Here - Creutzfeldt-Jakob Disease Foundation

VOICES
HOPE
OF
A FUNDRAISER BENEFITING THE CJD FOUNDATION
PERFORMANCE BY
YOUNG PEOPLE’S CHORUS OF NEW YORK CITY
DIRECTED BY
JIM PAPOULIS
OCTOBER 5, 2014
4 PM - 7 PM
NEW YORK UNIVERSITY’S
KIMMEL CENTER
60 WASHINGTON SQUARE SOUTH
NEW YORK, NEW YORK
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October 5, 2014
4 pm - 7 pm
New York University’s Kimmel Center
Schedule
4:00 - Reception and Silent Auction
5:00 - Welcome
Florence Kranitz, President
CJD Foundation
Performance by Young People’s
Chorus of New York City
Directed by Jim Papoulis
Tribute to Family Members
Debbie Yobs and Mike Vitanza
Co-chairs of Fundraising Committee
CJD Foundation
6:00 - Last call for auction bids
Distribution of auction items
7:00 - Conclusion
Dear Supporters,
On behalf of the CJD Foundation and the patients and
families we represent I extend our very warm welcome and
sincerest gratitude to all of you for joining us today. This
event is the culmination of many months of planning on the
part of many people.
We are especially grateful to Jim Papoulis and Mike Greenly
for generously offering their time and talent not only to
entertain us but to also raise awareness and much needed
funding to help those affected by CJD and other prion
diseases. We also extend our heartfelt gratitude to the
incredibly talented Young Peoples Chorus of New York
City - when you hear these magnificent voices you will
understand why we named this concert “The Voices of
Hope”.
The entire fundraising committee worked very hard and
with great dedication, but we extend our gratitude and
special thanks to Debbie Yobs and Mike Vitanza, co-chairs
of this event. It may have been a labor of love, but the labor
part involved many long hours of hard work and they have
done an excellent job! We also offer special thanks to Ana
Betro for designing the beautiful Voices of Hope logo and
promotion pieces, to Melany Pritchard for so diligently and
efficiently compiling the program, to Lori Nusbaum for
creating and editing the auction site and to Stu Yaffa for
donating the printing.
Thank you again for joining us for this very special event.
Most sincerely,
Florence Kranitz
President, the CJD Foundation
Dear Friends,
We’re so pleased to welcome you to Voices of Hope, a celebration
of remembrance and hopefulness for the families and friends
associated with the CJD Foundation. This evening is the culmination
of the efforts of many, many supporters and friends. We send our
sincere appreciation to all who contributed! Special thanks go to:
The Fundraising Committee, who have worked tirelessly
throughout the year and contributed in countless ways to
make this evening a success: Ana Betro, Ruthie
George, Paul Paternoster, Scott Paternoster, and
Stu Yaffa. Each contributed in their own unique and
outstanding way.
Florence Kranitz, President of the CJD Foundation, for her
leadership, passion, support, and hard work on this event.
And to the dedicated team at the CJD Foundation, Lori
Nusbaum, Melany Pritchard, and Wanda Culp-Lias,
for lending their diverse talents, hard work, and high energy
level to support the concert, auction site, ticket sales, and
logistics.
The very talented Young People’s Chorus of New York
City, for adding their beautiful “Voices of Hope” to our
event; to Jim Papoulis and Mike Greenly for “I Know,”
the inspirational song they composed; and to Nancy
Bloom, Lindsay Bogaty, and Sophia Miller at the YPC
for all their help in preparing for the performance.
Our donors and sponsors, who so generously supported our
efforts here tonight.
And to all of our guests tonight! Your presence and
enthusiastic support keep our Voices of Hope loud and
strong.
With tremendous gratitude,
Debbie Yobs and Mike Vitanza
Co-Chairs, Fundraising Committee
ABOUT THE COMPOSERS
Jim Papoulis
Jim Papoulis composes, orchestrates and conducts music for choirs,
orchestras, and ensembles throughout the world. His compositions
are known for exploring new modes of musical communication by
honoring and connecting classical and traditional forms with nonWestern sounds. Jim's distinct and ever-evolving approach unites
classical with contemporary sounds, world rhythms, R&B, and
voices, while combining live instruments with current composing and
recording technology. He is a firm believer in the ability of music to
educate, heal, and inspire all of us. www.jimpapoulis.com
Mike Greenly
Mike Greenly is a former corporate executive (VP, Marketing &
Communications, Avon Products Inc.) and journalist. Today he’s a
freelance speechwriter, script writer and presentation coach. His
passion, however, is being a lyricist. Mike has written three Billboard-charted Dance Hits, and has collaborated with Jim Papoulis on
these as well as choral songs. He uses his lyrics to support positive
change in the world. For example, the duo’s award-winning song,
“We Can Plant a Forest,” benefits Trees for the Future, which
works to re-forest the earth. Mike and Jim are delighted that “I
Know” benefits the CJD Foundation and the important work it does.
www.mikegreenly.com
ABOUT THE CHOIR
The Young People’s Chorus of New York City, founded in
1988 by Artistic Director Francisco J. Núñez, a MacArthur “genius”
fellow, is a groundbreaking program that harnesses the power of
music to fulfill the potential of every child of any cultural or
economic background, while heightening an awareness of the
potential of young people to rise to unforeseen levels of artistry.
Almost 1,400 children from 7 to 18 benefit musically, academically,
and socially through YPC’s after-school and in-school programs.
YPC has been recognized with a National Medal of Arts and
Humanities Youth Program Award, America’s highest honor for
youth programs.
"I Know” was written and composed by Mike Greenly and Jim Papoulis
in memory of Stephanie Martine Papoulis, who died tragically in 2007 at
the age of 45 from CJD. The song is performed by the Young People's
Chorus of NYC -- an extraordinary group of multicultural young singers
whose lives are positively transformed by being a part of it ... even as
they earn awards for artistry around the world.
Mike and Jim have donated much of the proceeds from this very moving
piece to the CJD Foundation, we have adopted it as our theme song.
I KNOW©
I can’t foretell if darker skies will come and change my life
I can’t foresee the road ahead or what’s around the bend
I only know the things I know
I only know today
I know that I can hope
I know that I can love
I know that I can grow
This I know
We never want the darker times that could come our way
We do our best to carry on and make it to the end
So let us always keep the faith
The light will shine again
I know that I can hope
I know that I can love
I know that I can grow
This I know
I’ll remember what
I know
Music: Jim Papoulis - Lyrics: Mike Greenly
Copyright Amphion Music & Mike Greenly Marketing, Inc.
ATTORNEYS AT LAW
Buckingham, Doolittle & Burroughs
proudly supports Voices of Hope
and the CJD Foundation.
bdblaw.com
Akron
3800 Embassy Pkwy., Suite 300
Akron, OH 44333
330.376.5300
Canton
4518 Fulton Dr. Northwest Suite 200
Canton, OH 44718
330.492.8717
Cleveland
1375 E 9th St., Suite 1700
Cleveland, OH 44114
216.621.5300
Life Lesson #28 from our Dad:
If you’re not sure what to do,
just try something.
If it doesn’t work, try something else.
in remembrance of
Edward Norman Mjos
april 12, 1925–august 25, 1998
Our Dad was one-in-a-million — a true inspiration !
Sadly, he was also one-in-a-million when he passed too soon from CJD.
PROUD TO SUPPORT
THE CREUTZFELDT-JAKOB
DISEASE FOUNDATION
Mark and Pam Goldfarb
www.SSandG.com
In Loving Memory of Robert (Bob) Vitanza
Thank you Bob for everything you gave to society and to your
family. You were a great man, a model son, an inspirational
brother, a loving husband and a successful businessman.
It has been six years since you left us and there are still
friends and acquaintances of yours who reach out regularly
to express their appreciation for what you brought to the
world. You obviously made a huge impact on others.
Your spirit lives on and in us every single day. Thanks again
for everything!
We love you and miss you.
Love,
Mom, Scott and Mike
JerryYaffa
1936‐2005
Rememberedby:
ShirleyYaffa
Stuart&LindaYaffa,Jeffrey,
Steven,Zachary
Michele&LennyLeff,Bari,
Brandon
Joel&DinaYaffa,Sholom,Ora,
Shmuel,Aharon,Simcha,Sara,
Shimon,Eli,Peretz,Baruch,Ruven
Jerry Yaffa was a pillar of strength in the community. He was a loving husband, an unbelievable father, and an even be er grandfather (Zaddie) with 3 children and 16 grandchildren. He experienced near fatal accidents and illness losing a leg (1992), an eye (1996), and a major heart-a ack (2001). These incidents didn’t change his outlook on life. He lived each day to its fullest and never complained. He was the proud owner of the family business; S.Yaffa’s Sons Recycling. He turned a mountain of scrap metal into money and used his knowledge and experience to build a successful business. From cranes, to heavy machinery, he could do it all. He was generous to all chari es and would help anyone who needed a hand. Jerry was diagnosed with CJD in late April, 2005 and was buried on his birthday June 22, 2005. Always in our hearts! You will never be forgo en! We are the
voices of hope
when we honor
our loved ones.
In memory of
Marie McBride
Thank you very much
for joining us for this
special event.
The CJD Foundation
www.cjdfoundation.org
Board of Directors
Florence Kranitz, President
Pierluigi Gambetti, M.D., Medical Director
Mark Goldfarb, Chairman
Mayra Lichter, Co-founder & Vice Chairman
Ruthie George, Treasurer
Marie Kassai, Secretary
Ana Betro, VP Fundraising
Brian Appleby, M.D.
Charles Cash
Tom Haught
Amanda Baxley Kalinsky
Bob Kassai
Veronica Oberdorf
Paul Paternoster
Scott Paternoster
Tom Sawyer
Former Member of Congress
Ohio State Senator
Deana Simpson
Michael Vitanza
Stuart Yaffa
Debbie Yobs
Cele Sardo, Co-Founder
Deceased
Staff
Lori Nusbaum, Associate Director
Wanda Culp-Lias, Bookkeeper
Melany Pritchard, Office Manager
Auction Items
ACCESSORIZE
001
Michael Kors Selma Satchel
Value: $358
Family of Neil W. Foster
002
Michael Kors Jet Set Travel Wallet
Value: $138
Family of Neil W. Foster
014
Le Petite Portrait Gift Certificate
Value: $3,500
Kramer Sudios
015
2 Tickets to “Beautiful” on Broadway
Value: $571.50
Jay and Sharon Levy
HEARTH AND HOME
003
Tiffany Drop Earrings with Pearls
Value: $175
Lauren Yobs
016
Keurig Coffee Maker
Value: $128.98
Hatte Blejer
004
ZAC by Zac Posen Bow Clutch
Value: $195
Mondani
017
Brookstone Automatic Wine Opener
Value: $39.99
005
Ivanka Trump Shopper Tote
Value: $125
Mondani
006
Ivanka Trump Crossbody Purse
Value: $125
Mondani
007
London Fog “Tate” Satchel
Value: $150
Mondani
008
Coach Peyton Crossbody Purse
Value: $148 (retail)
Susan LaBeau and Sandra Windels
009
Coach Peyton Wallet
Value: $238 (retail)
Susan LaBeau and Sandra Windels
010
CYDWOK Leather Purse
Value: $370
CYDWOK
011
Hermes Scarves
Value: Undetermined
Danielle Packer
ARTS AND ENTERTAINMENT
012
Jimmy Fallon Tickets
Value: Priceless
The Jimmy Fallon Show
013
Masterpiece Portrait Gift Certificate
Value: $5,500
Kramer Studios
018
Outdoor Speakers
Value: $169.99
Carole Dicton
019
Wine Chiller
Value: $99.99
Lauren Arguelles
020
Halloween Trick or Treat Basket
Value: $75
Ruthie George and Ana Betro
SPORTS AND MEMORABILIA
021
Mets Tickets
Value: $700
Scott Paternoster
022
Mets Tickets
Value: $250
Marc Levine
023
Jets vs Steelers Tickets
Value: $700
Scott Paternoster
024
Golf Foursomes
Value: Undetermined
Paul Paternoster
025
Bergino Baseballs and Gift Certificate
Value: $125
Bergino Baseball Club
026
2015 Troon Golf National Foursome Card
Value: $999
Family of Neil W. Foster
Auction Items
027
Foursome of Golf at Lake of Isles Golf
Club
Value: $800
Family of Neil W. Foster
028
Soccer Ball Signed by 2011 LA Galaxy
Team
Value: $150
Major League Soccer
029
Joe Torre Signed Ball
Value: $75
CohnReznick
030
Joe Torre Autographed Glove
Value: $200
CohnReznick
031
Giants Tickets
Value: $240
Peter and Christina Baldini
032
Notre Dame Football Experience
Value: $550
Mike Vitanza and Tom Buccellato
TECH
033
GoPro
Value: $399.99
Anonymous
034
Yurbuds Earbuds
Value: $44.99
Karla Piriz
037
Dash 20 Upright Wheeled Luggage
Value: $99.99
038
Resort Vacation Certificate
Value: $599
Adrienne Giordano,
Wyndham Exchange and Rentals
039
Washington Court Hotel 2 Night
Weekend Stay
Value: $700
Washington Court Hotel
040
Patagonia Backpack
Value: $99
Niko George
041
Rejuvenating Seaside Escape
Value: $3600
042
St. Croix Paradise Escape
Value: $3400
043
Blissful Escape Along Hawaii’s Kohala
Coast
Value: $6600
THIS AND THAT
044
Dinner for 4 at North Square Restaurant
Value: $250
North Square Restaurant
LET’S GET AWAY
045
Amazon Gift Card
Value: $100
Diane Polise
035
Hot Air Balloon Ride
Value: $400
Donna Davenport
046
Razor Scooter
Value: $42
Nick and Ruthie George
036
Fishing Trip
Value: $500
Paul Paternoster
047
Gift Certificate for 2 hours of Professional
Family History Research
Value: $250
Capital Genealogy
ABOUT PRION DISEASES
Prion diseases are a group of rare, invariably fatal brain
diseases that occur both in humans and animals. They first
came to wide public attention in the mid-1980s when the
epidemic of bovine spongiform encephalopathy (BSE), a
prion disease of cattle, arose in the United Kingdom (U.K.).
It is now believed that BSE may have appeared spontaneously in British cattle sometime in the early 1970s. Tissue
from infected animals may have contaminated cattle feed,
leading to the silent spread of the BSE epidemic. There is
also a theory that BSE came from feed contaminated with
scrapie, the long established sheep prion disease. Inevitably,
concern over whether BSE could pass to humans mounted.
In humans, the best known prion disease is CreutzfeldtJakob Disease (CJD), first documented in 1920 by two
German doctors, Hans Gerhard Creutzfeldt (1885-1964)
and Alfons Maria Jakob (1884-1931). CJD reportedly affects
approximately one person per million per population each
year worldwide. In the United States (U.S.), this translates
to approximately 300 new cases annually. It is well known
that CJD is very difficult to diagnose, leading to speculation
that the one case per million statistics may be incorrect.
Most of the cases are sporadic CJD (sCJD), occurring for
no, as of yet, proven reason. The sporadic form accounts
for approximately 85% of the cases. The familial form of
CJD (fCJD) is associated with a genetic mutation that is
passed on from parent to child. fCJD accounts for
approximately 10-15% of the cases. The third type of CJD is
acquired by infection from an outside source.
Because prions are so unusual and prion diseases are unique
in that they can both be inherited and transmitted, the area
has attracted enormous scientific and medical interest. This
provides a ray of hope that all of this attention may one day
lead to a cure.*
* CJD and Prion Disease,” CJD Support Network, United Kingdom
We would like to thank our
Donors and Auction Item Contributors
Lauren Arguelles
Susan LaBeau
Peter and Christina Baldini
Michelle Leff
Bergino Baseball
Clubhouse
Marc Levine
Ana Betro
Hatte Blejer
Tom Buccellato
Buckingham, Doolittle, and
Burroughs
Sharon Callahan
Capital Genealogy
CohnReznick
CYDWOQ
Donna Davenport
Carole Dicton
Family of Neil W. Foster
Nick and Ruthie George
Niko George
Sandy Ghezzi
Adrienne Giordano
The Jimmy Fallon Show
Kramer Studios
Jay and Sharon Levy
Frank Longobardi
Major League Soccer
Mondani
North Square
Restaurant
Danielle Packer
Paul Paternoster
Scott Paternoster
Karla Piriz
Diane Polise
SS&G Wealth Management
Sterling Jewelers
Mike Vitanza
Washington Court Hotel
Sandra Windels
Debbie Yobs
Lauren Yobs
Thank you to our Sponsors *
Venue Sponsor:
SS&G Wealth Management
Chorus Sponsors:
Charles Cash
Mark and Pam Goldfarb
Tom and Amy Haught
Florence Kranitz
Stu Yaffa
Friends Sponsors:
Bob and Marie Kassai
Mayra Lichter
Grossman Roth, P.A.
Flower Sponsors:
Nick and Ana Betro
Scott Campbell
Jennifer Gill
*Sponsorships received at time of print
In honor of those
around the globe who have been
struck down by CJD and other
prion diseases.
We hope for a day very soon
when no other families will
have to mourn the loss of a
precious loved one from these
terrible diseases.
From the loving family and
friends of Aaron Kranitz
who will remember him always.
1938—2000
Earning Trust.
Creating Plans.
Delivering Results.
Sequoia is proud to suppor t
the Creutzfeldt-Jakob Disease
Voices of Hope event.
3500 Embassy Parkway, Akron, OH 44333
888.255.3777 | sequoia-financial.com
Investment advisory services offered through Sequoia
Financial Advisors, LLC, an SEC Registered Investment
Advisor. Certain third–party money management
offered through ValMark Advisers. Inc., an SEC Registered
Investment
Advisor.
Securities
offered
through
ValMark Securities, Inc. Member FINRA, SIPC.
3500
Embassy
Parkway,
Akron,
OH
44333,
330-375-9480. Certain insurance products offered though
Sequoia Financial Insurance Agency, LLC. Sequoia
Financial Group, LLC and related entities are
separate entities f rom ValMark Securities, Inc. and ValMark
Advisers, Inc.
Additional Sponsors *
Additional Donors and
Auction Item Contributors:
Beverage Sponsor:
Clark Gillies
Mark and Colleen Dolaghan
Chorus Sponsor:
Carol and Kyle Mitts
Friends Sponsor:
Tony Santomauro
Flower Sponsor:
Helen Piovesan
*Sponsorships received after printing of program
John Ferguson
Molly Garber
Barbara Jakubowski
Joseph McLaughlin
Bonnie Passarella
Louis Passarella
Judy Paul
Rosemary Roach
Nicole Rosenthal
Bethani Stewart
Lori Vaughan
Additional Auction Items
048
Philadelphia Eagles Tickets
Value: $210
Stuart Yaffa
051
Lottery Board
Value: $60-Potential Winnings Infinite
Debbie Yobs
049
Philadelphia Flyers Tickets
Value: $250
Staurt Yaffa
052
Barnes and Noble Gift Bag
Value: $50
Bob and Marie Kassai
050
CJD Foundation
Signature Bracelet
Value: $125
CJD Foundation
053
Coffee and Literature Gift Bag
Value: $45
Bob and Marie Kassai