Email_Speakup CIC winter newsletter6.12.15.pub
Transcription
Email_Speakup CIC winter newsletter6.12.15.pub
SpeakUpCIC Winter Newsletter 2015 Registered CIC no. 7530955 Inside this issue: A Wa rm wel come Page 3 LGBT BBQ Da y ...Trip to Bri ghton Rememberi ng Clai re Page 4-5 Your Stories and other a r"cles sent in Page 6-7 Coping wi th Christmas—Sa ndwich LGBT Group –La unch if Cli &onville Project Page 8-9 Wha t we a re funded to do ..New Volunteer .—Upda te Dover and Deal Page 10-11 Folk Week 2014 Page 11-12 Da y tri p to Has"ngs Page 12 13 Purs uit to Sta ying Content Page 14 –15 Upda te on Ashford Forum—Crea "ve wri"ng Page 16-17 Views from members— Folk Week—Lets Talk conference Page 18-19 Servi ce User Conference Page 20-21 Tips when feeling low— LGBT Group—World Mental Heal th Da y Page 22-23 SNEAK PEAK—GAY PRIDE—BIPOLAR GROUP Page 24-25 Poetry from our members Page –26-27 Remembering Claire –Fledgling websi te—Grea ter Pa "ent Power –Poem Page 28 –29 Musi c Group—Poem Page 30 –31 Milestones—Poem Page 32=33 Wha t's on in Thanet, Dover, Deal and Ashford Page 34 –35 2 A warm welcome! Welcomeoneandalltoyour Winter2015 newsletter! Hello and welcome to this bumper Christmas edition of the SpeakUpCIC newsletter put together by all of our members who have taken part in our forums and activities this year. While Christmas can be a challenging time for some of us we hope you find something to uplift you and smile about in this edition with articles, stories, reports and poetry written by many of you. In the last 6 months we have had moments of both joy and sadness with the passing of one of our valued and treasured volunteers, Claire Hughes, and the unfortunate hospitalisation of much loved member Delyth Andrews who remains in a critical condition at a London hospital at time of writing. On a more joyful note we have had a number of outings and trips to events and conferences including the Let’s Talk Conference held by Kent and Medway NHS and social care Partnership Trust (KMPT), local LGBT barbeque in Cliftonville in partnership with the Garden Gate, Brighton Pride, Margate Pride, forum events at Folk Week in Broadstairs and a forum trip to Hastings. See inside for more details. We always welcome your comments and involvement with our newsletter as with all aspects of our work so if you have any feedback for us good or bad please feel free to email Maggie@speakupcic.co.uk. As ever you are welcome to join in any of the activities and forums you see advertised and if you would like any more information about these and how you can get involved then please contact admin@speakupcic.co.uk. So we wish you a very Merry Christmas and Happy New Year 2016 and we look forward to seeing you in the New Year The User Forum Team Would like to thank everyone that has supported the forum this year and we would like to wish everyone a very Happy and Peaceful Christmas and we look forward to seeing you in the New Year. Maggie Gallant 3 LBGT BBQ DAY SpeakUpCIC organised a LGBTIQ BBQ held at the Garden Gate Project, Cliftonville at the beginning of September Members from Ashford and Dover/Deal joined us for the day and, I think it’s fair to say, that a great day was had by all. The Garden Gate Project put on a fantastic spread for us, beautiful pizzas from their pizza oven and salads from their garden. Everyone at SpeakUpCIC would like to extend a special word of ‘thanks’ to Paul and the entire team at the Garden Gate Project for having us and making us feel welcome for this. We hope to have another event next year Great day with a lovely bunch of people - thanks Speak Up CIC for all you do to bring people together and what a beautiful setting, Fiona 4 SpeakUpCICLGBTIQ threeLGBTpeoplewillexperiencementalhealthisForum’sTripto suesandhalfthegaypopulationhasconsideredsuicide. Brighton'sLGBTmentalhealthproject,MindOut,had avintagegreenbusintheparadeanditwaslovelyto seetheirdirector,Helen,again.Butforme,themost touchingsitesintheCommunityParadewereawombyIanCarter-Chapman anwearingatee-shirtemblazonedwith"MydaughterisalesbianandI'mproudofher"andthe92-year -oldGeorgeMontague,theself-proclaimed"oldest Becomingawarethatyou'redifferent,thatyou're gayinthevillage"withhis husband-togetherfor20 attractedtoothersofthesamegender,acceptingthat yearsandjustmarried. factyourselfletalonetellingotherscanamounttoa dauntingexperience.Addtothatbeingsurrounded Post-parade,someofusstrolledalongBrightonPier, everydaybyheterosexualimages-tv,posters,maga- othersattendedthefabulousfestivitiesinPreston Parkormetupwithrelativeswhilesometooktothe zines,#ilm,internet-anditcanalsobeanisolating skiesaboardtheBrightonWheel.Whereveryou experience. wentinthecity,rainbow#lagsaboundedandahapSoitwaswhenIattendedmy#irstLesbian,Gay,Bi py,acceptingandcelebratingatmosphereprevailed, andTrans(LGBT)Prideadec adeago thatIwasal"gay"ineverysenseoftheword. mostoverwhelmedbyasenseoftogetherness,hapAhugethank -youtoMaggieandAmandaformaking pinessandwellbeing.IwasremindedofthesefeelingswhenIclimbedofftheminibusthathadbrought thetrippossibleandtoDavidforallhispatient assistancewiththeschedule.Thelastwordmustgo,how14ofusfromtheSpeakUpCICThanet andAshford LGBTForumstoBrightonandHove's25thPrideon ever,tooneofthepeopleonourtripwhotextedme thankingusandsayingthatit hadmadehimforget Saturday,1stAugust. howdownhe'dbeenfeeling-thatsaysitallabout WejoinedthousandsofotherLGBTpeople,their ourtriptoBrighton&HovePride friendsandfamilies,arecord-breakingnumberin fact,aswewaitedfortheCommunityParadetocommenceits'routefromHoveseafronttoPrestonPark- andwaitedandwaited!Wewereunawarethata bombhoaxhadbeenperpetrated,asuspiciouspackagediscoveredbyastewardbythebandstandand theParadehadbeendelayedby90minutesthendiverted.Awarningifevertherewasonethathomophobia,bi-phobiaandtrans-phobiaisstillpresentin ourlives,someonewantedtodisrupttheParadeand almostsucceeded. Brighton&Hove Pride2015 Itwaswellworththewait.Thisyear'sthemewas CarnivalofDiversityanditwasallthatand more.Butalongsidethecolourful#lamboyanceofthe #loats,thetoe-tappingrhythmsofthemusicand bands,thedazzlingdragandcelebrationofallthings LGBTweresomeimportantmessages-thereisstill thedeathpenaltyforhomosexualityincountrieslike SomaliaandNigeria,andclosertohomeinNorthern Ireland,thereremainslegalinequality.Aquiltbearingthenamesofthosewhohadn'tmadethejourney, thoselosttosuicide,wasastarkreminderthatonein 5 SHOUT,SCREAM,LETITOUT. Whattodowhenthesunisnot shininginyourworldbutisbeautifullybrightoutside? Don’tstayin! Nomatterhowhardtheeffortfeels,goout. Standyourground.SHOUT/SCREAMleaveyourtroublesandget yourselfOUT. Watchthesungodown,buryyourtroublesforawhile.TheNewSun tomorrowcouldbeshiningJUSTFORYOU. I si t and think of mental heal th, DepressionI And wonder what to wri te. Ihavefounddepressionmore seriousthanaphysicaloperation. Thelatterisusually‘doneand dusted’butdepressionre-occurssometimes outoftheblue,butmoreoftenasareaction toaneventoraperson.Usuallyitpasses afteraperiodoftime,althoughsometimes onewondersifitwillevergo.AttheendIsay tomyselfitwillneverreturnnowbutitdoes; itissodebilitatingandonebecomespassive andthefutureis‘black’.Lifeceases,and everydaylifebecomesaburdenand impossibility.Professionalhelpandtablets canbeoneexitroute.Ifanexpertcancure depressionthenthatpersonisagenius.Can anyonesuggestlesseningitsseverity? Imaginethesufferingthatcouldbeavoided. For content of the brain is wealth, Wi thout the need to fight. My thoughts begin to flow a t last, But subject ma=er’s thin, I, Jus t got them down – they move so fas t, But all wi thin my skin. Emo"ons a re connected too, Tha t’s something more to tra ck, A feeling of success will do, A hunch is coming back. It’s good to be inside a room, Jus t come inside, forget the doom, If you have anything to say, poems to share, or some other contribution for future newsletters we would love to hear from you! Beca use – all ’s in the mind. You could be featuring in our spring newsletter! By Please send anything you want to share to admin@speakupcic.co.uk or send it in to the Media Centre, 11-13 Kings Street, Media Centre, Margate, Kent, CT9 1AD 01843 609359 Where everybody’s so kind, Keith 6 AmandaandSpeakUpCICfundraiseforMacMilllan ThisyearAmandatookupthechallengefromMacMillanCancerCareCharitytogosoberforthemonthofOctobertoraisefundstohelppeople#ightingCancer.Boasting thatshewasaSOBERHERO,membersoftheSpeakUpCICforumschallengedherto dress-upasasuperheroif£100wasraised.Truetoformtheforumscontributedand Amandaquicklyraisedthisamountandwentontosurpassitwithatotalof£233goingtothisworthwhilecause.SoaBIGthankyougoestoallwhocontributedtomaking adifferencetothosesufferingwithCancer.Welldone!!! Mental Health Support for Women i) CASS (Conf idential Anon ymous Self In jury Sup port) is a helpline offering emotional support, listening and signposting for women of any age affected by self injury, their carers, friends and families. The service is free from all UK landlines and mobiles. Call 0808 800 8088 Monday to Friday EVENINGS from 7-10pm and Thursday AFTERNOONS from 3-6pm. For more information visit http://www,selfinjurysupport.org.uk 7 M ental health is just as important as physical health over this festive season. "For many, this is a time of joy and celebration with friends and family but for others it may be a time of sadness or anxiety caused by the loss or illness of a loved one, financial hardship or pressure. Looking after our mental health is one seasonal gift we can all give both to others and ourselves. "We know that one in four people in will be affected by mental ill health at some time in their lives, and that many know of a loved one, colleague or friend who experiences mental health problems. "The festive period makes no exception and for some their difficulties may be heightened. Stress, worry, financial pressures and depression can have an impact at this time of year and it is important to remember to look after your own mental well-being and that of others. "One of the simplest messages is to be aware. Some may be feeling sadness, stress, tension or loneliness. M any may feel alone and lonely themselves or at a loss as to how to help others. You might be able to make things a little easier by just being there to listen and talk and maybe visit people you know who may be vulnerable. "There are many local and national health professionals, help lines and other support services which can help. Friends, family members, neighbours and colleagues are often the people we turn to most often to talk bout our concerns. Please be aware of your mental health around Christmas and New Year and be aware of the mental health of those around you." Some basic advice for mental health at this time of year is: • Ask for help - don't be afraid to ask for help or accept it • Be active - physical activity can help your mental well-being • Be with people - keep communicating and interacting, and perhaps tell those you trust as to how you are feeling • Try to relax - balance responsibilities and work with recreation and leisure activities • Be sensible around alcohol - alcohol can act as a depressant When trying to help others: respond to requests for help, listen without judgement, encourage contacting skilled professionals and be aware of behaviour or attitude change and those who may need support "We appreciate that many people find Christmas a difficult time to cope with. Although most surgeries will be closed on the public holidays over Christmas and New Year, there is always someone on call to help. If you foresee problems for yourself or a loved one, don't be afraid to ask your practice for advice." Please see useful telephone help lines include Samaritans:...Tel;08457909090 Email;jo@samaritans.org Web;www.samaritans.org MentalHealthMatters;Tel;08001070160 KMPTSinglePointofAccess;Tel;0300222 0123 ParentLine;Tel;08088002222 ChildLine;Tel;08001111 VictimSupport;Tel;08081689111 DomesticAbuseHelpline;Tel;08082000247 8 A SANDWICH LGBTIQ FORUM Afteranunfortunatepostponementlastmonth,owingtothecessationoftrainservicesfollowinganaccident,SpeakUpCIC'sSandwichLGBTIQForumwas#inallylaunchedon9thNovember. Thanet'sLGBTIQForum#irstmetin1993anditwasgreattobeabletoexpandthissuccessful grouptoanotherareaofEastKent.Ourinitialvenue,theBeachHutCafé inStrandStreet,could nothavebeenmorewelcominganditwasgreattomeetnewmembersStuartandJenny,aswell ascatchingupwithMathew,MaggieandDavid.Hopefully,thismonthlygroupwillprovetobea popularrendezvousforLGBTIQpeoplefacing mentalhealthchallengesandwhoareunable totraveltoThanet,helpingtoreducefeelings ofisolationandpromotingfriendshipand wellbeing. NewLGBTIQmembersarealwaysverywelcome,pleasecontacttheSpeakUpCICof#icefor furtherdetails.Thisgroupmeetsoncea month ByIanCarterChapman. Launch of the Cliftonville Project OnJuly29ththisyearwelaunchedournew serviceinCliftonvillewiththehelpoffundingfromthePeople’sHealthTrust.The LaunchwasheldatStPaul’sCommunity Centreandinvolvedthelocalcommunityin advertisingournewservice.Localpeoplecame alongandfoundouthowtheycouldbeinvolvedin thenewserviceandasaresultofthisanewMusic GroupandaTeaandChatDrop-inwereformedin thearea.Ournewdevelopmentworkerinthis areaisKayandwewouldliketoextendawarm welcometohertoSpeakUpCIC. 9 Whatwe’refundedtodo WhatSpeakUpCICDo SpeakUpCICServiceUsers’ForumService SpeakUpCICarefundedbythelocalauthority,KentCountyCouncil,toruntheServiceUsers’ForuminAshford,Dover,DealandThanet.Todothis,weholdregularmeetingsinallareastomeet withlocalserviceusers,listentoanyissuesthattheymayhave,andtakethemforwardtotheappropriateperson.Wealsoregularlyattendmeetings,beitstatutorymeetings,meetingswiththe KentandMedwayPartnershipTrust(TheNHSMentalHealthTrustforKentandMedway)or meetingsthatwehavesetupwithkeypersonssuchasyourlocalMemberofParliament.Atthese meetingswetakeyourissuesforwardand#ightforaresolution. Weareasmallteam,withonlythreestaffmembers,and,unfortunately,wearenotalwaysableto helpyouwithyourcomplaintorissues.Wewillendeavourtodoeverythingthatweareabletodo tohelpyou,butthisissometimesnotenough.Wehavebuiltupaverystrongnetworkwithother localservicesthatmaybeabletohelpyouand,ifwecannothelpyou,wewillbehappytotalkto youabouttheotheroptionsthatareavailable,andifyouwouldlike,wewouldbehappytorefer youtotheseservices. IfyouwouldliketogetinvolvedwiththeServiceUsers’Foruminyourarea,pleasedogetin touchwithusatourof#iceon01843609359oremailAmanda–amanda@speakupcic.co.ukMaggie–maggie@speakupcic.co.ukorDavid–admin@speakupcic.co.ukandwe’llbehappytohelpin anywaythatwecan.Informationaboutwherewemeetinyourlocalarea,andwhen,canbe foundatthebackofthisnewsletter.Butifyouwouldliketotalktousaboutit,pleasedon’thesitatetocontactus,we’dlovetohearfromyou. Hello,mynameisNickLaw.HavinglivedinThanetmywholelifeI’malltooawareofthe problemsthatexistwithinthearea;namelytheseverepoverty,lackofmentalhealthservicesandlimitedchanc esforpeopletobetterthems elves. I#irstcametoSpeakUpCICbackin2013immediatelyaft erbeingdiagnosedwithanxiety anddepression.Whilsteveryonewaswarmandfriendly,Iwasalittlebitoverwhelmed andsowasreluctanttoembracetheopportunity.IregretthatIdidn’t.Sinc ecomingback inOctobertovolunteerI’vereallyenjoyedmyself,gottoknowsomefantasticpeopleand foundanewsenseofpurposeinmylife. AsyoumaybeawareIknowoneparticularmemberofSpeakUpCICverywellindeed.I wenttoschoolwithDavidatChathamHouseinRamsgateandwe’vebeenclosefriends eversince.Hishelpduringdif#iculttimeshas beeninvaluableandI’msurehe’sbeenas supportivetoyouashehasbeentome. I’dliketothank everyoneforbeingsokindandwelcomingand I’malreadylookingforwardtowhat2016hasinstore! 10 UpdateforDoverandDeal Overthelastquarterwehavebeenbusyin DoverandDeal.Wehaveanewvolunteer Sarah,whohasbecomeinvolvedinthe LGBTIQgroupinSandwichandislookingto growthegroupfurthera#ield.Sarahhas beeninvolvedwithmanyofourLGBTIQ activitiesinthearea,includingtheLGBTIQ barbequeattheGardenGateinCliftonville, MargatePrideandBrightonPride.Sarahis alsokeentostartanartgroupinDoversoifyouareinterestedingettinginvolvedintheart grouporLGBTIQactivitiespleasedocontactmeAmanda@speakupcic.co.uk.Wehavebeen feedingbackyourviewsintheareatothelocalMentalHealthActionGroupwhereouradmin DavidRowdenhasbeenchairingthemeetingandworkingwithServiceUsersandManagersto ironoutanyproblemsyouhavehad. TracyCarrfromtheindependentTalkitOutgroupinDeal,whereSpeakUpCICholdan independentforumintheevening,hastakenupthepostofMayoressofDealandhasbeen workingwithlocalMPCharlieElphiketoimprovethechoiceofservicesavailablelocally.Tracy spentadayinLondonvisitingParliamentwithMPCharlieElphikeandtalkingtoAlistairBurt MP,MinisterofStateforCommunityandSocialCarewhoseresponsibilitiesincludeMental Health,alongsidePaulFarmerCEOofMind.Tracyreportsthataverystimulatingandproductive meetingtookplacewherebyshewasablethespotlighttheneedformorelocalservicesinDeal. ThiswasahugepersonalachievementforTracyandwasalsoawonderfulcampaigning opportunityandwewouldliketocongratulateTracyonherachievements. TheforumsattheMCCHdaycentresandTalkitOutgroupmeetingcontinuetocampaignfor morefundingformentalhealthsoifyoufeelpassionatelyaboutserviceslocallyandwouldliketo getinvolvedwewouldwelcomeyourinput.PleasecontactAmanda@speakupcic.co.uk. WewillberestructuringservicesinDoverandDealandlookingatmoreeveningforums, differentdaysoftheweekanddifferentvenues.Soifyouwouldliketogetinvolvedpleasedon’t hesitatetocontactus. 11 Day trip to Hastings Expert Pa*ents Programme WeallsetoffforHastingsonalovelysunny dayinthemini-bus.WecalledinatDover ResourceHousetopickupmembersonthe way,wehadafullcomplimentofpeople. Throughbeautifulcountrysidewearrivedin Hastingsaboutmiddayandwentindifferent groups.Wesawthepierwhichwasnearing completionandtheseafrontwasuplifting withcolourfulfaçades.Anothergroupwent totheaquariumandreportedthattheyhada wonderfultime.TherewasplentyofHastingsRock,IceCreamandtrinketsbought. WedivedintotheFishandChipshopand munchedaway.Weleft(reluctantly)and wenttotheoldtown. Mazza,PavandIwenttoaquaintcaféwith ef#icientservicebyahandsomeyoung man.Webumpedintoothermemberswalkingthroughtheoldtownhavingtea. Timeup!Wereturnedvia“OperationStack” toMargate..Afundaywashadbyoneand all. TheExpertPatient’s Programmeisasix weekcourse;runbytheNHS,designedtohelpsuffers oflong-termhealthconditionstoself-managetheir symptoms.Thecourseprovidesanopportunityfor peopletodiscusstheirownhealthissues,whether theybephysicalorpsychological,inacalmandnonjudgementalenvironment.Eachsessionlastsaround twoandahalfhoursandinvolvescarryingavarietyof groupactivities.Everyparticipantisalsogivenabook #illedwithusefulinformationonarangeoftipsand ideastoimprovetheiroverallhealth.Thetutorswho runthecourseencourageeachparticipanttovoice theirownviewsandtoworktogetherinorderto#ind solutionstotheirhealthissues. FromapersonalpointofviewIfoundthecoursevery bene#icial.Thetechniquestheytaught,suchasbody scanmeditation,wereveryusefulinreducingmy overallanxietyfromwhichIsometime ssuffer.I’drecommendthecoursetoanyonewhohastodealwitha long-termhealthcondition.ByNicknLaw 12 What’sbeenhappeninginAshfordthisyear PeggyValentine-CarrfromSOBS(Survivorsof BereavementbySuicide)cametotalktothegroupin Ashford.PeggyJoinedusattheAshfordpeersupport groupandexplainedtousthat SOBS (Survi vors Of Berea vement by Suici de) is a sel f-help, volunta ry organisa"on helping those who ha ve been berea ved or a ffected by sui cide. If you ha ve been berea ved or a ffected by sui cide a t any point, there is help a vailable and you do not ha ve to be alone. SOBS servi ces can be a ccessed as o&en and for as long as you need them. It doesn’t ma =er how long it has been since your berea vement happened or what your rela"onship was wi th the person who died. If you feel you ha ve been a ffected by a sui cide and you would like to talk about i t, SOBS (Survi vors Of Berea vement by Sui cide) a re there. Please conta ct thei r Na"onal Helpline on 0300 111 5065 9am to 9pm every da y. SummerGardenPartyatLiveitWell WinterWonderlandattheLiveitWell SpeakupCIC user forum joined in thefunattheliveitwell centreinAshfordKent.Therewerereallivereindeersatthe event,lotsofthingstodoforallthefamilyincludingSanta's grotto,Christmastreesale,tombola,raf#leandmuchmore. BigThankyoutoourvolunteerswhosupportedusonthe dayandabigthankyoutoLukefordecoratingournoticeboard,itlookedgreat.,withtinsel,reindeersandlotsoflights.Wehadlots ofcommentsonthedayathowlovelyit looked.Daisymadeapresencedressedin herSantaout#it. Who’sthebestdressedsanta? 13 WinterupdatefromtheAshfordForum Well,Well,Well!It’sbusytimesafootandit’s nodifferentattheForumandPeerSupport ServiceinAshfordwherewehavebeen meetingupregularlyeveryTuesdayfor activitiesandforumevents.Duringthelast quarterwehavebeenholdingforumsatthe LiveitWellcentrewherewehavehad speakersfromEKHUFTandAdultEducation aswellastakingforwardissuestotheMental HealthActionGroupandPatients ParticipationGroupwithKMPT.AstheCochairoftheMentalHealthActionGroupI havebeenorganisingandfacilitatingthe WorkingGroupwherewecampaignedforthe openingofaCrisisCafélocally.Manyofyou locallyinAshfordhavebeeninvolvedinthisprocessandI’mpleasedtoreportthatwehavebeen successfulindrivingforwardthisprojectandthattheCrisisCafé openedattheHouseattheStour CentreinOctober.ItopenseveryweekendonaFridayandSaturdayeveningbetween6.30pmand 9.45pmandisrunbyMaidstoneandMid-KentMind. Itisalwaysveryhearteningwhenyouseethatyourvoicemakesadifferencetopeopleandtheir livessoaveryBigwelldonetoallofyouwhowereinvolvedinmakingithappen.Alreadyinthe onemonthithasopenedover43peoplehavebeenhelped,somethroughacrisisandsomewith supportandinformation.Wearecurrentlylookingforyourideasandthoughtsastowhatwe shoulddonextintheworkinggroupatthemhagsoifyouhaveanyideaspleasedogetincontact withmeAmanda@speakupcic.co.ukorcomealongtoyournextlocalMHAGonthe14thJanuaryto beheldatStStephen’sPrimaryHealthCareCentre,StStephen’sWalk,Ashford,Kent.TN235AQ. So,tothinkaboutthePeerSupportGroupswehavebeenholdinginAshfordwehavemovedout oftheGatewayandnowhaveourweeklydrop-inattheByTheTankCaféwhereavarietyoftopics havebeendiscussedfromcomplaintsaboutthecounciltoServiceUserIssueswithservices additionallysomeofyouhavefoundsupportwithpersonalissueswhilehavingsomethingtoeat anddrink.WehavealsobeenmeetingmonthlyintheCreativeCollectiveartgallerywherewe havebeenworkinginpartnershipwithAdultEducationservicestoprovideanintroductionto MindfulnessandacourseinCon#idenceandAssertivenesstraining.AttheJoeFaggCentrein AshfordwehavealsobeenmeetingweeklyinthemorningwhereIhavebeenfacilitatingtheart Therapygroupandthepositivewaysoflookingatdepressiongroup.Davidhasalsobeencoming toAshfordtofacilitatethecreativewritinggroup.Allthesegroupsyouhavereportedtohave foundveryusefulandifyouorsomeoneyouknowcouldbene#itthenpleasedocontactme Amanda@speakupcic.co.uk. IwouldliketotakethisopportunityalsotothankHeatherConnollywhohasbeenvolunteering andco-facilitatingthegroupswithmeinAshfordandhasdoneaverygoodjob.Heatheris currentlystudyingpsychologyatUniversityandspent somemonthsgainingexperiencealongsidemeherein Ashford.SowelldoneandgoodluckHeather. WehavehadanumberofoutingswiththeAshford forumincludingatriptoBrightonPride,theLGBT barbequeheldattheGardenGateinCliftonville, Hastings,MargatePrideandatriptoMaidstonetohear fromKMPTattheirLet’sTalkConference. 14 Thanet Creative Writing Group TheTh anetandAshfordCreativeWritingGroupshavebeenworkingtowardscreatingananthologyofstories andpoemstoeventuallyb epublishedandd istributed.TheTh anetGroupcreatedashortstoryaboutt he magicofChristmasforyoutoenjoy! The Christmas Locket By Jessica Rolan, Hazel Malik, David Dixon and David Chitty. gloved hands, and Bert expected the child to leave. To his surprise, the boy lingered. Thank you, Santa,” he squeaked. “But I have a present for you, too.” With wide eyes and a It had been three years since the passing of grin on his face, the boy handed a small his wife, and Bert was as miserable as sin. It wrapped box to Bert. Before he could refuse, was Christmas, and this was always the hard- the boy was gone. est time; she loved Christmas. After losing his Christmas morning came; no stocking hangjob, Bert was desperate for cash, so the proming on the mantelpiece, no joy in his heart. All ise of cash-in-hand work was too good to bitterness had turned to sorrow. Bert rolled pass. Bert would have to be Santa. Every over in his bed and sighed, when he noticed bone in his body rebelled, the thought of the small wrapped box on his wife’s pillow. He screaming children, a heavy suit, an itchy was certain he had left it in his Santa suit! beard@ but the situation was dire, and Bert Bert’s curiosity got the better of him and, with needed money. shaking hands, he opened the gift. He sat up His mind was drawn back to Christmas five as he ripped the paper, and as he lifted the lid years ago, seeing the gold locket glint in the shop window. His wife was ecstatic at the gift. It had been lost since her death, but the memory of her joy at the locket only brought him sorrow. So Bert put on his heavy suit and itchy beard and braced himself for the screaming children. of the box, his heart skipped a beat. inside lay his wife’s locket. Bert flicked open the clasp, and saw, through misty eyes, the picture of them both on their wedding day. On the other side, an etching simply saying ‘I miss you.’ He felt a shift in the bed behind him and a soft The queue never seemed to relent. A hundred hand upon his shoulder. children later and Bert was running out of the Bert tenderly took the hand in his, “I miss you cheap plastic Slinkys, when a young boy aptoo.” peared and waited to sit on his knee. Bert couldn’t recall if he’d been in the queue at all. But the boy smiled and held out his hand for a present. The last Slinky was placed in his 15 Update from Thanet Forums We have been working a great deal in the Thanet area since our last update. We are continuing to work with the local MHAG to help bring your views forward and try and gain a resolution, not just for you, but to try and affect the system that has caused the issue. David, SpeakUpCIC’s admin, and one of our volunteers, Brian, are the chairs for this local meeting and take the issues that are raised forward to the County Mental Health Action Group. Through the Thanet MHAG, a Working Group has formed to work towards setting up a Crisis Café or Crisis House in the Thanet area. This will hope to alleviate some of the pressures on secondary services and A&E by supporting people at their time of need, speci#ically after hours (Friday nights and weekends) where the majority of services are no longer accessible. We’ll keep you updated about this as it develops, if you would like to be involved or have your say, please contact us on admin@speakupcic.co.uk Our service users’ Forum continues to be a great platform for local people to raise their issues with us and receive feedback on these issues. It is also a platform for us to keep you informed about local news or developments, other meetings, such as the MHAG or PCC, that give you another opportunity to raise your issues. We are also looking at developing and growing the Forum to include evening Forums and perhaps adding more Forums to our roster to ensure that we are capturing as many service user issues as we can. Our groups continue to grow and develop in the Thanet area. We have restarted our relaxation group due to popular demand and will be starting this in the January time. We have also started up a photography group and restarted our computer workshop group for people struggling with the technology or for those who would like to improve their skills. Walk and Talk, by Les Many a mountaineer will tell you that they started just going for a walk. Then the feeling of wellbeing made them want to do more. And, as the walks got longer and the hills got steeper, the immense sense of achievement eventually propelled them to the foot of a mountain. Mental illness can be overcome in the same way; simply by going for a walk, gradually increasing he distance until the feeling of wellbeing leads you into other activities and the snowball effect continues. o if you want to give it a try, come and join the walk and talk group at 1.00 pm on Tuesdays, meet at the Margate Clock Tower 16 VolunteeringwithSpeakUpCICbyHeather norm. I think it’s heartening that people can #ind that space with SpeakUpCIC, especially when they might not have found it elsewhere. I have been blessed to get to volunteer with all of you at SpeakUpCIC. I hoped maybe I’d be able to help you out but you’ve all helped me out so much too, by being so welcoming and kind. I’ve studied two years worth of psychology at university, which I love, but I’m aware the mental health system is far from perfect and a stigma de#initely still remains around mental health. I’ve been so inspired to see the way you work to challenge these problems and make sure everyone gets the respect and care they deserve. If I work in mental health in the future I’ll be sure to remember all of you and all the stories I’ve heard and use these to do the best job I can. SpeakUpCIC has given me so many opportunities from the trip to Brighton Pride, to mindfulness, to art group and creative writing. The ongoing feeling I got through all of these, was that a safe and kind space can be created anywhere when people have their voice heard and their personality, dif#iculties and quirks accepted. Such simple values but they’re not always the I am incredibly grateful for the way you have let me join you. I know how hard it is to let a stranger into your space, especially when you’re talking about your personal experiences and journeys and I feel honoured that some of you have told me how you enjoyed having me and even that I inspired you. You have all inspired me with the way you support each other and never give up. When I’m struggling for motivation to study at university I will remember the determination I have seen in all of you and keep going. I hope to see you all soon and I thank you for how much you’ve taught me, especially how to believe in myself the way I’ve come to believe in all of you. I hope you all keep doing what you’re doing, you’re doing a great job. Makenewfriends,shareexperience,helpyourselfandothers! OuractivitiesandservicesruninThanet, Dover&Deal,Ashfordandtherearemany waysthatservicesusersandex-services userscanbecomeinvolvedwithus,you couldbeattendingaforummeeting,contributingnewsviewsandpersonalarticles toournewsletter,Facebookpagewebsite tobecomingauserforumrepresentative andattending(withsupport)localstatutoryandnon-statutorymeetings.Ourvolunteersevenbecomeinvolvedinlocalandnationalcampaignsforissuessurrounding mentalillhealth. Ifyouwouldliketobecomeinvolvedasa forummember,joinagrouporworkasa volunteerwithaspeci#icroleandfunction downloadourApplicationformonline at www.speakupcic.co.uk orgiveus aringon:01843 609359. We'dlove 01843448384 tohearfromyou! 17 Views from our Members! I was going through a bad time with my depression and I did not feel like I want to do anything . My flat was in a mess, washing up was left, bags all over the floor of the living room and kitchen and I didn’t wash the basin in the bathroom. The bedroom is full of bags and other rubbish. I have managed to tidy 3 rooms but I am going to tackle the bedroom soon. SpeakUpCIC are giving me a lot of support and encouragement so I am able to get on with it. Today I was going through a bad depression, but I came to the forum to cheer myself up. I am supposed to go on the computer at the library but I cannot concentrate today, I hope to go SpeakUpCIC are always there for all their members. WHATSPEAKUPCICGIVESME. For the first time in my life I am ACCEPTED. I have friends who care who I can speak to, they understand me. They don’t make me feel judged, I feel helped and supported. I wonder, how did I cope beforehand? I now have access to a wide variety of activities all of which are life enhancing. I can’t envisage my life without SpeakUpCIC. SpeakUpCIC is like a happy family – a group of people with different mental problems but coming together under one roof trying to help each other. THANK YOU getting new ideas and sharing interests. You might feel ‘down’ but activity can lift your spirits – ‘Creative writing’ Music Appreciation’ and the weekly Monday Don’t “bottle it up” instead “SpeakUpCIC” Forum for example. I don’t know what I would do without SpeakUpCIC. Many a problem shared is a problem halved. thanks go to theSpeakUpCICteam. We are all in it together – never alone. There are many clubs to suit all tastes, MondayGroupbySusan Sometimes, after I have had a bad weekend, I go to SpeakUp on a Monday. After a chat with all my friends, my mood changes and I feel a different person. This Group sets me up for the week. 18 FOLK WEEK 2015 The second week in August is my favourite time of the year. It is Broadstairs Folk Week. Music, dancing and happy people make the town “come alive”. And so my special week came together with my favourite group – “SpeakUpCIC”. To sit among friends and absorb the terri#ic atmosphere of this beautiful, sunny day seems special. The walk along the pier, a hot dog, a look round stalls with things to buy. A Happy time, happy friends, sunshine and music – a wonderful day. There were also stalls selling C.D’s and Joss sticks, and fragrance crystals for oil burners. Just along from the Charles Dickens Pub, some Morris men Dancers put on an exhibition. able to sit outside again. Folk singers were to be found in others pubs. It was lovely just sitting and soaking up the atmosphere. There were lots of people doing the same and the local businesses must have done a roaring trade. In the afternoon everyone went home all saying they had a good day, and are looking forward to next year . Let’s Talk Conference in Maidstone to speak to KMPT We were also able to arrange a coach to the KMPT Let’s Talk Conference in Maidstone to speak to KMPT about how they can better engage with Service Users and how they can reach more people. The day was well attended by service users and professionals alike and was a great chance for KMPT to hear from the people who access their services and work together to make a more harmonious experience. The conference was a fantastic way for service users and carers to help shape the way that future services are delivered. 19 Service User Conference “Supporting your Journey” This w as held on Monday 7th September at St Martin’s. A total of about 40 people attended and the programme w as packed into three hours, so only about 20 minutes w as allocated for each subject. The proportion of service users in the room w as sadly rather low , considering it w as a conference designed for us. But this gave a chance to raise any concerns with the KMPT (Kent & Medw ay Partnership Trust – the mental health services) hierarchy. The first subject w as out of area beds, which has been an ongoing concern for some years and has a high cost to KMPT. There are tw o reasons why people are sent out of area, either to find specialist treatment unavailable here, or because of lack of beds. It has a great effect as it can cut service users (and carers) off from their social netw orks completely and people have been sent as far afield as Cambridge or Manchester. Basically, KMPT feels it is being asked to do too much w ith too little resources. Although North Kent has no problem w ith this (there are more community services available), West Kent has a s mall issue with it (1447 bed days in 2014/15) and East Kent a major problem (8561 bed days). The overall figure for 2014/15 w as how ever much low er than in 2013/14 but there are still ongoing issues w ith hospital bottlenecks over finding new accommodation and care plans not being in place. KMPT also feels that East Kent has not enough bed spaces commissioned for the needs of the population. Overall, they are taking action to relieve pressure on inpatient places w ith more services in local communities. The second subject w as “Open Dialogue”, a radical new approach to mental health services w hich originated in Lapland and Finland in the 1980s. A few British mental health services have been involved with this recently and KMPT w orkers are currently completing their intensive training. he approach has far more emphasis on psychological methods and involving patients’ entire social netw orks in the situation in an effort to to be far more democratic. For Britain, the National Audit of Schizophrenia 2014 show ed that 90% do not w ork and only 34% have daytime activity. With Open Dialogue, 78% had a first episode then returned to w ork or study and on- ly 19% relapsed w ithin 5 years. There is going to be a pilot in certain areas (including North Kent) for 2-3 years and results will be compared to traditional services, in such areas as hospital and medication use, recovery outcomes and w ider service use. The third presentation w as on the new “Single Point of Access” (SPoA) phone number service. This has already started but w ill soon be fully operational with clinicians available; it w ill be a much quicker route to find help in a crisis. The number is 0300 222 0123 and it w ill be available 24/7 and also avoid people having to go via the general NHS helplines.After these we broke into groups to debate w hat w as going right and w rong betw een primary and secondary services. It w ould perhaps be interesting if KMPT invited service users to voice what they’d like to see on the agenda in future. After a break, w e then heard about peer support within the trust. This is w here people w ith lived experience of mental health difficulties go on to w ork for KMPT to help others and show what w orked for them. At present there are 23 w ith another starting soon and they are in all areas of services. There are 8 key principles to this namely: mutual, reciprocal, non-directive, recovery-focused, strengths based, inclusive, progressive and safe. KMPT is aiming to have one of these w orkers co-facilitating every group w ithin the trust soon. The final presentation w as on care planning, as a group has been w orking on this for some time. The aim is to improve this essential part of the service with full inThe conference then ended w ith further questions and a good lunch. It was the follow up to another at the end of 2014 whic h involved service users from all over Kent, but a further one is being held for West Kent this time as the venue didn’t suit everyone. There is also a carers’ conference roughly every six months but no mention was made of when they plan to hold the next one for service users. Open Dialogue Conference This took place in Ashford on Friday 11th September and was dis tinctly aimed at service providers but service users were allowed to attend. There were about 300 people there from all over Kent – and indeed beyond – a reflection of the great interest this subject is creating. A number of KMPT staff have been undergoing training in it, in preparation for a pilot scheme of 23 years in four areas in the UK, one of which is Kent. ivolvement from service users. .A large proportion of the day was taken up with hearing Jaakko Seikkula, professor of psychotherapy from the University of Jyvaskyla in Finland. When the work 20 but now as well as having better outcomes for those w ith this condition, there is a far low er rate of it overall because symptoms are not given the time to escalate. A five year study from 1992-97 show ed that only 35% needed antipsychotics, 81% had no remaining psychotic symptoms and 81% returned to full employ ment. After 5 years, only 17% remained on antipsychotics. The overriding theme of Open Dialogue is to accept the other w ithout conditions. The guiding principles are an immediate response (w ithin 24 hours), a social netw ork perspective and obviously dialogue (w here anyone the service user wants involved is), flexibility, mobility and responsibility, psychological continuity (w orking w ith the same people for as long as needed) and tolerance of uncertainty. To this end, professionals attend the meetings w ith no preset agenda at all and have everyone talk their w ay through it; this also allow s for non-conscious unarticulated feelings and thoughts to rise to the surface. “A problem shared is halved”, to quote the old adage. Open Dialogue has three main elements: a new guideline to clinical practice, systematic analysis of professionals’ ow n practice and psychotherapeutic training for all staff. It recognises the need for a new medication procedure and although forced medication can still be used, it’s alw ays w ith prior warning and discussion. They have found that talking therapies w ithout medication is effective as a treatment for psychosis and the professor regards even the practice of telling service users they will be on medication for life as extremely damaging. He furthermore observes that psychosis as a category does not exist; the symptoms are not symptoms of an illness but a strategy for the embodied mind to survive strange experiences. To me, this echoes the RD Laing anti-psychiatry view of the 1960s, that psychosis is a perfectly sane response to a mad w orld and an unliveable situation. Professor Jaakko also believes that ongoing psychotic behaviour is caused by poor treatment that starts too late and has far too little understanding of the problem, therefore gives the w rong response. Again, this is w hat the anti-psychiatry movement has alw ays been about! Psychosis is itself a response – a part of life and many “hallucinations” originate in real events. Instead of fighting this and getting rid of the symptoms as soon as possible, Open Dialogue explores them and uncertainty itself is a major part of the process. The professor also believes that authentic life is open-ended dialogue and as essential to human beings as breathing. It is communication, but so much more besides and its overall effects are to heal and become more human in relation to one another. In regard to the question of professionals having less control over the situation, he did observe that the control psychologvery much part of western culture. It w as also observed that Finland is one of the happiest nations on Earth, something Britain cannot match. But overall there w as complete enthusias m for all these ideas w hich are such obvious common sense you can’t help w ondering why it’s only now anyone’s taking any notice of it. The afternoon w as taken up w ith other sessions: more details on the upcoming pilot and an interesting discussion w ith a family w ho had received Open Dialogue recently. It had not been immediately at the onset of the problem but had clearly raised some unspoken family issues and had an overall beneficial effect. Annie Jeffrey, a local carer, then spoke movingly of her ow n experiences – and did not mince her w ords about the current system and therefore the need for this new approach. There w ere then group discussions w ithin the audience and a chance to put questions to the experts at the end. So – everyone is full of enthusiasm and can see it’s a great idea. The big question now is, how do we get from here to there? The usual major barrier is in the w ay: money. Yet surely it’s clear that these methods can be taken on, even w ithout expensive training and replacing staff when it happens. All that is needed is the w ill. The principle of accepting AN Other w ithout condition is surely a good guideline for all human interaction. Does it really take millions to be spent to train people how to do it? 21 HandyTipsandhelpwhenfeelinglow May tree is a registered charity supporting people in suicidal crisis in a non-medical setting. If you, or someone you know, could benefit from a one-off stay in a safe and confidential space, please call us today on 020 7263 7070 or email maytree@maytree.org.uk. You are not alone Suicide Respite Centre The Ma ytree Suicide Respite Centre is the only place of its kind in the UK and fills a gap in services, between the medical support of the NHS and the helplines and drop-in centres of the voluntary sector. We offer a free 4 -night/5-day stay, and the opportunity to be befriended and heard in complete confidence, without judgement and with compassion and warmth. Tips to “ground” you in the here and now by Susan Gale SEEING – look around you and say out loud five objects that you can see – maybe a picture, a bedside rug, a vase of flowers, your curtains, and a clock. HEARING – Maybe you can hear your own breathing, a clock ticking, birds beginning to sing outside, a familiar creak of floorboards, a car in the distance TOUCHING – the softness of one hand against the other, the fabric of your chair, the material of what you are wearing, the warmth or coolness of your skin, the hardness of a wooden ta-ble. SMELLING – any scent you might be wearing or soap you have used, the detergent you have washed your clothes in, maybe a cigarette if you are a smoker, any flowers that are in your room (leaves too have a distinctive smell), furniture polish. TASTING – the saltiness of your own skin, the trace of toothpaste in your mouth, the drink you have made yourself, imagine the taste of your favourite food, the cold taste against your tongue of the by now empty mug. All the above are only suggestions – you will find your own “five senses”. This will take as long as it takes. There is no time scale. Everyone is different. Like anything else it takes prac-tise. We are all individuals. SMALL STEPS, EVERYDAY TRIUMPHS If you ha ve a severe mental health condi"on, your risk of developing coronary hea rt disease is greater then the general public. The Bri"sh Heart Founda"on (BHF) has designed a new booklet for mental health servi ce users- helping you to take small steps towards a lifestyle tha t's good for your hea rt. The BHF booklet - Everyda y Triumphs- has been made wi th help from servi ce users, carers and healthca re professionals and is full of useful fa cts, pra c"cal "ps and advi ce to help you look a &er your heart. Make small, steady changes to help improve your heart health, cope be=er wi th your mental health condi"on and improve your overall feeling of wellbeing. Everyda y Triumphs is a vailable to preorder now. To find out more visit: bhf.org.uk/triumph or call 0870 600 6566 and quote G972. 22 SpeakUpCICcelebratesWorld MentalHealthDayinCanterbury SpeakUpCICjoinedupwithCanterbury& CoastalCarers’SupportGrouptocelebrate WorldMentalHealthThetopicwas-“OPENDIALOGUE”withDr.RussellRazzaque,MB.BS., MRCPsych.,Dip.Couns:YasminIshaq,Service ManagerfortheEastKentEarlyIntervention ServiceandAnnieJeffrey,localactivistandcampaigner,wentverywell,withapproximately80people,includingthechoir,attending.Itwas lovelytoseesomanypeopleattheevent.The*MustardSeedSingers'performancewasvery popularandpeoplewereamazedattheharmonieswhichconductorElleCaldonachieveswith thechoir.Tosaythatthe"OpenDialogue"initiative presentationwasinterestingisatotalunderstatement.Wordswhichhavebeenrelayedtousby manyofyouwhoattendedtheeveningare"exciting,inspirational,innovative,hope-creating,"etc.Dr Razzaque'spresentationfocussedaroundthe "DifferentApproach"ofOpenDialogueandthesuccessofthisapproachwhereverithasbeenputinto practice.BigthankyoutoChrisandCherylfor invitingustoattend. LGBTIQ Dinners On the last Thursday of each month we congregate at the Promenade Restaurant near Margate Sta"on. This is your chance to eat well from a really varied menu and at good prices . We meet likeminded people within a nice seLng and have a really sociable evening. You can be yourself and speak freely whilst you enjoy this monthly get-together.... If you have not been before, it is well worth Coming and making new friends, interes"ng conversa"on and not feeling alone in the dark Winter nights ahead. Friends and Thane"ans. Come together . Feel free to voice your opinions . Wi thout inhibi"ons WorldMental DayinThanet SpeakUpCICattendedaMentalHealthAwarenessEventat CliftonvilleCommunityCentreonthe9thofOctoberto commemorateWorldMentalHealthDay.Wewerejoinedbyahost ofotherorganisationsthatsupportlocalpeopleintheirrecovery. Itwasagreatdayforallinvolvedand awarenesswasraisedaboutlocal services.Thankyoutoallthe volunteerswhohelpedusontheday andtheeventorganisersformakingit possible. 23 Fancygettinginvolved?Hereisasneakpeakat Thanet They say mental health facilities in East Kent are abysmal. But SpeakUpCIC Support groups is an oasis in this desert of depression. It has certainly helped me. Before I joined SpeakUpCIC I was a paranoid social phobic. Now I lead a relatively normal life with several friends and an active social life. Yet 10 years I was living in total despair. Sodon’tgiveup–joinSpeakUpCIC! TheWomen’sGroupaims to support female SpeakUpCIC members. Currently we are a small group but we always welcome new members. KCA visited us in the Spring to discuss their psychological therapies. We have plans to develop the Operation Beautiful, an idea to enable it to apply to everyone (including men). Also we are considering relaxation and aromatherapy. If you would like to spend some time with a group of supportive women then come along on a Thursday morning. We look forward to seeing you! A warm welcome awaits you. The Women’s Group meets once a week on Thursday between 10am and 12:00 pm, at the Margate Media Centre in the Margate Old Town. If you would like to get involved, please ring us on 01843 448384 or email on admin@speakupcic.co.uk and we’ll post a membership form to you. Mazza Things that get me through difficult days … By Clare Wright A while ago Maggie asked for contributions on what helps some of us get through difficult days. Seeing this article by Anatole France rem inded me of this request. Sometimes I look at something that seemed a good idea or quote a while ago and just think—what a load of hogwash—or other choice words depending on how I feel. On the days the effort is so great and I cannot even think beyond putting one step in front of the other I just focus on bare essentials. On other days I pick up quotes from inspirational speakers, just opening a book and seeing what a random search will bring. I am quite interested at the moment in the sayings of Anatole France. I particularly like ‘To know is nothing at all; to imagine is everything’ - go to http://www.quotationspage.com /quotes/ Anatole_France/ for m ore of his pithy sayings. And I like the following too. Best wishes to all reading this newsletter and I hope to read other’s getting through the day tips. Thank you to Maggie for starting this idea. 24 SpeakUpCIC LGBTIQ group joined Hundreds of gay, lesbian, bisexual and transgender people marched through Thanet today in a "Kent Pride" procession. There had been concern that the celebration of the LGBTIQ community could be marred after anti-gay lea#lets were posted throughout Margate ahead of the event. The day turned out to be a huge success SpeakUpCIC has been running the Lesbian, Gay, Bisexual, Transgender, Intersex and Questioning group in 1993, and it has been going strong for the last 22 years. Over that time, LGBTIQ rights have come along in leaps and bounds. There’s still a way to go in this, especially in certain parts of the world. The LGBTIQ Kent Pride event was both a celebration of the rights and freedoms that the LGBTIQ community now have, but also about challenging the stigma and #ighting for the global rights of the LGBTIQ communities. The Bi-Polar group is going from s trength to s trength. Talking about our past month has helped everyone express themselves. Bi-polar is a severe mental illness and can be controlled with medi ca"on. People wi th the illness seem to be qui te intelligent. The illness is many mood swings from mania to depression. Li thium is the main medica "on, this has been used for a long "me. However, I ha ve to ha ve blood checks beca use it can affect the kidneys . Depakote is used as well. We meet on the Fi rst Thursda y of every month at the Ma rga te Media Centre, in Margate Old Town, at 2pm. If you would like to get invol ved, please ring the SpeakUpCIC office for a membership form on 01843 448384. Or you ca n email us on admin@speakupcic.co.uk. We also have a SpeakUpCIC Bipolar Support Group on Fa cebook 25 P oe t r y f ro m ou r M embers Claire Hartman-James Changes of any kind can be scary, the y push us out of our nice warm comfort zones and cause us to sometimes make big decisions that will effect our future selves. The biggest decision is what response and attitude are you going to adopt towards any change? Thisisthegamechanger. Be aware of how you feel, address it, embrace it, cry, scream, sulk, however, have the dignity & integrity to do this privately or with a trusted source and shift through the emotions quickly. Publicly dwelling in self pity, gossip, rumour or negativity will spread like a disease and effect you in other areas of your life. Don't believe me? Try stubbing your toe in the morning and see your day spiral downwards... Look for the positives, write them down even, how far have you come? How much have you learnt or progressed from this situation? What could you perhaps do differently in the future? Then pick yourself up and run with it, adopt the right mindset and the biggest growth your ever e xperience will come through change, that choice is down to one person and one person "Promise yourself to be so strong that nothing can disturb your peace of mind. Look at the sunny side of everything and make your optimism come true. Think only of the best, work only for the best, and expect only the best. Forget the mistakes of the past and press on to the greater achievements of the future. Give so much time to the improvement of yourself that you have no time to criticize others. Live in the faith that the whole world is on your side so long as you are true to the best that is in you!" Ihavefounddepressionmoreseriousthanaphysicaloperation.he latterisusually‘doneanddusted’butdepressionre-occurssometimesoutoftheblue,butmoreoftenasareactiontoaneventora person.Usuallyitpassesafteraperiodoftime,althoughsometimes onewondersifitwillevergo.AttheendIsaytomyselfitwillnever returnnowbutitdoes;itissodebilitatingandonebecomespassive andthefutureis‘black’.Lifeceases,andeverydaylifebecomesaburdenandimpossibility.Professionalhelpandtabletscanbeoneexit route.Ifanexpertcancuredepressionthenthatpersonisagenius. Cananyonesuggestlesseningitsseverity?Imaginethesufferingthatcouldbeavoided. Istherea‘DepressionsAnonymous’ 26 Po et r y fr o m o u r M embers “Welcome Back” You’ve been coming for a while And made a few friends But life is s*ll a problem Perhaps you want it to end… SHOUT,SCREAM,LETITOUT. Whattodowhenthesunisnotshininginyour worldbutisbeautifullybrightoutside? Don’tstayin! Nomatterhowhardtheeffortfeels,goout. You wonder if you should s*ll come So you stop and back away And stay at home all alone Try to keep the thoughts at bay. Standyourground.SHOUT/SCREAMleaveyour troublesandgetyourselfOUT. Watch the s un g o down, bury your troubles for a while. The New Sun tomorrow could be shining JUST FOR YOU But even though you’re not able To reach out and say “help me!” Those friends you made at SpeakUp Will try their best to help you see You’re not alone or useless And even though you’re in pin Your friends are right behind you Wai*ng to see you again. So when you pluck up the courage To walk through the door with no aFack Of course there’ll be smiling faces And open arms saying “Welcome back!” Anon Thedullnessloomsovermymind,anever endingdarkness,looming-alwayslooming. Brightnessemergesthroughtheblack,asmall glimmerofhope. Thedarknessstilllooms,alwayslooming.The hopesoondiesandthelightfades. TheLoomingdarknesshaswon,thedarkness foreverlooming.Hopecannevertrulydie,it alwayscomesback. ’Hope’startstoloom,alwaysloomingthrough thedarkness. What Christmas means to me, By Janet Reynolds A "me for li ving for forgi ving Advent the bi rth of gods son. Sending us blessings by the ton. A "me I can visi t and see my mum, Al though there is never any snow, Many fol ks toddle off to church and gi ve presents galore, events to explore. Remember to celebra te, ma ybe gi ve a child a toy. Not work to do, feel blue. Jus t come along and sing a song. The communi ty Halls open for all Christmas Da y, Boxing Da y pra y not onl y for us , pla y, rest , recupera te, keep wa rm. Come and join the throng. 27 In Loving Memory of Claire Claire had been a member of the forum for over 10 years and was also a volunteer, sadly Claire died from cancer shortly after her 47th birthday. Claire was a popular member of the forum and also ran the women's group, recovery group and relaxation group where she had many friends. Having suffered depression herself the experience made her very empathetic, sympathetic and understanding of other’s feelings. A sensitive and gentle woman with a great sense of humour made her very well loved - she will be sadly missed by us all. Claire radiated an air of calmness and was liked by us all. – Les Claire, RIP and farewell. All my love. – Hazel Dear Claire, you were a wonderful friend and colleague in Speak Up. Such an inspiration to all. I will miss you . – Marissa Claire was kind and supportive all of the time. She encouraged me to be open and honest about my feelings. Nothing was too much trouble for her. She was delightful. – Ann We will miss Claire. She always gave me a big hug and helped me do the teas. – Sugar God’s Angels surround that smile that Claire would usually have. – Pav I shall miss Claire’s smile. She always cared and had time to listen. A loving, lovely kind lady will be missed. – Josey Claire was very supportive and kind to me when I was in a low moo. I am quite self-reliant but Claire was persistent in checking that I was OK. I miss her kindness and concern. – Mazza It was nice to have you. You are a lovely lady, take care and God Bless. – Dean Goodbye, Dear Claire. No more pain. – Iris OUR LO SS IS H EAV EN’S GAIN, FE LT B Y A LL WHO R EMA IN, OUR H EART S WE RE TOUC HED WIT H LOVE AND LAU GHTE R, HERE , NO W, FOR EVE R A FTE R. WE M ISS YOU SO VE RY M UCH. – FROM ALL O F U S AT SP EA KUPC IC 28 Fledgling Website Mental illness frequently closes down the social contacts of sufferers and leaves them increasingly isolated. With the advent of social media at least there is a new way opened for some kind of connection with others. For me this has offered the opportunity to engage in a kind of therapeutic activity and communication with a community who share similar interests. ‘Fledgling’ is a website for people with a mental illness who have artistic interests. The aim of the site is a type of catharti c expression through artistic creation among a like -minded community, each trying to cope with mental health issues. I began as a member, posting photographs and commenting on the work of others. This came as a big surprise albeit a pleasant one, I was quickly offered the job of volunteer. (Volunteers being #ledgling members with a duty to comment on the posts of others). Time went on and all the “wings” of #ledglings were opened up to me: Film and art, poetry and creative writing, Music, and of course, Photography. Soon I began whizzing from wing to wing, commenting on poetry, visual art and photography, all while giving and receiving commentary from #ledging members. It has been a big -part of my life during the months that followed and connecting with other mentally ill people has helped, but more so the expression itself. So if you are interested in the Arts or just want to join in, then look up Fledgling. MEASURES FOR GREATER PATIENT POWER From next year, for the first time, new 'Ofsted style' ratings will show patients how their local area's health service is performing in crucial areas, including cancer / dementia / diabetes / mental health / learning disabilities / maternity care The new ratings, broken down by Clinical Commissioning Group (CCG) will not only be based on local data but will also be verified by experts in each field, including: • The Chief Executive of Cancer research UK, Harpal Kumar, who will verify cancer ratings • The government's Mental Health Taskforce Chairman, Paul Farmer, who will lead on mental health When you a re so "red tha t you don’t want to speak, I will help you find the s weetest song. When your hea rt bea ts too fas t, enough to s ca re you, I will help you brea the the calmes t breath. On mornings when you can’t face the world, I will paint you the mos t beau"ful smile. Jus t when you think your tea rs can’t s top, I will remind you of a fabulous memory tha t turns your tea rs to laughter. And as a s cream builds from deep down "ll you realise you’ve released it, i t is loud and i t is real. I will hold you in the cal m that follows . Don’t you remember me? Do you recognise me? I am your reason, support and will. I am the decision ma ker, the joker, bes t friend. I a m the survi vor, the soldier when you a re a t wa r. We a re one and the same, I am you. By Alison Shields. 29 Group enjoys safe place to unwind and feel the music the group when Marissa turns warmly to him and says, "we're Facebook friends now." TWIRLING to the beat of Rod Stewart, hands on hips and singing their hearts out it's difficult to imagine the people bopping around the room sometimes struggle to catch a bus. The vibrant 85-year-old boasts an enviable social life and likes nothing better than to sing along to her signature track, Dancing Queen. But members of mental ill health community group SpeakUpCIC are testament to the healing powers of song, as they sing-a-long to music ranging from head bangers to calming classical. Volunteer June Reed or "Sugar" is quick to make sure I have a cuppa in front of me as I speak with the group. It isn't just singing and dancing that has encouraged members – Daphne Hill, who suffers from "huge anxiety" and has found her niche penning lyrics for a new song the group are creating called Speak Up and Speak Out. The group let their hair down in a comfortable enviroment at Margate Bowling Club on Northdown Avenue. It's testament to the collaborative nature of the group where an organic movement to create and share experience has led to an Organiser Kay Byatt said: "It's a chance for increase in self-confidence and belief. Marispeople to come here and be themselves. It's sa sums up when she pauses and turns to not just singing but dancing and discussing the group leader with emotion "I want to give the meanings of songs and specifically what a big thanks to Kay, you have become a friend to all of us and have listened to some memories are evoked from them." of our problems. Marissa Smith, a born and bred Margatonian, confirms this assertion as she recalls "I can call you a friend." being taken back to her 1980s disco dancing They end the group session with a storming youth when a Debarge record plays. rendition of the Queen classic, Bohemian She explained: "I'm usually anxious about Rhapsoody leaving the house and getting the bus in the morning and you really would not recognise me from the person who arrived here earlier to the person you are speaking with now." John and Annie travel from Aylesham to attend the class and their dancing skills illuminate the room. "It's a horrible thing – loneliness," said John, his voice trailing off. But the Elvis lover perks up when reminded of the friendships forged at the sessions he has made at 30 PoemfromClaireHartman ApoemIwrotetodayinmemoryof howfarIhavecome.Thisistoraise awarenessofpostpartumandmental illness,beatthestigmaattachedtoit andtoofferinspirationforthosethat arestilllostinthedarknesstolook forthelightF 9 years ago, I was frightened, I was lost, Having a baby had come at a cost, A price so high, I almost wondered, how deep down the depths I had plundered... 9 years ago, I couldn't leave my home, The thoughts in my mind had uncontrollably grown, Panic suddenly gripped me by the throat, I couldn't breath, all alone, feeling remote. 9 years ago, I screamed in terror, Running into the street, bare feet in error, The journey to hospital went by in a blur, My Partner stopped at the garage, a forced detour... 9 years ago, my mind had gone crazy, I limped in the hospital, reality hazy, Surely I'd only just broken my hip, I couldn't remember? did I fall? did I slip? 9 years ago, I was admitted to a psychiatric ward, Not a Mother and Baby unit, like some reward, Men and women, all out o f their minds, I thought they wanted to poison or rape me, it takes all kinds. 9 years ago, I lay on the #loor, Screaming like a toddler, I could take no more, Surely this would wake me up? Save me from this hell close up... 9 years ago, I pulled my bedcovers tight, The curtain surrounded me, I prayed in fright, A patient rampaged through the night, I'm sure she thought in her head, that she was alright... 9 years ago, I escaped from hell, I really thought I'd been locked in a cell, A voluntary prison to keep me from harm, At one low point, I'd set off the alarm... 9 years ago I convinced a panel, That I could control the voices, switch over the channel, They let me home to see my baby, Unable to breastfeed, not a chanc e, not a maybe. 9 years ago, a decision I made, No longer was I going to live life afraid. I grew strong, I grew brave, I took daily action, Came o ff o f my meds, despite their reaction. 9 years ago I lost my twin sister, A surreal experience, how I wept, how I missed her, My body just went through the motions, All around me was grief, I was full of trapped emotions. 9 years ago I turned to the light, Faced my fears daily with a positive might, Looked after myself, made sure that I slept, Ate regularly, exercised, my mind I just kept... 9 years ago, I came back from the brink, I'm a #ight er, a survivor, I was saved, didn't sink. My faith grew more with each passing day, My husband, my rock, by my side did he stay. 9 years ago I beat mental illness, Today, I'm more calm, mindful in stillness, Meditation I practice, self love and awareness, Never look back in anger, but was I treat ed in fairness? Fast forward 9 years and what c an I do? To make a difference, to a lot, not a few? I'm lucky, I'm grateful, for I have survived, For others, a different ending, women have died... Today, I stand tall to combat the stigma, Postpartum illness is still an enigma, If you feel strongly, then just share my post, Amen to the father, the son, and the Holy Ghost. 31 All too o&en when we pass a milestone or achieve something that has been a challenge for us the importance of our achievements are overlooked or we aren't acknowledged as much as we should be. So, here in the newsle=er, we would like to take a moment to say a few words about some of the things you have done or achieved recently. Well done to Marissa for running your #irst User Forum Group. You have been with us for four years and have gone from strength to strength. Taking part and running groups is a great achievement. We wish you every continued success in running the women’s group after Claire. It is called the Unicorn Group in her memory. Please see more details on our events page. Well done to Hazel for taking m aths and English evening classes We would all like to send Congratulations to Mazza and a huge achievement standing next to Bishop Trevor, at her con#irmation in St Lawrence church on Thursday 12th November. A big well done from us all here at SpeakUpCIC 32 Winter months.... Seems a few people are feeling down lately and I wondered if you feel that the darker days affect you? Fas t approaching is the seasonal period tha t has both happy 'n' sad "mes 'n' memories coupled wi th hi ghs 'n' lows , more of the la=er where the change of "me onl y adds to those who suffer SEASONAL AFFECTIVE DISORDER "SAD"( aptl y na med reall y ). Anyone can get the blues, though servi ce users a re more suscep"ble, le& unchecked, i t is a very bad "me of yea r for them. I myself ha ve suffered from SAD, hoping I can spot the da nger signs , i t is not jus t feeling down. There will be many si tes on the internet where informa"on can be found. Ea ch of Us can help one another by keeping in touch over the fes"ve season, ei ther via telephone, mobile, text and of course in pers on. Don't be afraid to chat about how you feel, i f sufferi ng from SAD, don't be a fraid to listen to someone, we've all been there. Da vid Wans tall. www.nhs .uk and look for SAD Sea rch SAD Changing Seasons. Golden shea ves swa y in the wi nd, as the sun brings col our to them as they grow. Ma chines and men collect them in as the Indian summer takes hold, to bring forth the ha rvest. Ha rves t shows golden colour; a nd bronzes and gold, as the autumn season progresses. Lea ves fall, and compress down as crea tures and bugs ma ke the compos t needed for new growth Gods' ga rden is forever changing as the ci rcle of life con"nues yea rl y. See the love that na ture embra ces ! Life is a colourful ci rcle of love, ever changing and puLng new meaning to the worl d we li ve in. Take "me to put connec"on to this planet we call EARTH. Pa v.= Music Appreciation Music heals, so when I heard about a new group titled ‘music appreciation’ I was very excited. To take along a piece of music that has meaning for us all was the challenge. We were led by the wonderful Kay. Listening soon turned in to dancing, singing and lots of laughter. Thursday afternoons are my favourite time of the week, 2 hours goes by far too quickly. A place for fun, for exercising, it’s a place to fully relax and be ourselves, no matter how loud. Each week our Finale is ‘Bohemian Rhapsody’ and so to this we sing, dance and get very loud. Often passing members of the public look in the large window, there is a sense of amazement on their faces. I think they wish their days were like ours. 33 Thanet User Forum What’s going on in Thanet? Thanet Users Forum Every Last Monday Mondayof the Month StJohn’s John’s Community Road, St CommunityCentre, Centre,Victoria Victoria Road, Margate. We welcome comments and views on all Margate. We welcome comments and views on all issues concerning your mental health care provided issues concerning your mental health care proby the mental health services. Service users can vided by the mental health services. Service usdiscuss these issues together highlig hting gaps in ers can discuss these issues together highlightservices, improving exciting services and ing gaps in services, improving exciting services establishing new services. Come along and join us and new services. Come along and for establishing a cup of tea or coffee. join us for a cup of tea or coffee. Richmond Fellowship Thanet Community Service Information Desk and Drop in Members’ Forum Thanet Plus, Cecil Square, Open toGateway all Thanet Community Service Members. Discussing Mental health Services and to influence Margate. We meet twice monthly on a Tuesday the delivery of Mental Health Service Provision. to give out information about mental health reBeacon Forum lated issues & SpeakUpCIC, and to take on is- sues raised the public relating to mental Manston Rd,by Margate. A Service Users forum to health discussprovision. matters relating to the provision of Mental Health Services. Ramsgate Women’s Forum LGBT Forum Margate Women’s Forum Meets bi– monthly at theand Media Centre on TuesThe Lesbian, Gay, Bisexual Transgender Forum days. Call in gfor cup meets of teaonand a chat basis. and is a self help roupa and a monthly This meetis other an opportunity like-minded to meet women. new Feeds people in back a warm into friendly atmosphere. the users forum “John Baker” Art Group Walk & Talk Meets once a week contact Maggie for more de- Media Centre, King St, Margate.. All abilities welcome, come along for a chat, tea and biscuits tails. Come along, air your views and get fit at and to have a go at anything arty! Meets the same time and meet- like minded people fortnightly. Monday Group Lunch every Club Monday at St. John’s Community Meets Meets once a month contact Maggie for more Centre. Come along and take part in the various details we arrange, Speakers of topics you’d like activities to . know about, fun quizzes, wellbeing workshops and more. Bipolar Support Group Music Appreciation Meets monthly at the Media Centre for support Richmond Fellowship Thanet Day Service Meets Third Thursday of the month Meets weekly—come along and join in as the group Members Forum shares their love of music. Bring along a CD you like Goose, Harbour Street, Ramsgate Call in for a cup ofPlus, tea and chat and Margate. meet other Thanet Gateway Cecila Square, like-minded women. Feeds back into the users Open to all Thanet Day Service Users. Discussforum and understanding for those with Bipolar. and dance your troubles away! Relaxation group Computer Club ing Mental health Services and to influence the Meets month at the Media Centre. Meetsonce oncea month contact Maggie for Come more de- delivery Mental Forum Health Service Provision. Margateof Women’s along tails and drop-in for this new group and talk Meets bi– monthly at the Media Centre on Tuesdays. Call in for a cup of tea and a chat and meet other like-minded women. Feeds back into the Beacon users forum. through your issues and problems with your laptop and computer, such as emails, Facebook and internet LGBT Forum security. Manston Rd, Margate. A Service Users forum to Creative The GayWriting Forum is a self help group and meets on Walk & matters Talk Contact Maggie for moreisas information oncreate how a discuss relating to the provision of a monthly basis. This an Come and join the group you ,jointly, Meets every Tuesday at the Margate Clock Tower for a Walk along the Seafront. Come along, air your to join East Kent User Forums book for publishing filled with your in short stories, opportunity to meet new people a warm views and get fit at the same time and meet- like friendly atmosphere. Meets once a month. Mental Health Services. minded people Women’s Forum Meets Thursday of the month Bipolarsecond Support Group Goose, Meets monthly HarbouratStreet, the Media Ramsgate Centre for support Disabled Access for those with Bipolar. and understanding Call in for a cup of tea and a chat and meet other like-minded women. Feeds back into the users forum poems, inspirational of your past – or Maggie Gallantaccounts - Team Leader anything you’d like to contribute. 66a High Street, Margate, Kent CT9 1DT For more information do call us on Tel:Art 01843 230726 John Baker Group 01843 448384 or email us on furst@rethink.org Media Email: Centre, King St, Margate. Come All abiliadmin@speakupcic.co.uk ties welcome, come along for a chat, tea and biscuits and to have a go at anything arty! 34 Dover, Deal and Ashford Deal Service Users’ Forums Deal Ability Centre, Pathways to Wellbeing, MCCH, 43 Victoria Road, Deal CT14 7AY Meets first Friday of the month at 11am. Positive Ways at looking at depression The Joe Fagg Centre, St. John’s Lane, Ashford, TN23 1QD. Meets Tuesdays at 11.00am. Come along and air your views on local mental health services. Magazine Group The Joe Fagg Centre, St. John’s Lane, Ashford, Speakers’ Forum Deal Ability Centre, Pathways to Wellbeing, MCCH, 43 Victoria Road, Deal CT14 7AY. Meets first Friday of the month at 11am. The forum TN23 1QD. Meets Tuesday at 11.00am. invites a professional to come and speak to the group We meet every Tuesday afternoon at Ashford Ashford Peer Support—Afternoon Gateway Plus at 1.30pm for different peer support Deal Talk It Out Forum SpeakUpCIC holds a Users’ Forum every two months with Deal’s Talk it Out Group. Come along for your say about local mental health services. activities. Through the different forum activities people can share their experiences and views in a safe and confidential environment, either individually Dover Service Users’ Forum MCCH pathways to wellbeing, 1AGranville Street, Dover, CT16 1AA .Meets 2nd Wednesday of the month at 11am. Come along and air your views on local mental health services. or in groups. The forum facilitator can then r e pre se nt the se vie ws and conce rns (anonymously, if desired) to the organisations responsible for planning and providing mental health services. Through the groups members Information Drop-In can therefore be involved in helping develop Meeting at the Dover Discovery Centre on the 2nd their local services with a view to ensuring that Wednesday of the month at 1:30pm. Come along for people are provided with the necessary help a chat about your local mental health services. they want, when they want it. Ashford Service Users’ Forums For more information about the groups, if The Live-it-well Centre, Canterbury Road, Ashford. you’d like to get involved, please speak to Meets first Tuesday of the month at 11.00am. someone at your Forum, call us on 01843 Come along and air your views on local mental health services. 448384 or email us on admin@speakupcic.co.uk LGBT Forum The Gay Forum is a self help group and meets on a monthly basis. This is an opportunity to meet new people in a warm friendly atmosphere. Meets once a month at Ashford Gateway 35