Allen Danvers` Story - Gallipoli Medical Research Foundation
Transcription
Allen Danvers` Story - Gallipoli Medical Research Foundation
3 out of every 10 Australians will be diagnosed with cancer in their lifetime Allen Danvers’ Story I remember so well the looks on their faces. The disbelief. The pain in their eyes. The deafening silence. This time Dad can’t fix it. It’s a memory that haunts me. It’s a memory that still brings me to tears. “I’ve been fortunate in enjoying a good life. I grew up in Wynnum, married Linda (a local Wynnum girl) and was blessed with 3 children who grew into adults I am so proud of. My work has followed many interesting paths which rewarded me with knowledge, friendships and greatly appreciated experiences. I’ve worked in construction, oil refineries, the computer industry, tourism operations, boat building, facilities management and, more recently, with the Queensland Museum. This Winter help us win the race against cancer If you have ever taken any type of medicine or been treated for an illness then you have benefited from medical research. It can take many years and millions of dollars to develop a treatment from an initial idea to a safe treatment in patients. Founded in 2005 the Gallipoli Medical Research Foundation exists to find cures, treatments and preventions of incurable diseases affecting the health of veterans, patients of Greenslopes Private Hospital and the wider Australian community giving hope to those in pain and afflicted by life threatening and chronic conditions. Led by Associate Professor Andrew Nicol and Professor Darrell Crawford the Foundation has achieved major milestones in research and development into cancer treatments and liver disease. A number of clinical trials are currently being conducted into colon, ovarian and hepatic cancer, melanoma, leukaemia, lymphoma, myeloma, liver disease, and pain control. The Foundation does not receive regular government funding and relies on public community donations to continue its invaluable research. All donations of $2 or more are tax deductible. To make a donation today (07) 3394 7284 or donate online at www.gallipoliresearch.com.au I’ve so many interests it’s a wonder I have time for them all. I love soccer and have played at State level, enjoy the occasional round of golf, and have a passion for aeromodelling. With help from my Dad and a shared passion with my younger brother this developed into Radio Control aircraft. I am still actively involved in one of the largest clubs in Australia. Travelling and motorcycling are also high on the list – but most of all, I’m a family man. Like so many men, I have always been a hard nut about my health. Through years of football and motorcycle accidents I always recovered quickly. Beat the doctors, prove you can recover early – broken bones and bruises were simply inconvenient. Colds, flu, random illness? Take the medicine….. get over it! Strong and defiant I never gave up. I showed no fear. I was the one who promised my young children I would always be there to protect them. But that was all about to change. I was no longer in control. The truth was that for the first time in my life, I was afraid. A simple shaving nick, a series of niggling infections, a bout of shingles then a mysterious nose bleed. Diagnosis? Myeloma. How could all this add up to cancer? I had no idea how to cope with the news. A fatal disease; a treatment plan; possible cure in the future; a new doctor to work with; work; family; the financial implications; our plans for the future. Everything was thrown into a sea of unanswerable questions that flooded me from every angle. Myeloma is a cancer of plasma cells in the bone marrow. Around 1200 Australians will be diagnosed with myeloma this year. Bone marrow tests confirmed the disease was rampant. The cancer had started attacking the inside of my bones. We had caught it before any significant damage had been done, but the residue from it had already begun to badly affect my kidneys. Treatment could not be delayed or renal damage would be so severe that permanent ongoing dialysis would become a fact of life. The disease would slowly erode my bones, destroying my kidneys as well. And so it began. The chemotherapy was complicated, unpleasant and strenuous. Nausea, insomnia, mouth ulcers, sore feet, extreme fatigue, shingles, even my eyesight suffered a little. Clinical trials of new pharmaceutical lines were added into the mix – I was so frustrated with my lack of control over this illness! But worse was still to come. Stem cell harvesting, bone marrow transplant, they seem like an old dream now. At times now depression walks with me. My body doesn’t handle stress the same any more. I became exhausted for days on end. I needed to pull back or risk a relapse. Hoping to get back to work after the first stint, I realised my priorities had to shift. Me first, family and friends next, work somewhere after them. At the moment, thanks to the dedication of Associate Professor Andrew Nicol, and his team at the Gallipoli Medical Research Centre, I have been given breathing space. My health has generally recovered close to where it was before treatment. The severe damage to my bones and kidneys has been halted. Lifestyle changes are taking place. I’m balancing life, ongoing treatment and activities in a way which will allow my body and mind to rebuild after all the treatment – but it truly is a fine balancing act. I’m assured treatments are improving. New clinical trials are planned and there is hope there will be a significant breakthrough in finding a treatment, which will give an absolute cure for myeloma for people like me and thousands of others living with this cruel disease. My family and I live with this hope. We have a great team looking after us. We trust them with my life. Right now, we’re working on that bucket list – the important things to do today; in our lifetime. I want to enjoy my life, my family, and contribute to the community in a positive way. But so much hinges on new treatments, lifesaving breakthroughs, and the tireless dedication of the true heroes of this world – medical researchers. Statistics tell us that you or someone you know may develop myeloma, so I ask you to put yourselves in our shoes. With your help and support, cures and treatments will be achieved sooner.” Here at the Gallipoli Medical Research Foundation we have the expertise, we have the facilities, but what we lack are the funds to run new clinical trials. To do a complete and worthwhile trial and study on a qualified group of myeloma patients will need $300,000. Your donation may help to save Allen’s life or the life of someone in your own family. So if you can, please give today! Myeloma Facts Myeloma (also known as Multiple Myeloma) is a cancer of plasma cells. Myeloma cells formulate in the bone marrow. Myeloma tumours can accumulate in different parts of the body, particularly in the bone marrow and on the surfaces of different bones in the body. Around 1200 people will be diagnosed with Myeloma in Australia this year. Symptoms include: • • • • bone pain, usually felt in the back or the ribs Persistent tiredness and fatigue Frequent or repeated infections Increased bleeding or bruising 93% of patients diagnosed with myeloma are over the age of 50 although it has been reported in children and adolescents. Myeloma is more common in men, than women. While treatments can help to control Myeloma, there is currently no known cure.