2014-2015 - Cutaneous Lymphoma Foundation

A Year in Review
Annual Report 2014-2015
Letter from Chief Executive Officer
Dear Friends,
On behalf of everyone engaged with the mission of the Cutaneous Lymphoma Foundation, we thank you for
your generous support. Whether it is through a financial donation or gifts of time and talent, each and every
person has a profound impact on the lives of those around the world suffering with cutaneous lymphoma.
The past year has been an active one for the CLF. We are more committed than ever to serving the needs
of cutaneous lymphoma patients by promoting awareness and education, advancing patient care, and
facilitating research. We continued our long-standing initiative of hosting live programs delivered around the
country, culminating with the 3rd Annual 2-Day Education Conference in San Diego. Close to 100 people
gathered together to hear from clinical experts about the disease basics with many opportunities for everyone
to make new connections with others who share a similar journey. One of the additional program highlights was
attending the first-ever International Dermatology Patient Organization Conference held in Vancouver, Canada
in collaboration with the World Congress of Dermatology. This conference brought together patient leaders
from around the globe to share ideas, insights and hear from advocacy experts about new ways to deliver
much needed support to people living with skin diseases. Out of this meeting, a new worldwide organization
was established called the International Alliance of Dermatology Patient Organizations that will serve as an
umbrella group whose mission is to raise awareness of the challenges of people living with skin disease and
advocate at the global health level on their behalf.
An exciting second year of our CLARIONS Research Award program culminated in renewal of the first two
awards and adding two unique new awards. Tae Jin Kim, PhD from Stanford University School of Medicine,
project is investigating Optical imaging of electron radiotherapy to promote uniform total skin irradiation,
and Sergei Koralov, PhD, from New York University School of Medicine, project is deciphering the role of skin
microbiota in CTCL pathogenesis, We are thrilled to have the financial capacity to support these researchers
and their important work.
This year also saw some changes in two long-term members of our Board of Directors. After 16 years of
dedicated service, Dr. Stuart Lessin has stepped down from active Board service. As many of you know, Dr.
Lessin was integral in getting the CLF off the ground and will continue to serve as Chair of the Scientific Review
Committee. Board President, Chris Shipp has also decided to step down from his long-term Board service over
the last 10+ years. We are grateful to Dr. Lessin and Chris for their many years of committed service and wish
them well.
Board Member, Joe Eischens, Esquire, stepped forward to take on the leadership role of Board President. As a
patient himself, Joe, like many of us, is in current treatment for his cutaneous lymphoma while living an active
professional life as an attorney serving people who have suffered from discrimination along with enjoying time
with his wife and two children. He brings to the Board a passion for helping us create a sustainable infrastructure
so that everyone who is diagnosed with this rare disease, wherever they live, can find support here at the CLF.
We are thrilled to have Joe step into this critical volunteer position.
2
Susan Thornton, CEO
Letter from President of the Board of Directors
I am honored to accept this new position as President of the Board. As I begin my journey in this
leadership role, I am inspired by how far the organization has come in the last 15 years with a small staff
and dedicated members of the Board. I am committed to working collaboratively with my fellow Board
members and the CLF staff to continue the innovation and initiatives to bring education and support to
people around the world as well as grow our research program to allow us to support the critical work of
the dedicated investigators trying to find answers to the many questions about this disease.
As we look to next year, we will continue to serve those who need us most by providing the knowledge
and resources related to treatment, quality of life and ensure that patients are armed with as much
information as possible to make important and informed treatment decisions along with their medical
team. New and innovative initiatives are on the horizon that will enable more people to connect to
the CLF in a meaningful way along with continuing the CLARIONS research grant program to support
important work necessary to unlock the mysteries around cutaneous lymphoma that can help find new
treatments and better ways for earlier diagnosis.
Each day, as we fight against this rare disease and all of its challenges, the staff and Board keep in mind
that there is an individual behind the diagnosis who looks to us to provide support, sound information and
hope. With each step forward, and each individual we touch, we continue to dedicate our efforts to
serving all people impacted by cutaneous lymphoma.
Thank you for being an integral part of our community. Together we can bridge the knowledge gap and
strive toward a time when a diagnosis of cutaneous lymphoma is nothing more than a brief detour in a
long and rich life.
Joe Eischens, Esq.
President, CLF Board of Directors
Contents:
Board of Directors & Staff..............................................4
A Year in Review............................................................6
Financials........................................................................8
Donors...........................................................................10
All Donors......................................................................11
Looking Forward...........................................................15
3
Board of Directors
OFFICERS
Marianne Tawa, MSN, RN, ANP
Interim President/Vice President
Dana Farber Cancer Institute
Medfield, MA
Jeff Ward
Treasurer
London, UK /West Barnstable, MA
The mission of the Cutaneous Lymphoma
Foundation is to support every person
with cutaneous lymphoma by promoting
awareness and education, advancing
patient care, and facilitating research.
We exist to make sure that each person
with cutaneous lymphoma gets the best
care possible.
4
Laurel Carlson
Secretary
Annandale, VA
CHIEF EXECUTIVE OFFICER
Susan Thornton
Chief Executive Officer
Philadelphia, PA
DIRECTORS
STAFF
Joseph Eischens, Esquire
Director
Parkville, MO
Stuart Lessin, MD
Bryn Mawr Skin &
Cancer Institute
Haverford, PA
Holly Priebe
Chief Operating and
Financial Officer
Warren, MI
Steven Horwitz, MD
Memorial Sloan-Kettering
Cancer Center
New York, NY
Lauren Pinter-Brown, MD
UCLA Medical Center
Beverly Hills, CA
Kira Mann
Director of Development and
Marketing
Farmington Hills, MI
Brace Krag
Far Hills, NJ
Mike Silver
Toronto, ON, Canada
Deb Van Zegeren
Administrative and
Communications Manager
Eastpointe, MI
David Lamb
Alexandria, VA
Michael W. Young
Carlsbad, CA
Hilary Romkey
Program Manager
Gainesville, FL
What is Cutaneous
Lymphoma?
Cutaneous lymphomas are
cancers of lymphocytes (white
blood cells) that primarily
involve the skin. Classification
is based upon lymphocyte
type: B-lymphocytes (B-cell) or
T-lymphocytes (T-cell).
Cutaneous T-cell lymphoma
(CTCL) is the most common
type of cutaneous lymphoma that
typically presents with red, scaly
patches or thickened plaques of
skin that often mimic eczema or
chronic dermatitis. Progression
from limited skin involvement is
variable and may be accompanied
by tumor formation, ulceration,
and exfoliation, complicated by
itching and infections. Advanced
stages are defined by involvement
of lymph nodes, peripheral blood,
and internal organs.
Cutaneous lymphomas affect
thousands of individuals
worldwide. It is estimated that
over 30,000 people in the United
States alone have been diagnosed
with some form of lymphoma.
The incidence of cutaneous T-cell
lymphoma in the United States
is increasing with approximately
3,000 new cases being diagnosed
annually. Due to the difficulty
of diagnosing the disease in
its early stages and the current
lack of an accurate reporting
system, prevalence of cutaneous
lymphoma is thought to be much
higher.
5
A Year in Review
Patient Support Services
• Connected with 1000+ individual patients and caregivers in person and via
telephone or email from around the world.
• Began Patient Networking Groups in New York City, New York
Patient Education
• Held 6 full-day Patient Educational Forums
• Introduced our Answers from the Experts...LIVE! programs and held
5 evening programs
• Held third 2-Day Patient Conference in San Diego, CA
• Served 200+ patients and caregivers through these events in 12
cities throughout the United States.
• Added videos on CBCL and ALCL to Online Learning Center
Medical Meetings
•
•
•
•
•
•
•
•
•
•
American Society of Hematology (ASH), San Francisco, CA
American Academy of Dermatology (AAD) , San Francisco, CA
American Society of Clinical Oncologists (ASCO), Chicago, IL
European Organization for Research and Treatment of Cancer (EORTC) and
Cutaneous Lymphoma Task Force (CLTF), Paris, France
Society of Investigative Dermatology (SID), Atlanta, GA
Dermatology Nurses Association (DNA), Las Vegas, NV
International Society for Cutaneous Lymphoma (ISCL)
T-Cell Symposium, San Francisco, CA
United States Cutaneous Lymphoma Consortium (USCLC) Annual Workshop , San
Francisco, CA
World Congress of Dermatology, Vancouver, Canada
Research
• Awarded CLARIONS Research Awards to Tae Jin Kim, PhD of Stanford University School
of Medicine and Sergei Koralov, PhD of the New York University of School of Medicine.
CLARIONS Research Awards were renewed for a continuing year to Leandro Cerchietti,
MD of Weill Cornell Medical College and Rachael Clark, MD, PhD of Harvard Medical
School.
• Young Investigator Awards were presented to Tomomitsu Miyagaki, MD, PhD, The University of Tokyo Graduate School of Medicine, Japan (SID); Filiberto Cendeno Laurent, MD,
PhD, University of Pennsylvania (ASH)
6
Publications
• Published 2015 Research Report - CLF’s first report for the CLARIONS
Research Grant
• Published three Forum newsletters and 12 e-Newsletters
Advocacy
CLF Board & staff attended a variety of advocacy meetings and policy
programs in Washington, DC held throughout the year, including two
legislative lobby days on Capitol Hill:
• One Voice Against Cancer - CLF was represented by Joe Eischens,
CLF Board President
• American Academy of Dermatology Captiol Hill Day - CLF was
represented by staff member, Deb Van Zegeren
• CLF became an active member of the Partnership to Improve Patient
Care (PIPC).
• CLF joined the Lymphoma Education and Advocacy Partners (LEAP),
the advocacy arm of the Lymphoma Research Foundation
Collaborative Partners included:
A special “Thank You” to the below organizations for their support of our efforts
and the opportunity to work together on behalf of those we serve:
• Canadian Patient Skin Alliance
• CancerCare - joined with the CLF to provide meeting space and support for
our New York Networking Group
• Coalition of Skin Diseases
• International Alliance of Dermatology Patient Organizations - CLF is a founding
member this organization
• Lymphoma Coalition
• Lymphoma Research Foundation
• Patient Advocate Foundation
• Regulatory Education and Action for Patients
• T-Cell Leukemia Lymphoma Foundation
What I found most helpful...
was the realization I’m not
the only person with CTCL.
Patient Educational Forum Attendee
7
Financials*
Statement of Financial Position • Year Ending June 30, 2015
ASSETS
CURRENT ASSETS
Cash and cash equivalents
Promises to give
Inventory
Total current assets
FIXED ASSETS
Property and equipment, net
Total fixed assets
OTHER ASSETS
Prepaid rent
Security deposit
Total other assets
TOTAL ASSETS
2015
2014
875,846
43,000
2,155
921,001
1,050,723
7,775
2,919
1,061,417
708
708
1,546
1,546
1,019
1,333
2,352
1,019
1,333
2,352
$924,061
$1,065,315
18,579
90,832
109,411
20,214
83,093
103,307
159,448
655,202
323,988
638,020
814,650
962,008
$924,061
$1,065,315
LIABILITIES AND NET ASSETS
LIABILITIES
Accounts payable
Accrued expenses
Total liabilities
NET ASSETS
Unrestricted
Temporarily restricted
Total unrestricted net assets
TOTAL LIABILITIES AND NET ASSETS
*Financial figures taken from independently audited financial statements.
8
Statement of Activities • Year Ended June 30, 2015
SUPPORT AND REVENUE:
Contributions and grants
Merchandise sales, net of cost of goods sold of $784
in 2015 and $482 in 2014
Special events
Unrestricted
Temporarily
Restricted
Total
162,681
575,515
738,196
(673)
600
0
0
(673)
600
Investment income
TOTAL SUPPORT AND REVENUE
548
163,156
0
575,515
548
738,671
NET ASSETS RELEASED FROM TEMPORARY RESTRICTIONS
558,333
(558,333)
0
721,489
17,182
738,671
742,371
71,933
71,725
886,029
0
0
0
17,182
742,371
71,933
71,725
886,029
(164,540)
17,182
(147,358)
323,988
638,020
962,008
$159,448
$655,202
$814,650
FUNCTIONAL EXPENSES:
Program
Management and general
Fundraising
Total functional expenses
CHANGE IN NET ASSETS
NET ASSETS - Beginning of year
NET ASSETS - End of year
How Your Dollar Was Spent
9
Donors
The Cutaneous Lymphoma Foundation is deeply grateful to all of the donors who supported our mission through financial contributions during our 2014-2015
fiscal year (July 1, 2014 – June 30, 2015). Your gifts have enabled us to make sure each person with cutaneous lymphoma receives the best care possible and that
the Foundation can continue to expand our programs and services to support those who need us most. Thank you for your support.
Visionary of Care Society
$10,000+ Annual Fund Campaign Giving
Actelion Pharmaceuticals US, Inc.
Adaptive Biotechnologies
Avella Specialty Pharmacy
Celgene Corporation
Flince Research & Design
Kyowa Hakko Kirin Pharma, Inc.
Patients Like Me, Inc.
Seattle Genetics
Spectrum Pharmaceuticals
TetraLogic Pharmaceuticals
Therakos, Inc.
Valeant Pharmaceuticals International, Inc.
Partner in Care Society
$5,000 - $9,999 Annual Fund Campaign Giving
The Steve Euller and Nancy Roehr Family Charitable Fund
Friend in Care Society
$1,000 - $4,999 Annual Fund Campaign Giving
Randolph Angermann
Mary Argus
Aschkenasy Family Fund
Bakewell Foundation
Gail and George Baril
BQ6 Media Group, LLC
Kent and Kay Colberg
Amy B. Crowe
Fidelity Charitable
First Giving
Steven Director
Suzanne Gylfe
Marilyn J. Harran
Stuart R. Lessin
The Chris & Melody Malachowsky Family Foundation
10
Arthur and Laurie Malman
Kelly Oddle
Theresa Pacheco, MD
Thomas Pledger
Carlos S. Rodriguez
Mark Rusley
Patrick Ryan
Linda Shaffer
Anthony Sogliuzzo
Patricia Sullivan
Ron Swift
United Way of King County
United Way of Kansas City
Danna Wessels & Nancy Noble
All Donors
The following list includes all individual, corporate and foundation donors who contributed to our Annual Fund Campaign or supported other programs and services.
Larry Abe
Jose Abreu
Actelion Pharmaceuticals US, Inc.
Adaptive Biotechnologies
David Adelman
Nida Ahmad
Beverly Albert
Frank & Emille Allen
Andrea Allen
Marla Almeida
Fadwa Al-Taher
Mr. & Mrs. Anthony Alterio
Tricia Alvey
AmazonSmile Foundation
Ernestine Anania
Tom Andrews
Randolph Angermann
Patricia Angley
Ari Anolic
Eddy Antunes
Keith Anzel
Lynne Arany
Frank J. Arena
Mary Argus
Howard Aronson
Linda Arthur
Aschkenasy Family Fund
Helen Ashton
Ann Atkinson & Terrence Atkinson
Avella Specialty Pharmacy
MaryAnn & Reg Awtrey
Judith Axelrod
August Baetsle
Axel Baeumler
Sofia Bain
Debra Baird
Mark Baker
Sally Baker
Bakewell Foundation
Blake Ballard
William & Evelyn Barcomb
Gail Baril
Nicole Baril
Betty Barnett
Daniel Barolsky
Mara Barry
Elizabeth Bassan
Herman Bauer
Margaret Baum
Norbert Beauchemin
Judy Beck
Mary Ellen Behm
Carlene Belanger
The Benevity Community Impact Fund
Dorothy Berchtold
Vera Berlin Fund
Bonnie Bergeleen
Dotti Berry
Jessica Birch
Frank Birney
Stephanie Blackmore
David & Barbara Blandino
Dorothy Bleiler
Michael Block
Eric Block
David M. Bloom
Ida Bohmstein
Ron Bower
BQ6 Media Group, LLC
Kristina Bradley
Richard B. Bradlow
Micharel Braff
Phil & Alison Braverman
Renate Brenneke
Linda Brewer
The Brooks Group & Associates, Inc.
Bruce Minkoff
Ivan & Ana Budisin
Judith Burgstein
Betty Burns
Catherine Burris
Carolyn Burrous
Sally Busch
Valerie Butera
Bill & Joan Button
Ellen Cameron
James & Margery Carenzo
Joe Carey
Warren Casner
Celgene Corporation
Jean Cernak
Elizabeth Cerri
Pi Ling Chang
Marilyn Charap
Charles A. and Alice Jean Boyer Matuszak Family Fund
Sandi Chatz
Pamela Chumley
Carole Chung
Philip Church
Clorox Company Foundation
Noal Cohen
Wallace M. Cohen
Kent & Kay Colberg
Merle & Arnold Cole
Fred & Gail Colvin
Diane Colyer
Community Health Charities of CA
William & Janis Conner
Warren A. Cooper, Warren L. Cooper & Peggy Randles
Julie Costa
Rhea Cox
Amy B. Crowe
Phyllis Crump
Shannon M. Curren
Marion Dagenais
Anita Dalia
Regina & Danny D’Angelo
William Davidson
Lidia Davidson
Claudia Day
Thomas Day
Ronald Decker
Joseph DeFina
Mary L. Del Vecchio
Dermasurgery Center
Susan Devine
Neil and Linda Dicker
Jackie Dildy
Steven Director
Richard Dodds
Donald Dorer
Cheryl Downen
Martha Drilling
Dov Drizin
Mark Drusin
11
Arthur & Lorraine Dugas
Ben Dussan
Frank Eastburn
Ebates
Ira Edelson
Kimberly Edmunds
Joe Eischens & Patricia Sullivan
David Elefant
Lori & Doug Elefant
Joanne Elefant
John Eley
Amy Elik
Karen Engler
JC Ephraim, Jr.
Kathleen Erickson
The Steve Euller and Nancy Roehr Family
Charitable Fund
Carole Evans
Jerry & Rikki Farber
David & Charmagne Farrar
Richard & Kathryn Favela
Donna Workman
Michael J. Feola
Fidelity Charitable
Julia Fink
FirstGiving
Norton & Carol Fishman
Alan Fletcher
Flince Research & Design
Ron Footer
Alyson Footer
Samuel Frank
Julian Frankel
Lisa Frankel-Boerner
Melvin L. Freeman
Peter & Laura Frenzel
Rich Friedman
Joan Friedman
Paula Pirrotta
Steven Froberg
Mary Jane Frystak
Marguerite Fumano
William & Fay Fuson
Pat Gagne
Jeremy A. Garcia
Brian Gavin
Karen Gavin
Francesca Giancotti
Edward Gilbert
Carol Gilles
12
Joan Gillucce
Louis Gioe
Adele Gleichman
Robert Godau
Marvin Godner
Lynn Gold
Susan Gombos
Dorothy Gomez
Good Faith Trust
Harriet Goodman
Daniel Goodman
Amy Gorman
Brian & Margaret Gracey
Scott Grant
Beverly Grappone
Tara Green
Gerald and Barbara Greenberg
Jennifer Greer-Glanville
Stephen Griffiths
Malvin Groce
Sarah S. Grossman
Charles Guffey
Suzanne Gylfe
Frederick Haab
Deberah Haferkamp
Gail Hankin
James & Emogene Hanvey
Mary and James Harden
John Harmon
Margarett Harnett
Marilyn J. Harran
Patricia J. Hassett
Michael Isquick (In honor of)
William Heffernan
Sharon Heiman
Helen Francke
Roseann Herman
Herndon Charitable Foundation
Marian Herrick
Diane Herzog
Kim and Diane Hight
Margaret Hine
Carolyn Hintlian
Laurie Hoberman
Joey Hoffmeier
William Hollis
Helen Homulka
Andrezej Honory
Robert Horton
Steven Horwitz, MD
Bruce J. Hough
David Hudson
Reid Hunter
David Ingber
Edith G. Isaacs
David Jackman
Joy Jacobs
JoAnn Jamesion
Dan & Tina Janichek
Sandra Jeffrey
Seta Jessourian
Joyce Jett
Michael Johnson
Thoedore Johnson
Nancy Jolliffe
Kathryn Jones
Joni Julian
Ronald & Marilyn Kaiser
Gary & Deborah Karl
Rona Katz
Keenum Family Charitable Fund
Allan Keiller
Andrew Keiser
Michael & Ronnie Kelapire
Georgianne A. Kennedy
Amanda Kik
Jane F. Kilthau
Gertraude King
Donald Kirk
Kiwanis Club of Northridge, Inc.
Melvin and Earline Klaff
Sharon Kleinberg
Joann Kline
Marlene Klotz
Andrew Knox
Kenneth Kobarg
E. Joan Koffler
Richard Kolster
Bruce & Susan Konheim
Larry & Lucille Kostek
Shirley Kostreva
Kathleen Kovach
Brace Krag
E.T. Kratty
Ronald Krolak
Paula Kruger
Steven Kruse, MD
Kenneth & Judy Kulpa
Kyowa Hakko Kirin Pharma, Inc.
Nancy Ladisky
Richard Lafrate
David Lamb
Stanford Lamberg, MD
Dolores Lawrence
Mr. & Mrs. Robert J. Leary
Dr. & Mrs. Chao Te Lee
John Leibold
Martin & Monica Lemelman
Christine Lenart
Albert Lenny
Lenovo Employees Care
Donald & Cheryl Lessem
Stuart R. Lessin
Carly Leung
Jordan Lewis
Henry Lim, MD
Rachel Linberger
James Lipchak
Dolores Lipiro
Stuart Lippe
Sandra Lishka
Bari & Roland Lissner
Roger Lloyd
Dan Lockwitz
Carol & Joseph Loewy
Dr. Vivian Lotz
Louis & Mary Jean Lotz
Lowell Frederick
Carmel Lowenthal
Leora Lowenthal
Richard & Doris Lyons
Madison Community Fund
Frank Magliocco
Laurett Maignan Gibson
The Chris & Melody Malachowsky
Family Foundation
Christine Maliwanag
Arthur & Laurie Malman
Roberta Manchester
Robert L. Mang
John Mangusi
Robert Marchetti
H. Patricia Marchukitis
Maria E. Rossi
Linda Marino
Andre Markarian
Phillip G. Marsh
Rainer C. Martin
Pauqel Mason
Carolyn Masters
Theresa Matsey
Katherine Matthews
Helen & Jeff Mattox
Leslie Maurer
Kenneth Mawson
Helen R. Mayville
Molly McCarthy
Annette McDonald
Richard McInnes
Kim McKenize-Camp
Natalie McLain
Kati McNeal
Jamie Meachan
Kathleen Meagher
Jan Susan Medved
Kathleen Meier & David Perry
Jane Meiners
Merck Foundation
Nancy Meredith
Gayle Metcalf
Bill & Donna Metheny
Donna Milko
Lloyd Miller
Mark Miller
Donald G. Miller
Daniel Miller
Jennifer Mills
Marc Miner
Maryida Mirabella
Ronald & Carolyn Miscko
Margaret Montgomery
Hope Morgan
Morgan Stanley
Paul Morrison
William D. Mosher
Ann Moskowitz
Jane A. Mullen
Vicki and Italo Musa
Helen Muscat
Ronald Nappi
Nationwide United Way Campaign
Linda Nessly Allison
Network for Good
Jim & Judie Neville
Alan Nicholas
Claudia Nogueira
Caitlin Norris
Sharon & Neil Novick
Kelly Odle
Sherri Oliver
Tim Olsen
Elise Olsen
Tuba Oncu
Sylvia Osborne
Barbara Ostberg
Karen Paikin
Jesse Paikin
Bill Panella
James & Sharon Parkman
Patients Like Me, Inc.
James Pattie
Michele Pawluk
Penny Peerce
Andrew Pelletier
Judy Peloquin
Cheryl Perkins
Marilyn Perlotto
Wanda Peters
Douglas Peters
James M. Pherson
Mark Pipal
John Plank
Thomas Pledger
Laura Pratt Gregg & John Gregg
Holly Priebe
Robert Pursel
Myrna W. Pyke
Robert M. Pyle, Jr.
Tova Rafael
Raphaelson Levine Law Firm
Daniel Ray
Beff Ray
Patricia Ray
Dan Reed
Elaine Reinbold Pitkin
Carolyn Renz
Allan R. Rexinger, Esq.
Mike & Patty Reynolds
Mary Reynolds
Cheryl Romine
Deborah Richards
Donna Ringelstein
Ronald & Bridget Ritter
Robert Roberts
Ruth Roberts
Rick & Susan Robillard
Joan & Rick Rocamora
Carlos S. Rodriguez
Johnnie Rogers
Gary Rose
Rosenson Foundation
John Roush
Craig Roy
Eugene & Janet Roy
Louis Roy
Kaye Ruskey
Mark Rusley
Bria Colyer Russo
Frederick Ruvkun
Patrick Ryan
Sally Dietz
Robert & Diane Saltzman
Elizabeth Sauer
Lorraine Sauter
Lilianna Scali
Gerald & Sharon Scheffler
Steve & Amy Scheidler
Gloria & Ernie Schell
Sandra Schleede
Amy Schlesinger
Caryn Schlesinger
David Schmidt
Katherine Schneider
Zac Schroeder
Teresa Schruben
Ellen Schwartz
Robert Schwartz
Barbara Schwartz
Herman Schwartzman
Laurie Scott
Laurie S. Scott
Britt Scott
Mary Scott
Seattle Genetics
Linda Seibert
Select Resources
Linda Shaffer
Ann Shaw
Michael Shechtman
Karen Sherman
Jianfeng Shi
Michi Shinohara, MD
Mary K. Shoemaker
Phyllis Shurgin
Johnnie Signater
Larry P. Simmons
Yvette Simmons
Mary Singleton
Ed & Mary Skowneski
Susan Slaviero
Adam Smith
Robert Smith
Judy & Al Smith
Stephanie Smith
Veda Smith
Karen Snow
Bob Snyder
Stu Sodell
Anthony Sogliuzzo
Libby Sorkin Routman
Cynthia & Ralph Sowden
Spectrum Pharmaceuticals
Michael Spivak
John Sredniawski
Miriam Stallings
Janice & Dan Staniszewski
Linda Stapley
Mr & Mrs. David Staplin
Paula Star
Robert Steele
C. Jeffrey Stein
Staci Stephens
Marsha Stevens, RN, BSN
Jeffrey and Mary Stevens
Susan C. Stevens
Sherrie Stille
Ann Stinson
John & Nancy Stires
Beverly Stauss
Kathy Stroube
Emily Strulson
Mark Swerdlik
Ron Swift
13
Connie Swindell
Systems Consulting International
Sandor Szombathy
Chris Talbott
John Tauzell
Marianne Tawa
Ten Penn Center Associates, LP
Karl Tepfer
Ian Tepielow
Edith Terebelo
TetraLogic Pharmaceuticals
Therakos, Inc.
Casey Theriault
Donna & Bill Thiel
Andrew Thomas
John & Peggy Thompson
Susan Thornton
Margaret Thornton
Beulah M. Threatt
Mr. Gail Tietz
Violet Toler
Vicenta Touami
Al & Fran Trotter
TRUiST
United Way of Central & NE Connecticut
United Way of Greater Kansas City
United Way of Greater Philadelphia & S New Jersey
United Way of King County
Theresa Pacheco, MD
Richard Vacarelo
Valeant Pharmaceuticals International, Inc.
Michael Van Kampen
Lawrence & Diane Varsek
Pam Vasquez
Michael Vega
Tom & Sarah Villeneuve
James & Betty Vugteveen
Barnet Wagman
Barbara Wagner
Lisa Waldron
Terry & Peggy Walker
Richard & Roberta Walsh
Carmen Ward
Sue Warren
Ralph Warren
Irwin Zeke Warsaw
Walter Washington
Susan Watson
Rochelle Weinberg
Jeremy Weinstein
Linda Weiss
Belinda Welch
Ann T. Welch
Wells Fargo Co Support
Peter & Diane Wenzel
Cindy Wesley
Danna Wessels & Nancy Noble
Robert Wessels
John Wessels
Edward & Linda Whitman
Linda Wilford
Mrs. Clyde L. Williams
Richard & Sandra Williams
Barrington Williams
Cinja Williams
Joni Williamson
Tracy Wilson
Laura Witschi
Kylie Woeller
Hank Low & Linda Wong
Bette Wozobski
Paul Wrezel
Danielle Wronzberg
Diane Yancey
Garry Yohn
Leslie Zarnowski
Sara Zelm
John Zic, MD
Francine Zinman
Nicholas and Judith Zuk
H. M. Zwernemann
Anonymous Donors (61)
Accuracy Statement
The report recognizes contributions received by the Cutaneous Lymphoma Foundation July 1, 2014 through June 30, 2015. Please accept our apologies
if we have made any errors or omissions with your name or gift. If your listing requires correction, please contact us at info@clfoundation.org or
248.644.9014.
Cutaneous Lymphoma Foundation’s 2014-2015 Corporate Partners
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Looking Forward
Looking ahead to the next fiscal year and beyond, we are focusing on the following programs and initiatives:
• Adding new ways for people to participate and view our live events through technology using live streaming services;
• Add translation tool to website to increase accessibility to non-English speaking users;
• Increasing number of Annual 2-Day Patient Education Conference to two per year;
• Funding of new CLARIONS Research Awards and the renewal of the second year awards;
• Celebrating our researchers and clinical supporters at our annual reception at the American Society of Hematology;
• Growth and enhancement of the CLF staff and Board of Directors;
• Increase ways for individuals to become part of the growing CLF community through direct support of CLF and it’s
mission.
I discovered the Foundation quickly after (my husband’s)diagnosis.
It is now our only resource because it has met all our needs. Everyone
with whom we’ve had contact has been informative, supportive and
sincerely empathetic.
2- Day Patient Conference Attendee
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PO Box 374 • Birmingham, MI 48012
Phone: 248.644.9014
www.clfoundation.org