- Irish Wheelchair Association
Transcription
- Irish Wheelchair Association
spokeout_spring_cover:Layout 1 24/02/2010 16:02 Page 1 spokeout Lifestyle magazine for people with limited mobility published by the Irish Wheelchair Association €4.00 Spring 2010 In good hands CELEBRATING 50 YEARS OF THE IRISH WHEELCHAIR ASSOCIATION 50th Anniversary Creative Writing Competition Living the good life Munster sporting ambitions spokeout_spring_p1:Layout 1 24/02/2010 16:04 Page 1 Contents 20 COVER FEATURE 5 In good hands CEO Kathleen Mc Loughlin on the celebration of IWA’s 50th Anniversary 6 A true gentleman Oliver Murphy on the spirit behind the foundation of IWA and the ups and downs of his own life COMPETITION 9 Creative Writing Competition Details of our 50th Anniversary Creative Writing Competition FEATURES 25 Pilgrimage to Lourdes Daniella Hock recalls an emotional pilgrimage to Lourdes OPINION 27 A fresh perspective Zaynab Salman on living with a disability in Iraq MOTORING 34 New year, new car? The Scrappage Scheme and the potential deals to be struck LIVING 37 Employment incentives and opportunities Employment incentives available to people with disabilities 12 Reader recommendations Readers share info on their favourite products, as well as innovative 40 The good life ‘home-made’ access solutions Gary Allen gets to grips with the reality of growing his own veg 14 Out of the dark How Marian Moloney overcame 42 Gardens of the future her fear of losing her sight Reduce flood risk through intelligent garden design ACCESS 17 Pub life A cartoon take on some typical Friday-night-at-the-pub scenarios 19 A quick guide to accessible parking bays Practical considerations when providing accessible parking TRAVEL 20 Travels Down Under Kiara Lynch returns from her back-packing adventure in New Zealand and Australia 23 Holidaying at home Accessible accommodation in Ireland 44 SPORT 44 Munster ambition Paul Ryan on plans to promote Munster as a centre of accessible sporting excellence YOUTH 50 Hot wheels Youth member and volunteer Lorraine Maher, aka “Hot wheels” NEWS 52 IWA 50th Anniversary news News on 50th Anniversary events and fundraising initiatives 53 News mix Disability-related news mix 57 Regional snapshots What’s going on at IWA centres around the country REGULARS 59 Crossword Crossword No 7 by Gordius 59 Small ads Sell on items or pick up a bargain 49 Youth news Youth news mix 60 Your views Letters to the editor 12 See pages 29 – 32 for details and booking forms for IWA’s Annual Conference and AGM 2010. Postal vote details are on p53 spokeout 1 spokeout_spring_p2:Layout 1 24/02/2010 16:18 Page 2 introduction elcome to the spring 2010 issue. Our cover features Oliver Murphy, the only surviving founder member of IWA, together with 7-year-old Shane Barker from Donabate, one of IWA’s youngest members. Oliver and Shane met up in Dublin this month to pose for a new An Post stamp, which will be launched in September to celebrate IWA’s 50th Anniversary. As part of the 50th celebrations, we are also launching a Creative Writing Competition in partnership with the Irish Writers’ Centre. Aspiring writers can enter poetry, fiction or autobiographical non-fiction. We look forward to reading, and possibly publishing, your work. Hope you enjoy the issue, and please remember to get in touch if you have a story or opinion to share. W MEET SOME OF S… OUR CONTRIBUTOR Kiara Lynch Editorial assistant Kiara Lynch has just returned from an 11-week backpacking trip Down Under, which she tells us all about in this issue. Whilst away, Kiara got engaged to her boyfriend Nick, and she says she is “still getting used to wearing a sparkly ring!” With her savings blown by her amazing trip, Kiara says reading is the only pastime she can afford and she is currently engrossed in yet another Jodi Picoult book Handle with Care. Gary Allen Gary Allen lives in Galway with his wife and assortment of pets. As a professional web developer, he has his head stuck at a computer all day. But when he does manage to break free, he loves eating, reading, writing, scuba diving and sailing, and has a new found love of growing veg. In this issue, Gary tells us about the ups and downs of self-sufficiency. Zaynab Salman Joanna Marsden, Editor Spokeout on CD and tape Spokeout is now available on both tape and CD. If you would like to receive Spokeout in either of these formats, please contact Colette Molloy on 01 818 6485 or colette.molloy@iwa.ie Editor Joanna Marsden Cover picture Diarmuid Doran Editorial Assistance Kiara Lynch, Colette Molloy Distribution Shanahan Direct Editorial Design Manager Layla Hogan Joint Managing Directors, Dyflin Karen Hesse, Philip McGaley Advertising and Marketing Design Manager & Design this Issue Diarmuid O’Connor Editorial enquiries to: The Editor, Spokeout, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. Tel: (00 353) 1 818 6455 Email: spokeout@iwa.ie Advertising Production Co-ordinator Amina Ferradj Advertising Production Ciaran McBride Printing W&G Baird Ltd Cartoons Johnny Connaughton recycle When you have finished with this magazine please recycle it. 2 Advertising enquiries to: Dyflin Publications Ltd Cunningham House 130 Francis Street, Dublin 8 Tel: (00 353) 1 4167930 Spokeout is published by Dyflin Publications on behalf of I.W.A. Limited. The copyright rests with IWA and no material may be reproduced without the permission of IWA. The views expressed in the publication do not necessarily represent the views of IWA. Spokeout is distributed quarterly by post to 20,200 IWA members and to Government bodies and other disability interest groups. ISSN NO: 1393-8517 Zaynab Salman is a human rights and women’s rights activist. Originally from Iraq but living in Dublin, Zaynab still works with special needs organisations in Iraq via skype conferences. She is currently a media student at Ballsbridge College. Already a published writer in her own language, Zaynab recently undertook a work placement with Spokeout, during which she wrote an article on the differing attitudes to disability in Iraq and Ireland. Niall McDonnell Niall McDonnell has a passion for motoring, and, as the proud owner of a 67 Ford Mustang, he also has a love of vintage cars. Niall recently married his fiancée Kathryn with whom he loves to travel. They are hoping to have a motoring holiday in France later this year. In this issue, Niall considers whether now is a good time to upgrade your car. Colette Molloy Colette Molloy is a born and bred ‘Dub’. To relax, Colette loves knitting, crochet, crosswords, and attending dog shows with some of her five dogs. She works in IWA’s Communications Department and does a lot of behind the scenes work on Spokeout, including preparing the regional snapshots, holiday recommendations and the crossword. SUBSCRIBE NOW Please send your name, the name of your organisation (if applicable), address and telephone number, with a cheque or postal order for €15.00 (payable to IWA) to: Spokeout subscriptions, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. spokeout_spring_p5-7:Layout 1 25/02/2010 10:44 Page 5 cover feature IN GOOD HANDS IWA CEO Kathleen Mc Loughlin reflects on the achievements of IWA’s founder members, the spirit of the Association and the celebrations planned for 2010 2010 is a most historic year for the Irish Wheelchair Association. It is wonderful to see one of our founding members, Oliver Murphy, on our front cover with one of our youngest members, seven-year-old Shane Barker from Donabate, providing living proof of his continuing commitment to the Association and its members. We are indebted to him and his fellow founding members for their vision in setting up the Association which, with people with disabilities involved at every level, continues to strive for the full integration of people with disabilities as equal, independent and participative members of the community. Thank you, Oliver. This involvement of people with disabilities in determining the direction and strategy for the Association is unique and very precious, as it ensures that we can never lose touch with what are the ‘real’ issues that affect people’s lives. This reality is most clearly demonstrated through our Annual Conference and AGM, where members have the opportunity to raise the issues of concern to them and to elect members of the Board to work on their behalf. The full details on this year’s event in Kilkenny are included in this issue and we encourage all members to come along and be part of our biggest gathering of the year. It promises to be an extra special event this year with a 1960s themed Oliver Murphy and Shane Barker will feature on a special 50th Anniversary stamp, due to be launched by An Post this September ‘Big Day Out’ in The Watershed, Scanlon Park, on Sunday. The day will have something for everyone from our National Junior Athletics Championships to parachute jumps from the Defence Forces, best dressed ladies, big bands, swimming, monster barbeque, food fair, arts and crafts, competitions and prizes, and much, much more. We are still working on finalising the programme, but you can be assured that this is one event you will not want to miss. Full details will be available on our website or through your local Resource Centre or office. Some of you will have already attended one of our Birthday Parties in our centres on the fiftieth day of the year, 19th February, and so may have already put together your 1960s costume. If not, it’s time to start looking for that special garment to make you stand out from the crowd in Kilkenny! The foundation of the Irish Wheelchair Association In September 1960, Ireland entered a team into the first Paralympic Games which took place in Rome. It was at this event that the seed was planted amongst our founder members to form an organisation that would work to achieve greater independence, freedom and choice for people living with a disability. Just two months after their return from Rome, on the 10th November 1960, several of the team members came together with some other progressive individuals in the Pillar Room of the Mater Hospital, Dublin, and formed the Irish Wheelchair Association. Our founding members were: Fr Leo Close, Chairperson; Jack Kerrigan, Secretary; Oliver Murphy, Treasurer; Joe Davis; Kay Hayes; Joe Domican; Joe Oliver Murphy with Shane Barker at the recent photoshoot for the IWA stamp, due to be launched this S Members of the first Irish Paralympic Team, Jack Kerrigan, Fr Leo Close, Joan Horan, Oliver Murphy and Jimmy Levins, along with team support staff, as they board the Irish Airlines flight to Rome, September 1960. Picture courtesy of The Irish Times Craven; and Jimmy Levins. These eight people had vision and determination and these qualities remain at the core of the Irish Wheelchair Association today in our members, volunteers and staff. spokeout 5 spokeout_spring_p5-7:Layout 1 25/02/2010 10:44 Page 6 A true GENTLEMAN In conversation with Joanna Marsden, founder member Oliver Murphy and his wife Joan recall the dramatic ups and downs of his life, including his accident and rehabilitation in the late 50s, the first Paralympic Games, the early days of IWA and his terrifying second brush with death liver Murphy, who turns 75 this year, is the only founder member of the Irish Wheelchair Association alive to celebrate the organisation’s 50th anniversary this year. Oliver grew up in Drogheda, Co Louth, where he was educated at the local Christian Brothers’ school, enjoying GAA, athletics and gymnastics in his free time. After an apprenticeship as an electrician, a 23-year old Oliver moved to Carlow to work in the Carlow Sugar Factory. One night, in July 1959, Oliver began a late shift, “When I arrived, I found the lime kiln had stopped working. This 60-foot structure ground the limestone that was used in the sugar purification process, and was loaded using a steel bucket and a rope. I climbed as far as I could up the side of the kiln and could see that the bucket wasn’t tipping properly. A stone had got jammed between the lip of the bucket and the kiln. I couldn’t reach the bucket so I shouted down and one of my colleagues went to get a poker. But I was an athletic young lad, and while he was gone, I got impatient and decided to climb to the top myself. I flicked the jammed stone, causing the bucket to suddenly release. The bucket crashed down on me, hitting me on the spine and knocking me to the floor.” Oliver’s colleagues found him in a heap on the ground. “I was taken on a stretcher into the sick room and a priest was called while we waited on the ambulance.” Oliver says that the ambulance men who took him to Waterford Hospital afterwards told him that they thought he was “a gonner at least twice”. In Waterford, the orthopaedic surgeon used a silver plate to bring Oliver’s spinal column back into line and confirmed that Oliver had a T10 break, paralysing him from the waist down. Oliver remembers experiencing severe pain from the damaged nerve endings on his spinal cord and acknowledges that the months after his accident were dark times. “I’m not a ‘holy Joe’ but I do have faith. At the time, I was fairly mad at God, but I knew there was nothing I O 6 could do, I had to accept it. So I tried to go with the idea of offering my pain and suffering up to God, as a prayer, and this helped.” In April 1960, Oliver was transferred to Stoke Mandeville in the UK, where he says the physiotherapy was so intense he didn’t have time to feel sorry for himself. “The focus was all on rehabilitation, on getting back to life. I remember my physio, Mrs Dorph, a tough Norwegian woman. She’d say ‘No slacking! It’s for your own good!’.” In their free time, patients were encouraged to keep active. “Archery was a big thing in the UK and we used to compete at pubs and clubs. It’s one of those sports where you can compete whether you are in a wheelchair or not. The archery got us out, which was a big step, as a lot of people felt self-conscious and worried that people were looking at them.” During his three months at Stoke Mandeville, Oliver also made friends with many of the Irish nurses who were over there to train for the changeover of the old TB Hospital in Dun Laoghaire into the National Rehabilitation Hospital (NRH). Oliver says Stoke Mandeville taught him a lot. “They were world leaders in rehabilitation and they had the right frame of mind. We were imbued with this spirit, a belief that we could do lots of things.” Oliver came home in June 1960 after 51 weeks in hospital. He moved into his family home in Drogheda, where his parents made a make-shift bedroom for him downstairs, and he did his best to settle back into normal life. “My younger sister Catherine, who was only nine at the time, was a great handler of the chair and used to bring me into town. And one of the lads in the local cinema would pull me onto the balcony.” Oliver became good friends with fellow Drogheda resident Jack Kerrigan, whom he had met at Stoke Mandeville. Through Jack, Oliver met Father Leo Close, who had also been at Stoke Mandeville a few years earlier, spokeout_spring_p5-7:Layout 1 25/02/2010 10:44 Page 7 cover feature and was the first wheelchair user in the world to have been ordained. Father Leo was leading Ireland’s team (funded by Rehab) for the first Paralympic Games in Rome in 1960, and both Oliver and Jack were selected. When they got to Rome, Oliver says, “The wheelchair users were the stars of the show and this really gave us a lift. I was pleased to come sixth in archery, thanks to my Stoke Mandeville training. And then, on the journey back to Ireland, the team stopped at Lourdes. This gave us another lift and when I got home I felt I was on another level of existence. I’d had one hell of a hoist up and from then on, I never felt moody or down.” It was this spirit of optimism and hope, the new-found friendships, and the realisation that in many other countries, people with disabilities were living independently, that led members of the Paralympic team to join with other like-minded individuals to found an organisation dedicated to improving the lives of wheelchair users in Ireland. “We could see that the other athletes were better equipped and had a better life at home. Father Leo wanted to know what could be done to improve things here – self-help he called it – and he was really the driving force behind the foundation of IWA in November 1960.” In the early days of the Association, Oliver says the focus was on getting people out of their houses. “Until then, you didn’t really see people in wheelchairs. IWA opened up a whole new world, getting people out for socials every week and bringing them on holidays.” Oliver also put his energy into building a more independent life for himself. With compensation from the sugar factory, he was able to build a house, which he still lives in today, and an adjoining electrical workshop. He says that his parents, brothers and sisters, extended family and friends were an invaluable support to him throughtout this process. Oliver also bought an adapted car and got back to driving. As Oliver was driving off after one of the IWA holidays in Cork in 1964, he slowed to say hello to a young nurse who was walking by with her sister tutor. This nurse, Joan, would eventually become Oliver’s wife. Joan liked Oliver instantly and remembered him when she saw him again four years later. “I was coming off night duty at Holles Street Hospital and he was on College Green doing an IWA flag day. I stopped and we chatted, and he said he’d ring me that night and we’d go out. Oliver kept his word, and I remember telling a friend, ‘I’m just after being out with the man I’m going to marry’.” In the years that followed, Oliver continued his sporting career, taking up weight-lifting and basketball, and representing Ireland at several Stoke Mandeville Games and also the Paralympics in Tokyo in 1964, Tel Aviv in 1968 and Heidelburg in 1972. Joan and Oliver married in 1971 and, over the next decade, life went well for them, with the arrival of two children, Móna and Thomas, and success in Oliver’s electrical business. Then, in 1980, Oliver suddenly became ill. “It just hit me Oliver at the Paralympics in 1964 one Friday evening. I was pushing my chair and my fingers kept sticking to the chair. By the following morning, I couldn’t stir, I was like a ten-tonne weight. Joan managed to get me down to the Lourdes Hospital, where they gave me a shot of multi-vitamins. But my breathing was getting shallower and soon a helicopter was called to take me to the Richmond Hospital in Dublin. Doctors eventually diagnosed GuillainBarré syndrome, a rare viral condition that attacks the central nervous system.” They were able to stabilise Oliver, although in the weeks that followed, Oliver “couldn’t eat, drink, breath, move or sleep”. Oliver was transferred to the NRH where he was placed in a rotating bed. His recovery was slow and when, months later, he was allowed to go home, his muscles were so wasted that he felt like “a bag of spuds”. His former paralympic trainer, Raymond Buckley, came by three times a week for over a year to help Oliver in his battle to re-gain strength. Both Joan and Oliver believe that a positive attitude has enabled them to get through any set-backs they have faced. Joan says, “We have a great life with our children and our granddaughter, Cait. We have a lot of respect for each other. When the kids were growing up, they used to say, “This house does not prepare us for life – everything is too calm!” We didn’t worry about things like what they wore or what they did with their hair. Móna used to look at Oliver and say, “Is he for real? How can he always be in such good humour?” After nearly 40 years of marriage, Joan knows that he is for real. “I remember when he had Guillain-Barré’s and was unable to talk, you could still see in his eyes that he was trying to say thank you to the nurses who helped him.” Joan believes that this peacefulness comes from “not having a chip on his shoulder and being a very accepting person.” Last summer, Oliver had a triple heart bypass, from which he has recovered well. “I feel very lucky to be able to enjoy time with my family and also to be involved in the 50th Anniversary celebrations of an organisation that has been so much part of my life.” spokeout 7 spokeout_spring_p9-10:Layout 1 24/02/2010 16:21 Page 9 Spokeout magazine is pleased to announce its first Creative Writing Competition, which is being run in partnership with the Irish Writers’ Centre as part of the Irish Wheelchair Association’s 50th Anniversary celebrations. The aim of the competition is to encourage and support writers with disabilities, or those with close experience of disability. We know there are many of you out there! Whether your passion is for prose or poetry, we would love to read, and possibly publish, your work. Entrants are invited to submit an original and unpublished piece of creative writing. The piece should fall into one of three categories: Fiction One short story not more than 2,500 words in length Autobiographical non-fiction One piece not more than 2,500 words in length Poetry 1-4 poems (each poem should not exceed 50 lines) There is no restriction as to the theme or subject matter of your entry, simply run with whatever moves or inspires you! The final round of judging will be carried out by author and journalist Michael J Farrell. A total of fifteen winners will be chosen as follows: A first-prize winner who will receive: a cash prize of €250; an invitation to a weekend Writers’ Workshop (meals & accommodation included), organised by the Irish Writers’ Centre and tutored by Michael J Farrell, on June 18th & 19th at Cuisle Holiday Centre, Co. Roscommon; and an invitation to the prize-giving at IWA’s Annual Conference Gala Dinner on May 22nd. The winning entry will be published in the Summer edition of Spokeout. Two runners-up/second-prize winners who will receive: a cash prize of €100 each; an invitation to the Writers’ Workshop (meals & accommodation included), at Cuisle Holiday Centre; and an invitation to the prize-giving at IWA’s Annual Conference Gala Dinner on May 22nd. These entries will be published in Spokeout during 2010. 12 further runners-up who will be invited to attend the Writers’ Workshop (meals & accommodation included) at Cuisle. Entries from these runners-up may be selected for publication in subsequent issues of Spokeout. Before entering, please take the time to read carefully the terms and conditions set out overleaf. And, finally, we wish you luck, inspiration and guts! We look forward to seeing the fruits of your labour! ON GETTING DOWN TO WRITING… And by the way, everything in life is writable about if you have the outgoing guts to do it, and the imagination to improvise. The worst enemy to creativity is self-doubt. ...Procrastination is the default mode of all writers who, while yearning to write, generally need a metaphorical Colt 45 pressed to their temple before overcoming stage fright and actually getting down to it. If you're daunted in the face of a poem or story, remember how we started with grunting, then found words, put them on cave walls, on papyrus, on to printing press and text message. There is no wrong way, not even grunting. But sometimes the words echo, and that's a blast. Sylvia Plath, American poet, novelist, children's author, and short story author Dermot Bolger, Irish writer (quote from his article ‘Getting down to writing business’, featured in The Irish Times on 21st August, 2009) Michael J Farrell, Irish writer and tutor of the IWA 50th Anniversary Creative Writing Competition Writers’ Workshop Michael J Farrell spent nearly a quarter-century in journalism in the USA. He has edited various books and publications and published an award-winning novel Papabile in 1998. A short story was published in The Faber Book of Best New Irish Short Stories, 2006-07. His short story collection Life in the Universe was published in May by the Stinging Fly Press. Creative Commotion: The Everyman/Aquarius Anthology, 1968-1974, which he edited, was published by the Liffey Press in June 2009. spokeout_spring_p9-10:Layout 1 24/02/2010 16:21 Page 10 TERMS AND CONDITIONS ENTRY FORM (Block capitals please) Name ..................................................................................................................... Address ..................................................................................................................... ..................................................................................................................... ..................................................................................................................... The IWA 50th Anniversary Creative Writing Competition is open to members of the Irish Wheelchair Association. NB: Anyone with a physical disability can join the Irish Wheelchair Association free-of-charge by simply filling in a membership form, available at www.iwa.ie Entrants are invited to submit an original piece of creative writing. The piece can fall into one of three categories: • Fiction – one short story not more that 2,500 words in length • Autobiographical non-fiction again not more than 2,500 words in length Telephone ................................................................................................................... Email ................................................................................................................... • Poetry – 1-4 poems (each poem should not exceed 50 lines) The final winners will be selected from all categories on the basis of merit. Not more than one entry should be submitted by any individual. There is no entry fee. Category: (please tick one only) Exact word count Fiction Autobiographical non-fiction Poetry This is an original work and has not been previously published, printed or placed in a competition. I agree to be bound by the terms and conditions of this competition. Signed ..................................................................................................................... Date: ..................................................................................................................... This entry form is available online at www.iwa.ie Closing date for receipt of entries is 5pm Wednesday, 31st March 2010 If you have queries in relation to the competition, email: creativewriting@iwa.ie or telephone 01 818 6485 (Colette Molloy). No entries will be accepted via email. There is no age limit. All entries must be sent by post to: IWA 50th Anniversary Creative Writing Competition, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3 by 5pm Wednesday 31st March. All entries should be typed on A4 paper. The entrant’s details are to be provided only on this official entry form. The entry form should be paper clipped to the piece of creative writing. Please ensure that your name does not appear anywhere in your piece of creative writing. This is to ensure fairness in the judging process. Pages should be clearly numbered and the title of the piece should appear on each page. Please do not bind, tape or staple your entry. Use paper clips only. The organisers regret that work cannot be returned, so please make a copy of your entry. spokeout_Spring_p12-13:Layout 1 24/02/2010 16:34 Page 12 Reader RECOMMENDATIONS In recent months members have suggested a number of practical solutions to everyday challenges. Robbie Cousins takes a look at some of these innovative recommendations REMOTE CONTROL PLUGS Maureen Breslin with her innovative Phone-on-aspoon PHONE-ON-A-SPOON SOLUTION If you spot Maureen Breslin coming towards you with a wooden spoon in her hand, don’t be alarmed, she is probably just expecting an important phone call. Maureen, who had never been able to hold a phone comfortably, had accepted this as part of the challenge of her disability and got on with her life. Then, a couple of years ago, a friend who was visiting observed how she struggled with the phone and had an idea. Maureen says, “He asked: ‘Would you by any chance have a wooden spoon and some Velcro in the house?’ I had both Velcro and the wooden spoon, and a few minutes later my friend produced what has become an invaluable tool for me. By attaching the phone to the top of the spoon using Velcro, I can hold the phone to my ear and keep it in place using the spoon handle.” Maureen laughs: “Now you can’t get me off the phone and when I’m out and about, people often wonder if I am about to attack them when they see the wooden spoon coming out!” 12 A DIY Remote Control Maureen Breslin was also recently Extractor delighted to discover a set of remote control electric sockets and plugs in her local discount supermarket. She says “You plug your electrical device into the remote control plug socket and plug that into a wall socket. You can then control power to the electrical device with a handheld remote control.” Maureen now uses a remote control to control electrical appliances such as her heater and lights throughout her home. Remote control plugs and sockets can be purchased at any good local hardware store and are sometimes available in local discount supermarkets. TRAVEL ESSENTIALS Following her recent trip around Australia, Kiara Lynch has a number of items she plans never to leave home without in future. The first – a penknife – proved to be an invaluable multifunctional tool. Kiara explains: “From cleaning debris picked up on my wheels when I was out and about to getting boxes open or taking labels off clothes, I think a penknife is an essential piece of equipment for any traveller. I can also recommend carrying a set of Allen keys to dismantle your chair whenever required.” In a lesson-learnt scenario, in future Kiara plans to bring sealable bags to carry liquid containers, such as oilcans, in her luggage. Kiara on One DIY spillage avoidance her recent trip down solution she has discovered is a under two Ziploc bag system. She explains: “You place the liquid container upright in the first bag and seal it, then draw down the second bag upside down over the first and seal. Now if any liquid spills from its container it will be double contained. Also, try to pack liquid containers in your baggage so that they are upright when carried.” spokeout_Spring_p12-13:Layout 1 24/02/2010 16:35 Page 13 feature DESIGN YOUR OWN FURNITURE If you can’t find off-the-shelf adaptive furniture to meet your specific requirements in terms of function or appearance, why not commission a piece? If there is no ready-made adaptive Bronagh Lee solution, it makes perfect sense to devise one that not only does what you want it to do, but also looks very well. A growing number of cabinetmakers and furniture manufacturers now design and manufacture customised adaptive furniture to brief. And the pieces they produce not only solve specific problems, but can be aesthetically pleasing as well. Kildare-based furniture manufacturer and cabinetmaker Vernon Walker, who recently manufactured a number of postboxes and television stands for the IWA independent living apartments in Clontarf, is one such craftsperson. His portfolio of adaptive furniture also includes tables, beds and dressers. Vernon mostly works with oak, walnut and ash, but he will make suggestions on the best material to meet a specific need, look or budget. Bronagh Lee (IWA Independent Living Services Coordinator) says: “Having a craftsman design and manufacture a piece of furniture can make a lot of sense, particularly if you have specific needs that cannot be easily met by an off-the-shelf piece of furniture.” So, if you have a specific furniture requirement and you haven’t been able to find an off-the-shelf solution, then custom-manufacture may hold the key and a quick browse through your phonebook or an online search may uncover a cabinet-maker or furniture manufacturer in your local area who can help. Further information: Vernon Walker, Roseberry, Newbridge, Co Kildare Tel: 045 487844. Web: www.smartfurniture.com A TV unit designed and made by Vernon Walker for IWA’s Leo Close Apartments THE EASY USE PHONE Marion Kane, who describes herself as being “totally blind”, was for many years frustrated at not being able to find a phone that met her specific needs. “Whether it was a short battery life or buttons that were just too small to use, it was imMarion Kane possible to find a workable phone. I began to think, unless you have a child’s hands or dexterous fingers, there was no point in having a phone at all.” Even NCBI recommended phones presented challenges for Marion. “I couldn’t use the NCBI phones as I found the voice on them too robotic.” Then one day when researching a solution online, Marion’s daughter discovered a company called Future Positive, that specialises in ‘Access Able’ phones for visually impaired, hard of hearing, older people or anyone who just wants an easy to use mobile or home phone. Marion phoned the company, which is based in Leixlip, Co Kildare, and spoke with MD Niall Lambe. “After listening to my frustrations, he suggested three phones that may be of use and sent all three to me to try out, which was incredibly generous of him considering we had just spoken for the first time.” Marion chose a phone called ‘The Easy Use’ phone. She explains: “This is a lightweight and easy-to-operate phone, with a high-visibility large button keypad. It has four memory buttons, which I have designated for quick dial to my most dialled numbers and it is completed with a very convenient hands free loudspeaker.” In addition the Easy Use phone has a transflective screen, which is a black and white display that is very clear, even in direct sunlight, and is perfect for people that may have a measure of visual impairment. The Easy Use phone also has a 50-number phone book, vibration alert and can receive SMS. Marion says: “Another very useful feature is an emergency call button, which can be easily activated. This could turn out to Marion’s be a lifesaver if you find yourself in need Easy Use phone of urgent assistance. At €130, I also is one of a found the phone to be very affordable.” number of adaptive For full details contact Future Positive, phone Unit 2, 80 Oaklawn Shopping Centre, solutions on the market Green Lane, Leixlip, County Kildare. Tel 01 629 5988. Web: www.futurepositive.ie Do you have a product or innovative ‘home-made’ solution to recommend? If so, please send details, together with a photograph of you, and a photo of the product, to kiara.lynch@iwa.ie These reader recommendations represent individual opinions and should not be construed as recommendations from IWA or Spokeout magazine. Readers are advised to always shop around, compare prices and consult an occupational therapist where appropriate. spokeout 13 spokeout_spring_p14-15:Layout 1 24/02/2010 16:36 Page 14 OUT OF THE DARK “When I was 15, Celine asked me to help with her growing dance school and I was delighted when I got to work with some of her younger pupils.” When Celine expanded the business even further into Claremorris and Castlerea, Marian took on many of the responsibilities in the Galway studio. And, by the time she was 16, Marian was teaching dance classes in a number of locations around the West. “Obviously Celine was a huge support with her encouragement, but my mother was also incredible in that she was always there to run me back and forth between the dance studios in her car whenever I needed.” But Marian’s success as a teacher at such a young age hen Marian Maloney Nolan was a child, even drew the ire of some other teachers in the region and they though her mother realised she had poor brought their concerns to An Coimisiun le Rinci Gaelacha eyesight, she still put Marian’s regular (CLRG) – the Irish Dancing Commission. Marian’s mother accidents down to “clumsiness”. It was not became her greatest supporter and fought on her behalf unusual to hear that Marian had crashed her bike into a so she could continue to teach. “When the trouble arose, I wall again, or even into the open door of a car. Whatever was 18 years of age and fell short of the minimum age of she did, she was always having accidents. Marian recalls: 23 to have a teaching certificate. Eventually CLRG granted “It was 1960s Ireland, no one – not even I – realised that my pupils a temporary registration to enter competitions. my problems were being caused by something more than My mother continued to fight on my behalf and the shortsightedness.” Connaught Dancing Teachers’ Association allowed me to When she was 11 years of age, Marian’s father died and study for my Diploma.” Marian took and passed her test in her mother decided that they should move from their 1973. It was the first time that concessions were made for original home in Sligo to start a new life in Galway City. a student with a disability as Marian was allowed to take When Marian was about to start secondary school, her the examination orally. mother became concerned that the Teaching then became Marian’s life’s glasses she had been prescribed in “…at 40 years of age I work. “When I was teaching, I forgot all Sligo were no longer adequate, and an stopped living in fear my troubles. I developed my own optician’s appointment was arranged. coping mechanisms to overcome the A shocked optician immediately of going blind and challenges that arose. I had great recall referred Marian to an ophthalmologist, began looking at the and memorised many Feis who, upon examining her, told her mother that Marian was going blind. many things I could do programmes. I learned my students’ first names and was able to pick each He diagnosed Retinitis Pigmentosa with my life” one out by associating their names (RP), a progressive condition that with the colour of their clothes.” Mareventually leads to ‘legal blindness’. ian’s official teaching career lasted over 20 years and the However, he could give no indication as to how long this day she retired in 1995 was one of the saddest in her life. might take and never really explained how the condition Even then she told her colleagues that she was only taking would affect her. some time out. But she knew her sight had deteriorated so So from then on, into her teens and for much of her adult much that she was no longer able to continue teaching, life, Marian says she lived in constant fear that one morning and she she might wake up in total darkness. reluctantly passed on her dance school to another teacher. Despite these fears, Marian channelled her energies into Following her early retirement, Marian struggled with Irish dancing, a passion that has stayed with her for life. depression. That is until, at 40 years of age, a chance “Although I never completed my education, there was encounter with a lady with a severe visual impairment led one field in which I excelled. I loved, and still love, Irish Marian to reassess her attitude to her disability and take a dancing.” completely new direction in life. Marian confided in this By her mid-teens Marian was an accomplished Irish lady, “I wish the Lord would take my life before he takes dancer and her teacher, Celine Hession, was a huge my sight.” The lady was upset at Marian’s reasoning, and encouragement to her in dancing and in life. Marian Maloney Nolan spent years living in fear that she might wake up one morning and see only black. She tells her friend Sr Valerie Malone about her life and how she overcame many of her fears W 14 spokeout_spring_p14-15:Layout 1 24/02/2010 16:36 Page 15 feature Marian and Yaz pictured at the launch of the Access Awareness Campaign run by Galway City Council to mark International Day of People with Disability with Joe Mc Grath (Galway City Manager), John Conneely (IWA) and Cllr Donal Lyons (Galway City Council) helped Marian to realise that all her life she had been conditioned by her fears and that this had prevented her from doing many of the things she could have been doing. Marian began to understand that she should have been focusing on the positive aspects of her life and looking to get fulfillment from these. The lady also explained to Marian that only a small percentage of people experience total ‘black vision’. “It was the first time that someone had explained the many different forms of blindness to me and, for the first time since my problem had been diagnosed, at 40 years of age I stopped living in fear of going blind and began looking at the many things I could do with my life.” In the late ’90s, after her chance encounter with this lady, Marian heard about the work of the Galway Centre for Independent Living and in particular a programme called ‘Start Here’ which they were running in conjunction with other agencies. She signed up for the programme and began to make real changes in her life. Since completing that programme, Marian has rejoined the workforce and secured Diplomas in Community Development and Community Education. She has also completed a ‘Start Your Own Business’ course as well as a number of other courses along the way. All of these courses went a long way to boosting her confidence and she is now studying for a Diploma in Disability Studies. In 2003 Marian travelled to Dublin and took part in a Women’s Leadership Programme, which was open to women with disabilities. The programme was run by the Dublin Centre for Independent Living in conjunction with the National Learning Network. In total 12 women from across the country were accepted onto the course and Marian says, “The programme helped me develop my thinking on women’s rights as well as many other important social issues.” In 2004, along with two other women who completed the Leadership Programme, Celine O’Sullivan Tartro (RIP) and Maggie Woods, Marian founded the Women with Disabilities in the West (WDW) group. The group’s inaugural meeting was held in October 2004 and today its membership stands at 50 women. WDW contributes to committees in the National Women’s Council of Ireland as well as tackling issues affecting women in the West. And if that is not enough, outside of work Marian is also kept very busy. She married in 1979 and she and her husband have five children. She describes motherhood as “absolutely wonderful as all my children have been such a joy and blessing in my life.” She also adds that none of her achievements would have been possible without the support of her family. In April 2009 another new arrival in the family, a guide dog named Yaz, was to greatly improve the quality of Marian’s life. She says: “Yaz is simply brilliant. It is incredible the difference the dog’s arrival has made to my quality of life.” Despite all the positive developments in her life, Marian says she still finds it hard to cope with her visual impairment. “I am me, and my visual impairment is a part of me, but not all of me. I still have down days because of it. I miss three things most. Firstly, reading the printed word – although my computer can read for me, it is not the same. I also miss the mobility that driving could give me. And finally, I hate not being able to put on my own make-up. Simple things for people with sight, but not for someone with a visual impairment!” Looking to the future, Marian is now in the process of developing a new business as a life coach for people with disabilities. “It is my ambition to remove the syllable ‘dis’ from the word ‘disability’ and help those I work with to focus on their abilities. People should see the ability and not the chair, cane or crutches, and see the person for themselves. I have been itching to teach again and hope to make this a big success in the years ahead.” Based in Galway, Valerie Malone is a Franciscan Missionary of Mary, writer and journalist. In her spare time Valerie is an avid radio listener and enjoys reading. During 2010, Marian and her guide dog, Yaz, will feature in a billboard campaign being run by Galway County Council to highlight the problems caused by cars parked on footpaths spokeout 15 spokeout_spring_p17:Layout 1 24/02/2010 16:37 Page 17 access Do you have any funny (or not so funny) situations you would like to see immortalised in Spokeout’s cartoon pages? If so, send your ideas to Kiara Lynch kiara.lynch@iwa. PUB LIFE Fancy a pint? Why is it that relaxing at your local isn’t always, well, that relaxing... CARTOONS BY JOHNNY CONNAUGHTON spokeout 17 spokeout_Spring_p19:Layout 1 24/02/2010 16:38 Page 19 access Quick guide to IWA best practice access guidlines ACCESSIBLE PARKING BAYS Robbie Cousins outlines some practical considerations to be taken on board when making provision for on- and off- street accessible parking rivers with limited mobility need to be able to park, have sufficient space to enter and leave their vehicle, move to the rear of their vehicle, and travel in a wheelchair to the main entrance of a D building. What is the recommended ratio of accessible parking bays to normal parking bays? Where public parking is provided, IWA recommends one in 15 spaces should be designated for drivers and passengers with disabilities. And of these designated spaces, one in four should accommodate large multi-purpose vehicles. So, for example, where 120 parking spaces are provided, six should be designated for standard cars used by disabled drivers/passengers and two should be designated for larger multi-purpose vehicles. Premises with high usage by people with disabilities may require a larger than average number of designated spaces. Where should accessible parking bays be located? Parking bays designated for people with limited mobility should be located as close as possible to the building entrance, with a maximum travel distance of 50m. What signage should be used to indicate an accessible parking bay? Accessible parking bays should be clearly signposted with an upright sign sited out of the circulation space. The signage should have the white international symbol of accessibility on a blue background. The colouring used for accessible parking bay surfaces should be white markings on a slip-resistant blue surface. The adjacent accessibility zone should be crosshatched in yellow. What is the recommended size of an accessible bay? The recommended dimensions of designated accessible parking bays for cars and small vans are 3600mm width x 6000mm length, including a 1200mm hatched accessibility zone to the side or in-between and at the end of designated parking bays. Bays should be on firm and level surfaces with maximum crossfall of 1:50. Avoid the use of inappropriate materials such as gravel, sand, cobbles, etc. The size of the bay should allow for the safe transfer of passenger or driver to a wheelchair, including a space allowance or accessibility zone for the use of a transfer hoist or ramp that may be attached to some vehicles. What are the recommendations for ease of movement between accessible parking bays and buildings? The design of an accessible parking bay should include planning for safe transfer (dished kerbs, level approach routes, adequate lighting, etc.) from the bay to the access route to the building without undue effort, barriers to wheelchairs or hazards that could cause tripping. There should be adjacent dished access to a footpath with a slip-resistant surface and it should be of a minimum width of 1200mm, minimum gradient 1:15. Where a parking bay is in a parallel position to the footpath, the footpath should be dished along the length of the bay. If the dished kerb adjacent to the parking bay is not in the direct line of pedestrian travel there is no requirement for tactile paving. What is the recommended size of parking bays for larger vans or multipurpose vehicles? The recommended dimensions of designated parking bays for larger vans and multipurpose vehicles with an attached hoist or lift are 4800mm in width x 7200mm in length, including a 2400mm accessibility zone to the side and rear of the vehicle for use of hoist or lift. Where ramps are used on multi-purpose vehicles, even more space is needed; 5400mm width x 7800mm length, including 3000mm accessibility zone to the side and rear of the vehicle for the ramp. Multipurpose vehicle bays are not designed for bus parking. For a copy of IWA Best Practice Access Guidelines, visit www.iwa.ie or tel: 01 818 6400. IWA EXPERT TIP “The two issues that arise most often when it comes to accessible parking are the lack of policing and the locating of accessible spaces in an unsuitable environment e.g. beside un-dished kerbing, steep slopes or drains, making supposedly accessible spaces in reality inaccessible.” Joe Sargent, IWA Access Committee spokeout 19 spokeout_spring_p20-21:Layout 1 24/02/2010 16:38 Page 20 TRAVELS DOWN UNDER View from Sydney ferries Kiara Lynch has just retuned from the trip of a lifetime, backpacking around Australia and New Zealand. Her action-packed itinerary included meeting koala bears and Little Penguins, visiting a beach-side turtle rookery, snorkelling on the Great Barrier Reef and whale-watching in Kaikoura. And she even managed to bring back a ‘rock’ of her own! et lagged, we arrived in Sydney to bright sunshine, clear blue skies, and – best of all – warmth! It was a long flight, but the anticipation of the adventure had taken over in Signapore airport, and I couldn’t have rested even if I had taken a horse tranquilizer! We spent a week in hilly Sydney, getting onto Australian time, and enjoying Sydney’s sights and activities. I loved the ferry rides around Sydney harbour, where we had spectacular views of Sydney Opera house and Sydney Harbour Bridge, and we also got acquainted with some of the Australian wildlife in Taronga Zoo and Sydney Aquarium. Before we knew it, we were picking up our rental car in Sydney and heading on a ten-day drive to Melbourne. The drive was full of pretty little coastal towns, and to break up endless hours of driving on straight highways, we spent a few hours each day soaking up the sun in them. We enjoyed the white sandy beaches of gorgeous Jervais Bay for three days, where we gave scuba diving a try – a tad unsuccessfully on my part. We put up with the constant barrage of flies to see the wild breathtaking Wilsons Promontory National Park, and got to see koala bears and Little Penguins up close and personal on Philip Island. By the time we got to Melbourne we were ready for a few relaxing days, so we spent a sun-kissed afternoon in J 20 the spectacular Royal Botanic Gardens and went to a soccer game in the impressive Etihad Stadium. From Melbourne, we flew to Brisbane. It was cloudy and, believe it or not, cold, when we landed in Brisbane. We were glad when we were greeted with sunny blue skies again in Hervey Bay where we visited Fraser Island. We found a charter ‘Tasman Venture’ that sailed off the west coast of Fraser and whose crew were happy to assist me. It was an amazing day. The sun was dazzling in a cloudless blue sky, making the sparkling water so clear we could see stingrays lying on the bottom of the sea. As we cruised past the golden sandy shores of Fraser Island, we saw dolphins, turtles and bird life. And, with the assistance of the crew and my boyfriend Nick, I was able to enjoy the unforgettable experience of snorkelling and kayaking through mangrove trees a few metres off Fraser Island. After another train journey from Hervey Bay to Bundaberg, we visited Mon Repos Conservation Park which is a turtle rookery. Thanks to the use of a beach wheelchair, available from the park, we got to watch a loggerhead turtle come out of the sea onto the beach, lay her eggs, and go back into the sea, all under a beautiful bright full moon. We then flew to Townsville where we enjoyed a beautiful calm ‘Jazza’ sailing tour of the tropical paradise of Magnetic Island, and had our spokeout_spring_p20-21:Layout 1 24/02/2010 16:39 Page 21 travel Enjoying views of Fraser Island Spectacular views from Cathedral Cove lookout first sighting of Santa Claus with sunglasses on a beach! We spent a week visiting some of the idyllic tropical Whitsunday islands. One of our days was spent aboard ‘Seaflight,’ a cruise ship that took us 40 kilometres east of the Whitsundays where I went snorkelling for a second time, with the assistance of the crew, on the Great Barrier Reef. I was awestruck! Getting a chance to see the vivid multi-coloured fish was an incredible experience. After six fun and sun-filled weeks we left Australia on December 22nd for four weeks in New Zealand. I had expected to be exhausted, tired, and worn out by the end of the Australian leg of our trip, but, instead I felt energised, and couldn’t wait for the new challenges New Zealand would bring! We flew into Auckland, on the North Island, where we picked up our hire car and drove to Whitianga on the Coromandel peninsula for Christmas. On Christmas Day, a warm day with not a cloud in the sky, we went to the beach to relax. We did a boat trip to see the beautiful Cathedral Cove coastline from the water, which was well worth the effort of getting into the boat! The next week flew by in a haze of ‘wow, what a view!’ conversations as we drove south and visited Huka Falls on Lake Taupo, Wai-O-Tapu geothermal park in Rotorua, and Mount Ruapehu in Tongariro National Park. We only had two weeks of our trip left when we got to the South Island, the first of which we spent in sundrenched Kaikoura whale-watching, swimming with seals and doing a fantastic four-wheel-drive mountain safari. Our final week was spent in Queenstown, lazing in the botanical gardens, paragliding, cruising on the lake, and, in the perfect ending to a wonderful trip, Nick and I got engaged on a mountain top in Queenstown. ACCESSIBLE ACTIVITIES Always contact the companies directly to explain your requirements and check that they can accommodate you. N Whitsundays – Cruise Whitsundays, www.cruisewhitsundays.com. N Fraser Island – Tasman Venture, www.tasmanventure.com.au. N Magnetic Island – Jazza Sailing Tours, www.jazza.com.au. Our engagement mountain N Jervis Bay – Dive Jervis Bay, www.divejervisbay.com. N Whitianga – Glass Bottomed Boat, www.glassbottomboatwhitianga.co.nz. N Kaikoura – Whale Watching, www.kaikourawhalewatching.com. Seal Swimming, www.sealswimkaikoura.co.nz. Mountain Safari, Karl Townsend +64 3 319 6424 townie@slingshot.co.nz. N Queenstown – Over The Top Helicopter Excursions, www.flynz.co.nz. Tandem Paragliding, www.tandemparagliding.com. ACCESSIBLE ACCOMMODATION Overall, I found the general access in public bathrooms, hostels and motels very good. However, always ask about your specific needs. These are the places I tried: N Sydney – Travelodge Sydney, www.travelodge.com.au. N Jervais Bay – Huskisson Beach Tourist Resort, www.holidayhaven.com.au. N Nowra – Springs Resort, http://springsresorts.com.au. N Morewell – Park Lane Tourist Park, www.parklanetouristpark.com.au. N Philips Island – Quays Motel San Remo, www.quayssanremo.com.au. N Brisbane – Brisbane City YHA, www.yha.com.au. N Hervey Bay – Colonial Village YHA, www.yha.com.au. N Bundaberg – Kacy’s Bargara Beach Motel, www.bargaramotel.com.au. N Whitsundays – Club Crocodile, www.oceanhotels.com.au/airliebeach. N Townsville – Hotel Ibis Townsville, www.ibishotel.com.au. N Whitianga – Oceans Resort Whitianga, www.oceansresort.co.nz. N Tongariro National Park – Howard’s Lodge, www.howardslodge.co.nz. N Kaikoura – Alpine View Motel, www.alpineviewkaikoura.co.nz. N Queenstown – Nomads Queenstown Backpackers, http://nomadshostels.com. For further details, contact: Kiara Lynch at kiara.lynch@iwa.ie spokeout 21 spokeout_spring_p23:Layout 1 24/02/2010 16:40 Page 23 travel Holidaying at home Planning a spring break? Colette Molloy reviews some accessible destinations in counties Clare, Kerry, and Longford AUBURN LODGE HOTEL Ennis, Co Clare Tel: 065 682 1247 www.auburnlodge.com The 3-Star Auburn Lodge Hotel situated on the outskirts of Ennis Town offers excellent comfortable accommodation and is a perfect place to relax. Access to the hotel is level and there are adjacent car parking facilities. There are two dining options at the hotel, The Oyster Restaurant and Tailor Quigley’s Bar. The hotel occasionally hosts traditional music sessions with some of Clare’s well known musicians. There are four fully wheelchair accessible bedrooms located on the ground floor. All bedrooms are spacious in layout with room for a hoist. The en suites are wet-room in design with roll-in shower, adequate grab rails, and shower chair. Ennis is a bustling town with a great selection of restaurants and pubs with plenty of entertainment. It’s an ideal base for touring the MidWest with Shannon International Airport 15km away and the spectacular Cliffs of Moher just a 20-minute drive from the hotel. SEASHORE FARM GUESTHOUSE Kenmare, Co Kerry Tel: 064 664 1270 www.kenmare.eu/seashore A warm welcome awaits you at Seashore Farm Guesthouse. Located approximately one mile outside the heritage town of Kenmare, the house is located on a working farm with land extending to the seashore, a delight for nature lovers and birdwatchers. There is adequate parking close to the house which has a ramped entrance. This purpose-built house is very spacious and has extensive surrounding patio areas, enjoying panoramic views of Kenmare Bay. The guest lounge contains an extensive library of books and travel information for guest use. The fully accessible bedroom, located on the ground floor, is equipped with every possible convenience and has space for a hoist. The en suite has a roll-in shower, grab rails and a shower chair. Seashore is recommended in many publications including Le Guide du Routard. THE WELCOME LODGE Longford Country House Ennybegs, Co Longford Tel: 043 23320 www.longfordcountry house.com Longford Country House self-catering offers two awardwinning 4-Star traditional country cottages set within private landscaped gardens in north Longford. There is ramped or level access to the cottages and plenty of parking nearby. Each cottage has a spacious living room and fully fitted kitchen with knee spaces and offers every modern convenience. Each house has a double bedroom and a twin bedroom on the ground floor, and each room has room for a hoist. One cottage has an additional bedroom upstairs and the other cottage has two bedrooms upstairs. Linen is supplied free-of-charge during your stay. There are many historic sites in the area to visit including Strokestown House and Famine Museum, and a drive through the north of the county will take in breathtaking scenery dotted with lakes and hills. Need to hire a hoist? In the east contact JS Dobbs, Baldoyle, Dublin 13. Telephone 01 839 1071 or www.jsdobbs.ie In the north/north-west, try Evolution Healthcare, Co Tyrone. Tel: 028 8772 7855 www.evolutionhealthcare.co.uk Somewhere to recommend? Contact Colette Molloy colette.molloy@iwa.ie or 01 818 6485 spokeout 23 spokeout_Spring_p25:Layout 1 24/02/2010 16:42 Page 25 travel PILGRIMAGE TO LOURDES IWA member Daniella Hock recalls an emotional pilgrimage to Lourdes with two friends n May 2007 my friends Alison Quinn, Peggy McBrien and I – all members of IWA Carrick-on-Shannon – took part in a five-day pilgrimage to Lourdes with a group that travelled with the assistance of the Order of Malta Ambulance Corp Sligo. Our pilgrimage was made possible by the very kind efforts of the Aughawillan Drama Troupe, who hosted a production to raise funds on our behalf. The proceeds of their show went a long way towards assisting the three of us to travel to Lourdes. In addition, we also received funding from our own IWA Centre in Carrick-onShannon. Before setting out on our journey we had a four-hour delay at Knock Airport, which worked to our advantage as it gave us a chance to meet and talk with other pilgrims and carers from Sligo. When we disembarked at Lourdes-Tarbes Airport in the southwest of France some hours later, we were brought to the holy grounds, where we felt instantly at the peace. Our accommodation was in ‘The Accueil’ Notre Dame. This hospital-like building is designated for people with disabilities and sick people and is conveniently located close to the Basilica and Grotto. When we had settled in, we discovered there were people from all over Ireland staying on the same floor as us, so the atmosphere in the accommodation was great. There were approximately 500 pilgrims from all over Ireland, including carers. The many carers from the Order of Malta that helped on the pilgrimage ensured that everyone was always well looked after. The next day we set out to visit the Rosary Basilica and the Grotto of Massabielle. For Alison and me, it was our I The Basilica and Grotto at Lourdes Alison Quinn, Juliette Gallagher (Carer), Daniela Hock and Peggy McBrien shortly before the blessing of the Sligo group candle first pilgrimage and we were quite taken aback by the atmosphere at Lourdes Shrine. People were either praying aloud or contemplating in silence. It was quite a sight to behold. We took part in the International Mass at the Grotto where Our Lady appeared to St Bernadette. On the third day, we travelled to Bartrès, a small village near Lourdes, where St Bernadette was fostered as a young child and where, as a 13-year old, she tended the sheep of her foster-family and worked on their farm. We also attended mass in the village church where the young Bernadette would pray in solitude. Next up we visited and were immersed in the Lourdes Holy Baths. This was followed by an awe-inspiring candlelight procession, in which we paraded down the Boulevard de la Grotte praying the rosary and singing Ave Maria – the beautiful hymn of Lourdes – as we arrived at Rosary Square. During this procession we forgot all about problems. It was very moving to see all the candles lit at nightfall. Another magnificent experience was the mass in the Underground Basilica, the second largest church in the world. On the same day we had the ‘Blessing of the Candle’ ceremony for the Sligo group. The candle was carried from the Boulevard to the Grotto, where it was blessed and lit during prayers and decades of the Rosary. Our pilgrimage concluded with a healing mass, which again was very emotional, as each pilgrim received the ‘Sacrament of the Sick.’ At the end of our pilgrimage it was very hard to say goodbye to all our new friends. But we formed a great bond with many of them, which I still feel to this day. I found Lourdes to be a very special place and I think anyone who makes the pilgrimage will have their own special memories. Sadly, since the pilgrimage, Peggy passed away. She remains in Alison’s and my thoughts and we treasure the time we had with her in Lourdes. spokeout 25 spokeout_spring_p27:Layout 1 24/02/2010 16:43 Page 27 opinion A FRESH PERSPECTIVE When human rights activist Zaynab Salman moved to Ireland in 2006, after fleeing Iraq’s oppressive political regime, she discovered that living with a disability in Ireland was entirely different to living with a disability in Iraq centres or specialised medical centres. Iraqi families have hen I was a child, and I saw my mother no experience of disability until they have a child with a struggling to raise nine children, I thought being a woman was the most difficult thing in disability, and even if they want to learn more, the facilities simply aren’t there. The oppressive political regimes that the world, but as I grew up, I discovered that have ruled Iraqi society for the past seven decades have in Iraq being a woman with a disability is even worse. made no attempt to change this. My idea of what it meant to be a disabled person Ten percent of the world’s population is disabled and changed when I fled my country. After just one year living in eighty percent of these people live in developing Ireland, I began to see how comparatively easy it was to cope with disability. Access to good care and fair treatment countries according to the UN Development Program (UNDP), mostly in areas with poor medical standards, in Ireland made me reflect on the harsh, unsupportive violence, poverty and war. It is an unfortunate irony that the environment I had grown up in, and I began to appreciate countries with the highest level of disability tend to have the difference between being a disabled person in Ireland the poorest services. For example, many Irish people and Iraq. would be shocked to know that Iraq only eradicated polio We are all born equal – that is what we are taught in in 2004, and that as a result many children and teenagers school – but in reality this is not the case in Iraq. If you are have disabilities resulting from that condition. born disabled you have to fight on many fronts to prove In Iraq, we have no legislation, education, healthcare, that you are capable of doing things. Often, you have to appreciation of difference or awareness relating to prove to your own family that you are independent and do disability. Ireland has done a massive amount of work to not need twenty-four hour protection. In society, you often address these essential issues. However, I must say the have to fight to prove that you do not have an infectious one negative thing I have noticed about Ireland is that, dedisease and that you deserve to be treated fairly. Finally, spite the wide availability of services, it can be hard to get within yourself, you have to fight and win the biggest battle information and access these services, by believing that you deserve to live and that the difficulties you are facing will “Often, you have to especially as an outsider. As I write this article and reflect on the make you a better person. prove to your own differences between my home country It is human nature to fight against everything different until we get to know family that you are and my adopted country, it makes me feel very sad to think of the people with it, and that’s clearly one of the reasons independent and disabilities who continue to live in such why people with disabilities in Iraq have an unequal society. Iraq is a very wealthy been marginalised. Iraqi society is based do not need country and my dream is to see Iraq use around the family unit. People depend twenty-four hour this wealth to promote greater equality upon their families for all forms of support for its people. and have limited access to rehabilitation protection” W spokeout 27 spokeout_spring_p29-32:Layout 1 24/02/2010 16:43 Page 29 Notice of 8th Annual General Meeting of I.W.A. Limited and Annual Conference 2010 Saturday 22nd May, 2010 at 10.00am in The Convention Centre, Lyrath Estate Hotel, Dublin Road, Kilkenny Dear Member The 8th Annual General Meeting of I.W.A. Limited and the Annual Conference will be held in the Convention Centre, Lyrath Estate Hotel, Kilkenny on Saturday 22nd and Sunday 23rd May 2010. This year IWA celebrates 50 years of representing the views of, and bringing services to, people with a disability. We have a great programme of events lined up, continuing into Sunday when we will have a Celebration Birthday Event with all the fun of the fair, in addition to our National Junior Athletics Championship. The AGM and Conference is the forum for members to express their views. I hope you can join us, if not for all, then for some of the events over the weekend. Yours sincerely Jimmy Byrne Jimmy Byrne, Company Secretary Company Secretary, Irish Wheelchair Association THERE IS NO CHARGE FOR ATTENDING THE ANNUAL CONFERENCE AND AGM AGENDA SATURDAY 22nd May, 2010 SUNDAY 23rd May, 2010 9.00am 10.00am Golden Jubilee Mass IWA Centre, Kilkenny Registration for AGM and Annual Conference Tea/coffee available before AGM 10.00am ANNUAL GENERAL MEETING Followed by Motions and Open Forum 1.00pm Light lunch – tea/coffee, sandwiches 2.00pm Official Opening of Conference 2010 IWA Celebrating 50 years – Milestones, Highlights and Achievements 4.00pm Tea/coffee break 4.30pm Open Forum 5.30pm Conference adjourns for evening 8.00pm Gala Dinner CELEBRATION BIRTHDAY EVENT - Scanlon Park 10.30am National Junior Athletics Championship 1.00pm All the Fun of the Fair, 1960’s Theme including Barbeque, Music, Games, Competitions, Food Fair and lots more. IWA members are invited to submit : Motions for the Conference. Please use the Call for Motions (next page) and return to the Company Secretary by 5pm on Friday 23rd April, 2010. Please send in nominations for the Board using the Nomination Form (next page) and return to the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5 p.m. on Friday 7th May, 2010. The election will take place at the AGM on Saturday 22nd May, 2010. spokeout_spring_p29-32:Layout 1 24/02/2010 16:43 Page 30 Nominations for Election to the Board of Directors of I.W.A. Limited As per the Articles of Association of I.W.A. Limited (Art. 47), one third of the Board of Directors shall retire from office each year. Election to be held at the Annual General Meeting at 10.00am on Saturday 22nd May, 2010 in The Convention Centre, Lyrath Estate Hotel, Dublin Road, Kilkenny Nominations for election to the Board must be received by the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3, not less than 14 days before the Annual General Meeting, which will take place on 22nd May, 2010 at 10.00am in the Convention Centre, Lyrath Estate Hotel, Kilkenny. Please note: Nominees for election must be registered members of I.W.A. Limited and must be proposed by a registered member and seconded by one other registered member. If elected, the nominee will be required to give notice in writing of his/her willingness to serve on the Board of I.W.A. Limited. CLOSING DATE FOR RECEIPT OF NOMINATIONS IS 5PM ON FRIDAY 7TH MAY, 2010 Nominee Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Proposer Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Seconder Name: ........................................................................................................................................................ Address:..................................................................................................................................................... ................................................................................................................................................................... ................................................................................................................................................................... Date spokeout_spring_p29-32:Layout 1 24/02/2010 16:43 Page 31 IWA Annual Conference 2010 CALL FOR MOTION(S) Members are invited to submit motion/s for debate at the Annual Conference. Please note the following: A motion may be submitted on the form below and further motions may be continued on separate pages. Each motion must carry the name and address of ONE proposer and the names and addresses of THREE seconders who must all be registered members of I.W.A Limited. When completed, motion forms should be sent back to the Company Secretary, I.W.A. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5pm on Friday 23rd April 2010. The Board may prioritise, integrate or re-structure motions of a similar nature before presenting them to the Conference. Members must be present to speak to their motions. Motions will be posted on the IWA website www.iwa.ie on Tuesday 18th May 2010. When complete, please detach this page and return to Company Secretary, I.WA. Limited, Blackheath Drive, Clontarf, Dublin 3 by 5pm on Friday 23rd April 2010. We, the undersigned, submit the following Motion/s for inclusion on the agenda of the IWA Annual Conference. Proposer Name: .................................................................................................................................................... Address:................................................................................................................................................. Seconders Name: .................................... Name: .................................... Name: .................................... Address: ................................ Address: ................................ Address: ................................ ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... ............................................... MOTIONS ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... ....................................................................................................................................................................................................................... spokeout_spring_p29-32:Layout 1 24/02/2010 16:43 Page 32 IWA Annual Conference & AGM of I.W.A. Limited 2010 Hotel Accommodation in Kilkenny When booking hotel accommodation in Kilkenny, please remember: You must book rooms directly with the hotel of your choice quoting hotel booking reference number below. Please note there is a limited number of accessible rooms available in each hotel. To guarantee availability, rooms must be booked by 23rd April, 2010. You must settle the hotel cost directly with the hotel. Six high dependency rooms are available in the Respite Centre at IWA Kilkenny. These rooms will be allocated on a first-come basis. Contact Liam Saunders, Tel. 056 776 2775. Hoists and shower chairs are also available on request from Liam. There will be a complimentary shuttle bus service between local hotels and the Convention Centre. Hotels Tel Quote Booking Ref No. Lyrath Estate Hotel, Dublin Road, Kilkenny 056 776 0088 IWA Conference Hotel Kilkenny, College Road, Kilkenny 056 776 2000 IWA G132366 Days Hotel, Smithisland South, Springhill, Kilkenny 056 778 3100 IWA 50677 The Pembroke Hotel, Patrick Street, Kilkenny 056 778 3500 IWA 042057 Springhill Court Hotel, Waterford Road, Kilkenny 056 772 1122 IWA 71557 Newpark Hotel, Castlecomer Road, Kilkenny 056 776 0500 IWA 404658 B&Bs and self-catering accommodation www.kilkennycityonline.com If you need advice on your hotel booking and reservation of Gala Dinner tickets, please contact Mary at IWA - Tel 01 818 6470 Saturday 22nd May at 8pm in the Convention Centre, Lyrath Estate Hotel Gala Dinner Booking Form Please reserve (no of tickets) @ €50.00 each € Please attach payment: TOTAL: PLEASE MAKE CHEQUES & MONEY ORDERS PAYABLE TO IRISH WHEELCHAIR ASSOCIATION Name: Tel (H): Tel (M): Address: TO/FROM CASTLECOMER St St Canice’s Cathedral Wolf e St ent liam Par t ey S Abb Rothe House Tone McDonagh Station Bus & Rail Stre et Dub TO/FROM CARLOW & DUBLIN t Kilkenny River Court Hotel h St t y St ick Patr Kilkenny Castle Castl d oa gR Rin e Ro ad St K 76 OR /N OM C N8O/FR T N77/N79 oad ael S ran ’s S t Market Cross Shopping Centre r Fria LYRATH ESTATE lin R Mich Kie Hig ell S n Par Directions from Dublin Airport: Follow the signs for the M50 motorway heading southbound. From the M50 take the M7, driving in the direction of Waterford/Limerick. Take the N9 in the direction of Carlow, Kilkenny, and Waterford. At Paulstown take the N10, which takes you straight to Kilkenny. Lyrath Estate Hotel is situated approximately 16km from Paulstown, on your right-hand side just before getting to Kilkenny City. You will see a big green Lyrath sign a couple of hundred metres before the entrance. Approximate driving time from Dublin airport is 1 hour 20 min. N77/N78 r VIca Directions to the Convention Centre at Lyrath Estate Hotel, Dublin Road, Kilkenny: N9/N10 TO/FROM WATERFORD R700 Kilkenny City TO/FROM WEXFORD & ROSSLARE Directions from Cork Airport: Take the R616 or N8 towards Fermoy, follow the N8 to Mitchelstown. From Mitchelstown take the N8 to Cahir, then the N24 from Cahir to Clonmel. In Clonmel follow the N76 to Callan and onwards to Kilkenny. The Lyrath Hotel is situated on the Dublin Road just under 2km north of Kilkenny City. Approximate driving time from Cork Airport is 2 hours. spokeout_spring_p34-35:Layout 1 24/02/2010 16:44 Page 34 NEW YEAR, NEW CAR? While those of you who receive VRT and VAT relief may not benefit directly from the Government’s Scrappage Scheme, Niall McDonnell believes there are still great deals to be struck on car dealers’ forecourts Volkswagen Passat he recession has impacted on us all in one way or another in the past 12 to 24 months, and the motor industry is one sector of the economy where its effects have been particularly noticeable. Just ask yourself, how many ‘10’ registration plates have you seen on the road since the start of the year? Gone is the day when the sun hadn’t set on the first day of the year and there would be new cars covering the roads. Now, it is a very different story. With unemployment hitting new highs and those still with jobs having to take pay cuts, there seems to be little cash for luxuries such as a new car. The situation became so desperate that by the end of last year the Government, under constant pressure to make cuts in all areas, was compelled to act to give the Irish motor industry some hope. T 34 While governments in a number of other countries sought ways to kick start activity in their lagging car industries, the Irish Government – maybe because we don’t actually have a car manufacturing industry – was slow to follow suit and only announced its stimulus scheme at the end of 2009. The resulting new Scrappage Scheme covers used cars that are older than 10 years and have been owned for at least 18 months by the seller. In addition, cars being purchased under the scheme must fall into categories A or B under CO2 emissions, which means the emissions must be 140g/km or less. This excludes many automatic gearbox cars from the scheme because of their higher emission levels. The scheme is worth a maximum of €1,500 from the spokeout_spring_p34-35:Layout 1 24/02/2010 16:45 Page 35 motoring Government in VRT rebates, but many of the car I’m not saying that you should take the first deal they manufacturers are willing to match this, and in some cases throw at you. You should always be prepared to haggle. offer more. Remember, the price is always negotiable whether the car So, is there anything in it for those of us who are on the is new or old. You might even try asking to see if they will current VAT and VRT relief scheme for motorists with disthrow in an extra service or even an ‘old reliable’ like a set abilities? Unfortunately not directly, as any VRT rebate we of floor mats. would have been due under the Scrappage Scheme is alAnother old reliable for our members is the Fleet ready being received as part of our Discount Scheme. With the excepVRT rebate under the relief scheme. “Anybody who receives tion of Mercedes and BMW, this apHowever, on the positive side, from plies to most makes of car. So, the Spokeout magazine talking to car dealers, it is clear that majority of manufacturers are willing should be on the IWA to give a discount. It normally floats some dealers are willing to not only give the Government rebate, but also membership database between 1-2 percent, which can go further and offer more give you a further €1,000 or more in and if they contact the discount. Anybody who receives reductions. This is borne out by the fact that some dealers have been Information Department Spokeout magazine should be on matching the Government deal by the IWA membership database and, in IWA’s head office they if they contact the Information offering a further €1,500 discount on new cars. So, there is an indirect Department in IWA’s head office, will forward out the benefit to be gained from the staff will forward out the required required letter to secure letter to secure the discount. Scrappage Scheme. You will still have to fight to secure It is also important to be prepared the discount” the best price, but now at least reto do a bit of homework, shop ductions scream at you from the windows even before you around and get several prices for the same car in different get through the dealer’s doors. It seems that salespeople garages. And don’t focus only on the price of the new have been given much more leeway to make that deal. So, car, see how much each garage is willing to give you for even if you are not able to avail of the Government Scrapyour own car. It won’t be long before you see a page Scheme, the garages still have a lot to offer currently pattern. Also, as you go from one garage to the next you with deals on new cars. will become more confident and this can have a positive Amounts that the manufacturers are willing to knock off effect too. vary but examples would be, Peugeot €1,500, If you are looking at the second-hand market, find out Volkswagen €700-€1400 and Renault weighing in with how much the car was new, and check to see how much reductions up to €3,000, even outside of the Government it has devalued in price. Check the trim levels on the car; scheme. It is also worth noting that Renault will accept cars more extras will make a car more that are eight years and older on the scheme. expensive but you will find that the extras will lose value disproportionately in relation to the base model of any car. ie, where the car might have lost 30 percent of its value but the extras on it might have lost up to 60 percent. With regard to the second-hand market for passenger vehicles, many of the adaptors have a selection of second-hand vehicles available at prices that reflect the current climate. As these vehicles are used to transport people with disabilities, they are normally in very good condition and often have very low mileage. So, if you are thinking of changing your vehicle and you think it seems like a bad time to change, think again, maybe there’s never been a better time! Volkswagen Golf spokeout 35 spokeout_spring_p37-38:Layout 1 24/02/2010 16:46 Page 37 living Employment incentives AND OPPORTUNITIES In the final of his four articles on entitlements for people with disabilities, David Egan takes a detailed look at some employment incentives available to people with disabilities and employers s we enter a period of economic decline it may seem optimistic, even obstinate, to be writing about employment incentives. However, there are still some opportunities out there, particularly for those who wish to supplement their incomes while retaining their benefits. At the very height of the Celtic Tiger, only 32 percent of people with disabilities were in employment in Ireland. According to the National Economic and Social Council’s (NESC) ‘Well-Being Matters: A Social Report for Ireland’, there are 90,500 people in receipt of Disability Allowance (DA) while 53,900 receive Invalidity Pension (IP). If you are getting a disability payment such as DA or IP, you may be allowed to do work that is considered ‘rehabilitative or therapeutic’ and retain your benefits, provided you first get written approval from the Department of Social and Family Affairs (DSFA). Such ‘therapeutic’ work may include participation on a FÁS training course or Community Employment (CE) scheme. There are two types of Community Employment (Part-time Integration Option and Part-time Job Option), each with its own regulations and eligibility requirements. People over the age of 18 who are in receipt of DA or IP qualify to participate in both schemes. Essentially, if you are in receipt of IP, you get the standard FÁS Training Allowance (€197.80 per week) and you continue to get your pension. If you are in receipt of DA, your allowance is suspended and you are paid a FÁS Training Allowance at the same rate as your DA. In addition, you are also paid a training bonus of €31.80 per week and you retain any extra benefits to which you are entitled. The FÁS objective is that, in all cases, participants who are in receipt of secondary benefits from the DSFA or the Department of Health and Children will continue to receive their benefits while participating in FÁS training or FÁS Community Employment schemes. FÁS also provides a wide range of supports for people with disabilities in employment and employers of people with disabilities. The FÁS Wage Subsidy Scheme gives financial assistance to employers to encourage them to A employ people with disabilities with productivity levels of below 80 percent of standard performance. FÁS pay a standard fee for a three-hour period for an interpreter to accompany a person with a speech or hearing impairment to a job interview. The FÁS Workplace/Equipment Adaptation Grant (WEAG) provides funding up to a maximum of €6,384.70 for a person with a disability who is starting, or already in employment, in order to make the workplace, including equipment, easier to use. The Employee Retention Grant Scheme was set up to assist employers to retain at work people who develop a disability through sickness or injury while in employment. Employees who acquire an illness or disability can be offered retraining to continue working at their existing duties using modified techniques or have the option of undertaking alternative duties. To get full details on any FÁS Grants or Community Employment, you should contact your local FÁS Office or see their website www.fas.ie If you are thinking of setting up as self-employed in a business that has been approved by a job facilitator or Partnership Company and you are in receipt of DA or IP, you can qualify for the Back to Work Enterprise Scheme. spokeout 37 spokeout_spring_p37-38:Layout 1 24/02/2010 16:46 Page 38 living Under this scheme, you can keep 100 percent of your benefits during your first year in business and 75 percent during the second year. The Back to Work Allowance Scheme was suspended in 2009. People with disabilities who are in receipt of DA or IP, who take up employment having been unemployed for over a year, are entitled to a special tax allowance. The allowance in the first year of employment is €3,810, and more if you have children. The job you are taking up must be for a minimum of 30 hours a week and be capable of lasting at least 12 months. Apply to your local tax office. Information Leaflet (IT 58) is available online at www.revenue.ie Value Added Tax (VAT) may also be claimed back for certain aids and appliances used by a person with a disability to assist them at work. If you are person who is employed at a low rate of payment, you should be aware that you may be entitled to claim Family Income Supplement (FIS). To qualify for FIS, your weekly family income must be below a certain level. You must be working at least 19 hours per week and your job must be expected to last at least three months. You cannot get FIS if you are taking part in any FÁS scheme. For further information you should contact your local CASE STUDY Citizens Information Centre or request an application form (FIS 1) from Social Welfare Services at LoCall 1890 92 7770 or see www.welfare.ie/EN/Forms/Documents/fis1 Finally, under the Disability Act 2005, all public bodies are obliged to ensure that at least three percent of their workforce is comprised of people with disabilities. The National Disability Authority (NDA) has a statutory monitoring role to ensure compliance with the three percent quota. In their latest report, the NDA state that while for the first time, in 2007, all 15 Government Departments reached or exceeded their obligation, forty-five percent of Government organisations have still not reached their target. These organisations may present opportunities for people with disabilities seeking employment. A full list of these public bodies is contained in Appendix A of the NDA 2008 Report: Compliance with Part 5 of the Disability Act (www.nda.ie). This feature is supported by: David Walsh I NOW FEEL BETTER EQUIPPED TO PURSUE A CAREER IN SPORTS ADMINISTRATION, SAYS DAVID WALSH David Walsh has just completed an IWA rehabilitative training programme and sees full-time employment as very much part of his future. He says: “My ambition is to work full-time. As part of the IWA rehabilitative training programme, we looked at a range of employment incentives that are available to people with a disability. I had no idea what was out there. On first viewing it can look complicated. So, I suggest you get support in trying to identify the supports that best suit your own particular situation.” Having completed his training programme, David feels he now has the capacity to attend a job interview, confident that he can advise a potential employer about the supports that are available to both him and the employer. David, who is currently undertaking work experience with IWA, wants to take up employment in sports administration. “I had some experience working in a summer camp for adults last year, organising various 38 events and activities. I thought I would hate it, but I really loved it.” “Unfortunately I think employers aren’t aware of the incentives that are available. It is usually left to the person with a disability to tell them, and in the majority of cases to actually make the application for funding themselves.” David is keen to stress the importance of Personal Assistance at work. “I have 50 hours of Personal Assistance per week. If I didn’t have a PA, I would be unable to fulfill my ambition of working full-time.” spokeout_spring_p40-41:Layout 1 24/02/2010 16:47 Page 40 THE GOOD LIFE Gary Allen outlines some of the highs and lows of taking the self-sufficient route and attempting to grow his own vegetables Even the polytunnel couldn’t save Gary’s spinach and cabbage from the wrath of a freezing winter wouldn’t put myself down as someone who is easily shocked, but I will always remember the day I heard some school children being interviewed on the radio about where food comes from. More than one child, when asked “Where does milk come from?” answered “a carton”! I had heard such things from kids who were brought up in inner city London and had never been outside an urban environment, and this is understandable to a degree. But I never thought I’d hear it from children brought up in Ireland. That was a few years ago in the middle of the “good times” when we didn’t give a second thought to where our food came from. We just popped into the local supermarket and got what we wanted, whenever we wanted. But things have changed now and we are all giving thought to pretty much every expense we have. So, I think it’s no surprise then that there has been an explosion in the popularity of bypassing the supermarket and growing your own food. I 40 I’m no exception to this trend, having just completed my first year of trying to grow some of my own vegetables. And I’ve even started making my own bread. I should clarify here for my own safety that this has not been a solo project and, being truthful I have to admit the green-fingered one in our house is my wife. But it hasn’t all been a roaring success to date either, as you will see. Early last year, I received a present of a mini polytunnel. Its size was a distinct advantage because I was advised that when growing vegetables for the first time, it’s best to start small. So, with that advice at hand, I immediately proceeded to ignore it. I bought a selection of vegetable seeds on the internet and started planting them up indoors in tiny pots in quantities that would have made a commercial grower proud. Now, there has been much talk of “green shoots” recently, but I can say without doubt, when I saw my first literal green shoots a few weeks later, the feeling was such spokeout_spring_p40-41:Layout 1 24/02/2010 16:47 Page 41 living that I would compare it to potential new parents seeing that first black and white blob of life in a ultrasound scan. Within weeks, our collection of pots filled with green shoots had grown considerably. But before I continue I would like to revert back to the aforementioned polytunnel. It’s 6ft long by x 3ft wide, with plastic arches that slot into holes in the timber walls of the tunnel. It’s roughly 9 inches deep and has a polythene cover that slides across an arch. From an accessibility perspective, it isn’t the most accommodating, as I have a bit of bending to do. But I suggest this could be improved by building up Gary embarks on a bread-making scheme the sidewalls a few more inches. Once assembled and filled with soil, it was time for the passed without at least a couple of new little courgettes first planting. I wouldn’t say the planting was indiscriminate appearing. but the little 18-sq-ft area of soil was groaning with a We learned that there are a million things to do with a variety of different shoots from carrots to borlotti beans and courgette, a vegetable I had previously thought to be bland cucumbers to courgettes. I’ll return to the courgettes in a and boring. However, by the end of September we would while. Now, I said at the outset, this was a joint venture and my not have cared if courgettes had become suddenly extinct. wife’s important initial advice was to warn me, “It’s too early Once the courgettes were finished, the soil was exhausted of nutrients, so we replenished our little to plant things outside”. She patch in preparation for a winter comes from a long line of “No one reading this needs crop of spinach and cabbage. No professional gardeners so one reading this needs to be told gardening ‘is in the blood’ so to to be told about the winter about the winter we’ve just had and speak. It will come as no we’ve just had and my my spinach and cabbage haven’t surprise then that ignoring her escaped its wrath. The sad results spinach and cabbage advice, which of course I did can be seen in one of the images without hesitation, had consehaven’t escaped its wrath” accompanying this piece. Needless quences, major consequences! to say, this crop is a goner. The last frosts of the year Our self-sufficiency drive hasn’t all been outdoors. were not yet past and their arrival pretty much did it for a Recently, I started baking my own bread. I have a bread good portion of my crop. Only a few hardy fighters survived, and they began to thrive once the weather turned machine into which I load my ingredients, press a few buttons and a couple of hours later I have bread. Some might warmer. A few early summer peas, planted after the last of say using a machine is cheating, to which I reply: It’s a start! the frost, were the first to appear and that, coupled with One thing that really surprised me when I began making my some tomatoes, was pretty much it until the courgettes began to arrive – and boy, did they arrive in force! From the own bread was how quickly it turns from being soft and pillow-like to being a rock-hard lump, due of course to there end of May until the end of September, hardly a day being no preservatives in it. Thus, I’ve found that homemade bread should only be baked when you know you’ll use a whole loaf. USEFUL INFORMATION So, there you go. I would call it more a story of hope than results, the hope being that I’ve made all the rookie mistakes Book and won’t again. The satisfaction gained from growing and Veg Patch: River Cottage Handbook No.4, £8.49 baking your own can’t be underestimated in my opinion. I’d ISBN-10:0747595348 ISBN-13: 978-0747595342 encourage anybody to give it a go and you don’t need much available from www.amazon.co.uk space. Growing vegetables in pots has become very popular Container Growing and there are even ranges of seeds specifically designed for http://www.allotment.org.uk/container-growing/ this purpose. garden-vegetables-containers.php And, finally, on to year two of my Good Life experiment. Advice This year’s plans are bigger and bolder with the possible http://www.bbc.co.uk/gardening/basics/techniques/ introduction of a few hens into the mix. Seeds & Equipment So, as somebody once said, ‘A lot done, more to do!’ http://www.mrmiddleton.com/ Now, I wonder does he have a vegetable plot? spokeout 41 spokeout_spring_p42-43:Layout 1 24/02/2010 16:49 Page 42 Gardens of the Recent floods have opened our eyes to the importance of proper drainage. But it’s not just big developers that are to blame; homeowners should stop paving driveways with impermeable surfaces and consider creating ‘rain gardens’ says Helen Rock ince the catastrophic floods of last November, the whole country must know that building on the flood plains of our rivers, or indeed any piece of land with a local Irish name containing any revealing reference to water or wetlands, should never be allowed happen again. (Unless that is, we start to build on stilts like the indigenous peoples of the Amazon basin.) Hopefully too, our leaders will realise that we must, as a matter of urgency, plant many millions more trees than are currently planned, and that they’ll embrace, as a matter of policy like the authorities in Portland, Oregon, the concept of ‘rain gardens’ (aka ‘wet gardens’). Simply put, rain gardens are planted depressions that allow rainwater from impervious surfaces – roofs, driveways, paths and compacted earth – to soak away into the ground. But while we are waiting for Government to act, we can make our own rain gardens at home, school and work, whether designing them from scratch or by simply making some adjustments to existing drainage systems. If designing from scratch, then we should use permeable paving (soon to be mandatory by law) when making new car parking spaces, driveways and garden paths. Permeable paving includes specially constructed brick pavers, matrix pavers, grass reinforcements or pebbles, all of which allow the rain to soak through. But on its own, that’s insufficient to stop localised flooding, or make beautiful and nurturing spaces for people and other wildlife. While paving over one garden might seem of little consequence, it is when neighbours on both sides of a street start to do the same that the resulting loss of vegetation becomes more serious, and has a negative impact on local temperatures and biodiversity. S 42 Garden design emphasis should not be on huge expanses of inert materials, but on health-giving plants. Thankfully, we have a growing band of clued-in landscape and garden designers who know this, and plant accordingly. Walls and fences are there to be utilised for climbers. Hedges, shrubs, trees and hardy perennials are all great for soaking up rain. In unplantable places, really big pots and tubs can be planted-up for year-round interest. Rain gardens allow excess water to soak into the ground, as against flowing into storm drains or surface waters, which causes erosion, water pollution and the dreaded flooding. Rain gardens can be any size, depending on the site. Sometimes they might just be a matter of making a small adjustment, for example to downpipes or existing paved areas, to enable them to drain into some kind of planted depression in the ground. These are the gardens of the future, and they work best when planted with native (and some naturalised) specimens. These won’t need added fertiliser, will be tolerant of local conditions, whether extremely wet or dry, and will be most attractive to birds, bees, butterflies and, of course, spokeout_spring_p42-43:Layout 1 24/02/2010 16:50 Page 43 living WHAT’S ON Saturday, March 6, 10am-4pm, admission £65, including lunch: Grow Your Own – A Modern Approach to Fruit & Veg. National Botanic Gardens, Glasnevin. Seminar, organised by the RHSI, with speakers Helen Dillon, Klaus Laitenberger and Peter Meleady, who runs the wonderful new organic fruit and veg garden at the Bots. Bookings through Caroline at info@rhsi.ie, www.rhsi.ie or phone 01 235 3912. Sunday 7 – Sat 13 March: National Tree Week. Countrywide. This year’s theme is Twenty Ten – Plant Again. The aim of tree week is to raise awareness about trees and the need to plant more of them. All over the country events will take place, including forest walks, tree planting ceremonies, workshops, talks, competitions and tree “plantathons”. www.treecouncil.ie Sunday, May 9, Castletown House & Parklands, Co. Kildare. Tenth Annual Rare & Special Plant Fair. For more info visit www.rareandspecialplantfair.com Tuesday 25 – Saturday 29 May: The Chelsea Flower Show, London. The world’s most famous garden show is a feast for the senses as well as the ultimate trend setter in exterior design. If you haven’t been there you should make the effort to go, at least once. More from www.rhs.org.uk Thursday 3 – Monday 7 June: Bloom, Phoenix Park, Dublin. Ireland’s biggest and most successful garden show ever is now in its fourth year. For more info go to www.bloominthepark.com people. The plants used would be selected from those that like living by the water’s edge, or in damp or wet ground: some iris types, rushes, sedges, ferns, shrubs, beautiful wild flowers, hardy herbaceous perennials and small trees can all be utilised. What these good plants will do for us is take up any excess water on its way into the rain garden or depression. And because the water will be filtered through layers of soil before entering the groundwater system, it should cut pollution in rivers, streams and lakes by 30 percent. Rain gardens are a perfect example of effective Low Impact Development in the United States, and there is no doubt but they’re the way forward for this often sodden little island of ours. IN THE GARDEN Growing your own food is the new rock ‘n’ roll and now is the time to start. You start with shallots, those delicious members of the onion family that are a staple of French cooking and which, until recently, were only available here at a premium price. No special preparation is needed if the ground (or the growing medium in pots and other containers) is in a fertile and friable condition. If ground is wet and sticky, you’ll have to wait until it dries out a bit in the winds of March. Shallot bulbs are sold by weight or in packs and are very good value. First loosen up the soil with a trowel. Then gently push each little bulb in, 6 to 9 inches apart, leaving the top third exposed. A sunny spot is best. Onion “sets” get the same treatment, except that you push the bulbs ever so slightly beneath the surface. March usually lives up to its reputation of blow in “like a lion and out like a lamb”. The highlight of this sere month is when we pass the Ides of March, also known as the vernal or spring equinox. Then the sun rises higher and shines on the Northern hemisphere, and the hours of each day are evenly divided between light and dark. Then, according to tradition, the ground becomes warm enough to sit on, a sure signal that the optimum time has come to sow the seeds of plenty, of seed potatoes (always planted here on St Patrick’s Day) and those other half-hardy annuals that will give vegetables, herbs, flowers and fruits in the months ahead. A busy time for gardeners. April brings back the extra hour of evening light, so unceremoniously snatched away from us every autumn. It’s a wonderful time for gardeners, who can now stay out till all hours as the light advances, notebook in hand, taking stock of what is good – tulips, wallflowers, forget-me-nots, magnolias – and what is lacking. The sweet month of May is when tulips have shed their last petals, the early peonies are in full beautiful flower and warm days can be followed by very cold nights. Resist putting out trays of bedding or tomato plants, which can be very sensitive to cold. By all means put them out by day to harden them off (unless exceptionally cold) but make sure to bring them in at night, until all danger of real cold has disappeared. spokeout_spring_p44-46:Layout 1 24/02/2010 16:51 Page 44 MUNSTER AMBITION Paul Ryan, IWA’s new Munster Sports Development Officer, talks sport with Robbie Cousins and outlines his plans to promote Munster as a centre of accessible sporting excellence aul Ryan, IWA’s new Sports Development Officer in Munster, grew up in Ballygarvan, just south of Cork City.” He says: “In a rural areas such as Ballygarvan, if you didn’t play sport, then there was very little else for you to do. My father reared and raced horses, my sister played inter-county camogie and my brother boxed at All-Ireland level. I played hurling and also boxed a little.” By the time he was 17, Paul looked to be on route to a sporting career that any young Irish sports fan might aspire to. “I was on the Cork Trials Programme for the county hurling team, about to captain our local hurling team in our divisional finals and I was also playing a bit of schools basketball, soccer and rugby, as well as achieving some modest success at boxing.” But in 1987, at 17 years of age, Paul was forced to re-evaluate his sporting ambitions, when as the result of a motorcycle accident he had his right leg amputated above the knee. In the years that followed, the competitive spirit that drove Paul as a teenager was to drive him to compete at the Beijing Olympics in 2008, and afterwards to help establish a sailing club for young people with disabilities; an achievement he rates as his greatest to date. He also owns a small construction firm that continues to trade successfully despite the current problems in the building market. And in his role as IWA Munster Sports Development Officer he plans to harness all of the skills he has picked up to date and develop a two-tier system to support athletes that wish to compete at the highest sporting level as well as those who simply want to access the best sporting facilities in their local area. Not an easy task! But Paul believes that his combined experiences as an athlete with a disability and a small business manager will be his greatest assets in attempting to improve sporting opportunities and facilities for those with disabilities in Munster. Paul got a taste of the accessibility challenges that lay ahead after recuperating from his accident at the National Rehabilitation Hospital (NRH) in Dun Laoghaire: “I tried several sports at NRH. I was particularly fond of basketball. But when I returned home to Cork, I discovered that if I wanted to play at a competitive level I had to travel to Dublin, as the interest or facilities were just not there in Munster in the early ’90s. Thankfully, the facilities and P 44 Paul leads a group of young sailors on an ‘Access Class Sailing’ day out infrastructure deficits have been addressed in the intervening years through the work of IWA and local sports groups. It has now finally reached a point where sporting clubs that have made accessibility part of their ethos have reaped many benefits.” In the early’ 90s, Paul played indoor five-a-side soccer on crutches with his friends. “I was lacking a little in pace, but I held my own as the crutches gave me a distinct advantage when it came to closing down and blocking more able-bodied players! I’m not sure if my friends appreciated this advantage!” Paul also became involved in the administration of his local GAA club as well as taking up shooting. The administrative skills he picked up at this time he hopes will stand to him in his new role. He reflects that even though he was enjoying his sport in the ‘90s he really missed the competitive nature of “high octane sports” such as hurling and boxing. “In 1999, I was approached by Paul McCarthy, a paralympic sailor operating out of Kinsale, to complete a three-man sailing team that included himself and Richard Whealey. I had some experience of boating, but not at any competitive level. I accepted the invitation and we started training two or three times a week with an old boat. It was at this time that I also started to learn about the workings of the Paralympic and Sports Councils of Ireland. “In 2001, we competed at the World Sailing Championship Regatta in Holland in the Sonar Class. We spokeout_spring_p44-46:Layout 1 24/02/2010 16:51 Page 45 sport hoped for a top 20 finish, but surprised everyone – particularly ourselves – by taking eighth place overall: an incredible achievement considering the effort we had put in and the boat we had.” He continues: “After Holland our commitment increased. We trained five times a week in a new boat we purchased after our success in Holland. Our new goal was the Athens Olympics in 2004.” As they achieved a top eight finish in Holland the team was eligible for some support from the Sports Council of Ireland, but they had to fund much of the training themselves. Paul, a stonemason by trade, says: “Luckily, I had my construction business which was doing very well.” Paul also had a family including a baby daughter. So it was very hard to keep a balance between home, work and training. “It was very difficult for all three members of the team, but with the support of our families we stuck with it. “.. the crutches gave me a distinct advantage when it came to closing down and blocking more able-bodied players! I’m not sure if my friends appreciated this advantage!” Paul with Jimmy Byrne (IWA Secretary and Paralympics Chef de Mission) at Quingdao in the Beijing Olympics Paul keeps his sporting interests as broad as possible Unfortunately, we didn’t qualify for Athens. But as in all sports you have to accept defeat as you would a victory and we got back in the boat and set our sights on the 2005 World Championships in Denmark. Success evaded us again in Denmark, but we came home more determined than ever to make an impact at the World Championships in Perth, Australia, the following year and get some reward for the efforts we had put in.” A sixth place finish in Perth encouraged the team to attempt to qualify for Beijing 2008. This time, after a series of qualifying races that took them all over the world, and having ‘medaled’ in two of these races, they made it to the 2008 Paralympic Games in China. In the months leading up the Games training was disrupted by a series of health problems for each member of the team. “Nothing too serious, but serious enough to greatly disrupt our training schedule. When we eventually got to compete in Qingdao in the Sonar Class, there was little wind to speak of and the competition was extremely difficult for all competitors. “We finished ninth overall, which was probably a very respectable result considering the problems we had in the months prior to the Games. But needless to say we were disappointed. However, it was a fantastic experience and I will always treasure the memories. We are also grateful to the Paralympic and Sports Councils as well as the Sports Medicine Department at University of Limerick for all their support in preparing for the Games.” Before Beijing, Paul had decided he would take a break from competitive sailing, but he wanted to stay involved in the sport: “I had decided that no matter what happened, I was going to take some time out to get involved in development of the sport in Cork. An opportunity arose as spokeout 45 spokeout_spring_p44-46:Layout 1 24/02/2010 16:51 Page 46 sport Paul McCarthy, Paul Ryan and Richard Whealey in training for the Beijing Paralympics result of discussions I had with the Irish Disabled Sailing Association. On my return home I got involved with the Association and we developed a new sailing programme in Cork, which has to be the most rewarding thing I have been involved in in my life.” The ‘Access Class Sailing Programme’ sees an average of 20 children with a range of disabilities sailing every Saturday in Kinsale. “I spent much of 2008 and 2009 working on the programme, and following from its success there are now plans to introduce a similar programme in Dun Laoghaire and to develop an existing programme on Lough Derg along similar lines.” Paul explains they received great help in setting up the programme from Sinead Costelloe of the Cork Local Sports Partnership and Jean Daly, who was IWA’s Sports Development Officer in Munster at that time. When Jean decided to leave IWA it was suggested to Paul that he apply for the post. “At first I laughed at the idea, not knowing where I would find the time! But after thinking about it, I realised this would be a dream job.” Paul applied, and he was offered the part-time post in November last. Working 21 hours a week and having such a large area to cover in Munster presents a number of challenges. “Big challenges”, he admits, “but technology such as the internet makes the job much easier than it would have been a few years back. Access to sporting facilities in Munster has also improved dramatically in the past 10 years and there is wonderful support from organisations across the province.” Paul sees his role as giving advice, support and encouragement to individuals and groups that have sporting ambitions, big and small. “My job is made easier by the fact that many local sporting organisations are 46 developing their own programmes, so there are growing opportunities for participation at the top level and all the way down the line.” Since taking up the post, Paul has visited and been impressed by a number of local sporting clubs and facilities across Munster. Paul plans to encourage access for all to sports clubs and facilitates throughout Munster and he will help groups and clubs achieve this “in a sustainable way”. He is also charged with identifying sporting talent that has the potential to represent Ireland at the highest level as well as, most importantly, promoting healthier lifestyle programmes for people and children in schools. If anyone is considering setting up a sporting initiative or facility in their local area, Paul advises, “From my experience in setting up the sailing programme in Kinsale and seeing the momentum that it took on, I think in many cases once the right structures are in place and the right people involved, any new local sports initiative brings massive community gain in a short space of time.” In closing, Paul’s competitive spirit comes back to the fore, “I don’t see why Munster isn’t competing on an even platform with teams from Leinster and other parts of the country. The talent and facilities are there, it is just a matter of creating the opportunities and building our profile so groups and individuals can make best use of our services to achieve their own sporting goals. “would also like to encourage people who want to start any accessible sporting or exercise programme in their local area to get in touch to see if we can assist in any way.” For further information or to contact Paul Ryan, tel: IWA Cork 021 435 0283 or email: paul.ryan@iwa.ie spokeout_spring_p49:Layout 1 24/02/2010 16:51 Page 49 youth IWA YOUTH CONSULTATION REPORT In autumn 2009, IWA’s Youth Service consulted with young members and collated their views on how IWA should develop and deliver relevant youth services. Daragh Kennedy, IWA National Youth Development Officers, relays some of the findings Approximately 200 young people, aged 13 to 30, took part in the consultation to assess how best services, supports and activities could be delivered. The quality of the responses received was of a high standard, which was vital to the success of the consultation. The consultation revealed that, amongst other things, almost all respondents wanted youth services that involve young people with and without disability together rather than services solely for young people with disability. Respondents wanted services at times that suit them and information on what is available for their age group within their community. Access to employment opportunities weighed heavily on respondents minds as well as having an involvement in planning and running of their own services. Comments collected included: • “I would be lost without my PA hours. I would love to get more hours as I am dependent on parents otherwise.” • “We want to spread our wings and not just hide ourselves away. We should be doing what everyone else is doing.” • “People’s attitudes can be a problem sometimes; they make assumptions about ability when they see you in a wheelchair.” • “My parents take care of me now, but if they were not able to do so, who can I contact?” Over the coming months, IWA will David Cotter (left), IWA member from Tralee and winner of the Youth Service Consultation Competition, being presented with his digital camera prize by Terry O’Brien, Service Co-ordinator, Tralee attempt to deliver on the issues highlighted during the consultation, something that will pose challenges but will also be exciting to pursue. For more information on the latest developments in Youth Services, go to www.iwa.ie/youth, contact your local IWA Centre, or contact Daragh Kennedy, National Development Officer. Email: daragh.kennedy@iwa.ie Tel: 087 997 5444. Twin sisters inspire interactive DVD project A new DVD and resource booklet provides a unique perspective on the day-to-day experiences of young people with disabilities IWA and Longford County Council recently released an interactive educational DVD and resource package, which is intended for use in making school spaces more accessible for students with disabilities. The DVD, ‘View from Here’, was inspired by 14-year-old Longford twin sisters, Claire and Marie Kenny, who live similar lives but feel they are treated quite differently by society. Claire has a physical disability, while Marie, whose idea the project was, does not. Both girls believe the assumption held by many that a physical disability is a major barrier to success in life is completely wrong and they wanted to change people’s attitudes by sharing some of the daily situations they experience in their lives. As part of the production, cameras were fitted to Claire’s wheelchair to capture some of the daily situations that arise for a wheelchair user. IWA member Claire says: “We hope that this will help students and teachers see what they can improve in their schools and help them gain a better understanding of the difficulties faced by people with disabilities.” The package contains the DVD and a resource booklet to assist teachers and leaders with further support material. Speaking at the launch of the DVD, which was held in the Longford Arms Hotel in December, Mayor of Longford, Cllr Peggy Nolan, said: “Longford County Council is proud to be part of this innovative initiative which will be used to raise awareness of the issues facing young people with disabilities and thereby promote better integration in our schools.” This IWA-led project was jointly funded through the Office of the Minister for Children and Youth Affairs (OMCYA), Longford County Council and Longford VEC. The DVD and resource booklet is being distributed to secondary schools across the country. However, the resource booklet is also available for download from the IWA website www.iwa.ie Back row (l to r): Laura McPhilips (Administrative Officer, Community and Enterprise, Longford Co Council), Daragh Kennedy (IWA), Hugh Farrell (IWA) and Maria O’Callaghan (IWA). Front (l to r): Claire Kenny, Cllr Peggy Nolan (Mayor of Longford) and Marie Kenny. Photo reproduced with kind permission from Longford Leader. Photographer: Mary Bracken spokeout 49 spokeout_spring_p50-51:Layout 1 24/02/2010 16:53 Page 50 Lorraine operates the desk in the adapted radio studio in Ballyfermot College HOT WHEELS Volunteering has become a habit for Lorraine Maher, with one project leading to another for the gregarious Dubliner. Robbie Cousins finds out why in Lorraine’s world, saying “no” is rarely an option icknamed ‘Hot Wheels’ by most who know her, Lorraine Maher is what you might call a habitual volunteer. She laughs: “I don’t know what it is, but if I have an interest in something, I generally tend to become totally immersed in it. But I have always got a lot more back than I put in.” Lorraine, who is studying for a Higher National Diploma in Media Production (Radio) at Ballyfermot College of Further Education (BCFE), began volunteering at social events. She says: “In my teens I attended many events and, while I didn’t mind, I felt I was being volunteered rather than volunteering to do things. When I turned 18, I thought it was time that I take the initiative and start looking for things I wanted to do and that challenged me.” After Lorraine finished school, her ambition was to get a job in media, and she had a particular love of radio. “I really wanted to study at BCFE but had to wait until I turned 23 and achieved the status of ‘mature student’ before I could do that. In the meantime, I started to look at ways of building up relevant experience in the area that I wanted to make my career in. When the opportunity arose I applied N 50 and got on to a CE scheme in Drama and Production run through Ballyfermot Civic Centre.” It was while on the scheme that Lorraine learnt that the local community radio station, Liffey Sound FM in Lucan, was looking for volunteers. “I got in touch and before long I was part of the presentation team on the breakfast show and became known by the radio moniker, DJ Hot Wheels.” She laughs because the name has stuck. “Everyone just calls me Hot Wheels now.” Lorraine stayed at Liffey Sound FM for a number of years before more recently becoming a volunteer at Near 90FM, another Dublin community radio station. When she turned a mature 23 years of age, Lorraine applied and was accepted in to BCFE. She says: “They told me I was to be the first student with a disability to take my particular course. And the college wanted to ensure that all my accessibility requirements were met. Within a few weeks of starting the course, they had made amendments to one of the radio studios, so it was more accessible for me. Since that time, there have been further adjustments made around the school that have paved the spokeout_spring_p50-51:Layout 1 24/02/2010 16:53 Page 51 youth way for other students with disabilities. I was delighted with Tara Brandel (Artistic Director, Croi Glan) rehearses with the dance group the way the authorities consulted with me to see what for the Do Look Now performance worked and how seriously they took and continue to take my suggestions.” Lorraine also says that being the first person with a disability to take her course has been one of her proudest achievements to date. Outside of class, Lorraine began to expand her portfolio of voluntary activities, and she has become involved in a number of significant youth and social initiatives in the south Dublin area over the past few years. She says: “I met Stephen Moynihan (IWA Youth Worker Dublin) a couple of years ago and completed a disability training workshop with him. Stephen had some great ideas about youth and highlighting disability issues within the community. I became involved in the local IWA Youth and enthusiasm for the arts in the local area. She says: Group and we met regularly at St Kevin’s Family Resource “Victoria was a huge support in getting the integrated dance Centre in Tallaght. Another youth group, the Tallaghtfornia project moving. But we also talked about other ideas or Foroige Club, shared the same meetmore precisely developing more opportuing place with our group.” nities for young people in the local comAs both groups got to know each “Before long I was munity to pursue their artistic other they began to investigate ways part of the potential.” in which they could work together. The Tallaght Youth Forum came into Lorraine says: “After a number of presentation team being as result of these and other meetings we all agreed that some on the breakfast discussions with like-minded individuals. form of dance project involving both show and became Lorraine explains even though the Forum groups presented an exciting oppora few months old it has already tunity to challenge stereotypical asknown by the radio ishadonly some success in reaching out to the sumptions about disability and also moniker, DJ Hot community. “There are now six of us inshow that disability is not a barrier to volved and we operate out of Rua Red inclusion.” Wheels” Arts Centre. We have been meeting with South Dublin County Council Arts youth groups and schools and support is Officer Victoria Durrer came on board growing very quickly for the initiative. ” And yes, of course, with the project and the Cork-based integrated dance Lorraine is a volunteer. company Croi Glan was brought in to work with the new So what is next for Lorraine? “I finish my Diploma this combined group to devise an integrated piece for them to perform. The performance, titled Do Look Now, was show- year and would be interested in going on to complete my Degree. But I have also got so much out of working with cased at the Tallaght Civic Centre in July of last year and a young people in my community. I guess I will come to documentary (also titled Do Look Now) about the show crossroads at some point, where I may have to choose can be viewed at the website what direction my career will take. But for the moment, I www.noisesouthdublin.com very happy to continue what I’m doing. The most important Lorraine believes the performance piece has had a thing is to enjoy what I do and hope it also helps others to profound effect on how people view disability in the local community, but will have a more lasting impact on the lives improve their lives.” of the young people who were involved in the project. “Do Look Now was an overwhelming success because it was Lorraine attends a Tallaght very warmly received by the local community, but also Youth Forum meeting those without a disability in the group took the opportunity to see beyond the disability and many new friendships were formed. By the time the performance took place, the group was already thinking of ways to keep working together. So we have been working on a film project and the results of this will be presented to the local community at the end of February at the new Rua Red Arts Centre in Tallaght.” While working on the Do Look Now project, Lorraine got to know Victoria Durrer, who she says has great energy spokeout 51 spokeout_spring_p52:Layout 1 24/02/2010 16:54 Page 52 news CAR RAFFLE 2009 50 WALKS IWA is planning ‘50 walks in 50 locations’ which will take place in 2010 to celebrate our 50th year Walks will take place in all counties and will be organised locally. It is proposed that local committees will be established to plan and organise each event. This is an opportunity for everyone to become involved either in the planning, walking, pushing, raising sponsorship or organising fun activities around the event. The time of year, date, duration, size of event, number of activities, will all be decided at local level. If you would like to get involved, please contact Mildred Carroll at tel: 087 4161878 / email: mildred.carroll@iwa.ie or Zoe Egner at tel: 087 995 5062 / email: zoe.egner@iwa.ie IWA would like to express a sincere ‘thank you’ to all the readers who kindly returned IWA’s Super Ford Focus Car Raffle Cards from the autumn issue of Spokeout. IWA’s Fundraising Department is delighted to report that it raised €50,000 from the sale of tickets. The winner of the Ford Focus was Paul Kinsella, Graiguecullen, Co Carlow. Tickets for our 2010 Ford Focus Car Raffle, which takes place in December, are available from IWA’s Fundraising Dept on tel: 01 818 6469 / email: fund@iwa.ie NATIONAL ARTS & CRAFTS EXHIBITION AND FAIR Carlow knitters: (back) Jenny Bolger, Jane Haines, Valerie Haughney, (front) Mary Brophy, Irene Boyle and Laura Michael Competitors in the talent show at Clontarf Resource Centre’s Fun Day in June 2009 IWA’s got talent IWA is currently planning a fun-filled singing contest for members. Organisers say their intention is “to publicly affirm the ability of IWA members to compete at the highest level in the entertainment industry!” The contest will identify the best singing talent within the IWA membership through a series of regional contests. Regional finalists will then get the opportunity to perform at a national final and sing on a professionally produced CD. If you are a singer and would like to put your name forward please contact: • Mary Farrell: 087 050 7711 / mary.farrell@iwa.ie • Kathleen Carroll: 086 841 7616 /kathleen.carroll@iwa.ie • Tony Coy: 086 813 0710 / tony.coy@iwa.ie 52 A National Arts & Crafts Exhibition and Fair is being planned as part of the Irish Wheelchair Association’s 50th anniversary celebrations in autumn of this year. This event will showcase the excellent range and quality of arts and crafts that are being created by members in IWA Resource and Outreach Centres throughout the country. At this stage, members in IWA’s various centres are encouraged to start planning and preparing arts and crafts for this event. If you are involved in art or crafts and would like to take part, please contact either Josie Kilgallon at tel: 087 050 6175 / email: josie.kilgallon@iwa.ie or Karen Cronin at tel: 087 268 9445 / email: karen.cronin@iwa.ie There will be an update on this event in the next issue of Spokeout. Basket-making in Carlow Resource Centre spokeout_spring_p53:Layout 1 24/02/2010 16:55 Page 53 news Glennon’s Insurance ACCESS ALL AREAS Access, Care & Mobility Exhibition showcases range of adaptive technology and equipment The 2010 Access, Care & Mobility Exhibition takes place on Friday 11th and Saturday 12th June 2010 in the City West Convention Centre, Saggart, Co Dublin. Now in its eight year, the Exhibition is Ireland’s only event for healthcare, disability and rehabilitation. It caters for healthcare professionals, carers and people with disabilities and will have stands covering everything from vehicle conversions and scooters, specially adapted phones, zero gravity chairs, bathroom and kitchen aids through to specially adapted fashion footwear for children. The Access, Care & Mobility Exhibition will run from 10 am to 5 pm each day and entry is free-of-charge. For further details see: www.accessandmobility.ie IWA member Michael Moriarty, Co Meath, was the winner of the most recent Glennon’s Insurance Draw for a year’s free car insurance. The next draw, which is open to IWA members, their spouses/partners, and their carers, is for those seeking quotations through Glennon during the months of April, May and June. Michael received the prize from Chris Hoey, IWA Regional Director, in the regional office in Navan. Also pictured are: Shauna Cahill, ALS Coordinator; Mildred Carroll, Area Manager; Alan Grimes, IT Systems Development/DBA, and Seamus Casey, Fundraising Development Officer. To find out more about IWA Car and Home Insurance Schemes, contact Glennon on tel: 1890 812 221 or email: iwa@glennons.ie spokeout 53 spokeout_spring_p55:Layout 1 24/02/2010 16:56 Page 55 news Dublin businesses urged to prioritise access Access Matters, a campaign and business directory initiative led by the Access Unit of Dublin City Council, aims to increase awareness and understanding of access issues in Dublin. During 2010, organisers of the campaign are anticipating the addition of hundreds of new businesses to the Access Matters business directory, and they are calling on IWA members to encourage businesses in their local area to make ‘access’ the ‘Number One’ priority in 2010. A street level survey carried out last year in Dublin City found that: • 90 percent of people in Dublin felt they would benefit from knowing the level of accessibility provided at a venue or business before leaving their house • 89 percent believe it is important and makes economic sense for a business to adapt their services and facilities to meet the needs of everybody, not just wheelchair users, but elderly people, visually impaired people, people temporarily on crutches, etc. • A majority of those surveyed (58 percent) felt that equal access would have a positive benefit primarily on social inclusion, but also on the economy and tourism. The Access Matters Business Directory for Dublin provides information on levels of accessibility in restaurants, pubs, hotels, cinemas, banks, shopping centres, museums and many other publicly used buildings around Dublin. Businesses wishing to apply for inclusion in the Access Matters Maeve Binchy launches the Access Matters business directory Business Directory can do so online at www.accessdublin.ie or by requesting a Business Registration Pack from the Access Unit of Dublin City Council Tel: 01 222 2194. Email: audit@accessdublin.ie Disability Law book published The European Yearbook of Disability Law, edited by Prof Gerard Quinn (NUI Galway) and Prof Lisa Waddington (Maastricht University), is a comprehensive review of significant developments at European level regarding disability law and policy. According to the publishers, the field of European disability law and policy is both new and rapidly expanding and the book covers a disparate range of subject areas including non-discrimination, transport, education, employment and housing. This is the first time all of the relevant developments have been included in one publication and it could be an indispensable reference work for Government and non-Government agencies, public policy analysts and researchers, as well as solicitors and barristers. The Yearbook also contains a series of essays on current challenges and developments from senior analysts and academics in the field. The European Yearbook of Disability Law is published in paperback by Interstatia (ISBN 97890-5095-820-2 ) and should cost approximately €60 VACANCIES IN CLONTARF INDEPENDENT LIVING APARTMENTS There are currently a number of vacancies in the Leo Close Independent Living Apartments in Clontarf, which were officially reopened in November 2009 and featured in last autumn’s Spokeout. The apartments provide purpose-built wheelchair accessible accommodation and are designed to give people with limited mobility the opportunity to develop independent living skills. The IWA Clontarf-based Independent Living Service (ILS) provides training, support and advice to the tenants and works with them to explore long-term housing options. The length of tenancies can vary from short tasters of less than a week up to the maximum period of 18 months. To apply, a person Leo Close Independent Living Apartments must be between 18 and 65 years of age. ILS staff welcome informal enquires and invite people to contact them for further information. People living outside of Dublin are also welcome to apply. To find out more, contact ILS by telephone on 01 818 6477 or email ilclontarf@iwa.ie spokeout 55 spokeout_spring_p57:Layout 1 24/02/2010 16:57 Page 57 news Tipperary BOCCIA North Tipperary CAVA award North Tipperary Community and Voluntary Association (CAVA) was set up to facilitate people to empower themselves through collective participation in the community and voluntary development. CAVA actively supports and encourages community and voluntary groups to reach their potential. The North Tipperary and Limerick IWA Sports Group was nominated for an award in the sports category of CAVA and was successful. They received the award in November. The group meets each Wednesday in Duncairn Community Hall, Co Offaly, to play basketball and other sports and welcome new members. Back (l-r): Peter Doherty (staff), Silke Brophy (staff), Rose Maher (staff), Charlene Donnelly (staff), Esther Mackey (staff), and Mary Campion (staff). Front (l-r): Members Elizabeth Coffey, Joan Tuohy, Liam Kennedy, Kevin Clifford and Eamonn Sheehan A group of service users attending the Roscrea Resource Centre on Thursdays formed three boccia teams in February 2009 and participated in summer and winter boccia leagues. Kathleen Finn, Sports Inclusion Disability Officer with North Tipperary Partnership, organised a ‘Tipperary Boccia League’ with the final taking place in December. A team representing Roscrea won this league, which attracted 10 teams in Division 1, and is now entering the National Boccia League. Dublin City Marathon Having collected sponsorship from colleagues, families, and friends, IWA staff members Chris Hoey, Natasha Spremo, and Karen Cronin presented Jimmy Byrne, IWA Secretary, with a cheque for €6,651, on behalf of the 2009 IWA Marathon Team. Back (l-r): Trevor Kennedy, Jennifer Williams, Ann O’Callaghan, Tony Hassett (trainer), Charlene Donnelly, Darren Noonan, Michael Hayes, and Edel Carey. Front (l-r): Thomas Butler, Catherine Dunne, Paul Beagan, Kevin Clifford and Damien Woods GLASS PAINTING COURSE North Tipperary VEC recently funded a glass painting course for members of Roscrea Resource and Outreach Centre. The course, coordinated by local artist Kathleen Flanagan, gave members and service users an opportunity to try a new art technique. The course participants had an opportunity to exhibit their work at the annual open day/coffee morning which coincided with the Angel Campaign launch. BRENDAN GRACE LAUNCHES ANGELS In November, to coincide with the national launch of IWA’s Angel Campaign, comedian Brendan Grace launched the North Tipperary campaign at his show held in The Source Arts Centre, Thurles. Brendan is pictured with service users Michael O’Dowd and Eamonn Sheehan. Back (l-r): Alice Walsh, Jo Moyles, Patricia Hodgins, Mary O’Meara, and Kathleen Flanagan. Front (l-r): Paddy Walsh, Bill Guest, Liz Coffey, Lelia Corkery, Mary Child and Joan Tuohy spokeout 57 spokeout_Spring_p59:Layout 1 24/02/2010 16:59 Page 59 crossword Crossword To be in with a chance of winning one of two €50 ‘One4all’ gift tokens, which can be used in 4,500 retail outlets nationwide, simply send your completed crossword along with your name and address to: Spokeout Crossword, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3. Correct entries will be entered into a draw on Friday 30th April 2010 and two winners drawn. Crossword No. 7 by Gordius Across 1. High, dropping shot. (3) 3. Hand-written documents that will make aunts scrimp. (11) 8 and 12 down. It is celebrated after fifty years. (6,11) 9. Single-storey dwelling. (8) 10. Diagnostic examinations. (5) 11. A play. (5) 13. Shade of brown. (5) 15. Tree-lined driveways. (7) 16. Region around Cavan named in the riff Ben rewrote. (7) 20. Exclamation beloved of Scottish owls? (5) 21. Misgiving. (5) 23 and 24. Dublin location for the historic November 1960 meeting which established the Irish Wheelchair Association. (5,8) 25. Famous Spanish flotilla. (6) 26. Fine insight and judgment. (11) 27. The late Ms Hayes, after whom a training centre was named last year. (3) Down 1. Dizzy, giddy. (5-6) 2. The centre of a dartboard. (8) 3. Encounters. (5) 4. Scold someone for arranging an arid pub! (7) 5. Stiff, unbending. (5) 6. The room in 23 across where the association began. (6) 7. Stitch together. (3) 12. See 8 across. 13. Large, deciduous tree. (5) small ads FOR SALE Cars and accessories Volkswagen Transporter Shuttle Bus 2008 Ricon lift, alloy rims, 16,000 km. €28,000. Tel: 087 644 6339 (Kerry) Toyota LiteAce 1995 Automatic, five seats plus wheelchair, hydraulic rear lift, air conditioning, electric windows/mirrors, NCT 06/11, 48,000 miles. €4,000. Tel: 087 791 9239 (Tipperary) 14. Noblemen whose flight is commemorated in a great walk. (5) 17. How furniture arrives when it requires construction by the buyer. (4,4) 18. Criminal, thug. (7) 19. Healthcare employees. (6) 22. On two occasions. (5) 23. Earn, deserve. (5) 24. Concealed. (3) CROSSWORD WINNERS FOR WINTER 2009 M Doyle, St Mullins, Co Carlow; P Hodgins, Birr, Co Offaly SCRIBBLE BOX If you have an item for sale, a holiday contact or a personal advert, please send approx 25 words to Small ads, Spokeout, IWA, Blackheath Drive, Clontarf, Dublin 3. Small ads are free-of-charge to members. Adverts for accessible holiday accommodation are €20.00 (cheques or postal orders payable to IWA Ltd). Wheelchairs, scooters and adaptive equipment Electric wheelchair As new. €1,200. Tel: 087 791 9239 (Tipperary) Ultralite powerchair 760/765 Perfect condition, 18 months old, folds easily for transporting by car. €1,500. Tel: 086 262 3361 or 01 298 0235 (Dublin) condition. €900. Tel: 042 937 7325 after 2pm (Louth) Pride Revo Mobility Scooter Showroom condition (used for six weeks), easily transported. €850. Tel: 01 811 4813 or 085 282 4156 (Dublin) Mobility Scooter Perfect working order. €1,400 ono. Tel: 086 062 3906 (Limerick) Three-wheel tricycle Suitable for adult, safety harness, back support, perfect spokeout 59 spokeout_spring_p60:Layout 1 24/02/2010 17:12 Page 60 letters YOUR VIEWS Got something to say? Write to us at Spokeout, Irish Wheelchair Association, Blackheath Drive, Clontarf, Dublin 3 FOUNDER MEMBER OLIVER MURPHY Dear Editor I am writing to request that a feature be done on Oliver Murphy: the last surviving founder member of the Irish Wheelchair Association. Whereas most of the older members of IWA know about the origin of IWA and how it came into existence, there may be a lot of new members who are not aware of the IWA story. It would be fitting therefore if we could acknowledge Oliver Murphy’s contribution as the last surviving member of the original group that set up the organisation now known as IWA. The IWA was founded in 1960. At the time social services were basic and it was left to individuals such as Lady Valerie Goulding (Central Remedial Clinic) and the eight original IWA founders to supplement the meagre health services of the time by coming together with like-minded individuals to provide a service for disabled people. Perhaps the article could get Oliver Murphy’s thoughts on the growth of the IWA as indeed it is a story of an acorn growing into a huge tree. It would indeed be fascinating to read about the IWA founder member Oliver Murphy (left) with veteran UK disability rights activist Sir Bert Massie founding members of IWA and get Oliver’s views and memories of how he sat with seven other people in the Pillar Room of the Mater Hospital to improve the lives of disabled people by founding their own organisation. Yours, etc. Nora Alford Dublin Editor’s note: Your suggestion was a good one, and has been echoed by several other staff and members. You will see by our cover story that we have taken it on board! Our cover story focuses on Oliver’s own life story, but Oliver’s memories of the day IWA was founded will be included in IWA’s 50th Anniversary Commemorative book, due for publication later this year. INSPIRATIONAL TELEVISION Dear Editor On Tuesday 19th January UK television presenter Gok Wan did a show on Channel 4 titled How to look good disabled and naked. It was the first of a three-part series, running for three Tuesday nights from the 19th January. Gok Wan said that it was inspiring to work on the series – and as viewers, we too found it inspiring. I am totally blind and my two daughters are registered as blind. The show focuses on women with disabilities and body confidence issues. This show is an excellent idea from Gok Wan and is definitely a move in the right direction. We think something similar should be done by Irish television stations – although we are a bit backward in this country and, consequently, we will not be holding our breath! However, hopefully some TV producer will hear our plea! Yours, etc. Marion and Sinead Kane Cork P.S. I suppose it would be asking too much to get Channel 4 to bring Gok Wan to Ireland? THE VIEWS EXPRESSED ON THESE PAGES ARE THE VIEWS OF INDIVIDUAL READERS AND DO NOT NECESSARILY REPRESENT THE VIEWS OF IWA 60