You can view this exciting magazine online at:
http://www.nationalmssociety.org/Teen%20InsideMS.asp or call the
Chapter Office at 717-652-2108 or 1-800-227-2108 to review your
copy. See what’s inside our newest issue:
• Photographs: How to Capture
• Nothing But Success
• Is MS Different for a Teenager?
• What You See
• A Blessing in Disguise
KEEP S’MEYLIN CHILDREN’S NEWSLETTER
Keep S’myelin is a colorful newsletter filled with stories, interviews,
games, and activities that highlight a variety of topics about multiple sclerosis. This award winning newsletter is available in an interactive online version (Flash), or original printed version (PDF). For
free copies of printed issues call the Chapter Office at 717-652-2108
or 1-800-227-2108.
17
SPRING2004-05
CHAPTER NEWS
Lending Library & Literature
O
ur in-house lending library and
literature publications are an
excellent resource for books,
publications, how-to booklets,
magazines, videos, audio tapes, and other
information on a variety of subjects related to MS and those living with a disability.
We offer several convenient ways for you
to request library materials. You can either
contact our office at 717-652-2108 or 1800-227-2108 to request our library list.
Or, if you prefer, you may come into our
Harrisburg office and browse through our
library in person.
Three items may be borrowed at a time
for a period of two weeks with the option
of a one-time two-week renewal. Materials
are sent out via regular mail. For returning
purposes, we include a pre-stamped return
envelope.
Our thanks to Berlex Laboratories for an
unrestricted grant enabling us to purchase
over 60 new books for our lending library.
C L A S S I F I E D S :
FOR SALE: 1996 Silver Glide Stair Way Lift: Goes up
approximately 15 steps. In excellent condition, asking
$900. Have instructions and all paperwork. Call Dennis
at 610-759-5477
FOR SALE: Permobile 2K Chairman Power Wheelchair
Has the following: seat recline, seat tilt, leg rest raise, 8” seat elevator, Jay B
2102 Gel cushion and Battery Charger. Has never been used. Original cost:
$27,000 Asking: $6,000 Call: Dennis at 717-299-3250
FOR SALE: REVO Mobility Scooter, Only used for 3 weeks. Paid $2049 and
asking $1700 Please call John at 717-441-7324
FOR SALE: 1999 SEL Windstar Van. Spruce Green with hand controls, 62,000
miles. Garage kept, Asking $10,000. Call Robert at 717-266-2778
18
CHAPTER NEWS
PHOTOGRAPHY CONTEST:
“MY LIFE”
W
e're having a photography
contest for Teens. The “My
Life” photography contest.
Capture your life: your parents, siblings, friends, important adults in
your life, yourself, pets, treasured things,
favorite places. Self-portraits, dreams,
action shots, scenery-all are welcome.
Color or Black & White.
Here are the contest specifics:
1. Open to all teens, 13-19 years old. The teen does not have to have MS, but have a
connection with someone diagnosed with multiple sclerosis (family member, friend,
teacher, etc).
2. Subject: “Capture your life: your parents, siblings, friends, important adults in your
life, yourself, pets, treasured things, favorite places. Self-portraits, dreams, action shots,
scenery.” The photo can be about anything the teen wishes and does not have to be
about to MS.
3. Format: Color or Black & White.
4. Submission details: Send a print, any size, of the best shot, along with age, name, and
address. One entry per person.
5. Deadline: April 30, 2005
6. Mail to: Editor, Teen InsideMS, National MS Society, 733 Third Avenue, New York,
NY 10017.
7. No entries will be returned. Parents of all winners will be asked to sign a Media
Release.
Winners: Grand prize is a $100 gift card to Best Buy. Runner-up prize is a $25 gift card
to Best Buy. One grand prize winner for the best photograph and 10 runners-up will be
chosen. All winners will be showcased on our National Web site.
19
SPRING2004-05
ADVOCACY
G
reetings to all. Once again, it’s
time for my two cents on
Advocacy as it relates to MS. In
past issues, I have concentrated
most on our own abilities to advocate for
ourselves. This time, my focus is a bit different. The change is a direct result of my
life experience of the past few months.
Since my last article, I have been continuing to experience an episode which has
left me at best, unable to work, at worst,
extremely frustrated. As a result, I have
been a direct recipient of the advocacy of
others, a position in which I must admit, I
am not entirely comfortable. For the past
13 years of experience with MS, I’m used
to advocating for myself rather comfortably. I’ve never been shy about
asking for help with (and in some
cases, demanding) whatever it is I
require. I try not to confuse “needs”
and “wants” and for the most part,
completely understand and respect
the differences therein. It’s also a
lesson I constantly remind my two boys,
now 14 and almost 12 to respect.
In the recent past (and present!), I find
myself in the position of receiving the
advocacy of several individuals close to
me (family members, physicians, nurse
practitioners, employer representatives,
insurance coverage case workers, church
partners and friends). During this time, I
have received flowers, meals, cards,
prayers, favors, medication and therapy
changes and other numerous expressions
of concern and caring. Due to the length
of this episode and its reluctance to follow
acceptable treatment outcomes (sorry if
you can read my frustration!), my doctors
here recently took the initiative to have
my medical case reviewed by an external,
objective medical expert. The attempt was
20
offered and made to
research opportunities
for traditional and nontraditional treatments
that might improve my
body’s ability to fight
off the dreaded symptoms.
With the help of my
Chris Suski
immediate family and
the additional support
of some extended family members, namely, my Uncle Joe (my family’s patriarch,
since the passing of my Dad, his older
brother, almost nine years ago) and his
wife, my Aunt Helen, I was able to
receive and complete the requested
medical consultation last week.
Between the two of them, they
transported me to and from the
appointment, fed me VERY well,
counseled me, and gave me a
warm bed in their home to rest in,
the night before the appointment, located
in a city not far from their home. The
entire experience brought “home” to me
(no pun intended!) a concrete reminder
of the value that others play in our lives
each and every day. It also reminded me,
(with all the subtlety of a brick to the
head!) that, as much as we’d like to convince ourselves (particularly when things
are going WELL!), we can not possibly do
it all ourselves. We are NOT self-reliant
and I believe that is by design. My own
higher power seems to have no trouble
reminding me that humility is a gift, not a
character flaw. In my own case, I couldn’t
help but to become at least somewhat
humble, when discussing my embarrassing symptoms and experiences with even
those closest to me.
ADVOCACY
Pennsylvania Advocacy State Legislative News
S
TATE BUDGET
As taxpayers, we sometimes
focus only on how much we pay
in taxes, rather than looking at
what our tax dollars buy. Those of us
who have, or care about those who have
chronic conditions, like MS, should also
pay attention to the availability of funds
for the health and social services on which
we rely. And now is the right time to pay
attention.
Spring is state budget season. In early
February, Governor Rendell proposed a
budget for the year which begins on July
1, 2005 and runs until June 30, 2006.
That proposal is currently being considered by the State General Assembly. After
extensive discussion and debate, and,
hopefully, sometime before July 1, the PA
General Assembly will pass, and the
Governor will sign, the budget for 200506. Between now and then,
Pennsylvanians can make their views
known to their state Senator and
Representative and to the Governor.
Governor Rendell’s proposed budget
includes good and bad news for people
with chronic conditions and disabilities.
On the positive side, there are significant
expansions proposed for home and community based services. For example, the
budget includes funding for approximately 775 new people to be added to the rolls
of the Attendant Care Program. There
appears to be some additional funding for
the Shared Ride Program for Persons with
Disabilities, which could enable the program to expand beyond the current 24
counties. On the negative side, caps and
increased co-payments, are proposed for
the Medical Assistance program.
Combined with some proposed cuts and
caps on the federal level, this could seriously limit health care available to low
income people.
At this point, the state budget is only a
proposal. Now is the time to let your legislators know your priorities.
Check out this important web site: http://www.legis.state.pa.us
• Now you can search for your legislator by zip code or county! Just use box labeled
“Find Members By” in the upper-right hand corner...
• Visit our Session Information page for all your legislative information needs. Be sure
to check out our new Daily Session Activity by EMail application!
• Learn about: Pennsylvania History; Pennsylvania State Government, Just For Fun
Facts, and Information About Fellowships and Internships
21
SPRING2004-05
CHAPTER NEWS
Society Launches Nationwide
Awareness Campaign with
Giant Food Stores
D
uring the month of February,
Central Pennsylvania did not
only think Valentine’s Day, they
were also thinking “hope!” Between
January 30 - February 26,
2005, the National
Multiple Sclerosis Society
joined forces with Giant
Food Stores to offer the
sale of the National MS
Society’s MS Band of
HopeSM at 92
Giant/Martins Pharmacy
departments throughout
Pennsylvania, West Virginia
and Maryland.
“GIANT Food Stores is proud to support
this worthwhile organization through the
sale of the Band of Hope wristbands in
our Pharmacy departments” says Michael
Dobbs, Vice President of Marketing at
GIANT. “One of our major objectives in
selling these bands is to raise funds to
help fight the devastating effects of MS. At
the same time, we’re trying to increase the
understanding of this disease in our local
communities. This is why we’ve partnered
with the National MS Society to distribute
22
their materials that explain what MS is
and how it affects people with the disease.”
To get your own MS Band
of Hope or to obtain larger
quantities and pricing information, please contact the
chapter office at 1-800-2272108 or 717-652-2108. We
are requesting a $1.00
donation for each wristband. Individuals registered with the chapter with
a diagnosis of multiple sclerosis can call the Chapter
Office to receive their free
wristband. The wristband
is also symbolic of the hope the Society
provides as we press forward toward our
goal to end the devastating effects of
MS–forever. We hope people will wear it
often.
The National MS Society provides hope to
millions of people around the globe that
someday soon we will have an MS free
world. Support the MS cause and be part
of the message of hope by getting and
wearing your own MS Band of Hope.SM
CHAPTER NEWS
Message of Love and Hope
(continued from page 1)
“When I was 8 years old my mom was not
feeling well for a long time. Our little
brother was a baby and so she
never had any energy. When
Willie (my little brother) was 14
months old the doctors told us
my mom had multiple sclerosis.
At first I was scared because I
though she would get sicker. I
didn’t really understand what that
meant. Then we had to move and I had to
learn to help more. Sometimes my mom
feels better and sometimes she is worse.
There are times when our plans are cancelled that make me feel disappointed.
Message from the Chapter President
at our MS Dinner of Champions as we
continue the tradition of honoring our
Parent and/or Caregiver of the Year.
HOPE IS SUSTAINED BY MAINTAINING
THE QUALITY OF LIFE. Our chapter
offers education and outreach programs
designed to help people explore what
“wellness” means in the face of MS. I
encourage you and your family to participate in the numerous educational and
social programs that we are offering in the
upcoming months.
HOPE FOR THE FUTURE. Progress feeds
hope and hope feeds the determination to
make progress. The Society spends more
money on MS research than any other
non-governmental agency in the world,
investing about $35 million annually on
research programs. This includes more
than 300 MS research investigations at the
She looks like she feels okay but her legs
bother her or she doesn’t have energy. I
don’t always understand and it can be sad
sometimes. We can talk and I know my
mom tries her best to be a good mom. We
have our faith and our family
and that makes me happy.”
This optimistic family when
faced with the diagnosis of MS;
took the time to learn about the
disease; became active in the MS
Community (self help groups,
and MS Walk) and maintained their participation with their children’s school and
church activities. Marcy has three siblings,
Willie age 5, Victoria age 8, and Monica
age 10.
best medical centers, universities and
other institutions throughout the United
States and abroad. By the end of FY 2005,
the Society will have spent $460 million
on research-related programs since its
founding. This investment is paying off in
significant progress toward finding treatments and in better diagnosis, rehabilitation and symptomatic therapy for people
with all forms of MS.
Together we are PARTNERS IN HOPE.
When you participate in one of our events
or programs, you are not alone, you are
participating for the thousands of people
affected with MS in Central Pennsylvania.
You can show your support of the
National MS Society by wearing your own
MS Band of Hope. Look for more information on this popular awareness campaign described in this issue of our
newsletter. Join us and experience The
POWER of the Partners in Hope.
23
SPRING2004-05
SELF HELP GROUPS
24
AREA (CITY)
MEETING TIME
MEETING
LOCATION
CONTACT
INFORMATION
BLANCHARD
2nd Thursday • 7:00 pm
Please call for more
information
Bonnie Long-Bortot
(570) 962-3878
“BUT YOU LOOK
SO GOOD”
CARLISLE
2nd Tuesday • 7:00 pm
Carlisle Y.W.C.A.
Resource Room
Pam Spence
(717) 243-6224
COUDERSPORT
Last Monday of the
Month • 7:00 pm
Sweden Valley Manor
Route 6, East
Dean Dow
(814) 274-7296
DANVILLE
3rd Wednesday • 7:00 pm Grandview Health Home
Marge Leiby
(570) 271-0315
Helen Dorman
(570) 473-8335
ENDLESS MOUNTAINS
2nd Saturday • 2:00 pm
L. Alice Hunsinger
(570) 869-1214
FRANKLIN COUNTY
3rd Wednesday • 10:00 am United Brethren Church
King & 2nd St.,
Chambersburg
Cheryl Wauls
(717) 264-9064
HANOVER
1st Monday • 7:00 pm
Hanover Area
Family YMCA
23 Chestnut St.
Sue Bell
(717) 637-5621
HAZLETON
3rd Sunday • 2:00 pm
Center City Apts.
Community Room
70 S. Pine St., Hazleton
Doug Quinn
(570) 459-2587
HAZLETON MS
GIRLS DAY OUT
4th Thursday
10:00 am - 1:00 pm
Perkins Restaurant
West Hazleton
Judy Overholt
(570) 455-0475
HERSHEY/
PALMYRA
Funck’s Family Restaurant
Palmyra
Stacey Brocklehurst
(717) 566-2216
HONESDALE
4th Sunday • 2:00 pm
Wayne Memorial
Hospital
June Utegg
(570) 253-4855
L.A.M.S.
1st Monday • 7:00 pm
Lancaster General
Health Campus
2100 Hbg. Pike, 3rd Floor
Conference room
Vahid (Vic)
Tahmasbi
(717) 871-1241
Towanda Memorial
Hospital
SELF HELP GROUPS
AREA (CITY)
MEETING TIME
MEETING
LOCATION
CONTACT
INFORMATION
LEBANON
1st Tuesday • 6:30 pm
Not Currently Meeting
Lebanon Good
Samaritan Hospital,
Classroom #1
Pat Chadwick
(717) 273-0278
LEWISBURG
Evangelical Community
Health Education Center
Route 15 – Staples Plaza
Ilene Daniels
(570) 568-2096
Jody Zimmerman
(570) 523-9171
MAKING STRIDES
2nd Tuesday
7:00 pm-9:30 pm
The Country Meadow’s
Retirement
Community, York
Shelly Butcher
(717) 428-1263
MT. CARMEL
1st Wednesday • 6:30 pm
Family Medical Center
East 5th St.
Mt. Carmel, PA
Mary O’Donnell
(570) 339-0262
NORTHERN
DAUPHIN COUNTY
3rd Monday • 6:30 pm
Susquehanna Lutheran
Village
Cheryl Reisch
(717) 692-0371
PERRY COUNTY
2nd Sunday • 3:00 pm
New Bloomfield
Senior Center
Ellie Cooper
(717) 789-4574
Karen Pike
(717) 582-8845
Norma Dunham
(717) 582-0237
SCRANTON
2nd Sunday
2:00 pm-4:00 pm
Allied Services Building
475 Morgan Highway
Peggy Carrick
(570) 586-0852
STATE COLLEGE
3rd Tuesday • 6:00 pm
HEALTHSOUTH
Outpatient Clinic
Doris Thomas
(814) 234-7001
SOUTHERN
ADAMS COUNTY
3rd Sunday • 1:00 pm
Fairfield Fire and EMS Co. 2 Lynn Moody
(behind Sunny Ray’s
(717) 642-5123
in Fairfield, just off Rt. 116) Linda Krietz
(717) 642-9383
WELLSBORO
4th Saturday • 10:00 am
Education Room Soldiers
and Sailors Hospital
Mike Trujillo
(570) 724-5625
WILKES-BARRE
4th Sunday • 2:00 pm
Riverside Rehab Center
220 South River St.
Debbie Malys
(570) 823-1204
25
SPRING2004-05
SELF HELP GROUPS
AREA (CITY)
MEETING TIME
MEETING
LOCATION
CONTACT
INFORMATION
WILLIAMSPORT
SELF HELP GROUP
4th Tuesday • 7:30 pm
St. John’s Methodist
Church, Williamsport
Dick Leidhecker
(570) 326-9209
WINNING SPIRIT
Please Call for Schedule
Outlook Pointe
Harrisburg
Cathy Finney
(717) 763-4648
YORK AREA
MS Hope Club
2nd Thursday • 7:00 pm
(Apr. - Oct.)
Church of Christ
509 Pacific Avenue, York
Susie Harro
(717) 764-9082
Hanover
Alice Boothroyd
(717) 637-9689
Harrisburg Area
Sheryl Houser
(717) 957-3277
SUPPORT BY
TELEPHONE
CLARA SHEAFFER
CLUB
Please Call for Schedule
CHAPTER NEWS
MS DINNER OF CHAMPIONS WILL
HONOR FRANCO HARRIS
The sporting event of the year takes place on Friday,
June 17th, not in a stadium, or on a field, but at the
Hershey Lodge and Convention Center, the MS Dinner
of Champions, to benefit the National Multiple
Sclerosis Society, Central Pennsylvania Chapter. This
year the event will honor Hall of Fame legend, and
Steeler great, Franco Harris. The day begins with the
Highmark Blue Shield golf outing at Dauphin Highlands and the festivities
continue with a tailgate reception, dinner and program that will feature distinguished guests paying tribute to Franco Harris. The MS Parent and Care
Partner of the Year will be honored as well. A limited number of sponsorship
opportunities are available. For more information call the chapter at 1-800227-2108 and plan to be with us this June when we honor Franco Harris for
his commitment to the fight against MS!
26
CHAPTER NEWS
Give the Gift of
The Love and Hope Bouquet
T
his spring, honor your loved ones
with a bouquet of a colorful mix
of vibrant pink stargazer lilies
with alstromeria,
snapdragons and
carnations, which are beautifully blended with limonium, heather and plumosa.
This lovely arrangement
makes a stunning statement
in a pretty glass vase, which
is accented with a sheer
French ribbon. Our Love
and Hope Bouquet includes
our “MS Band of Hope”
wristband. A perfect floral
selection to send for
Mother's Day, or just to
brighten someone's day.
Pealers Flowers are partnering with the
National MS Society, Central Pennsylvania
Chapter by selling this exclusive Love and
Hope Bouquet for $39.95
and a portion of the proceeds from each sale will
benefit the Society. The
bouquet will be available at
all Pealer's locations, (cash
and carry) and online for
delivery in Dauphin,
Cumberland, and York
counties and in Palmyra.
For more information
about this extraordinary
bouquet, go to our web site
at www.nationalmssociety.
org/pac or call the Chapter
Office at 717-652-2108.
Upcoming Programs
Out to the Movies
Date: Saturday, June 11,
2005
Time: 2:15 pm - After the
Movies
Location: Hanover Theatre, 380
Eisenhower Drive, Hanover, PA
Questions: Call the Chapter
Office at 717-652-2108 or 1800-227-2108
Music Together: Mommy and
Me
Date: Saturday, June 25, 2005
Time: 10:00 am - 12:30 pm
Location: Holiday Inn,
Harrisburg-East (Airport Area), 4751
Lindle Road, Harrisburg, PA
An Evening At The
Historic Bowman
Field Ball Park
Date: Thursday, June
30, 2005
Time: 6:00 pm - Until End of Game
Location: Historic Bowman Field,
Williamsport, PA
27
CHAPTER NEWS
SPRING2004-05
WOMEN ON THE MOVE - MOTHER’S DAY MAKEOVER PROGRAM
This award is given by Women on the Move to acknowledge various obstacles and struggles that uniquely face
women. It is to honor women who have made tremendous strides in their lives despite difficulty and challenge.
Women on the Move will honor two women in the
Central Pennsylvania area who are single mothers wrestling with cancer, heart
disease or multiple sclerosis. The two mothers selected will receive shopping
passes to the BonTon, grocery vouchers to Giant Food Stores and makeovers,
our Movement Award and other notorieties for Mother’s Day, May 8, 2005. Our
motto: “How women feel about themselves is directly connected to what they
will do with themselves.”
Nominee Criteria
• Must reside in the central Pennsylvania area
• Must be a single mother
• Must have one of the three illnesses: cancer, heart disease, multiple sclerosis
• Must have medical verification of illness.
• Must be at least 21 years old.
Nomination Rules
• Only nominations postmarked by April 18, 2005 will be accepted.
• Nominations must be in essay form no more than two pages long (You may
include photos, or any additional written information that you wish the selection committee to consider.
• Nominator must state their name, address, telephone number (home or
work), email
• The essay must describe in detail the single mother’s (nominee) day-to-day
battle with her illness and her daily labor of love and care of her children.
• The essay must also include the nominee’s name, address, telephone number
(home or work), email, date of birth and place of birth.
• Seven copies of the nomination essays must be included
Please mail seven copies of your nomination essays and any additional written information that you wish the selection committee to consider to:
Women on the Move, Inc.
Attn: Movement Award Selection Committee
P.O. Box 5265 • Harrisburg, PA 17110
Your nominations must be postmarked by April 18, 2005. Any written information that you send along with the nomination essay will not be returned.
28
CHAPTER NEWS
Fundraisers Held to Help Fight MS!
W
e are incredibly fortunate to
have so many clubs, organizations, businesses, families, and
most of all friends who hold
events on our behalf, and
donate the proceeds to the Society. We
wanted to tell you about some of
them and the special projects that
they have done to help us fight
MS:
The Retail Artists at Lancaster Newspaper
decided instead of holiday gifts to each
other this year, they would donate their
polyanna gifts totaling $70 to the Society
this past Christmas.
The East End Boys Tavern in
Sunbury held a “soup tasting”
contest and raised $375.
The Employees of the
Pennsylvanian Department of
Revenue donated $100 to the
Society from their Recreation fund that
supports initiatives that promote morale
and enjoyment among Department of
Revenue employees.
Anthony and Laura Southard held their
annual camping/music weekend at their
farm in Hummelstown this past fall and
donated $300 from their friends that
attended.
The Lancaster Brass Quintet held it’s
annual holiday concert to benefit the
Society in December and donated $1,046
from the offering that was collected during
the evening.
Benjamin Jones, a student at West York
Area Senior High School for his graduation project coordinated a 5K Charity Race
to benefit MS and raised $1040.
Grasshopper Lawns once again selected
the National MS Society to be their beneficiary from the 2004 Grotto Pizza Parade
of Trees, and donated $96.50.
Once again this past December, the
employees of Swineford National Bank in
Hummels Wharf held a “Dress Down
Day” and the Society was chosen to receive
the collection of $137 from their efforts.
Members of the staff of
Lewistown Hospital donated $3
on a “Jeans Day” to benefit MS
and together raised $529!
Members of the String of Pearls Chapter
21503 of the Red Hat Society in York held
a basket bingo that raised $1,600 for the
Society.
$1,400 was raised at Buffalo Bills Bar in
Lewisburg, from a fundraiser featuring
“The Spastics-R-Bak”
Jane Vera continues to make and sell doll
clothes to benefit the National MS Society.
She donated $1,000 from her labor of
love.
The Youth Group of Immanuel United
Methodist Church in Glen Rock raised
$300 from a Bike Hike this fall that they
organized.
Special thanks to all of these groups, and
to the many others that work hard to raise
funds on our behalf!
29
TRADITIONAL GIVING
SPRING2004-05
Your Footprints
E
veryone leaves footprints on the
sands of time. A person is
remembered for the weight of his
or her character. For indentations
of accomplishment. For shapes of kindness. For length of compassion. For width
of personal warmth. For generosity. For
values.
When we leave positive
impressions behind, we
enhance the lives of our
friends and loved ones. We
give them footprints to follow.
Thoughtful estate planning
is one means we have to make a print in
the sand to help others recall our priorities. For example, consider the effect of
even a simple will or trust that includes
provision for family members and
resources for the charitable causes you
support, like the National Multiple
Sclerosis Society.
An estate gift makes a
positive statement.
When you include the Society in the final
disposition of your estate, you declare to
your family and friends that you believe in
and care about our mission. Your parting
gift becomes a clear declaration of your
values.
An estate gift provides needed funding.
Estate gifts are especially valuable, not
only because they tend to be larger than
annual gifts, but also because they often
come at critical times. They provide that
30
extra boost to the budget that can make
the difference between research and program advancement and retrenchment.
Estate gifts can be designated for a specific
purpose such as a local program, research
or college scholarships or they can be
unrestricted for use where
needed most.
An estate gift encourages
imitation.
There’s something about a
well-planned estate gift that
influences others to “go
and do likewise.” As friends
and family members plan
their own estates, they may recall your
generosity and thoughtfulness. Your gift
may unlock resources from other estates
that help us to end the devastating effects
of MS.
Dedicated staff are available to provide
you with the information and materials
you need to include charitable giving in
your overall estate plan.
To request a complimentary brochure
entitled “Creating A Legacy for
Tomorrow”, call your special gift officer at
1-800-FIGHTMS, or contact the Gift
Planning office at 1-800-923-7727, or visit
our website at www.nationalmssociety.org
and click on the Donate to the Society
button and then explore the Guide to
Giving section.
CHAPTER NEWS
Ask the Health Care Professional
home and on week-days in the late afternoon when the kids need to do their
homework and dinner needs to be prepared – you are well prepared
to ask your health care professional for the specific help
that you need. You might ask
whether there’s anything you
can do to reduce the sideeffects from the medication,
whether there is another
medication that has fewer
side effects or better addresses late afternoon fatigue, whether taking the fatigue
medication only on week-ends is an
option, and whether there are other ways
you haven’t thought of that might help
you better manage your specific fatigue
issues.
Having this self-knowledge takes you a
long way toward establishing an effective
relationship with your health care professional. A professional faced
with such questions will
know exactly what you need
and want, will find that very
helpful, and will welcome
this approach. Being
respectful of those needs and
wants and using his or her
understanding of MS in general, the health care professional is now
able to apply that knowledge to your specific needs. You are each empowered to
use your own specialized skills and knowledge. As a result, together you are now
able to create the best plan for you – a
great team effort!
Advocacy
The simple “end” to the story of the consultation visit, is that (and I can’t BELIEVE
that I didn’t see this coming!), of course, it
wasn’t the end. The perspective was fresh
and full of ideas and promise. I am currently undergoing some “re-testing,” a situation with which unfortunately, too
many of us are well acquainted. Soon,
with the help of all those people types
named earlier, I hope to be implementing
and trying some of the new options and
suggestions and getting back to the full
time practice of my chosen careers of marriage, motherhood, and my employment
vocation in the healthcare industry.
I guess I will close this time with the idea
that although it is good and healthy to be
one’s OWN advocate, it is also REALLY
nice to be able to (patiently?!) sit back
and know that others in our lives are
probably better at it than we are. At the
very least, the help and assistance of many
is likely to be greater than anything one
individual may have been able to accomplish alone. I hope to have some positive
news and experience to share with you all
by the time the next article cycle arrives.
In the meantime, thanks again to all of
you angels in my life, and God bless you
all until we meet again.
31
CHAPTER NEWS
SPRING2004-05
An interview with new Chapter Chair
Tony Schiano, President and CEO Giant Food Stores, LLC
T
years in a row raising over $1,000,000
for the Society. What do you attribute
this success too? And what is the benefit
to GIANT Food Stores?
Why did you become involved
with the National Multiple
Sclerosis Society?
I believe the success is due to the commitment
of the people at GIANT wrapped around with
customer involvement. Participating
in the MS WALK and MS Bike Tour
has been good for team building,
and moral, and helps to get the associates connected to an important
cause. MS affects women twice as
often as it affects men, and women
are our target customers, so supporting MS is a natural fit for us.
ony was elected as Chairman of
the Central Pennsylvania Chapter
of the National Multiple Sclerosis
Society at the Annual meeting
this past October. Below are the answers
that he shared during a recent interview:
My wife and I knew several people
(friends and co-workers) with MS
and we were aware of the disease
and how debilitating it could be.
When I was invited to be a member
of the MS Leadership Class it seemed like a
good opportunity to do something positive
about it, so I said yes. I was in the Class and
then the next year I was asked by Jim Gibson
to be the Honorary Chair of the Class, and I
said yes. After that Margie Adelmann,
Chapter President, asked me to join the Board,
and it has been a building project ever since.
As I got more involved, I found more connections between our associates and customers,
and more of a reason to stay connected.
GIANT has embraced the MS WALK and
been recognized as the number one
WALK team in the country for three
32
As Chairman, what do you hope your
legacy will be?
I hope to be able to strengthen awareness and
understanding about MS, which will lead to
more support financial and otherwise, which
will ultimately accelerate us to ending the devastating effects of MS. I’d also like to see us
reach the $1 million mark for the MS WALK,
and surpass that goal. I believe that we need
to continue to grow teams of all sizes and
affiliations to do that. I also hope that we will
continue to explore other services and programs to meet the changing needs of people
living with MS today, and those that will be
diagnosed tomorrow.
CHAPTER NEWS
Harrisburg MS Leadership
Class of 2004
Bryson Leidich Photography.
Honorary Chairman – Richard H. Lenny, Chairman, President and CEO, Hershey Foods Corporation
Honorees in alphabetical order: Cynthia L. Adams, Cookies By Design; Martha J. Averso, Gannett Fleming, Inc.; Bernard M. Banas, Jr.,
Hershey Foods Corporation; Virginia Barr, High Associates, LTD.; Tina Beam Klinefelter, Pennsylvania State Bank; Jeffrey A. Beaulieu,
Giant Food Stores, LLC; Suzanne Berg Currier, WGAL-TV; Anne C. Black, Nationwide Insurance Company; Timothy R. Bugas, Hershey
Entertainment & Resorts Co.; John Bussenger, Giant Food Stores, LLC; Andrew B. Calhoun, Covenco Management Services; Devin J.
Chwastyk, McNees Wallace & Nurick LLC; John E. Coy, Jr., Coy’s Public Accounting Co.; Kevin C. Curtis, M&T Investment Group;
Sharon A. Daboin, Pennsylvania Department of Transportation; David M. Diffenderffer, Omega Bank; Jed Donahue, CenPenn Net
Enterprises; Luke A. Drayer, Drayer Physical Therapy Institute; James E. Ellison, Rhoads and Sinon; Susan Eveland, Giant Food Stores,
LLC; Stephen P. Fanion, Giant Food Stores, LLC; Frank J. Fischer, Jr., Commerce Bank; Dawson E. Flinchbaugh, Flinchy’s Restaurant
Bar and Deck; Dean L.C. Foote, Gannett Fleming, Inc., Richard H. Friedman, McNees Wallace & Nurick LLC; Joseph A. Grosso,
Waypoint Bank; Luke Kempski, JPL Productions; Mary Ann Kennedy Claravel, Claravel & Claravel; Matt R. Krise, Waypoint Bank;
Kevin W. Laudenslager, Mid Penn Bank; Laurel L. Leitzel, Integrity Bank; H. Glenn “Bub” Manning, The Quandel Group; Duane F.
Maun, Parente Randolph LLC; Bonnie J. McCarthy, Triad Strategies; Craig Mellott, Traffic Planning and Design, Inc.; D. Larry
Mummert, PA Game Commission; Megan Neuhard, M2 Communications Solutions; John A. Obrock, Wildeman & Obrock, CPA’s PC;
Trudie H. Olkowski, Commerce Bank; Thomas Palanica, G.R. Sponaugle Service Co.; Donald C. Papson, Hershey Foods Corporation;
Eric D. Pettis, Comprehensive Financial Associates, Inc.; Anthony Pietropola, Gannett Fleming, Inc. – GeoDecisions; Pamela Polacek,
McNees Wallace & Nurick LLC; Taylor K. Ranker II, Ranker – Hanshaw Financial Group; Lisa A. Ritter, Boles Metzger Brosius & Ritter
PC; Vicki R. Shannon, The McNaughton Company; Robin L. Shirley, Leber & Wolf Plastic Surgery; Richard E. Stees, Erdman, Anthony,
Associates, Inc.; Frank J. Subasic, Morgan Stanley; Melanie J. Tambolas, Pennsylvania Public Utility Commission Office of Commissioner
Thomas; Robert E. Twomey, Dauphin Electric; Catherine E. Walters, Saul Ewing LLP; Robert Wasikowski, Giant Foods Stores, LLC;
David J. West, Hershey Foods Corporation, Marilyn C. Zywiec, Computer Information Systems, Inc.
Honorees not pictured: Albert Apicella, Conner-Apicella Orthodontic Associates; Anthony F. Barbush, Triad Strategies; K. Robert
Bertram, Stevens & Lee; Thomas Connolly, Coca Cola Enterprises; Samuel T. Cooper III, Eckert Seamans Cherin & Mellott; Rebecca S.
Fenstermacher, Upper Allen/Cumberland Valley Kiwanis; Cathy Finney, T’NT; Richard S. Friedman, Friedman & King, P.C.; Mark
Greenberg, Greenberg and Company; Andrew Gregoire, Commerce Bank; Peggy A. Grove, Rosewein Realty; Robert L. Marquette,
Members 1st Federal Credit Union; Garrett H. Rothman, RSR Realtors, LLC; Douglas Sheaffer, Schaedler Yesco Distribution; Francis M.
Socha, Thomas, Thomas and Hafer; Francis Soistman, HealthAmerica-HealthAssurance; Louise E. Sukle, Press and Journal Publications;
Matt T Uhl, WHP-CBS21/UPN15; Mark A. Vickrey, Blooms by Vickrey; Julie A. Wilson, A+
Mailing Solutions.
The prestigious MS Leadership Award is presented nationwide to a select group of individuals who
have made significant contributions to their profession and community. An Advisory Council comprised of corporate and community leaders carefully reviewed over 150 names before the final honorees were selected. The National Multiple Sclerosis Society salutes our Harrisburg MS Leadership
Class and their commitment to the mission…to end the devastating effects of multiple sclerosis.
For more information about the Harrisburg MS Leadership Awards,
The National Multiple Sclerosis Society or MS call 1-800-FIGHT MS or (717) 652-2108.
33
SPECIAL EVENTS
SPRING2004-05
Riding Towards
A Cure for MS
T
he Central Pennsylvania Chapter
of the National Multiple Sclerosis
Society will hold its 20th Annual
MS Bike Tour on Saturday, July
16 and Sunday, July 17, 2005. The ride
will tour through the
Gettysburg area, including
routes through Maryland,
Adams County, and the historic battlefields of
Gettysburg. Riders can
choose between a 20-, 50-,
or 75-mile route for each
day, with an additional 25-mile route
offered on Saturday for those riders who
want to participate in a Century Ride.
W
ho you are is illuminated by
how you help. For those with
the passion to make a positive difference, there is the MS
Challenge Walk.
This is your walk because you have the
determination to do the right thing, to
make the world a better place. You know
the enduring light of transformation
begins with a tiny flame and that one long
journey over 3 days will shorten the road
to the cure for multiple sclerosis.
34
The annual MS Bike Tour is hailed as one
of the best-supported bike rides in the
region. Riders are treated to a first-class
bike ride complete with mechanical support, clearly marked routes, terrific food
and snacks, and supportive
volunteers.
The 2005 Central PA MS
Bike Tour expects to host
over 600 cyclists and, with
the help of 250 volunteers
and corporate sponsors such
as AllHealth, Davis Vision, GIANT Food
Stores, LLC, and M&T Bank, raise over
$275,000.
Among the devastating setbacks for those
who have MS, is a loss off the ability to
put one foot in front of the other. The MS
Challenge Walk affirms our commitment
to stop the devastating effects of MS.
When you walk, you move the world
closer to a cure.
You can walk in Annapolis, MD and still
benefit your local neighbors who are living daily with the challenges of MS. For
more information on this exciting new
addition to our event family, contact Kerry
Wevodau at 1-800 FIGHT MS.
SPECIAL EVENTS
Mark Your Calendars Now –
We’re playing Iron Valley Golf Club
for the fight against MS!!
2nd Annual John and Judy Byler Benefit Golf Outing
supporting the
National Multiple Sclerosis Society,
Iron Valley Golf Club
Cornwall, Pennsylvania
D
Friday, August 26, 2005
1:30 p.m.
esigned by the world-renowned
architect P.B. Dye, Iron Valley
Golf Club will provide an unparalleled golf experience for you,
while supporting your efforts to end the
devastating effects of multiple sclerosis.
Iron Valley Golf Club is surrounded by
scenic views on a 352 acre tract of land
that has historical significance dating back
to the late 1700’s. The exciting combination of natural terrain, extreme elevation
changes, and challenging layout make
Iron Valley Golf Club, truly, “A Course Like
No Other.” We challenge you to join us
on this premier public golf facility for the
fight against MS.
Outing fee is $100 per golfer / $400 per
foursome. MUST REGISTER AS A FOURSOME. Fee includes: golf, carts, steak
dinner, participant thank you gift and beverages on course.
Sponsorships are available and include
on-site and printed promotional opportunities, as well as foursome play at certain
levels. Network with our golfers, promote
your company and support the mission
by participating in corporate and tee sponsorship programs.
Sign up now to be included in the preevent early registration mailing due out
May 1 or keep checking the website for
more information. Call Karen Clipper,
Campaign Manager at (717) 985-0250 if
you have questions or email to
fr@pac.nmss.org. We look forward to
joining you at Iron Valley Golf Club for
the fight against MS.
35
SPRING2004-05
TRIBUTES AND MEMORIALS
Tributes and Memorials are a
thoughtful and convenient way for
you to acknowledge those who are
important to you and, at the same
time, support the work of the
National Multiple Sclerosis Society.
In Memory of
Hilda A. Fuhrer
Marion Klinger; Jean
Zeigler; Esther Teter; Debra
and Patrick Brosius; Deth
and Harley Becker; Cathy
and Kirk Rollins; Jim and
Audrey Brosius; Rodney
and Jo Ellen Rumberger;
Kenneth and Barbara
Lupold
Edward Ebeling Jr.
Gloria Maliniak; Richard
Eby; Mathew Mullin;
Henry and Pam Szymczak;
The associates of the Bon
ton Visual Department;
John and Doreen Eby; Al
and Pat Simokat
Ingeborg J. Lauber
The staff and residents of
Kingston House
Apartments
Anna A. Brown
Craig and Karen Hocker
Fred and Edith Engle
Frances Engle Krajewski
Anna A. Brown
Anna Murray Geary
Ralph Clark
John, Beth & Jordan
Lockhart
Edward C. Neill
David J. West; James A.
Edris; Robert Mazzoni Jr.;
Marcella K. Arline; Dan
Azzara; Burton Snyder;
Chris Baldwin; Richard
Lenny; Tom Hernquist
36
Jeffrey Watts; Marie Elias;
Dinges Family
Phyllis Diehl Poet
William Yost; IB Abel Inc.;
Harry and Margaret Diehl;
The Women of York Aglow
Lighthouse
Mr. and Mrs. Manifold
Christian Sunshine Class
Edith Nelson
Maurice and Florence
Guss; Harold and Jo Ann
Kisner
Asher Beamenderfer
Armstrong World
Industries, Inc., Marietta
Ceiling
Ellen Powers Felty
WPMT
Barbara B. Deviny
Nancy P. Diehl
Terry Lee Wagner
Deborah Bankert
Susan Maskrey
The Oberdick Family
Violet Steingard
Dan and Arlenen Domue
Violet Steingard
Bonnie Paul
Jan Keller
Charles and Barbara
Hamilton; Kenneth and
Heidi Neiswender; Jim and
Shirley Mohr
Ryan Gemmill
Zaida Montanez; Kathy
Leon Shedlosky
Summers and Gary Shirk
Edward and Ann Gormley;
Bo Berger and Cecelia
Earl Stanly Coleman Sr.
Leake; Custom Building
Hortencio Perez
Products; David Allen
Company; Fulton Financial Joel Tegeler
Corporation; Joseph and
Maureen Tietge
Betty Caplan; Mark
Caldwell; Mr. and Mrs.
In Honor of:
Harlod Turk
Janet Martin DeSciullo
Julia Martin
Peggy Spangler
Robert Alleman; Lauretta
Olinick; Donald Moyer
Rita Radzwilla
Angie and Jackson
Chapasko; Helen Zalora
Phyllis Feeser
Brian Mann; Joseph Vasko;
Dale and Joy Bievenour;
John Deardorff; Tom and
Barb Faulkner; Stanbaugh
Ness, P.C.; Blaine Feeser
and Family; Lynne
Rhodewalt
Margaret Garg
Anna Barrick; Pamela
Brown; Diane Reppun;
William and Helen Ide;
Dr. Mary Elizabeth
Chaconas; Genevieve
Sanchez-Howard; Daniel
and Kathleen McCafferty;
Ann Fitzcharles; Bald Eagle
Grotto
Hauck Calvin
David Lohr; Joseph Bedard
Doris (Puff) Davenport
Baskin
Ramsey Davenport; Joseph
Goldsmith; Doris Herre;
Mary Watts; Amy Pincelli;
Bill and Elaine Siverling;
Chester Wenrich
Patricia Firestone; Daniel
Pannebecher and Linda
Firestone; Warren and Elva
Beamesderfer; Rachelle and
Kenneth Heinsey; Leon D
and Linda Horst; Allen
and Ethel Harding
Melinda Hileman
C. Scott and Sarah
Harrison
John F. Kennedy
Erin Hubert
Macklyn Beare
Tom and Nancy Bender;
Steve and Roxanne
Andraseik; Ashley
Andraseik; Kim and Pat
Miller
Robert Heyman
Arnold and Fran Henry
Frank DeMola
Regina Lavelle; Waverly
PTA; William Eckenrode;
Irene Dangelo; Marie
Brust; Sam, Renee and
Rridget Giunta; Gretchen
and Brianna Eagen; Nancy
Phillips
Theresa Dixon
Immanuel United
Methodist Youth Fellowship
Jeremiah Wright
Jonathan Lippy
Marion Manganell
Jessica Bodzio
Jaime Wise
Cheryl Nusbaum
Debi Deremer
Vagabonds Rod & Custom
Club
Katharine Surette
Mr. and Mrs. Lester Loucks
Laurie Dennison
Mr. Ronald Bond
Lori Lyn Jones
Mrs. Barbara G. Sherrard
Garey Logan
Gregory Pappariella
Jim Falk
Gregory Pappariella
Stuart Harris
Gregory Pappariella
Marty Lane
The Underwriting
Department for Aegis
Security Insurance
Company
Darleen Fritz
The Underwriting
Department for Aegis
Security Insurance
Company
Ryan Duck
Cynthia Duck
Steven M. Pandelidis,
M.D.
The Staff of Apple Hill
Surgical Associates
Lisa and Keith Boyer
Elizabeth Mullen; Mr. and
Mrs. Shoop
Tim Mateer
East Petersburg Elementary
School Faculty
Tod Shutt
Facilities Planners &
Architects, Inc.
Keith and Lisa Boyer
Nate Fackler; Tim and Sue
Pankake; Leonard and
Catherine Schott; Nelson
and Gail Zimmerman
Alec Crispino
Douglas Pierce
Gary Manifold
Christian Sunshine Class
Nicole Porter (Birthday)
Mr. and Mrs. Porter
Marilyn and Bocker
Hunt
Michael and Marylouise
Grogan
SPECIAL EVENTS
Lend Us Your Legs
T
he Central PA Chapter of the
National Multiple Sclerosis
Society needs your legs for the
annual 2005 MS Walk on
Sunday, April 17th and Sunday, May 15th!
Walkers are needed to walk at one of our
scenic routes and help raise funds for the
5,000 local residents living with MS.
Walkers can chose from one of 11 Walk
sites across the Central PA Chapter area.
Each site and route is equipped with rest
stops, support vehicles, restroom facilities
and a fabulous finish line celebration at
the conclusion of the Walk! Participating
in the Walk is a great way to raise awareness and funds for MS research and programs within our Chapter and throughout
the nation.
There is no registration fee or minimum
pledge amount required to participate in
the Walk. So gather together your friends,
co-workers and neighbors, get registered
and get those walking shoes laced up for a
good cause!
Team Week a Success!!
team (tem) n. 1. a group organized to
work together in co-operative activity 2.
four or more people joined together under
one team name to participate in the MS
Walk or MS Bike Tour.
This winter has been a phenomenal season
for team development. Many thanks to
over 143 team captains who have already
registered their teams for this year’s events.
I know there are more of you out there!
We began 2005 with a series of TeamMS
recruitment breakfasts, hosted by Tony
Schiano of GIANT Food Stores, LLC
(Camp Hill), Carol Ackerman of the Horst
Group (Lancaster), and Don Dellinger of
Beard Miller Co. LLP (York). We have
already seen several new corporate teams
develop out of those who attended.
On February 5, the Central PA Chapter
held our first annual Team Rally at the
GIANT Center in Hershey. Thirty team
captains and members gathered to
exchange ideas on team building and
fundraising, pledging to raise over
$207,000 this year.
We celebrated a record-breaking Team
Week, with 56 teams registering over 800
team members for the MS Walk. That put
us in the #1 spot for Team Week results
among Chapters across the nation. Every
day of the week, teams earned prizes for
registrations. By the time of this publication, we will have completed another
Team Week, during which we expect to
register dozens of team members for the
MS Bike Tour.
If you would like to form a team for the
MS Walk or MS Bike Tour, please contact
Katie at (800) 556-6213 or fr@pac.nmss.org.
37
SPECIAL EVENTS
38
SPRING2004-05
SPECIAL EVENTS
VOLUNTEERS NEEDED!!!!
Lacing up your walking sneakers and hitting the pavement isn’t the only way to play a part in
this year’s MS Walk, which helps the 5,000 people living with MS in Central PA – volunteers
make a huge difference too! We’re looking for a few good volunteers for ALL of our Walk sites to
help out with check-in, lunch, rest stops and more! You can even sign up to be on our “cheering
squad” to motivate and thank Walkers as they cross the finish line!
Volunteers are a vital part of the MS Walk. We’d love to have you on board to help us
out! Simply fill out the registration form below to sign up. If you have any questions
regarding the job responsibilities or timeframes for any of the volunteer positions, feel
free to call Natasha Booton at 1-800-227-2108 or email fr@pac.nmss.org.
Name _______________________________________________________________________
Address ______________________________________________________________________
City _________________________________ State ____________
Zip ________________
Home Phone: __________________________ Work Phone:__________________________
Date of Birth: __________________________ Gender: Male or Female
T-Shirt Size: ____________ Email Address ________________________________________
Please indicate your volunteer choice(s):
________
________
________
________
________
________
________
________
________
________
________
________
Planning Committee
Brochure Distribution
Route Marking
Check-In/Registration
Lunch Server
Support Vehicle Driver
Rest Stop Support
Finish Line
Medical Support (Are you an: ■ EMT ■ RN)
Communications (Are you a Ham Radio Operator? _______)
Traffic and Safety
Photography
Please Circle Your
Walk Site
Sunday, April 17th
Camp Hill
Hershey
Lancaster
Lewisburg
Mt. Carmel
Montgomery
Montoursville
Shippensburg
York
Sunday, May 15th
Scranton
Wilkes-Barre
Please mail this form to: National MS Society, 2209 Forest Hills Drive,
Suite 18, Harrisburg, PA 17112
Or fax it to: 717-652-2590
39
SPRING2004-05
C E N T R A L PA C H A P T E R O F F I C E S
Chapter Office
2209 Forest Hills Drive, Suite 18
Harrisburg, PA 17112
(717) 652-2108 or 1-800-227-2108
Fax: (717) 652-2590
Serving: Adams, Cumberland, Dauphin,
Franklin, Fulton, Huntingdon, Juniata,
Mifflin & Perry
North Central Region
175 Pine Street
Williamsport, PA 17701
(570) 326-3751 or 1-800-820-4011
Fax: (570) 326-6039
Serving: Bradford, Centre, Clinton,
Columbia, Lycoming, Moutour,
Northumberland, Potter, Snyder, Sullivan,
Tioga & Union
Eastern Region
2028 State Street
East Petersburg, PA 17520
(717) 509-6301 or 1-800-556-6213
Fax: (717) 509-0930
Serving: Lackawanna, Lancaster, Lebanon,
Luzerne, Pike, Susquehanna, Wayne,
Wyoming & York
NON-PROFIT
ORGANIZATION
U.S. POSTAGE
PAID
HARRISBURG PA
Permit #467
Central
Pennsylvania Chapter
National Multiple Sclerosis Society
2209 Forest Hills Drive, Suite 18
Harrisburg, PA 17112
ADDRESS SERVICE REQUESTED

2004-05 Spring: Issue #2

Transcription

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