Edinburgh Babylink – Yvonne Freer
Transcription
Edinburgh Babylink – Yvonne Freer
BabyLink improving communication among clinicians and with parents Yvonne Freer Claire Russell, Russell Andy Lyon Lyon, Ben Stenson, Clevermed Ltd. Expectations of pregnancy and d parenthood The NICU experience • Environment • Technology Experience of an ill newborn • Expectations of a baby • Knowledge and skill • Anxiety & uncertainty Information • Information is technical and bewildering • Multiple staff • Other sources B b Li k study BabyLink t d Objectives: • To determine the feasibility of extracting and reporting clinical data • To T show h if BabyLink B b Li k improved i d communication i ti between b t parents and staff. The electronic baby record • What is a ultrasound scan? • Why has my baby had a scan? • Is there a risk to my baby having a scan? • Why is my baby on antibiotics? • How are they being given? NNU Clinical System Internet website www.babylink.info/edinburgh www.babylink.info/edinburgh www.babylink.info/edinburgh NNU Clinical System Patient P i information i f i authoring software Extraction/encryption software One way secure link Parents’ queries Clinical knowledge database Diaries Baby daily Unit clinical updates information Secure web access –Internet Home, website Neonatal Unit, Community A sample p report p George has been continued on ventilation. He has been in oxygen between 22 and 25%. He continues on dopamine to help his blood pressure 4th Jan 2001 08:00 D i quite Doing i well. ll No N major j changes h after f the h wardd roundd …..The scans show that George has a grade 3 bleed This means that there is some blood in the bleed. ventricles of the brain and the ventricles are a bit larger than normal. The ventricles are fluid filled spaces we all have within the brain. This degree of bleeding into the ventricles is of concern but its significance g will depend p on how things g pprogress g from here………. Dear Mummyy and Daddy, y, Well, haven't I been a real wee super star?! I have been off my CPAP for AGES!!!! I keep on trying to make the nurses take the whooshy machine away, away but they say not yet,in case I do something silly. What they don't know is that I'm trying my hardest to behave, cos I don't want to have to wear that daft hat again! The doctors have just been round,and they say that I'm just brilliant! (I knew that already of course but it's course, it s always nice when someone else says it too!) I'm really enjoying my milk. It really is the best stuff ever! Well, I'm going to go now. Give Jack a big hug and kiss from me. Lots of love and huge kisses, Olivia XXXX E l ti Evaluation Focus groups to design the questionnaire Pre - BabyLink: 150 questionnaires; 76 % return Post - BabyLink: y 115 qquestionnaires; 71% return Significant increase in the level of communication with parents. parents p = 0.02 0 02 Parents more often in agreement with the decisions made about their baby’s y care. p = 0.02 Parents expressed more confidence and trust in the medical staff. p = 0.03 Parents found medical staff to be more specific in their information. p = 0.03 Parents felt that they participated more in the care of their baby. p = 0.01 Parents felt more prepared for the transfer from ITU to special care. p = 0.01 P Parents t felt f lt they th received i d the th information i f ti they th wanted t d on breast feeding and that it was helpful. p = 0.05 Parents more likely to feel they have enough information in preparation for discharge. p = 0.03 Parents felt that they received more information on financial p = 0.01 assistance. Parents felt that they received more information on hospital services. p = 0.01 “hi just to say that we found this project really useful especially the parents reports, now that Mary has been transferred back to St Stephens, we will miss the reports”, “Hello and thank you for this wonderful site site. II'm m viewing baby from Chicago!. Wishing I could be there to give her a wee kiss and cuddle. ddl Al Also to give i big bi hugs h to her h fantastic parents and ggrandparents!!”. p Helped many parents in their communication with the rest of the family We have demonstrated the feasibility of an automated system for giving parents, via the web, information specific to their infant. Furthermore it has had a positive effect on communication within ithi the th unit it andd on parents. t What next ? • Further software development p • Development of parent reports p • Other units/other disciplines Thank you Funded by The Scottish Telemedicine Initiative, The Scottish Executive