Annual Report 2011-12
Transcription
Annual Report 2011-12
Passion and Plasticity Annual Report 201 1 - 2012 A Tribute to Bud McDonald by Bruce Murray, In-coming President It has been a delight to serve on the Board of Directors with Bud McDonald at the helm. His vision, diligence, strong business experience, and sense of humour helped ARBI navigate some very difficult waters over his term. Bud’s wise stewardship has resulted in ARBI being in a strong financial position, which allows us to provide quality services to more clients. Bud’s leadership has resulted in closer linkages with employees, clients, board members and the community, creating a superb platform for continued growth and success for ARBI. Bud has served for nine years on the Board. After five amazing years as President, Bud is stepping aside. However, he will remain an active and contributing board member. Thank you, Mr. President! ARBI BOARD OF DIRECTORS Officers: PRESIDENT – D.M. (Bud) McDonald, President, McDonald Oil & Gas VICE-PRESIDENT – Bruce Murray, President, Zorzal Incorporated, Chairman and CEO, Passport Energy Ltd. TREASURER – Terry Craig, Retired Financial Executive SECRETARY – Matthew White, Barrister and Solicitor, McLeod & Company Members at Large: Roger Balm, President and CEO, RPM Software Diane Beattie, Retired, Beattie Homes Marlie Burtt, President, Burtt Energy Ltd. Randy Fowler, Brain Injury Survivor Steve Hager, Senior Exploration Analyst, Canadian Discovery Ltd. Lorn Howes, Retired, City of Calgary Firefighter Donald Staus, President and CEO, Carrick Petroleum Ltd. Bob Steele, Independent Businessman and Board Member Annual Report 2011-2012 1 Message from the President and Executive Director We are pleased to report on a banner year at ARBI. More stroke survivors benefitted from our services, volunteer participation increased, and we moved closer toward financial stability. And, then there were three…core funders, that is. Effective November 1, 2011, ARBI finalized a contract with Alberta Health Services (AHS) to provide slow stream rehabilitation for people with traumatic brain injury and stroke. We are thrilled to have a third principal funder supporting this essential community service. Our sincere appreciation goes to our enduring core funders, the United Way of Calgary and Area, and Alberta Seniors and Community Supports. An ongoing challenge is to meet the increasing demand for our services. Spurred by a 25% increase in referrals in the 2010-11 fiscal year, we initiated a Pilot Project in January 2011. By combining creativity and best practices, we reduced our waiting list and the waiting time dramatically. Further, our capacity increased by 41%. Yes, there is such a thing as cost-effective, accessible health care. Read more about this innovative project in the Program Highlights section. Upon admission to ARBI, many individuals are living in long-term care (LTC). Normally, individuals referred to LTC after hospital care think it’s for life. In the 2011-12 fiscal year, 19% of survivors moved from LTC to a home environment at graduation. This year we complemented our services by adding a social worker to the team. Navigating the system, finances and caregiver burnout are key issues. Community investment Volunteers remain the foundation of our program! Eighty-five volunteers rotate on a weekly basis supporting clients directly in their rehab. Add that to board and committee time and you have a 10,000-hour annual community investment (an increase of 19% over last year). Read the remarkable story of how today’s volunteers can become tomorrow’s healthcare leaders in our Volunteer section. Fundraising is still essential to our program delivery; we raise approximately 40% of our annual operating budget. We hosted two significant events including our annual Sponsor our Survivors breakfast and the Astoria Charity Golf Classic. Individuals, foundations, corporations and service clubs came together to make life better for survivors; cumulatively they contributed $900,000. Join us as we honour our donors in this report. In November, Dr. Norman Doidge, MD, distinguished author of ”The Brain That Changes Itself”, visited with executive management and our very first client, Mel Laine. He had this to say about his experience, “I was very moved and impressed visiting ARBI, meeting Mel and the staff. I was struck by the dedication, compassion, and the extraordinary intuition and insights of ARBI’s founder and guiding principles, which incorporated some of the principles of neuroplasticity years before this property of the brain—its ability to rewire itself—was widely understood. ARBI stood by their clients in the dark days when most assumed the injured brain was doomed, in all cases, never to recover at all. This alone makes it a very special organization.” Dr. Norman Doidge Our new website (www.arbi.ca) features amazing client stories, a resource centre for families and a research/science section. And, it reaches a global audience. Families from the Maritimes, Saskatchewan and BC inquired about our services. One family relocated from Europe to Calgary so that their son could benefit from our longer term, intensive rehab program. Join the conversation on Facebook and Twitter. The featured client stories also have an international flavor; Hugo and Lorna’s tales will stir hearts. This year, we celebrate the wonder of neuroplasticity — the brain’s ability to heal itself. Reconnecting people with their passions can help rewire the brain. Speaking of passion, finally, yet importantly, we would like to acknowledge our amazing board and staff. They give so much more than their time, talent, and treasure. They connect with us heart and soul. Sincerely, Judy Stawnychko, Executive Director Bud McDonald, President 2 Association for the Rehabilitation of the Brain Injured Lorna’s passion for life Romantic “I love this darling man; he is good to me!” Lorna says earnestly. Neil smiles shyly, absorbing her words with humility. Lorna, a near octogenarian, is striking; her fiery mane, dark chocolate eyes, and gorgeous smile mask her age. Neil, a slender sixty-something computer programmer, is her partner. The bloom is still on the rose of this May-December romance, now in its thirty-eighth year. Let’s rewind. Gifted Born in Western Australia, Lorna grew up on the family’s sheep farm tending the flock. Having an atheist father and a Roman Catholic mother meant, “It was not a quiet household.” As a child, Lorna knew she was different — foreseeing events before they transpired. She innocently inquired, “Mom, how do I know things I haven’t learned yet?” This gift of foresight would eventually evolve into a career. Adventurer Lorna’s passion for life was evident — hiking in the outback, wild game hunting and snake rustling. Evidently, dawn is the best time for poisonous snake snaring, as it is cold and snakes are sleepy. The captured serpents were given to the CSIRO (Commonwealth Scientific and Industrial Research Organization), which used the venom to develop antivenene (anti-venom). A partner in a photographic studio in the late ‘50s and early ‘60s, Lorna learned all the right angles (apparent by her beautiful cover photo). Justice Seeker In ‘68, Lorna moved to Calgary. She met Neil in 1974; the two of them were involved in a group that — they came to realize — was Lorna and Neil in Arizona Lorna holds a sleepy snake corrupt. We can say they blew the whistle on a powerful group that was swindling vulnerable people out of their savings. slurring her words and drooling. Standing at a desk, she collapsed unexpectedly. Neil summoned an ambulance; though Lorna was able to walk, she deteriorated in hospital. She had suffered a right brain stroke. Neil was devastated, wondering if recovery was possible. It was distressing for him to see his sweetheart in a wheelchair. Visionary As a psychic, she helped people with a range of issues — from finding misplaced keys to locating lost loved ones. Focusing on missing person’s cases was at times, grim. Police contacted her on the QT; desperate families sought her help. Aiding in the frantic search for a plane crashed in remote BC, she was able to pinpoint the location of the wreckage. Tragically, the few survivors perished shortly before rescuers arrived. Her eyes brim with tears … this memory still haunts her. Globetrotter Together, Neil and Lorna built a life, sharing a love of travel and nature. A favourite pastime was Geocaching — a modern day treasure hunt. Participants follow clues from a website, and, using GPS try to locate a cache of special coins. As environmentalists, geocachers practice Cache in Trash Out (CITO), cleaning up parks and other cache-friendly areas. Fighter In the thirty-sixth year of their union, on an August day, Neil noted something amiss with Lorna. This elegant lady was Tested The stroke caused a plethora of issues for Lorna including impaired body awareness, weakness, and loss of range of motion in her left shoulder. In Lorna’s words, her left arm simply did not work. Things that this vivacious, independent woman had done for over her 78 years were now demanding. Eating, rolling over in bed, dressing, and walking were difficult. Negotiating stairs, an extreme challenge. Emotionally labile, and disoriented, her memory was poor. Impulsivity led to risky decisions. And, she suffered from chronic pain. After a four-month stay at the Fanning Centre, Lorna moved back home with Neil. She had a brief stint at Community Accessible Rehab, where she describes the electrical stimulation she received as a lightning storm. Candidate In time, Lorna was admitted to ARBI’s Outreach Pilot Project (see page 8), working one-onone with “caring and persistent” Heather (Rehab-worker). In October 2011, she transferred to our On-site program. Despite her age, she was deemed a good candidate for rehab — motivated, driven — a survivor. Memorable ARBI therapists focused on goals meaningful to Lorna. Lorna was worried that her poor memory and writing skills would affect her ability to work. Being unable to maintain records of her client’s stories, and missing appointments was not good for business. She missed hiking and geocaching. She wanted to get back to being Lorna. Fierce Her intense program focused on many objectives including balance, stamina, walking and memory. Grasp therapy helped her regain the use of her hand. Sitting to standing repetitions helped build up the strength in her legs. Intuitive Lorna believes her psychic intuition has heightened since her stroke. “If someone is angry or impatient with me, I really feel it!” Each day at ARBI, she practices, practices and practices, until she is spent. Annual Report 2011-2012 3 Obstinate (in a good way) Lorna is one motivated lady. Her internal drive — or obstinacy as she calls it — keeps her going. “While you are alive, while you can breathe, you need to do things!” She visualizes herself in the future, recovered. Game Changer Lorna’s progress to date has been remarkable. Her memory has improved to the point that she manages her appointments autonomously. Although it’s not elegant (her words), she walks with the aid of a walker. At times, she strolls arm-in-arm with Neil, using her snake rustling cane for balance! Independence with daily tasks has improved greatly, although she swears her socks “are out to get me!” With great tenderness, Neil helps with her hair and makeup. From time to time tears flow for no obvious reason, “I just ignore it and move on,” she states emphatically. Mate Neil admits that Lorna’s stroke has changed the dynamics of their relationship. While it hasn’t impacted his affection for her, it has changed the way they do things. Neil is now the decision maker, albeit, “a bit sneaky”, Lorna cracks. As her eightieth birthday approaches, Lorna it seems is getting back to being Lorna. Unable to resist, the interviewer asked Lorna about ARBI’s future. She replied, “I see a really big building, which is a world famous training centre. People are coming from all over to learn about your approach to working with survivors!” Visionary indeed. Lorna works on standing balance 4 Association for the Rehabilitation of the Brain Injured Hugo’s incredible journey (and the passion of Maria) Sitting in the kitchen of this tiny, well-kept home, I am the listener. My gaze focuses on Hugo, who is perched next to his child Luz gently stroking her hair. Father and daughter lock eyes; an enormous grin emerges on Luz’s face. They are connected. Bit by bit, the serenity of this moment dissipates as Maria, Hugo’s partner of 15 years, recounts their surreal story of survival. A volunteer translates from Spanish to English. As Maria speaks, she relives each joyful and harrowing moment. Her reaction is visceral and despite the language barrier, she transports the listener into her world. It all began very well … Childhood friends, Maria and Hugo lived in El Venado, Colombia. It is an isolated rural community, flush with deer, dense forests and a tropical climate. As they matured into teenagers, “I had my boys and he had his girls,” Maria declares impishly. In time, Maria saw Hugo differently. Serious and persistent, he adhered to a Taoist lifestyle. A vegetarian diet, exercise, and a love of animals are key ideologies. They dated secretly as Maria’s father, a cattle rancher, did not appreciate the vegetarian way. Maria’s fourth pregnancy was arduous. Hours away from the nearest hospital, there were no prenatal checkups. They did not even have a phone. Maria is trembling, “It was a nice life until they came.” She is referring to paramilitary guerillas. Quashed by government, the paramilitary chose to pick on the poor and isolated … terrorizing and robbing innocent people including Hugo and Maria. Heart pounding, the listener asks Maria if she needs a break. Determined, Maria continues. When the baby was due, Hugo assisted with the delivery. Devastating events followed. “My baby was stillborn”; Maria is weeping now. Without a doubt, she believes the relentless harassment by the paramilitary caused this tragedy. What happened next made her question her faith. The couple eloped and was blessed with a baby, Elver. The family grew to include Juan and Luz. Appearing well at birth, by age two, Luz was diagnosed with Rett Syndrome (a brain disorder that impaired her ability to walk and speak). Just three days after their heartbreaking loss, seven-year-old Juan noticed there was something wrong with his Dad. Hugo had passed out, and could not be roused. Maria propped Hugo up … still no reaction. Juan ran screaming for help in the forest. They lived in the middle of nowhere, surrounded by mountains. Mercifully, a man passing by heard Juan’s frantic cries. The bystander and Maria loaded Hugo onto a makeshift stretcher and loaded him into a car. They drove steadily for five hours to the nearest hospital. The kids were panicking, as their Dad was vomiting and still unresponsive. Life in El Venado was simple, milking cows and cooking over fire each day. Hugo made the five-hour journey by mule to buy food on Sundays. A traditional and strict father, Hugo valued work over education. This was a sticking point, as Maria wanted the kids to be in school. Maria cared for the children while Hugo laboured on a dairy farm owned by a local physician. At the hospital, doctors diagnosed a left brain stroke … a breathing tube was inserted… it was touch and go. When he regained consciousness, Hugo did not recognize his family. Once stabilized, he was discharged from the hospital; he still could not walk, speak or understand his family. Now, Maria needed to care for Hugo and her three kids, all while tending to the farm. Hugo, the Colombian cowboy Annual Report 2011-2012 5 The iPad Spanish translation app in action! They struggled to carry on. Juan looked after his Dad and Luz, while Elver and Maria toiled on the farm. The local doctor arranged for some rehabilitation; still wobbly, Hugo learned to walk short distances. Maria was distraught over their circumstances. She wanted her kids to have an education — life was too hard on them. She worried about Hugo’s health. When the paramilitary returned to recruit her ten-yearold son Elver, luring him with guns, she was done. They fled at night, under a full moon, with only the clothes on their backs. Maria piggybacked Luz. Hugo walked with a makeshift cane, falling every few steps. Time and again Elver would help his Dad get up. The rustling of the trees and snapping of branches in the pitch black made them shudder — were they being stalked by the paramilitary? Yet, with each footstep in the dark, damp jungle, they grew stronger. They were marching toward safety, marching toward hope, marching unknowingly toward ARBI. Emerging from the woods soaked and caked in mud, they flagged down a passing fruit truck. They were driven to the town square in Bogotá. With no food, cash or ID, they relied on the kindness of strangers. Finally able to contact her family, they pressured Maria to abandon Hugo. Was he not a burden? “I could not do that. What if it had been me?” Maria sobs. In time, they crossed the border to Venezuela. The Red Cross helped the family come to Canada as refugees. “We were afraid of the snow”, says Maria of their arrival in Calgary. The FMC Stroke Clinic evaluated Hugo, referring him to CAR (Community Accessible Rehab). After a brief stint, CAR referred him to ARBI. Hugo, the SaeboFlex® cowboy Initially, Hugo aspired to improve his speech and vocabulary. Increasing the strength and movement in his right arm and leg was important. He wanted to cook and help at home. He also yearned to return to his Taoist roots, and be around las bestias (animals) again. Fortuitously, our Occupational Therapist, Ana and Program Leader, Tanya speak some Spanish. While this was beneficial, the ARBI team needed a way to communicate daily with Hugo. The use of technology, specifically the iPad Spanish translation app, works brilliantly. Hugo uses the SaeboFlex® splint to grasp and release objects. Three therapies (speech, occupational therapy and physio) are combined into one, in a simple, yet effective, exercise. Hugo empties the dishwasher and puts dishes away while naming each item. The words are coming slowly but surely, “Cuatro tazas”, Hugo says with pride. He reaches low to unload the dishwasher, focusing on his balance. Then, he reaches high to put the cups away. Hugo’s stroke was debilitating. Communication was an enormous challenge, as his facial muscles weren’t cooperating. Answers were short, words limited. He still did not comprehend his native tongue and was unable to read. The classic signs of a left brain stroke meant Hugo’s right arm and hand were weak. Grip strength and coordination were poor. Balance issues led to falls at home. Despite the language barrier and his poor comprehension, the team deemed Hugo a good candidate for rehab. He was relatively young (46) and motivated. The remarkable thing is none of the ARBI team knew the scope of Hugo’s incredible journey. There were no clues about what he had endured. He arrived a very happy person. Greeting staff and volunteers with a kiss on the cheek is now customary. Volunteers covet the opportunity to work with him. Using the SaeboFlex® splint, Hugo opens the fridge 6 Association for the Rehabilitation of the Brain Injured “Hugo is as charming and warm as everyone described him to be. Whenever I got embarrassed that I couldn’t pronounce a Spanish word, correctly, he’d giggle and put his hand on my shoulder to tell me it was okay. He was helping me at the same time that, hopefully, I was helping him! His determination and work ethic are incredible. I am in awe of his concentration and positive attitude! I look forward to Thursdays and Hugo’s kisses!” Brandi, volunteer. Last Christmas (with a nod to our founder Audrey Morrice), ARBI angels made sure there were presents for everyone under Hugo and Maria’s tree. Sports have been added to his program. Hugo’s competitive nature is coming out! These fun activities work on balance, speech and coordination. Hugo is playing soccer with his kids at home. He is coming along. He can reach for objects with his right hand. Using the SaeboFlex® splint has decreased the tone of his hand allowing it to relax. The muscles of his face appear to be working, apparent by his enormous smile. His balance has greatly improved. Once a sombre man, Hugo has taken to dancing spontaneously with staff. And, this former traditionalist is helping around the house. Maria concedes that her partner’s personality has changed since his stroke … for the better. Maria slaps her hands on the kitchen table. “He is starting to understand! He helps with the kids, folds laundry, takes out the garbage.” Laughing she continues, “He even made a salad the other day; it was not pretty, but he ate it! His doctor is amazed at the progress.” “ARBI”, she pauses as her eyes well with tears, “words cannot express what you have done.” Maria’s dream is for the kids to get an education. The boys are now in school, and she is taking English classes. She wants to pay forward the kindness of strangers and the kindness of ARBI. As the interview concludes, Hugo rises from the kitchen chair and helps Luz up. With new splints on her legs, she is now able to walk with support. Father stands behind daughter. Luz reaches high over her head. Hugo clutches her tiny hands in his and they walk in tandem. Serenity returns; they are connected. By helping Hugo and his family, the world has become a little bit smaller. And, our hearts have become a little bit bigger. Annual Report 2011-2012 7 Program Highlights On-site and Outreach Programs • Total clients served: 77 Neuroplasticity – the brain is plastic Historically, the medical profession believed that once the brain was injured there was no hope for recovery. Today, research has overturned this notion — we now know the brain is plastic, and that it changes throughout life. As Dr. Richard Dyck, University of Calgary Professor and Associate of Hotchkiss Brain Institute summarizes, “Neuroplasticity refers to the inherent ability of the brain to change its connections in response to experiences, including when it is injured. When the brain is injured, functions performed by the damaged area are lost. However, over time, and with practice and rehabilitation, uninjured parts of the brain can take over some, or all of those lost functions. The brain does this by rewiring itself, either by using alternative pathways or by sprouting new ones.” Incorporating the principles of neuroplasticity into rehab: The ARBI team develops programs that help clients meet their individual goals, while adhering to the principles of neuroplasticity: • Focus on passions • Incorporate meaningful activities • Give the brain no other choice by using the affected side • Include practice, practice and more practice … • Provide challenge • Should occur in an enriched, nurturing environment And, play matters. Rehab can be fun. Type of Brain Injury Referrals Stroke.................................................................................................................................... 72% Anoxic......................................................................................................................................7% Traumatic Brain Injury.................................................................................................... 21% 7% 21% 72% Iron Al in the swim! 8 Association for the Rehabilitation of the Brain Injured Carla takes on technology! Principles of Neuroplasticity Confirmed by Satisfaction Surveys U of C Communications students conducted online surveys and phone/in-person interviews with our clients and families as part of a Research Methodology course. • 90% of respondents agreed that ARBI provided programs that were challenging and relevant • 90% of respondents agreed that ARBI allowed them to voice their personal goals For the complete research report go to our website at www.arbi.ca ARBI Takes on Technology Thanks to a generous donation from the Totem Charitable Foundation and an amazing TELUS Calgary Community Board Grant, technology has come to ARBI. MacBook Pros, iPads, a TV (3-D with wireless internet connection), a Wii Fit and a SmartBoard™ have revamped the way we design rehab programs. list, and growing waiting time. To complicate matters, not all clients referred had the tolerance or motivation required for intensive rehab. Since suitability is determined post assessment, this used up valuable resources. In the meantime, others who were eager to work hard languished on our wait list. Other contributing factors included: Some NextGen volunteers helped coach our team members on the new technology. Now these tools are incorporated into clients’ individual and group programs. And, our clients love it! Not only does technology make rehab fun, clients can reconnect with the world through Facebook and Twitter. • Survivors are at risk of depression; caregiver burnout is prevalent. • Research in neuroplasticity indicates that the critical window of opportunity to get the best results in rehab is the first 12 weeks post injury. • Survivors are at risk of losing gains achieved during limited acute rehab (hospital) while waiting for services. Pilot Project Updates The Right Services at the Right Time for the Right Clients Last year’s report featured a pilot project to test a new method of screening individuals and offering services. The venture was spurred by a 25% increase in referrals, a mushrooming waiting These complex and compound issues meant we needed to select the best candidates for rehab as quickly as possible. Thanks to a Community Initiatives grant (AB Lottery), we staffed up by hiring an Outreach Assistant and Rehab Worker. A wheelchair exercise program bridged the waiting period from hospital to ARBI. Led twice weekly by the Pilot Project team, the group focused on improving general fitness and thinking abilities in a social atmosphere. Staff monitored individual tolerance, participation, and motivation levels of clients to identify the best candidates for rehab. Once a spot became available on-site, individuals transitioned to the mainstream program. The results: • Waiting list decreased by 91% • Waiting time decreased by 51% • Outreach/On-site capacity increased by 41% • Six clients transitioned into the On-site program Social Worker Rounds out Team The impact on the family of a survivor is unexpected and dramatic. If the survivor was the provider, finances may be strained. If the survivor is a child, parents may be overcome by grief or blame; some marriages do not last. Family members often give up their own ambitions to become full-time caregivers. Annual Report 2011-2012 9 “The ARBI video showing how you work with the Saebo Flex® is so inspiring; it shows how people with different levels of stroke can make good progress when it comes to hand function. I also loved how you could transfer the newly gained function into daily activities, the ultimate goal with all therapy. Saebo Flex® definitely has added value in stroke rehabilitation.” Suzie Roelofs-Kahlman, Occupational Therapist, Roessingh Rehabilitation Centre, the Netherlands Relationships between loved ones change as roles and responsibilities shift. Survivors and their families may be overwhelmed coping with feelings of disbelief, denial and anger. Depression is very common. Children may be distressed by the vulnerability of a parent … they may feel frightened, ignored or forgotten. Participation to date: • 50% of clients/families screened were referred to mental health resources. • An average of 12 individuals attend monthly support group. • 42 clients and 23 family members/caregivers received support of social worker. Our social worker offers support to survivors and their families. Eighty percent of our families show signs of caregiver burnout, and they need our help. Helping families navigate the system, providing counselling, and referring families to community resources are some services offered. ARBI goes Global ARBI presented at national and international conferences, sharing our innovative service model and positive outcomes. Destinations included Naramata, Vancouver, and Ottawa. We crossed the Atlantic, connecting with leaders in the field at the IBIA World Congress in Edinburgh, Scotland. Participants’ level of happiness increased by 65% pre- and postgroup involvement. At the Congress, Research Leader, Ana Gollega, presented The Use of SaeboFlex® Orthosis as a Tool to Improve Arm/ Hand Function in Patients after Stroke. Amazingly, Ana was then invited to present our CAMMRI (Comprehensive Assessment Measure for Minimally Responsive Individuals) project to the internationally recognized Coma Science Group at the University Hospital in Liege, Belgium. It was a privilege to share ARBI’s measure with this revered coma recovery research group. For more on SaeboFlex®, CAMMRI and other research, visit our website at www.arbi.ca. Other conference presentations included: • Making Life Better–Positive Outcomes in Long-term Rehabilitation, Mary Anne Ostapovitch, B.Sc. PT, Program Director • Hope for Individuals with Severe Stroke; Help for a Society Burdened by Stroke, Mary Anne Ostapovitch, B.Sc. PT, Program Director • A Successful Win-Win-Win Partnership in Community Rehabilitation, Tanya Brinkerhoff, B.Sc. PT, On-site Program Leader, and Wendy Daitch, BA Psych., Volunteer Program Leader Bert, a man and his MacBook 10 Association for the Rehabilitation of the Brain Injured Community Integration Program (CIP) Clients Served • 47 clients served this year • 10 new clients Involving therapeutic recreation at the onset of rehabilitation supports the concept of activitybased therapy. Consistent with principles of neuroplasticity, activities must be challenging, intense, motivating, and focus on clients’ passions in a nurturing environment. that blends his rehab goals with his leisure passions. One of Tim’s favourite pastimes was singing at a pub with friends. His goals were to improve reading, conversation, and verbal expression. Our therapist developed a game that combines music with wordretrieval and memory. Tim sings with gusto! The result, Karaoke as therapy! Traditionally, we referred clients to CIP well into their rehab process. Increased funding enables us to offer recreation therapy at the onset of the program. Using a TV Karaoke program, Tim sings along to his favourite tunes. At random points in the song, the volunteer stops the music and he must continue without the word prompt, drawing on his memory and word-finding skills. If stuck, he reads the lyrics. Tim, a new client, received a recreation therapy assessment. Each week he pursues one activity Tim recently dazzled the team with his fiery rendition of the Frank Sinatra classic, “My Way!” He was motivated enough to stand away from his wheelchair, holding the microphone firmly. As his confidence grew, he belted out each line with increased gusto. The words are quite challenging, yet he only required minimal coaching. Now a vocalist extraordinaire, Tim basked in the applause at the finale. Rehab can be fun. Bob preps for a project The Leisure Skills Group and their birdhouses Annual Report 2011-2012 11 Our Volunteers Many of our volunteers are students pursuing education in health care related fields; ARBI cultivates the leaders of tomorrow. In the 2011-12 fiscal year, nine students were accepted into various graduate programs including medicine, physiotherapy, and biomedical technology. Currently there are 30 volunteers waiting for acceptance into medically related fields. Here is one volunteer’s story … Morgan’s Motivation In her own words … I started at ARBI in the fall of 2008. Having just finished my first year of university, I admittedly had a narrow view of the world. I wanted to expand my borders, contribute to my community and of course, get those mandatory medical school volunteer hours! What I did not know at that time was that ARBI had much bigger plans for me. In the years that followed, I had the opportunity to work with many phenomenal clients, staff and volunteers. They have taught me things that I could never have learned in school, inspired me beyond imagination, and ultimately, driven me to devote my career to health care and helping others. In the summer of 2011, I participated in a practicum under the supervision of Ana Gollega, Occupational Therapist. Although unfamiliar with occupational therapy, I was excited. My project was to reform the GRASP program, a home-based therapy to help clients regain use of their arm and hand. It was while working with Ana that my passion for the application of technology to rehabilitation took off. The idea of applying new technology to rehab has consumed me ever since. This past November, I was accepted into The Next 36, Canada’s Entrepreneurial Leadership Initiative (www.thenext36.ca). I teamed up with three other extraordinary students to develop a mobile application for stroke patients and their support network. Stay tuned for that! Looking back at my path through post secondary-education, it occurs to me that university was a matter of course. However, through volunteering and actively engaging in the community, I was able to grow as an individual. I will forever be grateful to ARBI for all of the opportunities. As a proud member of the ARBI family, I look forward to our next steps together! 12 Association for the Rehabilitation of the Brain Injured Volunteers are the foundation of ARBI, contributing 9,926 hours in the last fiscal year. Join us as we celebrate them Less than 1 Year Jennifer Allen Cecilia Alvarez-Sanchez Michelle Anthony Stephanie Barker Bryan Baxter Selam Bekele Manya Bernbaum David Borkenhagen Lindsey Boulet Kaoutar Bouzkri Lindsay Brooks Katie Brown Christina (Nuique) Bruce Lauren Butchart Jan Butts Dawn Byford Taylor Christie Katherine Clement Madison Colbran Julie Cormack Melanie D’Souza Anna de Grood Anna (Jannet) de Vries Jessica Denys Chelsea Doehring Suneil Dole Vida Farahni Geiza Faria Emily Freiburger Catherine Godzwon Anna Golovaneva Laura Goplen Carolyn Graham Lisa Haight Danae Hamm Alya Heirali Alejandra Hoebel Kristen Jacobson Sylvia Jensen Jason Johnson Sarah Kim Maureen Klettl Joanna Kocot Jocelyn Law Petrina Lee Chelsea Leishman Paige Leishman Kevin Lemieux Natasha Lindley Megan Luck Lisa Marshall Andrew Mason Gussie Merritt Connor Moor Allyson Moore Melissa Morgunov Daniel Nakaska Alex Naylor Mary Njunge Maurine Njunge Cale Parkyn Margot Phillips Aaron Pirttikoski Brad Robinson Sandra Rusu Theresa Rybchinski Rosie St. Goddard Janessa Schimmel Pamila Sharma Pamraj Sharma Gerry Spicer Lauren Sutherland Richard Sze Elshadaie Tafesse Robert Thom Mai Tran Tannis Troyer Chris Venter Anqi (Angel) Wen Bryan Winger Jillian Wingerter Jessica Wong Gui Chao Wu Jack Xiao Shannon Yemen Laura Young Jayninn Yue 1 - 5 Years Tatania Abdoullaeva Matthew An Mohammad Ansari Jacqueline Axford Justin Baers Catherine Bennett Jane Berthiaume Katherine (Katie) Boone Hallie Brunt Shirley Burchill Shivani (Felicia) Chandrakumar Spencer Chau Shaun Davis Tanya Doerr Lana Edmond John Ghitan Marissa Grossi Suraj Gurung Megan Hansen Lindsie Haxton Kerry Hobbs Kristen Hui Christina Ince Britney Jones Tristan Jones Julian Khan Anne-Marie Kos Kogan Lee Magdalene Leung Nicole Little Roddy Mayers Ryan McCarthy Nick Moar Morgan Moe Natalie Morgunov Margaret Negenman Olivier Organowski Chris Ostapovitch Shiel Patel Stephanie Peterson Alice Post Simona Ralph Raewyn Reid Noelle Rocheleau Marwah Saleh Jenny Saunders Tom Seredynski Kassi Shave Crystal Smith Roxanne Sterniczuk Chelcy Wills Kristine Woodward 6 - 10 Years Faye Bres Cecilia Casey Emmanuel Duvette Habiba Grant Ron Grant Roberta Gunther Steven Hamilton Andrea Henry Eldon Kearl 11 - 19 Years Lori Hart Lorn Howes Ken Ng Deborah Swerhun Practicum Placements Mount Royal University Disability Studies Program Lindsay Brooks Robin Campbell Danae Hamm Distribution of Volunteer Hours Southern Alberta Institute of Technology (SAIT) Rehabilitation Therapy Assistant Program Carole Kouemo Observation Placement – Orientation to Rehabilitation Therapy Roberta Armitage Carli Clark Cameron Clarke Kevin Goat University of Calgary Communitations Community Service Learning Projects Partnership with Volunteer Calgary and U of C Faculty of Communication Studies Maja Bjelica Justine Klettke Jenn Roach Ashton Selig University of Calgary Faculty of Community Rehabilitation and Disabilities Studies Laura Goplen Tessa Veikle Senior Internship Tara Garland University of Calgary Faculty of Kinesiology Anna Iskra Morgan Moe Karla Sanchez Juliet Spence University of Calgary Faculty of Nursing – Observation Practicum Jennifer Anderson Dominic Chan Keleb Smith Robyn Wiens Alyson Wlasoff Stephanie Wright Tsz Yan Yu Nadia Yangui 5% 7% 8% Direct Client Care........................... 80% Board Volunteer................................8% Fundraising & Administration......7% Maintenance & Support.................5% 80% Annual Report 2011-2012 13 Events ARBI raised funds and friends through a number of internal and external events. We thank all sponsors, donors and participants for their support. ARBI Events Sponsor Our Survivors Breakfast Hosted by Jim Gray and Brenda Mackie, our annual breakfast raised $261,000! Lukasz shared his story of recovery. This event was made possible by the following amazing sponsors: Bud and Dorothy McDonald, Grover and Company Law Firm, James Gray, Pipella Law and Rob Ing Productions. Astoria Charity Golf Classic In its inaugural year, this event raised $105,000 for ARBI. “All of us at the Astoria Group are honored to be involved with such a wonderful team at ARBI and to assist them in their efforts to help survivors of brain injury. We look forward to being a part of your team for years to come.” Darrell Haase, President Iron Al, survivor alumni, serenaded the breakfast crowd. Stampede Breakfast Sponsors Grover & Company Law Firm, Presenting Sponsor Classic Life Care ARBI Christmas Open House Grover & Company Law Firm, Presenting Sponsor Third Party Events Peters & Co. Limited Firewater Friday “As part of our ongoing efforts to give back to our community, the principals and staff of Peters & Co. Limited are proud to have supported ARBI through our 2011 charity Firewater Friday Stampede Party. We strongly believe that the community-based rehabilitation and family support ARBI provides is critical to improving the quality of life of brain-injury survivors, and to enhancing the lives of the families and friends impacted by severe brain injury,” Christopher Potter, President and CEO, Peters & Co. Kristin, Kristine, Spencer, and Lorn (back row). Eldon, Lukasz, and Nicole (front row) Additional Amazing Third Party Events • Alberta Association of Insurance Adjusters Charity Ball • Calgary Curling Club Managers Association Golf Tournament • Canadian Heavy Oil Association Curling Bonspiel • Canadian Association of Petroleum Production Accounting Charity Golf Tournament • Cowgirls’ Nite Out, hosted by Marlie Burtt • James Bond Party • Scott Venturo LLP Golf Bruce Murray, Jim Stinson, Judy Stawnychko and Darrell Haase 14 Association for the Rehabilitation of the Brain Injured Our Donors We would like to thank all of our 2011-12 donors and core funders for helping our clients reconnect with their passions. We are pleased to list all donations and in-kind gifts over $100. ARBI makes every effort to accurately list donors for this report. If we have omitted your name in error, please contact jane@arbi.ca. Monarch $50,000+ Skipper $1,000-$4,999 Michael Streukens and Andrea Watkins The Flanagan Foundation Anonymous (3) Allen Schink and Sheila Roddy Andrea Henry Angle Energy Inc. Annapolis Capital (11) Limited Apache Canada Ltd. Beth Trawick Bilmac Resources Ltd. Bonavista Energy Corporation Brian and Barbara Henson Broadridge Financial Solutions (Canada) Inc. Bryan Baxter Bud and Dorothy McDonald Cameron Grace and Janis McGregor-Grace Cavendish Investing Ltd. Cenovus Employee Foundation Chichi Couture TM Dan and Frances McDonald David and Kathryn Schleen Deborah Leicht Doug Wishart Edith Cavell Chapter 25, Order of the Eastern Star Faiz and Shelagh Nadir Glenn and Elizabeth Hamilton Hanson Associates Barristers & Solicitors The Blair Family Home Oil Employees Social Club Jeph and Julie Virtue Jerome and Joan Schafer Jim Atkinson John, Judy and Mike Stawnychko Jon and Leanna Johnson Mary Anne and Arnie Ostapovitch Masonic Foundation of Alberta (The) Matthew and Catherine White N. Murray Edwards Optimist Club of Calgary Penn West Exploration Perry M Kopec Professional Corporation Ravenwood Energy Corp. Robert Gilchrist and Deborah Wheeler-Gilchrist Swallowtail $25,000-$49,999 Maunders McNeil Foundation Robert and Pat Steele Sam Switzer TAQA North Ltd. Ulysses $10,000-$24,999 Bearspaw Benevolent Foundation Dave Irwin Foundation for Brain Injury Donald and Uta Staus FirstEnergy Capital Corp. Kiwanis Calgary Metro Club Nexen Inc. Nipper Guest RBC Foundation - Calgary Riddell Family Charitable Foundation Robert and Michele Michaleski Roger Balm TELUS Calgary Community Board The Hotchkiss Family Foundation Totem Charitable Foundation TransAlta United Commercial Travelers Watson Family Foundation at The Calgary Foundation Duskywing $5,000-$9,999 ARC Financial Corporation Cameron Plewes Christopher and Holly Potter Kinsmen Club of Stampede City McDaniel & Associates Consultants Ltd. Nickle Family Foundation Phil and Cindy Swift Family Fund at The Calgary Foundation Phil Welch Renegade Petroleum Ltd. Sigrid Lewicki Terry and Colleen Falkenberg The Foundation for Seniors Care – Hearts of Excellence United Way of Calgary and Area – Donor Choice Ross Kaplan Rotary Club of Calgary South Scott Venturo LLP Stephen and Marlie Burtt Steve Hager Suncor Energy Foundation Surge Energy Inc. Ted & Enid Jansen Fund at The Calgary Foundation The Calgary Foundation The Gale Family Charitable Foundation The TAO Foundation Timothy Hamilton and Lindsay Fikowski Tony Valckx TransCanada Corporation Tuscan Benevolent Society Vogel Law Firm Ltd. Zimco Gauge & Valves Ltd. Holly Blue $100-$999 Anonymous (20) A. Robson Garden, Q.C. Alan Facey Amy Troyer Aomega Group Inc. ATCO Power Canada Ltd. Bernard and Florence Bigornia Bill Cummer Bill Cunningham Bob and Nancy Engbloom Brian Yaworski Bruce and Cathie Mahon Bruce and Kathy MacKenzie Calgary North Hill Lions Club Carol Oxtoby and Doug Howland Cathleen Strand Cathy Hazzard and Karen Lipon CCA Truck Driver Training Ltd. Christopher and Simona Ralph Christopher Woodward Condominium First Corene Warnock CP Systems Ltd. Dallas Droppo and Terri Turner Danial Echino Darren MacLeod David and Vivian Boone David Cassidy and Family David Vankka Dawn Wickerson Debra Davey Denis and Arlee Ladouceur Dennis and Annette Arnold Derek Mendham Diane Zimmerman Don and Val Davies Doug and Kim Watt Doug Crook Doug Webb Dr. Jeffrey Scholten Professional Corporation Duilio and Clelia Bit Earl Hawkes Edgar Fogg Elida and Darren Noren Elisabeth and Arun Bhatt Elizabeth Thompson EnCana Cares Foundation F.T.S. Inc. Fiona Abbott Fred and Cheryl Pynn Fred and Donna Wright Frix Consulting Inc. Garth and Anne Toombs Garth and Garrett Roberts Gary and Linda Penrose Gary S. Rowan George and Janet de Boon George Marquardt Gerald Sheff and Shanitha Kachan Charitable Foundation Gerald Young Fund at The Calgary Foundation Geraldine McKeage Gordon Laycraft Greg and Patti Clement Gregg and Marney Callander Heather Kennedy Henry and Anne-Marie Bergen Hugh and Rosemary Gillard Ian and Sydney Richmond J. D. Johnston James D Tocher Fund at The Calgary Foundation Annual Report 2011-2012 15 Memorial Donations Shaelo connects with a furry friend James Webb Jane Dafoe Jean Blayney Jean L Miller Consulting Jeff and Lyn Thomson Jeffrey Mackie Jim and Denise Lawson Jo-Ann Clark Jo’Anne Strekaf Jocelyn Flanagan Joel Klein John and Denise Hooks John and Janice McVey John and Susan Duckett John Scott Julie Cormack Kathy McCormick Katrina Bonnycastle Keith and Rosemarie Brown Keith Barnes Kenneth and Sylvia Teare Kim Coutts and Jason Quenneville Lee Easton Linda Gray Linda Lindsey Linda Richards Lori Hart Lorn and Kathleen Howes Lorne Scott Lyle Buffington M. W. Knechtel Professional Corporation Mark Lobello Marla Cohen Martin Bruce Mary Willmott Mavis James Melissa Rojas Merleen Hodgson Metrovino Fine Wines Michael and Heather Culbert Michael and Linda Shaw Monika Siegmund Savage Montgomery Ladies’ Club Mount Logan Helicopters Ltd. MPE Engineering Ltd. Nancy Lever Nancy Wiswell Neil Camarta Norma Karlinsky Othmar and Dale Stoesser Patricia MacLeod – Estate of Audrey Parks Paul and Margaret Nazarchuk Herb and Paula Emery Randall Spakl and Maria Barabos Randy Fedderson Randy Lehr Richard and Diana Krecsy Rick and Janice Odegaard Rob and Kathy Motherwell Rob Sprinkhuysen Robert Knipe Roger Gibbins Russell and Sheila Dixon Ruth Kujat Sally Munro Sam and Ruth Schurch Sarla Sethi Shane Taylor Sharon Gross Sharon Kaczkowski Sidney and Ilse Pedersen SNK International Ltd. Susan Arnison Sylvia Ostapovitch Tajdin Nathu Talisman Energy Inc. TELUS – Employee Matching Terrance and Patricia Lawrence Terry Craig Terry Robinson Timothy Bacon Tom and Tara Mark Tom Huffaker Trevor and Margaret Penford Troy Bourassa United Way of Peel Region United Way of the Lower Mainland Verne Johnson Vista Construction (1976) Ltd. W.R. and M.B. Patton Wanklyn Family Fund at The Calgary Foundation Wendell Chapman William and Fiona Peneycad Willow Holdings Ltd. Worley Parsons We Care Program Contractual Funders In Memory of Adam Mullen Dr. Stuart and Joan Brown Liane and David Hockey Mary Anne and Arnie Ostapovitch In Memory of Catherine Miller Mary Anne and Arnie Ostapovitch In Memory of Denton Snaith Lynda Colvey Mary Anne and Arnie Ostapovitch In Memory of Harold Ostapovitch Jim Kemp and Brenda Lee-Kemp In Memory of Jenna Paulssen Barbara and Gerald Torra Bow River Gas Co-op Ltd. Bradley and Sandra Amos Brenda and William Crossman Brownlee LLP Carole and Lorne Beattie David and Donna Magus Don Robson Eileen and Murray Earl Eugenia and Aribert Hoehnke G.L.D.C. Gas Co-op Ltd. Glen and Wilma Hill Heywood Homes & Partners LLP Kari Webb Leonard and Eleanor Gabert Mark and Margaret Gillrie Mary Anne and Arnie Ostapovitch Meota Gas Co-Operative Association Limited Myra and Russell Scarlett Natural Gas Co-op 52 Ltd. Pamela Stuart and Curtis Betts Phyllis and Leonard Wray Ralph and Carol Lane Ridge View Holdings Inc. Rockyview Gas Co-op Ltd. The Co-operators General Insurance Company In Memory of Keith Brown Dr. Stuart and Joan Brown In Memory of Joel Klein Anonymous (2) Anna and Harvey Felsher Buffy Lammie Gerald Sheff and Shanitha Kachan Charitable Foundation James and Sheila Hamilton Joe and Barbara Weiser John and Judy Stawnychko Joyce Goldberg Marg Hudson RBC Health Care Professionals Team Shirley Lehman Tasha Giroux Vaughn Lewis In Memory of Marilyn McArthur Alice Gardner In Memory of Megan Bensler Madame Justice Suzanne Bensler In Memory of Nonie Robinson Bud and Dorothy McDonald In Memory of Orville Strandquist Anonymous ATCO Power (2000) Ltd. Sharon Doll and Lynn Contway Don Innocent Don Todd Shirley Dorchester Elda Weatherly Sharon Wulff Agnes and Joseph Halerewich Jean and Albert Bauer Evelyn Strandquist Oliver and Mary Ann Bull Douglas and Elaine Scheerschmidt Cliff and Audrey Whitelock In Memory of Rena Ehnis Gary and Cheryl Mummery In Memory of Robert Stewart Norma Moore In Memory of Sheila O’Buck Mary Anne and Arnie Ostapovitch Tribute Gifts In Honour of Hung Woo Anonymous (2) Annie Li Hung Woo Kitty K.B. Tang Professional Corporation Kitty Tang Wendy Wong In Honour of Leonard Daitch Robert and Wendy Daitch In Honour of Lily Melathopolous Byron Veilleux and Stacy Veilleux James O’Connor and Bonita Croft Nick and Karen Melathopolous In Honour of Mike Hager Anonymous 16 Association for the Rehabilitation of the Brain Injured Financials and Funding Treasurer’s Report I am pleased to present the audited financial statements for the year ended March 31, 2012. 2011-2012 has been a significant turn around year for ARBI. Strong teamwork by ARBI’S staff, board of directors, and community supporters resulted in achieving a record level of revenue. The Fund Development Committee worked to increase general donations by almost $200,000. It should be noted that ARBI is very efficient at fundraising with total fundraising expenses of $116,382 (or 13%). In addition, a new funding relationship has been established with Alberta Health Services, which resulted in a one-time grant in 2011-2012, and an ongoing funding contract. This funding, plus a very successful golf tournament and other fundraising events, has enabled ARBI to achieve an operating surplus of $224,895 as compared to an operating loss of $120,982 the previous year. The surplus allowed ARBI to restore the contingency fund to its former level and eliminate previous accumulated operating deficits. With the new funding, ARBI now receives approximately 60% of its funding from contracted sources as compared to 41% last year. This will provide stability, reduce the pressure on fundraising, and allow ARBI to grow slowly and more effectively serve the community. Terry Craig, Treasurer. The Association for the Rehabilitation of the Brain Injured Statement of Financial Position As at March 31, 2012 20122011 Assets Current Cash and cash equivalents Accounts receivable Goods and services tax receivable Prepaid expenses and deposits Short term investments $ 241,753 131,770 46,301 26,677 5,239 5,051 3,809 3,685 180,556 — 477,658 167,183 Endowment fund Property and equipment Liabilities Current liabilities Accounts payable and accrued liabilities Private loan Deferred contributions Related to property and equipment Related to operations 89,740 121,989 296,539 281,110 386,279 403,099 473,902 424,348 Net Assets Invested in property and equipment Endowment fund Internally restricted Unrestricted 7 ,585 11,427 36,646 38,467 75,000 100,000 18,498 (235,173) 137,729 (85,279) $ 611,631 339,069 36,646 38,467 97,327 133,419 611,631339,069 32,623 55,000 For a complete set of audited financial statements, please contact ARBI: (403) 242-7116 info@arbi.ca or go to our web site: www.arbi.ca 21,249 — Annual Report 2011-2012 17 Revenue Source 2011-2012 Expenditures 2011-2012 41% Fundraising 19% AB Seniors & Community Supports 16% Alberta Health Services 14% United Way of Calgary 8% Facility – Gift in kind 1% Fee for service misc. 76% Program 15% Administration 9% Facility The Association for the Rehabilitation of the Brain Injured Statement of Operations For the Year Ended March 31, 2012 Revenue Donations General Deferred contributions recognized Alberta Seniors and Community Supports Community Integration/Volunteer Program On site/CAPCC Program fees United Way of Calgary and Area Alberta Health Services Recognition of deferred contributions related to property and equipment Fee for service Interest Other Expenses Salary and employee benefits Program Administrative Program Expenditures Program support Consultants Facilities Rent and facility maintenance Amortization Administration Office Professional fees and memberships Insurance Loss on disposal of investments Excess (deficiency) of revenue over expenses 20122011 $ 843,471 218,382 1,061,853 271,797 271,797 160,000 157,902 431,797 429,699 316,815 309,127 366,665 — 63,412 51,163 17,880 7,038 1,316 1,358 5,986 10,963 2,265,724 1,820,111 1,439,876 1,331,101 130,601 122,094 1,570,477 1,453,195 31,464 41,720 6,704 37,126 38,16878,846 654,228 356,535 1,010,763 185,000 185,000 67,254 63,448 252,254 248,448 137,919 112,636 31,322 33,809 10,755 13,574 — 585 179,996 160,604 2,040,895 1,941,093 $ 224,829(120,982) For a complete set of audited financial statements, please contact ARBI: (403) 242-7116 info@arbi.ca or go to our web site: www.arbi.ca MISSION ARBI is a community-based non-profit organization that strives to improve the lives of individuals with severe brain injury, including stroke. We unite professionals, volunteers and caregivers throughout Alberta to provide personalized rehabilitation and community integration. VISION Creating a community where quality rehabilitation is accessible to all individuals with a severe brain injury, including stroke, enabling them to live their best life possible. Help make life better today for a brain injury survivor. Please donate: 3412 Spruce Drive SW, Calgary, Alberta T3C 3A4 Phone: 403-242-7116 Fax: 403-242-7478 info@arbi.ca www.arbi.ca BN# 14059 9507 RR0001 Design – Spindrift Design. Original photos – Kristy Reimer Photography. Copy – Jane Dafoe, Mary Anne Ostapovitch and Morgan Moe. Editor – Steve Hager. Translator – Ilona Carvallo