IT Specially Tailored for Physically Disabled Children
Transcription
IT Specially Tailored for Physically Disabled Children
JULY 2003 MITA (P) No. 219/05/2003 A Publication Printed By The Society for the Physically Disabled extrapage IT Specially Tailored for Physically Disabled Children This mid-year school break, some 15 physically disabled children were given the know-how to channel their energies to creating works of art using the computer. They also got to learn IT skills from the physically disabled SPD Web Designers. Some of the works of art produced by the participants at Creative Workshop 2003 COVER STORIES • IT Specially Tailored for Physically Disabled Children 1 • 12 National Day Greetings via E-Card IN & AROUND • Hygiene Standards Upped at SPD 2 • Low-Income Families Get New PCs with iDA’s Neu PC Programme 3 • More AT Devices at ATC 4 • SPD Joins in the Fight Against SARS 4 • Riding on the NEL 5 • Sessions on Sexual Awareness and Harrassment 5 • Fundraising -SPD Flag Standing Tall at Mexico’s Highest Point -Rotarians Set Up IT Training Fund - “Because of You, I Can Still Go to School...” 6 6 7 • Wataboshi Music Festival 2003 8 • Opt for ExtraPage Online and Help SPD Save Cost 9 FEATURE • A Touch of Costa Rica at SPD 10 • 11 The Courage to Endure H ELD on 10 and 11 June 2003 at the SPD Computer Lab, Creative Workshop 2003 taught the participants aged 7 to 12 how to develop creative thinking skills, use computer software to design brochures and greeting cards, surf the Internet and give presentations. Two aspects were the focus of the workshop – IT sessions taught the children the rudiments of Microsoft Word, Microsoft Paint and Microsoft Powerpoint, while the Creative Thinking Skills sessions helped them overcome their inhibitions in order to let their creative juices flow. In the midst of the learning, the children had the opportunity to foster deeper friendships and give and obtain support from those with similar experiences. The highly interactive programme included the use of short lectures, games, group exercises, video programmes, situation simulations, individual presentations and feedback. All these were done in line with the Singapore Government’s push towards creative thinking. Courses available commercially are not accessible for many physically disabled children as some of them require some form of mobility aid. This workshop, besides being affordable, provided an alternative for the children to participate in holiday programmes like any other normal student. At the same time, the physically disabled SPD Web Designers who taught the IT segment provided the children with ideal role models to challenge them to look beyond their physical limitations and attain a high standard of IT proficiency. The trainers specialise in the area of web design and have also been designing e-cards for commercial purposes. Mdm Joan Canafee, mother to 9-yearold twin brothers Amin and Aman who suffer from Achondroplasia (dwarfism), was glad that her boys were able to take part in the programme. “IT is so important nowadays so I’m glad to be able to send my sons here. They can also learn about the PC with their disabled friends. Hopefully they can learn to be more creative! Now at least they know how to use the computer to surf the Internet and make their own cards instead of just playing games.” PATRON Dr Wee Kim Wee BOARD OF TRUSTEES Prof Kiang Ai Kim, PBM Joseph Hoo, PBM Mike Gray, PBM, BBM BOARD OF MANAGEMENT 2002/ 2004 President Koh Nai Teck 1st Vice President Tan Eng Lock, PBM 2nd Vice President Soh Chee Keong, PBM Honorary Treasurer Yeo Jeu Nam Honorary Treasurer Frankie Thanapal Sinniah, PBM Ex-Officio Secretary Loke Ho Yong, PBM BOARD MEMBERS Nancy Chia Benjamin Gan Beng Chwee Anthony Gan Kong Meng David Goh Kia Ngan, PBM Kong See Wah K V Veloo Laurence Wee EDITORIAL COMMITTEE Loi Boon Lee Katherine Sng Design by Lucidity Pte Ltd extrapage IN & AROUND HYGIENE STANDARDS UPPED AT SPD Hygiene Standards Upped at SPD In an effort to improve the personal hygiene standards of the beneficiaries, SPD’s therapists planned and conducted sessions that promote hygiene and cleanliness. T HERE is renewed interest in the world today over the subject of hygiene and cleanliness. Little wonder given the myriad of viruses and health and social problems arising today from the lack of attention given to these two very important areas. Eager to improve the personal hygiene and grooming standards amongst the beneficiaries here, the therapists worked alongside training officers to identify beneficiaries who have specific concerns in these areas and to put them through a 9-session course that would help them deal with their problems. From March to June 2003, 17 beneficiaries attended one-hour sessions that taught them the basics of skin care, shaving, menstrual care, dressing, body odour, nail care, and hair grooming. Sitting through theoretical explanations, practical sessions and participating in discussions and presentations with the therapists and training officers, the participants slowly took to heart the importance of self-cleanliness and personal grooming. Where required, translations in Mandarin and Malay were given to drive the message home. As part of the course, dentist Dr Siva Rajendram came and taught Beneficiaries picking up on nail care the beneficiaries the finer points of dental care. This was done as part of the Singapore Dental Association’s Toothfairy Project which saw beneficiaries of various welfare homes being taught how to brush their teeth properly. Improvements have been seen in the dressing and hygiene management of many of the participants. According to Ms Tay Hwee Lin, Head of Therapy Services, the course had a real and positive effect on them. They now have an appreciation of themselves and are aware of the importance of personal hygiene. is a quarterly public affairs communicator published by: Society for the Physically Disabled 2 Peng Nguan Street SPD Ability Centre Singapore 168955 Tel: (65) 6323 2303 Fax: (65) 6323 7008 E-mail: information@spd.org.sg Writers’ views and opinions expressed in extrapage are not necessarily that of SPD’s. 2 Dr Siva Rajendram teaching the beneficiaries the finer points of toothbrushing IN & AROUND LOW-INCOME FAMILIES GET NEW PCS WITH IDA’S NEU PC PROGRAMME Low-Income Families Get New PCs with iDA’s Neu PC Programme iDA’s Neu PC Programme offers even more options and makes it easier for participants to own a brand new PC. I T first began in early 2001 with the PC Reuse Scheme. Low income families as well as those who were disabled were eligible to apply for a free refurbished PC. This year, the PC Reuse Scheme receives a new name along with a revamp with the introduction of the Neu PC Programme. Participants under the Neu (standing for new and used) PC Programme now have the option of owning a brand new PC if they so choose, at an affordable price. Each comes bundled with technical warranty, software and Internet access. Under the scheme, iDA provides a grant of up to $300 for each PC deployed. Four schemes are offered at different prices depending on the speed of the computer and drive. The option of a refurbished PC for free remains, as long as the applicant meets the criteria as set out by iDA. In order to be eligible to apply under the Neu PC Programme, applicants must be Singaporeans or Permanent Residents with a combined household gross monthly income of $2,000 or less. Where this exceeds, the monthly income of each member of the household should not be more than $500, or $700 where a member shows proof of permanent disability. Other criteria include not having previously obtained a PC under the programme or similar assistance programmes and not possessing a working PC in the home. At least one member of the applicant’s household must also have completed the National IT Literacy Programme or equivalent IT training course. SPD is one of five lead agencies supporting the programme. Those interested can contact Ms Janice Seah at 6236 6376 for information and application. OPTIONS: Type A and B Type C and D $285 and $250 respectively Free All new PCs, each with Mini tower casing, 20GB Hard Disk, 128MB RAM, Internal 56K Modem, 1.44MB Floppy Disk Drive, Integrated Graphic Card, Integrated Sound Card, 15” Colour Monitor, Speakers, Keyboard and Mouse All refurbished PCs, each with 233MHz, 4GB Hard Disk, 64MB RAM, 48X CD-ROM Drive, Internal 56K Modem, 1.44MB Floppy Disk Drive, Integrated Graphic Card, Integrated Sound Card, 15” Colour Monitor, Speakers, Keyboard and Mouse. *Type A sets come equipped with Cyrix 800 MHz and 52X CDROM Drive Type B sets come equipped with AMD Duron 950MHz and 48X CD-ROM Drive Bundled Software All schemes come with software, 1 year Internet subscription and 1 year carry-in PC warranty. Technical support for Types A and C is available daily from 10 am to 9 pm. For Types B and D, technical support is available Mondays to Fridays from 9 am to 6 pm and on Saturdays from 9 am to 5 pm. 3 IN & AROUND MORE AT DEVICES AT ATC SPD JOINS IN THE FIGHT AGAINST SARS More AT Devices at ATC The latest assistive technology devices acquired at the Assistive Technology Centre will cater to a wider range of people with physical disabilities. A touch-free switch, a mini handheld trackball usable by both left- and right-handers, a mouse offering 360o cursor control with the touch of a fingertip, a mouth-operated joystick – these are just some of the new devices acquired by the Assistive Technology Centre (ATC) to help the physically disabled. The 25 new types of assistive devices costing over $45,000 include DeskStickTM delivers smooth 360 degree cursor control with just the touch of a fingertip. Increasing and decreasing finger pressure helps to accelerate and decelerate. Its stationary, lowprofile design requires no stressful hand motions or awkward wrist angles. alternative mouse and keyboards, switches and accessories. These devices are especially useful to those who have trouble with motor skills, who have limited movement or even no movement at all. SPD thanks StarHub Pte Ltd for its generous sponsorship of the new devices. For more information on the devices, please visit our website at www.spd.org.sg. The durable Wobble Switch can be activated by either the slightest touch or aggressive swiping motions. The extra wide, no-slip base prevents the unit from tipping over. This switch is especially useful for those who have motor skills problem. The all new Jouse2 is an advanced joystickoperated USB mouse that is controlled with the mouth. Moving the precision joystick moves the cursor. The further the joystick is moved, the faster the cursor moves. Mouse button ‘clicks’ can be made with the sip and puff switches built into the Jouse2. Typing and other keyboard functions can be achieved through an on-screen keyboard. Jouse2 requires minimal movement and can be operated with the mouth or chin. Nothing is attached to the operator, providing complete independence. Cursor movement is fast, smooth, and very accurate. Jouse2 mounts easily to any desktop via the advanced articulated arm that is easily adjustable and swings safely out of the way if bumped. SPD Joins In the Fight Against SARS SPD combats the deadly virus with a variety of measures. W HILE the rest of the nation started to question their own hygiene standards when SARS reared its deadly head in Singapore, the staff and management of SPD came together to do the same. Here are some of the measures undertaken to ensure that the wellbeing of all who step into the SPD Ability Centre is looked into: A set of standard operating procedures on prevention measures 4 were put in place at SPD to ensure that all beneficiaries and staff take necessary precautionary measures to prevent the spread of SARS. Developments of the SARS situation would be closely monitored and the measures constantly reviewed and modified. Temperature checks are to be taken daily and recorded for all who enter the gates of SPD. Anyone found with a temperature over 37.5o will be isolated and monitored and where necessary, sent home. All common areas are thoroughly cleaned and disinfected, and all rooms cleaned and aired daily for at least an hour. A presentation was put up in English, Mandarin and Malay to allay the fears of staff and beneficiaries and to highlight precautions to take. With these measures promptly put in place, SPD is definitely armed and ready to face the challenge of SARS! IN & AROUND RIDING ON THE NEL SESSIONS ON SEXUAL AWARENESS AND HARRASSMENT Riding on the NEL On the afternoon of 10 June, staff and beneficiaries of SPD got the opportunity of experiencing the new MRT North East Line (NEL) ahead of the rest of Singapore. T HE sun was relentless but that did not bother the 11 staff and beneficiaries who, upon the invitation of SBS Transit, enjoyed the privilege of a ride on the fully automated train along the NEL. presentation and informed of the train’s facilities, capacity and speed. This was followed by a tour of the station, ending in a round trip from the station to Harbour Front station at the World Trade Centre. Riding on a train that was touted as the first of its kind in the world, the trip turned out to be a great experience for the beneficiaries who are unable to use the current MRT for lack of accessibility provisions. The NEL therefore spells good news for them. And what were the comments at the end of the ride? “Good!” says Philip Ang, a wheelchair user. However, when asked if he would be using the train regularly, he said “I will use it if I have a chance. Too bad I don’t stay around the NEL!” The excursion started at Dhoby Ghaut station, the one with the most escalators around the island – 11 in all! There, they were given a slide SPD takes this opportunity to thank SBS Transit for the excursion and congratulate you on the successful implementation of the NEL! Staff of SBS Transit highlighting the features of the Dhoby Ghaut Interchange Sessions on Sexual Awareness and Harrassment Women are oftentimes the victims of unwanted attention. Worse still if the attention encroaches the borders of sexual harrassment. In an effort to quell any confusion in the minds of the fairer sex here concerning appropriate behaviour, the Social Service Dept put together a 10-session course that touched on the sensitive and very private area of sexual awareness and harrassment. C ONDUCTED by SPD Social Worker Angela Chung, the sessions took place weekly beginning 21 March 2003, each session lasting about an hour. The objective was to raise awareness of the beneficiaries of their own sexuality and to teach them appropriate responses towards sexual exploitation. For optimal effect, sessions were limited to a small group of 10 beneficiaries to induce greater sharing and discussion. The collaborative effort of the social workers and training officers helped to identify those most vulnerable and who would benefit most from the sessions. appropriate behaviour in public and private places, learning to say “no”, sex and its consequences, realities and responsibilities of marriage and parenthood, and dangers of Internet chat rooms and lines. The highly interactive course included hands-on activities, sharings and discussions that help drive home the message of sexual exploitation and the steps to take whenever it has occurred. Participants found themselves engaged in role-playing, taking on various roles as victim, molester, training officer, policeman, friends as well as family members that help reinforce the lessons. The areas highlighted included appropriate behaviour with friends, With the broad focus in place, a conscious effort was made to keep the sessions flexible and unstructured. This was so that other pertinent issues that came into light in the course of the sessions may be addressed. The small group also provided a conducive and intimate environment which encouraged more open and personal sharing of thoughts, ideas and experiences. Participants found the sessions illuminating. Relationships also found new dimensions in the course of the sessions as the small group came to open themselves up to each other. The results of the intimate sharing has led to a follow-up programme currently being planned. 5 FUNDRAISING SPD FLAG STANDING TALL AT MEXICO’S HIGHEST POINT ROTARIANS SET UP IT TRAINING FUND SPD Flag Standing Tall at Mexico’s Highest Point M OUNTAINEERS David Lim and Wong Ting Sern braved the elements from 25 February to 12 March this year as they ascended Mexico’s highest mountain El Pico de Orizaba to raise $75,000 for SPD. Without external assistance, the duo made one of their toughest climbs and brought the SPD flag up to the highest peak at 5,700 m. The funds raised would go to the purchase of a specially-adapted van to ferry people with physical disabilities to and from the SPD Ability Centre for rehabilitation. Mr David Lim with the SPD flag at the peek of El Pico de Orizaba Rotarians Set Up IT Training Fund A Christmas fundraising project and a Charity Golf event organised by the Rotary Club of Singapore West helped raise funds to support computer and IT skills training for SPD’s beneficiaries. F OR almost the entire month of December, members of the Rotary Club of Singapore West (RCSW) got together and with help from 100 junior Rotarians, sold Christmas goodies and handicrafts at 11 booths all over Singapore. This fundraising project named Christmas Cheer 2002 was the Club’s community service in aid of the physically disabled. Held from 1 to 25 December, the project helped to raise $25,000. Another $25,000 was raised through the Club’s Charity Golf Tournament. The total of $50,000 was presented to SPD in a formal ceremony on 11 April 2003 at the Warren Country Club. The funds would be used to set up the RCSW IT Training Fund to benefit people with physical disabilities. 6 The objectives are to educate and promote IT literacy amongst people with physical disabilities and to provide IT training to prepare them for possible IT related employment opportunities. Basic National IT Literacy Programme will be fully subsidised while other courses will be heavily subsidised. The National IT Literacy Programme in Chinese would be the first to be run under the RCSW IT Training Fund. It would also be the first IT course to be conducted in Chinese to cater to Chinese-speaking people with physical disabilities who have no IT literacy. This is an effort towards bridging the divide between people with physical disabilities and mainstream society by arming them with the skills and know-how in the area of IT. Mr Bernd Gotze, President 2002/2003 of the RCSW, presenting the cheque to SPD’s Executive Director Mr Loke Ho Yong The beneficiaries and management of SPD take this opportunity to thank the members of the Rotary Club of Singapore West and junior Rotarians once again for your kindness and warm support. FUNDRAISING “BECAUSE OF YOU, I CAN STILL GO TO SCHOOL...” “Because Of You, I Can Still Go To School...” In this article written before her mother’s recent demise, SPD Education Grant recipient Siti Hajar thanks all who make it possible for her to go to school. With education, she is able to dream of a brighter tomorrow for her and her family. D ear friend I am 11 years old. I am studying in Primary 3. I like going to school everyday because I have many friends in school. We play games and sometimes, they will help me to borrow books from the school library. I cannot do that myself because my wheelchair cannot go to the library that is on the top floor of the school building. My mother said that I was born with Cerebral Palsy. Because of that, my legs are paralysed and my hands are also weak. I need help in bathing, dressing and going to the toilet. But I am able to feed myself and brush my teeth. enough money to buy food. We are not rich but we have been happy until two years ago. My mother became very sick and was in and out of hospital. I was later told that she has breast cancer, which now has spread to her bones. The doctor said that my mother might die soon if she does not go for chemotherapy. Now, she is always very weak after going to the hospital. I feel very sad and hurt whenever I think of my mother because I am very afraid of losing her. I hope that a miracle will happen and she will get well again and not have to feel pain. I live with my mother, my younger sister and my grandparents. I don’t remember my father because he left us when I was 2 years old. My mother had to work very hard so that we have I also want to do well in school so that when I grow up I can get a good job and bring money home. Then, we will not worry about where to get the money for food and other things. I am happy that I can still go to school because The Society for the Physically Disabled helps to pay for my school fees, books, uniforms and stationery. A social worker from SPD also calls us often to find out how we are and if I’m doing well in school. She told me that SPD can help me because many kind people have donated money to SPD. If you are one of them, I want to say thank you. Because of you, I can still go to school. Siti Hajar P/s. Please make a donation. Any amount that you give can help me and my friends go to school. ------------------------------------------------------------------!-----------------------------------------------------------------If you would like to help Siti Hajar and other children in her position have better opportunities in school, please contact Helen Tay at 6236 6371. Your contribution will bring them one step closer to their dreams of a normal life. Enclosed is my cheque of $_______________ (please indicate amount) made out to ‘The Society for the Physically Disabled’. My Particulars Full Name NRIC No. Address Contact No. Email : (Dr/Mr/Mrs/Miss/Mdm)_________________________________ : ______________________________________________________ : ______________________________________________________ ________________________________ Postal Code __________ : _____________________ (Ofc) _________________ (Home) _____________________ (Mobile) _______________ (Pger) : ______________________________________________________ Please send all donations to: The Society for the Physically Disabled, No. 2 Peng Nguan Street, SPD Ability Centre, Singapore 168955 7 IN & AROUND WATABOSHI MUSIC FESTIVAL 2003 Wataboshi Music Festival 2003 SPD is proud to participate in the 7th Wataboshi Music Festival held on 27 June. Two of our beneficiaries’ entries were selected for feature in the Festival. I N 1973, students from the Special School for the Handicapped in Nara, Japan, wrote a collection of poems. So taken by the prose were a group of musicians that they composed music to accompany the words. When the songs were performed in front of a public audience, they proved to be such a hit that records were cut and sold and similar concepts began sprouting throughout Japan. This marked the beginning of the Wataboshi Music Festival. Two of SPD’s beneficiaries, Salimah bte Ishak and Suhana bte Suhaimi, submitted entries to the local chapter of Wataboshi Music Movement. Having been selected as winning entries, their poems joined six others which were performed at the 7th Wataboshi Music Festival on 28 June at the Esplanade, Theatres on the Bay. Pelangi Fajar, or Rainbow of Dawn, is the title given to Suhana’s poem. It highlights the hope one has when the morning comes and the clouds of darkness disappear. Salimah, on the other hand, chose to focus on dreams. For this budding poet who has been writing poems for nine years, this poem is different from others written before which mostly focus on her experiences. the final competition to represent Singapore to compete at the 7th AsiaPacific Wataboshi Music Festival later this year in Brisbane, they were both happy to have come this far. As Suhana said, “There is so much more in life, remember, a light will shine at the other end of the tunnel. Nothing is impossible, just do one’s part and you will find your reward.” All selected poems were written into songs through a collaborative process with volunteer musicians. The participants got to decide on a musical style that they feel would suit their poem – jazz, blues, world, ethnic music, or simply guitar and piano, unplugged. The seeds of the wataboshi (dandelion flower in Japanese) get carried afar by the wind - similarly, through the Wataboshi Music Festival, it is hoped that the thoughts, feelings and aspirations of the disabled can be carried to many through the medium of music. The entries were recorded on Audio CD as well as MTV VCDs for sale at selected CD retail outlets. Though Suhana and Salimah did not win Suhana (far right) with singer, Jasmine Butterworth and composer, Zahid Sulong 8 IN & AROUND OPT FOR EXTRAPAGE ONLINE AND HELP SPD SAVE COST Opt For ExtraPage Online And Help SPD Save Cost Let your support go one step further by opting for ExtraPage online! In that way, you help us to save printing and postage costs and still allow us to keep you updated of SPD’s programmes and services and the issues concerning people with physical disabilities. Simply fill up the form below with your details and fax your request to us at fax no. 6323 7008. Alternatively, you may send us your request via email to the address informatiom@spd.org.sg. Do remember to include your full name, address, contact nos. and email address in your email request. ------------------------------------------------------------------!-----------------------------------------------------------------RESPONSE FORM To : Ms Katherine Sng Fundraising & Communications Society for the Physically Disabled No. 2 Peng Nguan Street SPD Ability Centre Singapore 168955 Fax No. : 6323-7008 (Please indicate your preference by ticking in the box provided) Yes, I would like to receive ExtraPage online instead of the physical copy. Do send it via email to my address _____________________@___________________________. MY PARTICULARS Full Name : Organisation : Address : Dr/Mr/Mrs/Mdm/Ms Singapore Contact Nos. : (Res) (Ofc) (Mobile) THANK (Pager) YOU 9 FEATURE A TOUCH OF COSTA RICA AT SPD A Touch of Costa Rica at SPD In conjunction with Volunteers Month in July, SPD gets up close and personal with expatriate volunteer Mr Roberto Vindas who danced out of his home country of Costa Rica into the heart of the Singapore city and that of many of SPD’s beneficiaries. I f you dug a hole in the ground at Ecuador and kept going, you will emerge somewhere in Singapore”. With this interesting nugget of information, one gets introduced to Mr Roberto Vindas, 56-year-old Costa Rican, Latin dancer, seeker of truth and one of SPD’s most avid volunteers. He explains that Ecuador is positioned at the other side of the world and near to the equator. Singapore is just 1o off this mark. Before hitting 20, Roberto had already been taken by the question of who he is and what is life about. This has led him on a path to find out more about yoga, Buddhism, Taoism, and other beliefs. He has found that all prescribe the same thing – the call to develop the inner self. His focus is on the concept of life and he largely subscribes to the concept taught in Taoism where the central philosophy is ‘wu wei’, or ‘effortless effort’. Roberto giving a brief introduction to musical instruments unique to his culture Roberto first arrived in Singapore in October 2001 with his French wife and baby daughter when Mrs Vindas was posted to the French Embassy in Singapore. His first impression as he made his way from Changi Airport into town was that this place he had landed in was highly organised and very green. And also very hot! Having spent the previous four years in Ecuador in South America, Singapore required some getting used to. Although both are small countries populated by people of different cultures, that is about where the similarities end. The difference in economic status aside, Ecuador is situated in the rugged Andean highlands and boasts volcanic landscapes and ice-capped mountains whereas in Singapore, the only things capped with ice are waffle cones and the ground at Fuji Ice Palace’s skating rink in Jurong. Throw in Singapore’s relatively flat terrain and you get the stark contrast. Despite the great difference, he soon became accustomed to the heat and diverse cultures, so much so that he made himself a part of the community by contributing to it through SPD. Roberto first came to know about SPD through the Internet. Feeling a pull towards helping the less fortunate in Singapore, he promptly made known his intentions and there was born a partnership that would see Roberto gain some measure of self-fulfilment and SPD and its beneficiaries, a dedicated volunteer and a good friend. 10 Latin Dance 101 - DAC beneficiaries eagerly learning the basics from Roberto Since May 2002, Roberto has been a familiar face here. He has also helped in many areas including hands-on PC training, data-entry, assisting in the Assistive Technology Centre’s PEBBLES PDA Project, even conducting Latin music and dance appreciation sessions for the beneficiaries in the Day Activity Centre. No work is too menial for Roberto who is not above lending his hand to the mundane job of sorting and counting notes and coins. Community service is not something new to Roberto who constantly seeks the meaning of life. Back in his home country, he would teach IT for free to the physically disabled who were of low income in the commercial IT school he ran for 10 years. When he is not helping out at SPD, Roberto spends his other time teaching Spanish and Latin dance at his home. He attributes his great love for music and dancing to his Costa Rican heritage. His favourite quotation goes: “Knowing others is intelligence; knowing yourself is true wisdom. Mastering others is strength; mastering yourself is true power. If you stay at the centre and embrace death with your whole heart, you will endure forever.” And what does he find so unique in Singapore? He much appreciates the order here but personally prefers the spontaneity and challenging uncertainties a less organised place would bring. However, he finds it remarkable that despite the many cultures, races, traditions, historical heritage, practices, lifestyle, religions here, we are able to share a common place to live in peace and harmony. “I am grateful to the staff of SPD as well as your clients,” he adds. “All of you make me feel at home. Because of you, I feel fulfilled knowing that I am contributing to something worthwhile.” His advice to all, “Don’t forget to try to be happy. But look for this happiness inside you, not outside. Because inside you is the link to eternity.” What does he aim to do now. To be happy! The core question is how. For now, he will continue to search, think and seek the best way. We are all searching, Roberto, and we hope our search will bring us to where it brought you – somewhere where we give help and happiness to others and make a difference in people’s lives. FEATURE THE COURAGE TO ENDURE The Courage to Endure The SPD Education Grant is given out to help lighten the financial burden of families with physically disabled schoolgoing children and children whose parent(s) are disabled. In the second installment of ExtraPage’s Caregiver Series, Social Worker Lim Lutin describes the struggles of Mdm Sarimah, mother of two SPD Education Grant recipients and caregiver of her husband who suffers from stroke. L OOKING down at the still, rigid and skeletal form on the bed - a spectre of death - one can no doubt imagine the horror and anguish Mdm Sarimah must have experienced less than five years ago when her husband, Ismail Bin Konil (aged 46), suffered a massive stroke. Amid those feelings of pain and grief, Mdm Sarimah made the brave decision and commitment to care for him for the rest of his life. This was her sacrifice of love for a man she once knew to be a loving husband and dutiful father. This was a woman with fortitude. Her act of love will go down in the memories of her three children and be reproduced in the future in the same form towards their own loved ones. Mdm Sarimah (aged 38) rarely smiled as she sat across from me; perhaps she was bracing herself against her own tears. Her husband had his first onset of stroke in Dec 1998. It was mild. But the relief did not last long. Fate wielded its hand too swiftly her husband succumbed to a second onslaught of stroke within a month. This time, he became an invalid, unable to communicate, unable to respond, unable to give, unable to love… It was a rude shock. Mdm Sarimah, who used to be a housewife, was thrown into her new role of day and night caregiving as suddenly as her husband’s condition befell the family. Every three hours, she has to change her husband’s wet or soiled diapers. She also painstakingly feeds her husband via a tube that is inserted through a hole in his stomach. Being small built, she is unable to carry her husband to the shower so she sponges him in bed. She has to keep him cool and dry to prevent him from developing pressure sores. Next to her husband’s bed is a portable fan, its blades whirring silently in the background. The first year was especially tough. At night, when she retired to bed, Mdm Sarimah would cry herself to sleep. Her life has been transformed. The caregiving routine was endless and exhausting. Even more agonising was that her husband could no longer respond to her need for love and comfort. Mdm Sarimah choked back her tears as she described her experience in one word: “Lonely”. She missed her husband and the family outings they used to look forward to. In 2000, Mdm Sarimah suffered another setback when her mother passed away. Thankfully, her sister has been there for her from the beginning of her crisis. Her sister is not only her source of emotional support but also provides practical help as well as some financial support. Her husband used to be the sole breadwinner. Now, the family has plunged in financial difficulty. They are receiving welfare aid from a Muslim organisation and food rations by a mosque. It is not enough. Mdm Sarimah used to receive pocket money for her children from a Family Service Centre. However, this was terminated because she was advised to get a job and be financially self-reliant. But she wonders how she can ever cope with the demands of caring for her bedridden husband, her children and at the same time hold down a job. She is already very tired and stressed. At rare occasions, the physical strain of caring for her husband would take a toll on her emotions that she would lash out on her children when they misbehaved. This does not happen often though because Mdm Sarimah is a patient and gentle woman. As for care of her husband, she would remain dedicated and meticulous. Bedridden, Mdm Sarimah’s husband lays still while Mdm Sarimah looks on Mdm Sarimah pins her hopes and future on her 3 sons who are aged 7, 12 and 16. She lamented that she is now unable to spend time supervising her younger children in their studies. Notwithstanding, she can take comfort in the fact that her constant reminders to them to study hard have not fallen on deaf ears. Despite her own sadness, she would put on a brave and happy front in the presence of her children. Any emotional turmoil was muffled. They must be protected; they must not worry; they can’t do anything to help the situation, anyway. So what has kept Mdm Sarimah going those 4 - 5 years? Her commitment and responsibility towards her husband. If given a choice of placing her husband in a nursing home to ease her burden, she would rather care for him by herself for as long as she possibly can. Her children have also been a joy to her because they are basically well-behaved. Her faith in God is another factor that keeps her strong. She continues to trust God for healing. Nothing short of a miracle is what she hopes for in order for her life to turn around. SPD salutes Mdm Sarimah for her perseverance and will continue to help the family. Currently two of Mdm Sarimah’s children are receiving financial aid under the SPD Education Programme. Our Social Worker is helping to find a suitable befriender for the family and a tutor for the children. The Society is also working with the vNorth West Community Development Council to extend further assistance to the family. 11 COVER STORIES NATIONAL DAY GREETINGS VIA E-CARD National Day Greetings Via E-Card Send your greetings to friends using the e-cards designed by the SPD Web Design Team and make a difference this National Day. One of the four National Day e-cards designed by the SPD Web Design Team. This design features the national anthem when played. “This is the first time SPD is embarking on the creation of electronic National Day greeting cards.” Do something unique this National Day and send greetings out to your friends and family via e-card. To make it extra special, send them a National Day ecard designed by the SPD Web Design Team. Choose from a range of four different designs, each complete with animation and accompanying music. All that is required for the viewing of the cards is Flash player which is available for download free of charge at www.macromedia.com/cfusion/tdrc/ index.cfm. worry about unwittingly sending a virus to your addressees. At the same time, the designs do not take up much memory space. This is the first time SPD is embarking on the creation of electronic National Day greeting cards. The other cards available are e-Christmas as well as e-Chinese New Year cards. Those interested can contact Mr Tommy Tng at 6236 6360 for more information. The cards come web-based and embedded within html, so there is no We welcome contributions and feedback. Also, if you would like to make a donation or know more about SPD, kindly get in touch with us. The Editor, extrapage The Society for the Physically Disabled 2 Peng Nguan Street SPD Ability Centre Singapore 168955 Tel: (65) 6323 2303 Fax: (65) 6323 7008 E-mail: information@spd.org.sg Website: www.spd.org.sg Society for the Physically Disabled