Obsessive-Compulsive Disorder - American Association for
Transcription
Obsessive-Compulsive Disorder - American Association for
Obsessive-Compulsive Disorder Diagnostic Criteria 300.3 (F42) A. Presence of obsessions, compulsions, or both: Obsessions are defined by (1) and (2): 1. Recurrent and persistent thoughts, urges, or images that are experienced, at some time during the disturbance, as intrusive and unwanted, and that in most individuals cause marked anxiety or distress. 2. The individual attempts to ignore or suppress such thoughts, urges, or images, or to neutralize them with some other thought or action (i.e., by performing a compulsion). Compulsions are defined by (1) and (2): 1. Repetitive behaviors (e.g., hand washing, ordering, checking) or mental acts (e.g., praying, counting, repeating words silently) that the individual feels driven to perform in response to an obsession or according to rules that must be applied rigidly. 2. The behaviors or mental acts are aimed at preventing or reducing anxiety or distress, or preventing some dreaded event or situation; however, these behaviors or mental acts are not connected in a realistic way with what they are designed to neutralize or prevent, or are clearly excessive. Note: Young children may not be able to articulate the aims of these behaviors or mental acts. B. The obsessions or compulsions are time-consuming (e.g., take more than 1 hour per day) or cause clinically significant distress or impairment in social, occupational, or other important areas of functioning. C. The obsessive-compulsive symptoms are not attributable to the physiological effects of a substance (e.g., a drug of abuse, a medication) or another medical condition. D. The disturbance is not better explained by the symptoms of another mental disorder (e.g., excessive worries, as in generalized anxiety disorder; preoccupation with appearance, as in body dysmorphic disorder; difficulty discarding or parting with possessions, as in hoarding disorder; hair pulling, as in trichotillomania [hair-pulling disorder]; skin picking, as in excoriation [skin-picking] disorder; stereotypies, as in stereotypic movement disorder; ritualized eating behavior, as in eating disorders; preoccupation with substances or gambling, as in substance-related and addictive disorders; preoccupation with having an illness, as in illness anxiety disorder; sexual urges or fantasies, as in paraphilic disorders; impulses, as in disruptive, impulse-control, and conduct disorders; guilty ruminations, as in major depressive disorder; thought insertion or delusional preoccupations, as in schizophrenia spectrum and other psychotic disorders; or repetitive patterns of behavior, as in autism spectrum disorder). Specify if: With good or fair insight: The individual recognizes that obsessive-compulsive disorder beliefs are definitely or probably not true or that they may or may not be true. With poor insight: The individual thinks obsessive-compulsive disorder beliefs are probably true. With absent insight/delusionai beliefs: The individual is completely convinced that obsessive-compulsive disorder beliefs are true. Specify if: Tic-related: The individual has a current or past history of a tic disorder. For parents, teachers, and child care providers: Screening children for OCD 1. Does the child repeatedly wash her hands, use hand sanitizers, or take long showers? 2. Does he avoid being touched, refuse to play sports, or refuse to sit in certain places or allow others to? 3. Does she resist or avoid public places or public bathrooms? 4. Does he seek reassurance from you, for example, that he is not sick or dirty, that he did something correctly, or that "everything is OK"? 5. Does she fear harm or danger to herself or others, or fear she will cause harm to others? 6. Does he need to check or have you check to make sure doors or windows are locked? 7. Does she save useless items, such as scraps of paper, candy wrappers, bottle caps? 8. Does he refuse to allow others to touch his things? 9. Is she preoccupied with religious observances, praying, or saying prayers a certain number of times? 10. Does he have to apologize repeatedly or say goodbye or goodnight in a certain sequence and is very distressed when the sequence is interrupted? 11. Does she erase her printing or writing excessively and insist that it must be perfect or "just right"? 12. Does he reread things multiple times or take a very long time to read things? 13. Does she rearrange things in her room or in the house or insist that they be lined up in a certain way or "just right"? 13. Is he extremely slow with dressing, activities, chores, or school work? 14. Do family and friends have to obey her rules regarding what they can touch, or where they can sit or walk? 15. Does he worry that his thoughts can cause an event to happen or not happen? 16. Does she worry that food may have gone bad or even be poisoned? 17. Does he avoid "unlucky" or "unsafe" numbers in favor of "lucky" or "safe" ones? 18. Does she repeatedly turn light switches or electronic toys off and on? This test is not meant to replace a thorough evaluation by a mental health professional trained in assessing obsessive-compulsive disorder (OCD). If you answered "yes" to any of the above questions, the child may have O C D . If the severity of the symptom(s) is low, perhaps no treatment is needed. But if the child is easily upset, throwing tantrums, crying, or seemingly overreactive to situations involving these questions, an evaluation by a mental health professional familiar with O C D in children is recommended. Adapted by Vicki Easterling, LCSyV from information provided by ocdchicago.org and ocdeducationstation.org 2008 The Austin Center for the Treatment of Obsessive-Compulsive Disorder Original: 10/1/86 First Revision: 3/1/90 Second Revision: 5/1/91 Third Revision: 5/1/93 Fourth Revision: 6/17/99 Fifth Revision: 10/04/07 CHILDREN'S YALE-BROWN OBSESSIVE COMPULSIVE SCALE (CY-BOCS) DEVELOPED BY WAYNE K. GOODMAN, M.D.1 LAWRENCE SCAHILL, MSN, PhD2 LAWRENCE H. PRICE, M.D.3 STEVEN A. RASMUSSEN, M.D.3 MARK A. RIDDLE, M.D. 4 JUDITH L. RAPOPORT, M.D.5 NATIONAL INSTITUTE OF MENTAL HEALTH1 THE CHILD STUDY CENTER2 YALE UNIVERSITY SCHOOL OF MEDICINE DEPARTMENT OF PSYCHIATRY3 BROWN UNIVERSITY SCHOOL OF MEDICINE CHILD PSYCHIATRY DIVISION4 JOHNS HOPKINS SCHOOL OF MEDICINE and CHILD PSYCHIATRY BRANCH5 NATIONAL INSTITUTE OF MENTAL HEALTH Investigators interested in using this rating scale should contact Lawrence Scahill, M.S.N., Ph.D., at the Yale Child Study Center, P.O. Box 207900, New Haven, CT 06520 or Wayne Goodman, M.D., at the National Institute of Mental Health, Bethesda, MD. Scahill, L., Riddle, M.A., McSwiggin-Hardin, M., Ort, S.I., King, R.A., Goodman, W.K., Cicchetti, D. & Leckman, J.F. (1997). Children's Yale-Brown Obsessive Compulsive Scale: reliability and validity. J Am Acad Child Adolesc Psychiatry, 36(6):844-852. 1 GENERAL INSTRUCTIONS Overview: This scale is designed to rate the severity of obsessive and compulsive symptoms in children and adolescents, ages 6 to 17 years. It can be administered by a clinican or trained interviewer in a semi-structured fashion. In general, the ratings depend on the child's and parent's report; however, the final rating is based on the clinical judgement of the interviewer. Rate the characteristics of each item over the prior week up until, and including, the time of the interview. Scores should reflect the average of each item for the entire week, unless otherwise specified. Informants: Information should be obtained by interviewing the parent(s) (or guardian) and the child together. Sometimes, however, it may also be useful to interview the child or parent alone. Interviewing strategy may vary depending on the age and developmental level of the child or adolescent. All information should be combined to estimate the score for each item. Whenever the CY-BOCS is administered more than once to the same child, as in a medication trial, consistent reporting can be ensured by having the same informant(s) present at each rating session. Definitions: Before proceeding with the questions, define "obsessions" and "compulsions" for the child and primary caretaker as follows (sometimes, particularly with younger children, the interviewer may prefer using the terms "worries" and "habits"): "OBSESSIONS: are thoughts, ideas, or pictures that keep coming into your mind even though you do not want them to. They may be unpleasant, silly or embarrassing." "AN EXAMPLE OF AN OBSESSION IS: the repeated thought that germs or dirt are harming you or other people, or that something unpleasant might happen to you or someone in your family or someone special to you. These are thoughts that keep coming back, over and over again." "COMPULSIONS: are things that you feel you have to do although you may know that they do not make sense. Sometimes you may try to stop from doing them but this might not be possible. You might feel worried or angry or frustrated until you have finished what you have to do." "AN EXAMPLE OF A COMPULSION IS: the need to wash your hands over and over again even though they are not really dirty, or the need to count up to a certain number while you do certain things." "Do you have any questions about what these words called obsessions and compulsions mean?" Symptom Specificity and Continuity: In some cases, it may be difficult to delineate obsessions and compulsions from other closely related symptoms such as phobias, anxious worries, depressive ruminations or complex tics. Separate assessment of these symptoms may be necessary. Although potentially difficult, the delineation of obsessions and compulsions from these closely related symptoms is an essential task of the interviewer. (A full discussion of how to make this determination is beyond the scope and purpose of this introduction.) Items marked with an asterix are items where this delineation may be especially troublesome. 2 Once the interviewer has decided whether or not a particular symptom will be included as an obsession or compulsion on the checklist, every effort should be made to maintain consistency in subsequent rating(s). In a treatment study with multiple ratings over time, it may be useful to review the initial Target Symptom Checklist (see below) at the beginning of subsequent ratings (prior severity scores should not be reviewed). Procedure: Symptom Checklist: After reviewing with the child and parent(s) the definitions of obsessions and compulsions, the interview should proceed with a detailed inquiry about the child's symptoms using the Compulsions Checklist and Obsessions Checklist as guides. It may not be necessary to ask about each and every item on the checklist, but each symptom area should be covered to ensure that symptoms are not missed. For most children and adolescents, it is usually easier to begin with compulsions (pages 9 and 10). Target Symptom List: After the Compulsions Checklist is complete, list the four most severe compulsions on the Target Symptom List on page 10. Repeat this process, listing the most severe obsessions, on the Target Symptom List on page 5. Severity Rating: After completing the Checklist and Target Symptom List for compulsions, inquire about the severity items: Time Spent, Distress, Resistance, Interference, and Degree of Control (questions 6 through 10 on pages 11 through 13). There are examples of probe questions for each item. Ratings for these items should reflect interviewer's best estimate from all available information from the past week, with special emphasis on the Target Symptoms. Repeat the above procedure for obsessions (Pages 4 through 8). Finally, inquire about and rate questions 11 through 19 on pages 14 and 18. Scores can be recorded on the scoring sheet on page 19. All ratings should be in whole integers. Scoring: All 19 items are rated, but only items 1-10 are used to determine the total score. The total CY-BOCS score is the sum of items 1-10; the obsession and compulsion subtotals are the sums of items 1-5 and 6-10, respectively. At this time, items 1A and 6A are not being used in the scoring. Items 17 (global severity) and 18 (global improvement) are adapted from the Clinical Global Impression Scale (Guy, W., 1976) to provide measures of overall functional impairment associated with the presence of obsessive-compulsive symptoms. 3 Name Date CY-BOCS OBSESSIONS CHECKLIST Check all items that apply (Item marked "*" may or not be OCD phenomena.) Current Past Contamination Obsessions Concern with dirt, germs, certain illnesses (e.g., AIDS) Concerns or disgust with bodily waste or secretions (e.g., urine, feces, saliva) Excessive concern with enviromental contaminants (e.g., asbestos, radiation, toxic waste) Excessive concern with household items (e.g., cleaners, solvents) Excessive concern about animals/insects Excessively bothered by sticky substances or residues Concerned will get ill because of contaminant Concerned will get others ill by spreading contaminant (aggressive) No concern with consequences of contamination other than how it might feel * Other (Describe) Aggressive Obsessions Fear might harm self Fear might harm others Fear harm will come to self Fear harm will come to others (may be because something child did or did not do) Violent or horrific images Fear of blurting out obscenities or insults Fear of doing something else embarrassing * Fear will act on unwanted impulses (e.g. to stab a family member) Fear will steal things Fear will be responsible for something else terrible happening (e.g. fire, burglary, flood) Other (Describe) Sexual Obsessions [Are you having any sexual thoughts? If yes, are they routine or are they repetitive thoughts that you would rather not have or find disturbing? If yes, are they:] Forbidden or perverse sexual thoughts, images, impulses Content involves homosexuality * Sexual behavior towards others (Aggressive) Other (Describe) Hoarding/Saving Obsessions Fear of losing things Other (Describe) Magical Thoughts/Superstitous Obsessions Lucky/unlucky numbers, colors, words Other (Describe) 4 Current Past Somatic Obsessions Excessive concern with illness or disease * Excessive concern with body part or aspect of appearance (e.g., dysmorphophobia) * Other (Describe) Religious Obsessions (Scrupulosity) Excessive concern or fear of offending religious objects (God) Excessive concern with right/wrong, morality Other (Describe) Miscellaneous Obsessions The need to know or remember Fear of saying certin things Fear of not saying just the right thing Intrusive (non-violent) images Intrusive sounds, words, music, or numbers Other (Describe) TARGET SYMPTOM LIST FOR OBSESSIONS Obsessions (Describe, listing by order of severity, with #1 being the most severe, #2 the second most severe, etc.): 1. 2. 3. 4. 5 QUESTIONS ON OBSESSIONS (ITEMS 1-5) "I AM NOW GOING TO ASK YOU QUESTIONS ABOUT THE THOUGHTS YOU CANNOT STOP THINKING ABOUT." (Review for the informant(s) the Target Symptoms and refer to them while asking questions 1-5). Time Occupied by Obsessive Thoughts 1. • How much time do you spend thinking about these things? (When obsessions occur as brief, intermittent intrusions, it may be impossible to assess time occupied by them in terms of total hours. In such cases, estimate time by determining how frequently they occur. Consider both the number of times the intrusions occur and how many hours of the day are affected). • How frequently do these thoughts occur? [Exclude ruminations and preoccupations which, unlike obsessions, are ego-syntonic and rational (but exaggerated).] 0 - NONE 1 - MILD less than 1 hr/day or occasional intrusion 2 - MODERATE 1 to 3 hrs/day or frequent intrusion 3 - SEVERE greater than 3 and up to 8 hrs/day or very frequent intrusion 4 - EXTREME greater than 8 hrs/day or near constant intrusion 1B. Obsession-free Interval (not included in total score) • On average, what is the longest amount of time per day that you are not bothered by obsessivethoughts? 0 - NONE 1 - MILD long symptom free intervals, more than 8 consecutive hrs/day symptom-free 2 - MODERATE moderately long symptom-free intervals, more than 3 and up to 8 hrs/day 3 - SEVERE brief symptom-free intervals, from 1 to 3 consecutive hrs/day symptom-free 4 - EXTREME less than 1 consecutive hr/day symptom free 2. Interference due to Obsessive Thoughts • How much do these thoughts get in the way of school or doing things with friends? • Is there anything that you don't do because of them? (If currently not in school determine how much performance would be affected if patient were in school.) 0 - NONE 1 - MILD slight interference with social or school activities, overall performance not impaired 2 - MODERATE definite interference with social or school performance, but still manageable 3 - SEVERE causes substantial impairment in social or school performance 4 - EXTREME incapacitating 6 3. Distress Associated with Obsesssive Thoughts • How much do these thoughts bother or upset you? (Only rate anxiety/frustration that seems triggered by obsessions, not generalized anxiety or anxiety associated with other symptoms.) 0 - NONE 1 - MILD infrequent, and not too disturbing 2 - MODERATE frequent, and disturbing, but still manageable 3 - SEVERE very frequent, and very disturbing 4 - EXTREME near constant, and disabling distress/frustration 4. Resistance Against Obsessions • How hard do you try to stop the thoughts or ignore them? (Only rate effort made to resist, not success or failure in actually controlling the obsessions. How much patient resists the obsessions may or may not correlate with their ability to control them. Note that this item does not directly measure the severity of the intrusive thoughts; rather it rates a manifestation of health, i.e., the effort the patient makes to counteract the obsessions. Thus, the more the patient tries to resist, the less impaired is this aspect of his functioning. If the obsessions are minimal, the patient may not feel the need to resist them. In such cases, a rating of "0" should be given.) 0 – NONE makes an effort to always resist, or symptoms so minimal doesn't need to actively resist. 1 - MILD tries to resist most of the time 2 - MODERATE makes some effort to resist 3 - SEVERE yields to all obsessions without attempting to control them, but does so with some reluctance 4 – EXTREME completely and willingly yields to all obsessions 5. Degree of Control Over Obsessive Thoughts • When you try to fight the thoughts, can you beat them? • How much control do you have over the thoughts? (In contrast to the preceding item on resistance, the ability of the patient to control his obsessions is more closely related to the severity of the intrusive thoughts. 0 - COMPLETE CONTROL 1 - MUCH CONTROL usually able to stop or divert obsessions with some effort and concentration. 2 - MODERATE CONTROL sometimes able to stop or divert obsessions 3 - LITTLE CONTROL 4 - NO CONTROL rarely successful in stopping obsessions, can only divert attention with difficulty experienced as completely involuntary, rarely able to even momentarily divert thinking 7 Name Date CY-BOCS COMPULSIONS CHECKLIST Check all items that apply (Item marked "*" may or not be OCD phenomena.) Current Past Washing/Cleaning Compulsions Excessive or ritualized handwashing Excessive or ritualized showering, bathing, toothbrushing, grooming, or toilet routine Excessive cleaning of items; such as personal clothes or important objects Other measures to prevent or remove contact with contaminants Other (Describe) Checking Compulsions Checking locks, toys, school books/items, etc. Checking associated with getting washed, dressed, or undressed. Checking that did not/will not harm others Checking that did not/will not harm self Checking that nothing terrible did/will happen Checking that did not make mistake Checking tied to somatic obsessions Other (Describe) Repeating Rituals Rereading, erasing, or rewriting Need to repeat routine activities (e.g. in/out doors, up/down from chair) Other (Describe) Counting Compulsions Objects, certain numbers, words, etc. Describe: Ordering/Arranging Need for symmetry/evening up (e.g., lining items up a certain way or arranging personal items in specific patterns) Other (Describe) Hoarding/Saving Compulsion [distinguish from hobbies and concern with objects of monetary or sentimental value] Difficulty throwing things away, saving bits of paper, string, etc. Other (Describe) Excessive Games/Superstitious Behaviors [distinguish from age appropriate magical games] (e.g., array of behavior, such as stepping over certain spots on a floor, touching an object/self certain number of times as a routine game to avoid something bad from happening.) Other (Describe) 8 Current Past Rituals Involving Other Persons The need to involve another person (usually a parent) in ritual (e.g., asking a parent to repeatedly answer the same question, making mother perform certain meal time-rituals involving specific utensils).* Other (Describe) Miscellaneous Compulsions Mental rituals (other than checking/counting) Need to tell, ask, or confess Measures (not checking) to prevent harm to self ; harm to others Ritualized eating behaviors * Excessive list making * Need to touch, tap, rub * Need to do things (e.g., touch or arrange) until it feels just right) * Rituals involving blinking or staring * Trichotillomanis (hair-pulling) * Other self-damaging or self-mutilating behaviors * Other (Describe) ; terrible consequences TARGET SYMPTOM LIST FOR COMPULSIONS Compulsions (Describe, listing by order of severity, with #1 being the most severe, #2 second most severe, etc.): 1. 2. 3. 4. 9 QUESTIONS ON COMPULSIONS (ITEMS 6-10) "I AM NOW GOING TO ASK YOU QUESTIONS ABOUT THE HABITS YOU CAN'T STOP." (Review for the informant(s) the Target Symptoms and refer to them while asking questions 6-10). 6A. Time Spent Performing Compulsive Behaviors • How much time do you spend doing these things? • How much longer than most people does it take to complete your usual daily activities because of the habits? (When compulsions occur as brief, intermittent behaviors, it may be impossible to assess time spent performing them in terms of total hours. In such cases, estimate time by determining how frequently they are performed. Consider both the number of times compulsions are performed and how many hours of the day are affected.) • How often do you do these habits? [In most cases compulsions are observable behaviors (e.g., handwashing), but there are instances in which compulsions are not observable (e.g., silent checking).] 0 - NONE 1 - MILD (spends less than 1 hr/day performing compulsions), or occasional performance of compulsive behaviors 2 - MODERATE (spends from 1 to 3 hrs/day performing compulsions), or frequent performance of compulsive behaviors 3 - SEVERE (spends more than 3 and up to 8 hrs/day performing compulsions), or very frequent performance of compulsive behaviors 4 - EXTREME (spends more than 8 hrs/day performing compulsions), or near constant performance of compulsive behaviors (too numerous to count). 6B. Compulsion-free Interval • How long can you go without performing compulsive behavior? [If necessary ask: What is the longest block of time in which (your habits) compulsions are absent?] 0 - NO SYMPTOMS 1 - MILD long symptom-free interval, more than 8 consecutive hrs/day symptom-free 2 - MODERATE moderately long symptom-free interval, more than 3 and up to 8 consecutive hrs/day symptom-free. 3 - SEVERE short symptom-free interval, from 1 to 3 consecutive hrs/day symptom free 4 - EXTREME less than 1 consecutive hr/day symptom-free 10 7. Interference due to Compulsive Behaviors • How much do these habits get in the way of school or doing things with friends? • Is there anything you don't do because of them? (If currently not in school, determine how much performance would be affected if patient were in school.) 0 - NONE 1 - MILD slight, interference with social or school activities, but overall performance not impaired 2 – MODERATE definite interference with social or school performance, but still manageable 3 - SEVERE causes substantial impairment in social or school performance 4 - EXTREME incapacitating 8. Distress Associated with Compulsive Behavior • How would you feel if prevented from carrying out your habits? • How upset would you become? (Rate degree of distress/frustration patient would experience if performance of the compulsion were suddenly interrupted without reassurance offered. In most, but not all cases, performing compulsions reduces anxiety /frustration.) • How upset do you get while carrying out your habits until you are satisfied? 0 - NONE 1 - MILD only slightly anxious/frustrated if compulsions prevented, or only slight anxiety/frustration during performance of compulsions. 2 - MODERATE reports that anxiety/frustration would mount but remain manageable if compulsions prevented. Anxiety/frustration increases but remains manageable during performance of compulsions. 3 - SEVERE prominent and very disturbing increase in anxiety/frustration if compulsions interrupted. Prominent and very disturbing increase in anxiety /frustration during performance of compulsions. 4 - EXTREME incapacitating anxiety/frustration from any intervention aimed at modifying activity. Incapacitating anxiety/frustration develops during performance of compulsions. 11 9. Resistance Against Compulsions • How much do you try to fight the habits? (Only rate effort made to resist, not success or failure in actually controlling the compulsions. How much the patient resists the compulsions may or may not correlate with his ability to control them. Note that this item does not directly measure the severity of the compulsions; rather it rates a manifestation of health, i.e., the effort the patient makes to counteract the compulsions. Thus, the more the patient tries to resist, the less impaired is this aspect of their functioning. If the compulsions are minimal, the patient may not feel the need to resist them. In such cases, a rating of "0" should be given.) 0 - NONE Makes an effort to always resist, or symptoms so minimal doesn't need to actively resist. 1 - MILD Tries to resist most of the time. 2 - MODERATE Makes some effort to resist 3 - SEVERE Yields to almost all compulsions without attempting to control them, but does so with some reluctance. 4 - EXTREME completely and willingly yields to all compulsions 10. Degree of Control over Compulsive Behavior • How strong is the feeling that you have to carry out the habit(s)? • When you try to fight them what happens? (For the advanced child ask:) • How much control do you have over the habits? (In contrast to the preceding item on resistance, the ability of the patient to control his compulsions is closely related to the severity of the compulsions.) 0 - COMPLETE CONTROL 1 - MUCH CONTROL experiences pressure to perform the behavior, but usually able to exercise voluntary control over it 2 - MODERATE CONTROL moderate control, strong pressure to perform behavior, can control it only with difficulty 3 - LITTLE CONTROL little control, very strong drive to perform behavior, must be carried to completion, can only delay with difficulty 4 - NO CONTROL no control, drive to perform behavior experienced as completely involuntary and overpowering, rarely able to delay activity (even momentarily) 12 CHILDREN'S YALE-BROWN OBSESSIVE COMPUSLIVE SCALE Patient Name Rater CYBOCS TOTAL (add items 1-10) Patient ID _____ Date 1. TIME SPENT ON OBSESIONS 0 1 2 3 4 1b. OBSESSION-FREE INTERVAL (do not add to subtotal or total score) No Symptoms 0 Long 1 Moderately Long 2 Short 3 Extremely Short 4 2. INTERFERENCE FROM OBSESSIONS 0 1 2 3 4 3. DISTRESS OF OBSESSIONS 0 1 2 3 4 0 1 2 3 4 Complete control Much control Moderate control Little control No control 0 1 2 Always resists 4. RESISTANCE 5. CONTROL OVER OBSESSIONS 6. TIME SPENT ON COMPULSIONS 6b. COMPULSION-FREE INTERVAL Completely yields 3 4 OBSESSION SUBTOTAL (add items 1-5) 1 2 3 0 [ ] 4 No Symptoms Long Moderately Long Short Extremely Short (do not add to subtotal or total score) 0 1 2 3 4 7. INTERFERENCE FROM COMPULSION 0 1 2 3 4 8. DISTRESS FROM COMPULSIONS 0 1 2 3 4 Always resists 0 9. RESISTANCE Complete control 10. CONTROL OVER COMPULSIONS 0 Completely yields 1 Much control 1 2 Moderate control 2 3 Little control 3 COMPULSION SUBTOTAL (add items 6-10) 19. RELIABILITY EXCELLENT = 0 GOOD = 1 FAIR = 2 4 No control 4 [ POOR = 3 EXCELLENT = no reason to suspect data unreliable; GOOD= factor(s) that may adversely affect reliability; FAIR= factor(s) that definitely reduce reliability; POOR= very low reliability. 13 ] 14 piacentiniTG14app.111_124 12/22/06 12:41 PM Page 112 Current Symptoms Self-Report Form Week of: Instructions: Please check the response next to each item that best describes your behavior during the past week. Children’s Yale-Brown OC Scale (CY-BOCS) Self-Report Symptom Checklist Name of Child: 1 Never or Date: Rarely Informant: Often Sometimes Very Often This questionnaire can be completed by the child/adolescent, parents, or both working together. We are attention interestedtoindetails getting most accurate information possible. There are no right or wrong Fail to give close or the make careless answers. Please just answer the best you can. Thank you. mistakes in my work Please check all COMPULSIVE SYMPTOMS that you have noticed during the past week. 2 Fidget with hands or feet or squirm in seat 3 Have diffidoes cultynot sustaining my attention in tasksare or typically done to reduce fear of distress associated with make sense. Compulsions fun activities obsessive thoughts. 4 Leave my seat in situations in which seating is Washing/Cleaning Compulsions expected 5 Don’t listen when terrupted, spoken to directly needs to wash hands in particular order of steps) 6 Feel restless 7 Don’t follow through on instructions and fail to Excessive cleaning of items (e.g., clothes, faucets, floors or important objects) finish work 8 Have difficulty engaging leisure activities or door; doing refusing to shake hands; asking family members to refoot toin flush toilet or open fun things quietly move insecticides, garbage) 9 Other washing/cleaning Have difficulty organizing tasks and activitiescompulsions (Describe) COMPULSIONS are things you feel compelled to do even though you may know the behavior Excessive or ritualized hand washing (e.g., takes long time to wash, needs to restart if inExcessive or ritualized showering, bathing, tooth brushing, grooming, toilet routine (see hand washing) Other measures to prevent or remove contact with contaminants (e.g., using towel or 10 Feel “on the go” or “driven by a motor” 11 Avoid, dislike, or amCompulsions reluctant to engage in work that Checking requires sustained mental effort Checking locks, toys, schoolbooks/items, and so on 12 Talk excessively Checking associated with getting washed, dressed, or undressed 13 Checking that did not/will not harm others (e.g., checking that nobody’s been hurt, Lose things necessary for tasks or activities 14 Blurt out answers before questions have been Checking that did not/will not harm self (e.g., looking for injuries or bleeding after completed 15 Am easily distracted Checking that nothing terrible did/will happen (e.g., searching the newspaper or televi- 16 Have difficulty awaiting turn 17 Am forgetful in daily activities lations, homework) 18 Checking Interrupt or intrude on otherstied to health worries (e.g., seeking reassurance about having an illness, re- asking for reassurance, or telephoning to make sure that everything is alright) handling sharp or breakable objects, asking for reassurance that everything is alright) sion for news about catastrophes) Checking that did not make a mistake (e.g., while reading, writing, doing simple calcu- peatedly measuring pulse, checking for body odors or ugly features) From R. A. Barkley & K. R. Murphy Attention-Defi cit Hyperactivity Disorder: A clinical workbook (2nd ed.). New York: Guilford Press. Other(1998), checking compulsions (Describe) Reprinted with permission. Programs That Work It's Only A False Alarm TM Copyright © 2007 University Press Copyright © 2005 OxfordOxford University Press piacentiniTG14app.111_124 12/22/06 12:41 PM Page 113 Current Symptoms Self-Report Form Week of: Instructions: Please check the response next to each item that best describes your behavior during the past week. Repeating Compulsions 1 Never or Rarely Sometimes Often Very Often Rereading, erasing, or rewriting (e.g., taking hours to read a few pages or write a few because over not understanding or needing letters to be perfect) Fail to give close sentences attention to details of or concern make careless mistakes in my work Needing to repeat routine activities (e.g., getting up and down from a chair or going in and out of a doorway, turning the light switch or TV on and off a specific number of times) 2 Fidget with hands or feet or squirm in seat 3 Have difficulty sustaining my attention in tasks or fun activities 4 Leave myCounting seat in situations in which seating is Compulsions expected 5 or spoken) Don’t listen whenread spoken to directly 6 Feel restless Arranging/Symmetry 7 Arranging/ordering (e.g.,failspends hours straightening paper and pens on a desktop or Don’t follow through on instructions and to books in a bookcase, becomes very upset if order is disturbed) finish work 8 Symmetry/evening up (e.g., Have difficulty engaging in leisure activities or arranges doing things or own self so that two or more sides are “even” or symmetrical) fun things quietly 9 Have difficulty organizing tasks and activities Other repeating compulsions (Describe) Counts objects (e.g., floor tiles, CDs or books on a shelf, his/her own steps, or words Other arranging compulsions (Describe) 10 Feel “on the go” or “driven by a motor” 11 Hoarding/Saving Compulsion not count Avoid, dislike, or am reluctant to engage(do in work that saving sentimental or needed objects) requires sustainedDifficulty mental effthrowing ort things away; saving bits of paper, string, old newspapers, notes, 12 Talk excessively or garbage 13 Lose things necessary forhoarding/saving tasks or activitiescompulsions (Describe) Other 14 15 Blurt out answers before questions have been completed Excessive Games/Superstitious Behaviors (must be associated with anxiety, not just a game) Am easily distracted 16 Have difficulty awaiting ject/selfturn a certain number to times to avoid something bad happening, not leaving 17 Am forgetful in daily activities 18 Rituals Involving Other Persons Interrupt or intrude on others cans, paper towels, wrappers and empty bottles; may pick up useless objects from street Behaviors such as not stepping on cracks or lines on floor/sidewalk, touching an obhome on the th of the month) Needing to involve another person (usually a parent) in rituals (e.g., excessive asking for reassurance, parent Disorder: to answer the same question, making parent wash From R. A. Barkley & K. R. Murphy (1998), repeatedly Attention-Defiasking cit Hyperactivity A clinical workbook (2nd ed.). New York: Guilford Press. Reprinted with permission. excessively) Programs That Work It's Only A False Alarm TM Copyright © 2007 University Press Copyright © 2005 OxfordOxford University Press piacentiniTG14app.111_124 12/22/06 12:41 PM Page 114 Current Symptoms Self-Report Form Week of: Instructions: Please check the response next to each item that best describes your behavior during the past week. Children’s Yale-Brown OC Scale (CY-BOCS) Self-Report Symptom Checklist continued Miscellaneous Compulsions 1 Never or Rarely Sometimes Often Very Often Excessive telling, asking, or confessing (e.g., confessing repeatedly for minor or imagined transgressions, askingcareless for reassurance) Fail to give close attention to details or make mistakes in my work Measures (not checking) to prevent harm to self or others or some other terrible conse- quences (e.g., avoids sharp or breakable objects, knives, or scissors) 2 Fidget with hands or feet or squirm in seat 3 Have difficulty sustaining attention in tasks eating; my eating according to aorstrict ritual) fun activities 4 jects, or other people, perhaps to prevent a bad occurrence) Leave my seat in situations in which seating is expected Excessive list making 5 Needing do things (e.g., touch or arrange) until it feels “just right” Don’t listen when spoken toto directly 6 Feel restless 7 Don’t follow through on instructions and fail to finish work 8 Pleaseengaging check all SYMPTOMS that you have noticed during the past week. Have difficulty in OBSESSIVE leisure activities or doing fun thingsOBSESSIONS quietly are intrusive, recurrent, and distressing thoughts, sensations, urges, or images 9 Have difficulty organizing tasks and activities Ritualized eating behaviors (e.g., arranging food, knife, fork in a particular order before Excessive touching, tapping, rubbing (e.g., repeatedly touching particular surfaces, ob- Avoiding saying certain words (e.g., goodnight or goodbye, person’s name, bad event) Other (Describe) 10 11 that you may experience. They are typically frightening and may be either realistic or unrealistic in nature. Feel “on the go” or “driven by a motor” Contamination Obsessions Avoid, dislike, or am reluctant to engage in dirt, workgerms, that certain illnesses (e.g., from door handles, other Excessive concern with requires sustained mental eff ort people) 12 Talk excessively 13 Lose things necessary for tasks or activities 14 stances) Blurt out answers before questions have been completed Excessive concern with contamination from household items (e.g., cleaners, solvents) 15 Am easily distracted Excessive concern about contamination from touching animals/insects 16 Excessively Have difficulty awaiting turn bothered by sticky substances or residues (e.g., adhesive tape, syrup) 17 Am forgetful in daily activities 18 Concerned Interrupt or intrude on others will get others ill by spreading contaminant Excessive concern/disgust with bodily waste or secretions (e.g., urine, feces, semen, sweat) Excessive concern with environmental contaminants (e.g., asbestos or radioactive sub- Concerned will get ill as a result of being contaminated by something (e.g., germs, animals, cleaners) Other washing/cleaning obsessions (Describe) From R. A. Barkley & K. R. Murphy (1998), Attention-Deficit Hyperactivity Disorder: A clinical workbook (2nd ed.). New York: Guilford Press. Reprinted with permission. Programs That Work It's Only A False Alarm TM Copyright © Oxford 2007 Oxford University Press Copyright © 2005 University Press piacentiniTG14app.111_124 12/22/06 12:41 PM Page 115 Current Symptoms Self-Report Form Week of: Instructions: Please check the response next to each item that best describes your behavior during the past week. Aggressive Obsessions Never or Rarely Sometimes Often Very Often Fear might harm self (e.g., using knives or other sharp objects) 1 Fail to give close attention to details or make careless Fear might harm others (e.g., fear of pushing someone in front of a train, hurting somemistakes in my work one’s feelings, causing harm by giving wrong advice) 2 Fidget with handsFear or feet or squirm in will seat happen to self something bad 3 Have difficulty sustaining my attention in tasks or to others Fear something bad will happen fun activities 4 ing images) Leave my seat in situations in which seating is expected Fear of blurting out obscenities or insults (e.g., in public situations like church, school) 5 Don’t listen whenFear spoken willtoactdirectly on unwanted impulses (e.g., punch or stab a friend, drive a car into a tree) 6 Feel restless 7 Don’t follow through on instructions and fail to Fear will be responsible for terrible event (e.g., fire or burglary because didn’t check finish work 8 Have difficulty engaging in leisure activities or (Describe) doing Other aggressive obsessions fun things quietly 9 Have difficulty organizing tasks and activities Violent or horrific images (e.g., images of murders, dismembered bodies, other disgust- Fear will steal things against his or her will (e.g., accidentally “cheating” cashier or shoplifting something) locks) 10 Feel “on Hoarding/Saving the go” or “driven Obsessions by a motor” 11 abouttothrowing things because he or she might need them in Avoid, dislike, or Worries am reluctant engage in away work unimportant that the future, urges to pick up and collect useless things requires sustained mental effort 12 Health-Related Obsessions Talk excessively 13 Excessive concern with illness or disease (e.g., worries that he or she might have an illLose things necessary for tasks or activities 14 Blurt out answersabout beforevomiting) questions have been completed ness like cancer, heart disease, or AIDS despite reassurance from doctors; concerns 15 Excessive concern with body part or aspect of appearance (e.g., worries that his or her face, ears, nose, arms, legs, or other body part is disgusting or ugly) Am easily distracted 16 Have difficulty awaiting turn 17 Religious/Moral Obsessions Am forgetful in daily activities 18 Interrupt or intrude on thoughts, others mous saying blasphemous things, or being punished for these things) Other health-related obsessions (Describe) Overly concerned with offending God or other religious objects (e.g., having blaspheExcessive concern with right/wrong, moralityA clinical (e.g., worries always doing “the Press. From R. A. Barkley & K. R. Murphy (1998), Attention-Defi cit Hyperactivity Disorder: workbook about (2nd ed.). New York: Guilford Reprinted with permission. right thing,” worries about having told a lie or having cheated someone) Programs That Work It's Only A False Alarm TM Copyright 2007 Oxford University Press Copyright © 2005©Oxford University Press piacentiniTG14app.111_124 12/22/06 12:41 PM Page 116 Current Symptoms Self-Report Form Week of: Instructions: Please check the response next to each item that best describes your behavior during the past week. Children’s Yale-Brown OC Scale (CY-BOCS) Self-Report Symptom Checklist continued Other religious obsessions (Describe) Never or Rarely Sometimes Often Very Often 1 Fail to give close attention to details or make careless mistakes inMagical my work Obsessions 2 Has lucky/unlucky numbers, colors, words, or gives special meaning to certain numbers, Fidget with hands or feet or squirm in seat colors, or words (e.g., red is a bad color because once had a bad thought while wearing 3 4 Have difficulty sustaining my attention in tasks or red shirt) fun activities Sexual Obsessions Leave my seat in situations in which seating is Forbidden or upsetting sexual thoughts, images, or impulses (e.g., unwanted images of expected violent sexual behavior toward others, or unwanted sexual urges toward family members 5 Don’t listen when spoken to directly or friends) 6 Feel restless 7 Don’t follow through on instructions and fail to Other sexual obsessions (Describe) finish work 8 9 Obsessions about sexual orientation (e.g., that he or she may be gay or may become gay when there is no basis for these thoughts Have difficulty engaging in leisure activities or doing fun things quietly Miscellaneous Compulsions Have difficulty organizing tasks and activities Fear of doing something embarrassing (e.g., appearing foolish, burping, having “bath- 10 accident”) Feel “on the go” orroom “driven by a motor” 11 The need totoknow orin remember Avoid, dislike, or am reluctant engage work thatthings (e.g., insignificant things like license plate numbers, bumper stickers, T-shirt slogans) requires sustained mental effort 12 Talk excessively 13 Lose things necessary activities Fearforoftasks not or saying the right thing (e.g., fear of having said something wrong or not 14 Blurt out answers before questions have been Intrusive (nonviolent) images (e.g., random, unwanted images that come into his or her completed 15 Am easily distracted 16 or herturn mind that can’t stop; bothered by low sounds like clock ticking or people talking) Have difficulty awaiting 17 Uncomfortable sense of incompleteness or emptiness unless things done “just right” Am forgetful in daily activities 18 Interrupt or intrude on others Fear of saying certain things (e.g., because of superstitious fears, fear of saying “thirteen”) using “perfect” word) mind) Intrusive sounds, words, music, or numbers (e.g., hearing words, songs, or music in his Other obsessions (Describe) From R. A. Barkley & K. R. Murphy (1998), Attention-Deficit Hyperactivity Disorder: A clinical workbook (2nd ed.). New York: Guilford Press. Adapted from Goodman, W. K., Price, L. H., Rasmussen, S. A. et al. (). The Yale-Brown Obsessive–Compulsive Reprinted with permission. Scale. Arch Gen Psychiatry, , –. Programs That Work It's Only A False Alarm TM Copyright © Oxford 2007 Oxford University Press Copyright © 2005 University Press Code #_____ Date: ______ Self checklist for Obsessive-Compulsive Disorder (OCD) Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 1. Doing certain things even though I don't have to. 1 2 3 4 5 6 7 2. Getting “stuck” on certain words or thoughts. 1 2 3 4 5 6 7 3. Checking things over and over. 1 2 3 4 5 6 7 4. Hating dirt and dirty things. 1 2 3 4 5 6 7 5. Not touching something that someone else has used. 1 2 3 4 5 6 7 6. Needing to have things clean and neat. 1 2 3 4 5 6 7 7. Washing my hands a lot. 1 2 3 4 5 6 7 8. Putting books or things away in a certain order or until they are “just right.” 1 2 3 4 5 6 7 9. Getting angry if other kids mess up my desk or things. 1 2 3 4 5 6 7 10. Checking my homework to make sure it is just right. 1 2 3 4 5 6 7 11. Repeating things over and over again. 1 2 3 4 5 6 7 12. Counting things over and over again. 1 2 3 4 5 6 7 13. Having trouble finishing my schoolwork. 1 2 3 4 5 6 7 14. Using a favorite number to do things that number of times. 1 2 3 4 5 6 7 15. Worrying about doing “bad” things. 1 2 3 4 5 6 7 16. Worrying a lot about doing things “just right.” 1 2 3 4 5 6 7 Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 17. Having trouble making up my mind. 1 2 3 4 5 6 7 18. Repeating certain actions. Describe:________________ 1 2 3 4 5 6 7 19. Moving or talking in a special way to avoid bad things from happening. 1 2 3 4 5 6 7 20. Saying special numbers or words over and over. 1 2 3 4 5 6 7 21. Other: 1 2 3 4 5 6 7 22. Other: 1 2 3 4 5 6 7 23. Other: 1 2 3 4 5 6 7 24. Other: 1 2 3 4 5 6 7 * modified from the Leyton Obsessional Inventory (revised 1/17/01) Code # _____ Name: Date: ______ Parent checklist for Obsessive-Compulsive Disorder (OCD) Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 1. My child engages in senseless behaviors. 1 2 3 4 5 6 7 2. My child seems to get “stuck” on certain words. 1 2 3 4 5 6 7 3. My child checks things over and over. 1 2 3 4 5 6 7 4. My child hates dirt and dirty things. 1 2 3 4 5 6 7 5. My child will not touch something that someone else has handled. 1 2 3 4 5 6 7 6. My child needs to have things clean and neat. 1 2 3 4 5 6 7 7. My child frequently washes hands and/or makes trips to bathroom. 1 2 3 4 5 6 7 8. My child puts books and personal items away in a certain order or until they are “just right.” 1 2 3 4 5 6 7 9. My child gets angry if other people mess up his or her desk or things. 1 2 3 4 5 6 7 10. My child spends a lot of time checking homework to make sure it is just right. 1 2 3 4 5 6 7 11. My child repeats certain things over and over. 1 2 3 4 5 6 7 12. My child counts things over and over. 1 2 3 4 5 6 7 13. My child has trouble finishing schoolwork. 1 2 3 4 5 6 7 14. My child has a favorite number that he or she uses to do things that number of times. 1 2 3 4 5 6 7 Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 15. My child worries about doing “bad” things. 1 2 3 4 5 6 7 16. My child worries a lot about doing things “just right.” 1 2 3 4 5 6 7 17. My child has trouble making up his or her mind. 1 2 3 4 5 6 7 18. My child repeats certain behaviors. Describe:________________________ 1 2 3 4 5 6 7 19. My child seems to move or talk in a special way. 1 2 3 4 5 6 7 20. My child says special numbers or words over and over. 1 2 3 4 5 6 7 21. Other: 1 2 3 4 5 6 7 22. Other: 1 2 3 4 5 6 7 23. Other: 1 2 3 4 5 6 7 24. Other: 1 2 3 4 5 6 7 Please list medications taken this week: Name of medication Dosage How many times per day? * modified from the Leyton Obsessional Inventory (revised 1/17/01) Code # ______ Date: Name: Class taught: ______ Student's name: ________________ Teacher checklist for Obsessive-Compulsive Disorder (OCD) Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 1. This student seems to engage in senseless behaviors. 1 2 3 4 5 6 7 2. This student seems to get “stuck” on certain words or thoughts. 1 2 3 4 5 6 7 3. This student checks things over and over. 1 2 3 4 5 6 7 4. This student hates dirt and dirty things. 1 2 3 4 5 6 7 5. This student will not touch something that someone else has handled. 1 2 3 4 5 6 7 6. This student needs to have things clean and neat. 1 2 3 4 5 6 7 7. This student frequently washes hands and/or makes trips to bathroom. 1 2 3 4 5 6 7 8. This student puts books and personal items away in a certain order or until they are “just right.” 1 2 3 4 5 6 7 9. This student gets angry if other students mess up. his or her desk or things. 1 2 3 4 5 6 7 10. This student spends a lot of time checking homework to make sure it is just right. 1 2 3 4 5 6 7 Please circle the appropriate number for each question. Does not get in the way of life Gets in the way some time Gets in the way much of the time Gets in the way a lot of the time 11. This student repeats certain things over and over. 1 2 3 4 5 6 7 12. This student counts things over and over. 1 2 3 4 5 6 7 13. This student has trouble finishing schoolwork. 1 2 3 4 5 6 7 14. This student has a favorite number that he or she uses to do things that number of times. 1 2 3 4 5 6 7 15. This student worries about doing “bad” things. 1 2 3 4 5 6 7 16. This student worries a lot about doing things “just right.” 1 2 3 4 5 6 7 17. This student has trouble making up his or her mind. 1 2 3 4 5 6 7 18. This student repeats certain behaviors. Describe: ___________________ 1 2 3 4 5 6 7 19. This student seems to move or talk in a special way. 1 2 3 4 5 6 7 20. This student says special numbers or words over and over. 1 2 3 4 5 6 7 21. Other: 1 2 3 4 5 6 7 22. Other: 1 2 3 4 5 6 7 23. Other: 1 2 3 4 5 6 7 24. Other: 1 2 3 4 5 6 7 * modified from the Leyton Obsessional Inventory (revised 1/17/01) Children’s Florida Obsessive-Compulsive Inventory C-FOCI Name: Date: General Instructions: The questions below are designed to help your doctors evaluate anxiety symptoms. Please answer these questions as honestly as you can. Instructions: Please circle YES or NO for the following questions, based on your experience in the past MONTH: Have you been bothered by unpleasant thoughts or images that repeatedly enter your mind, such as: 1 Concerns with dirt, germs, chemicals or getting really sick? YES NO 2 Overconcern with keeping objects (clothes, toys, books) in perfect order or arranged exactly? YES NO 3 Frequent images of death or other horrible things? YES NO 4 Fire, someone robbing you or flooding of the house? YES NO 5 Accidentally hitting a pedestrian with your car or hurting someone? YES NO 6 Spreading an illness (giving someone AIDS)? YES NO 7 Losing something valuable? YES NO 8 Harm coming to a loved one because you weren't careful enough? YES NO YES NO YES NO 11 Counting, arranging; evening-up behaviors (making sure socks are at same height)? YES NO 12 Repeating routine actions (in/out of chair, going through doorway, opening/closing YES things) a certain number of times or until it feels just right? NO 13 Needing to touch objects or people? YES NO 14 Unnecessary rereading or rewriting? YES NO 15 Examining your body for signs of illness? YES NO 16 Avoiding colors (“red” means blood), numbers (“13” is unlucky) or names (those that start with “D” signify death) that are associated with scary events or thoughts? YES NO Have you worried a lot about terrible things happening, such as: Have you felt driven to perform certain acts over and over again, such as: 9 Excessive or ritualized washing, cleaning or grooming? 10 Checking light switches, water faucets, the stove, or door locks? 17 Needing to “confess” or repeatedly asking for reassurance that you said or did something correctly? YES NO PART B Instructions: The following questions refer to the repeated thoughts, images, urges or behaviors identified in Part A. Consider your experience during the past month when selecting an answer. Circle the most appropriate number from 0 to 4. In the past month... 1. On average, how much time is occupied by these thoughts or behaviors each day? 2. How much do these things bother you? 3. How hard is it for you to control them? 4. How much do they cause you to avoid doing things, going places or being with people? 5. How much do they interfere with school, your social or family life, or your job? For clinician use: Sum on Part B (Add Items 1 to 5): 0 1 2 3 4 None Mild (less than 1 hour) Moderate (1 to 3 hours) Severe (3 to 8 hours) Extreme (more than 8 hours) 0 1 2 3 4 None Mild Moderate Severe Extreme (disabling) 0 1 2 3 4 Complete control Much control Moderate control Little control No control 0 1 2 3 4 No avoidance Occasional avoidance Moderate avoidance Frequent and extensive avoidance Extreme avoidance (housebound) 0 1 2 3 4 None Slight interference Definitely interferes with functioning Much interference Extreme interference (disabling) Child OC Impact Scale - Revised (COIS - RC) Child Self-Report Name: _____________________________________ Age: _______ Date: _________________ Please rate how much your obsessive compulsive symptoms (unwanted thoughts and/or rituals) have caused problems for you in the following areas over the past month. If a specific question does not apply, mark “Not at all”. In the past month, how much trouble have you had doing the following things because of your OCD? Not at all Just a Little Pretty Much Very Much 1. Taking tests or exams 0 1 2 3 2. Being with a group of strangers 0 1 2 3 3. Being absent from school 0 1 2 3 4. Going shopping or trying on clothes 0 1 2 3 5. Making new friends 0 1 2 3 6. Going to a friend’s house during the day 0 1 2 3 7. Writing in class 0 1 2 3 8. Eating in public other than a restaurant, like on a picnic, in the park, or at a friend’s house 0 1 2 3 Eating meals at home 0 1 2 3 10. Getting to school on time in the morning 0 1 2 3 11. Going on a date 0 1 2 3 12. Visiting relatives 0 1 2 3 13. Going to the bathroom 0 1 2 3 14. Watching television or listening to music 0 1 2 3 15. Reading books or magazines for fun 0 1 2 3 16. Being with a group of people you know 0 1 2 3 17. Going on a family vacation 0 1 2 3 18. Having relatives visit 0 1 2 3 19. Having a friend come to your house during the day 0 1 2 3 9. Copyright © 2007, John Piacentini. Cite: Piacentini, Peris, Bergman, Chang, & Jaffer. (2007). Functional Impairment in Childhood OCD: Development and Psychometrics Properties of the Child Obsessive-Compulsive Impact Scale-Revised (COIS-R), J Clinical Child Adol Psychology, 36, 645-653. Name: ______________________________________ In the past month, how much trouble have you had COIS-RC (child self-report) Page 2 Not Just a Pretty Very at all Little Much Much 20. Concentrating on your work 0 1 2 3 21. Going to a restaurant or fast food place 0 1 2 3 22. Having a boyfriend/girlfriend 0 1 2 3 23. Going to the movies 0 1 2 3 24. Getting to classes on time during the day 0 1 2 3 25. Keeping friends you already have 0 1 2 3 26. Eating lunch with other kids 0 1 2 3 27. Having someone spend the night at your house 0 1 2 3 28. Being prepared for class, e.g., having your books, paper or pencils ready when needed 0 1 2 3 29. Talking on the phone 0 1 2 3 30. Bathroom or grooming (brushing your teeth or combing his/her hair) in the morning 0 1 2 3 31. Completing assignments in class 0 1 2 3 32. Doing homework 0 1 2 3 33. Getting good grades 0 1 2 3 doing the following things because of your OCD? Copyright © 2007, John Piacentini. Cite: Piacentini, Peris, Bergman, Chang, & Jaffer. (2007). Functional Impairment in Childhood OCD: Development and Psychometrics Properties of the Child Obsessive-Compulsive Impact Scale-Revised (COIS-R), J Clinical Child Adol Psychology, 36, 645-653. Child OC Impact Scale - Revised (COIS - RP) Parent Report about Child Name: _____________________________________ Age: _______ Date: _________________ Please rate how much your child’s obsessive compulsive symptoms (unwanted thoughts and/or rituals) have caused problems for him or her in the following areas over the past month. If a specific question does not apply, mark “Not at all”. In the past month, how much trouble has your child had doing the following things because of his or her OCD? Not at all Just a Little Pretty Much Very Much 1. Taking tests or exams 0 1 2 3 2. Being with a group of strangers 0 1 2 3 3. Leaving the house 0 1 2 3 4. Going shopping or trying on clothes 0 1 2 3 5. Making new friends 0 1 2 3 6. Going to a friend’s house during the day 0 1 2 3 7. Writing in class 0 1 2 3 8. Eating in public other than a restaurant, like on a picnic, in the park, or at a friend’s house 0 1 2 3 Doing fun things during recess or free time 0 1 2 3 10. Getting to school on time in the morning 0 1 2 3 11. Going on a date 0 1 2 3 12. Visiting relatives 0 1 2 3 13. Getting ready for bed at night 0 1 2 3 14. Getting along with his/her parents 0 1 2 3 15. Getting along with his/her brothers or sisters 0 1 2 3 16. Being with a group of people that he/she knows 0 1 2 3 17. Going on a family vacation 0 1 2 3 18. Having relatives visit 0 1 2 3 19. Doing chores that he/she is asked to do, like washing the dishes, taking the garbage out or cleaning his/her room 0 1 2 3 9. Copyright © 2007, John Piacentini. Cite: Piacentini, Peris, Bergman, Chang, & Jaffer. (2007). Functional Impairment in Childhood OCD: Development and Psychometrics Properties of the Child Obsessive-Compulsive Impact Scale-Revised (COIS-R), J Clinical Child Adol Psychology, 36, 645-653. Name: ______________________________________ In the past month, how much trouble has your child had COIS-RP (parent-report about child) Page 2 Not Just a Pretty Very at all Little Much Much 20. Concentrating on his/her work 0 1 2 3 21. Going to a restaurant or fast food place 0 1 2 3 22. Having a boyfriend/girlfriend 0 1 2 3 23. Going to temple or church 0 1 2 3 24. Going to school outings or field trips 0 1 2 3 25. Keeping friends he/she already has 0 1 2 3 26. Eating lunch with other kids 0 1 2 3 27. Having someone spend the night at his/her house 0 1 2 3 28. Being prepared for class, e.g., having his/her books, paper or pencils ready when needed 0 1 2 3 29. Spending the night at a friend’s house 0 1 2 3 30. Bathroom or grooming (brushing his/her teeth or combing his/her hair) in the morning 0 1 2 3 31. Completing assignments in class 0 1 2 3 32. Doing homework 0 1 2 3 33. Getting dressed in the morning 0 1 2 3 doing the following things because of his or her OCD? Copyright © 2007, John Piacentini. Cite: Piacentini, Peris, Bergman, Chang, & Jaffer. (2007). Functional Impairment in Childhood OCD: Development and Psychometrics Properties of the Child Obsessive-Compulsive Impact Scale-Revised (COIS-R), J Clinical Child Adol Psychology, 36, 645-653. FAMILY ACCOMMODATION SCALE FOR OBSESSIVE-COMPULSIVE DISORDER Self-Rated Version (FAS-SR) Developed by: Anthony Pinto, Ph.D., Barbara Van Noppen, Ph.D., & Lisa Calvocoressi, Ph.D. Copyright and Permissions The Family Accommodation Scale for Obsessive Compulsive Disorder - Self-Rated Version (FAS-SR) Copyright © 2012 by Anthony Pinto, Ph.D., Barbara Van Noppen, Ph.D., & Lisa Calvocoressi, Ph.D. The Family Accommodation Scale for Obsessive Compulsive Disorder - Self-Rated Version (FAS-SR) includes a modified version of the Yale Brown Obsessive Compulsive Scale (YBOCS) Checklist, copyright © 1986, 1989, with permission. Reference Pinto, A., Van Noppen, B., & Calvocoressi, L. (in press). Development and preliminary psychometric evaluation of a self-rated version of the Family Accommodation Scale for Obsessive-Compulsive Disorder. Journal of Obsessive-Compulsive and Related Disorders. Correspondence For permission to use or adapt this instrument for clinical or research purposes, please contact Lisa Calvocoressi, Ph.D., Yale University School of Public Health, Yale University School of Medicine: lisa.calvocoressi@yale.edu. FAMILY ACCOMMODATION SCALE FOR OCD Self-Rated Version (FAS-SR) Today’s Date: ____/____/____ Your Gender: (circle one) 1 = female 2 = male I am the patient’s __________. [What is your relation to the patient?] (circle one) 1 = parent 2 = spouse 3 = partner 4 = adult child 5 = sibling 6 = other INTRODUCTION FOR THE FAMILY MEMBER You have been asked to complete this questionnaire because you have a relative or significant other who has been diagnosed with obsessive-compulsive disorder (OCD) and who has identified you as the family member who is most involved with him/her and the OCD. Throughout this questionnaire, your relative/significant other with OCD is referred to as “your relative” and you are referred to as the “family member.” Part I of this questionnaire describes obsessions and compulsions and asks you to identify your relative’s current OCD symptoms to the best of your knowledge. Part II of this questionnaire asks you to identify possible ways in which you may be modifying your behavior or routines in response to your relative’s OCD. PART I: REPORT OF RELATIVE’S OCD SYMPTOMS OBSESSIONS Obsessions are distressing ideas, thoughts, images or impulses that repeatedly enter a person's mind and may seem to occur against his or her will. The thoughts may be repugnant or frightening, or may seem senseless to the person who is experiencing them. Below is a list of different types of obsessions common in OCD. Please place a check mark by each type of obsession that your relative experienced (to the best of your knowledge) during the past week. ____ HARMING OBSESSIONS Examples: fears of harming oneself or others, stealing things, blurting out obscenities or insults, acting on unwanted or embarrassing impulses; being responsible for something terrible happening (e.g., a fire or burglary); experiencing violent or horrific images. ____ CONTAMINATION OBSESSIONS Examples: excessive concerns about or disgust with bodily waste, secretions, blood, germs; excessive concerns about being contaminated by environmental toxins (e.g., asbestos, radiation, or toxic waste), household cleansers/solvents, or animals (e.g., insects); discomfort with sticky substances or residues; fears of contaminating others. ____ SEXUAL OBSESSIONS Examples: unwanted, repeated thoughts with forbidden or perverse sexual themes (e.g., sexual involvement with children). ____ HOARDING/SAVING OBSESSIONS Examples: worries about throwing out seemingly unimportant things, resulting in accumulation of possessions that fill up or clutter active living areas or the workplace. ____ RELIGIOUS OBSESSIONS Examples: intrusive blasphemous thoughts; excessive concerns about right and wrong/morality. 2 ____ OBSESSION WITH NEED FOR SYMMETRY OR EXACTNESS Examples: worries about whether items have been moved; worries that possessions are not properly aligned; worries about calculations or handwriting being perfect. ____ SOMATIC OBSESSIONS Examples: excessive concerns about having an illness like AIDS or cancer, despite reassurance to the contrary; excessive concerns about a part of the body or aspect of appearance. ____ MISCELLANEOUS OBSESSIONS Examples: an excessive need to know or remember unimportant details; a fear of losing things; a fear of saying certain words; a fear of not saying just the right thing; a discomfort with certain sounds or noises; or repeated thoughts of lucky or unlucky numbers. COMPULSIONS Compulsions (also called rituals) are defined as behaviors or mental acts that a person feels driven to perform, although s/he may recognize them as senseless or excessive. It may be difficult or anxiety provoking for a person to resist performing these behaviors. Below is a list of different types of compulsions common in OCD. Please place a check mark by each type of compulsion that your relative experienced (to the best of your knowledge) during the past week. ____ CLEANING/WASHING COMPULSIONS Examples: excessive or ritualized handwashing, showering, bathing, toothbrushing, grooming, or toilet routine; excessive cleaning of household items; efforts to prevent contact with contaminants. ____ CHECKING COMPULSIONS Examples: excessively checking locks, stove, appliances; checking to ensure that nothing terrible did or will happen, or that s/he did not make a mistake; checking tied to fears of illness. ____ REPEATING RITUALS Examples: rereading and/or rewriting things; repeating routine activities (e.g., going in/out of door, getting up/down from chair). ____ COUNTING COMPULSIONS Examples: counting floor tiles, books on a shelf, or words in a sentence. ____ ORDERING/ARRANGING COMPULSIONS Examples: excessive straightening of papers on a desk, adjusting furniture or picture frames. ____ HOARDING/SAVING/COLLECTING COMPULSIONS Examples: saving old newspapers, junk mail, wrappers, broken tools since they may be needed one day; picking up useless objects from the street or garbage cans. ____ MISCELLANEOUS COMPULSIONS Examples: seeking reassurance (e.g., by repeatedly asking the same question); excessive listmaking; taking measures to prevent harm to self or others, or to prevent terrible consequences; mental rituals other than checking or counting (e.g., reviewing, ritualized praying); need to touch or tap things; ritualized eating behaviors. 3 PART II: REPORT OF FAMILY MEMBER’S RESPONSES TO OCD INSTRUCTIONS: Keeping in mind your relative's OCD symptoms that you identified in Part I, the next set of items describe possible ways that you may have responded to those symptoms during the past week. For each item, please indicate the number of days during the past week that you responded to your relative in the way specified. For each item, fill in a circle in the NUMBER OF DAYS column. If an item refers to something you did not do at all in the last week, fill in the circle for “none/never happened.” NUMBER OF DAYS THIS PAST WEEK None/ Never 1 day 2-3 days 4-6 days Every day 1. I reassured my relative that there were no grounds for his/her OCD-related worries. Examples: reassuring my relative that s/he is not contaminated or that s/he is not terminally ill. 2. I reassured my relative that the rituals he/she already performed took care of the OCD-related concern. Examples: reassuring my relative that s/he did enough ritualized cleaning or checking. 3. I waited for my relative while s/he completed compulsive behaviors. 4. I directly participated in my relative’s compulsions. Examples: doing repeated washing or checking at my relative’s request. 5. I did things that made it possible for my relative to complete compulsions. Examples: driving back home so my relative can check if the doors are locked; creating extra space in the house for my relative’s saved items. 6. I provided my relative with OCD with items s/he needs to perform rituals or compulsions. Examples: shopping for excessive quantities of soap or cleaning products for my relative. 7. I did things that allowed my relative to avoid situations that might trigger obsessions or compulsions. Examples: touching public door knobs for my relative so s/he wouldn’t have to. 4 NUMBER OF DAYS THIS PAST WEEK None/ Never 1 day 2-3 Days 4-6 Days Every day 8. I helped my relative make simple decisions when s/he couldn’t do so because of OCD. Examples: deciding which clothes my relative should put on in the morning or what brand of cereal s/he should buy. 9. I helped my relative with personal tasks, such as washing, grooming, toileting, or dressing, when his/her ability to function was impaired by OCD. 13. I stopped myself from doing things that could have led my relative to have obsessions or compulsions. Examples: not moving items that my relative has carefully lined up. 14. I made excuses or lied for my relative when s/he missed work or a social activity because of his/her OCD. 15. I didn’t do anything to stop unusual OCD-related behaviors by my relative. Examples: tolerating my relative’s repetitive actions such as going in and out of a doorway or touching/tapping objects a certain number of times. 16. I put up with unusual conditions in my home because of my relative’s OCD. Examples: leaving the home cluttered with papers that my relative won’t throw away. 17. I cut back on leisure activities because of my relative’s OCD. Examples:spending less time socializing, doing hobbies, exercising. 18. I changed my work or school schedule because of my relative’s OCD. 19. I put off some of my family responsibilities because of my relative’s OCD. Examples: I spent less time than I would have liked with other relatives; I neglected my household chores. 10. I helped my relative prepare food when s/he couldn’t do so because of OCD. 11. I took on family or household responsibilities that my relative couldn’t adequately perform due to OCD. Examples: doing bills, shopping, and/or taking care of children for my relative (when, except for OCD, I wouldn’t have done so). 12. I avoided talking about things that might trigger my relative’s obsessions or compulsions. TOTAL SCORE (sum of responses to items 1-19) 5 KATHERINE YOST, PhD, LMFT Washington State Licensed Marriage and Family Therapist #LF 60034433 345 – 118th Ave SE Suite 110 Bellevue, WA 98005 425.405.0494\ OBSESSIVE COMPULSIVE DISORDER Self Help Reading List For Children Huebner, D. (2007). What to do when your brain gets stuck: A kid’s guide to overcoming OCD Washington, DC: Magination Press, APA March, J.S. & Benton, C. M. (2007). Talking back to OCD: The program that helps kids and teens say “no way” –and parents say “way to go.” NY: Guilford Niner, H.L. (2004). Mr. Worry: A story about OCD. Morton Grove, IL: Albert Whitman & Co. Wagner, A.P. (2002). What to do when your child has obsessive-compulsive disorder: Strategies and solutions. AL: Lighthouse Press. For Parents of Children with OCD Chansky, T.E. (2006). Freeing your child from Obsessive-Compulsive Disorder. NY: Three Rivers Press. Wagner, A.P. & Jutton, P. (2004) Up and down the worry hill: A children’s book about obsessive compulsive disorder and its treatment. AL: Lighthouse Press. For Families Landsman, K.J., Rupertus, K.M., & Pedrick, C. (2005). Loving someone with OCD: Help for you and your family. Oakland, CA: New Harbinger. VanNoppen, B., Pato, M., & Rasmussen, S. (2003). Learning to live with OCD: Help for families. New Haven, CT: OCFoundation. Personal Accounts Bell, J. (2007). Rewind, replay, repeat: A memoir of obsessive-compulsive disorder. MN: Hazelton. Bell, J. (2009). When in doubt, make belief: An OCD inspired approach to living. NY: New World Library. Colas, E. (1998). Just checking: Scenes from the life of an obsessive-compulsive. NY: Simon & Schuster. Personal Self Help (* Recommended) Abramowitz, J.S. (2009). Getting over OCD: A 10-step workbook for taking back your life. NY: Guilford. Antony, M.M. & Swinson, R.P. (2009). When perfect isn’t good enough: Strategies for coping with perfectionism. Oakland, CA: New Harbinger. Baer, L. (2000). The Imp of the mind. NY: Little, Brown, & Co. Frost, R. & Steketee, G. (2010). Stuff: Compulsive hoarding and meaning of things. Boston: Houghton Mifflin Harcourt. *Grayson, J. (2003). Freedom from obsessive compulsive disorder: A personalized recovery program for living with uncertainty. NY: Penguin. Hyman, B.M. & Dufrene, T. (2008). Coping with OCD: Practical strategies for living well with OCD. Oakland, CA: New Harbinger. Penzel, F. (2000). Obsessive-Compulsive Disorders: A complete guide to getting well and staying well. NY: Oxford University Press. *Schwartz, J.M. and Beyette, B. (1996). Brainlock: Free yourself from obsessive-compulsive behavior. NY: Harper Collins. KATHERINE YOST, PhD, LMFT Washington State Licensed Marriage and Family Therapist #LF 60034433 345 – 118th Ave SE Suite 110 Bellevue, WA 98005 425.405.0494\ OBSESSIVE COMPULSIVE DISORDER Suggested Reading List for Professionals Abramowitz, J. S. (2006). Obsessive-compulsive disorder: Evidence based practice. Cambridge, MA: Hogrefe & Huber Publishers. Freeman, J. B. (2009). Family-based treatment for young children with OCD. NY: Oxford University Press. March, J. and Mulle, K. (1998). OCD in children and adolescents: A cognitive behavioral treatment manual. NY: Guilford Press. Piacentini, J., Langley, A., &Roblek, T. (2007). Cognitive behavioral treatment of childhood OCD: It’s only a false alarm –therapist guide. NY: Oxford University Press. Storch, E.A., Murphy, T.K.m & Geffken, G.R. (eds) (2007). Handbook of child and adolescent Obsessive-Compulsive Disorder. NY: Lawrence Erlbaum. Wagner, A.P. (2007). Treatment of OCD in children and adolescents: A professional’s kit (2nd ed.) Rochester, NY: Lighthouse Press Wilhelm, S. & Steketee, G.S. (2006). Cognitive therapy for obsessive-compulsive disorder: A guide for professionals. Oakland, CA: New Harbinger. iPhone/iPad Apps available from iTunes App Store (examples) Breathe2Relax Relax and Rest Guided Meditation YBOCS OCD Test iCounselor OCD FOR FUTHER INFORMATION CONTACT International OCD Foundation PO Box 961029 Boston, MA 02196 www.ocfoundation.org References for 2013 AAMFT workshop: Empowering Families with Pediatric OCD **Especially of interest Adelman, C.B. & Lebowitz, E.R. (2012). Poor insight in pediatric obsessive compulsive disorder: developmental considerations, treatment implications, and potential strategies for improving insight. Journal of Obsessive-Compulsive and Related Disorders, 119-124. **Bamber, D., Tamplin, S., Park, R.J., Kyte, Z.A.,& Goodyer, J.M. (2002). Development of a short Leyton Obsessional Inventory for children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 41 (10), 1236-1252. Berman, N.C., Wheaton, M.G., & Abramowitz, J.S. (2013). Childhood trauma and thought action fusion: A multi-method examination. Journal of Obsessive-Compulsive and Related Disorders, 2 (1), 43-47. Bipeta, R., Yerramilli, S.S., Pingali, S. Karredla, A.R., Ali, M.O. (2013). A cross-sectional study of insight and family accommodation in pediatric obsessive-compulsive disorder. Child and Adolescent Psychiatry and Mental Health, 7:20 Canal Sans, J., Hernandez-Martinez, C., Munoz, S.C., Garcia, L.L., & Trallero, J.T. (2011). The Leyton Obsessional Inventory-Child Version: Validity and reliability in Spanish non-clinical population. International Journal of Clinical and Health Psychology, 12 (1), 81-96. Geffken, G., Sajid, M., &Macnaughton, K. (2005). The course of childhood OCD, its antecedents, onset, comorbidities, remission, and reemergence: A 12 year case report. Clinical Case Studies, 4 (380). Gillihan, S.J., Williams, M.T., Malcoun, E., Yadin, E., & Foa, E.B. (2012). Common pitfalls in exposure and response prevention (EX/RP) for OCD. Journal of Obsessive-Compulsive and Related Disorders, 1, 251-257. Keeley, M.L., Storch, E.A., Dhungana, P., &Geffken, G.R. (2007). Pediatric obsessive-compulsive disorder: A guide to assessment and treatment. Issues in Mental Health Nursing, 28, 555-574. Koburi, O., Salkovskis, P.M., Read, J., Lounes, N. & Wong, V. (2012). A qualitative study of the investigation of reassurance seeking in obsessive-compulsive disorder. Journal of ObsessiveCompulsive and Related Disorders, 1, 25-32. Merlo, L.J., Lehmkuhl, H.D., Geffken, G.R., & Storch, E.A. (2009). Decreased Family Accommodation associated with improved therapy outcome in Pediatric obsessive compulsive disorder. Journal of Consulting and Clinical Psychology, 77 (2), 355-360. Piacentini,J. & Bergman, R.L. et al. (2011). Controlled comparison of family cognitive behavioral therapy and psychoeducation/relaxation training for child OCD. Journal of the American Academy for Child and Adolescent Psychiatry, 50 (11), 1149-1161. **Pinto, A., Van Noppen, B., & Calvocoressi, L. (in press). Development and preliminary psychometric evaluation of a self-rated version of the Family Accommodation Scale for Obsessive-Compulsive Disorder. Journal of Obsessive-Compulsive and Related Disorders. Renshaw, K.D., Steketee, G., & Chambless, D.L. (2005). Involving family members in the treatment of OCD. Cognitive Behaviour Therapy, 34 (3), 164-175. Steketee, G. &Van Noppen, B. (2003). Family approaches to treatment for obsessive compulsive disorder. Brazilian Journal of Psychiatry, 25 (1), 43-50. **Storch,E.A. & Geffken, G.R. et al. (2007) Family Accommodation in pediatric obsessive-compulsive disorder. Journal of Clinical Child and Adolescent Psychology, 36 (2), 207-216. **Storch, E.A., Khanna, M., Merlo, L.J., Loew, B.A., Franklin, M., Reid, J.M., Goodman, W.K., & Murphy, T.K. (2009). Children’s Florida Obsessive Compulsive Inventory: Psychometric Properties and Feasibility of a Self-Report Measure of Obsessive-Compulsive Symptoms in Youth. Child Psychiatry Human Development, 40, 467-483. Storch, E.A., Lehmkuhl, H, Pence, S.L., Geffken, G.R., Ricketts, E., Storch, J.F., Murphy, T.K. (2009). Parental experiences of having a child with obsessive-compulsive disorder: Associations with clinical characteristics and caregiver adjustment. Journal of Child and Family Studies, 18, 249258. **Szymanski, J. & Bourne, C. (Winter 2013). OCD and related disorders in the new DSM 5 and what it means for you. OCD Newsletter, International OCD Foundation, Inc. 27 (1), 1&6-9. Taylor, S. (2012). Endophenotypes of obsessive-compulsive disorder: Current status and future directions. Journal of Obsessive-Compulsive and Related Disorders, 1, 258-262.