The Up Side of Downs of Northeast Ohio

Transcription

2016
15 Years of the Northeast Ohio Buddy Walk
Supporting & Celebrating Down Syndrome in Northeast Ohio
USOD Mission:
To provide support, education,
and advocacy for people with
Down syndrome, their families
and communities.
USOD Vision:
The Up Side of Downs is the
primary resource for families
and communities regarding
Down syndrome, where all
people are accepted, included
and empowered. The Up Side
of Downs envisions a
community where people with
Down syndrome have limitless
opportunities and the ability
to pursue their dreams.
Here are some of the
Buddies turning 15 in 2015:
Samantha C
Moses H
Joseph R
Jasmine H
Madeline G
Mariana R
Ryan Y
Haley S
Antonio (Tony) M
Jonathan C
Ian C
Ella H
Chad C
Adam O
Vivien H
Ryan B
Luke A
Zachary S
Cedric E
Liam V
Natalie M
Dain C
Claire Grace N
Deacon C
Jenna S
Julie S
Here are some of the new
Buddies we welcomed to
the USOD in the past year!
Dates to Come:
DateEvent NameLocationContact
September TBDLearning ProgramTBDgina@usod.org
September 20, 2015Walking ClubYours Truly, Indpendencelinda@usod.org
September 27, 2015Patterson Fall Family FestivalPatterson Farmsbarbw@usod.org
October 4, 2015
Family Fall Festival at Golf Improvement Center
Medina
barbw@usod.org
October 14, 2015
Pathways to Success Conference Featuring Paula Kluth
Crowne Plaza Independence
gina@usod.org
October 18, 2015Walking ClubYours Truly, Indpendencelinda@usod.org
December TBDPolar ExpressCuyahoga Valley Scenic Railroad
barbw@usod.org
December 6, 2015Holiday Party Holiday Inn Indpendencebarbw@usod.org
December 30, 2015Elf the MusicalPlayhouse Squarebarbw@usod.org
Stefania Rosciszewski Age 8
Genevieve Burke Age 9 Best Buddies
Stefania and Genevieve are the best
of friends! Some of their favorite things
to do together are going to the park,
swimming, watching movies, playing
dress up and just hanging out. They love
to have sleepovers and to stay up late
giggling. These two girls are definitely
Bosom Buddies.
Buddy photography provided by photographer Pamela Crouse.
JANUARY 2016
SUNDAY
USOD welcomes
over thirty new
families each year
throughout
Northeast Ohio.
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TUESDAY
DECEMBER 2015
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11
12
7
Grandparent Support Group,
10-11:30am
Akron Family Play Group, 7-9pm
17
18
13
Parents of Adults with
Ds Group, 7-9pm
19
25
2
8
9
Cleveland Mom’s Night Out
7-9pm
14
15
16
22
23
29
30
Medina Mom’s Night Out
7-9pm
20
Westside Baby & Toddler Play
Group, 6:30-8:30pm
Martin Luther King, Jr. Day (U.S.)
24
1
SATURDAY
New Year’s Day
Karaoke, 6-9pm
10
FRIDAY
21
D.A.D.S. Group, 7-9pm
26
27
28
31
Calendar events listed are subject to change. Please visit our website at www.usod.org for upcoming events.
Proud Presenting Sponsor
of the Buddy Walk:
Parent to Parent Network
As soon as USOD
is informed of a new baby
with Down syndrome, our New Parent
Outreach Coordinator contacts the parents
to offer support, friendship, books and
information on how to receive support
from the USOD and other
local resources.
Annie Groszek Age 25 Annie Says Adult
Independence is
Cool!
Annie is a beautiful 25 year old young
lady who has a dual diagnosis of Down
syndrome and Autism. She loves sitting in
the sunshine, the outdoors, her pom poms,
listening to the Mayfield Marching band and
living with her good friends at Monarch Hall.
Annie enjoys fully supported independence
and her family couldn’t be prouder! Annie
proves that adulthood rocks.
FEBRUARY 2016
SUNDAY
In 2015, 40 families
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WEDNESDAY THURSDAY
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FRIDAY
SATURDAY
4
5
6
11
12
13
attended USOD’s
pilot of The Learning
Program.
Karaoke, 6-9pm
7
8
9
Grandparent Support Group
10-11:30
Ds Group, 7-9pm
Family Day (British Columbia)
14
Valentine’s Day
15
10
Mardi Gras
16
Ash Wednesday
17
Westside Baby & Toddler
Play Group, 6:30-8:30pm
President’s Day (U.S.)
21
22
28
29
7-9pm
18
7-9pm
19
20
26
27
23
24
25
JANUARY 2016
MARCH 2016
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Medina
5050 Eastpointe Dr.
330-764-WING(9464)
Strongsville
8465 Pearl Rd.
440-243-WING(9464)
Warrensville
26200 Harvard Rd.
216-896-WING(9464)
Online Yahoo
Parent Support
Group
Northeast Ohio families are
encouraged to join to share ideas,
ask questions and offer support.
MARCH 2016
SUNDAY
Down syndrome
occurs when an
MONDAY
TUESDAY
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WEDNESDAY THURSDAY
2
individual has three,
rather than two,
copies of the 21st
chromosome.
6
8
9
Ds Group, 7-9pm
14
15
21
Spring Equinox
Palm Sunday
27
4
5
10
11
12
16
17
7-9pm
18
19
25
26
St. Patrick’s Day
22
23
24
Westside Baby & Toddler Play
Group, 6:30-8:30pm
28
Easter
3
7-9pm
10-11:30am
Daylight Savings Time Begins Akron Family Play Group, 7-9pm
20
SATURDAY
Karaoke, 6-9pm
7
13
FRIDAY
Good Friday
29
Easter Monday (Can.)
30
31
FEBRUARY 2016
APRIL 2016
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Proud Sponsor of the
Buddy Walk:
Dress Down
For Downs
Dress Down for Down
Syndrome Day is a great
motivator and morale
booster for employees,
while promoting unity for
a great cause.
Emily Alexander Age 29 Miss April
Emily attended Mentor Public Schools and
was the first student with Down syndrome
totally included with an IEP. She lives at
home with her parents and has a very
active social life. Emily and her boyfriend
of 14 years, Michael, participate in many
activities, through Lake Metroparks, boating, jazzercise, bowling, yoga and karaoke. She is an avid snow skier, attends all
USOD dances and karaoke nights, and
even starred in a music video for the band
DREDG. Emily attends alumni camp at Camp
Sue Osborne each summer and loves working at Willoughby Workshop. In her spare
time, Emily models Downs Designs blue
jeans and has been seen all over the world
on their website.
APRIL 2016
SUNDAY
MONDAY
MARCH 2016
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TUESDAY
expectancy
for
Life
people with Down
syndrome has increased
dramatically in recent
decades - from 25 in
1983 to 60 today.
5
WEDNESDAY THURSDAY
The Arc
2421 Community College Avenue
Cleveland, OH 44115
11
12
10-11:30
17
18
For people with intellectual and developmental disabilities
April Fool’s Day
6
7
13
25
8
9
7-9pm
14
15
16
22
23
29
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7-9pm
20
24
2
www.thearcofgreatercleveland.org
Ds Group, 7-9pm
19
1
SATURDAY
T 216 622-0755 F 216 736-3393
Karaoke, 6-9pm
10
FRIDAY
21
26
27
28
Passover
Begins at Sundown
Michelle Martin, Ed.S.
Founder & Director
Tae Kwon Do Fusion
Also


And Social Skills Groups
Testing & IEP’s
School Advocacy
Call Today 216-765-4470
$25 OF
with th F
is ad
www.insight-wellness.com
Mind•Body•Soul is a
program designed to
provide support to adults
with Down syndrome in
Northeast Ohio through
life skills training and ongoing social opportunities.
Abigail Roth Age 6 Our Disney Actress
Abby likes many things – French fries,
playing in the park and giving hugs to name
a few. But her absolute favorite thing to do
is to watch and act out movies! Her many
starring roles include such films as Tangled,
The Princess and the Frog, Frozen and many
more! Abby’s current favorites are Hercules
and Big Hero 6. Whether it’s speaking every
line, acting out every scene, giving all of
her family members characters - Daddy
is Zeus, Mommy is Hera, Lexie is Meg,
Jasmine, our dog, is Pegasus, and of course
Abby is Hercules - or singing along with
every song, she gets great joy and pride
from her movies. We look forward to
seeing her perform on the stage soon!
MAY 2016
SUNDAY
1
MONDAY
2
TUESDAY
3
WEDNESDAY THURSDAY
4
FRIDAY
SATURDAY
5
6
7
12
13
14
Karaoke, 6-9pm
8
9
10
10-11:30
Mother’s Day
15
16
We’ll be at the
Rite Aid Marathon, join us!
22
11
Ds Group, 7-9pm
17
7-9pm
18
23
19
7-9pm
20
21
24
25
26
Armed Forces Day
27
28
Victoria Day (Can.)
29
30
31
Memorial Day (U.S.)
APRIL 2016
Thank you to the
hundreds of volunteers
who support us
throughout the year.
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JUNE 2016
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In gratitude for all the
children
and families that we serve
Parents Night Out
Monthly meetings are held in various
locations throughout our service area.
These meetings are informal and
give parents an opportunity to
relax and discuss various issues
relating to their children.
www.pctohio.com
Moira Kreutzer Age 16 Months
Come Play in the
Sun with Moira!
Moira is a 16 month old beauty who took
the world by storm with her surprise arrival
4 weeks early. She carried with her another
surprise for our family—she was blessed
with an extra chromosome! Moira is
energetic, clever, silly, loving and sassy.
She enjoys playing with her 16 year old
brother and 10 year old sister. She loves
to crawl all over the place and especially
over to play in the dog’s water dish.
Having Moira in our lives has been the
most amazing and wonderful experience.
We truly feel like we won the lottery!
JUNE 2016
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10
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Annually over
400 attend USOD
support groups.
Karaoke, 6-9pm
5
6
7
8
7-9pm
12
13
14
Ds Group, 7-9pm
Flag Day (U.S.)
10-11:30
19
20
Father’s Day
15
21
16
7-9pm
17
18
24
25
22
23
29
30
Summer Solstice
26 27 28
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JULY 2016
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D.A.D.S. Group
20965 Clemens Rd., Westlake, OH 44145
rehmann.com | 440.250.7960
This monthly meeting is volunteer-run, with a focus on fathers,
and is designed to give them an outlet to talk about their
children with Down syndrome, support each other and plan
various fundraising and social events.
Meghan Drops Age 26 Dancing is in my
blood!
I’m Meghan Drops and dancing is in my
blood! I’ve been dancing since I was five
and haven’t stopped. I’ve trained in classical
Ballet, Modern, Contemporary, Spanish,
Character, Hip Hop and Tap. I enjoy being on
stage and have performed at the Allen, Ohio
& State Theaters. Currently, I take classes with
The Dancing Wheels Company & School and
am in their Performance Ensemble. I work
three days a week at Just A Buck, am involved
in the Special Olympics sports of figure
skating, golf, swimming and bicycling
and serve as secretary for People First of
Cuyahoga County and the Westlake Aktion
Club. See you on the dance floor!
JULY 2016
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MONDAY
JUNE 2016
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There are more than
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7
13
Ds Group, 7-9pm
19
25
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8
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Our mission is to provide job placement, job
coaching, and support in the work place.
8578 East Washington Street
Chagrin Falls, OH 44023
440-384-3236
9
7-9pm
24
1
7-9pm
Karaoke, 6-9pm
10-11:30am
17
SATURDAY
Canada Day (Can.)
5
11
FRIDAY
400,000 people with
Down syndrome in
the United States.
Independence Day (U.S.)
10
WEDNESDAY THURSDAY
Cooper Barth Age 2
Cooper says
“It’s Play Time”
Two-year old Cooper is full of energy and
life. Whether it’s playing ball, with his trucks,
on the swing set, or cooking in the kitchen,
he always has a big smile on his face.
Cooper also enjoys swimming and is
learning to ride his bike. But what he loves
most of all is being around family and
friends and he’s always learning from his
big sister. If you see Cooper around town,
be ready for an excited wave, high five,
and a big hug!
AUGUST 2016
SUNDAY
Dempsey Scheiman
& Associates has raised
more than $110,000
through their annual
golf outing in support
of USOD programs
and services.
7
MONDAY
1
2
Civic Holiday (Can.)
8
15
WEDNESDAY THURSDAY
3
FRIDAY
SATURDAY
4
5
6
11
12
13
Karaoke, 6-9pm
9
10-11:30am
14
TUESDAY
10
Ds Group, 7-9pm
16
7-9pm
17
18
7-9pm
19
20
26
27
21
22
23
24
28
29
30
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25
JULY 2016
SEPTEMBER 2016
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Smart Start
Transitions
Kindergarten
Programs
Smart Start is presented for
parents of children between 4-6.
This comprehensive program
covers issues related to the transition
between preschool and kindergarten.
Kyle Collins Age 15
Let’s Wiggle!
Kyle is one of the happiest kids you’ll
ever meet. Kyle likes to laugh and makes
sure everyone is smiling and happy. Kyle
enjoys playing baseball and basketball.
Kyle loves The Wiggles and knows the
words and dance moves to every Wiggles
song! But even more than The Wiggles,
Kyle loves to spend time with his Grandpa.
They go to Bob Evans, go for walks in the
park and just hang out in the backyard.
Everyone who meets them can see how
Kyle and his Grandpa love one another.
Kyle will be a freshman at Nordonia High
School in the fall of 2015.
SEPTEMBER 2016
SUNDAY
MONDAY
Down syndrome is the
5
12
Patriot Day (U.S.)
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Karaoke, 6-9pm
14
Ds Group, 7-9pm
20
26
7-9pm
15
7-9pm
16
17
23
24
21
25
SATURDAY
1
13
10-11:30am
FRIDAY
OCTOBER 2016
Labor Day (U.S.)
Labour Day (Can.)
11
WEDNESDAY THURSDAY
AUGUST 2016
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most commonly
occurring and least
funded chromosomal
condition.
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22
Fall Equinox
27
28
29
30
encourages
Steppin’ with Stefania
With all of our love,
PaPaw and Grandma Kohlhorst
Send love through flowers, contact us at
www.sidneyflower.com
Grandparent
Support Group
Grandparents relax, have coffee
and discuss various topics relating
to their grandchildren including
school issues, behavior issues,
babysitting their grandchildren, etc.
OCTOBER 2016
SUNDAY
MONDAY
TUESDAY
WEDNESDAY THURSDAY
FRIDAY
SATURDAY
SEPTEMBER 2015
NOVEMBER
2015
1
2
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7
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Rosh Hashanah
Begins at Sundown
9
Karaoke, 6-9pm
10
11
10-11:30am
Columbus Day (U.S.)
Thanksgiving Day (Can.)
16
17
12
Ds Group, 7-9pm
Yom Kippur
Begins at Sundown
18
7-9pm
19
23
24
30
20
7-9pm
21
22
28
29
25
26
27
Halloween
31
New Parent Celebration Day
This is an annual celebration day in the Fall for all of the new
families that we have welcomed into our group that year. We
provide breakfast and have various speakers throughout the
morning, including parents, siblings and physicians.
Dani Chase Age 16 Sitting Pretty
Dani is lucky to have had many once-in-alifetime experiences in her 16 years! At age
12, she was cast in the television drama
Blue Bloods where she was on set in
New York City. At age 13, she was the
winner of the Top Model portion of the
National American Miss Pageant. At age
15, she was selected to be a model for the
Girl Scouts of America catalog, where she
again went to NYC for the very exciting
photo shoot. She loves to sing, act, dance
and model and she loves to tease her
family for fun. You never know what is
around the corner for Dani!
NOVEMBER 2016
SUNDAY
MONDAY
People with Down
syndrome attend school,
work, participate in
decisions that affect
them and contribute
to society in many
wonderful ways.
6
7
1
WEDNESDAY THURSDAY
2
8
9
Ds Group, 7-9pm
Election Day (U.S.)
14
15
16
4
5
10
11
12
21
22
28
17
7-9pm
Veterans Day (U.S.)
Remembrance Day (Can.)
18
19
25
26
23
27
SATURDAY
3
7-9pm
10-11:30am
20
FRIDAY
Karaoke, 6-9pm
Daylight Savings Time Ends
13
TUESDAY
24
Thanksgiving Day (U.S.)
29
30
OCTOBER 2016
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DECEMBER 2016
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No Rulz Art, LLC
Understanding from head to toe!
norulzart@aol.com
440.449.3237
USOD Disability
Awareness Programs
include: DS 101 and
Peer Presentations.
Abigail Grave LaPrairie Age 5
Santa’s Secret
Helper
Abigail is an easy going 5-year old with
a curious disposition. She enjoys her
surroundings and has a thirst for knowledge
whether it be at home, school or outdoors.
Being selected to be the December calendar girl is a perfect pairing! Her joy for life is
infectious and is like a child opening a new
gift on Christmas morning. She enjoys each
new day by learning new skills, playing and
exploring and spending time with family.
Abbey loves music, dancing, learning her
ABC’s & 123’s, baking and trying new things.
Abbey is a hands on learning machine that
makes you smile!
DECEMBER 2016
SUNDAY
NOVEMBER 2015
MONDAY
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JANUARY 2017
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TUESDAY
12
18
19
1
2
3
6
7
8
9
10
babies with Down
syndrome are born
to women under the
age of 35.
Karaoke, 6-9pm
20
Christmas Day
26
14
Ds Group, 7-9pm
25
SATURDAY
13
10-11:30am
FRIDAY
About 80 percent of
Pearl Harbor Day (U.S.)
11
WEDNESDAY THURSDAY
7-9pm
15
7-9pm
16
17
23
24
21
22
Hanukkah
Begins at Sundown
Christmas Eve
Winter Solstice
27
28
29
30
Kwanzaa Begins
Boxing Day (Can.)
31
New Year’s Eve
Baby and Toddler
Playgroup
These monthly get-togethers are
held throughout our service area
for parents who bring their babies
ages 0-3 to play, share information
and support each other.
Eve Sivertson Age 10
Tiny Dancer
Eve loves to dance! She’s attends ballet
class at The Dance Step and takes private
lessons with her 2 sisters. In a recent
dance recital, she performed a dance
with her ballet class and a trio dance with
her sisters. Eve also loves cheerleading
with MCE adapted cheer. Her team, The
Superstars, performs at local cheerleading
competitions. Some of Eve’s other favorite
things to do include reading, going to
school, writing in her journal, art, shopping,
camping, Girl Scouts, swimming and
hanging out with friends and family.
Eve has many friends and a busy social
calendar! She’s a very smart, sweet, silly,
sassy, and special girl!
JANUARY 2017
SUNDAY
1
MONDAY
2
TUESDAY
3
New Year’s Day
8
4
FRIDAY
SATURDAY
5
6
7
12
13
14
Karaoke, 6-9pm
9
10
10-11:30am
15
WEDNESDAY THURSDAY
16
11
Ds Group, 7-9pm
17
7-9pm
18
Martin Luther King, Jr. Day (U.S.)
19
Cleveland Mom’s Night Out,
7-9pm
20
21
27
28
22
23
24
29
30
31
25
26
DECEMBER 2016
Down syndrome
occurs in people
of all races and
economic levels.
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FEBRUARY 2017
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The Learning Program uses research-based teaching strategies
and customized materials to support families and teachers in
the educational process. The Learning Program complements
formal instruction in literacy and math, with occupational and
speech therapy components.
Grayson Casey Age 3
Anything is Possible
with Sunshine +
Grayson!
At 3 years old, Grayson is a burst of pure
sunshine! Always up for a game of chase –
don’t turn your head or he’ll flash that devious grin and off he runs! He enjoys riding
his bike, swimming, and soaking up the
sun. He loves music, swinging on his swing
set and looking at family picture albums. His
favorite playmate is his big brother who is
five years old. Grayson’s next milestone is
to improve his speech and communication
skills. He attends therapy several times a
week, always with a smile and willingness
to learn! He loves everyone he meets –
mooches and waves are his specialty!
FEBRUARY 2017
SUNDAY
MONDAY
People with Down syndrome should always
be referred to as people first. Instead of
“a Down syndrome child,” it should be
a child with Down syndrome.” Also avoid
“Down’s child” and describing the condition
as “Down’s,” as in, “He has Down’s.”
5
6
TUESDAY
WEDNESDAY THURSDAY
1
2
8
9
7-9pm
12
13
14
10-11:30am
19
20
15
Ds Group, 7-9pm
Valentine’s Day
21
SATURDAY
3
4
10
11
Groundhog Day
Karaoke, 6-9pm
7
FRIDAY
16
7-9pm
17
18
24
25
22
23
President’s Day (U.S.)
Family Day (British Columbia)
26
27
28
Over 3,000 people
attend USOD social
programs throughout
the community
annually.
Mardi Gras
JANUARY 2017
SMTW T F S
1234 5 67
8 9 1011 12 1314
15161718 19 2021
22232425 26 2728
2930 31
MARCH 2017
SMTW T F S
1234
5678 91011
12131415 16 1718
19202122 23 2425
26272829 30 31
USOD is a proud supporter of:
Medical Outreach
USOD’s medical outreach program provides
information about Down syndrome to families as
well as pediatricians, obstetricians, nurses, social
workers, genetic counselors, midwives and other
healthcare providers seeking information. The
primary goal of this program is to ensure that all
parents and expectant parents with a possible
or actual diagnosis of Down syndrome are given
factual non-biased information with sensitivity and
support, including information about USOD.
MARCH 2017
SUNDAY
FEBRUARY 2017
SMTW T F S
1234
5678 91011
12131415 16 1718
19202122 23 2425
2627 28
5
MONDAY
APRIL 2017
SMTW T F S
1
2345 6 78
9 101112 13 1415
16171819 20 2122
23
30 242526 27 2829
6
TUESDAY
WEDNESDAY THURSDAY
1
94% of siblings to a child
3
4
9
10
11
with Down syndrome,
express feelings of pride
about their sibling.
Karaoke, 6-9pm
Ash Wednesday
7
Daylight Savings Time Begins
19
13
8
14
10-11:30am
20
26
27
15
Ds Group, 7-9pm
21
Spring Equinox
Palm Sunday
SATURDAY
2
7-9pm
12
FRIDAY
16
7-9pm
17
18
St. Patrick’s Day
22
23
24
29
30
31
25
World Down Syndrome
Awareness Day
28
Family Grant
Program
Twice a year USOD awards
medical or recreational
therapy support through
family grants.
Notes
Important Dates
Birthdays, Anniversaries & Other
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Creative design provided by

The Up Side of Downs of Northeast Ohio

Transcription

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