Read the full 2012 Annual Report
Transcription
Read the full 2012 Annual Report
2012 Annual Report Facing Arthritis Working together to end pain and disability. Table of Contents From the President & CEO and National Chair.................................................................. 2 Faces of Arthritis............................................................................................................................... 3 Facing Up to Arthritis..................................................................................................................... 4 Facing the Past and Present....................................................................................................... 6 Facing the Climb............................................................................................................................... 8 Facing the Future............................................................................................................................. 10 Donors.................................................................................................................................................... 12 Arthritis Industry Forum................................................................................................................ 13 SNOW V................................................................................................................................................ 16 Arthritis Today: 25 years................................................................................................................ 18 Faces of Leadership........................................................................................................................ 19 From the CFO and Treasurer...................................................................................................... 21 Financial Report................................................................................................................................ 22 On the Cover Jeffery and Abbigale Wright, 11 and 13 years old, are two of the 300,000 faces of kids who live with arthritis. They take 20 medications a month in order to try and have a normal childhood. Meet other faces of Diagnosed with osteoarthritis at age 60, Eloise stays active. Read more about her and others at www.facesofarthritis.org. arthritis at www.facesofarthritis.org. From the President & CEO and National Chair Faces of Arthritis This past year has been a special one for the Arthritis Foundation. We’ve made important strides in When we think of “faces of arthritis,” the first thing that comes to mind are the diverse faces of people putting people and families with arthritis at the center of everything we do. We’ve connected more who live with the disease. You already know that arthritis does not discriminate by age, color, gender, people than ever before to the truth that ignoring arthritis is unacceptable and to the fact that we must socioeconomic class or any other dividing line. But that’s only part of the story. There are also faces take steps now to make arthritis a priority in the health and health care agenda of this country. We’ve of arthritis research. Of policy and advocacy. The faces of public health and consumer outreach. All of enhanced our programs to improve lives, including the Track + React® app, the Yoga DVD, new Online these are the faces of arthritis — and in order for us to succeed in our mission to find new, more effective versions of self-management programs, new newsletters and Put Pain in Its Place, in partnership with treatments and ultimately a cure for this disease in all its many forms, we must think of them together. the National Council on Aging. The Arthritis Foundation is uniquely positioned to pull together these many faces of arthritis. Through We’ve developed a new research agenda to stimulate new, innovative work in the field, explored the our relationships with doctors, legislators, pharmaceutical companies, government agencies, other relationships between our diverse populations and our diversity of researchers, and brought together voluntary health care organizations and many dedicated people, we work to synchronize the activities the stakeholders whose work will make a difference in the fight against arthritis. We’ve continued to that will make a difference to those with arthritis. advance the Arthritis Internet Registry, which will enable research into biomarkers that could lead to truly effective, personalized medicine. And we enabled the expansion of federal research and training In this report, you’ll learn how a professional athlete is doing what he can to make sure that juvenile arthritis doesn’t stop another child from realizing his or her dreams. You’ll see how the results of an funding for arthritis. Arthritis Foundation grant extend far beyond the initial research it funded to spur the pursuit of new We significantly advanced public policy strategies, publications and programs to help people increase questions and even inspired our next generation of leadership. You’ll read about people from different their physical activity, which is proven to help manage the effects of arthritis. We also led coalitions backgrounds coming together on an inspirational cycling tour of the California coastline, connecting and efforts to improve access to care, including co-support for the Patient’s Access to Treatment Act, with each other in new ways, united by the common goal to raise funds in support of the Arthritis H.R. 4209. Likewise, we expanded our regional advocacy efforts, particularly those targeted at the Foundation’s mission. And you’ll meet a young man who has not only been one of our most compelling state level where health care policy implementation will take place. And we expanded efforts to reach advocates, but who also inspired his high school to raise funds for us, as well. diverse populations with information about access to care and the importance of physical activity. Looking ahead, you can expect to see us continue pursuing initiatives that support our strategic objectives. We will increase promotional efforts to further raise awareness of the truth about arthritis: It We’ll tell you how we’re bringing the real experiences of people with arthritis to the drug development and testing process. We’ll explain how we’ve brought together researchers who might not be aware of each other’s work if not is not inevitable and it does not discriminate. for our convening efforts — and who are now collaborating to achieve new Of course all of these ambitious and important goals are only possible with the shared commitment results faster and more effectively than ever before. And we’ll show how and continued support of our members and sponsors. Your participation, through contributions of Arthritis Today, the modest publication we created back in 1987, has grown time, energy and resources, has never been more essential to our success. As always, we are to become a highly influential and powerful forum to demystify arthritis grateful for everything you do to support the Arthritis Foundation. Together, all of us — the faces of with useful information that can be used every day. arthritis — will make the difference that achieves our goals each year, and that ultimately will lead to our vision of finding a cure and ending the pain of arthritis for everyone. These stories — these faces of arthritis — are just a glimpse into the many ways that people like you are helping the Arthritis Foundation do something to end this debilitating disease for good. John H. Klippel, MD Daniel T. McGowan, President & CEO, Arthritis Foundation National Chair, Arthritis Foundation 2012 Annual Report 2 Siniya Grier, age 10, is one of the many faces of arthritis. She believes that people need to be more understanding about arthritis. Meet other faces of arthritis at www.facesofarthritis.org. 3 Arthritis Foundation “You don’t think about arthritis affecting kids under Proving that arthritis is not what you think it is, Colin Drummond and Madison Hawthorne are just two of the many faces of arthritis. Meet other faces of arthritis at www.facesofarthritis.org. 16. But it does.” - JIMMY ROLLINS, Professional Baseball Player A bowling alley seems an unlikely place for baseball explain that he believes the event has not only raised fans to raise money in support of children with money but also awareness among his teammates arthritis while meeting their local heroes. But thanks and the Philadelphia community. “I think because of to the commitment of Philadelphia Phillies shortstop this event, they understand how fortunate we are to Jimmy Rollins, his wife Johari and the Rollins Family be able to do what we do.” Foundation, that’s what happens every year at the annual “Basebowl,” held in 2012 at the upscale Lucky A Human Being First Strike bowling lanes in Philadelphia. The all-star shortstop is quick to answer when asked why he chose for his family foundation to Annual Event Raises Funds and Awareness support juvenile arthritis prevention efforts, covering The sold-out event enabled fans to meet many approximately 50 percent of the costs required to current and former baseball players, including run Camp JRA. “My career is baseball, but I’m a Rollins, Ryan Howard, Josh Lindblom, Chase Utley, human being first,” he says. “Every year, kids with JA Roy “Doc” Halladay, Carlos Ruiz, Tommy Greene, come up and tell me how I have made a difference Gary “Sarge” Matthews, Cole Hamels, Dominic in their lives and thank me for giving them the Brown, Mitch Williams and, of course, the Philly opportunity to go to the summer camp and be Phanatic mascot — all playing a very different sport surrounded with other kids who are dealing with than usual. Children with juvenile arthritis (JA) and similar issues. Every year I have collected artwork their families attended the event as special guests, and awards that the kids have made and presented and a deejay, tasty food and silent auction added to to me during the event, and every single award the excitement. is hanging in my sports memorabilia collection at home. Whenever you are in a position to help The Basebowl helps raise money to send children children, who are our future, it becomes imperative affected by JA to the Arthritis Foundation’s Camp Facing Up to Arthritis Arthritis is widely, and wrongly, thought to be a disease affecting “old people,” but, sadly, that is not the case. Colin, Madison and 300,000 other children understand the disruption that arthritis can cause to childhood. To help kids gain some normalcy, Philadelphia Phillies to do so. Through my foundation, I knew I could help JRA (Juveniles Reaching Achievement), a weeklong make a difference.” camp in Pennsylvania for kids with arthritis and other rheumatic diseases. “It can get a little He shares how meaningful the event has become competitive among my teammates, but we have a for him over time. “Seeing the difficulty these kids lot of fun every year,” claims Rollins, currently the go through on a daily basis really hits home for us. longest-tenured athlete in Philadelphia. Over the last few years, Johari and I have seen a lot of the same kids come to our event, and a special shortstop Jimmy Rollins uses his Jimmy Rollins Family Foundation to raise money to send “You don’t think about arthritis affecting kids under kids to Camp JRA in Pennsylvania. 16,” he adds, “but it does. I can’t imagine having to bond has been formed. We’ve seen them grow up and develop into young adults. I can’t tell you how wake up on the weekend and not being able to play rewarding that is for us. Making a positive impact on baseball, because I’m having a flare-up, or even just children’s lives and helping those in need is what the being able to get out of the house.” He goes on to 2012 Annual Report 4 Jimmy Rollins Family Foundation is all about.” 5 Arthritis Foundation The world’s leader in arthritis research since 1948, the Arthritis Foundation has invested almost $460 million to find not only better treatments, but, ultimately, a cure. Learn more at www.arthritis.org/research. Facing the Past and Present Every research project made possible by Arthritis Foundation funding shines a little more light on what causes arthritis, as well as how it can be treated and ultimately cured. Many times, the The Start of a Lifelong Pursuit “Much of today’s focus on research that can lead results of an Arthritis Foundation grant extend far beyond the initial project. Just ask Dr. Marie Originally trained as a biochemist, Dr. Marie Griffiths to personalized medicine — treatment matched to Griffiths, one of the Arthritis Foundation’s earliest grant recipients. had many potential career paths open to her in 1973. specific genetic factors — can be traced back to However, as an immunology fellow at the University our initial explorations,” Dr. Griffiths says. “A genetic of New Mexico’s department of medicine, she relationship is what we were looking for and that’s became intrigued by how little was known about where today’s scientists are seeing promising the exact cause of rheumatoid arthritis (RA). She opportunities for treatment and, ultimately, a cure.” wondered whether innovative culture techniques might show that the body’s own immune system Inspiration for the Future was attacking joint cells in RA patients. Her advisor, The influence of Dr. Griffiths’ original grant reached a prominent immunologist and rheumatologist, beyond her scientific network, as well. While Marie encouraged her to apply for one of the Arthritis Griffiths was pursuing her research career, her Foundation’s research fellowships, early precursors daughter, Jennifer, was growing up to become a to today’s Investigative Research Grants. The results scientist in her own right. After earning her PhD in of this initial research project were published in the physical chemistry at the University of California, Journal of Clinical Investigation, thus establishing Dr. Los Angeles, she started a biotech company in Griffiths as a solid investigator in the field. Switzerland, and then worked for a pharmaceutical company that sought new product partnerships for “That grant,” she affirms, “was key to my entering arthritis treatment. She is now chief mission officer into arthritis research, and staying with it, as each for the Arthritis Foundation. research question led to another that needed to The younger Dr. Griffiths remarks: “I came here with be answered.” firsthand knowledge of how the Arthritis Foundation A Growing Network of Collaboration can bring together so many different entities — Dr. Griffiths early on proposed that the onset and from independent investigators to pharmaceutical variability in disease severity existing among RA companies, health insurance agencies, public health patients involves many different genes and gene organizations, governments and more — to improve combinations, regulating both immune responses and accelerate everyone’s understanding of arthritis, and inflammation. Pursuit of this hypothesis led in all its forms. There has never been a more exciting her to establish collaborative relationships with time to participate in the fight against this disease.” laboratories all over the country, including the Marie Griffiths is now retired from active research, University of Tennessee, the Mayo Clinic and but not from facing arthritis head-on. That chain the National Institutes of Health. It also opened from the initial research grant remains unbroken. up opportunities for subsequent funding from “My mother is now one of our e-Advocates,” says other organizations, “because that initial grant Jennifer Griffiths with a smile. “So, in many ways, from the Arthritis Foundation demonstrated my that 1973 grant is still producing results.” capacity for well-grounded research in a new and intriguing direction.” 2012 Annual Report 6 7 Arthritis Foundation Tracie Seimon, center, and her rheumatologist, Dr. John Hardin, left, and husband, Anton Seimon, embarked on the California Coast Classic together. Learn more about Arthritis Foundation events at www.arthritis.org/programs-events. Challenging Ourselves to Go the Distance was, thanks to advances in arthritis treatment, Eight days. More than 500 miles. Magnificent riding a bicycle down the Pacific Coast.” Pacific Coast scenery. And the encouragement “It was an amazing experience,” recalls Seimon. of nearly 300 other bicyclists, all united by a “All of us were riding to fight arthritis. All of us common goal: to fight arthritis. Each year, that’s were sharing our stories and listening to other what happens at the California Coast Classic people’s stories. Biking eight hours a day for eight cycling tour, whose participants and sponsors days could be painful. But it’s the kind of pain that raised almost $1 million in 2012. comes from challenging yourself and knowing The ride attracts a wide variety of participants, you’ve given your all. It’s so different from the ranging from active cyclists to people who pain of RA.” got their first bike specifically for this ride. For Dr. Hardin notes that while advances in drug one 2012 participant, Tracie Seimon, the ride therapy are making a substantial difference to represented the progress she had made fighting many people with arthritis, “The drugs don’t work the impact of arthritis on her own body. First for everyone, and we have not yet found an actual diagnosed with rheumatoid arthritis (RA) in 2010, cure. That’s why programs like the California Coast she had experienced crippling pain in her feet and Classic, as well as arthritis walks and runs held all other joints, accompanied by swelling, fatigue over the country, remain so vital to our goal.” and fever. Her physician, Dr. John Hardin, the Arthritis Foundation’s director of osteoarthritis “The Arthritis Foundation was so supportive research, prescribed aggressive biologic drug during the ride,” Seimon adds. “But that didn’t therapy, which had a dramatic impact on Seimon’s surprise me. They were the best source for condition. Indeed, it was so great that Dr. Hardin, credible information when I was first diagnosed. Seimon and her husband decided to ride together They’re the source of opportunity for kids to in the California Coast Classic. learn to manage their arthritis at camp. They’re the source of funding for the research that’s so “What a different, profound experience it was to important to the future. I’m sure they’ll be the ride with Tracie,” says Dr. Hardin. “Not so long Facing the Climb At any given time of the year, multiple events to benefit the Arthritis Foundation are being planned, held, evaluated and planned again for the next year. Our walks, runs, rides and other events are essential elements of our fundraising process. But equally important, they connect people with a common interest in making a difference in the fight against arthritis — all while participating in the kinds of healthy activities that can help temper the effects of the disease. There are, of course, as many moving, powerful stories that come out of these events as there are source of a cure one day. They’ve already done so ago, the only wheels she might have looked much over the last several decades — and I know forward to were on a wheelchair. But here she they won’t stop until the job is done.” “Programs like the California Coast Classic, as well as arthritis walks and runs held all over the country, remain so vital to our goal.” - Dr. John Hardin participants. This is one of them. 2012 Annual Report 8 9 Arthritis Foundation Facing the Future Everyone’s response to a diagnosis of arthritis is different and personal. For Christian Smith, diagnosed with juvenile arthritis in 2007, it meant becoming an advocate, working to make a difference in his own life and the lives of others. In fact, Christian is so motivated by his own experience with arthritis that he plans to become a pediatric rheumatologist so that other children do not have to live in pain and not know why. Find out more about the Arthritis Foundation’s advocacy program, its accomplishments and how you can get involved at www.arthritis.org/advocacy. Change can come from the efforts of a small group Foundation. “Educating that many people makes a of dedicated individuals — or even just one person. difference in the fight against arthritis and it made Meet 15-year-old Christian Smith. Since his diagnosis a huge difference to me. Before, they might see ‘the with juvenile rheumatoid arthritis (JRA) in 2009, he limping kid,’ and look down on me. Not anymore.” and his mother, Kim Smith, have become passionate Christian’s efforts are yet another example of advocates for people with arthritis. “Without how the dedication of one can make a dramatic advocacy, how will our elected officials learn about difference for many. When the symptoms of his what we need?” Christian asks. arthritis first began to show seven years ago, Thanks to Christian’s efforts, however, more elected Alabama was the largest of several states with no officials know those facts. Shortly after he was pediatric rheumatologists, contributing to multiple diagnosed, he met with U.S. Rep. Spencer Bachus, misdiagnoses that did nothing to alleviate Christian’s an early member of the Congressional Arthritis symptoms. Fortunately, led by a small group of Caucus, which serves as a clearinghouse for people who passionately believed that Alabama information on arthritis and as a bipartisan forum could no longer lag in this area, the division of to aid members of Congress to work together to pediatric rheumatology at the University of Alabama address arthritis. “At first, I was terrified,” admits at Birmingham (UAB)/Children’s Hospital of Christian. “But as soon as I walked through the door, Alabama was established. Congressman Bachus said he wanted to help. That Former National Chair, Brunson White, recalls: empowered me to want to do more.” “Sometimes, the right thing to do is so challenging “More” may be an understatement to describe that it is almost unimaginable. I knew we had to Christian’s efforts. He has taken a leading role in make this happen. In fact, I wondered how we advocating for an end to the discriminatory practice had not done it sooner.” White, along with other of co-insurance for expensive medications, like key leaders, led the charge to raise the $1 million those for arthritis. Thanks to business connections necessary to establish an endowed chair in pediatric of the Smith family, the coalition met with state Sen. rheumatology and the dedicated clinic facility that Greg Reed, who chairs the Alabama Senate Health opened in 2007. Committee. As a result, Sen. Reed introduced a bill Demand for the center was so strong that Christian in the Alabama Senate before the legislative session had to wait six months for an appointment. Even ended, banning prohibitively expensive specialty so, a clear diagnosis of arthritis was a relief to him tiers in the state. Christian returned to Washington, and his family — and the start of treatment that D.C., in 2012 to testify nationally about the effect of would change his life for the better. “The doctors at specialty tiers on patients and their families. UAB are just brilliant,” he says. “They find answers Christian’s efforts have extended beyond legislative that nobody else could; answers that have made it advocacy. When he shared his story with Vestavia possible for me to literally stand up for others.” Hills High School peers, the school’s students responded, raising $10,000 for the Arthritis 2012 Annual Report 10 11 Arthritis Foundation DONORS BREAKTHROUGH SOCIETY $1,000,000 and above UCB Group Stamina Products Inc. Fiskars Americas Ms. Laura Miller & Mr. Keith Miller Saint Francis Hospital Walmart Foundation Flexon Industries New England Baptist Hospital AbbVie Inc. Wells Fargo Advisors State of Tennessee Department of Health French Hospital Medical Center Northside Hospital Schering Corporation, A Subsidiary of Merck & Company Stryker Orthopaedics Genzyme Nustep Inc. Tempur-Pedic International Inc. GlaxoSmithKline NYU Langone Medical Center TOPS Products/RR Donnelley Glendale Adventist Medical Center Omaha Community Foundation Wasserman Foundation Hartford Hospital Oreck Corporation Mrs. Virginia Wheeler Horizon Pharma Inc. Mrs. Ginger Overbey Hospital for Special Surgery Palm Healthcare Foundation Inc. Swenson Granite and Mr. & Mrs. Kurt Swenson Takeda Pharmaceuticals, USA Inc. Bristol-Myers Squibb Pfizer Inc. JUBILEE SOCIETY $50,000 - $99,999 DISCOVERY SOCIETY A. W. Anderson Foundation $500,000 - $999,999 Acorn Stairlifts Inc. Amgen U.S.A. Inc. AstraZeneca Pharmaceuticals LP Adolph & Ruth Schnurmacher Foundation Charles & Mildred Schnurmacher Foundation State of West Virginia Mr. & Mrs. Herman Bolden ENRICHMENT SOCIETY Hoveround Corporation The Carrell Clinic $25,000 - $49,999 The Huntington National Bank Panasonic Systems Networks Company of America Celgene Corporation Adams Foundation Krafts Foods Group Inc. Mary Parker The Alma M. & Harry R. Templeton Medical Research Foundation Christ Hospital Advanced Health Media Kroger Pawlowski Family Foundation Tramontina USA Inc. Johnson & Johnson Health Care System Cincinnati Concours D’Elegance Foundation Akron General Health System Mr. and Mrs. Tom Kubiak The Peierls Foundation Inc. Mr. & Mrs. David A. Trebour Le Creuset of America Troy Healthcare LLC Massage Envy Franchising LLC Coventry HealthAmerica Allianz Life Insurance Company of North America The Thomas F. Peterson Foundation Legendary Pictures Inc. Physician’s Technology LLC David V. Uihlein Foundation Pharmavite LLC Delta Air Lines The Anschutz Foundation Mrs. Shirley Liebhaber Pilot Corporation of America University Hospitals Desert Healthcare District Apothecary Products Inc. Richard V. Mahony Pollock Paper Distributor Uplift Technologies Inc. ADVANCEMENT SOCIETY Saul & Theresa Esman Foundation Bank of America uVu Lid Company LLC $300,000 - $499,999 Eli Lilly & Co. Bio-Medicines Mr. & Mrs. Steve Benson J. Willard & Alice S. Marriott Foundation Premier Care in Bathing Purdue Pharma LP Vons Foundation Endo Pharmaceuticals Inc. Blue Cross Blue Shield McCormick & Company Inc. The Queen’s Medical Center Warner Bros. Entertainment Inc. Ford Motor Company BMW Santa Barbara Mrs. Jean McDonough Rexam Plastic Packaging Inc. The Wasily Family Foundation Mr. Robert B. Friedman Brownmed MeadWestvaco The Rhode Island Foundation Wright Medical Technology Inc. The John & Marcia Goldman Foundation The Llewellyn Burchell Charitable Trust Memorial Foundation Inc. Summerfield G. Roberts Foundation Zions Bank Milgard Windows & Doors Safe Step Walk-In Tub Co. HealthSouth W. Z. Burkhead, MD The Hoag Foundation Mrs. Sheila O’Connor Burns Hoffman Auto Group and Mr. & Mrs. Bradley Hoffman Cardinal Brands Inc. Homestead Baking Company Inc. and Mr. & Mrs. Peter Vican Chesapeake Energy Corporation November 2012 marked the fourth Arthritis Industry “The Arthritis Industry Forum connected people who will Chickasaw Nation McNeil Consumer Healthcare, Division of McNeil-PPC Inc. Diane Lynn Family Foundation Forum, convened by the Arthritis Foundation to bring drive health care reform implementation to the people The Colorado Health Foundation Marilyn & Charles F. Meier together 50 industry stakeholders representing 20 with arthritis whose lives will be directly affected,” says Novartis Pharmaceuticals Corporation Novo Nordisk Inc. The Community Foundation of Middle Tennessee organizations, including pharmaceutical, biotech, Rick Bell, Arthritis Foundation managing director of cause Partners HealthCare Connect America academic and governmental institutions, as well as the development. He adds that the forum also promoted the PhRMA Creative Artists Agency Food and Drug Administration (FDA), the Centers for importance of patients’ voices in the drug development Mr. & Mrs. W. Davis Pilot Jr. Crescendo Bioscience Inc. Disease Control and Prevention (CDC), and the National and approval process. “The pharmaceutical industry may Robert Glenn Rapp Foundation CVS Corporation Institutes of Health’s National Institute of Arthritis and be pursuing drugs that address pain. But people with Jimmy Rollins Family Foundation Devon Energy Corporation Musculoskeletal and Skin Diseases (NIH/NIAMS). arthritis would tell them that fatigue can be just as bad,” Rothman Institute Direct Digital LLC The event enabled unfiltered public health discussions says Bell. “That kind of input can spur the FDA to reach out Harry & Carol Saal Family Fund DJO Global Inc. and idea sharing to collaboratively address the prevention, to the industry before a lot of money is spent to develop Shuzi Hawaii LLC Duracell, A Division of Procter & Gamble Company control and cure of arthritis. drugs that only deal with part of the problem. It’s a change Bayer HealthCare LLC Genentech Independent Order of Odd Fellows & Rebekahs Alpha Omicron Pi Foundation US Nutrition Inc. Zimmer Inc. CENTURY SOCIETY $100,000 - $299,999 Davmar Inc. William & Muriel Elliott Foundation Genentech/Biogen Idec Joint Juice Inc. The Patterson Foundation Peak Life LLC Pratt Family Foundation Purdue University Roche Diagnostics Corporation Schiff Nutrition Group Inc. South Carolina Department of Health and Environmental Control 2012 Annual Report 12 Arthritis Industry Forum Creates New Opportunities The Caring Foundation in process that creates very exciting opportunities.” 13 Arthritis Foundation DONORS (CONTINUED) INVESTMENT SOCIETY Ms. Frances Castle DST Systems Inc. Edith H. Nixon $10,000 - $24,999 Mr. & Mrs. Tom Dunlay Hartford Foundation for Public Giving Kelly Liebhart Centerpoint Energy Inc. Local 40, Iron Workers North Central Surgical Center LLP AEP Ohio Centura Health Dynasplint Systems Inc. Hawaii Pacific Health Loeb & Loeb LLP North Shore LIJ Aetna Rowland W. Chang, MD Mr. & Mrs. Frank Longobardi Norton Orthopaedic Alagasco Christ Hospital East Commerce Solutions Inc. and Mr. & Mrs. Edward Medeiros The Hearin-Chandler Foundation Dr. & Mrs. Anthony K. Hedley Alere Health Systems Inc. The Church of Jesus Christ of Latter-Day Saints Foundation George S. and Dolores Doré Eccles Foundation Heritage Bag Company Love’s Travel Stops & Country Stores Inc. Laura Lee Pattillo Norquist Charitable Foundation CIC Foundation Inc. Echelon Medical LLC Hill Crest Foundation Inc. Lewis and Joan Lowenstein Foundation Ohio Orthopedic Center of Excellence Clarity, A Division of Plantronics Inc. EMH Healthcare Hoag Memorial Hospital Presbyterian Main Line Health System Dennis R. & Boki Olden Celia R. Clark, Esq. Enterprise Holdings Mr. & Mrs. Forrest E. Hoglund Manatee Community Foundation Omnicom Clark & Gentry PLLC Robert Epstein Family Foundation The Home Depot Foundation Marborg Industries Cleveland Clinic Orthopaedic and Rheumatologic Institute Ernst & Young Home Instead Inc. The Martin Family Fund Mr. Christopher “Kip” O’Neill & Martha Casey Mr. & Mrs. James H. Everest The Hougen Foundation Cline, David & Man LLC Federman, Lally & Remis LLC Humana CNO Financial Group The Hygenic Corporation John Coalson and Alston & Bird LLP The Feinstein Institute for Medical Research Peter D. McCann, MD/Donald M. Kastenbaum, MD, Department of Orthopedic Surgery, Beth Israel Medical Center J. H. Cohn Foundation Ms. Marcia Feldman IBM Medical Mutual of Ohio Columbus Medical Research Foundation Ferring Pharmaceuticals Inc. Illinois Bone & Joint Institute Ltd. Mr. & Mrs. Elliot Megdal Ms. Arlene G. Inch Mercy Health Comerica Fidelity & Surety Law Committee Indiana Orthopaedic Hospital The Methodist Hospital Community Bank Fidelity Charitable Intex Solutions Inc. Panorama Orthopedics & Spine Center Mrs. H. L. Metzger Mr. & Mrs. Doug Patterson Community Trust Bank of Texas The Firmage Group The James Irvine Foundation Robert R. Meyer Foundation Thomas J. Paul Inc. Continuum Health Partners First Foundation Bank Mr. & Mrs. Lee Jackson Tom & Judy Pendergast Country Fair White Elephant Inc. Flushing Savings Bank Frank K. Johnson Trust & Susan Johnson Robbins, Trustee Michigan Department of Community Health Credit Suisse Americas Foundation Foot Levelers The K. H. Jordan Foundation Dr. & Mrs. Lawrence Crossett Forest City Enterprises Project Ms. Kimberly Juilfs Crosslinks Orthopaedics LLC Dr. Richard & Mrs. Adrianne Freiberg MidFirst Bank Ms. Ann Juster Cruel & Unusual Films J.B. Fuqua Foundation Inc. Midwest Orthopaedics at Rush The Kindred Foundation Depuy Synthes, Companies of Johnson & Johnson Paula & John Gambs Ms. Carol Kling Gordon H. & Karen M. Millner Family Foundation Mr. & Mrs. Doug Garn Deseret Media Companies KnowledgePoint360 Group LLC Mr. Martin J. Gavin Deutsche Bank Kohl’s Mississippi Sports Medicine & Orthopaedic Center GE Real Estate Mob Scene LLC Mr. & Mrs. Paul Devereux Michael J. Kosloski Foundation Genuine Parts mOcean LLC Joe Devine Ms. Laverne Kukla Gila River Gaming Enterprises Inc. Moffatt Revocable Trust Mrs. Martha Dietler Kullgren Family Charitable Trust Dorothy Mulholland Gillespie Trust Moglia Family Foundation Disney Worldwide Services Inc. LAgraphico Inc. Dwaine A. Godfrey Family Fund Mr. & Mrs. James Moore The Sandy Donaty Yellow Rose Foundation David & Susan Landow Mr. David S. Goyer Dr. & Mrs. Robert W. Langdon Mott Community College The Green Foundation John & Ozzie LaScala Joseph E. & Suzanne Mumford Mr. & Mrs. Douglas Grewcock Len Immke Buick Inc. MVP Health Care Leo S. Guthman Fund Mrs. Harry Lenart National Spine & Pain Centers Haggett Trust Lewis Gale Medical Center Mr. and Mrs. Joe Nellis All Waste Charitable Foundation American Direct Marketing American Laser Skincare Area Agency On Aging 1B Argonne National Laboratory Arizona Community Foundation Arthrex Arthritis Foundation Orange County Auxiliary Athletico Physical Therapy Atlanta Foundation Baptist Health Systems Mr. & Mrs. Donald M. Barr BBK BB&T Believe Media Inc. Robert H. & Tara Bennett R. Tom Benson Bethesda Senior Living Communities Blackbaud Inc. BMO Harris Bank N.A. Bone & Joint Hospital Mr. & Mrs. Charles K. Bowen Dr. Mark S. Box The Braddock Foundation Mary Allen Lindsey Branan Foundation Brashares Family Foundation Brescome Barton Inc. Mr. & Mrs. Robert D. Brody Kristin Burke California Rheumatology Alliance Mr. & Mrs. Robert A. Campbell Capitol Federal Foundation Cardinal Health The Cardinal Orthopaedic Institute 2012 Annual Report David Donten DOODADS LLC The Dover Fund Drexel University 14 The Fialkoff Family PJ and Rod Handeland Ms. Barbara B. Herman Michigan Elks Association Major OrthoIndy Orthopaedic & Spine Center OrthoVirginia Mr. & Mrs. Michael V. Ortman Jane D. Owen Ms. Pam Palagi Pennsylvania Moose Association Wesley & Cecile Perich Frances Phillips Pilot Catastrophe The Piston Group Price Family Charitable Fund PriceWaterhouseCoopers Promontory Financial Group LLC Prudential PSEG Nicholas Savko & Sons Inc. 15 Publicis Touchpoint Solutions Quality Building Maintenance Quest Software Inc. Rabobank Ms. Shelley Resnik Resurgens Orthopaedics Rheumatology & Dermatology Associates PC Mr. & Mrs. Wayne M. Richard Arthritis Foundation DONORS (CONTINUED) River Oaks Health System The Slomo & Cindy Silvian Foundation Inc. Stifel UMass Memorial Medical Center Leora Clarkson Clarity, A Division of Plantronics Inc. Stormont-Vail HealthCare Union Bank of California Frances Darcangelo Connect America The Sidney, Milton & Leoma Simon Foundation Swarovski North America Ltd. University of Arkansas Virginia Engalitcheff Davmar Inc. Swedish Orthopedic Institute Richard Engelhardt DJO Global Inc. The T & T Trust University of Pittsburgh Medical Center Mary Everts DOODADS LLC Target UNT Health Bone and Joint Institute Shirley Fett Mr. & Mrs. Edward L. Taylor UNT Health Science Center Grace Fischer Duracell, A Division of Procter & Gamble Company Tellus Operating Group LLC Utah Jazz James Grassick Fiskars Americas Texas Children’s Hospital Utah Rheumatology Alliance Elizabeth Hofert-Dailey Flexon Industries Southview Medical Center Thomas Jefferson University Valero Energy Foundation Arlene Hynes Hoveround Corporation The Spaulding Foundation Tina C. Foundation Inc. Katherine Vaughan Alice Isen Spectrum Health Toyota Dealer Match Program Walgreens Virginia Joslin Johnson & Johnson Health Care System Spudman Charity Open Travelers Lillian Wallace Trust Ardyne Klahn Treasure Island Resort & Casino Webster Bank Gladys Kleist Wendy J. Seldon Family Foundation St. George University School of Medicine TriHealth Weil, Gotshal & Manges LLP Lucille Koch Shim Spine STAR Orthopaedics Inc. State of Missouri The Harry & Jeanette Weinberg Foundation Kathryn Kruger Mr. & Mrs. David Shuey UC Health Orthopaedics & Sports Medicine Roberts Hawaii Mr. Jeffrey Robinov ROMCO Equipment Services Michael Alan Rosen Foundation Rothman Orthopaedic Specialty Hospital Mr. & Mrs. Stanford K. Rubin, Esq. Mr. & Mrs. Paul Rubschlager RV Infusion Partners LLC Rx Mosaic Health LLNS The Sani Family Foundation Inc. Savient Pharmaceuticals Inc. Robert E. Schneider Foundation Ms. Dorothy I. Simonetti-Guhl Slocum & Sons Inc. Dorothy D. Smith Charitable Foundation Southern Orthopedic Specialist/ OrthoAtlanta SNOW V Introduces New Intervention Initiative The Arthritis Foundation’s fifth Segal North American different sources can be standardized and used together Osteoarthritis Workshop (SNOW V), held in May 2012, to identify ways in which early intervention may slow or opened the door to research collaboration that can make stop the subsequent development of the disease. a difference in the fight against arthritis. “SNOW is the Otto C. Winzen Memorial Advised Fund of the Catholic Community Foundation Milgard Windows & Doors Helen Lewis Marcella Messer Samuel Miller Novartis Pharmaceuticals Corporation Novo Nordisk Inc. Nustep Inc. J.W. & Ethel I. Woodruff Foundation Jerome Nerenberg Workers Compensation Fund Anna Palfreyman Panasonic Systems Networks Company of America Works Advertising Marie Riebe Pfizer Inc. Mr. Jess H. Wright Agnes Rugg Physician’s Technology LLC Paul & Eleanore G. Ziegelmaier Endowment Fund of the Sacramento Region Community Foundation Mary Rutherford Pilot Corporation of America Frances Sharpe Premier Care In Bathing Robert Siegel Rexam Plastic Packaging Inc. Sarah Skinner Roche Diagnostics Corporation Roy Thomas Safe Step Walk-In Tub Co. Margaret F. Thompkins William Wolverton Schering Corporation, A Subsidiary of Merck & Company Frederick Woodworth Shuzi Hawaii LLC Jane Wyman Stamina Products Inc. over the last two years,” asserts Dr. Christian Lattermann, health ACL injury prevention initiative. “There are clear a sports physician whose research into the relationship ways to strengthen and protect these vulnerable joints that between anterior cruciate ligament (ACL) knee injury and don’t slow athletes down or keep teams from winning,” osteoarthritis (OA) is supported by an Arthritis Foundation points out Dr. Patience White, the Arthritis Foundation’s 2012 BEQUESTS Innovative Research Grant. “It connects experts who vice president of public health policy and advocacy. SNOW $1,000,000 and above typically don’t talk together — rheumatologists, V presenter and team physician for the Chicago Bulls, Dr. Donald Carlson Orthopedic surgeons and researchers — all interested in Brian Cole, adds: “This is a highly important issue that NBA Junia Tyler post-traumatic arthritis. It’s a brainstorming opportunity team physicians are actively discussing. It’s so much better we wouldn’t find at a sports medicine or rheumatology to be proactive than reactive.” $100,000 - $999,999 Selma E. Andrews Dr. Lattermann concludes: “I’ve repaired so many Martha Baughman The latest conference introduced the Arthritis Foundation’s significant joint injuries in young athletes to get them back Lucille Bieze new ACL Intervention Initiative, which will use the on the playing field. But now, we’re seeing people between Marion Butler commonly injured knee ligament as a model to investigate 30 and 50 with osteoarthritis, and it’s the same people. Evelyn Carroll biomarkers that may predict the development of OA. That has to change — and with the support of the Arthritis Mary D. Clapham The study also demonstrates how images and data from Foundation, I believe we can make it happen.” Franciszka Clark 16 MeadWestvaco Annie Morris Concurrently, the Arthritis Foundation will begin a public 2012 Annual Report Le Creuset of America Wood-Claeyssens Foundation most valuable and important conference I’ve attended conference.” Krafts Foods Group Inc. Oreck Corporation Tempur-Pedic International Inc. Ease-of-Use Sponsors TOPS Products/RR Donnelley AbbVie Inc. Tramontina USA Inc. Acorn Stairlifts Inc. Troy Healthcare LLC Amgen U.S.A. Inc. UCB Group Apothecary Products Inc. Uplift Technologies Inc. Bayer HealthCare LLC uVu Lid Company LLC Brownmed 17 Arthritis Foundation ✱ DRUGS IN THE PIPELINE ✱ JAW PAIN FIXES HAPPIER HOLIDAYS UE th Y 2R5SAR S IS E IV NN A Faces of Leadership ADVICE FROM THE EXPERTS YOU TRUST Better Than Ever! 25 YEARS OF PROGRESS THE FUTURE OF JOINT REPAIR HOW TO RELAX IN A FLASH PREVENT DIABETES YEARS OF TRUST 3 SIMPLE STEPS BACK ON TOP AMYE LEONG left her wheelchair – and became a powerful advocate on the world stage Board Officers & Executive Committee Directors Emeritus Daniel T. McGowan, Chair | Centerport, N.Y. Charles L. Christian, MD | Amelia Island, Fla. Rowland W. (Bing) Chang, MD, MPH, Vice Chair | Chicago, Ill. David C. Clapp | Tequesta, Fla. Patricia Novak Nelson, CLU, ChFC, FLMI, Vice Chair | Healdsburg, Calif. Armin U. Kuder, Esq. | Washington, D.C. Michael V. Ortman, Secretary | Ellicott City, Md. Debra R. Lappin, JD | Denver, Colo. Peter W.C. Barnhart, Treasurer | Worthington, Ohio Richard L. Lautzenheiser, MD | Indianapolis, Ind. David E. Shuey, Immediate Past Chair | West Chester, Pa. Glenn T. Marrichi | Lake Bluff, Ill. Peter R. Martin | Saratoga Springs, N.Y. Pattye L. Moore, APR | Edmond, Okla. Pamela R. Massey, PT, MS | Montgomery, Texas William J. Mulvihill | Cincinnati, Ohio Janalee Taylor, MSN, RN, CNS, CPNP | Cincinnati, Ohio Eugene Overfelt, CPA | Salt Lake City, Utah Jerry G. Langley | Notre Dame, Ind. DECEMBER 2012 Cecile K. Perich | Sparks, Md. Arthritis Today WWW.ARTHRITISTODAY.ORG The Face of Arthritis for 25 Years Board of Directors Laura Robbins, DSW | New York, N.Y. Bruce D. Ashcroft | Salt Lake City, Utah Stanford K. Rubin, Esq. | Los Angeles, Calif. Kenneth G. Baltes, PhD | White Bear lake, Minn. William W. Satterfield | Little Rock, Ark. Allen J. Cizner | Chicago, Ill. L. Brunson White | Vestavia Hills, Ala. K. Andrew Crighton, MD | Newark, N.J. Santiago M. de Solo, MD | Miami, Fla. National Leadership In 1987, the Arthritis Foundation launched a The printed publication’s success spurred Arthritis Catherine T. Dunlay, Esq. | Columbus, Ohio modest new publication as a benefit of Foundation Today to expand its reach via a dedicated Web John H. Klippel, MD, President & CEO | Atlanta, Ga. Helen M. Emery, MD | Seattle, Wash. Roberta K. Byrum, CPA, Chief Operating Officer | Atlanta, Ga. membership. Its stories included self-help ideas and presence in 2007, which grew to attract more than John A. Gilpin | Baltimore, Md. Christopher Corrigan, Chief Financial Officer | Atlanta, Ga. information ranging from medication options to 12 million page views in 2012. Today, as part of Tanya N. Hairston-Whitner, JD | Atlanta, Ga. Meagan Fulmer, Chief Development Officer | Atlanta, Ga. a broader focus on consumer health, it provides E. Robert Harris, MD, FACR | Whittier, Calif. Jennifer Griffiths, PhD, Chief Mission Officer | Atlanta, Ga. symptoms. As Arthritis Today grew, it not only became access to interactive tools and information, John A. Heydt, MD | Riverside, Calif. a major channel for information about managing including Track + React, Body Part Lookup, Margaret Oldham Jackson | Dallas, Texas choosing the right exercises to help manage arthritis the disease. It also became a forum for people with drug and supplement guides, online versions of arthritis — including many celebrities — to talk openly self-management programs and newsletters. about their experiences, helping to destigmatize and The Arthritis Today website has re-launched demystify the many forms of the disease. as a comprehensive site all about Living With Arthritis. With that kind of history, it’s no wonder that Arthritis Today’s readership grew dramatically to today’s McDaniel believes that the magazine’s ongoing base circulation of 715,000, which translates into an success is due in part to an editorial focus on being estimated four million readers per issue (including a “trusted friend to the whole person living with passalong readership, doctor’s office readers, etc.) arthritis. We listen closely to what consumers tell us “That growth is a remarkable success, especially at they are interested in, and we respond with content a time when many magazines are seeing declining that is medically accurate, balanced, based on readership,” states Cindy McDaniel, Arthritis Today evidence and confirmed by multiple sources — but publisher and Arthritis Foundation vice president of always geared to helping people live better.“ Field Leadership George Liberatore | Milwaukee, Wis. Suzanne Bliss, Northeast Region CEO | New York, N.Y. Kip Lilly, MAUS, IOM | St. Paul, Minn. Susan Carter, South Central Region CEO | Dallas, Texas Frank P. Longobardi, CPA | Glastonbury, Conn. Stephen Evangelista, New England Region CEO | Kevin S. Mandrell, CLU, RHU | New Palestine, Ind. Rocky Hill, Conn. Kevin C. Short | Bixby, Okla. Tom Fite, CAE, CFRE, Heartland Region CEO | Chicago, Ill. Laurie Stewart | Seattle, Wash. Karen Larson, Upper Midwest Region CEO | St. Paul, Minn. Suzanne Taylor | Tulsa, Okla. Manuel Loya, Pacific Region CEO | Los Angeles, Calif. Kelli L. Thompson | Knoxville, Tenn. Barbara Newhouse, Mid Atlantic Region CEO | Bethesda, Md. Peter Vican | East Providence, R.I. Christopher Smith, Great Lakes Region CEO | Cleveland, Ohio W. Hayes Wilson, MD | Atlanta, Ga. Scott Weaver, Great West Region CEO | Seattle, Wash. Janet S. Wyatt, PhD, RN, CRNP, FAANP | Round Hill, Va. . consumer health. 2012 Annual Report 18 19 Arthritis Foundation From the CFO and Treasurer The Arthritis Foundation’s total revenue in 2012 was $101 million. Donors continued to contribute generously to the Foundation, with over 530,000 donors giving in 2012. We raised $89 million from donors and other sources in 2012. This represents a 12 percent decline over the amounts raised in 2011. The weak economy, higher gas prices and uncertainty about tax changes hindered fundraising across many of the Foundation’s revenue sources. Expenses in 2012 were even with those in 2011, as we continued to support our key mission programs. Despite lower donor revenues in 2012, the Foundation spent $900,000 more on research grants and awards in 2012, an increase of 9 percent. The Foundation’s net assets declined by $10.1 million in 2012 due in part to the decline in fundraising revenue and in part to spending from restricted funds for the research program. The increase in the market value of our invested assets somewhat lessened the decline in net assets. In the field of nonprofit health care advocacy and support, the best practice is to direct at least 75 percent of all funds raised toward program services. Once again, the Arthritis Foundation has exceeded this standard, with 78 percent of our expenses spent on improving the lives of people with arthritis through research, public health education, public policy and patient and community service efforts. The accounts and financial statements of the Arthritis Foundation are maintained in accordance with generally accepted accounting principles for nonprofit organizations as established by the American Institute of Certified Public Accountants. For a complete copy of our annual financial audit report, conducted by BKR Metcalf Davis LLP, and our nonprofit tax return (IRS form 990), contact the Finance Department at the Arthritis Foundation’s National Office at 1330 West Peachtree Street, Suite 100, Atlanta, GA 30309, or visit www.arthritis.org. Christopher CorriganPeter Barnhart Chief Financial Officer, Arthritis Foundation It’s a myth that arthritis is a disease of older people. Just ask Lynette Hernandez, who wishes she could run and play more. Learn more about juvenile arthritis www.KidsGetArthritisToo.org. 2012 Annual Report 20 21 Treasurer, Arthritis Foundation Arthritis Foundation Financial Report Statement of Financial Position PUBLIC SUPPORT AND REVENUE ASSETS s s Cash and Cash Equivalents Contributions Bequests $20,523,31623% Investments $97,096,351 19% 36% s Special Events (net) $19,917,387 22% s Government Grants and Other Income $17,085,819 19% $89,109,441 100% Donor and Other income Investment and Other Non-operating Income Total Income $14,749,512 $31,582,91936% 22% 23% Accounts and Notes Receivable (net) $2,541,097 Contributions Receivable (net) $13,634,461 Prepaid Expenses and Other Assets $13,380,011 Inventory $499,106 $11,422,110 Beneficial Interests in Perpetual Trusts $30,940,150 $100,531,551 Property and Equipment (net) $9,364,900 Total Assets $182,205,588 LIABILITIES Accounts Payable $4,362,293 EXPENSES s Public Health Education $43,582,746 40% s Patient and Community Services $26,613,833 24% s Research $13,454,24112% s Fundraising 10% 2% s Management and General 12% 40% $13,226,66712% Professional Education and Training Total Expenses $11,317,962 10% $2,374,123 2% $110,569,572 100% $7,901,539 Research Awards and Grants Payable $8,155,946 Liabilities Under Split Interest Agreements 12% s Accrued Expenses and Other Liabilities $10,053,468 Debt Obligations $3,683,975 Total Liabilities $34,157,221 NET ASSETS 24% Unrestricted$32,257,851 Temporarily Restricted $44,984,637 Permanently Restricted $70,805,879 Total Net Assets $148,048,367 Note: Complete audited financial statements are available online at www.arthritis.org/financials. 2012 Annual Report 22 Note: Complete audited financial statements are available online at www.arthritis.org/financials. 23 Arthritis Foundation Get the Shirt. The Faces of Arthritis campaign calls attention to the fact that arthritis is a serious, progressive and potentially fatal disease that can strike people of all ages and ethnicities. Fifty percent of the purchase price of each T-shirt goes to support the Arthritis Foundation in the fight against arthritis. Visit www.costore.com/face/welcome.asp to purchase the shirt. Engage with the Arthritis Foundation community on Twitter, Facebook, Pinterest and YouTube. Besides being a renowned chef, Seamus Mullen is a face of arthritis and passionate Arthritis Foundation supporter who works hard to raise awareness and funds. Read more at www.facesofarthritis.org. 1330 West Peachtree Street, Suite 100 • Atlanta, GA 30309 Information is available 24 hours a day, seven days a week at 1.800.283.7800 or www.arthritis.org.