Annual report - The Epilepsy Foundation

Transcription

Annual report - The Epilepsy Foundation
Annual report
2007–08
The Epilepsy Foundation of Victoria is
Our values
dedicated to enhancing the quality of
Equity and access – ensuring that people living
with epilepsy get a fair go and can connect to
appropriate supports and services
life of people living with epilepsy through
information, education, advocacy,
support services and research.
Our purpose
We wish to ensure that Epilepsy Foundation of
Victoria develops a high-performing culture that
delivers on our mission and utilises and expands
on our capabilities, according to our values and in
a sustainable way.
Participation and inclusion – engaging people
and building effective relationships based on a
shared purpose
Resourcefulness and innovation – seeking better
ways to do more with the resources available to us
Trust and integrity – displaying integrity in everything
that we do thus enabling the people who rely on us
to have confidence in our motives and abilities
Accountability – fulfilling our responsibilities
and obligations
purpose
values
© Epilepsy Foundation of Australia, 2009
Epilepsy Foundation of Victoria
818 Burke Road
Camberwell Victoria 3124
phone +61 (0)3 9805 9111
fax
+61 (0)3 9882 7159
www.epinet.org.au
Table of contents
Our aspirations.............................................................................................. 3
The epilepsy landscape in Victoria................................................................. 4
What is epilepsy?.......................................................................................... 6
Looking forward............................................................................................ 7
President’s report.......................................................................................... 8
Committee of Management (as at 30 June 2008).......................................... 9
Chief Executive Officer’s report.................................................................... 12
Message from the Chair of the Patrons Council........................................... 13
Patrons Council........................................................................................... 13
Client services............................................................................................. 14
Fundraising.................................................................................................. 20
Our volunteers............................................................................................. 23
Honour roll................................................................................................... 24
Treasurer’s report......................................................................................... 27
Financial report............................................................................................ 29
Financials.................................................................................................... 35
Ben Ruiter is a young man with an engaging smile
and an optimistic outlook. You would never know
how tough his life has been since he was first
diagnosed with epilepsy at 13 years of age.
Epilepsy Foundation of Victoria | Annual report 2007–08
aspirations
The Mavropoulos family knows what it is like to live with the impact of
epilepsy. Three-year-old Ben was diagnosed with infantile spasms at five
months of age and suffered uncontrolled seizures. He has made huge
steps in his progress following major surgery.
Epilepsy Foundation of Victoria | Annual report 2007–08
Our aspirations
At Epilepsy Foundation of Victoria, we
strive to make a real difference to the lives
of any person who may be touched by
epilepsy – whether as a result of having
the condition, as a family member or
carer or as a friend.
We want families and support networks
of people with epilepsy to:
• be confident and knowledgeable
• have access to opportunities for support
and networking
• have access to learning opportunities
In our ideal world, the community:
Through our work with health professionals,
governments, other organisations and businesses,
we seek to raise awareness of epilepsy in the
community as a health condition and to remove the
stigma associated with it so that people with epilepsy
can live more fulfilling, open and inclusive lives.
We believe an important measure of the positive
impact of our services is the intangibles – like seeing
people who have been diagnosed with epilepsy
regain their confidence and resume an activity they
love such as swimming, or take up employment
again, or simply come to terms with their condition
and find the inner peace and resolve to be able to
continue living their lives as fully as possible.
• provides increased opportunities for participation
• gives people living with epilepsy a national voice
• responds to the needs and aspirations of people
living with epilepsy
• understands epilepsy
• affirms people living with epilepsy as
valued members
We work to ensure the Epilepsy Foundation
of Victoria:
• is well led
• is sustainable
Our aspirations, which guide us in our work each
day, enable us to have a clear understanding of
those intangible things that matter most – to the
people who use our services or to those who deal
with us as an organisation – and just where and how,
within our capabilities and resources, we can make a
real difference to people’s lives.
• grows, both in knowledge and capacity
We work with children, young people and adults with
epilepsy so that they:
• work together so people living with epilepsy
are living richer lives with more opportunities in
education, employment and lifestyle
• experience increased self-esteem and
connectedness
• has the right people and enough resources
In the epilepsy service sector we:
• share knowledge and experience to create
positive change
• experience better educational outcomes
• have increased opportunities to participate in
community life
• have knowledge and skills to achieve their
own wellbeing
• have access to support services and learning
opportunities
Epilepsy Foundation of Victoria | Annual report 2007–08
The epilepsy landscape in Victoria
Epilepsy Foundation of Victoria supports
people living with epilepsy across the
state of Victoria, through our metropolitan
head office in Camberwell, Melbourne,
our regional offices and our state-wide
outreach program.
Epilepsy Foundation of Victoria also provides
resources to support other state service providers
and plays an active role in the national peak body,
Epilepsy Australia.
The prevalence of epilepsy
One of our challenges is forming an accurate picture
of the prevalence and impacts of epilepsy in Australia
and, more particularly, in Victoria.
The Joint Epilepsy Council of Australia is seeking
Australian Government funding to carry out the
necessary research that will enable member
organisations to properly estimate and plan for
services in the future. This research would focus
on important quantitative aspects including the
incidence of people living with epilepsy, Sudden
Unexpected Death in Epilepsy (SUDEP) and
avoidable deaths attributable to epilepsy.
Furthermore, our longitudinal research needs cover
the qualitative aspects of the condition, including
epidemiological considerations and quality of life
impacts across issues such as social inclusion and
attitudes, housing, employment, education, mobility
and the economic costs both to the person with
epilepsy and the community.
This research will enable us to better plan for
the future in tailoring our services to ensure they
meet individuals’ needs most effectively and to
position Epilepsy Foundation to be able to meet
the growing demand.
Using the most relevant and current research
available, we have extrapolated what we believe
is the likely picture of the prevalence of epilepsy
in Australia today. The Joint Epilepsy Council of
Australia conservatively estimates that as many
as 600,000 Australians may presently suffer from
epilepsy or will suffer from epilepsy at some time
in the future.1 Using other Australian studies, it is
estimated that between 8.8 and 20 per 1,000 people
in Australia has epilepsy.2
By applying the Australian Bureau of Statistics’
estimate of the Australian population in September
2008 to the prevalence estimates, we estimate that
the number of people with epilepsy in Australia is in
the range of 184,800–420,000.3
In Victoria, the number is therefore in the range of
45,760–104,000. However, the number of people
who are significantly affected by epilepsy including,
for example, carers and family members, will be
around four times higher than these figures.
1 Joint Epilepsy Council of Australia (2006), A national
strategy for epilepsy in Australia, the Epilepsy Foundation
of Victoria, Melbourne.
2 Beran R (1983), Epidemiological studies of epilepsy
in Sydney, Australia, a report prepared for the Federal
Government of Health, Sydney.
Sheehan R (1985), Epilepsy and human rights, Human
Rights Commission Occasional Papers No 7, Canberra,
AGPS.
Brown K & Walker C (2006), Developing an applied
research agenda into the social effects of living with
epilepsy, Epilepsy Report, No 2, 23–27.
3 Australian Bureau of Statistics census reports, 2007.
Epilepsy Foundation of Victoria | Annual report 2007–08
landscape
Funding shortfall
In the 2007–08 year, Epilepsy Foundation’s individual
support services were accessed by approximately
3,400 people, suggesting that there are many
thousands living with epilepsy, or closely linked to
someone with epilepsy, who are not receiving the
services they need, either through lack of referral or
awareness, or for other, more emotional, reasons
associated with the perceived stigma of seeking help.
Furthermore, through our training and education
program for schools, businesses and other
organisations, we have reached more than
65,000 people with important messages about
epilepsy and first aid for seizures.
Each year, Epilepsy Foundation receives funding
from the Victorian State Government Department of
Human Services (DHS) for people living with epilepsy
who meet strict disability criteria. This year we
received $866,701 in government funds.
Gross income 2007–08
However, this funding only covers one-third of the
cost of delivering current services and meets only the
most urgent needs. Hence there is an ongoing and
pressing need for us to raise significant funds each
year to meet the shortfall and be able to continue
providing services at the current level.
Many would be unaware that epilepsy can, in fact,
strike unexpectedly for the first time in people over the
age of 65. With our population ageing, the number
of people with epilepsy in this age group can only
be expected to rise significantly in the next 10 years,
creating even greater demand for our services.
Regrettably, our current Victorian Government funding
does not cover the support of children under the
age of six and there are complex transition issues
for people over the age of 65, two unique groups
with specific needs, which represent a significant
proportion of those who seek our services.
It is vital that we continue our efforts to raise
awareness of epilepsy in the community and to
put the spotlight on this serious health condition,
so that we can increase funding for our activities
to more realistic levels in line with current demand,
and encourage greater community support.
Dontations 26.78%
Bequests 9.19%
Membership fees 0.12%
Fundraising events 26.86%
Government grants 21.22%
Investment income 0.46%
Opportunity shops 12.81%
Service fees/community awareness 1.82%
Sundry income 0.53%
Trading income 0.18%
Profit on sale of motor vehicle 0.04%
For Megan, the hardest part to
cope with was people’s attitudes
towards her when she experienced
a seizure in a public place.
What is epilepsy?
Epilepsy is often referred to as a disorder
of brain function that takes the form of
recurring seizures.
Our every thought, feeling or action is controlled
by brain cells that communicate with each other
through regular electrical impulses. A seizure occurs
when sudden uncontrolled bursts of electrical activity
disrupt this regular pattern. This can be confined to
just one part of the brain or can occur right across
the brain. Communication between cells becomes
scrambled and our thoughts, feelings or movements
become momentarily confused or uncontrolled.
While seizures can be frightening, in most instances
they stop without intervention. Once the seizure
is over the person gradually regains control and
re‑orients themselves to their surroundings, generally
without any ill-effects. Approximately 80 percent
of people diagnosed with epilepsy will have their
seizures controlled.
epilepsy
“I would advise people to not let it get you
down. Accept it and fight back. Unless your
seizures cannot be controlled, I believe that
you can live a very productive life.”
– Maurice Rooney
Epilepsy Foundation of Victoria | Annual report 2007–08
Looking forward
A strategic review of the organisation’s
direction, undertaken in June 2008, has
resulted in the Epilepsy Foundation of
Victoria Overall Strategic Plan, a forwardfocused blueprint for our activities over
the coming three years.
Outcome 3 – Effective and respected
advocate
The review determined several strategic themes:
Outcome 4 – Sustainable organisation
• Partnerships
• Leverage off existing community services
• Knowledge development
• Capacity building
• Resource development
• Cross-functional project teams.
Four specific Strategic Outcomes will underpin our
strategies and initiatives:
Our aim is to become the key voice for people living
with epilepsy within government, the medical and
other health professions and the wider community,
in order to ensure that the needs of epilepsy sufferers
and their families are heard and met in future years.
The issue of raising sufficient funds and the wise
application of them to enable Epilepsy Foundation
to support people living with epilepsy now and in the
future is, and always will be, a key area of concern
and focused effort for us.
More detail on these strategic themes is available
on our website (www.epinet.org.au).
Outcome 1 – Services aligned to need
Our aim is to develop an improved and more
sustainable service delivery model, based on a deep
understanding of the needs of people living with
epilepsy, and to engage with other community and
disability organisations.
Outcome 2 – Effective community
engagement
Our aims are to create effective stakeholder and
community engagement programs to enhance our
ability to deliver services, to create opportunities
for learning and education, and to develop a social
research policy and strategy.
forward
Epilepsy Foundation of Victoria | Annual report 2007–08
President’s report
Epilepsy Foundation of Victoria is in good
shape and our services are growing.
Reducing the stigma associated with epilepsy is still
our most important task. We recognise that a betterinformed and more welcoming community is essential
if people living with epilepsy are to achieve economic
participation and feel included in society.
Training and community education services are
growing. We have recruited staff to build our training
capacity; over the last year we held more than
100 training and public education sessions. Some
30,653 kids participated in Trivia Challenge, our
awareness program for schools. Improving awareness
of epilepsy in schools is a very important part of the
Trivia Challenge program and probably the key to
improving community attitudes in the long term.
Around 3,400 people living with epilepsy were
individually supported by our staff during the year.
Raising funds to support the organisation is always
a challenge and this year has been a little more
challenging than usual due to both the uncertain
economic climate and capacity issues at our
telemarketing provider. Strong control of expenses has
meant that the result for the year was reasonable in the
circumstances.
Russell Pollard has resigned as Chief Executive
Officer of the Epilepsy Foundation of Victoria after
13 years of service. He felt that the time was right at
a personal level but, more importantly, that it was the
right time for the organisation to make the transition
to new leadership. Russell changed the nature of the
Foundation and we will be seeing the benefits of his
changes for many years to come.
Graeme Shears has commenced as the Foundation’s
new Chief Executive Officer. He brings extensive
experience in the not-for-profit sector as a consultant,
Board member and in executive positions. This will
help to ensure the continuation of the many excellent
activities that are currently in place while supporting
the Foundation to think strategically about how best
to focus the resources available to get results in the
important years ahead.
Epilepsy Foundation of Victoria | Annual report 2007–08
Key strategic themes have been identified as part
of our planning:
• Partnerships and leveraging off existing
community services
• Knowledge and capacity building
• Developing our resources
• Involving key stakeholders in our
improvement projects.
By ensuring these themes are embedded in the way
we manage projects to improve our organisation we
believe we will have the best chance of delivering on
the aspirations we have for people living with epilepsy,
the organisation and the community.
I am often asked why the various state epilepsy
organisations don’t get together and form a more
powerful single organisation to lobby government and
so on. This would, obviously, be a good thing and
something we have worked to achieve over the years.
Epilepsy Foundation is a member of Epilepsy Australia,
the peak body representing some two-thirds of the
service capability in the non-medical service sector.
Epilepsy Australia initiated a strategic workshop to
advance the unification of the service sector and a
substantive body of shared purpose was established,
with most of the states very much involved in Epilepsy
Australia, and this initiative is going strong.
The ongoing support of volunteers, philanthropists,
funding agencies, government, the Patrons Council,
suppliers and staff is vital to improving the lives of
people living with epilepsy.
Thanks to everyone at the Foundation for a great year,
and especially to the client service staff and volunteers.
Professor Mark Cook
Committee of Management
(as at 30 June 2008)
Professor Mark Cook
– President
Currently Professor and Director
of Neurology at St. Vincent’s
Hospital Melbourne, Prof. Cook
is a neurologist specialising in
the treatment of epilepsy. After
completing specialist training in
Melbourne, he undertook an MD thesis at Queen
Square, London. He returned to St. Vincent’s
Hospital, Melbourne to continue his interest in
epilepsy and has formed a large research group
with a broad range of interests across epilepsy,
neuromuscular disease, multiple sclerosis and
Parkinson’s disease. Clinical and basic science
research concerning epilepsy and neuromuscular
disease is carried out in the department and has
recently extended to neurophysiological studies in
kindling models of epilepsy. Research grants are
held across all of these areas, including NH&MRC
and ARC funding. For the last four years Prof. Cook
has been involved in a project to treat epilepsy via
novel methods, including electrical stimulation and
polymer-based drug delivery. He is President of
the Epilepsy Foundation of Victoria and an Editor
for Epilepsia.
Cavell Zangalis
As a secondary teacher Cavell
became increasingly involved
in migrant and multicultural
education. She headed several
Education Department sections
in this area and some major
initiatives such as Hodja, a
multicultural publisher and pioneer multilingual
library for schools. She was the founding principal
of Melbourne Girls’ College. Her recent work as
a volunteer at the New International Bookshop
Cooperative has developed into an honorary
management role.
Dr Christine Walker
Christine is currently Chief
Executive Officer of the Chronic
Illness Alliance Inc, a peak
body representing more than
40 consumer and advocacy
organisations for people with
chronic illness. The aim of the
Alliance is to build a better focus in health policy
and health services for all people with chronic
illness. In this role she works collaboratively with a
number of other organisations, including government
departments and hospitals, to further the Alliance’s
aims of improving the lives of people with chronic
illness. Christine completed a PhD thesis in
1995 which explored the growth of government
intervention in the hospital system in Victoria. She
has experience in qualitative research and has
recently published a book on chronic illness as well
as many journal articles. Christine is a member of the
Community Quality Use of Medicines Working Group
for the National Prescribing Service.
Jacqueline Branston
Jacqueline has been a Committee
of Management member since
November 2002 and is currently
a counsellor, educator and public
speaker in a voluntary capacity
at the Epilepsy Foundation
of Victoria. As a mother of a
profoundly disabled son who has uncontrolled
epilepsy Jacqueline is passionate in her efforts to
ensure all carers are armed with accurate information
and education. Jacqueline holds qualifications in
counselling, psychotherapy and hypnotherapy.
She has gained extensive personal experience
as a volunteer in a wide range of community
organisations over a 30 year period.
Epilepsy Foundation of Victoria | Annual report 2007–08
Jim Campbell, AM
Jim is a strategic change
agent with more than 25 years’
experience in driving change in
Commonwealth Departments
as well as public and private
companies. Over the past
seven years he has worked in
the not-for-profit sector successfully completing
major restructures and integration projects with
Vision Australia, Multiple Sclerosis Limited and Saint
Vincent de Paul as well as a joint venture that led to
the creation of VicBionics. Jim has undertaken work
with Boards and executives on strategic planning,
governance, business planning and performance
evaluation and acts as a coach and mentor to
directors and CEOs. He has practiced as a company
director for more than 18 years with public and
private companies. Jim is an Arts graduate of the
Royal Military College of Australia and a business
postgraduate of Monash University. Jim also has
had personal family experience with epilepsy.
Jock MacAdie
Jock’s background is in corporate
finance, corporate restructuring,
health, hospitality and property.
He worked for Elders in Australia
and New Zealand where he set
up their finance operations and
for Rothschilds and Schroders
in Australia. Jock worked with the provisional
liquidators of Hooker Corporation and HIH Insurance
where he advised on restructuring options, as well
as stabilising and managing various assets of the
businesses. He also advised on sale and realisation
options and managed various disposals. In the
healthcare sector Jock was for eight years the
Finance Director/CFO of Australian Hospital Care
Limited where he undertook assignments including
major equity raisings, floating the company in a
new public listing, various acquisitions and debt
refinancings as well as numerous organisational
restructurings. In the hospitality and property area,
Jock worked with the Century City/Paliburg/Regal
Hotels group in HK, a large hotel owner and operator
in HK, the PRC and the USA as well as a major
property developer and investor in HK and the PRC.
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Epilepsy Foundation of Victoria | Annual report 2007–08
Sally Genser
Sally Genser has been a member
of the Committee of Management
for three years. She was also a
Board Member of Yarra Health
Services and President of the
Richmond Creche Society for
many years and is now a Life
Member of Richmond Creche Society. Sally is a
licensed estate agent and has been a Director
of The Belgrave Group of Companies for more
than 15 years. The Belgrave Group is a boutique,
family-owned property development group, which
has been in business for more than 50 years,
completing projects in residential, office, commercial,
industrial, aged care, child care and hospitality and
which has recently expanded to China. Sally was,
for many years, an advisor to The Meat Workers
Union Industry Employees Superannuation Fund
advising on their property investment portfolio. She
is also Managing Director of Quest Phillip Island
(Serviced Apartments).
Dr Lindsay Vowels
Dr Lindsay Vowels’ career has
spanned more than 40 years
in the disability sector, working
primarily with people with a
neurological disability. Dr Vowels
currently works in a voluntary
capacity with several applied research projects
including the MS Longitudinal Database. She joined
the Committee of Management in 1992, holding the
positions of President and Vice President and is also
the founding and current chair of Epilepsy Australia.
Her interests lie in the quality and variety of services
available to people with epilepsy, education and
training, which is available to professional staff
employed by the Foundation and support and
education services in rural and remote areas. She is
currently involved in research into the psychosocial
impact of epilepsy on individuals and their families,
having convened the Research Working Party,
which is developing guidelines for a proposed
Parliamentary Enquiry into Epilepsy.
Tony Mooney
Tony Mooney currently works
with several companies
operating in the metal and plastic
components market, working on
product development through
to full product manufacturing
and providing advice on plant
equipment and other business areas. Over the
past 10 years he has been heavily involved in
the management of various companies in the
manufacturing sector, working in roles from team
leader through to Chief Executive Officer for a
period of three years.
management
committee
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Chief Executive Officer’s report
I am not in a position to comment about
much of the activity for the year ending
June 2008 as my personal experience is
limited to the month of June. I do know
that the organisation is in good financial
shape, with competent staff who are
passionate about supporting people living
with epilepsy and engaged in the new
strategic opportunities.
We are fortunate to have a great source of influence
and wisdom in the Patrons Council and enjoy a
growing philanthropic support base.
We have undertaken a strategic review to ensure we
are clear as an organisation about what we need to
do, what the priorities are, and how best to proceed.
All our efforts will be directed to delivering the best
outcomes for people living with epilepsy. We have
thought about both immediate issues and also about
being able to support people into the future.
We are focused on capacity-building:
• Within individuals and their families so that
children, young people and adults with
epilepsy experience increased self-esteem,
connectedness, educational outcomes and
opportunities to participate in community life,
with the knowledge and skills to achieve their
own wellbeing and access to support services
and learning opportunities.
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• Within the families and support networks of
people with epilepsy so that they, too, are
confident and knowledgeable, have access to
opportunities for support and networking and to
opportunities to learn.
• Within organisations so that people with epilepsy
who are engaging with or working in them find
them accessible and supportive to their needs.
• Within the community so that it provides increased
opportunities for participation, responds to
the needs and aspirations of people living with
epilepsy, understands epilepsy and treats people
living with epilepsy as valued members.
Epilepsy Foundation of Victoria is thinking
strategically and aims to be well led, sustainable, to
grow both in knowledge and capacity and to have
the right people and enough resources to support
outcomes for people living with epilepsy in Victoria.
Graeme Shears
chief
executive
Epilepsy Foundation of Victoria | Annual report 2007–08
Message from the Chair
of the Patrons Council
My fellow patrons and I see this cause
as a high priority and it’s time for the
community as a whole to make things
happen with regard to awareness
about epilepsy.
Epilepsy is seldom discussed and most people have
only a vague and often misinformed understanding
of the condition. This isn’t good enough when at
least one in every hundred people in Victoria will
have epilepsy in their lifetime. The misunderstanding
increases the unjustifiable stigma that makes
the lives of people with epilepsy far worse than
they could be. Something needs to be done and
quick smart.
On the positive side it’s good to see the momentum
that is building, particularly in regard to the Federal
Government’s Parliamentary Friends of Epilepsy
and I acknowledge the leadership role that the
Epilepsy Foundation of Victoria has taken in this
national initiative.
Great research conducted by the Epilepsy
Foundation of Victoria, including some Australian
firsts in regard to longitudinal studies, has informed
the way people are supported, and the Patrons
Council will use its collective influence to help the
Epilepsy Foundation of Victoria improve the lives of
people living with epilepsy.
I wish the outgoing CEO Russell Pollard all the
best for his future and acknowledge the strong
foundations that were built during the 13 years of
his leadership. I look forward to working with the
new CEO Graeme Shears whose experience and
skills, supported by 12 years in executive roles or
consulting in the disability sector, bode well for
the future.
Dame Beryl Beaurepaire
Patrons Council
Dame Beryl Beaurepaire AC OBE (Chair)
Ted Baillieu MLA
John Blackman
The Hon. Justice Bernard Bongiorno
Philip Brady
Julian Burnside QC
The Hon. John Button (Deceased)
Professor Ed Byrne
The Hon. John Cain
The Hon. Joan Child AO
Paul Cronin
Sean Cummins
The Hon. Justice Linda Dessau
Ivan Deveson AO
Melanie Eagle
David Galbally QC
Rhonda Galbally AO
Bev Genser
Petro Georgiou MHR
Stera Gutnik
David Hayward
The Hon. Brian Howe
John Jost
Robert Kirby
The Hon. Joan Kirner AM
Emeritus Rabbi John Levi
Judy Maddigan MLA
Neil Mitchell
Dame Elisabeth Murdoch AC DBE CBE
Emeritus Professor Sir Gustav Nossal AC CBE
Janet Powell
Barbara Rozenes
Ross Smith AM
Richard Stanley QC
Michael Stillwell
Claude Ullin
Luisa Valmorbida
Epilepsy Foundation of Victoria | Annual report 2007–08
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Client services
About our services
How many people did we reach in 2007–08?
Providing quality, relevant and valued client
services that make a difference to people’s
lives, and providing them in a timely way
along each person’s journey with epilepsy,
is our sole purpose.
Our services, which are provided across Melbourne
and regional Victoria, reach many thousands of
people each year.
The reasons why people seek our services vary
widely and depend on many factors: age and stage
of life, individual needs, the unique problems or
issues a person may be facing and their personal
goals and aspirations for the future.
Our services can essentially be described as the
provision of:
• information
• education and training
• advocacy
• case management support
• research.
The way we provide these services depends very
much on individual needs – our services are tailored
in response to the person’s expression of their
own goals and aspirations. We spend time with
people, talk with them, learn about their life and
family situation to gain an understanding of what
they want to achieve, and then determine how best
we can help.
A diagnosis of epilepsy does not mean that life has
to stop. One of our primary aims is to see people
managing their epilepsy in a way that enables them
to live, study and work as they normally would and
participate in the activities they enjoy no matter what
age. Many people with epilepsy are able to play
sport, swim, go to the movies and, under certain
circumstances, drive a car. Importantly, we work with
people to help them regain their confidence so that
they can continue to do the things they love or that
matter most to them.
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Epilepsy Foundation of Victoria | Annual report 2007–08
The Epilepsy Foundation has offices in Camberwell,
Geelong and Ballarat and from these centres
provides services in the metropolitan, Grampians,
Barwon South West, Loddon Mallee and Hume
regions as well as through outreach programs in
other locations as required. During 2007–08, our
services touched more than 3,400 people.
Information services
Our initial contact with a new service user is usually
by telephone, often immediately after the person or
their child has been diagnosed with epilepsy.
This is a time when there can be a great deal of
anxiety and confusion, along with feelings of anger,
sadness or frustration. Our early intervention helps
people make a healthy adjustment to living with
the condition, often preventing the development of
chronic problems such as depression.
A diagnosis of epilepsy is almost always
accompanied by a sense of loss – whether it is the
loss of the ability to drive (a major factor for many
otherwise healthy, mobile adults), a loss of income
and independence through the inability to work for
a period of time, or the loss of personal freedom
which comes from a fear of having an epileptic
seizure while carrying out day-to-day social or
recreational activities. There is a widespread lack of
understanding about epilepsy in the community and
social stigma persists as a consequence.
We believe that an effective way to remove the
stigma and dispel the myths associated with
epilepsy is through awareness and education.
Our information service helps to reduce the
anxiety surrounding epilepsy by easing the fear of
the unknown, demystifying the facts and removing
the misconceptions about what epilepsy is, and
is not. We ensure that people living with epilepsy
have access to as much current information about
information
the causes, treatments and impact of epilepsy
as they need and want, to optimise management
of their condition and improve quality of life. We
also provide valuable information services to
those in the community working with people with
epilepsy, which enhances their capacity to provide
appropriate services.
Library service
A critical component of our information service is
the Epilepsy Foundation Library, which includes
more than 2,500 books, audio visual materials, CDs,
journals and extensive information files containing
current literature on many subjects associated with
both the study of, and living with, epilepsy.
It is the most comprehensive epilepsy collection in
the Southern Hemisphere and of considerable value
to the community and to researchers engaged in the
study of epilepsy.
Our collection includes a wide range of materials
for both adults and children, which answer many
of the questions relating to epilepsy and the many
issues associated with living with the condition. In
addition we hold an extensive collection of works
of interest to members of the medical and other
health professions.
We aim to provide both current and retrospective
information about epilepsy and living with epilepsy for
staff, those with the condition, their families, carers,
interested members of the public and medical
professionals. Our dedicated Librarian endeavours to
assist with all information queries, whether they are
made in person or by telephone, letter or email.
Most books and audio visual materials are available
for loan to members of the Foundation and our
online catalogue is available for browsing. All clients,
members of the public, research workers, students
and medical professionals are welcome to visit the
library and make use of its facilities.
The library during 2007–08
• Approximately 70 new books and audio visual
items were added to the collection during the
year, at a cost of almost $9,000. The average cost
of neurological titles is approximately $150 and
upwards, a prohibitive cost but one we are
prepared to bear, in order to keep our library as
up-to-date as possible.
• We loaned out 254 titles.
• Using Gratisnet, the inter-library loan service,
72 titles were supplied on loan to other libraries
and 39 were received from other libraries.
•Approximately 500 reference queries from
members of the public and staff were answered.
Our dedicated Librarian
endeavours to assist with all
information queries, whether
they are made in person or by
telephone, letter or email.
Epilepsy Foundation of Victoria | Annual report 2007–08
15
Support services
Our support services are at the heart of our
work with people with epilepsy – it is through our
professional service staff’s one-on-one consultations
with adults and children and their ability to build
relationships with those who use our services
that we are able to make a real difference to
people’s lives.
Support services are provided in a number of
ways. These can include, for example, providing
advice on how to deal with epilepsy for those newly
diagnosed with the condition, liaison with schools
or employers on behalf of the person with epilepsy,
grief counselling or working with the person to
re‑establish their confidence in gaining or regaining
employment or engaging in social or recreational
activities. Services can be provided periodically
to address changing life situations, or on an
ongoing basis.
We may hear from a parent when their child with
epilepsy reaches a major milestone in their lives
This year our dedicated
client services staff helped
more than 3,400 individuals
and reached many more
thousands of people through
our other training, education
and schools programs.
16
such as changing to a new or higher-level school.
The difficulties associated with finding acceptance in
a new environment – of fitting in – are often felt keenly
by children with epilepsy and can be daunting.
Our service staff help by liaising with the school staff
to increase their understanding and knowledge of
epilepsy and how to manage a child with epilepsy
within the school community. We offer training for
the principal and teachers in seizure recognition
and seizure first aid and provide knowledgeable and
empathetic support for the child and his or her family
as they adapt to their new school, with the aim of
maximising the child’s capacity to develop to their
full potential.
The Epilepsy Foundation also provides support to
families in times of grief. Our bi-annual Memorial
Service is held in remembrance of those who have
died through epilepsy. This year the Memorial
Service was held at St Mark’s Church in Camberwell
where more than 150 attended to remember their
loved ones.
support
Family and adult camps
Education and training
Often just the opportunity to talk with someone in
the same situation, to share experiences, problems,
ideas and outcomes can be invaluable in learning to
cope with epilepsy.
Our education and training program is a key element
of our plans to raise community awareness about
what it means to have epilepsy, how to live with the
condition and how to manage if an employee or
student in a particular setting has epilepsy.
Our annual family camp is just such an opportunity,
providing an outlet for parents of children with
epilepsy to talk with others experiencing the same
issues, whether relationship difficulties, problems
with siblings or their hopes for the future.
It is often the first opportunity for a child living with
epilepsy to meet and interact with another child
experiencing with the same condition. Parents and
siblings also benefit from an opportunity to meet
others sharing similar challenges. Many ongoing
friendships develop from this experience.
This year our camp was run at the Anglesea
Recreation Camp and was attended by 78 parents
and children including many regulars and a number
of first-timers.
Our annual Adult Getaway was held at Lady
Northcote Recreation camp near Bacchus Marsh.
A total of 43 people attended for four days of
high adventure, with activities such as canoeing,
yabbying, a flying fox, big swing, mountain biking
and bush walking. We also enjoyed some more
sedate activities like reading the newspaper,
watching the footy and designing and creating
a craft mural.
During 2008 we expanded our Understanding and
Managing Epilepsy program from two events per
year to a monthly schedule, to enable more people
to access this important service when they need it.
Guest speakers attended some of these events to
address specific topics of interest.
Other very successful programs included two epilepsy
surgery information afternoons, which were held on
weekends to maximise attendance. At these events,
a Neurologist spoke to an audience of people with
epilepsy who have either undergone surgery in the
past two years or who are contemplating surgery,
together with their families and carers. In addition,
surgery candidates spoke about their personal
experience with surgery. Participants regularly report
how valuable this program is.
Often just the opportunity to talk with
someone in the same situation, to
share experiences, problems, ideas
and outcomes can be invaluable in
learning to cope with epilepsy.
camp
17
In 2007–08 our education program also included:
Regional services
• Our annual Men and Epilepsy and Women and
Epilepsy workshops, which were well attended.
Our flexibility in running all our programs in
the mornings, afternoons and evenings was
appreciated and enabled more people to attend.
Our professional client services staff provided
specific services to the Loddon Mallee and
Hume regions, covering cities such as Bendigo,
Shepparton, Wangaratta, Swan Hill and Wodonga.
• Our parent and carer education days, which
were held twice during the year at the
Camberwell centre. Professor Ingrid Scheffer,
an eminent Paediatric Neurologist, has been
the guest speaker at these events for many
years. The program provides parents and carers
with a comprehensive overview of childhood
epilepsy and an opportunity to meet and talk with
other parents for mutual support. This year we
expanded our parent support workshops and
ran training in Gippsland for health workers and
members of the community over a fourday period.
• A childhood epilepsy seminar held in Warragul in
early 2008 at which Paediatric Neurologist Dr Rick
Leventer was the guest speaker. This workshop
was so well attended that the Epilepsy Foundation
is planning to run more of these seminars in other
areas of the state.
• Training within community residential units
operated by the Department of Human Services
and other community providers, to equip those
caring for people with epilepsy with knowledge
and information. We also provided several epilepsy
training sessions for Scope staff in Melbourne,
Geelong and Bendigo, and other disability service
providers accessed our training service throughout
the year. Some of our training staff provided
epilepsy training in the TAFE sector to students
undertaking disability and aged care studies.
• Talks at schools, which often related to a particular
student with epilepsy. This work is designed to
assist school staff to manage the needs of the
student and to provide a safer, happier and more
accepting environment for all concerned.
• Similar training in places of employment, which
assisted business owners and supervisors to
better manage an employee with epilepsy in
the workplace.
18
Epilepsy Foundation of Victoria | Annual report 2007–08
Similar services were provided from our Ballarat
office to the Grampians region in Victoria and to
the Barwon South West region of Victoria from our
Geelong office.
The regional work encompassed the range of
services provided from our Camberwell office
including case management, information, advocacy,
education and training and clinic support.
Involvement in epilepsy clinics
Epilepsy Foundation has five service staff who
work in partnership with neurologists specialising
in epilepsy in seizure clinics at major hospitals in
Melbourne and in some regional cities.
These service staff are immediately on-hand after a
patient is diagnosed with epilepsy to provide support
and empathy during what is often a traumatic time
for the patient.
In addition to our involvement in clinics, many of our
service staff visit clients when they are in hospital for
various investigations or surgery. Our in-patient work
at hospitals such as St Vincent’s, the Alfred, Royal
Melbourne and the Austin is proving an invaluable
service to patients and is highly valued by their
health care professionals. Our expert knowledge
of the social aspects of epilepsy and our advice on
managing and living with the condition often lessens
the anxiety surrounding a diagnosis of epilepsy and
helps to demystify the facts.
We also maintain excellent links with the Royal
Children’s Hospital, which refers patients to the
Epilepsy Foundation. We support the hospital’s
ketogenic diet treatment program by supplying
scales for families to borrow while they are trialling
this treatment for children with uncontrolled epilepsy.
During the year we consulted with approximately
500 people in the clinic or hospital setting, many of
them on multiple occasions during the year.
Accommodation service
Since 1999, the Epilepsy Foundation’s
accommodation service has assisted many
hundreds of people to stay near their loved
ones and be on-hand while they access medical
services in Melbourne.
This may involve assessments to determine their
suitability for surgery, being nearby while they
undergo surgery or attending information sessions
in Melbourne.
During the 2007–08 financial year, we reviewed the
way in which we provide accommodation services
with the aim of being able to offer the best possible
service from our limited resources.
While the issue of whether or not we would
continue to offer accommodation services was never
in question, we have taken the decision to provide
this service in a different way. From 2009 we will
link our service users with other, more mainstream,
accommodation facilities such as quality, local
motels, which have virtually unlimited supply and are
located conveniently near the major hospitals. This
will enable us to continue to assist people with local
accommodation that meets their needs, while freeing
up our staff resources for other service areas.
Advocacy
Our advocacy work primarily involves supporting our
clients to ensure they are not disadvantaged in any
community setting such as the workplace or school.
We aim to ensure minimal restrictions and maximum
opportunity for growth and fulfillment. Information
and education are essential strategies for removing
barriers to full participation and opportunity.
education
advocacy
Our advocacy work primarily involves
supporting our clients to ensure they are
not disadvantaged in any community setting
such as the workplace or school.
19
Fundraising
The 2007–08 year in many respects
has been a watershed year for the
Epilepsy Foundation.
Setting the scene
The last decade has seen the Foundation grow from
a narrow service delivery model whereby we were
funded by little more than State Government grants,
to an organisation where two-thirds of our income is
derived from private sources through fundraising. We
are unique in terms of disability agencies and health
organisations of a comparable size in being so reliant
on non-government income.
Our uniqueness brings with it a real challenge in
terms of sustainability and determining what income
we can rely on to deliver our service programs.
Some time ago we identified the need to have
multiple fundraising programs to reduce our risk
in the event of a downturn in any one area. The
global financial crisis has already started to have an
effect in a number of income areas and we see that
becoming a much bigger issue for this coming year
and beyond.
Much of our growth to this point has been organic,
taking place as opportunities have arisen, and
reliant on individuals within the organisation taking
the running to get the programs up and going. The
problem with this method is that it is too dependent
on these individuals and as the programs have
grown our capacity to maintain that growth has
been restricted.
The challenge is to develop better processes and
systems so that the programs can grow, so that
we have the best use of the limited resources we
have available to us, and so we can maximise the
opportunities for our wonderful supporters and
volunteers to help us.
20
Epilepsy Foundation of Victoria | Annual report 2007–08
Concept of fundraising
Our goal is to raise sufficient funds to enable the
Foundation to support people living with epilepsy
now and in the future. This will be achieved by our
aims to:
1. Develop and manage a portfolio of effective
fundraising and communication products and
methods that meet supporters’ needs, mitigate
risk and reduce dependency on any one source
of income, and to achieve both short and long
term targets, in particular:
• Increase the database of active financial
supporters and their individual levels
of support
• Identify and acknowledge every act
of philanthropy
• Develop a program to generate enabling and
transformational gifts for major projects and a
capital appeal for a centre of excellence at our
Camberwell head office
• Explore corporate sponsorship of
major activities
• Position the Foundation to be a recipient of
choice for bequests.
2. Maintain general public awareness, goodwill and
understanding of the Epilepsy Foundation, while
increasing these in key target audiences in order
to improve understanding of epilepsy, first aid for
seizures and the propensity to support.
3. Communicate the Epliepsy Foundation’s case
for support to prioritised audiences.
fundraising
Principal fundraising activities
The Foundation’s range of fundraising programs
includes donation collections through direct
marketing (mail, telemarketing, email and door
knocks), raffles, opportunity shops, community
fundraising and our school Trivia Challenge
campaign. At the core of all the programs is the
willingness of individuals to give both financially
and of their time.
This year saw mixed results (total donations
$1,093,822 up 2 percent). While it started out
well with record growth in our September (up
70.3 percent) and Christmas (up 27.3 percent)
appeals, it slowed during the second half of the year
resulting in a fall in our main appeal. The concern
was not only that in fell in value, down 3.5 percent
(total $174,566) but also that it fell in numbers, with
the total number of donors down by 7.6 percent
(total 2,097).
The shining light for personal support came from
bequest donations, up 890 percent to $375,218
thanks to the particular generosity of three donors,
June and Ruby Pollard and Frederick Rogers.
Bequests are absolutely vital if we are ever to raise
the money we really need. Bequests, or a legacy,
allow people to give substantial support at a time
when it can be afforded. This is often because it is
just not possible during their lifetime.
Our raffle program is our largest fundraising program
and it felt the brunt of the growing economic crisis
in a different way. Initially, when times were good
and employment low, our raffle operator, Apple
Telemarketing (the largest supplier of charitable
telemarketing in Victoria), was unable to recruit
enough telemarketers to meet delivery schedules
for all its clients and, as a result, we were forced to
run one less raffle. This resulted in both reduced
donations and raffle sales ($699,976).
Charitable status, tax concessions
and fundraising
Epilepsy Foundation of Victoria Inc.
ABN 75 967 571 784 is an incorporated
association – Reg. No. A0022674D.
Epilepsy Foundation of Victoria is a Public Benevolent
Institution (PBI). It is endorsed as an Income Tax
Exempt Charity (ITEC) and enjoys certain other tax
concessions and exemptions consistent with its status
as a PBI which relate to Goods and Services and
Fringe Benefits Taxes.
Epilepsy Foundation of Victoria has been endorsed
by the Australian Taxation Office as a Deductible Gift
Recipient (DGR).
Epilepsy Foundation of Victoria is registered in
Victoria as required by law to raise funds – Reg. No.
8190 renewable annually (October 2009). Epilepsy
Foundation of Victoria is a declared charitable
organisation for minor gaming purposes with
The Victorian Commission for Gambling Regulation
– Reg. No. 40315.
Our fundraising staff are members of FIA (Fundraising
Institute Australia) and subscribe to the FIA Codes of
Professional Fundraising Practice.
This Year’s Trivia Challenge
attracted 30,653 participants
from 243 schools.
21
In many ways, where we put our first foot forward
with most people in the community is through our
fundraising programs. It is therefore essential that we
do this with clear, respectful messages that educate
the broader community about epilepsy and the
needs of people living with epilepsy. Many thousands
of the people we encounter in this way have, over
the years, become loyal supporters.
Our supporter communications are thoughtfully
produced to maximise awareness of the issues
around epilepsy. We have a long term goal of getting
at least one person in every household to understand
first aid for seizures. At this stage, without significant
outside support, we cannot engage in major publicity
campaigns because they are just so expensive.
We encounter many acts of generosity and are
grateful for them all. While we cannot recount
them all, we wish to say a sincere thank you to all
who have helped in some way. You are all making
a difference.
Community education expense allocation
Many other organisations separate out the
education costs and transfer them out of the
fundraising area prior to reporting. Our accounts
show the full costs and, when required, we will
internally take up the community education and
public relations costs to reflect what they might
cost the Foundation otherwise.
Program type
Raffles
55%
Donations:
Donor Renewal programs
Donor Acquisition
50%
65%
Op Shops/Recyclables
50%
Trivia Challenge
80%
Volunteer Fundraising
55%
Bequests
50%
Grants
22
% of gross
expenses
0%
Our volunteers
Many of the activities conducted at the Epilepsy
Foundation would not happen without the
assistance of our team of wonderful volunteers.
The extent of volunteer involvement can be seen from the
vast array of programs they support, including our Opportunity
Shops, camps, support groups and Helpline, along with
public speaking, community education, administration and
fundraising activities and our Committee of Management,
various sub‑committees and Patrons Council.
Our five Opportunity Shops require the largest number of
volunteers. Each day they undertake tasks such as collecting,
sorting and pricing goods through to retail sales. The range of
administrative tasks is almost never-ending and includes clerical
support, reception, data entry and sorting raffle tickets through
to conducting mailouts.
Specially trained volunteers are an integral part our family
and adult camps and support groups, such as our Superfits
recreational group. Regardless of the size or purpose of the
task, our volunteers show a wonderful commitment, happily and
consistently giving their time, and for that we sincerely thank them.
During 2007–08 we were able to recognise the hard work and
commitment of a number of volunteers by presenting them with
their 5 and 10-Year Service Awards.
The client services team has identified future areas of
involvement for volunteers and, in particular, we will be focusing
on the development of a volunteer educator project and a peer
support program, both of which will harness the skills and
experiences of people affected by epilepsy.
10-Year volunteer awards
John Anderson
Ross Brunt
Colette Flynn
Perin Harding
Diane Holdsworth
John Phillips
Sandra Maschler
Frank Riordan
Robert Wierzbicki
Les Feig
Timothy Hacking
Phillip Niehof
Leonie Efthim
5-Year volunteer awards
Eve Kilmartin
Carol Miller
Antoinette Matheron
Wendy Hancock
Bev Walker
Ria White
Win Wildish
Bev Helmore
Cheryl Benson
Sandra Somers
Jenny Brain
23
Honour roll
$50,000 +
Estate of June Heather Pollard
Estate of Frederick Scoullar Rogers
Estate of Ruby Elvina Pollard
$10,000 – $49,999
The Jack Brockhoff Foundation
Fred P Archer Charitable Trust
Bell Charitable Fund
Mr Wayne King
Mrs Kathleen King
Estate Columba Marguerite
Mackie‑Smith
The Ian Potter Foundation
Snowy Nominees Pty Ltd
Estate of Vera Marion Hale
The Angior Family Foundation
$5,000 – $9,999
AMCA
Australia Post
Goldman Sachs JB Were Foundation
Pierce Armstrong Trust
Mrs Ellen Cummins
Freiburg Nominees Pty Ltd
Consolidated Chemical Co.
B L Parker Foundation
Estate of the late Margaret Mary Breen
Lord Mayor’s Charitable Fund
Lauriston Girls’ School
Camberwell Grammar School
Mr G Lourie
The Marian & E H Flack Trust
State Trustees – Elizabeth Kucera
Memorial
Joe White Bequest
24
$2,000 – $4,999
$1,000 – $1,999
Mr Donald F Beaurepaire
The Michael & Andrew Buxton
Foundation
Miss M O’Sullevan
Mrs Margaret Rafferty
Chatswood Stud Pty Ltd
St Leonard’s College – Brighton Campus
State Trustees – Clients’ Residual
Balances
The Alfred & Jean Dickson Foundation
Mr & Mrs M & S Edwards
Mr Richard Price
Kardinia International College
Estate of Elizabeth Porter
Sacred Heart Primary School
Mrs R M Andre
Ms Angela Little
Mr Graeme Shears
Mrs June F M Smith
Mont Albert Primary School
Dr Tim Morgan
Mr Andrew & Ms Laura Raniere
Mornington Peninsula Country
Women’s Association
Bib Stillwell BMW SMG European Cars
Pty Ltd
St Michael’s Grammar School
Mr Bruce Hedditch
Estate of Michael Francis Coman
Ritchies Stores
Ballarat Magistrate’s Court
Construction Engineering (Aust) Pty Ltd
The William Angliss Charitable Fund
Korowa Anglican Girls’ School
Mr Ian C Curry
Mr Raymond S Davey
Dr Nicholas Ferris
Mr Jeffrey Harris
Ms Barbara Haynes
Mr T C Johnston
Ms W E King
Dr James Lewis
Mr Edward J Miller
Village Roadshow Ltd
The Elisabeth Murdoch Trust
Mr & Mrs Francis & Helen Musk
Miss E M Neilsen
Mr John Sealey
Mr Richard J Stanley
Mr C D Turnbull
Mr & Mrs John & Marie Warnock
Mr Len Gill
Loreto Mandeville Hall Toorak Primary
Rangebank Primary School
Beaconhills College
The King David School – Magid Campus
Our Lady of The Assumption Catholic
School
Ms Megan McDonald
Mrs Diana M Lowe
Parents Club – Brighton Primary School
Blue Star Print – Australia
Matthew Callaghan Memorial Fund
Mentone Girls’ Grammar School
Mr John Gilmour
Mrs Marie Jones
Boroondara Park Primary School
Mr Jeremy Maxwell
Mrs Barbara L Morrison
Oakleigh Greek Orthodox College
Rye Primary School
Epilepsy Foundation of Victoria | Annual report 2007–08
$500 – $999
Nilsen (Vic) Pty Ltd
Professor John Griffiths
Colac High School
Ballarat Grammar School
Billanook College Limited
Lions Club of Lakes Entrance
Rotary Club of Preston Inc
Mrs Joan Bucknell
Mr Douglas Clark
Mrs Maureen L Crawford
Mrs Dung Doan
Mr & Mrs David & Elizabeth Ebert
Mr Stephen Edwards
Mr PeterFoster
Ms JeanHadges
Mrs Marion M Harper
Mr & Mrs Leslie & Yvonne Harrison
Mrs Joan M Hunter
The Dennis Family Corporation
St Peters Opportunity Shop
Luxton Plant
Heavy Equipment Rentals Pty Ltd
Mr W Lyon
Mr & Mrs Gerard & Kim Magner
Mrs L M Mason
Mr John McPhee
Mr R F McDonald
Mr & Mrs Ian & Gail McKay
Ms Glenda McNaught
Mrs Norma Minney
Mr Conrad Noronha
Premier Property Valuations Pty Ltd
Mr Phillip Ronan
Mrs Elizabeth Russell
Mr Martin Sachs
Mrs M Slonim
Mr Brian Wansbrough
Miss M Watson
Mr Mal Webb
Ms Victoria White
Mr Fred Whitfort
Mrs Jean Williamson
Rangeview Primary School
Strathmore Primary School
Miss Kay Edwards
Mrs L Moir
Black Hill Primary School
Mr Norman Kotzman
Mount Waverley North Primary School
Wesley College – Glen Waverley Campus
Borders Australia Pty Ltd
Mr Leo Lazarus
Mrs Joan Quigley
Mr J David Kisby
Miss Catherine Coghlan
Mr George Gilbertson
Mrs Marion Sheehan
Mr & Mrs Peter & Jacqueline Smith
Blue Label Pty Ltd
Ms Fiona Cochrane
Toorak Primary School
City of Casey
Camberwell South Primary School
Emerald Primary School
Mt Waverley Primary School
Regency Park Primary School
St Patrick’s Primary School – Pakenham
Mr Greg V Shalit & Mrs Miriam Faine
Mount View Primary School
Mr W A Dott
Mrs Joan O A Gibbs
Mr Deepak Gulati
Mr Edward Haldane
Mr & Mrs Francis J Shelton
Mr & Mrs Leonard & Jean Smith
Miss Margaret Swan
Mrs Rosemary Weatherly
Miss Grace Rowland
Beverley Hills Primary School
Mr Joseph L Welsh
Loreto Mandeville Hall Toorak
Mr Terry Williamson
Mrs Sarah C Vaughan
Mount Dandenong Primary School
Malta Star of The Sea Inc
Mr Andrew Vaccaro
Mrs Donna Gittins
Scotch College Melbourne
Mrs Phyllis Breen
Ms Patricia M Holmes
Mrs F Pinney
Glenpar Pty Ltd
Print Impressions
Ms Samantha Meagher
Tyabb Primary School
Camelot Rise Primary School
Glen Katherine Primary School
Kew Primary School
Staff – QBE Insurance (Australia) Ltd
Mrs Suzette Main
Mr Howard W Paul
Mr John Phillips
Mrs Betty Towie
Christian College Highton
Estate of John Cuthbert Gillespie
Mr P Smart
Balwyn North Primary School
Templestowe Valley Primary School
Cranbourne West Primary School
Mr Robin B Taylor
Scotch College
Doncaster Primary School
$250 – $499
Mr William Abbott
Ms Wendy Addis
Dr Helen Alexander
Mr Michael Axiomakarou
Mrs Loren Brown
Mr Robert Challen
Mrs Ann Davies
Mrs Janice Dawson
Mr Eric Easton
Mrs R Firkin
Mr Brian Gardner
Mr & Mrs Les & Lorna Gawler
Mr John Glenn
Mr J A Hancock
Mrs Marjorie Jago
Mr & Mrs Denis & Margaret Leech
Mr Edward W Lemanski
Mr Bruce W Lithgow
Mrs A I Longworth
Mr Ted Lynes
Mr W D G Maclean
Mr Reginald Marlow
Mr & Mrs Noel & Lucy McKinnon
Mr John M O’Hara
Mr William Pye
Mrs Megan Rankin
Mr Ashley Ray
Miss Edna Richards
Ms Margaret Saunders
Dr Jennifer Schwarz
Mrs Kathleen M Skinner
Ms Peggy Smart
Mrs Margery Snowball
Mrs D Sturgess
Kilberry Valley Primary School
Mrs Alice Vaughan
Canterbury Girls’ Secondary College
Mr Alan Wilson
Clifton Springs Primary School
Darnum Primary School
Lang Lang Primary School
Burwood Heights Primary School
Taroona High School
Mr Albert Renshaw
Staff – Australian Unity
Mr Peter Briese
Mrs Shirley Gardner
Sacred Heart Primary School – St Albans
Mrs Beth Brown & Tom Bruce, AM
Mrs Mary G L Davis
Melton Christian College
Mrs Enez Lesser
Mrs JudySutton
Ms Linda J Barbour
Mrs Cora Bayley
Epilepsy Foundation of Victoria | Annual report 2007–08
25
$250 – $499 (continued)
Mrs Yvonne Hinds
Mrs Beryl J Hortin
Ms Margaret Miller
Mrs D Mules
Mr Greg Noonan
Mrs Louise Gourlay
Rodinal Pty Ltd
Our Lady of Sion College
Mr Paul Barnett
Xavier College – Kostka Hall
Mr & Mrs K B & E A Allen
Ms Joan Banks
Mrs Ruby M E Barton
Mr & Mrs John & Vesna Bragagnolo
Ms Susan Brennan
Mr George Broadbent
Mr David Brownell
Mrs P H Chestney
Mr C M Costello
Mr Howard Day
Mr Desmond Deckker
Mr Robert Eisner
Mrs Jennifer Elliott
Mr Ross Ferguson
Mrs Norma Firth
Mr & Mrs B P & L S Gallucci
Mr Clem Gee
Mr Jack Ginnane
Mrs Elizabeth Grigg
Mr P Hansen
Mr John Hardie
The Hollingsworth Family Trust
Ms Sharon Hutchinson
Mr Danilo Kerpesi
Mrs Elsa Lindsay
Mr J A Lyne
Mr & Mrs John & Margaret Maxwell
Mr A W McDonald
Mr & Mrs N & M McKendrick
Mr & Mrs Basil & Lillian Moss
Mr Edward P Oldham
Dr & Mrs Simon & Jean Pilbrow
Mr Kevin J Punshon
Mrs Judith A Pyke
Mr Brian Rebbechi
Mrs Corrine Robin
Mr Hugh Smart
Mr Richard Sturges
Mrs Grete Walter
Mrs Judith Warren
Mr & Mrs David & Katharine Williams
Yings Eltham Restaurant
Great Ryrie Primary School
The Principal, Red Cliffs East Primary
School
26
The Principal, Leopold Primary School
The Principal, Mountain Gate Primary
School
Mr Alan J Francis
Donation Home Loans Pty Ltd
Ms Cathy Almond
Ramon Falls Pty Ltd
Mr David Last
Waverley Christian College Inc
Mrs Winifred Hirst
St John Vianney’s School
Baden Powell College
Deer Park North Primary School
Trinity Anglican College
Mr Roger Moritz
Rose Bay High School
Richmond Primary School
Mr John W Ball
Mr Justin Ben-David
Mr Bruce Butler
The Hon. Joan Child AO
Mr Christian Fletcher
Mr William A Manwaring
Mrs Susan Penhall
Mrs Jeanette Rubira
Mr Joseph Schiavone
Mrs Jan Sparks
Mr & Mrs Robert & Janne Symons
Mr Graeme S Thomson
Bentleigh Secondary College
Knox Park Primary School
Mr D G Moynihan
Traralgon (Stockdale Road) Primary
School
St Francis Xavier Catholic Primary
School
Mr David R Haines
Moolap Primary School
Eltham College of Education
Hampton Park Secondary College
Mr Norman Gray
Pakenham Consolidated School
Mrs Heather Dousset
Mr Richard A Juska
Oberon Primary School
St Patrick’s School – Camperdown
Prof & Mrs J D & E J Jago and Messrs
C E & D A Jago
Victorian Community Foundation –
Ruth Fagg Foundation
Mr Jack Bradstreet
Mrs Melanie Cassy
Mrs Ruth Costello
Mrs Helen Hains
Mr & Mrs Geoffrey & Sylvia Hammond
Mr Arnold W Johnston
Mr Raymond Landini
Epilepsy Foundation of Victoria | Annual report 2007–08
Mrs Dorothy Lorimer
Mrs Karin Mackinnon
Mr A Maddison
Mr Leonard O’Brien
Mrs Patricia Reardon
Mr & Mrs L & R Rossetti
Mrs G A Russell
Mrs Meredith Stone
Mrs Nancy Sutton
Ms Lee E Tan
Mr Henry Tisell
Leongatha Secondary College
Mrs Sigrid Klaubert
Kingston Heath Primary School
The Swanston Hotel – Grand Mercure
White Hills Primary School
Heathdale Christian College (Primary)
Heathmont East Primary School
Mr George F Miller
Mr Clarence N C Yek
Kaniva College
Koonung Secondary College
Mrs Elizabeth Crawford
Mr & Mrs Robert & Kathy Hall
Mrs Kathleen Hatch
Mrs L J McMullin
Ms Nan Brown
Glenhuntly Primary School
Cheltenham East Primary School
Sunbury College
Malvern Primary School
Hughesdale Primary School
Gardenvale Primary School
Mr Keith Taylor
Eltham East Primary School
Tongala Primary School
Treasurer’s report
The 2007–08 year end result is a deficit of
$181,027.61 which includes non-recurrent
expenditure of $135,000. Both revenue and
expenditure increased in comparison with the
2006–07 financial year.
It is pleasing to see an increase in bequest income,
which indicates a growing community awareness
and recognition of the importance of supporting
people with epilepsy and reflects the concerted and
systematic work of the development team over the
past 10 years.
Opportunity Shop revenue was up 28 percent for the
year but the current economic downturn will make
maintaining this increase difficult in the year ahead.
Fundraising revenue was impacted on by logistical
problems at our telemarketing provider, which
resulted in less raffles being run over the year.
Steps have been taken to address this issue for
the coming year.
Personnel expenses increased over the
year reflecting the increase in training and
education capacity.
In overall terms the organisation is in a healthy
financial position. The bequests received and those
notified for future receipt mean that investments in
future capability can be made confidently.
treasurer
Epilepsy Foundation of Victoria | Annual report 2007–08
27
Gavin and Ginny are now the proud parents
of Isabella. On reflection, Gavin feels lucky.
Yes, he had epilepsy, but he knew its cause,
it was operable and in a position in his brain
that was able to be operated on.
28
Financial report
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
(Incorporated in Victoria as an Incorporated Association – Registered No. A00022674D)
A.B.N 75967571784
FINANCIAL REPORT
FOR THE YEAR ENDED 30th JUNE 2008
financials
Epilepsy Foundation of Victoria | Annual report 2007–08
29
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
FINANCIAL REPORT FOR THE YEAR ENDED 30th JUNE 2008
Table of contents
Committee’s report...................................................................................................... 31
Statement by members of the committee of management........................................... 32
Independent audit report............................................................................................. 33
Auditor’s independence declaration............................................................................. 34
Financial statements.................................................................................................... 35
Notes to and forming part of the financial statements.................................................. 38
Directory
Registered Address
818 Burke Road
Camberwell VIC 3124
Bankers
Westpac Banking Corporation
Bendigo Bank
National Australia Bank
Auditor
Dennis J Clark FCPA
The Committee of Management
30
Chairman
Prof. Mark Cook
Public Officer
Mr. Graeme Shears
Treasurer
Dr. Christine Walker
Committee Members
Dr. Lindsay Vowels
Dr. Christine Walker
Mrs. Jacqueline Branston
Ms. Cavell Zangelis
Ms. Sally Genser
Mr. Tony Mooney
Mr. Richard Polkinghorn (resigned July 2008)
Mrs. H Fehring (resigned May 2008)
Mrs. F Smith (resigned October 2007)
Mr. J MacAdie (appointed August 2008)
Mr. J Campbell (appointed July 2008)
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
COMMITTEE’S REPORT
The Committee of Management of The Epilepsy Foundation of Victoria Incorporated submits the Financial
Report for the financial year ended 30th June 2008.
Committee members
The names of Committee of Management members throughout the financial year and at the date of this
report are:
Prof. Mark Cook
Dr. Lindsay Vowels
Dr. Christine Walker
Mrs. Jacqueline Branston
Ms. Cavell Zangelis
Ms. Sally Genser
Mr. Tony Mooney
Mr. Richard Polkinghorn (resigned) Ms. Heather Fehring (resigned)
Mr. J. MacAdie
(filling casual vacancy)
Mr. J Campbell
(filling casual vacancy)
Mrs. F Smith (resigned)
Principal activities
The principal activities of The Epilepsy Foundation of Victoria Incorporated during the financial year were to
enhance the quality of life of people living with epilepsy through information, education, advocacy, support
services and research.
Significant changes
No significant change in the nature of these activities occurred during the year.
Operating result
The deficit from ordinary activities for the year amounted to $181,028.
Signed in accordance with a resolution of the Committee of Management by:
Professor Mark Cook – CHairman
DR christine walker – treasurer
Dated at Melbourne, Victoria: 18th November 2008
Epilepsy Foundation of Victoria | Annual report 2007–08
31
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
STATEMENT BY MEMBERS OF THE COMMITTEE OF MANAGEMENT
The Committee of Management has determined that The Epilepsy Foundation of Victoria Incorporated is
not a reporting entity and that this special purpose financial report should be prepared in accordance with
the accounting policies outlined in Note 1 to the Financial Statements.
In the opinion of the Committee of Management, the Financial Report, comprising the Income and
Expenditure Statement, Balance Sheet, Cashflow Statement and Notes to the Financial Statements:
1. Presents a true and fair view of the financial position of The Epilepsy Foundation of Victoria Incorporated
as at 30th June 2008 and its performance for the year ended on the date; and
2. At the date of this statement, there are reasonable grounds to believe that The Epilepsy Foundation
of Victoria Incorporated will be able to pay its debts as and when they fall due.
This statement is made in accordance with a resolution of the Committee of Management and is signed
for and on behalf of the Committee by:
Professor Mark Cook – CHairman
DR christine walker – treasurer
Dated at Melbourne, Victoria: 18th November 2008
32
Epilepsy Foundation of Victoria | Annual report 2007–08
PO Box 42988
Casuarina NT
Phone: 0412 392 518
Email: dennis.clark@mdspartners.com.au
INDEPENDENT AUDIT REPORT
To the Members of The Epilepsy Foundation of Victoria Incorporated:
Audit Scope
I have audited the accompanying Financial Report of The Epilepsy Foundation of Victoria Incorporated,
as set out on pages 35 to 51 for the financial year ended 30th June 2008. The Financial Report comprises
the Income Statement, Balance Sheet, Cashflow Statement and Notes to the Financial Statements. The
Committee of Management of The Epilepsy Foundation of Victoria Incorporated is responsible for the
preparation and presentation of the Financial Report and the information it contains. An independent audit
of the Financial Report has been carried out in order to express an opinion on it to the Members of The
Epilepsy Foundation of Victoria Incorporated.
The audit has been conducted in accordance with Australian Auditing Standards to provide reasonable
assurance as to whether the financial report is free of material misstatement. The audit procedures included
an examination, on a test basis, of evidence supporting the amounts and other disclosures in the Financial
Report, and the evaluation of accounting policies and significant accounting estimates. These procedures
have been undertaken to form an opinion as to whether, in all material respects, the Financial Report is
presented fairly in accordance with Accounting Standards and other mandatory professional reporting
requirements in Australia, so as to present a view which is consistent with my understanding of The Epilepsy
Foundation of Victoria Incorporated’s financial position and financial performance as represented by the
results of its operations and its cash flows.
The audit opinion expressed in this report has been formed on the above basis.
Audit Opinion
In my opinion, the Financial Report gives a true and fair view, in accordance with the Associations
Incorporation Act 1981, applicable Accounting Standards and other professional reporting requirements, of
the financial position of The Epilepsy Foundation of Victoria Incorporated, as at 30th June 2008, its financial
performance and cash flows for the financial year then ended.
Dennis J Clark FCPA
Partner MDS Partners
Appointed Auditor
Dated at Melbourne, Victoria: 18th November 2008
Epilepsy Foundation of Victoria | Annual report 2007–08
33
PO Box 42988
Casuarina NT
Phone: 0412 392 518
Email: dennis.clark@mdspartners.com.au
AUDITOR’S INDEPENDENCE DECLARATION TO THE COMMITTEE OF MANAGEMENT
OF THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
I declare that, to the best of my knowledge and belief, during the financial year ended 30th June 2008,
there have been:
1. No contraventions of accepted auditor independence requirements in relation to the audit; and
2. No contraventions of any applicable code of professional conduct in relation to the audit.
Dennis J Clark FCPA
Partner MDS Partners
Appointed Auditor
Dated at Melbourne, Victoria: 18th November 2008
34
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
INCOME AND EXPENDITURE STATEMENT
FOR THE YEAR ENDED 30th JUNE 2008
Note
2008
$
2007
$
INCOME
Donations
2
1,093,823
1,141,808
Bequests
375,218
37,801
Membership Fees
4,795
5,522
3
47,728
154,867
Government Grants
866,701
864,692
Investment Income 18,618
6,463
4
363,402
282,731
Service Fees / Community Awareness
74,125
86,342
Sundry Income
21,682
47,778
5
7,355
3,693
Profit on Sale of Motor Vehicle
1,588
–
Total income
2,875,035
2,631,697
6
406,650
353,552
Books, Publications and Aids
70,285
54,677
Community Awareness Events
45,768
65,176
Conference Expenses
48,894
10,637
Depreciation
56,243
73,157
Fundraising Expenses
119,607
112,059
Motor Vehicle Expenses
56,529
56,116
Fundraising Events
Opportunity Shops
Trading Income
EXPENDITURE
Administration Expenses
Personnel Expenses
7
2,125,449
1,699,341
Property Expenses
8
87,194
92,998
Travel Expenses
39,444
66,619
Total expenditure
3,056,063
2,584,332
Profit/(loss) from ordinary activities
(181,028)
47,365
Accumulated Surplus at the Beginning of the Financial Year
696,773
649,564
Prior Period Adjustment
–
(156)
515,745
696,773
Accumulated Surplus at the End of the Financial Year
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
35
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
BALANCE SHEET AS AT 30th JUNE 2008
Note
2008
$
2007
$
CURRENT ASSETS
Cash
12
497,941
433,799
Receivables
9
82,797
64,965
Inventories
14,133
14,120
Total current assets
594,871
512,884
NON CURRENT ASSETS
Investments
10
214,921
88,037
Property, Plant and Equipment
11
3,102,653
3,120,778
Total non current assets
3,317,574
3,208,815
TOTAL ASSETS
3,912,445
3,721,699
CURRENT LIABILITIES
Creditors and Accruals
390,208
255,300
21
494
2
Revenue Received in Advance
196,053
57,087
Employee Entitlements
13
371,912
283,382
Total current liabilities
958,667
595,771
Bank Overdraft
NON CURRENT LIABILITIES
Employee Entitlements
13
61,244
46,132
Bank Loans
21
1,088,515
1,094,749
Total non current liabilities
1,149,759
1,140,881
TOTAL LIABILITIES
2,108,426
1,736,652
NET ASSETS
1,804,019
1,985,047
MEMBERS’ FUNDS
Capital Reserves
160,580
160,580
Asset Revaluation Reserve
1,127,694
1,127,694
Accumulated Surplus
515,745
696,773
Total Members’ Funds
1,804,019
1,985,047
The accompanying Notes form part of this Financial Report
36
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
CASHFLOW STATEMENT FOR THE YEAR ENDED 30th JUNE 2008
Note
2008
2007
$
$
Cash Flows from Operating Activities
Receipts from public/customers
1,970,283
1,782,152
Receipt of Government grants
866,701
864,692
Payments to suppliers and employees
(2,622,305)
(2,485,594)
214,679
161,250
Net Cash Flows From (Used In) Operating Activities
12
Cash Flows from Investing Activities
Proceeds from sale of property, plant and equipment
1,588
–
Interest received
18,618
6,463
Purchase of property, plant and equipment
(38,118)
(36,180)
Net Cash Flows From (Used In) Investing Activities
(17,912)
(29,717)
Cash Flows from Financing Activities
Repayment of borrowings
(6,234)
119,756
Investments
(126,884)
(4,556)
Net Cash Flows From (Used In) Financing Activities
(133,118)
115,200
Net Increase (Decrease) in Cash
63,639
246,733
Cash at Beginning
433,797
187,064
12
497,446
433,797
Cash at End
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
37
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO AND FORMING PART OF THE FINANCIAL STATEMENTS
CONTENTS
Note
Page
1
Statement of Significant Accounting Policies................................................. 39
2
Donations..................................................................................................... 42
3
Fundraising Events....................................................................................... 42
4
Opportunity Shops....................................................................................... 42
5
Trading Income............................................................................................. 42
6
Administration Expenses............................................................................... 43
7
Personnel Expenses..................................................................................... 43
8
Property Expenses....................................................................................... 44
9
Receivables.................................................................................................. 44
10 Investments.................................................................................................. 44
11 Property, Plant and Equipment..................................................................... 44
12 Cash Flows................................................................................................... 45
13 Employee Entitlements................................................................................. 46
14 Commitments for Expenditure...................................................................... 46
15 Contingent Liabilities..................................................................................... 46
16 Superannuation............................................................................................ 46
17 Auditor’s Remuneration................................................................................. 46
18 Responsible Persons Disclosures................................................................. 46
19 Segment Information.................................................................................... 47
20 Income Tax................................................................................................... 47
21 Financial Instruments.................................................................................... 47
22 Association Information................................................................................. 51
The accompanying Notes form part of this Financial Report
38
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
Note 1: Statement of significant accounting policies
This financial report is a special purpose financial report prepared in order to satisfy the financial reporting
requirements of the Associations Incorporation Act. The Committee of Management has determined that
the foundation is not a reporting entity. However the Financial Report has been prepared in accordance with
Australian Accounting Standards, Urgent Issue Group Consensus Views, other authoritative pronouncements
of the AASB and the requirements of the Associations Incorporation Act 1981. The Financial Report consists
of the Financial Statements of The Epilepsy Foundation of Victoria Incorporated as an individual entity. The
Epilepsy Foundation of Victoria Incorporated is an incorporated association, incorporated and domiciled in
Australia. The accounting policies adopted in preparing the Financial Statements are consistent with those of
previous years, except where otherwise stated.
The Financial Report of The Epilepsy Foundation of Victoria Incorporated complies with all Australian
equivalents to International Financial Reporting Standards (AIFRS).
The following is a summary of the material accounting policies adopted by The Epilepsy Foundation of
Victoria Incorporated in the preparation of the financial report. The accounting policies have been applied
consistent with the previous period, unless otherwise stated.
1.1 Historical cost
The Financial Report has been prepared on an accruals and historical cost basis whereby assets are
recorded at cost and do not take into account changing money values, nor the current cost of noncurrent assets, except for certain assets, which are at valuation. Cost is based on the fair value of the
consideration given in exchange for assets.
1.2 Rounding off
All amounts shown in the Financial Statements are expressed to the nearest dollar.
1.3 Property, plant and equipment
Property, plant and equipment are carried at cost less any accumulated depreciation. The carrying
amount of property, plant and equipment is reviewed annually by the members of the Committee
of Management to ensure it is not in excess of the recoverable amount from those assets. The
recoverable amount is assessed on the basis of the expected net cash flows which will be received
from the assets employment and subsequent disposal. The expected net cash flows have not been
discounted to present values in determining recoverable amounts.
Non-current assets are capitalised and depreciated to write off the cost or revalued amount of each
item of Plant and Equipment, over its expected useful life to The Epilepsy Foundation of Victoria
Incorporated.
Depreciation methods and rates used for each class of depreciable assets are:
Method
Rate
Furniture & Equipment
Reducing Balance
20%
Motor Vehicles
Reducing Balance
20%
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
39
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
Depreciation methods and rates of all non current assets are reviewed on an annual basis. There has been no
change in the methodology and rates for 2008.
1.4 Inventories
Inventories are stated in the Balance Sheet at the lower of cost and net realisable value. Cost is
determined principally by the first-in, first-out method.
1.5 Employee entitlements
The calculation of employee entitlements includes all relevant on-costs and employee entitlements are
calculated as follows at reporting date.
1.5.1Wages and salaries, annual leave and sick leave
Liabilities for wages and salaries and annual leave are recognised, and are measured as the amount
unpaid at current pay rates in respect of employees’ services up to that date. Sick leave is non-vesting
and a liability is recognised only when the amount of sick leave expected to be taken in future periods
exceeds the entitlements expected to accrue in those periods.
1.5.2Long service leave
A liability for long service leave is recognised and is measured as the present value of expected
future payments (including on-costs) to be made in respect of services provided by employees up to
the reporting date. Consideration is given to expected future wage and salary levels, experience of
employee departures and periods of service.
Expected future payments are discounted using interest rates on national Government guaranteed
securities with terms to maturity that match, as closely as possible, the estimated future cash flows.
The nominal amount of long service leave expected to be paid in the next financial year is included as a
current liability.
1.5.3Superannuation
Superannuation Guarantee Levy amounts are paid on behalf of eligible employees. No other liability for
superannuation benefits is recognised.
1.6 Doubtful debts
A provision is made for any doubtful debts based on a review of all outstanding amounts at reporting
date. Bad debts are written off in the period in which they are identified.
1.7 Non current assets
The gross proceeds from the sale of non current assets are included as operating revenue while the
written down value of the assets sold are shown as an operating expense.
The accompanying Notes form part of this Financial Report
40
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
1.8 Valuation of non-current assets
Non-current assets are valued as follows:
Application of Accounting Standard AASB J 041 Revaluation of Non-Current Assets requires that each
class of non-current physical assets must be measured on either the cost or fair value basis.
Plant and Equipment are measured at cost. The Epilepsy Foundation of Victoria Incorporated includes
in its Asset Register only items of property, plant and equipment which have a life expectancy of more
than twelve months. The Financial Statements are prepared consistent with the Asset Register.
1.9 Cash
For the purpose of the Cashflow Statement, cash includes cash on hand and cash equivalents,
i.e. highly liquid investments with short periods to maturity, which are readily convertible to cash on
hand at The Epilepsy Foundation of Victoria Incorporated’s option. Cash at the end of the financial year
as shown in the Statement of Cash Flows is reconciled to the related items in the Balance Sheet.
1.10 Goods and services tax
Revenues, expenses and assets are recognised net of the amount of Goods and Services Tax
(GST), except, where the amount of GST incurred is not recoverable from the Taxation Authority, it is
recognised as part of the cost of acquisition of an asset or as part of an item of expense. The net
amount of GST recoverable from, or payable to, the Taxation Authority is included as part of receivables
or payables in the Balance Sheet. The GST component of a receipt or payment is recognised on
a gross basis in the Statement of Cash Flows in accordance with Accounting Standard AAS 28
Statement of Cash Flows.
1.11 Revenue recognition
Membership fees, government grants and other sales are recognised as revenue upon the rendering of
an invoice. Bequests, donations and trading revenue are recognised as revenue on receipt or delivery.
Investment income from cash, short term deposits and investments is brought to account on a time
proportionate basis.
1.12 Tax
The Epilepsy Foundation of Victoria Incorporated is considered to be exempt from income tax under
the Income Tax Assessment Act 1997.
1.13 Comparative figures
Prior period figures have been adjusted, where appropriate, to ensure consistency with current
year figures.
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
41
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
2008
$
2007
$
NOTE 2: DONATIONS
General
515,096
446,907
Trusts
–
69,568
Doorknock
578,727
538,602
Raffles
–
86,731
Net Surplus from Donations
1,093,823
1,141,808
Trivia Challenge
87,360
126,835
Less Costs
(45,857)
(80,451)
Net Surplus 41,503
46,384
NOTE 3: FUNDRAISING EVENTS
Raffles and Other Events
1,009,421
1,702,338
Less Costs
(1,003,196)
(1,593,855)
Net Surplus
6,225
108,483
Net Surplus from Fundraising
47,728
154,867
Sales
523,172
434,163
Less Costs
(159,770)
(141,432)
Net Surplus from Opportunity Shops
363,402
282,731
Sales – Books, Badges and Medical Aids
7,355
3,693
Total Trading Income
7,355
3,693
NOTE 4: OPPORTUNITY SHOPS
NOTE 5: TRADING INCOME
The accompanying Notes form part of this Financial Report
42
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
2008
$
2007
$
Advertising
20,190
16,808
Bank Charges
14,210
21,009
Bad Debts
2,648
4,480
Computer Charges
30,690
23,393
Internet Expenses
54,306
-
Courier
804
2,134
Honorariums
45
962
Income Protection Insurance
8,093
9,058
Interest Expense
89,040
91,270
Loan Fee
-
1,600
Volunteer Program
7,040
5,823
Postage
21,095
31,786
Photocopying, Printing & Stationery
10,491
15,308
Regional Office Expenses
24,408
25,982
Repairs and Maintenance
1,828
4,373
Security Documents Disposal
1,457
2,252
Subscriptions
5,775
3,402
Sundry
5,501
39,838
Telephone
32,357
35,754
Professional Fees
76,672
18,319
Total Administration Expenses
406,650
353,552
Salaries
1,754,586
1,466,771
Provision for LSL
90,085
46,429
Staff Procurement
2,988
165
Consultants Fees
28,953
16,973
Superannuation
141,925
121,266
WorkCover
91,281
39,518
Staff Amenities
4,208
5,377
Staff Training
11,423
2,842
Total Personnel Expenses
2,125,449
1,699,341
NOTE 6: ADMINISTRATION EXPENSES
NOTE 7: PERSONNEL EXPENSES
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
43
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
2008
$
2007
$
Cleaning
32,196
27,828
Consultant
0
240
Power and Light
16,054
16,506
Security/Fire Monitoring
5,438
6,151
Rates
3,331
3,545
Repairs and Maintenance
25,599
28,186
Insurance
4,576
10,542
Total Property Expenses
87,194
92,998
Trade Debtors
29,210
7,748
Sundry Debtors and Prepayments
53,587
57,217
Total Receivables
82,797
64,965
Trust Co of Australia – At Call
214,921
88,037
Total Investments
214,921
88,037
NOTE 8: PROPERTY EXPENSES
NOTE 9: RECEIVABLES
NOTE 10: INVESTMENTS
NOTE 11: PROPERTY, PLANT & EQUIPMENT
Land and Buildings At Cost
973,151
973,151
At Independent Valuation
2,026,849
2,026,849
3,000,000
3,000,000
Furniture and Equipment
At Cost
610,544
560,015
Accumulated Depreciation
(542,957)
(505,899)
67,587
54,116
Motor Vehicles
At Cost
165,279
188,553
Accumulated Depreciation
(130,213)
(121,891)
35,066
66,662
Total Property, Plant and Equipment
3,102,653
3,120,778
The accompanying Notes form part of this Financial Report
44
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
2008
$
2007
$
NOTE 12: CASH FLOWS
Cash
497,941
433,799
Bank Overdraft
(494)
(2)
497,447
433,797
Reconciliation of Profit/(Loss) From Ordinary Activities To Net Cash Provided By Operating Activities:
Profit/(Loss)
(181,028)
47,365
Depreciation and amortisation
56,243
73,157
Proceeds from sale of property
(1,588)
–
Interest received
(18,618)
(6,463)
Prior year adjustment
–
(156)
Change in Operating Assets and Liabilities
Decrease (Increase) in receivables
(17,832)
21,601
Decrease (Increase) in inventories
(13)
9
Increase (Decrease) in payables
134,908
(13,265)
Increase (Decrease) in revenue received in advance
138,965
22,843
Increase (Decrease) in employee provisions
103,642
16,159
Net Cash Provided By Operating Activities
214,679
161,250
The Epilepsy Foundation of Victoria Incorporated has no credit standby or finance facilities in place, other
than a bank overdraft facility of $400,000.
NOTE 13: EMPLOYEE ENTITLEMENTS
Annual Leave
202,049
153,026
Long Service Leave
231,107
176,488
433,156
329,514
Current Liabilities
Annual Leave
202,049
153,026
Long Service Leave
169,863
130,356
371,912
283,382
Non Current Liabilities
Long Service Leave
61,244
46,132
61,244
46,132
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
45
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
2008
$
2007
$
NOTE 14: COMMITMENTS FOR EXPENDITURE
As at 30 June 2008, The Epilepsy Foundation of Victoria Incorporated had no outstanding capital
commitments (2007 nil).
NOTE 15: CONTINGENT LIABILITIES
As at 30 June 2008, The Epilepsy Foundation of Victoria Incorporated had no contingent liabilities (2007 nil).
NOTE 16: SUPERANNUATION
Contribution to All Funds
141,925
121,266
141,925
121,266
For Auditing the Financial Statements
10,340
10,340
For Other Services
3,650
-
13,990
10,340
NOTE 17: AUDITOR’S REMUNERATION
NOTE 18: RESPONSIBLE PERSONS DISCLOSURES
Responsible Persons:
The names of persons who were members of the Committee of Management of The Epilepsy Foundation
of Victoria Incorporated, at any time during the financial year were:
Prof. Mark Cook
Dr. Lindsay Vowels
Dr. Christine Walker
Mrs. Jacqueline Branston
Ms. Cavell Zangelis
Ms. Sally Genser
Mr. Tony Mooney
Mr. Richard Polkinghorn
Ms. Heather Fehring
Mrs. F Smith
Remuneration of Responsible Persons:
There was no remuneration received or due and receivable from The Epilepsy Foundation of Victoria
Incorporated in connection with the management of The Epilepsy Foundation of Victoria Incorporated.
The accompanying Notes form part of this Financial Report
46
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
Retirement Benefits of Responsible Persons:
There were no retirement benefits paid by The Epilepsy Foundation of Victoria Incorporated in connection
with the retirement of Responsible Persons of The Epilepsy Foundation of Victoria Incorporated (2007 nil).
Superannuation:
There were no amounts paid to a superannuation plan by The Epilepsy Foundation of Victoria Incorporated in
connection with the Responsible Persons (2007 nil).
Other Transactions:
The Epilepsy Foundation of Victoria Incorporated entered into other transactions, which are insignificant in
amount, with Responsible Persons in their domestic dealings within normal customer terms and conditions
not more favourable than those available in similar arms length dealings.
NOTE 19: SEGMENT INFORMATION
The Epilepsy Foundation of Victoria Incorporated operates throughout Australia, predominantly in the not for
profit charitable sector.
NOTE 20: INCOME TAX
The Epilepsy Foundation of Victoria Incorporated is considered to be exempt from income tax under the
Income Tax Assessment Act 1987. No income tax is therefore payable.
NOTE 21: FINANCIAL INSTRUMENTS
21.1 Terms, Conditions and Accounting Policies
The Epilepsy Foundation of Victoria Incorporated’s accounting policies, including the terms and
condition of each class of financial asset, financial liability and equity instrument, both recognised and
unrecognised at reporting date, are as follows:
Recognised Financial
Instruments
Notes
Accounting Policies
Terms and Conditions
12
Cash at Bank is carried
at the principal amount.
Cash is invested as funds
permit at varying market
interest rates.
FINANCIAL ASSETS
Cash Assets
Cash at Bank
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
47
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
Recognised Financial
Instruments
Notes
Accounting Policies
Terms and Conditions
Receivables – Trade Debtors
9
Trade Debtors are carried at
nominal amounts due less any
provision for doubtful debts.
A provision for doubtful debts
is maintained, as appropriate,
to recognise that collection of
the full nominal amount is no
longer probable.
Credit sales are on 30 day
terms.
Receivables – Sundry
Debtors
9
Other Debtors are carried at
the nominal amounts.
Credit is allowed in
accordance with
agreement.
Investments
10
Investments are carried at the
principal amount.
Investments earn varying
market interest rates.
10
Liabilities are recognised for
amounts to be paid in the
future for goods and services
received, whether or not
invoiced to The Epilepsy
Foundation of Victoria
Incorporated.
Trade liabilities are settled
as required.
Bank Overdraft
Bank overdrafts are recorded
at the nominal amount.
Overdrawn amounts
incur varying market
interest rates.
Bank Loans
Banks loans are recorded
at the nominal amount.
Outstanding amounts
incur varying market
interest rates.
FINANCIAL LIABILITIES
Trade Creditors and Accruals
The accompanying Notes form part of this Financial Report
48
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
21.2 Interest Rate Risk
The Epilepsy Foundation of Victoria Incorporated’s exposure to interest rate risks and the effective
interest rates of financial assets and financial liabilities, both recognised and unrecognised at balance
date are as follows
FINANCIAL
INSTRUMENTS
Floating Interest Rate
Non-Interest Bearing
2008
$
2007
$
497,941
433,799
2008
$
2007
$
Total Carrying Amount
per Balance Sheet
2008
$
2007
$
497,941
433,799
82,797
64,965
214,921
88,037
FINANCIAL ASSETS
Cash at Bank
Receivables – Debtors
82,797
Investments
214,921
88,037
Total Financial Assets
712,862
521,836
64,965
82,797
64,965
795,659
586,801
390,208
255,300
390,208
255,300
FINANCIAL LIABILITIES
Trade Creditors & Accruals
Bank Overdraft
494
2
494
2
Bank Loans
1,088,515
1,094,749
1,088,515
1,094,749
Total Financial Liabilities
1,089,009
1,094,751
1,479,217
1,350,051
390,208
255,300
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
49
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
21.3 Net Fair Values
The aggregate net fair values of financial assets and financial liabilities, both recognised and
unrecognised, at balance date, are as follows:
Total Carrying Amount
as per the Balance Sheet
Aggregate Net Fair Value
2008
$
2007
$
2008
$
2007
$
497,941
433,799
497,941
433,799
82,997
64,965
82,997
64,965
Investments
214,921
88,037
214,921
88,037
Total Financial Assets
795,659
586,801
795,659
586,801
390,208
255,300
390,208
255,300
494
2
494
2
Bank Loans
1,088,515
1,094,749
1,088,515
1,094,749
Total Financial Liabilities
1,479,217
1,350,051
1,479,217
1,350,051
FINANCIAL ASSETS
Cash at Bank
Receivables – Debtors
FINANCIAL LIABILITIES
Trade Creditors & Accruals
Bank Overdraft
The following methods and assumptions are used to determine the net fair values of financial assets
and liabilities:
Recognised Financial Instruments
Cash at Bank, Investments, Receivables, Trade Creditors and Accruals, Bank Overdraft and Bank Loans.
These financial instruments have short to medium terms to maturity. Accordingly, it is considered that their
carrying amounts reflect fair values.
The accompanying Notes form part of this Financial Report
50
Epilepsy Foundation of Victoria | Annual report 2007–08
THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008
21.4 Credit Risk Exposures
The Epilepsy Foundation of Victoria Incorporated’s maximum exposure to credit risk at balance date in
relation to each class of recognised financial asset is the carrying amount of those assets as indicated
in the Balance Sheet.
Concentration of Credit Risk
The Epilepsy Foundation of Victoria Incorporated minimises concentrations of credit risk in relation to
trade accounts receivable by undertaking transactions with a number of customers. The customers
are concentrated in Australia. The major customers relate to the provision of services. The Epilepsy
Foundation of Victoria Incorporated continues to provide services for those customers who adhere to
industry trade terms.
Credit risk in trade receivables is managed in the following ways:
• Payment terms are 30 days from date of invoice
• Debtors with accounts in excess of 30 days are sent a statement of account, indicating terms of
30 days to make payment
• Debtors with arrears are followed up by telephone prior to referring their debt to a debt
collection agency
• Debtors which represent Government departments or agencies are not referred to a debt
collection agency, but managed by the organisation directly with department or agency contacts.
NOTE 22: ASSOCIATION INFORMATION
The registered office of The Epilepsy Foundation of Victoria Incorporated is currently 818 Burke Road,
Camberwell, VIC 3124.
The accompanying Notes form part of this Financial Report
Epilepsy Foundation of Victoria | Annual report 2007–08
51
dreams
Arranging to meet footballers is not usually in the
job description of our client services staff, but
when it comes to helping clients like Steve Rees
live their dream, then it’s all in a day’s work.
52
The Epilepsy Foundation of Victoria is dedicated
to enhancing the quality of life of people living
with epilepsy through information, education,
advocacy, support services and research.
Epilepsy Foundation of Victoria
818 Burke Road
Camberwell Victoria 3124
phone +61 (0)3 9805 9111
fax
+61 (0)3 9882 7159
www.epinet.org.au