NEWSLETTER - Support for Families of Children with Disabilities

Transcription

SUPPORT FOR FAMILIES
OF CHILDREN WITH DISABILITIES
NEWSLETTER
SPRING 2016
Table of Contents
Access to Adventure/
Movie Nights
Inclusion is All Around Us
Where to Get Help With
a Child's Special Education
Services
1
Mark Your Calendars:
Access to Adventure 2016
2-3
4
PULL - OUT SECTION
Our Services & Events
5-8
The Well Visit Planner
9
Saturday, May 7, 2016
12:00 pm – 3:00 pm
Bandshell Music Concourse
Golden Gate Park
(see page 3 for more information)
Special Events Special Needs Family
Appreciation Night with
the Warriors
10
Thank You!/
Stepping Stones
11
SFCD Board & Staff
12
this Spring!
Join us for a family-friendly movie while munching on fresh-popped popcorn and pizza
right here in our office! Our playroom will also be open!
Movies Nights are held at Support for Families,
1663 Mission Street, 7th Floor, San Francisco, CA 94103.
Friday, March 18
Boxtrolls
Support for Families of Children
with Disabilities is a nonprofit
support, resource, and networking
organization for families of children
with disabilities, concerns, and
special health care needs and the
professionals who work with them.
All services are free of charge
including resources, phone-line,
drop-in center, support groups,
workshops & family gatherings.
Friday, April 15
Inside Out
Friday, May 30
Minions
Register online at
www.supportforfamilies.org or call us at
415-920-5040.
Note: Parents must stay with children at all times as
childcare will not be provided.
SPRING 2016
SUPPORT FOR FAMILIES NEWSLETTER
2
Inclusion
Inclusion is All Around Us
by Alison Stewart, SNIP Manager, astewart@supportforfamilies.org
This Tipsheet was developed by SNIP with funding for CVS CAREMARK
Charitable Trust
Literature that reflects the natural diversity of our world,
along with honest and thoughtful conversation, helps
children deepen their understanding of differences in
themselves and in others.
This list is a small sample of books for a range of ages
and interests. In each section, books are ordered from
easiest to more advanced. Enjoy!
Books that represent inclusion:
Characters with differences and disabilities are part of a
story, but the story is not focused on their disability.
Cave, K. (2004). That's What Friends Do. New York: Hyperion Books for Children. This charming early childhood
picture book about friendship sets the stage for discussion
or reading about inclusion. Pair it with My Friend Isabelle.
(see below)
Parr, T. (2001). It’s Okay to Be Different. New York: Little,
Brown and Company. This lighthearted early childhood
picture book has bold, colorful line drawings of many differences, including various disabilities (and also having a
pet worm).
Slate, J. (1998). Miss Bindergarten Celebrates the 100th
Day of Kindergarten. New York: Dutton Children's Books.
(series). Lenny the Lion uses a wheelchair and is fully included in all of the class’s adventures, with no mention of
his mobility by Miss Bindergarten or Lenny’s classmates.
Lionni, L. (1963). Swimmy. New York: Pantheon. Swimmy
the fish discovers how to be himself while also being part
of a community. Artful illustrations (plus big words and
small print) make this book better as a read-aloud than independent reading for young children. Interesting metaphors stretch it into mid-elementary.
McCloud, C. (2006). Have you Filled a Bucket Today?: A
guide to daily happiness for kids. Northville, MI: Ferne
Press. This whimsical picture book is recommended as a
family, class, or even school-wide read. Illustrations are diverse in age, ethnicity, and physical ability and the message of kindness is universal.
Books that teach about differences and disabilities:
Woloson, E. (2003). My Friend Isabelle. Bethesda, MD:
Woodbine House. Thrasher, A. (2004). A teacher's guide
to My Friend Isabelle: classroom activities that foster
acceptance of differences. Bethesda, MD: Woodbine
House. Charlie and Isabelle are dear friends who like to do
many of the same things, but are also quite different from
each other. Charlie and his mom talk about these differences, and agree that “life is more fun with friends like Isabelle,” who has Down Syndrome.
Lyon, G.E. (2010). The Pirate of Kindergarten. New York:
Simon & Schuster. (Schneider Family Book Award Winner)
In this high-energy book, a feisty kindergartener discovers
that most people don't see double. After a vision screening, she gets glasses and an eye patch, becoming the pirate of kindergarten!
Polacco, P. (1998). Thank you, Mr.
Falker. New York: Penguin.** This autobiographical story captures the loneliness and self-doubt of a child who has
difficulty learning to read. It highlights
the positive impact of a strengthsbased approach.
Asare, M. (1997). Sosu's Call. Ghana:
Sub-Saharan. (Winner: UNESCO Children's and Youth's Literature in the Service of Tolerance, IBBY Outstanding Book
for Young People with Disabilities) Sosu is excluded from
his village because his legs “don't work”, until he saves
many lives during a great storm. This picture book vividly
contrasts the experiences of exclusion and inclusion.
Uhlberg, M. (2010). Dad, Jackie, and Me. Atlanta:
Peachtree. Beautiful watercolors illustrate this enjoyable
story of a boy and his father who closely follow Jackie Robinson's first season. With a gentle touch, the story shows
the parallel discrimination faced by Jackie, the first black
major league baseball player, and Dad, who is Deaf.
Binkow, H. (2008). Howard B. Wigglebottom Listens to
His Heart. Lerner. (series) This book features a child with
ADHD, but the central message of this captivating book is
“be yourself.” Whoever you are, Howard will help you celebrate your unique qualities.
1663 Mission Street, 7th Floor, San Francisco, CA 94103 • (415) 282-7494 • info@supportforfamilies.org • www.supportforfamilies.org
SPRING 2016
Petrillo, G. (2007). Keep Your Ear on the Ball. Gardener, ME: Tilbury.** In this true story of teamwork, Davey’s
friendly classmates learn how to include him without doing everything for him. Davey is a polite, capable boy with
a visual impairment whose story offers a wonderful introduction to disability etiquette and creative examples of
auditory cues.
Palacios, R.J. (2012) Wonder. New
York: Knopf.** Multiple characters narrate this New York Times bestseller, including a boy whose first day of middle
school is also his first day of school ever,
due to a medical condition. Strangers
are afraid of his unusual face, but the
kind and loving Auggie becomes part
of his new community.
Brenna, Beverly. (2012) The White Bicycle. Ontario, Canada: Red Deer Press. (series)** Typical teenage highs and
lows are magnified by Taylor Jane’s unique perspective as
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a woman with Asperger’s Syndrome. Her first job, supporting a boy who uses a wheelchair and an alternative communication device, is key to this insightful and often funny
coming-of-age story.
**Books especially recommended for adults to read for
their own understanding and enjoyment.
Additional Resources to Build your Library
Look for characters with disabilities that are shown in
positive, realistic roles, fully contributing to the story and
a range of settings (urban, rural), cultures (languages, religions, traditions), perspectives (age, social class) and all
other ways that humans are diverse.
http://www.inclusive-education.ca/resources/documents/inclusive_booklist.pdf
http://pages.towson.edu/cholmes/similarities/child.htm
www.woodbinehouse.com/my_friend_isabelle_teachers_guide.pdf
Access to Adventure is Back!
Date/Time: Saturday, May 7, 2016, 12:00 pm – 3:00 pm
Location: Bandshell Music Concourse, Golden Gate Park
Join us at this annual fun-filled festival to experience & explore:
• music • arts • sports • food • live entertainment • and other fun activities!
ALL activities are accessible and the event is FREE (suggested donation $5 per person).
To register, go to supportforfamilies.org or call 415-920-5040
Want to get involved? We are looking for volunteers, exhibitors, sponsors, and in-kind donations. For more
info, please contact volunteer@supportforfamilies.org.
This event is presented by Support for Families of Children with Disabilities and sponsored by SF Recreation and Parks
SPRING 2016
Education
Where to Get Help with a Child's
Special Education Services
by Joe Goyos, Education Program Director, jgoyos@supportforfamilies.org
Compiled by Support for Families and San Francisco Unified School District
It is important for parents to know where to get help if
they believe there are problems with their child's special
education services. It is in the best interests of your child
to resolve problems at the earliest indication of communication breakdowns, and to seek resolution at the
school site first whenever possible.
The following is SFUSD's system of resolution options:
1.
Discuss the problem with your child's classroom
teacher and/or other school staff member who knows
your child's needs. This can include your child's special
education teacher, counselor, related service provider
(i.e. speech, occupational therapy, etc.), psychologist, or
other specialist helping your child. It may also include the
school site family liaison, who may be able to help with
school site communications with staff.
2.
Review your child's IEP and determine if the plan
is being implemented. Does it need updating to meet any
changing needs of your child? You may request a review of
the IEP at anytime. A meeting must be held within 30 days
of your request. Be sure to ask that all relevant IEP team
members be present to address your concerns.
3.
If there is no resolution, discuss the problem with
the school principal. Your principal may assign staff with
responsibility for special education to help. You should
also speak with the special education program content
specialist assigned to your child's school. The special education teacher and the school principal will be able to provide you with the contact information for the special education content specialist. It is also located on the Special
Education Services website, http://www.sfusdsped.org/
4.
If there is still no resolution, call SFUSD Special Education Services at (415) 759-2222 and ask for the Special
Education Supervisor for your school.
5.
If you feel that your concerns haven’t been addressed through the above four avenues, you can call the
Special Education Ombudsman at (415) 241-6185 x 3236
for help resolving your concerns. The Ombudsman can
4
work with appropriate SFUSD staff to address your concerns.
6.
You may also call the appropriate Assistant Superintendent, Elementary & K-8 Schools (415-241-6310),
Middle Schools (415-241-6607), High Schools (415-2416478), County/Court Schools (415-241-6478). The Director of Charter Schools can be reached at 415-241-6121.
For the Chief of Early Education please call 415-750-8599.
7.
For issues not related to the IEP, parents may contact Ramon Martinez (415-241-6150) in the SFUSD Office
of Family Voice for assistance with addressing concerns
regarding to the school site climate, bullying, and other issues that can’t be addressed in the IEP.
8.
The California Department of Education (CDE) coordinates the Procedural Safeguards and Referral Services,
which provide technical assistance information and resources for parents, school districts, advocates, agencies,
and others of procedural safeguards regarding students
between ages 3-21 with disabilities and their educational
rights.
Resources:
Procedural Safeguards & Referral Services
Toll-free Help Line: 800-926-0648; Weekdays 9am - 4pm
Fax: 916-327-3704 or email: speceducation@cde.ca.gov
The current (2009) Special Education Rights of Parents &
Children, Procedural Safeguards Notice can be downloaded (in multiple languages) from the CDE website at:
http://www.cde.ca.gov/sp/se/qa/pseng.asp
CDE compliance complaint process:
http://www.cde.ca.gov/sp/se/qa/cmplntproc.asp
1.
Request for Compliant Investigation Form: Click
on Request for Complaint Investigation (DOC; Revised
Nov-2006) at the bottom of the following web page:
http://www.cde.ca.gov/sp/se/qa/documents/cmplntinvsrqst.doc
2.
Special education dispute resolution process:
www.cde.ca.gov/ls/cs/k3/dispute.asp
3.
For systems issues, the CAC for Special Education
is an advisory committee to the Board of Education, made
up of parents and professionals, whose purpose is to advocate for quality special education. The CAC welcomes all to
attend meetings and share information the 4th Thursday
of every month, 7pm, at SFCD. You may contact the CAC at
cacspedsf@gmail.com or visit their website at
www.cacspedsf.org
You can always contact SFCD with any questions at the number below
SPRING 2016
5
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES
A support and resource organization providing services for families of children with disabilities
Our Services
CALL US:
415-920-5040
EMAIL US:
info@supportforfamilies.org
VISIT US:
1663 Mission Street
7th Floor
San Francisco, CA 94103
HOURS:
Monday, Wednesday, Friday
9:30am-4:30pm
Tuesday, Thursday
12:30pm - 8:30pm
GO TO OUR WEBSITE:
www.supportforfamilies.org
to get the latest information
on workshops, events and
new resources.
FIND US ON:
facebook.com/
supportforfamiliessf
twitter.com/supportforfams
Phoneline/Drop-in Center
Get individualized
information, referrals, and
answers to all your questions
from Support for Families
staff, who are parents
themselves. Staff will follow
up to make sure you get
the answers you need. Staff
speak English, Spanish,
and Cantonese. Caregiving
for children available 4:308:30 p.m. Tuesdays and
Thursdays.
Resource Library
Access more than 3,500
books, DVDs, and a toy
lending collection for families
and professionals in our
onsite library. Visit the library
catalog online at:
www.supportforfamilies.
org/library.html. On-site
computer access and
assistance is also available.
The library is open during
drop-in center hours and
during on-site workshops
and special events.
Support Groups
Come to a support group to
find solutions to challenges,
learn advocacy skills, and
explore resources. Support
groups provide a network
for families to gain strength
by sharing experiences with
peers.
Volunteer Parent Mentors
Find a match with a trained
volunteer Parent Mentor
based on a shared issue,
condition and or situation.
Educational Workshops
and Clinics
Learn about resources,
rights, and responsibilities in
monthly parent/professional
workshops and weekly smallgroup clinics. Care giving for
children and interpretation
services are available with
advance reservation for
clinics and workshops.
Case Management
Get professional consultation
from social workers.
Family Special Events
Socialize and network in a
fun relaxed atmosphere at
quarterly events, such as our
annual ice-skating party and
Halloween party.
Newsletter
Read the quarterly
newsletter in English,
Spanish, or Chinese to find
articles of interest to families
and professionals.
How You Can Help
All services and events,
even childcare, are
always free of charge
to encourage participation by all families. With
the demand for services
greater than ever, your
donations help make this
possible. A gift to Support
for Families means that
families of children with
special needs will be
better prepared to help
their children—and that
more children with
disabilities will live their
lives with dignity and
opportunity.
Send a check to the
address below or give
online at
www.supportforfamilies.
org/help.html. Every gift
can help make a difference in the life of a child
with special needs.
MISSION STATEMENT
The purpose of Support for
Families is to ensure that
families of children with any
kind of disability or special
health care need have the
knowledge and support to
make informed choices that
enhance their children’s
development and well being.
Through fostering partnership
among families, professionals and the community, our
children can flourish.
BOARD OF DIRECTORS
Chris Dehner, President
Laura Lanzone, Vice President
Goli Mahdavi, Secretary
Diego Valderrama, Treasurer
Eileen Boussina
Judy C. Chen
Heather Fischer
David Fazio
Jane LaPides
Jessica Litwin
Laurie Strawn
Kim Webb
EXECUTIVE DIRECTOR
Juno Duenas
INSIDE
Support Groups
6
Parent-Professional
Workshops
7
Calendar of Events
8
SPRING 2016
6
Support Groups
All support groups are free of charge. Groups are located at Support for Families unless otherwise indicated.
Childcare can be provided unless otherwise indicated but MUST be reserved in advance. If you are interested in
participating in any of these groups, or if you are interested in a specific issue, call (415) 920-5040 or e-mail us at supportgroups@supportforfamilies.org for more information. We have staff who speak English, Spanish, and Cantonese.
Autism Support Group: Meets 4th Tuesday of the month, 6:30pm - 8:15pm.
Cantonese-Speaking Parents Support Group: Meets 2nd Saturday of the
month, 1:00pm - 3:00pm.
Chinatown Child Development Center
(CCDC) Group: For Cantonese-speaking
families of children with special needs.
Meets at the CCDC on the 3rd Monday of
the month, 9:30am - 12:00pm.
Down Syndrome Support Group:
Meets 2nd Tuesday of the month, 6:30pm
- 8:30pm.
Living with Loss: Loss, Hope and
Healing: A group for parents/caretakers
of medically fragile children and children
facing life threatening illness.
Call 415-920-5040 for information.
Prader-Willi Group: Meets quarterly on
Saturdays, 10:15am - 1:30pm.
Call 415-920-5040 for information.
the issues we and our youth face as they
reach adulthood. Meets 1st Tuesday of
the month, 6:00pm - 8:00pm.
Sibling Group: A recreational group for
siblings of children with disabilities or
special health care needs to have fun and
share experiences. Meets 3rd Saturday of
the month, 10:00am - 1:00pm.
Tuesday Night Group: A group for parents who have children with disabilities
or special health care needs. Meets 2nd
and 4th Tuesdays of the month, 6:45pm 8:30pm.
Spanish-Speaking Autism Support
Group: Meets 3rd Tuesday of the Month,
6:30pm - 8:15pm.
UCSF Inpatient Parent Support Group:
A group for parents whose children are at
UCSF Benioff Children's Hospital. Meets
every Thursday, 4:00pm - 5:30pm.
Spanish-Speaking Down Syndrome
Support Group: Meets 1st Tuesday of
the Month.
Spanish-Speaking Parent Support
Group: Meets the 2nd Wednesday of the
month, 10:00am - 12:00pm.
Transition-Age Parents Group: Join us
for information, resources and support for
Conversation Club for AAC Users: Meets
at Noe Valley Public Library Meeting
Room, 451 Jersey St., SF every Monday,
4:30pm - 5:30pm
Young AAC Kids Conversation Club:
Meets one Saturday of the month. Call
415-920-5040 for information.
PMP: Parent Mentor Program
The Parent Mentor Program (PMP) is one of the oldest programs at
Support for Families of Children with Disabilities (SFCD). The support
families receive through a Parent Mentor provides them the feeling
that they are not alone in their special needs journey.
This past year the PMP has taken on a new training series – Project
Leadership. Similar to the Special Ed series, the eight month training
(September - May) helps Parent Mentors gain an understanding of
health care systems and public policy advocacy. Originating under
Family Voices through funding from the Lucille Packard Foundation,
the curriculum provides insight in understanding systems process
and addressing concerns through various outlets, including participation in committees and planning bodies, providing testimonies
at state and federal hearings, and sharing their stories through the
media.
More importantly, training on “how” a Parent can mentor other
families is covered in the extensive Parent-to-Parent (P2P) Training.
The P2P provides helpful information in order to be responsive to
families’ needs. Training includes accessing Support for Families as a
resource, active listening techniques, and communication skills. This
training occurs twice a year, in June and December.
Interested in becoming a Parent Mentor?
Contact us for information or to register!
Joan E. Selby (English)
Phone: (415) 282-7494, Ext. 113
Email: jselby@supportforfamilies.org
JoAnna Van Brusselen (Spanish)
Phone: (415) 282-7494, Ext. 141
Email: jvanbrusselen@supportforfamilies.org
SPRING 2016
7
Clinics and Parent-Professional Workshops (PPWs)
Workshops and Clinics are FREE and held at
Support for Families (SFCD), 1663 Mission St., 7th Floor
(between Duboce St. and S. Van Ness Ave.)
*Pre-registration is required.* To attend, reserve childcare and/or interpretation services, you must call at least
one week in advance: 415-920-5040.
WORKSHOPS
Disaster Preparedness Series
Sunday, March 13, 2016; 1:30pm - 3:00pm
Sunday, April 10, 2016; 1:30pm - 3:00pm
Sunday, May 15, 2016; 1:30pm - 3:00pm
5-session series on disaster readiness presented UCSF Students
with assistance from San Francisco Department of Public Health
(SFDPH) - Chinatown Public Health Center. Seesion began in
January 2016
Presenter: UCSF Students and representatives from Chinatown Public
Health Center
Skills for Effective Parent Advocacy
Thursday, June 30, 2016; 4:00pm - 6:00pm
tion will involve a movement lesson, video, and hands on work
which you can practice at home and teach to your family. You
will learn theory and apply it in ways that will help you and your
child. You will improve your own body awareness and allow for
ease of movement which translates into ease with moving and
interacting with our children.
Through touch and movement we can clarify our children’s connection to themselves and their possibilities.
Presenter: Evelyn Miller-Freebury R.N., IBCLC , Registered Movement
Therapist, Child’Space Practitioner, and Laurel Condro PT, Certified
Feldenkrais™ Practitioner and Child’Space practitioner.
CLINICS
For dates/times of clinics, see Calendar of Events on page 8.
iPads for Communication
Presented by SFCD. Offered in English, Spanish, and Cantonese.
Learn about using the iPad as an Augmentative and Alternative
Communication (AAC) Device. iPad operation and features will be
covered, as well as communication apps and how AAC devices
and services fit into the IEP process. Afterward, you may be able
to borrow an iPad from our lending library.
Build your advocacy skills to support your child in a non-adversarial manner. We discuss the importance of building communication with professionals and being able problem solve in a variety
of situations. The workshop will also cover letter writing tips,
email tips, documentation strategies, as well as some pointers
for in-person communication.
Individualized Education Program (IEP)
PPW: ABLE Act Accounts, Special Needs Trusts, and Tax
Planning: How They Fit Together to Protect a Special
Needs Child
Thursday, April 7, 2016; 5:00pm - 7:00pm
Presented by SFCD. Learn about special education transition services for children age 16 and over, and how to effectively participate in the development of your child’s transition plan.
This program will explain how to create ABLE Act accounts, which
can hold up to $100,000 without disturbing eligibility for government benefits. However, an ABLE Act Account on its own is not
enough. It is only one part of a comprehensive special needs
estate plan.
This program will address the 10 questions most frequently asked
about the funding and operation of Special Needs Trusts. It will
identify important tax planning benefits. It will identify housing
options – where your child will live and be cared for upon your
passing.
Presenter: Mark Gilfix, Attorney, Gilfix & La Poll
PPW: Touch and Movement: Foundations of Connection
Saturday, April 9, 2016; 8:30am - 12:30pm
In this workshop you will learn ways to use touch, movement,
singing, and observation to interact with your child. This introduc-
Presented by SFCD. Offered in English, Spanish, and Cantonese.
Learn about Special Education law, the IEP process, what to do
when things aren’t working, and how to become a more active
and effective team member.
Transition to Adult Services
Infant Massage Series
Infant massage is a fantastic
way to connect with your baby,
reduce stress and postnatal
depression, and increase closeness! Studies have shown infant
massage can help babies sleep better, gain weight, reduce
fussiness, improve health and relax.
This FREE 5-week series welcomes ALL infants birth to one year
and their parents/caregivers. Each week we will be learning
information and strokes that build on each other, so attendance at all sessions is ideal.
New Session begins in March! Call 415-920-5040 or visit
supportforfamilies.org for more information
SPRING 2016
8
Calendar of Events
March
May
2-Mar 10:00am - 12:00pmiPads for Communication - Spanish
4-May 10:00am - 12:00pmiPads for Communication - Spanish
3-Mar 4:00pm - 6:00pm
iPads for Communication - English
5-May 4:00pm - 6:00pm
3-Mar CANCELLED
IEP Clinic - Cantonese - CANCELLED (IRC)
5-May 6:00pm - 8:00pm
IEP Clinic - Cantonese
5-Mar 8:30am-3:30pm
2016 Information and Resouce Conference
12-May4:00pm - 6:00pm
IEP Clinic - English
10-Mar 4:00pm - 6:00pm
12-Mar CANCELLED
PPW: CANCELLED (IRC)
PPW: Using Special Needs Trust as an Advo14-May8:30am - 12:30pm cacy Tool & The ABLE ACT
13-Mar 1:30pm - 3:00pm
Disaster Preparedness Series 3 of 5
15-Mar 5:30pm - 8:30pm
PMP: Project Leadership - English
16-Mar 10:00am -1:00pm PMP: Project Leadership - Spanish
16-Mar 5:30pm - 7:30pm
iPads for Communication - Spanish
17-Mar 4:00pm - 6:00pm
IEP Clinic - Spanish
19-Mar 9:00am - 11:00am iPads for Communication - Chinese
19-Mar 11:30am - 12:20pmYoung AAC Kids Conversation Club
19-Mar 1:00pm - 3:00pm
24-Mar 4:00pm - 6:00pm
24-Mar 6:30pm - 8:30pm
CAC ( Community Advisory Committee )
April
6-Apr 10:00am - 12:00pmiPads for Communication - Spanish
7-Apr 5:00pm - 7:00pm
PPW: ABLE Act Accounts, Special Needs
Trusts, and Tax Planning
7-Apr 6:00pm - 8:00pm
PPW: Touch and Movement: Foundations of
9-Apr 8:30am - 12:30pm Connection
10-Apr 1:30pm - 3:00pm
14-Apr 4:00pm - 6:00pm
16-Apr 9:00am - 11:00am iPads for Communication - Chinese
16-Apr 11:30am - 12:20pmYoung AAC Kids Conversation Club
16-Apr 1:00pm - 3:00pm
19-Apr 5:30pm - 8:30pm
20-Apr 10:00am -1:00pm PMP: Project Leadership - Spanish
20-Apr 5:30pm - 7:30pm
21-Apr 4:00pm - 6:00pm
28-Apr 4:00pm - 6:00pm
28-Apr 6:30pm - 8:30pm
15-May1:30pm - 3:00pm
17-May5:30pm - 8:30pm
18-May10:00am -1:00pm PMP: Project Leadership - Spanish
18-May5:30pm - 7:30pm
19-May4:00pm - 6:00pm
21-May9:00am - 11:00am iPads for Communication - Chinese
21-May11:30am - 12:20pmYoung AAC Kids Conversation Club
21-May1:00pm - 3:00pm
26-May4:00pm - 6:00pm
26-May6:30pm - 8:30pm
June
1-Jun 9:30am - 1:30pm
PMP: Parent to Parent - Spanish Part 1
1-Jun 10:00am - 12:00pmiPads for Communication - Spanish
2-Jun 6:00pm - 8:00pm
2-Jun 4:00pm - 6:00pm
8-Jun 9:30am - 1:30pm
PMP: Parent to Parent - Spanish Part 2
9-Jun 4:00pm - 6:00pm
11-Jun CANCELLED
PPW: CANCELED
11-Jun 8:30am - 4:30pm
PMP: Parent to Parent - English
16-Jun 4:00pm - 6:00pm
18-Jun 9:00am - 11:00am iPads for Communication - Chinese
18-Jun 11:30am - 12:20pmYoung AAC Kids Conversation Club
18-Jun 1:00pm - 3:00pm
23-Jun 4:00pm - 6:00pm
23-Jun 6:30pm - 8:30pm
30-Jun 4:00pm - 6:00pm
Skills for Effective Parent Advocacy
For more information or to register for any of these events, please call us at 415-920-5040 or visit us at www.supportforfamilies.org.
SPRING 2016
The Well Visit Planner: Making
the Most of Your Child’s WellChild Visits to the Health Care
Provider
For more information about FVCA or this article, contact Pip Marks, FVCA
Council Manager: pipmarks@familyvoicesofca.org
Busy families, busy health care providers! Time is of
the essence for everybody, and so making the best
use of the time we have is critical. Well-child visits—
those regularly scheduled trips to the doctor for your
child’s checkups and shots—provide important time
with your child’s health care provider.
The Well-Child Visit
The American Academy of Pediatrics (AAP) recommends
13 well-child visits during the first three years of your
child’s life. These are over and beyond any visits for illness
or those with specialists. Well-child visits are all about
prevention and promotion of healthy habits. Recommended vaccinations are given during these visits, as well
as routine screenings for such things as vision or hearing
problems, anemia, autism, and other issues. It is the perfect time to share what your child is doing and learning,
and to share any questions or concerns you might have.
It’s also a good time for your child’s health care provider
to learn about your family and your cultural and family
traditions and anything that affects your child’s health
and development.
The Well Visit Planner
A new tool can help you make those visits as meaningful
as possible: The Well Visit Planner. The Well Visit Planner is
an online tool to help families prepare for their children’s
upcoming well-child visits to the health care provider.
Sun March 13, 2016
Duct Tape, Garbage Bags
for emergency use
Cleaning with Bleach
Waste Management
Sun April 10, 2016
Respiratory Outbreak
Clean Hands-Preventing Illness
Food Safety-Power Outage
Sun May 15, 2016
311 Apps and Info Integration
9
FVCA
• It’s free to use
• It's available in English and Spanish
• It takes 10-15 minutes to fill out before each visit
• It can be printed and taken to a visit
•It helps families be better partners in their child’s health care
To use the Well Visit Planner, go to:
www.WellVisitPlanner.org
To learn more about the Well Visit Planner, check out two
videos on the website:
• The Well Visit Planner, Part 1—Making the Most of your
Child’s Health Care Checkups: An Overview of the Well
Visit Planner
• The Well Visit Planner, Part 2—Using the Well Visit Planner: A Step-by Step Guide: A Tour of the Planner—the
steps involved and the kinds of questions it asks.
The Well Visit Planner (WVP) was developed and created
by the Child and Adolescent Health Measurement Initiative
(CAHMI) (www.cahmi.org). National experts, families, and
pediatric providers worked together in the design, development, and testing of the WVP. The information contained
in the WVP is based on the American Academy of Pediatrics
Bright Futures Guidelines for the Health Supervision of Infants, Children, and Adolescents (https://brightfutures.aap.
org).
Disaster Preparedness Workshop Series
Time: 1:30pm – 3:00pm
Location:
Support for Families
1663 Mission Street
Suite 700
Free childcare and accommodations are available to families who pre-register with one week’s
notice.
SPRING 2016
Winter Event Recap: Holiday Ice
Skating Party
It may have been cold
outside, but that didn’t
prevent families from attending our annual Holiday Ice Skating Party on
Dec. 19th where they got
to enjoy delicious hot
chocolate, desserts, free
books, and a chance to
skate with Santa!
Photo by: Chetan Tekur
10
Special Needs Family
Appreciation Night with the
Warriors
Support for Families is excited to partner with the Golden
State Warriors again to offer discounted tickets and exclusive opportunities to families of children with special
needs! Bring your family and friends out to the Oracle
Arena on March 7th and cheer on the Warriors as they
take on the Orlando Magic! Tickets can be purchased
through our eventbrite.com page.
Date: Monday March 7th, 2016; Game begins at 7:30pm
Location: Oracle Arena, 7000 Coliseum Wy, Oakland, CA 94621
Huge thanks to our amazing volunteers, staff and
friends at the Yerba Buena Ice Skating Center for
making this event a success. We hope everyone
had a jolly good time!
Donor & Volunteer Recognition
Party: Thank You!
Our volunteers, donors, sponsors, and community
partners are the reason why our organization has been
successful in serving so many families of children with
disabilities and professionals in the community. We’d like
to thank everyone who attended our Donor & Volunteer
Recognition Party on Wednesday, February 17th and
helped us honor some amazing groups and individuals.
Support for Families is pleased to honor the following recipients of the 2016 Donor & Volunteer Award:
• Theta Delta Xi, Donor
• KISS FM, Media Sponsor
• ChengCheng Huang, Volunteer
• Michaela Azzopardi, Volunteer
• Ashlynn Kalahele, Parent Mentor
• Martha Membreno, Parent Mentor
JOB OPPORTUNITIES
Support for Families is looking to fill the following positions:
Family Resource Specialist: Bilingual
(Spanish or Cantonese)
Provides families of children with disabilities and professionals information, education and peer support on a warm line
and at the drop-in center. Duties include: answering a warm
line, meeting with families and providers, outreach to families, and providing follow-up support.
Inclusion Support Specialist
Support for Families seeks to increase opportunities for
children and youth with special needs to participate fully
in community recreation, cultural activities, and in out-ofschool time (OST) programs. We want our families to feel
welcome and our children and youth to participate in museums, performances, sports, and recreation programs. The
Inclusion Support Specialist will collaborate with community
organizations to create opportunities for children and youth
with special needs to be included in recreation and OST
activities alongside their typically-developing peers. They will
provide outreach to develop new partnerships with organizations that provide recreation and cultural activities in San
Francisco. They will provide staff and volunteer training, staff
coaching and technical assistance.
Email us at jobs@supportforfamilies.org or go to
www.supportforfamilies.org/jobs.html for information on how to apply.
SPRING 2016
Thank you!
Additional Wine+Design
2015 Donations
The Kimball Foundation
Audrey & Russell Vernick
Foundations, Groups,
Businesses
The Benevity Community
Impact Fund
Bill Graham Memorial
Foundation
Moca Foundation
Physicians at Pacific Professional Building
ProSight Specialty Insurance
Thendara Foundation
Individuals
Anonymous
John Ball
Angela Bennett
Barbara Bysiek
Chiachi Chen
Alycia Chu, in honor of
Juno Duenas
Lorelei Chun, in honor of
Mei Mei Chun-Moy's 2015
High School Graduation
11
Development
Donations received November 1, 2015 - January 31, 2016
Support for Families gratefully acknowledges gifts from the
following individuals, groups, and businesses. We apologize for any omissions or
misspellings; please contact us so we can correct our records.
Michael Conte
Magnolia Cornel-Yee
Shelley & Andy Forrest, in
honor of Jessica Zoe Forrest's 27th Birthday
Gail Green
Hank & Carla Greenwald
Heidi Hapin
Richard Hobbs
Roshan Isaac
Maryann and Alain
Lajoux, In honor of Michael
Boussina
Phung Lam
Nancy Lim-Yee
Betty Lituanio
Ingrid Lusebrink
Rebecca Lynn
Deborah & Peter Magowan, in honor of Dr.
Timothy Chuter
Ruixia Marco
Maureen McCarthy
Susan Monson
Calvin Pon
Paul Rauschelbach
Robert Hines & John
Seeman
Antje and Dick Shadoan,
in honor of Helen Rossini
Sountru
William & Margaret
Stewart
Rebecca Stiewig
Larry Turley
Julie Tse
Anne Marie Siu Yuan
Olga Zilberbourg, in honor
of Juno Duenas & the Support for Families staff
Rafael Zuniga, in honor
of Heather Fischer at
Christmas
Workplace Giving
Anonymous, AT&T Corporate Employee Giving
Programs
Marianne Campbell,
Wells Fargo Community
Support
Stephen Mahoney, Allstate Giving Campaign
Angela Wong, Chevron
In Memory of Robert
Lanzone
Tracey Bowen
Bronwyn Brunner
Tosca and Tom Clark
Ariel Kelley
Arlene and Robert
Mathias
McGuire Real Estate
Jennifer Rosdial
Laurie Strawn
Yvonne Toracca
Corporate Matching
Adobe Matching Gifts
Chevron Matching Employee Funds
Anonymous
In-Kind Donations
Jane LaPides & Murray
Cahen
Costco
McCall’s Event Management
Trader Joe’s
Holiday Ice Skating
Party 2015
Donors
Costco
McCall’s Event Management
Trader Joe’s
Volunteer Groups
Bain
National Student Speech
Language Hearing Association (NSSLHA)
PG&E
Individual Volunteers:
Alec Kenilvort
Alex Bender
Ana Plasencia
Bridget Macko
Caroline Fyfe
Chetan Tekur
Christina Luah
Cristian Baca
Daisy Jimenez
Daniel Sullon
Danlei Zhou
Deidra Owen
Emily Barker
Eunice Zhou
Geoff Faulkner
Jashley Campa
Jenay Tower
Joe Walsh
Joseph Menzel
Mary Rhoades
Michaela Azzopardi
Robert Leon
Sam Hsu
Sandy Ross
Soledad Sullon
Tara Pozzi
Veronica Pederson
Wayne Low Kum
What is Stepping Stones?
Stepping Stones forms part of the Positive Parenting Program (Tripe P) system of family intervention for parents
who have children who are at risk of developing behavior problems, and it includes adaptations for children with
disabilities.
At SFCD we just finished our third Triple P parenting series and here are
some of the comments from the caregivers who participated:
"No more yelling at home, happy parents, happy kids!”
“I love the class and I would recommend it to anyone. It has
helped me a great deal with myself and helped me know how
to deal with my son. I also used the techniques at work with
people I encounter!” (Jose Farias)
“I valued the relationships I built and knowledge gained
from other parents in the class, each of whom, like me, are
more than happy to share their wisdom as well as frailties!”
(Chris Roe)
Interested in participating in a Triple P Parenting
training? Call 415-920-5040
for information on the next series.
SUPPORT FOR FAMILIES
OF CHILDREN WITH DISABILITIES
1663 Mission Street, 7th Floor
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES
All services are free of charge:
 Phone Line & Drop-In Center
 Information & Resources
 Resource Library
 Support Groups
 Parent Mentor Program
 Educational Workshops
 Family Gatherings
 Short-term Counseling
 Community Outreach
 Website: www.supportforfamilies.org
This NEWSLETTER is published quarterly in English,
Spanish & Chinese. If you have a question or
comment, email us: info@supportforfamilies.org
Support for Families
T: 415.282.7494
F: 415.282.1226
Board of Directors
Chris Dehner, President
Laura Lanzone, Vice President
Goli Mahdavi, Secretary
Diego Valderrama, Treasurer
Eileen Boussina
Judy C. Chen
Heather Fischer
David Fazio
Jane LaPides
Jessica Litwin
Laurie Strawn
Kim Webb
Executive Director
Juno Duenas
Staff
Family Resource Center (FRC)
Karen Baca, AC Coordinator/ AT
Specialist
Ali Barclay, Information and Resource
Coordinator
Family Resource Center Warmline,
Martha
Barrera, Child Care Worker
Information, and Referral
Marteal Barton, Child Care Worker
Sarah Bennett, Support Services Program
Manager
T: 415.920.5040
Nina Boyle, FRC Program Director
Tracey Bullock, Family Resource
Specialist (FRS)
Support for Families strives to present families
Elaine Butler, Librarian
and professionals with a wide range of views
Sophia Carcamo, Social Worker
and options in its materials and trainings.
Michelle Cochran, Caregiving Services
Coordinator
The materials and trainings are not
Jasmin Gauci, FRS
necessarily comprehensive, are not
Joe R. Goyos, Education Director
meant to be exhaustive, nor are they an
endorsement of the author and/or presenter. Emelyn Lacayo, Family Health Liaison
Dennis Lockett, FRS
Felix Lopez, FRS/Education Coordinator
If you would like to offer feedback or if you
Sean Lowry, Program Coordinator
know of additional resources, speakers and
Jeffrey Ng, Child Care Worker
/or materials that may be helpful, please
Christine Reina, FRS
contact us at info@supportforfamilies.org.
NONPROFIT ORG.
US POSTAGE
PAID
SAN FRANCISCO, CA
PERMIT NO. 1887
Bouaphane "Bonnie" Sayavong, Child
Care Worker
Joan Selby, Parent Mentor Program
(PMP) Coordinator
Sujata Sherchan, Finance Administrator
Sarath Suon, Special Events and
Volunteer Manager
Kristine Thai, Education Coordinator
Linda Tung, Administrative Coordinator
JoAnna Van Brusselen, PMP Coordinator
Lisa Yee, FRS
Tracy Young, Social Worker
Family Resource Center Network of
California (FRCNCA)
Debbie Sarmento, Manager
Family Voices of CA (FVCA)
Pip Marks, FVCA Manager
Allison Gray, Leadership Project
Coordinator
Help Me Grow
Nadia Thind, Help Me Grow Director
San Francisco Inclusion Networks (SFIN)
Zulema Rubalcava Barron, ASQ Specialist
Gary Bender, Director
Vanessa Chen, Inclusion Coach
May-Ling Joa, Inclusion Coach
Ramya Krishna, Early Childhood
Inclusion Specialist
Julia Preciado, Project Coordinator
Deborah Rollfs, Inclusion Coach
Sonia Valenzuela, Family Involvement
Manager
Special Needs Inclusion Project (SNIP)
Alison Stewart, SNIP Manager

NEWSLETTER - Support for Families of Children with Disabilities

Transcription

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