Mental Health Facts - Children`s Law Center
Transcription
Mental Health Facts - Children`s Law Center
Mental Health Facts CHILDREN & TEENS Fact: 1 in 5 children ages 13-18 have, or will have a serious mental illness. 20% 11% 20% of youth ages 13-18 live with a mental health condition 11% of youth have a mood disorder 10% 8% 10% of youth have a behavior or conduct disorder 8% of youth have an anxiety disorder Suicide Impact 50% 10 yrs 50% of all lifetime cases of mental illness begin by age 14 and 75% by age 24. 2nd Suicide is the 2nd leading cause of death in youth ages 15 - 24. The average delay between onset of symptoms and intervention is 8-10 years. 50% Approximately 50% of students age 14 and older with a mental illness drop out of high school. 70% 70% of youth in state and local juvenile justice systems have a mental illness. 90% 90% of those who died by suicide had an underlying mental illness. Warning Signs ! Feeling very sad or withdrawn for more than 2 weeks (e.g., crying regularly, feeling fatigued, feeling unmotivated). ! Trying to harm or kill oneself or making plans to do so. ! Out-of-control, risk-taking behaviors that can cause harm to self or others. ! Sudden overwhelming fear for no reason, sometimes with a racing heart, physical discomfort or fast breathing. ! Not eating, throwing up or using laxatives to lose weight; significant weight loss or gain. ! Severe mood swings that cause problems in relationships. ! Repeated use of drugs or alcohol. ! Drastic changes in behavior, personality or sleeping habits (e.g., waking up early and acting agitated). ! Extreme difficulty in concentrating or staying still that can lead to failure in school. ! Intense worries or fears that get in the way of daily activities like hanging out with friends or going to classes. 4 Things Parents Can Do Talk with your pediatrician Get a referral to a mental health specialist Work with the school Connect with other families This document cites statistics provided by the National Institute of Mental Health. www.nimh.nih.gov This document cites statistics provided by the Centers for Disease Control and Prevention. www.cdc.gov Follow Us! facebook.com/NAMI twitter.com/NAMIcommunicate www.nami.org August 2013 No. 86 Psychotherapies for Children and Adolescents Psychotherapy is a form of psychiatric treatment that involves therapeutic conversations and interactions between a therapist and a child or family. It can help children and families understand and resolve problems, modify behavior, and make positive changes in their lives. There are several types of psychotherapy that involve different approaches, techniques and interventions. At times, a combination of different psychotherapy approaches may be helpful. In some cases a combination of medication with psychotherapy may be more effective. Different types of psychotherapy: (alphabetical order) Cognitive Behavior Therapy (CBT) helps improve a child's moods, anxiety and behavior by examining confused or distorted patterns of thinking. CBT therapists teach children that thoughts cause feelings and moods which can influence behavior. During CBT, a child learns to identify harmful thought patterns. The therapist then helps the child replace this thinking with thoughts that result in more appropriate feelings and behaviors. Research shows that CBT can be effective in treating a variety of conditions, including depression and anxiety. Specialized forms of CBT have also been developed to help children coping with post-traumatic stress disorder. Dialectical Behavior Therapy (DBT) can be used to treat older adolescents who have chronic suicidal feelings/thoughts, engage in intentionally self-harmful beaviors or have Borderline Personality Disorder. DBT emphasizes taking responsibility for one's problems and helps the person examine how they deal with conflict and intense negative emotions. This often involves a combination of group and individual sessions. Family Therapy focuses on helping the family function in more positive and constructive ways by exploring patterns of communication and providing support and education. Family therapy sessions can include the child or adolescent along with parents, siblings, and grandparents. Couples therapy is a specific type of family therapy that focuses on a couple's communication and interactions (e.g. parents having marital problems). Group Therapy is a form of psychotherapy where there are multiple patients led by one or more therapists. It uses the power of group dynamics and peer Psychotherapies for Children and Adolescents, “Facts for Families,” No. 86 (3/11) interactions to increase understanding of mental illness and/or improve social skills. There are many different types of group therapy (e.g. psychodynamic, social skills, substance abuse, multi-family, parent support, etc.). Interpersonal Therapy (IPT) is a brief treatment specifically developed and tested for depression, but also used to treat a variety of other clinical conditions. IPT therapists focus on how interpersonal events affect an individual's emotional state. Individual difficulties are framed in interpersonal terms, and then problematic relationships are addressed Play Therapy involves the use of toys, blocks, dolls, puppets, drawings and games to help the child recognize, identify, and verbalize feelings. The psychotherapist observes how the child uses play materials and identifies themes or patterns to understand the child's problems. Through a combination of talk and play the child has an opportunity to better understand and manage their conflicts, feelings, and behavior. Psychodynamic Psychotherapy emphasizes understanding the issues that motivate and influence a child's behavior, thoughts, and feelings. It can help identify a child's typical behavior patterns, defenses, and responses to inner conflicts and struggles. Psychoanalysis is a specialized, more intensive form of psychodynamic psychotherapy which usually involved several sessions per week. Psychodynamic psychotherapies are based on the assumption that a child's behavior and feelings will improve once the inner struggles are brought to light. Psychotherapy is not a quick fix or an easy answer. It is a complex and rich process that, over time, can reduce symptoms, provide insight, and improve a child or adolescent's functioning and quality of life. At times, a combination of different psychotherapy approaches may be helpful. In some cases a combination of medication with psychotherapy may be more effective. Child and adolescent psychiatrists are trained in different forms of psychotherapy and, if indicated, are able to combine these forms of treatment with medications to alleviate the child or adolescent's emotional and/or behavioral problems. Click here to find a Child and Adolescent Psychiatrist near you. For more information see Facts for Families: #25 Know Where to Seek Help for Your Child #52 Comprehensive Psychiatric Evaluation #53 What is Psychotherapy for Children and Adolescents #21 Psychiatric Medication for Children #00 Definition of a Child and Adolescent Psychiatrist If you find Facts for Families© helpful and would like to make good mental health a reality, consider donating to the Campaign for America’s Kids. Your support will help us continue to produce and distribute Facts for Families, as well as other vital mental health information, free of charge. Psychotherapies for Children and Adolescents, “Facts for Families,” No. 86 (3/11) You may also mail in your contribution. Please make checks payable to the AACAP and send to Campaign for America’s Kids, P.O. Box 96106, Washington, DC 20090. The American Academy of Child and Adolescent Psychiatry (AACAP) represents over 8,500 child and adolescent psychiatrists who are physicians with at least five years of additional training beyond medical school in general (adult) and child and adolescent psychiatry. Facts for Families© information sheets are developed, owned and distributed by AACAP. Hard copies of Facts sheets may be reproduced for personal or educational use without written permission, but cannot be included in material presented for sale or profit. All Facts can be viewed and printed from the AACAP website (www.aacap.org). Facts sheets may not be reproduced, duplicated or posted on any other website without written consent from AACAP. Organizations are permitted to create links to AACAP’s website and specific Facts sheets. For all questions please contact the AACAP Communications & Marketing Coordinator, ext. 154. If you need immediate assistance, please dial 911. Copyright © 2012 by the American Academy of Child and Adolescent Psychiatry. Treatment of Children with Mental Illness Frequently asked questions about the treatment of mental illness in children NATIONAL INSTITUTE OF MENTAL HEALTH U.S. Department of Health and Human Services National Institutes of Health Introduction R esearch shows that half of all lifetime cases of mental illness begin by age 14.1 Scientists are discovering that changes in the body leading to mental illness may start much earlier, before any symptoms appear. Through greater understanding of when and how fast specific areas of children’s brains develop, we are learning more about the early stages of a wide range of mental illnesses that appear later in life. Helping young children and their parents manage difficulties early in life may prevent the development of disorders. Once mental illness develops, it becomes a regular part of your child’s behavior and more difficult to treat. Even though we know how to treat (though not yet cure) many disorders, many children with mental illnesses are not getting treatment. Q. What should I do if I am concerned about mental, behavioral, or emotional symptoms in my child? A. Talk to your child’s doctor or health care provider. Ask questions and learn everything you can about the behavior or symptoms that worry you. If your child is in school ask the teacher if your child has been showing worrisome changes in behavior. Share this with your child’s doctor or health care pro vider. Keep in mind that every child is different. Even normal development, such as when children develop lan guage, motor, and social skills, varies from child to child. Ask if your child needs further evaluation by a specialist with experience in child behavioral problems. Specialists may include psy chiatrists, psychologists, social work ers, psychiatric nurses, and behavioral therapists. Educators may also help evaluate your child. If you take your child to a specialist, ask, “Do you have experience treating the problems I see in my child?” Don’t be afraid to interview more than one specialist to find the right fit. Continue to learn everything you can about the problem or diagnosis. The more you learn, the better you can work with your child’s doctor and make decisions that feel right for you, your child, and your family. 1 This fact sheet addresses common questions about diagnosis and treatment options for children with mental illnesses. Disorders affecting children may include anxiety disorders, attention deficit hyperactivity disorder (ADHD), autism spectrum disorders, bipolar disorder, depression, eating disorders, and schizophrenia. Q. How do I know if my child’s problems are serious? A. Not every problem is serious. In fact, many everyday stresses can cause changes in your child’s behavior. For example, the birth of a sibling may cause a child to temporarily act much younger than he or she is. It is impor tant to be able to tell the difference between typical behavior changes and those associated with more serious problems. Pay special attention to behaviors that include: Problems across a variety of settings, such as at school, at home, or with peers Changes in appetite or sleep Social withdrawal, or fearful behavior toward things your child normally is not afraid of Returning to behaviors more common in younger children, such as bedwetting, for a long time Signs of being upset, such as sadness or tearfulness Signs of self-destructive behavior, such as head-banging, or a tendency to get hurt often Repeated thoughts of death. Q. Can symptoms be caused by a death in the family, illness in a parent, family financial prob lems, divorce, or other events? A. Yes. Every member of a family is affected by tragedy or extreme stress, even the youngest child. It’s normal for stress to cause a child to be upset. Remember this if you see mental, emo tional, or behavioral symptoms in your child. If it takes more than one month for your child to get used to a situation, or if your child has severe reactions, talk to your child’s doctor. Check your child’s response to stress. Take note if he or she gets better with time or if professional care is needed. Stressful events are challenging, but they give you a chance to teach your child important ways to cope. Q. How are mental illnesses diagnosed in young children? A. Just like adults, children with mental illness are diagnosed after a doctor or mental health specialist carefully observes signs and symptoms. Some primary care physicians can diagnose your child themselves, but many will send you to a specialist who can diag nose and treat children. Before diagnosing a mental illness, the doctor or specialist tries to rule out other possible causes for your child’s behavior. The doctor will: Take a history of any important medical problems Take a history of the problem – how long you have seen the problem – as well as a history of your child’s development Take a family history of mental disorders Ask if the child has experienced physi cal or psychological traumas, such as a natural disaster, or situations that may cause stress, such as a death in the family Consider reports from parents and other caretakers or teachers. Very young children often cannot express their thoughts and feelings, so making a diagnosis can be challenging. The signs of a mental illness in a young child may be quite different from those in an older child or adult. As parents and caregivers know, chil dren are constantly changing and grow ing. Diagnosis and treatment must be viewed with these changes in mind. While some problems are short-lived and don’t need treatment, others are ongoing and may be very serious. In either case, more information will help you understand treatment choices and manage the disorder or problem most effectively. While diagnosing mental health prob lems in young children can be challeng ing, it is important. A diagnosis can be used to guide treatment and link your child’s care to research on children with similar problems. Q. Are there treatment options for children? A. Yes. Once a diagnosis is made, your child’s specialist will recommend a spe cific treatment. It is important to under stand the various treatment choices, which often include psychotherapy or medication. Talk about the options with a health care professional who has experience treating the illness observed in your child. Some treatment choices have been studied experimentally, and other treatments are a part of health care practice. In addition, not every community has every type of service or program. Q. What are psychotropic medications? A. Psychotropic medications are sub stances that affect brain chemicals related to mood and behavior. In recent years, research has been conducted to understand the benefits and risks of using psychotropics in children. Still, more needs to be learned about the effects of psychotropics, especially in children under six years of age. While researchers are trying to clarify how early treatment affects a growing body, families and doctors should weigh the benefits and risks of medication. Each child has individual needs, and each child needs to be monitored closely while taking medications. Q. Are there treatments other than medications? A. Yes. Psychosocial therapies can be very A. Some children get better with time. But effective alone and in combination with medications. Psychosocial therapies are also called “talk therapies” or “behavioral therapy,” and they help people with mental illness change behavior. Therapies that teach parents and children coping strategies can also be effective.2 2 Cognitive behavioral therapy (CBT) is a type of psychotherapy that can be used with children. It has been widely stud ied and is an effective treatment for a number of conditions, such as depres sion, obsessive-compulsive disorder, and social anxiety. A person in CBT learns to change distorted thinking pat terns and unhealthy behavior. Children can receive CBT with or without their parents, as well as in a group setting. Q. Will my child get better with time? other children need ongoing profes sional help. Talk to your child’s doctor or specialist about problems that are severe, continuous, and affect daily activities. Also, don’t delay seeking help. Treatment may produce better results if started early. CBT can be adapted to fit the needs of each child. It is especially useful when treating anxiety disorders.3 Additionally, therapies for ADHD are numerous and include behavioral par ent training and behavioral classroom management. Visit the NIMH Web site for more information about therapies for ADHD. Some children benefit from a combina tion of different psychosocial approaches. An example is behavioral parent man agement training in combination with CBT for the child. In other cases, a combination of medication and psycho social therapies may be most effective. Psychosocial therapies often take time, effort, and patience. However, some times children learn new skills that may have positive long-term benefits. More information about treatment choices can be found in the psycho therapies and medications sections of the NIMH Web site. Q. When is it a good idea to use psychotropic medications in young children? A. When the benefits of treatment out weigh the risks, psychotropic medica tions may be prescribed. Some children need medication to manage severe and difficult problems. Without treatment, these children would suffer serious or dangerous consequences. In addition, psychosocial treatments may not always be effective by themselves. In some instances, however, they can be quite effective when combined with medication. Ask your doctor questions about the risks of starting and continuing your child on these medications. Learn everything you can about the medica tions prescribed for your child. Learn about possible side effects, some of which may be harmful. Know what a particular treatment is supposed to do. For example, will it change a specific behavior? If you do not see these changes while your child is taking the medication, talk to his or her doctor. Also, discuss the risks of stopping your child’s medication with your doctor. Q. Does medication affect young children differently than older children or adults? Q. What medications are used for which kinds of childhood mental disorders? A. Yes. Young children handle medications A. Psychotropic medications include stim differently than older children and adults. The brains of young children change and develop rapidly. Studies have found that developing brains can be very sensitive to medications. There are also developmental differences in how children metabolize – how their bodies process – medications. There fore, doctors should carefully consider the dosage or how much medication to give each child. Much more research is needed to determine the effects and benefits of medications in children of all ages. But keep in mind that serious untreated mental disorders themselves can harm brain development. Also, it is important to avoid drug inter actions. If your child takes medicine for asthma or cold symptoms, talk to your doctor or pharmacist. Drug interactions could cause medications to not work as intended or lead to serious side effects. Q. How should medication be included in an overall treatment plan? A. Medication should be used with other treatments. It should not be the only treatment. Consider other services, such as family therapy, family support services, educational classes, and behavior management techniques. If your child’s doctor prescribes medica tion, he or she should evaluate your child regularly to make sure the medi cation is working. Children need treat ment plans tailored to their individual problems and needs. ulants, antidepressants, anti-anxiety medications, antipsychotics, and mood stabilizers. Dosages approved by the U.S. Food and Drug Administration (FDA) for use in children depend on body weight and age. NIMH’s medica tions booklet describes the types of psychotropic medications and includes a chart that lists the ages for which each medication is FDA-approved. See the FDA Web site for the latest informa tion on medication approvals, warn ings, and patient information guides at www.fda.gov. Q. What does it mean if a medication is specifically approved for use in children? A. When the FDA approves a medication, it means the drug manufacturer pro vided the agency with information showing the medication is safe and effective in a particular group of people. Based on this information, the drug’s label lists proper dosage, potential side effects, and approved age. Medications approved for children follow these guidelines. Many psychotropic medications have not been studied in children, which means they have not been approved by the FDA for use in children. But doctors may prescribe medications as they feel appropriate, even if those uses are not included on the label. This is called “off-label” use. Research shows that off-label use of some medications works well in some children. Other medications need more study in chil dren. In particular, the use of most psy chotropic medications has not been adequately studied in preschoolers. More studies in children are needed before we can fully know the appropri ate dosages, how a medication works in children, and what effects a medica tion might have on learning and development. 3 Q. Why haven’t many medications been tested in children? A. In the past, medications were seldom studied in children because mental ill ness was not recognized in childhood. Also, there were ethical concerns about involving children in research. This led to a lack of knowledge about the best treatments for children. In clinical set tings today, children with mental or behavioral disorders are being pre scribed medications at increasingly early ages. The FDA has been urging that medications be appropriately stud ied in children, and Congress passed legislation in 1997 offering incentives to drug manufacturers to carry out such testing. These activities have helped increase research on the effects of medications in children. There still are ethical concerns about testing medications in children. How ever, strict rules protect participants in research studies. Each study must go through many types of review before, and after it begins. Q. How do I work with my child’s school? A. If your child is having problems in school, or if a teacher raises concerns, you can work with the school to find a solution. You may ask the school to conduct an evaluation to determine whether your child qualifies for special education services. However, not all children diagnosed with a mental illness qualify for these services. Start by speaking with your child’s teacher, school counselor, school nurse, or the school’s parent organiza tion. These professionals can help you get an evaluation started. Also, each state has a Parent Training and Infor mation Center and a Protection and Advocacy Agency that can help you request the evaluation. The evaluation must be conducted by a team of pro fessionals who assess all areas related to the suspected disability using a variety of tools and measures. Q. What resources are available from the school? A. Once your child has been evaluated, there are several options for him or her, depending on the specific needs. If spe cial education services are needed, and if your child is eligible under the Indi viduals with Disabilities Education Act (IDEA), the school district must develop an “individualized education program” specifically for your child within 30 days. If your child is not eligible for special education services, he or she is still entitled to “free appropriate public edu cation,” available to all public school children with disabilities under Section 504 of the Rehabilitation Act of 1973. Your child is entitled to this regardless of the nature or severity of his or her disability. The U.S. Department of Education’s Office for Civil Rights enforces Section 504 in programs and activities that receive Federal education funds. For more information about Section 504, please see http://www.ed.gov/about/ offices/list/ocr/504faq.html. More information about programs for children with disabilities is available at http://www.ed.gov/parents/needs/ speced/edpicks.jhtml?src=ln. Q. What special challenges can school present? A. Each school year brings a new teacher and new schoolwork. This change can be difficult for some children. Inform the teachers that your child has a men tal illness when he or she starts school or moves to a new class. Additional support will help your child adjust to the change. Q. What else can I do to help my child? A. Children with mental illness need guid ance and understanding from their par ents and teachers. This support can help your child achieve his or her full potential and succeed in school. Before 4 a child is diagnosed, frustration, blame, and anger may have built up within a family. Parents and children may need special help to undo these unhealthy interaction patterns. Mental health pro fessionals can counsel the child and family to help everyone develop new skills, attitudes, and ways of relating to each other. Parents can also help by taking part in parenting skills training. This helps parents learn how to handle difficult situations and behaviors. Training encourages parents to share a pleasant or relaxing activity with their child, to notice and point out what their child does well, and to praise their child’s strengths and abilities. Parents may also learn to arrange family situations in more positive ways. Also, parents may benefit from learning stressmanagement techniques to help them deal with frustration and respond calmly to their child’s behavior. Sometimes, the whole family may need counseling. Therapists can help family members find better ways to handle disruptive behaviors and encourage behavior changes. Finally, support groups help parents and families con nect with others who have similar prob lems and concerns. Groups often meet regularly to share frustrations and suc cesses, to exchange information about recommended specialists and strate gies, and to talk with experts. Q. How can families of children with mental illness get support? A. Like other serious illnesses, taking care of a child with mental illness is hard on the parents, family, and other caregiv ers. Caregivers often must tend to the medical needs of their loved ones, and also deal with how it affects their own health. The stress that caregivers are under may lead to missed work or lost free time. It can strain relationships with people who may not understand the situation and lead to physical and mental exhaustion. Stress from caregiving can make it hard to cope with your child’s symptoms. One study shows that if a caregiver is under enormous stress, his or her loved one has more difficulty sticking to the treatment plan.4 It is important to look after your own physical and mental health. You may also find it helpful to join a local support group. Q. Where can I go for help? A. If you are unsure where to go for help, ask your family doctor. Others who can help are listed below. Mental health specialists, such as psy chiatrists, psychologists, social work ers, or mental health counselors Health maintenance organizations Community mental health centers Hospital psychiatry departments and outpatient clinics Mental health programs at universities or medical schools State hospital outpatient clinics Family services, social agencies, or clergy Peer support groups Private clinics and facilities Employee assistance programs Local medical and/or psychiatric societies. You can also check the phone book under “mental health,” “health,” “social services,” “hotlines,” or “physicians” for phone numbers and addresses. An emergency room doctor can also pro vide temporary help and can tell you where and how to get further help. More information on mental health is at the NIMH Web site at www.nimh.nih.gov. For the latest information on medica tions, see the U.S. Food and Drug Administration Web site at www.fda.gov. Citations 1. Kessler RC, Chiu WT, Demler O, Merikangas KR, Walters EE. Prevalence, severity, and comorbidity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005 Jun;62(6):617–27. For more information about children and mental health 2. Silverman WK, Hinshaw SP. The Second Special Issue on Evidence-Based Psychosocial Treatments for Children and Adolescents: A Ten-Year Update. J Clin Child Adolesc Psychol. 2008 Jan–Mar;37(1). En Español, http://medlineplus.gov/spanish 3. Silverman WK, Hinshaw SP. The Second Special Issue on Evidence-Based Psychosocial Treatments for Children and Adolescents: A Ten-Year Update. J Clin Child Adolesc Psychol. 2008 Jan–Mar;37(1). 4. Perlick DA, Rosenheck RA, Clarkin JF, Maciejewski PK, Sirey J, Struening E, Link BG. Impact of family burden and affective response on clinical outcome among patients with bipolar disorder. Psychiatr Serv. 2004 Sep;55(9):1029–35. Reprints NIMH publications are in the public domain and may be repro duced or copied without the permission from the National Institute of Mental Health. NIMH encourages you to reproduce them and use them in your efforts to improve public health. Citation of the National Institute of Mental Health as a source is appreciated. However, using government materials inappropriately can raise legal or ethical concerns, so we ask you to use these guidelines: NIMH does not endorse or recommend any commercial prod ucts, processes, or services, and publications may not be used for advertising or endorsement purposes. NIMH does not provide specific medical advice or treatment recommendations or referrals; these materials may not be used in a manner that has the appearance of such information. Visit the National Library of Medicine’s MedlinePlus Web site at http://medlineplus.gov For information on clinical trials: NIMH supported clinical trials http://www.nimh.nih.gov/health/trials/index.shtml National Library of Medicine Clinical Trials Database http://www.clinicaltrials.gov Clinical trials at NIMH in Bethesda, MD http://patientinfo.nimh.nih.gov Information from NIMH is available in multiple formats. You can browse online, download documents in PDF, and order materials through the mail. Check the NIMH Web site at http://www.nimh.nih.gov for the latest information on this topic and to order publications. If you do not have Internet access please contact the NIMH Information Resource Center at the numbers listed below. National Institute of Mental Health Science Writing, Press & Dissemination Branch 6001 Executive Boulevard Room 8184, MSC 9663 Bethesda, MD 20892-9663 Phone: 301-443-4513 or 1-866-615-NIMH (6464) toll-free TTY: 301-443-8431 or 1-866-415-8051 toll-free FAX: 301-443-4279 E-mail: nimhinfo@nih.gov Web site: http://www.nimh.nih.gov NIMH requests that non-Federal organizations not alter publications in a way that will jeopardize the integrity and “brand” when using publications. Addition of non-Federal Government logos and Web site links may not have the appearance of NIMH endorsement of any specific commercial products or services or medical treat ments or services. If you have questions regarding these guidelines and use of NIMH publications, please contact the NIMH Information Resource Center at 1-866-615-6464 or e-mail nimhinfo@nih.gov. U.S. Department of Health and Human Services National Institutes of Health U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health National Institute of Mental Health NIH Publication No. 09-4702 Revised 2009 The Child Advocate’s Guide to Psychiatric Diagnoses & Psychotropic Medications Ca rtoon from Google Images, courtesy of http://contemplative-activist.blogspot.com/ Created for the Children’s Law Center by Jessica Yeatermeyer, MD, MSc Purpose and Disclaimer The overarching aim of this guide is to better equip advocates of children to nurture the mental health needs of their clients. The guide is organized in chapters by mental health condition. Each chapter offers a brief description of the condition (as laid out in the current Diagnostic and Statistical Manual of Mental Disorders, DSM-5) and the most common treatments for the condition. Each chapter contains a section on commonly asked questions and important things to know about the conditions and treatments. Each chapter concludes with a section entitled “Reputable Resources Regarding,” which provides URL links to websites that can be trusted as reliable sources for information. At the end of the guide are two appendices, one which lists each medication (alphabetically by brand name and by generic name) and directs the reader to the chapter in which information can be found about that medication, and one which lists common medical abbreviations that an advocate might encounter when reviewing medical records or files. Throughout the guide, important points are highlighted with various colors so that the guide may be scanned quickly for take-home points, but all highlights are transparent enough that if the guide is printed in black-and-white ink, the highlighted text will still be readable. In order to keep limit the length of the guide, only the most commonly encountered mental health conditions and medications have been included. Conditions not covered include: conduct disorder, oppositional defiant disorder, learning disorders, reactive attachment disorder, gender dysphoria, and eating disorders. These conditions, while important and prevalent in the communities with which child advocates work, are often treated with non-medication interventions and may be covered in other educational series available to child advocates. This guide primarily aims to increase knowledge and awareness about medication interventions (through pertinent psychotherapies are mentioned). Additionally, pediatric schizophrenia is not covered for the sake of space, and because this condition is more rare than those that have been included. This guide is intended to serve as a reference for professionals working in the field of child advocacy. It is meant to provide a general overview of common mental health conditions and treatments, and to help advocates form questions to ask mental health providers on behalf of their clients. It is not intended to offer medical advice or to be used in place of seeking professional medical care. All questions pertinent to a particular client or situation should be directed to the medical provider who is caring for the patient. Additionally, any personal opinion contained within this guide represents that of the author, and not of the general psychiatry community or of Children’s National Medical Center in particular. With gratitude for all who tend to children, Jessica Yeatermeyer, MD, MSc Child & Adolescent Psychiatry Fellow Children’s National Medical Center Washington, DC 2 Table of Contents Who Is Treating my Client? 4 The FDA and Psychotropic Meds for Kids 5 Chapter I: Attention Deficit Hyperactivity Disorder (ADHD) 7 Chapter II: Anxiety and Depression 11 Chapter III: Autism Spectrum Disorder (ASD) 16 Chapter IV: Mood Disorder NOS, Bipolar Disorder, and Disruptive Mood Dysregulation Disorder (DMDD) 19 Chapter V: Post-Traumatic Stress Disorder 25 Appendix I: Medications Index Alphabetical by Brand Drug Name 27 Appendix I: Medications Index Alphabetical by Generic Drug Name 28 Appendix II: Common Medical Abbreviations 29 3 Who Is Treating My Client? Psychiatrists (MDs or DOs) Hierarchy Attending Child & Adolescent Psychiatrist (academic setting, e.g., Children’s National Medical Center, Georgetown) Child & Adolescent Psychiatry Fellow Academic centers only Completing 2 years subspecialty training Already completed general psychiatry residency Non-Academic Child & Adolescent Psychiatrist Private or community practice or hospital (e.g., CSAs, PIW, solo practice) General Adult Psychiatrist Private, community or academic practice License allows Dr. to see kids, but may have only 2 months psychiatric experience with kids in residency General Adult Psychiatry Resident Academic centers only Completing 3-4 years training post-med school, usually includes 2-4 months psychiatry with kids Other Prescribers Nurse Practitioner (NP/APRN) Often practices independently of physicians. Experience with children (and with psychiatry in general) varies. Physician Assistant (PA) Generally practicing under supervision of a physician. Experience with children & psychiatry varies. Pediatrician (MD, DO) Can prescribe any med, but often uncomfortable with complicated psych meds. Usually has had no specific psychiatric training after med school Providers of Psychotherapy Psychologist (PhD, PsyD) Psychiatrist (MD, DO) Social Worker (LCSW, MSW) Counselor (LPC, LMHC) Family Therapist (DMFT, LMFT) In general, it is best for children and adolescents to be seen by prescribers who have specialized psychiatric training in the pediatric age group (orange or green boxes above), especially for an initial evaluation. It is important to note, however, that many child & adolescent psychiatric practices (including Children’s National Medical Center) cannot treat children after they turn 18, even though other pediatric departments will often see patients through age 24 years. Thus, it is important to anticipate the child’s 18th birthday in order to ensure smooth transitioning to an adult practitioner (blue box). Additionally, because there is such a shortage of child-trained psychiatrists, it is helpful for children with uncomplicated conditions (such as well-controlled ADHD or simple depression improving on a stable dose of medication) to be managed by their pediatricians, who can then consult with child a psychiatrist as needed. 4 The FDA and Psychotropic Meds for Kids Advocates often raise concerns about whether or not medications prescribed to their clients are approved by the FDA for use in children. In truth, this is probably not the right question to ask. The FDA “approves” medications for use in specific populations with specific conditions (e.g., adults over 65 with chest pain; pregnant women with diabetes; children with cystic fibrosis; etc.). When a drug company submits a new medication to the FDA for approval, it must provide data from research studies demonstrating that the medication is safe and effective for use. Drug companies can’t study all possible uses in all age groups—the trials would be prohibitively large and expensive and drugs would rarely be approved for anything or anyone. Thus, assuming that the data is compelling enough, the FDA will approve the medication for only the certain conditions and populations studied in the drug trials that have been submitted. This doesn’t mean, however, that doctors can’t prescribe the medication to—or that it wouldn’t be beneficial for—other “unapproved” patient groups. When a medication is prescribed to a type of patient or for a reason that is not specified in the original FDA approval, it is being used in an “off-label” manner. This term is often misconstrued to mean “inappropriate.” In reality, when a doctor prescribes off-label, he or she is making the decision to do so based on clinical knowledge and experience, and on data from other ongoing trials (not necessarily being conducted by the drug company itself) that have been published in peer-reviewed (scientifically reputable) medical journals. This sort of practice is referred to as evidence-based medicine (EBM). There are many off-label uses that most doctors and researchers agree are safe and beneficial, based on study data; some of these uses, however, never become approved by the FDA. One reason for this is that once a medication has been approved for one purpose, there is little incentive for the manufacturing pharmaceutical company to put in the time and expense to get it approved again. To illustrate, several medications used to treat depression in adults are not approved by the FDA to treat depression in children, even though they may be approved to treat other conditions in that age group (Zoloft, for example, is approved for obsessive compulsive disorder in children but not depression). These meds are regularly prescribed off-label for depression with positive effect. Another (perhaps surprising) example is ADHD. Because this condition is traditionally identified and treated in childhood, many of the medications used for ADHD have not been FDA-approved for use in adults. Because ADHD affects some people into adulthood, providers often prescribe these meds off-label. Fortunately for prescribers (and for patients), there are national organizations of medical specialists who come together to decide what is the best evidence-based practice in a given field. The American Academy of Child and Adolescent Psychiatry (AACAP) releases practice parameters for providers to reference when they are making clinical decisions. These are only guidelines; each individual provider must offer treatment according to his/her own judgment regarding the unique patient sitting before him/her. A better question, then, for parents and Is the med being prescribed based on scientific evidence and the consensus of the specialty? advocates of children is this: 5 Reputable Resources Regarding the FDA and Prescribing National Institute of Mental Health section on mental health medications: http://www.nimh.nih.gov/health/publications/mental-health-medications/index.shtml FDA section on drug research in children: http://www.fda.gov/Drugs/ResourcesForYou/Consumers/ucm143565.htm National Institutes of Health Eunice Kennedy Shriver National Institute of Child Health and Human Development section on the Best Pharmaceuticals for Children Act (BPCA): http://bpca.nichd.nih.gov/about/Pages/Index.aspx American Academy of Child & Adolescent Psychiatry section on Practice Parameters: http://www.aacap.org/AACAP/Resources_for_Primary_Care/Practice_Parameters_and_Resource_Cent ers/Practice_Parameters1.aspx 6 Chapter I: Attention Deficit Hyperactivity Disorder (ADHD) Three types: Predominantly inattentive type Predominantly hyperactive/impulsive type Combined type (inattentive and hyperactive/impulsive) – most common Common symptoms: Trouble staying focused, difficulty paying attention to details, easily distracted Fidgety, wanders classroom, calls out in class, talks constantly, intrusive Poorly organized, forgets homework, loses things easily Important criteria for making the diagnosis: Symptoms must appear before age 12 years & last at least 6 months Symptoms must occur in at least two settings (home, school, sports, church, etc.) Symptoms must cause distress/impairment - poor performance in school; negatively affected social relationships; kicked off sports teams; problems at work Treatment: Large study conducted by the National Institute of Mental Health (NIMH), the Multimodal Treatment Study of Children with ADHD (the MTA), found that medication is more effective than behavioral therapy alone for the treatment of ADHD. Combining medication with behavioral treatment helps parents, children, and teachers modify problematic behaviors. In the MTA study, some children receiving behavioral therapies were able to take lower doses of medication with good outcomes. There are two major categories of medications for ADHD: Stimulants & Non-Stimulants Stimulant Medications: Generally the first-line choice for treatment, very effective Methylphenidate Derivatives: o Short-acting (immediate release): Ritalin, Focalin, Methylin (chewable and solution forms). These meds are sometimes dosed more than once daily. o Long-acting (extended release): Ritalin LA, Concerta, Focalin XR, Metadate CD, Metadate ER, Daytrana (patch), Quilivant (liquid). Meds usually given once daily. Amphetamine Derivatives: o Short-acting (immediate release): Adderall, ProCentra (liquid). Meds are sometimes dosed more than once daily. o Long-acting (extended release): Adderall XR, Vyvanse, Dexedrine Spansule. Meds are usually dosed once daily. Non-Stimulant Medications: Generally second-line, if stimulants are ineffective or contraindicated Atomoxetine (Strattera): Takes longer to see effect (2-4 weeks), lower efficacy than stimulants. Positive: not a controlled substance—low abuse potential/little street value. Guanfacine: Short-acting (Tenex) and long-acting (Intuniv) forms. Sometimes given in combination with stimulants. Not controlled, low abuse potential. Clonidine: Short-acting and long-acting (Kapvay) forms. Sometimes given in combination with stimulants. Not controlled, low abuse potential. Bupropion (Wellbutrin): Antidepressant, takes weeks for effect. 7 Common Questions & Important Things to Know About ADHD What are possible side effects of medications for ADHD? o Stimulants: More common: decreased appetite, trouble falling asleep, headache, nausea More rare: irritability, tics, hallucinations, heart racing, dullness/”Zombie”-ism o Atomoxetine (Strattera): Nausea, stomach pain, mood swings. Carries Black Box Warning for suicidal thoughts (see section on Black Box Warning for details) o Guanfacine & Clonidine: Most important: low blood pressure, dizziness, fainting Sedation, daytime sleepiness What if my client suddenly stops his medication? The prescriber should always be consulted before stopping medication, as some medications need to be slowly tapered down to prevent adverse effects. If your client misses his medication, especially for multiple days, it is important to contact the provider. In general, for ADHD meds: Stimulants: Usually no/mild adverse effects from sudden stoppage. May get headache, irritability, or fatigue. Some parents don’t give stimulants over weekends & holidays to “give the child a break.” Most doctors advise against this practice; if the medication is needed for daily function, then it should be given daily. Atomoxetine (Strattera): Usually no serious withdrawal upon sudden stoppage, but depends on dose and duration of treatment. May have dizziness, headache, anxiety. Guanfacine & Clonidine: DANGEROUS TO STOP SUDDENLY! May have serious and rapid elevations in blood pressure. Less serious but bothersome: agitation, tremor, anxiety . Do children become addicted to stimulants? Does taking stimulants lead to other illicit drug use? According to the National Institute on Drug Abuse (NIDA), research suggests that people diagnosed with ADHD have a higher risk of abusing drugs/alcohol than people without ADHD. Retrospective studies of adult substance users indicate that a high percentage of users had ADHD that was undiagnosed & untreated in childhood. In fact, NIDA found that children who were medicated for ADHD were less likely to become substance abusers than un-medicated children with ADHD. Additionally, treatment with medication delays the age of onset of substance use. Though it is uncommon for children with ADHD to abuse their own meds, they are at risk for sharing or selling their meds, or for parents to divert them. Also of note, teenage drivers with ADHD are more likely to have traffic accidents, more likely to have traffic injuries, and more likely to be at fault in traffic issues than teens without ADHD. Studies suggest that stimulants improve performance and safety on the road. References at end of chapter. Why does my client have to see the doctor every month for a prescription? Stimulants are classified as Schedule II Controlled Substances by the DEA. This means that doctors can only write prescriptions for a one-month supply and cannot write for refills. Additionally, faxed and phoned-in prescriptions are not allowed. 8 What should schools be doing for my clients who have ADHD? The MTA study demonstrated that medications are superior to behavioral intervention alone in treating ADHD, but concluded that medication plus behavioral intervention is ideal. Children with ADHD should be given support in school to help with organization skills, behavior modification, social interaction, and academic performance. Most children be nefit from having a 504 plan, if not a full individualized education plan (IEP), to ensure that they receive appropriate accommodations at school. Doctors should check in with teachers and school counselors, whether by telephone or through scales and written feedback, to provide a well-rounded picture of how the child is doing (i.e., prescribing and increasing medication without understanding how the child is doing in school, where he spends most of his waking hours, is not best practice). Reciprocally, schools should follow recommendations of providers when diagnoses are made or special accommodations are needed (e.g., a child needs to take his medication at school or needs to be allowed an afternoon snack because of decreased lunchtime appetite due to medi cation). What about special diets to treat ADHD? The best advice is for families to consult with their doctor about diet and herbal/alternative treatments for ADHD. In general, most dietary treatments lack supporting evidence for effect, and some can be dangerous if implemented incorrectly. Like every child, kids with ADHD should eat a balanced diet and engage in regular exercise. Why does it seem like every child is diagnosed with ADHD? ADHD and the medicating of children is a hot topic and parents and child advocates often wonder how it is possible that “so many kids” have ADHD. The DSM-5 (Diagnostic and Statistical Manual of Mental Disorders, updated in 2013) indicates that ADHD occurs in ~5% of children—one child in a classroom of twenty. The CDC notes that community studies yield higher rates than this, and that rates vary significantly by state. The NIMH indicates that ADHD affects ~9% of children between the ages of 13 and 18 years, and that boys are 4 times at risk compared to girls. (Of note, girls are more likely to have the inattentive type, and are sometimes missed until they are much older because they are not acting out with behavior problems.) Studies show that the number of children being diagnosed with ADHD is increasing, but it is as yet unclear why—are we diagnosing it better and picking up kids who in the past have been missed? Are we over-diagnosing? Is there a true increase in prevalence? It’s hard to say. An important take-home point is that not every child who is inattentive or hyperactive has ADHD—many other conditions can cause these symptoms (anxiety, depression, stressful circumstances, etc.). Providers must do their best to take an all-encompassing picture of the child (through child interview, parent interview, family history, rating scales, teacher feedback, etc.) to come to a diagnosis. Similarly, it is important for families and child advocates to understand that sometimes providers get it wrong, and sometimes diagnoses change over time (in fact, many people “grow out” of ADHD symptoms as they age, especially hyperactive symptoms). In the absence of a crystal ball, providers and families must work together to come to the best diagnosis and treatment plan possible for a child, to ensure that vital time is not lost for academic progress, participation in formative activities, and the development of peer relationships and social skills. Undertreating is problematic, too, and can lead to long-lasting drops in self-esteem and happiness. 9 Reputable Resources Regarding ADHD Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD). Includes reference regarding ADHD and teenage driving: http://www.chadd.org/ National Institute of Mental Health section on ADHD: http://www.nimh.nih.gov/health/topics/attention-deficit-hyperactivity-disorderadhd/index.shtml#part4 Center for Disease Control and Prevention section on ADHD: http://www.cdc.gov/ncbddd/adhd/index.html National Institute on Drug Abuse article on substance abuse in ADHD: http://archives.drugabuse.gov/NIDA_Notes/NNVol14N4/ADHD.html American Academy of Child & Adolescent Psychiatry: Parents Medication Guide for ADHD http://parentsmedguide.org/parentguide_english.pdf 10 Chapter II: Anxiety and Depression Anxiety Disorders: There are many different kinds of anxiety disorders, but in general, they share a few common features: patients suffer from excessive fear or worry about imminent threats, future threats, or perceived threats; patients often engage in avoidance behaviors (refusing to go to school, for example); patients often hold negative cognitions about themselves that can seem like paranoia (e.g., “everyone is always talking about me”); and patients are debilitated by their worry. In children, it is important to distinguish anxiety disorders from developmentally normative fear or anxiety and transient fears or anxieties (often related to stressful situations). Anxiety disorders are persistent. Many anxiety disorders of adulthood first develop in childhood and early intervention can be instrumental. Types of anxiety disorders: Separation Anxiety Disorder; Generalized Anxiety Disorder; Selective Mutism; Specific Phobia; Social Anxiety Disorder; Panic Disorder; Agoraphobia Obsessive Compulsive Disorder (OCD) used to be grouped with anxiety. In the DSM-5 it has its own section, “Obsessive-Compulsive and Related Disorders,” which includes other conditions like Body Dysmorphic Disorder, Hoarding, and Trichoti llomania (Hairpulling). Treatment for OCD is similar to anxiety, so it is included here. Depressive Disorders: Many people are familiar with the classic condition called Major Depressive Disorder (MDD), which can be a single episode of clear changes in mood, cognition, sleep, appetite, energy and feelings of self-worth, or can be a recurrence of episodes separated by remissions of feeling good or “normal.” Children and adolescents can be deeply affected by their own depression or that of their caretakers. Identifying and treating depression in children and teens is crucial because depression can lead to checking out from school work and afterschool activities, turning to substances to alleviate low mood, and feeling so down as to want to engage in self-harming behaviors or even commit suicide. Types of depressive disorders: Major Depressive Disorder (MDD); Persistent Depressive Disorder (Dysthymia); Premenstrual Dysphoric Disorder; Substance-Induced Depression New in the DSM-5: Disruptive Mood Dysregulation Disorder (DMDD). This will be discussed in its own chapter later in this guide. Depression accompanies Bipolar Disorder (also discussed later in this guide), and in fact people with bipolar disorder generally spend more time feeling depressed than manic. It is important to screen for accompanying mania when diagnosing depression. Symptoms and Presentation: In kids, anxiety and depression often look different than they do in adults. Irritability and anger can be seen more often than sad mood. Anhedonia is especially common in teens (lack of interest/ability to find pleasure in activities that used to be pleasurable—quits clubs, sports teams, sits in room all day Academic decline is very common – sudden problems completing assignments in 10th grade is likely not new-onset ADHD at 15…should be concerned about depression! 11 Symptoms and Presentation, continued: Somatic symptoms or complaints are very common—especially stomach aches and headaches without a physical explanation. Missing school for physical symptoms is a red flag for anxiety or depression Bullying is a huge culprit as a precipitating and/or perpetuating factor, and the online nature of children’s social lives makes it easy to anonymously bully in a public venue Treatment: In general, severe depression is treated with a two-pronged attack: medication plus psychotherapy. The Treatment of Adolescents with Depression Study (termed TADS and published in JAMA in 2004- see resources page) found that teens improved more quickly and with better lasting effect when they were given a medication and participated in cognitive behavioral therapy. It’s important to note that teens on medication for depression will likely not be on medication forever; it is normal practice to pull children off medication once they have had a substantial period of remission from symptoms. Additionally, most forms of anxiety are treated with the same first-line medications as depression, though the doses needed to adequately treat the varying conditions may differ. First-line Medications: Selective serotonin reuptake inhibitors (SSRIs) Fluoxetine (Prozac), Sertraline (Zoloft), Citalopram (Celexa), Escitalopram (Lexapro) These medications take 4-6 weeks to take effect, so a “true trial” requires sticking with the medication before declaring it ineffective. These medications need to be taken every day, and not an as-needed basis If a true trial of one medication is ineffective (or if side effects necessity early discontinuation), the general practice is to try another medication in this class. If that fails, generally providers will try a third medication in this class Second-line Medications (for depression) : - Switch to: Venlafaxine (Effexor), Duloxetine (Cymbalta), Bupropion (Wellbutrin) - Give SSRI plus adjuvant med: low-dose lithium; aripiprazole (Abilify); T3 (synthetic thyroid hormone) Second-line or Adjuvant Medications (for anxiety): - Benzodiazepines: usually added to antidepressants, rarely given alone Long-acting: Clonazepam (Klonopin) Short-acting “rescue”: Lorazepam (Ativan), often used in inpatient setting for severe agitation or panic attack Very short-acting: Alprazolam (Xanax), ALMOST NEVER USED IN KIDS/TEENS!! Can be very habit-forming & has street value - Other forms: usually added to antidepressants rather than given alone Gabapentin (Neurontin), Buspirone (Buspar), Clonidine, Propranolol (beta-blocker); Fluvoxamine (Luvox) is an SSRI used for OCD, given alone Psychotherapy: Very helpful and important for almost anyone with anxiety/depression - Cognitive Behavioral Therapy (CBT) with an individual therapist weekly - Family therapy, especially when social/economic stressors are a significant problem 12 Common Questions & Important Things to Know About Anxiety & Depression What are possible side effects of Selective Serotonin Reuptake Inhibitors (SSRIs)? In general, SSRIs are well tolerated by most people. While it can take up to 6 weeks to see positive effects on mood, adverse effects (side effects) usually appear soon after initiating the medication and many of them resolve after the first week. Patients may experience upset stomach, nausea, diarrhea, headache, sleep changes, weight gain, night sweats, decreased libido, decreased ability to have or sustain erection. For teenagers especially, the sexual side effects may cause them to stop taking the medication without telling their parents why. If side effects occur, it is very important to talk with the provider who prescribed the medication. What is the deal with the Black Box Warning about suicidal thoughts? In 2004 the FDA reviewed the available literature and issued a public warning about increased suicidal thinking in children and adolescents taking SSRIs to treat depression. In 2006 the FDA expanded the black box warning to include persons up to age 25. As summarized on the NIMH website: “In the FDA review, no completed suicides occurred among nearly 2,200 children treated with SSRI medications. However, about 4 percent of those taking SSRI medications experienced suicidal thinking or behavior, including actual suicide attempts—twice the rate of those taking placebo, or sugar pills.” There are many theories about why there was an apparent increase in reported suicidal thinking, and it is best for families who have questions about the black box warning to talk about this with their providers. The NIMH website also notes that there was a subsequent comprehensive review of pediatric trials, published in JAMA in 2007 (see resources page), which found that the benefits of antidepressant medications outweigh the risk. It should be remembered that depression itself seriously increases the risk of suicidal thoughts and that untreated depression seriously increases the risk of suicide attempts. The take-home point for all of this for providers has been that children and teens should be closely monitored for suicidal thinking upon initiating antidepressant treatment. Is it dangerous to take too much of an SSRI? YES! Overdosing on SSRIs can be very dangerous. Additionally, taking an SSRI with other medications that cause increases in serotonin levels can be very dangerous. Other medications that increase serotonin levels include: antidepressants in other classes [TCAs (amitriptyline), SNRIs like venlafaxine (Effexor) or duloxetine (Cymbalta), MAOIs ]; some anti-migraine medications, like triptans (e.g., Imitrex, Imigran, Maxalt); and herbal medications like St. John’s Wart. In general (as in most cases), be sure that your client talks with the provider before adding new medications, and be sure that all providers know about all medications being taken. In the event of overdose, call the provider right away and/or go to the ED. Build up of too much serotonin in the body can lead to Serotonin Syndrome, which is marked by anxiety, sweating, significantly increased heart rate, high blood pressure, overactive reflexes, and hallucinations. This is an emergency and should be treated in an ED/hospital setting. 13 What if my client suddenly stops taking his SSRI? The prescriber should always be consulted before stopping medication, as some medicatio ns need to be slowly tapered down to prevent adverse effects. If your client misses his medication, especially for multiple days, it is important to contact the provider. In general, for SSRIs, there may be a discontinuation or withdrawal syndrome, marked by a “flu-like reaction” (headache, nausea, vomiting, dizziness, blurred vision, dizziness). Usually this is not serious or life-threatening. In general, the higher the dose at the time of the sudden stop, the greater the chance of experiencing a withdrawal reaction. Additionally, shortacting (and short-lived) medications pose a greater risk for withdrawal—fluoxetine (Prozac) has a long half-life and generally “self-tapers” upon cessation, making withdrawal less likely but requiring much more time for the medication to fully leave the system; paroxetine (Paxil), on the other hand, has a very short half-life and may be more likely to produce withdrawal symptoms if it is stopped abruptly. Withdrawal symptoms are treated with supportive care (i.e., no specif ic medication needed, as with alcohol withdrawal). Always consult the provider before stopping medications, or after it is discovered that your client has stopped his medication. Is there any special monitoring that is needed for people who are taking SSRIs? SSRIs do not require monitoring of blood levels or of specific physical exam findings. Given the black box warning, however, when starting children or teens on SSRIs, there should be frequent contact with the provider to assess for safety. 14 Reputable Resources Regarding Anxiety & Depression National Institute on Mental Health section on depression in children & adolescents: http://www.nimh.nih.gov/health/topics/depression/depression-in-children-and-adolescents.shtml National Institute on Mental Health section on anxiety in children & adolescents: http://www.nimh.nih.gov/health/publications/anxiety-disorders-in-children-andadolescents/index.shtml Treatment for Adolescents with Depression Study (TADS). Available for free: http://jama.jamanetwork.com/article.aspx?articleid=199274 Article in the Journal of American Medical Association (JAMA, 2007) regarding suicide risk and antidepressants, as mentioned in the text of this chapter. Available for free: http://jama.jamanetwork.com/article.aspx?articleid=206656 15 Chapter III: Autism Spectrum Disorder (ASD) Features: Persistent deficits in social communication & social interaction across multiple contexts o Poor back-and-forth conversation, reduced sharing of interests, difficulty with nonverbal cues, trouble understanding relationships, poor eye contact o Must occur in more than just one setting (school, home, community, etc.) Restricted, repetitive patterns of behavior or interests o Stereotyped movements, lining up toys, echolalia (repeating what is heard), insistence on sameness, fixed interests abnormal in intensity (e.g., cannot stop talking about trains and memorizes train routes and schedules), hypo- or hyperreactivity to sensory input Symptoms must be present in early development Symptoms must cause significant impairment Can have autism with or without intellectual impairment Can have autism with or without language impairment Treatment: Early intervention with supports for the child and family is key. Treatment depends on level of functioning (or level of impairment). Therapy: o Applied Behavioral Analysis therapy (ABA) – shapes and reinforces new behaviors and reduces undesirable ones. Interventions are focused on functional and socially appropriate goals. Based on the principle of positive reinforcement. o School services are imperative – IEP, sometimes specialized schools o Occupational therapy, especially for patients with sensory issues (some specialized schools have “sensory rooms” that can be very helpful) o In-home services for therapy and/or nursing assistance for family o Support groups and networks for family and patient (see resources page). Medication: o There are no medications to treat the primary symptoms of autism o FDA has approved aripiprazole (Abilify) and risperidone (Risperdal) for treatment of aggression, self-harming acts, dangerous outbursts in this population o DSM-5 indicates that ~70% of individuals with autism have another mental disorder, and 40% may have two or more. It is important to treat these conditions (especially anxiety, depression, ADHD—with the institution of DSM-5, patients may now be diagnosed with both ASD and ADHD if they meet criteria for both, whereas under DSM-IV the diagnosis of autism excluded ADHD). 16 Common Questions & Important Things to Know About ASD What if I suspect that my client has autism but he hasn’t been diagnosed? Any doctor can diagnose autism, but often the symptoms aren’t straight-forward and the diagnosis is not clear-cut. In such instances, more formalized evaluation can be helpful. Child psychiatrists and psychologists are the best trained to make the diagnosis; more specifically, specialized autism centers offer the most in-depth option for evaluation. In this area, Children's National Medical Center has the Center for Autism Spectrum Disorders (CASD) in Rockville, MD. Unfortunately, DC Medicaid does not pay for evaluation at that site. The Kennedy Krieger Institute (KKI) at Johns Hopkins in Baltimore also has a full diagnostic center. There is no blood test or single scale to assess for autism. The Autism Diagnostic Interview (ADI) and the Autism Diagnostic Observation Schedule (ADOS) are helpful and spe cific assessment tools, but they must be administered by an evaluator who receives specialized certification to give them. Other important assessments to pursue are neuropsychological testing (done by a PhD in psychology —this is sometimes confused with a neurology assessment by an MD, which is not generally a needed piece in an autism evaluation unless there are specific concerning neurological complaints), speech and language evaluation (by a speech pathologist), and occupational therapy assessment (OT). At the very least, referral to a child psychiatrist, who can then orchestrate all these other pieces, should be pursued when autism is suspected (but not confirmed) by the family, child advocate or pediatrician. If my client already has an IEP but has now been diagnosed with autism, is it necessary to add the autism diagnosis to the IEP? The answer to this is a resounding YES. Children with the autism diagnosis are entitled to resources and accommodations that are sometimes hard to get without the diagnosis. Additionally, there are certain specific interventions and curricula that are specific for children with autism. Even if the child’s particular school is not implementing these interventions for other students, they may be compelled to do so if the advocacy team of a child with autism pushes for them. If the school is not equipped, it is important that the autism diagnosis be formalized in the IEP so that the child can be transferred to a school that might better fit his needs. 17 Reputable Resources Regarding ASD CNMC Autism Family Resources PDF: http://childrensnational.org/~/media/cnhssite/files/departments/casd/casdbook_june27_final.ashx?la=en Children's National Medical Center – Center for Autism Spectrum Disorders http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd?sc_lang=en Autism Speaks: https://www.autismspeaks.org/ National Institute of Mental Health section on autism: http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml 18 Chapter IV: Mood Disorder NOS, Bipolar Disorder, and Disruptive Mood Dysregulation Disorder (DMDD) All children and teenagers have mood swings and emotional outbursts—this is part of normal development. For some youth, however, regulating mood and emotion can be overwhelming and incapacitating, and in some cases out of their volitional control. In the DSM-IV, Mood Disorders (also called affective disorders) were classified into two main categories: Depressive Disorders and Bipolar Disorder. Depressive Disorders have been covered in another chapter (but to refresh, include Major Depressive Disorder, Persistent Depressive Disorder or Dysthymia, and Substance-Induced Depression, among others). Bipolar Disorder will be covered in more detail in this chapter, but in general is a condition of cycling mood, consisting of discrete periods of expansive and abnormally elevated mood (mania) and longer periods of low mood (depression). For people with debilitating impairments in mood that do not quite meet the specific criteria for a depressive or bipolar disorder diagnosis, the diagnosis of Mood Disorder Not Otherwise Specified (NOS) has historically been given. Advocates for children often see this diagnosis and feel confused about what exactly it means—to be frank, this is how many providers feel when they see this diagnosis as well. To further muddle the waters, the diagnosis of Bipolar Disorder in pediatric populations has been contentious at best within the psychiatric community and in the realm of mass media. In the DSM-5, Mood Disorder NOS does not specifically exist. There is a new diagnosis called Disruptive Mood Dysregulation Disorder (DMDD), which appears in the “Depressive Disorders” section of the DSM-5, which may help to capture some of the mood/affective problems seen in children. There is a section called “Bipolar and Related Disorders” that includes the classical Bipolar I and Bipolar II disorders, and also “Unspecified Bipolar and Related Disorder.” Advocates for children may see these diagnoses with increasing frequency in the future. This chapter will discuss DMDD and Bipolar Disorder and the treatments children might receive. Disruptive Mood Dysregulation Disorder (DMDD) Created in part to address concerns about the over-diagnosis of bipolar diagnosis in children and adolescents. o Characterized by severe recurrent temper outbursts (verbal or physical) that are out of proportion to the intensity of the situations provoking them, occurring 3+ times/week o Mood between temper outbursts is persistently irritable or angry most of the day, nearly every day o These symptoms have been present for 12 months, with no more than 3 consecutive months without symptoms o Must be at least 6yrs old to be diagnosed, with symptoms having begun by age 10 Estimated prevalence of 2-5% Research has demonstrated that children with DMDD usually do not go on to have bipolar disorder in adulthood. They are more likely to develop problems with depression or anxiety. IMPORTANT FOR TREATMENT DECISIONS: Classified in DSM-5 as a Depressive Disorder o Specific treatments may vary by provider and by the individual patient, but it may not be unusual to see this diagnosis treated with antidepressants, or with mood stabilizers (covered in this chapter). Recommend talking with the provider for clarification of how the particular child’s condition has been conceptualized in creating the treatment plan. 19 Bipolar Disorder Severe, non-episodic irritability has been considered as characteristic of bipolar disorder in children, but DSM-IV and DSM-5 require that both children and adults have distinct episodes of mania or hypomania to qualify for the diagnosis (thus, DMDD was created) o Manic episode: distinct period of persistently elevated, expansive or irritable mood and increased energy or goal-directed activity lasting at least 1 week and present most of the day o Common symptoms: grandiosity, decreased need for sleep (sometimes staying awake for days at a time without fatigue), pressured speech, flight of ideas/racing thoughts o The mood disturbance is severe enough to cause impairment in social functioning or to warrant hospitalization to prevent harm to self or others o Hypomania is similar to mania but must last only 4 consecutive days and persist most of the day, nearly every day, and is not severe enough to cause marked impairment in functioning or to necessitate hospitalization o The manic episode may be preceded and/or followed by hypomanic episodes or depressive episodes Cyclothymic Disorder (classified in the DSM-5 under the “Bipolar and Related Disorders” chapter) is given to children who have had at least one full year (2 yrs for adults) of both hypomanic and depressive periods without having fulfilled the criteria for a single episode of mania, hypomania or major depression DSM-5 estimates that the prevalence ranges from 0.0 – 0.6% worldwide Family history is one of the strongest risk factors for the condition, with risk increasing by about 10-fold for people with a first-degree relative with the condition Suicide risk is very high in Bipolar Disorder. DSM-5 estimates that the risk of suicide is 15 times that of the general population, and that bipolar disorder may account for 25% of all completed suicides. This makes screening of adolescents, and provision of appropriate treatment, exceedingly important for children and teens with this diagnosis. Common Treatments Mood Stabilizers: o Lithium: Classic medication that works well. Need to monitor kidney function regularly via blood draw Need to check thyroid function before starting and periodically thereafter (blood test to measure TSH) Must monitor levels of drug in the blood Can cause significant weight gain, so measure cholesterol and blood sugar before starting and periodically thereafter Should taper off—don’t discontinue rapidly. o Valproic Acid (Depakote, Depakene): Originally an anti-seizure medication & still used regularly for that purpose, but shows positive effects for mood stabilization Need to check liver function (blood test) before starting and periodically thereafter 20 Can cause significant weight gain, good idea to monitor blood sugar and cholesterol Can cause pancreatitis (generally requires hospitalization) and changes to platelet counts Must monitor levels of drug in the blood Teratogenic (girls should be on birth control) Should taper off—don’t discontinue rapidly. o Lamotrigine (Lamictal): Can be very helpful for mood, and generally has less weight gain than lithium and valproic acid, and antipsychotics LIFE-THREATENING SIDE EFFECT: Stevens Johnson Syndrome (SJS) Begins as rash. ANY sign of rash should be reported to the doctor IMMEDIATELY and the medication should be stopped Generally occurs in response to high doses started too precipitously— providers should start low and go slow with dosing (increased every two weeks in small increments) There is no withdrawal/sudden discontinuation syndrome If a few doses are missed, notify the provider because the patient will likely need to go back to a lower dose to restart it o Other Mood Stabilizers: Sometimes these are used in mood disorders; they are also all used to treat patients with seizure disorders, and sometimes for migraines Carbemazepine (Tegretol), Oxcarbazepine (Trileptal), Topiramate (Topamax) Antipsychotics: o True schizophrenia and other psychotic disorders (marked by hallucinations, delusions, and paranoia) are unusual in children. Sometimes, however, psychotic symptoms accompany mood disorders (as in depression with psychotic features or mania with psychosis). o When antipsychotic medications are prescribed in kids, it is often for mood stabilization, aggression/self-harm (as discussed in the autism chapter), or as adjuvants to antidepressants (as in Abilify + SSRI, discussed in the depression chapter), rather than to treat psychotic symptoms. o Significant controversy exists about the use of antipsychotics in children, particularly children in the foster care system (where they have been shown to be prescribed with greater frequency), and there is little known about long-term effects of these medications in children. o Antipsychotics are generally classified into first and second generation meds: First Generation (AKA Typical) Antipsychotics: Haloperidol (Haldol), Chlorpromazine (Thorazine), Perphenazine (Trilafon), and Fluphenazine (Prolixin) These are not used often in children, except for Haldol, which is sometimes used for acute management on inpatient units or on an outpatient basis for children who have not responded to other meds Adverse effects: Extrapyramidal Symptoms (EPS): muscle spasms, restlessness, rigid muscles, Parkinsonism (tremor, slowed movements); 21 Tardive Dyskinesia: long-term effect, jerky movements, often seen in tongue/mouth Second Generation (AKA Atypical) Antipsychotics: Aripiprazole (Abilify), Olanzapine (Zyprexa), Quetiapine (Seroquel), Risperidone (Risperdal), Ziprasidone (Geodon), Clozapine (Clozaril) Preferred over first generation because the risk of EPS is lower Adverse effects: Weight gain (esp with Zyprexa, Seroquel, Risperidone), diabetes/metabolic problems; Gynecomastia, or enlarged breast tissue, even in boys (especially with Risperdal) Very rare but serious side effect of antipsychotics: Acute Dystonia Sudden & severe rigidity, twisting, sustained contractions of limbs, face, or whole body This is an emergency and requires hospital-level intervention More likely with first generation (typical) antipsychotics If the antipsychotic medication works very well to stabilize mood or control aggression but there are some unwanted (but not severe) side effects, providers sometimes use additional medication to ameliorate the side effect: Benztropine (Cogentin) Diphenhydramine (Benadryl) Combination Treatment: o Sometimes, and especially in the midst of an acute manic episode, providers use a mood stabilizer plus an antipsychotic. o It is unusual, however, to have a child on more than one antipsychotic, except in the case of cross-tapering from one to another (at the end of which the child will be on only one antipsychotic) 22 Common Questions & Important Things to Know About Mood Stabilizers & Antipsychotics for Mood Disorders What sort of monitoring needs to be done if my client is on one of these medications? For any of the medications that can cause weight gain or metabolic problems (lithium, valproic acid, atypical antipsychotics), the patient should have blood sugar, electrolytes and a lipid panel (cholesterol) drawn prior to initiating the therapy. Continued monitoring depends on the particular medication. It is important to note that blood sugar and lipid panels should be drawn after the patient has fasted (at least 6 hrs), so it is best to schedule this firs thing in the morning. Lithium requires monitoring of thyroid hormone levels and kidney function (via cre atinine). Valproic acid requires monitoring of liver function tests and blood cells (especially platelets). Lithium and Valproic acid also require that the level of drug in the blood be monitored periodically. In general, blood drug levels should be drawn just before the AM dose is given; a blood level taken shortly after the patient has received the medication is less helpful. Clozapine (Clozaril) is not used very often, despite the fact that it works very well for treating psychosis, because it carries a risk of agranulocytosis (dangerously low levels of a particular kind of white blood cell), which leaves the patient at risk for serious infection. Patients on clozapine must have a complete blood count (CBC) drawn regularly and they must be listed on a national registry if they are taking this medication. What sort of medication should kids with DMDD be prescribed? Because DMDD is a relatively new diagnosis, it is unclear as of yet what will be the most common treatments for the disorder. Because the diagnosis was conceived of partly in order to keep children with chronic irritability from being labeled as having bipolar disorder, it may be that providers will still reach for mood stabilizers to help to level off the irritable/labile mood. This may be exactly the right approach for some children. On the other hand, because studies have shown that children who meet criteria for DMDD are more likely to go on to develop depressive disorders than bipolar disorder, it may make more sense to treat with antidepressants to address irritability and emotional lability (as these symptoms may be stemming from underlying dysphoria or depression). This may be exactly the right approach for some children. Complicating matters further is the well-established fact that using antidepressants, particularly SSRIs, in people with underlying bipolar disorder can precipitate a switch into mania, which can be dangerous (and children are reportedly especially vulnerable to a “manic switch” from SSRIs). Taken together, the best advice is to talk with the provider about the diagnosis, and about why the particular treatment plan is being chosen for that particular child—there may be other factors, like family history, co-morbid conditions, or past medication trials that are playing a role in the treatment planning. What is the deal with the use of antipsychotics and the foster care system? This question is the subject of entire books and is too large for a guide like this one. The American Academy of Child & Adolescent Psychiatry (AACAP) has written a Practice Parameters document about the use of antipsychotics in children and it addresses this issue. It can be accessed for free here:http://www.aacap.org/App_Themes/AACAP/docs/practice_parameters/Atypical_Antipsychotic _Medications_Web.pdf . AACAP is in the process of creating another Practice Parameters document that is solely dedicated to the mental health of children in foster care. 23 Reputable Resources Regarding Mood Disorders, Mood Stabilizers & Antipsychotics National Institute of Mental Health (NIMH) section on Bipolar Disorder in Children & Adolescents: http://www.nimh.nih.gov/health/publications/bipolar-disorder-in-children-and-adolescents/index.shtml NIMH section: Most Children with Rapidly Shifting Moods Don’t Have Bipolar Disorder: http://www.nimh.nih.gov/news/science-news/2010/most-children-with-rapidly-shifting-moods-donthave-bipolar-disorder.shtml American Academy of Child & Adolescent Psychiatry: http://www.aacap.org 24 Chapter V: Post-Traumatic Stress Disorder Description: For adults, teens, and children > 6yrs old: o Exposure to actual or threatened death, serious injury, or sexual violence by direct experiencing, witnessing, or learning that event happened to close family member o Presence of intrusive symptoms associated with event – memories, flashbacks, nightmares o Persistent avoidance of stimuli associated with traumatic event o Hyper-reactivity/hyper-arousal associated with triggers For children < 6yrs: o Sexually violent events may include developmentally inappropriate sexual experiences without violence/injury Treatment: Therapy: o Trauma-Focused Cognitive Behavioral Therapy (TF-CBT) Should be given by an experienced therapist Continuity of therapist is very important! If the child will be inconsistent with therapy or may not be able to complete and will have to start over, or if the therapist will be leaving the agency, consider postponing the therapy until the child can work with one therapist consistently through completion of therapy Medication: o Some studies indicate that SSRIs can be helpful o Clonidine (quiets the fight-or-flight system) can be helpful o Prazosin (similar to clonidine) is used on the west coast and in military vets to treat nightmares associated with PTSD; not wide usage in children, especially on east coast Is it PTSD? Not every child who experiences trauma will develop PTSD: o There is growing literature on resiliency in children – who suffers through trauma but does not go on to develop PTSD, and why not? o Some studies show that over-therapizing or forcing therapy directly after a traumatic event can actually make coping worse (fine line) Look for co-morbid conditions: o Children with PTSD can still have anxiety and depression, and often do o Sometimes children with symptoms of PTSD are mis-diagnosed as having ADHD; it is important to inform providers of known trauma. It should be noted, however, that children with PTSD can also have ADHD. Sometimes treating symptoms in the service of daily functioning can be more helpful than focusing on diagnosis 25 Reputable Resources Regarding PTSD National Child Traumatic Stress Network: http://www.nctsn.org National Institute of Mental Health section on PTSD: http://www.nimh.nih.gov/health/topics/post-traumatic-stress-disorder-ptsd/index.shtml U.S. Department of Veterans Affairs National Center for PTSD, section on Children & Adolescents: http://www.ptsd.va.gov/professional/treatment/children/ptsd_in_children_and_adolescents_overview _for_professionals.asp 26 Appendix I: Medications Index Alphabetical by Brand Name (alphabetical by generic name on next page) Medication Abilify (aripiprazole) Adderall (mixed amphetamine salts) Ativan (lorazepam) Buspar (buspirone) Celexa (citalopram) Clonidine (clonidine) Clozaril (clozapine) Concerta (methylphenidate ER) Cymbalta (duloxetine) Daytrana (methylphenidate patch) Depakote, Depakene (valproic acid) Effexor (venlafaxine) Focalin (dexmethylphenidate) Geodon (ziprasidone) Haldol (haloperidol) Inderal (propranolol) Intuniv (guanfacine ER) Kapvay (clonidine ER) Klonopin (clonazepam) Lamictal (lamotrigine) Lexapro (escitalopram) Lithium Luvox (fluvoxamine) Metadate (methylphenidate CD) Neurontin (gabapentin) Prolixin (fluphenazine) Prozac (fluoxetine) Quillivant (methylphenidate liquid) Risperdal (risperidone) Ritalin (methylphenidate) Seroquel (quetiapine) Strattera (atomoxetine) Tegretol (carbamazepine) Tenex (guanfacine) Topamax (topiramate) Trilafon (perphenazine) Trileptal (oxcarbazepine) Vyvanse (lisdexafetamine) Wellbutrin (bupropion) Xanax (alprazolam) Zoloft (sertraline) Zyprexa (olanzapine) Usual Uses Mood stabilization, adjuvant for depression, psychosis, aggression ADHD Anxiety, acute agitation Anxiety Depression, anxiety ADHD Mood stabilization, psychosis ADHD Depression ADHD Mood stabilization, seizure control Depression ADHD Mood stabilization, psychosis Mood stabilization, psychosis, acute agitation Performance anxiety, panic, restless leg ADHD ADHD Anxiety Mood stabilization Depression, anxiety Mood stabilization, seizure control, adjuvant for depression Depression, anxiety, OCD ADHD Anxiety, neuropathic pain Mood stabilization, psychosis Depression, anxiety, bulimia ADHD Mood stabilization, psychosis, aggression ADHD Mood stabilization, psychosis, sometimes sleep ADHD, depression Mood stabilization, seizure control ADHD Mood stabilization, seizure control, migraines Mood stabilization, psychosis Mood stabilization, seizure control ADHD Depression, sometimes ADHD Panic attacks Depression, anxiety, OCD Mood stabilization, psychosis Chapter IV, III I II II II I IV I II I IV II I IV IV II I I II IV II IV II I II IV II I IV, III I IV I IV I IV IV IV I II II II IV 27 Appendix I: Medications Index Alphabetical by Generic Name Medication+C6A45:C76 Alprazolam (Xanax) Aripiprazole (Abilify) Atomoxetine (Strattera) Bupropion (Wellbutrin) Buspirone (Buspar) Carbamazepine (Tegretol) Citalopram (Celexa) Clonazepam (Klonopin) Clonidine (clonidine) Clonidine ER (Kapvay) Clozapine (clozaril) Dexmethylphenidate (Focalin) Duloxetine (Cymbalta) Escitalopram (Lexapro) Fluoxetine (Prozac) Fluphenazine (Prolixin) Fluvoxamine (Luvox) Gabapentin (Neurontin) Guanfacine (Tenex) Guanfacine ER (Intuniv) Haloperidol (Haldol) Lamotrigine (Lamictal) Lisdexafetamine (Vyvanse) Lithium Lorazepam (Ativan) Methylphenidate (Ritalin) Methylphenidate CD (Metadate) Methylphenidate ER (Concerta) Methylphenidate liquid (Quillivant) Methylphenidate patch (Daytrana) Mixed amphetamine salts (Adderall) Olanzapine (Zyprexa) Oxcarbazepine (Trileptal) Perphenazine (Trilafon) Propranolol (Inderal) Quetiapine (Seroquel) Risperidone (Risperdal) Sertraline (Zoloft) Topiramate (Topamax) Valproic acid (Depakote, Depakene) Venlafaxine (Effexor) Ziprasidone (Geodon) Usual Uses Panic attacks Mood stabilization, adjuvant for depression, psychosis, aggression ADHD, depression Depression, sometimes ADHD Anxiety Mood stabilization, seizure control Depression, anxiety Anxiety ADHD ADHD Mood stabilization, psychosis ADHD Depression Depression, anxiety Depression, anxiety, bulimia Mood stabilization, psychosis Depression, anxiety, OCD Anxiety, neuropathic pain ADHD ADHD Mood stabilization, psychosis, acute agitation Mood stabilization ADHD Mood stabilization, seizure control, adjuvant for depression Anxiety, acute agitation ADHD ADHD ADHD ADHD ADHD ADHD Mood stabilization, psychosis Mood stabilization, seizure control Mood stabilization, psychosis Performance anxiety, panic, restless leg Mood stabilization, psychosis, sometimes sleep Mood stabilization, psychosis, aggression Depression, anxiety, OCD Mood stabilization, seizure control, migraines Mood stabilization, seizure control Depression Mood stabilization, psychosis Chapter II IV, III I II II IV II II I I IV I II II II IV II II I I IV IV I IV II I I I I I I IV IV IV II IV IV, III II IV IV II IV 28 Appendix II: Common Medical Abbreviations A&O/AAO alert and oriented ADE/ADR adverse drug effect/reaction ADHD attention deficit hyperactivity disorder AED anti-epileptic drug AMS altered mental state ASD autism spectrum disorder AVH auditory and visual hallucinations BAL blood alcohol level BID twice daily BMP basic metabolic panel BPD borderline personality disorder OR bipolar disorder (ambiguous) c *with straight line over top* "with" CBC complete blood count CC chief complaint CICU cardiac intensive care unit CMP complete metabolic panel CNII-XII cranial nerves II-XII CNS central nervous system CPK creatine phosphokinase (measure of muscle breakdown) CSF cerebrospinal fluid CT computerized tomography or chlamydia trachomatis (STI) CTA clear to auscultation CVA cardiovascular accident (stroke) Cx culture (for urine, blood, sputum, etc.) CXR chest x-ray D/C discharge or discontinue DDx differential diagnosis (list of conditions that might fit the symptoms) DKA diabetic ketoacidosis (life-threatening result of very high blood sugars) DM diabetes mellitus, specify type I (insulin resistant) and type II DMDD disruptive mood dysregulation disorder DTR deep tendon reflexes DVT deep vein thrombosis Dx diagnosis ECT electroconvulsive therapy EDNOS eating disorder not otherwise specified EEG electroenecephalopgram EKG/ECG electrocardiogram EOM extraocular muscles EtOH ethanol (used short-hand to indicate alcohol on breath, for example) 29 F/U follow up FMH family pedical history FTT failure to thrive Fx fracture GAD generalized anxiety disorder GC gonorrhea GI gastrointestinal or gastroenterology GID gender identity disorder GSW gunshot wound gt/gtt drops GU genitourinary H/H hemoglobin and hematocrit (often reported together) HCG human chorionic gonadotropin (measure of pregnancy & some tumors) HCT hematocrit (measure of anemia) HEENT head, eyes, ears, nose and throat HgA1c hemoglobin A1c (measure of long-term blood sugar control) Hgb hemoglobin (measure of anemia) HI homicidal ideation HIV human immunodeficiency virus HPI history of present illness HPV human papillomavirus HSM hepatosplenomegaly (enlarged liver or spleen) HSV herpes simplex virus HTN hypertension Hx history I&O input and output (fluid in and fluid out) I/P inpatient ICU intensive care unit ID infectious disease (department) IED intermittent explosive disorder IM intramuscular IOP intensive outpatient program IT intrathecal (delivered into the cerebrospinal fluid, usually chemotherapy) IV intravenous JODM juvenile onset diabetes mellitus KUB x-ray of kidneys, ureters, bladder LFTs liver function tests LMP last menstrual period LOC loss of consciousness or level of consciousness LP lumbar puncture (spinal tap, commonly) LUQ/LLQ left upper/lower quadrant (of abdomen) M/R/G murmurs, rubs or gallups MDD major depressive disorder 30 MMR measles, mumps, rubella vaccine MRA magnetic resonance angiogram MRI magnetic resonance imaging MRSA methicillin-resistant staph aureus MSE mental status exam MVA/MVC motor vehicle accident/crash NAD no acute distress NC nasal cannula (as in oxygen delivered to nose) NCAT normo-cephalic, atraumatic (normal head, no injuries) NES non-epileptic seizure NG nasogastric (as in a feeding tube through the nose) NICU neonatal intensive care unit NKDA no known drug allergies NOS not otherwise specified NPO nothing by mouth (as in before surgery) NSR normal sinus rhythm (refers to cardiac exam) O/P outpatient OCD obsessive compulsive disorder OCP oral contraceptive pill ODD oppositional defiant disorder OT occupational therapy PDDNOS pervasive developmenttal disorder not otherwise specified PE physical exam or pulmonary embolism PFTs pulmonary function tests PHP partial hospitalization program PICU pediatric intensive care unit PKU phenylketonuria PMH past medial history PNA pneumonia PO by mouth PPD purified protein derivative (tuberculosis skin test) PR per rectum PRN as needed Pt patient PT physical therapy q every (q4h = every 4 hours) QID four times daily QOD every other day QTc corrected QT interval (EKG finding pertinent to some meds) R/O rule out RIS responding to internal stimuli ROM range of motion ROS review of symptoms 31 RPR rapid plasma reagin (syphillis test) RRR regular rate and rhythm RTC residential treatment center OR return to clinic RUQ/RLQ right upper/lower quadrant (of abdomen) Rx prescription s *with straight line over top* "without" S/NT/ND soft, non-tender, non-distended S/S signs and symptoms SAD seasonal affective disorder OR schizoaffective disorder (ambiguous) SGA second-generation antipsychotic (atypical antipsychotic) SI suicidal ideation SIB self-injurious behavior SL sublingual (under the tongue) SNRI serotonin and norepinephrine reuptake inhibitor SOB shortness of breath SQ subcutaneous SSRI selective serotonin reuptake inhibitor STD/STI sexually transmitted disease/infection SUD substance use disorder Sx symptoms TCA tricyclcic antidepressant TFTs thyroid function tests THC tetrahydrocannabinol (marijuana) TIA transient ischemic attack TID three times daily TSH thyroid stimulating hormone Tx treatment or therapy U/S ultrasound (also US) UA urinalysis UDS urine drug screen UPT urine pregnancy test URI upper respiratory infection UTI urinary tract infection VDRL Venereal Disease Research Laboratory (syphillis test) VPA valproic acid (Depakote/Depakene) VRE vancomycin-resistent enterococcus W/U workup WBC white blood cells WNL within normal limits WWP warm and well-perfused 32 Resource Brief for Juvenile Defenders What Juvenile Defenders Should Know about the DSM-5 This resource brief is intended to support juvenile defense advocacy by providing an overview of some of the latest Diagnostic and Statistical Manual of Mental Disorders (DSM) revisions, as well as recommendations and implications for juvenile defense practice. The DSM is a classification manual for mental health professionals with itemized criteria for diagnosing disorders. Juvenile defenders who are knowledgeable about the DSM are better prepared to advocate for and against diagnoses of their youth clients. Defenders further enhance their advocacy when they insist that evaluators specifically identify the symptoms behind youth behaviors as well as the services and supports necessary to address those symptoms in school, at home, and in the community. The DSM has always been relevant to juvenile defenders to the extent that DSM diagnoses drive decisions in juvenile court. Yet juvenile defenders may be unfamiliar with the latest revisions to diagnoses and diagnostic criteria and how to manage the ways they are used in the juvenile court context. TABLE OF CONTENTS I. Neurodevelopmental Disorders............................................ 2 Language Disorder............................... 2 Attention-Deficit/ Hyperactivity Disorder......................... 3 Intellectual Disability........................... 4 Autism Spectrum Disorder................... 4 Social (Pragmatic) Communication Disorder . ............................................ 5 II. Trauma- and Stressor-Related Disorders............................................ 7 Posttraumatic Stress Disorder............. 7 Acute Stress Disorder.......................... 8 III. Disruptive, Impulse-Control, and Oppositional Defiant Disorder (ODD)..................................... 8 Intermittent Explosive Disorder (IED)....................................... 9 Conduct Disorder............................... 10 The DSM-5, a revised and updated manual, was released in 2013. The changes in the DSM-5 reflect continuing research and learning about psychiatric disorders by medical and mental health professionals. Juvenile defenders should be aware of the current disorders and diagnostic criteria, as well as how they have changed from the DSM-IV, to ensure that when Disruptive Mood Dysregulation Disorder.............................................. 11 IV. Substance-Related and Addictive Disorders........................ 12 Appendix................................................ 13 their clients’ diagnoses are discussed in court – especially by non-psychologists – it is being done accurately. Diagnoses under older criteria may no longer be valid and may lead to inappropriate intervention or services. Diagnoses continue to be double-edged swords as they relate to juvenile defense. Some diagnoses are used to justify unnecessary confinement or invasive court-ordered services, and yet defenders might use them to mitigate client conduct. As with most aspects of juvenile defense, how one approaches a diagnosis is a client-centered decision made after weighing all of the potential implications. This is especially true when considering diagnoses becoming part of court records that will follow youth clients, for good or bad, for a long time, despite the fact that scientific research underscores the transient nature of youth physical, mental, emotional, and moral development. For juvenile defenders, it is essential to keep in mind that immature thinking, identity issues, and moral reasoning, typical of adolescence, are often linked to illegal behavior, and must be distinguished from symptoms of psychiatric disorders. Failure to recognize and account for this developmental interplay can lead to misdiagnosis and/or punitive consequences with mismatched services for adolescents. Evaluators assessing youth in the juvenile court context must, therefore, have specific expertise in child and adolescent development, juvenile delinquency, and the elements of effective interventions for youth in the delinquency system. When seeking an evaluation, juvenile defenders should request a developmental evaluation with specific identification of the symptoms behind any diagnosis, recommendations for addressing those symptoms, and a clear articulation of the role immaturity and other developmental factors play in understanding the youth’s behavior. SUMMARY OF DSM-5 REVISIONS I. NEURODEVELOPMENTAL DISORDERS This category of disorders is typified by an onset of personal, social, academic, and job-related functioning impairments in the “developmental period,” a timeframe which the DSM editors kept intentionally vague to account for varying timelines of youth and adolescent development from childhood through adolescence. Language Disorder What’s This About? • Client has persistent difficulties in language learning, retention, and use (in all forms—written, spoken, etc.) due to deficits such as °° Reduced vocabulary; °° Limited ability to form correct sentence structure; and °° Difficulty carrying on a typical conversation. • Language abilities are significantly below those expected at that age and the limited abilities result in functional limitations in communication and achievement at work and school. What’s Changed? Language Disorder was previously termed “Expressive Language Disorder or Mixed Receptive-Expressive Language Disorder” in the DSM-IV. Implications for Defender Practice • Language disorders may impair a client’s ability to connect with the defender; may have affected a client’s understanding of and communication during an offense and subsequent police questioning; may limit a client’s ability to understand and waive rights; and may impact representation at all stages of a case, on probation, in placement, and in regards to educational and other services. 2 Resource Brief for Juvenile Defenders • Language impairments also severely affect a client’s ability to comprehend Miranda warnings adequately. Juvenile defenders should consider this in moving to suppress statements made by a client with a language disorder. • Linguistic issues may limit a client’s ability to provide vital background information “and factual information about the allegations, recall details, or to even tell a story. This in turn may interfere with the attorney’s constitutional obligation to assess potential defenses and mitigating factors, investigate, and mount a defense.”1 • Where defenders are not aware of and are unable to help alleviate language deficits, such deficits can negatively influence all aspects of the interview, preparation, and courtroom process, leaving the client feeling confused and misunderstood. • Court forms, orders, or waivers of rights will likely be challenging for youth with language disorders. A client’s difficulties with language may be used to mitigate actions against them for “failure to comply.” • Consider counseling clients with language impairments against testifying, as clients with language impairments are particularly susceptible to coercive and underhanded interrogation and cross-examination techniques. • At disposition, defenders can raise the fact that “research and experience have demonstrated that the lack of language skills associated with undesirable behavior can be treated successfully, and that doing so can substantially alter the behavior as well.” In this way, defenders can argue for services to help rehabilitate their clients, and effectively fight against the possibility of incarceration.2 • When developing a theory of the defense, juvenile defenders should work with clients to consider whether an undiagnosed language disorder played a role in the charged offense and then consider requesting a speech-language evaluation. • To protect clients’ due process rights, defenders should confirm the client has an Individualized Education Program (IEP) that addresses not just speech but the specific symptoms of his/her language disorder. Attention-Deficit/Hyperactivity Disorder (ADHD) What’s This About? • ADHD is understood as a “persistent pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development.” • There are 18 symptoms of ADHD (see the appendix for full symptoms list) which are divided between two “domains”: inattention and hyperactivity-impulsivity. • Diagnoses may be appropriate only where the client exhibits at least six symptoms in one domain (persisting for at least six months) (five symptoms for individuals 17 and older). What’s Changed? °° In the DSM-IV, ADHD was grouped in the now-eliminated chapter of “Disorders Usually First Diagnosed in Infancy, Childhood, or Adolescence.” °° In DSM-5, the age prior to which symptoms of ADHD must appear was raised to 12 (from 7 in DSM-IV). °° This change expands the ability of professionals to diagnose ADHD in adolescents and teenagers. Implications for Defender Practice • Keep in mind the dichotomy between the two domains of ADHD. Youth clients may present as inattentive, hyperactive/impulsive, or a combination of both. • Become familiar with experts who can evaluate clients for ADHD. These evaluators may also be able to testify in court as to the linkages between the child’s undesirable behavior(s) and their ADHD. 1. Michelle LaVigne, Breakdown in the Language Zone: the Prevalence of Language Impairments Among Juvenile and Adult Offenders and Why it Matters, 15 U.C. Davis J. Juv. L. & Pol’y 37, 69 (2011). 2. Id. at 111. What Juvenile Defenders Should Know about the DSM-5 3 • When considering the theory of the case, if a youth client describes battling regularly with inattention or impulsivity, the defender and client should consider requesting an evaluation to consider ADHD diagnosis and treatment. Evaluators should consider the symptoms underlying the youth’s behavior, especially the behavior leading to court involvement, and where appropriate recommend specific services to manage the symptoms. • NJDC’s Juvenile Court Training Curriculum3 has information and advice on selecting an appropriate and effective evaluator. • Because manifestations of the disorder must be present in multiple settings, defenders should be aware that an evaluator should not diagnose ADHD unless questionnaires regarding behavior (these are typically standardized) have been completed by parents (or other caretakers) and teachers. • The classification of ADHD as a “neurodevelopmental disorder” may give it greater scientific and developmental credibility than it previously received, giving it more potency as a mitigating factor defenders can raise at disposition. Intellectual Disability (Intellectual Developmental Disorder) What’s This About? • The diagnosis reflects deficits in intellectual functions (such as reasoning, problem solving, etc.), and deficits in adaptive functioning that result in failure to meet developmental and socio-cultural standards for personal independence and social responsibility. What’s Changed? °° In the DSM-IV, this was called Mental Retardation. Federal law, research journals, and medical, educational, and other professionals have replaced “mental retardation” with “intellectual disability.” °° Previously, the four levels of Mental Retardation (Mild, Moderate, Severe, and Profound) had been based on IQ testing. In the DSM-5 these severity levels are instead based on level of adaptive behavior (e.g., academic skills, social and communication ability, and self-care skills). Implications for Defender Practice • When developing a juvenile client’s case, defenders should take note of specific client challenges in academic, social, and communication skills as these can be indicators of a potential intellectual disability. • Defenders should be aware that for this diagnosis to be made appropriately, there must be a systematic assessment of the client’s adaptive behaviors and not just reliance on IQ tests. • The appropriate use of this diagnosis is especially important in competence determinations or when defenders challenge the validity of a youth’s waiver of his or her rights. • Defenders should consider pursuing evaluations for intellectual disabilities when this diagnosis furthers the theory of defense. Autism Spectrum Disorder (ASD) What’s This About? • This disorder is demonstrated by markedly impaired development in social interaction and communication across multiple contexts, and a restricted repertoire of interests, behavior, or activities. • See the appendix for full list of symptoms. 3. N ational Juvenile Defender Center & Juvenile Law Ctr., Toward Developmentally Appropriate Practice: A Juvenile Court Training Curriculum, Screening, Assessing, and Evaluating Youth (2d ed. 2009). 4 Resource Brief for Juvenile Defenders What’s Changed? °° Autism Spectrum Disorder (ASD) encompasses what were Autistic Disorder, Asperger’s Disorder, Childhood Disintegrative Disorder, and Pervasive Developmental Disorder not otherwise specified in the DSM-IV. °° These diagnoses are now captured in three severity levels (described in detail in the appendix), based on how much communication is impaired and the extent to which the individual exhibits restricted, repetitive patterns of behavior: • Level 3: “Requiring Very Substantial Support” • Level 2: “Requiring Substantial Support” • Level 1: “Requiring Support” Implications for Defender Practice • ASD impacts a client’s responses to other people and therefore has an impact before, during, and after a charged offense. ASD can be significant in terms of a client’s actions during an alleged offense, their competence to proceed, their ability to waive rights, and their disposition. • Defenders should be aware that clients who appear to have normal intelligence, but who describe themselves as isolated, do not pick up on social cues normally, do not understand what makes them different from their peers, and have an intense interest in one or two areas (for example, they may make complicated Lego® constructions for hours even as teenagers) may have ASD. • If ASD is suspected, and diagnosis would advance the theory of defense, an evaluation is necessary to ascertain how communication and social deficits may have affected the youth’s conduct during the offense as well as their competence to proceed and ability to waive rights. In particular, crimes with specific intent, like stalking, can be challenged if an ASD diagnosis is warranted. • In disposition planning for clients with ASD, the severity levels can be crucial because they literally dictate the “support” needed—something defenders can refer to when arguing against incarceration. Social (Pragmatic) Communication Disorder What’s This About? • Social Communication Disorder may be diagnosed where all of the following occur: °° Deficits in using communication socially, such as greeting and sharing information, in a manner appropriate for the context; °° Impairment of ability to change communication to match needs of listener; °° Difficulties following rules for conversation and storytelling, such as taking turns and rephrasing; and °° Difficulty understanding ambiguous meaning in language. • The disorder exists only where the symptoms are not better explained by another disorder. What’s Changed? This is an entirely new diagnosis in the DSM, to “more accurately recognize individuals who have significant problems using verbal and nonverbal communication for social purposes, leading to impairments in their ability to effectively communicate, participate socially, maintain social relationships, or otherwise perform academically or occupationally.”4 Implications for Defender Practice • Clients who have difficulty communicating effectively, and whose inability to communicate may negatively impact others’ perceptions of them, may have Social Communication Disorder. Defenders should consider requesting that a psychologist or speech-language pathologist assess specific communication difficulties and make recommendations for services, provided the defense theory calls for such evaluations and/or interventions. 4. DSM5.org, Social (Pragmatic) Communication Disorder Fact Sheet, http://www.dsm5.org/Documents/Social%20Communication%20Disorder%20Fact%20Sheet.pdf (last visited June 4, 2014). What Juvenile Defenders Should Know about the DSM-5 5 • Because this type of disorder may be difficult to diagnose via standard testing, judges and even defenders may attribute the inappropriate behavior of respondent-clients to deliberate non-compliance or bad attitude, even where symptoms are explained by a diagnosis of Social Communication Disorder. Defenders should think not only about how this may impact the judge’s perceptions of the client, but their own. • Defenders should be aware that this is a new diagnosis, and that as such, previous inaccurate diagnoses may have led to inconsistent treatment and services. Other Implications for Practice Regarding Neurodevelopmental Disorders Little attention has been paid to the specific, significant effects of neurodevelopmental disorders on the behavior of juveniles prior to, during, and after their offenses. Neurodevelopmental disorders have typically been dismissed as “special education issues,” which fails to recognize that youth with these disabilities often function younger than their chronological age and have comprehension, communication, or social difficulties that may affect them at home, in the community, and in school. For example, a client who does not meet the criteria for Intellectual Development Disorder may have academic skills substantially below those expected for his/her chronological age that are the result of impaired reading, writing and/or mathematics due to a Specific Learning Disorder (SLD) (SLD has not changed in the DSM-5). If the defense theory would be supported by an evaluation for a possible neurodevelopmental disorder, the defender must ask evaluators to assess the effects of deficits in cognitive processes such as: organization (including task initiation and follow-through); working memory (holding things in memory while using them, which is essential for carrying out multistep activities and following complex instructions); planning (including setting goals and goal-directed persistence); sustained attention; performance monitoring (including time management); emotional regulation; and impulse regulation. These deficits, properly understood and described, may play a role in understanding clients’ behavior at the time of the offense and in disposition planning. Fetal Alcohol Spectrum Disorder (FASD) (which includes other fetal substance exposure) and Traumatic Brain Injury (TBI) (seen in juveniles who lost consciousness from child abuse and/or being hit by cars, e.g.) are usually not considered in court evaluations but may have a significant impact on adolescent behavior. FASD is not a DSM-5 diagnosis, but the diagnosis “Other Specified Neurodevelopmental Disorders” is vaguely described as being characterized by a range of developmental disabilities, and the DSM-5 example given is “Neurodevelopmental disorder associated with prenatal alcohol exposure.” TBI is included in a different section of the DSM-5: major and mild neurocognitive disorder due to traumatic brain injury. Therefore, while symptoms may present as neurodevelopmental, it is possible that an injury to the brain may actually be the cause. Provided the defense theory calls for such intervention, defenders must ask evaluators to specifically consider FASD and TBI when explaining a youth’s behavior because they require substantially different interventions in school, at home, and in the community than other neurodevelopmental disorders. In general, neurodevelopmental disorders may require services through an IEP. A client may not have an IEP and the defender may want to discuss initiating a special education eligibility determination with the client. The client may have an IEP focused on behavior problems without services for a language disorder, ADHD, ASD, or a communication disorder. Defenders can request an IEP meeting, attend it, and advocate for specialized services. Neurodevelopmental disorders also affect youth where they live. Services to assist a youth’s caretakers and to support youth in working with the defender can also be arranged. Juvenile defenders must caution probation officers and other providers that they cannot communicate with or expect the same comprehension by a youth with a neurodevelopmental disorder as they would with other young people. 6 Resource Brief for Juvenile Defenders II. TRAUMA- AND STRESSOR-RELATED DISORDERS These are disorders in which exposure to a traumatic or stressful event is explicitly listed as a diagnostic criterion. The ways in which individuals react to these events can be quite disparate, ranging from extreme anger to fear to anxiety, among others. Because of the variability in psychological distress that may follow a traumatic event, these disorders have been given their own chapter in the DSM-5, though they may be or appear to be related to anxiety, dissociative, and other disorders. Posttraumatic Stress Disorder (PTSD) What’s This About? • The trigger for PTSD is “exposure to actual or threatened death, serious injury or sexual violation.” The exposure must result from one or more of the following scenarios: °° directly experiencing the traumatic event; °° witnessing the traumatic event in person; °° learning that the traumatic event occurred to a close family member or close friend (with the actual or threatened death being either violent or accidental); or °° experiencing first-hand repeated or extreme exposure to aversive details of the traumatic event (not through media, pictures, television or movies unless work-related). • Additionally, a PTSD diagnosis requires that the “disturbance, regardless of its trigger, causes clinically significant distress or impairment in the individual’s social interactions, capacity to work or other important areas of functioning.”5 • There are higher rates of PTSD among racial/ethnic minorities in the U.S., and it is more prevalent among females than males. What’s Changed? This is a new chapter in the DSM. Posttraumatic Stress Disorder was previously listed as an Anxiety Disorder in the DSM-IV. The requirement for someone to respond to the traumatic event with intense fear, helplessness or horror has been deleted because that criterion proved to have no utility in predicting the onset of PTSD. Implications for Defender Practice • Defenders should be aware that individuals with PTSD may be quick-tempered and engage in violent behavior with little to no provocation. They may have exaggerated negative expectations regarding important aspects of life applied to themselves or others, including a lack of trust in themselves or in people in positions of authority. Therefore, it may take additional time and effort to establish a relationship of trust with a client suffering from PTSD. • One of the symptoms of PTSD is avoidance, and it may be hard or impossible to learn from the client about past trauma he or she has experienced. Defenders may have to learn about it from a third party, such as a parent/guardian, teacher, or case file. • Defenders should keep in mind that the DSM-5 made changes to the “marked alterations symptom cluster” by including irritable or aggressive behavior and reckless or self-destructive behavior. Defenders may want to address these issues in court, particularly for clients charged with crimes of violence against people and property, as a way of mitigating the charges. • Avoidant behavior in adolescents associated with PTSD includes reluctance to participate in developmental opportunities, e.g., dating and driving. Clients may judge themselves as cowardly, may believe that they don’t fit in and will never fit in, and may lose aspirations for the future. Aggressive behavior impacting peers and school may increase. Engaging in risky behaviors is a characteristic of immaturity typical of adolescents, but clients with trauma exposure may be involved in greater self-harm or risk-taking. • The DSM-5 notes risk factors for developing PTSD that are commonly found in youth involved with the court system, including lower socioeconomic status, education, and childhood adversity, among others. 5. DSM5.org, PTSD Fact Sheet, http://www.dsm5.org/Documents/PTSD Fact Sheet.pdf (last visited July 2, 2014). What Juvenile Defenders Should Know about the DSM-5 7 Acute Stress Disorder This disorder is similar to PTSD, but is distinguished from it in that its duration is limited to a month after the traumatic event. Implications for Defender Practice • When clients have experienced, witnessed, or learned about traumatic events to someone close to them, defenders should be aware of the symptoms of Acute Stress Disorder and PTSD. • These symptoms may be especially relevant when communicating with the client, and in arguing mitigating factors at disposition, as well as generally throughout the trial process. Other Implications for Practice Regarding Trauma- and Stressor-Related Disorders Little attention has been paid to the specific, significant effects of trauma on the behavior of juveniles prior to, during, and after their offenses. Typically, past abuse or exposure to violence may be listed in the client’s history, but is rarely connected to their sadness, anxiety, over-reacting, and substance use (and clients often do not talk about past trauma or endorse trauma symptoms when questioned). Although DSM-5 refined PTSD to make it more applicable to children and adolescents, the definition of “traumatic event” remains narrow for the juvenile population. For example, juvenile offenders experience higher than average rates of close family member deaths (which the DSM only considers to be a potential PTSD trigger if the circumstances of the death itself were traumatic) and of disrupted caregiving (due to foster care as well as parent incarceration). Children’s trauma researchers consider both of these types of events as traumatic, affecting emotional regulation and reactivity to perceived threat. Evaluators may give little attention to the effects of loss and disrupted caregiving, despite the other criteria of PTSD being met, but as part of the defense theory, juvenile defenders may want them to highlight these effects, where appropriate. Another area impacted by trauma and stressor-related disorders is substance use. The DSM-5 has dropped all references to substance “abuse,” instead using only the phrase “substance use.” Many juveniles use marijuana, alcohol, or other substances to numb their sadness and anger about past maltreatment, loss, and their anxiety, but the evaluator may not make this connection. A substance use disorder diagnosis may give the impression that a juvenile will be difficult to rehabilitate because use began at a young age and/or is daily, rather than contextualizing the issue as one of self-medication and the necessity for trauma treatment (which may not be part of substance use treatment). Defenders should remember—especially if their clients have high anxiety, sadness, reactivity, emotional regulation difficulties, and/or use substances—to ask evaluators to complete a thorough history that includes a broad definition of trauma and its specific effects on behavior, regardless of whether the criteria for PTSD or Acute Stress Disorder are met. III. DISRUPTIVE, IMPULSE-CONTROL, AND CONDUCT DISORDERS Oppositional Defiant Disorder (ODD) What’s This About? • An ODD diagnosis requires (1) a pattern of behavior from one of the following three categories for at least six months, that is (2) evidenced by at least four symptoms from any of the categories, °° Angry/Irritable Mood: Often loses temper; often touchy/easily annoyed; often angry and resentful; °° Argumentative/Defiant Behavior: Often argues with authority figures (adults where the individual is a child/adolescent); often actively defies/refuses to comply with requests from authority figures/rules; often deliberately annoys others; often blames others for his or her mistakes/misbehavior; °° Vindictiveness: has been spiteful or vindictive at least twice within the past six months. • Additionally, an ODD diagnosis requires that these behaviors occur in non-sibling interactions, where the disturbance is associated with distress in the immediate social context or negatively impacts important areas of functioning. Additionally, the behaviors cannot occur “exclusively during the course of a psychotic, substance use, depressive, or bipolar disorder.” • For an ODD diagnosis, for children under 5 years, behavior should occur on most days for the six-month period; for older children, at least once a week for that same period. 8 Resource Brief for Juvenile Defenders • ODD can be distinguished from ADHD because unlike in ADHD, an ODD individual’s failure to conform to requests of others is not limited solely to situations that demand sustained effort/attention/that the individual sit still. What’s Changed? °° All disorders in this new chapter of the DSM are characterized by problems in emotional and behavioral control. (These disorders had previously been spread across various DSM-IV chapters). °° The DSM-5 groups ODD into the three categories described above, in recognition that an ODD diagnosis reflects both emotional and behavioral symptoms. °° Because behaviors associated with ODD symptoms occur commonly in youth showing normal development, the criteria now provide guidance on the frequency of these symptoms needed for a behavior to be considered an ODD symptom. °° The DSM-5 adds a severity rating to the ODD criteria as a specifier, dictating the number of settings in which the ODD symptoms must be present. Mild means one setting, severe means three or more settings, and moderate two. Implications for Defender Practice • ODD may be diagnosed in youth clients and used against them in court. Defenders, therefore, should be prepared to challenge the accuracy of the diagnosis and/or the severity level assigned by calling a defense expert or mitigation witness, or cross-examining the court evaluator. °° Given the changes in how ODD is diagnosed under the DSM-5, it is critical that older diagnoses be re-examined or challenged (depending on the defense strategy), as the diagnosis may no longer be valid. • For mitigation purposes, be aware that risk factors for ODD include harsh, inconsistent, or neglectful child-rearing practices. • ODD is frequently co-morbid with and, may be mistaken for, ADHD. Make sure evaluators are competent and can distinguish between the two. Intermittent Explosive Disorder (IED) What’s This About? • The core feature of an IED diagnosis is the failure to control impulsive aggressive behavior in response to provocation that would typically not result in such an aggressive outburst. • An IED diagnosis can be made in addition to ADHD, Conduct Disorder, ODD, or Autism Spectrum Disorder diagnoses where the aggressive outbursts are in excess of those that would accompany those disorders and warrant independent clinical attention. • The two major ways in which IED behavior manifests are: °° Verbal aggression/physical aggression occurring twice weekly on average, for a three-month period, and which does not result in damage/destruction to people or property; or °° Three behavioral outbursts in a 12-month period that cause harm. What’s Changed? °° Whereas physical aggression was required for a diagnosis of IED in the DSM-IV, the DSM-5 criteria for IED include verbal aggression and non-destructive/non-injurious physical aggression. °° The DSM-5 outlines the frequency with which aggressive outbursts must occur to meet the criteria for IED. DSM-5 also specifies that the aggressive outbursts are impulsive and/or anger-based in nature, and must cause marked distress, impairment in job/inter-personal functioning, or be associated with negative financial or legal consequences. The minimum age for an IED diagnosis is now 6 years (as opposed to no minimum under the DSM-IV). What Juvenile Defenders Should Know about the DSM-5 9 Implications for Defender Practice • Clients with a history of physical or emotional trauma are at increased risk for IED. • If a client has had impulsive aggressive behaviors triggered by minor provocation AND if a finding of IED will enhance the defense theory, the defender may consider requesting an evaluation to see if these behaviors meet the criteria for IED. • For purposes of disposition planning and argument, defenders should discuss available treatment options with their client, such as cognitive restructuring, coping skills training, and relaxation training. Conduct Disorder (CD) What’s This About? • Conduct Disorder may be diagnosed where there is a repeated and persistent pattern of behavior that violates the basic rights of others or breaks major age-appropriate social norms or rules. A diagnosis requires three or more of the following behaviors in the past 12 months, with at least one in the last six months: °° Aggression to people or animals (bullying, threatening, or intimidating others; initiating physical fights; or engaging in physical cruelty to people or animals). °° Destruction of property (engaging in fire-setting causing serious damage; deliberately destroying property). °° Deceitfulness or theft (stealing items of non-trivial value; lying to obtain goods or favors or to avoid obligations). °° Serious violations of rules (running away from home overnight; truancy). • There are two major sub-types of CD: Childhood-onset and Adolescent-onset. °° Those with Childhood-onset CD are more likely to have problems early and to have problems in adulthood. °° Those with Adolescent-onset CD (usually typified by being more rebellious than is normal for one’s age group) are less likely to have problems that continue into adulthood. • There are three severity specifiers: 1. Mild – consisting of few if any conduct problems in excess of those required to make the diagnosis AND where conduct problems cause only minor harm to others; 2. Moderate – consisting of a number of conduct problems and effect on others is at intermediate level, and; 3. Severe – consisting of many conduct problems in excess of those required to make the diagnosis OR conduct problems cause significant harm to others. What’s Changed? There is a new specifier of “Limited Pro-Social Emotions” that has been added in the DSM-5. It is found in a minority of individuals with Conduct Disorder. This specifier exists if a child meets the full criteria for Conduct Disorder and has at least two or more of the following criteria that are displayed persistently for at least 12 months and in multiple relationships and settings: °° lack of remorse or guilt, °° callousness/lack of empathy, °° lack of concern about performance, or °° shallow or deficient affect (inability to express feelings or show emotions to others, except in ways that seem shallow, insincere, superficial, or for gain). These characteristics reflect the individual’s typical pattern of interpersonal and emotional functioning over this period and not just occasional occurrences in some situations. In addition to self-reporting, reports from others who have known the youth for an extended period are required to assess these criteria. 10 Resource Brief for Juvenile Defenders Implications for Defender Practice • It is important for defenders to recognize the limitations of what a Conduct Disorder diagnosis says about the client. Conduct Disorder can be attributed to a first-grader who lies and gets into fights or to a 17-year old arrested for murder. An accurate diagnosis indicates that the young person has persistent behavior problems, but not what caused the behavior problems. There are usually several different contributors to behavior problems for a youth. • Defenders should challenge a callous and unemotional diagnosis based only on an interview in a justice setting or mental health setting. Soon after an offense, it is extremely difficult to determine a young person’s remorse, especially if they believe their actions were unintentional. Anyone rendering this opinion should be asked to specify the basis of their conclusion; it is not sufficient to indicate that the young person did not respond when asked their feelings about the harm of the offense. Many teens who do not have CD are also reluctant to share their emotions with adults, including showing concern about school or others’ feelings. This kind of behavior is not dispositive of a disorder. • Most youth with CD do not show callous/unemotional traits. CD does not imply psychopathy or the lack of a conscience, and defenders should challenge indication of callous/unemotional traits whenever possible. • CD youth without callous traits tend to be highly emotionally reactive and to have cognitive difficulties. • A diagnosis of CD does not mean a young person cannot be rehabilitated. Disruptive Mood Dysregulation Disorder What’s This About? • This disorder is defined by severe recurrent temper outbursts that occur at least three times a week and where the mood between these outbursts is persistently irritable and angry most of the day. • This is a chronic mood disorder, whereas a youth with Bipolar Disorder has periods of mania and depression that are clearly different from their typical mood. • This diagnosis cannot be made before age 6 and symptoms must have started before age 10. What’s Changed? This diagnosis is new to the DSM-5, and was included largely because of the overuse of the diagnosis of Bipolar Disorder in children and adolescents. Implications for Defender Practice • Defenders should be aware that chronic, severe irritability and low frustration tolerance that characterize Disruptive Mood Dysregulation Disorder interfere with family and peer relationships and school, and that this may be connected to the youth’s behavior before, during, and after the offense. • Like Intermittent Explosive Disorder, this diagnosis might be relevant for clients who have severe angry and aggressive outbursts. A description of the underlying behaviors leading to this diagnosis can help with obtaining appropriate services and can assist the judge in understanding a possible connection between the crime alleged and the youth’s disorder. • Defenders should be aware that this is a new disorder, so the field is still setting standards of practice. What Juvenile Defenders Should Know about the DSM-5 11 IV. SUBSTANCE-RELATED AND ADDICTIVE DISORDERS What’s Changed? °° The DSM-5 does not dichotomize, as the DSM-IV did, between substance abuse and dependence. °° The DSM-5 provides criteria for substance use disorder, as well as criteria for intoxication, withdrawal, substance/medication-induced disorders, and unspecified substance-induced disorders, for each type of drug (alcohol, opiates, cannabis, hallucinogens, etc.), as appropriate. °° The DSM-5 added a new criterion: craving/strong desire/urge to use a substance. °° In the DSM-IV, one criterion for substance abuse had been recurrent substance-related legal problems. The DSM-5 removed this criterion. (see Implications for Defender Practice, below). °° Cannabis and caffeine withdrawal are both new to DSM-5. °° Severity of substance use disorders is based on number of criteria present—2-3 (mild disorder); 4-5 (moderate); and 6+ (severe). Implications for Defender Practice • Changes in the substance use disorder criteria may be particularly relevant for clients who had been previously diagnosed with a substance use disorder because they had legal problems caused by marijuana use. Because the existence of legal problems associated with substance use was deleted as a diagnostic criterion, and since two or more criteria are necessary to meet the diagnosis, clients may no longer meet the criteria for a substance use disorder. • Substance use can often be a peer-influenced activity that is typical of immaturity in teens. • Substance use by youth clients may be an indicator of past trauma or disabilities and may be a means of self-medication to calm and/or numb feelings and memories. • Defenders should incorporate developmental research as mitigation where substance use was a factor in the offense charged. 12 Resource Brief for Juvenile Defenders APPENDIX ATTENTION-DEFICIT/HYPERACTIVITY DISORDER (ADHD) SYMPTOMS: People with ADHD show a persistent pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development: 1. Inattention: Six or more symptoms of inattention for children up to age 16, or five or more for adolescents 17 and older and adults; symptoms of inattention have been present for at least 6 months, and they are inappropriate for developmental level: °° Often fails to give close attention to details or makes careless mistakes in schoolwork, at work, or with other activities. °° Often has trouble holding attention on tasks or play activities. °° Often does not seem to listen when spoken to directly. °° Often does not follow through on instructions and fails to finish schoolwork, chores, or duties in the workplace (e.g., loses focus, side-tracked). °° Often has trouble organizing tasks and activities. °° Often avoids, dislikes, or is reluctant to do tasks that require mental effort over a long period of time (such as schoolwork or homework). °° Often loses things necessary for tasks and activities (e.g. school materials, pencils, books, tools, wallets, keys, paperwork, eyeglasses, mobile telephones). °° Is often easily distracted °° Is often forgetful in daily activities. 2. Hyperactivity and Impulsivity: Six or more symptoms of hyperactivity-impulsivity for children up to age 16, or five or more for adolescents 17 and older and adults; symptoms of hyperactivity-impulsivity have been present for at least 6 months to an extent that is disruptive and inappropriate for the person’s developmental level: °° Often fidgets with or taps hands or feet, or squirms in seat. °° Often leaves seat in situations when remaining seated is expected. °° Often runs about or climbs in situations where it is not appropriate (adolescents or adults may be limited to feeling restless). °° Often unable to play or take part in leisure activities quietly. °° Is often “on the go” acting as if “driven by a motor”. °° Often talks excessively. °° Often blurts out an answer before a question has been completed. °° Often has trouble waiting his/her turn. °° Often interrupts or intrudes on others (e.g., butts into conversations or games) Source: Centers for Disease Control and Prevention, Attention-Deficit / Hyperactivity Disorder (ADHD): Symptoms and Diagnosis, http://www.cdc.gov/ncbddd/adhd/diagnosis.html (last visited 3/13/2014). AUTISM SPECTRUM DISORDER DIAGNOSTIC CRITERIA A. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive): 1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-andforth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions. What Juvenile Defenders Should Know about the DSM-5 13 2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication. 3. Deficits in developing, maintaining, and understanding relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative paly or in making friends; to absence of interest in peers. [Specify current severity] B. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text): 1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypies, lining up toys or flipping objects, echolalia, idiosyncratic phrases). 2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns or verbal nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat food every day). 3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g, strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interest). 4. Hyper- or hyporeactivity to sensory input or unusual interests in sensory aspects of the environment (e.g., apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement). [Specify current severity] C. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life). D. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning. E. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be below that expected for general developmental level. Note: Individuals with a well-established DSM-IV diagnosis of autistic disorder, Asperger’s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. Individuals who have marked deficits in social communication, but whose symptoms do not otherwise meet criteria for autism spectrum disorder, should be evaluated for social (pragmatic) communication disorder. 14 Resource Brief for Juvenile Defenders AUTISM SPECTRUM ORDER SEVERITY LEVELS Severity Level for ASD Social Communication Restricted Interests & Repetitive Behaviors Level 3 ‘Requiring very substantial support’ Severe deficits in verbal and nonverbal social communication skills cause severe impairments in functioning; very limited initiation of social interactions and minimal response to social overtures from others. Inflexibility of behavior, extreme difficulty coping with change, or other restricted/repetitive behaviors markedly interfere with functioning in all spheres. Great distress/difficulty changing focus or action. Level 2 ‘Requiring substantial support’ Marked deficits in verbal and nonverbal social communication skills; social impairments apparent even with supports in place; limited initiation of social interactions and reduced or abnormal response to social overtures from others. Inflexibility of behavior, difficulty coping with change, or other restricted/repetitive behaviors appear frequently enough to be obvious to the casual observer and interfere with functioning in a variety of contexts. Distress and/or difficulty changing focus or action. Level 1 ‘Requiring support’ Without supports in place, deficits in social communication cause noticeable impairments. Has difficulty initiating social interactions and demonstrates clear examples of atypical or unsuccessful responses to social overtures of others. May appear to have decreased interest in social interactions. Inflexibility of behavior causes significant interference with functioning in one or more contexts. Difficulty switching between activities. Problems of organization and planning hamper independence. Source: Autism Speaks, DSM-5 Diagnostic Criteria, http://www.autismspeaks.org/what-autism/diagnosis/dsm-5-diagnosticcriteria (last visited 3/13/2014). What Juvenile Defenders Should Know about the DSM-5 15 National Juvenile Defender Center 1350 Connecticut Avenue NW, suite 304 Washington, DC 20036 202.452.0010 (phone) 202.452.1205 (fax) www.njdc.info The National Juvenile Defender Center (NJDC) is a non-profit organization that is dedicated to promoting justice for all children by ensuring excellence in juvenile defense. NJDC provides support to public defenders, appointed counsel, law school clinical programs, and non-profit law centers to ensure quality representation in urban, suburban, rural, and tribal areas. NJDC also offers a wide range of integrated services to juvenile defenders, including training, technical assistance, advocacy, networking, collaboration, capacity building, and coordination. To learn more about NJDC, please visit www.njdc.info. ©2014