Annual Report 2009-2010
Transcription
Annual Report 2009-2010
Children's Heart Foundation Annual Report 2009-2010 Address: Tel Fax E-mail Website : : : : Flat A, 5th Floor, 122 Pokfulam Road, Hong Kong 2553 0331 2553 4886 chf@childheart.org.hk www.childheart.org.hk Children’s Heart Foundation P. 1 Children’s Heart Foundation Table of Contents Contents Introduction on the Foundation Page P.2 Services P.3 – P.5 Organizational Structure P.6 – P.8 Message of the Chairlady P.9 – P.12 Notice of Annual General Meeting P.13 Major Members’ Activities 2009/2010 P.14 – P.17 Major Fundraising Activities 2009/2010 P.18 – P.20 Major Medical Exchange Programme 2009/2010 P.21 Statistics P.22 – P.27 Report of Executive Committee P.28 – P.29 Report of the Honorary Auditor P.30 – P.31 Income and Expenditure Statement P.32 Balance Sheet P.33 Statement of Changes in Fund P.34 Cash Flow Statement P.35 Notes on the Financial Statements P.36 – P.47 P. 2 Children’s Heart Foundation Introduction The Children’s Heart Foundation (CHF) was originally formed as a mutual support group for parents with children suffering from congenital heart disease with the support of doctors, nurses and medical social workers at the Cardiac Paediatric Unit of the Grantham Hospital. The parents realized that sharing experiences and information was a great benefit to all concerned. In 1994, the CHF was founded as a registered charitable organization devoted to supporting children suffering from heart disease and their families. Over the 15 years, the Foundation has grown from a small group of volunteers to an organization which has a team of full-time staff and subcommittees specializing in different issues related to children heart disease. Depending entirely on public support and donation, the volunteers and supports are the backbone of the Foundation for continuous success of CHF. Objectives 1. To raise public awareness about congenital heart disease. 2. To provide financial and psychological support to families with children suffering from congenital heart disease. 3. To support the development of technology and methods to detect and treat congenital heart disease. P. 3 Children’s Heart Foundation Services 1. Financial Support for Families Government subsidies do not cover special catheters, pacemakers, etc and the patients need to afford those expensive treatments and medical equipments by their own means. The CHF has provided support to hundreds of less well-off families through its Medical Financial Support Scheme to ensure children receive appropriate treatment. 2. Purchase of Medical Equipment New technology and medical breakthroughs are an essential part of improving treatment. The CHF helps upgrade existing facilities and services by purchasing the latest high-tech equipment, supplementing the services provided by the public hospitals. 3. Counseling Services All parents expect their baby to be born healthy. When they are told their child has a heart problem, the first reaction is fear; fear of the unknown and fear about the future. Mum and dad are full of questions - What’s wrong with my baby? What will happen next? Why did this happen? What treatment does the child need? The CHF provides counseling and support services for parents who need help. 4. House of The Heart When a child is admitted to hospital for heart surgery or treatment, parents face enormous difficulties and endure great stress. While parents try to look after their hospitalized child as best they can, they also need a place to rest. The House of the Heart (HOH), located just a few minutes walk from Queen Mary Hospital, allows parents to get a good night’s sleep and spend more time with their children. They can freshen up during the day, take a shower or just take time out to relax. It also reduces the amount of time parents spend travelling to and from the hospital. P. 4 Children’s Heart Foundation Services 5. Educational Programmes Most people have never heard of congenital heart disease, despite it being one of the most common congenital problems among children. Through various educational programmes and exhibitions, the CHF promotes public awareness about heart health and raises support in the community for these special children. The CHF also organises special talks so parents can learn more about caring for children with heart disease, nutritional issues and child development. 6. Parents Support Group There are many different types of problems associated with congenital heart disease and the CHF’s parents support group meets regularly to provide a channel to discuss issues of concern. Caring for these special children can be difficult and stressful, so talking to people who have the relevant experience, knowledge and understanding can give parents a sense of belonging. Parents often feel helpless, so it is a real comfort to be able to share their anxiety with others who have been through a similar experience. The CHF works to promote self help and mutual support between these families. Parents can share their experiences at the wards, in the support group meetings and during other activities. This is an effective way of enhancing communications between parents at a very difficult time. 7. Ward Visits Hospitalisation is always stressful and painful for both the children and their families. Unfortunately, spending time in hospital is a common occurrence for children with heart disease. Ward visits by professional teams and trained volunteers are essential as they stimulate the children’s development and facilitate positive thinking among parents. Volunteers help with artwork, reading and storytelling, while parent volunteers share their personal experiences, giving other parents the confidence to face the challenges ahead. P. 5 Children’s Heart Foundation Services 8. Developmental Programmes Because of their physical limitations, some children with heart disease encounter learning problems which affect their education, social lives and psychological development. The CHF organises a variety of programmes like the children’s choir, art workshops and leadership training programmes. As they have a lot in common, the children feel comfortable taking part in these activities together. The CHF also organises outdoor and indoor activities such as camping to strengthen the parent-child relationship and boost self confidence. 9. Medical Development And Exchange The CHF brings overseas surgeons and cardiologists to Hong Kong to share their experience with local medical staff. This is of vital importance as it helps staff keep up with all the latest advances in treatment and medical technology. The CHF also sponsors medical staff to receive further training and attend local and overseas seminars and conferences. Through Queen Mary Hospital, the CHF now provides funding so medical staff from mainland China can receive training in Hong Kong. 10. Research The CHF provides funding for research into congenital heart disease. P. 6 Children’s Heart Foundation Organizational Structure 1 Honorary Patron Honorary Advisors Executive Committee Administration & Finance Sub-committee Honorary Legal Advisor Publicity & Publications Sub-committee Fundraising Sub-committee Patient, Parent & Volunteer Support Sub-committee Medical Assessment Sub-committee Medical Development & Exchange Sub-committee Executive Committee Members 2009-2010 Hon. Patron : The Hon. Selina CHOW, JP Hon. Advisors : Mr. Duncan W. PESCOD, JP : Dr. Lawrence LAI, JP Hon. Legal Advisor : Mr. Andy KUNG Chairlady : Ms. Jenny Y.F. CHENG Vice Chairman : Dr. Adolphus K.T. CHAU : Ms. Christine W.C. HO Secretary : Ms. Angela M.Y. LAU Treasurer : Ms. Monica K.T. WOO Members : Ms. W.K. AU : Mrs. Yasmin MAHBOOBANI : Dr. K.T. WONG : Dr. T.C. YUNG : Ms. Christine M.W. YIP : Dr. David ZWEIG Hon. Auditor : KPMG P. 7 Children’s Heart Foundation Organizational Structure 2 Administration and Finance Sub-committee 2009-2010 Chairperson Member : : : : : : : Ms. Christine M.W. YIP Ms. W. K. AU Ms. Christine W.C. HO Mr. K.S. LEUNG Mr. Jack Y.H. LO Ms. Monica K.T. WOO Mr. Charles K.B. YEE Fundraising Sub-committee 2009-2010 Co-Chairperson Member : : : : Dr. David ZWEIG Mrs. Yasmin MAHBOOBANI Ms. Christie M.S. WO Ms. Anna H.M. YAU Publicity and Publications Sub-committee 2009-2010 Chairperson Member : : : : Dr. K.T. WONG Mr. Charles Y. K. LEE Mr. Jonathan MARSH Ms. Christine M.W. YIP Medical Assessment Sub-committee 2009-2010 Consultant Chairperson Member : : : : Dr. Adolphus K.T. CHAU Dr. T.C. YUNG Ms. Angela M.Y. LAU Ms. Christine W.C. HO P. 8 Children’s Heart Foundation Organizational Structure 3 Patient, Parent and Volunteer Support Sub-committee 2009-2010 Chairperson Member : : : : : : : : : : : : : : : : : : : : : Ms. Christine W.C. HO Ms. W. K. AU Ms. Rachel S.P. CHEUNG Ms. Helen L.S. HO Mr. Nelson C.C. HO Ms. K.K. KOON Ms. Cinda H.L LAI Ms. Connie Y.L. LAU Mr. Charles Y. K. LEE Mr. K.S. LEUNG Mr. Raymond H.C. LEUNG Mr. Jack Y.H. LO Ms. Lolitter S.K. NG Ms. Gigi F.C. SO Ms. Sony H.N. SO Ms. Suyi F.Y. SO Mr. Ken M.K. WONG Ms. Monica K.T. WOO Mr. Charles K.B. YEE Ms. Christine M.W. YIP Mr. Henry L.Y. YUEN Medical Development and Exchange Sub-committee 2009-2010 Chairperson Member : : : : : : Dr. Adolphus K.T. CHAU Ms. W. K. AU Ms. Christine W.C. HO Ms. Angela M.Y. LAU Dr. T.C. YUNG Dr. David ZWEIG P. 9 Children’s Heart Foundation Message of Chairlady Going from strength to strength It has been an enormous pleasure to be the Chairperson of the Children’s Heart Foundation on the occasion of its 15th anniversary. It is a very special year, marked by a remarkable variety of programmes and celebrations. I am delighted to report that the CHF is in position of great strength and can look forward to a wonderful future. I would like to start by reviewing our series of celebrations. Our 15th anniversary gala dinner held on 29 September 2010 at the Aberdeen Marina Club was a great success. We were honoured to have Ms. Sandra Lee, the Permanent Sectary of Food and Health Bureau, as the Guest of Honour. She joined our Honorary Patron, Mrs. Selina Chow, a founding member of the CHF, Dr. Maurice Leung, the Hospital Chief Executive of Queen Mary Hospital, Dr. C. C. Luk, and number of other prominent members of the community. The CHF children’s choir, a Shanghai Tang fashion show, salsa dancing and live music made it an occasion to remember. We raised over HK$350,000 on the night. We have also published a special booklet to celebrate our anniversary. It looks at the development of the Foundation and includes a collection of moving, inspirational stories about our children, parents and volunteers. I must thank Mr. Jon Marsh, Mr. Charles Lee, the editorial group and all the volunteers who contributed to the production of the booklet. Please make sure you read a copy of this excellent publication. As well as celebrating the anniversary with CHF donors and supporters, we have of course also shared the occasion with our members, children and families through a number of anniversary programmes, including the fun day at Disneyland and a 15th anniversary camp. It’s been a busy time for the CHF. We have introduced new services for our parents and children, including a talk on developmental needs from a psychological point of view, adventure based camping for young adults, ward visit training workshops, a bakery workshop, parent-child relationship camping and a variety of different outings. P. 10 Children’s Heart Foundation Message of Chairlady Going from strength to strength Together with the children’ choir, summer camps, heart health talks and other tailor-made programmes, we are making great efforts to enhance the development of children and empower our parents to face the challenges of their daily lives. It is particularly encouraging to report that the exhibition on children’s heart health on October 23-24 at the Fashion World in Wonderful Worlds of was a great success. About 3,000 people viewed the exhibition and almost 1,000 people participated in the free medical health check service. We were delighted to have Ms. Toby Leung, Mr. Kanin Ngo, Ms. Joyce Tang and Ms. Vangie Tang there as exhibition ambassadors and we would particularly like to thank Ms. Yoyo Mung for her generous support over the year. I am pleased to share with you that more exhibitions on heart health will be held in the coming months to educate the public and promote public awareness about children heart disease. In line with our mission, the CHF continues to dedicate considerable efforts to medical services. Following the relocation of the Department of Pediatric Cardiology, we are delighted to have established a partnership with the Queen Mary Hospital (QMH) in providing financial support for patients and sponsoring medical equipment for children with heart disease. The Medical Financial Support Scheme (MFSS) was officially implemented at QMH in August 2009. The CHF has recently confirmed it will extend the sponsorship coverage to drug treatment for congenital heart disease to ensure children receive the appropriate treatment, at the same time easing the financial burden on their parents. You will no doubt be aware that over the years the CHF has spent a substantial amount of money on purchasing specialist equipment, including Holter Monitoring Systems and 24-Ambulatory Electrocardiographic Monitors. As part of its medical advocacy work, the CHF is pleased to have sponsored leading surgeon Dr. Victor Tsang to operate on two complicated cases in Hong Kong early this year. The CHF has also sponsored the training of local medical staff. One of our most important sponsorship projects is the three-year research study by Dr. Flora Tsang on the subject of “The impact of volume overload on right ventricular dead cell”. We look P. 11 Children’s Heart Foundation Message of Chairlady Going from strength to strength forward to seeing the important findings from this research that will help diagnose and treat congenital heart disease. Thousands of children and their families have benefited from the CHF’s charitable services. This would have not been possible without the staunch support of our corporate sponsors, including Quality Health Care Medical Services, Mattel, Charmonde Watches, Hasbro Far East, the Ohel Leah Synagogue Charity, Yip’s Chemical Holdings and Swire Resources, to name a few. In particular, I would like to thank the Nu Skin Enterprises Inc. for their loyal support since 2003. The Children’s Heart Programme has enabled between seven and 10 children to benefited from homograft treatment each year. I would also like to extend my sincere heartfelt thanks to Standard Chartered Bank, our very first corporate sponsor who helped establish the Children’s Heart Foundation. I thank them for their continued support through various programmes like the bulk mailing campaign, the SCB flea market donation and credit card bonus point donations. We appreciate the loyal support of these corporations, who are an important part of our support network. As you may be aware, the CHF has had a representative on the steering committee of the Centre of Excellence in Pediatric (CEP) project since 2008. Over the last year, the CHF has worked hard to reflect the needs of parents and children. Our eventual goal is to be able to arrange for a social worker and play therapist to help the children in hospital. I have not been able to cover all the projects and events of the last year. Nor have I been able to mention all those who have supported us – there are simply too many of you. I must, however, express my appreciation and admiration for all your efforts. Through your support, we have been able to make a difference to the lives of children suffering from a wide range of congenital heart diseases. Thank you! P. 12 Children’s Heart Foundation Message of Chairlady Going from strength to strength As one of the founding members of the Foundation, I never dreamed that one day I would be the chair. It is indeed a privilege as we have always had strong leadership to take us forward. Thanks to the contribution of former chairs the foundation has gone from strength to strength, while always looking for new ways to strengthen our programmes. I must admit that the Executive Committee 2009/2010 has put in triple efforts in filling the gaps and consolidate the status of the Foundation. Those would never be easy tasks especially for myself, who is just an ordinary parent of two children suffering from congenital heart disease. I am passionate about making a contribution to helping others in the same position. Let me say that I would not have been able to achieve anything without the support of the Executive Committee. First, we are delighted that Yasmin and David will continue as the chairs of the fund-raising subcommittee. The CHF is pleased to have Ms. Angela Lau contributing her talent, valuable ideas and experience to the work of the CHF. Together, they are as important as the petrol that gives energy to the engine of a car. Equally important, we are glad to have the support of the medical professionals who provide advice and suggestions, helping the advocacy work of the CHF. All the programmes, events and projects that we carry out depend on the contributions from a wide variety of people. Many of them, especially our parents, patients and the volunteers, work tirelessly to make our events successful and ask nothing in return. Their selfless dedication, hard work and commitment to the children are truly inspirational. Given the complicated situation of my son’s heart problem, I care about even the smallest development related to the treatment of heart disease and any progress that can benefit our special children. My heart is committed to every child with heart disease and their families, no matter what their country of origin or background. P. 13 Children’s Heart Foundation Message of Chairlady Going from strength to strength Looking ahead, I am confident that the CHF is well placed to continue to expand its range of activities in a measured and steady manner. I am very proud to share that our next mission is to set up our Parents Resource Centre, a convenient place for parents and patients to meet and obtain help and support. Finally, I want to thank all the members of the Executive Committee, our parents, children and other supporters for their efforts over the year. If I have not covered everyone who has been involved, forgive me. All I can say is that while you may be unsung, your efforts are most definitely recognised and greatly appreciated. P. 14 Children’s Heart Foundation P. 15 Children’s Heart Foundation Members’ Activities 2009/2010 Year 2009 Month Events Feb Eugene Group-Children’s Educational Exhibition Feb Talk: More on Congenital Heart Disease Feb One World, One HeartCard Design Competition and Presentation Mar New Year Gathering 09 Healthy Heart Mar Afternoon Tea Gathering Mar “Friends of CHF” Volunteer Launching Ceremony Apr Toy Bank Children’s Fun Day Apr Happy Easter Cheers May Children Charities Carnival 2009 May Training Workshops for CARETEAM and Play with Love Team May 15th Anniversary-Fun Day at Disneyland May Be a little Cook Jun-Jul Workshop: Know about the Service Target Jul Wonderful Healthy Family Day Jul-Aug Super Kids-Multiple Intelligence Development Group Jul-Dec CHF Children Choir Aug Summer Camp: Appreciation Makes Life Easy Sept Promotional Talk on CHF P. 16 Children’s Heart Foundation Members’ Activities 2009/2010 Year 2009 Month Events Sept Annual General Meeting 2008/2009 Sept Mattel’s Ocean Park Visit Sept Mattel’s Cooking Fun Oct Mattel’s Sharing Party Oct Cook For You Dec Camp: Let's work for future together Dec Christmas Party 2009 P. 17 Children’s Heart Foundation Members’ Activities 2009/2010 Year 2010 Month Events Jan Friends of CHF : Presentation Ceremony and Gathering Feb New Year Gathering Mar Caring Company Exhibition Mar Toy Bank Children Fun Day By HK Productivity Council Apr Talk: Basic First Aid and CPR for children Apr Healthy Life Camp Apr Visit to Noah's Ark Apr We Can: Visit to Yakult Factory May Peegaboo Group-Baby, Children & Family Expo May Disneyland May Adventure Camp for F.1-F.4 June Training Workshop for ward visit June Leadership Training Adventure Camp June Meet in Disneyland July Nu Skin -the Works of Dessert July Bakery Fun July Summer Camp July Overnight Adventure Camp P. 18 Children’s Heart Foundation Members’ Activities 2009/2010 Year 2010 Month Events Aug We Can: Making Pizza Aug Ocean Park: Ocean Explorer Oct Visit to Cathay Pacific City P. 19 Children’s Heart Foundation Fundraising Events 2009/2010 Year 2009 Month Events Jan NE Mountain Marathon 2009 Apr Bulk Mailing Campaign 2009Hong Kong And China Gas Company Limited May Bulk Mailing Campaign 2009DBS Bank(Hong Kong) Limited Apr Disneyland EARS Contribution May Children Charities Carnival 2009 Jul Goldmans Sachs Donation Scheme Jul Bulk Mailing Campaign 2009Standard Chartered Bank (Hong Kong) Limited Aug Charmonde Donation Scheme Aug Christie Wu Birthday Donation Oct Richard Cordon Birthday Donation Nov Heart-to-Heart Charity Walk 2009 Nov Bulking Mailing Campaign with Standard Chartered Bank (HK) Ltd. Dec St. Thomas Catholic Kindergarten Christmas Bazaar Dec Charity Sale of Greeting Cards P. 20 Children’s Heart Foundation Fundraising Events 2009/2010 Year 2009 Month Jan-Dec Events Standard Chartered BankCredit Card Bonus Point donation program Jan-Dec Corporate Donation Project 2009 Jan-Dec SCB Flea Market Donation Jan-Dec Bulking Mailing Campaign with HK and China Gas Company Ltd. Jan-Dec Bulking Mailing Campaign with DBS Bank Jan-Dec Placing CHF Donation Box P. 21 Children’s Heart Foundation Fundraising Events 2009/2010 Year 2010 Month Events Jan North East Mountain Marathon 2010 Mar South Island School The Innovation Fashion Show May Learning Plus 10th Anniversary Charity Party Sept CHF 15th Anniversary Gala Dinner Jan-Dec Corporate Donation Project 2010 Jan-Dec SCB Flea Market Donation Jan-Dec Placing CHF Donation Box P. 22 Children’s Heart Foundation Medical Training and Development Programme 2009/2010 Year 2009 Date Jul 2009 Programme’s Projects CHF Medical Training Project 2009-Cardiac Nursing Course (Pre-specialty level) Year 2010 Date Programme’s Projects Mar 2010 Medical Exchange Programme-Dr. Victor Tsang Visit April 2010 Sponsorship on a Medical Research: The Impact of Volume Overload on Right Ventricular Cell Death. May 2010 Medical Exchange Programme-Dr. Victor Tsang Visit P. 23 Children’s Heart Foundation Statistics Report – 1 Expenditure on Sponsorship for Medical Financial Support Scheme 1995-2009 金額 Amount Remarks: 1) Relocation of Hospital decreased the number of operations. 2) The numbers of operations and funding varies according to the cases and operation. P. 24 Children’s Heart Foundation Statistic Report – 2 Spending on Medical Financial Support Scheme Remarks: 1) Most the beneficiaries shall pass the mean test conducted by the medical social workers. 2) The Nitric Oxide treatment was initiated by the CHF. The year of evidence proved the effectiveness of the treatment that the Government took up the responsibility from the CHF in 2007. P. 25 Children’s Heart Foundation Statistic Report – 3 Distribution of Sponsorship on Medical Aspects in 2009 P. 26 Children’s Heart Foundation Statistic Report - 4 Number of Guest Nights & Cumulative Guest Nights of House of the Heart 人數 No. Of Guest Night 年份 Year 2001 2002 2003 2004 2005 2006 2007 2008 2009 775 1,036 723 860 1,119 1,105 858 899 1,729 775 1,811 2,534 3,394 4,513 5,618 6,476 7375 9104 使用人次 Number of Guest Nights 慮積使用人次 Cumulative Number of Guest Nights P. 27 Children’s Heart Foundation Statistic Report - 5 Income and Expenditure of House of the Heart 年份 Year 2001 全年支出 Yearly Expenditure 全年收入 Yearly Income 2002 2003 2004 2005 2006 2007 2008 2009 $269,106 $214,716 $212,840 $216,473 $218,938 $292,647 $178,250 $286,762 $402,720 $39,660 $59,398 $42,100 $54,580 $69,980 $71,830 $54,800 $62,250 $119,230 金額 Amount P. 28 Children’s Heart Foundation Statistic Report - 6 Expenditure on Educational Programme & Members’ Activities 年份 Year 金額 Amount P. 29 Children’s Heart Foundation P. 30 Children’s Heart Foundation P. 31 Children’s Heart Foundation P. 32 Children’s Heart Foundation P. 33 Children’s Heart Foundation P. 34 Children’s Heart Foundation P. 35 Children’s Heart Foundation P. 36 Children’s Heart Foundation P. 37 Children’s Heart Foundation P. 38 Children’s Heart Foundation P. 39 Children’s Heart Foundation P. 40 Children’s Heart Foundation P. 41 Children’s Heart Foundation P. 42 Children’s Heart Foundation P. 43 Children’s Heart Foundation P. 44 Children’s Heart Foundation P. 45 Children’s Heart Foundation P. 46 Children’s Heart Foundation P. 47 Children’s Heart Foundation P. 48 Children’s Heart Foundation P. 49 Children’s Heart Foundation P. 50 Children’s Heart Foundation P. 51