HLA CA Fall 2009.pub - Hearing Loss Association of America
Transcription
HLA CA Fall 2009.pub - Hearing Loss Association of America
Fall 2009 THE HEARING LOSS CALIFORNIAN California Newsletter of Hearing Loss Association of America 2009 CALIFORNIA WALK4HEARING November 8, 2009 at Long Beach Marina Green The Hearing Loss Association of California (HLA-CA) will join the national effort led by the Hearing Loss Association of America (HLAA) to help end the stigma of hearing loss by hosting the 2009 California Walk4Hearing. The 5K event will kick off on Sunday, November 8 at 10 a.m. with registration starting at 9 a.m. Walkers will enjoy an approximately three mile stroll along the harbor with views of Shoreline Village and the Queen Mary. “The Walk4Hearing is a great opportunity for individuals, families, companies, and groups to step up and raise awareness of hearing loss in Southern California,” said co-chair Mary Clark. “There are a variety of ways people can get involved: walking to raise funds; organizing a team of walkers as a team captain; sponsoring a walker or team; volunteering during the planning process or the day of the event; or making a donation. Hearing loss is the nation’s most prevalent yet often invisible disability and is growing not only among those over 50 but, increasingly, among young people as well. The Walk is a fun and easy way to support our family, friends, and co-workers who struggle with this challenge on a daily basis.” One Chapter – One Team – One team captain The Walk4Hearing in Long Beach in 2009 (W4HLB) is using a simplified model for the fundraising this year. The concept of Teams is one of the core elements of the Walk4Hearing program, but since we have such a large and diverse geography we have chosen to adopt a “one chapter – one team – one team captain” approach for this Walk. Here’s how it works: When a “Team” signs up on the Website they can set a goal for fundraising. The team can get credit for the funds raised on line under the chapter they name. In the past, individual members of chapters were asked to create their own teams, and to recruit others to create their own teams. Our experience has been that this approach might have been intimidating to some folks, so they didn’t get involved. Our approach for 2009 is an experiment, so we appreciate your help in trying it out. This year, instead of asking every individual to create their own team, we are asking each chapter to create their own team. One person is named as the Team Captain, and they will receive all of the necessary fundraising materials, and will be invited to the Kickoff event. This will allow for everyone in a chapter to use the same fundraising goal and their donations will all be credited to their own chapter. (They will receive a 25% share of the funds they have raised after the walk totals are completed.) The money can be credited to the team (or chapter) in several ways: • Donations made on line using a credit card will be credited based on the chapter identified in the credit card donation (See How to donate online below.) • Donations collected by cash or check by chapter members, or other team members are collected and put in the Walk envelopes to be turned in on the day of the walk, or mailed to the walk Treasurer, Evelyn Keolian, 203 South Madison Ave., Apt 5, Monrovia, CA 91016. Instructions for sending in the donations will be included on the Walk envelopes. • Donations can be collected on the day of the walk, and are also collected in the Walk envelopes and credited to the team identified on the envelope If you know of a business or employer who would like to create their own team, and credit your chapter, they can do that easily as well. If you know of an audiologist or employer who would like to participate in the Walk, it is easy to create their own team, and if you are their sponsor, you can have their donations credited to your team by having them identify your chapter (team) as their affiliate. The Team Captains of these teams are also eligible for invitations to the Kickoff Event. Our hope is that this will help create a more inclusive method of fundraising, and everyone can get involved. It is not necessary to be present at the walk to create a team, and raise funds for the W4HLB. Here are a few suggestions for raising funds for your “team”: • Have a bake sale at one of your chapter meetings. • If you take a lipreading class, see if the others in your class would like to donate a few dollars towards the walk. • See if some folks where you work might be interested in donating for the W4HLB. Every opportunity we take to raise awareness of the Walk, raises awareness of the Hearing Loss Association of America, one of the cornerstones of the purpose of this walk. We can each become advocates when we help people become aware of the organization that is seeking to become “The Nation’s Voice for People with Hearing Loss”. The funds we raise help make that possible at the National level, as well as at our own local level. Kickoff Event Our Kickoff Event will take place Sunday, September 27, 2009 from 2:00 to 5:00 pm. It will be held at Buono’s Italian Restaurant at 250 West Ocean Blvd. in Long Beach which has a beautiful view of the Harbor from the patio. It is about a half mile from our Sunday, November 8, 2009 Walk4Hearing, Long Beach Marina water front location. It was named one of the 4 best Pizza/Pasta places in Southern California. Team captains and sponsors will be invited. You will have an opportunity to meet many of our Walkers, learn how to establish and develop your teams (you’ll hear it from the pros!), and listen to wonderful speakers, while dining on great food in this beautiful setting. Prepare to be inspired! • Questions? Contact Diane Rott, dianeshear@msn.com, 626331-7547 • Watch your California website http://www.hearinglossca.org for updates, sample letters, FAQs, directions, etc. • Watch the national website http://www.walk4hearing.org/ for a list of all walk sites and money raised to date The walk will take place rain or shine, and light refreshments will be served before, during and after the walk. Volunteers who would prefer to help man a table or help with registration, are also welcome, and will receive t-shirts as well. Don’t be left out of what promises to be a memorable day! Join us! Walk with us! How to donate on line at the www.hearingloss.org website. Click on the Walk4Hearing box on the upper right, then select the Long Beach CA walk (at the bottom). The screen for the Long Beach CA walk will offer you three ways to get to the list of teams. • You can click on “Make a gift” • From there you can search for a walker (i.e: Mary Clark) • or a team (i.e: “Orange County Walkers” ) • Then the thermometer will show up and there is another “Make a gift” button. Follow the instructions for using your credit card. • You can get to these same selections by using the menu across the top labeled “Find a walker or team” • You can also use the “stop” option on the scrolling list on the right side of the screen to stop the scrolling when you see the “Orange County Walkers”, for example • You can click on the “Make a gift” box and follow the instructions for using your credit card OR • You can register to walk as well by following the steps for “Join a team” which requires more information that will be used to track the walkers and funds raised. 2 The Hearing Loss Californian - Fall 2009 PRESIDENT’S COLUMN By Mary Clark The Hearing Loss Association of America held its national convention in Nashville TN this year. The Gaylord Opryland Resort & Convention Center was a huge venue, and we were not the only convention going on at the time. In fact, we were the smallest of the three. The resort had almost an “old town” feel to it with several themed areas, each with shops and restaurants, and one with a water feature where you could take a boat ride! You didn’t need to leave the convention center to get away from the commotion if you wanted, but many did take advantage of the excursions to Grand Old Opry, and other planned events. There was an outlet mall within walking distance, with more restaurants and shops. The convention began on Thursday for most people, but on Wednesday was a State Leaders meeting which I attended. It went for half a day, and was very informative. I have no doubt it was more informative for the newer state leaders, and chapter coordinators than for some of the ones who have been doing the job for even a little while. This was primarily a training session, so the information was mostly related to the functions at the state level. I want to mention this, since we will always be looking for new members for the Board of Trustees, and I want to be sure you understand that this kind of opportunity exists if you are uncertain about looking at that role. The Chapter Coordinators from around the country play quite different roles from state to state (where there ARE coordinators) with some being mostly active at the state legislature level, and less with development of new chapters. We are fortunate for such a large state; we have two state chapter coordinators, one each for Northern and Southern CA. Cindy Jagger from northern CA was able to join us for the second day of the State leaders’ workshops. Diane Gross from southern CA was not able to attend the convention this year. One of our board members and past president, Marilyn Finn, is our tireless advocate in Sacramento, and she needs all the support we can give her! Please listen carefully when you receive emails requesting support for issues at the state level from your chapter coordinators or other board members. The format for the convention changed a little this year from prior years. In the past, the banquet (dinner) was usually on Saturday night, but this year it was on Friday night, in favor of letting people attend the special event at the Grand Ole Opera on Saturday evening, WHICH WAS CAPTIONED! There were quite a few new topics for the workshops, and I commend the convention planners for seeking out new and younger speakers. I attended one on Social Networking and learned a lot about using Facebook, Twitter, LinkedIn, and other on line networking tools. What was evident everywhere was a renewed emphasis on not only attracting younger people, but with the young peoples’ scholarships, and special events, they were in evidence from the Karaoke night after the Opening Session, to the banquet, to the special talk given by a returning Iraq veteran who has suffered hearing loss along with his head injuries. I met a number of young people, both from California and outside California. The energy was noticeable. I think my overall impression of the state of the health of the organization can be best summarized by the enthusiastic young people and the efforts to appeal to them. . This doesn’t mean that the organization does not value its legacy and the members who have brought us to where we are today, beginning with the self help model begun by Rocky Stone. The vision now is to become a fully viable non profit organization focused on the world of hearing loss. The tag line for the organization back when I joined in the early 1990’s was “education, support and advocacy”. I see there is a fourth item in our tag line now – information. In this information age, with a much faster pace of change, HLAA is positioned to become the nation’s voice for people with hearing loss as they never have before. To illustrate this shift, I want to point out several things that have been either spearheaded or sanctioned by the national office. If you want to see the first hand reports from the HLAA Convention in Nashville, check out the Convention blog at: http:// hlaaconvention.blogspot.com/. • • • • • Correction to Summer 2009 column. In our last newsletter we mistakenly credited the development of a new brochure for the Hearing Loss Association of California to Don Senger, when it was actually two members of Don’s chapter, Ann Thomas and Debbie Sharp who should have received the credit. Our thanks and apologies to Ann and Debbie for the error. Whistles Remember this offer? Due to popular demand, a new batch of whistles was imprinted for sale at the HEAR2009 conference that was cancelled. These are imprinted as follows: “Be Heard” Hearing Loss Association California Conference 2009. These whistles make wonderful handouts or giveaways For another report on the convention, check out the HOH-LD for your chapters. With each “handout” comes the opportunity to remind everyone of OUR responsibility to make ourselves Yahoo group run by Larry Sivertson in San Diego. Every heard in a disaster scenario. year they have very thorough reports from the convention, Update on whistles! The whistles offer from our last newsand are a godsend, if like me, you can’t get to everything you letter has been very popular. Due to postage increase, the diswanted to. Go to Yahoo, select “groups” and search for count that was offered has been discontinued. The offer is made HOH-LD News and sign up for the messages that come out for batches of 20 whistles at $1.25 each ($25) which includes once a week. the postage. This is still a terrific opportunity. The National office sponsors monthly web chats on all sort of Make check payable to HLA-CA and send to Harriett topics. Log on to the hearingloss.org website, and check Porch, 23871 Willows Dr. #382, Laguna Hills, CA 92653. Inthem out. They are free, and very informative. clude your name, chapter and mailing address. For larger orThe recent article in Consumer Reports “Hear well in a noisy ders, call Harriett at (949) 472-8278 world” was very professionally done (no, they do not rate hearing aids) and quoted Brenda Battat, a contributor for the article, who was quoted in a section regarding follow-up. Hearing Loss Association of America was the first of only 4 references listed “for more information”. Newly posted on the HLAA website is “Employment Toolkit” that was done with the help of the HLAA-Manhattan Chapter. I have not studied it yet, but from glancing at it, this is a huge benefit in an age with 10% unemployment! I’ll report on this toolkit in a future newsletter, since this is a topic near and dear to my heart. HearingLossNation is the discussion site sponsored by the HLAA National office that targets the 18 to 35 year old population. Aren’t you proud to belong to an organization that is leading the way for people with hearing loss? We in California also have the opportunity to do things that other states only dream of. Because we have a State Association, with our own funds (meager though they are at times!) we have sponsored chapter leadership workshops (and more are coming), state conferences, and have played the role of the “host” chapter for the Walk4Hearing in both northern and southern California, raising funds for HLAA National, with the chapters receiving significant financial benefits from their share of the funds raised. When your chapter is approached about helping with the Walk4Hearing this November in Long Beach, think back to what this organization has done, and what a bright future we have in store by being the nation’s voice for people with hearing loss. I look forward to seeing you at the Long Beach Walk4Hearing, if not before. 3 The Hearing Loss Californian - Fall 2009 The Hearing Loss Californian - Fall 2009 4 The Hearing Loss Californian - Fall 2009 5 THE LISTENING STUDIO real-life listening situations Note: the League for the Hard of Hearing (for 99 years) is now the Center for Hearing and Communication. Listening Studio. The Center for Hearing and Communication announces the opening of the Listening Studio, a breakthrough innovation for people with hearing loss, unique in the world of audiology. The center offers state-of-the-art hearing testing and hearing aid fitting, speech therapy and a full range of services for people of all ages with hearing loss. The Listening Studio is an audio and video installation acoustically designed to simulate an array of real-life listening environments. Working in this unique setting, audiologists at the Center for Hearing and Communication provide people with hearing loss the opportunity to maximize the benefit they obtain from hearing aids by experiencing a variety of real-life listening situations Instead of using beeps, tones and word lists — the more typical way to determine how well a new hearing aid works — the test conducted at the center uses sounds that might be heard in New York: cellphone chats, office discussions, the rumble of Midtown traffic. For example, three men swap political views after an election, a busy Manhattanite politely brushes off an out-of-town friend over the phone, a couple has a passive-aggressive exchange about what to order for dinner. The conversations, which grow progressively more complex, involving multiple and off-screen speakers, are triggered by tapping keys on a keyboard. The backdrop is interchangeable, so the same conversation can be set in a marsh in Montauk, an apartment on the Upper West Side, a noisy restaurant, the city streets, or on a subway platform. The Listening Studio, which cost $90,000 to create, was financed by private donors, Steven and Shelley Einhorn. Ms. Einhorn is a client and a board member at the center. She uses a hearing aid, and like many other users, had long complained that her device was not fine-tuned for daily life. The Listening Studio is a collaboration between POD DESIGN+MEDIA and Perlin Studios in conjunction with the Center for Hearing and Communication. The Listening Studio is a room equipped with a 52-inch plasma screen and five speakers, and lined with a shell made of 102 interlocking wooden slabs. It contains a 5.1 surroundsound system, 16 HD videos on a flat screen monitor and a custom musical keyboard which serves as the testing interface. The installation/test consists of immersive video and audio environments. These environments contain a series of conversations that switch backgrounds and ambient audio in real time. These environments challenge the spectator/patient to listen closely and try to understand the conversations. The test is intended for hearing aid users or cochlear implantees, so that they may test their hearing in varying situations. They may choose to have their hearing devices adjusted based upon their results. The test is open to the public as well, and will be available for anyone to experience as a spectator/ patient. Mr. Perlin created eight scenarios, performed by volunteers, inspired by his experiences living in New York. He was 6 The Hearing Loss Californian - Fall 2009 looking for New York situations, trying to find those things that only happen when you have eight million plus people crammed together. Ms Lafargue, director of audiology at the center, said: “We would fit people for hearing aids here and they would come back two weeks later and we’d ask, ‘How’s your hearing aid?’ And they would say, ‘Horrible. I hear you fine in this sound-treated room, but not out in the world.’ There are no tests in simulated listening spaces that are predictive of how people will do in the real world. The Listening Studio will bring us very close.” See http://www.lhh.org. HOUSE EAR INSTITUTE Sings The Tahoe City CI Blues CI researchers and CI companies just had a 2009 Conference on Implantable Auditory Prostheses at Lake Tahoe. Our own CI researchers from the House Ear Institute in Los Angeles did a fantastic musical tribute to CI "lab rats"--The Tahoe City CI Blues, apologies to Johnny Cash. LOL. Enjoy! I hear that pulse train coming, Coming down the line. Got 58 more trials But I’m not going to whine. I’ll push that stupid button the whole live long day. Got me living like a lab rat but I’m doing it for the pay. Tell me which one’s louder Which one’s higher in pitch All this constant guessing Makin’ me dumber than a switch. I try to tell the doctor but he won’t hear my call It’s like trying to tell the difference ‘tween two mudclots hittin’ the wall. They told me it gets boring that I might lose my mind Pay me ten bucks an hour to make it seem more kind But they zapped a man in Reno just to watch him fry These docs can get so reckless, makes me hang my head and cry I used to be a deaf man But then they made me hear But little did they tell me I’d be doing it year after year Listening to these pulses going in and out my ear I’m giving back to science while I’m making some doc’s career. Some day in the future when I am dead and gone They’re gonna cut my head wide open Try to see just what went wrong. I tried to tell them nicely but they wouldn’t heed my cry, All this psychophysical testing made me shrivel up and die. See the captioned youtube video. Google, Youtube Tahoe City CI Blues. The Hearing Loss Californian - Fall 2009 7 TED.com, Captioned Videos Subtitles, Transcripts I’ve always wanted to go listen to Speaker Series, but they were not captioned. Then I found TED.com, 400+ videos of speakers. All of the talks feature closed captions in English, many feature subtitles in various languages and a full transcript can be read. Oh, joy! Here are some of my favorites: • • • • • • • • • • • Sylvia Earle, Protect our Oceans Evelyn Glennie, How to Listen Majora Carter, Environmental Justice Jose Abreu, El Sistema in Venezuela Paul Stamets, Fungi, Mycology Jimmy Wales, Founder of Wikipedia Ann Cooper, School Lunches Sir Ken Robinson, Schools kill creativity Robert Thurman, We can be Buddhas Jill Bolte Taylor, Brain research Pilobolus, Dance TED stands for Technology, Entertainment, Design. TED started out in 1984 as a conference bringing together people from those three worlds. Since then its scope has become ever broader. The TED mission: Spreading ideas. We believe passionately in the power of ideas to change attitudes, lives and ultimately, the world. So we're building here a clearinghouse that offers free knowledge and inspiration from the world's most inspired thinkers, and also a community of curious souls to engage with ideas and each other. This site, launched April 2007, is an ever-evolving work in progress, and you're an important part of it. The TED Conference, held annually in Long Beach, is the heart of TED. More than a thousand people now attend -- indeed, the event sells out a year in advance -- and the content has expanded to include science, business, the arts and the global issues facing our world. TED brings together the world's most fascinating thinkers and doers, Nobel laureates, high-tech tycoons, and MacArthur grantees who are challenged to give the talk of their lives (in 18 minutes). Over four days, 50 speakers each take an 18-minute slot. There are also many shorter pieces of content, including music, performance and comedy. There are no breakout groups. Everyone shares the same experience. It shouldn't work, but it does. It works because all of knowledge is connected. Every so often it makes sense to emerge from the trenches we dig for a living, and ascend to a 30,000-foot view, where we see, to our astonishment, an intricately interconnected whole. This site makes the best talks and performances from TED and partners available to the world, for free. More than 400 TEDTalks are now available, with more added each week. All of the talks feature closed captions in English, and many feature subtitles in various languages. These videos are released under a Creative Commons license, so they can be freely shared and reposted. In recent years, TED has spawned some important extensions. 8 The Hearing Loss Californian - Fall 2009 TEDGlobal is TED's twin conference. It was held in Oxford, UK, in 2005, and then in Arusha, Tanzania, in 2007. TEDGlobal is now held annually in Oxford, starting July 2009. The themes of the global conference are slightly more international in nature, but the full TED format is maintained. TEDIndia will be held in November 2009 in Mysore, India, celebrating and exploring the beckoning future of South Asia. The TED Prize is designed to leverage the TED Community's exceptional array of talent and resources. It is awarded annually to three exceptional individuals who each receive $100,000 and, much more important, the granting of "One Wish to Change the World." These wishes have led to collaborative initiatives with far-reaching impact. TEDTalks began as a simple attempt to share what happens at TED with the world. Under the moniker "ideas worth spreading," talks were released online. They rapidly attracted a global audience in the millions. Indeed, the reaction was so enthusiastic that the entire TED website has been reengineered around TEDTalks, with the goal of giving everyone on-demand access to the world's most inspiring voices. The TED Open Translation Project brings TEDTalks beyond the English-speaking world by offering subtitles, interactive transcripts and the ability for any talk to be translated by volunteers worldwide. We launched the project with more than 250 translations, 50 languages and 100 volunteer translators. It's Thank you, Nokia an ambitious project (generously supported by our sponsor Nokia) that radically enhances the accessibility of the talks -for the hearing-impaired, for those who speak English as a second language, for search engines (which can now index the full transcript of a talk), and of course for the vast audience of nonEnglish speakers worldwide. Today, TED is therefore best thought of as a global community. It's a community welcoming people from every discipline and culture who have just two things in common: they seek a deeper understanding of the world, and they hope to turn that understanding into a better future for us all. Go to TED.com. At top, click on ‘Speakers’ or ‘Themes’. At bottom left, click on ‘Speakers A-Z’ or ‘Themes A-Z’. To turn on captions, look below video and click on ‘subtitles’. To read transcript, go to right of video and click on ‘open interactive transcript’. The transcript and captions are synchronized, so that if you click on any place in the transcript it will move the video and captions to that place. Audiologists, ENTs, Hearing Aid Dispensers CI Under-Referral Excerpted from The Hearing Review - May, 2009 Similar to hearing aids, the market penetration of cochlear implants is surprisingly low. Many patients who fall within the current candidacy range are never referred for evaluation for a cochlear implant. And that can present problems for both the patient and for the dispensing professional. Hearing aids help the vast majority of hearing-impaired patients seen in audiology clinics and dispensing offices. But, as the degree of sensorineural hearing loss reaches the severe-toprofound range, benefits from amplification become limited. Amplifier gain cannot be increased for greater audibility without producing feedback, and no amount of tweaking of the signal processing will result in higher speech scores because some patients simply have too much hair cell loss to stimulate acoustically. An alternative is stimulation of the nerve fibers electrically via a cochlear implant. Unfortunately, many patients who fall within the current candidacy range are never referred for evaluation for a cochlear implant. The CI Under-Referral Problem. In a 2008 survey done by Cochlear Americas, 594 cochlear implant recipients were asked what health care professional referred them for their initial evaluation. Less than half (46%) reported being referred by audiologists or hearing aid dispensers, and 20% reported they were not referred by any professional at all. These latter individuals had to find out about cochlear implants from friends, family, the Internet, or other sources. In another 2007 study, the average time from onset of severe-to-profound hearing loss until receiving a cochlear implant was 12 years. However, most reported that they were implanted in less than 1 year after they became aware that they were candidates How Many Implant Candidates Are There? Assuming that there are about 1 million people with severe-to-profound hearing loss who might be considered potential candidates for cochlear implants, the CI industry estimates that about 50,000 to 60,000 have actually received cochlear implants in the United States, meaning only about 10% of the people who could benefit from a cochlear implant have received one. In another 2008 survey, Cochlear Americas asked more than 400 hearing care professionals questions regarding identification and referral of patients for cochlear implant evaluation. Of these, 20% indicated that they believed they had not seen any cochlear implant candidates in the last 6 months, and 55% believed they had seen fewer than five candidates. Further, when asked how many patients they had referred for an implant evaluation in the past 6 months, 41% answered none, and 50% said less than five. Thus, most believed they saw few or no implant candidates on a regular basis, and they did not always refer even when they saw a candidate. Is it reasonable to believe that there are few or no patients who are cochlear implant candidates seen in an average hearing aid practice? Some data suggest otherwise. When five typical hearing aid dispensing offices in the United States reviewed thousands of their patient charts, they found that, on average, about 3% of the audiograms met the criteria for cochlear implantation. So, if a practice sees 100 patients in a month, it is reasonable to assume that about three of those patients might receive more help from a cochlear implant than from a hearing aid. In a long-established dispensing practice with several thousand patients in the database, there may be dozens of patients who would be eligible for cochlear implants. Why then does it appear that the hearing care profession is dropping the ball on appropriate referrals for cochlear implants? In many cases, we believe it is due to a lack of awareness about how cochlear implant technology has advanced over time. Many dispensing professionals were trained at a time when cochlear implant candidacy was limited and subsequent performance of implanted patients was unimpressive. These same professionals may not now have any contact with modern cochlear implant users, and thus may not realize that, over the past 25 years, there have been dramatic improvements in the performances of implant recipients, and a corresponding expansion of the criteria for candidacy. Most clinics very likely have a number of patients in their practices who are, in fact, excellent cochlear implant candidates and poor performers with amplification. Referral Benefits for the Dispensing Practice. For those who get paid a commission on the sale of hearing aids, the prospect of referring a patient to another clinic might not initially seem very appealing. However, the No. 1 driver of customer satisfaction in the dispensing office is when you are able to provide solutions to the patient's hearing problem. When hearing aids do not solve the problem and you recommend a cochlear implant, you become the driver of that patient's satisfaction, and satisfied patients tell their hearing-impaired friends about your practice. Only a small percentage of the people you see will actually be cochlear implant candidates, and some of these may even return after evaluation if the implant team determines that they are, in fact, not good candidates. So, in addition to the great service you have performed for the individual, any goodwill you generate by referring a patient for something as life-changing as a cochlear implant is likely to result in more traffic to your office instead of less. Further, about 90% of those who have a cochlear implant are unilaterally rather than bilaterally implanted. As cochlear implant candidacy criteria have expanded so that patients with more usable residual hearing are being implanted, many will continue to wear a hearing aid in the nonimplanted ear. Many cochlear implant clinics do not have the time, equipment, or inclination to fit hearing aids, so the audiologist/dispenser who is proficient in both cochlear implant criteria and hearing aid fittings may well have an advantage in the competitive hearing aid market. Finally, patients who get the least benefit from hearing aids often take up the most time. Multiple reprogramming visits might still end up in a return for credit. Even if someone does not return a hearing aid for credit but ends up putting it in their drawer, the result is negative word of mouth about the practice and statements that hearing aids do not help. There is just no incentive for a dispenser not to refer when the patient might be better served by a cochlear implant. The Hearing Loss Californian - Fall 2009 9 10 The Hearing Loss Californian - Fall 2009 Marcella M. Meyer – 1925 - 2009 Dr. Antonio De la Cruz – 1944 - 2009 Marcella M. Meyer, a prominent advocate for the deaf who fought to expand civil rights and establish social services has died. She was 84. She helped found the Greater Los Angeles Agency on Deafness (GLAD) in 1969 and ran it for almost three decades. The agency’s headquarters are housed in a former Women's Christian Temperance Union building, an Eagle Rock historical landmark, which includes apartments for low-income deaf seniors. She was an activist who played a key role in establishing a statewide telephone service that relayed messages between the hearing and the hearing-impaired and led to the development of a nationwide system. She was also instrumental in opening up jury service in Los Angeles County to the deaf and hard of hearing in 1981. When the county balked at providing sign language interpreters for jurors, she again challenged the system, and a corps of full-time court interpreters was formed. When KCET-TV Channel 28 started airing a captioned version of ABC News at 11:30 p.m., Meyer said the move smacked of “tokenism.” “Who wants to stay up that late? Deaf people are no different from anyone else.” Her promotion of closed captioned TV in the 1970s led to its widespread adoption. There was a Celebration of Life in June at the Greater Los Angeles Agency on Deafness. We will never forget her dedication toward helping people with hearing loss. We will miss her. Dr. Antonio De la Cruz, a renowned neurotologist at the House Ear Institute in Los Angeles has died. He was 65. An associate of the House Ear Institute since 1975, De la Cruz was in the news in 2001 when he successfully performed cochlear implant surgery on Rush Limbaugh. As director of education at the House Ear Institute, De la Cruz led professional training programs for hundreds of visiting physicians in otology/neurotology surgical procedures and practices. Fluent not only in English and Spanish but in French, Italian, Portuguese and other languages, he frequently lectured and taught around the world. De la Cruz served as president of the American Academy of Otolaryngology-Head and Neck Surgery in 1997-98 and received the academy's presidential citation in 2004 and its Distinguished Service Award in 2007. From 1988 until his death, he served on the review panel for otology and neurotology for the academy's journal Otolaryngology-Head and Neck Surgery. He also was an active member of the House Ear Institute's board of trustees since 1984. The last of nine children, De la Cruz was born in 1944 in San Jose, Costa Rica. He received his doctorate in medicine from the University of Costa Rica School of Medicine in 1967 and completed his specialty training in otolaryngology at the University of Miami Hospitals in 1973. A funeral service and celebration of his life was held at Church of St. Mark in Venice. The Hearing Loss Californian - Fall 2009 11 2009 BOARD OF TRUSTEES ELECTION Deadline September 15, 2009 Notes - Nashville Convention By Grace Tiessen I love HLAA Conventions. For 4 days I can understand everything, everywhere, all the time. Everything is captioned. Restful. This was a much livelier convention than previous ones, with a far larger number of young people attending. HLAA gave scholarships to 25 young people and free registration to several veterans. There were 1150 attendees in Nashville, while in Reno the year before, there were 650. Karaoke. Up and coming singer, Katherine Burns, President of the Los Angeles Chapter, sang Joan Jett’s “I Love Rock and Roll” at the Get Acquainted party. The California HLA gals wanted to sing the Beach Boy’s “California Girls,” naturally! But there wasn’t time. Maybe next year. Need volunteers? Boy Scout Troop 31 received a Community Service award for helping the Rochester NY chapter at their JOBS JOBS JOBS Walk4Hearing. HLAA.omnibooksonline.com is a posting of speakers’ presentation slides. For the first time in convention history, you Here are two job openings in the Department of Rehabilitacan read all the Convention workshops and presentations. tion, Deaf and Hard of Hearing Services. This is an opportunity Keynote speech. Vint Cerf, PhD, vice president and Chief to make a difference and to let your experience and expertise Internet Evangelist for Google, talked about Google Earth, speak for itself. Google moon, Google ocean, Google Mars. For instance, Google Applications (Form 678) are available and may be filed in Mars is composed of pictures from different rovers that were person or by mail with: Department of Rehabilitation, Selection Services Unit, 721 Capi- stitched together so you can explore the planet. You can use it to tol Mall, Sacramento, Ca. 95814. Applications are also available pretend you’re steering the rover across Martian terrain. The data at the local offices of the Employment Development Department is already collected; Google just assembles and integrates it (data fusion). and at the State Personnel Board’s offices or web site TechSoup.org distributes donated and deeply discounted www.spb.ca.gov or Department of Rehabilitation’s web site at technology products to eligible non-profits and public libraries. www.dor.ca.gov. Must have proficiency in communicating with the deaf indi- Choose from over 340 products from companies such as Microsoft, Adobe, and Symantec. vidually and in large groups using sign language and manual The Refurbished Computer Initiative at TechSoup offers spelling. offers quality, low-cost computer equipment. Backed by a 90-day Program Manager. Deadline: September 10, 2009. The Pro- warranty, every desktop and laptop comes pre-installed with Genuine Microsoft Windows and Office software to make setup gram Manager of the Deaf and Hard of Hearing Services easy. (DHHS) Section plans, coordinates, implements, and evaluates Grand Ole Opry. For the first time in its 84-year history, the Department’s programs and services to deaf, hard of hearing, the Grand Ole Opry had captioning on its huge screens. Over late deafened, and deaf-blind clients. The Program Manager 450 convention attendees sat in amazement as they listened to establishes operational policies, and procedures, formulates and determines program priorities and serves as a liaison to commu- Vince Gill, Point of Grace, Alison Krauss and others, all in a communication accessible environment. nity organizations and programs. The Hearing Loss Association of California Nominations Committee announces applications will be accepted to fill three Board of Trustees’ positions. An applicant must be a member of Hearing Loss Association of America and a resident of California. The term of office is three years with two Board meetings a year in February and August. Information for applying may be obtained online at http:// www.hearinglossca.org/html/board.htm or from Carol Waechter, Nominations Chair, 6807 Gray Court, Foresthill, CA, 95631, (530) 367-6776, cwaechter@hearinglossca.org. Send completed applications to Carol Waechter postmarked no later than September 15, 2009. Coordinator. Deadline: August 27, 2009. The Coordinator, Services to the Deaf, develops, organizes, and coordinates programs for the deaf and hard of hearing; serves as liaison between the Department of Rehabilitation and the deaf and hard of hearing community; participates in the planning, development, implementation, and evaluation of departmental policies and programs for the deaf and hard of hearing; makes presentations to small and large groups and staff; and does other related work as may be required. Think about it Hard of hearing people think they hear much better than they actually do, because they don’t hear what they don’t hear. 12 The Hearing Loss Californian - Fall 2009 HLAA Convention 2010 in Milwaukee, June 17-20, 2010, Hilton Milwaukee CityCenter, Milwaukee, Wisconsin. Announcing some exciting news about registration for Convention 2010. • Register for the full activity package by December 31st and your name will go into a drawing for 3 FREE nights at the Hilton Milwaukee City Center! (Must be used on the nights of June 17 -19, 2010; taxes are the responsibility of the winner.) • For first-time attendees, we are offering a registration discount! That’s right, if you’ve never been to an HLAA convention before, now’s your chance! • Registration will open toward the end of October - it’s never too early to start planning! Watch www.hearingloss.org for more exciting news about our keynote speaker and research symposium. HEARING LOSS ASSOCIATION OF CALIFORNIA CHAPTERS NORTHERN CALIFORNIA SOUTHERN CALIFORNIA Northern CA Chapter Coordinator Cindy Jagger, cjagger@hearinglossca.org 707-422-3753 V/CRS Southern CA Chapter Coordinator Diane Gross, dgross@hearinglossca.org 818-515-7587 Diablo Valley Chapter-Walnut Creek Beaumont Chapter Barbara Tucker, babsjt@aol.com Don Senger, 925-264-1199 DSenger@hearinglossdv.org East Bay Chapter - Oakland Barbara Bishop, ptownmoma@aol.com 510-601-9828 V/TTY Dorothy Brookover ,Tulipup007@cs.com San Diego Chapter Bill Zitrin, wdzitrin@aol.com 760-695-2737 Larry Sivertson, lsivertson@juno.com 858-278-9630 San Fernando Valley Chapter – Encino Phil Kaplan, philillini@aol.com 818-368-1303 Carlsbad Chapter Debra McClendon, debyell4@aol.com Brian Deitz, brn.deitz@gmail.com Santa Barbara Chapter Anne Szymanski, Mama1811@verizon.net Claudia Herczog, czog16@cox.net Coachella Valley ChapterThousand Palms Betty Weiss, bweiss5@dc.rr.com 760-343-3828 Napa Valley Chapter - Napa 707-226-9832 V Escondido Chapter Dorothy Wormser, dorthi@cox.net 760-747-3813 V 760-737-9149 Fax Santa Monica Chapter Carpool to HLA Los Angeles Chapter Nanci Linke-Ellis nlinke-ellis@hearinglossca.org 310-452-8700 Valerie Stern vstern@hearinglossca.org Peninsula Chapter - Redwood City Raegene Castle, peninsula@hearinglossca.org 650-369-4717 Marjorie Heymans, 650-593-6760 V Irvine Chapter Lorraine Fanizza, hear@hearpros.com 714-669-0401 V/TTY/FAX Simi Valley Chapter Dan Smith, danr_smith@sbcglobal.net 805-526-0 Fresno Chapter Michele Shields, mishell@pacbell.net Sacramento Chapter Wendy Gualderama 916-961-6477 wofairoaks@sbcglobal.net San Francisco Chapter Ronda Bonati, RondaBonati@sbcglobal.net 415-705-0550 V Marilyn Finn, mfinn@hearinglossca.org Shasta County Chapter - Redding Marion Peterson, bomarx@aol.com 530-365-0790 V Silicon Valley Chapter - San Jose Rufus Wesley, rufuso@pacbell.net 408-229-1041 Marjorie Iller, marjieiller@earthlink.net Tri-Valley Chapter –Pleasanton Hiram Van Blarigan, 925-455-6591 Hvanblarigan@hotmail.com Woodland Chapter - Woodland Clare Childers, clarehear@sbcglobal net 530-662-5102 Laguna Woods Village Chapter Denise Welch, dennywelch@aol.com 949-770-5760 Long Beach/Lakewood Chapter Lakewood Ellen Mathis, EPMathis@verizon.net 562-433-6509 Los Angeles Chapter - Pasadena Pat Widman, pwidman@hearinglossca.org Katherine Burns, kkjump7@earthlink.net Los Angeles Cochlear Implant Chapter Diane Rott, dianeshear@msn.com 626-331-7547 Mission Viejo Chapter Lola Attinger, Lattinger@cox.net 949-858-9024 V Pril Kirkeby, pwkirkeby@cox.net 949-855-6786 V Northridge Chapter Diane Gross, dgross@hearinglossca.org 818-515-7587 Orange County Chapter – Orange Mary Clark, mclark@hearinglossca.org 714-694-0627 Orange County Cochlear Implant Chapter - Orange Jack A Belt, JABELT@aol.com 626-934-0127 Redlands Area Chapter - Redlands Barbara Tucker, babsjt@aol.com Where/when do chapters meet? http://www.hearinglossca.org/html/ chapters.htm Please join us. Meet others who are facing the challenge of everyday life with a hearing loss. Meetings are free and informal. Bring a friend or family member. Everyone is welcome. Hearing loss is a daily challenge you can overcome. You do not have to face hearing loss alone. No chapter near you? Our Chapter Coordinators will help you to set up a local group. • Northern CA Chapter Coordinator Cindy Jagger, cjagger@hearinglossca.org 707-422-3753 V, • Southern CA Chapter Coordinator Diane Gross dgross@hearinglossca.org 818-515-7587 V, text The Hearing Loss Californian - Fall 2009 13 RESOURCES FOR HEARING LOSS QUESTIONS OR CONCERNS Hearing Loss Resource Specialists Jennifer Williams, Greater Los Angeles Agency on Deafness (GLAD), Los Angeles 323-478-8000, jwilliams@gladinc.org Pauline Strickland, Center on Deafness Inland Empire (CODIE), Riverside 951-275-5000, pstrickland@codie.org Susan Coulter, Fresno susanc@dhhsc.org Colette Noble, Sacramento 916-359-1893, cnoble@gmail.com Sr. Ann Rooney, Burlingame arooney@hearinglossca.org Bruce Harris, Berkeley bjharris@ieee.org For Parents Independently Merging Parents Association of California (IMPACT) Parent group focused on securing the best for children regardless of methodology, http://www.deafkids.org Hands and Voices Similar approach as IMPACT but nation wide http://www.handsandvoice.org Education Helen Walter rhijah@earthlink.net 909-849-6713 For Youth HLAA Young Adults Group Interactive social website http://hearinglossnation.com Training and Advocacy Group (TAG), Los Angeles A self-advocacy group for deaf/hard of hearing children and teens. http://www.tagkids.us Cochlear Implants Cindy Jagger (Northern CA) 707-422-3753, cjagger@hearinglossca.org Darlene Fragale (Southern CA) 909-882-4680, dfragale@dslextreme.com Clinics The HEAR Center Hearing/speech therapy, Community out reach, hearing aid dispensing. All ages, http://www.hearcenter.org, 626-796-2016 House Ear Institute 213-483-4431, http://www.hei.org Research on hearing loss and vestibular disorders. Cochlear implant services. Stanford University Cochlear implant services cochlearimplant@stanford.edu, (650) 736-4351 http://www.med.standford.edu/ohns Hearing and Speech Center, San Francisco 415-921-7658, info@hearingspeech.org http://www.hearingspeech.org Lucile Packard Children’s Hospital, Stanford Pediatric hearing loss Jody Winzelberg AuD, FAAA 650-736-7319, jwinzelberg@lpch.org John Tracy Clinic Pediatric hearing loss, free services world wide http://www.johntracyclinic.org, 213-748-5481 Oberkotter Foundation Pediatric hearing loss, free materials, oral schools http://www.oraldeafed.org TED.com 400+ captioned videos of world’s leading thinkers and doers http://www.ted.com Lyrics.com Find song lyrics How to get Real Time Captioning Captioning for workshops, lectures, courts Arlene Patton, arlepatton@aol.com (626) 337-8331 Captioning at College Colette Noble 916-359-1893, cnobole@gmail.com Financial Aid Audient Alliance http://audientalliance.org, 206-838-7194 Let them Hear Foundation, Palo Alto 650-462-3143, http://www.letthemhear.org Career Counseling and Employment Services HLAA Employment Toolkit Interview strategies; hearing loss and ADA; communication tips; insurance coverage for hearing aids. www.hearingloss.org/ advocacy/Employment.asp#jobtoolkit GLAD/EDD GLAD/Employment Development Department http://www.gladinc.org 213-478-8000, info@gladinc.org Vocational Rehabilitation provides service for clients who meet eligibility requirements. Assistance with hearing aids and devices may be provided to clients who need such devices to secure or retain employment. http://www.dor.ca.gov Deaf and Disabled Telecommunications Access Administrative Committee (TADDAC) Philip Kaplan (Hard of hearing) Chair, Philillini@aol.com Sheri Farinha (Deaf), sfarinha@norcalcenter.org Mark Finn, (Late Deafened) California Relay Service (CRSAC) Colette Noble (Hard of Hearing) 916-359-1893, cnoble@gmail.com Vacant, (Late Deafened) Equipment Program (EPAC) Brian Winic (Hard of Hearing), lovetwohear@aol.com Richard Ray (Deaf), rlrayada@aol.com Free Telephones (CTAP) http://www.ddtp.org/ctap Captioned movies & videos, song lyrics Captionfish Captioned movies search engine http://www.captionfish.com 14 The Hearing Loss Californian - Fall 2009 Assistance Dogs for hard of hearing / deaf Canine Companions for Independence http://www.cci.org 800-572-2275 Sam Simon Foundation Rescues and trains assistance dogs for the deaf and hard of hearing http://www.samsimonfoundation.com, 310-457-5898 Other Resources Lip reading classes hearinglossca.org/html/lipreading.htm Aural Rehabilitation Group for CIs, San Diego Mellisa Essenburg, M.S., CCC-SLP mellisaslp@yahoo.com, 858-232-5842 www.SanDiegoSpeechPathology.com www.auditoryverbaltherapy.blogspot.com Hearing Aids 101 Information about all brands of hearing aids. http://www.hearingaids101.com Better Hearing Institute Educates the public and medical profession on hearing loss, its treatment and prevention, 202-449-1100, http://www.betterhearing.org Living and Coping with Hearing Loss by Sam Trychin samtrychin@adelphia.net http://www.trychin.com 814-897-1194 Hearing Loss Network & Web, San Diego http://www.hearinglossnetwork.org http://www.hearinglossweb.com larry@hearinglossnetwork.org 858-278-9630 Deafness in Disguise A fascinating look at the history of hearing devices. http://beckerexhibits.wustl.edu/did FOUNDER Howard E. “Rocky” Stone, 1925-2004. In 1979, Rocky Stone founded the organization as Self Help for Hard of Hearing People (SHHH). JOIN US! Membership includes national and state memberships, Hearing Loss Magazine and The Hearing Loss Californian newsletter. Rates are $20 Student, $35 Individual, $45 Couple, $60 Professional. For international and corporate rates, please visit http://www.hearingloss.org. Board of Trustees Mary Clark, President Orange County Chapter 714-529-0218 mclark@hearinglossca.org Please make check out to HLAA and send it to Hearing Loss Association of America, 7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814 (include name/mailing address/zip code/email/ phone) OR you can join on line at http://www.hearingloss.org/membership/renew.asp. Remember, in order to VOTE in state elections, you must be a National member. Carol Waechter, Vice President Sacramento Chapter cwaechter@hearinglossca.org Pat Widman, (CI), Secretary Los Angeles Chapter pwidman@hearinglossca.org Jeffrey Chess, Treasurer Orange County Chapter jchess@hearinglossca.org Marilyn Finn San Francisco Chapter mfinn@hearinglossca.org Nanci Linke-Ellis, (2 CIs) Santa Monica Chapter Nlinke-ellis@hearinglossca.org Jim Montgomery, (CI) Diablo Valley Chapter Jmontgomery@hearinglossca.org Sister Ann Rooney Peninsula Chapter 650-343-0114 arooney@hearinglossca.org Valerie Stern, (2 CIs) Los Angeles Chapter vstern@hearinglossca.org Grace W. Tiessen, (CI) San Fernando Valley Chapter Gtiessen@hearinglossca.org Don Senger, Emeritus (CI) Diablo Valley Chapter, dsenger@hearinglossca.org Cindy Jagger, ex officio (2 CIs) No. CA Chapter Coordinator 707-422-3753 Voice cjagger@hearinglossca.org Diane Gross, ex officio (2 CIs) So. CA Chapter Coordinator 818-515-7587 V, text ITINERANT TEACHERS OF HOH/D support your graduating seniors in their transition from high school by giving them a FREE trial subscription to The Hearing Loss Californian. Please send student name/mailing address/zipcode/email to gtiessen@hearinglossca.org. YOUNG PEOPLE ages 28 to 35, Socialize HearingLossNation is a non-profit online social network community designed specifically for HoH individuals between the ages of 18 and 35. HLAA member Patrick Holkins, a Harvard University senior, moderates the discussions for young adults. Go direct to http://hearinglossnation.ning.com OR access it thru http://hearingloss.org. FREE trial subscription to The Hearing Loss Californian. Please send your name/mailing address/zipcode/email to Grace Tiessen, 714 Prospect Blvd., Pasadena, CA 91103, gtiessen@hearinglossca.org. FREE. Hearing Health magazine, a quarterly publication of Deafness Research Foundation. Sign up on line at http://www.drf.org. HLA-California publishes The Hearing Loss Californian quarterly in mid February, May, August and November. The newsletter is available through mail, and on line at http://www.hearinglossca.org/html/newsletter.htm. Demographics. Our database consists of 5500 records--1250 California HLAA members; 1345 California audiologists; 1350 California Hearing Aid Dispensers; Dept of Rehabilitation HoH/D counselors; Itinerant Teachers of the HoH/D; Office of Deaf Access outreach centers; members of the Assn of Late Deafened Adults; Kaiser Permanente audiologists; members of AG Bell Assn for the D/HoH; Costco Hearing Aid Centers; HEARx Hearing Aid Centers; Sonus Hearing Aid Centers and others interested in hearing loss issues. Editor: Grace Tiessen, gtiessen@hearinglossca.org Layout: Lisa Rettino, leftylisa63@yahoo.com Contributions are eligible for income tax deductions as provided in Section 501(c)3 of the Internal Revenue Service Code. Mention of goods and services in articles or advertisements does not imply endorsement, nor does exclusion suggest disapproval. Any portion of this newsletter may be reprinted or disseminated, as long as credit is given to the individual author or to this publication. dgross@hearinglossca.org Submissions for the Winter 2009 issue are due no later than October 15, 2009, and should be sent to gtiessen@hearinglossca.org. Inclusion and/or editing will be at the full discretion of the Editor. The Hearing Loss Californian - Fall 2009 15 Grace W. Tiessen 714 Prospect Blvd, Pasadena, CA 91103 Non Profit U.S. Postage PAID Pasadena, CA Permit #740 Address Service Requested HEARING LOSS ASSOCIATION OF CALIFORNIA A Hearing Loss Association of America state association supporting chapters throughout California Who We Are Hearing Loss Association of California (HLA-CA) is a state association affiliated with Hearing Loss Association of America. Residents of California who join our national organization automatically become members of HLA-CA. Hearing Loss Association of America (HLAA) is an international, non-sectarian, educational, consumer organization of hard of hearing people, their relatives and friends. It is devoted to the welfare and interests of those who cannot hear well but are committed to participating in the hearing world. Hearing Loss Association of America 7910 Woodmont Avenue, Suite 1200 Bethesda, MD 20814 (301) 657-2248 Voice (301) 657-2249 TTY (301) 913-9413 Fax info@hearingloss.org Hearing Loss Association of America The Nation’s voice for people with hearing loss. Hearing Loss Association of America opens the world of communication to people with hearing loss through information, education, support and advocacy. The national support network includes the Washington, D.C. area office, 14 state organizations, and 200 local chapters. Our clear, straightforward message has changed the lives of thousands of people. Hearing loss is a daily challenge you can overcome. You do not have to hide your hearing loss. You do not have to face hearing loss alone. HLAA: www.hearingloss.org HLA-CA: www.hearinglossca.org Find a chapter near you: www.hearinglossca.org/html/chapters.htm