Dedicated to enhancing the quality of lives of People affected by
Transcription
Dedicated to enhancing the quality of lives of People affected by
Dedicated to enhancing the quality of lives of People affected by Epilepsy or Parkinson’s SUPPORT CARE KNOWLEDGE ANNUAL GENERAL REPORT 2012-2013 Victoria Epilepsy and Parkinson’s Centre Society 813 Darwin Ave. Victoria BC V8X 2X7 Mission We are a vibrant and welcoming non-profit society whose purpose is to strengthen clients’, families’ and communities’ ability to manage the physical, psychological and social effects of Parkinson’s and epilepsy MESSAGE FROM THE PRESIDENT The More Things Change… This past year has seen quite a number of changes to the Victoria Epilepsy and Parkinson’s Centre. We have witnessed staff changes, board changes, and a very large change in how we identify ourselves as an organization. To begin, I would like to give my sincerest thanks to Catriona Johnson for her years of dedication to the VEPC as Executive Director. Catriona has guided the VEPC with a steady hand through some very difficult times, and we truly appreciate all of her efforts. On behalf of the board, the staff, and the membership, I wish her all the best in her future endeavours. At the same time, I am pleased to welcome Barbara Gilmore to the role of Executive Director. Barb comes to us most recently from the land “Down Under”, and has had many years of experience in the non-profit sector, including previous involvement with the London Health Sciences Centre - Epilepsy Clinic. In the short time that Barb has been with us, she has proved to be an enthusiastic leader. This year marks the departure of Dr. Alex Moll from the Board of Directors. Dr. Moll has been a member of the Board — including a Past-President — from almost the inception of the VEPC, and his contributions, institutional knowledge, and steady guiding hand will be sorely missed. Thankfully, he has offered to be there as an ear for the Board if we ever need a little insight. We are also giving a fond farewell to Harvey Lazar who is off to Vancouver. Harvey has been on our Board for a number of years, and has served on the executive committee, first filling in as interim treasurer, and then as Board Secretary. Harvey brought a unique perspective to the board, and we wish him well. With departures, also come new welcomes! We are losing one Alex and gaining a new Alex — Dr. Alex Henri-Bhargava is a neurologist who has recently moved to Victoria, and we welcome having his expertise on the Board. We also welcome Suzanne Dwillies, a local pharmacist, to the Board. Despite all these changes, the VEPC has had another successful year, and we continue to grow. We held a successful “Walk in the Park for Parkinson’s” last September, and had another great Purple Day Plane Pull in March. Of course, we also have our annual Golf Tournament sponsored by Peninsula Co-op coming up in just a couple of weeks. I would be remiss in not mentioning our most exciting change. Following on the success of our various fund raising efforts over the past couple of years and our increased media exposure, it was decided to embark on a rebranding of the VEPC to reach further into the community and breath new life into our organization. After nearly a year’s worth of work, we are pleased to announce that the Victoria Epilepsy and Parkinson’s Centre will now be known as HeadWay. We feel that this rebranding sends a positive message, and captures the essence of the organization — we exist to assist individuals in making headway in the management of their condition. With Best Regards, EXECUTIVE DIRECTOR’S MESSAGE As I look at what was happening at the Victoria Epilepsy & Parkinson’s Centre last year until I joined as executive director in January 2013, I am impressed with the action and outcomes at both the Board of Directors level and the program and service delivery level. Thanks to Catriona Johnson for efforts that continue to guide and make a positive impact. The Board initiative of rebranding and confirming ‘HeadWay’ as a new identity for the agency is refreshing and promotes a new enthusiasm for the Centre’s role in the community. After 27 years of one organization successfully managing, growing and delivering services of two neurological programs, there really has been headway made toward understanding the conditions of epilepsy and Parkinson’s’ and building supportive , caring and knowledgeable relationships with clients, our community, our clinicians and professionals, and our members and supporters. ‘HeadWay’ is both an action and an outcome as we provide support care knowledge through program and service delivery, relationships and information sharing at the Victoria Epilepsy and Parkinson’s Centre . We work together achieving ‘HeadWay’ to live a life of wellness with conditions such as epilepsy and Parkinson’s. The continuous outreach programs for seniors; support groups; workshops for caregivers; tutoring classes for children; advocacy consultations and letters for adults with epilepsy or Parkinson’s; and planning public awareness and learning activities, are just a part of each week for the staff at the Centre. It is amazing what gets fit into part-time hours. Thanks to Della, Maureen, Lindsay, Jennifer, Lissa, and now Sandra. There are volunteers and members that make such a difference ; the essence of non-profit Societies. Thank you. In addition to donors, United Way, the Vandekerkhove Family Foundation , VIHA and BC Gaming, awareness and fundraising events have also supported the Centre. The Peninsula Co-op Charity Golf Classic is in the 21st year; the plane pull is ‘just getting off the ground’, and there has been the fun Walks for Parkinson’s. I am looking forward to a year of growth and recognition as a place to connect to and make headway toward a rewarding life. Barb Gilmore Facts about Epilepsy The word ‘epilepsy is a general term for more than 20 different types of seizure disorders. Seizures occur as a result of brief changes in the normal activity of brain cells. The extent of these changes, and their effect on the individual, can vary greatly. Epilepsy affects approximately 1 in every 100 Canadians, and begins most often in childhood or the senior years. Facts about Parkinson’s Parkinson’s is a progressive neurological disorder resulting from the loss of dopamine production in a part of the brain called the substantia nigra. Dopamine acts as a chemical messenger, allowing nerve impulses to travel smoothly from one nerve cell to another. This enables the transmission of messages to muscles of the body to begin voluntary movement. As dopamine production decreases, muscle movements become slower and more rigid, tremors can develop and reflexes become more impaired, contributing to a loss of balance. Although most commonly diagnosed in seniors, Parkinson’s can occur in early to mid- adulthood as well and is known as early onset Parkinson’s. 2012 – 2013 The Victoria Epilepsy and Parkinson’s Centre ▄The Parkinson’s program coordinator provided over 600 individual consultation sessions with individuals and family members in person, over the phone and by e‐mail ▄There were 32 monthly support group meetings in Victoria, Sidney and the West Shore for individuals with Parkinson’s and their family members ▄173 exercise classes were co-ordinated by the Parkinson’s outreach coordinator with 66 participants ▄ Partnerships flourished between Victoria Epilepsy and Parkinson’s Centre and VIHA with the Seniors Outpatient Clinic – Falls Prevention, and with their neurology and mental health services. ▄ 19 workshops were held for Parkinson’s and Caregivers connecting more than 375 people ▄ 5 public awareness activities for Parkinson’s and Caregivers were held and reached 345 people ▄100 people ‘Walked in the Park’ for Parkinson’s in Sidney, Victoria and West Shore ▄ The Parkinson’s conference in April 2012 brought professionals, members and community members together for an outstanding information and connection conference. ▄76 new epilepsy client consultations and 96 new professional epilepsy contacts were provided by the epilepsy program coordinator ▄ 33 tutoring classes and 25 music therapy classes were provided to children with epilepsy ▄ 50 school children received epilepsy awareness activities ▄7 epilepsy public awareness activities provided information for over 1000 people ▄ Hundreds of people supported Purple Day in March including the Plane Pull team, members of parliament, and schools like Stelly’s Secondary ▄Quarterly Brain Wave newsletters reached approximately 2600 people and Transmitter newsletters reached about 3400 people Revenue In addition to private donations and the generous sponsors at our events such as the Peninsula Co-op Golf Charity, the United Way of Greater Victoria; Vandekerkhove Family Foundation; Vancouver Island Health Authority; and BC Gaming are major funders for services and programs. Special thanks go to Parky’ Peddlers and Tara Murley and Jessi-Ann for their cycling and walking to raise funds and awareness for Victoria Epilepsy & Parkinson’s Centre. The Audited Financial Statements for 2012-13 are attached separately Revenue Victoria Epilepsy & Parkinson's Society 2012-13 $408,373 Grants 43% Donations 29% Fundraising/Other 17 % Interest/Investment Income 6% Conference/Service Fees 5% 6% 5% 17% 43% 29% Expenses Victoria Epilepsy & Parkinson's Society 2012-13 $466,020 Fund Development & Communications 16% Office Administration 20% Client Services 64% 16% 20% 64% 2012-2013 Programs and Services Epilepsy Support Care Knowledge During 2012, the Epilepsy program and services were delivered by both Jennifer Morgan and Lindsay Beal, while Jennifer was on maternity leave. Individual and family consultations/ visits and liaising with clinicians and other professionals make up a large part of the direct services provided. There were 76 new epilepsy client consultations and 96 new professional epilepsy contacts. Email, mail and phone consultations almost doubled from the year before to170 consultations. Encounters Under 30 brought together 6 young adults with epilepsy. Though they have friends and family who understand and support them, none had met others of a similar age who also had epilepsy. The Epilepsy Advisory committee embarked on an awareness campaign for Purple Day 2012. Over 75 business packages were distributed; a delegation of 12 people met and attended BC Legislature to hear the Minister of Health declare awareness and support for epilepsy and Purple Day. For children the Tools for Success tutoring program continued with 33 classes and 10 students thanks to a TELUS grant and the partnership with CORE, University of Victoria. A grant from Times Colonist Raise a Reader assisted the Tools for Success program with funds sufficient to purchase an iPad mini and applications. Jennifer is discussing the Tools for Success program by poster presentation at the International Epilepsy Congress in Montreal June 2013. The Music Therapy program, in partnership with the Victoria Conservatory of Music with funding from CFAX, continued into October, totally 25 classes. A new Music for YouthWorks program started development thanks to a Sara Spencer Foundation. 50 school children received epilepsy awareness activities through our education program. Purple Day Plane Pull 2013 was once again a huge epilepsy awareness event. Thanks to the many participants, efforts and enthusiasm to raise funds and awareness. BIG thanks to Stelly’s Secondary school for their Stelly’s Palooza support of Purple Day and epilepsy. 2012-2013 Programs and Services Parkinson’s Support Care Knowledge During 2012 the Parkinson’s program coordinator, Maureen Matthew provided over 600 individual consultation sessions with individuals and family members in person, over the phone and by e‐mail. This valued service continues to draw a lot of interest and we are grateful to both learn together and serve over 500 local families living with Parkinson’s. There were 32 monthly support group meetings in Victoria, Sidney and the West Shore for individuals with Parkinson’s and their family members. 19 workshops were held for people affected by Parkinson including Caregiver workshops which connected more than 375 people. Mental health information and support has been the focus and we are able to successfully link clients in need of mental health services with Vancouver Island Health Authority (VIHA) mental health services. The outreach program coordinator, Lindsay Beal was able to reach over twice as many people in the second year of program; 665 consultations. The volunteer team is a strong core of Parkinson’s Outreach and assists to serve others through group facilitation, exercise support and professional rehabilitation skills. Partnerships flourished between Victoria Epilepsy and Parkinson’s Centre and VIHA with the Seniors Outpatient Clinic – Falls Prevention Clinic. 173 exercise classes were co-ordinated by the Parkinson’s outreach coordinator with 66 participants. The Parkinson’s conference in April 2012 brought professionals, members and community together for an outstanding information and connection conference. Thank you to Teva Canada for support and assistance. The advisory committee is currently being re-structured toward increasing the ways this special group can advise the program about Parkinson’s service needs and agency growth. It continues to meet to discuss the overall awareness of Parkinson’s, including the Parkinson’s Walk in September and the Parkinson’s program in general. Chronic Disease Self Management workshops were new to both epilepsy and Parkinson’s programs and delivered by volunteers and staff specifically trained in the 6 week program.. This program is part of University of Victoria’s Department of Aging and will be delivered again in 2013-14. Victoria Epilepsy and Parkinson’s Centre Special thanks to our many volunteers that are there to keep the agency programs and services thriving. A genuine non-profit agency is built upon the supportive and caring time and energy that a volunteer gives. Whether it is awareness / fundraising events, a workshop presentation, office and telephone duty, folding brochures, driving pick-up and delivery, being on a committee, or just thinking about our services and calling in with a suggestion.....it is what we need to continue into the next year. THANK YOU And speaking of special thanks, The Peninsula Co-op Charity Golf Tournament held its’ 20th year in 2012. ‘A Scottish theme it ‘twas! Thank you to the Golf committee for the continued support and generousity with your time and energy all toward the Victoria Epilepsy & Parkinson’s Centre. We greatly appreciate Parky’s Peddlers for remembering us in their awesome cycling and fundraising journey for Parkinson’s last June 2012....THANKS. 56 Great Lake Walk Tara Murley and Jesse-Ann completed the walk to offer their generous support for Epilepsy....THANKS! Plane Pull 2013 & Parkinson’s Walk 2012 Victoria Epilepsy and Parkinson’s Centre Society share a special thank you to our financial supporters. As a non-profit society financial contribution through events, testamentary gifts, foundation grants, and individual donations allow us to continue..... Thank you United Way of Greater Victoria Vandekerkhove Family Foundation Vancouver Island Health Authority- Seniors Outreach BC Gaming Peninsula Co-op Charity Golf Classic Patrons ($10,000+) Estate of William (Bill) Morrow; Estate of Jean Cooper Benefactors ($1,000+) Canadian Epilepsy Alliance Pazdry, Pat Estate of Rosebud Mary Allan Cathro, Jean Rai, Harbax Viking Air Horton, Donice & Mark Fraker Rai, Sukhi Walmart #3025 P.E.C.S.F. Estate of Marion Fields Sponsors ($500+) Anderlini, Denver & Carol Meadows, Alan & Holly Pletsch, Helen CanHelps, Anonymous Moll, Alex Sojonky, Stan Crowe, Doug Nemes, Mary Stobbe, Sam Finish Line Transport Oldale, Stephen Times Colonist Social Club Glass, Robin & Heather Patterson, Dale & Beverley Wardill, Jeffrey Hillsden, Arthur & Elinor Pizza Place Zakus, Paul & Peggy Alert First Aid & Services Jack, Bill & Hilda Salvail, Josie Algard, Anne James, Terry Schuurman, John & Linda Bayliss, Fiona Jordan, William & Mary Klassen, Ralph & Barbara Warnock Kring, George and Jeannine Smith, David & Margrit Supporters ($250+) Bennett, Beth Carson, Michael & Elizabeth Coates, Christine Davies, Elaine Dejong, Corneluis Dufour, Joseph & Margaret Ermel, Rudy & Erna Estate of Marilyn Rybchuk Gait-Eames, Sherri Gildenhuys, Dion and Faith Global Village Consulting Leith Wheeler Investment Counsel Ltd. McEown, John Meredith, Robert Monaghan, Linda Parker, Sam Poulin, Janice Ptolemy, Juanita & Ron Saanich Lions Club Smyth, Glen & Rene TD Bank Financial Group Trumper, Patricia Varley, Tammy Wade, Tony & Joanna Waller, Val Williams, Ken Williamson, Kerr Wood, Paddi & Brian Allies (Up to $249) Aasebo, Arve & Karen Brule Beckham, Wayne Chapman, Pamela & Bob Abbott, Terry Bedwell, Colin Chatfield, Shirley Adams, Claudia & Maurice Bennett, Laine Chimp Foundation Ainscough, Robert & Joan Bilinsky, Ron Chomiak, Debbie Akenclose, Margaret Billung-Meyer, Joanna Chow, Edmund & Emma Aloha Paddlers Birtch, Candy Christensen, Tim Ames, Gwenyth Bocskei, Maria Ciofani, Gina & Gino Amos, Wendy Boon, David & Pat Ciofani, Tanya Andersen, Lilian & Donald Borchardt, Sherri Clare, Scott Anderson, Anne & John Bouchard, Lois & Bill Clark, George Anderson, Clarence & Luella Bowser, Doug Claxton, Jenefer Anderson, Daryl Boyd, Ernie & Kathy Clayton, Frank Anderson, Rowena Anderson, Sylvia & Norma Shearer Andrews, Patricia & Ken Braidwood, Robert Coates, Peggy & Dave Branting, Ralph & Rosemary Cochrane, Linda Braun, Shawn Colbert, Mary Breitenbach, Merel Colliar, John & Sylvia Breitenbach, Morgan Columbia Fuels Brern, Kevan Conrod, Lorraine Brinkman, Mary Cook, Don & Janice Brough, Marilynne Cooke, Rob Brown, Beth Coombs, Vicky Bryden, Colleen Corbit, Heather Brynjolfson, Peter Cormier, Heather Burgess, Katie & James Coulthard, Deborah Cownden, Melinda Bagnall, Carolyn Burns, Gary Burnside Gorge Child Care Centre Burrell, Karen Bailey, Christina Burrows, Linda Ballance, Roy Butler, Diana Baran, Lydia Cadieux, Jan Camosun College Student Society Campbell, John & Cathy Anfield, David & Jacquie Argue, Sandy & Margaret Arkell, Thomas Armstrong, Dale Armstrong, Judy Arnold, Brad Ash, Lois Kathryn August, Darlene August, Tami Back To Back Chiropractic Inc. Badouraly, Amina Barker, Isabel Barkhouse, Alan Barkhouse, Connie Barkhouse, David & Donna Barkhouse, Lavenia Barry, Kenny Barton, Betty Barton, Dorothy E. Beaubier, Hiram Beck, Bonnie Beck, Harold & Memory Coy, Kim Craig, Corrina Crawford, Rob Crawshaw, Lynne Creighton, Anne Cresswell, Len & Kathy Cross, Sharon Crosson, Jeanne Cao, Katelyn Crowe, Jan Carlow, Arlene Croy, Roma & George Caron, Marg & Ben Cruickshank, Paulette & Jim Carr, Gerald & Catherine Cunningham, Dorothy (Dusty) Carson, Jillian & David Cuthill, Camille Carson, Peter Dads Auto Deliveries Co-op Castle Care Daycare Inc. 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Tollefson, Irwin Westoby, Peter & Marilyn Smith, Dave Toop, Videt Wharton, Gwen Smith, Gwen & Jack Travis, John Estate of Whitfield, Penny Smith, Lloyd Trinder, Andrew Whitney, Roy & Georgina Smithson, John Trust, Diana Whittle, Derek Snyder, Cindy Tugwell, Claire Wiggs, Russell Snyder, Ric Van Gylswyk, Donna Van Vliet, Adrian & Linden, Elizabeth Vancouver Island Mustang Association Wilkins, Marilyn & Cliff Souliere, Allen Souter, Irene Sprott Shaw Community College Stansfield, Brenda Stanton, Bonnie Stefanyk, Maria Stephens, Patricia Stetson, Randy Stromberg, Doug Strong, Curtis & Michelle Sullivan, Dorothy Super J Foods Surdu, Courtney Sutherland, Kathleen Swan, Wes & Shirley Sykes, Jean & Cliff Synnuck, Gord and Veda Synnuck, Stephen Szaniszlo, Aranka Tait, Anita Tannock, Wendy Vandenboer, Fred Vatcher, Brenda Venn, Leeann Vernon, Nancy Verwey, Norma Ellen Victoria Foundation, The Viney, Barbara Virtue, Christiana Wadsworth, Vicki Wilkinson, Annie & Gordon Williamson, Mary Willmann, Albrecht & Ursula Wilson, Barbara Winger, A Wolferstan, Bill & Clementien Woods, Doris M. Woods, Rolland and Gerri Wright, Marion Wrightson, Dennis & Leslie Wunderle, Ame Walker, Brenda Young, Brenda Young, David & Mavis Goodman Yvonne, Debbie Walker, Neil & Margaret Zala, Lissa and Cedric Wallace, Chris Zarff, Ayako Waller, Joyce Ziegler, Bonnie & Mark Walton, Alison & Doug Zucconi, Luigi & Franca Wagnor, Diane & Don Wakefield, Heather & Barry Walton, Pat & Lawrence Ward, Jan Membership Early in 2013 the Victoria Epilepsy & Parkinson’s Society changed the membership fee structure. Memberships are now free. However, we do rely upon personal donations, planned giving and bequests, grants and event fundraising to continue the programs and services and we issue tax receipts for all donations and gifts. Members’ benefits: Vote at our Annual General Meeting Take advantage of a reduced fee for our outreach programs, educational services, conferences Receive quarterly newsletters sent online, or posted to you if you prefer Involvement in our ongoing campaign to support Parkinson’s and Epilepsy through the services VEPC provides Victoria Epilepsy & Parkinson’s Centre benefits: You allow us to conduct business as a charitable organization We can apply for and receive grants and funding You offer us advice with our services You offer us a volunteer base to assist us and support us with our campaigns and fundraising events Our services include: Professional consultation services with information and knowledge about diagnosis, management and understanding epilepsy or Parkinson’s Support and advocacy with community, school and work situations Professional referral base Parkinson’s and epilepsy lending library Newsletters BrainWave and Transmitter Online information – website and links; newsletter, e-blast Email addresses offer the most efficient way to send you our newsletter and event information. As a member, you may want to receive your newsletters printed and in the mail, just let us know. Annual Membership is from January 1st to December 31st. Please help us keep up-to-date with your contact details. Tell us about any changes. 250 475 6677 Membership Renewals will be in January. Your financial donations are welcome throughout the year. 250 475 6677 www.headwayvictoria.com www.vepc.bc.ca BOARD OF DIRECTORS 2012 - 13 President David Medler Vice President Ross Young Treasurer Fiona Bayliss Secretary Harvey Lazar Alanna Holroyd Dr. Alex Moll Nathan Lampard Andrew Trinder Sherie Welsford Charles Meadow Ryan Perepelkin STAFF 2012-13 Executive Director Catriona Johnson and Barb Gilmore (Jan 2013 >) Parkinson’s Program Coordinator Maureen Matthew Parkinson’s Outreach Coordinator Lindsay Beal Epilepsy Program Coordinator Lindsay Beal and Jennifer Morgan (Sept 2012 >) Education Coordinator Lissa Zala Community Awareness Coordinator Sandra Graham Office Manager Della Cronkrite Vandekerkhove Family Foundation