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La Isla Foundation Addressing the Chronic Kidney Disease epidemic in Central America www.laislafoundation.org | laislafoundation@gmail.com Who Are Involved? • • • • • • • Grupo Pellas The World Bank via the IFC ASOCHIVIDA CAO Boston University Nicaraguan Government-Local & National La Isla Foundation & partners www.laislafoundation.org | laislafoundation@gmail.com 2 Partners • • • • • • • • PAHO SALTRA & CISTA Solidaridad FairFood Innovation Protocol A Growing List of Universities Mayor’s Office of Chichigalpa MINSAL and MINSA www.laislafoundation.org | laislafoundation@gmail.com 3 What is an epidemic? • Examples – – – – – – – Black Death SARS Haiti cholera outbreak Malaria AIDS Polio Influenza www.laislafoundation.org | laislafoundation@gmail.com 4 Environmental and Social www.laislafoundation.org | laislafoundation@gmail.com 5 Percentage of total sugar production in Nicaragua for 2008-2009 www.laislafoundation.org | laislafoundation@gmail.com 6 Bigger Than Nicargua www.laislafoundation.org | laislafoundation@gmail.com 7 CKD defined • Chronic Kidney Disease (CKD), or chronic renal disease, is the progressive loss of kidney function over months or years; it is treatable but not curable. STAGE 1 Kidney damage with normal or increased kidney function STAGE 2 Kidney damage with mild or decreased kidney function STAGE 3 Moderately low kidney function STAGE 4 Severely low kidney function STAGE 5 Kidney failure Activity and Diet Changes Activity and Diet Changes Transplant / Dialysis Transplant / Dialysis Transplant GFR:130 90 60 30 15 0 omerular Filtration Rate (mL/min/1.73m2) www.laislafoundation.org | laislafoundation@gmail.com 8 What happens with CKD? What happens when the kidneys shut down? •Waste products and excess fluids build up inside body •Unpleasant taste in mouth and urine-like odor to the breath •Nausea •Headache •Swelling of hands and feet •Frequent urge to urinate •General fatigue Kidney failure in Central America Is incompatible with life. Source: National Kidney Foundation www.laislafoundation.org | laislafoundation@gmail.com 9 Treatment of CKD Reality in U.S. • Dialysis 3-4 times per week • Costs $129,000 per year • Covered by health insurance, Social Security/Medicaid • 5-year survival rate for a patient undergoing chronic dialysis is approximately 35% Reality in Nicaragua • Lack of access to dialysis • Average income in La Isla is less than $1 per day • La Isla workers do not have health insurance; healthcare is inadequate • CKD diagnosis is a death sentence. CKD=TKD Source: National Kidney Foundation www.laislafoundation.org | laislafoundation@gmail.com 10 Where is the CKD epidemic? • Every day 1.2 people in Nicaragua die of CKD Sources: Nationmaster World Health Organization www.laislafoundation.org | laislafoundation@gmail.com 11 Who gets CKD? Sources: Third National Health and Nutrition Examination Survey Nicaraguan Ministry of Health www.laislafoundation.org | laislafoundation@gmail.com 12 Who has CKD? Sources: Third National Health and Nutrition Examination Survey Nicaraguan Ministry of Health www.laislafoundation.org | laislafoundation@gmail.com 13 WORLD USA NICA LA ISLA www.laislafoundation.org | laislafoundation@gmail.com WORLD USA NICA LA ISLA www.laislafoundation.org | laislafoundation@gmail.com Cycle of Illness and death ISA is the only large employer nearby ISA pays low wages and demands long work hours in unhealthy conditions Bread winner (father)g gets fired & eventually dies of CKD and his children must take his place Parents cannot provide food, education or healthcare for their family www.laislafoundation.org | laislafoundation@gmail.com What happens to the community? Due to this cycle of death the La Isla community is known as The Island of Widows www.laislafoundation.org | laislafoundation@gmail.com 17 What causes the CKD epidemic? Causes of CKD • Diabetes • High blood pressure • Hereditary causes • Dehydration • Environmental contamination Sources: National Kidney Foundation www.laislafoundation.org | laislafoundation@gmail.com 18 What causes the CKD epidemic? Causes of CKD • Diabetes • High blood pressure • Hereditary causes • Dehydration • Environmental contamination Until Further Studies Are Completed We Just Don’t Know Sources: National Kidney Foundation www.laislafoundation.org | laislafoundation@gmail.com 19 What causes the CKD epidemic? Conditions at Work Sources: La Isla Prevalence Study w/ CISTA www.laislafoundation.org | laislafoundation@gmail.com 20 What causes the CKD epidemic? • Sugar process – – – – – Planting Burning Cutting Collection Processing • Work conditions – – – – Temperature Severe dehydration Work hours Environmental exposure www.laislafoundation.org | laislafoundation@gmail.com 21 Corporate social responsibility? • • • • • • • Pellas Group is the most powerful company in region and is based in the poorest country 7,000 employees at height of harvest 46% of Nicaragua's total sugar production 55% of its sugar is exported “Sierra Club certified,” among others Reforestation Displacement Sources: NSEL, El Nuevo Diario www.laislafoundation.org | laislafoundation@gmail.com 22 Why is this a global issue? Nicaragua is #9 globally in sugar exports per capita Sources: USDA – Foreign Agriculture Service www.laislafoundation.org | laislafoundation@gmail.com 23 How does this relate to you? • You use these products • Sugar exports to the US/CAN • Ethanol purchased by BP in EU www.laislafoundation.org | laislafoundation@gmail.com 24 La Isla Foundation La Isla Foundation is addressing the epidemic of Chronic Kidney Disease among sugar cane workers in Central America. www.laislafoundation.org | laislafoundation@gmail.com 25 The Foundation’s goals • Help establish the cause of the CKD epidemic • Facilitate prevention and treatment • Create greater financial independence and sustainability for the community • Create a bridge between workers and consumers • Work on Policy Change www.laislafoundation.org | laislafoundation@gmail.com 26 Our projects • English/Computer classes • Sewing cooperative • Sanitation (Latrines) • Clean water • Studies and interventions • Community organization • Clinic and school repair www.laislafoundation.org | laislafoundation@gmail.com 27 What Can You Do? •Incorporate this issue into your thesis •Donate or organize a event •Take Spanish and dance classes with us •Volunteer w/ LIF or partners •Support a community project •Travel with us www.laislafoundation.org | laislafoundation@gmail.com 28 Be part of the solution Working with La Isla Foundation You can be part of the Solution that will end this cycle of death and loss. www.laislafoundation.org | laislafoundation@gmail.com 29 Any questions? www.laislafoundation.org | laislafoundation@gmail.com 30