be inspired - Kovler Diabetes Center

Transcription

BE INSPIRED
CELEBRATING
MIRACLES&MILESTONES
UNIVERSITY OF CHICAGO
KOVLER DIABETES CENTER
2013 monogenic diabetes family forum
THURSDAY, JULY 18 AND FRIDAY, JULY 19, 2013
MARRIOTT DOWNTOWN MAGNIFICENT MILE
540 NORTH MICHIGAN AVENUE • CHICAGO, IL
Celebrating Miracles and Milestones:
2013 Monogenic Diabetes Family Forum
Greetings!
We look forward to welcoming individuals and families from the U.S.
and abroad to Celebrating Miracles and Milestones: 2013 Monogenic
Diabetes Family Forum. During this Forum, attendees will be encouraged to share their stories, learn how to overcome the challenges
of Monogenic Diabetes and celebrate all of our community’s miracles
and milestones.
The following pages outline everything you need to know about the Forum, including:
-Program agenda
-Registration information
-Venue, travel and child care information
We’re confident this event will be an amazing opportunity for you and your
family. Together, we’ll inspire one another to look toward a bright future!
If you have any questions, please do not hesitate to contact us directly at
773.702.2371 or via email at Diabetes@UChospitals.edu.
Warm Regards,
The University of Chicago Kovler Diabetes Center Team
1
Register online at KovlerDiabetesCenter.org/BeInspired
Agenda
All Forum events will be held at the
Chicago Marriott Downtown Magnificent Mile unless otherwise noted.
Registration Check-in
Fully-registered attendees and families are welcome to check-in at the conference
registration desk on the fourth floor of the Marriott before or during the forum.
Hours are as follows:
Wednesday July 17, 2013: 5:30 pm - 7:30 pm
Thursday July 18, 2013: 7:00 am - 4:00 pm
Friday July 19, 2013: 7:00 am - 4:00 pm
Wednesday, July 17
5:30 - 7:30 pm Conference Check-in and Registration
5:30 - 7:30 pm “Welcome to Chicago“ Reception
Meet other attendees and enjoy a light dinner buffet.
Kids Sessions - Thursday, July 18 and Friday, July 19
“Kids Session” schedules will be posted online
and during the conference at
KovlerDiabetesCenter.org/BeInspired.
• Understanding Your Monogenic Diabetes
• Safety Tips and Common Sense:
Diabetes Management and Beyond
• Yoga and Stretch Class
• Soccer Clinic
• Stress and Relaxation Program
• Fun Fitness
• Healthy Eating Class
• Tech Station
Download the Monogenic Family Forum App for iPhone and iPad
2
Agenda: Thursday, July 18
7:00 am
7:30 - 8:30 am
Breakfast buffet for all conference attendees, children and families
8:30 am
Child Care Check-In
9:00 am
Welcome/Opening Remarks
Peggy Hasenauer, MS, RN
9:15 am
Where Are We Now?
Lou Philipson, MD, PhD, FACP
9:45 am
Science, Diabetes, Genetics and the Future
Andrew Hattersley, MA, MRCP, DM, FRCP
10:30 am
Break
11:00 am
Coping and Stress: A Panel Discussion
Edwin Cook, MD
Tina Drossos, PhD
Michael Msall, MD
John Rolland, MD
Warren Rosen, PhD, PC
12:00 - 1:00 pm
3
Conference Check-in
Lunch buffet for all conference attendees, children and families
1:00 - 2:00 pm
Breakout Session One
Attend ONE of the following:
Medication Management
Rochelle Naylor, MD
Siri Greeley, MD, PhD
Nutrition and Exercise
Julia Socke, RD, LDN, CDE
Resilience: Everyday Family Management
Edwin Cook, MD
Tina Drossos, PhD
John Rolland, MD
2:00 - 3:00 pm
Breakout Session Two
Medication Management
Rochelle Naylor, MD
Siri Greeley, MD, PhD
Resilience: Everyday Family Management
Edwin Cook, MD
Tina Drossos, PhD
John Rolland, MD
4
3:00 - 4:00 pm
Breakout Session Three
MODY Q & A Panel
Presented by Kovler Physicians
and those living with MODY
Neonatal Q & A Panel
Presented by Kovler physicians and parents
Legal and Insurance Issues
Edward Kraus, Esq
4:00 pm
Thursday Session Adjourns
Child Care Session Closes
5:30 - 9:00 pm
Enjoy Chicago Night
Individuals and families will receive a complimentary gift card
from Lettuce Entertain You Restaurants for a fun night out on
the town! Free childcare options will be available. For more
details on restaurants, reservations and childcare, please visit
5:30 - 9:00 pm
Kids Night In! (Located in the Marriott)
Children can enjoy pizza and movie night. Please register on
KovlerDiabetesCenter.org/BeInspired to sign your child up
for childcare as space is limited.
Amenities available throughout the day:
•
•
•
•
Video Diary Session (Open 8 am - 6 pm. By appointment only.)
“Healthy Living,” presented by Walgreens
Sponsor exhibits
Interactive lounges and coffee bar for family interaction
Learn more at KovlerDiabetesCenter.org/BeInspired
5
Agenda: Friday, July 19
7:30 - 8:30 am
Breakfast buffet for all conference attendees, children and families
8:30 am
Child Care Check-In
9:00 am
Opening Remarks
Graeme Bell, PhD
9:30 am
The Story Continues: Discovery of the K-ATP Channel
Frances Ashcroft, FRS, PhD
10:30 am
10:45 - 12:00 pm
Break
Breakout Session
Developmental and Educational Needs
Michael Msall, MD
Understanding the Sleep-Monogenic Connection
David Gozal, MD, and Dorit Koren, MD
Tools and Technologies
Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE
12:00 – 1:30 pm
Lunch buffet for all conference attendees, children and families
2:00 pm
What’s Next? – A Panel Discussion
Graeme Bell, PhD
Lou Philipson, MD, PhD, FACP
3:00 pm
Friday Session Adjourns
3:00 - 4:00 pm
MODY Q & A Panel (Optional)
Presented by Kovler Physicians
and those living with MODY
Neonatal Q & A Panel (Optional)
Presented by Kovler physicians and parents
6
Agenda: Friday, July 19
4:00 pm
Child Care Session Closes
4:00 - 5:30 pm
We’re Going to the Zoo - How About You?
Enjoy an afternoon at the Lincoln Park Zoo on your own before the Celebration Dinner. Complimentary entry is provided
into the Zoo and transportation to and from the Hotel. We will
be providing a shuttle from 4:00 pm - 5:30 pm from the Hotel
to Lincoln Park Zoo.
6:00 - 8:30 pm
Celebration Dinner at Wild Things Café at Lincoln Park Zoo
Transportation back to the Marriott Downtown Magnificent
Mile hotel will be provided beginning at 8 pm.
Amenities available throughout the day:
•
•
•
•
Video Diary Session (Open 8 am - 4 pm. By appointment only.)
“Healthy Living,” presented by Walgreens
Sponsor exhibits
Interactive lounges and coffee bar for family interaction
Learn more at KovlerDiabetesCenter.org/BeInspired
7
Agenda: Saturday, July 20
**Continuing Medical Education (CME) at the
University of Chicago demonstrates the University’s
leadership in scientific research and dedication to the
continuing education of physicians, nurses and allied
health professionals.
6:30 - 11:00 am
8:00 - 3:00 pm
9:00 - 12:00 pm
Breakfast on own at the Harvest Restaurant
Located on the 2nd floor of the Marriott. Vouchers will be provided in advance at Conference Registration desk.
**CME and Professional Medical Education Conference is
optional for Family Forum attendees.
Refer to 2013 CME and Monogenic Diabetes Professional
Education Conference Brochure for more details.
NOTE: Children are not permitted to attend.
Optional Activities for Families (no childcare provided)
• Q & A Panels
• Video Diary Session (by appointment only)
• Neuropsychological Assessments (by appointment only)
Learn more online at KovlerDiabetesCenter.org/BeInspired
NOTE: Child care will not be provided. For other familyfriendly options, visit KovlerDiabetesCenter.org/BeInspired.
Monogenic Forum App (For iPhone & iPad only)
For up-to-date information and schedule,
download the Monogenic Forum App.
FREE from the Apple App Store.
8
Faculty & Committee Members
Faculty / Presenters
Royal Society GlaxoSmithKline
Research Professor, Department of Physiology,
Anatomy and Genetics, Oxford, UK
Graeme I. Bell, PhD
Louis Block Distinguished Service Professor
of Medicine and Human Genetics
Director, Diabetes Research and
Training Center (DRTC)
The University of Chicago
Edwin Cook, MD
Professor of Psychiatry
The University of Illinois at Chicago
Siri Atma Greeley, MD, PhD
Instructor of Pediatrics
David Gozal, MD
Professor of Pediatrics
Chair, Department of Pediatrics
Professor of Molecular Medicine
Peninsula Medical School, Exeter,
United Kingdom
Louis H. Philipson, MD, PhD, FACP
Professor of Medicine and Pediatrics
Director, The University of Chicago
Kovler Diabetes Center
Michael Msall, MD
Professor of Pediatrics
Section Chief, Developmental and
Behavioral Pediatrics
Rochelle Naylor, MD
Instructor of Pediatrics
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John Rolland, MD
Clinical Professor of Psychiatry,
Co-Founder, Chicago Center for
Family Health
Neuropsychology
Edward Kraus, Esq
Clinical Professor of Law
IIT Chicago-Kent College of Law
Illinois Institute of Technology
Amy Hess-Fischl,
MS, RD, LDN, BC-ADM, CDE
Program Coordinator, Teen Transitions,
Planning Committee
Terry Becker
Charles Bell
Graeme I. Bell, PhD
Kristy Buhr
Sean Campbell
David Carmody MD
Jazzmyne Dickens
Amy Franze
Siri Atma Greeley, MD, PhD
Jamie Haas
Peggy Hasenauer, MS, RN
Margarita Heinzel
Carla Henault
Jessica Huang MD
Michael and Laurie Jaffe
Rachel Lieberman
Rochelle Naylor, MD
Daphne Ortiz
Louis H. Philipson, MD, PhD, FACP
Sharon Syc, PhD
Travel, Accommodations & Venue
Celebrating Miracles & Milestones is supported
by generous gifts, grants and donations through
the University of Chicago Kovler Diabetes Center.
The conference, program, most meals, family gift
bag, child care, overnight self-parking at hotel,
social events and one nights’ hotel accommodations will be provided.
Venue
Registration
Encounter a renowned Chicago hotel combining the epitome of luxury and convenience at the
Chicago Marriott Downtown Magnificent Mile, a
Windy City landmark. Situated amongst worldclass shopping and dining, this Chicago hotel is
in walking distance of top attractions, including
Navy Pier, American Girl Place, Shedd Aquarium,
Millennium Park and the theater and museum
districts. Enjoy stylish rooms with flat screen TVs,
deluxe bedding and ergonomic furnishings. Depart
from the ordinary and discover a Windy City
hotel destination providing incomparable service
and unprecedented style at the Chicago Marriott
Downtown Magnificent Mile.
The Family Forum Fee is $75 per individual family. All attendees are encouraged to pay online
at the time of registration. If your family needs
to make alternative payment arrangements or
requires financial assistance, please contact Peggy
Hasenauer directly at (773) 412-4171 to discuss
confidentially.
Hotel Accommodations
The University of Chicago Kovler Diabetes
center will cover the cost of accommodations
for families coming from out of town for the
night of Wednesday, July 17, 2013 at the Marriott
Downtown Magnificent Mile For overnight hotel
accommodations for Thursday, July 18, 2013 and
Friday, July 19, 2013, the Kovler Diabetes Center
has reserved a block of hotel rooms at the Marriott
Downtown Magnificent Mile with a special group
rate of $159 per night (standard room rate) and
will be the responsibility of each family attending
the conference.
Any and all incidental charges, tipping, room
service and other hotel room services throughout
your stay in Chicago are also the responsibility of
forum attendees. Guests will be asked for a credit
card upon arrival for incidentals.
To make reservations, please visit
540 North Michigan Avenue
(Driveway entrance on 541 North Rush Street)
Chicago, Illinois 60611
Main Phone: (312) 836-0100 or (800) 228-9290
www.Marriott.com
Parking
If you plan to drive from your home to Chicago,
valet parking is available during the duration of the
Conference July 17 - 20 for a fee and self-park is included at no cost. However, once you have parked
your vehicle you may not leave the garage, as the
voucher does not include in-and-out privileges.
We DO NOT encourage families to rent a car if
flying to Chicago, as public transportation and taxicabs are readily available to and from the Chicago
Marriott Downtown Magnificent Mile. Taxicabs
and public transportation are to be covered by
all attendees independently. The average cost of
a taxicab from Midway or O’Hare to the Chicago
Marriott Downtown Magnificent Mile is approximately $40 USD.
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Lettuce Entertain You Restaurants and Attractions
Lettuce Entertain You Restaurants:
We thank you for your generous support!
Info. and locations at leye.com.
Lettuce Entertain
You Restaurants
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
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Big Bowl
Hub 51
Joe’s Seafood, Prime Steak
& Stone Crab
M Burger
Maggiano’s Little Italy
Chicago Marriott
Nacional 27
Osteria Via Stato
Paris Club
Pizzera Via Stato
Petterino’s
RPM Italian
Scoozi
Shaw’s Crab House
TRU
Water Tower Place
• Foodlife / Foodease
• Mity Nice
• Wow Bao
Wildfire
Attractions
1.
2.
3.
Navy Pier
American Girl Place
Millennium Park
= Restaurants
4.
5.
6.
Field Museum Chicago
Shedd Aquarium
Adler Planetarium
= Walgreens
= Attractions
Map and Directions
Driving Directions
Parking Location
The Chicago Marriott Downtown
Magnificent Mile can be accessed via
all major expressways into Chicago.
Valet parking is available for a fee and
self-park is included at no cost.
If you plan to drive from your home to Chicago,
valet parking is available for a fee and off-site,
self-park is included at no cost. The self-park
lot is located on the northwest corner of the
hotel at 50 East Ohio Street. You may pick up
your parking voucher at Conference Registration desk.
Hotel address:
540 North Michigan Avenue
(Driveway entrance on
541 North Rush Street)
Main Phone: (312) 836-0100
or (800) 228-9290
ChicagoMarriott.com
Row Self Park
50 East Ohio Street
Located Northwest of the Hotel
Additional Resources
• KovlerDiabetesCenter.org
• ChicagoMarriott.com
• ChooseChicago.com
• FlyChicago.com/Ohare/
GroundTransOhare/Ground
• FlyChicago.com/Midway/
GroundTransMidway/Ground
• Leye.com
• Walgreens.com
• AthenaDiagnostics.com
12
Photography, Film & Publicity
Video Diary
A video diary room will be available at the conference where you may
film you or your family’s personal journey with Monogenic/Neonatal
Diabetes. We hope that you will contribute to the video diary, but this opportunity is entirely voluntary. Video diary appointments can be made
during the online registration (KovlerDiabetesCenter.org/BeInspired)
or at the Conference Registration desk during the Family Forum. Filming will take place in a private setting on the fourth floor of the Chicago
Marriott. We will schedule sessions with all families interested in participating. Please indicate on the Registration Form (at KovlerDiabetesCenter.org/BeInspired) if you are interested in participating so that we can
accommodate all families who wish to volunteer.
Photography and Film
We would like to photograph and film some individuals attending particular parts of the meeting. We will only include you and your family if
you are happy to take part. We are thrilled to welcome a documentary
filmmaker at the meeting, who will film some of the event for a documentary about Monogenic Diabetes. Please indicate on the Registration
Form (at KovlerDiabetesCenter.org/BeInspired) if you are interested in
participating. Additional release forms will be available at the meeting.
Publicity
Newspaper, television, radio and other media representatives may be
present and may wish to interview families about Monogenic Diabetes.
Please indicate on the Registration Form (at KovlerDiabetesCenter.org/
BeInspired) if you are interested in participating so that we can accommodate all who wish to volunteer. Media release forms will be available at
event check-in.
13
Child Care
Children of all ages are welcome to attend the conference. If you would like to attend sessions
without your children, you may wish to use the optional child care sessions that we are providing
at no cost. We are happy to take care of children who have diabetes as well as those who do not
have diabetes.
Child care sessions will be managed by our experienced team, including nurses, dieticians, child
life specialists, certified diabetes educators and experienced volunteers. Supervision provided by
our team will include play time, snack time, and organized activities such as board games, coloring, reading, DVDs, etc. Children are also welcome to bring their own toys and personal favorites.
Be sure to label your items or toys properly.
For all child care sessions, the caregiver to child ratios will be: 1:1 for children < 1 year, 1:2 for
children aged 1 – 2 years, 1:3 for 3 –7 years and 1:5 for those > 7 years. Each family will need to
complete the child care registration form. In addition, each child will need to be signed in and
out of these sessions by his/her parent or primary caregiver. After completing and submitting the
online child care form, you will receive a child care consent form in addition to film, photography
and media consent forms. If you have any questions regarding child care, please contact Peggy
Hasenauer at Diabetes@UChospitals.edu or by calling 773.834.4789.
Important Points for Families
• Child care services will be offered on Thursday and Friday, July 18 and 19 from 8:30 am – 4 pm.
• The child care room is located on the third floor of the Chicago Marriott, just down the hall from the
main conference space. Parents are welcome to visit the child care room throughout the day.
• If parents or primary caregivers are leaving the Chicago Marriott building during the conference for
any reason during child care hours, please notify child care staff prior to leaving the Chicago Marriott
and verify contact information.
• Please bring all important contact information with you, including names and phone numbers of your
primary care physician, pediatrician, family practice physician and your local pharmacy.
• We encourage all parents to eat breakfast and lunch with their children on Thursday and Friday in
the main conference space. Gluten-free, low-fat, healthy snacks will be offered to children in the child
care room mid-morning and mid-afternoon unless you specify that your child have his/her
own snacks. (Exact meal and snack menus will be provided to families upon request.)
• We will ONLY check blood sugars or administer medications on an emergency basis. In all other cases,
parents should bring all necessary medications and supplies to the conference and administer blood
sugar checks and/or all medications to children directly.
• We will contact parents for diaper changes as needed, as this is a service we will not be providing. If we
have your permission to escort your child to the bathroom, please include this on the online child care
registration fields.
• Child care will not be provided Wednesday or Friday evenings, but family-friendly activities will be
offered. Complimentary child care will be available on Thursday evening.
• Please ensure that all personal toys, books and games are clearly labeled with the child’s name and
family name.
• We will ask that all children with food allergy wear a special bracelet we design for them.
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Registration
Register online by Friday, June 28, 2013 at
KovlerDiabetesCenter.org/BeInspired
• There is a registration fee of $75 per family.
• The registration fee includes:
Participation in two-day conference with leading international experts
Conference materials
All conference meals
Hotel accommodations on the night of Wednesday, July 17 at the Marriott
Downtown Magnificent Mile for families traveling from out of town
a Admission and transportation to/from the Lincoln Park Zoo
for family dinner
a Complimentary self-park
a Complimentary child care
a
a
a
a
If you have any questions, please contact Peggy Hasenauer at 773-702-2371
or 800-989-6740 or email Diabetes@UChospitals.edu.
Be Inspired. Be An Angel.
T HE UN IVER S ITY OF C HICAG O KOVL ER D IAB ET ES CEN TE R
C EL EB RAT IN G MIRACL ES AN D MIL ES TON ES 2 0 1 3
Kovler Diabetes Center underwrites every family attending the conference by providing meals,
educational materials, speakers and more. At this time we have received an overwhelming
response from families who need financial assistance to attend the conference.
We do not want to turn away families from this conference because of financial strains. We are
looking for “angels” among Kovler’s friends to provide funding so all families can attend.
Angel Crafts
For questions and how to get involved contact
Peggy
TAGLINE GOES
HERE Hasenauer at:
773-702-2371 or Diabetes@UChospitals.edu
Faculty Disclosure
Angel
Crafts to ensure balance,Angel
Crafts objectivity, and scientific rigor
It is the policy of the University
of Chicago
independence,
TAGLINE GOES HERE
TAGLINE GOES HERE
in all its individually sponsored or jointly sponsored educational activities. Individuals who are in a position
to control the content of this educational activity
are Crafts
required to disclose all relevant financial relationships
Angel
TAGLINE GOES HERE
with any commercial interest related to the subject
matter of the educational activity. Mechanisms to ensure
that presentations are free from commercial bias are in place. Faculty will also disclose any off-label and/or
investigational use of pharmaceuticals or instruments discussed in their presentation. Full disclosure of this
information will be published in the activity materials.
15
Angel Crafts
TAGLINE GOES HERE
Sponsorship
Zellmer Family
Foundation
We gratefully acknowledge our friends who have generously supported
Celebrating Miracles and Milestones: 2013 Monogenic Diabetes Family Forum.
Dr. Graeme Bell
John McDonough and Family
Harry and Ady Rosenberg
Gary and Adrienne Eizenga
The Shannon Family
The Segal Family
Tim and Deb Gardner
Dr. Donald F. Steiner
The Abt Family
The Jaffe Family
Harry and Amy Franze
Jeffrey Galowich
Kovler Family Foundation
Michael and Cari Sacks
The Litowitz Family
The Nesci Family
Interested in Becoming a Sponsor?
The Kovler Diabetes Center invites attendees to consider making a personal or
corporate philanthropic contribution. Your generous donation could help sponsor
a family that otherwise would not be able to attend, or your support could help
underwrite some of the expenses of the Forum. Donors may decide how their contribution is allocated and whether or not they would like to stay anonymous. Please
contact Peggy Hasenauer at 773.702.2371 or 800.989.6740 or Diabetes@UChospitals.edu to discuss your contribution. Thank you in advance for your generosity!
16
Testimonials
“
People from around the world, with various backgrounds and experiences,
are now connected. There is a lot of synergy among the families and scientists.
We’re inspired, and the momentum will only increase as we work together
to help others celebrate miracles like ours.
“
17
- Laurie Jaffe
It’s like we’re in a laboratory; we’re all learning together.
- Siri Greeley MD, PhD
“
“
Kovler Mission & Vision
Caring for individuals with diabetes throughout their lifespan—from infants
to adults—is our mission at The University of Chicago Kovler Diabetes
Center. We pursue our mission through the following:
Diagnosis
Comprehensive, complete and accurate diagnosis, including genetic
testing capabilities.
Treatment
Each treatment plan is highly individualized to meet each patient’s
specific needs. We use the most effective and innovative medications and
technologies to stabilize blood sugar and minimize long-term complications.
Complications
Our multidisciplinary approach addresses the many ways that diabetes can
affect a person’s physical and emotional well-being.
Prevention
Preventing diabetes before it begins is the most effective intervention.
Research programs at the Kovler Diabetes Center target people at high risk
for diabetes, including African-Americans and Hispanics.
Education
Through one-on-one training and group classes recognized by the American
Diabetes Association, we teach all our patients about everything from
monitoring blood glucose, to healthy eating, to using insulin pumps and
glucose meters.
kovlerdiabetescenter.org
monogenicdiabetes.org
facebook.com/kovler.diabetes.center
twitter.com/kovlerdiabetes
kovlerdaily.com
18
MIRACLES&MILESTONES
C E L E B R AT I N G
BE INSPIRED
and
andmany
manyothers
others
who
whowish
wishtotoremain
remain
anonymous
anonymous
Thank
ThankYou!
You!
REGISTER ONLINE AT
KOVLERDIABETESCENTER.ORG/BEINSPIRED
900 East 57th Street
8th Floor, Room 8144
We
Wesincerely
sincerelythank
thank
all
allofofour
oursponsors
sponsors
who
whohelped
helpedmake
makethis
this
dream
a
reality.
dream a reality.
the
theJaffe
Jaffefamily
family
the
theEizenga
Eizengafamily
family
athena
athenadiagnostics
diagnostics

be inspired - Kovler Diabetes Center

Transcription

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