25 Years of Happiness, Hope and Healing
Transcription
25 Years of Happiness, Hope and Healing
2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g Honoring Our Founders Anna M. Gould and Dr. Lawrence Gould Thank you for your leadership, inspiration, passion, and above all, compassion. Your selfless giving has improved thousands of lives these past 25 years and will continue to positively impact the lives of generations of children and their families for years to come. The Camp Sunshine Board of Directors and Staff 2 C a m p S u n s h i n e A Message from the Founders W ith great awe, we reflect in celebration of Camp Sunshine’s 25 years. It is amazing to realize that what was planned for a onetime session, would Anna M. Gould end up being an amazing year-round program. Like parents, we have wondered, nurtured, been worried, been proud, and watched so many changes take hold. The matured results of Lawrence Gould this camp and all its programs are a true testament to the need Camp Sunshine fulfills. Camp Sunshine was destined to be the model for a family program. From inception, the response to a family program was overwhelming. The family, the volunteer, the medical and the psychosocial components, are truly the greatest and most lasting strengths of the program. Keeping the family unit whole, while addressing the traumatic impact of illness on a child, is a daunting task for anyone. Camp Sunshine was designed to provide a much needed respite to all family members. Having watched thousands of families over the years come through Camp Sunshine’s doors, we are still amazed at the positive and restorative effects the camp program has on families when we first meet them and in their subsequent visits to Camp Sunshine. The time they have to talk to other parents who have a child suffering from the same illness, as well as the discussion groups, help to give the parents strength to return to continue to meet the challenges at home. The volunteer force is truly a remarkable portrait of the best of humanity. Volunteers come from far away and next door. The diverse group of volunteers consists of dedicated teenagers to accomplished grandparents, but what they all share is their love and desire to help others. They in turn go home with a full heart, knowing they received far more than what they gave. As we reflect on the past 25 years, we feel honored to have been given the unique opportu- nity to encounter so many truly amazing people: the children, with their smiles and resilience to overcome their illness; the parents, who stay steadfast in protecting their children; the volunteers, who come by the hundreds to give of themselves for others; and the staff that is dedicated in providing an unforgettable experience for the families. It has been an honor to have shared so many special moments with so many wonderful individuals. It is with admiration for the families that we are committed to ensuring that Camp Sunshine will always be the beacon of hope and happiness to those that walk through “the magical three doors”. We hope you will also continue to support this muchneeded oasis. Thank you all for giving us the treasured memories of the past 25 years; these are wondrous moments that will be with us for the next 25 years and always. Anna M. Gould Lawrence Gould Founders TABLE OF CONTENTS Executive Director’s Message ................................................5 One Family’s Journey..........................................................6-7 Camp Sunshine Board of Directors.......................................9 Camp Sunshine’s 25-Year Timeline..................................10-13 Psychosocial Director’s Message............................................14 Medical Director’s Message..................................................15 Campus Director’s Message...................................................16 15-25-Year Volunteers............................................................17 Quarter Century Club............................................................18 New Balance Foundation $250,000 Challenge........................19 Experiencing Pure Joy at Camp Sunshine..............................20 Message from Governor John Baldacci.................................22 Awards & Recognition ....................................................24-25 A Family Gives Back.................................................26-27 Referring Treatment Centers...........................................28 Message from Senator Susan Collins..............................30 Donor Testimonials........................................................31 Message from Senator Olympia Snowe...........................32 Charity Navigator Rating...............................................33 A Journey of Hope........................................................34 Camp Sunshine at Sebago Lake, Inc. 35 Acadia Road, Casco, Maine 04015 Tel (207) 655-3800 Fax (207) 655-3825 info@campsunshine.org www.campsunshine.org 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 3 Camp Sunshine Thanks Point Sebago Resort and Guests From day one, you have raised over $1 million for Camp Sunshine and have given your hearts in helping children with life-threatening illnesses and their families live more hopeful lives. 4 C a m p S u n s h i n e A Message from the Executive Director experiences with all of us. These are the people whose contributions and life commitments to Camp Sunshine have inspired and guided me and so many others as we embark on journeys of our own with the organization. Along with our dedicated staff and board of directors, without whom the program would be far less magical, these are the people I am proud to now call my friends. Matthew M. Hoidal, Esq. W hen I assumed my post as Executive Director in 2001, it was a major point in Camp Sunshine’s history, as the organization transitioned from its founding and former base at Point Sebago Resort, to its brand new home next door. Eager to begin ad- Every great organization only succeeds by remembering and honoring its roots. In the eight years since Camp Sunshine moved into its new campus, the organization has undergone tremendous growth, expanding from 4 sessions in 2000 to the 25 sessions planned on our 25th anniversary season. The campus has grown, our volunteer and donor forces have grown, awareness has increased, and the need for the program always “We Are Family” vancing Camp Sunshine, I was also mindful of the need to take time to better appreciate and become familiar with Camp Sunshine’s rich history, and the people who helped nurture and care for it for so many years. To this day, I love talking to people about the days back at Point Sebago. For those of us who were not involved in the program back then, it would be so great if we could go back in time and be a part of Camp Sunshine. And while that’s not possible, we are all fortunate that those who enjoyed those years were so open and willing to share their Sunshine grows, we will grow as a family, remembering our heritage, and honoring those who came before us, while constantly striving to enhance and perfect our familyfocused programming. Thank you all for welcoming me into your family, and for giving me this privilege of serving so many families with you. I look forward to sharing many more years with you, and working together to bring respite to the many more children and families who need Camp Sunshine. As you turn the pages throughout this publication, I hope they evoke nostalgic feelings and memories of your involvement and reminds you of the important role you have played in Camp Sunshine’s 25 year history. Matt Hoidal, Esq. Executive Director continues. And yet as we change and grow, our foundation, and the principles that have defined who we are and what we do, remain the same. It’s no surprise that the song “We are family” is a routine act during karaoke at Camp Sunshine’s weekly Parents’ Gourmet Dinner. Indeed, if I had to choose one word to define Camp Sunshine, it would be “family.” Family is who we exist to serve, and it’s the community of friends, volunteers, donors, and all of the numerous other caring and compassionate people who have come together in support of Camp Sunshine over the years. No matter how much Camp 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 5 One Family’s Journey C amp Sunshine has meant so much to so many families over the past 25 years, but perhaps no family has had the fabric of their lives more intertwined in Camp Sunshine’s history than the Chapmans from Sydney, Maine. It was the spring of 1982, and life could not have been better for the Chapmans. They had two beautiful children, a daughter, Kim, age nine and a son, Jason, who was seven. Jason had above average grades, he was athletic, and had dreams of becoming a doctor. March 29th of that year would be a day the family would never forget. In Jason’s own words, written in a speech he was to deliver many years later: “There was actually a single word that would change my life forever: Medulloblastoma.” At the time, just two cases of medulloblastoma, which accounts for 30% of brain tumors in childhood, were diagnosed in Maine annually. By day’s end the family found themselves at Maine Medical Center, where Jason underwent 9 hours of neurosurgery. The doctors estimated he had a 30% chance of surviving 3 years. Jason’s mother Carol recalls, “There was very little support in Maine during the early 1980’s for families battling childhood cancer. However, in 1984, we were invited to attend Camp Sunshine’s very first session, and it would prove to be the most wonderful experience of our lives.” According to Carol, “For the first time since the diagnosis two things occurred during our stay: Jason was able to act like a child again, and my husband and I found ourselves able to laugh.” The family was so impressed with their stay at Camp that they returned to volunteer the following year, determined to repay the prior year’s gift. The road ahead continued to be a struggle for the family over the next 15 years, with surgery after surgery and extensive chemotherapy and radiation treatments. Besides cancer, only one other constant would remain for the Chapmans—Camp Sunshine. By 2005, Jason continued to defy all odds and at age 30 was one of the longest known survivors of medulloblastoma. That same year, Jason returned to Camp Sunshine, this time as a volunteer. He quickly became 6 C a m p S u n s h i n e a role model for the children, as well as a beacon of hope to the many families whose lives he would touch. Sadly, 2005 would also be the same year Jason was diagnosed with his final, recurring brain tumors, just two weeks after volunteering at Camp Sunshine’s winter sessions. In the words of Jason’s cousin Adam, who is also deeply entrenched in Camp Sunshine as a volunteer and fundraiser, “Jason’s incredible striving for life, and his desire to make the people around him happy is why he is such an inspiration. Every obstacle in Jason’s journey became a milestone, an occasion for further triumph. He is a hero who blazes a trail and gives others strength.” Carol Chapman reflects, “Our entire family attributes Jason’s strength, courage, and ability to cope to his involvement with Camp Sunshine. We will forever be grateful for all the sunshine Camp has brought to our family.” Today Carol and her husband Steve continue to volunteer. Jason’s memory lives on at Camp Sunshine through the establishment by his family and friends of the “Jason Chapman Family Sponsorship Fund.” This fund will allow one family to attend camp each year in Jason’s honor, forever… Camp Sunshine is grateful to Jason’s family, and to all of those who continue to celebrate his life through the support of the fund established in his memory. To that end, Jason’s memory will live on. “Our entire family attributes Jason’s strength, courage, and ability to cope to his involvement with Camp Sunshine. We will forever be grateful for all the sunshine Camp has brought to our family.” 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 7 Congratulations to the Visionary Founders and Dedicated Volunteers and Staff on Camp Sunshine’s 25th Anniversary. Andrew and Erna Viterbi and Family 8 C a m p S u n s h i n e Board of Directors Anna Gould, Chair Stephen Brickel, President Donald Toms, Treasurer David Sukoff, Secretary Nancy Cincotta, M.S.W. Bill Drapeau Andrew Eichenfield, M.D. Martin Grossman Pat Horan Joseph Pappalardo Timothy Porta Albert Ragucci Dan Shaw Honorary Members Lawrence Gould, Ph.D., Chairman Emeritus Governor John Baldacci Rosalyne Bernstein Bruce Chalmers Senator Susan Collins David Frohnmayer, Esq. Andrew Viterbi, Ph.D. Erna Viterbi 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 9 Camp Sunshine’s 25 Year History Beginning of proud partnership with: Anna Gould and Larry Gould donate 24 acres of land for construction of a permanent yearround campus. Capital campaign begins Rotarians from across the northeast gather to shingle entire Family Activity Center in one weekend Sale of Camp Sunshine’s paper “Sunnies” begins 43 families served! Over a two-year period, Maine National Guard 133rd Engineering Battalion builds first structures on property including a bridge, gazebo and bathhouse Camp Sunshine founded by Anna M. Gould and Dr. Lawrence Gould at Point Sebago Resort 1984 1987 1990 1992 Camp exceeds 1,000 families (4,000 family members) served since inception Maine National Guard 133rd Engineering Battalion clears grounds for campus 1993 1994 Camp exceeds 2,500 families (10,000 family members) served since inception 1995 1996 1997 Over 100,000 hours volunteered since 1984 First Annual Camp Sunshine Golf Tournament held at Point Sebago Resort Ground breaking for 23,000 square foot Family Activity Center Professional Residences completed for on-site staff Beginning of proud partnership with: Beginning of proud partnership with: Maine Bass Fishermen begin supporting Camp Sunshine with fishing trips for children 10 C a m p S u n s h i n e The American Camp Association awards Camp Sunshine the Eleanor P. Eells Award for Program Excellence Beginning of proud partnership with: Viterbi Family Activity Center Anna Gould and Larry Gould announce $1 million matching challenge to raise funds needed to complete campus Camp Sunshine’s Brick Walkway Program begins 1998 1999 First Annual Monte Carlo Weekend to benefit Camp Sunshine held at Point Sebago Resort Grand Opening of the Anna Gould & Larry Gould Campus First Winter Program offered Program expands to 8 sessions 2000 Capital campaign concludes with $1 million gift from the Viterbi Family Foundation 2001 Program expands to 17 sessions 2002 2003 Over 250,000 hours volunteered since 1984 Program expands to 14 sessions Construction begins on family and volunteer housing units ABC News Nightline features story on Camp Sunshine Camp receives accreditation by American Camp Association First bereavement session offered With funding from Lions Clubs International Foundation, Camp Sunshine offers Ray of Hope Sessions for families who lost a parent on 9/11 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 11 Camp Sunshine offers pilot program in Warrens, WI at Yogi Bear’s Jellystone Park Camp-Resort Maine Parks & Recreation awards Camp Sunshine Facility of Merit Award Anna Gould and Larry Gould announce $2 million matching challenge Joey Cerato takes the first polar plunge to benefit Camp Sunshine, immediately followed by A.J. Cincotta-Eichenfield’s plunge, laying the groundwork for plunges around the nation Camp Sunshine kicks off $14.5 million Momentum Endowment & Capital Campaign Anna Gould interviewed on the Glenn Beck Show, CNN Headline News Camp Sunshine & Life is good ® set Guinness World Record with 30,128 lit jack-o-lanterns on the Boston Common Program expands to 22 sessions Over 500,000 hours volunteered since 1984 Camp Sunshine celebrates 20th Birthday Program expands to 25 sessions 2004 2005 Program Expands to 23 sessions 2006 Beginning of proud partnership with: Camp exceeds 5,000 families (20,000 family members) served since inception With the support of Lions Clubs from ME, NY, and Lions Clubs International Foundation, Camp Sunshine installs a generator capable of keeping facility fully operational during outages Camp Sunshine develops 8 acres of land into the Joan & Bill Drapeau Outdoor Challenge Area with a ropes course and fitness trail 12 C a m p S u n s h i n e Beginning of proud partnership with: Camp Sunshine sets Guinness World Record for Tallest Sand Castle - featured on CBS Early Show, Today Show, and Google News Shaw Brothers Construction 7,000 square foot addition completed Camp Sunshine earns Charity Navigator’s highest rating for fiscal management for 5th consecutive year, a distinction shared by only 3% of rated charities Camp Sunshine offers pilot program in Tucson, AZ at Rincon Country West RV Resort Camp Sunshine is awarded Agency of Distinction by WCSH6 News 2007 Beginning of proud partnership with: Camp Sunshine program in Wisconsin celebrates completion of 10th session Over 750,000 hours volunteered since 1984 2008 Camp exceeds 7,500 families (30,000 family members) served since inception offers $250,000 matching challenge in celebration of Camp Sunshine’s 25th Anniversary (See page 19 for details) 2009 Camp Sunshine is honored with the Governor’s Exemplary Service Award Anna Gould and Larry Gould $2 Million matching challenge concludes with major gifts from the Orokowa Foundation, New Balance Foundation, Alison & Gary Lieberman, Joan & Richard Barovick, and Shaw Brothers Construction Momentum Endowment & Capital Campaign breaks $8 Million mark Tropical Smoothie Café selects Camp Sunshine as its national charity. Camp Sunshine proudly celebrates its 25th Birthday 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 13 Psychosocial Director’s Message navigate the future, families who have been on the journey of a life-threatening illness, and who were helped by their Camp Sunshine experience. We have children who have grown up and have come back to help us help others. What a testimony to the magic of Camp Sunshine! No matter how you look at it, twenty-five years is a long time. There is so much to reflect upon. For all of you, (and you know who you are) who have come forward and lent a hand at critical times, in the middle of the night, on the long hauls, with seemingly daunting tasks – we can never thank you enough. The positive energy of Camp Sunshine comes from the spirit of giving that permeates the campus. With the only facility in the world whose sole purpose is to serve families of children with lifethreatening illnesses in a retreat model, every family member, every volunteer, every staff member (and their family members), and every board member, should feel proud. I thank you all for being the fabric of Camp Sunshine, and for making the pattern in the Camp Sunshine kaleidoscope spectacular. Nancy F. Cincotta, MSW Psychosocial Director Nancy F. Cincotta, M.S.W. W hen you look into a kaleidoscope, you see an image, often beautiful. You turn even the simplest of kaleidoscopes and there is yet another pattern even more appealing. Each crystal, each color, makes the new design remarkable, and so it is with the people of Camp Sunshine. After twenty-five years, Camp Sunshine is populated by what seems to be an endless stream of amazing people who make the image of what Camp Sunshine has become more beautiful every day. Camp Sunshine began as a well executed, creatively planned program, somehow unaware of its destiny. Our exceptional founders knew that they had created something special very quickly based on the emotional connections among the families served in those early sessions. In 2009, we all know that we have something special, based on those same emotional connections. But now we have a generation of families to help us 14 C a m p S u n s h i n e Nancy, Andy & son AJ with Hobbs The Board of Directors and Staff of Camp Sunshine wish to formally recognize Nancy Cincotta for her 22 years of caring and supportive service. Medical Director’s Message family-centered respite at a time when other programs focused exclusively on ill children. It is a testament to the Goulds, to Camp’s dedicated staff, and to untold numbers of volunteers that the Camp Sunshine model has fulfilled every one of the requirements of a medical home. On the occasion of our twenty-fifth anniversary, I would like to take this opportunity to thank all who have served at Camp Sunshine through the years, Dr. Andrew Eichenfield Camp Sunshine, A Medical Home Away from Home I n 1967, the American Academy of Pediatrics first put forth the concept of a medical home for children as a place in which a primary care physician could coordinate all of a child’s health care. The current vision of the medical home encompasses a model of care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective. It is immediately apparent that Camp Sunshine, while not a child’s primary medical home, does serve as a medical home away from home, a place that has provided all of the above for the families which it has served for the last twenty-five years. When a child is diagnosed with a life-threatening illness, it is difficult to feel at home almost anywhere. Camp Sunshine has become a home to many, a safe and comfortable place. Camp Sunshine’s founders had the foresight to provide comprehensive, individuals who have given of themselves, involved their extended families in Camp Sunshine’s mission, and have embraced what we have all created. derived from that concept. Everyone is home together. Once you walk through those three doors, something happens. For a period of days, maybe a week, everyone shares a remarkable experience. Whether a medical emergency, a beautiful rainbow, a parents’ group, or an interchange between siblings, whatever happens at Camp Sunshine happens for everyone who comes together for that Camp session. So, I thank those who have helped us provide care to families, in the middle of the night, in the middle of the day, in the middle of the woods. Camp Sunshine could not be a home without you, and would not be accessible to the children and families we follow without your willingness to become part of the Camp Sunshine family. Andrew Eichenfield, M.D. Medical Director For the period of time that anyone is at Camp Sunshine, it serves as home, and part of the magic is The Board of Directors and Staff of Camp Sunshine wish to formally recognize Dr. Eichenfield for his 21 years of dedicated and compassionate service. 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 15 Our Dedicated Volunteers so, and even if for only a brief time, be the support, the ear, or the warm smile that creates and then transcends the moment, forming a memory for a child or a family that will last a lifetime! Leo Buscaglia, “Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.” “The Magic of Camp Sunshine” Michael Katz A s we move forward into our 25th year of providing a respite and haven of caring for families that have a child suffering from a life-threatening illness, I can’t help but reflect upon the many special people that have made this celebration possible. These special people, known as volunteers, both young and old, have been a large part of Camp Sunshine’s journey, giving of themselves, their time and talents and most importantly their spirit, helping to ensure the growth and success of the Camp Sunshine mission. Through the past and into the present, volunteers of all ages have come from all over the country, in fact from all over the world (Japan, Scotland, Germany, etc.) with the sincere desire to help others. Students, CEOs of large companies, and even Olympic Gold Medalists have left their egos and their own needs at the symbolic three front doors of camp with one common goal in mind…To matter!! To make a difference in someone else’s life…To be a ray of sunshine, aiding others through darkness! More 16 C a m p S u n s h i n e I am often told by many volunteers when asked about their experience at Camp that they feel they have received more from volunteering than what they actually feel they have given in return. I believe that in part this is because the very nature and character of a Camp Sunshine volunteer is one of caring and selflessness. I also believe, as I watch volunteers embrace each other and the members of the families we care for in a farewell hug or see the tears in the eyes of the volunteer who has been touched to the core by a young child, that they in fact truly do receive more and deservedly so. The expression of love seems to display that there is no greater gift than to feel the sincere sense of mattering, of making the difference in improving the lives of those around us, while feeling good about ourselves. It is a simple unselfish act from one human being to another. To quote inspirational author and speaker Over the past 25 years, I feel very fortunate to have had and continue to have the opportunity to work with and share the Camp Sunshine experience with so many wonderful people. Interestingly enough, when I think of Camp Sunshine and its volunteers, I can’t help but remember a phrase I once heard… “Volunteers don’t make money, they make a difference.” It is to all these dedicated individuals who have made a choice to make a difference that I extend my sincere gratitude and look forward to making the “magic” of Camp Sunshine shine for the next 25 years! Michael Katz Campus Director The Board of Directors and Staff of Camp Sunshine wish to formally recognize Michael Katz for his 25 years of unyielding service. Since 1984, over 20,000 volunteers have given generously of their time and hearts so that families can find hope and support at Camp Sunshine. Because space restricts us from listing everyone, we recognize below those who have given 15-25 years of service. Founding Volunteers still volunteering with us today: Bruce Chalmers Lawrence Gould Joe Pappalardo Dot Gonyea Gloria Hague Mary Ellen Sturtevant Anna Gould Joan Pappalardo Don Toms Those with 20+ years of service: Nancy Cincotta Marty Grossman Sandra Kimball Al Ragucci Andrew Eichenfield William Gumbel Kevin Lucey Mary Ragucci Joyce Grossman Nancy Hibbard Janet Quinn Those with 15+ years of service: Janet Bell Bernadette Cattanach Nicki Griffin Rita Porter Ruth Shadbolt Jeff Boutiette David Cieslik Dan Paris Beth Quinty Stephen Brickel Mark Gould Dorothy Pillischer Jim Quinty 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 17 Honoring Our Quarter Century Club: Donors who have contributed a total of $25,000 or more over the past 25 years. $2,000,000 + Anna M. Gould Dr. Lawrence Gould $1,000,000 + Camp Sunshine Pumpkin Festivals The Orokawa Foundation Point Sebago Resort Monte Carlo Weekend & Other Fundraisers Viterbi Family Foundation $500,000 + Children’s Brain Tumor Foundation Life is good ® The New Balance Foundation The S.L.E. Lupus Foundation, Inc. $300,000 + Lions Clubs International Foundation Newland Communities Shaw Brothers Construction, Inc Dan and Jon Shaw $200,000 + The Barovick Family Foundation Camp Sunshine Golf Tournament Joan and Bill Drapeau The Goddard Group Carol J. Hancock, The Carol J. & K. David Hancock Charitable Trust, Alison & Kevin Hancock, Hancock Lumber, & Hancock Land Dr. and Mrs. Irwin Jacobs The Leukemia & Lymphoma Society Mr. and Mrs. Gary Lieberman Mr. and Mrs. Joseph Pappalardo* Shawnee Peak Moonlight Charity Challenge & the Homer Family TD Banknorth & TD Banknorth Charitable Foundation $100,000 + AJ’s Polar Dip Beck Family Foundation Sol and Margaret Berger Foundation Berlin City Motors The Munch Bilheimer Foundation 18 Mr. and Mrs. Stephen Brickel** Demoulas Foundation Fanconi Anemia Research Fund Mr. and Mrs. Robert Graham Hannaford Bros. Co. & The Hannaford Charitable Foundation Irving A. Hansen Memorial Foundation Here Comes the Sun Fashion Show The Hermann Foundation Mr. and Mrs. John Horan Jacbel Foundation Robert Wood Johnson Foundation JTG Foundation Katzenberger Foundation Lions Club of the Bronx Maine Lions Clubs The Thomas H. Maren Foundation New England District of Key Clubs Mr. and Mrs. Morris W. Offit The Skirball Foundation South Portland Lions Club Thomas F. Staley Foundation TCG Tropical Smoothie Café True Fans For Elvis Club Tyco International Tzell Travel Group $50,000 + Acorn Hill Foundation ARBROS The Frank Stanley Beveridge Fund Boston Ladder & Scaffolding The Buller Family Foundation Campbell & Company The Chalmers Family Coney Island Polar Dip Downeast Energy & Building Supply Ron Eby’s Cantina Nancy Cincotta, Dr. Andrew Eichenfield & A.J. Cincotta-Eichenfield Mr. John Girouard Gloria Hague - Point Sebago Guests Hands On Tzedakah Harris Miniature Golf Ralph E. Heckert Revocable Trust C a m p S u n s h i n e Anne Griffin Herrick Fund The Herrick Family Foundation & Others JetBlue Airways Joey’s Polar Plunge The Ruth and Seymour Klein Foundation Lanco Scaffolding Lauren’s First and Goal Foundation Libra Foundation Long Island Polar Dip Camp Mataponi Marcy & Dan Isdaner Miracle Marathon & Miles for Smiles National Kidney Foundation of CT NYMEX Charitable Foundation Amelia Peabody Charitable Fund Steven M. Perez Foundation PF.NET The Pottruck Family Foundation The Mattina R. Proctor Foundation Rent-A-Husband High School Business Challenge R.H. Reny, Inc. The Robin Romano Memorial Fund Lawrence J. & Anne Rubenstein Charitable Foundation The Scheerer Family Foundation Sebago Lake Rotary Club The Virginia Hodgkins Somers Foundation The Sportshoe Center Maine Marathon Laurie & David Sukoff Mr. and Mrs. Mark Swartz Mr. and Mrs. Barry Tatelman Mr. and Mrs. Lenard Tessler Tony’s Foodland United Way of Greater Portland Katie Vashon Fund Mr. and Mrs. Don Vermeil Village Candle C. & J. Viner Family Foundation Wadsworth Golf Charities Foundation Wal-Mart Foundation The Wasserman Family Foundation The Zobel Foundation $25,000 + The Annunziata Family Foundation Archetype Architects C.R. Bard Foundation, Inc. The Andy Bovin Memorial Fund Mike Brooks Bryan’s Dream Foundation Mr. and Mrs. Steve Burnham Camp Sunshine Mountain Lakes The Thomas & Agnes Carvel Fund Mr. and Mrs. Dan Cashman Castle to the Sun Champion BassMasters Jason Chapman Fund Coca Cola Christopher Connolly and Marjorie Liner & The Arguild Foundation Crusade for Karlee’s Kids Divine Divas Michael J. Dunleavy Foundation, Inc. Dr. and Mrs. Arthur Falk Mr. Mark Fisher Mark Forti Leukemia Fund The Fuller Foundation, Inc. Alice G. Gadd Charitable Fund Oliver & Kathryn Gill Fund William J.J. Gordon Trust Mr. Martin Gould & Dr. Larry Dumont Mr. R. Milton Gray The Greater Kansas City Community Fund - Sprint Classic Golf Tournament Friends and family of Harold Greenberg Mr. and Mrs. Marty Grossman Hampden Wilbraham Regional School District Harmon Foundation, Inc. Harvard Pilgrim Health Care & Employees The Herbst Foundation Horne Pond Ice Fishing Derby The Hudson Foundation Mr. and Mrs. Gary Jackson The JVK Foundation Kachmar 80’s Dance Party The Katzin Foundation Stephen & Tabitha King Foundation F. M. Kirby Foundation KOA Care Camps The Helen and George Ladd Charitable Corp The Laffey McHugh Foundation Leisure Systems, Inc. Mr. and Mrs. Ted Levy Joseph A. Libbey Estate Mr. and Mrs. Barry Liben The Agnes M. Lindsay Trust Lucent Technologies Maine Army National Guard Maine Polar Dips Amanda Martin Fund Patrick Martin Mr. and Mrs. Tim McDonald Mr. and Mrs. Tom McKenny Mercedes Benz of North America Migis Lodge & Guests - Brick Walkway Henry L. & Kathryn Mills Charity Foundation North Jersey Media Group Foundation Oakhurst Dairy Philips Consumer Electronics Co. The Phoenix Fund - Dr. & Mrs. Allen B. Chatt Precept Asset Management Mr. and Mrs. Jim Quinty Remillard Family Foundation Ride For the Son Simmons Foundation Tager Family Foundation Ms. Ethel Tager Mr. and Mrs. Donald Toms Toys ‘R’ Us Children’s Fund Trucking 4 Kids UJA-Federation of New York United Bikers of Maine/ L-A Harley-Davidson Virginia Polar Dip Vital Basics, Inc Mr. and Mrs. John Warta Mr. Robert Weissman Weston Pumpkin Festival Windham High School *In-kind **Includes bequest 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 19 Experiencing Pure Joy at Camp Sunshine The following is a letter from a family thanking the New Balance Foundation for sponsoring them at Camp Sunshine. Dear New Balance Foundation, We are so thankful for your support to Camp Sunshine and for allowing our family to come and heal from our journey with cancer. Our daughter, Joli, was diagnosed with cancer at age 2—one month after her 2nd birthday. We were completely surprised by this diagnosis, and had even just planned on a “fun day” in the city after her doctor’s appointment. Needless to day, the “fun day” turned into a cancer diagnosis, an emergency enucleation (removal) of her right eye, and the change in our lives forever. Our seemingly healthy daughter - my 2 year-old - had cancer. Joli’s little body endured six months of aggressive chemotherapy. She survived, and we are so thankful. Joli was fitted with a prosthetic eye, her hair grew back, and she has developed into a strong little girl. Camp Sunshine is a place where we can feel “normal” for a week - a feeling we often take for granted. For one week out of the year, Joli feels like every other kid because, at camp, every kid is a survivor of retinoblastoma (eye cancer). At camp, Joli doesn’t have to hear kids tease her. At camp, Joli doesn’t have to see people point and stare. As a parent, I know that those taunts make Joli stronger in the real world, but the truth is, I wish we could always be at Camp Sunshine, surrounded by people who see Joli for who she is—a beautiful, strong, courageous 4 year-old girl. Because of your donation, Joli experiences pure joy for the one special week. We have never seen the smile as big on her face as we see at Camp Sunshine! And, as a parent, that is the greatest gift we could ever receive! Camp Sunshine is one of the only programs out there that treats our entire family. Camp is as therapeutic for our entire family as it is for Joli. It is the confidence we gain at Camp Sunshine that carries us through the year. When Joli has a bad day at pre-school or just feels like she is so sad for only having one eye, we sit and talk about her favorite memories of camp, look through her camp scrapbook, or watch videos from camp. She smiles. She laughs. She feels better. That is Camp Sunshine. Your generous sponsorship paid for my child’s experience with courage, with self confidence, and with a joy that sustains her. Thank you, New Balance! With great thanks, Liza, Jorge, Joli (age 4), and Jada (age 2) Vega 20 C a m p S u n s h i n e We Put Our Energy Into Helping People. For more than 100 years, we’ve put our energy into our communities because we live here, and this is what it’s all about. Congratulations to Camp Sunshine on your 25th Year! Good Friends For All Seasons 1-888-665-2727 downeastenergy.com 25 Years Congratulations, Camp Sunshine Keep up the great work! 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 21 22 C a m p S u n s h i n e 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 23 Awards & Recognition June 2009 New York Magazine and Castle Connolly Medical Ltd. recognize Camp Sunshine’s Medical Director Andrew Eichenfield as one of New York’s Best Doctors for the 8th consecutive year. May 2009 Maine Senate and House of Representatives present Camp Sunshine and its founders with an official expression of sentiment, recognizing 25 years of dedicated service to seriously ill children and their families. April 2009 Maine Governor John Baldacci honors Camp Sunshine, and Board September 2008 Charity Navigator awards Camp Sunshine its Top Rating for Sound Fiscal Management for September 2007 Guinness World Records confirms Camp Sunshine’s World Record for the Tallest Sand August 2007 WCSH 6, United Way of Greater Portland and TD Banknorth name Camp October 2006 Member and longtime volunteer Joseph Pappalardo with the Governor’s Exemplary Service Awards. the 5th Consecutive Year. Castle. Sunshine their 2007 Agency of Distinction. Guinness World Records confirms Camp Sunshine’s World Record for the Most Lit Jack-o’-lanterns in one place at one time. June 2004 Columbia University Press publishes Camp Sunshine’s Psychosocial Director Nancy Cincotta’s Chapter “The End of Life at the Beginning of Life: Working with Dying Children and Their Families,” pgs. 318-347, in Living With Dying: A Handbook for End-of-Life Health Care Practitioners. Yankee Magazine honors Camp Sunshine Founder Anna Gould with its Community Partners Barnraiser Award. Camp Sunshine honors Camp Sunshine Founder Larry Gould with its First Lifetime Achievement Award. May 2004 E-Town Radio presents Camp Sunshine Founders Anna Gould and Larry Gould with its E-Chievement Award. March 2004 Maine Recreation and Park Association presents Camp Sunshine with its Facilities of Merit Award. February 2004 American Camp Association presents Camp Sunshine with the Eleanor P. Eells Award Campus Director Michael Katz as At-Large Board Member. 24 for Program Excellence. American Camp Association, New England Division elects Camp Sunshine’s C a m p S u n s h i n e March 2003 Windham Rotary honors Camp Sunshine’s Development Coordinator Michael Smith with January 2003 The Soros Foundation’s Project on Death in America awards Camp Sunshine’s November 2002 American Camp Association accredits Camp Sunshine for the first time. June 2002 Toastmasters International honors Camp Sunshine Founder Anna Gould with its August 2001 E-Town Radio presents Camp Sunshine’s Executive Director Matt Hoidal with its E-Chievement Award. October 1999 Maine Governor Angus King presents longtime Camp Sunshine Volunteer and Board November 1998 Betty Crocker and BAC-Os recognize Camp Sunshine’s Volunteer and Board Member Joseph Pappalardo as “Top Volunteer of the Year”. March 1996 The Jefferson Awards for Public Service honors Camp Sunshine Volunteer and Board Member Joseph Pappalardo, representing the State of Maine. February 1996 the Paul Harris Fellow Award. Psychosocial Director Nancy Cincotta with its Social Work Leadership Award. Communication and Leadership Award. Member Joseph Pappalardo with The Governor’s Service Award for Excellence in Volunteer Administration. Adam Walsh Children’s Fund honors Camp Sunshine Founder Dr.. Lawrence Gould with its prestigious Rainbow Award. January 1989-1991 Association of Pediatric Oncology Social Workers elects Camp Sunshine Psychosocial Director Nancy Cincotta as President. Agency of Distinction Award, Presented to Camp Sunshine August 2007 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 25 “It’s a way of giving back and helping other families going through similar things we went through. We cannot imagine our life now without volunteering at Camp Sunshine.” – Gail Toth 26 C a m p S u n s h i n e A Family Gives Back W hile bathing her toddler Jennifer 13½ years ago, Gail Toth wasn’t thinking about Camp Sunshine, let alone the fact that it would soon become so central to her family’s life. In fact, the Toths had never heard about Camp Sunshine, but the discovery of a large lump under Jennifer’s ribs during that bath changed their family’s life forever. Jennifer was diagnosed with hepatoblastoma, a liver tumor, leading to a 14 year (and ongoing) connection to Camp Sunshine. At Children’s Hospital of Philadelphia, doctors determined that the tumor was too large to remove and started Jennifer on chemotherapy. Five months and five rounds later, the mass had shrunk to the size of a golf ball, and surgeons removed the mass and part of her liver. In 1996, a year after Jennifer was diagnosed with cancer, Gail, Jennifer and father Bill spent a week at Camp Sunshine, which at that time was still being hosted at Point Sebago Resort. The experience altered their lives to such an extent that they have returned every year since to volunteer as a family, which now includes Jennifer’s 5-year-old sister Julianna. “It’s a way of giving back and helping other families going through similar things we went through,” said Gail Toth. “I feel like we can relate to the pain they’re going through. We cannot imagine our life now without volunteering at Camp Sunshine.” “The camp is a comfort to families in crisis,” said Bill Toth. “That’s the core of our volunteerism and support of Camp Sunshine.” In addition to volunteering at Camp, the Toths started fundraising efforts several years ago. When we asked what volunteering meant to them, the Toths responded as follows: “It means knowing that we made a difference in a child’s life by helping them have fun and maybe forgetting about their illness, or their sibling’s illness for a few days or a week. It means giving some parents a short break from caring for their sick child, maybe the first one they have had in months; giving them time to spend with a spouse or to play the Super Dooper Blooper Games until they laugh harder than they have in months or years. It means going in to the parent discussion group at the end of the week with our now teenage daughter and talking about life after the end of treatment and giving them hope for the future and letting them know it is okay and normal to still be scared. It means getting involved with fundraising and planning a polar dip in Virginia where we live so more families can experience the magic of Camp Sunshine.” Camp Sunshine is privileged to have had such a profound impact on the entire Toth family, and we are grateful for their continued support and involvement. The magic of Camp comes from the dedication of the Toths and the many other families and volunteers who give of themselves to enrich the program. According to Jennifer, “Being a cancer survivor is part of who I am. I’m very involved with Camp Sunshine. I look at these kids and I think, ‘That was me.’ That makes it real to me.” 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 27 Referring Treatment Centers Since 1984, Camp Sunshine has served more than 30,000 family members from 47 states and 17 countries. Referring Treatment Centers include: Alabama: Children’s Hospital of Alabama, Birmingham; Arizona: Banner Children’s Hospital, Mesa; Phoenix Children’s Hospital; St. Joseph’s Hospital, Phoenix; University Medical Center, Tucson; California: Children’s Hospital & Research Center, Oakland; Children’s Hospital Central California, Madera; Children’s Hospital of Orange County; Children’s Hospital, Los Angeles; City of Hope, Duarte; Kaiser Permanente, Los Angeles; Loma Linda University Children’s Hospital; Lucile Packard Children’s Hospital at Stanford; Mattel Children’s Hospital UCLA; Naval Medical Center San Diego; Rady Children’s Hospital, San Diego; UCSF Children’s Hospital, San Francisco; Colorado: Childhood Hematology Oncology Associates, Colorado Springs; Children’s Hospital, Denver; Connecticut: Connecticut Children’s Medical Center, Hartford; St. Francis Hospital & Medical Center, Hartford; Yale-New Haven Children’s Hospital; Delaware: Nemours/Alfred I. duPont Hospital for Children, Wilmington; District of Columbia: Children’s National Medical Center; Georgetown University Hospital; Florida: All Children’s Hospital, St. Petersburg; Arnold Palmer Hospital for Children, Orlando; Baptist Children’s Hospital, Miami; Bascom Palmer Eye Institute, Miami; Children’s Hospital at St. Mary’s Medical Center, West Palm Beach; Children’s Hospital at Palms West, Loxahatchee; Children’s Hospital of Southwest Florida at Lee Memorial Health System, Fort Myers; Chris Evert Children’s Hospital at Broward General Medical Center, Fort Lauderdale; Disney Children’s Hospital at Florida Hospital, Orlando; Joe DiMaggio Children’s Hospital at Memorial, Hollywood; Miami Children’s Hospital; Nemours Children’s Clinic, Jacksonville; St. Joseph’s Children’s Hospital of Tampa; University of Miami/Jackson Memorial Medical Center; Georgia: Backus Children’s Hospital, Savannah; Children’s Healthcare of Atlanta Pediatric Hospital; Columbus Regional Medical Center, Georgia; Illinois: Advocate Hope Children’s Hospital, Oak Lawn; Advocate Lutheran General Children’s Hospital, Park Ridge; Children’s Memorial Hospital, Chicago; Southern Illinois University School of Medicine, Springfield; University of Chicago Comer Children’s Hospital; University of Illinois at Chicago Circle; Indiana: Riley Hospital for Children, Indianapolis; Iowa: Blank Children’s Hospital, Des Moines; University of Iowa Children’s Hospital, Iowa city; Kansas: University of Kansas Hospital, Kansas City; Via Christi Regional Medical Center, Wichita; Kentucky: Kosair Children’s Hospital, Louisville; Louisiana: Children’s Hospital, New Orleans; Ochsner Children’s Health Center, New Orleans; Maine: Barbara Bush Children’s Hospital at Maine Medical Center; Eastern Maine Medical Center; Maryland: Johns Hopkins Children’s Center, Baltimore; National Cancer Institute, Bethesda; University of Maryland Hospital for Children, Baltimore; Massachusetts: Baystate Medical Center Children’s Hospital, Springfield; Boston Medical Center; Brigham & Women’s Hospital, Boston; Children’s Hospital Boston; Dana Farber Cancer Institute, Boston; Floating Hospital for Children at Tufts New England Medical Center, Boston; Massachusetts Eye & Ear Infirmary, Boston; MassGeneral Hospital for Children, Boston; UMass Memorial Medical Center, Worcester; Michigan: Beaumont Children’s Hospital, Royal Oak; Children’s Hospital of Michigan, Detroit; Helen DeVos Children’s Hospital, Grand Rapids; Michigan State University/Kalamazoo Center for Medical Studies; St. John Hospital & Medical Center, Detroit; University of Michigan C.S. Mott Children’s Hospital, Ann Arbor; Minnesota: Children’s Hospital & Clinics, Minneapolis; Hennepin County Medical Center, Minneapolis; Mayo Eugenio Litta Children’s Hospital, Rochester; United Children’s Hospital, St. Paul; University of Minnesota Medical Center, Fairview; Missouri: Children’s Hospital, University of Missouri, Columbia; Ferrell-Duncan Clinic, Springfield; SSM Cardinal Glennon Children’s Medical Center, St. Louis; St. Johns Mercy Children’s Hospital, St. Louis; St. Louis Children’s Hospital; Montana: Billings Clinic, Montana; New Hampshire: Children’s Hospital at Dartmouth, Lebanon; New Jersey: Cancer Institute of New Jersey, Robert Wood Johnson University Hospital, New Brunswick; Cooper University Hospital, Camden; Hackensack University Medical Center; K. Hovnanian Children’s Hospital at Jersey Shore University Medical Center, Neptune; St. Joseph’s Children’s Hospital, Paterson; St. Peter’s University Hospital, New Brunswick; Valerie Fund-Monmouth Medical Center, Long Branch; Valerie Fund-Morristown Memorial Hospital; Valerie Fund-Newark Beth Israel Medical Center; Valerie Fund-St. Barnabas Medical Center, Livingston; New York: Bellevue Hospital Center, New York; Benedictine Hospital Cancer Center, Kingston; Beth Israel Medical Center, New York; Brookdale University Hospital & Medical Center, Brooklyn; Brooklyn Hospital Center; Children’s Hospital at Albany Medical Center; Children’s Hospital at Montefiore, Bronx; Hospital for Special Surgery, New York; Long Island College Hospital, Brooklyn; Maimonides Medical Center, Brooklyn; Maria Fareri Children’s Hospital at Westchester Medical Center, Valhalla; Memorial Sloan Kettering Cancer Center, New York; Metropolitan Hospital, New York; Morgan Stanley Children’s Hospital of New York-Presbyterian; Mount Sinai Medical Center, New York; Nassau University Medical Center, East Meadow; New York Presbyterian/Weill Cornell Medical Center; New York University Langone Medical Center; North Shore University Hospital, Manhasset; Roswell Park Cancer Institute, Buffalo; Schneider Children’s Hospital, New Hyde Park; St. Vincent’s Catholic Medical Centers, New York; Stony Brook University Medical Center; SUNY Downstate Medical Center, Brooklyn; SUNY Upstate Medical University Hospital, Syracuse; University of Rochester Medical Center; Winthrop University Hospital, Mineola; Women’s & Children’s Hospital of Buffalo; North Carolina: Brenner Children’s Hospital, Wake Forest University, Winston-Salem; Duke Children’s Hospital & Health Center, Durham; Levine Children’s Hospital at Carolinas Medical Center, Charlotte; North Carolina Children’s Hospital, Chapel Hill; North Dakota: Roger Maris Cancer Center, Fargo; Ohio: Akron Children’s Hospital; Children’s Medical Center of Dayton; Cincinnati Children’s Hospital Medical Center; Cleveland Clinic Children’s Hospital; Nationwide Children’s Hospital, Columbus; Rainbow Babies & Children’s Hospital, Cleveland; St. Joseph’s Cancer Health Center, Warren; St. Vincent’s Mercy Children’s Hospital, Toledo; Oregon: Legacy Emanuel Children’s Hospital, Portland; OHSU Doernbecher Children’s Hospital, Portland; Pennsylvania: Children’s Hospital of Philadelphia; Children’s Hospital of Pittsburgh; Pediatric Specialists of Lehigh Valley, Allentown; Penn State Milton S. Hershey Medical Center; St. Christopher’s Hospital for Children, Philadelphia; Wills Eye Institute, Philadelphia; Rhode Island: Hasbro Children’s Hospital, Providence; South Dakota: Sanford Children’s Hospital, Sioux Valley; Tennessee: Eastern Tennessee State University Cancer Center, Johnson City; Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville; St. Jude’s Children’s Research Hospital, Memphis; Texas: Children’s Medical Center of Dallas; CHRISTUS Santa Rosa Children’s Hospital, San Antonio; Cook Children’s Medical Center, Fort Worth; MD Anderson Cancer Center, Houston; Medical City Children’s Hospital, Dallas; ‘Specially for Children, Austin ; Texas Children’s Hospital, Houston; Utah: Primary Children’s Medical Center, Salt Lake City; Vermont: Vermont Children’s Hospital, Burlington; Virginia: Children’s Center for Cancer & Blood Disorders of Northern Virginia, Fairfax; Children’s Hospital of the King’s Daughters, Norfolk; University of Virginia Children’s Hospital, Charlottesville; Virginia Commonwealth University Children’s Medical Center, Richmond; Washington: Madigan Army Medical Center, Tacoma; Mary Bridge Children’s Hospital, Tacoma; Sacred Heart Children’s Hospital, Spokane; Seattle Children’s Hospital; West Virginia: West Virginia University Children’s Hospital, Morgantown; Wisconsin: American Family Children’s Hospital, Madison; Children’s Hospital of Wisconsin, Milwaukee; Gundersen-Lutheran Health System, La Crosse; Marshfield Clinic; Prevea St. Vincent Health Center, Green Bay; Canada: Manitoba: Children’s Hospital of Winnipeg; Nova Scotia: IWK Health Centre, Halifax; Ontario: Children’s Hospital of Eastern Ontario, Ottawa; Hospital for Sick Children, Toronto; McMaster Children’s Hospital, Hamilton; Princess Margaret Hospital, Toronto; Quebec: Hôpital Sainte-Justine, Montreal; Montreal Children’s Hospital; Colombia: Saludcoop, Bogota; Peru: Instituto Nacional de Salud del Niño, Lima; Denmark: Rigshopitalet, Copenhagen; The Netherlands: Universitair Medisch Centrum, Utrecht; Norway: Ullevål Universitetssykehus, Oslo; United Kingdom: East Oxford Health Centre; Hull Royal Infirmary, East Yorkshire; Sheffield Children’s Hospital; St. George’s Hospital, London; St. Mary’s Hospital, London; East Oxford Health Centre; France: Hôpital Saint Louis, Paris; Germany: Universitätsklinikum Ulm; Universitätsklinikum Würzburg; Israel: Hadassah University Medical Center, Jerusalem; Edmond & Lily Safra Children’s Hospital, Tel Hashomer; South Africa: Pretoria Academic Hospital; Philippines: Philippine Children’s Medical Center, Quezon City; Australia: Women’s & Children’s Hospital, Adelaide; Princess Margaret Hospital for Children, Perth; Sydney Children’s Hospital; New Zealand: Starship Children’s Hospital, Auckland; Taranaki Base Hospital, New Plymouth 28 C a m p S u n s h i n e We have millions of dollars worth of diagnostic equipment. But nothing can replace this instrument. Maine Medical Center has some of the newest and most technologically advanced diagnostic equipment in the country. But no matter how advanced the equipment becomes, we know that nothing will ever take the place of sitting down and listening to a patient and their family. It’s this combination of providing tenderness, as well as technology, that has helped MMC become the fourth safest rated hospital in the U.S. Congratulations on 25 years, Camp Sunshine! www.mmc.org 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 29 30 C a m p S u n s h i n e Testimonials “We continue to be impressed by all that Camp Sunshine offers to children and their families and we feel privileged to be in a position to assist Camp Sunshine in sustaining and growing their valuable work.” Jim and Anne Davis CEO & Executive VP of Administration New Balance Athletic Shoe, Inc. & The New Balance Foundation Camp Sunshine is a very important organization – to Maine and to the entire country. Hancock Lumber is honored to be part of such a special organization and wishes everyone in the Camp Sunshine family 25 more years of success in touching the lives of the precious families it supports. Kevin Hancock President, Chairman & CEO Hancock Lumber As a Founding Board Member, being involved since 1984 as a Director at Camp Sunshine, and now an Honorary Director, has been a very rewarding experience. I have also enjoyed watching our employees and families spend time as volunteers at Camp Sunshine over the years. Coincidentally, as the result of a personal experience with son, Tommy, my wife and I have become good friends with one of Camp Sunshine’s doctors, Dr. Chris Turner. Dr. Turner donates a considerable amount of his vacation time each year, serving as the camp doctor during the brain tumor sessions at Camp Sunshine. We are very fortunate that Larry and Anna made a dream a reality, and congratulate Camp Sunshine on it’s 25th birthday! Bruce Chalmers, Chalmers Insurance Group Honorary Board Member & Founding Director of Camp Sunshine 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 31 32 C a m p S u n s h i n e Charity Navigator Rating 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 33 A Journey of Hope Fanconi Anemia (FA) is a rare genetic disorder. The likelihood that two people with FA would ever meet each other is almost non-existent. However, meeting someone else with this illness can be life affirming. Although it is the most commonly reported inherited disease causing bone marrow failure, Fanconi Anemia is nonetheless quite rare, with an estimated annual birth rate of 1/360,000. Affected individuals often have birth defects, including missing thumbs, and heart and kidney abnormalities. They go on to experience bone marrow failure in childhood, causing low blood counts that cause fatigue, increased risk of bleeding and infection, as well as predisposition to leukemia. Stem cell transplantation from a matched sibling donor is the safest and most effective treatment for FA. Even after successful transplantation, those with the disease are at increased risk for solid tumors. Amy Frohnmayer was a psychosocial intern at Camp last summer. Her enthusiasm about the internship was influenced by having begun as an FA camper when she was just three years old. The Frohnmayers had five children, two sons and three daughters. Each of the three girls was diagnosed with FA. The Frohnmayers’ eldest daughter Kirsten died from leukemia in 1997 at age 24 after graduating Stanford University with honors. Katie “was hospitalized something like 18 times in 14 months,” recalled her father. She died from a stroke in 1991 at age 12. Their illnesses were both directly linked to FA. Amy is the youngest daughter and is now 22. When Fanconi Anemia first affected their family, Lynn and Dave Frohnmayer did all they could to discover more about FA and to move science forward. They founded the Fanconi Anemia Research Fund (FARF) in 1989, with the goal of finding a cure for FA and providing support and information for families affected by FA. Lynn and Dave have been instrumental in expediting research about Fanconi Anemia. Camp Sunshine, FARF, and Amy were growing up at about the same time. Our professional staff introduced Camp Sunshine to FARF. In 1992, the first FA program was piloted and the longest organizational partnership in Camp Sunshine history was born. 34 C a m p S u n s h i n e Unlike most other programs at Camp, the FA session provides families with a blend of scientific and clinical information presented by researchers and physicians from around the world. This state-of-the-art information, combined with psychosocial programming and the magic of Camp Sunshine, truly enables families to gain knowledge and insights specific to their children’s medical situation and to connect with other families in a life-changing way. In the words of David Frohnmayer, “Camp Sunshine has been an opportunity for education, shared grieving, and nurturing new hope. We have learned through deep friendships with other families that we can speed the pace of progress, and that we do not face obstacles alone. Camp Sunshine has been an indispensable part of a network of warmth and support.” Camp has always remained a huge part of Amy’s life. “For me, it’s been an important source of comfort, a safe space to feel and share any emotion, and, most recently, a place filled with meaningful life lessons,” Amy recalls, “I don’t think the laws of time really apply to Camp Sunshine. It embraces a different rhythm and pace. While the rest of the world moves along at rapid speed, Camp somehow allows families, who may begin as perfect strangers, to connect deeply and develop treasured friendships in only days.” With 52 families attending the FA session in 2008, Camp Sunshine has truly become a place where children grow to understand that they are not alone. Camp Sunshine is honored to be partnered with the Frohnmayers and the Fanconi Anemia Research Fund. We are also in awe of Amy’s compassion, resilience, and strength. We congratulate Amy on her graduation from Stanford University and her choice to continue on in graduate studies. We delight in her return to Camp Sunshine this summer. 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g 35 C a m p S u n s h i n e