September 2012
Transcription
September 2012
ISSUE 7 www.thisability.co.za MISS DEAF SA SEPTEMBER 2012 Crowned in Durban Eye Care Awareness Month Observing Muscular Dystrophy Month 11th World Down Syndrome Congress: Cape Town, South Africa REPORT Talking Hands: See Page 3 Sencity Joburg Festival Seeing, Hearing, Feeling, Tasting & Smelling music! Deaf Theatre Festival Celebrity Profiles win Blackberry prizes Jumping Kids Up and Close with Natalie du Toit Initiatives See INSIDE for more EXCITING Articles and Advice Columns! every month in our sms competitions Editor’s FREE to LSEN schools, Distributed Note SimonSays... associations, clinics countrywide Contact us to join our database and we will advertise your events and report on your stories FREE of charge. HG>H?MAK>> Kate Power Fundraising Officer Zane Gani from Kinsey Alloy Welding Services collected the winning voucher on behalf of Mr Kinsey 1.+) LFL;;mh-.0,/ sms cost R1.50 September was Deaf Awareness Month and a lot of activities took place across the country. The highlight activity in Durban was the hosting of the first ever Deaf Theater Festival which had a mix of stage drama, a deaf film festival, deaf SA’s Got Talent and lots more. The event highlights are mentioned in this issue. Amashova Gives Hope Hi Hopes is one of the selected charities for this year’s Amashova Durban Classic. This is the first time the charity has been selected as a headline charity for such an event for which they are extremely excited about. They have an early intervention program for deaf and hard of hearing infants and children, allowing them to grow and develop in a world they cannot hear. Of the babies born per day in South Africa, 17 are born deaf and 94% into families that are able hearing. This often creates a lot of uncertainty as what should be done with the child. This is where Hi Hopes steps in. Helen Zille, the Premier of Western Cape province, has agreed to be the Ambassador for Hi Hopes in the Amashova and will lead the team. Her love of cycling is well documented by completing the Pick n Pay Argus 2012 and riding from Plettenberg Bay to Khayelitsha in the Western Cape. Hi Hopes hopes to attract as many people as possible to ride for Team Hi Hopes with Helen in the Amashova. A charity dinner was held with Helen Zille on 6 October 2012 at Durban Country Club to raise funds and awareness. People wishing to ride, sponsor or donate to Hi Hopes, can contact Mandy Hughes on 0834471841 or email: mandy.hughes@pamgolding.co.za Kuhle Life PTY LTD is our fundraising partner and they have started doing an amazing job in raising the profile of the newspaper’s vision as well as raising the much needed funds to carry on the vision. They have a number of projects lined monthly and these will be highlighted in the newspaper all the time. One of their raffle for fundraising was drawn recently and the winner is pictured above. THISABILITY Newspaper is making inroads across the country and queries have been coming in regarding where the newspaper is distributed. Please visit our website for a comprehensive distribution list across South Africa. For any queries please call our office on 087 809 0844 or email simon@thisability.co.za Happy Reading! COMPETITIONS CLOSE 15 NOVEMBER - DRAW DATE 18 NOVEMBER - WINNERS NOTIFIED VIA SMS AND PUBLISHED IN NEXT ISSUE SA Federation for Mental Health Follow us on: News Team Editor Simon Manda: simon@thisability.co.za Cell: 072 178 6426 Layout & Design design@flyingant.co.za Advertising ant@flyingant.co.za Administrator Anthony Cuerden ant@flyingant.co.za Website Administrator Ashveer Munilal webs@flyingant.co.za Postal Address PO BOX 47704, Greyville, 4023, Tel: 087 8090 844 Board of Trustees Mrs Felicity Hartley, Prof. Paulus Zulu Mr. Guy Vezi, Dr Shakila Maharaj Sifiso Sibiya, Bongani Shezi THISABILITY NEWSPAPER is an entity registered with the Department of Social Development as an Non-Profit Organisation. NPO NO. 097-227 PBO NO. 9300 389 85 FOR ADVERTISING CONTACT: Anthony Cuerden Tel: 087 8090 844 or email: ant@flyingant.co.za National Office Contacts: Office hours: 07:30 - 16:00 (Monday to Thursday) 07:30 - 13:00 (Friday) Postal Address: Private Bag X 3053 Randburg 2125 Physical Address: 267 Long Avenue Ferndale Randburg 2194 Queries Telephone: +27 (11) 781 1852 Facsimile: +27 (11) 326 0625 General enquiries: safmh@sn.apc.org Fundraising: annatjie@safmh.org National Executive Director: bharti@safmh.org Finance and Administration: annatjie@safmh.org Programme Manager: leon@safmh.org Programme Manager: ivy@safmh.org World Sight Day 11 OCTOBER 2012 An annual day of awareness to focus global attention on blindness, visual impairment and rehabilitation of the visually impaired held is on the second Thursday in October. World Sight Day is observed around the world by all partners involved in preventing visual impairment or restoring sight. It is also the main advocacy event for the prevention of blindness and for “Vision 2020: The Right to Sight”, a global effort to prevent blindness created by WHO and the International Agency for the Prevention of Blindness. The global estimate of the number of people visually impaired is as follows: Population (A) Blind (millions) (millions) (B) Low Vision (milions) (A+B) Visually Impaired (millions) 6,737.50 246.024 285.389 39.365 The magnitude of visual impairment and blindness and their causes have been globally estimated by World Health Organisation (WHO) from recent data. For countries without data, estimates were based on a newly developed model. Globally, the number of people of all ages who are visually impaired is estimated to be 285 million – of whom 39 million are blind. People who are over 50 years constitute 82% of all blind people in the world. The major causes of visual impairment are uncorrected refractive errors (43%) and cataract (33%); the first cause of blindness is cataract (51%). Visual impairment in 2010 is a major global health issue: the preventable causes are as high as 80% of the total global burden. Ref: Pascolini D, Mariotti SPM. Global estimates of visual impairment: 2010. British Journal Ophthalmology Online First published December 1, 2011 as 10.1136/ bjophthalmol-2011-300539. The. Sponge Project Do you need rehabilitation or other disability services? To find out what is available in your area, sms your name, town, disability and the info you need to 072-172 2623 (you can use your free sms’s) We will reply by SMS and help you contact local organisations who may be able to help you. Please share this notice. You are welcome to add a translation in any local language. Contact Us E-mail:- mailto:the.sponge.project@gmail.com Please feel free to send us your comments and suggestions PAGE 3 THISABILITY ISSUE: 7 SEPTEMBER 2012 Biz Trailblazer of the Year Tabisa Nomnganga of Bravo Promotions was awarded the 2012 Emerging Business Entrepreneur of the Year® title in the annual Sanlam / Business Partners Entrepreneur of the Year ® Competition. in the design and implementation of branded entertainment communication strategies and campaigns. Targeted campaigns focus on exposing their clients’ brands to potential customers through dance and theatre performances, thereby ensuring that not only are the brand and products are acknowledged, but that they are remembered. The company’s unique approach to marketing provides a platform for brands to interact and connect with their target audience in a manner which traditional media is unable to provide. “The key principle of the business is brand engagement and this is achieved by building exciting,relevant and meaningful dialogues between a brand and its customers,” says Tabisa. Tabisa Nomnganga with her Sanlam Award Tabisa claimed the title over three other worthy finalists in the 2012 Emerging Business Entrepreneur of the Year® category, which celebrates entrepreneurs who have been in business for less than three years. Established in November 2009, Bravo Promotions is a vibrant and energetic marketing and communications agency that sets itself apart by specialising Bravo Promotions now employs 20 young people and gives life to consumer brands using dance, theatre and performance. “Companies and even friends were skeptical about my chances of succeeding. They looked at my disability rather than my ability. I do not let my disability define who I am. When I dream of something, I implement it, despite the hardships,” she said. For more information on Bravo Promotions, please visit their website www.bravopromotions.co.za Tabisa with her work team during one of their brand activations About Tabisa Born on 14 June 1979 in Langa, a township in Cape Town. After matriculating in 1998 from the Deutsche Internationale Schule Kapstadt, she obtained a Bcom degree in Industrial Psychology from the University of South Africa in 2004 and completed Bcom Honours in Business Management from the University of South Africa (UNISA) in 2006. In 2001, she was involved in tragic accident which left her paralyzed. In May 2012 at the Seda Stars Business Plan Awards she won two awards; The Most Promising Female Entrepreneur and a runner up in the Entrepreneur with a disability Category. UNISA Disability Awareness Day UNISA Durban Campus recently held their Annual Disability Awareness day that was organized by the Directorate for Counseling and Career Development in collaboration with the regional student disability committee. Various speakers from organisations like the KZN Deaf and Blind Society, Saint Giles, Department of Women, Children and People with Disabilities, UNISA’s own Association for Student with Disabilities and QuadPara Association of KwaZulu-Natal(QAK) took turns to address the students on the various missions, assistance and interventions they offer. The objectives of the programme included; Creating awareness about disability as a human rights issue, · · · · Creating awareness for staff and students about disabilities (the roles of staff/ responsibilities of students) Motivating school learners with disabilities about education beyond matric and how to succeed at UNISA Creating awareness about support resources and programmes around Durban Durban UNISA’s Disability Help Desk Contact Nolwazi Somtsewu Tel: 031-3351739 Eye Care Awareness Month Eye Care Awareness Month is commemorated from 20 September to 17 October to raise awareness about the importance of eye health, specifically around the prevention and treatment of avoidable blindness. What is blindness? Blindness or partial blindness is when an individual is unable to see or has limited vision. Blindness affects millions of people in the world today and many of them live active and fulfilling lives. However, living with blindness can be extremely challenging and it therefore makes sense to do everything possible to protect your eyes and your eyesight. The South African National Council for the Blind says that as much as 80% of blindness is avoidable. Some eye conditions such as pinkeye are generally not serious, but others like glaucoma may go on to cause complete blindness if left untreated. The good news is that most eye conditions can be successfully treated, particularly if they are detected early. This is why it is important to be aware of how to take care of your eyes and to visit an optometrist or doctor regularly from a young age. There are many different types of eye conditions. The following are some of the more common eye problems to look out for, as well as their symptoms: Pinkeye is a fairly common condition that causes inflammation and redness of the membranes of the whites of the eye and the inner part of the eyelid. Pinkeye, or conjunctivitis as it is also sometimes known, may be caused by a bacteria or virus and can sometimes be linked to allergies or toxins. Some forms of the condition are highly contagious and are easily passed on from person to person. If you have pinkeye you should avoid touching your eyes with your hands and wash your hands regularly. Pinkeye is not a serious condition and lasts from between three and ten days. Bacterial pinkeye can be treated with antibiotics. Glaucoma is an eye condition arising from pressure in the eye that can damage the optic nerve. The condition can cause vision loss and eventually blindness, particularly if it is not treated. Glaucoma can be prevented from getting worse if it is treated early. It can be treated with the use of eye drops and in certain cases with laser and surgical procedures. A cataract is a clouding of the lens of the eye, which results in blurred or dull vision. It can be caused by a number of factors including aging, trauma to the eye and diabetes. Exposure to the UV rays of the sun can also contribute to cataract development. The condition tends to cause a slow deterioration in sight. Individuals with cataracts may improve their vision with the assistance of specially prescribed glasses. Surgery may eventually become necessary. This involves replacing the eye lens with an artificial lens. According to the World Health Organization (WHO), nearly 40% of blindness is attributable to cataracts globally. “ Look after your eyes Vision is a great gift and most of us find it challenging to live our daily lives without it. Taking care of our eyes is an important part of looking after yourself, so it is wise to pay it the attention it deserves. “ Corneal ulcers are usually caused by infections, which can be bacterial, fungal or viral. Red eyes, swollen eyelids, blurry vision, pain, a white or grey spot on the eye and feeling like there is something in the eye may all be signs of a corneal ulcer. This is a very uncomfortable condition and it may be quite serious. Anyone who has a corneal ulcer should see an ophthalmologist immediately. Treatment may include antibiotics and eye drops, and in certain instances surgery may be required. The importance of regular check-ups The above are just a few of the possible eye conditions that individuals sometimes develop. This is why it is important to have your eyes regularly checked by an optometrist and to visit your doctor if you have any problems with your eyes. This way any eye conditions or illnesses can be detected and dealt with early on. Your medical practitioner may refer you to an ophthalmologist if you need specialist treatment. Maintaining good eye health There are a number of steps you yourself can take to protect you and your family’s eyes, which may help you to avoid eye infections or other conditions. Protect your eyes from foreign objects such as dust or other particles. Scratches caused to the eye by foreign objects can lead to infection or damage the eye. It is therefore important that that you wear protective eyewear if you are working with tools or equipment that may cause chips or shards to fly into the eyes. Be sure to wear proper sunglasses. Inadequately made sunglasses will not protect your eyes from the rays of the sun, which can damage your eyes. You should therefore be sure to wear sunglasses that will provide proper protection for your eyes. Take a ten minute break every hour when using a computer. This will minimise eye strain and the development of eyefocusing problems. Have your children’s vision tested to ensure they are able to see clearly. A child that is not able to see properly may start having problems learning at school because they may not be able to see the teacher and blackboard. PAGE 4 THISABILITY ISSUE: 7 SEPTEMBER 2012 Butterfly Beret Accolades recognise youthful trailblazers Nashlen Govindasamy (16) – Star College learner who is the current Durban chess champion. He won the Durban Chess Club Premiership twice in 2010 and 2012, and hopes to someday become a Grandmaster. The citizen-based Green Heart Movement was initiated in association with Cycles 4 Social Justice (C4SJ) and Ecology & Cycling and encourages arts and poetry experiences around themes of ecology, sustainable living, fashion and cycling. Nikita Kekana (left), Cllr Logie Naidoo (Speaker, eThekwini Municipality), Mbali Nkosi (Miss Deaf Africa 2010), Cllr Nomvuzo Shabalala (eThekwini Deputy Mayor), Mbuso Cele, Holly Wasserfall and Nashlen Govindasamy. Photo courtesy Gabriella-Sofia Peppas Green Heart City hosted the inaugural Butterfly Beret Accolades in conjunction with eThekwini Municipality, the South African National Society (SANS) and Alliance Française de Durban. S’dumo Bike and wheel it around on the streets of Durban during the Red Eye 2010 arts festival. She is currently working as well as studying towards an Institute of Marketing Management (IMM) degree. The event took place at the Sustainable Living Exhibition at Durban Exhibition Centre on Spring Day. Nikita Kekana (18) – Durban Girls College matric learner The Accolades recognise five youths (16-20yrs) who have contributed towards advancing the arts, heritage and ecology in the City of Durban and surrounds.Speaker of eThekwini Municipality, Cllr Logie Naidoo presented berets to the following youth: Gilly Mchunu (19) – former ARROWSA - Art, Culture and Heritage for Peace participant who represented ARROWSA and Durban at the 2010 ARROW global youth congress in the UK. She helped decorate the ARROWSA-Bechet Ubuntu The Way Liezel van Rensburg to Rio The 2012 London Games caused a major shift in global attitudes towards disability. It is being heralded as “an historic odyssey of human achievement that has lifted the cloud of limitation”. Team SA returned to, what can only be described as, a proudly South African welcome. Hundreds of fans gathered at O.R. Tambo International on the morning of September 11th in celebration of our superb Paralympic performance - 29 medals and a top 20 world ranking! With London done and dusted, sights are now set on the 2016 Games in Rio. This is where a local non-profit initiative, the Jumping Kids Prosthetic Fund, aims to play a role. “Jumping Kids” was launched in 2009 to address the needs of young South Africans with amputations who do not have access to adequate prosthetics. Its vision is to allow kids to be kids - to play, run, climb and jump just like any of their able-body peers despite their disability. Emile Burger was the inspiration behind it all. Born with a right leg slightly shorter than the left as well as no right foot, Emile’s leg was amputated below the knee at birth. He was fitted with his first prosthetic when only eight months old but as Emile became more active; his visits to Icexpress Progressive Prosthetics became more frequent. Emile’s walking prosthetic just could not keep up with his tree-climbing, ball-kicking activities. This gave prosthetist, Johan Snyders and idea. Why not fit Emile with a Cheetah running blade; the same device used by blade-runners across the world? Once Emile was fitted, the scope of opportunity to assist young amputees became clear and Jumping Kids was born. who is a member of the South African junior surfing team. She represented SA at the International Surfing Association World Junior Games in Peru 2011. She came fourth in the U20 division at the Billabong SA Champs 2012 in Cape Town. Mbuso Cele (16) – Blind cyclist who is a member of the KZN Blind Tandem Cycling Association. Holly Wasserfall (16) – Eden College learner who is a music star. Her debut album, “Twenty Four Seven,” a blend of Afro jazz and pop, released in 2010. Adequate prosthetic technology is not accessible to the majority of persons with amputations. Conventional, outdated devices are not designed to exercise the muscles of the stump thus limiting mobility instead of the other way around. The fact is that the technology and expertise required to rectify this already exist. Icexpress, in collaboration with its international partners, developed a quick new way of prosthetic manufacturing that does not compromise on quality. A below knee prosthetic is made in four steps using eight components! This revolutionary method does not require complicated machinery and amputees can be fitted in the most rural of circumstances. The technology, combined with a holistic approach to rehabilitation, presents a new lease on life. To date, Jumping Kids has supplied more than 30 children with latest technology prosthetic legs thanks to the efforts of various individuals, donors and corporate sponsors. Upon selection, each ‘Jumping Kid’ becomes part of a three-year project. During this time regular assessment takes place. Because kids grow, their sponsored prostheses require regular adjustment and, at the same time, rehabilitation programmes are tweaked to ensure optimal personal development. Green Hearts was co-founded by Mikhail Peppas, GabriellaSofia Peppas and Sanabelle Ebrahim in June 2011. “Our aim is to position Durban as Green Heart City, just as New York is known as The Big Apple and Paris as The City of Love,” says Mikhail Peppas. Green felt cupcakes were introduced as Durban’s equivalent of red velvet cupcakes (New York) at the Green Heart City / Ecology & Cycling stand at the 2012 Sustainable Living Expo. Restaurants are encouraged to start serving green heart beverage biscuits as a conversation point in the buildup to the launch of Durban as Green Heart City in 2014. Green Heart activations include the interactive performance piece at the ‘Talking Hands’ Deaf Theatre Festival recently held at the Catalina in September 2012, and the Boulevard Beret Accolades presentation on the Mayor’s open-air balcony at City Hall Durban at year-end. Story by: SANABELLE EBRAHIM Sanabelle Ebrahim is a Masters candidate at the Centre for Communication, Media & Society (CCMS), UKZN and co-founder of the Green Heart Movement. Visit www.facebook.com/GreenHeartCity. In 2011, Tiaan competed (for the first time) at the Nedbank National Championships for the Physically Disabled in Rustenburg. Not only did he win gold in the under-16 Javelin item, he broke the SA record in Shot Put with a throw of 7.33m! As a result ‘the new confident’ Tiaan continues to excel at his sport and is working towards his dream of one day representing South Africa at the Paralympic Games. Recognising the opportunity for development and growth on all levels of society, the Jumping Kids team continues to work towards raising funds and boosting awareness in order to assist more children. The motto says it in a nutshell – “Jumping Kids Is Ability” and those involved cannot help but be inspired. Just like the 2012 Games, it lifts the cloud of limitation and makes the impossible...possible! In a sense, it is not that different from replacing shoes and clothes that have been outgrown except, of course, for the vast difference in the price-tag. From the very start, beneficiaries are encouraged to participate in sport and, I am happy to report that the number of kids that are excelling on provincial and national level is on the increase. Various elite athletes, (such as Paralympic medallists Arnu Fourie, Samkelo Radebe and Ernst van Dyk), act as ambassadors and mentors to the Jumping Kids Fund. It is amazing to see how sport, being part of a team, and the opportunity to compete alongside senior sportsmen and women with physical disabilities transform the children we assist. When I first met 15 year old Tiaan Huyzers he was shy, unsure of himself, and happy to remain in the background. After being fitted with his prosthetic, he was encouraged to try-out for discus and shot put. Junior Mavuso and Samkelo Radebe PAGE 5 THISABILITY ISSUE: 7 SEPTEMBER 2012 Sencity Joburg Festival Seeing, Hearing, Feeling, Tasting & Smelling music! From left to right: DJ Lancelot, DJ Tappy, DJ Matty MCs Simphiwe and Sabeha in action Sencity is an out of this world sensory experience organised by a team of Deaf, hard of hearing and hearing people. The event brings these people together on one common platform that allows them to all experience the passion and emotions of music. The combination of music, video jockeys, sign dancers, aroma jockeys, light artists, taste jockeys and a vibrating dance floor allow Deaf, hearing and hard of hearing people to appreciate music in unique, innovative ways by allowing them to see, hear, feel, taste and smell music. Performing at this year’s Sencity Joburg event were Tidal Waves, South Africa’s hardest working reggae band who have performed at festivals across the country like Oppi Koppi; conscious hip hop artist CAPSO, who recently Police Minister on Disability Minister Nathi Mthethwa Employment Minister Nathi Mthethwa calls for improvements on employment of people with disabilities at police stations. The Minister of Police, Nathi Mthethwa says improvements around statement-taking at police stations, including utilisation of sign language interpreters are vital in securing harsher convictions of criminals. “Almost on a daily basis police arrest suspects but we now need to move towards securing harsher convictions. Part of this goal includes prioritising the employment of people with disabilities including sign language interpreters. We need to have police stations which employ sign language interpreters to assist hearing impaired citizens not only as part of addressing the disability impurities, but to ensure that all members of society are catered for,” he stated. Caregiver’s Corner Gift of Life Cerebral Palsy. If you had to hear those two words for the first time, you would be confused, rattled and shocked. But how do you deal with that when you don’t have much information, let alone the support you need? How do you give a voice to the voiceless, let alone adjust to these circumstance as you face rejection, judgement? How do you adjust when all you’ve got is the meagre resources that merely keep you going for two weeks at a time? How much use is it if organisations are formed just to be the face of pity and shame, while the real potential of a God-given gift is hidden behind doors? Even so, CP is a gift that not many families get to have. I’ve seen people ashamed of their disabled siblings, but performed at the Sunday Times Top Brands 2012; the energetic Cape Town-based multi-genre band iScream & the Chocolate Stix; Battle Cock, ‘a new, exciting collaboration project between Kwani Experience’s leader P.O. Box and Black Pimp’n Jesus’; and Skin2Soul which is a hybrid of afro-soul, reggae, jazz, R ‘n B and more. Several DJs, including some Deaf DJs, spun their discs to keep the crowd entertained. DJ Matty and DJ Tappy, DJ Rudeboy, DJ Prince and DJ Lancelot were also in action. While they entertained the audience with their melodious sounds, top South African sign language interpreters such as SABC sign language news presenter Fortune Madlala, Andiswa Gebashe, Tina Botha and Sibusiso Mondlana narrated the music. Madlala and Gebashe, Phili Zangwa and Nelia Kruger were the sign dancers for the audience. The Skyway Foundation in the Netherlands first initiated Sencity in 2003, and since then, the event has gone international. The event is hosted regularly in countries such as South Africa, Australia, Mexico, Brazil, Spain, Belgium, the United Kingdom, Germany and Finland. “The South African Police Service (SAPS) has not appointed permanent sign language interpreters instead has utilised external-registered sign language interpreters, when the need arises to have sign language interpreters at police stations. We need to ensure that going forward and as part of our transformational process, we address this matter.”While the causes of crime are complex and diverse, it is acknowledged that there are a host of factors which impact on crime. What becomes crucial however is that when victims of crime report such crimes, they must not be compromised through wrong interpretation and badly-written statements as well as misunderstanding of their experiences as crime victims. “Therefore, improved planning and co-ordination including accommodating people with disabilities is required to enhance the conditions of safety within communities. Communication), together with Disability Management of the Employee Health Wellness are now in the process of developing a strategy to ensure that people with hearing disabilities are able to access SAPS’ services. This is what we are always advocating, that police must continuously be trained. The strengthening of partnerships and co-operation among relevant organs of state at local, provincial and national spheres of government, including community stakeholders also has an impact on the approach of addressing crime,” added the Minister. Prior to 2009, SAPS embarked on a drive which included advertising a post at national level but was unable to fill it due to poor response to the recruitment drive. The various SAPS divisions including Language Section (Corporate today I will share the normal routine in the Bauti household. Fortune Bauti, my brother, is a 17-year-old who was diagnosed with Cerebral Palsy just 8 days after birth. He battles with epilepsy, which means he has to get treatment: medication that has to be taken twice a day, once in the morning and once in the evening. Our day starts around 5am and ends around 10pm to ensure he gets his medication on time. A time table has to be drawn up, and usually turns are taken to cater for his needs as he is on a special diet and needs specialised care. He loves his family and needs time with us every day. This time has been a blessing to us. As his brother, I’ve had to study his disability. I needed to understand his needs and find creative ways to meet those needs – sometimes a trial on a tight budget. Being fit plays a huge role in my life because I’ve got to be fit so I can be able to move him around with ease. When he goes to the hospital for his regular check-ups, it is my job to carry him up the This year’s Sencity Joburg event was partly made possible by the City of Joburg and was part of the Johannesburg Arts Alive International Festival. Well known deaf actress, of the SABC 2 drama Muvhango fame, Simphiwe Mkhize who MC’ed the event with Sabeha Khan ( a part time DTV presenter) quipped: “I am very happy with how things turned out. This is also a perfect date because it forms part of the International Deaf Awareness Month.” Transformation within the SAPS in the broader sense must be aimed at changing the internal police environment and culture into a professional, representative, efficient and effective, transparent and accountable service. This should be a service which upholds and protect the fundamental rights of citizens and executes its mandate in accordance with the Constitution.While there has been some process made regarding the demographic composition of the police, there is still considerable work required, not only in building a representative service, but also in making sure transformation addresses the broader context of the developmental state, guiding policy framework and the principles contained in the Constitution. Please contact: Zweli Mnisi Cell: 082 045 4024 Issued by: South African Police Service steep hillside from our house in the valley to the street that leads to the taxis which take us to the hospital. At seventeen, he’s no lightweight, and this is why I take care to ensure that I am as fit, healthy and strong as he needs me to be. Our mom works hard to provide for our family’s needs, and spends time working out Fortune’s time table, studying what he needs, and being the best mother she can be for him. Fortune himself is a happy guy who brings life, love and joy to our little family. He loves chocolate. He loves his friends and family. He is a daily blessing to us. That’s the life behind the doors of the Bauti household. Remember, he is a gift. I would love all parents with disabled children, or people with disabled sibling, to try and spend two to three hours with their disabled kids, brothers and sisters, to see the potential they each possess. Written by Arthur Bauti - 073 454 6035 PAGE 6 THISABILITY ISSUE: 7 SEPTEMBER 2012 MC Shakila Maharaj and KZN Blind and Deaf Society’s Belinda Naidoo Dining in the Dark The KwaZulu-Natal Blind and Deaf Society held a swanky Dinner in the Dark event at Coastlands Hotel in Umhlanga. The starters, the auction, a prerecorded audio drama - Blind Date (a piece written by Nad Ramsarup, head of the School for the Society and produced by Raeesa Mohammed from Lotus FM) and musical items were all performed in the dark during the first hour. The MC for the evening, Mrs Shakila Maharaj, herself blind, brilliantly guided the guests with quips of lighter moments and interactive audience participation. Duets by partial blind Rajen and Shamilla Surjoo performers, Jody Naidoo and Alicia Solomon were on par as the guests were serenaded to a unique dinner experience. For the worthy cause it was for, the auction raised R22 500 after the first buyer, who initially bid R12 500, donated it for reauction. About Dinner in the Dark The “Dinner in the Dark” event is a unique opportunity to raise awareness about Blindness besides raising funds for the KwaZulu-Natal Blind and Deaf Society. You will experience a sumptuously elaborate meal without the benefit of sight. Your remaining senses will be stimulated to savour the aroma and taste of your dining experience. Conversation will become more intimate and at TM Alicia Solomon performing spontaneous, increasing your consciousness of what blind people experience as normal throughout their lives. Dining in the Dark gives you: • A unique culinary experience: food tastes very different without visual cues to accompany it. • An appreciation of your vision: after trying to perform simple tasks without your eyesight, you will value more highly both it and your other senses. • A chance to exercise your imagination: only your mind can tell you what the food on your plate look like. • An opportunity to bond with other people: what better social bonding experience could there be than sharing a meal with someone in the dark? ACSA Exhibition Hosted at the Sandton Convention Centre in the heart of Sandton for its 8th year running, the Airports Company South Africa Disability Trade & Lifestyle Expo & Conference took place on 6 to 8th September 2012. It is a multi-faceted event that offers delegates numerous benefits, amongst others, a comprehensive knowledge and resource hub for anyone involved with disability; participation and involvement by Government, corporate institutions, NGOs, enterprises and business owners aspiring to develop and employ people with disabilities and a co-located trade and lifestyle exhibition. Visitors at the THISABILITY Newspaper Stand Sebe Matsebula in the foreground The aims of the two-day conference were to explore the enhancement of environments inside and outside the living and working spaces of people with disabilities. THISABILITY Newspaper had a lot of visitors who inquired about subscription opportunities as well as other linkages. Anthony Cuerden (THISABILITY) with Petra and Conrad Burgher SASL Alison Swannack Signing as a Language Subgroups of the Deaf Community The Deaf community promoted Deaf Awareness Month (National Month of Deaf people in SA: 1-30th September 2012). You may be confused when meeting the Deaf people because there are four different subgroups of deaf people within the Deaf Community. In this column I will introduce these subgroups of the Deaf community to help you identify and know what part of the group you are in. These subgroups may be found within the general society, yet are more noticeable within the Deaf community, due to the community being a low-incidence population. SASL immersion is part of learning SASL and being a part of Deaf Culture and results when you begin socializing with Deaf people and honing your SASL skills. There are four “levels” of being involved with the Deaf (the Deaf Experience): Deaf people in isolation, the Deaf community, Deaf Culture, and the Deaf Ethnicity. They are all completely different. This was an opportunity for the paper to meet the newsmakers and stakeholders alike and engage one on one on different needs and challenges pertaining to disability issues. The conference was supported by: The Gauteng Provincial Government, The South African Disability Alliance (SADA), and Arcelor Mittal. • Deaf People in Isolation - Deaf people who are part of the hearing world are on this level. They are the furthest from being involved. They are deaf, but they are not Deaf. These individuals are often products of oral schools and are trying to fit into the hearing society. They feel uncomfortable with signing and do not have knowledge of Deaf Culture and values. • Deaf Community - Deaf community is a social group that lives in a certain geographical area, shares common goals, and carries out certain responsibilities to each other. SASL immersion in the Deaf Community is different from SASL immersion in Deaf Culture. There are many Deaf communities in South Africa, but only one Deaf Culture. The Deaf community is more flexible with its language use than Deaf Culture. When Deaf people converse in a situation involving hearing people, they may use a variety of Signed English to help support understanding. However, the strict language in Deaf Culture is South African Sign Language (SASL). Deaf people have faced restrictions and oppressions while being the minority group in a hearing world. However, when they band together to further the goals of the deaf, they define their culture. One of the main goals of the Deaf community is to achieve recognition of deaf people as equals. They also want their history to be recognized and SASL to be accepted as the official language of the deaf. Members of the Deaf community include deaf and hearing people (including hearing family members, interpreters, etc.) that share in the culture and use SASL. These people do not have to be deaf themselves and can be part of other cultural groups, but they support the goals of the Deaf and help to achieve them. Membership in the Deaf community is not as strict as membership in Deaf Zain Bulbulia with Ari Seirlis at the Conference Culture or the Deaf Ethnicity. Your SASL immersion will most likely occur with people who are a part of this level. • Deaf Culture - The culture of the Deaf is much more restrictive. On this level, you would more closely identify yourself with Deaf culture before any other culture. Normally, you need to have a degree of hearing loss to be a part of this culture. However, some hearing children of Deaf adults (CODAs) are on this level because they have been brought up learning SASL and the cultural values natively. People who are part of this level generally include: deaf and hard of hearing individuals who identify with Deaf cultural values and behaviours, and know and use SASL (not the thoughtup language systems like Signed English). Rarely, hearing people without Deaf parents who learn SASL and become involved in the community are part of Deaf Culture. • Deaf Ethnicity - The Deaf Ethnicity is the most restrictive group and is rarely discussed. SASL immersion can take place with people who are at this level, but you will most likely never be a part of it. This level is reserved for those who are Deaf and were raised with SASL in Deaf culture. This usually involves a Deaf child of Deaf parents. This situation is surprisingly rare, but highly valued. Ethnically Deaf people are often leaders in the Deaf community. In next month’s column I will highlight Etiquette within the Deaf Community and the 10 commandments of Deaf Culture. Interested in learning SASL? Please direct queries to info@kznla.co.za or any other queries to alisonswannack@hotmail.com PAGE 7 THISABILITY ISSUE: 7 SEPTEMBER 2012 STAR PROFILE: DJ Phobia DJ Phobia has a rather unique skill. He keeps a CD pouch containing 100 CD’s and he’s memorised their order and their contents. He does this routine because he is blind. He is affectionately referred to as ‘Stevie Wonder’ by some of his fans. DJ Phobia has become a well known name on the DJ circuit. He says that he still feels overwhelmed by the positive response he gets from his music. DJ Phobia aspires to become a world acclaimed DJ. He’s determined not to let his disability hamper him in any way. Born Bongani Mbambo in 1985, Dj Phobia’s love for music started at a very early age. His mother used to take him to festivals, weddings and public functions. He got his first keyboard when he was five and taught himself to play. A chance meeting with the renowned Dj Christos changed fate for Bongani. He became determined to pursue Sound-Engineering in 2004 after completing his Matric. Dj Christos invited him to the first ever South African music conference and taught him how to use turn-tables. Dj Phobia started playing the same year and has played almost all over the country as well as countries like Swaziland and Lesotho. Dj Phobia has had the privilege of playing alongside renowned household names like Black Coffee, Vinny Da Vinci, Ralf Gum, Rocco, Franck Roger, Manoo, Culoe, Oskido to name but a few. He is currently working on his first album. DJ Phobia playing for Vuzu TV Talking Hands: Durban Deaf Theatre Festival For the first time in South Africa, a theatre festival celebrating the performing arts talent, language and talent of the Deaf was held at the Catalina Theatre, Durban... Cast of Talking Hands-The Play Standing L-R: Sandile Mngadi, Marvin Sphiwe Mchunu, Bo Tasker, Dr. Thuli Nhlapo and Alison Swannack Kneeling L-R: Nqobisizwe Mazwi, Darren Rajbal, Linda Majola and Ismael Mansoor ...The highlights of the festival were the three productions, directed and performed by talented Deaf actors and actresses. These were Talking Hands, directed by Alison Swannack, about the past and present life experiences of Deaf South Africans, Listen with your eyes, the comedy play by Darren Rajbal, Bo Tasker and Ismael Mansoor and Ultimate Deaf Side Story, a production by the only surviving Deaf Theatre company in South Africa, played by Dale Holmes and Llellwyn MacDonald. The audiences, which sadly comprised mainly Deaf people, enjoyed these plays enormously. The few hearing audience members who attended reported having really enjoyed the shows too and that they had gained a new perspective on the Deaf Community as a result. All the plays were directed by Deaf people and were informed by the Deaf perspective and that makes the plays unique and interesting for both Deaf and hearing audiences. Unfortunately attendance at these productions was very poor and it was sad that such a historic event was so poorly supported. During the Festival, workshops were held for corporates and public to learn about Deaf people and Deaf Culture and some basic SASL. Despite extending the invitation to attend the corporate workshop titled “Ensuring access for Deaf employees and clients” to over 80 companies, there was no one at the workshop. This made us very aware of the need to create more awareness about the talents and potential of Deaf people and the needs they have in terms of achieving equal access. The public workshop was similarly very poorly attended. During Deaf SA’s Got Talent, the audience was treated to entertainment by some of the most talented Deaf performers. They were treated to dance, poetry and signed song performances. The winner was Issa Minenhlie Mabuza and apart from the prize money, he flew to JHB to perform for the Deaf Federation of South Africa, National Quadrennial Meeting gala evening on Sat 6th October. We wish him all the very best for the future! Overally, despite the poor public support for the Festival, it remains a significant event in the history of the Deaf Community of South Africa. “Mighty oaks from tiny acorns grow” and we are delighted that the acorn has been planted and look forward to a bigger and better Deaf Theatre Festival in 2013. Story by Alison Swannack - Festival Director SA’s Got Talent: Amazing Act from PMB Seated on the e.tv’s SA’s Got Talent auditioning stage, Nhlanhla Luke Greyling Nxele cuts a lone figure. As the famous USA R’ n’ B Chris Brown’s voice emerges through the speakers singing the chorus of the fast paced song “Don’t Wake me Up”, Luke shifts slightly to the right and feebly stands up on his feet and immediately goes into a hip hop dance routine that sends the crowds berserk and screaming in support whilst the judges look on awe struck. Judging from the messages of support he gets from his school’s Facebook page and his mother, Luke has all the right backing to go all the way in the competition. Watch SA’s Got Talent every Thurs at 8.30pm on e.tv For someone born with spinal muscular atrophy and using crutches, Luke makes this routine look like an easy stroll in the park and he gets three nods from the judges to proceed to the second round. Luke bows as he gets a standing ovation from the mesmerized crowd. The 15 year old dancer from Maritzburg College in KZN says he learnt on the streets from friends and watching dance movies. “I entered this competition with the intention to win and most of all, to change people’s mindsets on how they view people with disabilities,” he quips. “I dance all types of dances, from hip-hop to crumping…..you name it,” he adds. Luke the Superstar! He is also a member of the canoe club at his school: “That’s one place people treat me as an equal as we use only our arms to row. My disability is my gift”. Luke in Action on SA’s Got Talent PAGE 8 THISABILITY ISSUE: 7 SEPTEMBER 2012 Mouth Painters’ Durban Exhibition The Spectacular Exhibition of QuadPara Artists Artworks Rare art talent and skill from mouth painters was recently exhibited at the Gateway Theatre of Shopping in Durban. These painters are individuals that have experienced the loss of mobility and fine motor co-ordination through spinal injuries and other conditions, but refuse to allow this to hamper their creativity. Thato viewing JJ’s amazing painting They work hard to master this painting skill and to create magnificent artworks. The exhibition was hosted by QuadPara Association of South Africa (QASA) and formed part of the organisation’s AGM activities over the same weekend. “Many of these artists start painting in order to occupy their minds and time; those with talent are given opportunities to exhibit all over the world and to develop a solid income,” said Ari Seirlis, CEO of QASA. The talent on show included that of JJ Bezuidenhout and Thatofatso Segapo (a Grade 10 student from North West). The exhibition was sponsored by the National Lottery Fund. Run, Walk, Roll or Stroll for children with disabilities Nappy Run is a fun and interactive way to get involved and help raise the profile of children with disabilities, creating awareness for the invisible children of South Africa. At 9am on 3 November 2012, National Children’s Day, get your takkies on and wear a nappy which ever way you choose – a cloth nappy over your running shorts or perhaps a nappy ‘bandana-style’ on your head. Run, walk, roll or stroll to take part in the main 5km Nappy Run at the Johannesburg Zoo and other smaller events around the country - everyone is welcome. As a joint venture between the National Council for Persons with Physical Disabilities in South Africa (NCPPDSA) and the National Association of Persons with Cerebral Palsy (NAPCP), Nappy Run is in aid of our country’s kids with disabilities. As an annual campaign, Nappy Run also aims to raise as many nappies as possible for these kids who are often also poor and living on the fringes of society. Children with disabilities are amongst the most disadvantaged in South Africa and are acknowledged by the UN as the world’s most vulnerable and exposed minority group. It is estimated that there are 293,000 - 346,000 children with disabilities in South Africa. The Nappy Run fun run events on Children’s Day are just one element of this wider campaign, running from October to 3 December, which aims to raise awareness for the circumstances and living conditions of children with disabilities and to encourage the public to donate nappies. Nappy Run is aiming to more than quadruple the 100,000 nappies collected in 2011, with a target of 400,000 for 2012. While parenting a child with disabilities is extremely expensive, many children with disabilities rely on care from community-based and volunteer-driven day care centres that run on limited resources. It is also far too common to see children at these centres who are ‘wet’ because they are not wearing nappies. Besides the impact on the dignity and self-esteem of these children, it is also a blatant violation of basic human rights. All children deserve love, quality of life and the feeling of belonging and inclusion in society. Having limited or no control over one’s bowel or bladder, known as incontinence, is just one of the surprisingly common Nappy Run Sun City 2011 yet often unassociated issues for children living with physical disabilities. Nappies are often unaffordable and viewed as a luxury item, especially for those children who are already marginalised, disadvantaged and residing in care centres which are under-resourced, low on funding, operating with minimal staff and lacking in basic daily necessities such as diapers. Thus the ‘Nappy Run’ concept is to create awareness and educate the public about the living conditions of children with disabilities as well as appeal for donations of much-needed nappies. Many older children also have to wear diapers well into their teens and adult years, thus larger size nappies are needed too. In Nappy Run’s inaugural year of 2011, there was great public involvement with over 100,000 nappies donated as well as support from band ambassadors, radio stations, business nappy collection promotions and various other monetary donations from public fundraising activities. One innovative example was at the North West University in Potchefstroom where the students arranged a relay race with 250 participants and 3,500 supporters. They raised over R10,000 for Nappy Run. The Retirement Expo is an inspiring day out for retirees and their families, and those wise enough to know that planning early is the best way to ensure a comfortable, secure and enjoyable retirement. Whether you’re a fastidious planner or a ‘seat of your pants’ kind of person, make your retirement the one thing you put your best efforts into. Explore exciting exhibits, including: retirement properties; travel options; financial services; leisure and lifestyle products; fitness; healthcare; optimal nutrition, care facilities and services. Relax and refresh at the Health Oasis before shopping around for special show prices and discounts on offer. Diarise the Retirement Expo from 26 – 28 October 2012 at the Coca-Cola dome in Northriding, Johannesburg and plan for an inspired retirement. Get the latest information on whatever interests or concerns you, and discover an array of leisure pursuits. Secure your seat at interactive workshops to get valuable retirement and From October 2012, public nappy donations can be dropped at any of the 350+ Alpha Pharm pharmacies across the country as well as Associations for Persons with Disability’s offices, Cerebral Palsy offices and the national office for the NCPPDSA in Edenvale. Nampak Tissues are also sponsoring Nappy Run with a large donation of nappies. Monetary donations are welcome and members of the public are also invited to organise fundraiser events or to co-ordinate a Nappy Run event in their area. Contact Danie Marais at the NCPPDSA for more information about volunteering danie@nappyrun.org.za To find out more about the campaign, go to www.ncppdsa.org.za, www.nappyrun.org.za and www.causes.com/nappyrun or follow on Twitter @NappyRun retirement lifestyle advice and have your questions answered by experts. A lifetime of hard work deserves a fitting reward – your retirement can be all that and more. Win a double set of tickets to visit The Original Retirement Expo – just send you name to tacompetition@retirementexpo. co.za Diarise 26 – 28 October at the Coca-Cola dome. Bring friends and family! Plan your visit at www.retirementexpo. co.za. Tickets cost just R60 for non-pensioners, R30 for Pensioners and under 18 free. Follow the Retirement expo on facebook http://www. facebook.com/theretirementexpo and Twitter @ retirementexpo for news, updates and prizes on offer. PAGE 9 THISABILITY ISSUE: 7 SEPTEMBER 2012 Start your future here… 26 - 28 October 2012 09h00–17h00 Coca-Cola dome, Johannesburg Thousands of South Africans are moving into their 50s and 60s with a whole new approach to retiring. Far from being a time to slow down and resign yourself to being ‘old’, retirement can be one of life’s best stages. Opportunities for new hobbies, interests, travel, even relationships and careers, are yours to explore if you visit South Africa’s original Retirement Expo – for the time of your life! For more information on visiting or exhibiting, please contact: 011 549 8300 retirementexpo@tepg.co.za www.retirementexpo.co.za Like us: Follow us: @retirementexpo PAGE 10 THISABILITY ISSUE: 7 SEPTEMBER 2012 Reaching Great Heights for Muscular Dystrophy From Left: Solly Bobat, Aasha Mehta Bobat, Nirode Bramdaw, Angelique van den Berg, Fatima Sacoor, Meena Mehta, Hajira Omar, Cecil Reddy, Shaheeda Loonat, Sangeetha Bramdaw and Harish Mehta. A group of Durban hikers, aptly called The Meanderthals will climb Mount Kilimanjaro in Tanzania in October in aid of the debilitating disease of Muscular Dystrophy. The group, comprising friends, plan to summit on October 18th and have pledged their dynamic efforts to elevate awareness about Muscular Dystrophy and raise funds for the Muscular Dystrophy Association of South Africa. “All the members of the Meanderthals enjoy great mobility and good health, and this attempt at Mount Kilimanjaro is our way of sharing our fortune of good health with those who are less fortunate and suffer from Muscular Dystrophy,” said Meanderthals’ chairperson Shaheeda Loonat. The ten Meanderthals climbers have asked that individuals sponsor them R300 per camp that they reach on the 5 consecutive days. These are the Shira Camp, the Barranco Camp, the Karanga Camp, the Barafu High Camp and Uhuru Peak - the Summit. “We are pleading with individuals to sponsor us R1500 per climber for making the summit. All funds will go directly to the Muscular Dystrophy Association. We also invite socially responsible corporate citizens of South Africa to contribute to this drive, for which we will exchange branding opportunities on our Facebook site and on the banner we aim to hoist at Uhuru Peak,” said Loonat. The Meanderthals and their progress up Mount Kilimanjaro can be tracked on Facebook under their group name, Meanderthals. This is their first attempt at Mount Kilimanjaro and for some their first major trek. Maxine Strydom, Deputy Director of the Muscular Dystrophy Association KZN said that the effort is the first of its kind and is to be lauded. “We are in dire need of funding to carry on with our work at providing succour to those suffering from the disease. As we are all aware, donor funding is difficult to come by in these tough economic times and this wonderful gesture would make a significant impact on the work we are currently doing. We have a waiting list of 11 people right now who need different types of equipment and care and this all costs money. We will be able to help everyone on the list with some good donations,” she said. “We wish more people would think like the Meanderthals and assist those less fortunate than themselves, whilst making their own personal triumphs. It gives the entire journey that much more meaning and impetus when you help others whilst proving your own endurance to yourself,” said Strydom. Loonat, who turned 60 in September, said that she has a target of raising at least R60 000 from this initiative and would, via the Muscular Dystrophy Foundation, issue a joint statement immediately after the summit at Uhuru Peak on October 18, a month after reaching her milestone year. The KZN Deputy Director, Maxine Strydom can be reached at: parentprojectsa@telkomsa.net Shaheeda Loonat can be reached on 031-701 8373 or meltecagencies@gmail.com Story Supplied. Observing Muscular Dystrophy Month Muscular dystrophy is still an invisible element in our South African communities and still marred by lack of knowledge, stigma and discrimination. The lack of knowledge amongst the public remains an obstacle in the attainment of social integration and support services for persons affected by the diseases, therefore people affected by MD (Muscular Dystrophy) presently remain marginalised and vulnerable. Muscular Dystrophy Awareness Month carrying the theme “Your support means hope” is aimed at raising consciousness through awareness, education and promotion to the society at large in order to address these issues. We aim to reach out to all persons affected and not affected by MD and let them know that we can provide support and information. Muscular Dystrophies are a group of genetic conditions that are characterized by progressive muscle weakness and wasting of the muscles. There are more than 70 neuromuscular disorders, and in South Africa affects 1:1200 people. Sadly there is still no definite cure, however physiotherapy is very important as well as a balanced diet and exercise programmes can assist in living a better life. Orthopaedic devices can alleviate some of the discomfort experienced. In severe cases medication and surgery may help. Some types of MD are Duchenne (DMD), Becker (BMD), Fascioscapulomumeral (FSHD), Friedreich’s Ataxia (FA), and Mytonic Dystrophy (MD). There are currently many research projects in South Africa and world-wide that are working on a cure for this disease. The muscular dystrophy awareness month movement began because of Dr. Guillaume-Benjamin-Amand Duchenne, (born Sept. 17, 1806, Boulogne, France—died Sept. 15, 1875, Paris), French neurologist, who was the person first to describe several nervous and muscular disorders and, in developing medical treatment for them, creating an electro diagnosis and electrotherapy. He explored the effects of electrical stimulation on diseased nerves and muscles and rendered the first accounts of several types of muscular atrophy and paralysis caused by nerve disorders, including (1858) tabes dorsalis, or locomotor ataxia, a muscular atrophy caused by a degeneration of the dorsal columns of the spinal cord and sensory nerve trunks. technology devices, an accessible physical environment, wheelchair accessible transport, skilled care, respite care, special exercise, special or inclusive schools, recreation and, most of all, emotional support. In the 1860s he described severe progressive muscle weakness in 13 young boys, a condition that was later named Duchenne muscular dystrophy. His invention of an instrument (now known as Duchenne’s trocar) to remove small portions of tissue located deep in the body founded the diagnostic practice of biopsy. • The Muscular Dystrophy Foundation of South Africa (MDF) will during the month of September embark on a campaign to raise awareness about the disease. People need to be informed and educated about MD while people with MD need to know that relevant and up-to-date information is available as well as, special disability equipment, assistive People need to know and understand that; • • • • • Muscular Dystrophy exists. Persons affected by MD can be integrated and function normally in society. Persons affected by MD can be empowered to exercise greater control and influence over decisions and resources that impact on the quality of their life. Their ability, skills and talents can be fully developed in spite of a handicapped situation They can be self-reliant and access the tools they need to build self-confidence and dignity. There is access to help The Muscular Dystrophy Foundation endeavours to address some of the challenges faced by affected persons. We also endeavour to identify those affected and call upon South Africans affected and those who are not affected but know someone who is to come forward and register on our member base Further information is available on our website www. mdsa.org.za or at our national office and branches in Gauteng, KwaZulu Natal, and Cape Town. PAGE 11 THISABILITY ISSUE: 7 SEPTEMBER 2012 Lefa Manamela Miss Photogenic Simone Botha Miss Deaf SA 2012 Sibongile Nhlapo 2nd Princess & Miss Personality The Miss Deaf South Africa Pageant gala event took place at the La Montagne resort in Ballito on Saturday and Simone Botha of Cape Town took the title: Miss Deaf South Africa 2012. Botha said afterwards: “It is such a great privilege and an honour to be crowned. I would like to thank everybody for the support that I received during the week. I enjoyed it tremendously and had so much fun. The role of Miss Deaf South Africa is to be an ambassador for the country and to educate the hearing about the deaf community.Twelve contestants from around the country competed for the title during a five-day stay in Ballito. “I learned so much from every single contestant. They are all beautiful young women with stunning personalities and we supported one another and worked together as a team.” Julia Jordaan, a director of First Resorts Management, which Up and Close with Simone Botha: On school years and growing up - After I received my implant I was enrolled at the Carel du Toit Centre for the Hearing Impaired in Parow. Back then my parents had the very difficult choice to make: do they want their children to learn ‘sign language’ or do they want us to learn to ‘speak normally’? My parents chose to teach their two deaf children normal speech, which certainly wasn’t easy for them. They knew the road forward was going to be long and difficult, but giving up wasn’t an option for them. On family support - My mother, a psychologist at the time, quit her job to raise and school her two children at home. My father, who still works at the same job in Koeberg today, had to work double shifts to financially keep head above water. My parents made sure that my sister and I had as much contact with the normal hearing world from as young as possible. Sanabelle Ebrahim of the Green Heart Movement presents Simone Botha with a green hearted bunny-cat shortly after she is crowned Miss Deaf South Africa. Bunny-cats are created by Hillcrest Aids Centre/Woza Moya crafters. Photo: George Tadden, First Resorts On her background - I am the second oldest sister of four children. My older sister is, Elnette Botha- the current Miss Deaf Africa 2012. Our hearing loss is due to the defective genetic mutation called Connexion 26. Both my parents and my other two siblings have normal hearing. I was born with a profound hearing loss. I received a Nucleus multi-channel cochlear implant (a surgically implanted device coupled with an externally worn speech processor which enables direct electrical stimulation of the auditory nerve) at the age of 22 months. At that stage I was the youngest person in Africa to receive a cochlear implant. On dancing professionally - I was still a young toddler at the tender age of two when I started taking ballet lessons with Natalie Swanepoel. Ballet came very naturally to me and I felt right at home on the dance floor. My continuous ambition and love for dance carried me through out the years and brought me to where I am today- a professional dancer. I have danced with Cape Town City Ballet- South Africa’s National Ballet Company, iKapa Dance Theatre, Bovim Ballet and have worked with many acclaimed national and international choreographers. Being part of the professional world of dance has given me the opportunity to do what I love most, but most important of all it has shown others that being hearing impaired doesn’t mean that we are not capable of fulfilling our dreams. On her other talents - At the age of five I was enrolled in drama classes to build confidence as well as to improve my speech. I entered in the Cape Town Drama Eisteddfod and continued doing so throughout my school career. I did not just enter, but brought home several awards. Acting on stage came as naturally as dancing did for me. School plays interested me and I played in the Jan van Riebeck High School Production: ‘Die Koffer’ which toured to the Fraserburg Arts Festival, Namaqualand Arts Festival and Marisa Smit 1st Princess manages the hotel, said First Resorts and Flexi Holiday Club were proud to be part of an event that brings the hearing and Deaf communities together. “Our resorts have a strong ethic of involvement with their local communities, and Miss Deaf South Africa forms part of that initiative.” This was the second time First Resorts had sponsored the event. ATKV Arts Festival. I even took piano lessons for a couple of years. I also enrolled in modeling at the age of 9 to build confidence, but the main reason for my modeling career was to improve my command of the English language as Afrikaans is my mother tongue. To be a part of the so-called normal world it is essential to be able to understand and speak English. Thirteen successful years in the modeling industry has done wonders for me as a person. It gave me a better understanding of other people, different cultures and it broadened my mind. On Challenges at School - School life was not always easy. Children at primary school level did not always understand me and I had my battles to fight. High School children are much more mature and accepting. I am not afraid to stand up for myself and that has helped me stand my ground throughout the years. I successfully matriculated from Jan van Riebeck High School in 2007 and continued my studies at University of Cape Town (UCT). I graduated from UCT in 2009 with a Performers Certificate in Dance. I am currently studying part time through UNISA for a BSC in Psychology and Physiology. On life in general - I am so grateful for all the opportunities that I have been given. If a door closed for me it was because another, a better one, was opened before me somewhere else. I believe that all things happen for a reason. Even the small things in life contribute to the bigger picture. All stumbling blocks, setbacks and failures have made me a richer human being. I am better for it. All that I am today is a gift from above. On being Miss Deaf SA 2012 I am very honored to have been awarded the title of this year. I realize that it is a very big responsibility and I also take it very seriously. The world still has much to learn from the hearing impaired. It is my responsibility to bind these two worlds and to make everyone realize that we have yet so much to give to each other. I look forward to this year and I hope that I will make you all proud. PAGE 12 THISABILITY ISSUE: 7 SEPTEMBER 2012 Active Health Column with Lorraine Petterson increase your aerobic capacity you will never enjoy the true benefits of exercise or cardio. Group cardio session at Ashley Village, Pinetown. “Some people want it to happen, some wish it would happen, others make it happen.” Michael Jordan Fitness doesn’t happen overnight. Give your body the opportunity to change and you’ll reap the rewards of your efforts and feel better & happier than you have ever felt. I hear some of you groan and think, ‘what does she know, I’m so overweight and so unfit that nothing will ever help me’. I love it when anyone says this as I’ve seen incredible changes to so many people, including those who are severely impaired and overweight. BUT, there is a secret all these people shared: Without exception they desired that change: They were willing to work to make it happen: They all imagined themselves stronger, fitter, leaner, happier. In the months to come we’ll have different guidelines and programmes for exercising but this month, let’s start with one of the most important aspects of physical fitness – cardio respiratory endurance or Cardio as its best known. This is the foundation of all fitness and by increasing your aerobic capacity your lungs, heart and blood vessels will function at a much higher level and your body will enjoy improved delivery of oxygen and nutrients and more efficient waste removal. Have you ever done something that has left you, hot, sweaty, gasping for breath with a pounding heart? That’s your respiratory system battling to cope. Until you VISIT www.thisability.co.za TO SEE THIS MONTH’S SPECIAL OFFERS Let’s start with 30 minutes a day, 3 times a week and by the end of the 2nd week see if you can build up to 4 or 5 times a week for 45 minutes a day. Make it a routine, embrace it, don’t be scared of it. Enjoy that awesome feeling after exercise when the endorphins (feel good hormones) run through your body, it is such an incredible, uplifting experience and one you’ll want to repeat over and over. You don’t have to be a member of a gym and whether you are able bodied or mobility impaired you can make your choice from this list. 30 minutes of walking (legs or wheelchairs), gentle jogging/walking combination, freeform dancing to music, cycling, swimming, air boxing, wash the car, walk the dog, climb the stairs, use your ‘Zoom’ ball to play with your family or for those severely impaired, use a passive exerciser to move your limbs and get the circulation going. Whatever you decide, get out into the sunshine, smell the freshness in the air and enjoy yourself. Don’t think of it as hard work, know you are finally doing something to improve the quality and quantity of your life and it can only get better from now on. NB. Before embarking on any exercise routine, I strongly advise you get the all clear from your doctor and/ or therapist. DMS brings Music to Open Air School Open Air Students during a music lesson The Durban Music School (DMS) in collaboration with Rand Merchant Bank Fund have for the past year been working intensely on a music program at the Open Air School. The Open Air School is situated in Glenwood and is a primary and high school for children who are physically disabled. There are now 82 children who are receiving music lessons and one of the teachers Maxine Matthews commented on her experience as a music teacher at the school. youth music development and had spent most of his career involved with teaching and training young musicians. The Durban Music School is a Non-profit organisation which has a Section 21 company status and is run by a board of Directors headed up by the Chairman Bongani Tembe. The school relies completely on sponsorships and donations to do the amazing work it does and achieve the level of excellence it has achieved. “Having started teaching a mere four lessons once a week I, as well as the other teachers, are now teaching an average of eight lessons there each week. I can easily say that these lessons are the ones I look forward to teaching the most out of my schedule. The children at this school are some of my most dedicated students who have grasped the opportunity to study the art of music with all of their willingness.” One of Werner’s ambitions is to make music education available to children who would not normally be able to afford or have access to music tuition. The school has 410 children who all receive a full music bursary and this includes an instrument, lessons in practical and theory, exam fees, transport costs, sheet music and ensemble training. Eleven years ago professional clarinetist Werner Dannewitz realised a dream when he opened Durban Music School. He had always been passionate about Resolutions and Declaration by Please contact Kim Matthews on 0836269739 for more information regarding the Durban Music School and its bursary program. Congress Resolutions: Part 1 Persons with Down Syndrome 11th World Down Syndrome Congress: Cape Town, South Africa WE, THE DELEGATES OF THE 11TH WORLD DOWN SYNDROME CONGRESS: Advancing Inclusion of Persons with Down Syndrome, assembled here in Cape Town, South Africa from the 14th – 18th August 2012, hereby reaffirm our commitment to the promotion, protection and implementation of the human rights of individuals with Down syndrome and intellectual disability. We recognise that a fundamental shift has taken place at international policy level with the adoption and entry into force of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), signalling a move away from practices that segregate people with disabilities to an approach that seeks to promote their inclusion in all sectors of society in respect of human rights. In order to achieve this goal we urge governments and communities globally to: • Develop mechanisms for ensuring access and support for all learners with Down syndrome and intellectual disabilities to educational opportunities within single, inclusive education systems that ensure that all learners are able to learn and develop to their full potential; and participate and benefit equally in the process of teaching and learning in their local neighbourhood schools with all measures of reasonable accommodation in place; and that all teachers are equipped with the skills to meet their needs; • Recognise the unique contribution that individuals with Down syndrome and intellectual disability have to make in a society that values diversity and facilitate their participation in all aspects of community life; • Reaffirm that every human being has the inherent right to life and recognise the need to disseminate accurate information about the capacity of people with Down syndrome to live a good life; • Acknowledge and promote self-advocacy and specific support measures that empower the individual so that they have increased control of their own lives and that their voices are heard by legislators, policy shapers and makers, programme and service providers; • Ensure that the rights and needs of persons with Down syndrome and intellectual disabilities should be recognised and championed at all levels by the entire disability sector through the promotion of self-representation or representation by their chosen advocates. There should be cross-disability solidarity and the adherence to the principle of “nothing about us without us”; (To be continued in the next issue) PAGE 13 THISABILITY ISSUE: 7 SEPTEMBER 2012 Deaf Association Training Active Rehab Exe rcis er Z B a ll m o o THISABILITY SPECIAL PRICE r 29 9. o o each incl vat Normal Retail Price R399.00 plus postage and packing R30 Oyena Mzamane,Executive Chef Krishna Reedoy,Thembanani Khambule,Siyamthanda Ngwenya In celebration of Deaf Awareness Month, September 2012, the KwaZulu-Natal Deaf Association would like to highlight two projects they implement in partnership with eDeaf and Tsogo Sun at Garden Court in Umhlanga. These projects assist in the capacitating of Deaf persons to be trained in various retail outlets and to be trained as Deaf chefs, respectively. The KZN Deaf Association, in partnership with eDeaf, has embarked on the recruitment and placement of Deaf persons in SETA accredited learnership training programmes with major retail and other corporations. eDeaf is a Deaf owned BEE company, established to provide a holistic service to the employer and the Deaf employee. In the past 5 months, the Association has assisted eDeaf in the screening, interview process, recruitment and training of over 80 Deaf candidates in KZN. These trainees will embark on a one year learnership, which covers both theory and a practical component. Thereafter the trainees will receive a SETA Accredited National Certificate. Active Rehab Exerciser gives an amazing upper body cardiovascular workout which also strengthens muscles, improves co-ordination & promotes flexibility and mobility of joints. Use with either 1 or 2 people. The fun way to exercise and improve fitness levels. Young or old, this Rehab exerciser is a hit at all times and is an ideal way to integrate families. They then have the choice to either remain in the employ of the company or they may utilise the certificate to secure alternate employment. The photograph below are of the Deaf learners undergoing a 3 day training programme for one of the retail corporations. The partnership that the KZN Deaf Association has with Tsogo Sun, more specifically Garden Court Umhlanga, began over 2 years ago with a pilot project to provide Deaf persons, who have a passion for the food and hospitality industry, with an opportunity to be trained as Deaf chefs. The Association was involved from the onset with the design of the kitchen during the building of Garden Court Umhlanga. Kitchen staff has been through basic Sign Language training and Deaf sensitisation conducted by the KZN Deaf Association to enable them to better communicate with and understand the Deaf students. The kitchen has a flashing light system with the different colours that indicate when the orders are ready, when hands need to be washed and when there is an emergency and the building needs to be evacuated. The emergency lights can be found in all areas that the Deaf student would go through while on duty, staff canteen and change room included. The buffet dining area provides guests with a view of the open plan kitchen area where they can see the Deaf chefs in action. Every 6 months, 4 Deaf persons are trained through the hotel and work full time in the kitchen at the Garden Court Umhlanga. During the 6 month period, the Deaf students will visit other Tsogo Sun hotels in Durban for a week at a time to expose them to different aspects of the industry. On completion of the 6 month period, the Deaf students then decide if they would like to pursue being a chef as a career and if yes, then they are placed in other hotels within the group in the Durban area to gain further experience. The Garden Court Umhlanga will then take on a further 4 Deaf students who have been selected and screened by the KZN Deaf Association and so the cycle continues. Via the KZN Deaf Association, Garden Court Umhlanga has also worked with Fulton School for the Deaf, where pupils visit the hotel for a day each month to expose the pupils to the industry and a possible career as a chef. The photograph below are of Deaf chefs in action at the Garden Court Umhlanga. Colours C l may vary ‘& win SMS Zoom Balls LFLSHHF-.0,/ sms cost R1.50 AND WIN ONE OF 10 ZOOM BALLS COMPETITION CLOSES 15 OCTOBER 2012 Contact: Tel: 031 7644 246 email: info@mobilitysolutions.co.za Cell: 082 329 7638 (Lorraine) www.mobilitysolutions.co.za For further information please contact either Dale or Upasna at the KZN Deaf Association on 031 2012261/2012408 (Tel) or email dale@kznda.org.za / upasna@kznda.org.za Autism Conference: 18-19 October 2012 in Pretoria. Individuals diagnosed with Autism Spectrum Disorder – as well as all practitioners, academics, professionals, parents and care-workers involved with Autism Spectrum Disorder – are invited to attend the Association for Autism’s 2012 Conference: Autism: Practical South African Solutions. The conference takes place at Olympus Stream Wedding & Conference Venue, 47 Neptune Drive, Olympus, Pretoria. Register and pay by 26 September to take advantage of the Special Early Bird price of R1 350 per delegate. Regular registration: R1500 per delegate includes lunches, refreshments and course materials. 12 CPD points will be applied for. For further information, please contact Anna Atkins at 012 993 4628 or email autism@afa.org.za. SETA Training at KZN Deaf Association Karen Key on Radio The DISABILITY REPORT ...tune in every first Tuesday of the month @ 21h.05 PAGE 14 THISABILITY ISSUE: 7 SEPTEMBER 2012 Jumping Kids Initiatives At an Avis-sponsored event hosted by Hope School in Westcliff, the Jumping Kids Prosthetic Fund changed yet another young life by fitting ten year old Ntando Mahlangu with carbon fibre Cheetah blades. Mahlangu, a learner at Pretoria School for the Disabled, was born with hemimelia - (no bones in the lower part of his legs) - and has been in a wheelchair all of his life. Earlier this year the decision was made to amputate both Ntando’s legs through the knee at Steve Biko Academic Hospital. The case was referred to Jumping Kids and, because of Ntando’s ability to move (and dance) on his stumps, it was decided that so-called ‘running-blades’ would be the ideal solution. Originally from Mpumalanga, Ntando is an only child. Because the boy’s mother has health problems, Ntando’s grandmother, Pauline Mahlangu, is his guardian and the only family available to take care of him. He has love for music, singing, dancing and football – the latter of which he will soon be able to participate in, thanks to his new prosthetic legs. Jumping Kids is a non-profit organisation that was launched by Johan Snyders, (CEO of Icexpress Progressive Prosthetics), in 2009 to address the need for young South Africans living with amputations to gain access to cuttingedge prosthetics. To date, the fund has assisted more than 30 children with the help of donors and corporate sponsors such as Avis South Africa. Avis has been collaborating with Jumping Kids since the start of 2011 and, through their contributions, Jumping Kids is able to continue to identify, assess and assist young amputees across South Africa. Johan Snyders, CEO Jumping Kids Prosthetic Fund, with a few of the kids in 2010 Each Jumping Kid beneficiary becomes part of the project for a minimum period of three years. During this time; regular assessment takes place to ensure that the sponsored prostheses are adjusted as the kids grow, and that rehabilitation programmes are adjusted accordingly. “Our main goal is to provide children with amputations with the tools to develop to their full potential – to attend school, participate in sport, and gain as much independence as possible. To achieve this, the support of donors and corporate sponsors is crucial. It is an honour to collaborate with Avis in changing yet another child’s life”, says Snyders. Paralympic sprint-star Arnu Fourie with Jumping Kid Hloni Koalane at Tshebedisano Primary School in Soweto r Winners be AWin o announced ct DIssue R ONext th 15 Paralympic Gold Medallist, Samkelo Radebe with Ntando Mahlangu Story Supplied: Liezel van Rensburg, Email:liezel@e-ditor.co.za, Cell:+27 82 550 9294 competition SMSaNDwin Dinnerfor2 Breakfastfor2 Zmma^Kbo^klb]^Ahm^eZg]LiZ Zmma^Kbo^klb]^Ahm^eZg]LiZ LFLkbo^kmh-.0,/ LFL\aZk`^]ZmK*'.)^Z\a The Riverside Hotel & Spa Durban North, KwaZulu Natal Tel: (031) 563 0600 email: reserve@rivesidehotel.co.za www.riversidehotel.co.za s7INNERSWILLBENOTIlEDVIASMS s7INNERSWILLHAVEDAYSTOCOLLECTPRIZES s2ESULTSWILLBEPUBLISHEDINTHEFOLLOWING MONTHSNEWSPAPER Competition kindly audited by PAGE 15 THISABILITY ISSUE: 7 SEPTEMBER 2012 Quads 4 Quads Gruelling days of dirt, dust & mud! By Lorraine Petterson from Mobility Solutions Quads 4 Quads 2012, the biggest off road bike event of its kind in the world, saw the completion of its 9th down run, from Carnival City on the 27th September to Ballito on Sunday 30th September. This incredible off-road quad & motorcycle event from Johannesburg to Durban and back, is the brainchild of Family Adventures, an off road adventure company, run by Glenn Foley and Corinne Andrews who have so far donated an amazing R5 million in the last 8 years to their beneficiary, QASA (Quadriplegic Association of South Africa). A total of 850 riders including 10 quadriplegic & paraplegic riders, participate eagerly in this epic event, which covers 1,000 kilometres off-road, over ever changing terrain, from farm lands, to rolling hills, through dense forests, onto mind blowing mountain passes filled with boulders and rocks, into rivers and over mud banks. Every day these riders take on 250 km of the most breathtaking and sometimes frightening terrain, stopping only once each day for a fuel stop and quick lunch break. The camaraderie experienced on every one of these trips is humbling. Riders helping fellow riders who have broken down, run out of fuel or find themselves suffering from heat stroke or exhaustion. All along the route one encounters heart warming events of riders donating gifts of food etc to the very poor who live deep in the rural areas and who stand at the side of the trails transfixed as these ‘strangers in the dust’ perform what seems like miracles as they transverse the wild & very rugged terrain. To every single one of these incredible riders, we say to you “what an achievement, what a victory, you prove to us all that nothing is insurmountable, all we require is the desire and the want”. Congratulations from the team at Thisability and all its readers. Cyclists to donate wheelchairs The Amashova allows for great opportunity for companies and organisations to use the race as a team building opportunity. This year, Cycling for Mobility an organisation aimed at giving wheelchairs to those in need, will have the opportunity to team build as well as raise awareness of their organisation. Michelle Van Der Westhuizen (left) and Flavio Scarpa (right) from Cycling for Mobility with Nobuhle Njapho from the South African Post Office (XPS), the official courier company and one of the sponsors for this year’s Amashova Durban Cycle Classic. Some of the members of the team have previously participated in the Amashova, with Scarpa having completed 10 races and Michelle Van Der Westhuizen having completed 4 respectively. This year, both riders and their team will ride under the C4M banner for the first time and look forward to the fun of the event. Scarpa says that he sees a need for wheelchairs in this country and due to the lack of income in some communities it is not possible for disabled people to get around and be independent. These wheelchairs will offer them independence and Scarpa has gone as far as keeping wheelchairs in the boot of his car, just in case the need arises on the side of a road. Even though Cycling for Mobility will be participating in the 106km competitively, they will still be on the lookout for opportunities to give back, along the way. For more information on the Amashova Durban cycle classic go to www.amashova.co.za or visit www.c4m.co.za to read about Cycling for Mobility. Diabetes Walk is healthy for all! Kini Shandu from Gagasi FM with Jenny Russell from Diabetes SA Durban office, Neville Pillay from Lotus FM and Fitness Specialist Lisa Raleigh. Picture: S&A Marketing It will be a healthy start for locals leaving the Durban beachfront amphitheatre on Sunday, October 28 at 8am for the annual Durban Global Diabetes 5km Walk supported by Pronutro in order to raise funds for this worthy cause. In addition to the Walk, there will be a festive health expo which allows members of the public to receive free glucose and blood pressure tests, a complimentary Pronutro breakfast for the registered walkers and a host of exciting activities for all . Media broadcast sponsor and Lotus FM on air personality, Neville Pillay will also be on hand entertaining the crowds and offering loads of lucky draws. The organisers goal is to attract over 3000 walkers this year, that is why it’s important to register at uShaka Marine World in Arena 3 outside the new Kauai restaurant on Saturday, October 20th, Sunday, October 21st and Saturday, October 27th from 08h00 to 13h00. Diabetes SA personnel will be on duty to help with the registration process. The first 500 paid entries into the Diabetes global walk will receive a free event Diabetes South Africa Global Walk T-shirt courtesy of Accu-Chek. Entry fee is just R40 per person with all proceeds going to this deserving cause. Call Pat on 082 4995 222 or visit blogspot www.globaldiabetesrunwalkdurban.blogspot.com to find out more about the walk. PAGE 16 THISABILITY ISSUE: 7 SEPTEMBER 2012 Up and Close with Natalie du Toit Congratulations on your recent accomplishments at the Paralympics. Your reflections on such an illustrious career? I believe that I have achieved everything I had ever wanted to in the swimming sector. It has taken a long time but we have finally done it. You have become an iconic figure in sports – does that put pressure on you and the fans’ expectations? I think I have always put pressure on myself from a perspective of achieving my goals and dreams and i think those far outweighed the pressure from public. You won the 2010 Laureus World Sportsperson of the Year with a Disability Award-what did the Award mean/ does the Award mean to you? What would you attribute your success to? People behind your success? I have had many people influences along the way and I don’t believe I have achieved anything on my own. Values are extremely important to me and living by them to the best of my ability has helped me achieve what I have (hard work, team work etc) Are you involved with any disability initiatives or charity work? I was involved in both, the projects came to an end in April this year, I now have to focus on what I would like to continue with. There are always challenges one encounters on the path of success, please share with us what these challenges were and how did you overcome them? The important thing, is to focus on the outcome, sometimes one has to step OUT of the box to ensure that the goal is met. Other sports interest you do besides swimming? I have been a Laureus ambassador in South Africa for a long time and it was special for me to represent Laureus from the award side as well as the charity side of things. The Laureus awards are known as the ‘OSCARS’ of sport so it is known as the highest accolade in the world. It’s definately an honour to accept the award on behalf of my team and South Africa. I was involved in waterpolo whilst I was at school, but in the last 4 years i have been swimming training for approximately 6-8 hours a day (+-20km) per day in the swimming pool, so there is very little time for any other sport. What do you do just before commencing with any race? I dont believe in looking back on life and regretting. There were choices I made that were my choices and I accept them. I am usually very early to report for my race and purely because I have missed some of my races before. I talk a lot in the call up room. When I am at the block I have a few rituals namely making sure my cap is on properly, my goggles are not fogged and I wipe my hands on the block (for them to be bale to feel the water a bit better) Q&A Paralymic Profile Anything you would have done differently up to now? Any Regrets? Where to from now? I have decided to take a few months to decide what I would like to do from now on. As for swimming I will be divorcing myself from it for a while. Natalie at the Laureus Awards Disabled sporting cyclist Powers Through Life Enthusiastic, disabled cyclist Sister Maseko has been bound to a wheelchair since 2001, following a car accident that left him crippled, unable to walk or move normally The setback did nothing to stop Maseko, who is a warden at the Boksburg Correctional Services. Before the incident, he used to participate in marathons, and won numerous medals and trophies. However, instead of running, he now competes in hand cycling races, by using physical upper body strength to race with his hands and thus moving a wheelchair forward. This new undertaking has led him to claim numerous medals and trophies in this respective field. Maseko has proven to be a true inspiration and a role model for disabled people, going the extra mile to help others. Today Maseko plays a key role in encouraging and creating opportunities for disabled people to participate and compete in hand cycling races. He has already formed a team for disabled hand cyclists called `Isukile’. “Much more needs to be done to create opportunities for disabled people in sports,” he however says. He has, up to now, received six bikes, imported from the US, designed for people who use wheelchairs. These will be used to promote the sport. He recently finished first in the SAP Striders Heritage Challenge 21,1km meet in Durban. Story Adapted. SAP Stryders Athletics in Action A strong contingency of athletes from all over the country recently took part in the fourth SAP Striders Heritage Challenge 21,1km R/W 10km R/W challenge at Kings Park Athletics Stadium in Durban. The Khuthazimpilo Athletics Sports Club from Newcastle had over thirty participants with disabilities. Sheer determination and will power won the day when most of the athletes finished the 10km leg of the race despite not having the right racing equipment. The team is part of an NPO that strives to make a difference in their region through sports and self uplifting economic projects. For more of their activities, contact Bhekithemba Sibiya on 071 479 3822 or email: gugulethusp@webmail.co.za Visit www.thisability.co.za for more information and stories