April – June 2016
Transcription
April – June 2016
April—June 2016 Inside This Issue: 2. Membership News 3. DSACO in the Community 4. Medically Speaking 5. Community & Health 6. Programming 7. Programming 8. Programming 9. Summer Picnic 10. Columbus Buddy Walk® 11. Member Outreach THURSDAY, MAY 19, 2016 12. Support & Activity Groups RACE BEGINS AT 7:00 PM 13. Support & Activity Groups FISERV | 6000 PERIMETER DR. | DUBLIN, OH 14. Fundraising Events 15. Special Thanks The 2016 Run for Down Syndrome hosted by 2FGR Running Group, will take place on Thursday, May 19, 2016 at Fiserv in Dublin, Ohio. New in 2016—we are introducing a 10K race alongside of the popular 5K and Kids’ 100 Meter Dash! Mark your calendars for this fun-filled, family event that features a 10K, 5K, Kids’ 100 Meter Dash, bounce houses and food! Registration includes a commemorative t-shirt, plus a medal at the finish line! Register early as prices increase May 1st. STAY CONNECTED WITH DSACO! DSACO: Down Syndrome Association of Central Ohio @DSACO_Cbus Pricing before May 1: Pricing after May 1: 10K Race $38 10K Race $43 5K Race $28 5K Race $33 Kids’ Run $10 Kids’ Run $15 @DSACO_Cbus DSACO Pics For more information and to register, please visit dsaco.net/5k Keeping Up is a publication of the Down Syndrome Association of Central Ohio (DSACO). MEMBERSHIP NEWS 2 3-2-1 Update Spring is here and—if you’re anything like me—that means it’s time to quit using the weather as an excuse to sit on the couch and watch Netflix. But, don’t worry, because we’re making it easy for you to get involved and get moving by providing you and your family lots of opportunities to stay active. Kari Jones President & CEO 3) DSACO’s Running Club meets every Monday night at Antrim Park. Individuals of all abilities can jog, run, or in my case some version of a sprint-walk… and train for our Run for Down Syndrome event taking place on May 19th in Dublin. The Running Club begins on March 28th and will go through Monday, May 16th. Want to participate? Show up and you will be greeted by a volunteer who is ready to help you pace out those laps around Antrim Park. 2) With support from Nationwide Children’s Hospital and The Country Club at Muirfield Village Foundation, DSACO is hosting our 9th iCanBike Camp June 6-10 at Worthington Kilbourne High School. Open to individuals who have a developmental disability, this camp has seen an average of an 80% success rate in individuals learning how to ride a 2-wheeler in just one week! Biking is more than just an exercise; it’s a social activity that builds connections with friends and family. If you are interested in being a part of this amazing camp, whether it’s volunteering to run alongside a rider or registering a camper, visit dsaco.net/icanbike to be a part of the action! 1) If running or biking isn’t of interest, please check out our Recreation Scholarship to explore activities! The scholarship can reimburse for things like swimming lessons, dancing, workout classes (check out the Sweatin’ Downs class at Sweat Box Fitness!), personal training, camp and other activities in your community. We have worked to make the application simple, so apply before funds run out! For more information go to dsaco.net/scholarships. Need some ideas? Call our office and we’ll let you know of a few reputable places to get started in new activities! DSACO WELCOMES NEW INTERNS Caroline Lieser is a third year student at The Ohio State University studying biomedical engineering. She coaches the softball, swimming, basketball, and volleyball teams for the Columbus Schools Special Olympics program. She also volunteers at the OSU Medical Center and enjoys running, reading, and swimming. We are excited to welcome Caroline as she leads DSACO’s new Healthy Lifestyles initiative. Sammie Keitlen is a senior at The Ohio State University majoring in Environment, Economy, Development and Sustainability. She has been a member of the club Students Supporting People with Down Syndrome (SSPDS) for three years and she is the Volunteer Coordinator for Your Night Out, a student run program which provides free babysitting for families who have children with Down syndrome. DSACO is thrilled to have Sammie’s leadership as we pilot The Learning Program Online™. DSACO IN THE COMMUNITY 1 2 4 3 3 5 (1.) IGS Energy volunteers assisted DSACO move into an expanded office space on March 10, 2016, as part of their AllEmployee Day of Service. (2.) Past DSACO Board Member, Kyle McKay and DODD Director John Martin at Developmental Disabilities Awareness and Advocacy Day at the Ohio Statehouse on March 8, 2016. (3.) Lillian Damschroder participated in the Treadmill Therapy program during February’s Little Buddies Support Group meeting on February 22, 2016. (4.) Caden and Collin Horne (along with their parents) attended the home opener Columbus Crew S.C. game on March 12, 2016; 40 tickets were donated by the Columbus Crew S.C. for DSACO families to attend the match. (5.) President & CEO, Kari Jones accepted an Affiliates in Excellence award at the DSAIA Conference in Charlotte, NC on March 4, 2016, for DSACO’s informational brochure. DSACO SPOTLIGHT: ADDIE KEARNS On March 5, 2016, The Footsteps Dance Theater Company participated in the Power of Dance competition. Each studio that participated in the competition was able to select an organization to receive a donation from the competition, on their behalf. The Footsteps Dance Theater Company director and owner, Jennifer Curren, asked the company families for nominations; Addie Kearns nominated DSACO to receive the donation and DSACO was selected. The company kids earned $430 for DSACO! Thank you to Addie and the entire Kearns family for your ongoing support! 44 COMMUNITY & HEALTH MEDICALLY SPEAKING MEDICALLY SPEAKING, By Stephanie Santoro, MD DS-Connect® In the Down Syndrome Clinic at Nationwide Children's Hospital, I meet with families to discuss the chromosomal basis of Down syndrome. Many people have met with geneticists or genetic counselors before, often talking about how and why extra chromosomal material exists, sharing medical resources and support group information. I’ve probably met with many of you already! During those discussions, unanswered questions nearly always arise: Why do some people with Down syndrome develop leukemia? What causes the difference in life expectancy for different races with Down syndrome? Do people with mosaic Down syndrome always have fewer signs of Down syndrome? There is always more to learn about Down syndrome and more research to be done. As I was looking through the quarterly publications from Nationwide Children's Hospital, there were two articles which studied Down syndrome. One about the use of a procedure called ECMO in newborns with Down syndrome addresses ways to improve adherence to screening guidelines for Down syndrome. Physicians and researchers at Nationwide Children's Hospital are involved in ongoing research about Down syndrome; the hospital then distributes publications to physicians throughout the hospital to help disseminate answers to the wider community and also bring awareness to research related to Down syndrome. involvement with research is absolutely crucial. Parent groups related to research for autism helped launch registries which led to national, then international collaborations. A large, searchable database, called the National Database for Autism Research (NDAR) was created. To date, NDAR is considered the largest neuroscience and genomic data repository for autism research. None of this could have been done without parent involvement leading the way. The National Institutes of Health recently created a similar database for Down syndrome, called DS-Connect®. At first, DSConnect® seemed confusing to me – how do I use this as a researcher? Could it really be helpful? DS-Connect® uses a new approach to research, through collecting patient information in a secure, de-identified way that remains linked to a patient’s contact information. To address some of those unanswered questions, I might want to study all patients in Columbus with Down syndrome who had leukemia. In traditional research, after IRB approval, I would need to approach individual families or review individual records to identify these patients before I could even begin my research. With DS-Connect®, I could immediately identify those patients based on the information that is already loaded (from parents or patients!) in DS-Connect®. Avoiding reviewing charts of patients without leukemia (around 99 charts to find 1 with To learn more about these and many other unanswered leukemia) would save a lot of unnecessary work and get questions, the Down Syndrome Clinic at Nationwide me to the next phase of research much quicker. The same Children's Hospital recently joined with other sites to could be done to identify patients with Down syndrome of create a national patient registry for Down syndrome with a specific race or with Mosaic Down syndrome. Even the goal of learning more current information about Down having some demographic or medical information, such as syndrome. Spearheaded by Dr. Brian Skotko at the race, gender or age, already available from DS-Connect® Massachusetts General Hospital, hospitals with clinics for would significantly cut down on the information reviewed Down syndrome are joining forces; we hope to have from medical charts. In addition to research connections, enough records to answer new questions that can be DS-Connect® is a place where families and patients can applied to other individuals with Down syndrome. connect to each other to strengthen the Down syndrome Asking questions and planning studies is great, but parent community as a whole. COMMUNITY & HEALTH 5 MEDICALLY SPEAKING...CONTINUED, By Stephanie Santoro, MD The anonymous, voluntary survey is available at: https:// redcap.nchri.org/surveys/?s=MEHJJDJNH8 However, it appears that many people haven’t registered on DS-Connect®. Over the past six months, more people in Columbus and Ohio are registering but we still need more! Suggestions or feedback about the DS-Connect® database would be helpful too. I want to know what you think! I am completing the study to find out what you like or dislike about DS-Connect® and any suggestions for improvement. I plan to present these results at a meeting for Down syndrome to share with creators of the DSConnect® database. I hope to learn more about how to improve awareness of the database but also how to improve the database itself. I hope that together we can learn more about Down syndrome and answer questions many families have. Thanks for reading – I’m very excited to see you all in the Down Syndrome Clinic! Scholarship Spotlight In January of 2015, Ann Barbour, a beloved piano teacher, passed away. To honor the legacy of Mrs. Barbour, her family, in partnership with DSACO, created a scholarship with the memorial donations they received. In recognition of her affinity for music and the love of her grandson, Ben, the Ann Barbour Memorial Scholarship was established for individuals with Down syndrome who are fulfilling their goals in pursuing education in music and the performing arts. participate in the Piano Guild this coming May for the second year. Susan is honored especially since her piano teacher is a very important and influential person in her life.” Susan recently was invited to play at the annual “Buddy Up” Tennis Gala in Since starting to accept applications in April 2015, February, where it was students have benefitted from piano lessons, music therapy and voice lessons. Susan Jefferis, an Ann Barbour evident that her hard Memorial Scholarship recipient, practices piano every day work has paid off. It is obvious when watching her before she goes to work. Over the past five years she has perform that there is a high level of personal satisfaction learned to read music, play confidently and is continuously and achievement. improving her skills. Barbara Jefferis, Susan’s Mom, For more information on the Ann Barbour Scholarship shared, “Susan is doing very well with her lessons. She visit the DSACO website at www.dsaco.net/scholarships. just had her Winter Recital and performed well. Susan’s The annual limit for individuals with Down syndrome is teacher, Mrs. Irma Khouw of Dublin, invited her to $200.00. 6 PROGRAMMING Running Club Golf Academy For ages 12+ June 8 - August 10 | 6:30 - 8:00 p.m. Bent Tree Golf Club & Blacklick Woods Golf Course Fee: $100 Training begins: Monday, March 28 6:00 p.m. | Antrim Park Meets every Monday until May 16 DSACO is partnering again with 2FGR (a local running group in Dublin, OH) to help you go from the couch to participating in this year's Run for Down Syndrome on May 19. You and your coach will work through the training to prepare you to walk, jog or run to the finish line. DSACO is gearing up for another fun-filled season of golf following The First Tee curriculum, which emphasizes Nine Core Values. Whether you are new to the game, have some experience or have hit the course many times, The First Tee program will provide a lot of supervised practice and improve your skills. Register by May 13, 2016 at dsaco.net/golf or contact Kim Baich at (614) 263-6020 or kbaich@dsaco.net. DSACO has a special incentive for everyone who trains at least 6 of the 8 weeks and participates in the Run for Down Syndrome 5K. Register for the Run for Down Syndrome at dsaco.net/5K. P.A.L.S. for Teens Tuesdays, April 12 - May 17 6:30 - 8:00 p.m. | DSACO Office Fee: $10 for the series Led by facilitator, Nichele Lyndes, MSW, LSW, P.A.L.S. is a weekly series of fun meetings for teens ages 14-23. P.A.L.S. gives teens an opportunity to make friends, develop skills for adult life, and discuss topics important to them. Discussion topics may include: having a disability, social appropriateness, the art of conversation, setting goals, healthy eating, gaining independence and how to deal with grief and loss. Don't miss this great opportunity to meet new friends! Register at www.dsaco.net. PROGRAMMING 8 7 iCAN BIKE PROGRAM June 6 - 10 Worthington Kilbourne High School Fee: $150, Recreation scholarships are available Biking is more than just exercise and transportation: it’s a social activity of connection, a childhood rite of passage and a first taste of independence. Transforming biking into an inclusive activity is the mission of iCanBike, a national organization that conducts bike camps for individuals with special needs. This unique approach has enabled thousands of people, with a variety of disabilities, to become independent bicycle riders. The 2015 Columbus bike camp had an 85% success rate! DSACO, in collaboration with Nationwide Children’s Hospital, Autism Society of Central Ohio, and The Country Club at Muirfield Village Foundation, is hosting our 9th iCan Bike Camp. Participants must be at least 8 years old, have a developmental disability, and should have a minimum inseam of 20″, be able to walk without an assistive device, weigh no more than 220 lbs. and must wear a properly fitted helmet. Go to dsaco.net/icanbike for more information or to register. iCAN BIKE VOLUNTEERS NEEDED Anyone interested in volunteering for the event must be at least 16 years old and physically able to walk/run alongside the participant as they master the skill of riding a bicycle. Volunteers must be able to commit 75 minutes a day for the week and attend a training session prior to the start of camp. Visit dsaco.net to join us at our 2016 iCan Bike Camp. Summer Learning Academy July 11 - August 11 9 a.m. - Noon Bethel United Methodist Church | 1220 Bethel Rd. Fee: $150, Education Scholarships are available Concerned about your child losing key academic skills acquired during the school year? DSACO is offering 60 hours of academic instruction through its Summer Learning Academy for children with Down syndrome who have completed grades 1-4. The primary goals are to minimize learning loss, improve math and reading skills and improve social development. Eight children will be accepted into this highly successful program. The group will benefit from certified teachers, peer interaction and support personnel. Register by April 30, 2016 at dsaco.net or contact Regina Parker at rparker@dsaco.net. Attorney Blaine Brockman to present on Special Education Advocacy Thursday, April 7 6:30 - 8:00 p.m. DSACO offices Fee: $10 Behavioral intervention and discipline are among the most complicated issues faced by parents advocating on behalf of their child's education. This presentation will provide you with insight on structuring your child's Individualized Education Plan so that behaviors are effectively addressed without discipline. Additionally, you will learn about your child's rights and the school’s obligations should a situation arise where the school believes discipline is necessary. Register at dsaco.net or call DSACO at 614-263-6020. PROGRAMMING 8 Walking Club D.A.D.S. Spring Gathering Training begins: Monday, April 25 7:00 p.m. | Antrim Park Monday, April 18 6:30-8:00 p.m. | Winking Lizard Tavern 1416 W 5th Ave, Columbus, OH 43212 It’s time to meet up with the guys and enjoy a relaxing evening! The D.A.D.S. group allows dads a chance to get to know each other and learn a bit from one another. Our guest at this meeting is Dean Fadel, who is the proud sibling of an adult with Down syndrome. Dean is a lobbyist and will be informing the group on local advocacy and recent legislation affecting our loved ones. Register with Marge at mbarnheiser@dsaco.net no later than April 16. SAVE THE DATE! Anyone 18+ years old is welcome including parents, siblings, and providers because fitness is more fun with friends! Meet on the deck overlooking Antrim Lake (off lower parking lot). Please arrive a few minutes early as parking can be a challenge. Contact Marge Barnheiser at mbarnheiser@dsaco.net, if you plan to attend or have questions. 2016 Conference for Adults with Down syndrome New Location and Weekend for 2016! August 5 - 7 Mohican Lodge & Conference Center Perrysville, Ohio For more information, please visit dsaco.net/conference. Tips and Tricks for Successful Potty Training Tuesday, May 10 6:00 - 8:00 p.m. | DSACO office Fee: $10, includes light dinner Whether you have tried and failed or are planning to begin the toilet training process, this workshop will give you the help you need to make the process successful and less stressful. Learn how to tell if your child is ready, how to train for daytime and night time control, when and what to use as incentives and rewards, and much more. Emily Carruthers, from The Center for Cognitive and Behavioral Therapy, will share her insights from many years of experiences with a wide variety of children. Registration is required. Please visit the DSACO website at www.dsaco.net or call our office at 614-263-6020. SUMMER PICNIC 8 9 DSACO’S ANNUAL PICNIC The Columbus Zoo & Aquarium 4850 W. Powell Road, Powell, OH 43065 Saturday, May 21, 2016 10:00 a.m. - 3:00 p.m. Tickets to DSACO’s Annual Picnic include: NEW for 2016: SIBLING ACTIVITY: ALL DAY access to the Columbus Zoo & Aquarium DSACO invites siblings of all ages (4 and over) to participate in a special sibling activity during the Summer Picnic! With the help of volunteers, siblings will learn a simple dance and perform during lunch. Siblings will also be given a special goodie bag! Free parking Lunch Buffet Goodie bags for the kids Visiting zoo animals Face painting Caricature and Handimal artists (additional fee) Be sure to go online to register ALL siblings who intend to participate, or call the DSACO office at 614-263-6020. RESERVE YOUR TICKETS TODAY! Please note: Tickets are required for this event, even if you have a Zoo membership. The number of tickets sold are used for the lunch food count. Tickets are available for individuals with Down syndrome, their parents, and siblings only. Tickets for extended family members & friends are $20 /person. Reserve your tickets no later than April 30. Visit dsaco.net or send the form below along with payment to: DSACO | 510 E. North Broadway |Columbus, OH 43214 DSACO FAMILY: Please reserve ____ adult (age 16+) tickets ($5.00/each) and ____ children tickets for my family. EXTENDED FAMILY: Please reserve ____ tickets ($20.00/each). TOTAL AMOUNT ENCLOSED: $___________________ Family Name: ___________________________________________________________________________________ Phone:__________________________________ Email:_________________________________________________ Payment Type: Check Cash Credit Card Type of Credit Card: (circle one) VISA AMEX DISCOVER MASTERCARD Credit Card #_____________________________________________________________________________________ Exp. Date:______/______ CVV:____________ Name on Credit Card: _______________________________________ Address: _______________________________________________________________________________________ City, State, Zip: __________________________________________________________________________________ If purchasing tickets is a hardship for your family, please email info@dsaco.net. 10 COLUMBUS BUDDY WALK® C O L U M B U S SUNDAY, OCTOBER 2, 2016 | MAPFRE STADIUM 9:00 a.m. - 1:30 p.m. REGISTRATION FEE: $21 INDIVIDUALS WITH DOWN SYNDROME: FREE (Everyone must register!) Join the Down syndrome community as we unite for a common cause and raise funds to support the Down Syndrome Association of Central Ohio (DSACO) and the National Down Syndrome Society. Whether you have Down syndrome, know someone who does or just want to show your support—take the first step and register today! The Buddy Walk® was developed by the National Down Syndrome Society in 1995 to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome. The Buddy Walk® has grown from 17 walks in 1995 to nearly 300 Walks planned for 2016 worldwide. In 2015, nearly $14 million was raised nationwide to benefit local programs and services, as well as the national advocacy and public awareness initiatives of NDSS that benefit all individuals with Down syndrome. In 2015, 254 Buddy Walk® events were held across the country and around the world. More than 335,000 people participated in the Buddy Walk®, collectively raising nearly $14,000,000. Register your team today for the 2016 Columbus Buddy Walk® :: www.columbusbuddywalk.org :: DSACO wants all families to be able to celebrate with us on October 2! If the registration fee(s) is a financial hardship for you and your immediate family, please contact DSACO at info@dsaco.net. MEMBER OUTREACH 8 2016 Autism Academy The following education courses will be offered at Nationwide Children’s Hospital for parents of children with Autism Spectrum Disorders: IEP and Education: April 20 Autism 101: May 18 Nutrition/Feeding: June 15 Location: Nationwide Children’s Hospital Time: 6:30—8:30 p.m. Fee: $ 10.00/per person Course Overview: Program Description: The Autism Academy provides educational sessions for parents of children with Autism Spectrum Disorders, including Autism, Asperger's and Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS). These sessions are also open to others within the community interested in knowing more about autism. The program is not designed to replace ongoing treatment nor can it be geared to the specifics of individual children. For additional information and/or to register go to nationwidechildrens.org/education-classes DSACO strives to support all of our families. A co-occurring diagnosis of DS-ASD can be particularly challenging. Please contact Regina Parker at rparker@dsaco.net if you have questions or would like assistance. APRIL IS RE-ENROLLMENT MONTH AT KROGER! It’s fast and easy! Each April, Kroger requires participants in the Community Rewards program to select which organization they would like to support for the following 12 months. It is an opportunity to re-state your commitment to our organization. Last year, we received $2,728.40 in Kroger Community Rewards. If you have not selected an organization to receive your Kroger Community Rewards, it is not too late! Visit kroger.com/communityrewards and login or create an account. DSACO’s organization number is: 83947 or search for “Down Syndrome Association of Central Ohio.” Please re-enroll today and select DSACO as your organization to support! 11 SUPPORT & ACTIVITY GROUPS 12 Little Buddies Parent Resource Group Parents of infants and toddlers ages 0-3 with Down syndrome welcome. Refreshments and childcare will be provided. Meets on the 4th Monday of the month 6:30 - 8:30 p.m. Location unless otherwise indicated: Worthington United Methodist Church 600 High Street | Worthington, OH 43085 April 25, 2016 Speaker: Kathryn Weakland, MA, CCC/SLP Delaware Speech and Hearing June 27, 2016 Angela Buddendeck Meets once per quarter. Tuesday, April 26, 2016 | 6:00 p.m.—8:00 p.m. Speaker: Michelle Spader, PsyD, BCBA-D Clinical Child Psychologist NCH’s Child Development Center Location: The Roosevelt Coffeehouse 300 E. Long Street | Columbus, OH 43215 Please RSVP to andreabartosch@live.com with any questions by April 22, 2016 May 23, 2016 Little Buddies Contacts: April Horne School-aged Social Group Social group for school-aged kids with Down syndrome. Childcare will be available upon request. Aprilhorne624@gmail.com (740) 360-7093 Cookieparty@yahoo.com (937) 313-1306 School-aged Social Group Contact: Andrea Bartosch andreabartosch@live.com (614) 395-1095 Weekend Play Group Infants, toddlers & preschoolers with Down syndrome and siblings are welcome to attend. Spanish Speaking Resource Group Meets on the 1st Monday of the month at 7:00 p.m. Location unless otherwise indicated: Panera Bread 4965 N. Hamilton Road | Gahanna, OH 43230 April 4, 2016 | Please RSVP by April 2 May 2, 2016 | Please RSVP by April 28 June 6, 2016 | Please RSVP by May 3 Spanish Speaking Resource Group Contact: Arlene Raya araya@dsaco.net (614) 263-6020 Meets the following Saturdays: April 9, 2016 | 10:00 a.m. - Noon Easter Seals Gross Motor Skills Room 3830 Trueman Court | Hilliard, OH 43026 May 21, 2016 | 10:00 a.m. - 3:00 p.m. DSACO Summer Picnic Columbus Zoo and Aquarium 4850 Powell Road | Powell, OH 43065 June 11, 2016 | 10:00 a.m. - Noon Village Green Splash Pad 47 Hall Street | Powell, OH 43065 Weekend Play Group Contacts: Dawn Thornton dawnrthornton@gmail.com (614) 893-1808 Dave & Jen Snyder dtsnyder29@gmail.com (614) 893-3941 SUPPORT & ACTIVITY GROUPS Adult Stamping Club 13 Teen Social Group Meets on the 1st Wednesday of the month 6-8 p.m. Teenagers with Down syndrome are welcome to attend. Meets every other month, in various locations throughout the community. Location unless otherwise indicated: Urban Coffee Meeting Room 7838 Olentangy River Road | Columbus, OH 43235 April 6, 2016 May 21, 2016 | 10:00 a.m. - 4:00 p.m. Attend the DSACO Summer Picnic at the Zoo! June 10, 2016 | 7:00 - 9:00 p.m. P.A.L.S. Dance at The Ohio State University May 4, 2016 June 1, 2016 Adult Stamping Club Contacts: Marge Barnheiser mbarnheiser@dsaco.net (614) 263-6020 Teen Social Group Contacts: Susan Schied ebizgal@gmail.com (614) 905-2079 Jay Ratti jayshriratti@gmail.com (614) 309-2232 Liz Holliday coffeezilover@gmail.com Eastside Play Group (614) 299-9962 Children ages 6 and under with Down syndrome and siblings are welcome to attend. >>To be added to the Teen Social Group email list, please request at info@dsaco.net Meets on the 3rd Saturdays of the month 10:30 a.m. - Noon April 16, 2016 | 10:30 a.m. - Noon AHA Children’s Museum 315 South Broad Street | Lancaster, OH 43130 RSVP to Renee Wolfe by April 13 No cost to attend! May 21, 2016 | 10:00 a.m. - 4:00 p.m. DSACO Summer Picnic Columbus Zoo and Aquarium 4850 Powell Road | Powell, OH 43065 DS-ASD Chatroom A co-occurring diagnosis of Down syndrome and Autism Spectrum Disorder can be challenging. If you are interested in joining the chat, the group meets online every 2nd Thursday of the month 8:30 p.m. – 9:30 p.m. April 14, 2016 May 12, 2016 June 18, 2016 | 10:30 a.m. - Noon Fairfield County Library Northwest Branch 2855 Helena Drive | Carroll, OH 43112 June 9, 2016 Eastside Play Group Contact: Renee Wolfe reneewolfe0812@yahoo.com (740) 412-0765 DS-ASD contact: Regina Parker Please contact Regina Parker to join the group: rparker@dsaco.net 614-263-6020 CALL FOR 2017 DSACO CALENDAR PHOTOS! It’s that time of year again! Send in your photos for the 2017 Faces in the Community Calendar. Please send in HIGH RESOLUTION (300 dpi) images of your family members with Down syndrome. These photos will be used in our calendar, e-blasts, printed materials and the DSACO website. Send up to three (3) .jpg photos with the full name(s) and age(s) of the person(s) featured in the photos and email them by June 30, 2016 to ebrillhart@dsaco.net 10 14 COLUMBUS BUDDY WALK® FUNDRAISING EVENTS2015 Join DSACO and over 140 golfers at the annual Golf Classic on Monday, July 18, 2016 at The Country Club at Muirfield Village, with a shotgun start at 12:30 p.m. Come play on a beautiful course, network with other golfers who have an interest in Down syndrome and support the Down Syndrome Association of Central Ohio. Registration information will be made available in May and registration fees include green fees, cart and dinner. Please visit dsaco.net/golfclassic for more information. Visit BJ’s Restaurant + Brewhouse on Thursday, May 19, 2016 for a Dine & Donate! 15% of food and non-alcoholic beverage sales will be donated back to DSACO. If you are planning to attend the Run for Down Syndrome, DSACO will also be hosting an “After Party” at the BJ’s at Tuttle Crossing in Dublin, Ohio immediately following the run. For more information or to print a flyer, please visit dsaco.net/5k DSACO will be hosting a Volunteer Appreciation Event this coming Spring for all of our wonderful volunteers that have helped us throughout the year. We appreciate you and everything you do for DSACO! Keep an eye out for details at dsaco.net/volunteerappreciation. Kari Jones Marge Barnheiser Evanthia Brillhart Kim Baich Regina Parker Barb Leman President & CEO Program Director Event Manager Program Coordinator Program Coordinator Office Manager kjones@dsaco.net mbarnheiser@dsaco.net esevastakis@dsaco.net kbaich@dsaco.net rparker@dsaco.net bleman@dsaco.net SPECIAL THANKS MEMORIALS & TRIBUTES IN MEMORY OF David Brand Laura Abbas Robert and Pamela Barbara Dembinski Lynne and Jeffrey Eschenbach Viola Kist Olena Kopelziw Roderick and Virginia Kronk Lora Morrison James and Medalit O’Hagan Mary O’Hagan Karen O’Hagan Robert and Sandra Scott Ronald and Darlene Springman Sonia Strauss Jill Tibbles David and Jennifer Truby Lucille Hale Cheryl Fetter Margaret Fisher Ronald and Pamela DeLoye Lendell and Connie Horne Paulette and Lewis Holland Marion General Hospital; Behavioral Health Unit Phillip and Sharon Bargar Angela Cromer Krista Thornberry Rebecca Miesmer and Libby Turner Greg Tinsler Jeff Turner David and Gayle Armstrong David Melick IN HONOR OF David Williams In honor of Kim Baichs’ Involvement with DSACO Ann and Robert Buczek In honor of Noah Buczek Jennifer Newton Kelly In honor of Henry Buddendeck Laura Littrell In honor of Brosnahan Child John and Jill Davis In honor of Ella Damron David and Ann Crowley Ronald and Erin Falasco Lucas and Jacob Falasco In honor of Cooper Falasco Myka Grady In honor of Evan Grady Benjamin Grant In honor of Brady Schneider Kristian Scott In honor of Isabella Scott TJ & Lisa Stevens In honor of the birthday of their unborn child Julie Hurley In honor of Zachary Shoemaker GIVING Aetna Foundation AT&T Battelle Bob Boyd Lincoln Mercury Cardinal Health Foundation Delta Energy Services, LLC eLogic Learning Enterprise Holdings Foundation HCA Caring For The Community Interstate Gas Supply KPMG PriceWaterhouse The Kroger Co. United Health Wells Fargo Community Support UNRESTRICTED DONATIONS AAA Auto Club Sarah Baldosser Lucinda Bolinger Tanya Buckingham Kelly Clouse Cornwell/Watson Family Gabriel Dannenmiller Jennifer Duska Eastman & Smith, Attorneys At Law Steve Gosser Jerry Guy Gregory Hier Tammy Hushour Darin Hylber Aaron Kiesewetter Angie Lewis Jared Long David Magnacca Susan Magyar Kitty McCloy Goad Kenadi Moore Ivor O’Neill Adam Paynter Anthony Pesa Jeff and Irene Plaat Melinda Prickett Roseann Riggins Elizabeth Rohrbaugh Beth Savage Anthony Sutch Karen Tackett Jay & Jennifer Touve Jered Tyler Daniel Watkins Christine Wise GALA DONATIONS Carmen Ackerley Thomas Bainbridge Dwight Barnhart Robert & Pamela Barton Patrick & Laura Brennan Randall & Julia Brewer Brian & Michelle Murray Regina Britt Brianne & Matthew Brown Stephen & Angela Buddendeck Susan Bush Vera Cabell Michael Caligiuri Charlene Cassell Tom Fish Doug & Diane Fosselman Lisa Frissora Christine Fuller Courtney Frantz Mullin Dr. Mark Galantowicz Ryan Garland Daniel & Alisha Gray Douglas Gustina Susan Hetrick Lauren Hilsheimer Heinz Horstmeier Alan Hutchinson Margo Izzo Donald Jackson Jeffrey & Lisa King Kenneth & Jacqueline Krebs George & Clementine Lackens William LaTaille John & Linda Mackessy Murugu Manickam Carol Martin Kevin & Lisa McCarty Hirut Mengesha James & Nancy Munhall Teresa & Shawn O’Brien Dan & Jennifer Overmyer Tim & Jan Page Darren & Stacie Patina Erick Piscopo Jill Pluciniczak 15 Michael & Melinda Prickett Thomas & Laura Quinn Marc & Molly Reitter Robert & Mary Ann Ryan Matthew & Stephanie Santoro Karen Sassen Joseph & Cherie Scherler Steve and Lori Schoeppner Sue Sharick Kathie & Tim Skamfer Bob & Joan Skully Hillary Spears William Swick Joe & Pam Traian Mr. & Mrs. RJ Umberger Judith Watson Dana & Tony Wells Dan & Nancy Whetstone Alice Wilson Matthew & Renee Wolfe David & Melissa Writht The Virtue Group, LLC The Tony Wells Foundation BUDDY WALK DONATIONS Ronald and Rosaleen Eaton Gordon Vevang Grove City Citizens Police Academy Alumni Association IN-KIND DONATIONS The Kroger Co. Brown Bag Deli Katherine Adams Mira Flex Rachel Hoffman COMMUNITY PARTNERS BJ’s Restaurant and Brewhouse Coldwell Banker King Thompson Foundation Funny Bone, Easton GALA SPONSORS Barnes & Thornburg LLP BeecherHill BJ’s Restaurant and Brewhouse Disability Rights Ohio Nationwide Children’s Hospital Nisonger Center Plaskolite RUN FOR DS SPONSORS Roadway Tire The mission of the Down Syndrome Association of Central Ohio is to support families, promote community involvement and encourage a lifetime of opportunities for people with Down syndrome. Our vision is for people with Down syndrome to achieve their fullest potential in an accepting and inclusive community. UPCOMING EVENTS April___________________________ May_________________________ June_________________________ Healthy Lifestyles Saturday, April 2 Tips and Tricks for Successful Potty Training Tuesday, May 10 6-8 p.m. DSACO Office iCan Bike June 6-10 Worthington Kilbourne High School Blaine Brockman Presentation on Special Education Advocacy Thursday, April 7 | 6:30-8:00 p.m. DSACO Office Healthy Lifestyles Saturday, April 9 Healthy Lifestyles Saturday, April 16 Run for Down Syndrome Thursday, May 19 fiserv DSACO Summer Picnic Saturday, May 21 Columbus Zoo and Aquarium D.A.D.S Spring Gathering Monday, April 18 | 6:30-8:00 p.m. Winking Lizard See a full calendar listing of all upcoming events at dsaco.net/events. Golf Academy Begins June 8 July_________________________ Summer Learning Academy July 11—August 11 Golf Classic Monday, July 18 The Country Club at Muirfield Village STAY CONNECTED