Gestalt Art Therapy for people with Dementia
Transcription
Gestalt Art Therapy for people with Dementia
BackUp_8425_Research_1 04-06-16 17.16 Sida 149 Gestalt Art Therapy for people with Dementia Margaret Muir Egg whites sugar and … is the first session in GATE-ways (Gestalt Art Therapy/ Experiential ways)1 and detailed below. In Australia Pavlova, an extremely popular dessert for celebrations is made from egg whites and sugar (see recipe at the end) so by making it the initial, and non-traditional art material, immediately indicates it will be both a fun and celebratory experience for the women with dementia and the staff. The GATE-ways program for women with dementia is a comprehensive integrated psychotherapy programme that has been developed on strong psychological and psychotherapeutic foundations bringing, together research on dementia, trauma, Gestalt Art and Psychotherapy in a playful and rewarding manner. Margaret Muir, Ph.D. Candidate Margaret completed her Bachelor of Science (Hons) in Psychology, at the University of Newcastle (Australia). On graduation, her clinical placement was in a large institutionfor children and adults with neurological impaiment. Margaret was able to successfully develop innovative programmes for the residents, their families and staff. Counselling, Gestalt and Art Therapy enabled her to develop innovating approaches to assist people with neurological impairment and/or experiencing trauma. Margaret currently works as a Psychologist/Psychotherapist in Private Practice and is a PhD (Medicine) candidate at the University of Newcastle. As part of her research, Margaret is bringing together over thirty years of experience in Psychology, Gestalt and Art Therapy with people experiencing neurological impairment and trauma. International Academy for Design and Health World Congress and Exhibition Montreal 25-29 June 2003 research field is music and music in combination with therapeutic suggestions to patients in surgical care. As most investigators adopt a biological perspective, viewing dementia from a perspective of trauma has been neglected. The illness of dementia, with its changes in cognition and memory, can threaten a person’s identity, resulting in emotions of both trauma and loss, defined as complex trauma2. People with dementia experience multiple traumas from the loss of cognitive abilities, to rejection by family and friends. In addition to the above traumatic events, there are fewer and fewer opportunities to maintain and develop social interaction. People with dementia show signs of depression and anxiety. In complex trauma, anxiety and depression are considered to be normal responses to an overwhelming experience. Further the Behavioural and Psychological Symptoms of Dementia (BPSD)3 are consistent with responses to Post Traumatic Stress Disorder (PTSD) 4. This poses the question as to whether it may be appropriate to view and respond to dementia as a traumatic experience and therefore take a trauma recovery model to facilitate positive Traumatic events are extraordinary, not because they occur rarely, but rather because they overwhelm the ordinary human adaptations to life. Unlike commonplace misfortunes, traumatic events generally involve threats to life or body integrity, or a close personal encounter with violence or death. They confront human beings with the extremities of helplessness and terror and evoke the response of catastrophe. The common denominator of trauma is a feeling of intense fear, helplessness, loss of control and threat of annihilation Judith Herman, MD Trauma and Recovery ‘In Life After Trauma’ Rosenbloom and Williams, 1999 159 BackUp_8425_Research_1 04-06-16 17.16 Sida 150 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA change. Through reducing anxiety and depression with people with dementia, it promotes a respectful and meaningful lifestyle together with kindness to them, their relatives and the staff who care for them. self-esteem, mastery and control, trust and safety. Therefore in effective trauma recovery therapies, there is an emphasis on the need to systematically re-develop safety, trust, mastery or control, self-esteem and intimacy to facilitate recovery from trauma. One approach to reduce this distressing and overwhelming experience for people with dementia is Person Centred Dementia Care5 . In this approach Kitwood6 places the emphasis on “personhood”7 and well-being of the person with dementia. The definition given to “personhood … is a standing or status that is bestowed upon one human being, by others, in the context of a relationship and social being. It implies recognition, respect and trust”. Wellbeing8 for people with dementia is the sum of Neurological Impairment, Health/Physical fitness, Biography or Life History and Social Psychology. Kitwood9 perceives that the main psychological needs of people with dementia are “Attachment, Comfort, Identity, Occupation, Inclusion and Love”. Following Kitwood, Shepard and Rusted, (1999), Thormigsen (2002) have conducted groups with people with dementia in England that have shown quantitatively, significantly reduced levels of depression although not anxiety. The qualitative results from these studies have shown increased satisfaction, and social interaction. The perspective being presented here, of dementia as trauma, has developed from a review of the literature on dementia 10and trauma11. The responses to trauma can involve more defences, that last longer and may have more intensity than usual defences. They are normal responses to abnormal demands. If trauma ‘is experiencing an event outside the range of usual human experiences that would be markedly distressing to almost anyone’ 13 it is beneficial to find a suitable analogy that brings it back within our understanding. Muir, Margaret (2002) “GATE-ways to Recovery (Gestalt Art Therapy/ Experiential ways)” Unpublished 2 Herman, J.L. (1992). Cited in Rosenbloom, D and Williams Mary Beth (1999) Life After Trauma The Guilford Press New York 3 Ballard, C et al (2001) Dementia: Management of Behavioural and Psychological Symptoms Oxford University Press 4 American Psychiatric Association (APA) (1994) Diagnostic and statistical manual of mental disorders (4th Edition) Washington DC: Author 5 Kitwood, T Dementia Reconsidered The person comes first (1997) Buckingham Open University Press 6 Kitwood, T Dementia Reconsidered The person comes first (1997) Buckingham Open University Press 7 Kitwood, T. Dementia Reconsidered The person comes first (1997) Buckingham Open University Press. Page 8 8 Bradford Dementia Group, University of Bradford (2002) Person Centred Dementia Care and Dementia Care Mapping Basic Certificate Manual 9 Kitwood, T. Dementia Reconsidered The person comes first (1997) Buckingham Open University Press Page 82 10 Cheston, R and Bender, M (1999) Understanding Dementia: The man with the worried eyes. London Jessica Kingsley Publishers 11 van der Kolk, B et al (1996) Traumatic Stress: The effects of overwhelming Experience on Mind, Body and Society. New York, The Guilford Press 12 Williams, Mary Beth (1999) Life After Trauma The Guilford Press New York 13 Herman, J.L. (1992). Cited in Rosenbloom, D and Williams Mary Beth (1999) Life After Trauma The Guilford Press New York 1 Traumatic experiences can be different in nature, intensity, frequency, and duration and include life-threatening illnesses. Trauma also has different impacts on people, even the same people at different times of their lives. Different cultures see different events as traumatic. From these differences a variety of reactions and adaptations to those traumas can be observed although there are common elements in the experience of trauma. From these common elements a construct of trauma12 has been developed where depending on the frequency, duration and or intensity of the event (s), following trauma a person can loose social and sexual intimacy, International Academy for Design and Health 160 BackUp_8425_Research_1 04-06-16 17.16 Sida 151 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA to respect the landholder and not force any repairs. There can be some frustration and delay is if the helper goes to the wrong gate. Additional problems can occur, if the helper assists in an inappropriate manner or takes over the task from the landholder. The most effective process is for the helper to respect and evaluate the skills, ability and resources of the landholder by going with the landholder to assess each area. Through this respectful approach by the helper, together with the landholder’s knowledge of the territory, they become a team. As a team, they can check all gates together, and only apply energy to the gate or gates that are stuck. Each gate that opens leads to more resources and increased opportunities. The process, with the appropriate recovery strategies, continues to make the various gates functional again. With the gates functional the landholder can utilize all of their land as they choose, until the final gate at the all weather road is re-opened to effective increased social interaction with the passers by. GATE-ways Analogy Imagine that there is an area of land beside an all weather road on which many people can travel and interact. The land is divided into five paddocks or meadows that are made to meet various requirements of social intimacy, self-esteem, mastery of skills, trust and safety. Each paddock may be of the same overall area but the perimeter of each fence is less in the areas towards the centre. Each of these perimeter fences has a gate for ease of access. In normal conditions, the gates can easily be adjusted to suit the needs of the landholder. The landholder, dependant upon various events, may see the need to conserve the area at different times in different ways by closing the gates providing opportunities for beneficial rest and regeneration. If, in the environment, there are sudden events such as storms, or changes such as prolonged drought or rain, the gate closures may have a different outcome. Dependant on the enormity of this event, the landholder may choose to firmly close gates so that, initially, the situation can be assessed without interruption But if through these changes the landholder becomes traumatised, experiencing intense fear, helplessness, the gates may be locked or the gates damaged by the events. When this happens opportunities are missed and options are lost. The landholder is now experiencing both trauma and grief. In this situation there is neither energy nor motivation to carry out routine tasks. The GATE-ways concept and program This is a systematic concept of trauma recovery that brings together Kitwood’s “Person Centered Dementia Care”14, William’s construct of trauma15 detailed above, Self Actualization16 , Gestalt Therapy17 18 and Gestalt Art Therapy. Self-actualization is the humanistic psychology, promoted by Abraham Maslow based on the ideas of holism and actualization19. Gestalt (Psychotherapy) is the human potential movement developed by Fritz Perls20. “ Gestalt is” described by John O. Stevens and Barry Stevens as “ a word for an orientation, a description of the process involved in individual human awareness and functioning a rich diversity of experiences” 21. Gestalt Art Therapy was developed by Janie Rhyne, a pioneer Art Therapist, who was trained by Perls, and worked with him in the human potential movement22. Rhyne23 combined the Gestalt experimental approach, which focused on sensations and perceptions with the work of Rudolf Arnheim24. In Gestalt Art Therapy a wide diversity So this lack of maintenance can lead to the gates not just being closed but becoming no longer functional. At this stage if the gates are to be reopened the landholder would benefit from an external helper. Sometimes when a number of gates have been closed, the helper may need to find their way in to the area to where the landholder has retreated. For the landholder they may have retreated while endeavouring to maintain their personal safety and that is all they can manage. The helper needs 161 BackUp_8425_Research_1 04-06-16 17.16 Sida 152 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA of conventional and non-conventional art materials are used to express feelings and experiences and it is the client who does the interpreting with the assistance of the therapist. This is quite a different the to the Eclectic Approach which involves selections based on the beliefs and values of the therapist25 or the Psycho-dynamic Approach which follow a more formal structure and where the interpretations are made by the art therapist. kinesthetic activities that promote safety, trust, self-esteem the re-establishment of skills that promote social intimacy. The role of Art Therapist or the helper is to assist and to encourage the reestablishment of skills and in promoting awareness in the form of openended questions such as: What are you noticing? What are you remembering? The GATE-ways program is constructed from a number of resources26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 and is one that involves gentle exploration and experimentation in a sensory enriched environment where the participation chooses the level of involvement in the activity and interprets the outcomes. This program involves all senses in What are you feeling? It is important that appropriate time for exploration of the medium is given so that memories or ideas can become more clearly formed and expressed that assists with making meaning of life experiences and events. It is through the finding meaning for life experiences and events that the feelings of being overwhelmed or out of control are reduce or eliminatedo44 45 46. Kitwood, T Dementia Reconsidered The person comes first (1997) Buckingham Open University Press 15 Williams, Mary Beth (1999) Life After Trauma The Guilford Press New York 16 Maslow, A Dominance, feeling, behaviour and status Psychology Review, 1937,444, 404-429 Cited Murphy, G ( 1946) Personality a bio-social approach. Harper Bros Publishers New York 17 Marcus, Eric (1980) Gestalt Therapy and beyond: An Integrated Mind-Body Approach Preston Institute of Technology Press, Melbourne 18 Smith Edward W.L. Ed (1977) The Growing Edge of Gestalt Citadel Press Secaucus NJ 19 Shane, Paul (2002) The rise and fall of Gestalt Psychology Australian Gestalt Journal, Vol 6. No.2 20 Perls. . F.S. Gestalt Therapy Verbatim Lafayette, CA: Real People Press 1969 21 Stevens John O. (1975) Ed. gestalt is Real People Press Moab Utah 22 Ruben, J(1999) ART THERAPY: An Introduction BRUNNER/MAZEL Philadelphia 23 Rhyne, Janie (1973) The Gestalt Art Therapy Experience Brookes/Cole, Monterey, CA 24 Ruben, J (1998) ART THERAPY: An Introduction. Edwards Brothers Lillington NC 25 Wadeson, H. (1980) Art Psychotherapy NY Wiley 26 Steven, John O (1971) Awareness: exploring, experimenting, experiencing. Real People Press Moab Utah 27 Rhyne, Janie (1973) The Gestalt Art Therapy Experience Brookes/Cole, Monterey, CA 28 Rush, Anne Kent (1976) Getting Clear Body work for women Wildwood House Ltd. London 29 Crowe B (1984) Play is a feeling Unwin Paperback Sydney 30 Oaklander, V. (1978) Windows on our children Lafayette, CA: Real People Press Edwards, Betty (1986) Drawing on the Artist Within: How to release your hidden creativity William Collins Sons & Co Ltd. Glasgow 32 Wadeson, H. (1985) The dynamics of Art Therapy NY Wiley. 33 Ruben, Judith (1987) APPROACHES TO ART THERAPY: Theory and Technique Brunner Mazel Publishers New York 34 Cohen, B et al (1995) Managing Traumatic Stress through Art: Drawing from the Centre. The Sidran Press Baltimore 35 McInally, A and Hatfield, (1998) Evaluating the use of (Psycho-dynamic) Art Therapy for people with dementia A Control Group Study Brighton Area Brach of the Alzheimer’s Disease Society 36 Wadeson, H (1995) The Dynamics of Art Psychotherapy John Wiley & Sons New York 37 Ruben, J (1998) ART THERAPY: An Introduction. Edwards Brothers Lillington NC 38 Rosenbloom, D and Williams Mary Beth (1999) Life After Trauma The Guilford Press New York 39 Waller, D.E. (1991) Becoming a Profession; The history of Art Therapy in Britain, London Routledge 40 Wadeson, H (2000) The Dynamics of Art Psychotherapy John Wiley & Sons Inc. New York 41 Innes, A and Hatfield (2001) Healing Art Therapies and Person Centered Dementia Care Jessica Kingsley Publications. 42 Wylie, Kim (2001) Valuing sensation and sentience in dementia care Unpublished (Nursing) dissertation University of Newcastle NSW Australia 43 Thorgmison, L (2002) Quality of Life in Dementia PhD Unpublished University College London 44 Frankkl, Viktor ( 1984) E. Man’s search for meaning Washington Square Press Published by Pocket Books New York. 45 Kushner, Harold (1982) When bad things happen to good people. Pan books 46 Kushner, Harold (1996) How Good Do We Have To Be? A New Understanding of Guilt and Forgiveness VIKING 31 14 International Academy for Design and Health 162 BackUp_8425_Research_1 04-06-16 17.16 Sida 153 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA the sensory and kinesthetic criteria of a suitable art materia in that it is sensual and non-threatening, it immediately signals a celebration. Pavlova is obviously the refreshment served at the end of the first session. The second session involves making patterns with rice grains, subsequent sessions use more conventional art media such as, pencils, inks papers and clay together with the art media utilised by most women, for self expression, textiles. This research differs from previous care group psychotherapeutic studies in that it considers the value of person-centred approach to dementia care in combination with the provision of efficient trauma recovery therapies. GATE-ways for Women with Dementia and their Carers in Australia The current study of “GATE-ways for Women with Dementia and their Female Carers” is being conducted in rural New South Wales Australia. Each group will consist of three to five women and one carer,(employed by the facility and the Art Therapist. The sessions are of 1-hour duration and two mornings a week for six weeks. This current psychotherapy project is assessing two trauma recovery programs, (1) “GATE-ways (Gestalt Art Therapy /Experiential)-ways to recovery”47 and (2) a subsection of “GATE-ways”, “Eass” (Experiential anxiety self-soothing). The programme uses both quantitative methods to assess a variety of cognitive and behavioural indices with the women with dementia and quantitative and qualitative measures with the female carers. GATE-ways can be used in other countries and cultures providing that the customs and cultural heritage are respected and by giving consideration to the participant’s rights, beliefs, perceptions of both individuals and to groups. Both programs start the reduction in anxiety with ‘Ease’ “Experiential Anxiety Self-soothing exercises”. Ease combines exercises of “drawing breath”48 with increased awareness of breathing49 and making patterns50. ‘Ease’ involves the person holding one hand on the lower rib cage and noticing what happens when breathing in and out. What changes occur if the person draws breath more slowly…? More quickly…? This focus, on the way in which breath is drawn, encourages more control in the breathing and in turn heart rate and adrenaline output enabling the participants to feel safer and less anxious Resources required for each “GATE” Safety Art Materials To support further the sense of safety, the art materials need to be familiar, have smooth texture and be easily moved or manipulated by one person only. This could be soapsuds, shaving cream, or meringue on a colour plate. To give a visual form to the drawing of breath, marks can be made with the other hand to indicate the movement of the rib cage. This process needs to be slow to establish a reliable foundation for other activities. Refreshments Preferably festive food that is relevant for the landholder but if using meringue as an art material, cooked meringues in various styles, and lemonade or apple juice would be appropriate. This complete GATE-ways program has been designed to reflect the experiences, and meet the needs of the participants, the majority of whom have been born in Australia. The first session of the GATE-ways program in Australia is exploring the patterns of breathing by making marks in a mixture of beaten egg whites and sugar. In Australia, Pavlova a confection of egg whites, sugar, beaten to froth and then baked is a festive dessert. It is something most women in Australia would have made, so it is familiar and safe. In addition, it not only effectively meets Muir, Margaret (2002) Gestalt Art Therapy/Experiential Trauma Recovery programs (unpublished) 48 Cohen, B et al (1995) Managing Traumatic Stress through Art: Drawing from the Centre. The Sidran Press Baltimore 49 Steven, John O (1971) Awareness: exploring, experimenting, experiencing. Real People Press Moab Utah 50 Rhyne, Janie (1973) The Gestalt Art Therapy Experience Brookes/Cole, Monterey, CA 47 163 BackUp_8425_Research_1 04-06-16 17.16 Sida 154 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA Trust lop their skills. This section is about selfexpression through lines, direction of the objects, colours, shapes, different sizes, tonal contrasts and changes in textures. The making of three-dimensional (3-D) objects could be helpful to the person. It may be useful to group materials in clusters e.g. textiles with needles and thread; wood with wood glue. Refreshments Given that the artwork may be joining objects or ideas together, food that is joined such as slices or cakes, or sweets that have two or more layers. The drinks could involve adding water or soda to syrup. Art Materials To consolidate the sense of safety, the material needs again to be familiar but be of a harder texture such as grains or seeds on a metal tray. The person would again make marks in the grains but after a few minutes, the assistant or peer would then take a turn in the same tray of grain. Then the two people would share the space, making patterns, negotiating non-verbally how to utilise the space. Allow time for the process before beginning to talk about what has been happening or any memories that have resurfaced. Refreshments The refreshments need to relate to the medium e.g. corn is the grain then foods from corn. The drinks could be milk or juice. Social Intimacy Art Materials The person may enjoy continuing or developing the previous activities or they may work in a new media eg. dough or clay making, 3-D objects, or an idea developed with a partner. The emphasis in this session is co-operation, e.g. by holding onto something or passing something to someone; making a helpful suggestion that would make the activity easier. Refreshments Cake, chocolates, cordial, tea coffee would provide reminders of other times when co-operative efforts were enjoyed. Re-establishment of skills (Mastery) Art Materials Following the re-establishment of safety and trust it will be time to start the re-establishment of former skills such as writing or drawing. The materials would be those that are culturally relevant to the person, the materials may include papers, pencils, inks, and paints. Depending on the occupation of the person other media such as textiles, wood, or metal may be appropriate. Refreshments Food and drinks that relate to school or work, e.g. sandwiches, Bento boxes or items that would assist are the recall of memories associated with schooling or other learning. Conclusion It has been shown that group psychotherapeutic programs for people with dementia enable and encourage positive changes. It is important that facilities have adequate and private space to conduct group psychotherapy sessions so that fear, helplessness and loss of control can be replaced with calm, self-esteem and social interaction. Self-Esteem Art Materials The person will have more confidence when they have begun to re-develop or further deve- International Academy for Design and Health 164 BackUp_8425_Research_1 04-06-16 17.16 Sida 155 GESTALT ART THERAPY FOR PEOPLE WITH DEMENTIA Postscript Pavlova one of Australia’s contributions to the culinary world was named after the great ballerina Anna Pavlova. The classic Pavlova has a crisp meringue outside, delicate marshmallow-like softness on the inside. The aim is to leave the confections outside white and crisp while leaving the inside soft and creamy. When cooked this confection is decorated with cream and fresh fruit. of vinegar; 1 teaspoon of vanilla; whipped cream for filling and fruit or other toppings of your choice. Method Beat the egg white and water in a glass bowl at high speed until soft peaks form. Add sugar, 1tablespoon at a time, beating well after each addition. Stop beating when all the sugar has been incorporated and then fold in vinegar and vanilla. Pipe (or pile mixture) in a 20cm circle onto baking paper on a flat tray. Cook at the lowest temperature for 1-_ hours until it is crisp. When cooked, remove from oven and cool completely before adding cream and fresh fruits. Ingredients 6 egg whites, at room temperature; _ teaspoon of cold water; pinch of salt; 2 cups of castor sugar: 1 _ teaspoons Sinclair, E Ed .(1982) The Australian Women’s Weekly Original Cookbook Golden Press Pty Ltd Sydney pp 17-174 51 165