April – June 2016

Transcription

April – June 2016
April—June 2016
Inside This Issue:
2. Membership News
3. DSACO in the Community
4. Medically Speaking
5. Community & Health
6. Programming
7. Programming
8. Programming
9. Summer Picnic
10. Columbus Buddy Walk®
11. Member Outreach
THURSDAY, MAY 19, 2016
12. Support & Activity Groups
RACE BEGINS AT 7:00 PM
13. Support & Activity Groups
FISERV | 6000 PERIMETER DR. | DUBLIN, OH
14. Fundraising Events
15. Special Thanks
The 2016 Run for Down Syndrome hosted by 2FGR Running Group, will take
place on Thursday, May 19, 2016 at Fiserv in Dublin, Ohio. New in 2016—we are
introducing a 10K race alongside of the popular 5K and Kids’ 100 Meter Dash!
Mark your calendars for this fun-filled, family event that features a 10K, 5K, Kids’
100 Meter Dash, bounce houses and food! Registration includes a
commemorative t-shirt, plus a medal at the finish line!
Register early as prices increase May 1st.
STAY CONNECTED WITH DSACO!
DSACO: Down Syndrome
Association of Central Ohio
@DSACO_Cbus
Pricing before May 1:
Pricing after May 1:
10K Race
$38
10K Race
$43
5K Race
$28
5K Race
$33
Kids’ Run
$10
Kids’ Run
$15
@DSACO_Cbus
DSACO Pics
For more information and to register, please visit dsaco.net/5k
Keeping Up is a publication of the Down
Syndrome Association of Central Ohio (DSACO).
MEMBERSHIP NEWS
2
3-2-1 Update
Spring is here and—if you’re anything like me—that means it’s time to quit using the weather
as an excuse to sit on the couch and watch Netflix. But, don’t worry, because we’re making it
easy for you to get involved and get moving by providing you and your family lots of
opportunities to stay active.
Kari Jones
President & CEO
3) DSACO’s Running Club meets every Monday night at Antrim Park. Individuals of all abilities
can jog, run, or in my case some version of a sprint-walk… and train for our Run for Down
Syndrome event taking place on May 19th in Dublin. The Running Club begins on March 28th
and will go through Monday, May 16th. Want to participate? Show up and you will be greeted
by a volunteer who is ready to help you pace out those laps around Antrim Park.
2) With support from Nationwide Children’s Hospital and The Country Club at Muirfield Village
Foundation, DSACO is hosting our 9th iCanBike Camp June 6-10 at Worthington Kilbourne High
School. Open to individuals who have a developmental disability, this camp has seen an average of an 80% success rate
in individuals learning how to ride a 2-wheeler in just one week! Biking is more than just an exercise; it’s a social
activity that builds connections with friends and family. If you are interested in being a part of this amazing camp,
whether it’s volunteering to run alongside a rider or registering a camper, visit dsaco.net/icanbike to be a part of the
action!
1) If running or biking isn’t of interest, please check out our Recreation Scholarship to explore activities! The
scholarship can reimburse for things like swimming lessons, dancing, workout classes (check out the Sweatin’ Downs
class at Sweat Box Fitness!), personal training, camp and other activities in your community. We have worked to make
the application simple, so apply before funds run out! For more information go to dsaco.net/scholarships. Need some
ideas? Call our office and we’ll let you know of a few reputable places to get started in new activities!
DSACO WELCOMES NEW INTERNS
Caroline Lieser is a third year student at The Ohio State University studying biomedical engineering.
She coaches the softball, swimming, basketball, and volleyball teams for the Columbus Schools Special
Olympics program. She also volunteers at the OSU Medical Center and enjoys running, reading, and
swimming. We are excited to welcome Caroline as she leads DSACO’s new Healthy Lifestyles initiative.
Sammie Keitlen is a senior at The Ohio State University majoring in Environment, Economy,
Development and Sustainability. She has been a member of the club Students Supporting People with
Down Syndrome (SSPDS) for three years and she is the Volunteer Coordinator for Your Night Out, a
student run program which provides free babysitting for families who have children with Down
syndrome. DSACO is thrilled to have Sammie’s leadership as we pilot The Learning Program Online™.
DSACO IN THE COMMUNITY
1
2
4
3
3
5
(1.) IGS Energy volunteers assisted DSACO move into an expanded office space on March 10, 2016, as part of their AllEmployee Day of Service. (2.) Past DSACO Board Member, Kyle McKay and DODD Director John Martin at Developmental
Disabilities Awareness and Advocacy Day at the Ohio Statehouse on March 8, 2016. (3.) Lillian Damschroder participated in the
Treadmill Therapy program during February’s Little Buddies Support Group meeting on February 22, 2016. (4.) Caden and
Collin Horne (along with their parents) attended the home opener Columbus Crew S.C. game on March 12, 2016; 40 tickets
were donated by the Columbus Crew S.C. for DSACO families to attend the match. (5.) President & CEO, Kari Jones accepted an
Affiliates in Excellence award at the DSAIA Conference in Charlotte, NC on March 4, 2016, for DSACO’s informational brochure.
DSACO SPOTLIGHT: ADDIE KEARNS
On March 5, 2016, The Footsteps Dance Theater Company participated in the Power of
Dance competition. Each studio that participated in the competition was able to select
an organization to receive a donation from the competition, on their behalf. The
Footsteps Dance Theater Company director and owner, Jennifer Curren, asked the
company families for nominations; Addie Kearns nominated DSACO to receive the
donation and DSACO was selected. The company kids earned $430 for DSACO!
Thank you to Addie and the entire Kearns family for your ongoing support!
44
COMMUNITY
& HEALTH
MEDICALLY SPEAKING
MEDICALLY SPEAKING, By Stephanie Santoro, MD
DS-Connect®
In the Down Syndrome Clinic at Nationwide Children's
Hospital, I meet with families to discuss the chromosomal
basis of Down syndrome. Many people have met with
geneticists or genetic counselors before, often talking
about how and why extra chromosomal material exists,
sharing medical resources and support group information.
I’ve probably met with many of you already! During those
discussions, unanswered questions nearly always arise:
Why do some people with Down syndrome develop
leukemia? What causes the difference in life expectancy
for different races with Down syndrome? Do people with
mosaic Down syndrome always have fewer signs of Down
syndrome? There is always more to learn about Down
syndrome and more research to be done. As I was looking
through the quarterly publications from Nationwide
Children's Hospital, there were two articles which studied
Down syndrome. One about the use of a procedure called
ECMO in newborns with Down syndrome addresses ways
to improve adherence to screening guidelines for Down
syndrome. Physicians and researchers at Nationwide
Children's Hospital are involved in ongoing research about
Down syndrome; the hospital then distributes publications
to physicians throughout the hospital to help disseminate
answers to the wider community and also bring awareness
to research related to Down syndrome.
involvement with research is absolutely crucial. Parent
groups related to research for autism helped launch
registries which led to national, then international
collaborations. A large, searchable database, called the
National Database for Autism Research (NDAR) was
created. To date, NDAR is considered the largest
neuroscience and genomic data repository for autism
research. None of this could have been done without
parent involvement leading the way. The National
Institutes of Health recently created a similar database for
Down syndrome, called DS-Connect®. At first, DSConnect® seemed confusing to me – how do I use this as a
researcher? Could it really be helpful? DS-Connect® uses
a new approach to research, through collecting patient
information in a secure, de-identified way that remains
linked to a patient’s contact information. To address some
of those unanswered questions, I might want to study all
patients in Columbus with Down syndrome who had
leukemia. In traditional research, after IRB approval, I
would need to approach individual families or review
individual records to identify these patients before I could
even begin my research. With DS-Connect®, I could
immediately identify those patients based on the
information that is already loaded (from parents or
patients!) in DS-Connect®. Avoiding reviewing charts of
patients without leukemia (around 99 charts to find 1 with
To learn more about these and many other unanswered
leukemia) would save a lot of unnecessary work and get
questions, the Down Syndrome Clinic at Nationwide
me to the next phase of research much quicker. The same
Children's Hospital recently joined with other sites to
could be done to identify patients with Down syndrome of
create a national patient registry for Down syndrome with
a specific race or with Mosaic Down syndrome. Even
the goal of learning more current information about Down
having some demographic or medical information, such as
syndrome. Spearheaded by Dr. Brian Skotko at the
race, gender or age, already available from DS-Connect®
Massachusetts General Hospital, hospitals with clinics for
would significantly cut down on the information reviewed
Down syndrome are joining forces; we hope to have
from medical charts. In addition to research connections,
enough records to answer new questions that can be
DS-Connect® is a place where families and patients can
applied to other individuals with Down syndrome.
connect to each other to strengthen the Down syndrome
Asking questions and planning studies is great, but parent community as a whole.
COMMUNITY & HEALTH
5
MEDICALLY SPEAKING...CONTINUED, By Stephanie Santoro, MD
The anonymous, voluntary survey is available at: https://
redcap.nchri.org/surveys/?s=MEHJJDJNH8
However, it appears that many people haven’t registered
on DS-Connect®. Over the past six months, more people
in Columbus and Ohio are registering but we still need
more! Suggestions or feedback about the DS-Connect®
database would be helpful too. I want to know what you
think!
I am completing the study to find out what you like or
dislike about DS-Connect® and any suggestions for
improvement. I plan to present these results at a meeting
for Down syndrome to share with creators of the DSConnect® database. I hope to learn more about how to
improve awareness of the database but also how to
improve the database itself. I hope that together we can
learn more about Down syndrome and answer questions
many families have.
Thanks for reading – I’m very excited to see you all in the
Down Syndrome Clinic!
Scholarship Spotlight
In January of 2015, Ann Barbour, a beloved piano teacher,
passed away. To honor the legacy of Mrs. Barbour, her
family, in partnership with DSACO, created a scholarship
with the memorial donations they received. In recognition
of her affinity for music and the love of her grandson, Ben,
the Ann Barbour Memorial Scholarship was established
for individuals with Down syndrome who are fulfilling their
goals in pursuing education in music and the performing
arts.
participate in the Piano
Guild this coming May for
the second year. Susan is
honored especially since
her piano teacher is a very
important and influential
person in her life.”
Susan recently was invited
to play at the annual
“Buddy Up” Tennis Gala in
Since starting to accept applications in April 2015,
February, where it was
students have benefitted from piano lessons, music
therapy and voice lessons. Susan Jefferis, an Ann Barbour evident that her hard
Memorial Scholarship recipient, practices piano every day work has paid off. It is obvious when watching her
before she goes to work. Over the past five years she has perform that there is a high level of personal satisfaction
learned to read music, play confidently and is continuously and achievement.
improving her skills. Barbara Jefferis, Susan’s Mom,
For more information on the Ann Barbour Scholarship
shared, “Susan is doing very well with her lessons. She
visit the DSACO website at www.dsaco.net/scholarships.
just had her Winter Recital and performed well. Susan’s
The annual limit for individuals with Down syndrome is
teacher, Mrs. Irma Khouw of Dublin, invited her to
$200.00.
6
PROGRAMMING
Running Club
Golf Academy
For ages 12+
June 8 - August 10 | 6:30 - 8:00 p.m.
Bent Tree Golf Club &
Blacklick Woods Golf Course
Fee: $100
Training begins:
Monday, March 28
6:00 p.m. | Antrim Park
Meets every Monday until May 16
DSACO is partnering again with 2FGR (a local running
group in Dublin, OH) to help you go from the couch to
participating in this year's Run for Down Syndrome on
May 19. You and your coach will work through the
training to prepare you to walk, jog or run to the finish
line.
DSACO is gearing up for another fun-filled season of golf
following The First Tee curriculum, which emphasizes
Nine Core Values. Whether you are new to the game,
have some experience or have hit the course many times,
The First Tee program will provide a lot of supervised
practice and improve your skills.
Register by May 13, 2016 at dsaco.net/golf or contact
Kim Baich at (614) 263-6020 or kbaich@dsaco.net.
DSACO has a special incentive for everyone who trains
at least 6 of the 8 weeks and participates in the Run for
Down Syndrome 5K.
Register for the Run for Down Syndrome at
dsaco.net/5K.
P.A.L.S. for Teens
Tuesdays, April 12 - May 17
6:30 - 8:00 p.m. | DSACO Office
Fee: $10 for the series
Led by facilitator, Nichele Lyndes, MSW, LSW, P.A.L.S. is a weekly series
of fun meetings for teens ages 14-23. P.A.L.S. gives teens an
opportunity to make friends, develop skills for adult life, and discuss
topics important to them. Discussion topics may include: having a disability, social appropriateness, the art of
conversation, setting goals, healthy eating, gaining independence and how to deal with grief and loss. Don't miss this
great opportunity to meet new friends!
Register at www.dsaco.net.
PROGRAMMING
8
7
iCAN BIKE PROGRAM
June 6 - 10
Worthington Kilbourne High School
Fee: $150, Recreation scholarships are available
Biking is more than just exercise and transportation: it’s a social activity of
connection, a childhood rite of passage and a first taste of independence.
Transforming biking into an inclusive activity is the mission of iCanBike, a
national organization that conducts bike camps for individuals with special
needs. This unique approach has enabled thousands of people, with a variety
of disabilities, to become independent bicycle riders. The 2015 Columbus bike camp had an 85% success rate! DSACO,
in collaboration with Nationwide Children’s Hospital, Autism Society of Central Ohio, and The Country Club at Muirfield
Village Foundation, is hosting our 9th iCan Bike Camp. Participants must be at least 8 years old, have a developmental
disability, and should have a minimum inseam of 20″, be able to walk without an assistive device, weigh no more than
220 lbs. and must wear a properly fitted helmet. Go to dsaco.net/icanbike for more information or to register.
iCAN BIKE VOLUNTEERS NEEDED
Anyone interested in volunteering for the event must be at least 16 years old and physically able to walk/run alongside
the participant as they master the skill of riding a bicycle. Volunteers must be able to commit 75 minutes a day for the
week and attend a training session prior to the start of camp. Visit dsaco.net to join us at our 2016 iCan Bike Camp.
Summer Learning Academy
July 11 - August 11
9 a.m. - Noon
Bethel United Methodist Church | 1220 Bethel Rd.
Fee: $150, Education Scholarships are available
Concerned about your child losing key academic skills
acquired during the school year? DSACO is offering 60
hours of academic instruction through its Summer
Learning Academy for children with Down syndrome
who have completed grades 1-4. The primary goals are
to minimize learning loss, improve math and reading
skills and improve social development.
Eight children will be accepted into this highly successful
program. The group will benefit from certified teachers,
peer interaction and support personnel.
Register by April 30, 2016 at dsaco.net or contact
Regina Parker at rparker@dsaco.net.
Attorney Blaine Brockman to present on
Special Education Advocacy
Thursday, April 7
6:30 - 8:00 p.m.
DSACO offices
Fee: $10
Behavioral intervention and discipline are
among the most complicated issues faced
by parents advocating on behalf of their child's education.
This presentation will provide you with insight on
structuring your child's Individualized Education Plan so
that behaviors are effectively addressed without discipline.
Additionally, you will learn about your child's rights and the
school’s obligations should a situation
arise where the school believes
discipline is necessary.
Register at dsaco.net
or call DSACO at 614-263-6020.
PROGRAMMING
8
Walking Club
D.A.D.S. Spring Gathering
Training begins:
Monday, April 25
7:00 p.m. | Antrim Park
Monday, April 18
6:30-8:00 p.m. | Winking Lizard Tavern
1416 W 5th Ave, Columbus, OH 43212
It’s time to meet up with the guys and enjoy a relaxing evening! The
D.A.D.S. group allows dads a chance to get to know each other and learn
a bit from one another. Our guest at this meeting is Dean Fadel, who is
the proud sibling of an adult with Down syndrome. Dean is a lobbyist
and will be informing the group on local advocacy and recent legislation
affecting our loved ones.
Register with Marge at mbarnheiser@dsaco.net no later than April 16.
SAVE THE DATE!
Anyone 18+ years old is welcome
including parents, siblings, and providers
because fitness is more fun with friends!
Meet on the deck overlooking Antrim
Lake (off lower parking lot). Please arrive
a few minutes early as parking can be a
challenge.
Contact Marge Barnheiser at
mbarnheiser@dsaco.net, if you plan to
attend or have questions.
2016 Conference for
Adults with Down syndrome
New Location and Weekend for 2016!
August 5 - 7
Mohican Lodge & Conference Center
Perrysville, Ohio
For more information, please visit dsaco.net/conference.
Tips and Tricks for Successful Potty Training
Tuesday, May 10
6:00 - 8:00 p.m. | DSACO office
Fee: $10, includes light dinner
Whether you have tried and failed or are planning to begin the toilet training process, this
workshop will give you the help you need to make the process successful and less stressful.
Learn how to tell if your child is ready, how to train for daytime and night time control, when and what to use as
incentives and rewards, and much more.
Emily Carruthers, from The Center for Cognitive and Behavioral Therapy, will share her insights from many years of
experiences with a wide variety of children.
Registration is required. Please visit the DSACO website at www.dsaco.net or call our office at 614-263-6020.
SUMMER PICNIC
8
9
DSACO’S ANNUAL PICNIC
The Columbus Zoo & Aquarium
4850 W. Powell Road, Powell, OH 43065
Saturday, May 21, 2016
10:00 a.m. - 3:00 p.m.
Tickets to DSACO’s Annual Picnic include:
NEW for 2016: SIBLING ACTIVITY:
 ALL DAY access to the Columbus Zoo & Aquarium
DSACO invites siblings of all ages (4 and over) to
participate in a special sibling activity during the Summer
Picnic! With the help of volunteers, siblings will learn a
simple dance and perform during lunch. Siblings will also
be given a special goodie bag!
 Free parking
 Lunch Buffet
 Goodie bags for the kids
 Visiting zoo animals
 Face painting
 Caricature and Handimal artists (additional fee)
Be sure to go online to register ALL siblings who intend
to participate, or call the DSACO office at 614-263-6020.
RESERVE YOUR TICKETS TODAY!
Please note: Tickets are required for this event, even if you have a Zoo membership. The number of tickets sold are
used for the lunch food count. Tickets are available for individuals with Down syndrome, their parents, and siblings
only. Tickets for extended family members & friends are $20 /person.
Reserve your tickets no later than April 30.
Visit dsaco.net or send the form below along with payment to:
DSACO | 510 E. North Broadway |Columbus, OH 43214
DSACO FAMILY: Please reserve ____ adult (age 16+) tickets ($5.00/each) and ____ children tickets for my family.
EXTENDED FAMILY: Please reserve ____ tickets ($20.00/each).
TOTAL AMOUNT ENCLOSED: $___________________
Family Name: ___________________________________________________________________________________
Phone:__________________________________ Email:_________________________________________________
Payment Type:
Check
Cash
Credit Card
Type of Credit Card: (circle one)
VISA
AMEX
DISCOVER
MASTERCARD
Credit Card #_____________________________________________________________________________________
Exp. Date:______/______ CVV:____________ Name on Credit Card: _______________________________________
Address: _______________________________________________________________________________________
City, State, Zip: __________________________________________________________________________________
If purchasing tickets is a hardship for your family, please email info@dsaco.net.
10
COLUMBUS BUDDY WALK®
C O L U M B U S
SUNDAY, OCTOBER 2, 2016 | MAPFRE STADIUM
9:00 a.m. - 1:30 p.m.
REGISTRATION FEE: $21
INDIVIDUALS WITH DOWN SYNDROME: FREE
(Everyone must register!)
Join the Down syndrome community as we unite for a common cause
and raise funds to support the Down Syndrome Association of Central
Ohio (DSACO) and the National Down Syndrome Society. Whether you
have Down syndrome, know someone who does or just want to show
your support—take the first step and register today!
The Buddy Walk® was developed by the National Down Syndrome
Society in 1995 to celebrate Down Syndrome Awareness Month in
October and to promote acceptance and inclusion of people with
Down syndrome.
The Buddy Walk® has grown from 17 walks in 1995 to nearly 300 Walks planned for 2016 worldwide. In 2015, nearly
$14 million was raised nationwide to benefit local programs and services, as well as the national advocacy and public
awareness initiatives of NDSS that benefit all individuals with Down syndrome.
In 2015, 254 Buddy Walk® events were held across the country and around the world. More than 335,000 people
participated in the Buddy Walk®, collectively raising nearly $14,000,000.
Register your team today for the 2016 Columbus Buddy Walk®
:: www.columbusbuddywalk.org ::
DSACO wants all families to be able to celebrate with us on October 2! If the registration fee(s) is a financial hardship for you and
your immediate family, please contact DSACO at info@dsaco.net.
MEMBER OUTREACH
8
2016 Autism Academy
The following education courses will be offered at Nationwide Children’s Hospital for parents of children with
Autism Spectrum Disorders:
 IEP and Education: April 20
 Autism 101: May 18
 Nutrition/Feeding: June 15
Location: Nationwide Children’s Hospital
Time: 6:30—8:30 p.m.
Fee: $ 10.00/per person
Course Overview: Program Description: The Autism Academy provides educational sessions for parents of children
with Autism Spectrum Disorders, including Autism, Asperger's and Pervasive Developmental Disorder-Not
Otherwise Specified (PDD-NOS). These sessions are also open to others within the community interested in
knowing more about autism. The program is not designed to replace ongoing treatment nor can it be geared to the
specifics of individual children.
For additional information and/or to register go to nationwidechildrens.org/education-classes
DSACO strives to support all of our families.
A co-occurring diagnosis of DS-ASD can be particularly challenging.
Please contact Regina Parker at rparker@dsaco.net if you have questions or would like assistance.
APRIL IS RE-ENROLLMENT MONTH AT KROGER!
It’s fast and easy!
Each April, Kroger requires participants in the Community Rewards program to select
which organization they would like to support for the following 12 months. It is an
opportunity to re-state your commitment to our organization. Last year, we received
$2,728.40 in Kroger Community Rewards. If you have not
selected an organization to receive your Kroger Community
Rewards, it is not too late!
Visit kroger.com/communityrewards and login or create an account. DSACO’s organization
number is: 83947 or search for “Down Syndrome Association of Central Ohio.”
Please re-enroll today and select DSACO as your organization to support!
11
SUPPORT & ACTIVITY GROUPS
12
Little Buddies Parent Resource Group
Parents of infants and toddlers ages 0-3 with Down
syndrome welcome. Refreshments and childcare will be
provided.
Meets on the 4th Monday of the month 6:30 - 8:30 p.m.
Location unless otherwise indicated:
Worthington United Methodist Church
600 High Street | Worthington, OH 43085
 April 25, 2016
Speaker: Kathryn Weakland, MA, CCC/SLP
Delaware Speech and Hearing
 June 27, 2016
Angela Buddendeck
Meets once per quarter.
 Tuesday, April 26, 2016 | 6:00 p.m.—8:00 p.m.
Speaker: Michelle Spader, PsyD, BCBA-D
Clinical Child Psychologist
NCH’s Child Development Center
Location:
The Roosevelt Coffeehouse
300 E. Long Street | Columbus, OH 43215
Please RSVP to andreabartosch@live.com with
any questions by April 22, 2016
 May 23, 2016
Little Buddies Contacts:
April Horne
School-aged Social Group
Social group for school-aged kids with Down syndrome.
Childcare will be available upon request.
Aprilhorne624@gmail.com
(740) 360-7093
Cookieparty@yahoo.com
(937) 313-1306
School-aged Social Group Contact:
Andrea Bartosch
andreabartosch@live.com
(614) 395-1095
Weekend Play Group
Infants, toddlers & preschoolers with Down syndrome and
siblings are welcome to attend.
Spanish Speaking Resource Group
Meets on the 1st Monday of the month at 7:00 p.m.
Location unless otherwise indicated:
Panera Bread
4965 N. Hamilton Road | Gahanna, OH 43230
 April 4, 2016 | Please RSVP by April 2
 May 2, 2016 | Please RSVP by April 28
 June 6, 2016 | Please RSVP by May 3
Spanish Speaking Resource Group Contact:
Arlene Raya
araya@dsaco.net
(614) 263-6020
Meets the following Saturdays:
 April 9, 2016 | 10:00 a.m. - Noon
Easter Seals Gross Motor Skills Room
3830 Trueman Court | Hilliard, OH 43026
 May 21, 2016 | 10:00 a.m. - 3:00 p.m.
DSACO Summer Picnic
Columbus Zoo and Aquarium
4850 Powell Road | Powell, OH 43065
 June 11, 2016 | 10:00 a.m. - Noon
Village Green Splash Pad
47 Hall Street | Powell, OH 43065
Weekend Play Group Contacts:
Dawn Thornton
dawnrthornton@gmail.com
(614) 893-1808
Dave & Jen Snyder
dtsnyder29@gmail.com
(614) 893-3941
SUPPORT & ACTIVITY GROUPS
Adult Stamping Club
13
Teen Social Group
Meets on the 1st Wednesday of the month 6-8 p.m.
Teenagers with Down syndrome are welcome to attend.
Meets every other month, in various locations throughout
the community.
Location unless otherwise indicated:
Urban Coffee Meeting Room
7838 Olentangy River Road | Columbus, OH 43235
 April 6, 2016
 May 21, 2016 | 10:00 a.m. - 4:00 p.m.
Attend the DSACO Summer Picnic at the Zoo!
 June 10, 2016 | 7:00 - 9:00 p.m.
P.A.L.S. Dance at The Ohio State University
 May 4, 2016
 June 1, 2016
Adult Stamping Club Contacts:
Marge Barnheiser
mbarnheiser@dsaco.net
(614) 263-6020
Teen Social Group Contacts:
Susan Schied
ebizgal@gmail.com
(614) 905-2079
Jay Ratti
jayshriratti@gmail.com
(614) 309-2232
Liz Holliday
coffeezilover@gmail.com
Eastside Play Group
(614) 299-9962
Children ages 6 and under with Down syndrome and siblings
are welcome to attend.
>>To be added to the Teen Social Group email list, please
request at info@dsaco.net
Meets on the 3rd Saturdays of the month 10:30 a.m. - Noon
 April 16, 2016 | 10:30 a.m. - Noon
AHA Children’s Museum
315 South Broad Street | Lancaster, OH 43130
RSVP to Renee Wolfe by April 13
No cost to attend!
 May 21, 2016 | 10:00 a.m. - 4:00 p.m.
DSACO Summer Picnic
Columbus Zoo and Aquarium
4850 Powell Road | Powell, OH 43065
DS-ASD Chatroom
A co-occurring diagnosis of Down syndrome and Autism
Spectrum Disorder can be challenging. If you are interested
in joining the chat, the group meets online every 2nd
Thursday of the month 8:30 p.m. – 9:30 p.m.
 April 14, 2016
 May 12, 2016
 June 18, 2016 | 10:30 a.m. - Noon
Fairfield County Library Northwest Branch
2855 Helena Drive | Carroll, OH 43112
 June 9, 2016
Eastside Play Group Contact:
Renee Wolfe
reneewolfe0812@yahoo.com
(740) 412-0765
DS-ASD contact:
Regina Parker
Please contact Regina Parker to join the group:
rparker@dsaco.net
614-263-6020
CALL FOR 2017 DSACO CALENDAR PHOTOS!
It’s that time of year again! Send in your photos for the 2017 Faces in the Community Calendar.
Please send in HIGH RESOLUTION (300 dpi) images of your family members with Down syndrome.
These photos will be used in our calendar, e-blasts, printed materials and the DSACO website.
Send up to three (3) .jpg photos with the full name(s) and age(s) of the person(s) featured in the
photos and email them by June 30, 2016 to ebrillhart@dsaco.net
10
14
COLUMBUS
BUDDY WALK®
FUNDRAISING
EVENTS2015
Join DSACO and over 140 golfers at the annual Golf Classic on Monday, July 18, 2016 at The Country Club at Muirfield
Village, with a shotgun start at 12:30 p.m. Come play on a beautiful course, network with other golfers who have an
interest in Down syndrome and support the Down Syndrome Association of Central Ohio. Registration information
will be made available in May and registration fees include green fees, cart and dinner.
Please visit dsaco.net/golfclassic for more information.
Visit BJ’s Restaurant + Brewhouse on Thursday, May 19, 2016 for a Dine & Donate! 15% of
food and non-alcoholic beverage sales will be donated back to DSACO.
If you are planning to attend the Run for Down Syndrome, DSACO will also be hosting an “After
Party” at the BJ’s at Tuttle Crossing in Dublin, Ohio immediately following the run.
For more information or to print a flyer, please visit dsaco.net/5k
DSACO will be hosting a Volunteer Appreciation Event this coming Spring for all of our
wonderful volunteers that have helped us throughout the year. We appreciate you and
everything you do for DSACO!
Keep an eye out for details at dsaco.net/volunteerappreciation.
Kari Jones
Marge Barnheiser
Evanthia Brillhart
Kim Baich
Regina Parker
Barb Leman
President & CEO
Program Director
Event Manager
Program Coordinator
Program Coordinator
Office Manager
kjones@dsaco.net
mbarnheiser@dsaco.net
esevastakis@dsaco.net
kbaich@dsaco.net
rparker@dsaco.net
bleman@dsaco.net
SPECIAL THANKS
MEMORIALS & TRIBUTES
IN MEMORY OF
David Brand
Laura Abbas
Robert and Pamela
Barbara Dembinski
Lynne and Jeffrey
Eschenbach
Viola Kist
Olena Kopelziw
Roderick and Virginia Kronk
Lora Morrison
James and Medalit O’Hagan
Mary O’Hagan
Karen O’Hagan
Robert and Sandra Scott
Ronald and Darlene
Springman
Sonia Strauss
Jill Tibbles
David and Jennifer Truby
Lucille Hale
Cheryl Fetter
Margaret Fisher
Ronald and Pamela DeLoye
Lendell and Connie Horne
Paulette and Lewis Holland
Marion General Hospital;
Behavioral Health Unit
Phillip and Sharon Bargar
Angela Cromer
Krista Thornberry
Rebecca Miesmer and
Libby Turner
Greg Tinsler
Jeff Turner
David and Gayle Armstrong
David Melick
IN HONOR OF
David Williams
In honor of Kim Baichs’
Involvement with DSACO
Ann and Robert Buczek
In honor of Noah Buczek
Jennifer Newton Kelly
In honor of Henry
Buddendeck
Laura Littrell
In honor of Brosnahan Child
John and Jill Davis
In honor of Ella Damron
David and Ann Crowley
Ronald and Erin Falasco
Lucas and Jacob Falasco
In honor of Cooper Falasco
Myka Grady
In honor of Evan Grady
Benjamin Grant
In honor of Brady Schneider
Kristian Scott
In honor of Isabella Scott
TJ & Lisa Stevens
In honor of the birthday of
their unborn child
Julie Hurley
In honor of Zachary
Shoemaker
GIVING
Aetna Foundation
AT&T
Battelle
Bob Boyd Lincoln Mercury
Cardinal Health Foundation
Delta Energy Services, LLC
eLogic Learning
Enterprise Holdings
Foundation
HCA Caring For The
Community
Interstate Gas Supply
KPMG
PriceWaterhouse
The Kroger Co.
United Health
Wells Fargo Community
Support
UNRESTRICTED
DONATIONS
AAA Auto Club
Sarah Baldosser
Lucinda Bolinger
Tanya Buckingham
Kelly Clouse
Cornwell/Watson Family
Gabriel Dannenmiller
Jennifer Duska
Eastman & Smith,
Attorneys At Law
Steve Gosser
Jerry Guy
Gregory Hier
Tammy Hushour
Darin Hylber
Aaron Kiesewetter
Angie Lewis
Jared Long
David Magnacca
Susan Magyar
Kitty McCloy Goad
Kenadi Moore
Ivor O’Neill
Adam Paynter
Anthony Pesa
Jeff and Irene Plaat
Melinda Prickett
Roseann Riggins
Elizabeth Rohrbaugh
Beth Savage
Anthony Sutch
Karen Tackett
Jay & Jennifer Touve
Jered Tyler
Daniel Watkins
Christine Wise
GALA DONATIONS
Carmen Ackerley
Thomas Bainbridge
Dwight Barnhart
Robert & Pamela Barton
Patrick & Laura Brennan
Randall & Julia Brewer
Brian & Michelle Murray
Regina Britt
Brianne & Matthew Brown
Stephen & Angela Buddendeck
Susan Bush
Vera Cabell
Michael Caligiuri
Charlene Cassell
Tom Fish
Doug & Diane Fosselman
Lisa Frissora
Christine Fuller
Courtney Frantz Mullin
Dr. Mark Galantowicz
Ryan Garland
Daniel & Alisha Gray
Douglas Gustina
Susan Hetrick
Lauren Hilsheimer
Heinz Horstmeier
Alan Hutchinson
Margo Izzo
Donald Jackson
Jeffrey & Lisa King
Kenneth & Jacqueline Krebs
George & Clementine Lackens
William LaTaille
John & Linda Mackessy
Murugu Manickam
Carol Martin
Kevin & Lisa McCarty
Hirut Mengesha
James & Nancy Munhall
Teresa & Shawn O’Brien
Dan & Jennifer Overmyer
Tim & Jan Page
Darren & Stacie Patina
Erick Piscopo
Jill Pluciniczak
15
Michael & Melinda Prickett
Thomas & Laura Quinn
Marc & Molly Reitter
Robert & Mary Ann Ryan
Matthew & Stephanie Santoro
Karen Sassen
Joseph & Cherie Scherler
Steve and Lori Schoeppner
Sue Sharick
Kathie & Tim Skamfer
Bob & Joan Skully
Hillary Spears
William Swick
Joe & Pam Traian
Mr. & Mrs. RJ Umberger
Judith Watson
Dana & Tony Wells
Dan & Nancy Whetstone
Alice Wilson
Matthew & Renee Wolfe
David & Melissa Writht
The Virtue Group, LLC
The Tony Wells Foundation
BUDDY WALK DONATIONS
Ronald and Rosaleen Eaton
Gordon Vevang
Grove City Citizens Police
Academy Alumni
Association
IN-KIND DONATIONS
The Kroger Co.
Brown Bag Deli
Katherine Adams
Mira Flex
Rachel Hoffman
COMMUNITY PARTNERS
BJ’s Restaurant and
Brewhouse
Coldwell Banker King
Thompson Foundation
Funny Bone, Easton
GALA SPONSORS
Barnes & Thornburg LLP
BeecherHill
BJ’s Restaurant and
Brewhouse
Disability Rights Ohio
Nationwide Children’s Hospital
Nisonger Center
Plaskolite
RUN FOR DS SPONSORS
Roadway Tire
The mission of the Down Syndrome Association of Central Ohio is to support families, promote community
involvement and encourage a lifetime of opportunities for people with Down syndrome.
Our vision is for people with Down syndrome to achieve their fullest potential in an accepting and inclusive
community.
UPCOMING EVENTS
April___________________________
May_________________________
June_________________________
Healthy Lifestyles
Saturday, April 2
Tips and Tricks for Successful Potty
Training
Tuesday, May 10 6-8 p.m.
DSACO Office
iCan Bike
June 6-10
Worthington Kilbourne High School
Blaine Brockman Presentation
on Special Education Advocacy
Thursday, April 7 | 6:30-8:00 p.m.
DSACO Office
Healthy Lifestyles
Saturday, April 9
Healthy Lifestyles
Saturday, April 16
Run for Down Syndrome
Thursday, May 19
fiserv
DSACO Summer Picnic
Saturday, May 21
Columbus Zoo and Aquarium
D.A.D.S Spring Gathering
Monday, April 18 | 6:30-8:00 p.m.
Winking Lizard
See a full calendar listing of all upcoming events at dsaco.net/events.
Golf Academy
Begins June 8
July_________________________
Summer Learning Academy
July 11—August 11
Golf Classic
Monday, July 18
The Country Club at Muirfield Village
STAY CONNECTED