Sarcoma Newsletter December 2015
Transcription
Sarcoma Newsletter December 2015
ALBANY MEDICAL CENTER DECEMBER 2015 SARCOMA AWARENESS NEWSLETTER 2nd Annual Team Sarcoma 5k Event a Huge Success Local effort having national impact on sarcoma community. On July 11, 2015 the Capital Region of New York came together to increase awareness of sarcoma, to raise funds for sarcoma research and to remember and honor Parker Hayes. We were blessed with spectacular weather and an amazing display of community and common purpose. The event was emceed by local radio host, Brian Cody from FLY 92.3, who was also able to lace up his shoes Kristen Shinebarger crossing finish line with her and join in on the run. Jeff Goupil and Megan ever present smile Romer were our 1st Place male and female finishers, respectively. Team NYOH had the most participants. With over 500 participants and volunteers present, it was obvious how inspiring our local sarcoma warriors have been for their families, their schools and their communities. We were able to raise just over $42,000 to fund a sarcoma research grant through the Musculoskeletal Tumor Society. The grant will soon be open for applicants and the funds distributed to the researcher who is deemed to have the greatest impact for those battling sarcoma. Several local news outlets were present at the event and aired coverage to help shine a light on SARCOMA! Thank you to all our donors, and a SPECIAL THANK YOU to those individuals and companies who donated $1000 or greater. 1st Place Female Finsher, Megan Romer Associate Professor, Albany Medical College Division of Orthopaedic Surgery Director, Orthopaedic Oncology 1367 Washington Ave, Suite 200 Albany, New York 12206 E-mail: sarcomadoc@caportho.com Blog: sarcomastrong.com Albany Medical Center 43 New Scotland Avenue Albany, New York 12208 AMC musculoskeletal oncology www.amc.edu/patient/services/ musculoskeletal_oncology/ GREEN GREEN DRAKKOMAN DRAKKOMAN FOUNDATION FOUNDATION $2500 level: Capital Region Orthopaedics, Garvey Auto Group, Stryker, Trustco and The Morier Family $1000 level: Smith & Nephew, Bill Sampson, Brilliant Design and Print, Medtronic, Zimmer, Depuy Synthes, Market 32 Price Chopper, Community Care Physicians, R Marcil Associates, Kenneth March DPM, Robert Leonard, Glaucoma consultants and IBEW Union 236 1st Place Male Finisher, Jeff Goupil Matthew R. DiCaprio, MD S AV E T H E D AT E : Saturday, August 20, 2016 GREEN 9 a.m. DRAKKOMAN New Venue: SUNY Albany Campus Team SarcomaFOUNDATION 5K Run/Walk Follow sarcomastrong.com for event updates and online registration. SARCOMA AWARENESS NEWSLETTER DECEMBER 2015 Helpful websites: Sarcoma Alliance www.sarcomaalliance.org Sarcoma Foundation of America www.curesarcoma.org National Cancer Institute www.cancer.gov The Morier Family and Team Leiomyo-Goodbye-O Team NYOH A special finish with Jody Hayes 2015 Team Sarcoma Participants just after race start from Warming Hut of Saratoga Spa State Park St. Baldrick’s Foundation www.stbaldricks.org Green Drakkoman Foundation www.greendrakkoman.org Brave Will Foundation www.bravewill.org Double H Ranch www.doublehranch.org Clinical Trials www.clinicaltrials.gov 2016 Team Sarcoma Event: A Change in Venue Musculoskeletal Tumor Society www.msts.org Because of our success in previous years we have outgrown the Saratoga Spa State Park for the 5K event. We view this as a GOOD problem and have used it to establish a new collaboration with SUNY Albany. The date is set for August 20, 2016 and the course is a certified 5K route on the campus of SUNY Albany. The Foundation at SUNY Albany is considering some level of sponsorship and the Cancer Research Center headed by Dr. Martin Tenniswood are eager to join our mission and help us meet the following goals in 2016: Upcoming Orthopaedic Oncology Meetings AAOS/MSTS –Musculoskeletal Tumor Society Specialty Day Orlando, FL • March 5, 2016 EMSOS – European MusculoSkeletal Oncology Society La Baule, France May 25 - 27, 2016 MSTS 2016 Annual Meeting Detroit, MI • October 5-7, 2016 CTOS – Connective Tissue Oncology Society Lisbon, Portugal November 9-12, 2016 COMMENTS OR SUGGESTIONS for future newsletters and events are welcome. Please e-mail Team Sarcoma at sarcomadoc@caportho.com • Increase 5k participation to >500-750 participants • Involve more local colleges and high school students and athletes • Fundraising goal $60-70K •K eep a percentage of funds local to sponsor a Sarcoma Symposium at Albany Medical Center (details to follow) • Continue to work with the Musculoskeletal Tumor Society and help fund another national sarcoma grant • Enhance team participation in the registration process for the event • “Fund me” accounts will be available this year for each participant to be able to raise their own funds for their efforts by having friends and family donate directly to their participation page. sarcomastrong.com Check out your sarcoma blog site. Add a comment. Make a post request. Have a voice. GOALS: Be an educational source for patients and families Serve as a unifying force for those dealing with sarcoma Contribute regular blog posts to disseminate knowledge, inspiration, hope and support Seek feedback on blog content and continue to perfect the site until it best serves the Team Sarcoma community Be the change you want to see in the world. —GANDHI www.amc.edu
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