Annual Report 2013/2014 - Alzheimer Society of Toronto
Transcription
Annual Report 2013/2014 - Alzheimer Society of Toronto
WITH YOU every step of the way The story of one family’s journey 2013-2014 Annual Report CONTENTS Letter from the CEO / 2 Financials / 6 Diagnosis / 8 Support Services / 10 Living Well with Dementia / 12 Fundraising / 14 Third Party Events / 16 Gibbs Walk 2013: A Supporter’s Story / 17 Leaders of Hope / 18 Annual Donors and Bequests / 19 OUR MISSION A WORLD WITHOUT ALZHEIMER’S DISEASE OUR VISION To alleviate the personal and social consequences of Alzheimer’s disease and other dementias in Toronto by: • Helping people touched by dementia live well • Ensuring that there is a qualified dementia caregiver beside everyone with dementia • Striving for excellence through formal internal and external evaluations • Promoting research OUR VALUES C.A.R.E. Collaboration, Accountability, Respect, Excellence OUR ROLE To offer support, information and education to people with dementia, their familes and their caregivers, to increase public awareness of dementia, to promote research, and to advocate for services that respect the dignity of the individual AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 1 A LETTER FROM CATHY: CATHY BARRICK, CEO I am thrilled to say we have made tremendous progress. The Alzheimer Society of Toronto strives to be where you are – and we make a difference, because of YOU. We won’t give up until we are confident that all those who need help have it... 2 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT Highlights This year has been an exciting one for the Alzheimer Society of Toronto. We continue to focus on our strategic plan which pushes us to expand our reach and impact in innovative and effective ways. I am thrilled to say we have made tremendous progress. We celebrated our 24th Walk for Memories which raised over $600k to help those facing dementia in our community – that’s A LOT of money, thanks to YOU. We have distributed more than 1,000 iPods through our Music & Memory: iPod Project which brings personalized music to those with dementia, at no charge – again, thanks to YOU. We have reached out to the community to raise awareness about dementia, like our sold out screening of Alive Inside at the Hot Docs theatre to celebrate World Alzheimer’s Day. Those are the big numbers, but small numbers matter too. We take small groups of people with dementia and their caregivers to tour the AGO and ROM, thanks to partnerships with those organizations. We collaborate with Family Health Teams, Memory Clinics and Enhanced Adult Day Programs. The Alzheimer Society of Toronto strives to be where you are – and we make a difference, because of YOU. Our Challenges Accomplishing great things rarely comes without challenges too. We continue to try to reach communities that reflect the diversity of Toronto. We work hard to hire staff that can communicate in other languages and encourage inclusivity for all. Stigma creates a barrier for many when they receive a dementia diagnosis, so we work tirelessly to promote the philosophy that living well with dementia is possible. We need help to ensure that all those who are impacted by dementia know about the services we provide and try to create partnerships with primary care through our First Link program – but there are many people in our city who still don’t get the help they need. We won’t give up until we are confident that all those who need help have it – and we have lots of work to do. AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 3 IN THIS PAST YEAR, THE ALZHEIMER SOCIETY has seen tremendous growth and opportunity in this community. We have expanded our programs, engaged new community groups and stepped outside of the box when it comes to fundraising and awareness building. Together, with our staff and support networks, we have a lot to share with you about what we have accomplished, and what we hope to see in the coming year. OF TORONTO WE GRADUATED OVER 500 HEALTH-CARE PROVIDERS through our Dementia Care Training Program (DCTP) and Behavioural Support Training Program (BSTP), in this year alone. Our focus on training and preparing the community and FAMILY INTRODUCTION 4 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT health-care providers remains one of our main priorities. We believe that education, training and support are essential in the everyday care of people with dementia. THE DEMAND FOR OUR SERVICES CONTINUES TO GROW as the affects of this disease take a toll on our community. We promise to work tirelessly to meet the demand, rise to the occasion and support those who need it most. We are here for you, every step of the way. THROUGH THIS REPORT YOU WILL MEET STAN, JANE, AND THEIR FAMILY as they go through the steps of understanding what it is like living with dementia. Meet Stan and his wife Jane. Their daughter, Kate and her husband Marco. Together, they have a beautiful daughter named Sophie. This family, like many in Toronto, will be faced with a diagnosis that will change their everyday lives. With their Social Worker, they will navigate through the ups and downs and learn how to live well with dementia. FINANCIALS THE AL ZHEIMER SOCIET Y OF TORONTO ANNUAL REPORT 5 STATEMENT OF FINANCIAL POSITION as at March 31, 2014 CURRENT ASSETS Cash Short-term investments Accounts receivable Prepaid expenses and deposits Charitable remainder trust Long term investments Capital assets $ $ $ $ LIABILITIES Current Accounts payable and accrued liabilities Deferred revenue Current portion of tenant lease inducements Current portion of deferred capital contributions $ $ 215,365 158,229 35,124 15,000 423,718 $ 128,787 614,581 55,000 1,222,086 Long Term Tenant lease inducements Externally restricted contributions Deferred capital contributions NET ASSETS Internally restricted Unrestricted 2014 192,734 1,975,336 67,531 43,522 2,279,123 32,813 1,002,769 207,969 3,522,674 $ $ $ 421,282 1,879,306 2,300,588 3,522,674 Complete financial statements are available on our website GOOD WORKS INDEX FOR THE YEAR WAS 72.8% 6 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT $ $ $ $ $ 2013 233,347 1,868,778 154,497 24,702 2,281,324 601,298 249,182 3,131,804 $ 239,712 308,160 22,551 15,000 585,423 $ 167,716 88,601 70,000 911,740 $ $ 471,936 1,748,128 2,220,064 3,131,804 STATEMENT OF OPERATIONS for the Year Ended March 31, 2014 CATHY BARRICK, CEO Donations: Most fundraising programs increased this fiscal year to help lift donations overall by 13%. Donor support for our newly introduced iPod Project was also a significant factor. Bequests: As expected, year over year results were lower. However, bequests did out perform targets for the year. Grants – TC LHIN: Additional new investment in the Caregiver Framework Project and Enhanced Adult Day Program Initiative accounted for a significant portion of the increased revenue. Program Spending: We expanded our core public education and counselling services this past fiscal year. In addition, we enhanced the Alzheimer Counselling and Financial Support Program, e-learning program development, the Caregiver Framework and the iPod Project. Cost of Fundraising: Increased primarily due to one-time spending on acquisition for our monthly donor program and additional staffing. These investments are expected to yield significant return in subsequent years. REVENUES Donations $ Events Bequests Sub-total $ Grants: Toronto Central LHIN $ George C. Hunt Family Foundation Other Literature and seminars Sundry and interest Amortization/recognition of deferred capital contributions Total revenues $ EXPENSES Programs, services and research Fundraising Administration Total expenses Excess of revenues over expenses* 2014 1,233,705 1,113,244 156,777 2,503,726 2013 $ 1,090,995 1,081,146 550,991 $ 2,723,132 698,369 457,491 351,340 148,173 38,523 485,709 113,114 246,238 81,731 34,183 15,000 4,212,622 15,000 $ 3,699,107 2014 $ 3,009,505 987,972 134,621 $ 4,132,098 $ 80,524 2013 $ 2,411,933 899,591 126,591 $ 3,438,115 $ 260,992 REVENUES EXPENSES 30% 26% 4% 36% 3.5% 73% 24% 3% less than less than 1% 1% The Society met the Canadian Revenue Agency disbursement quota requirement that charities spend a minimum of 3.5% of the average value of their assets every year on charitable activities. * The Board of Directors of the Alzheimer Society of Toronto has a policy that ensures adequate funds are available to provide for at least six months of normal operating budget. In keeping with this policy, the surplus of $80,524 will be applied to the reserve fund. AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 7 DIAGNOSIS FAMILY STORY Stan has been noticing memory loss that affects his day-to-day abilities and is having difficulty performing familiar tasks. Jane has noticed a change in his mood and behaviour. They decided to see their family doctor to get a better idea of what could be happening. The doctor makes a diagnosis of Alzheimer’s disease and connects them to First Link to help the couple understand the next steps. In partnership with health-care professionals, the Alzheimer Society of Toronto ensures that individuals and families dealing with dementia receive the support and information they need as they progress throughout the course of the disease. This program has been running since 2007, and more recently, attempts to reach more distant communities has become a priority. For example, great 8 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT strides were made in Scarborough with a significant increase in referrals. Goals for the coming year: Creating an awareness amongst health-care professionals, in particular family physicians and doctors. They have the potential to be our biggest source of referrals and increase our ability to support those who are not aware our programs exist. Social Worker Profile: We sat down with social worker Chris to fi nd out about some commonly asked questions. resources, to disease information and also to information on our programs and services. Accessing information early and receiving an early diagnosis helps make decision-making easier, and also prepares the family for knowing what the person with dementia will want in the future and in the event they can no longer communicate their wants and needs. Q. What are some questions that people ask after receiving a diagnosis? A. People want to understand what a diagnosis means. They often ask how long the disease will last or what the progression will look like. They want to know how dementia will affect them beyond memory loss, and how their family will cope throughout the progression. They are also concerned about what services and education they will need. Q. What kind of information or tools do you or other social workers share with a person with dementia and their caregiver? A. We work with clients to plan for the future and to help them think about getting their paperwork in order. We often explain available resources and assist clients in navigating the system. We refer them to external community Q. What’s the benefit in calling a social worker, over simply looking up information online? A. Contacting a social worker helps establish a more long-term relationship. The social worker can provide more personalized, tailored information relevant to the unique situation of the person with dementia or caregiver. As well, the social worker will provide longterm emotional support during the person’s journey and progression, addressing feelings of sadness, fear, loss, and other emotions. h t s: Highlig Link t r of Firs Numbe nts: 1,318. e new cli ease an incr This is 4.5% of 1 Th e number of people in Toronto living with Alzheimer’s disease or other dementias, is 43,000 181,000 [ Ref. Hopkins Report ] Ontarians have dementia [ Ref. ASO ] 747,000 Canadians are now living with dementia. By 2031, that number is ex pected to double to 1,400,000 [ Ref. ASC ] AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 9 SEEK SUPPORT SERVICES FAMILY STORY Stan’s wife Jane wants to support him with his new diagnosis. They go to the Alzheimer Society to access programs that will help them understand living with dementia. Through the Society, they are paired with a Social Worker who is trained to work with families just like Stan’s. Early Stage Support Group In a safe environment, this group is an opportunity for people in the early stages of Alzheimer’s disease to get support from their peers and a social worker. Personal Support Worker Support Group A meaningful opportunity for Personal Support Workers to come together and share their experiences and challenges in providing care for people with dementia. Youth Caregiver Support Group Young caregivers between 13 and 18 years of age whose parent has been diagnosed with Alzheimer’s or a related dementia have a chance to share their experiences and learn new coping strategies from other young caregivers. Living with Ambiguous Loss Family members caring for a person with dementia may often experience ongoing stress and grief due to “ambiguous loss” - having a loved one both here and not here - physically present but psychologically absent. This support group provides 10 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT an opportunity to explore this feeling of loss with a social worker and other caregivers. Vascular Dementia Support Group Family caregivers of individuals with Vascular Dementia have a chance to share their experiences and learn new coping strategies from other caregivers. Coffee Time for Caregivers This is an informal support group for family caregivers of people in the early stage of Alzheimer’s disease who are participating in the Early Stage Support Group. It is a great opportunity for family caregivers to get the support they need, in a causal atmosphere. Goals for the upcoming year: Increase referral rate to the BSTP program, launch Online Dementia Care Training Program and evaluation, increase awareness to health-care professionals of training programs. Participant in our iPod Project receives her own personalized playlist h t s: HighliMgemory: nd Music a ject uses ro P d o iP usic lized m g a n o s r e p vin li le p p eo to help ementia with d Th e number of public education sessions held: 571 1,182 6,119 526 Th e number of public education hours taught: Th e number of counselling hours: Th e number of people who attended a support group: AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 11 LIVING WELL WITH DEMENTIA FAMILY STORY Kate and Marco have noticed that Jane hasn’t left the house in a few days. Wanting to see how they can lift her spirits, they check out the event calendar at the Alzheimer Society. With the support of their parents, they sign up the whole family for a tour of the Royal Ontario Museum that week, and the Dine and Dance later that month. 1. Dine and Dance: The Dine & Dance in the Afternoon at the historic St. Lawrence Hall is an annual social event for people in the early stage of dementia and their family caregivers. The Spirit of Jazz has been the musical guest of honour for the last 8 years, creating a musical atmosphere for all to enjoy. 2. ROM Tours: Over this past year, the programs team 12 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT has begun a new activity for people with dementia and their family caregivers. We have partnered with the Royal Ontario Museum (ROM) to provide guided, interactive tours. These tours are engaging and help reduce stress by providing an easy, structured afternoon activity. Through the partnership with the ROM, we are able to help provide meaningful opportunities to help people continue to be connected to the world around them. DINE & DANCE at the st. lawrence hall Held in May 2013, the event welcomed 60+ members of the community and offered them a moment of respite, fun and laughter with their peers. THE AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 00 FUNDRAISING FAMILY STORY Marco has been looking for a way to give back to the community that has supported his wife and in-laws so much during this time. He discovers that online fundraising is a meaningful way he can support the programs he uses, while not taking time away from his family. He sends an email out to his friends, family and colleagues to support his walk in the 24th annual Manulife Walk for Memories. Walk for Memories: The 2014 Manulife Walk for Memories was a highly successful fundraising event. For those who have never attended, it is a fun, family-friendly event where the community comes together to raise money for the Alzheimer Society of Toronto while honouring and remembering those affected by Alzheimer’s disease and other dementias. This includes Alzheimer Society board members, staff, 14 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT families, caregivers, volunteers and corporate partners. The Walk takes place indoors at the Allen Lambert Galleria in Brookfield Place, looping through Toronto’s underground PATH. For the 2014 Walk: • Over1,200participantsgatheredat Brookfield Place on January 25 • Over5050individualssupportedour walkers by donating online • Over$600,265raised(goalof$600,000) • 171teamsregistered 2. Hot Docs: On September 19, 2013, over 600 people gathered into the Bloor Cinema: Hot Docs Theatre to watch our first official screening of the film “Alive Inside”. The theatre was buzzing with excitement as the documentary film captured the essence of Dan Cohen’s Music and Memory project. Film director, Michael Rossato-Bennett flew in from NYC to participate in a Q&A moderated by CityTV’s Cynthia Mulligan. WALK for memories h t s: HighligWalkers” gsway “The Kin ed a pre -event organiz n that raised receptio 10,000! over $ THE AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 00 THIRD PARTY EVENTS Big or small, third party event organizers are often touched by the disease in some way, and understand that helping to raise funds and awareness is one way they can support the cause. 1. Memory Ball: Founded in 2011, the Young People Against Alzheimer’s team (YPAA) has since hosted three successful Memory Ball galas, raising over $120,000 in total for the Alzheimer Society of Toronto. The 2014 event, held March 29th at Andrew Richard Designs, raised over $65,000. Attendees had a wonderful time, enjoying the great appetizers and cocktails, silent auction and prizes, live band and DJs and dancing. 16 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT For the YPAA women, dementia is a part of everyday life. Three of their committee members’ mothers live with early-onset Alzheimer’s disease. Besides raising funds, the group also works hard to raise awareness of the disease among a younger, twenty something crowd. Attendees at past galas include young professionals, business leaders, entrepreneurs, students, artists and more. Gibbs Walk 2013: A Supporter’s Story My husband of almost 42 years, Conrad (Terry) Gibbs, is battling Alzheimer’s disease. Although this has dealt a devastating blow to our family, we remain strong, determined and persistently positive while advocating for his health every single day. – by Annette Gibbs Terry continues to be an integral part of our family life. He is known as a bright man who has made a contribution as an economist, an educator, a community organizer, a diplomat, a husband, a father and a playful Granddad. It was in the spirit of keeping him at the centre of our lives that the inspiration for the “Gibbs Walk” evolved. Many of Terry’s friends kept asking me what they could do for Terry which sparked the idea “How about a fundraiser for the Alzheimer Society?” This would serve the dual purpose of support for Terry in general and the Alzheimer Society specifically. From infants to retirees, enthusiastic and jubilant spirits flooded the yard eager to make their contribution to the event. What a most heartwarming sight! At 11:00 a.m. sharp, “Gibbs Walk” was declared open and off they went, cheered on by passersbys and encouragement of our local police force on bikes who took the time to come out and guide the walkers. Over 230 supporters graced “Gibbs Walk” with their generous participation and heartfelt contributions. All goals were met especially that of having my son and his family walking in solidarity in Chicago. We succeeded in raising $5,000 for the Alzheimer Society! That day, we all showed Terry Gibbs how much we care as we walk this tough road with him. – Annette AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 17 LEADERS OF HOPE We are grateful to the individuals, foundations and corporations who have pledged their support to the Alzheimer Society of Toronto. Generous pledges made by our donors help sustain and build our programs and make sure we can meet the increasing demand for services to people with dementia and their caregivers. $1,000,000+ The George C. Hunt Family Foundation $250,000-$499,999 The Andreae Family Alice & Grant Burton Green Shield Canada $100,000-$249,999 Linda Bertoldi & Bill Bogart The Bitove Foundation The Carswell Foundation Murray & Debbie Chant Les and Marijane Dakens The William and Nona Heaslip Foundation Neil Jacoby & Karen Brown Jane E. Kinney & Christian Bode Alan & Glynis MacGibbon Ontario Trillium Foundation The Rudolph P. Bratty Family Foundation $50,000-$99,999 John Byrne, Megan Tate & Family Chris & Pam Clark Cynthia Devine & Peter Sucharda $25,000-$49,999 William A. Cunningham Tim and Roberta Hague Christina Kramer Robert Wong & Dr. Alice Dong 18 AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT Spotlight: Vonna Bitove “Today, everyone knows someone who has been affected by Alzheimer’s. My family included. I hope that my contribution to the Society and my commitment to helping individuals and families cope with this devastating disease will be an inspiration for others.” ANNUAL DONORS AND BEQUESTS We are pleased to recognize the following individuals, foundations and organizations for their generous support of $1,000 or more over the past fiscal year. $1,000 - $2,499 Peter M. Adamson Tony & Susan Anderson Avison Young Deborah Barrett & Jim Leech Bayer Inc. Jalynn H. Bennett Francine Blackburn The Boiler Inspection and Insurance Company of Canada Nicole Bonnici Carol Brandt Brookfield Partners Foundation Frederick J. Brooks-Hill Children of Isabel Brown Michael Carter Charles & Lynn Schusterman Family Foundation Chartwell Retirement Residences Mary E. Clark Catherine Code Gary & Carol Cohn Stephen & Wendy Cole Laurelea Conrad Chair-man Mills Corp. The Creasor Crawford Charitable Foundation William A. Cunningham Mark Daitchman Micheal Dal Bello Daniel Pirillo & Associates Limited Dorothy Davey Gail Dobell Dundee Realty Management Corp The Edward & Fern Cohen Charitable Foundation Stikeman Elliott Ann Forrest Terry & Candace Fryett David Galloway The Geoffrey H. Wood Foundation Lesley V. Glenn The Godfrey Family Foundation Elliott Goldman R. Grant Janet Greaves Green Pink Yellow David & Erica Harris Margaret-Sheila Heath Gerald Heffernan Patricia Hemming Home Trust Company Hope Charitable Foundation Helen Huh Hydro One Inc. Imprint Weddings The Jackman Foundation Zenia Kahan Beatrice & Ron Keren Margaret D. King Janet Macmillan Rob & Nancy McConnell Heather McKellar & Gordon Waugh Marilyn McLean Richard F. McWhirter Mitsubishi Electric Sales Canada Inc. Moses & Temara Tobe Foundation Marshall Myles Kevin Nowlin H. Lynne Patterson Margaret Peacock Charles Peebles Victoria Pinnington Nancy Portlock Greg & Gabby Richards Scott Russell William W. Snelling John Soutsos Leigh J. Stemerman Howard Stotland Alan Sugarman Dean & Lynda Summerville David Tang-Wai Annie & Bruce Topp Toronto Community Foundation Transition Therapeutics Inc. Tridel Corporation William A. Trojan Cinzia Vettese Benita Warmbold & Gerald Wood Jeff Watchorn John H. Watson Welded Tube of Canada Limited Wingenback Inc. L. D. Woodruff Brian Xiao Rick Young AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT 19 ANNUAL DONORS AND BEQUESTS $2,500 - $4,999 Amish Furniture Designed Inc. Cathy Barrick Ryan Bonne Muriel K. Brown Nancy Cobban Dentons Canada LLP Gary Dickens Reinhard Dotzlaw Dover Coast Homes The Dunfield Un-retirement Residence Mary Jane Dykeman Michael Gordon Jeff Green Lisa Heidman HomEquity Bank KIK Custom Products Dr. Robert Lester Sean & Dina McGuckin OPG Employees’ & Pensioners’ Charity Trust PB Marketingn Ltd. Philips Lifeline Christopher & Astrid Pinnington Greg Shaw $5,000 - $9,999 Lloyd & Marie Barbara Charles & Sallie Caty Lewis & Kirsten Cirne John & Mary Crocker Ernst & Young LLP Tim & Roberta Hague Robert & Cathy Hull Frank Iacobucci Roy D. James 20 Kathryn Kennedy Charitable Foundation KPMG Karen & Don Lang Leisureworld Caregiving Centres Kathy Lockwood Veronika Mavec Margaret Norrie McCain Medcan Clinic Memory Care Investments Ltd. Osler, Hoskin & Harcourt LLP Joe & Lucie Pal Linda Shaw Dong-Il Sohn The Sullivan Family Foundation Sunnybrook Health Sciences Centre Toronto General & Western Hospital Foundation Uniglobe Collacutt Travel Ltd. Robert Wong & Dr. Alice Dong $10,000 - $19,999 The Alastair and Diana Gillespie Foundation John Byrne, Megan Tate & Family Chris & Pam Clark Cynthia Devine & Peter Sucharda Feature Foods International Inc. The Harry E. Foster Foundation Susan Heath J. P. Bickell Foundation Neil Jacoby & Karen Brown Christina Kramer Ontario Trillium Foundation The Rotman Family Foundation The Rudolph P. Bratty Family Foundation Scotiabank Group TD Bank Group AL ZHEIMER SOCIET Y OF TORONTO 2013 -2014 ANNUAL REPORT $20,000 - $49,999 Linda Bertoldi & Bill Bogart The Bitove Foundation BMO Nesbitt Burns John E. Campbell Murray & Deborah Chant CIBC Les & Marijane Dakens Deloitte & Touche Foundation George Fierheller Jane E. Kinney & Christian Bode Alan MacGibbon The William and Nona Heaslip Foundation $50,000 - $199,999 The Andreae Family Alice & Grant Burton Allan & Helen Carswell Manulife Financial RBC $200,000 - $499,999 Green Shield Canada $500,000+ The George C. Hunt Family Foundation For full report, visit: alz.to/annualreport2013 Alzheimer Society of Toronto 20 Eglinton Avenue West, 16th floor, Toronto, ON M4R 1K8 Telephone: 416-322-6560 Email: write@alzheimertoronto.org Charitable Business Number: 10670 5262 RR0001