November 2014 - Child Cancer Foundation

sharing
NOVEMBER 2014
Lauren
Supporting courage
this Christmas
inside:
CONNOR:
A year of firsts.
PETER:
A special
little man.
PRISCILLA:
Her story.
1
Daily Contacts
National SUPPORT Office
PO Box 152, Shortland St,
Auckland 1140
76 Grafton Road, Grafton,
Auckland 1010
PHN (09) 366 1270
FAX (09) 377 9395
WEB www.childcancer.org.nz
0800 4 CHILD (0800 4 24453)
Child Cancer Foundation throughout New Zealand:
NORTHERN REGION
Central region
Auckland Family Place
WELLINGTON Family Place
PO Box 152, Shortland Street
Auckland 1140
76 Grafton Road, Grafton
Auckland 1010
PHN (09) 366 1270
FAX (09) 377 9395
EML akl.familyplace@childcancer.org.nz
PO Box 7062
Newtown, Wellington 6242
27 Riddiford Street, Newtown
Wellington 6021
PHN (04) 389 2620
FAX (04) 389 2690
EML aoconnor@childcancer.org.nz
Northland
Wellington & Districts
Chairperson: Louise O’Hagan
PHN 021 044 4613
EML northlandbranchchair@
childcancer.org.nz
Chairperson: Leanne Fecser
PHN 027 354 2038
EML wellingtonbranchchair@
childcancer.org.nz
Auckland
Manawatu & Districts
Chairperson: Tam White
PHN (09) 307 7253
EML aucklandbranchchair@
childcancer.org.nz
Chairperson: Catherine Maxwell
PHN 027 876 0093
EML manawatubranchchair@
childcancer.org.nz
Waikato
Hawkes' Bay
Chairperson: Vincent Tuioti
PHN 022 128 8403
EML waikatobranchchair@
childcancer.org.nz
Chairperson: Tony Bryan
PHN (06) 878 2229
EML hawkesbaybranchchair@
childcancer.org.nz
Tauranga
Nelson
Chairperson: Debbie Roberts
PHN 027 591 4861
EML taurangabranchchair@
childcancer.org.nz
Tairawhiti
Chairperson: Louise Savage
PHN 027 260 2750
EML tairawhitibranchchair@
childcancer.org.nz
Eastern Bay of Plenty
Chairperson: Yvonne Osborne
PHN 027 211 9129
EML ebopbranchchair@
childcancer.org.nz
Lakes
Chairperson: Win Macmillan
PHN 027 476 3010
EML lakesbranchchair@childcancer.
org.nz
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Sharing • Child Cancer Foundation
Chairperson: Jill Koefoed
PHN (03) 547 7092
EML nelsonbranchchair@childcancer.
org.nz
Marlborough
Chairperson: Barbara Thompson
PHN 027 338 2086
EML marlboroughbranchchair@
childcancer.org.nz
Taranaki
Chairperson: Victoria Lewis
PHN 021 156 1653
EML taranakibranchchair@
childcancer.org.nz
Canterbury/West coast
region
CHRISTCHURCH Family Place
PO Box 1846
Christchurch Mail Centre 8140
Temporarily located at: 297 Russley
Road (entrance off Ron Guthrey Road),
Avonhead, Christchurch 8042
PHN (03) 365 1485
Construction on our Family Place
will begin shortly.
Christchurch
Chairperson: Grant Upjohn
PHN (03) 359 9200
EML christchurchbranchchair@
childcancer.org.nz
South Canterbury
Chairperson: Mark Leonard
PHN 021 149 2141
EML southcanterburybranchchair@
childcancer.org.nz
North Canterbury (in recess)
EML northcanterburybranchchair@
childcancer.org.nz
WEST COAST - SUPPORT GROUP
Chairperson: Margaret Woollett
PHN 021 146 6231
EML woolletts@vodafone.co.nz
Otago/southland region
DUNEDIN Family pLACE
PO Box 579, Dunedin 9054
28 London Street, Dunedin Central
Dunedin 9016
PHN (03) 471 7258
FAX (03) 471 7259
EML cdonovan@childcancer.org.nz
Southland
Chairperson: Jo McAslan
PHN (03) 207 2550
EML southlandbranchchair@
childcancer.org.nz
North Otago
Chairperson: Sharon Greaney
EML otagonorth@childcancer.org.nz
Central Otago
Chairperson: Lynda Read
EML otagocentralbranchchair@
childcancer.org.nz
Dunedin
Chairperson: Gloria Johnston
PHN 022 100 4756
EML dunedinbranchchair@
childcancer.org.nz
Inside:
Connor - Incredible year of firsts
4
Pete Pirie - A special little man
14
A new beginning
6
The adventures of Ai
15
Child ambassador call out
7
Health professionals' update
16
Kids' pages
8
Christmas gifting
17
Priscilla's goal
9
Regional news
18
Remembrances
10
Update from our partners
19
Cover main photo: Lauren Hemingway during filming of our Christmas campaign video.
A word from Robyn
CHIEF EXECUTIVE
Welcome to the November issue of Sharing.
We've had a very busy past few
months here at the Child Cancer
Foundation. Work is underway
on several projects that will help
us deliver some wonderful new
services to our families, and
expand levels of support.
One of these focuses is on helping
children transition back into school
after undergoing their treatment,
ensuring this process is as seamless
as possible for them. We will be
helping schools to take a holistic
approach by offering counselling
and education programmes for
teachers and staff. This will mean
schools will have the best possible
resources to help children get back
on track with their school lives,
both in and out of the classroom.
We’ve also been researching how
best to counsel families, parents,
siblings and grandparents who are
affected by child cancer. It is hoped
that by mid-next year we will be
able to deliver a broader range
of top-quality services, in
partnership with a counselling
provider, to meet the needs
of all of our family members.
As you read this, we're embarking
on a very special speaker tour with
Professor Hamish Wallace from
the Royal Hospital for Sick Children
in Edinburgh, Scotland. Professor
Wallace will be talking to parents
about his work and research on the
late effects of childhood cancer.
We look forward to updating you
all on how this tour went in our
next issue.
I’m happy to report too, that
thanks to the support of Fletcher
Construction and Christchurch
International Airport, we are halfway
through the 26 week re-build of
our Family Place in Christchurch.
If you’d like to follow our progress
check out our Facebook page.
It’s always lovely to be able to
follow-up with families featured
in Sharing. In this issue we feature
a lovely interview with Nikki
Campbell as she gets ready for
her son Connor to start school
following his cancer journey.
We also meet two year old Aaron,
who recently received his purple
heart following treatment, and
hear about how he and his family
enjoyed a holiday together with
support from us.
Finally, I’d like to thank all of our
staff, volunteers, national and
regional ambassadors, sponsors
and partners for all of the hard
work, support and assistance they
have provided for us this year.
To our child ambassadors, who
do an incredible job of giving a face
to our organisation, I hope Santa
is good to you this Christmas.
I’d like to wish you all a very happy
holiday and a safe and special
Christmas. If you can, please
try and take some time out to
relax and recharge and enjoy the
summer months.
Kind Regards,
Robyn Kiddle
CHIEF EXECUTIVE
- Child Cancer Foundation
Child Cancer Foundation • Sharing
3
Connor
INCREDIBLE
YEAR OF FIRSTS
Sharing readers may remember
the story of Connor Campbell,
the little boy diagnosed with
Wilms Tumour four years ago.
Recently, we caught up with
Connor and his fabulous mum
Nikki to see how they are getting
on now that he is about to start
school...
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Sharing • Child Cancer Foundation
There have been a lot of firsts for five year old Connor Campbell this year. He’s had his
first bath in four years, his first trip to the beach and said his first few words. In fact,
now that Connor is cancer-free and the recipient of a brand new kidney, thanks to his
mum Nikki, there seems to be no stopping him.
Four years ago however, it was a completely different
story. Connor was so ill with Wilms Tumours in both his
kidneys that his chance of survival was incredibly low.
It all started just after Connor’s first birthday.
“All of a sudden he began vomiting, he had a terrible
temperature and he just got worse and worse,” remembers
Nikki.
Initially, Nikki, and dad Gordon, thought it was a tummy
bug or flu but a tumour on his left kidney had ruptured
causing severe infection.
Nothing could save the kidney. In August 2010 it was
removed and Connor began chemotherapy.
Unfortunately, tumours in his right kidney were too
aggressive to respond to treatment, so in February 2011
this was also removed.
“That was one of the scariest times for us,” says Nikki.
“Connor had a really bad reaction to his anaesthetic and his
blood pressure just crashed. He stayed in hospital for three
months. We thought we’d lose him many times.”
Hemodialysis begun immediately after surgery, along with
further rounds of chemotherapy and radiation.
Eventually, Connor could return home, but he still had
hundreds of procedures to endure. Nikki continued to
administer dialysis treatments at home, which meant life
was incredibly restricted for the entire family, including
older sister Maud now eight.
“It was hard. There were lots of things we couldn’t do.
My mum stepped in a lot to help with Maud, which was
amazing, and we received a lot of help and advice from the
Child Cancer Foundation.”
Nikki continues to monitor Connor closely. Prior to the
transplant his fluid intake was limited - he was only able
to have 350 mls per day – now she has to try and coax him
to drink two litres of fluid to keep his kidney functioning
properly. Connor also has to take immunosuppressant
medication to ensure his body doesn’t reject the kidney.
The adjustment from having
such a sick little boy to a
healthy one has been huge and
at times Nikki doesn’t know
what to do with herself.
“My life revolved around hospital, chemotherapy, the
dialysis machine and the transplant for four years - it became
my version of normal. Now, I have to keep reminding myself
we can leave the house and get out and do things.”
One of the things she is most looking forward to is taking
Connor swimming in the school pool this summer.
“I can’t wait. He hasn’t been able to go into a pool before
because of the risk of infection. Connor loves his baths so
much, I just know he’s going to love the pool. I am really
excited about seeing the look on his face when he gets in.”
In the New Year Connor starts school where there will be
many more firsts to come.
In order to be considered for a live donor kidney transplant,
Connor had to be cancer-free for two years. Nikki was
determined to do everything possible to get her son there.
“As soon as I found out a kidney transplant was an option,
I put my hand up for it. As a mum I knew it was what I had
to do. When Connor got the all clear, I pestered the doctors
to try and hurry the process along because I knew with
dialysis we were on borrowed time.”
In November 2013, Nikki got her wish and Connor received
his new kidney.
“I noticed a change in him immediately,” says Nikki.
“He was like a brand new boy in terms of his energy.
He began to talk, he’d never spoken before, and he
became interested in food. It was like a huge fog had
lifted from him.”
Child Cancer Foundation • Sharing
5
ANew
BEGINNING
There is one bead, more than any other, that children with cancer
look forward to receiving the most; the purple heart – the bead that
signifies the completion of treatment.
Recently, two and a half year old Aaron Geerlings was
able to add a purple heart, to his very large Beads of
Courage® collection. So as that journey ends, another
positive one begins because Aaron will very soon
become a big brother.
As a mum of four, Rebekah Geerlings was used to dealing
with the regular ailments of childhood, but when her
youngest child, Aaron, developed a very high fever out of
the blue she instantly knew something was not quite right.
Rebekah, and husband Luke, made the call to take their
15 month old straight to Tauranga Hospital, where he was
immediately admitted with a severe case of pneumonia.
“We thought, ok this should be quickly cleared-up, but the
following morning when the doctors were examining him
they felt something not quite right in his tummy, so they
booked us in for a CT scan.”
The scan showed a very large tumour growing near Aaron’s
kidney and the doctors’ suspected Neuroblastoma.
Surgery was the only option to remove the tumour. Once it
was out an official diagnosis of Neuroblastoma was made
and Aaron’s year-long cancer journey officially began.
With three other children to take care of, (Tim, seven, Naomi,
six and Micah, four,) Luke and Rebekah were initially reliant on
support from their family to help them through the process.
"We really weren’t sure how we were going to manage
things. When we were up for Aaron’s first lot of treatment,
a support worker from the Child Cancer Foundation came
and introduced herself to us.”
to be with Aaron on the ward. When we needed to we
could use the Child Cancer Foundation Family Place, so the
children could have a bit of time out.
Back home in Tauranga, local family support worker Debbie
Hockly was able to help facilitate extra assistance by
organising petrol and grocery vouchers and connecting the
family with others nearby also dealing with child cancer.
Earlier this year, Debbie arranged for the family to have
a much needed holiday at the Child Cancer Foundation
holiday home in Taupo.
“We all had so much fun. The kids loved it so much they
are convinced the cottage is theirs. Every time they see
another family using it on Facebook they ask me what are
they doing in our cottage!”
If there is one piece of advice Rebekah can offer to other
families it would be to make use of the services the Child
Cancer Foundation provides.
“Don’t be shy about asking, they are there to help and also
try and make connections with other families."
Now that Aaron’s last two tests have come back all clear,
the family are looking forward to adding a new member
into the mix.
“It’s going to be busy, but a good happy sort of busy.
It’s great to have something positive and new to focus on.
We can’t wait.”
Rebekah and Aaron were able to stay at Ronald McDonald
House while Aaron was undergoing his treatment - six rounds
of chemotherapy, a bone marrow transplant, 12 sessions
of radiation and a further six rounds of immunotherapy. As
arduous as it sounds, Rebekah says it was made that much
easier thanks to the Child Cancer Foundation. This support
allowed them to relocate the family to Auckland every time
Aaron needed to be in Starship.
“I think we all got through it as well as we did because
we were always able to be together,” says Rebekah. “We
could bring the kids with us to stay at Ronald McDonald
House and Luke and I were able to take it in 24 hour shifts
6
Aaron holding his purple heart bead.
Sharing • Child Cancer Foundation
CHILD Call Out
AMBASSADOR
Would you like to be one of our Child Ambassador stars for 2015?
To create awareness and raise funds to help families
affected by child cancer we would like to invite children
and their families to be included in promotional imagery
and media for the coming year. This will involve different
types of media activity and advertising and may require
some travel.
We’re looking for three National Child Ambassadors
and a number of Regional Ambassadors!
For the three special stars for 2015, we’re seeking
children between five – 12 years who love the
camera. These three children will be selected for print
promotional material and media activity during Child
Cancer Appeal Month (March) and for the rest of the year.
All children who apply will be invited to become a
Regional Child Ambassador to take part in other local
media opportunities, share their story and photos for
our website/social media. So we are keen to hear from
everyone who is interested.
If your child would welcome the idea
of being one of our 2015 stars, please supply us
with the following:
• Child’s full name
• Date of birth
• Gender
• Your contact details (name, phone, address)
• Child’s interests and hobbies
• Please tell us a little bit about your child’s
cancer journey
• How did the Child Cancer Foundation
help your family?
• How many Beads of Courage® does your child have?
• Please supply two or more recent photos of your child
Please email the above details to Jade Le Geyt:
jlegeyt@childcancer.org.nz by 21 November.
Child Cancer Foundation • Sharing
7
Gorgeous artwork
from Tawa, Wellington
Kids ’
Pages
CLOCKWISE FROM TOP LEFT:
Emily Harvey (6), Loren Harvey
(8), Erica Boamach, age (6 ½).
Andrew's awesome show!
Nine year old Andrew of Auckland, was diagnosed with
Wilms Tumour in October 2013. He and his three sisters
decided they wanted to put on a special show for their
Dad for Father’s Day. The kids spent most of the day
preparing - typing up/laminating a programme, banners
and scripting/practising their performance. They put
together an awesome show with singing, dancing and
entertainment. What talented kids!
Addie goes
to kindy
Sophie's
celebration
Addie was diagnosed
with Langerhans Cell
Histiocytosis at the age
of six months. After 15
months of chemo and
getting her purple heart at
her second birthday, she has
finally joined ‘normality’
and started kindergarten.
She loves it!
Sophie Gilchrist of Renwick,
Blenheim, recently had her end
of treatment meeting at Nelson
Hospital (for Acute Lymphoblastic
Leukaemia). This photo is of
her with the cupcakes the Child
Cancer Foundation provided. They
were made by a local café and
were decorated to symbolise the
Beads of Courage® and purple
heart bead for end of treatment. Here is Addie Jane Torok (3)
with her big brother Sammy (4).
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Sharing • Child Cancer Foundation
Sophie pictured.
PRISCILLA'S
Goal
HER OWN
RECITAL
Looking at this picture
of Priscilla John, it’s hard
to believe that this vibrant
six year old has undergone
three different brain surgeries
in less than two years.
But as her doting mum Bensy says, she has
just bounced back each and every time.
Priscilla was diagnosed with a Pilocytic Astrocytoma in
her cerebellum just two days after her fourth birthday.
Bensy, herself a doctor specialising in spinal injury
and recovery, had noticed her daughter had a tendency
to lose balance and fall and that she also walked with her
head tilted to one side.
“She had had an ear infection so at first I put the balance
problems down to that,” says Bensy. “But once that had
cleared up and she was continuing to fall and tilt her
head I took her to Starship to have her checkout and that
confirmed my fears. She had a brain tumour.”
Priscilla had her first operation five days later.
says Bensy. “I spoke to some musician friends of mine
in Dunedin and asked their advice and they said the violin
was a great instrument for children to learn.”
When Child Cancer Foundation Family Support Coordinator
Mary Mangan learned of Priscilla’s desire she suggested the
family apply for a Personal Development Grant to help pay
for violin lessons.
“We were hopeful that everything had been removed but
when we went back for a check up scan three months later
the tumour had grown back so we needed to have another
operation pretty quickly.”
“Mary was great. She was so supportive and helpful and
she has been there for us every step of the way.”
It was in between surgeries one and two that Priscilla
first asked her mum and dad (Zibi) if she could learn
to play the violin.
Three months after her second operation Priscilla had
another scan. Unfortunately, that too showed that the
cancer had returned and yet another surgery took place.
“I’d always thought of her playing the piano so it was a
surprise when she said she wanted to play the violin,”
Scans since then have remained clear and Priscilla has
been moved to six monthly checks – a big improvement.
Priscilla takes lessons privately once a week, however she
tries to practise as much as she can.
“She still has to go to the hospital to have things
monitored, which she hates, but I always tell her that we
will be able to visit Mary and the Family Place and she gets
excited and sees that as her reward for having to do more
tests. She really enjoys seeing Mary.”
She also loves playing the violin and Bensy is looking
forward to watching Priscilla perform in a recital one day.
“She’s only just started but I think it is something she will
always do. She’s very determined.”
Child Cancer Foundation • Sharing
9
Remembrances
adults fighting to do the bedtime story.
I have to read them all over again just so
I can find out what really happened in the
end. I will read them with tears in my eyes
and sadness in my heart but will still enjoy
the adventures.
Brooke Noble
Daniel Camp
Born: 12 March, 1993
Passing date: 18 September, 16 years
Born: 16 February, 2007
Passing date: 22 May, 2014
Poem to Brooke
Can I have another kiss, another hug,
another smile?
Can I have one more chance or a
moment, just to be with you for a while?
I thought you were mine to keep,
but I was mistaken,
So cruelly from my life you were taken.
You are now living in the hearts of those
you have touched,
Your gentle soul, your amazing spirit,
I love you so much.
Most of the time, I think of you as not
having gone away,
As you are with me, in my memory
& thoughts, every single day.
Brooke, my Angel, your next journey
has begun,
Life holds so many facets… this earth
is only one.
Daniel’s story echoes like so many
of the stories of our children that we
have sadly lost.
Written by Gina
Love & missed always Mum (Gina)
& Mariah xxx
He was born in Durban, South Africa in
February 2007. He was a bright, beautiful,
energetic boy-child who loved life and
captured the hearts of all who knew him.
Daniel loved all things “boy” – riding his
BMX; climbing trees; shooting his toy
cowboy gun at anything that moved;
cutting, chopping, sawing and drilling
anything his dad would let him. One day at
the sweet age of 4 and a half, his life and
our life changed forever. After two different
diagnoses and two years of intractable
epilepsy we were given the tragic news
that Daniel had developed a terminal brain
tumour.
In February 2014, my husband and I
brought Daniel home to New Zealand
to spend some quality time with his
grandparents and experience the life of a
Kiwi child as I had known. Sadly Daniel’s
health declined quickly and he wasn’t
able to return to his beloved Africa – nor
see his father who had returned to South
Africa for work commitments. Daniel
passed away on 22 May 2014.
I am sharing with you my dedication to
Daniel that I read at his memorial service
in South Africa.
Daniel gave so much. His story was like a
whirlwind – it picked people up and took
them along on his journey.
Daniel gave me the strength and courage
- he never gave up.
He taught me about unconditional love –
all those beautiful hugs and kisses and daily
“I love you mum” that I miss so much.
Daniel showed me the beauty of
humanity – he showed me how good
people really are.
He gave me lots of grey hairs!
Daniel gave me ‘The Famous Five’ and ‘The
Secret Seven’ – I’ve never seen so many
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Sharing • Child Cancer Foundation
Daniel gave me camping on Poppa’s back
lawn – 4˚c temperatures two nights in a
row. We ran across the frosty deck at 6am
laughing, to go and sit by the fire to warm
ourselves. It was worth the sleepless night.
Daniel gave me New Zealand’s beautiful
autumn leaves, the frosty mornings, blue
skies and bird song.
He gave me the beauty of a grandparents’
love, and the haunting beauty of their
tenderness and sorrow at their loss.
He gave me the beautiful night sky,
the Evening Star and the breath-taking
Milky Way.
Daniel gave me the strength to stand up
and tell his story – I owe it to him.
Daniel, my boy, you are the gentle breeze
rustling the leaves in the trees.
You are the sound of the happy banter of
the monkey’s play fighting in your special
Monkey Den.
You are the autumn leaves drifting silently
to the ground, and the steam rising off the
grass as the morning sun rises on a frosty
morning.
You are the first night star shining so bright
and beautiful. You are the Milky Way.
Daniel – you are following the sun.
Be free my Angel and know that I love you
to the moon and stars and beyond.
I am proud of you my boy and lucky to be
your mum.
Daniel’s death leaves me with such a deep
sadness that will never leave me. I keep
daily reminders of him around me – his
gumboots at the back door, his raincoat
on the rack, his clothes and toys in the
cupboards and of course the pictures of his
beautiful cheeky face that adorn the walls.
There is a Facebook page that was
dedicated to Daniel to keep his friends
informed of his adventures in New
Zealand which I still post pictures and
events on: www.facebook.com/pages/
DanielsAdventures/618461654855593
Please feel free to visit the site.
Sheena Camp
Remembering those we love who continue to live on in our hearts...
Madie Stella Taylor
Gino Carroll
Born: 31 July, 2007
Passing date: 22 March, 2014
Born: 14 March, 2002
Passing date: 14 October, 2013
Our darling beautiful Madie. We still can’t
believe you’re not with us anymore - but
we hold you so close in our hearts every
moment of every single day. From the
fateful day in June last year, when our
world collapsed to now is still such a blur. Gino was a boy who loved his rugby he
would play in a team called College Old
Boys or COB for short and he played it at
home every day even if it was raining, he
also liked to play it on Xbox.
We all miss your wonderful girly-ness
and pinkness and creativity. We miss
your funny sense of humour and your
incredible strength and acceptance and
Dad and I try and be like you so often
now when we still struggle through hard
times. We think of your amazing strength
through your treatment and operations such hard dark days for you - when things
feel tough. We all treasure our memories
of the wonderful times away with you and know you watch over us still. You
were such a ray of lightness and sparkle in
every day - and so quickly made a place in
everyone’s hearts. While we miss you so
much, we know we were so, so lucky to
have you for the time we did. In October 14th St Joseph’s School will
have a bench made in memory of Gino
from when he went there.
You have a new beginning Madie - and
while our hearts break to see you go
ahead, we know you will find your own
way. You were our beautiful, amazing
daughter and sister and are still our
joy and our pride. All our love forever,
Mummy, Daddy, Louis and Arlo (and Milly
and Mittens who are so grown up now!)
Time for me to leave you, I won’t say
goodbye; Look for me in rainbows, high
up in the sky. In the evening sunset, when
all the world is through, just look for me
and love me, and I’ll be close to you.
Gino’s Siblings (Lawrence, Mere and
Riana) all miss their little brother
Gino. We all miss him, Riana always
remembers when she and Gino went
to school together and had lots of
arguments and had lots of laughs on
the way. Riana feels like an only child
without him there. She is always thinking
of him and remembers all the memories
they shared together. We loved watching
him play rugby but now he’s gone. Dad’s
heartbroken because of his loss. Mum
had a special bond with Gino who was
called ‘Mummy’s boy’ he loved being
with mum 24/7.
Gino loved seeing his friends and visiting
their houses.
He got trophies six years in a row.
Riana: My family and my Nanny and Papa
are always thinking of Gino very much,
Gino had a brain tumour. All the family,
cousin, nanny, papa supported Gino.
I remember Gino was little - around
two and a half or three years old, his
father (Kevin) brought his friends over
to watch the All Blacks - all his friends
were shouting ‘Go the All Blacks!’
Gino would watch Dad and his friends
shouting! He would hold the rugby ball
while watching the rugby.
I remember him watching the All Blacks
he was very interested. Gino was 5yrs
old when he started playing rugby for
COB under 5s, we didn’t know Gino was
really good at rugby.
Alisha Bellward
Born: 21 April, 1997
Passing date: 3 June, 2013
Your life was a blessing
Your memory a treasure
You are loved beyond words
and missed beyond measure.
always in our hearts our darling,
Mum, Dad, Chelsea and Jacob.
When he was ten years old he received
a Big Award! We were very proud of him.
Gino loved going to school at St Joseph’s
School and he still missed Bunnythorpe
School where all his good friends were.
He was very happy at St Joseph’s School
in Feilding and eventually made some
more great friends there. Gino was
determined to be at school early he
would say ‘8 o’clock no later’ because he
wanted to have more time to play with
his friends.
Child Cancer Foundation • Sharing
11
Remembrances continued...
Samuel Joe Nalder
Toby Mackay Davis
Chantae Michelle Heremaia
Born: 27 September, 2011
Passing date: 21 June, 2012
Born: 22 August, 2007
Passing date: 3 December, 2011
Two years ago we had to say goodbye
to our precious, gorgeous, giggly, snuggly
little boy….
We would give anything to have you back
home with us, back in our arms, and back
getting up to mischief with your sisters. A part of all of us is missing forever x
We love you Sam, we’ll always, always
love you,
Mum, Dad, Maia & Lily xxx
Toby, once again your birthday passes
with only the memories you left us
and the wondering of how you might
have been as an active seven year old.
As we look at the photos and other
memorabilia, there is a huge sadness but
also a huge fondness for the wee guy we
miss so much. Just recently we took Ailsa
on a roadie of your haunts and showed
her where her big brother lived and grew
to provide us with the memories. She
took her first helicopter ride to see where
your ashes rest and we hope to get her
up there again in the future because our
love for you and appreciation of how you
touched us will not diminish.
Chantae was 14yrs old when she went to
heaven. Chantae has been in heaven now
for two years. It was hepatocellular cancer
that had the final blow. We found out
seven months before she passed on that
she had this disease, it has been very hard
as we have a big family of five children,
the youngest being six years. Chantae has
a beautiful spirit and an amazing heart, it
has been the valley I have ever had to face,
this has opened my eyes and my heart to
others facing the same storm. We are so
happy we will see her again one day in
heaven. As we love Jesus and know he is
taking good care of Chantae, we also know
she is in a very peaceful place with no pain.
She is looking forward to seeing us all!
I’ll be your legacy
I’ll be your voice
You live on in me
So I’ve made the choice
To honour your life
By living again
I love you
I’ll miss you
I’ll see you again..
(Written by Alan Pederson)
Love you always and look to the sky
each night to thank you for being and
making our lives more full.
Jess, Ailsa, Rod
Chace Eriki Topperwien
Born: 17 March, 2009
Passing date: 15 June, 2012
Kristin Monique Osborne
Zoe Michelle Wilson
Born: 18 May, 1998
Passing date: 17 July, 2006
Born: 4 April, 2006
Passing date: 29 September, 2012
Eight years may have gone but our ears
miss your voice, our arms ache to hug
you, our eyes miss your beautiful smile
and our hearts miss your love.
You were the brightest star in our lives,
now you are the brightest star in Heaven
and in our hearts.
Loved and missed always and forever.
Love Mum, Dad and whanau.
Love Mum, Dad and Alecia
What a lucky mummy and daddy we are to have a beautiful son like you
Your compassion, your bravery
your strength and your lovely nature too
You teach us how to live life
with compassion, love and grace
We couldn’t be prouder of you darling
our handsome hero, our beautiful Chace
You now look down over all of us
protecting and loving us from above
Thank you for being our beautiful son
Our darling bubba, you are our
greatest love
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Sharing • Child Cancer Foundation
Remembering those we love who continue to live on in our hearts...
We thought you’d be married and we’d dance too
We thought you’d be a mother and we’d spoil you
We thought you’d grow old, years beyond us two
We thought we knew strength but not like you
We thought we knew courage but you knew that too
We thought we knew value but you surpassed that too
We thought we knew time but you felt that too
We thought we knew life but you taught us that too With your final last breath you left us on earth
Irreplaceable memories and treasures of gold
An amazing big sister, nurturing heart and deep soul
Our precious proud daughter, just 7 years old Iris Maiata Pouao
Born: 15 April, 2007
Passing date: 7 July, 2014 We thought we knew love and then we
met you
We thought we knew magic and then we held you
We thought we knew tenderness and then we kissed you
We thought we knew happiness and then we heard you
We thought we knew amazement and then we watched you We promise to remember and celebrate you
Just promise us back that you’ll do the same too We thought we knew heartache and then we lost you
I love you round the solar system…
We thought you’d go to Uni and we’d support you
We thought you’d go flatting and we’d move you
We thought you’d go travelling and we’d visit you
XOX Darlene Tuiono (Muma), Tuaanu Pouao (Daddy), Tutavake
Pouao (5 years old) XOX
Forever our girl
Forever your brother
Forever your muma
Forever your daddy A Child Loaned
- Anonymous
Jessica Ann Jones
Finlee Johnson
Born: 25 October, 1999
Passing date: 21 June, 2009
Born: 8 September, 1999
Passing date: 14 June, 2008
In loving memory of Jessica who passed
away from a rare condition. Gorhams
Disease is difficult to diagnose and was
discovered at an advanced stage by
the doctors at Starship Hospital. It is
estimated that only 200 cases have been
recorded worldwide and there were only
three known cases in NZ at the time in
2009. Every day angel girl xxx
Brave and beautiful Jessica succumbed
to the disease suddenly. I will always be grateful for the love,
care and support given to Jessica and I.
My heartfelt gratitude to Starship
Hospital and Child Cancer Foundation.
My darling daughter, you are very much
missed and will love you always.
Mum xxx
William (Will) Burnet Muir
I'll lend you for a little time
A child of Mine. "She said,
"For you to love the while she lives
And mourn for when she's dead."
It may be six or seven years
Or twenty-two or three
But will you, til I call her back
Take care of her for me?
She'll bring her charms to gladden you
And should her stay be brief,
you'll have her lovely memories
as solace for your grief.
I fancied that I heard them say,
"Dear Lord, they will be done,
for all the joy thy child will bring,
for the risk of grief we'll run.
We'll love her while we may,
and for the happiness we've known,
forever grateful stay.
But should the angels call for her
much sooner than we planned,
we'll brave the bitter grief that comes
and try to understand."
Born: 11 August, 2008
“Our bright and fun little boy, taken too
soon, forever loved and forever missed.”
Many thanks,
Jeremy, Catherine, Eloise, Laura and
Louis Muir
Child Cancer Foundation • Sharing
13
Pete
Pirie
A special little man.
Peter Pirie featured in Sharing Magazine in 2011
and was well-known and loved at the Child Cancer
Foundation’s National Support Office and at Starship.
Pete’s mum Bridget would like to share her thoughts.
When Peter was first diagnosed with Leukaemia (A.L.L.) back in April 2007,
it was all a bit of a shock. We didn’t know anything about blood counts or
how to find our way around Starship. I remember those early clinic days,
when steroidal Pete would be crying continuously - there was no way that
I could talk to other parents, or hardly even cope at all. But at least his
Leukaemia had a good prognosis. We knew that we just had to get through
treatment and then we would be able to get back to a normal life.
Over the first three years, we got used to Starship and the way that things
worked. We made friends with other hospital parents, got well-versed in blood
results and we eagerly counted down the days till Pete could finish treatment.
Unfortunately though, Leukaemia wasn’t finished with Pete; and he relapsed
in his bone marrow, five months off treatment. This was when life really got
interesting. Peter had to start a whole new protocol, which made his first
treatment seem like a walk in the park. We were given the choice of not
fighting. But that was never going to be an option for us. We would give
anything to keep our dear wee, mischievous boy with us.
Pete nearly died in his second round of relapse chemo; but finally his poor,
ravaged body started healing and he moved back onto a maintenance
treatment. Pete could go back to school and life became a lot more normal. But every so often, a lumbar puncture would show that blasts (cancer cells)
were in Pete’s spinal fluid, and our hopes would be dashed once again.
Eventually, we were told that there wasn’t a cure for Pete.
I couldn’t give up, desperately searching overseas for clinical trials that
we could try to get Pete on. I eventually found one in Philadelphia which
I thought could save Pete, as it was using a whole new kind of treatment,
immunotherapy. But we couldn’t get Pete accepted onto the trial. It was
incredibly frustrating.
In the end I was just hoping for time, so that the trial could progress and
eventually come to Australia or New Zealand. But time eventually ran out
for Pete, when he relapsed in his bone marrow, once again, on Mother’s
Day this year. Things went downhill crazily-fast from that time. We tried
chemo, but Pete ended up with sepsis and in PICU on a breathing tube.
We slowly realised that chemo just wasn’t an option. Pete’s body was
wearing out, after over seven years of chemo, even though he still had
his huge fighting spirit. This was one little boy who didn’t have time
for pain or sadness. He just wanted to get out there, have fun, and
keep living life to the full.
Peter died at home, on July 11th, surrounded by his family and closest
friends. He died as he had lived, not willing to give up and desperately wanting
to stay alive till the very last second. He had so much strength and perseverance.
It’s funny... after he died, I heard that many of my extended family were
relieved that Pete was finally dead, and that his suffering was over. I thought
they meant the suffering of his last few weeks. But no, they had meant
the last few years. They obviously didn’t know Pete, as he was a little boy
who adored his life so much.
He loved Starship. He was always so excited to dress up and go to clinic,
and see all the nurses and doctors. He loved going to theatre and seeing all
the staff down there. Sure he had some bad times, but when I think of Pete,
I think of him laughing and happy - making the most of every second.
So, thank you to Starship for giving us our little boy for seven extra years. I
know that it doesn’t seem long enough now, when we miss him so incredibly
much, but we truly are grateful for the first-class care he received. We are also
so grateful to the Child Cancer Foundation for all the amazing support that we
have had. Especially to our Family Support Worker, Mary, who always had time
to come and read books to Pete, spend time with us and make us feel special. In
amongst our grief, we know that we all have been so well cared for. Thank you.
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Sharing • Child Cancer Foundation
Play:
THE ADVENTURES OF AI
and help support the Child Cancer Foundation
The Child Cancer Foundation is the
chosen New Zealand charity for Ai’s
Adventures’ World Charity Cup –
a free to download, fast-paced game
for iOs or Android.
The Adventures of Ai project was developed by US
best-selling author Craig Bouchard and, along with the online
game, features a children’s novel and music. The project is
child-safe and friendly and includes some wonderful life
lessons about history, mathematics, art, music and poetry.
In the game, players get to run, fly, duck and jump along
with Ai through a cool maze of challenging obstacles on her
journey across a 3D Japanese landscape. The World Charity
Cup is designed to promote the game and encourage
children to compete against children from other countries
to raise funds for 20 charities around the world. Scores are
recorded on the Adventures of Ai website for the benefit of
their country’s total score.
Ten percent of net revenues from the associated book
and music earned in each country during the competition
will be donated to the participating charities within that
country. In addition, ten percent of the global revenue
during the competition will be donated to the charities in
the country that records the highest average player scores.
So, each time a New Zealand child plays the game
after registering; his or her points will be credited
to the Child Cancer Foundation. Download the
game for free at: www.adventuresofai.com
Child Cancer Foundation • Sharing
15
Health Professionals'
Update
Dr Andrew Wood
After spending seven years living in Philadelphia, USA, I recently
returned home to Auckland to start working as a paediatric
oncologist at Starship and a researcher at the University of
Auckland. And I must say, it’s absolutely lovely being home.
One of the initial impetuses for my
Philadelphia adventure was hearing a leading
American paediatric oncologist give a talk in
New Zealand. The Child Cancer Foundation
helped fund the conference where he was
the key-note speaker, and I was so impressed
that I decided I wanted to spend more time
around people like him. So, with the critical
assistance of a Child Cancer Foundation
health professional grant-in-aid I went off
to Philadelphia.
While there I did a mixture of clinical work
and research in the laboratory. Arriving in
Philadelphia is like walking into an All Black
dressing room. First, there were almost 60
consultants focused on just cancer and blood,
many were eminent, and people who used
to be strangers giving lectures at the front of
auditoriums became colleagues and friends.
The highlights of my time in Philadelphia
included two projects that touched both
of the major revolutions that are slowly
taking place in oncology. The first was
the discovery of various new mutations in
cancer using next-generation sequencing
and working with pharmaceutical companies
to test new drugs to target these mutations
in the laboratory and with clinical trials.
The second was seeing a new form of
immunotherapy called “CART19” introduced.
With this therapy researchers remove
immune cells from somebody with a certain
type of Leukaemia or Lymphoma. Then they
make the immune cells clever by genetically
manipulating them so they vigorously attack
the Leukaemia. After growing the cells in the
lab they then return them new and improved
back to patients. In both cases, new
mutations targeted by new drugs and the
CART19 therapy, I was lucky enough to see
cancers respond in cases where families had
no other hope. It was quite extraordinary
and left a profound impression.
I also had first-hand experience about how
these “breakthroughs” happen. They are not
sudden. These discoveries can burst on to the
scene, but they are typically based on decades
of research. Usually, the research road is not
a straight line from scientific discovery to
medical innovation. Instead there are twists
and turns and quirky insights from research
16
Sharing • Child Cancer Foundation
where no clinical benefit to patients was ever
really imagined. It’s a bit like assembling a
10,000 piece jig-saw puzzle but with a big
disadvantage…researchers don’t know what
the final picture will look like and need to use
creativity to imagine the solution.
Otherwise, it can be hard to assemble all
pieces together in the middle of the puzzle
even if the edges and corners are in place.
There are also thousands and thousands
of failures that are needed to develop
successful new treatments. It reminds me of
the Thomas Edison quote: “I have not failed
10,000 times. I have not failed once. I have
succeeding in proving that those 10,000
ways will not work. When I have eliminated
the ways that will not work, I will find the
way that will work.”
All this work takes big complex international
teams with lots of funding, and the research
funding and motivation has to persist through
10,000 failures and that is understandably
challenging. Science is much more expensive
than most people realise.
Though I have seen this excitement, I am all
too aware that a huge amount of work needs
to be done to extend these benefits to all
children and adolescents with cancer. From
my clinical work I am reminded everyday
that the pace of advance is way too slow,
and that we need to fast forward how
advances are made.
Now that I am at the University of Auckland,
I am going to do research into different
genetic types of Acute Myeloid Leukaemia
in collaboration with colleagues in the USA.
The next-generation sequencing of cancer
has produced catalogues of mutations – the
spelling mistakes in DNA that accumulate to
cause cancer. However, we don’t know what
most of these mutations mean and how they
change the circuitry of the cells. My research
aims to understand what these mutations
are doing to the cell machinery with the
ultimate goal of discovering vulnerabilities
that we might someday exploit with new
treatments. It is an exciting time.
And the Child Cancer Foundation's support
of my career helped make it happen.
Health Professionals'
Update
Children's Oncology Group
Children’s Oncology Group (COG), the major collaborative
North American child cancer study group, held its annual
open meeting in Dallas 16-19 September.
Both children’s cancer treatment centres
in NZ (Christchurch and Auckland) are
members of COG and enrol children on to
COG clinical trials. Health professionals from
both centres were able to attend COG, with
funding from the Child Cancer Foundation.
Dr Andrew Wood kindly shares with us the
following report from the conference.
Therefore, the addition of a targeted agent
may add only a little toxicity, “but it might
be the proverbial straw that leads to a
tragic outcome.”
So the question can be asked: what is the best
way to add new drugs to existing therapy?
COG recently published the results of
AAML0531 that enrolled paediatric Acute
Myeloid Leukaemia (AML) patients from 2006
to 2010. The major objective of the study
was to test an antibody drug conjugate called
gemtuzumab to see if it improved survival.
The study showed that gemtuzumab
decreased Leukaemia deaths, but this benefit
was largely offset by an increase in death
from drug side effects.
One possible answer is to remove or lower
the dose of the chemotherapy agent that is
believed to have the least efficacy. In AML,
analysis of multiple trials suggests etoposide
is the least active agent that we use in current
therapy. Therefore, a new trial for paediatric
AML will re-test the addition of gemtuzumab,
but patients will not receive etoposide. The
moral of the story is that taking away a
minimally effective drug may be the best way
to give a new agent the chance to shine.
This highlights a problem that many of our
protocols already give as much chemotherapy
as a child or adolescent can tolerate.
Health professionals are extremely grateful
to the Child Cancer Foundation for having the
opportunity to attend this conference.
Christmas
Gifting
With the assistance of Grizzly
Digital, Child Ambassadors
Lauren, Quinn and Jayme
have helped us put together
an interactive donation
website for Christmas!
Whether you’re a company stuck for
an idea for client gifts, an individual not
sure about a Secret Santa pressie or just
sick of buying gift vouchers or socks
for your family – we have the perfect gift
that is personal, meaningful and will
touch hearts!
Make an online donation to the Child
Cancer Foundation on behalf of your staff,
valued clients, family or friends by simply
choosing a particular item off our “wishlist”. Whether it’s a Christmas hamper or
a grocery voucher, the recipient will love
knowing that they’ve helped bring smiles to
child cancer families all over the country.
Courage comes in many forms. See what it
means to our brave Child Ambassadors this
Christmas and Lauren will tell you personally
what it means to her.
So, what are you waiting for? Start
ticking off your Christmas list at:
www.childcancerappeal.org.nz
Special thank you to the team at
Grizzly Digital for all their support
of this campaign.
Child Cancer Foundation • Sharing
17
Regional
News
Young film-maker's
moving tribute
When Hunter Williams first read about Quinn Hautapu’s battle
with cancer he knew he wanted to capture her quest on film.
The inspirational result, Quinn’s Quest, follows Quinn’s battle
with cancer, and her desire to make a difference in the lives
of other children with cancer by becoming an ambassador
for the Child Cancer Foundation.
Hunter (15) first read about Quinn on her Facebook page and her
story resonated with the Auckland secondary school student.
“It really seemed like a story that could touch the hearts of a
lot of people. Quinn has gone through so much and yet she also
gives back so much,” says Hunter. “The documentary features
interviews with both Quinn and her mum. It focuses on Quinn
inspiring other young Kiwi kids who are going through cancer
through her work with the Child Cancer Foundation.”
Hunter has entered his film into two national film-making
competitions and shared it on social media achieving nearly
1000 views on YouTube. Check out Hunter's film on the
Child Cancer Foundation Facebook page. Good luck Hunter!
Hunter, with his sister
Felicity, and Quinn
during filming.
A freezer full of frozen meals - helping to feed parents at Starship
A freezer full of frozen meals is helping to feed the parents
of children receiving cancer treatment in Starship.
The Child Cancer Foundation was aware that many parents
were either going without meals or snacking on their child’s
dinner leftovers, as children under the age of 14 are not
allowed to be left alone when in hospital. Family Support
Coordinators thought that a freezer full of meals would be a
big help for parents.
An approach was made to White Refrigeration, who came
to the rescue donating a double-door vertical freezer unit.
“White Refrigeration is very pleased to be helping support
the families of the child cancer ward,” says Annemarie Begg
from White Refrigeration. The unit is situated on Ward 27b
(Paediatric oncology) of Starship Hospital.
The freezer is now stocked with healthy and delicious meals
thanks to Child Cancer Foundation business partner, Cardinal
Logistics, who have funded the project for 12 months. More
than 200 meals are provided every month, allowing each parent
with a child on Ward 26 or 27 or in-clinic to one meal per day.
always looked for practical areas in which to channel the
funds we have raised. To support the parents and caregivers
in this meaningful way at such a difficult time was a simple
decision for the trust to make.”
Child Cancer Foundation National Manager Member Services
Marie Purcell says with the average length of stay in the
Ward being six weeks, some parents were very isolated and
their food options limited.
“Many of the families on the wards are also from outside
of Auckland, so they are in an unfamiliar city unsure how
or where to buy food off-site and with no friends and family
to bring them dinners,” says Marie.
“It’s really important that we make sure the caregiver’s
nutritional needs are being met. They are putting all their
energy into the well-being of their child, so it is imperative
that they stay well and healthy.”
Feedback from parents has been really positive saying
it makes a real difference to the on-the-ward experience.
Cardinal General Manager – Sales Mike Guy says of the
project, “During the 16 years of partnering with the
Child Cancer Foundation, we have been very specific and
A unique toy is helping Bay of Plenty children with a rare cancer
to New Zealand. The tool? A cuddly
elephant named Elli. Elli has a removable
eye and was specifically designed
to help small children come to grips
with the trauma of losing an eye to
Retinoblastoma cancer.
Child Cancer Foundation Business
Development Manager, Delwynne
Hahunga’s family hosted an exchange
student from Germany that lead to a
unique therapeutic tool making its way
18
Sharing • Child Cancer Foundation
“As it turned out our exchange
student’s mother also works for a
child cancer charity – the Kinder
Augen Krebs Stiftung or Children’s Eye
Cancer Foundation in Germany," says
Delwynne. "Part of her work includes
providing children with a cuddly Elli
toy – the removable eye helps children
become brave enough to remove their
own prosthetic eye.”
A care package containing three Elli
toys arrived from Germany for the
Child Cancer Foundation to distribute
to local children.
“Barbara Richardson, our Child Cancer
Foundation Family Support Coordinator
for the Rotorua area, gave one of the
toys to Kimberly (pictured), a young
girl from Turangi battling cancer. Her
mum told us that Elli has played a big
part in helping Kimberly become brave
enough to remove her own eye.
More Elli toys have recently arrived
from Germany. Talk to your Family
Support Coordinator to find out more.
An update from
our Partners
Long-standing support from Professionals
The organisation was also instrumental in
negotiating the sale of these properties.
Over its long association with the Child Cancer
Foundation, Professionals Real Estate Group has
raised more than $4 million for the charity.
The Child Cancer Foundation would like to thank
The total amount raised over 20 years was
everyone in Professionals Real Estate Group for
announced at a Professionals Group International
their continued enthusiasm and commitment in
Conference fundraising dinner in September, which helping children with cancer and their families.
was attended by more than 100 members from
New Zealand and Australia.
Professionals began their association with the
Child Cancer Foundation in 1994, when a child
known to one of the group’s agents was going
through cancer treatment and he saw the support
given to the family by the Foundation.
Since then, the relationship has seen Professionals’
agents make a contribution to the Child Cancer
Foundation from house sale commissions, be
actively involved in street collections and organise
other fundraising events.
Professionals’ fundraising effort has contributed
to the purchase of our two holiday homes as well
as the National Support Office in Auckland.
Partnering with
you for a
better
community
Significant donations from The Warehouse
customers throughout the Waikato have supported
a range of Child Cancer Foundation services.
Each store raised money through three “add-adollar” campaigns, where team members asked
customers at the checkout whether they would
like to add a dollar to their total purchase in
support of a charity.
The Warehouse Regional Manager Anthony Coe
says the Warehouse is committed to supporting
families and young people.
better
community
Professionals Chief Executive Mike Henderson hands over a
$4 million cheque to Robyn Kiddle, Chief Executive, Child Cancer
Foundation. The amount represents the contribution that
Professionals has made to the Foundation over two decades.
The Warehouse raises over $91,000
The 11 Warehouse stores, from throughout
the Waikato, have been fundraising for the
Foundation since August last year, raising more
than $91,000 over this time.
Partnering with
you for a
Professionals Chief Executive Mike Henderson
says, “You just need to hear the journey from
parents to recognise the unbelievable support
the Child Cancer Foundation provides families
affected by child cancer.” “Through our partnership with the Child Cancer
Foundation, we are really happy to assist with
providing practical and essential services,
which make such a difference to the children
and their families in our region.”
The money raised has helped the Child Cancer
Foundation provide a range of services including
its essential care packs, which are given to
families at the time of their child’s diagnosis with
cancer, necessities such as grocery or petrol
vouchers and supported family and sibling camps.
The support of The Warehouse management,
staff and customers has made a real difference
in the lives of families supported by the Child
Cancer Foundation during such a stressful time
and we are most grateful to everyone involved.
Warehouse Stationery
The Child Cancer Foundation has formed a regional partnership with 11 Warehouse Stationery
stores spanning Auckland, Taranaki and the Coromandel.
The teams in each store ran a two-week, add-a-dollar campaign in August and also sold bead
badges at point of sale in-between campaign times – raising $12,279 in total.
Before the campaign began, Child Cancer Foundation team members visited stores to meet staff and tell
them about the charity’s work. The money raised is going towards supplying start-up Beads of Courage®
and Sibling Bead packs to families. Many thanks to Warehouse Stationery staff and customers.
Child Cancer Foundation • Sharing
19
Huge thanks to all our partners, we couldn’t do it without you!
Premier
PA RT N E R
Leading
PA RT N E R S
Partnering with
you for a
Major
better
PA RT N E R S
community
Partners
FOUNDATIONS & TRUSTS
Every child and their family walking the child cancer journey will never feel alone.
National SUPPORT Office
PHONE 0800 4 CHILD
76 Grafton Road
Grafton, Auckland 1010
PHONE (09) 366-1270
(0800 4 24453)
EMAIL info@childcancer.org.nz
WEB www.childcancer.org.nz
ChildCancerFoundationNZ
ChildCancerNZ
ChildCancerFoundation
ISSN 0114-7765
Bluesky Community Trust, Constellation Communities Trust, Community Trust of Mid & South Canterbury, Eastern and
Central Community Trust, Endeavour Community Foundation, First Light Community Foundation, Four Winds Foundation,
H & K Reynolds Charitable Trust, James Russell Lewis Trust proudly managed by Perpetual Guardian, Joyce Fisher Charitable
Trust, Kathleen Dorothy Kirkby Charitable Trust, Mana Community Grants Foundation, Margaret & James Tetley Charitable
Trust (managed by Public Trust), Mt Wellington Foundation, NR Thomson Charitable Trust, North and South Trust Limited,
Phoenix Club of Auckland, RG Bell Charitable Trust, Taupo District Council, Trust Waikato.