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Klinik, Diagnostik, Therapie und Rehabilitation Organ der Österreichischen Gesellschaft für Psychiatrie und Psychotherapie http://www.oegpp.at Regularly listed in Current Contents / Clinical Practice and EMBASE/Excerpta Medica e-Ment@l He@lth Challenges for the Future 18/S2 Dustri-Verlag Dr. Karl Feistle http://www.dustri.de ISSN 0948-6259 Volume 18 Number S2 – 2004 Editorial e-Mental Health: Challenges for the Future M. F. Cabrera Reviews The Future of Telepsychiatry in Europe P. McLaren Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry H. Sulzenbacher, A. H. Bullinger, T. Senn, E. Bekiaris, U. Meise Original Papers On the Integration of Telepsychiatry Services in European Remote Areas: the ISLANDS Project Case Study M. F. Cabrera, M. T. Arredondo, M. Rodriguez, E. Bekiaris 57 Klinik, Diagnostik, Therapie und Rehabilitation Organ der Österreichischen Gesellschaft für Psychiatrie und Psychotherapie 59 S2 04 64 74 Services and Architecture for the ISLANDS System: Toward a Modular Non-Conventional Telepsychiatry System A. Amditis, Z. Lentziou, M. Panou, A. H. Bullinger, E. Bekiaris 79 Towards the Development of Tools for Remote Interventions M. Panou, E. Bekiaris, A. Amditis 89 The ISLANDS Treatment Scenarios and Service Batches A. H. Bullinger, T. Senn, E. Bekiaris, U. Meise, R. Mager, F. Müller-Spahn, H. Sulzenbacher 93 Process Quality Analysis of Telepsychiatry: Contributions of Statistical Control Process and Critical Pathway Analysis C. De Las Cuevas, J. Artiles 100 Dustri-Verlag Dr. Karl Feistle http://www.dustri.de I Reports Ethical Conduct within the ISLANDS Project T. Senn, H. Sulzenbacher, U. Meise, K. Estoppey, R. Mager, F. MüllerSpahn, A. H. Bullinger 106 Klinik, Diagnostik, Therapie und Rehabilitation Potential Constraints and Obstacles relevant to the Introduction of e-Mental Health and Telepsychiatry U. Meise, H. Sulzenbacher, A. H. Bullinger 109 Some Considerations about the Concept of Presence in Telepsychiatry C. De las Cuevas, J. L. González de Rivera 112 The Telemed Project (RACE-Project R 1086): Lessions learned for Telepsychiatry from the first EU funded Telemedicine Project P. McLaren, A. Charles-Nicolas 116 Perspectives of Communication Technology in Psychiatry: The ISLANDS Project in Greece A. Politis, A. Pehlivanidis, A. Amditis, Z. Lentziou, † M. Markidis, G. Trikkas, A. Rabavilas 123 History of Telepsychiatry in the Czech Republic P. Doubek, A. Kott, J. Raboch 127 Telemedicine in French Guyana T. Le Guen, N. Poirot, O. Tournebize, A. Guell 131 Bookreview Telepsychiatry and e-Mental Health R. Wootton, P. Yellowlees, P. McLaren Guest Editors Maria Fernanda Cabrera, Madrid Evangelos Bekiaris, Thessaloniki Alex H. Bullinger, Basel Maria Theresa Arredondo, Madrid Angelos Amditis, Athens Hubert Sulzenbacher, Innsbruck Organ der Österreichischen Gesellschaft für Psychiatrie und Psychotherapie S2 04 111 Dustri-Verlag Dr. Karl Feistle http://www.dustri.de II Zeitungsgründer Franz Gerstenbrand, Innsbruck Hartmann Hinterhuber, Innsbruck Kornelius Kryspin-Exner † Herausgeber W.Wolfgang Fleischhacker, Innsbruck Reinhard Haller, Frastanz Hartmann Hinterhuber, Innsbruck Kurt Jellinger, Wien Werner Schöny, Linz Marianne Springer-Kremser, Wien Christoph Stuppäck, Salzburg Wilhelm Wolf, Wien Geschäftsführender Herausgeber Ullrich Meise, Innsbruck Redaktionsdirektorin Sylvia Holter, Wien Wissenschaftlicher Beirat Wilfried Biebl, Innsbruck Andreas Conca, Rankweil Max Friedrich, Wien Eberhard Gabriel, Wien Christian Geretsegger, Salzburg Bernhard Grössl, Graz Karin Gutierrez-Lobos, Wien Christian Haring, Hall i. Tirol Hans Peter Kapfhammer, Graz Siegfried Kasper, Wien Heinz Katschnig, Wien Günther Klug, Graz Peter König, Rankweil Ilse Kryspin-Exner, Wien Michael Lehofer, Graz Gerhard Lenz, Wien Heidi Möller, Innsbruck Michael Musalek, Wien Walter Pieringer, Graz Heinz Pfolz, Wien August Ruhs, Wien Alois Saria, Innsbruck Bernd Saletu, Wien Brigitte Schmidl-Mohl, Wien Martina Schönauer-Cejpek, Graz Gerhard Schüssler, Innsbruck Gernot Sonneck, Wien Barbara Sperner-Unterweger, Innsbruck Alfred Springer, Wien Peter Stix, Graz Anton Tölk, Linz Karin Treichl, Hall in Tirol David Vyssoki, Wien Andreas Walter, Wien Johannes Wancata, Wien Alexandra Whitworth, Salzburg Albert Wuschitz, Wien Hans Georg Zapotoczky, Graz Klinik, Diagnostik, Therapie und Rehabilitation Organ der Österreichischen Gesellschaft für Psychiatrie und Psychotherapie http://www.oegpp.at Internationationaler wissenschaftlicher Beirat Manfred Ackenheil, München Josef Aldenhoff, Kiel Matthias C. Angermeyer, Leipzig Jules Angst, Zürich Helmuth Beckmann, Würzburg Hans Brenner, Bern Alexandra Delini-Stula, Basel Peter Falkai, Homburg Asmus Finzen, Basel Hans Förstl, München Wolfgang Gaebel, Düsseldorf Andreas Heinz, Berlin Florian Holsboer, München Isabella Heuser, Berlin Wolfgang Maier, Bonn Hans-Jürgen Möller, München Bruno Müller-Öhrlinghausen, Berlin Franz Müller-Spahn, Basel Anita Riecher-Rössler, Basel Wulf Rössler, Zürich Peter Riederer, Würzburg Heinrich Sauer, Jena Norman Sartorius, Genf Zeitungsgründer Franz Gerstenbrand, Innsbruck Hartmann Hinterhuber, Innsbruck Kornelius Kryspin-Exner † Verantwortliche Herausgeber W.Wolfgang Fleischhacker, Innsbruck Reinhard Haller, Frastanz Hartmann Hinterhuber, Innsbruck Kurt Jellinger, Wien Werner Schöny, Linz Marianne Springer-Kremser, Wien Christoph Stuppäck, Salzburg Wilhelm Wolf, Wien Geschäftsführender Herausgeber Ullrich Meise, Innsbruck Redaktionsdirektorin Sylvia Holter, Wien Dustri-Verlag Dr. Karl Feistle http://www.dustri.de III (n) »Neuropsychiatrie« veröffentlicht Übersichten, Originalarbeiten, Kasuistiken, aktuelle, kurze wissenschaftliche Mitteilungen, Fragen aus der Praxis, Briefe an die Herausgeber, Leseranfragen aus der Praxis mit Antworten, Newsletters (Berufspolitik, Standesfragen) und Personalien, Kongreßankündigungen, Buchbesprechungen etc. aus allen Bereichen der Neurologie und Psychiatrie. Herausgeber Österreichische Gesellschaft für Psychiatrie und Psychotherapie (Präsident: Univ.-Prof. Dr. W. Wolfgang Fleischhacker), Baumgartner Höhe 1, A-1145 Wien, Telefon: +43-1-9106011311, Fax: +43-1-9106011319, Email: info@oegpp.at, Homepage: http://www.oegpp.at Klinik, Diagnostik, Therapie und Rehabilitation Organ der Österreichischen Gesellschaft für Psychiatrie und Psychotherapie http://www.oegpp.at Geschäftsführender Herausgeber Univ.-Prof. Dr. Ullrich Meise, Universitätsklinik für Psychiatrie Innsbruck, Anichstraße 35, A-6020 Innsbruck, Telefon: +43-512-504-3616, Fax: +43-512-504-3628, Email: ullrich.meise@uklibk.ac.at Redaktionsdirektorin Mag. Sylvia Holter, Baumgartner Höhe 1, A-1145 Wien, Telefon: +43-1-9106011319, Email: Sylvia.Holter@wienkav.at Dustri-Verlag Dr. Karl Feistle, Postfach 1351, D-82032 München-Deisenhofen, Tel. (089) 61 38 61-0, Telefax (089) 6 13 54 12 Email: info@dustri.de Bankkonto: ©2004 Jörg Feistle. Verlag: Dustri-Verlag Dr. Karl Feistle. ISSN 0948-6259 Deutsche Apotheker- und Ärztebank, München Konto 0 201 282 697, BLZ 700 906 06 Regularly listed in Current Contents/Clinical Practice and EMBASE/Excerpta Medica Mit der Annahme des Manuskriptes und seiner Veröffentlichung durch den Verlag geht das Verlagsrecht für alle Sprachen und Länder einschließlich des Rechts der photomechanischen Wiedergabe oder einer sonstigen Vervielfältigung an den Verlag über. Die Wiedergabe von Gebrauchsnamen, Handelsnamen, Warenbezeichnungen usw. in dieser Zeitschrift berechtigt auch ohne besondere Kennzeichnung nicht zu der Annahme, daß solche Namen im Sinne der Warenzeichen- und Markenschutz-Gesetzgebung als frei zu betrachten wären Volksbank Oberndorf, Österreich Konto-Nr. 9440 BLZ 44480 Zeitungsgründer Franz Gerstenbrand, Innsbruck Hartmann Hinterhuber, Innsbruck Kornelius Kryspin-Exner † Postbank München Konto-Nr. 131070-806, BLZ 700 100 80 Verantwortliche Herausgeber Druck: A. Butz, München W.Wolfgang Fleischhacker, Innsbruck Reinhard Haller, Frastanz Hartmann Hinterhuber, Innsbruck Kurt Jellinger, Wien Werner Schöny, Linz Marianne Springer-Kremser, Wien Christoph Stuppäck, Salzburg Wilhelm Wolf, Wien und daher von jedermann benutzt werden dürften. Für Angaben über Dosierungsanweisungen und Applikationsformen wird vom Verlag keine Gewähr übernommen. Jede Dosierung oder Applikation erfolgt auf eigene Gefahr des Benutzers. Neuropsychiatrie erscheint vierteljährlich. Bezugspreis jährlich € 76,–. Preis des Einzelheftes € 21,– zusätzlich Versandgebühr, inkl. Mehrwertsteuer. Einbanddecken sind lieferbar. Bezug durch jede Buchhandlung oder direkt beim Verlag. Die Bezugsdauer verlängert sich jeweils um 1 Jahr, wenn nicht eine Abbestellung bis 4 Wochen vor Jahresende erfolgt. Geschäftsführender Herausgeber Ullrich Meise, Innsbruck Redaktionsdirektorin Sylvia Holter, Wien Dustri-Verlag Dr. Karl Feistle http://www.dustri.de IV (n) Neuropsychiatrie, Volume 18, S 2, 2004, page 57-58 Editorial e-Mental Health: Challenges for the Future Maria Fernanda Cabrera Telecommunication Engineering School, Technical University of Madrid ISLANDS Project Coordinator Since the development of methods for electronic communication, clinicians have been using information and communication technologies in healthcare. However, rapid and farreaching technological advances are changing the ways in which people relate, communicate and live. Technologies that were barely used ten years ago, such as the Internet, email, and videoconferencing are becoming familiar methods for diagnosis, therapy, education and training. This is producing a promising field – e-mental health – whose focus is the use of communication and information technologies to improve the mental health care processes. This area has developed rapidly, accumulating knowledge and proposing innovative affirmations. This is a multidisciplinary field that requires the cooperation among different professions: psychiatrists of different specialties at one end, and software programmers, designers and computer engineers at the other. The results of this collaboration are represented by the ISLANDS project partners in the present compilation of papers. The first paper in this issue is a discussion of the future of telepsychiatry in Europe by McLaren that examines different aspects of this discipline. His paper outlines the main challenges for public mental health services in Europe. In order to make a positive impact with the use of telepsychiatry in e-mental health, it will need to demonstrate how it can help service planners and providers to address accessibility, user empower- ment and competent service in the point of need. In the second article, Sulzenbacher et al. describe the use of electronic telecommunication in psychiatry. After a defination of the terms ‘telepsychiatry’ and ‘e-health’ and a short presentation of basic of electronic telecommunications the current psychiatric utilisation of the telephone, videoconferencing, and the Internet is described. The third paper, by Cabrera et al., is an attempt to develop and comprehend the potential of e-mental health through the presentation of the ISLANDS project whose specific goal is to develop services to provide modular, non conventional, remote psychiatric and psychotherapeutic assistance for remote areas. In the next paper, Amditis et al. describe the architecture and components of the telepsychiatry platform planned for this project. The result is based on the analysis of the state of the art telemedicine systems, as well as, in the extensive compilation of the different kind of available technologies. Next, Panou et al. discuss on the need of computer based tools to support Web and teleconference based interventions. The paper presents the preliminary tools that are being developed within the framework of the ISLANDS project. After that, Bullinger et al. present the ISLANDS scenarios and service batches. The treatment scenarios consist in the specification of nine categories which address the needs of possible users in the psychiatric and psychotherapeutic field. According to different mental health problems (phobia, depression, alcohol-related disorder and psychotic disturbances) each category comprises modules to help users suffering from or concerned with this problem. The next paper, reports on the results of a new process quality analysis in a telepsychiatry routine service. In it, De las Cuevas and Artiles, provide the methods and the statistical analysis of a one year teleconsultation psychiatric service in the Canary Islands. Results showed that the continuous quality improvement approach diminished the working time and increased the productivity of a telepsychiatry service. The next paper indicates the general ethical principles that apply to the ISLANDS project research. In it, Senn et al give the general ethics related to research with humans and research involving testing and assessment, that concerns the proposed screening, counselling and treatment services provided in the context of this project. Meise et al. report on the potential constraints and obstacles relevant to the introduction of e-mental health. The main restrictions identified and analysed in the paper fall into five categories: human, ethical, legal, business and technological. In their contribution, De las Cuevas and González examine the concept of presence in telepsychiatry. Their report outlines the relevance of the recent context created by the new e-Mental Health: Challenges for the Future communication technologies and the novel patient-practitioner relationships. The next article, by McLaren and Charles-Nicolas, is concerned with the first EU funded telepsychiatry project, the Telemed Project (RACEProject R 1068). The paper reviews the technical and organisational background to Telemed and summarizes key results. Following this, a paper by Politis et al., reports on the perspectives of using communication technologies applied to psychiatry in Greece. It is thought that the implementation of telepsychiatry is not only bounded to therapy or consultation, but also to the education of the healthcare providers. Authors concluded that the application of these methods clearly depend on a careful structural planning. After that, a report by Doubek et al. concerns the history of telephone help lines in Czech Republic and gives future possibilities of telepsychiatry in this European Region. The paper describes different help lines available that cover different operation modalities: independent organisation, outpatient clinic and inpatient clinic. Finally, Le Guen et al. present in their paper the six month follow-up results of an experimentation protocol of teleconsultation per satellite in French Guyana. The results reveal that, in spite of the extreme operational difficulties this geographical area, it is possible to deploy a telemedicine 58 network in truly isolated sites and follow pre-established protocols. Teleconsultation is a reliable and useful medical practice, reasonable in terms of cost and technically controlled. All in all, the current special edition contributes significantly to the cumulative knowledge of emerging e-mental health. The writings in this journal are evidence of a scientific reality today, specifically, what many psychologist of psychiatrist once considered futuristic therapy is now clinical actuality. The future is present, at least in the human mind. Neuropsychiatrie, Volume 18, S 2, 2004, page 59-6318–125 Review The Future of Telepsychiatry in Europe Paul McLaren The Priory Ticehurst House and South London & Maudsley NHS Trust, London Key words Telepsychiatry, Videoconferencing, Mental health, tertiary and secondary Services The Future of Telepsychiatry in Europe This paper will discuss the future of Telepsychiatry in Europe. Telepsychiatry has been researched for over 50 years but has still to make a significant impact on service delivery. Costs are falling and access to the technology increasing and Telepsychiatry has the potential to deliver culturally competent and effective mental health services in a market which spans the new European Community. Introduction Telepsychiaty has been defined by Wootton, Yellowlees & McLaren [20] as the, ‘Delivery of health care and the exchange of health care information for the purposes of providing psychiatric services across distances’. It is not new. The earliest reports in the literature were from Nebraska in the late 1950’s, when Wittson & Dutton [19] reported on the use of a closed circuit television system operating over a microwave link to connect the Academic Department of Psychiatry at the University of Nebraska with a state psychiatric institution 100 km away. The aim of this research group was to improve the communication between an isolated struggling institution and an academic centre and thereby raise clinical standards in the institution. Subsequent Telepsychiatry research has run in the same groove. Since its inception, it as been promoted as a potential solution to or the inequalities in mental health service provision produced by geography and market forces. The combination of an advanced telecommunications infrastructure, low population density and unequal distribution of medical resources was offered as the recipe for successful Telemedicine in general and Telepsychiatry in particular. These factors occur where the bulk of Telepsychiatry research has been reported in Australia, Canada and the western United States. More recent developments have focussed on improving communication between primary and secondary health services [6] and between elements in increasingly distributed and fragmented community teams [14]. Telepsychiatry in Europe The research reported in this supplement on the ISLANDS project represents an important extension of Telepsychiatry experience in Europe. It will generate valuable information on the generalizability of the results of earlier studies. This is not the first project to look at the use of Telepsychiatry to enhance mental health services to the periphery of the Europe- an Union (EU). Tertiary services have been piloted from the South London & Maudsley NHS Trust in London to the Channel island of Jersey [5]. Goncalves [4] described a Telepsychiatry component in a telemedicine link between Lisbon and the Azores. Mannion et al [8] in Ireland reported on a link established between a hospital on the mainland and the island of Inishmore, off the west coast of Galway. Frier [1] et al. reported on the use of videoconferencing in a psychology Service in the Highlands of Scotland, an area which has one of the lowest population densities in the EU. This service operated over 200 km between Inverness and the Isle of Skye, using BT VC 7000 videoconferencing units connected by ISDN at 128 kbits/s. Twenty-seven adults and seven children were treated with Cognitive Behavioural Therapy (CBT) by videoconferencing. Most service users complained of poor sound and picture quality, but were still satisfied with the consultation . These results highlighted important issues for future developments such as the challenge of balancing the costs of high quality video imaging against economic feasibility and sustainability in what may be low volume services. Mielonen et al [11] reported on the use of videoconferencing in Oulu in Finland, where videoconferencing at 384 kbits/s was used for family therapy, occupational counselling, clinical consultation and teaching. In 1996 videoconferencing was used in this area for a total of 249 hours, which The Future of Telepsychiatry in Europe increased to 434 hours in 1997. During 1997, 45% of the time was used for teaching, 26% for occupational counselling, consultations and therapies, 23% for training and 6% for administration. This same group [12] reported on the use of videoconferencing for discharge planning from a mental health unit. The majority of participants stated that they would prefer to have their next meeting by videoconference. The most common reasons given were the reduced need for travelling and the ease and speed of the consultations. An economic analysis showed that at a volume of 50 care planning consultations per year, the videoconferencing alternative is about FM 2340 cheaper than conventional meetings and the municipality would save about FM 117,000 by using the medium. Six hours of travelling time could be used for other purposes when the meeting was held by videoconferencing. The future of mental health care in Europe The main challenges for public mental health services in Europe are accessibility, user empowerment and getting culturally competent services to the point of need in a timely fashion. If Telepsychiatry is to make a positive impact, on mental health then it will need to demonstrate how it can help service planners and providers address these challenges. There is little in the literature to support claims that it can do this. Most research in the field has been technology driven rather than being proposed as a solution to a service need [13]. Telepsychiatry will not make a poor service provider effective or a failing service efficient but it could be a powerful tool for opening up the mental health care market in Europe and giving consumers greater choice as to where they get their care. The migration of elders from north to south and 60 the anticipated migration of labour from east to west will generate increasing demand for international mental health care within the EU. The treatment of mentally disordered offenders is another major challenge with which Telepsychiatry may assist [22]. Most Telepsychiatry services have been performed in real time, as ‘live links’. A trend in other areas of Telemedicine has been the development of store and forward services, for example in Teledermatology. In these services a clinical history and still image are captured at a remote site and sent by electronic mail to a specialist for an opinion. It is difficult to envisage the drivers which would lead to the development of store-and-forward clinical Telepsychiatry. Further opinions could be sought in current services through sending video clips on DVD’s or videotapes but this is employed only in exceptional circumstances. Watching the tape will give the expert less information than a face-to-face interview and will be as time consuming. Storeand forward Telepsychiatry may become a tool for professional supervision A consultation can be recorded digitally, stored as a record and transmitted to a remote supervisor for viewing and commenting. The Tromso group [3] reported the use of videoconferencing for psychotherapy supervision using 384 kbits/s ISDN (Integrated Service Digital Network) connections. Trainees had five faceto-face sessions, alternating weekly with videoconferencing. The quality of supervision could be satisfactorily maintained by videoconferencing, for up to half of the 70 hours required for training. A precondition for this estimate was that the supervision dyad should meet face-to-face and establish a relationship characterised by mutual trust and respect. Major concerns reported by the participants were the loss of non-verbal cues and the effects this had on spontaneity, the expression of personal emotional material, and the experience of social and emotional presence. Telepsychiatry consultations can be routinely recorded in digital format and monitored remotely. This may become a key element in the clinical mental health record, offering protection to the consumer against abuse and the professional protection against malicious allegations. In a Telepsychiatry consultation the power in the encounter is tipped towards the service user, relative to the faceto-face condition. They are seen closer to or in their own home, not in the professionals office in an intimidating institution. Communications technology has crept into many areas of mental health care delivery without research or clinical champions. The telephone is often used by professionals to follow up patients with whom they have a therapeutic relationship. This has rarely been formalised but where it has, it has been deemed advantageous. Simon et al [18] reported a randomised controlled trial of a system for giving General Practitioners feedback on prescribing to depressed patients versus feedback on prescribing plus care management including systematic follow up by telephone. The care management with telephone follow up significantly improved clinical outcomes in this depressed sample. Telephone help lines, such as the Samaritans, over which users disclose painful or intimate personal details, to people they may never meet are hugely popular. The telephone offers a combination of accessibility, anonymity and confidentiality which may make it a suitable tool for psychotherapy [7]. The educational and informationgathering components of the cognitive behavioural therapies (CBT) are ideally suited to computerization. The building blocks of the therapeutic relationship, which are central to all therapies, are still poorly understood and still too nebulous to digitize. This may lead to the development of hybrid models of CBT with the information-gathering, self-monitoring and educational components delive- McLaren red by information technology while the therapist focuses on live sessions, face-to-face or by videoconferencing. This will allow the total time in therapy for service users to be increased, while the therapist’s time is reduced and better focused. The efficiency and effectiveness of the psychotherapies could be improved and if the relationship component is delivered by communications technology then access will be improved and costs to service users reduced. The delivery of psychotherapy by such systems should not be seen as a threat to existing service providers. Attempts should be made to integrate the technology into other service delivery models. Most professional and service users who have been asked, have found Telepsychiatry services acceptable [2, 13, 14, 15]. They like the increased access and the choice that they have via such services, and it has been suggested that they also like to have the ability, if they wish, to ‘switch off’ the practitioner. It has been suggested that some service users may prefer being assessed or treated electronically, namely those patients who are paranoid or avoidant.. The potential of Telepsychiatry to improve access for those with severe and enduring mental illnesses needs particular attention. The legal and ethical framework There have been many concerns expressed about the risks to safety and security of personal data when information technology is used. These concerns tend to be magnified by the idea that information is transmitted over distance. In an early phase of the Telemed project ( see McLaren & Charles-Nicholas in this supplement) when the LCVC was installed in a room on a ward, the research team were asked to remove a computer with a camera mounted on top even 61 though it was obviously unplugged from the mains and the telephone line, because visiting professionals were concerned that it posed a risk to confidentiality. Such prejudices are less common as experience with information and communication technology grows but there is still a need for professional education on the technology. This is often overlooked in technology driven projects. Factors influencing technology adoption Key issues in technology adoption have been described by Rogers [16]. He hypothesised that about 5–10% of any population were ‘early adopters’ of the new technology and in Telepsychiatry, it is these individuals who are still setting the pace. Rogers also hypothesized that 70–80% of providers will adopt if there is evidence to support its adoption. Rogers’ final group were the remaining 10–15% of any population who are described as ‘laggards’. This group is the last to change. The evidence base for Telepsychiatry needs to be further strengthened to generate the critical mass of adopters required to make it economical. The ISLANDS programme will provide valuable information in this respect. Younger mental health professionals are coming through with much stronger information technology skills and are much more aware of the power of information and communication technology to enhance efficiency at work. This will lead to further innovation, more rapid adoption and ultimately improve the provision of mental health services. Key issues for the future developments of Telepsychiatry health services are licensure, registration and professional insurance within countries and across national, regional or international boundaries. Changes to legislative frameworks tend to be reactive, following changes in practice. Recognition that adequate assessments can be made by videoconferencing for the purposes of compulsory treatment will be an important developments. So also will the development and adoption of national and international guidelines to ensure that the increased access offered by Telepsychiatry does not result in harm. A further challenge is remuneration for Telepsychiatry consultations. Governments have been slow to remunerate doctors for providing services via videoconferencing, although this does now happen in the USA. Other health systems have only allowed payment for videoconferencing when it is undertaken as part of the clinician’s daily work, as in the case of public sector health systems in Australia, the United Kingdom and Canada. There has not, however, been acceptance by governments of payments for videoconferencing in the same manner as face-to-face services. Payments for email and telephony services are unusual. There are some health sectors in the USA that will pay for short email medical consultations, although not usually in mental health. A factor which has inhibited the development of sustainable funding systems for Telepsychiatry services is that the costs of setting up go to the service provider and most of the cost savings go to the patient in terms of reduced travel and opportunity costs. The provider has to offer the same amount of professional time in direct contact with the service user. Possible areas where costs may be saved for the provider are in terms of reduced downtime from professional staff travelling. It has been assumed that Telepsychiatry services and videoconferencing interactions are inferior to face-to-face, because they are mediated and communication is lost due to the limitation of channels by the medium [17]. There is no body of evidence to support this in clinical use. It is possible that for some tasks videoconferencing is a superior medium and it may be that a premium should The Future of Telepsychiatry in Europe be charged for remote services. Cost savings and convenience accrue to the service user. Telepsychiatry in future will probably use Internet Protocols in a broadband environment, and the speed of implementation will depend in part on the rate of broadband roll out. This is less of a problem in public sector services, where fibre optic networks are increasingly being deployed, but will remain difficult in terms of making the last connection into the home. The further development of broadband networks will undoubtedly accelerate the use of Telepsychiatry. The commercial potential of Telepsychiatry has yet to be realised in the private health care market. Significant adoption of digital technology has taken place in the banking and entertainment sectors and these will be the drivers for getting broadbandlinks into the home. Partnerships between health care providers and telecommunications providers will be required before significant roll out can take place. Further research There is a need to strengthen the evidence base for Telepsychiatry. Most of the published research is on pilot projects with limited information on sampling, statistical power and image parameters. Getting funding for trials with sufficient power to demonstrate clinical effectiveness in a range of disorders and settings has proved difficult. There is also a need for meaningful economic evaluations. Some qualitative research has been reported. May, et al ( 9) reported on a Telepsychiatry referral service for patients being treated by GPs for anxiety and depression, using the British Telecom VS1 desktop videophone over 128 kbits/s. Twenty-two patients and thirteen doctors were interviewed after a video-link consultation. Twenty-two patients and thirteen professionals were studied. 62 Professionals stated that they did not see a need for videoconferencing where accessibility is not a problem. The most important problem identified was the extent to which communication skills needed to be adjusted to meet the demands of the medium. In a further analysis [10], it was reported that the use of videoconferencing in this way threatened professional nursing constructs about the nature and practice of therapeutic relationships. An additional complication for research is the rapid development of the technology. In the two to three years that it takes to complete a clinical trial the specification of the equipment tested is likely to become obsolete. It is likely, however, that Telepsychiatry services will become increasingly cost effective on the broadband Internet [21]. Much more could be gained from Telepsychiatry research if smaller projects could be combined to improve statistical power and reduce administrative costs. The ISLANDS project will stimulate international collaboration and further multicentre research. Relatively little is known about the significance of image parameters in videoconferencing for clinical processes. Videoocnferencing equipment with a broad range of specification has been used in published research. The bandwidth is usually quoted, but not the picture parameters and it is these that matter more to the clinician and the patient. The experiences of communicating over a videophone connected by the telephone network and a rollabout videoconferencing unit connected by a high capacity digital line are very different. High specification equipment costs more to buy and costs more to connect. It produces a better quality image but what quality of image is good enough for which task? Basic information on the relationship between image parameters, such as definition, colour scale, frame rate and image size, and clinical outcomes is still lacking. Microanalysis of media- ted interactions has the potential to reassure professionals as to the ways in which the process is changed in clinically significant ways. Conclusion Psychiatrists using videoconferencing have had issues with picture resolution and video frame rate. GPs, nurses, clinical psychologists and social workers provide the bulk of mental health services. Their role in Telepsychiatry service provision has, been one of supporting the patients. If Telepsychiatry is to make a real impact on service provision it will need to be embraced by the bulk of professionals providing services ,nursing and social workers and be seen to facilitate the development of their professional roles. A key research question to be asked in community mental health care is which communications medium is most appropriate for which task . More research is required to analyse the costs and benefits of using the telephone, videoconferencing, email, the post and face-to-face communication for core clinical tasks. There is a need for international standards of service delivery in Telepsychiatry. Telepsychiatry has been piloted in a wide range of geographical locations and service models. Service user responses have been generally, but not uniformly positive and these responses need further clarification. Professionals have embraced videoconferencing for supervision, education and administration, but are still wary of using it for communicating with service users for clinical tasks. This wariness may owe more to prejudice and professional defensiveness, than objective assessment. The costs of kit and communication links have limited the diffusion of such applications to areas with low population density, where economic benefits are obvious. Costs of both are McLaren falling rapidly and the readiness with which service users, even while suffering from acute and severe mental illness, adapt to clinical consultations by videoconferencing, suggests that this mode of service delivery could become commonplace, both for accessing scare national and international tertiary expertise and for improving communication between elements in distributed urban community services. Mental health services are facing growing demands and struggle to deliver effective treatments in sufficient quantity. Efficient communication between service elements and getting effective treatment to service users in a timely fashion are two of the major challenges facing mental health services this century. Telepsychiatry has been shown to have the potential to improve both. Within two decades videoconferencing could be the preferred medium for contact between professionals and mental health service users in Europe. 63 [7] [8] [9] [10] [11] [12] [13] References [1] [2] [3] [4] [5] [6] Frier V, Kirkwood K, Peck D, Robertson S, Scott-Lodge L, Zeffert S. Telemdicine for Clinical Psychology in the Highlands of Scotland. Journal of Telemedicine & Telecare 1999: 5: 3: 157161 Gammon-D, Bergvik-S, Bergmo-T, Pedersen-S. (1996)Videoconferencing in psychiatry: a survey of use in northern Norway. Journal of telemedicine and tele-care: 2 (4), P: 192-8 Gammon D., Sorlie T, Bergvik S., Hoifodt TS. (1998) Psychotherapy supervision conducted by videoconferencing: a qualitative study of users’ experiences. Journal of Telemdicine and Telecare 4: Supplement 1. 33Gonçalves-L, Cunha-C. Telemedicine project in the Azores Islands. Archives d'anatomie et de cytologie pathologiques 1995,: 43 (4), P: 285-7, Harley J., McLaren PM, Blackwood G, Tierney K and Everett M. 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Journal of Telemedicine and Telecare ;6; (suppl 1) 93-95 Dr. Paul McLaren Honorary Consultant Psychiatrist South London & Maudsley NHS Trust 62, Speedwell Street Deptford London SE 8 4 AT Email: PMcl639251@aol.com and Medical Director The Priory Ticehurst House Ticehurst, Wadhurst East Sussex TN5 7HU United Kingdom Neuropsychiatrie, Volume 18, S 2, 2004, page 64-73 Review Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry Hubert Sulzenbacher1, Alex H. Bullinger2, Thomas Senn2, Evangelos Bekiaris3 and Ullrich Meise1 1 Center for Online Mental Health, Dept. of Psychiatry, Medical University Innsbruck 2 Center of Applied Technologies in Mental Health, Dept. of Psychiatry, University Basel 3 Center for Research and Technology Hellas, Hellenic Institute of Transport, Thessaloniki Key words Telepsychiatry, e-Mental Health, Telephone, Videoconferencing, Internet Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry The terms Telepsychiatry and E-Mental Health describe the use of telecommunications media in psychiatry. Telepsychiatry is mostly used in connection with psychiatric videoconferencing, while the term E-Mental Health is related rather to the Internet. Communication media with a wide range of possibilities for use in psychiatry are the telephone, videoconferencing, and the Internet. The telephone is a well-tried medium in emergency medicine and crisis intervention, but rarely usable for psychiatric diagnosis because of the lack of visual information. Videoconferencing, on the other hand, offers the reliability of psychiatric face-to-face diagnosis, if the transmission speed is fast enough. So far, because of high technical and financial requirements, videoconferencing has been used mainly under very distinctive geographical and economic circumstances. Via web sites, chat rooms, message boards or e-mail, the Internet facilitates a variety of communication possibilities in psychiatry. Although one can hardly doubt that presently the potential of electronic telecommunications is not exploited fully, the obstacles and limits in all their technical, organisational, political, geo- graphical, economic, linguistic, ethical-juridical, social, and medical aspects have to be considered. prehensive definition is presented below: Telemedicine is defined as the delivery of health care and sharing of medical knowledge over a distance using telecommunications systems. [101] Introduction Definitions When assessing the quality of health-care systems, general access to medical care is undoubtedly a key criterion. As it is more difficult to achieve adequate access to healthcare for people living in rural areas than for those in urban environments, the improvement of medical care in remote regions has to be seen as a major task for every health-care system. The most obvious solution for this problem is increased settlement of physicians and establishment of hospitals, but as this is expected to reach its economic limits soon because of insufficient utilisation, other solutions have to be found. Certainly the use of telemedicine can reduce the problem of inadequate health-care in remote areas. Through telemedicine, medicine by distance, it is possible to save time and money for patients and therapists, as only the medically relevant information between those involved and not the individuals themselves has to be transferred. Although the term 'telemedicine' has been defined frequently, most definitions differ just marginally. As an example S.W. Strode’s very com- Telemedicine is not an invention of the electronic age, but the development of electronic communication media has increased the speed of information transfer so much, that the use of telemedicine could now be acceptable from an economic, but also an ethical view. As on the one hand medicine over large distances is currently only efficiently realisable through electronic media and as on the other one of the most important benefits of electronic communication media probably lies in overcoming geographical barriers, the terms 'telemedicine' and 'e(lectronic)-health' are inseparably connected. The term 'e-health', which was developed recently in analogy with terms like 'e-commerce' or 'e-business' focuses on the electronic transmission of medical information. Comparing it with 'telemedicine', J. Mitchell gave the following definition of 'e-health': E-health is […] a term which describes the increasing use of electronic communication and information technology in the health sector. Telemedicine is the term used to describe the use of telecommunication for the provision of medical services to distant locations. E-health is a more general term that describes the use of Sulzenbacher, Bullinger, Senn, Bekiaris, Meise both telecommunication and information technologies for the delivery of health services both at a distance and locally. Hence, e-health is an umbrella term that encompasses telemedicine and telehealth. [83] conferencing and the Internet, is neither categorised as 'telepsychiatry' nor 'e-mental health', if rigid definitions are used. From the psychiatric viewpoint both definitions are problematic, due to the way electronic telecommunications became involved in psychiatry historically. The term 'telepsychiatry' was first used for interactive videoconferencing in psychiatry [31] in 1973 and since then both terms have been used synonymously. Although there have been repeated attempts to define 'telepsychiatry' in a broad sense similar to 'Telemedicine', colloquially but also in scientific literature the term is used almost exclusively for psychiatric interactive videoconferencing. A. Buist et al. expressed this usage explicitly: Telepsychiatry is a specialist form of telemedicine in which videoconferencing is used by psychiatric practitioners to communicate with other mental health service providers and with patients. [15] Basics of electronic telecommunication And also the term 'e-health' is not usually used in the comprehensive sense suggested in the definition above. G. Eysenbach gave a definition which considered the term’s Internet origin: e-health is an emerging field in the intersection of medical informatics, public health and business, referring to health services and information delivered or enhanced through the Internet and related technologies. [37] This conceptual vagueness was the reason we chose to use both terms, 'telepsychiatry' and 'e-mental health', in this article as the psychiatric use of all important telecommunication media will be presented. The compromise made here is clear when we consider that the telephone, the most important communication medium in psychiatry, alongside video- Each communication medium can be characterised by several technical parameters which determine its possible uses. In this chapter some important parameters will be described with regard to the most common electronic media and their use in psychiatry. 65 in post-discharge care. Still pictures: These can be transmitted via television, web sites or e-mail. Telemedical transfer of still pictures is used primarily in radiology, pathology and dermatology for diagnostic purposes. With the increasing diffusion of the Internet new uses, such as medical education, have recently emerged [28], although in psychiatry there are hardly any possibilities to exploit these. Audio-visual data: Such information can be transmitted via television, web sites or e-mail. In psychiatry audio-visual data transfer is used for diagnosis and psychotherapy, but also in supervision, psychiatric education and administration. Type of information transferred Physiological data: The monitoring of physiological functions over a distance is called 'telemetry'. Telemetry was probably first used by NASA for terrestrial surveillance of astronauts' blood pressure, respiration and body temperature [112]. More recently this technology was used for instance for ECG-monitoring [87], electro-physiological observance of mountaineers [50, 88] and divers [60], and SIDS-risk infants [4]. From the psychiatric view, the possible uses seem to be limited. Written text: The classical form of storing information and the most important form of communication in science. Although each optical communication medium is able to transmit written texts, for this sort of information transfer mostly web sites, message boards, chat rooms, and e-mail are used. In psychiatry written text is used for general information transfer and education, but also for psychotherapy. Spoken text: is mostly transmitted via radio and telephone, but is also transferable through web sites and e-mail. In psychiatrie telecommunications spoken text is used mostly for organisational and administrative purposes, in emergency medicine and crisis intervention, and occasionally Direction of information transfer Unidirectional information transfer enables the transmission of data in only one direction, from one defined transmitter to one or more defined receivers. This form of data transfer is used in radio and television broadcasts and on simple non-interaktive web sites. In psychiatry unidirectional data transfer can be used for transmitting general information and psychiatric education. Bi-directional information transfer: Here the position of transmitters and receivers changes during the communication. Such an interactive form of communication is made possible by telephone, videoconferencing and e-mail. As bi-directional data transfer allows information exchange between two people, psychiatric diagnosis, counselling and psychotherapy is possible. Multidirectional information transfer: This form allows more than two people to communicate with each other. Every participant can act as transmitter as well as receiver. Multidirectional telecommunication occurs in audio- and videoconferences and Internet, mediated in message boards and chatrooms. This form of information transfer allows discussions and Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry exchange of ideas between more or less selected groups of communication partners. Synchronicity Synchronous communication demands simultaneous attention of all communication partners. Radio and television broadcasting, telephone, real-time-videoconferencing, and Internet chat rooms are based on this form of communication. Synchronicity allows immediate interaction of communication partners, as required for instance in crisis intervention and diagnostic interviews. Asynchronous communication: The transmitted information is stored and available for the receiver when needed. This form of communication is used in telephone mailboxes, storeand-forward videoconferencing and in various Internet-mediated technologies like e-mail, web sites, and message boards. Asynchronous communication is used for example in organisation and administration, education and discussions. Communication Media in Telepsychiatry and E-Mental Health In terms of their use for psychiatric purposes telephone, videoconferencing and Internet play a prominent role. These three communication media can be used for psychiatry in a number of ways: for education, exchange of ideas, diagnosis, therapy, organisation and administration as well as for crisis intervention and psychiatric emergencies. The utilisation of these media in psychiatry is described below. Certainly there is a multitude of other widespread communication media, but there is comparatively limited use for any these in psychiatry. As a result, just a few sporadic articles on the use of these media in psychiatry have been published, for instance about television spots within the Anti-Stigma campaign of the World Psychiatric Association [94] or about the diagnostic reliability of the fax [10]. Because of their restricted psychiatric use, a description of these communication media has been excluded in this article. Telephone Overview The first telecommunication medium, electromagnetic telegraphy, was already developed in the first half of the 19th century. Telegraphy allowed asynchronous bi-directional transmission of written information, however, efficient utilisation was restricted by technical inadequacies: First the text which was to be transferred had to be encoded into a (developed by S.F.B. Morse in its original form) binary sign system, and after transmission the receiver had to decode the text. For this en-/decryption specialists skilled in the use of the Morse-alphabet were required, who were placed at telegraphy offices. So not only was the use of the new communication medium restricted mainly to larger communities, furthermore it was very expensive. Compared with telegraphy the telephone, for which A.G. Bell received the patent in the year 1876, had the advantage that no encoding and decoding of the transmitted text was required. As the users of the new medium were not dependent on en-/ decryption specialists, the telephone could be installed directly at the users' homes. Furthermore the telephone allowed the communication partners a synchronous bi-directional interaction, by which direct conversations over large distances were made possible. As a result, it is no surprise that the new medium spread rapidly: In 1922, the year Bell died, 14 Million telephone lines were registered in the USA alone. 66 Very soon these new communication possibilities were also used in medicine. The fast and uncomplicated information exchange via telephone allowed its use in organisation and administration as well as in emergency medicine and crisis intervention. Until today the telephone has been an indispensable part of these medical fields. Given the telephone's omnipresence and manifold usability, there is a surprising shortage of scientific literature on its medical use. This shortage is alarming mainly in terms of psychiatry, as here, more than in any other field of medicine, quality and therapeutic success are based to a similar extent on verbal interaction, a form of interaction which can easily be carried out over the telephone. Utilisation in psychiatry Psychiatric diagnosis by telephone is problematic: The reliability of telephone based diagnoses is partially – dependent upon the disorder in question – lower than in face-to-face interviews [91]. However, psychiatric screening by means of standardised screening instruments, for which a lower diagnostic reliability is acceptable, is feasible by telephone [8]. Compared with its limited diagnostic possibilities, the telephone has a great potential in view of postdischarge care. With medical aftercare by telephone, it is possible to reduce the dosage of prescribed medication, the accumulated costs, and the frequency and duration of further hospital admissions [96, 108]. While the telephone's possibilities have been little used in psychiatric after-care so far, the telephone has been serving for decades in psychiatric crisis intervention as an inestimable – often underestimated – tool. Since the first telephone helpline was established in London in 1953, an extensive network of telephone crisis intervention has developed [30]. Furthermore informal crisis intervention is probably offered by most psychia- Sulzenbacher, Bullinger, Senn, Bekiaris, Meise tric divisions and outpatients departments. A certain suicide preventive effect of telephone crisis intervention could be proved [27]. The telephone is the most important communication medium in rescue services and an essential component of practices and hospitals. On average, a physician spends approximately one whole workday per month with phone calls [40]. Moreover the telephone has been playing a significant role in synchronous forms of telemedicine, and was consequently esteemed as "the most important part of telemedicine" [58] and as "the most basic unit of a telemedicine equipment" [112]. Despite the fact that in scientific literature the telephone has been neglected in favour of the more spectacular videoconferencing, it should be examined whether, considering the video quality achievable, this method really adds anything compared with a simple telephone connection, particularly if no broadband connection is available [100]. Videoconferencing Overview Videoconferences were used in psychiatry for the first time in the 1950’s, when C. Wittson established an interactive audio-video link between the Nebraska Psychiatric Institute in Omaha and the Norfolk State Hospital, 180 km away. Already in this early period a broad spectrum of uses was found such as psychiatric education [110], group therapy [111], and psychiatric consultation [11]. In the year 1973 the term 'telepsychiatry' was coined for psychiatric videoconferences [31] and, although until today videoconferencing has been used in nearly all medical fields, psychiatry frequently was seen as 'native application' of interactive telemedicine by means of videoconferencing [3]. Although videoconferencing is usable as an asynchronous communication medium too, it is used in psychiatry almost exclusively as a synchronous bi- or multidirectional communication medium. So, similar to the telephone, an immediate interaction between all communication partners is possible. But the additional transmission of visual information provides the important advantage of a better diagnostic reliability compared with the telephone. If a sufficient quality of picture and sound can be guaranteed, videoconferencing is able to achieve the diagnostic reliability of a face-to-face interview [6, 35]. However, the quality of the transferred audio-visual information depends on the transmission speed. If a transmission speed of 384 kbit/s or faster is available, highly reliable psychiatric diagnosis is possible; lower transmission speed reduces the diagnostic reliability [113, 115]. This means that videoconferencing, if it should be used for diagnosis, requires high acquisition costs as well as high operating expenses. These high costs are probably the main reason why so far psychiatric videoconferencing could only be practised under very specific circumstances: As an integrated routine service, videoconferencing exists presently almost exclusively in rich developed countries with large sparsely inhabited regions which are therefore difficult to provide for medically. The high costs of interactive television have caused a second important difference compared with the telephone: As such a system is hardly affordable for private households, potential users usually cannot be contacted at their homes. Although in some Telemedical projects videoconferencing systems were installed directly at the users' homes [85, 106], the services were usually – and as routine services exclusively – installed in public institutions. Of course the possibilities for use of such office/hospital-based telemedicine differ very much from home-based teleme- 67 dicine [53], as it is made possible through the telephone or the Internet. Utilisation in psychiatry Psychiatric videoconferencing has always been seen as a chance to improve mental healthcare in remote areas. However, because of high costs such systems have succeeded mainly in rich countries with sparsely populated remote areas, such as Australia [15, 21, 24, 29, 45, 52, 73, 104], Canada [48, 105], the USA [14, 36, 46], or the Scandinavian states [33, 43, 82]. Several projects were concerned with the problematic situation of psychiatric healthcare on smaller islands [26, 49, 76, 98]. As problems of mental healthcare also occur in big cities, some inner-city projects have also been set up [13, 78]. The possibility of performing psychiatric and psychological diagnosis via videoconferencing was used quite often in recent years, and for most mental disorders. Usually the diagnoses are based on psychiatric interviews, occasionally using standardised tests which have been adapted to the requirements of the medium [9, 16, 84, 116]. Continuing psychiatric care after the first diagnostic interview has been offered rather rarely: Considering the high prevalence of chronic and recurring mental disorders, various studies enumerate surprisingly low numbers of follow-up sessions [64, 97, 105]. Videoconferencing has not only been used as a communication tool between patients and experts, but also for the exchange of information between therapists, education, administration, supervision and training [43, 54, 62, 64, 73, 89]. Psychologists and psychiatrists, nursing staff, social workers or occupational therapists participated in such sessions [15, 33]. Numerous studies showed high satisfaction among patients and therapists [15, 26, 34, 57, 67, 81, 84, 90, 98, 109]. The reservations, mostly among therapists, can probably be explained with frequently occurring Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry technical problems [42, 43, 51, 65, 75, 79, 84, 99]. Although usually in psychiatric videoconferencing modern high-tech equipment is used, the interaction itself is rather traditional: Because of the concentration on diagnosis and therapy, normally only patients and therapists participate in videoconferencing sessions. Apart from parents in child-psychiatric projects [34, 35, 67], the patients' relatives are rarely involved. Consequently the socialpsychiatric demand for integration of family members in the therapeutic process hardly seems to be realisable with interactive television. Half century ago, when videoconferencing was used in psychiatry for the first time, many people expected a great success of the new communication medium. Instead a slow and hesitating development took place. Depending upon various geographical, technical and economic circumstances, psychiatric videoconferencing has only succeeded in a few regions. However, the increasing diffusion of webcam and broadbandInternet could well lead to a fundamental change in this situation in the near future. Internet Overview The idea of the Internet was conceived not later than 1962 when J.C.R. Licklider published his description of a "galactic network": a global network of connected computers, each computer able to send and receive data and programmes to and from all others. The first data transfer over a large distance took place in 1965 [71]. Beginning in 1969, a scientific department of the US-Ministry of Defence developed a network between originally just four university computers: the Arpanet. This was presented to the public successfully in 1972 and already had forty connected computers [114]. Although the foundations for computer networks were set up, the enormous diffusion of the Internet could not have happened without the development of the Personal Computer. The first stages of development date from the sixties, while the great breakthrough took place in the late 1970’s. Until then mainly large university computers were connected in the network, after a huge new market emerged with new interests and demands (simple performance, appealing design, entertainment programmes). In the following years the number of computers connected with the network doubled nearly once a year and, although the speed of the spread slowed down recently, the Internet is the fastest expanding technology in history. However, the spread of the Internet is extremely uneven: While in many developed countries the Internet is used at least occasionally by more than half of the population, in some of the poorest countries not even one in a thousand has Internet access [22]. All in all men use the Internet more frequently, but health websites are visited more often by females; the typical Internet user is comparatively young, lives in an urban environment and has an above average income and education [41, 72, 95]. The Internet is the most complex communication medium ever developed. It allows the transfer of most different information in uni-, bi- and multidirectional ways, synchronous as well as asynchronous. Websites, message boards, chat rooms, webcams, file sharing programmes, e-mail and mailing lists are such different forms of information transfer that in fact each of these can be seen as a communication medium sui generis. In this article, however, the Internet is presented as a composite, as normal Internet access allows the user to employ all those single media and to decide, to which degree and to which purpose those media will be used. 68 Utilisation in psychiatry The World Wide Web offers an immense and continually increasing amount of information. It has been estimated that there are approximately 100,000 websites dealing with health questions [39], from which a considerable segment is concerned with mental health. These websites are offered by a wide variety of owners: organisations operating worldwide as well as national, regional and local psychiatric institutions, and also individuals such as patients, their families and therapists. Consequently the information offered is impressively diverse: Descriptions of mental disorders are available as well as information on psychiatric stigma, legal questions and presentations of personal experiences of patients and their relatives. The search for relevant information can be facilitated by categorised link lists [12, 74]. Frequently the quality of Internet information has been doubted, and some scientific articles indicate that a certain scepticism towards medical information on the Internet seems to be reasonable [5, 68]. Nevertheless, a systematic search for harm caused through inadequate Internet information brought very few definite results [23]. Although in principle psycho-diagnosis via the Internet is possible, the diagnostic reliability can be too low, if inadequate bandwidth is used [115]. In view of the Internet's continuously increasing transmission speed, however, it is to be anticipated that this could be overcome in the near future. No reliability problems caused by low bandwidth exist for psychiatric screening: Psychiatric screening is a form of provisional diagnosis by means of standardised screening tools, which indicates a certain likelihood for the presence or absence of a mental disorder. It has a significantly lower reliability than a diagnostic interview [107]. Psychiatric screening is able to make people afflicted aware of their possible men- Sulzenbacher, Bullinger, Senn, Bekiaris, Meise tal disorder. The Internet currently offers such tests for various frequent mental disorders, for instance for alcohol-related disorders [56, 63], anxiety disorders [1, 77], or depressive disorders [25, 86]. The fact that the Internet is also usable for therapeutic purposes is little known, although for psycho-therapeutic methods it is absolutely feasible. There are several websites which offer CBT programmes, some of them with integrated diagnosis and outcome testing by means of screening instruments [17, 18, 47]. Beside such fully-automatic therapy programmes, the Internet also offers individual psychotherapy. Here the communication between client and therapist usually takes place via email or in a private chat room [2]. Formally standardised psychotherapy over e-mail is also available [59, 69]. The chances of success for Internetbased psychotherapy have been assessed very differently. Undoubtedly patient selection, which is not easy to make over the net, is of great significance here [19, 20, 70]. Although synchronous multidirectional telecommunication in the form of telephone and videoconferencing already existed before the development of the Internet, the widespread use of this form of telecommunication did not start before the invention of the Internet chat room. The asynchronous multidirectional telecommunication of Internet message boards is an entirely new form of telecommunication, made possible first by the Internet. Currently multidirectional telecommunication is used primarily by patients and their families and allows exchange of ideas, talking about personal experiences and mutual support; psychiatric message boards are usually moderated to prevent personal injuries or suicide propaganda of participants [66, 103]. The various forms of communication, which are offered by the present Internet, can be used for psychiatry in a wide variety of ways, and millions of people are able to participate. However, it has to be considered that even more potential users are excluded from Internet access because of economic, social and even medical reasons. So it is one of the most important technical and political challenges of our time to enable as many people as possible to access the probably most important communication medium of the future. Discussion After the separate presentation of the telephone, videoconferencing and Internet in the previous section, in this final part some aspects of psychiatric telecommunication will be explored, which are significant for all these communication media. Technical aspects and network architecture Although a separate description of those telecommunication media which play an important role in psychiatry was preferred in this article, it has to be emphasised that current farreaching technical developments are leading to increasing convergence in the possibilities of telecommunication media. Webcams, Internet-telephone or picture-telephone are presently still new and little used forms of data transfer, but it is certainly imaginable that these media will be a common part of everyday communication in a few years, as, for example, the mobile phone and the SMS are already today. It should be noted, however, the possibilities of a telecommunication medium do not only depend on its technical parameters, but also on the structure of the network used. Psychiatric videoconferencing is mostly used to improve the situation of mental healthcare in remote rural regions. Typically small regionally connected networks are used. Videoconferencing is currently a very expensive form of telecommunica- 69 tion, and therefore the carriers are dependent upon financial support from the local, regional, or national government. It is not surprising therefore, that videoconferencing services are typically orientated towards political borders and that transnational projects are rare [92]. This orientation is the reason that language barriers play a more important role only in multiethnic societies. The Internet on the other hand is hardly influenced by political boundaries: The Internet offers worldwide access to websites and e-mail addressees. While videoconferencing services are mainly installed in rural areas, in terms of the Internet the inhabitants of such remote regions are disadvantaged compared with people living in urban environments [72]. Even though for the Internet political borders don't play a particularly significant role, there is still one important limitation for Internet access: Language boundaries can hinder the access to relevant information, particularly if the user does not master the predominant English language [102]. The system architecture of the telephone network stands between videoconferencing and Internet: On the one hand the telephone allows one, at least theoretically, to get in contact with other people connected with the telephone network worldwide; so the communication is similar to the Internet and restricted mainly through language barriers, less through political structures. On the other hand different charges for calls at home and abroad cause a political influence, too. Home-based telemedicine & office-/hospital-based telemedicine With regard to the psychiatric usability of different communication media, one must distinguish between home-based telemedicine and office-/ hospital-based telemedicine [53]. Telepsychiatry and e-Mental Health: Electronic Telecommunication in Psychiatry While in the first form the telecommunication system is available for the user directly at his home, the second form requires the user to move to an institution in which the system is installed. Office-/hospital-based telemedicine is mainly used just to speed up the information transfer between physicians for diagnostic purposes. It is presently the most important function of telecommunication in radiology, pathology and dermatology, for example. In psychiatry office-/hospital-based telemedicine is practised mostly as psychiatric videoconferencing. Home-based telemedicine allows the user to communicate directly at his/her home. For this form of telecommunication mostly the telephone and Internet are used. Ethical aspects In connection with medical telecommunication there are various ethical-juridical questions. Some of the most important problems are discussed below. Ethical guidelines for the use of telecommunication in medicine were proposed, for instance by eHealth Ethics Initiative [32], Health on the Net Foundation [55], and MEDEM & eRisk Working Group for Healthcare [80]. Anonymity: This telecommunication problem has been known about the telephone for a long time. However, whether the principle only to give personal information about patients to definitely identified people is obeyed consistently may be doubted. For patients, anonymity is mostly problematic in view of the Internet. So frequently the carriers of websites and their medical qualification are insufficiently specified or not specified at all [61]. Particularly for significant interaction like psychiatric diagnosis or psychotherapy via telecommunication, it must be guaranteed that all relevant information about the therapist's person and qualification are open to the patient. However, in other situations anonymity is not just acceptable, but moreover desirable: Undoubtedly the success of crisis intervention via telephone is at least partially caused through the callers' possibility to stay anonymous. The situation is similar in Internet chat rooms and message boards. Even for carriers of websites, in some cases the wish for anonymity has to be accepted, for instance, for patients suffering from a mental disorders and for their family members [93]. Confidentiality and data security: Although these issues play an important role in the personal interaction between patient and therapist too, the use of telecommunication requires particular attention. Before the exchange of confidential information, it has to be assured that the data is not available to anyone except the designated addressee. Stored data also has to be protected against unauthorised access. Crisis intervention: If patient and therapist use telecommunication media, it should be clarified already before a possible emergency situation, which intervention possibilities are open to the therapist. In a crisis situation the therapist should be able to contact an emergency service near the patient's residence immediately. 70 And finally psychiatric illness is able to restrict the use of telecommunication: Dementia, substance abuse, depressive episodes or schizophrenic psychoses can affect the acting, thinking and feeling so much, that the use of a telecommunication medium becomes absolutely impossible. And so finally psychiatric disorders set the limits of telepsychiatry and e-mental health and determine their role: as a worthwhile complement to the personal communication between patients, relatives and therapists – but not as its substitute. Literature [1] [2] [3] [4] [5] Social and medical aspects [6] The influence of social factors on the access to the Internet is obvious: In poor countries there are fewer Internet connections than in rich, and within each society the socially disadvantaged have less access than people with higher income [38]. Rural population, elder people and ethnic minorities are underrepresented too [41, 72, 95]. Somatic illness and disability can also reduce the possibilities of telecommunication: Sight defects, poor hearing and immobility can – dependent on the communication medium used – impede the communication [7]. [7] [8] [9] [10] ADAA – Anxiety Disorders Association of America: Anxiety Screening Tools. 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Hubert Sulzenbacher Dept. of Psychiatry Medical University Innsbruck Anichstrasse 35 A-6020 Innsbruck Austria E-mail: ullrich.meise@uklibk.ac.at Neuropsychiatrie, Volume 18, S 2, 2004, page 74-78 Original On the Integration of Telepsychiatry Services in European Remote Areas: the ISLANDS Project Case Study María Fernanda Cabrera1, María Teresa Arredondo1, María Rodríguez1 and Evangelos Bekiaris2 Telecommunication Engineering School, Technical University of Madrid Center for Research and Technology Hellas, Hellenic Institute of Transport, Thessaloniki 1 2 Key words Telepsychiatry, system architekture On the Integration of Telepsychiatry Services in European Remote Areas: the ISLANDS Project Case Study There are some regions in the European Union – predominantly islands – with particular characteristics, which are responsible for their being behind the average socio-economic development in Europe. They have an economic as well as medical logistic disadvantage. They are remotely located with a lack of access to modern healthcare facilities, especially psychiatric and cognitive-behavioral therapies. As a consequence, quality of life of patients living in these areas is impaired. Since anxiety, depression or other mental health disorders cause progressive vocational, emotional and even physical impairment of individual functioning, the ability to participate in societal activities and to support economic development of the living area is altered. Studies assessing the possibilities of positively influencing economic and mental health problems in remote European areas are lacking. Facing this reality, the European Union has funded ISLANDS (Integrated System for Long Distance Psychiatric Assistance and Non-conventional Distributed Health Services), a Quality of Life (QoL) project. ISLANDS joins research groups (UPM, ICCS, COAT-Basel, University of Innsbruck, Charles University of Prague), companies and industry (Fundación Vodafone, TRUTh, Interaxon, MMU), and end users (Servicio Canario de la Salud, University Hospital Fort-de-France, Eginition Hospital) to build a platform aimed to deliver long distance psychiatric services. In this paper, several aspects related to the aforementioned problems are analyzed and a real case study, drawn from ISLANDS project, is presented. Introduction The need for health services rises because of the ageing in Europe as well as in other industrialized regions, and because of the citizens’ health services quality expectancies. Demographic factors and technological progress lead to higher costs for health services [6]. But at the same time, there is a need in reducing those costs because of lower public budgets. Consequently, it is very important to use all possible resources to bring together divergent interests. In the European Union (EU), different types of healthcare (HC) systems exist in the various member states and sometimes they differ even from region to region. Europe’s long history of regional autonomy, strong national feelings, and heavily defended borders may well account for the diversity of such HC systems. This leads to non homogeneous medical treatments over the European territory that limits, to some extend, the free circulation of citizens. The problem of people medical disadvantage is of greater relevance in the numerous islands within the EU. Epidemiological data suggest that anxiety disorders (post traumatic stress disorders (PTSD), agoraphobia and other phobias, etc.), depression, drug addiction and psychosomatic disorders (tinnitus, eating disorders, and chronic pain syndromes) often occur in any population. Those disorders have an important impact on societal development and economic aspects. The socio-economic development of the European regions lying remote from the main stream can be stimulated by reducing the impact of mental health problems. Their empowerment will lead to more autonomy, can lower the necessity of financial support from the European Union and is able to improve quality of life in remote regions. The use of telemedicine is undoubtedly increasing across de world, but it is still proving difficult to embed firmly within normal clinical practice [5]. However, one of the best ways of addressing the problem of medical disadvantage of people living in rural and remote regions is the use of modern tools and aids to overcome practical obstacles and to disseminate mental health tools to those remote populations, offering a significant chance for health services and quality of life improvement [1]. On the basis of the before mentioned conditions, the objective of the last generation EU Fifth Framework Cabrera, Arredondo, Rodriguez, Bekiaris Programme funded project ISLANDS [4] is to develop services to provide modular, non-conventional, remote psychiatric and psychotherapeutic assistance for remote areas. By these means quality of life of the users, quality of mental health care and the economic strength of the region should improve and overweight the costs of implementation and service support. This project will try to reduce inequalities in mental health services and status among European regions. Methods The project started with a literature review of the state of the art on remote therapeutic psychiatric and psychotherapeutic interventions, complemented by field work with the realization of questionnaires to patients, families and doctors, and an international workshop, to result in appropriate service delivery scenarios. In total, 164 questionnaires were filled in: 71 by patients, 59 by informal careers and 34 by medical professionals from Austria, Czech Republic, France, Greece, and Spain. The scenarios specified, the different user group needs and the epidemiological findings led to the definition of different remote service categories (diagnosis, counseling and therapy) for patients, informal careers and professionals, as well as an overall service layout. These services are supported by interactive and user-friendly tools for service content presentation, namely: an interactive web chat tool, a database of reference case studies, an expert tool for therapy guidance, a tool for service confidentiality, and the necessary communication tools and service delivery platforms. All the above developments (content, tools, and delivery platforms) are integrated into modular service typologies, taking into account relevant security, legal and ethical issues. The proposed services will be 75 tested in three pilot sites: the French Oversea Departments, the Greek Southern Sporades and the Spanish western Canary Islands. At first sight there are some similarities between these sites, but in fact the differences outweigh. The pilots are part of three different countries, and three different languages are spoken. Besides, a different historical and cultural background has led to different social, economical, political, and medical structures. These locations represent different service combinations, geographical regions and support needs (but with homogenous user groups), using a common set of evaluation parameters and data processing tools. The cost effectiveness of each proposed services and tools are being analyzed. The guidelines on appropriate service provision will be formulated and the recommendations for supporting policy interventions will be issued. As pilot application fields, five typical case studies of psychological problems have been selected that can be found quite often in normal populations and are of specific interest: • Post-traumatic stress disorder. • Agoraphobia. • Depression. • Problems of alcohol abuse and concurrent violence in families. • Psychotic disorders. All cases are applicable in all three pilot sites to evaluate the proposed therapeutic content and tools under different geographical and environmental conditions. Results The ISLANDS project belongs to the last generation of the QoL projects, and it started operating at the beginning of 2003. The main goal of ISLANDS, which has been proposed by the relevant partners, is to develop remote services in diagnosing, counseling and treatment of psychological disorders. The project will establish appropriate content and service provision media in a comprehensive, modular, and integrative framework for remote patients, relatives/informal cares and professionals, making use of innovative computerized tools with multimedia and multilingual user interfaces, to offer these services in an optimal way. The main outcome will be an adequate treatment of psychological problems in terms of quality assistance delivery for the patients, as well as support for the family and the local medical practitioners. Each of the ISLANDS sites involves a target population of more that 100.000 citizens, and each of them will aim to integrate the developed services. The following sections describe the required functional and technological infrastructure. A) System architecture The platform is composed of: • Remote services in diagnosing, counseling and treatment of psychological disorders [2]. • Computerized tools with multimedia and multilingual user interfaces. • A distributed tele-psychiatry platform, which allows transfer of critical parameters in a secure medical telecare network among patients, their family members and stationary centers, enabling virtual telepresence, remote monitoring and teleconsultation with medical experts, irrespective of location limitations. In order to offer these services and tools, the architecture developed for such platform is based on the provision of a Multi-Access Server (MAS) that comprises full range of widely accepted information technologies offering to the users a universal, easy to use, on-line and cost-effective access to the provided services. The MAS allows users to access remotely regardless of the access terminal they choose. The integrated platform will embed several technical implementations to permit the access to the wide On the Integration of Telepsychiatry Services in European Remote Areas: the ISLANDS Project Case Study 76 Figure 1. ISLANDS architecture range of services for patients, professionals and family members already mentioned. The architecture is open and distributed, able to integrate different functional modules from different developments using heterogeneous software and hardware solutions. It allows each clinical site to configure the number of services they want to offer to their own users depending on the local healthcare organization. In addition, the ISLANDS architecture facilitates the integration of existing applications that could be adapted. The architecture (see figure 1) allows the interoperability of different modules that perform the functionality of the ISLANDS services in a distributed way. The general components are: • The Knowledge Management Organizer (KMO). This is the central element of the platform in charge of coordinating the interoperability between the agents integrated into the system. The KMO receives a message from each agent whenever an event happens and checks which is the next action to be done and the agent that should perform it. Afterwards, the KMO sends a message to the final agent containing the information to perform the action. • The ISLANDS agents. These are Web Services (3) that have to collaborate to guarantee a homogeneous access of the users to the services. They are divided into two different categories: Communication Servers (CS) and Application Servers (AS). Each CS is in charge of managing the communication process between the platform and one specific user terminal. They have the responsibility of performing the security policies for user access control, data confidentiality and data integrity during data transfers. Each AS is in charge of performing the kind of data analysis that requires the presentation of the results accessible from different user terminals. • The ISLANDS database. The information that has to be shared to allow the interoperability between all the agents and applications is classified according to its nature: user’s information, profiles, medical data and treatments, centers of excellence, access rights and reference cases. • The user applications. These are the software modules that allow the user to interact with the system and access to the available services. • The user terminals to access the system. The telecommunication infrastructure is a state of the art one, calling for no further research, being the main added value the integration of already validated solutions. Security is also a critical aspect that has been taken into account due to the nature of the managed information. Mechanisms for authentication, confidentiality, data integrity and access control are being implemented. Cabrera, Arredondo, Rodriguez, Bekiaris 77 SERVICES AND SCENARIOS DESCRIPTION Type of content PATIENT Screening Psycho-education, counseling PROFESSIONAL NFORMAL CARER Guided therapy Help in screening for a disorder in a friend, partner, family member, etc. Psycho-education, counseling Guided advice Major chapters • Anxiety symptoms • Depressive symptoms • Alcohol abuse • Psychoticdisorders • Anxiety in general • PTSD • Depression in general • Alcohol • Psychoticdisorders • Self-exposure in anxiety disorders through professional guidance • PTSD therapy through standard writing • Self-management techniques in depression • Motivational therapy in alcohol abuse / dependence • Anxiety symptoms • Depressive symptoms • Alcohol abuse • Psychoticdisorders • Anxiety in general • PTSD • Depression in general • Alcohol • Helping others in self-exposure in anxiety disorders • PTSD therapy through standard writing • Helping others in self-management techni ques in depression • How to support someone in motivational therapy in alcohol abuse/dependence Supervision and advice in screening • Post-traumatic stress disorder • Agoraphobia and other phobias Supervision and advice in psycho-education, counseling • Depression • Alcohol abuse Supervision and advice in • Psychoticdisorders treatment REQUIREMENTS DEFINITION Data Data urgency Telecommunicatio transmitted n Services Text Low SMS, WAP, chat, e-mail Text Low SMS, WAP, chat, e-mail Text, speech, conferencing High Text Low SMS, WAP, chat, e-mail Text, speech Low Speech, SMS, WAP, chat, e-mail, MMS, conferencing Text, speech, video High Speech, chat, e-mail, MMS, videoconferencing Text, speech, video Intermediate Text, speech, video Intermediate Speech, chat, e-mail, SMS, MMS, videoconferencing Text, speech, video High Speech, chat, e-mail, SMS, MMS, WAP PUSH, videoconferencing SMS, WAP, chat, e-mail, MMS, speech, conferencing. Speech, chat, e-mail, SMS, MMS, WAP PUSH, videoconferencing Table 1: Service layout and requirements definition B) Service layout The service delivery is based upon a multi-screening and a multistep approach addressed to three target groups: patients, family members and local professionals. Three service batches are discerned, according to the user group to whom they should benefit, as shown in table 1. As described in the table, the first column identifies the service content for each of the end users. The second column relates the type of services with the different type of content. The third one shows the type of the information transmitted. The various services to the patients, their families and the local professionals, although reliable as stand-alone, are planned to be also offered in coordination. C) Tools and media The need to offer generic, easy to use and low cost remote services has lead to the choice of a web portal as the basic service delivery platform. It includes a user-friendly interface and navigation tools, which can be personalized according to level of services and patient types. The overall design principle is the integration of specific interactive and situational information with standardized and validated neuropsychological assessment tools, leading to specific pathways of handling the respective situation, delivering the appropriate sessions and in general managing the service. In order to deliver the web-based interventions and evaluate their progress, a set of computer assessment and training tests have been designed. An automatic system has been developed, which analyze the user’s answers, compute scale scores, compare them with the inclusion cut-off scores On the Integration of Telepsychiatry Services in European Remote Areas: the ISLANDS Project Case Study and inform the participants if they are accepted. A database of case studies has been defined. It contains a description of the existing remote treatments and tools, and a collection of particular cases. Its structure is behind the web platform and can be accessed by normal web browsers, being compatible with various computer types. D) Communication framework The communication systems employed for each service use alternative and redundant means to guarantee global coverage at the best cost-efficiency ratio. Although the relevant telecommunication framework is state of the art, its integration and use pose a number of challenges, such as: • proper communication signal operation and transfer in remote areas with poor telecommunications infrastructure; • real time transmission of potentially high data content (e.g. physiological signals or images), with the current limitations of browser interfaces and network communications; • seamless and reliable communication, when transferring from one medium (e.g. Web) to another (i.e. satellite communication); • service cost viability, since satellite communications especially are still quite expensive. The above issues are gathered in table 1 where the last two columns represent the communication technologies proposed in relation to the importance and urgency of the transmitted data. Discussion The project seeks wide user acceptance of the defined remote psychological support services, from all user types (patients, families and local professionals). The support of services for the family and the local professionals is proposed to avoid any negative influence on their part of the patients’ (remote) therapy and, on the other hand, to further supplement it by consulting also the patient’s relatives and medical doctor accordingly. The development of a knowledgebased expert tool to guide the relevant services application aims to avert erroneous application of such services, by inexperienced medical personnel or the users themselves and their relatives. The psychotherapeutic services differ to a high extent in the various European areas. Also the role of the family and the local doctor is much more important in Southern than in Northern Europe. In order to be able to support a Europe-wide service network, that will be able to be integrated in the medical and psychological support services of different countries and cultures, ISLANDS targets a modular service, that will be offered and validated in three different sites, that follow completely different service provision formats. In addition, as they are applied to distant and remote populations of islands, the local cultural specificities are also taken into account. The adaptation of these services to such a wide cultural and organizational spectrum will make the service content and media open enough for pan-European adoption. 78 diagnostic, counseling and therapy purposes. Each of these components is being successful and will continue. The project will, it is hoped, provide leadership, enhance information about mental health problems, and undertake research in cost-effective policies to improve the mental disorders addressed. Acknowledgements: We are grateful for the valuable contribution of the ISLANDS project consortium to this work. This project is partially funded by the EU Quality of Life Programme. References [1] Barry DK: Web Services and ServiceOriented Architectures. San Francisco, Elsevier Science 2003 [2] Burnett KF, Magel PE, Harrington S, Taylor CB: Computer-assisted behavioral health counseling for high school students. Journal of Counseling Psychology, 1999; 36: 1-5 [3] Council of Europe. Demographic Year Book. 2001 [4] European Commission, Quality of Life, ISLANDS: Integrated System for Long Distance Psychiatric Assistance and Non-conventional Distributed Health Services, Project QLG5-CT-2002- 01637. 2003 [5] Hawker F, Kavanagh S, Yellowlees P, Kalucy RS: Telepsychiatry in South Conclusions Australia. Journal of Telemedicine and Telecare 1998; 4: 187-194 The potential benefits of telepsychiatry, especially for European remote areas, are considerable. Telepsychiatry has the capacity to enhance, support and increase the efficiency of mental health services; reduce inequalities of access to health services and information for individuals and communities, particularly in rural and remote locations; and support, educate and train isolated health practitioners where they live and work. Over the past 12 months, the ISLANDS consortium has focused in the development of feasible tools for [6] Wootton R, Yellowlees P, McLaren P: Telepsychiatry and e-mental Health. Royal Society of Medicine Press Ltd, 2003 Maria Fernanda Cabrera PhD ETSI Telecommunicación Ciudad Universitaria 28040 Madrid, Spain E-mail: chiqui@gbt.tfo.up Neuropsychiatrie, Volume 18, S 2, 2004, page 79-88 Original Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System Angelos Amditis1, Zoitsa Lentziou1, Maria Panou2, Alex H. Bullinger3 and Evangelos Bekiaris4 1 Institute of Communication and Computer Systems, Athens 2 Trans European Consulting Unit of Thessaloniki, Thessaloniki 3 Center of Applied Technologies in Mental Health, Dept. of Psychiatry, University Basel 4 Center for Research and Technology Hellas, Hellenic Institute of Transport, Thessaloniki Key words Telepsychiatry, services, architecture, system, screening, diagnosing, therapy, ISLANDS system along with the components description will be presented and thoroughly analysed in this paper. e-mental health, technology Services and Architecture for the ISLANDS system: Towards a Modular Non-Conventional Telepsychiatry System Quality of life of patients living in remote areas is impaired. Since anxiety, depression, substance use disorders or other mental health disorders cause progressive vocational, emotional and even physical impairment of individual functioning, the ability to participate in societal activities and/or to support economic development of the living area is altered. Modern technologies, such as the Internet, the telephone, the videoconference and other kind of communications, software tools, multimedia training packages, can provide feasible tools for diagnosis, counseling and therapy. In this paper the services that will be delivered to the three different target groups (i.e. professionals, patients and their informal carers) within the ISLANDS will be discussed. Patients, their families and professionals will be able to interact with each other in different ways. Mobile phones, web-based coaching, newsgroups, chats, video conferences and many other devices can support the communication between the three aforementioned groups, e.g. to find support and help in screening and diagnosing a patient [1]. Therefore, the architecture of the Introduction Telemedicine has been applied nowadays in practically every area of the clinical medicine as well as medical education. However, although telemedicine is represented in the vast majority of medical advances and specialties, the stages of development and maturity vary significantly from specialty to specialty. The following table (table 1) presents a number of telemedicine applications in relation to the level of maturity. Maturity depends on several factors, including the quantity and quality of research that has taken place for the specific application, the degree to which the application has been accepted by the professionals, and the development of standards and protocols for this application. Other parameters that are related to the developing field of telemedicine applications are namely technical feasibility, diagnostic accuracy, sensitivity, specificity, clinical outcome, and cost effectiveness. Taking a look at table 1, it is obvious that teleradiology and telepathology are on a high rank on the maturity scale when evaluated on the basis of the attributes listed above. Radiology Mature Pathology Psychiatry Cardiology Maturing Dermatology Ophthalmology Surgery Pediatrics Emerging Emergency medicine Rare Diseases Table 1: Telemedicine applications categorised by the level of maturity [2]. In contrast, telemedicine has only recently been applied in other cases such as in surgery, pediatrics, and rare diseases. This is reasonable to an extent, since the difficulties that arise in the second case are more complex. Maturing clinical applications include telepsychiatry, teledermatology, telecardiology, and teleophthalmology, as issued in Table 1, since there has been held a primitive research and development work in these specialties. The most recent evidence, however, do not indicate the acceptance of the relevant technology in the aforementioned applications. This situation results partly from the undeveloped national and international standards for technology and clinical protocols. Specifically, telepsychiatry has primarily been realized through videoconference and similar technology [2, 3]. Even at an early stage, there were challenging experiments Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System in the field of psychiatric teleconsultation in Boston, Massachusetts, and Omaha, Nebraska, that proved the clinical efficiency of telepsychiatry. Today, telepsychiatry is one of the most frequently used clinical applications of telemedicine, and it is estimated that more than 12,000 telepsychiatric consults are conducted annually in the United States. Moreover, research in this field has illustrated a high degree of accordance between telepsychiatric and traditional in-person consults regarding the clinical assessment [2]. Similar to other clinical applications, cost analyses in telepsychiatry suggest that large amounts of money have been invested to the maturing field of e-mental health. This percentaService No End User II Patient III IV V Informal Carer Type of content • Anxiety symptoms • Depressive symptoms • Alcohol abuse • Anxiety in general Psychoeducation, • Schizophrenia counseling • Depression in general • Alcohol • Self-exposure in anxiety disorders through professional guidance • Schizophrenia therapy through standard writing (exposure Guided and cognitive restructuring) therapy • Self-management techniques in depression • Motivational Therapy in alcohol abuse / dependence Help in scree- • Anxiety symptoms • Depressive symptoms ning for a • Alcohol abuse disorder • Anxiety in general Psychoeducation, • Schizophrenia counseling • Depression in general • Alcohol • Helping others in self-exposure in anxiety disorders • Schizophrenia therapy through standard writing (how to support Guided advice for therapy someone) • Helping others in self-management techniques in depression • How to support someone in Motiva tional Therapy in alcohol abuse / dependence Screening I VI Service Type ge is bound to increase in the following years, since the cost of telepsychiatric equipment is continuously declining. What is more, research and study on the acceptance of and satisfaction with telepsychiatry systems suggest that both patients and providers are content with this type of delivering psychiatric facilities. It is common knowledge that acceptance is closely associated with frequency of use. Therefore, enhancing the interaction with this kind of technology will result in the users’ wider acceptance [2]. The ISLANDS project aims at developing services to provide modular, non-conventional, remote psychiatric and psychotherapeutic assistance for people who live in remote areas. Therefore, in the following units 80 the services and the architecture of the ISLANDS system will be thoroughly analysed. This paper is organized as follows: the following section is an analysis to the services that will be delivered through the ISLANDS project to the three target groups namely the general practitioners, the patients and their carers. The next section provides details concerning the design of the ISLANDS system architecture. In this section, except for describing the different components that compose the system, the state of the art technology for conducting and establishing e-mental health sessions is also presented. Finally, the main concerns and obstacles along with the conclusions are being put forward. Data transmitted Data urgency Service (high, intermediate, low) frequency Text Low Daily Text Low Daily Text, speech, conferencing High Daily Text Low Daily Text, speech Low Daily Text, speech, video (films, conferencing) High Daily Amditis, Lentziou, Panou, Bullinger, Bekiaris Service No VII VIII IX End User Type of content Service Type Supervision and advice in screening Supervision and advice in psychoProfessional education, counseling Supervision and advice in treatment 81 Data transmitted Text, speech, video (films, conferencing) • schizophrenia • agoraphobia and other phobias • depression • alcohol abuse Data urgency Service (high, intermediate, low) frequency Intermediate Daily Text, speech, video (films, conferencing) Intermediate Daily Text, speech, video (films, conferencing) High Daily Table 2: The three different batches of services that the ISLANDS project aims to deliver Data transmitted Importance Recommended technology Text Low Mail Text, Speech Low Mail, telephone Text, Speech, Conferencing High Videoconference/ computer conference Text, Speech, Video (films, conferencing) Intermediate/High Videoconference/ Computer conference Table 3: The recommended technology in relation to the different services Services The ISLANDS project aims to the The ISLANDS project aims to address four different mental health problems, namely schizophrenia, depression, phobia and (ab-)use of alcohol through the use of electronic means. For each of the aforementioned categories a series of modules will be set and integrated in order to help users suffering from or concerned with this problem. Mainly, there are three types of services (i.e. screening, counselling and therapy) that will be delivered to the three different types of end users. This means that substantially the ISLANDS project aims at providing nine different services for the users (i.e. professionals, patients and their informal carers). For instance, the screening service has different meaning for each user; for the patient it means that he will have the chance to be diagnosed, while for their family members it means that he will receive support and help in screening and for the professionals that he will accept supervision in screening. These are analytically presented below. As described in the following table, three service batches are discerned for the benefit of the three different end users as indicated by the three different shadings in the colour of the table along with the second column (namely the general practitioners, the patients and their carers). In the third column the type of service is identified for each one of the end users (i.e. screening, counseling and therapy for the three aforementioned target groups). In the forth column the type of content that corresponds to the different type of services are presented. For instance, screening a patient within the ISLANDS project involves examining a person for anxiety symptoms, depressive symp- toms and alcohol abuse. The sixth column shows the urgency (namely high, intermediate or low) in the transmission of the required data in relation to the type of service while the previous column identifies which format (i.e. text, speech, conference, and video) of the transmitted data can cover the relevant need. This means that dependent on the importance and the urgency in the transmission of the medical data the technology that will be used is defined. For example, a low importance service delivery can be supported by text, whereas the most urgent cases require the transmission of video (audio and visual contact). This issue will be discussed analytically in the following section. Finally, in the last column the required frequency of the delivered service is described and defined as daily, since it is crucial for a psychiatrist to have a daily contact with his patients or other professionals. What is more, Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System patients with mental disorders demand a frequent diagnosing and treatment. In order to sum up all the above mentioned technologies in comparison to the importance of the transmitted data, a supplementary table is being put forward: As described in this table an incident with low importance (e.g. following up a patient’s condition after he/she has been diagnosed and treated) can be conducted via mail, since the required amount of information can be delivered by transmitting a written text. The same rationale corresponds to the need of high importance data transfer. Further details on the usage of each above mentioned technology (namely mail, telephone, videoconference and computer conferencing) are provided in the last section of this paper. Following, an elaborate description of the ISLANDS system is being given. Architecture of the ISLANDS system Building such a complicated system that will be able to combine the delivery of nine different services to three different target groups and at the same time be compatible with the standards and the situation that exists in three different European areas (Spain, Greece and France) is a time consuming and intricate task. For this reason, a thorough analysis regarding the specifications and the requirements of the various components and the peripheral devices of the overall system is needed. This analysis leads to an elaborated design of the proposed system for the ISLANDS project, the description of which is extensively presented in the following lines. Primarily, the architecture of the ISLANDS system takes the following parameters into account: • The various current technical ways of establishing e-mental health and their requirements in relation to the existing equipment in the area of telemedicine in general. • Cost efficiency issues. • Liability. • Risk analysis. • Security issues and confidentiality for the safety of the users. Additionally, the ISLANDS system will be able to integrate different functional modules from different development using heterogeneous software and hardware solutions and it will allow each clinical site to configure the number of services they want to offer to their own users in dependence to the local Health Care Organisation. The ISLANDS system will support both home based and office/hospital based infrastructure for the delivery of the various services. The difference between these two infrastructures is that the hospital based technology supports one information channel, is handled mainly through videoconferencing, is used for diagnosis and therapy and does not demand the presence of family members or other informal carers of the patient. In this case the costs are paid by the provider. In the following picture the general concept of the hospital based e-mental health is presented: It is obvious from this figure that there is a psychiatric hospital (or a private clinic of a psychiatrist) in the Figure 1: Hospital based telepsychiatry 82 area and this clinic is directly connected through one communication channel to the general hospital, where not only the patient but also the general practitioner can be guided and consulted on how to handle a problem. This is an ideal solution for those who despite the fact that they are not close to a psychiatric clinic, they live near a general hospital and therefore the travel time and related issues are no hindrance. On the other hand, the home based technology supports many information channels, is used for education and information purposes and is handled through telephone and Internet. In this case the technology is usually paid by the user. The picture that follows illustrates the idea of the home based e-mental health. This picture conveys the idea that the psychiatric clinic or the psychiatrist connects directly to each one of the end users. This means that that the patient, for instance, does not have to travel to the nearest hospital in order to be treated, since he/she can be diagnosed and treated whilst in his/her home. In this case, the user overcomes the travel expenses and other relevant problems that moving to another place may mean. However, he/she must be able to cover the expenses for the purchase and the Amditis, Lentziou, Panou, Bullinger, Bekiaris Figure 2: Home based telepsychiatry Figure 3: The general architecture of the ISLAND system maintenance of the telecommunicating equipment. The ISLANDS system is liable to support both ways of telepsychiatry (home and hospital based). The basic concept is that the ISLANDS system will primarily consist of the ISLANDS Multi-Access Server (IMAS). This server will comprise a wide range of information technologies and will offer to the users the opportunity to have a universal, user friendly and cost-effective access to the ISLANDS services. The idea is that the IMAS will allow users to access the remote services whatever access terminal (namely phone device, PDA, PC, laptop or digital TV) they choose (or combination of them). In the following picture the aforementioned view is presented: As it is shown in this picture any user can have access to the IMAS regardless of whether he is using GPRS, telephone connection, ISDN lines, Internet connection or some 83 kind of videoconferencing system in order to gain the required information from the ISLANDS system. The require information will actually be stored in a database. Further information about this subject will be given to the following section. This means that, the integrated platform will embed several technical implementations to allow the access to the above mentioned range of services (namely screening, counseling and therapy) for patients, professionals and family members. The architecture will be flexible so as to be able to integrate different functional modules from different development using heterogeneous software and hardware solutions. The three different pilot sites namely the Eginition Hospital (Greece), the Servicio Canario De La Salud (Canary Islands-Spain) and the University Hospital Fort-de-France (MartiniqueFrance) have already a certain equipment at their disposal for handling some kind of communication with those patients who live in remote areas. Therefore, it is crucial that the ISLANDS system will be designed in a way that will allow the integration as well as the extension of the functions of the existing components in these three European areas. In this way, each pilot site will have the possibility to define the number of services that it will offer to its users (according to their needs that are strongly related to the location’s special characteristics) in dependence to the local Health Care Organisation. Therefore, the design of the architecture of the ISLANDS system was conceived so as to allow the interoperability of different modules that perform the functionality of the ISLANDS services in a distributed way, as thoroughly discussed earlier. The ISLANDS center will comprise the following components: • The Knowledge Management Organiser (KMO), which is responsible for handling and operating all the incoming and outcoming data. Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System • The ISLANDS agents. Some of the ISLANDS agents are in charge of communications with the different user terminals integrated within the ISLANDS centre (named communication server agents) and other agents are in charge of data analysis and processing (named Application Server Agents). The number of agents that will comprise the ISLANDS centre will depend on the kind and number of terminals that each one of the three pilot sites will already have at their disposal. • The ISLANDS database, which will have a user-friendly and modular interface and a multi-criteria search engine, to be useful to the whole range of potential users. The access rights will differ for each user group. Therefore, only medical doctors will have access to the reference cases, so as to prevent other users from making wrong assumptions for their own case. However, everyone will have access to the included lists of available treatment, tools and Centres of Excellence at worldwide scale. • The various user terminals. The following figure describes the functionality of the different agents and generally illustrates the operation of the ISLANDS system. In this picture two different ways of accessing the ISLANDS center are presented: • Using high computing power through ISDN or PTSN connection. In this case the user is connected via the web browser to the ISLANDS server by making an XML, HTTP, HTTPS request (URL). The server gives an HTTP response (HTML) to the user. • Using low computing power through wireless network such as GPRS, GSM connection etc. In this case the user sends a WSP request (URL) to the ISLANDS center, which is converted into an HTTP request (WML) by the WAP Gateway Proxy, in order to gain access to the ISLANDS server. The server provides the user with an HTTP response 84 Figure 4: Initial approach of the ISLANDS system architecture which is accordingly converted into a WSP response. In both cases the user can have access to the ISLANDS services and, thus, be consulted on-line from the project’s web portal. In this way the user will have the opportunity to find all the required information for screening, counselling and treating people with mental disorders, help their families to be able to support them and give the professionals the necessary tools to cope with a similar situation. Telepsychiatry and e-mental health in general can be accomplished using various technologies. A number of services can be delivered through a web portal (such as access to a database of case studies). However, the ISLANDS project aims at providing additional services as well to the end users. Among the most important and useful ones are those that can be handled through the common technologies, such as the telephone, the Internet, the Computer conferencing and the videoconferencing. Following more information about the aforementioned technologies are presented analytically [4]: Telephone This type of connection will be applied to services I,II, IV and V (as indicated in table 1) where the importance of the data transfer is low and the communication between the doctor and the patient or the informal carer can be held through speech. Additionally, the telephone has the advantage of being interactive and therefore can be extremely useful in cases of emergency such as a crisis incident. The telephone is a common, but underrated, communication technology. Despite the availability of a variety of sophisticated systems that can support telemedicine applications such as conference calls, voice mail, good quality global audio connections and other forms, the plain old telephone system is the first line of defense for handling clinical operations. Unfortunately, this kind of communication lacks in visual contact and the patient’s rehabilitation consultations often require visual feedback before an informed decision can be made. However, as already mentioned above the telephone can be essentially useful in crisis situations) [3]. Amditis, Lentziou, Panou, Bullinger, Bekiaris Regarding the technical characteristics the telephone provides optimal function in many cases. In other cases, noise in long-distance telephone lines can cause the system to frequently lose the connection. The telephone usually comprises the following features: • Supports home-based e-mental health. • Has a low cost regarding installation, equipment and maintenance issues. • The installation is usually paid by the user. program, transfer data files between sites and some kind of conversation namely chat [5, 14]. The number of functions available on a system depends on the computer hardware and software. Almost all desktop conferencing solutions can display still images, receive audio and live-video, provide a share work space, and allow you to type messages between sites. Let’s have a closer look at these conferencing features. Internet – Mail Desktop / Computer Conferencing Recent technological advancements in computer graphics, engineering, video production, and Internet communications can be used to provide visual feedback and multimedia clinical interactions. Computer systems that provide these features are often referred to as computer conferencing systems or desktop conferencing systems. Personal computer-based conferencing systems are the most cost effective way of sharing video and audio information between sites. Even the lowest cost, new, personal computers are capable of handling live video and sharing software applications. In fact, the main limitation for desktop conferencing is the telecommunication line capacity – not the capabilities of the computer system. Desktop computer conferencing systems should handle most of the tasks associated with a remote consultation; however, high-end video conferencing systems are currently required to display full-screen, television like, video. Most desktop conferencing products have the same basic function set; such as show live video from the other site, capture and display still images, annotate images on a shared work space, jointly use a computer This type of connection will be applied to services II and V where the importance of the data transfer is low and what is usually required is the exchange of text between the professional (doctor) and the patient or informal carer. Internet and specifically email can be used for the cases of screening a patient or helping in screening a patient’s condition. In no case, can this type of connection be used for diagnosing or therapy purposes. Emails do not interrupt research meetings or patient consultations. They do not need an immediate reaction as a phonecall does, even for extremely incidents that do not require direct and immediate treatment. Emails can cope with a prompt type of communication with no interruption at all. It is mainly for informatory purposes, such as notifying the doctor about the patient’s condition or requesting advice from a professional on how to proceed with a specific problem. Email content can be noted without having to reply immediately, something which is very useful in cases where thinking time, or communication with someone else before replying, is worthwhile. Additionally, putting together an email gives many more potentials for prioritising, both information and demands for input. Most email systems have the ability to send a report if there is a problem delivering 85 the message, and can be configured by sending a reply confirming that the message has been opened [6, 16]. When it comes to conferencing through Internet several issues are raised. One of the main factors that affect communication system performance is the type of connection that exists among the computers. A local call to an Internet provider can result in a more reliable connection since data lines for Internet traffic are often better than long-distance telephone lines. People with a faster Internet connection can take advantage of the better performance while still being able to connect to people with a slower communication link. An Internet connection also has the advantages of allowing multipoint conferencing (i.e. more than two people participating in the meeting) [7, 8]. Generally, the use of the Internet technology comprise the following features [9, 15]: • It is mostly store-and-forward. • It has usually low quality while transmitting videos. • It is easy to access and use. • It is mainly home-based. • The costs either for installing or for using it are medium. • The installation is usually paid by the user. Videoconference This type of connection will be applied to services III, VI, VII and IV where the importance of the data transfer is intermediate or high and there is a very urgent need for the exchange of text, speech and video. These cases aim mostly at helping the professional to handle a situation and include giving advice in screening/ diagnosing a patient, counseling and giving therapy/treatment according to the patient’s condition. There are mainly three types of videoconferencing [3]: Person to Person: This is the simplest form of conference where two Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System computers connect directly with each other using a specific conferencing software. All that one has to do is type in the IP address of the person or class he would like to connect with for a conference. Much the same way one would dial up a friend on the phone. Group Conference: This is where many people can participate and collaborate. To do this, each person or class has to connect to a site that is running a specific software. The connection is made by typing in the IP address of that software. The software receives everything that is transmitted by the group and then transmits it to the others in the group Broadcast: This is way of conferencing is much like television. One computer which is running a particular software transmits audio and video to all those who are connected. Generally, the use of the videoconferencing technology comprise the following characteristics: • It is singularly interactive, which means that the psychiatrist can have a direct contact with the patient and the person who is responsible for looking after him. • It allows both document and record sharing and thus can be used not only for cases where the visual contact is important but also for cases where the exchange of files (i.e. medical records) is crucial. • It can provide visual connection to the patient. • In many cases it results in poor quality of the picture on the screen due to different ways of transmition. • It is usually office/hospitalbased. • The cost for the purchase and the installation of the equipment is often rather high. • The installation is paid by the provider. where it is very difficult to reach otherwise, such as countries where telecommunications are unavailable or unreliable. The M4 service is optimized to work with the Integrated Services Digital Network (ISDN) available in many countries providing high-speed data connectivity at 64 kbps from the individual mobile satellite terminal linked through the ISDN to the final destination. Through an ISDN connection the inherent problems of analog circuitswitched data transmission are avoided and at the same time much higher data throughput is achieved. Surely, the possibility of analogue connection through the INMARSAT satellite still exists. In short, Inmarsat-M4 service extends a company's (or a hospital’s in our case) WAN (wide area network) via satellite to the world's most remote regions, allowing worldwide accessibility. In figure 5 the overall connection of a remote area with a psychiatric clinic (or the psychiatric department of a general hospital) through the INMARSAT satellite is analytically presented. This figure is taken as an example from Following, a description of the various components that are necessary to manage the communication takes place. The satellite is actually responsi- ble for connecting the Hospital with the remote area. The terabit network router (TNR), which intermediates between the hospital and the local server, achieves terabit-level aggregate routing capacity in a carrier-class system. It distributes the path of pakkets between large numbers of routing engines connected via a distributed, linearly scalable switch fabric. It can house 16 K processing nodes in 64 open racks arranged in four rows to achieve an aggregate routing capacity of 2.4 Tb/s. The local Lotus server has the capability to connect through ISDN or Internet or even through an analogue network to another Lotus server and retrieve information from it. The TT-3080A Messenger is a suitable for a portable high-speed data terminal, which enables fast worldwide communication. The 64 kbps bandwidth of the TT-3080A Messenger and the ISDN interface makes it possible to browse on the Internet, connect to the Local or Wide Area Network, transfer large files, transmit real time and store and forward video conferencing, send pictures and images and broadcast quality voice. This can be accomplished relatively easy by plug and play applications, which are easily connected to the Messenger. Satellite Infosat’s Inmarsat M4 service extends the functionality to places 86 Figure 5: Overall connection through the INMARSAT satellite Amditis, Lentziou, Panou, Bullinger, Bekiaris A portable station is needed in order to manage the communication with the remote hospital. This station has to fulfill some requirements such as to be a lightweight and easy-to-carry terminal and to give the users the opportunity to get high-speed data services and PSTN (public switched telephone network) quality voice connectivity. Concerns and obstacles: Issues to be taken into account There are multiple and various constraints and obstacles related to the introduction of e-mental health into the remote areas of Europe, which have to be taken into consideration while setting up an e-mental health support system [10]. While the introduction of e-health is not recent, since its implementation has started many years ago, e-mental health is still in an early stage of its evolution. This means that there are various restrictions and practical problems that arise from the establishment of emental health sessions. Namely, there are constraints related to the installation of the relevant equipment, the cost-effectiveness, the reliability of the system while transmitting the data, the e-mental health acceptance not only by the average people but also by the professionals, the need for telepsychiatry in the specific pilot sites along with the assessment of the potentials and advantages that come from its use and the different needs that the different target groups have. Above all however, the national and international legal, ethical and organizational framework should be ensured. All the aforementioned ideas will be thoroughly explained in the following lines. As resulted from the aforementioned topics, the existing equipment in terms not only of hardware, but also of software, predefines the structure and the design of a telepsychiatry system. Therefore, it is extremely important to conduct a survey on the state of the art on the relevant technology, before building the architecture of telepsychiatry system. The problems that are raised and that have to be discussed and solved, to an extend, before designing the system architecture are delays in the transaction of data due to the bad networking connections and generally inefficiencies in the functionality of the telecommunication systems, inadequate existing applications in the telemedicine area that could be used as term of reference, lack of existing relevant telecommunication infrastructure and user friendly interfaces and nihility of tele-support systems flexible enough to cover the various needs and features of the different end users. Additionally, there are issues related to the installation of the telematic equipment that have to be taken into account. Setting up and installing a system like this in remote areas and specifically in unapproachable islands is a complicated and at the same time challenging subject, which however provokes a number of problems. Most of the pilot sites within the ISLANDS project are areas that can only be accessed by boat, which makes the installation of the relevant system even more demanding and rough. What is more, the various geographical scenarios and characteristics of the different areas pose a lot of problems that have to be thoroughly examined before purchasing the different components and constructing the telepsychiatry system. Moreover, there are cost related issues that have to be taken into consideration [11]. An appealing and attractive system has to be cost effective, which mainly means that it will provide the users with services that in comparison to face-to-face psychiatry will be economically preferable. As already examined and experienced by one of the ISLANDS pilot sites (i.e. the French Pilot in Martinique), the cost of a tele-consultation by INMARSAT M4 satellite today is 78 87 € (53 € for only communication costs). The relevant cost through ISDN or PTSN connection is much lower, depending on the national price list. In Greece the relevant cost is approximately 0.50 euros/minute for distant phone calls (without including a monthly fee of 5 euros). For wireless telephony (e.g. PDAs, cellular phones etc) this price is 0.10 euros/minute (without including a monthly fee of 7.50 euros) on average. Of course, in the aforementioned cases one has to add the expenses for the purchase of the equipment, its installation and its maintenance. For videoconferencing systems these expenses are extremely high and cannot be paid by the patient. However, even in this case the expenses are outbalanced from the face-to-face sessions between the psychiatry and people who leave in remote places, since then travel expenses are high enough and must also be encountered. What still has to be examined is who will have to pay for the equipment i.e. the patients and their families or the hospital and the Health Ministry and the related public sectors? Regarding the Human related issues that were previously mentioned, statistically, patients appear willing to accept e-psychiatry, after having used a telepsychiatry or relevant system [12]. However, the professionals (in our case the psychologists/psychiatrists or the general practitioners) are reluctant to accept the introduction of the concept of e-mental health. Their concerns focus mainly on the ethical issues having to do with the medical data security and confidentiality and the fact of receiving hardly any compensation for the effort they devote to their work through the tele-appointments. Surely, a significant part of their resistance to the e-mental health applications occurs due to their inability to confront with the new rules and generally to their inflexibility to comply with the technological evolution, which in many cases corresponds to time con- Services and Architecture for the ISLANDS System: Towards a Modular Non-Conventional Telepsychiatry System suming training lessons [10, 13]. Thus, a telepsychiatry system should be designed in a way to attract mostly the professionals’ interest more than alluring the patients or their carers. Finally, the ethical, legal and organisational framework that was mentioned in the first paragraph of this section involves issues related to the security and the confidentiality of the medical records and data in general, the policy and the strategy that will be followed and that in many telehealth applications it is not well defined, the insurance conditions towards the safeguarding of the patients rights in case that the telesessions do not result in the desired outcome, the legal consolidation of the professionals that will be using the telepsychiatry systems and finally issues that deal with the financial matters, such as the high cost of the relevant equipment. tions have been given regarding the various ways of establishing e-mental health. Finally, an extensive reference has been given to the different kind of technology, namely the Internet, the telephone, the videoconference and the computer conference. In the short-term future the work will be centered on examining the various users’ needs and characteristics within the different pilot sites and defining the different key actors’ role towards the design of a modular and flexible telepsychiatry support system. A risk analysis study and an analysis of the security-related issues will also take place towards the development of the system. Finally, the communication services definition and requirements, the access services specifications and the geographical scenarios will be thoroughly analysed and described. [8] [9] [10] [11] [12] [13] [14] References [15] [1] [16] Conclusions The establishment of psychiatry sessions through the use of electronic means, such as e-mail, Internet, telephone, videoconference and other technologies is a complicated task, since it raises many questions regarding its feasibility and faces many problems that have mainly to do with the users’ needs and acceptance and several technological constraints and barriers. Issues related to legal and ethical matters come also in light. It is very crucial that all the aforementioned parameters be well studied and defined before building the architecture of the ISLANDS system. The discussion was focused on giving information about the services that will be delivered to the end users through the ISLANDS project and providing details concerning the description of the architecture of the ISLANDS system. The state of the art of the telemedicine applications was analytically presented and many solu- [2] [3] [4] [5] [6] [7] Using Communication Technology to Enhance Rehabilitation Services, A Solution Oriented Manual, Edward Lemaire, PhD Institute for Rehabilitation Research and Development, Terry Fox Mobile Clinic, The Rehabilitation Centre, Ottawa, Ontario, Canada State-of-the-Art Telemedicine/Telehealth: An International Perspective, RASHID L. BASHSHUR, Ph.D., SALAH H. MANDIL, Ph.D. and GARY W. SHANNON, Ph.D. Wittson, Cecil L, and Benschotter, RA: Two-way television: Helping the medical center reach out. Am J Psychiatry 1972;129:136–139. Yellowlees P. The use of telemedicine to perform psychiatric assessments under the Mental Health Act. J Telemed Telecare 1997;3:224–226. Dongier M, Tempier R, LalinecMichaud M, et al. Telepsychiatry: Psychiatric consultation through two-way television: a controlled study. Can J Psych 1986;31:32–34. Houston MS, Myers JD, Levens SP, McEvoy T, Smith SA, Khandheria BK, Shen WK, Torchia ME, Berry DJ. Clinical consultations using store-and-forward telemedicine technology. Mayo Clin Proc 1999;74: 764–769. Grigsby B, Brown N. Report on US telemedicine activity. Am Telemedicine Service Provider 1999. 88 Kennedy C, Yellowlees P. A community based approach to evaluation of health outcomes and costs for telepsychiatry in a rural population: preliminary results. J Telemed Telecare 2000;6:S1:155–157. Evolution Of Telehealth To Ehealth And Onto The Internet Why It Must Happen! Linda Weaver, P.Eng., M.B.A, F.E.I.C, C.C.E Chief Technical Officer, TecKnowledge Healthcare Systems, Inc. Deliverable 1.2: “Treatment scenarios and preliminary specifications” of the ISLANDS project, A. Bullinger, K. Estoppey, M. Kottlow, C. De las Cuevas Castresana, U. Meise, H. Sulzenbacher, P. Doubek, A. Kott, A. Charles Nicolas, M. Michalon, N. Ballon. Trott P, Blignault I. Cost evaluation of a telepsychiatry service in northern Queensland. J Telemed Telecare 1998; 4: 66–8. Zarate CA Jr., Weinstock L, Cukor P, Morabito C, Leahy L, Burns C, Baer L. Applicability of telemedicine for assessing patients with schizophrenia: Acceptance and reliability. J Clin Psychiatry 1997;58: 22–25 Mielonen ML, Ohinmaa A, Moring J, Isohanni M. The use of videoconferencing for telepsychiatry in Finland. J Telemed Telecare 1998;4:125–131. http://www.rcpsych.ac.uk/college/ sig/comp/docs/connectJune02.pdf http://www.rcpsych.ac.uk/college/ sig/comp/docs/connectMay03.pdf http://www.coh.uq.edu.au/coh/ resources/reports/Email%20Guidelines.pdf Dr. Angelos Amditis Institute of Cummunication and Computer Systems Irron Polytechniou 9, Str. 15773, Athens Greece e-mail: angelos@esd.ece.ntua.gr Neuropsychiatrie, Volume 18, S 2, 2004, page 89-92 Original Towards the Development of Tools for Remote Interventions Maria Panou1, Evangelos Bekiaris2 and Angelos Amditis3 TransEuropean Consulting Unit of Thessaloniki, Thessaloniki 1 Center of Research and Technology Hellas, Hellenic Institute of Transport, Thessaloniki 2 Institute of Communication and Computer Systems, Athens 3 Key words expert tool, database, case studies, PC tests, interventions. Towards the Development of Tools for Remote Interventions In this paper the need for computer-based tools to support web and teleconference-based interventions is presented, followed by the short specification of three such tools, namely PC-based assessment and training tests, a case studies database and a knowledge-based expert tool. These tools are appropriate for professional assistance of patients with light degree psychiatric disorders (anxiety, depression, etc.). Specifically for the database, the content, search criteria, data collection forms and fields are explained. Also, the concept and procedure to develop the knowledgebased tool is analysed. Finally, the paper presents in a schematic diagram format the interrelated use of these tools, for the operation of the remote intervention, including diagnosis, counseling and therapy. Introduction Studies have shown feasibility of telehealth for mental health in general. Specifically, a research in Maniwaki, Canada aimed to compare the effectiveness of a validated treatment delivered through videoconference and in face to face. Results revealed that telepsychotherapy seems as effective as face to face for panic disorder with agoraphobia and for cognitive-behaviour therapy. Also, it is possible to build an excellent therapeutic alliance in videoconference [1]. tools, case studies database and expert tool. Tools for remote interventions Therefore, tools to support telepsychotherapy are needed, such as the computerized ones developed within ISLANDS project and described. The users of the tools are divided in two groups: - Informal Assistant or Patient (IAP); - Professional Assistant (PA). Islands project As informal assistants, members of the family of the patient may be considered, while professional assistants are the psychologists or other experts. Some regions in the European Union are behind the average socioeconomic development of Europe. They are in remote areas, where with a lack of access to modern health care facilities, especially psychiatric and cognitive-behavioural therapies are lacking. Furthermore, epidemiological data suggest that anxiety disorders, depression, drug addiction and psychosomatic disorders often occur in any population. ISLANDS is a EU co-funded project, encompassing 12 partners form 12 European countries, including experts in expert tools development, remote clinics, and communication media providers. The project aims to cover the gap of healthcare in the area of psychiatry in remote areas, through the development of remote services in diagnosis, counselling and treatment of relevant disorders. One of its main objectives and innovations is the development of computerised tools, i.e. assessment and training As it is expected, different user types will not have access to the same tools, in order not to allow patients or their family members make wrong transfers and extrapolations to their own case. Below follows the description and architecture of assessment and training tools, the database of case studies and the expert tool being developed within ISLANDS. Computer assessment and training tools A set of computer assessment and training tests will be designed, to deliver the web-based interventions and evaluate their progress. The overall design principle will be the integration of specific interactive and situational information with standardised and validated assessment tools, leading to specific pathways of hand- Towards the Development of Tools for Remote Interventions 90 ling the respective situation, delivering the appropriate sessions and in general managing the service. The specific psychological test modules of these PC-based tools will, in terms of content, mirror the standardised paper and pencil tools and will deliver the service content established within ISLANDS. Also, PC-based tests for the assessment of burden, workload, anxiety/ stress as well as emotional feelings of the patient or his/her relatives and their support, will be realised. The content of these tests will be the following: - Problem type screening. - Remote diagnosis service content. - Remote counseling service content. - Remote therapy service content. - Integrated remote intervention content. - Tests for assessment of burden, workload, anxiety/stress and emotional feelings. Furthermore, the ISLANDS web portal has been developed with a user-friendly interface (also appropriate for people without good PC knowledge and expertise) and navigation tools. Currently, the development work is focused on the inclusion of different UI’s to support different levels of services and categories of users (i.e. different patient types, family members, local doctors). Both password and security software and public domain areas and chat forums are foreseen. Finally, an automatic system will be developed, to analyse the user’s answers, calculate their scores, compare them with the inclusion cut-off scores and inform the participants if they are accepted. This will continue to monitor their progress and will report it to their carers. Figure 1: ISLANDS services diagram. Figure 2: Start page of the database. - Case studies database It is about an on-line database, accessible via the project web site. This database is under development, encompassing a userfriendly and modular interface and a multi-criteria search engine, to be useful to the PA. A search engine software is included, allowing the user to search the database by selecting a specific keyword from a predefined list. - The database includes: Description of existing and new assessment/training interventions. - Description of tools to deliver those interventions (especially the ones to be developed within ISLANDS) and a short Manual for them. Use cases. Centres of Excellence. The role of the database in the complete services concept of ISLANDS is depicted in the following scheme (in the diagram, it is also clear how the expert system is involved – see next section) (Figure 1). Thus, the Personal Assistant will have to login (emphasis is given to the security of the system) and if accepted by the system, he/she will be Panou, Bekiaris, Amditis 91 and pencil, PC-based database of test cases) and treatment assessment indicators, that he/she may not be able to coordinate and use optimally. Thus, the existing knowledge, as well as the one accumulated during project pilots by patients experts, will be formulated in a set of knowledge-based rules and later in software program, in order to be and included in an expert system, that will support and guide the carer. Figure 3: Centres of excellence ‘results’ user interface. The reason that an expert tool is useful, especially in the area of medicine, is that it can support the local and maybe nonspecialised psychologist and can compose the knowledge and experience of more than one experts, offering better reliability [3]. Furthermore, such a system can provide the explanation for its decision, offering to the user an understanding and resolving possible questions. The expert system will be constituted by a team of programs that can be separated in three categories: • the core, • the interconnection and, • a set of support programs. Figure 4: Graphical presentation of the structure of the ISLANDS expert system. able to access the following areas: - expert tool; - database of patients and PA data; - discussion forum for PA only; - discussion forum for IAP; diagnosis; counselling; therapy; case studies. The introductory user interface of the database is shown below (Figure 2): After selecting one of the four possible fields, the user has access to the ‘search’ page of the selected field, or he/she can view all entries in this field. Then, the ‘result’ page appears with available information. The following figure shows the result page for the field ‘Centres of Excellence’ (Figure 3). At the end of the project, the data base will be available in three languages (English, French and German). Knowledge-based expert tool One of the major project risks is to offer to the expert an abundance of communication media (i.e. voice and face-to-face contact) tools (i.e. paper The structure of the ISLANDS expert tool is shown in the diagram of Figure 4 [2]. The core of the Expert System constitutes of the knowledge base and the inference engine. The knowledge base stores facts (data, information) and rules regarding the knowledge’s field of a specific particular disorder that it will help in the proposition of a specific treatment and use of certain tool(s). The inference engine deals with the solution of the problem and constitutes of various subsystems. This engine is in charge of the management and the knowledge control that is found stored both in the knowledge base and in the working memory of the program, aiming at the configuration of conclusions. Its main parts are the interpreter and the scheduler. The interpreter deals with Towards the Development of Tools for Remote Interventions the implementation of selected actions applying in the knowledge base corresponding rules, aiming at the production of knowledge. The scheduler is the sub program in charge of deciding the strategy for the control of the system. It deals with the observation of the order of implementation of ac-tions and calculates the results of the application rules, based on determined priorities given or other criteria (a list that contains their rules to be executed). The interconnection with the user implements the communi-cation between the user and the system. The data is imported to the system based on questions and answers from the system to the user, i.e. questions about the symptoms of the patient and the result of specific tools that the patients have been examined with, as paper&pencil tests, PC-based tests, etc. Also, information may be acquired through specific databases of patients data and progress status. All these are called the ‘Support tools’. The communication is implemented through the use of a friendly graphical user interfaces. The successive stages of the development of the ISLANDS ex-pert system is given below [4]: 1. Analysis and determination of the main parameters of the problem. 2. Knowledge Acquisition. - Knowledge Elicitation. - Knowledge of Analysis. 3. System Design. 4. Implementation. - Prototype development (knowledge verification from the specialist). - Debugging. 5. System final validation. - Validation by the developer. - Users Evaluation (during the project pilots). 6. Final system optimisation. For the expert tool to be developed , a list of actions has to be realised in advance, namely: - definition of the intervention success criteria and subcriteria (per intervention phase); - definition of the intervention phases for each service; - definition of thresholds for the above criteria; - specification of measurements of those criteria; - correlation of each intervention with relevant reference case from the case studies database; - correlation of this intervention with any other relevant one (i.e. check if also the relatives of the patient or his/her local doctor are using the relevant services of ISLANDS and synchronisation / correlation of those services and their out-comes); - application of best practice and knowledge-based rules for the intervention, from a group of selected experts of the Partners. 92 design of the tools may be indicated and appropriate modifications will be realised for their optimisation. References [1] [2] [3] [4] ISLANDS 1st International workshop, Stephan Bouchard presentation, Prague, September 2003. John Durkin, “Expert Systems Design and Develop-ment”, Prentice Hall International, inc 1994, USA. Vasiliki Dimitroula, “Expert system for the diagnosis of eye diseases”, Master dissertation, December 2000, Thessaloniki, Greece. Donald A. Waterman, “A Guide to Expert Systems”, 1986. Dr. Evangelos Bekiaris Posidonos 17, 17455 Athens, Greece E-Mail: abek@certh.gr The above expert tool will be firstly developed, based upon the current level of knowledge and then it will evolve with the project. Of course it is not aimed to substitute the carer or even totally guide each type of service, but only to assist the carer in managing the service progress and monitor key service assessment parameters and milestones. Conclusions All the tools described above will be validated in three countries, namely France, Greece and Spain, with 70 patients, 35 family members and 7 local doctors in each one and an equal number of persons to act as the control group. The selected users will suffering from the following disorders: - psychotic disorders, - agoraphobia and other phobias, - depression, and - alcohol abuse. Based on the results, some problematic areas on the functionality or the Neuropsychiatrie, Volume 18, S 2, 2004, page 93-99 Original The ISLANDS Treatment Scenarios and Service Batches Alex H. Bullinger1, Thomas Senn1, Evangelos Bekiaris2, Ullrich Meise3, Ralph Mager1, Franz Müller-Spahn1 and Hubert Sulzenbacher3 1 Center of Applied Technologies in Mental Health, Dept. of Psychiatry, University Basel 2 Center for Research and Technology Hellas, Hellenic Institute of Transport, Thessaloniki 3 Center for Online Mental Health, Dept. of Psychiatry, Medical University Innsbruck Key words Introduction eMentalHealth, eHealth, telepsychiatry, telemedicine The ISLANDS Treatment Scenarios and Service Batches Traditional eHealth applications followed the classic top-down approach: from medical authority to the patient. With the Internet coming into the equation, patients gained immediate access to global medical databases and information sources. Consequently, patients are taking more interest in and more responsibility for their health-related decisions while relying less upon individual medical professionals. Also mental health patients are increasingly presenting themselves for diagnostic advice or even treatment, sometimes literally armed with information they found in web-based sources. Furthermore, patients as well as their significant others are also helping themselves and each other, with or without the involvement of professionals. The ISLANDS project is directly aimed at providing relevant tests and tools for these mental health patients, together with experts’ knowledge, diagnostical and supervisional expertise for professionals working with these patients. As patients do change, so will professionals have to change further. They will need to become more specialized and learn to accommodate their newly empowered patients, rather than expecting to be the unquestioned expert. The ISLANDS project forms a part of the field of eMentalHealth, which itself is embedded in the rather wide field of eHealth. The technical term “eHealth” refers to all forms of electronic healthcare delivered over the internet (e-mail, chat room and interactive websites), through the telephone, by television and videoconferencing, fax and message boards, ranging from informational, educational and commercial products to direct services offered by professionals, non-professionals, business or consumers themselves. With telemetry even the monitoring of physiological functions (blood pressure, respiration, and body temperature) has become possible. Telemedical transfer of images (teleradiology, telepathology, teledermatology) has as a purpose for medical data interpretation and diagnosis. Furthermore, the development of new technologies within the last years led to some new fields of application as, for example, medical education [1]. A central focus of eHealth is the development of low-cost and convenient supportive communities that focus on a wide range of issues [2]. People can anonymously join a sizeable online community to share personal information to a depth that is unprecedented in the face-to-face world. Some websites provide virtual communities, chat rooms for personal issues and discussion hours with professionals. Behavioural and lifestyle recommendations are available from a number of public websites such as http://www.realage.com. While the “first generation” of eHealth applications primarily offered information and support, at present increased access to practitioners and direct service delivery is offered [3, 4, 5]. Internet-based technologies are now converging with satellite and cable television for full interactive broadcast capabilities delivered through one, seamless technology. Professionals and patients are able to interact over the Internet in a secured environment. With continued improvement in security and quality of healthcare websites, consumers and practitioners were able to increasingly rely upon eHealth to provide accurate clinical data and support. EMentalHealth is not only one of the main applications of eHealth [6], but moreover, one of its most successful applications [7, 8]. It mostly consists of diagnosis, screening, counselling, consultation, education and therapy through telephone, videoconferencing and internet-based eMentalHealth. Specialized groups offer support for almost every type of mental disorder (e.g. trichotillomania) or life circumstance (such as divorce), as well as support for friends and family [9]. Behavioural healthcare practitioners are already using computers to take histories, fine-tune diagnoses, monitor progress, and maintain therapeutic contact through email. The The ISLANDS Treatment Scenarios and Service Batches Internet is used as a virtual office to provide interactive consultations [10]. EHealth is including more and more interactive services and the virtual office will become an integral part of psychiatric practice. The aim of the ISLANDS project, concerning eMentalHealth, is to create and distribute services that add value to the field of eHealth, especially the delivery of resources that support the development and management of psychiatric services for remote locations and the various user communities of users targeted by the project. These services are foreseen to provide modular, non-conventional, remote psychiatric and psychotherapeutic assistance for remote areas. By these means quality of life of the users, quality of mental health care and the economic strength of the region should improve and overweight the costs of implementation and service support by far. The project will reduce inequalities in mental health services and status among European regions. Description of the ISLANDS service batches The treatment scenarios consist in the specification of nine categories which will address the needs of possible users in the psychiatric and/or psychotherapeutic field (see next table): According to different mental health problems (phobia, depression, alcohol-related disorders and psychotic disturbances) each category will comprise modules to help users suffering from or concerned with this problem. Within this paper the numbering of Table 1 will be followed to facilitate for the reader orientation and oversight within the various service batches (Figure 1 shows). The general scheme of the treatment modules foreseen for the ISLANDS project. 94 User Diagnosis Counselling Therapy Patients Service No. I Service No. II Service No. III Informal carers / Service No. IV Service No. V Service No. VI family Seeking… Information on… Information on… Information on… Professionals Seeking…. Service No. VII Expert opinion on… Service No. VIII Supervision on… Service No. IX Expert opinion and/or supervision on…. Table 1: Mapping of ISLANDS user groups and service levels Figure1: General Scheme of ISLANDS Treatment Modules Login, access and use rights To give a thorough description of this scheme, we will start with the box on the left upper corner: As soon as an unknown user tries to log into the ISLANDS system, an automated screening process will start. This screening will be unspecific and serve as an identifying process with respect to the unknown user. Next to all personal unique identifiers (name, date of birth, residence, etc.) clarification will be sought to the essential question, whether the unknown user seeks access to the system as patient, as informal carer or as professional. As eMentalHealth applications hold most sensitive data, the information given by an unknown user will have to be validated by the administration of the ISLANDS services system prior to the assignment of specific access rights to the then known user. These specific access rights will always be restrictive in part, as for example a patient has no business of scanning the information given in the supervision submodule of the ISLANDS services and vice versa. As soon as a known user identifies her-/himself via a pre-assigned login procedure, this user will undergo specific screening in case of first login into the system or in case progression tests are due. Afterwards the user will be re-directed to the respective submodule (therapy, counselling or supervision). Bullinger, Senn, Bekiaris, Meise, Mager, Müller-Spahn, Sulzenbacher In a sense the user forum is an exception to this re-direction process, as this will be an exchange forum mainly for the users themselves. In this forum different user groups might meet each other. In order to prevent spreading of unwanted knowledge (for example information on deadly eatable substances exchanged between highly depressed and potentially suicidal users) as well as guarantee adherence to netiquette this forum will be moderated via the ISLANDS expert pool. The ISLANDS Experts Pool will feed in knowledge into the therapy module, the counselling module and the supervision module. The Experts Pool will also moderate the user forum, as mentioned above. In addition to that, the ISLANDS experts will have the right to interact directly with the ISLANDS database on two different levels: • Write data on themselves (fields of expertise, etc.) and users they take care of • Read data stored in the database - In clear text (open) data related to users they take care of - Anonymised data related to all other users Description of Service Batches The numbering of the service batches follows the numbers given in table 1. A variety of these service batches in terms of content deals with specific information and psychoeducational materials rather than with direct and specific advice for the respective user. Within the ISLANDS project these information-based service batches will be pooled into an Information Library: All materials dealing with mental-health – related information as well as with psychoeducational material in a more narrow sense goes into this library. If a user of the ISLANDS services requires access to service batches IV to VI (services for informal carers and/or family members) she or he will be directed to this Information Library where the desired information can be looked up via decision trees as well as via search options comparable to those known from web-based search engines. In addition to that pre-categorized links to further information on the respective subject in question will be offered. Another subset of service batches (concerning the batches VII to IX, services of professionals) can be set aside separately insofar as these services have to be real-time and require a individual counterpart at the respective ISLANDS center of excellence. A professional seeking help with diagnostic or therapeutic problems, requiring supervision in a therapeutical or counselling setting can not be pointed to a referenced article or a mere database entry. These service batches therefore have to be capable of multimedia streams over the internet (audio and video). The service batches I to III, dealing with patients directly, have to be described individually: Service batch I: Diagnosis for patients For diagnostic purposes disorderspecific as well as disorder-unspecific screening and testing instruments are needed. Disorder-specific screening instruments Basically most disorder-specific self-report screening instruments show similar strengths and weaknesses: They are usable for both screening and outcome measurement; they show an overemphasis on so-called core symptoms of the respective disorder while underweighting the more atypical symptoms of the respective condition. 95 As disorder-specific self-report screening measure for depression we recommend the BDI, alternatively also the CES-D or the Zung SDS could be used. We suggest using the AUDIT as disorder-specific screening instrument for alcohol-related disorders, which can be used as a clinicianadministered or a self-report test; if the test is clinician-administered, an optional clinical screening procedure containing a physical examination, a blood test, and two questions about traumatic injury can be added. The AUDIT is able to identify harmful or hazardous alcohol consumption, is highly correlated with other selfreports of alcohol problems, such as the MAST, and also significantly correlated with biological indices. An AUDIT cut-off of 11 or higher (recommended by WHO) yielded sensitivity and specificity scores for a DSM-III alcohol-related disorder assessed by the DIS of 0.84 and 0.71, respectively; a cut-off of 13 or higher yielded a sensitivity and specificity of 0.70 and 0.78, respectively, which may be better for screening purposes. We recommend using the BAI as a reliable and well-validated measure of somatic anxiety symptoms found across the anxiety disorders and also in depression. It is a short, self-administered scale and is simply scored. The BAI is well suited for monitoring change with treatment. Because it is easy to administer and because data on non-clinical individuals are available, the BAI may be a useful screening tool for unselected individuals in a general medical setting. Its simplicity also supports its potential as an administrative tool for documenting the performance of health care delivery systems in treating anxiety. – However, it is important to note that the BAI does not assess worry, a key symptom of generalized anxiety disorder, nor does it focus on other DSM-IV symptoms of generalized anxiety disorder, such as difficulty with concentrating, irritability, or sleep disturbance. Therefore, it can- The ISLANDS Treatment Scenarios and Service Batches not be considered a specific measure for generalized anxiety. It does not discriminate well among anxiety disorders or distinguish anxiety disorders from anxious depression. No disorder-specific self-report screening instrument for psychotic disturbances is available. As a clinician-rated tool the BPRS is frequently used, a scale which was initially designed to measure symptom change in patients with psychotic illness. Thus, the items on the BPRS focus on symptoms that are common in patients with psychotic disorders, including schizophrenia and other psychotic disorders, as well as those found in patients with severe mood disorders, especially those with psychotic features. The BPRS is designed to be administered by experienced clinicians on the basis of information obtained during a clinical interview and from patient observation. The BPRS has been successfully used to evaluate both inpatients and outpatients. The BPRS contains several general items (e.g., anxiety, tension) and some relatively schizophrenia-specific items (e.g., hallucinatory behaviours, mannerism and posturing). Disorder-unspecific screening instruments We suggest using the BSI as well as the PRIME-MD as non-disorderspecific screening instruments for all disturbances taken care of in the ISLANDS project. The BSI is a short version of the SCL-90-R, contains 53 self-report questions, and is able to measure depression as well as anxiety disorders and schizophrenia (by means of the subscales "Paranoid ideation" and "Psychoticism"). The only ISLANDS-specific disorder which the BSI cannot measure is alcohol abuse. As an administered non-disorderspecific screening instrument we recommend the PRIME-MD. PRIME-MD has two components: the one-page Patient Questionnaire (PQ), which is completed by the patient before he or she sees the physician, and the nine-page Clinician Evaluation Guide (CEG), which is a structured interview that the physician uses to follow up on items checked positive on the PQ. The PQ is an initial symptom screen for the mental disorders covered by the CEG. It consists of 25 yes/no questions about signs and symptoms experienced by the patient in the past month, plus an item referring to the patient’s overall health. Fifteen items cover the majority of somatic complaints seen in primary care; one item refers to abnormal eating behaviour, two to symptoms of depression, three to anxiety symptoms, and four to problems with alcohol-related disorder. The PRIME-MD is able to measure following ISLANDS-related disorders: depression (major depressive disorder, partial remission of major depressive disorder, dysthymic disorder, probable minor depressive disorder), anxiety (panic disorder, generalized anxiety disorder), and probable alcohol abuse or dependence. Finally, three rule-out (R/O) diagnoses are included: R/O bipolar disorder; R/O depressive disorder due to general medical condition, medication, or other drug; and R/O anxiety disorder due to general medical condition, medication, or other drug. The final diagnoses are checked off on a diagnostic summary sheet. During ongoing therapy outcome measures should be used to quantify changes of the severity of symptoms and the treatment effects. We think that the interval between the single measurements should be approximately 3 months, respectively. Consequently a person who will take part in our project over 3 months should be tested two times, and a person who will take part over a year should be tested five times. Similar to the diagnostical tools also in outcome measurement a distinction can be made between disorder-specific tools and the unspecific ones. 96 Disorder-specific outcome measurement We propose to use the BDI not only as a screening instrument, but also as a disorder-specific self-report outcome measure for depressive disorders. Our proposal as a disorder-specific alcohol outcome measure is the RTCQ. This self-report test is easy to handle and does not require much time. It can show a change in a person's perception of alcohol consumption. As an alternative or complement the TLFB could be used. However, the TLFB has to be clinically administered and requires more time. An advantage of the TLFB is its therapeutical component, as it increases the alcohol-related disorder’s awareness of her or his pattern of alcohol consumption as well as of the amount of consumed alcohol. As self-report tool for anxiety measurement we recommend the BAI. This scale allows us to measure the intensity of anxiety symptoms the patient is suffering from. Generally, anxiety can be stratified in three levels. A grand sum between 0 – 21 indicates very low anxiety. A grand sum between 22 – 35 indicates moderate anxiety and a grand sum that exceeds 36 indicates high anxiety. As the BPRS was initially designed to measure symptom change in patients with psychotic illness, we recommend its use also for measuring outcome. Disorder-unspecific outcome measurement We recommend using the GAS and, alternatively or complementarily, the CGI as clinician-administered non-disorder-specific outcome measures for all patients. A global assessment of the patient's situation is possible by using a Quality-of-Life measurement. We propose the use of the QOLI for all patients. Bullinger, Senn, Bekiaris, Meise, Mager, Müller-Spahn, Sulzenbacher Service batch II: Counselling for patients Counselling is a process that enables a person to sort out issues and reach decisions affecting their individual life. It involves talking with a person in a way that helps that person solve a problem or helps to create conditions that will cause the person to understand and/or improve his behaviour, character, values or life circumstances. It is important to understand that counselling is not about giving directional advice. It is about helping and supporting a person to find an understanding and answers that work for that person. As there is a tendency to mix up counselling with psychotherapy, the following clarifications are needed: • Psychotherapy and counselling are professional activities that utilise an interpersonal relationship to enable people to develop understanding about them and to make changes in their lives. • Professional psychotherapists and counsellors work within a clearly contracted, principled relationship that enables individuals to obtain assistance in exploring and resolving issues of an interpersonal, intrapsychic, or personal nature. So although psychotherapy and counselling overlap considerably there are also some differences. The work with clients may be of considerable depth in both modalities; however, the focus of counselling is more likely to be on specific problems or changes in life adjustment. Psychotherapy is more concerned with the restructuring of the personality or self. Furthermore: Both, psychotherapists and counsellors, work with a wide variety of clients. Psychotherapists are more likely to work very intensively, with more deeply disturbed individuals who are seen more frequently over a longer period of time. Counsellors are more likely to work in specific areas where specialised knowledge and methods are nee- ded (e.g. marital and family counselling, bereavement counselling, school counselling, addictions counselling, HIV/AIDS counselling, etc.). At advanced levels of training, counselling has a greater overlap with Psychotherapy than at base levels. Service batch III: Therapy for patients In this context therapy for patients means self-help approaches. Therapeutic approaches with a professional therapist available, the latter seeking advice or supervision concerning the therapy, are described in Services VII to XI. 97 offered during the ISLANDS project is not decided so far and needs to be answered in D2.2 (ISLANDS service delivery content). There are several manualised therapeutic approaches on the market that can be easily transformed into net-based applications. Guided therapy for psychotic disturbances The ISLANDS consortium will not offer a guided – therapy module for these disturbances. Due to the specifications of the illness itself, this seems to be not only prone to secure failure but also unethical. Guided therapy for depression Limitations and specific risks One has to be cautious with guided therapy and other self-help approaches to depressive symptoms due to the comparably high risk of self-harming or even suicidal behaviour in these patients. Furthermore, efficacy of internet-based self-helped programs without supervision by a local Medicare professional is questionable, to say the least, with major depression. There seems to be a favourable effect with mild to moderate depressive syndromes. Although eHealth applications as a whole have proliferated in the recent years, their diffusion and distribution has often remained quite low11, especially in the Mental Health area. The actual use of eMentalHealth has in many cases been far less than what was anticipated. This led to the discussion of main constraints or barriers, which could contribute to problems of implementation and usage of eMentalHealth systems and services. Guided therapy for alcohol-related disorders There is a variety of internet – based self-help programs for alcoholrelated disorders [Toll et al., 2003, Lieberman, 2003]. One of them will be adopted for the ISLANDS program. Guided therapy for anxiety disorders Similar to alcohol-related disorders, the question which self-help program for anxiety disorders will be While patients appear willing to accept eMentalHealth after they have had some experience with it, (potential) service providers show considerably more reservations. The reasons for professional wariness are quite complex and range from • ethical concerns about network security and privacy or the possibility of harming patients with treatment model/tools so far unknown • technophobia and lack of training and familiarity with computer aided systems • problems with time schedules and convenience The ISLANDS Treatment Scenarios and Service Batches • problems with reimbursement for online work to challenges to fundamental views on professional roles within the Mental Health field. Because the challenges for eMentalHealth are of human rather than technological variety the main focus in the following consideration is on this topic. As a new medical practice, eHealth can be conceptualised as an innovation. Innovation literature can be used to study why the diffusion or eHealth remains comparably low. Roger’s “Diffusion of Innovation Theory” suggests that organizational, structural and cultural aspects affect health professionals perception of eHealth. The introduction of these services affects existing work practices and work flows. Therefore it is necessary to develop strategies for the introduction of eHealth applications, which take into account the particular structures and cultures of the individual organisations within the different Mental Health care systems. Roger argues that an innovation is more likely to be adopted, if it has relative advantages and is compatible with existing values and needs. Tanrivedi and Iacono [12] explain with their “Extended Knowledge Barrier Metaphor”, which is based on Attwell`s “Theory of Knowledge Barrier” that in addition to economic, organizational and technical knowledge barriers also Mental Health professionals may resist the use of a new technology, which they do not understand, whose effectiveness on a range of outcome variables requires more research. For health professionals eMentalHealth is also associated with a novel way of working and alterations of traditional roles, practices and relationships. This requires substantial attitudinal changes. There are a number of structural characteristics common to most health-care organizations, which affect technological innovations. These organizations are usually characterised by a hierarchical structure; health care professionals have been found to be inherently conservative. Technological changes such as eMentalHealth may contribute to conflicts, arising from the move towards the emphasis on teamwork and collaboration. Effective eHealth consultations require a degree of collaborations and teamwork between different occupational groups. An organization which is small, complex and decentralized has a potential to introduce eHealth services, while a highly formalized structure and centralization would have an opposite effect; especially if it is associated with a lack of resources and limited management support [13]. Some countries require certification for eMentalHealth practitioners to be able to claim payments for their consultations. This certification process should be focused on ensuring that clinicians have a good understanding of prevailing clinical, technological, and ethical practices. EHealth supports also a cultural change, which is driven by the global consumers’ movement, where patients are insisting as being partners in their own care and being kept fully informed. This new paradigm of empowered clients requires also a substantial change of role and attitude. Medical knowledge does not longer represent the powerbase of health professionals. In future they also have to act as coach and consultant to their patients. Security and privacy are two core requirements for any eMentalHealth consultation. All systems must keep patient data secure; privacy is crucial for real-time data management, data storage and data forwarding processes. There exist a number of documented ethical and clinical guidelines, which have been published by different groups, covering this field [14]. Numerous eHealth evaluation frameworks have been proposed including comparisons of costs and 98 effects. For the relationship between quality and eMentalHealth it is helpful to consider Donabedian`s distinction between medicine’s technical and interpersonal components. The technical dimension refers to clinical processes of care (e.g. diagnosis, treatment or follow up) and outcomes (e.g. health status or quality of life); the interpersonal dimension refers to social and psychological aspects of treatment (e.g. user satisfaction and acceptance or doctor patient relationship) [15]. Conclusion EMentalHealth made a mere start in Europe so far. Nevertheless there seems to be a reliable infrastructure at hand for its delivery and a broad range of potential services has been identified. The main criticism of eMentalHealth applications as well as eHealth applications in general is that there would not be enough evidence of sufficient substance to back assertions that it is safe, efficient and cost-effective. These criticisms have to be met by further specific research. Within the ISLANDS project the consortium opted for a more proactive strategy between the partners involved in order to ensure the consistency and compatibility not only of infrastructure, equipment and technological standards but also of data acquisition, screening/testing methods/tools and evaluation methodologies, which will allow comparisons not only between the pilot sites but also across geographical regions and other eMentalHealth approaches from outside the ISLANDS project. That way one of the major challenges after the pilot phase of ISLANDS will be to determine a way in which eMentalHealth advocates could work together in the future, bring together their experience and merge their data pools into a convincing and persuasive body of evidence. Bullinger, Senn, Bekiaris, Meise, Mager, Müller-Spahn, Sulzenbacher In addition to that we have to state, that besides cost, ethical, legal or technical issues, the implementation of eMentalHealth services needs to take account of the idiosyncrasies of the health service sector and the particular structures and cultures of individual organizations; particularly if the distribution of resources and power is affected and potential changes in work practices may contribute to behavioural barriers between the participating working groups or even individuals. In order to be successful, generally speaking eMentalHealth providers must focus on the needs of Mental Health professionals instead of forcing to fit existing technologies and contents on these services, so not to replace a consumer focused approach by a product focused approach. The introduction of eMentalHealth services should follow a stepby-step approach. EMentalHealth should fit into the Mental Health care system and be introduced in a balanced way. Therefore tailor-made solutions have to be developed for each cultural / geographical region in question. [7] [8] [9] [10] [11] [12] [13] [14] [15] Hailey D, Roine R, Ohinmaa A. Systematic review of evidence for the benefits of telemedicine. J Telemed Telecare 2002; 8 Suppl 1: 1-7 Hersh W, Helfand M, Wallace J, Kraemer D, Patterson P, Shapiro S, Greenlick M. A systematic review of the efficacy of telemedicine for making diagnostic and management decisions. J Telemed Telecare 2002; 8(4): 197-209 Salem D, Bogat GA, Reid, C. Mutual help goes on-line. Journal of Community Psychology 1997; 25(2): 189-207 Maheu M, Whitten P, Allen A. E-health, Telehealth & Telemedicine: A comprehensive guide. New York: Jossey-Bass, 2004 (in press) Walker J, Whetton S. The Diffusion of Innovation: Factors Influencing the Uptake of Telehealth. Journal of Telemedicine and Telecare 2002; 8 (Suppl.3): 73-75 Tanrivedi H, Iacono CS. Diffusion of Telemedicine: A Knowledge Barrier Perspective. Telemedicine Journal 1999; 5,3: 223-244 Bullinger AH. Information Systems and Organisational Structure. Dissertation for the Master of Business Administration (MBA), University of Wales, Academic Press, Great Britain, 2001 Wootton R, Blignault I. Guidelines for Telepsychiatry and e-Mental Health. In: Wootton, Yellowlees, McLaren. Telepsychiatry and e-Mental Health; Royal Society of Medicine Press Ltd., London, 2003 Dillon E, Loermans J. Telehealth in Western Australia: the challenge of evaluation. Journal of Telemedicine and Telecare 2003; 9 (Suppl. 2): 15-19 References [1] [2] [3] [4] [5] [6] Diepgen TL, Eysenbach G. Digital images in dermatology and the Dermatology Online Atlas on the World Wide Web. J Dermatol. 1998 Dec; 25(12): 782-787 Wellman B, Gulia M. Net surfers don't ride alone: Virtual communities as communities. 1995. HTML document available on WWW at http://www.sscnet. ucla.edu/soc/csoc/cinc Borowitz SM, Wyatt JC. The origin, content, and workload of e-mail consultations. JAMA (United States) 1998; 280(15): 1321-1324 Eysenbach G, Diepgen TL. Labeling and filtering of medical information on the Internet. Methods Inf Med. 1999; 38(2): 80-88 Sleek S. Providing therapy from a distance. APA Monitor 1997, 1-38 Lessing K, Blignault I. Mental health telemedicine programmes in Australia. J Telemed Telecare 2001; 7(6): 317-323 Dr. Alex H. Bullinger, MBA Center of Applied Technologies in Neu roscience (COAT-Basel /PUK) University of Basel Wilhelm Klein-Strasse 27 CH-4025 Basel Switzerland Email: key@coat-basel.com 99 Neuropsychiatrie, Volume 18, S 2, 2004, page 100-105 Original Process Quality Analysis of Telepsychiatry: Contributions of Statistical Control Process and Critical Pathway Analysis Carlos De Las Cuevas1 and Justo Artiles2 Department of Psychiatry, University of La Laguna, Santa Cruz de Tenerife 1 Economic Analysis Service, Canary Islands Health Service, Santa Cruz Tenerife 2 Key words Statistical Control Process, Control Chart, Quality, Critical Path Analysis, Telepsychiatry, Telemedicine Process Quality Analysis of Telepsychiatry: Contributions of Statistical Control Process and Critical Pathway Analysis Purpose: To describe the results of an innovative process quality analysis in a telepsychiatry routine service. Methods: The process assessed was “the teleconsultation of psychiatry” along an evaluation frame time of 1 year. A continuous quality improvement approach was applied, using a statistical control process and critical pathway analysis. The statistical control process was developed using an individual control chart. Results: The mean number of teleconsultations per session increased from 3.3 (SD = 1.2) in the first stage to 6.1 (SD = 2.4) in the second stage. This improvement process did not have an important effect on the variability of the process. The critical path implied 179 minutes per session and 33.81 (CI 95%: 32.58-34.96) minutes per consultation. The total labour hours required by Telepsychiatry Service would be 172 hours for each professional (psychiatrist and nurse). Accordingly, labour requirements were 0.104 of a Full-Time Equivalent for each professional. This indicated that there was no additional impact of telepsychiatry service on staff requirements. Full-Time Equivalent of the psychiatrist in the conventional model was 0.116. Conclusions: The continuous quality improvement approach minimised the working time and increased, in a systematic way, the productivity of the telepsychiatry service These achievements can diminish the total cost of the service, improving the relative cost effectiveness with respect to the conventional model. Introduction Telepsychiatry is the use of electronic communication and information technologies, originally developed to provide or support clinical psychiatric care at a distance, that enhance access to mental health care for rural and underserved populations (APA, 1998). With the development of more technology and increasing experience, it has become evident that the goal of telepsychiatry is much broader than originally designed and nowadays this welfare alternative is used in many countries and several mental health frameworks (De las Cuevas et al., 2003a). In telepsychiatry, consumer and provider satisfaction has consistently shown that this mode of clinical service delivery is widely accepted (Gammon et al., 1996; Clarke, 1997; Urness, 1999), although only a few number the studies carried out included a measure of preference between telemedicine and face-to-face consultation (Williams et al., 2001; De las Cuevas et al., 2003b). The issue of whether telepsychia- try is worth the cost or whether it pays for itself is more controversial, but the review of the literature have demonstrated that telepsychiatry can be cost-effective in selected settings and can be financially viable if used beyond the break-even point in relation to the cost of providing in-person psychiatric services (Hyler & Gangure, 2003). With the primary goals or benefits of: improve access; reduce costs; reduce isolation; and improve quality of care, the Canary Island Health Service (CIHS) developed a Telepsychiatry Program, that began in year 2001, to complement the mental health care of the citizens living at El Hierro island The purpose of this paper is to describe the results of an innovative analysis of process quality after the first year of operation. The process assessed was “the teleconsultation of psychiatry”. The quality of this process was evaluated through a continuous quality improvement approach, of which the variables studied were the variability of the consultation workload and the staffing level rate of the telepsychiatry service. The workload (of consultation or patients) is one of the variables that most affects the cost effectiveness relationship (Bergmo, 2000; Mielonen, 2000; Davis, 2001; Harno, 2001; Lamminen, 2001; Simpson, 2001; Wootton, 2001; Bjorvig,2002; Bracale, 2002; Cabrera, 2002; Ohinmaa, 2002; Valero, 2002), and therefore this is a variable that must be monitored. To do this, a statistical control process (SCP) was applied. SCP has De Las Cuevas, Artiles 101 been applied to the health sector in other instances and its use has resulted in improvements in efficiency and productivity (Laffel & Blumenthal, 1989; Benneyan, 1998; Alemi & Sullivan, 2001; Caron & Neuhauser, 2001; Amin, 2001). In addition, the staffing level rate of the telepsychiatry service was evaluated using a critical pathway analysis (CPA). CPA is an analysis tool, which helps to identify the minimum length of time, needed to complete a process with improved productivity and diminished costs. Telemedicine provides an opportunity to implement a continuous quality improvement process. Material and Method Setting and description The Canary Islands form a Spanish archipelago 700 miles far from mainland Spain. The Canaries consist of seven islands which have about 1.8 million inhabitants, 85% of them living on the major islands of Tenerife and Gran Canaria. El Hierro, the smallest and most westerly of the islands, has over 7,000 inhabitants. Until the introduction of telepsychiatry, the conventional model was a psychiatrist who travelled to the island every 2 weeks (2 visits per month) to face-to-face consultations. The telepsychiatry service provides psychiatric consultations through videoconference to individuals based on a referral from general practitioners via email. Telepsychiatry sessions took place every Thursday (four sessions per month). Statistical Control Process Statistical Control Process is a standardising technique used to reduce variations and achieve performance benchmarks. In this way, a telepsychiatry service will be stable when it produces, in a consistent way, the number of teleconsultations that satisfies the demand of the resident population of El Hierro. The question Description First region Mean 3,3 Standard deviation 1,20 Variation Coefficient 36% Upper Control Limit 6,9 Lower Control Limit * 0 * If the control limit < 0, then set the LCL = 0 Second Region 6,1 2,40 39% 13,6 0 Table 1: Statistical description of control chart addressed by the SCP was: Can telepsychiatry produce the same number of consultation than conventional face-to-face model. The Statistical Control Process was developed using an individual control chart. Figure 1 shows the general format of control chart. In general, the control limits are situated above and below of the central line of a distance of three times the standard deviation (sd). For interpretation rules, the control chart is divided into six equal zones that fall between the Upper Control Limit and Lower Control Limit. In our study, the target variable is the “number of teleconsultations per session” and the statistical control is the mean number of teleconsultations per session. The steps taken in constructing the control chart were: 1. First, the variable to be charted was identified (number of teleconsultation per session) 2. Second, the appropriate frequency of sampling was determined (four sessions per month). 3. Data was recorded in SPSS 10.0. 4. The control chart was constructed using the following information: 4.1. The mean value for the number of teleconsultations per session was calculated. where, Teleconsulation’s mean per session Number of session per year Number of teleconsulation in the session i 4.2. A moving range average was calculated by taking pairs of data (X1,X2),(X2,X3)…(Xn-1, Xn), taking the annual sum of the absolute value of the differences between them and dividing this sum by the number of pairs. This is shown mathematically as: Process Quality Analysis of Telepsychiatry: Contributions of Statistical Control Process ... where Moving range average 4.3. Upper control limit (UCL) and low control limit (LCL) were calculated; where 2.66 is the constant used when individual measurements are plotted. 4.4. Plot the data point, mean and control limits on the same graph (Note: If the LCL < 0, then set the LCL = 0) 5. The process was monitored distinguishing special from common causes of variation. Common cause variation is the naturally occurring fluctuation or variation inherent in all process. Some examples of common cause are: the time of the day, hospital case-mix, physical condition of patients, etc. Special cause variation is typically caused by some problem or extraordinary occurrence in the process. Examples of special cause might include changes in clinical procedures, skill degradation, equipment failure, new staff, etc (Bennayan, 1998). The interpretation rules used to detect special causes of variation are: • One or more data points can be found above a UCL or below an LCL • 7 or more consecutive points either above or below the CL • 14 or more consecutive points alternating up and down in a sawtooth pattern. • 4 of five successive points on the same side of the CL in zone b or beyond. • 2 of three successive points on the same side of the CL in zone a • 15 or more consecutive points alternating above and below the central line, all of which fall within zone c 6. Taking into account the above (step 5), corrective action was taken to control the process and improve productivity. 102 Critical Pathway Analysis The Critical Pathway Analysis for the telepsychiatry service was developed through a multidisciplinary teamwork that includes psychiatrist, nurse and health economist. The Critical Pathway was developed through the next steps: 1) Devise the protocol’s activities of teleconsultation using the relevant literature (Tachakra et al., 1997; Benger, 1999). 2) Discuss, improve and prepare the definitive list of teleconsultation’s activities. 3) Determine which activities immediately precede and follow each activity. 4) Identify the staff in charge to perform each activity. 5) Estimate the duration time of each activity. 6) Draw a network with activities connected using numbers and arrows. The times were measured using a job-cost sheet to record the duration of the protocol’s activities. Finally, the Full-Time Equivalent was calcu- De Las Cuevas, Artiles lated. Full-Time Equivalent is the percentage of time a staff member worked. A full-time person valued as 1.00, a half-time person as 0.50 and a quarter-time person as 0.25. FullTime Equivalent was calculated dividing labour hours required per year over total hours available per year. The standard of total hours available per professional was 1645 hours per year. The questions addressed by the workload analysis were: 1) what is the minimum time necessary to develop a telepsychiatry session? 2) What staffing level is required by a routine telepsychiatry service? 103 Results Figure 2 and table 1 show the statistical control process using control chart analysis. Reference lines include the mean value, ±1 standard deviation (SD), ±2 SDs, and upper and lower controls. The control chart was based on data from 166 teleconsultations developed through 40 sessions over a twelve-months period. There are several points to note. An out-of-control signal was detected in the first six-months of the evaluation period (Figure 2: first region): seven consecutive sessions of tele- Protocol Activities Mean B C D+E+F G H Recall patient and sending email to psychiatrist confirming teleconsultations Setup equipment and establish contact with the nurse Planning the session according email information Videoconference * Reassert the treatment to patient Commenting the session Time per teleconsultation Table 2. Time of protocol activities per teleconsultation (minutes) Confidence Interval Standard Deviation 1,22 Lower Limit 1,14 Upper Limit 1,35 0,72 0,73 0,66 0,79 0,43 1,24 25,01 4,40 1,21 33,81 1,10 1,32 0,69 24,0 4,24 1,06 32,58 28,03 4,56 1,37 6,63 1,04 0,70 34,96 7,76 Code A psychiatry were on a particular side of the central line during February and March. The special cause of this variation was identified: The patients forgot to go to the consultation since it was a new service. Once this was identified as the special cause of variation, it was eliminated by introducing a reminder call to the patients. When the statistical control was established, a productivity analysis was performed taking as a reference the annual activity level of the travelling psychiatrist (305 consultations/year); this fixed the standard performance value at 6 teleconsultations per ses- Process Quality Analysis of Telepsychiatry: Contributions of Statistical Control Process ... sion. The effect of the improvement process was observed from August to the final evaluation period (second region). In this way, the mean number of teleconsultations per session increased from 3.3 (SD = 1.2) in the first stage (first region) to 6.1 (SD = 2.4) in the second stage (last months of the year.) This improvement process did not have an important effect on the variability of the process, measured by the variation coefficient. The consultation workload was controlled by fixing the performance of telepsychiatry to 6 teleconsultations per session through 50 sessions over the year, i.e. 305 teleconsultation per year. The results of Statistical Control Process are tied in with the network analysis, which was developed thought the critical pathway analysis, which was shown to be useful for minimising time and integrating and reallocating activities. The network analysis of the standard telepsychiatry session is shown in Figure 2, where the number next to each activity represents the activity’s duration in minutes. Nodes 1 and 2 mark the beginning of the telepsychiatry session and node 9 is the finishing node. The network diagram indicates that activities A-B had to be completed before activity C began. Activities DE-F were integrated within the videoconference itself (activities E-F were developed in parallel). The critical path is the activities group A-C-D-EG-H. Activity E´ is a dummy activity: it is an artificial activity whose purpose is to distinguish between two or more activities that both begin and end at the same node. Adding up all the minutes along this path results in a total of 179 minutes per session, where the activities D and E (teleconsulting and reviewing the treatment with the patient) consumes 132 minutes (74% of the critical path time). Table 2 shows the time spent on different protocol activities in the teleconsultation process. The average time for teleconsultation videoconferencing activities was 25 (CI 95% = 24-26.03) minutes. When the rest of 104 Production Planning - Teleconsultations per session = 6,1 - Sessions per year = 50 - Performance results = 305 teleconsultations per year Workload Planning - Duration of teleconsultations = 33,8 minutes - Duration of the session = 3,4 hours - Contracted hours staff: Psychiatrist = 172 hours/year Nurse = 172 hours/year Table 3. Management guidelines for telepsychiatry service the protocol is considered, the total time per teleconsultation rise to 33.81 (CI 95%: 32.58-34.96) minutes. Assuming the earlier performance results (305 teleconsultation / year), the total labour hours required by telepsychiatry would be 172 [(33.81* 305)/60] hours for each professional (psychiatrist and nurse). Accordingly, labour requirements were 0.104 [172/1645] of a Full-Time Equivalent for each professional. This indicated that there was no additional impact of TS on staff requirements. The Canary Islands Health Service information system indicated that Full-Time Equivalent of the psychiatrist in the conventional model was 0.116 conventional care was determined with the use of a Critical Pathway Analysis. The continuous quality improvement approach minimised the working time and increased, in a systematic way, the productivity of the telepsychiatry service. These achievements can diminish the total cost of the service, improving the relative cost effectiveness with respect to the conventional model: the minimization of work-time reduces the variable cost and the increase in productivity reduces the fixed cost assigned to each teleconsultation. The results of the present evaluation provide a management guidelines (Table 3). These guidelines are the result of a continuous quality improvement process. Discusion & Conclusion In summary, our approach has the following benefits: firstly, our recommendations are based on realistic assumptions: statistical control process shows that the telepsychiatry service has the capability of producing the same number of consultations as the conventional model. In conjunction, the critical pathway analysis is an effective assessment method that considers what tasks must be carried out, what parallel activities can be carried out, the role of each team member as well as their responsibilities and the resources that are used for each protocol activity. As a result of the entire previous one, the relative cost effectiveness of telemedicine telemedicine can be improved. Industrial quality management analysis has been applied in other studies to the health sector and has shown demonstrated improvements in efficiency and productivity (Laffel & Blumenthal, 1989; Benneyan, 1998; Alemi & Sullivan, 2001; Caron & Neuhauser, 2001; Amin, 2001). In this paper we applied two planning tools to conduct an analysis of the telemedicine process in the Canary Islands. A Statistical Control Process was used to ascertain that the level of usage fell within an acceptable (efficient) range. The feasibility of achieving this range while using the same level of resources as under De Las Cuevas, Artiles References Alemi F & Sullivan T: Tutorial on risk adjusted X-bar charts: applications to measurement of diabetes control. Qual Manag Health Care. 2001 Spring; 9 (3): 57-65. American Psychiatric Association (APA). (1998). APA Resource Document on Telepsychiatry, approved by the APA Board of Trustees July 1998 Amin SG: Control charts 101: a guide to health care applications. Qual Manag Health Care. 2001 Spring;9(3):1-27. Benger J: Protocols for minor injuries telemedicine. J Telemed Telecare. 1999;5 Suppl 3:S26-45. Benneyan JC: Use and interpretation of statistical quality control charts. Int J Qual Health Care. 1998 Feb;10(1):69-73 Bergmo TS: A cost-minimization analysis of a realtime teledermatology service in northern Norway. J Telemed Telecare. 2000;6(5):273-7. Bjorvig S, Johansen MA, Fossen K: An economic analysis of screening for diabetic retinopathy. J Telemed Telecare. 2002;8(1):32-5. Bracale M, Cesarelli M, Bifulco P: Telemedicine services for two islands in the Bay of Naples. J Telemed Telecare. 2002;8(1):5-10. Review. Cabrera MF, Arredondo MT, Quiroga J: Integration of telemedicine into emergency medical services. J Telemed Telecare. 2002;8 Suppl 2:12-4. Caron A & Neuhauser DV: Health care organization improvement reports using control charts for key quality characteristics: ORYX measures as examples. Qual Manag Health Care. 2001 Spring;9(3):28-39. Clarke PHJ: A referrer and patient evaluation of a telepsychiatry consultationliaison service in South Australia. Journal of Telemedicine and Telecare 1997;3(Suppl1):12-4. Davis P, Howard R, Brockway P: Telehealth consultations in rheumatology: cost-effectiveness and user satisfaction. J Telemed Telecare. 2001;7 Suppl 1:10-1. De las Cuevas C, Artiles J, De la Fuente J & Serrano P: Telepsychiatry: Utopia or Welfare Reality. Med Clin (Barc). 2003 Jun 28;121(4):149-52. De las Cuevas C, Artiles J, De la Fuente J & Serrano P: Telepsychiatry in the Canary Islands: User Acceptance and Satisfaction. Journal of Telemedicine and Telecare 2003; 9, 4: Gammon D, Bergvik S, Bergmo T & Pedersen S: Videoconferencing in psychiatry: a survey of use in northern Norway. Journal of Telemedicine and Telecare 1996; 2:192-8. Harno K, Arajarvi E, Paavola T, Carlson C, Viikinkoski P: Clinical effective 105 ness and cost analysis of patient referral by videoconferencing in orthopaedics. J Telemed Telecare. 2001;7(4):219-25. Hyler, SE & Gangure, DP: A review of the costs of telepsychiatry. Psychiatr Serv, 2003, 54: 976980. Laffel G & Blumenthal D: The case for using industrial quality management science in health care organizations. JAMA. 1989 Nov 24;262(20):2869-73. Lamminen H, Lamminen J, Ruohonen K: Uusitalo H. A cost study of teleconsultation for primary-care ophthalmology and dermatology. J Telemed Telecare. 2001;7(3):167-73. Mielonen ML, Ohinmaa A, Moring J, Isohanni M: Psychiatric inpatient care planning via telemedicine. J Telemed Telecare. 2000;6(3):152-7. Ohinmaa A, Vuolio S, Haukipuro K, Winblad I: A cost-minimization analysis of orthopaedic consultations using videoconferencing in comparison with conventional consulting. J Telemed Telecare. 2002;8(5):283-9. Simpson J, Doze S, Urness D, Hailey D, Jacobs P: Evaluation of a routine telepsychiatry service. J Telemed Telecare. 2001;7(2):90-8. Tachakra S, Sivakumar A, Hayes J & Dawood M: A protocol for telemedical consultation. J Telemed Telecare. 1997;3(3):163-8. Urness DA: Evaluation of a Canadian telepsychiatry service. Stud Health Technol Info, 1999, 64: 262-269. Valero MA, Gil G, Gutierrez C, Fernandez J, Martinez Y, Nunez B, Arredondo MT: Theoretical efficiency of a televisiting service for home care support. J Telemed Telecare. 2002;8 Suppl 2:90-1. Williams TL, May CR & Esmail A.: Limitations of patients satisfaction studies in telehealth care: a systematic review of the literature. Telemed J E Health 2001 Winter; 7(4): 293-316. Wootton R, Hebert MA: What constitutes success in telehealth? J Telemed Telecare. 2001;7 Suppl 2:3-7. Prof. Carlos De Las Cuevas Department of Psychiatry University of La Laguna School of Medicine, Ofra s/n 38071 Santa Cruz de Tenerife Canary Islands, Spain E mail: ccuevas@ull.es Neuropsychiatrie, Volume 18, S 2, 2004, page 106-108 Report Ethical Conduct within the ISLANDS Project Thomas Senn1, Hubert Sulzenbacher2, Ullrich Meise2, Karl-Heinz Estoppey1, Ralph Mager1, Franz Müller-Spahn1 and Alex H. Bullinger1 1 Center of Applied Technologies in Mental Health, Dept. of Psychiatriy, University Basel 2 Center for Online Mental Health, Dept. of Psychiatriy, Medical University Innsbruck Key words e-Mental-Health, e-Health, telepsychiatry, telemedicine, ethical considerations Ethical Conduct within the ISLANDS Project This paper indicates the issues to which special sensitivity concerning ethical aspects should be given throughout an eMentalHealth project like ISLANDS. This means, first and most important, to secure an ethical treatment of the participants involved, and secondly, to secure the high scientific quality of research conducted within, suggested or even promoted by the ISLANDS project. General research ethics related to research with humans and research involving testing and assessments are firstly presented. This ethical issue concerns the proposed screening, counseling and treatment policies, as well as the use of the research data, in a way that guarantees privacy and state of the art therapy according to local and European law. Cultural and personal elements cannot always be totally dismissed; however, they can and should be critically examined. Introduction The ethical considerations within the ISLANDS project are based on information gathered from different sources (Convention on human rights on biomedicine from the council of Europe [2]; Ethical code of conduct from APA [1]; Declaration from Helsinki from the world medical association). General ethical principles are presented. Subjects have to be informed about the experiment and give written assent to participate. Researchers do only deceive subjects when this is justified by the study’s significant prospective value. Deceived subjects have to be clarified about the real issues of the study. The privacy of the subjects is ensured through all steps of the project. The subjects are protected from harm. The psychological tests are used in accordance to legislative and contractual obligations. The professional knowledge for psycho diagnostic testing is ensured within ISLANDS. Personal information is regarded as confidential. Disrespect concerning the use of language should be avoided. One of the main objectives of ISLANDS is to create the scientific base for appropriate tools that can be used in a modular, non-conventional remote psychiatric and psychotherapeutic supply for remote European areas. Cost effective services (including its evaluation) are offered to different consumers (patients, significant others, professionals). All test methods will be non-intrusive. A medical practitioner is present during each study. All used assessment tools and protocols are verified by COAT Based (ISLANDS partner, psychiatric clinic) regarding their impact to users’ well-being before being applied. In conclusion, the consortium declares that ISLANDS does not include any research involving the use of human embryos, human embryonic tissue, human fetuses, human fetal tissue, other human tissues, genetic information, people unable to give consent, or pregnant women. There is no animal experimentation. The test subjects will not receive any unlicensed medication, legal or illegal drugs or any other substance other than that normally required by their health condition and prescribed by a doctor on site. Personal data on subjects will be used in strictly confidential terms and will be published as statistics (anonymously). Methodology The ethical issues highlighted in this paper are based on information gathered from various sources: • • • • Convention on human rights and Biomedicine of the Council of Europe American Psychological Association’s ethical Principles of Psychologists and Code of Conduct Universal Declaration on the Human Genome and Human Rights of the UNESCO [3] Declaration of Helsinki: Recommendations Guiding Physicians in Biomedical Research Involving Human Subjects from the World medical association [4] Senn, Sulzenbacher, Meise, Estoppey, Mager, Müller-Spahn, Bullinger • National legal and ethical requirements of the Member States (Greece, Spain, France, Austria) where the research is performed. General ethical principles on research with human subjects Informed Consent Previous to any intervention the subjects have to be informed about the aims of the study, procedures, and methods in a clear and comprehensive way. All of the subjects are volunteers. They are clearly informed that they are allowed to stop participating at any time during the experiment. After ensuring that the subject has understood the information about the study, the physician then obtains the subject's freely-given written informed consent. Special attention should be paid in regard to recognizing and upholding the rights of those subjects whose capability to give a valid consent to research procedures may be diminished. Subjects with legal guardian aides as well as subjects who can not rationalise the test course and goal based on any impairment of their cognitive abilities will be excluded from the study. Deception Researchers do not conduct a study involving deception unless that they have determined that the use of deceptive techniques is justified by the study’s significant prospective scientific, educational, or applied value and that effective non-deceptive alternative procedures are not feasible. This is clearly not the case for the reseach done within the ISLANDS project. Researchers do not deceive prospective participants about research that is reasonably expected to cause physical pain or severe emotional distress. Researchers explain any deception that is an integral feature of the design and conduct of an experiment to participants as early as feasible, preferably at the conclusion of their participation, but no later than at the conclusion of the data collection, and permit participants to withdraw their data (American Psychological Association, 20021). Confidentiality Privacy and confidentiality is a central concept in the conduct of ethical research within ISLANDS. The privacy of the subjects is ensured through all steps of the research project, including data handling, data analyses, and research communications. It is also ensured that all the persons involved in research work understand and respect the requirement for confidentiality. The subjects should be informed about the confidentiality policy that is used in the research. Protection of subjects Risks attend us every moment in life and thus a totally risk-free setting is impossible. However, subjects should not be exposed to or induced to take risks that are greater than those they would normally encounter in their life. The subjects participating in ISLANDS are protected from harmful physiological and psychological effects that might be caused. All the risks (both to physical and mental appearance of the participant) related to research procedure are minimized. Ethics conduct in assessment and tests Some of the work packages of ISLANDS include testing and assessment of research subjects. The common psychological tests are used in accordance to legislative and contractual obligations. Principles (not expli- 107 citly regulated) should also be followed as part of good practice. Professional competence The professional knowledge that the use of assessment and diagnostic tools (i.e. tests) requires, is guaranteed within ISLANDS. Partly the law already regulates this; e.g., certain tests are available only for psychologists’ use. Instruments Used assessment instruments are valid and reliable. Eventual limitations will be taken into account when communicating test results. Personal information Personal information must be regarded as confidential. Custodian of a large research database or register must ensure they have each person’s explicit consent to obtain, hold and use personal information. Due to the confidentiality of test data and the anonymous nature of the performance, the researchers are not allowed to inform any authorities about the participant’s performance, even if the subject’s performance might indicate for example safety problems in activities of daily life like road traffic. Ethical perspective language on Disrespect Both overt and hidden disrespect should be avoided in all research communications and materials. The terms used should be politically correct, e.g., the expressions “disorder” or “substance use” should be used instead of “illness” or “abuse”. Also any images of otherness should be avoided when describing people. That is, all kinds of “us” vs. “them” Ethical Conduct within the ISLANDS Project arrays should be strictly avoided in all communications. Finally, in all research communications and materials, it should be kept in mind that having problems is not equal to sickness and infirmity but is a kind of life that should be addressed with the same respect as others, too. Language that equates persons with their condition or that has negative overtones should be avoided. Sexism Similarly, overt and hidden sexism should be avoided in research communications and materials of ISLANDS. The language used should be gender neutral: the pronoun he should not be used to refer to both genders, and the masculine or feminine pronoun should not be used to define roles by gender. Also the word “man” should not be used to refer to all human beings. The use of the generic “he” can be overcome for example in using plural nouns or plural pronouns, replacing the pronoun with an article or dropping the pronoun. Other Labeling people should be avoided when possible. Researchers should carefully consider when – if ever – it is adequate to use broad categories, such as “the alcoholic”, that tend to present the subjects in the study as objects without individuality or heterogeneity. The language in all research communications and materials should be maintained as value-free as possible. In research reports the subjects should be acknowledged. They should preferably be described as active subjects, not as passive subjects or objects, regardless of the research setting or methods. 108 References [1] [2] [3] [4] American Psychological Association (2002). Ethical Principles of Psychologists and Code of Conduct. American Psychologist, 57, 1060-1073. Council of Europe, Convention on human rights and Biomedicine, 1997. UNESCO, Universal Declaration on the Human Genome and Human Rights, 1997. World Medical Association, Declaration of Helsinki: Recommendations Guiding Physicians in Biomedical Research Involving Human Subjects, 1996. Dr. Alex H. Bullinger, MBA Center of Applied Technologies in Neuroscience (COAT-Basel /PUK) University of Basel Wilhelm Klein-Strasse 27 CH-4025 Basel Switzerland Email: key@coat-basel.com Neuropsychiatrie, Volume 18, S 2, 2004, page 109-111 Report Potential Constraints and Obstacles relevant to the Introduction of e-Mental Health and Telepsychiatry Ullrich Meise1, Hubert Sulzenbacher1 and Alex H. Bullinger2 Center of Online Mental Health, Dept. of Psychiatry, Medical University Innsbruck 1 Center of Applied Technologies in Mental Health, Dept. of Psychiatry, University Basel 2 When implementing e-mental health services in the different pilot sites it seems to be necessary to determine different factors (Wright 1998): - - - - - - - - define the needs for telepsychiatry, assess the potential and advantages of these applications define the needs and priorities of the different players; ensure that diverse players are involved (professionals, patients, telecommunication companies and operators, health authorities …) define which telecommunication infrastructure is available or could be made available; assess the accessibility of these structures determine the most appropriate technologies (telephone, www, email, videoconferencing) determine factors like costs, financing and other resources necessary raise awareness about potential telepsychiatry applications among health care professionals and other relevant players ensure adequate legal, organisational and administrative arrangements are established and sustainable establish a telepsychiatry database to monitor outcomes identify socio-cultural factors, legal considerations and potential barriers relevant to the introduction of this technology. Although e-health applications have proliferated in recent years, their diffusion has often remained low. The actual use of telepsychiatry has in many cases been less than anticipated. The main constraints or barriers, which can contribute to problems of implementing e-mental health fall into the following categories: human, ethical, legal business and technological issues - - 1. Human issues - While patients appear willing to accept telepsychiatry after they have had some experience with it, providers exhibit considerably more resistance. The reasons for professional wariness are complex and range from - ethical concerns about network security and privacy or the possibility of harming patients with unknown treatment models - professionals technophobia and lack of training and familiarity with equipment - problems with time and convenience - problems with reimbursement for their online work and - challenges to fundamental views on professional roles. - 2. Ethical , legal and business issues - These include: concerns about telecommunication network security and privacy standards - - questions about responsibilities towards the patients, if the risks will be covered by insurance companies and state licensing requirements the often non-existent telemedicine policy and strategies also defining the roles of the different players financial problems like the high expenses for hard- and software difficulties to reimburse physicians for their telework the general lack of third party reimbursement and of a business model supporting e-health activities or the uncertain long-term funding of e.g. pilot projects a lack of cost effectiveness since e-mental health can enhance the services or may multiply demand for previously inaccessible mental health services or legal difficulties arising from the possibilities of cross-boundary consultations. 3. Technological issues These include technical and scientific difficulties like: - inadequate telecommunication networks - a lack of user friendly information systems and interfaces - a lack of satisfactory bandwidth - a rapid development of technology - a scarcity of evaluation data about the effects of telepsychiatry Potential Constraints and Obstacles relevant to the Introduction of e-Mental Health and Telepsychiatry “There is currently a substantial gap between the widespread demand for telehealth and the scientific evidence supporting its efficacy and cost effectiveness” Considerations of these barriers Because the challenges for emental health are of human rather than technological Variety, we will focus on this topic. As a new medical practice, ehealth can be described as an innovation. Innovation literature can therefore be used to study why the diffusion of telemedicine remains low. Rogers’ “Diffusion of Innovation Theory” suggests that organisational structures and cultures will affect health professionals’ perception of telehealth. The introduction of these services affects existing work practices and work flows. Therefore it is necessary to develop strategies for the introduction of telehealth applications, which take into account the particular structures and cultures of the individual organisations within the different mental health care systems. Rogers argues that an innovation is more likely to be adopted, if it has relative advantages and is compatible with existing values and needs. Tanrivedi and Iacono explain in their “Extended Knowledge Barrier Metaphor”, based on Attwell’s “Theory of Knowledge Barrier”, that in addition to economic, organisational and technical knowledge barriers, mental health professionals may also resist the use of a new technology which they do not understand. More research is necessary on a range of outcome variables which may influence effectiveness. For health professionals e-mental health is also associated with a novel way of working and alterations of traditional roles, practices and relationships. This requires substantial attitudinal changes. There are a number of structural characteristics common to most healthcare organisations which affect technological innovations. These organisations are usually characterised by a hierarchical structure and health care professionals have been found to be inherently conservative. Technological changes such as emental health may contribute to conflicts, arising from the increasing emphasis on teamwork and collaboration. “ The use of telehealth requires the development of new routines, which alter the traditional practices and relationships.” Effective telehealth consultations require a high degree of collaboration and teamwork between different occupational groups. An organisation which is small, complex and decentralised has a potential to introduce telehealth services, while a formalised structure and centralisation would have a negative effect; especially if it is associated with a lack of resources and limited management support. E-health also supports a cultural change, which is driven by the global consumers’ movement, in which patients are insisting on being partners in their own care and being kept fully informed. This new paradigm of empowered clients also requires a substantial change of role and attitude. Medical knowledge no longer represents the power-base of health professionals. In future they also have to act as coach and consultant to their patients. Security and privacy are two core requirements for any e-mental health consultations. All systems must keep patient data secure; privacy is crucial for both real-time and store and forward approaches. A number of documented ethical and clinical guidelines exist which have 110 been published by different groups. Some countries require certification for telepsychiatry practitioners to be able to claim payments for their consultations. This certification process should be focused on ensuring that clinicians have a good understanding of prevailing clinical, technological, and ethical practices. Numerous telemedicine evaluation frameworks have been proposed including comparisons of costs and effects. For this relationship between quality and telepsychiatry it is helpful to consider Donabedian’s distinction between medicine’s technical and interpersonal components. The technical dimension refers to clinical processes of care (e.g. diagnosis, treatment or follow up) and outcomes (e.g. health status or quality of life); the interpersonal dimension refers to social and psychological aspects of treatment (e.g. user satisfaction and acceptance or doctor patient relationship) Besides cost, ethical, legal or technical issues, the implementation of telepsychiatry services needs to take account of the idiosyncrasies of the health service sector and the particular structures and cultures of individual organisations; particularly if the distribution of resources and power is affected and potential changes in work practices contribute to behavioural barriers. In general, to be successful telepsychiatry providers must focus also on the needs of mental-health professionals and not be forced to fit their services to existing technology. “Consumer focus must not be replaced by product focus” The introduction of e-mental health services should follow a step-by-step approach. Telepsychiatry should fit into the mental health care system and be introduced in a balanced way. Therefore tailor-made solutions should be developed for each region in question. Meise, Sulzenbacher, Bullinger 111 Literature Walker J, Whetton S (2002): The Diffusion of Innovation: Factors Influencing the Uptake of Telehealth. Journal of Telemedicine and Telecare 8;S3:73-75 Wootton R, Blignault I (2003): Guidelines for Telepsychiatry and e-Mental Health. (in: Wootton, Yellowlees, McLaren. Telepsychiatry and e-Mental Health); pp 293-304 Royal society of Medicine press Ltd., London Wright D (1998): Telemedicine and Developing Countries. Journal of Telemedicine and Telecare 4;S2:1-87 Hsiung RC (2003): E-therapy: Opportunities, Dangers and Ethics to Guide Practice (in: Wootton, Yellowlees, McLaren. Telepsychiatry and e-Mental Health); pp 73-82 Royal society of Medicine press Ltd., London Tanrivedi H, Iacono CS (1999): Diffusion of Telemedicine: A Knowledge Barrier Perspective. Telemedicine Journal 5,3:223-244 Univ. Prof. Dr. Ullrich Meise Dep. of Psychiatry Medical University Innsbruck Anichstrasse 35 6020 Innsbruck, Austria E mail: ullrich.meise@uklibk.ac.at Telepsychiatry and e-Mental Health Book Review Richard Wootton, Peter Yellowlees and Paul Mc Laren The Royal Society of Medicine Press, 368 pages, 2003 The challenge of providing mental health care in the 21stcentury is considerable, both in the industrialized and developing world. This is the fist book to cover the emerging practice of telepsychiatry and e-mental health. Focusing on both clinical and educational applications, the international team of authors demonstrate the broad spectrum of technologies currently available to health professionals including video, Internet and telephony. This book presents a unique and formidable overview of current academic literature which complements a comprehensive selection of practical ideas and advice on technical, clinical and medicolegal areas. Direct experiences of real-time telepsychiatry gives the reader first-hand information about how diagnoses and patient management can be achieved. In addition, the authors explain how the Internet can provide advice and information to doctors, plus self-help or even therapy to patients. The future of mental health provision, including the economics of such services and the particular challenges faced by health professionals in the developing world, is discussed through experimental ideas such as the development of commercial online clinics and automated diagnosis. Written by experts with substantial experience from across the world, this book is designed to provide a comprehensive companion to all mental health professionals: Trainee and qualified psychiatrists whether practising or considering using telepsychiatry and the Internet, nurses, psychologists, social workers, managers, mental health service planners and administrators, and IT staff working in the mental health sector. Royal Society of Medicine Press Ltd 1 Wimpole Street, London Q1G OAE UK 207E Westminster Road, Lake Forest IL 60045 USA http://www.rsm.ac.uk Neuropsychiatrie, Volume 18, S 2, 2004, page 112-115 Report Some Considerations about the Concept of Presence in Telepsychiatry Carlos De Las Cuevas1 and José Luis González de Rivera 2 1 Department of Psychiatry, University of La Laguna, Santa Cruz de Tenerife 2 Department of Psychiatry, University of Madrid Key words Presence, Telepresence, Telepsychiatry, Virtual Reality. Some Considerations about the Concept of Presence in Telepsychiatry The authors reflect about the concept of presence and its relevance in the practice of telepsychiatry considering the use of videoconferencing technology as a mean of providing mental health consultations across distances. This brief paper stresses the importance of examining the new context created by new communication technologies, and of understanding of the novel practitioner-patient relationships created, paying attention to secondary and peripheral contexts that could potentially be ignored because of telepresence. According to Bashshur (1995), telepsychiatry can be conceived as an integrated system of mental health care delivery that employs telecommunications and computerized information technology as an alternative to face-to-face contact between psychiatrists and patients. Videoconferencing is the central technology that is currently used in telepsychiatry, since it permit live, two-way interactive, full-colour, video, audio and data communication (Janca, 2000). A wide variety of studies concerning telepsychiatry, interactive video consultations, have been performed showing high rates of consumer and provider acceptance and satisfaction (Gammon et al., 1996; Clarke, 1997; Urness, 1999; De las Cuevas et al., 2003). However, when a telepsychiatry videoconference system is used to bridge remote locations, a virtual environment is created and it is likely that some information cues present in the physical environment are not available in the virtual environment (Turner, 2001). Since this fact could have unknown effects on decisions made in these environments, the study and analysis of the concepts of presence and telepresence become necessary in an attempt to clarify the possible limitations of this new welfare modality. Virtual reality created by videoconferencing means that users experiences a mediated environment as if it were real and that this virtual environment can give rise a subjective sensation of being in a remote or artificial environment, but not the surrounding physical environment (Held & Durlach, 1992; Sheridan, 1992; Steuer, 1995; Kim & Biocca, 1997). This "illusion of nonmediation" where psychiatrist and patient "...fails to perceive or acknowledge the existence of a medium in their communication environment and responds as they would if the medium were not there" (Lombard and Ditton, 1997) is called telepresence or “virtual presence” (Barfield & Weghorst, 1993; Sheridan, 1992), a facet of presence which is a more wide concept. According to Kim and Biocca (1997), presence could be defined as “a person’s perception of being at a specified or understood place”. For these authors, the sensation of presence is unstable and oscillates around three senses of place. From momentto-moment the user may feel present in the physical environment (Distal Immediate), the virtual environment (Distal Mediated), or the imaginal environment (Reduced Attention to Distal Stimuli, i.e., the space of daydreams, dreams, and hallucinations). As individuals experience sensations coming from the physical environment or the virtual environment, their sense of presence, or being there, may oscillate momentto-moment between these two senses of place, or they may withdraw their attention to these stimuli and retreat into the imagination. Therefore, at any moment users might feel "present" in one of three places, but when the incoming information from the unmediated physical space is technologically or attentionally diminished or suppressed, and the media interface allows the mind to focus on information coming from the virtual environment, a person may experience telepresence. In a face-to-face psychiatric consultation the mental health professional has access to much more of the patient’s context, while in a telepsychiatry session the psychiatric has access only to the context that is viewable on the videoconference, being the presence very different. Turner (2001) considers three different contexts influencing presence in telepsychiatry. Primary context refers to the immediate presence of De las Cuevas, González de Rivera the participants. It refers to what appears salient to the participants. Within telepsychiatry, the primary context is the image on the video monitor. Within a traditional encounter, the primary context is the immediate distance around the participants. Within that primary context, some secondary context is available, but is not the focus of participants. Within the telemedicine encounter, this may include sounds that give information regarding what is occurring outside the image displayed on the video monitor. Within traditional encounters, secondary context refers to the room within which participants meet. Peripheral context is the ancillary context that is not a part of the telemedicine encounter at all. Within the traditional encounter, the peripheral context may include the walk into the building, the walk down the hallway, and the impromptu meeting with nurses outside of the patient's room. We propose to distinguish between three main applications of telepsychiatry a) clinical, concerned mainly with diagnostic interviewing and treatment supervision, b) consultation with family practitioners and paramedics and c) psychotherapy. In the review conducted by Hilty et al. (2003) the degree of satisfaction among users of the clinical application was very high, albeit satisfaction among the nurses and family practitioners who consulted a psychiatrist expert was not so evident. The diagnostic reliability of telepsychiatry was high, with good interrater reliability for a wide range of psychiatric disorders in children, adults and geriatric populations. A significant technical consideration made by Hilty is that most positive studies use transmission speed equal or higher than 128 kbs, which is the minimal speed required to simulate real life experience. In our experience, we prefer to operate at 384 Kbps. 384 Kbps is certainly more comfortable because of clearer picture resolution, smoother motion and synchronicity of sound. Nevertheless, 113 we need to have in mind that the quality of the videoconference is a combination of hardware, transmission speed and room environment, although debate on quality has however centred on the transmission speeds as the most significant of these factors. For telepsychiatry purposes, and considering presence as the goal to achieve, videoconference rooms can be thought of as one-half of a pair; each room is an extension of the other. Videoconference rooms that share the same interior design help all participants feel that they are in the same room. This removes the natural sense of distance and promotes a sense of closeness and privacy, An adequate lighting that ensure the transmission of good quality images and a room design that take into account the required acoustical needs also facilitate the sense of presence. The appearance of the telepsychiatry room can affect the way participants feel about teleconsultations. The surroundings should be warm and comfortable. The colours selected for the interior walls, floor and furnishings should be pleasant; avoid saturated colours. Colours such as taupe, blue and salmon remain "truer" after video transmission than do greens, reds or browns. The issue of “presence” is particularly important in psychotherapy, where the mediated interaction between patient and therapist introduces new parameters more relevant to consideration about the setting. In fact, the American Psychiatric Association Resource Document on Telepsychiatry (1998), while clearly endorsing the usefulness of telepsychiatry for clinical interviews, emergency evaluations, case management, forensic psychiatry and clinical supervision, is, albeit not negative, more reserved in terms of its application for psychotherapy. Lombard and Ditton (1997) define the feeling of presence as the subjective experience of 'being there' in mediated environments such as virtual reality, simulators, cinema, television, etc From the point of view of counter transference issues, Kaplan (1997) signals that some psychiatrist are reluctant to carry on mediated psychotherapy, and the perception of this reluctance may deter the patients from asking or exploring for this possibility. On commenting on this issue, Joyce Aronson (2000), in the introduction to her excellent book on Psychotherapy by Telephone makes the, probably accurate, sexist remark that “Men often confine their telephone use to the accomplishment of specific tasks, and women are usually more comfortable in relating over the phone”. Relationship is, in fact, a key issue on psychotherapy. Counselling and some forms of psychotherapy, such as cognitive-behavioural techniques, seem more appropriate for telepsychiatry than the more empathic methods. However, Saul (1954) published the first report on the use of the telephone as an adjunct for psychoanalysis, and Robertiello, as soon as in 1972, was reporting the use of this same media in conducting psychoanalytically oriented psychotherapy sessions. McLaren et al. (1995) found increased interpersonal distance appeared to enhance communication on some patients who felt more comfortable self-disclosing at a distance. However, they also noted that the technology limited ability to perceive certain nonverbal behaviours. In addition, both the patients and the psychiatrists were somewhat distracted by the equipment and felt selfconscious viewing themselves on the monitor. In fact, diluting and controlling the presence of the psychotherapist, so as to feel less influenced by him, may be an important motivation to seek telepsychotherapy by some patients. In our own experience, (Gonzalez de Rivera, 2004) social phobics and obsessional patients are more likely to complete on line questionnaires on stress reactivity and to inquire or solicit internet-mediated Some Considerations about the Concept of Presence in Telepsychiatry psychotherapy. This trend may be related to Kraut et al. (1998) research on internet users, which tend to feel more lonely and depressed than controls, and to have lighter and more restricted interactions in the physical world. Excessive use of internet, they contend, has a negative effect on the socialization experience. If this is so, encouraging telepsychotherapy may be a double-edged sword: In one hand, it may facilitate therapy for people unable or unwilling to tolerate the physical presence of a therapist. On the other hand, this very physical presence and the interaction in the real –non-mediated- world may be the most important therapeutic tool for those patients, and telepsychiatry psychotherapy would be, then, inappropriate. In our view, a medium term position will be to consider the virtual relationship achieved by telepsychotherapy as a Transitional Object, in Winnicott terms, and use it as and adjunct to facilitate and promote a therapeutic relationship. Examples of similar uses of objects and situations in psychotherapy are illustrated by Grolnick et al. (1978). A case is reported by Aronson (2000) of the treatment of a very fragile patient by interspreading consultation-room sessions with telephone sessions. In her two influential books, Sherry Turkle (1984, 1995) contends that the irruption of mediated communication in our lives has introduced a new element not previously present: the interaction with the computer itself –or, more precisely, with the program the machine is running. Starting by the simple observation of the deep absorption of children on computer-games, Turkle (1984) goes on analysing the mentality of hackers, often isolated and ineffectual in the real world, who become heroes when launched through internet. She depicts well this ability to achieve a deep interaction with the computer in her following sentence, worth quoting: “The romantics wanted to escape rationalist egoism by becoming one with nature. The hackers find soul in the machine”. Psychiatry has now not only a new tool, but also a new area worth exploring, that of “Identity in the Age of Internet” (Turkle, 1995) Although not seriously intended for psychotherapy uses, the program ELIZA, developed by Weizenbaum (1976) in M.I.T. in the late 60´s as an experiment on artificial intelligence, so engages the user that some may end up by experiencing a real feeling of presence, and treat the program as a real therapist. In order to finalize, the implementation of telepsychiatry activity provides the opportunity for healthcare providers to understand the importance of communication processes to the healthcare encounter. Professionals involved in the practice of telepsychiatry must be conscious of the important role that presence and telepresence play in providing information regarding the mental healthcare context. References APA Resource Document of Telepsychiatry via Videoconferencing. Approved by APA Board of Trustees 7/98. www.psych. org/psych_pract/tp_paper.cfm Aronson, J: Use of the Telephone in Psychotherapy. New Jersey, Jason Aronson, 2000 Barfield, W., & Webhorst, S. The sense of presence within virtual environments: A conceptual framework. Proceedings of the fifth International Conference of Human-Computer Interaction, 1993, 699-704. Bashshur, RL. On the definition and evaluation of telemedicine. Telemed J 1995; 1: 19-30. Clarke, PHJ. A referrer and patient evaluation of a telepsychiatry consultationliaison service in South Australia. Journal of Telemedicine and Telecare 1997;3(Suppl1):12-4. De las Cuevas C, Artiles J, De la Fuente J & Serrano P. Telepsychiatry in the Canary Islands: User Acceptance and Satisfaction. Journal of Telemedicine and Telecare 2003; 9, 4: 221-224. 114 Gammon D, Bergvik S, Bergmo T & Pedersen S. Videoconferencing in psychiatry: a survey of use in northern Norway. Journal of Telemedicine and Telecare 1996; 2:192-8. Gonzalez de Rivera, JL: Instituto de Psicoterapia & Investigación Psicosomática. http://www.psicoter.es/estres. asp Grolnick, SA, Barkin, L and Muensterberger, W: Between Reality and Fantasy. Transitional Objects and Phenomena. Jason Aronson, New York, 1978 Held, R. M., & Durlach, N. I. Telepresence. Presence, 1992, 1(1), 109-112. Hilty, DM, Liu, W, Marks, S and Callahan, EJ: The effectiveness of telepsychiatry. A review. Bulletin of the Canadian Psychiatric Association, October 2003 Janca, A. Telepsychiatry: an update on technology and its applications. Current Opinion in Psychiatry, 2000; 13: 591597. Kaplan, E: Psychotherapy by telephone, videotelephone and computer videoconferencing. Journal of Psychotherapy Practice and Research, 1997, 6:227-237 Kim, T & Biocca, F. Telepresence via Television: Two Dimensions of Telepresence May Have Different Connections to Memory and Persuasion. Journal of Computer-Mediated Communication, 1997, 3 (2):http://www.ascusc. org/jcmc/vol3/issue2/kim.html Kraut, R, Lundmark, V., Patterson, M, Kiesler, S, Mukopadhyay, T and Scherlis, W: Internet Paradox: A Social Technology That Reduces Social Involvement and Psychological Well-Being? American Psychologist, 1998, 53: 1017–1031 McLaren, P., Ball, C., Summerfield, A. B., Watson, J. P., & Lipsedge, M. (1995). An evaluation of the use of interactive television in an acute psychiatric service. Journal of Telemedicine and Telecare, 1, 79-85. Lombard, M and Ditton, At the Heart of It All: The Concept of Presence. Journal of Computer-Mediated Communication, 1997, 3 (2): http://www.ascusc. org/jcmc/vol3/issue2/lombard.html Robertiello, RC Telephone sessions. Psychoanalytic Review, 1972, 59:633-634 Saul, LJ. A note on the telephone as a technical aid. Psychoanalytic Quarterly, 1954, 20:287-290 Sheridan, T. B. Musings on telepresence and virtual presence. Presence, 1992, 1(1), 120-126. Steuer, J. Defining virtual reality: Dimensions determining telepresence. In: Biocca, F., & Levy, M.R. (eds.), Communication in the age of virtual reality. Hillsdale, NJ: Lawrence Erlbaum Associates, 1995, pp. 33-56. Turkle, S: The second self: Computers and the Human Spirit. Simon & Schuster, New York, 1984 De las Cuevas, González de Rivera Turkle, S: Life on the screen: Identity in the Age of Internet. Simon & Schuster, New York, 1995 Turner JW. Telepsychiatry as a case study of presence: Do you know what you are missing. Journal of ComputerMediated Communication, 2001; 6 (4): http://www.ascusc.org/jcmc/vol6/issue 4/turner.html Urness DA. Evaluation of a Canadian telepsychiatry service. Stud Health Technol Info, 1999, 64: 262-269. Weizenbaum, J. "Computer Power and Human Reason: From Judgement to Calculation". San Francisco. W.H. Freeman. 1976. Prof. Carlos De Las Cuevas Department of Psychiatry University of La Laguna School of Medicine, Ofra s/n 38071 Santa Cruz de Tenerife Canary Islands, Spain Email: ccuevas@ull.es 115 Neuropsychiatrie, Volume 18, S 2, 2004, page 116-122 Report The Telemed Project (RACE-Project R 1086): Lessons learned for Telepsychiatry from the first EU funded Telemedicine Project Paul Mc Laren1 and Aime Charles-Nicolas2 1 South London & Maudsley NHS Trust, London 2 University Hospital of Fort-de-France, Martinique Key words Telepsychiatry, EU-funding, nonverbal communication, videoconferencing, broadband. The Telemed Project (RACEProject R 1086): Lessons learned for Telepsychiatry from the first EU funded Telemedicine Project ISLANDS is the latest EU funded Telepsychiatry project. The Telemed Project (RACE-1068) which ran between 1990 and 1994 was the first. This paper reviews the technical and organisational background to Telemed and summarises key results. High levels of acceptance were found among acute adult psychiatric patients. Telemed was highly ambitious but failed to produce technical innovation or to generate a marketable videoconferencing kit. It did launch a Telepsychiatry research programme which has continued in London. Research questions arising from the project centred on the impact of the videoconferencing medium on the clinical consultation. Introduction The RACE-1068 Telemed Project was the first major telemedicine project funded by the European Commission. The driving force behind RACE was the search for clinical applications for broadband communications links. The Consortium mem- bers of Telemed are listed in Appendix I. Key results from Telemed have been published elsewhere [2, 7]. This article will review the project process and results from the Telepsychiatry work group within the project. Telemed was a multidisciplinary multi-professional project, with the primary objective of developing healthcare applications for emerging broadband telecommunication links. Clinical applications included imaging in cardiology, radiographic image database management and Telepsychiatry. The consortium contained technical, clinical and research experts, managed by Detecon in Berlin. Telemed and Telepsychiatry Within Telemed Workgroup 5 had the tasks of first developing a Low Cost Videoconferencing system (LCVC) and then a Medium Cost Videoconferencing System (MCVC) for remote diagnosis and treatment in psychiatry. This workgroup had partners in France, at the Croix Rouge (Centre Pierre Nicole) in Paris and subsequently the Centre Hospitalier Specialise de Ville-Evrard , the Free University of Berlin, the United Medical and Dental Schools of Guy’s & St Thomas’s hospitals and the Department of Cognitive Psychology at Birkbeck College in London. Technical support for the specification and construction of the videoconferencing kit was provided by STC (Standard Telephones and Cables). The project consortium was diverse. This was stimulating but also generated considerable organisational demands. The technical environment at the time of inception of the project was rapidly changing, in respect of communication options and the videoconferencing kit. This led to lively debate between the technical partners in the early phases, about the choice of communication carrier, whether the emerging broadband network or satellite should be used. The availability of broadband links, at costs which had been built into the project, was limited and although a common platform was sought but it was soon recognised that this was not realistic to achieve within the timescale of the project. Workgroup 5 The aims for workgroup 5 were to develop an LCVC for remote diagnosis and treatment, to perform a requirements capture for the use of videoconferencing in mental health care in France, Germany and the United Kingdom and then to build and test a Medium Cost Videoconferencing system (MCVC) in clinical psychiatry. The Cognitive Psychology Group at Birkbeck College studied the effects of altering the image parameters on the LCVC on laboratory recognition tasks. Mc Laren, Charles-Nicolas Method The kit Three sets of the LCVC were built. Two were installed at Guy’s Hospital in an acute psychiatric unit and one was installed at Birkbeck for the laboratory studies. The LCVC was based on an Archimedes 310M personal computer using a Watford Archimedes realtime digitiser connected to a monochrome video camera. The software could run on 1 Megabyte of memory and was configured to load and run from disk when switched on. It had a mousebased interface and the image was displayed in a quarter-screen window (160 x 128 pixels). The user could select the image parameters of 16 grey levels at 25 frames per second or 64 grey levels at 12.5 frames per second with an image of 128 x 128 pixels. The miniature camera was mounted on top of the monitor. A selfview image was displayed on a separate local monitor. If the user sat about 1.3 m in front of the camera, then a satisfactory head and shoulders shot was obtained. In Guy’s Hospital the LCVC ran over a co-axial cable between two floors in the psychiatric unit. Sound was generated and transmitted separately using two Technics HiFi amplifier and loudspeaker systems connected with coaxial cable. The kit from Guy’s was taken by car to Ville-Evrard in Paris for field testing for two weeks. It was set up between two rooms in an acute psychiatric unit. The unit cost of the LCVC at the time of construction was approximately £ 1500. The MCVC was also based on an Archimedes PC connected via a Craycom multiplexer to a British Telecom Megastream leased line. Two MCVC kits were built and used to connect the acute ward at Guy’s with the Speedwell Mental Health Centre about 10 km away. The installation of the Megastream link and 117 testing produced considerable delay which meant that the availability of the leased line was limited for clinical research. The leased line was expensive, £ 6000 for the year and its use could not be continued after the project funding ran out. Evaluation Within the project a range of study designs were employed to evaluate the use of the LCVC in clinical settings. These included single case studies, case series and comparative studies. Qualitative and quantitative methods were used to collect data through observation, participant observation, user self-report on structured and semi-structured questionnaires. A log was kept of individual interactions. Observers watched interactions initially by sitting in the room and then via a close circuit television system into one of the LCVC rooms from an adjacent room. As confidence grew in the acceptability and reliability of the system, patients were left on their own. The Cognitive Psychology group at Birkbeck examined the relationship between picture parameters and cognitive tasks such as the recognition of facial expression using student volunteers. A key assumption of the evaluation performed by the Guy’s group, was the need to understand the changes in the clinical interview process caused by the medium, the LCVC. This was influenced by the University College London (UCL) Social Psychology Research Group [12]. This group was funded by the British Post Office, to study the social psychology of the use of the new telecommunications media, audio conferencing and videoconferencing and to identify factors that would improve the efficiency of their use in business. These authors developed the construct of social presence to explain how different media might impact on social exchange. This was derived in turn from work by Morley and Stephenson [10], on inter-party and interpersonal exchange. Inter-party exchange relates to acting out a role and an agenda, interpersonal exchange is to do with developing a personal relationship. The UCL group regarded social presence as being made up of factors such as sociable-unsociable, insensitive-sensitive, cold-warm, personal-impersonal. Media with a high degree of social presence are judged as being warm, personal, sensitive and sociable. The LCVC was introduced into the routine operation of the ward at Guy’s. This was facilitated by the senior psychiatrist on the project who was also the Consultant Psychiatrist on the ward where the LCVC was sited. The psychiatrists on the ward and the nursing team were asked to consider using the LCVC to substitute for face-to-face communication in a range of clinical tasks. These included senior doctors supervising junior doctors, the ward doctor communicating with the nursing team and senior and junior doctors interviewing patients. Patients were offered the opportunity to see the LCVC andto use it informally before using it to talk to the psychiatrist. Informed written consent was obtained from patients entering the study. Different approaches to collecting subjective data were explored. This included the Personal Questionnaire Rapid Scaling Technique designed by Mulhall [11]. This is an ideographic technique but for the purposes of this study statements were generated from service users and doctors who had used the LCVC. Key themes were identified and two versions of the questionnaire produced, one for professional users and one for patients. The statements in Table 1 were used to collect data on professional user responses. The Telemed Project (RACE-Project R 1086) Table 1 PQRST statements for professional users 1. My satisfaction was 2. My need to see the other today is Table 3 Focussed Observation Scale for Health Professionals 1. How easy did you find making contact 3. My need to seek advice from a colleague is 118 for this interaction ? 2. How comfortable did you feel establis- 4. My understanding of the problem was hing dialogue once contact had been 5. The reassurance I gave was made? 6. The level of rapport I established was the dialogue? 4. How much did the equipment interfere 9. My anxiety was ded task(s)? 5. How confident are you to make deci- In Table 2 the PQRST items given to patients after they had used the LCVC are listed. 6. Do you think you need to talking per- Table 2 7. Did the equipment you were using sions on the basis of this interaction? son to the other to complete your task effectively? interfere with the dialogue? 8. Do you think the equipment upset the 1. My anxiety was 2. The degree to which I feel better is 3. My level of frustration was other? 9. Did you find the equipment upsetting ? 10. How anxious did you feel using thee- 4. My disappointment was 5. The extent to which my problems were quipment? 11. How self-conscious did you feel using understood was the equipment? 6. My need to see the doctor today is 7. My ability to explain what I wanted was 8. My satisfaction was 9. The reassurance was A rating scale, the Focussed Observational Scale (FOS), was also developed for patients and health professionals. The FOS questions are listed in Table 3. Each item was rated on a five point numerical scale from 1 labelled ‘Not at all’ to 5 labelled ‘Very’. The first three questions refer to the ease with which a dialogue is established. The next three questions refer to the task that needs to be performed during the interaction. The final group of questions referred to the interpersonal aspects of the exchange. The French experience with your ability to perform your inten- 10. The clarity of my explanations was PQRST statements completed by patients Results 3. How clear was it to you when to end 7. My frustration was 8. My enjoyment was Videotape recordings were made of the image transmitted over the LCVC in a proportion of the interactions to facilitate the study of nonverbal aspects of the communication. A version of this questionnaire was also developed for patients. This is in Table 4. The first two questions guage the general response and the last three relate to their reaction to the LCVC. Table 4 Focussed Observational Scale for Patients 1. Do you feel better after talking to the doctor/nurse? 2. Do you feel worse after talking to the doctor/nurse? 3. Do you now want to talk to your doctor in person? 4. 5. Did you feel upset by the machine? Did the machine make it easier to talk to the doctor or nurse? 6. Would you be willing to use the machine again? In the Telemed project France was represented by the Centre PierreNicole in Paris and subsequently by the Centre Hospitalier Specialise de Ville Evrard. Their task was to specify and to test the impact of using a Low Cost Videoconferencing System (LCVC) for remote diagnosis and treatment. The clinical setting in Paris for the installation of a telephone equipment combining the image with the voice was prepared by Prof. A. CharlesNicolas. One end of the link was located at the Centre Pierre-Nicole, a drug addiction treatment and rehabilitation center headed by Prof. CharlesNicolas. In this center, managed by the Croix Rouge Française, there was a unit caring for mothers who were drug addicts and HIV positive together with their new-born babies. The other end was 2 kilometers away in the paediatrics and obstetrics department of Cochin Hospital. This videolink included the delivering of diagnosis and a psychological support. It should allow the mothers, still pregnant or not, addicted to heroin to have interviews with the addiction staff of Pierre Nicole Center. It allowed also the latter to get advice from the Cochin paediatricians about the care of the babies. This setting has been replaced by the Ville Evrard Psychiatric Hospital where two sets were transported in and tested over a two week period. A series for pilot studies were performed in which patients and clinical staff were asked to take part in a clinical task mediated by the videolink. The FOS instruments were Mc Laren, Charles-Nicolas translated into French and checked by back translation. The focus of the observational and self-report assessment was to determine whether the medium interfered with the clinical task. Clinical tasks which were studied included: • Review of inpatients by a ward doctor • Psychotherapy assessment • A comparison of face-to-face, telephone and novel audio-video conditions. General findings of the French group The Psychiatric patients (sometimes from ethnic group highly deprived) adapted very easily to the videoconferencing medium. Professionals were much more wary and expressed concerns that the medium would upset the patients. The psychotherapists felt distanced by the medium. The French psychiatrists were concerned about the impact of the consultation on the therapeutic relationship [4, 9]. Exploratory work was done on therapeutic processes, looking at the impact on nonverbal behaviour. The most striking finding from this phase was the ease with which patients took the using of the system. One of the more deplorable outcomes of this experience was the lack of cross fertilization between workgroups. The groups came together for project management issues but they were so disparate in clinical expertise that there was little scope for scientific collaboration. This first phase was technically possible because the connection of the LCVC needed a coaxial cable. The Medium Cost Videoconferencing System (MCVC) to be tested in phase 2 of this project should be linked across broadband links. Unfortunately, the high cost of broadband at this time put an end to the French participation in this consortium. 119 General findings of the UK group The Birkbeck group completed their deliverables on time and confirmed that basic facial expression recognition tasks could be completed over the LCVC. There was considerable delay in achieving the technical deliverables for the project. This was in part due to technical difficulties in linking the MCVC to the broadband network, but also because the communications costs for the use of broadband in France and Germany far exceeded what had been put in the budget. The result was that most of the clinical evaluation was performed on the LCVC connected with co-axial cable between two rooms in the inpatient unit at Guy’s and in VilleEvrard. While the original plan was to test the MCVC in the United Kingdom, France and Germany, it was only tested in London. Considerable effort and resources went into a requirements capture identifying patterns of healthcare delivery in the areas to be studied but this bore little relevance to the final clinical study, which had been demarcated before the project started by the project plan. The potential of the LCVC for remote teaching and tutoring of students and trainees was recognised at an early stage and the LCVC was used successfully for medical student teaching [6]. Professional users complained that the PQRST was complicated, time consuming and difficult to complete. The PQRST system proved over-elaborate and gave inconsistent responses. It was abandoned after the first phase of the study for the more concise FOS. General observations from the clinical trials of the LCVC It was difficult to get the nurses on the ward to use the LCVC for communication. They had pressures on their time with high levels of patient turnover and the project lacked a champion within the nursing team. Finding an appropriate room to position the LCVC was challenging and demanded considerable attention. A balance had to be struck between accessibility in a clinical area and not impeding access to that room for other professional users. Space was at a premium and it was considered desirable that the LCVC was kept close to but separate from the nursing station. In one of the wards the LCVC was in a room with a close-circuit television link to an adjacent room. The rooms were in demand on the busy wards. They also overlooked a courtyard and were not far from a busy road. Extraneous noise sometimes interfered with the sound quality in the LCVC. Over the first 15 months of the study there were no technical failures or delays in getting a satisfactory image. The high levels of patient acceptance were striking and not restricted to young users. One middle aged West Indian woman, with severe schizophrenia and detained against her will adapted, very quickly to using the LCVC. When questioned she said that in her Pentecostal church a microphone was passed around during the service and using the LCVC microphone reminded her church. No spontaneous complaints were made about improving the image. The LCVC image quality did not appear to observers to be limiting the interaction but on occasions the sound quality did. Audio feedback was a problem if users spoke softly and the amplifier had to be turned up. One patient insisted on leaning forward to use the microphone which moved his head out of the camera range. Attention needed to be paid to the relationship between the picture parameters and ambient illumination. In tasks with little movement 64 grey scales gave better image definition. At this level there was still considerable glare off dark skinned users, which mad it harder to see facial expression. The frame rate at 25 frames/s proved inadequate for captu- The Telemed Project (RACE-Project R 1086) ring involuntary jerking movements. Even at 64 grey scales writing on a page of A4 could not be interpreted at the remote end. Two patients, one with hypomania and one with schizophrenia became focussed on the technology and this distracted them from the interview. A patient with schizophrenia said, “I look better on the screen” and also , “It could be a temptation for some people to take their clothes off”. One doctor reported getting fatigued by the effort of concentrating on the screen, after thirty to forty minutes of continuous use. On further questioning he explained that he found it more difficult to leave periods of silence and had to keep the dialogue moving. Not all patients admitted to the ward during the study were asked to use the link but most were. Some opportunities were missed because of lack of room availability. Refusals were given particular attention and details of the reasons for refusal to participate in the study were recorded. Most were due to illness rather than concerns about the link. One patient with schizophrenia asked to stop after he had started to use the LCVC and the observers thought he may have incorporated the LCVC into his delusional system. Psychiatrists were reluctant to use the LCVC for sensitive interactions such as given a diagnosis of HIV and asking patients to leave the ward because of difficulties with their behaviour. One patient refused after the brief trial and two after they had started to use the LCVC. Other psychotic patients used the link on up to eight occasions without incorporating the technology into their psychopathology. Another patient reported that she would be keen to use the link because she would feel more comfortable being in a different room from her male therapist. She also felt more positive about being able to control the image and limit it to a head and shoulders view. The main predictor of refusal was compulsory treatment with seven out of thirty-three such patients refusing. The protocol and link was acceptable to even seriously ill psychiatric patients. Only one with Bulimia Nervosa refused after a trial run. She also reported discomfort talking on the telephone. Two experienced Psychotherapists were asked to use the LCVC to assess patients [5]. The rationale for this was that as Psychotherapists they would be sensitive to the effects of the medium on the process. One felt the machine brought a quality of distance to the interaction. He described wanting to ‘climb into the machine to get closer’ to the patient. He felt inhibited in asking questions about sexuality and was confused if a feeling of irritation was a countertransference to the patient or the LCVC. He reported that he had also felt uncomfortable talking to patients on the telephone. A second, psychodynamically orientated, psychotherapist felt that on the LCVC, he was having a ‘nice chat’ with the patient rather than getting’ under the surface of the problem’ He claimed that he could no longer detect subtle nonverbal cues such as pupillary changes. He felt that his nonverbal behaviour, which would usually put the patient at ease during an interview was missing on the LCVC. He summed up the whole experience as, ‘trying to propose marriage to someone in Australia on the ‘phone that you don’t even know’. Figure 1 120 The reactions of these Psychotherapists, who were not actively involved in Telemed, echoed the reservations of other professional users who reported uncertainty as to the origins of feelings generated during an LCVC consultation. Is a reaction during a consultation determined by the LCVC or the patient? The possible contagion effect from telephone ‘phobia’ is worthy of further investigation. In respect of the quantitative data, patients completed FOS questionnaires on 47 consultations on the LCVC. High levels of acceptance were reflected by 35 scoring 4 or 5 when asked if they would use the LCVC again to talk to their psychiatrist. For the same interactions the degree to which the professionals thought the patients were upset by the link (Question 8 on the professional FOS) was compared with the actual patient response (Question 4 on the patient FOS). In 25 of 44 interactions the psychiatrists over estimated the degree to which the patient was upset by the LCVC. Six under-estimated this distress and in 13 it was estimated correctly ( Figure 1) Exploratory studies An exploratory study was performed on the reliability of the Brief Psychiatric Rating Scale (BPRS), rated by independent psychiatrists Mc Laren, Charles-Nicolas seeing the patient by LCVC and faceto-face, with the order randomised. Four patients and two psychiatrists participated. Significant positive correlations were found and for the observational subscale the correlation coefficient was 0.84 [1]. The reliability of cognitive testing over the LCVC was also explored [3]. Studies also looked at levels of messy turn taking, when the participants spoke simultaneously in conversation, and mutual gaze for the LCVC consultations. Rates of messy turn taking were higher for LCVC consultations than face-to-face but this difference did not reach statistical significance. Episodes of mutual gaze appeared longer in LCVC consultations than one would predict from normative data. Numbers were small and the range was large making firm conclusions difficult. When interviewing a patient on the LCVC a user can only see the head and shoulders image of the other user. Nonverbal communication from other body areas is lost. The effects of this loss of non-verbal communication on the clinical impression formed by the psychiatrist was studied. Six areas of potential clinical significance were chosen for investigation: anxiety, depression, anger, flattening of affect, incongruity, and involuntary movements. Twenty-three one minute segments taken from five interviews were used for rating. Each interview had been simultaneously videotaped from two camera angles, one of the head as seen over the LCVC and the other of the body of the interviewee viewed from the side. Incongruity and involuntary movements occurred too infrequently to be included in the analysis. The results showed that, in general, a head only view does not significantly impair clinical judgements of depression, anger, and flattening of affect; but that it does impair the assessment of anxiety. 121 The MCVC The ultimate objective for Workgroup 5 of Telemed was to establish a videoconferencing link over broadband. This was done, but only after considerable delay. A case series was studied of patients attending an outpatient clinic at the Speedwell Mental Health Centre. One MCVC was installed there and the other at Guy’s hospital about 10 km away. Patient responses were positive and a protocol for running such a remote clinic developed (8). Prescriptions for medication were posted to the patient’s home. This phase of the study was terminated prematurely because no further funding was available for the broadband link. Discussion The LCVC and MCVC were technically obsolete before the end of the Telemed project and had no potential for commercial exploitation. The main benefits accruing from the inclusion of technical and clinical academic partners together in the project were building new relationships and mutual understanding. The planning of Telemed was highly detailed and this reduced the flexibility for following leads in an area of new research. Workgroup 5 recognised at an early stage that the technical results would be of limited value and focussed on studying user responses and research methods for understanding the impact of the medium on clinical communication in psychiatry. The report of the incorporation of the technology into a psychotic delusional system is significant and worthy of further study. Previous authors such as Solow [13] had not obtained this finding. Another interesting finding was the tendency of psychiatrists to over-estimate the degree to which the LCVC upset patient users. This may be a novelty effect, an effect of image quality or evidence of professional bias but its importance should be elaborated before Telepsychiatry services can be more widespread. Telemed started to look at the impact of the medium on the clinical communication but barely scratched the service. Useful exploratory work was performed on the methods which could be used to tease out these issues. Telmed stimulated the research groups at Guy’s and the Croix Rouge to work further in this field. Literature [1] [2] [3] [4] [5] [6] [7] Ball, CJ & McLaren, PM (1995) “Comparability of Face-to-Face and Videolink Administration of the Brief Psychiatric Rating Scale” American Journal of Psychiatry 152-6 Ball, CJ; McLaren, PM; Summerfield, AB; Lipsedge, MS & Watson JP (1995.) A Comparison of Communication Modes in Adult Psychiatry. Journal of Telemedicine and Telecare. 1, 22-26. Ball, CJ; Scott,N; McLaren, PM & Watson, JP (1993) “Preliminary Evaluation of Low Cost Video-conferencing (LCVC) System for Remote Cognitive Testing of Adult Psychiatric Patients” British Journal of Clinical Psychology 32, 303-307 Glikman, J; McLaren, PM; Lipsedge, M; Abraham, A; Marcellot, JG & Bagoe, MC La Pratique des Conferences Cliniques Telephoniques Entre Equipes Pshciatriques en Europe Presented at LXXXX eme Congress de Psychiatrie et de Neurologie de Langue Francaise Saint Etienne, France 15-19 June 1992 McLaren, PM; Ball, CJ & Watson, JP (1993) “Assessment for Psychotherapy by Interactive Television Suitable for Transmission Through Telephone Links” Psychiatric Bulletin 17, 104-05 McLaren, PM; Ball, CJ; Summerfield, AB; Lipsedge, M & Watson, JP (1992) “Preliminary Evaluation Of A Low Cost Video-Conferencing System For Teaching In Clinical Psychiatry” Medical Teacher 14, 103-109 McLaren, PM; Ball, CJ; Summerfield, AB; Watson, JP & Lipsedge, M (1995) “An Evaluation of the Use of Interactive Television in an Acute Psychiatric Service” Journal of Telemedicine and Telecare 1, 79-85 The Telemed Project (RACE-Project R 1086) [8] [9] [10] [11] [12] [13] McLaren, PM; Blunden, J; Lipsedge, & M; Summerfield, AB (1996) “Telepsychiatry in an Inner-City Community Psychiatric Service” Journal of Telemedicine and Telecare 2, 57-59 McLaren, PM; Glikman, G; Abraham, A; Ball, CJ; Lipsedge, M & Watson, JP Comparison of User Responses to a Digitised Interactive Videoconferencing System for Remote Diagnosis and Treatment in Psychiatric Services in France and the UK Presented at World Congress on Telemedicine Toulouse November 30 - December 1 1995 Morley I.E. & Stephenson G.M. (1969) Interpersonal and inter-party exchange; A laboratory simulation of an industrial negotiation at the plant level. British Journal of Psychology, 60. 453-545 Mulhall , D.J. (1976). Systematic SelfAssessment by PQRST ( Personal Questionnaire Rapid Scaling Technique). Psychological Medicine,6. 594-97. Short J.A., Williams E., Christie B. (1976). The Social Psychology of Telecommunications. London. Wiley International Solow C.& Weiss R.J. (1971) 24 hour Psychiatric Consultation via TV. American Journal of Psychiatry.127: 12. Appendix I The Telemed Consortium Alcatel Espace Alcatel-STK C.N.U.S.C. Croix Rouge, Paris Detecon Dt. Herzzentrum IDATE Inst. Hospitalier Montpellier Irish Medical Systems Norwegian Telecom SEL SIETTE STC Swedish PTT Swiss PTT Telefonica Sistemas Telesystemes University of Florence University of Heidelberg University of London 122 Dr Paul McLaren MB BS MRCPsych Honorary Consultant Psychiatrist South London & Maudsley NHS Trust Speedwell Mental Health Centre 62, Speedwell Street London SE 8 4 AT Email: PMcl639251@aol.com and Medical Directo The Priory Ticehurst House Ticehurst, Wadhurst East Sussex TN5 7HU United Kingdom Professeur Aime Charles-Nicolas MD, PhD Professor of Psychiatry and Psychological Medecine University Hospital of Fort-de-France PO Box 632 97261 Fort de France (Martinique) France Email: aime.charles-nicolas@martinique. univ-ag.fr Neuropsychiatrie, Volume 18, S 2, 2004, page 123-126 Report Perspectives of Communication Technology in Psychiatry: The ISLANDS Project in Greece Antonios Politis1, Artemios Pehlivanidis1, Angelos Amditis2, Zoi Lentziou2, † Marios Markidis1, Georgios Trikkas1 and Andreas Rabavilas1 Athens University Medical School, Dept. of Psychiatry, Eginition Hospital, Athens 1 Institute of Communication and Computer Systems, Athens 2 Key words telepsychiatry, information technology, telematics, Islands Project Perspectives of Communication Technology in Psychiatry: The ISLANDS Project in Greece Abstract: The genesis and application of new communication technology in delivering psychiatric services in Greece is presented. More specifically in Greece the application of communication technology in delivering mental health services includes the low cost telephone lines. Recently new communication technologies has been introduced in mental health in order to provide information and educational material on mental health issues. Moreover this articel focuses on conceptual issues of the Islands Project in Greece such as: the aim and methodological issues in the development of this project and underlying the lack of other projects and the lack of a comprehensive research strategy that specifies the objectives of telepsychiatry in remote areas in Greece. Introduction Contemporary trends concerning health and welfare, as described by the World Health Organization suggested that “… health, which is a state of complete physical, mental and social well being, and not merely the absence of disease or infirmity, is a fundamental human right and that the attainment of the highest possible level of health is a most important world-wide social goal whose realization requires the action of many other social and economic sectors in addition to the health sector”. Even if these criteria are not fully met by the medical services provided worldwide, the main objective is to provide to the entire community high quality medical and welfare services, especially to those most in need. This may be the case of the mental health needs in the remote areas (rural and insular). Telemedicine is a term applied for specific clinical appellations, such as teleoncology, teledermatology, or telepsychiatry. Furthermore, diagnostic medical services such as radiology and pathology use this technology to capture, transmit, store, and retrieve information and also are provided by specific designations which, in this instance are teleradiology, telecardiology and telepathology, respectively. Bird [1], provided the first formal and published definition of telemedicine as “the practice of medicine without the usual physician-patient confrontation”. Another definition was proposed by Bashshur [2]. This definition viewed telemedicine as a system of care composed of six essential elements: (a) geographic separation between provider and recipient of information, (b) use of information technology as a substitute for personal or face-to-face interaction, (c) staff including physicians, assistants, and technicians, (d ) the deve- lopment of an organizational structure suitable for system or network development and implementation, (e) normative standards in terms of physician and user regarding quality of care, confidentiality, and acceptance. The development of new communication technologies promises to enhance access to healthcare for remote disadvantaged communities, since all citizens have equal rights to benefits pertaining to the healthcare system. Successfully functioning in Greece are the low cost telemedicine systems, that includes telecardiology and teleradiology. There is a growing need for mental health services, in the national health care system, in order to cover gaps, between urban areas and insular areas in Greece. The application of communication technology and essentials of telemedicine in the delivery of psychiatric services, is telepsychiatry. Telepsychiatry therefore includes all forms of contemporary communication technologies applied to mental health services: synchronous real time audio data (telephone), synchronous real time audio and video data (videoconference), store and forward (e-mental health services). The later, could be define as new communication technologies and includes both the internet dissemination of psychiatric information and educational material through web sites and the use of the e-mail in providing direct services by professionals. Aims of the present article are to describe the current communication technology in delivering psychiatric services and to Perspectives of Communication Technology in Psychiatry: The ISLANDS Project in Greece present a conceptual framework for the development of Islands Project in Greece. Communication technology and psychiatric services in Greece a. Emergency Psychiatric Help Line Over the years the development of telephone counseling and listening services has become widespread throughout the world [3]. In Greece alternative mental health services with the use of communication technology begun in 1987 with the use of Help Telephone Line located in Athens Mental Health Center [4]. Ten years later 1999 a new Telephone Help Line, the Emergency Psychiatric Help Line (EPHL), was created at Eginition Hospital under the support of the Department of Psychiatry of Athens University. EPHL as a special interest line provides services in situations related to mental health problems [5]. EPHL acts as a bridge between psychiatric services and patients in the community and offers information concerning mental disorders to the families of mentally ill and consultation to medical practitioners in remote rural and insular areas. During the first year of function EPHL (from May 1999 to May 2000) accepted a total number of 2055 phone calls [6]. During the period May 2002 to May 2003 , more than 3900 phone calls and during the period 2001 to 2004, 9000 phone calls. The major domains of reasons for seeking telephone-help was: loneliness, counseling of mentally ill parents and patients (delusional or not), psychological crisis and management of anxious user, psychiatric counseling in health care practitioners. EPHL also, has provided services in the community by facilitating psychological interventions in the context of major disasters [7]. This role may be reflective of the community accep- tance of communication technology in providing mental health services. Despite the fact that EPHL has been receiving phone calls from all over Greece, its potential and purpose are limited and cannot provide full psychiatric coverage to all (mainly insular) under serviced communities. Finally, considering that there is a growing need for mental health services a significant question to be asked is whether the development of full scale telepsychiatric services with the application of new communication technology (NCT) (both telephone, emental health units and videoconference units) can cover the existing gaps and the needs in the national mental healthcare system [8]. b. E-mental health The department of Psychiatry at Athens University, Eginition Hospital has commenced the operation of the “Glaucopis-net”, (http://glaucopis. eginitio.uoa.gr) a network aiming to provide e-mental health services through the internet. Glaucopis-net is being deployed with the help and know-how of the laboratory of Medical Physics at Athens, Greece, University. The net is directly linked to the Athens ‘Asclepieion Park’, developed by the above mentioned laboratory. The 'Asclepieion Park of Athens' is the first pilot application of the 'Modern Asclepieions' concept in which Health and Culture are promoted in parallel for the benefit of the citizens, the patients, the people who look after them and the healthcare and welfare workers. The 'Modern Asclepieions' concept is based on the Ancient Asclepieions, as they were conceived, developed, functioned and evolved in the Ancient Greek World (http://asclepieion.mpl.uoa.gr/ Parko/enchoose.htm). The “Glaucopis-net” website aims to provide emental health services and information to the general population. During the three years of functioning 20012004 more than 3000 visitors joined 124 the net anonymously in order to obtain medical information. The net is linked directly to the mental health services already provided by the Department of Psychiatry and to the Counseling Center for Students. Among the questionnaires the website host are and several assessing the internet use and the extent to which it has affected every-day lives of users. The main target of the “Glaucopis-net” are mostly specific groups of the urban and remote under-serviced areas that have access to internet providing both information regarding the EPHL and educational material. The use of new communication technology (NCT) through the “Glaucopis-net” may be appropriate in order (a) to help people who avoid to visit classical psychiatric services to get in contact by telephone with a mental health specialist (b) to uncover new types of possible problems such as the internet abuse and (c) to provide information on mental health services [9]. The Islands Objectives Project The objectives of the Islands Project has been formulated and includes “…. the development of services in order to provide modular, non-conventional, remote psychiatric and psychotherapeutic assistance for remote areas. By these means quality of life of the users, quality of mental health care and the economic strength of the region should improve and overweight the costs of implementation and service support. The project will reduce inequalities in mental health services and status among European regions …” Politis, Pehlivanidis, Amditis, Lentziou, † Markidis, Trikkas, Rabavilas The Islands Project in Greece: (a) The Islands The Greek pilot will take place in the Cyclades islands for the period August 2004 to February 2005 (for intervention) and June 2005 to September 2005 (for post-evaluation). Data concerning the prefecture of Cyclades is available. Nineteen islands with a population of 110.000 people are serviced by 3 psychiatristis, all occupied at the general hospital, on the island of Syros. A classical example is the island of Andros which is the second largest island of the Cyclades. It is situated in the Aegean sea, 37 n.m. from the east cost of the peninsula of Attika. The island had a population of 10.000 peoplte census of 2002. The number increases significantly to 3 or 4 times during the summer months owing to the influx of the tourist. There are no primary or secondary mental health services. Tertiary services are contracted to mental health hospitals on the city of Athens, that distances 4 hours, and psychiatric services provided by the General Hospital of the island of Syros that distances 3 hours, but without the possibility to provide hospitalization. Users of mental health services have to travel mostly to Athens for psychiatric assessment, treatment and follow up. The health center of the island provides basic psychiatric follow up to about 60 outpatients every month. The medical staff of the health center deal with acute or chronic psychopathological manifestations every month (psychosis, depression and others problems related to substance abuse, acute stress manifestations and dementia) and merely number of patients are admitted in psychiatric hospitals in Athens for specialized psychiatric help. However, there are no data regarding the delivery of psychiatric services from the population and there are no epidemiological data regarding the prevalence and incidence of psychiatric disorders in the island. Our department therefore decided to study the potential benefits of the application of communication technology in the delivery of special psychiatric services to Andros as a pilot plan for the rest of the islands through three different communicational channels: a. desktop videoconference b. low cost telephone line (EPHL) c. ISLANDS system (b) conceptual observations on the pilot study in Greece New Communication technology (NCT) is intend to be used in order to provide affordable high-quality mental health services including diagnosis and continuity of care to patients in areas that are deprived from psychiatric services. The planning and application of NCT in such remote insular areas must take in consideration all possible methodological limitations [10]. There are no studies indicating the frequency of NCT use in mental health from the population in Greece. However, it seems that use of low cost telephone lines and the access in the internet in order to get information or educational material or counseling is more frequent in urban areas than in remote rural and insular underserved areas. This gap between urban and remote areas in the use of communication technology may be the result of various factors. Among them social factors (such as stigma, acceptance of a new communication relationship with a specialist), financial, age related, educational factors and lack of information on the existing services may affect the accessibility to mental health services trough the NCT. Access refers to an individual ability to obtain needed services. Access has various dimension such as geographical, financial, social, cultural and psychological. Often in the geographical dimension of the island we can identify urban and rural, remote areas. The presence 125 of rural and urban areas in the same island may lead to a different pattern in delivering mental health services with NCT. Insular remote areas are sparsely populated and often transportation is needed to visit specialist or low cost telephone lines are in use in order to get counseling in these remote insular areas. Patients evaluated by NCT must still travel to the site where the equipment is located. These facts lead us to believe that a gap may exists also in delivering mental health services in the geographical dimension of the island with different implications for the NCT applications. Considering that economic subsidies will always be necessary, except the cost of equipment, transmission lines, other infra-structure; technical personnel; requirements; space and training staff. Thus evaluating the accessibility, feasibility, effectiveness and costs-efficiency of the new communication mental health services between urban insular and remote insular areas may lead to an improvement of the quality of care provided by the local Health Center, decreasing both the access to tertiary services and the citizen anxiety during an emergency situation. Could other types of services, such as visits by psychiatrists or trained primary care physicians supplemented by telephone contacts with a psychiatrist, provide more personal service at the same or a lower cost? Can a structured interview with the patients and the relatives conducted by another clinician, followed by a telephone call, accomplish objectives similar to those of a modular, distributed telepsychiatry platform, which will allow transfer of critical parameters in a secure medical telecare network between patients, their family members and/or stationary centres, equipped with medical staff, enabling virtual telepresence, remote monitoring and teleconsultation with medical experts. Parameters such as the quality of human interaction and the importance of personal contact may influence the acceptance of the NCT. It is one thing Perspectives of Communication Technology in Psychiatry: The ISLANDS Project in Greece to conduct an emergency assessment via NCT to decide whether a person is delirious or suicidal and quite another to have a sustained relationship via NCT with a chronically ill individual? Thus, a satisfaction analysis for specialists, service users relatives and health care professionals has to be tested. At all events the implementation of NCT is not solely bound either to therapy or teleconsultation. It equally applies to a major parameter of a national psychiatric healthcare system, the continuous tele-education of healthcare providers. However, the successful application of this new method in healthcare is greatly depending on a careful structural planning, so that its functional cost would not exceed the cost of the problem it is supposed to solve. References: 1. 2. 3. 4. 5. 6. 7. 8. Bird KT. Teleconsultation: anew health information exchange system. Third Annu. Rep. Veterans Admin. 1971 Washington DC. Bashshur RL, Reardon TG, Shannon GW. Telemedicine : A new health care delivery system. Ann Rev. Public Health 2000; 21: 613-637. Seeley MF. Hot lines-we believe. Crisis 1992; 13: 63-64 Kontaxakis VP, Stylianou M, Panopoulou-Maratou O, Chrisogonou S, Polychronopoulou K, Christodoulou GN. Seeking emergency help by phone: sex differences. In Preventive Psychiatry (1994) eds GN. Christodoulou, VP. Kontaxakis. Athens, Mental Health Center Seeley MF. What are hot lines? Crisis 1994; 15: 108-109 Politis A, Lambousis E, Markidis M, Bergiannaki I, Christodoulou GN. Athens Emergency Psychiatric help line: report from the first year of service. Technology and health care 2001; 9: 356-357 Politis A, Markidis M, Lambousis E, Bergiannaki I, Christodoulou GN. Effects of a Major earthquake on phone calls to a psychiatric emergency help line. Technology and health care 2001; 9: 354-355 Markidis M, Politis A. Telepsychiatry: prospects for the use of new technologies in every day practice. Psychiatriki, 1999 ; 10 :.263. 9. 10. Lambousis E, Politis A, Markidis M, Christodoulou GN. Development and use of on line mental health services in Greece. J Tele Telecare 2002; 8: 51-52 Frueh BC, Deitsch SE, Santos AB. Procedural and methodological issues in telepsychiatry research and program development. Psychiatric Services 2000; 51: 1522–1527 Prof. Dr. Antonios Politis Lecturer in Psychiatry Athens University Medical School Eginition Hospital 72-74 Vas. Sophias Ave 11528 Athens Greece E-mail: glaucopis@med.uoa.gr 126 Neuropsychiatrie, Volume 18, S 2, 2004, page 127-130 Report History of Telepsychiatry in the Czech Republic Pavel Doubek, Alan Kott and Jiri Raboch Psychiatric Department of the 1st Medical School, Charles University, Prague Key words telepsychiatry, help-lines, crisis intervention, counselling History of Telepsychiatry in the Czech Republic The development of telemedicine and hence of telepsychiatry has always been connected to the development of communicational technologies. First telepsychiatric services in the world were the telephone helplines, the very first coming from London. This article concerns about the history of telephone help-lines in Czech Republic and former Czechoslovakia, describes the types of helplines available and gives future possibilities for telepsychiatry in this region as a pattern for Eastern European countries. Introduction The development of telemedicine and hence of telepsychiatry has always been tightly connected to the development of communicational and audio-visual technologies. Its present-day expansion is made possible because of the wide-ranging introduction of digital data transfer technologies. Telepsychiatry has generally been thought of as being the delivery of health care and the exchange of health care information for purposes of providing psychiatric services across distances. The relatively recent term „e-mental health“, however, is increasingly being applied, relates to mental health services provided through any form of electronic medium, most commonly via the Internet or telephony. The expansion of telephone lines was the first step towards telepsychiatry. Nonetheless at that time terms like telepsychiatry or telemedicine were not commonly used. The cornerstone of telepsychiatry in Central and Eastern Europe was the foundation of the first Czech helpline in 1964. Help-lines in Europe We may consider help-lines to be the first real-time telepsychiatric services. For already 50 years help-lines have its unique place in the system of urgent medical aid providing crisis intervention via telephone. The first telephone help-line has been working in London since November 1953. An Anglican vicar Chad Varah founded it in the catacombs of a church. It was working 24 hours a day. The main purpose of this help-line was the prevention of high suicide rates in London. Its origin was very simple. Vicar Chad Varah was inspired by the fact that in London there were three suicides a day. It is said that a suicide of a fourteen years old girl made him place an advertisement “Call me before you commit suicide” in a newspaper. The response to the advertisement was unimaginable. Varah couldn’t manage hund- reds of telephone calls and he had to engage his relatives and friends. And so the first European help-line originated. Inspired by the London model many help-lines all over the world emerged. From the very beginning Varah’s conception of the telephone help was an apolitical, irreligious, independent and on volunteer-ship based organisation. It was named The Samaritans. This organization trained and psychotherapeutically educated various specialists like psychologists and psychiatrists to provide help to people in a crisis and especially to those endangered with suicide till nowadays. According to the results of a study published in Great Britain in 1982 a statistically significant reduction in suicidal rates could be observed in those places where help-lines were established. Nowadays help-lines are working not only in Europe but also in America, Australia and Asia. In Europe the densest network of help-lines can be found right in Great Britain. There are as many as three thousand help lines that fulfil the definition of Telephone Helplines Association (THA) that a help-line is an non-profit organization offering all or at least a part of its services via telephone. These services include support, counselling, and information access as well as links to specialists. In the vast majority the employees of the help-lines working in Great Britain are unpaid volunteers. THA is the only help-lines associating organization. Nevertheless the- History of Telepsychiatry in the Czech Republic re are not more than 650 help-lines that work in a standardised way. In 1986 Esther Rantzen, a famous TV moderator, has founded a Child Line in London. From the beginning it was working 24 hours a day and it covered all the area of Great Britain. The first help-line in continental Europe has been founded in Western Berlin in 1956. In 1957 in Zurich another help-line named “Given Hand” appeared. Between 1957-1975 other 13 help-lines were set up. After a short period of scepticism they were generally accepted. Since 1975 these services are accessible from all over the Switzerland with as many as 50 thousand contacts per year in 1975 and twice as many in 1981. The help-lines can be contacted using a three digit emergency calls telephone numbers since 1976 in Switzerland. The help-line founded in Czechoslovakia in 1964 became a model for founding similar facilities in Central and Eastern Europe. In many of these countries help lines are named by the Czech specific term “Linka du˚ v eˇ r y” (=Line of confidence). In Poland professor Bukowczyk founded telephone help-lines since 1967, named “Telefon zaufania”. In Hungary they have their helpline since 1971, the first being called “Leki Elsögy Telefonszolgát”. In former Soviet Union the first help-line was founded in Moscow in 1971 to prevent suicides. There are other help-lines working in many of the bigger cities in Russia now. Help-lines were founded in Bulgaria and former Yugoslavia. In most of these countries, as well as in the Czech Republic, help-lines are a part of the official health care system. Towns, cities, regions or church usually fund help-lines in Western Europe. In Geneva in 1960 International committee and International secretariat of help-lines was established and in 1967 International Federation of Telephonic Emergency Services (IFOTES) was constituted. This orga- nization works in close relation to WHO and many other international heath and social institutions and organizations. At an IFOTES congress in Geneva in 1973 international standards of telephone help were postulated. These standards are generally accepted by all help-lines whether or not they are members of the IFOTES. Help lines in Czech Republic In the Czech Republic (former Czechoslovakia) there is a forty years tradition of telephone help-lines. Doctor Miroslav Plzák founded the first Central and Eastern European telephone help-line named „Linka d u ˚ v e ˇ r y ” in 1964 in Prague at the Psychiatric Department of the 1st Medical School of the Charles University. Because of his personal initiative this help-line was included in the official health care system. The founding intentions of this help-line were similar to those already mentioned. It had to prevent people from committing suicide, help them with their depressions and other mental problems and disorders. The foundation of this help line is still an unappreciated success of the Czech health system. In the following year in Brno (the second biggest city in Czech Republic) a help-line called “Linka nadeˇ j e” (= Hope line) was founded by professor Hádlik. In 1967 “Linka du˚ v eˇ r y mládezˇ e ” (= help line for youth) has been opened also in Prague at the Psychiatric Department of the 1st Medical School of the Charles University. Fruitful though by political situation limited international contacts were from the very beginning used to share experiences from different countries. The process of establishing help lines was very quick and so in 1996 there were 37 registered help-lines in the Czech Republic and around 60 in 2000. 128 The term “linka d u ˚ v e ˇ r y ” is used as a unifying characteristic of different telephone help-lines with very similar goal: Urgent and emergency telephone contact with people in need. Some of the help lines have specialised on a specific part of population (children, teenagers, seniors); other help-lines have oriented in particular problems of specific population (alcohol, drugs, AIDS, homosexuality, home violence, etc.) Number of telephone calls at the end of the ninetieths was approximately 50 thousand per year. The rising number of help-lines had brought several changes in the conception of their practice: 1. Not only specialists but as well trained laymen work for the helplines. They are not licenced psychotherapists. They accomplish acute intervention only. 2. The need to protect and support the professionals as well as the need of professional growth and information exchange led to the establishment of Czech association of helpline workers in 1995. 3. Specialised software is used by many organizations to store and evaluate data coming from the help lines. 4. Specialized educational programmes for help-line workers were created. They should be prepared for various calls of different degree of emergency or abuse. They should be able to react quickly but circumspectly. They should be well informed about the community situation, they should be able to provide psychosocial information or give links to proper specialists or workplace. But as well they should remain authentic human beings. This can be achieved by different ways. The first one is a specialized training in telephone crisis intervention that includes practice in general help-line work as well as in specialized themes (dependence, sex, legal aspects, abuse and violence, suicide, reaction to traumatic experience, etc.) The second one is a selfexperience psychotherapeutic trai- Doubek, Kott, Raboch ning that has its value especially in personal growth and development. Casuistic seminars where different approaches are presented and discussed are the third way. And the other possibilities include Balint supervision seminars, individual supervision, self-experience, or literature study. Working at a help-line The work at help-lines is very eventful. People may call because of themselves or because of somebody else. They may be in great tension but as well they may be worried about somebody or something. The helpline worker must be well prepared for all of these situations. Easy ones or even abusive calls (invectives, senseless requests) may follow urgent emotionally filled difficult calls. This all contributes to enormous psychic burden of the help-line workers. Following the principles of mental health hygiene may be the easiest way to prevent the burn-out syndrome. The aims of telephone crisis intervention The first aim is to calm down the calling person to stabilize his or hers situation, to reduce the risk of crisis progression or to prevent suicidal behaviour. The perspective aim is to work out the closest future with the calling person and if possible to find possible ways of solution. Help-lines have wide indications but their main purpose is not to make a diagnosis but to solve a problem. Help-lines types 1. Help-line as an independent organisation. Other services are not provided. 129 2. Help-line with outpatient clinic where the calling person can be invited to come if necessary. 3. Help-line being a part of a inpatient clinic Types mentioned above differ not only in help flexibility and promptness in urgent cases but as well in overextension of the workers and in the degree of dependence on subsequent services. Personal specific problems are solved in online counselling. If the query is somehow general and if the asking person agrees the query will appear in the Archives of online counselling. Both chat and online counselling complement each other and give the lekarna.cz visitor a unique possibility to obtain relevant information not otherwise found on the web. Conclusion The development of telepsychiatry and e-mental health in Czech Republic With the introduction and development of the Internet in the Czech Republic specialized counselling and later on-line chats have emerged on medical servers. E-mail counselling running since November 1999 on the web pages lekarna.cz was a forerunner to an on-line chat. Any web visitor could address his or her query about medical problems using an email box. The query was quickly redirected to a specialized doctor and the answer was sent back to the person via e-mail. Repetitions of some queries as well as 10-15 queries per day made the web page provider to start an on-line chat and on-line counselling. Both services have been introduced three years ago. Chat offered to the visitors many interesting topics that could be discussed in general public. This project was supported by General University Hospital in Prague. Nowadays live discussion takes part every week at lekarna.cz. A week before the discussion is advertised at the lekarna.cz homepage as well as the specialist profile and a simple CV. Those who cannot join the live chat may ask their questions in advance. These questions will be answered during the discussion. All these discussions are saved in the Archives files and are accessible with a full text search engine. The development of modern telecommunication technologies made other than only help-lines telepsychiatry tools possible. Nowadays we are witnesses of a huge boom of internet mediated help and education possibilities that give a person in need but as well professionals and informal carers opportunities to access to help or counselling from the best specialists all over the world. The Psychiatric Department of the 1st Medical School of the Charles University in Czech Republic is one of the ISLANDS project partners and participates in the development of integrated system for long distance psychiatric assistance and non-conventional distributed health services. This project extends the possibilities and tools of present-day telepsychiatry. References [1] [2] [3] [4] [5] Eis Z. Volejte linku du˚ v eˇ r y! H&H Jinocˇ a ny, 1993 Knopová D, Bahbouh R, Basˇtecká B, Bouchal M, Eis Z, Havránková O, Kucˇera Z, Lucká Y, Nováková Z, Tichy´ V, Zajíc R, Zemanová E. Telefonická krizová intervence – Linka du˚ v eˇ r y. Remedium Praha , 1997 Kopecˇ ek M.: Internet v lékasˇské praxi. Psychiatrie, 2002, 6 (2), 92-96 Plzák M, Br`ezinová B, Zvolsky´ P: Depresivní stavy v dospeˇ l ém veˇ k u. SZdN, Praha, 1967 Sekot M.: Vyhodnocení vy´ s ledky Vánocˇ n í linky proti depresi. Cµes. a slov. Psychiat., 2000, 96(8), 434-436 History of Telepsychiatry in the Czech Republic [6] [7] Wootton R, Craig J. Introduction to Telemedicine. London: Royal Society of Medicine Press, 1999 Wootton R, Yellowlees P, McLaren P. Telepsychiatry and e-mental health. London: Royal Society of Medicine Press, 2003 Pavel Doubek, M.D. Psychiatric Department of the 1st Medical School, Charles University, Prague Ke Karlovu 11 120 00 Prague Czech Republic E Mail: doubekpavel@ceskapsychiatrie.cz 130 Neuropsychiatrie, Volume 18, S 2, 2004, page 131-136 Report Telemedecine in French Guyana Thierry Le Guen1, Nicolas Poirot2, Olivier Tournebize2 and Antonio Guell3 Hospital Complex Andrée Rosemon of Cayenne French Space Medicine and Physiology Institute, Toulouse Cedex 3 French Space Agency, Kourou, Cayenne 1 2 Key words French Guyana, Satellite, Telemedicine portable workstation Telemedecine in French Guyana From December 2001 to May 2002 a Telemedicine survey was done in French Guyana within the framework of an agreement between Cayenne Hospital (CHAR) and the French Space Agency (CNES), with technical support of the French Space Medicine & Physiology Institute (MEDES). Expertise were done by specialists of the CHAR in tree specialities (Dermatology, Parasitology and Cardiology). Medical reports elaborated with Telemedicine portable workstation, from 4 remotes sites of the Amazonian forest, were sent by satellite phone to the Cayenne Hospital. The survey was assessed on medical, technical and economical ways. The results shown that objectives initially defined were reached, and decision of extension up to all remote medical dispensaries was taken by health authorities. Introduction From December 2001 to May 2002, within the framework of a collaboration between the Hospital Complex Andrée Rosemon of Cayenne (CHAR), the French Space Agency (CNES) as well as the French Space Medicine and Physiology Institute (MEDES) an experimentation of tele consultation per satellite took place in French Guyana, at the issue of which it was decided to make profitable and to extend the installation of telemedicine portable workstation to the whole guyanese territory. The goal of this article is to explain the methodological steps, to present the results and to envisage the prospects of this project, in particular in the field of psychiatry. The context French Guyana is a vast overseas department of the size of Portugal, covered by 80% by the equatorial forest. The 200 000 inhabitants are divided to 80% in 3 cities of the littoral: Cayenne, Kourou and St-Laurent of Maroni. These cities have the 3 hospitals, the private clinics and the majority of the health devices of the territory. 21 centres and isolated health dispansaries depend on the CHAR of Cayenne. The centres and health stations are held either by general practitioners and paramedical personnel in the important communes, or by the paramedicals, nurses or agents of health for the small communes. They are the only access of the rural populations [1], approximately 20% of the Guyanese to the cares. These professionals of health thus face technical plates and means of telecommunications limited to any type of request for care, tropical pathologies, gynaecologyobstetrics, traumatology, urgencies. The means of communication, put aside on the littoral, are the water and air ways, what complicates the work of the health professionals at the interior for the management of the emergencies and the pathologies requiring a particular expertise. Rounds of specialists are organised on the rivers in order to try to mitigate the difficulty of access for the isolated populations to specialized care and to limit the delay in the diagnosis and therapeutic treatment In spite of these efforts, the inequality of medical treatment compared to the urban populations remains real. This geographical configuration was perfectly appropriate for the experimentation of telemedicine in order to facilitate the access for the isolated populations to the specialist’s expertise of the CHAR of Cayenne. Three specialities were selected for the experimentation: dermatology, parasitology and cardiology. Map of French Guyana (According to : «Géographie de la Guyane». Jacqueline ZONZON; Gérard PROST – Edition: SERVEDIT) Telemedicine in French Guyana The choice of the specialities was made by the doctors of the CHC after a demonstration of sending macro and microscopic images and ECG numerical recording via satellite from real situation in two isolated communes, carried out in October 2000. The choice was dictated by the important effect of parasitic pathologies (Paludism, leishmaniosis, intestinal parasitosis …) and dermatological ones (leishmaniosis, various dermatosis …). The interest of these specialities being that the principal attacks could effectively remotely be diagnosed and the objective evaluation of the telemedicine system was possible to estimate the efficiency and limits of the use (systematic second reading of the blades for parasitology, negatives after treatment for control for the dermatology). 4 sites were selected: Maripasoula, Staint-Georges, Antecume Pata and Trois-Sauts. Each one of these sites was equipped with a telemedicine portable workstation including a laptop, a digital camera, a digital electrocardiogram, a microscope and a satellite telephone INMERSAT M4. A specific software was developed in order to respond to the study’s protocols defines by the guyanese doctors. Methodology The principal objective of this project was the qualification of an application of telemedicine likely to bring an improvement in the treatment of certain medical pathologies in isolated sites. In particular the defines objectives were stated in three headings: medical, technical and economical Medical Objectives In the field of parasitology, dermatology and cardiology (electrocardiogram) we excepted the validation of a methodology allowing to carry 132 out a remote diagnosis, starting from a centre of expertise (CHAR) and for the benefit of patients located in isolated sites which normally would not have access to this type of diagnosis or have it in times incompatible with a correct treatment of the pathology. At the same time the objective of the experiment, always in medical terms, was to not only validate reliable medical protocols making it possible to establish a diagnosis and a therapy but, as guarantee as this diagnosis and this therapy, to make sure the use of average technique like the tele transmission by satellite of the data, are medically (depending on the parameters of the profession and the state of the art) correct. Technical Objectives • Validation of the availability and the reliability for the system in time and a “difficult” environment ( tropical rain forest, important water content, random quality of the power supply, cloud cover, etc). • Ergonomics of the system compared to the level of the users, as well in emission, in reception and handling of the data. • Quality and reliability of the data compared to the requirements of the users and the need for the medical practice. Economical Objectives [2, 3, 4, 5] • Validation of the estimated costs as well in term of investments as in term of exploitation and maintenance cost. • Comparison of the costs inferred from the use of the system of tele medicine and the costs of “traditional” medical interventions (evacuation by helicopter in particular) In general, to allow the authorities (health and medical authorities) to make reasoned decisions in term of choice of equipment and fitting out Telemedicine suitcase the territory in particular the isolated sites. Results 196 files were sent during the 6 months of experimentation (51 in dermatology, 108 in parasitology and 37 in cardiology). The analysis by speciality allows to refine the use and the usefulness of the telemedicine network. 1. Parasitology 2. Dermatology 51 files sent during 6 months, 32 from Trois-Sauts, 12 from Maripasoula, 6 from Antecume Pata and 1 from Saint-Georges. 3. Cardiology In 6 months 37 files were sent, 2 from Saint-Georges and 35 from Trois-Sauts. 4 files were related to thoracic pains, 2 were referred for routine inspections among patients having cardiac antecedent and 31 files corresponded to systematic electrocardiograms before the prescription of Halofantrine for falciparum Paludism treatment. Discussion 1. Parasitology The requests for expertise was related primarily to confirmation’s request for paludism diagnosis (99/108 which means 92% of the expertise requests) on blood smears and/or thick drops. Le Guen, Poirot, Tournebize, Guell Images of cutaneous lesions and/or cutaneous smears were sent within the framework of a diagnostic confirmation of leishmaniosis for 8 patients (7,4% of the expertise requests), 6 of them presenting cutaneous ulcerations. A diagnosis of intestinal parasitosis (0,6%) was required based on stool analysis perform in saline water for a patient who was suspected of amoeba dysenteriae (fever and bloody-stools Diarrhoea) Base on 108 responses sent to us , 12% of the latter had none formulated diagnosis, we did not find any parasitologic contamination for 7 subject (6,6%) with 95 of certainty. For a great part of the files ( 73 which means 67,6% of the files) the response was transmitted with 95% of diagnostic certainty. Only 7 responses were given without any certainty which means 5% of the files. One notes for 71 patients only one recourse to the expertise without needing additional information to conclude the files. In the same way, there was for 25 patients one resort to the expertise with 1 to 2 complements of information (achievements of new blades of smears or drops thick or strips ICT, clinical and parasitologic follow up at D3 even D7 of the paludal initial access, information on the therapeutic treatment carried out). Six patients presented new paludal episodes (between 2 to 4). Therapeutic prescriptions were carried out for 60 files with the molecule indication, the way of administration, the posology. Concerning the prescription of the Halofantrine (22), it way almost always recommended to realize a pre-therapeutic ECG (Cf. Cardiology synthesis). Therapeutic advice (18 files) (molecules choice, reference and referral to founded protocols) and prophylactic advice ( 4 files) ( use of mosquito nets, of insecticides) were recommended. We find a clinical follow up advice twice. 133 Technical complementary measures (new blades of smear blood (10), thick drop (36), strips ICT (15)) were required to optimize returned result for 61 files. In the same way, technical advices (12 files) were made on the use of the microscope coupled with the digital camera (in term of luminosity, of the enlargement done, of the quality of the pictures). The technical methods according to protocols drawn up (time of colouring, type of colouring, conservation of the blades, contamination of the blades by mushrooms) To improve the treatment of the relapses which have occurred among certain patients, recommendations were provided to the health care personnel concerning the possible complements of examinations to forward to CHAR and to the Institute Pasteur. In a context of a well trained field worker the diagnostic remain relatively easy but a formal diagnosis remain to be establish by a biologist. It was possible for us to validated the system on the qualitative level by comparing for the same patient the result returned by telemedicine and the result after reading and checking the blades transmitted to the laboratory of Parasitology-Mycology of CHAR. At total, for the same period, 85 files could be compared: - 78 concerning the search for paludism ( on 509 requests for blades from health centres sent to the laboratory for the same period) - 7 concerning the search for cutaneous leishmaniosis There is no discordance for the search of leishmaniosis between the tele medicine reading and the reading % de accuracy P.fal P.viv P.fal+ P.viv P.mal P.sp 95% 75% 50% 0% Total 24 8 1 0 33 28 9 1 2 40 3 2 0 0 5 1 0 0 0 1 2 1 2 2 7 Non for- Leish mula-ted diag. 7 1 2 3 13 8 0 0 0 8 Amib Total 1 0 0 1 73 22 6 7 108 Table I: parasitology results SITES Trois-Sauts Eczema 12 Infectious 17 • Parasitology 11 - Leishmaniosis 9 - Scabies 2 • Bacteriology 1 • Viral 2 • Mycology 3 Various 1 Folliculitis 1 tumefaction under cutaneous 1 oral ulceration Maripasoula 4 2 1 ulcerate leg 1 mal perforant plantar 1 sweat dermatite 1 melasma 1 cheloid 1 Sutton’s disease 1 ulcerate leg 1 pustulosis 0 11 • leishmaniosis 1 • mycology 1 Antécume Pata 2 2 mycology Saint-Georges* Total 0 18 0 21 Table II: dermatology results • The file from Saint Georges did not allow a diagnosis Telemedicine in French Guyana carried out on blades within the routine framework at the laboratory. There is 3 cases of discordance (3.5%) for the diagnosis of paludism: - one is due to a writing error at the time of the returned result. - For the second, it was answered P.vivax at 95% of certainty; on the six photographs controlled in tele medicine, one confirms the P. falciparum diagnosis, the other fives are more in favour of P.vivax . - The last file responded P. falciparum in telemedicine was controlled P.vivax on blades; only one image made it possible to establish the diagnosis, the second being fuzzy therefore non-interpretable. The request for control in tele medicine and the request of blades returns towards the laboratory are thus very important. Indeed, the reading of the blades makes it possible to have an overall picture. 2. Dermatology [6, 7] On the 51 files, one finds the following diagnostic index: • Accurate diagnosis: 44 files out of 51 • Dubious diagnosis: 2 files out of 51, 1 suspicion of clinically atypical leishmaniosis and 1 incomplete observation for lack of clinical information. • Absence of diagnosis: 5 out of 51: 3 by deficiency of initial observation (fuzzy photographs, non-interpretable, and/or misses clinical information) and complementary absence of return to the dermatologist’s request of explanations, 1 by need to make a cutaneous biopsy (diagnosis posed in a second time) and 1 by interpretation error from the receiving doctor. In Summary, the dermatology tele consultation is reliable and as efficacious as (28 cases out of 31) a traditional consultation. An improvement can still be introduce by a more detailed initial observation and a better quality of the exchanges. 46 files out of 51 could be evaluated, the other 5 patients having been 134 lost of sight. On 46 patients, 28 are completely cured, 10 have improved, 6 are stabilized, and 2 have worsened (1 related to the pathology and 1 related to the misuse of the tele medicine). Finally our estimate is that we were able to prevent an transfer from Trois-Sauts: a child with an important rash impetigo of the face potentially leading to serious infectious complications was diagnosed and treated effectively with antibiotherapy, via distant telemedicine communication. A control using the same telemedicine device showed a very drastic improvement of the conditions. On the whole, one can retain only one failure related to the use of tele medicine, by a bad diagnosis posed initially, and a bad secondary orientation. In the large majority of cases, the quality of the images is excellent. In 4 cases out of 51, the images were fuzzy and did not allowed diagnosis with certainty. The richness of the comments and exchanges between the hospital specialists and the actors of health in the communes allowed to help at the continuous training of these latter. 3. Cardiology [8] 4 files having for reason of consultation “thoracic pain” - Only one of these patients had a pathological recording having required an EVASAN (Sanitary Evacuation) on CHAR at a first place, then after 2 days of hospitalization, an EVASAN on Martinique for coronarography. A first transmission approach of a layout paper by fax, sent by the doctor of Saint-Georges and checked by the cardiologist allowed the medical evacuation of the patient. The electronic file was established secondarily to test the functionality of the tele medicine system. There is a lapse of time of 4h10 between the sending of the request and the diagnostic return. - The three other files had normal layouts. The delay of the response are too important: several hours to several days. This time limit in the event of an acute cardiovascular problem is too long. It is advisable to adapt the cardiology protocol. Routine inspection among patients having cardiac antecedents. 3 files for routine inspection further to known cardiac antecedent (complete arrhythmia by FA, systolic breath from a trisomic child). The layouts are normal in both cases. Systematic electrocardiograms before treatment by Halofantrine. 31 records were systematically transfered in order to diagnoses potential eqg conduction anomalies before any prescription of Halofantrine for falciparum Plasmodium treatment. 4. Out of Protocol The users were confronted with pathologies not included in the frameworks defined for the pre-operational phase, so they used the electronic messaging as support of information transmission and request of expertise, by joining images as attachments, or in certain cases the dermatology files. Pathologies: • Tenosynovitis of the hand, initially labelled as the carpal ternal syndrome • Phlegmon of the thumb • Exocervicitis on ectropion • Stomatitis • Talipes of a new-born baby • Snake bite Analysis: • Snake bite: an EVASAN was prevented since the reptile was formally identified on the attached photograph ( Bothrops atrox) and the patient did not show any clinical signs of serious poisoning. • Phlegmon of the thumb: an EVASAN was carried out in emergency after surgeon’s advice, the image attached highlighting a functional urgency. The vocal communication by itself would not made it possible to appreciate the gravity of the situation. • Talipes: the physiotherapist of CHC transmitted to the nurse of Tro- Le Guen, Poirot, Tournebize, Guell is-Sauts protocols of massages and physiotherapy preparatory to the surgical treatment, preventing at the same time an EVASAN of the newborn and the mother for a specialized consultation. 5. Economical Assessment As shown by the recent economical studies of telemedicine [9, 10], there is an absence of methodological consensus on this particular subject. All users are unanimous to say that, in addition, the traditional methods of economical evaluation in health do not take into consideration the overall specificities of the medical practice supported by a telemedicine network. Within the framework of the preoperational setting of the telemedicine network per satellite in French Guyana, it was not possible for us to set up a scientific methodology for economical evaluation by comparing the activity of the centres using tele medicine with the centres not equipped but having a comparable activity. Nevertheless a particular effort was carried out to define and allow the exploitation of economic indicators, of efficiency and of the use of the set up system. A specific synthesis card was defined with the support of a professor and researcher of health economy at the ENST of Brest (Myriam LeGoffPronost) [11]. This card is complete by the doctor-coordinator at the end of each tele medicine file. This card includes 56 items: • 11 “administrative” items allowing to locate the cases (name of health professionals, of the patient, date …) • 12 “medical” items in three headings (final diagnosis, clinical evolution, hospitalization) to specify the case of the patient during the whole medical treatment process, tele consultation, treatment and local evolution, or the become of the patient after his hospitalization in order to be able to correlate the initial medical data exchange on the network with the 135 final results, in particular for the confirmation or the invalidation, of the tele-diagnosis. • 16 “functioning of the telemedicine” items in two headings, treatment of the case without telemedicine, to try to have comparative data between the normal practice and the use of the network of tele medicine per satellite, and appreciation of the tele medicine in term of contribution to the medical practice. • 17 “economical” items, in three headings • The time passed, by the various health professionals concerned, for the specific use of the system. This specific time for the users of the health centre does not include the time of examination (for example this heading, in the case of a parasitology request includes the time to constitute the electronic file, of taking digital pictures and verify them, but does not take into account the time of taking samples, of preparation, and for blade’s reading, time normally passed by the professional out of the use of the system). For the doctor-coordinator and the specialists it is the time of data analysis and of writing responses. The time to constitute the synthesis card is also taking into account. • Medical extra costs, allowing an evaluation of the impact of the network in term of treatments carried out locally, which would not have been prescribed without the exchanges permitted by the network of tele medicine. • The economies achieved in term of EVASAN but also in term of impact on the whole medical chain. Besides the functional approach of the analysis reserved for the synthesis card, more classical evaluation data were collected: investment cost, functioning cost, EVASAN. However we have dissociated the fixed costs from the variable costs depending on the functioning of the network, as well in term of personal time, as of costs of telecommunications which are the two principal factors. The average cost of a file is 78 Euro of which 53 Euro goes for the cost of satellite communication (INMERSAT). On a total of almost 200 files, 3 EVASAN were prevented thanks to the tele medicine per satellite system, both from “out of protocols”, coming from Trois-Sauts, located at three hours from Cayenne (roundtrip medical helicopter): • A snake bite • Talipes of a new-born baby • an important impetigo of a child face being able to involve serious infectious complications These three prevented EVASAN represent a cost directly avoided by the tele medicine per satellite system of 14 250 Euro HT (before taxes); 6. Technical Assessment French Guyana shows logistic (transport of the material by air or river) and extreme climatic characteristics for electronic material (heat, very important hygroscope supporting the moulds and premature wear). A standard, equipment was selected with specific humidity and dust proof as well as shock-proof . To hold account of the constraints of moisture, we had absorbers containers of moisture and microwave ovens to dehydrate the absorbers of moisture in a regular basis. The constraints concerning the electric provisioning of the sites (power generating unit, sector) of variable quality and being able to undergo abrupt variations, led us to protect the material by a catch lightning protector out of frontal connected to an inverter, itself connected to the electronic material. INMARSAT RNIS Service The 64 Kbytes/s terrestrial RNIS service from INMERSAT M4 was selected as being the only alternative of telecommunication in the Amazonian zone allowing a deployment without pre-existent infrastructures to equip the centres and health stations of the capacity and especially suffi- Telemedicine in French Guyana cient data to support the exchange of information. A certain number of breakdowns were noted concerning the antennas of the terminals: • 2 intrinsic breakdowns: “HP LNA roasted” on a terminal, breakdown related to a technical problem on the antennas, defect of series of the manufacturer on a new model of terminals. • 2 extrinsic breakdowns: bad handling of the cable of the antenna by the health professionals. Assessments and Outlines The very encouraging results of the experimental phase led to the perpetuation of the installations on the initial 4 sites and to a development on 8 other isolated sites in 2003 and 2004. Others specialities will be the object of specific protocols: ophthalmology, gynaecology-obstetrics, paediatrics, diabetology, traumatology. A connection with the CHU of Fort de France will also make it possible to transfer files of neurosurgery and carcinology. Concerning telepsychiatry, it appears reasonable to use the existing infrastructures. The network of videoconference joining the three hospital of the littoral allows to contemplate, on the occasion of a phase of pre-operational study, the feasibility of the telepsychiatric consultations within the framework of the ISLANDS project (Integrated System for Long distance psychiatric Assistance and Non-conventional Distributed health Services). Each telemedicine portable workstation having at its disposal a web cam, an extension of telepsychiatry towards the equipped villages, according to protocols elaborated at the time of the first phase, is completely possible. 136 Conclusion References The pre-operational phase of the network of telemetry per satellite in French Guyana brought a certain number of knowledge. First of all, that it is possible, in spite of the extreme operational difficulties of French Guyana, to deploy a telemedicine network in truly isolated sites and to follow pre-established protocols. The dermatology forms part of the medical specialities with the imagery which were evaluated the most in telemedicine. Paradoxically if very many works and a good number of operational networks of telemedicine use the microscopic teletransmission of images with diagnostic aiming, they almost exclusively relate to the anatomopathology and the cytology. Very little examples of the use of tele microscopy for the diagnosis in parasitology was found in the bibliography which reinforces the interest of the choice carried out in French Guyana. Then , that it is essential to take care to integrate to the maximum the applications of telemedicine to the pre-existent system of care, to limit the impact in the work organization and to facilitate the appropriation of the tools by the professionals. Finally, that the quality of the care remains the final objective. It is imperative to implement the methods and tools allowing an initial evaluation of the system. These methods must be integrated into the protocols of specialities in order to allow a monitoring of the network activity, and to crosscheck the information if necessary. The efficiency of a system obviously goes through the relevance of the technical choices, the elaboration of scientifically validated procedures, but especially by the implication of the health professionals and the acceptance by the patients of this new form of medical practice. In conclusion, the tele consultation is a reliable and useful medical practice in isolated sites, reasonable in term of cost and technically well controlled. [1] [2] [3] [4] [5] [6] [7] [8] [9] [10] [11] Edlin M. Success in rural telemedicine. Healthplan. 2003 Jul-Aug;44(4):60-2 Gardeur P. [1996]: “ L’évaluation en santé”, Actualité et dossiers en santé publique, 17, pp.I-XLIV. Contandriopoulos A.P. [1991]: “ L’évaluation dans le domaine de la santé : con cept et méthodes ”, in T. Le brun, J.C. Sailly, M. Amouretti L’évaluation en matière de santé. Des concepts à l pratique, Sofestec/Cresge Editeur, pp.15-32. Dechant H.K. et al. [1996]: “ Health Systems Evaluation of Telemedicine : A Staged Approach ”, Telemedicine Journal, 2, pp.303-312. Giraud A. [1992]: L’évaluation médica-le des soins hospitaliers, Economie, Paris. Al-Qirim NA. « Teledermatology: the case of adoption and diffusion of telemedicine health Waikato in New Zealand ». Telemed J E Health. 2003 Summer;9(2):167-77. Weinstock MA, Kempton SA. « Case report: teledermatology and epiluminescence microscopy for the diagnosis of scabies. Cutis. 2000 Jul;66(1):61-2. » Saxena SC, Kumar V, Giri VK. « Telecardiology for effective healthcare services. » J Med Eng Technol. 2003 JulAug;27(4): 149-59. Lobley, D. [1996]: “ The Economics of Telemedicine ”, Journal of Telemedicine and Telecare, 3, pp.117-125. Luce, B. R., and Elixhauser, A. [1990]: “Estimating Costs in the Economic Evaluation of Medical Technologies ”, International Journal of Technology Assessment in Health Care, 6 pp.57-75. Le Goff – Pronost M. [2000]: “ Evaluation économique de la télémédecine ”, Congrès mondial de télémédecine, Toulouse, mars. Dr. Thierry Le-Guen Char Cayenne Rue de Flamboyants 97300 Cayenne French Guyana tleguen@nplus.gf Acknowledgement Special thanks to Stéphanie Gaston for her hard work translating this article. The Neuropsychological Testbattery „TAP-M“ as a relevant tool for the assessment of driving ability of elderly people Ageing people need autonomy and mobility to maintain a high quality of life in old age. Driving as an individual's transport of choice is a key issue in the mobility of the elderly. In Western society the older population is increasing both in absolute and relative terms, and there will be a corresponding increase in the number of elderly people holding a driving licence. The mean frequency of elderly drivers on European roads can be approximated to around 12% of all drivers today. This is expected to reach 20% by year 2010. During this process the numbers of older drivers will become evenly distributed between the genders due to an even more significant increase in the number of elderly female drivers. This task is considered in the European project “AGILE” (AGed people Integration, mobility, safety and quality of Life Enhancement through driving). The project has two general aims: 1. developing knowledge to establish rational pan-European policies for delivering certification of fitness to drive 2. helping the elderly to continue to drive safely for as long as possible Increases in age-related competences like defensive driving behaviour, and improved anticipation may compensate for age related decline in cognitive capabilities and functioning. As a result elderly drivers are usually not overepresented in driving accident statistics. However, elderly drivers tend to be overly involved in specific types of accidents in specific situations, such as intersections, or, when changing lanes, merging with traffic or leaving a parking position. Moreover, the prevalence of different dementing illnesses is about 5-7% in elderly drivers. Many of these are currently not diagnosed sufficiently early enough by existing assessment schemes for elderly drivers. One of the most relevant psychological functions playing a role in driving is a person´s attentional performance. It is generally agreed upon that attention has to be conceived as a multi-factorial phenomenon. Based on the well-known Test forAttentional Performance (TAP) which was initially developed for the assessment of attentional deficits in patients with cerebral lesions the German company “PSYTEST” developed a short form of this test namely TAP-M. This test was compiled to measure the attentional aspect of the ability to drive. The core of the procedures are reaction time tasks of low complexity allowing the evaluation of very specific deficiencies. The tasks consist of simple and easily distinguishable stimuli that the patient react to by a simple motor response. Thus, the influence of a number of factors that would have an inhibiting effect on testing are kept to a limit. As much as possible, it was attempted to account for factors that may disrupt testing, such as motor problems, visual disorders and language deficits. The subtests in the newly developed test battery TAP- M permit to assess a variety of attentional aspects such as alertness, divided attention, flexibility of focused attention, inhibitory processes, working memory, visual search, selective visual attention, suppressing potentially distracting stimulation which are relevant for save driving. The final choice of subtests to be integrated into the TAP-M was based on the decision of the AGILE members. The Neuropsychological Testbattery “TAP-M” now consists of newly developed subtests : • Executive control, • Active visual field, • Distractibility and • Alertness (a modified, shorter version) and already existing subtests of the Testbattery of Attentional Performance (TAP) that is already in the market: • Divided Attention, • Visual Scanning, • Go/Nogo and • Flexibility. The standardization and validation of the test battery was supported by several European institutions being members of the European project “AGILE” (AGed people Integration, mobility, safety and quality of Life Enhancement through driving). All the tests were validated with an On-road test drive, in order to compare the actual ability to drive with the cognitive performance. With the “TAP- M” the German Company “PSYTEST” now has a new product to evaluate specific deficiencies which could influence the ability of save driving. The tests are available in German, French, English, Italian, Spanish, Greek, Swedish, Dutch, in spring 2005. Vera Fimm – Psychologische Testsysteme • Kaiserstrasse 100 • D-52134 Herzogenrath Tel.: 0049 (0) 2407 / 918980 • Fax: 0049 (0) 2407 / 917153 • e-mail: info@psytest.net • www.psytest.net Charles University Prague MMU UHFF www.islands-project.etsit.upm.es Co-funded by