Summer 2010
Transcription
Summer 2010
THE CLIENT’S Voice a newsletter of the Royal Ottawa Mental Health Centre Client Empowerment Council Vision, Mission, Values, and Philosophy Vision Mental health and well-being for all Mission To be representative of the voice of the clients of the Royal Ottawa Mental Health Centre Values We believe that clients play a critical role in their care and in the delivery of mental health services Philosophy • We believe in a client-centred approach to care • We believe that patients have the right to voice their concerns • We believe that input from patients should be welcomed, encouraged, and responded to in a timely manner • We believe that patients have the right to be treated with dignity and respect • We believe in advocating for changes in the system • We believe in valuing people and humanizing the system • We believe in open communication between care providers, consumers and their families I am a Psychiatric Survivor and THIS IS MY STORY Ernie Smith was diagnosed with schizophrenia at the age of seven and began to use the services of the Royal Ottawa Hospital for educational purposes because of learning disabilities. He began taking Ritalin, which helped him cope with his illness and didn’t have any serious problems until he was 30 years old. That is when Ernie began to experience hallucinations and whisperings while attending a Vocational Rehabilitation Program in Kingston, Ontario. A nervous breakdown, lack of a social life, and working long hours caused Ernie to leave work and come to Ottawa. He would later return to Kingston, but he became sick and started loosing touch with reality – walking the streets late at night and experiencing more hallucinations and whisperings. Ernie was transferred from the Kingston General to the Hotel Dieu Hospital to the Kingston Psychiatric Hospital, where he stayed from October 1982 to August 1983. After being released, he lived in room and board and worked at the Ability Centre for Vocational Training (funded by the Ontario March of Dimes) in addition to Industrial Enterprises. But Ernie’s illness and learning disabilities would lead to him becoming sick again. Ernie’s two main outlets - his Social Worker (who went on leave for pregnancy purposes) and Psychiatrist (who moved away to Belleville) left him with too much too handle and not enough support. He became sick again with an infection and thrombosis when he accidentally cut his foot in a parking lot. Ernie got an operation to cope with the infection and stopped taking his medications. He was abused by those supports that he thought he could trust, and was placed continued on page 2… CEC • SUMMER 2010 • 1 CEC • SUMMER 2010 • 2 Vision, Mission, Valeurs, et Philosophie Vision La santé mentale et le mieux-être pour tous Mission Pour être le représentant de la voix pour les clients du Centre de Santé mentale Royal Ottawa Valeurs Nous croyons que les clients jouent un rôle critique dans leur soin et dans la livraison de services de santé mentale. Philosophie • Nous croyons en une prestation de soins centrée sur le client. • Nous croyons que les patients ont le droit d’exprimer leurs préoccupations. • Nous croyons que l’opinion des patients doit être souhaitée et encouragée, et qu’elle doit faire l’objet d’une réponse en temps opportun. • Nous croyons que les patients ont le droit d’être traités avec dignité et respect. • Nous croyons qu’il est important de militer en faveur du changement au sein du système. • Nous croyons qu’il importe de valoriser les gens et d’humaniser le système. • Nous croyons en une communication ouverte entre les prestataires de soins, les consommateurs et les familles. …Cover continued in an Alzheimer’s ward because there was nowhere else to put him. Ernie moved in with his family in Ottawa while still struggling with an additional infection in his other leg, which led to Phlebitis disease and being treated with warfarin rat poison. Ernie found out that he had depression in addition to his schizophrenia, and struggled with suicidal thoughts. Ernie’s current diagnosis is Bipolar Type 1, affective schizophrenia, and depression. But Ernie was not ready to give up. In 1990, Ernie met social workers Sharon D’Arcy and Jackie McKenna from Citizen Advocacy who helped him find friendship and companionship. He met his friend Arnie Francis, who has been a big help in Ernie’s life, health, and finances. Ernie’s last job was as a booking agent. Then he began to work at Causeway and took part in the Vocational Rehabilitation Program there. Ernie began a distinguished career as a volunteer with a number of organizations: CNIB (Canadian National Institute for the Blind), Citizen Advocacy (as a match – Arnie as the advocate and Ernie as the protégé on the Board of Directors), PSO (Psychiatric Survivors of Ottawa), APPLE (A Post Psychiatric Leisure Experience), Independent Living Centre of Ottawa, Ottawa-Vanier Lions Club, Social Service, MacKay United Church and Bazaar, Ottawa-Vanier NDP, NECA (New Edinburgh Community Alliance), and Springfield Residence in New Edinburgh, where Ernie is a human resources advocate for the owners, staff, and residents. He is also an advocate for 10-year-old Brianna, and 5-year-old Spencer, the children of his friend Steve Rose, a single dad. Ernie says: “It’s great to be a great-great uncle at 60 years of age.” “It is time to help others,” says Ernie, who has also been the subject of an article in the New Edinburgh Newspaper. The Client Empowerment Council is Ernie’s newest endeavor, and he has already shown a keen interest to help out and share his skills with us. During the Royal’s Centennial Open House Celebration, Ernie confidently mingled with visitors explaining who we are as a council. Psychiatrists Dr. Sequeera, Dr. Koranyi, Dr. Bisserbe, Social Workers Amanda Telford and Doreen Parker (WRAP) are Ernie’s support team at the Royal. Rev. Kelly has also given Ernie “wonderful spiritual advice” and Ernie says that anyone talking to her would be very fulfilled. Thanks to the secretaries Philippe, Elaine, Darleen, Susan, and Sheila, and Dr Lee and Lisa from the Sleep Lab. Ernie has an intriguing message about his lifestyle that ought to be understood by the public: “I came to the realization that family, kids, a mortgage, was not for me. I have to advocate for people with these types of issues. I recognize that I am Ernie Smith and I don’t let the fact that I live with a mental illness and live in a residence define who I am. I define who I am and the person that I am. Be who you are.” Ernie’s illness still bothers him intermittently, but he is confident that he can succeed in life. Ernie is a true role-model for anyone living with, or without, a mental illness. “Dare to dream, dare to be. You can be who you want to be if you care enough and make the effort. Use all the resources you can on your path to individual recovery. Ask those who have life experience. Live life helping others.” Ernie Smith CEC • SUMMER 2010 • 3 L’âme du papillon Le papillon Juste métamorphosé Papillote Dans la nature Pour étaler ses couleurs Et sa fragilité Il bouge même Dans les tripes De celui qui l’apprivoise Pour lui dire tout bas A quel point Il a du coeur au ventre Et l’habite En musique Le papillon se transpose En flûte traversière Léger, légère Le soufflé á travers Les ailes L’adagio, l’andante, l’allegro Il vole de fleurs En fleurs Nous éblouit De sa délicatesse De sa ritournelle silencieuse J’en ai vu un Un jour Il est resté longtemps Tour près Immobile Je ne l’effrayais pas Et s’ouvrant Et se refermant Me disait "Moi aussi je respire” Puis il est parti Et je ne l’ai Jamais revu... Message from the Editor People are speaking up. The efforts of those who wish to have their voices heard and their stories told are being realized in various ways in our community. I was able to witness two such events: May 8th’s Centennial Open House at The Royal, and June 5th’s Bows for Butterflies Benefit. At Bows for Butterflies I was able to meet and listen to two real-life superheroes: Alyse Schacter and Otto Hall. Alyse speaks with a fearless tenacity that breaks down the walls of stigma wherever she treads – beware. Otto Hall`s tact, class, and sense of humour make it hard to believe that he is a teen. He worked so hard as Youth Chair of the Bows for Butterflies this year and put together an outstanding show. Drama, dance, literature, visual art, and music were merged into a kalaidascope of emotional delight that left every audience member satisfied. The message that I personally took away from the event is that there is a need for a mental health awareness movement. I am very optomistic about this because - quite simply - people are speaking up. Now for some newseltter housekeeping: The Client Empowerment Council must have a means of communicating our activities to the clients we represent. Being clients ourselves gives us a clear advantage in providing the information you need to be informed about our activities. But we can always improve, so please send us comments to let us know how we are doing and how we can better serve you. We are also providing a unique avenue for clients to showcase their creative work. All of the poems submitted to The Voice so far have been published. Please continue sending things in. Here are a few things that you will find in this issue. First, an inspiring story of recovery from one of our newest members – Ernie - who has a very engaging message. I had the pleasure of sitting down with Ernie to finish his article at Piccolo Grande in New Edinburgh (best gelato in town on 411 MacKay St). Thanks for stepping up so enthusiastically to share your story. Intensive Assessment representative Carole will introduce us to how to look into hypnotherapy as a complementary treatment option. Carole, I am currently afraid of heights – any suggestions? Our Accessability Committee representative Nancy Burwash will be providing us with regular updates to let us know how those living with accessibility issues are gaining improved access to our fabulous building. Those are just a few highlights from this issue, so grab seat and treat yourself to some inspiration. Speaking of inspiration, it is with mixed emotions that I report to you the stepping down of Claude Lurette as the Chair of the CEC. Claude has worked tirelessly to make this council the best it could, can, and will be, and his dedication has been inspirational. He is a true role model for every council member and is an example to all human beings for his selflessness and courage. On behalf of every client of the Royal, I thank you for the difference you have made in our lives, the mental health system, our community, and society as a whole. The next time you see Claude in the hallway, please thank him for what he has accomplished. Claude is a hero to me and many others. He is a hero not because he has superpowers (we are still looking into it though) but because he refuses to take “no” for an answer when it comes to the health and well-being of those who are vulnerable. He is also a hero because he has lived through the darkness and has come out into the light as a survivor. He desires to provide those who are vulnerable with a chance to experience this metamorphosis – a chance to be relieved of the darkness. If that does not make him as a hero, I do not know what a hero is. Have a lovely summer, Shawn Thivierge CEC • SUMMER 2010 • 4 From the Desk of the CEC Chair On dit que le papillon Monarque It is with heartfelt gratitude and admiration that we witness Claude taking on new responsibilities as Past Chair of the CEC. Over the last four years, Claude has worked tirelessly on behalf of clients to build a Client Empowerment Council that is strong, vibrant, and effective. We look forward to continuing working with Claude as our resource and advisor. His presence and energy will continue to fuel the CEC. The CEC belongs to you, the clients of The Royal. The CEC is your voice. Speak to us – we welcome your stories and your feedback about your experiences at the Royal and in the community. Peut survoler It is with great excitement that we look forward to building an even stronger CEC to support you and to respond to your needs for client-centered and recovery-focused care. We look forward to talking to you and to getting to know you better. Aussi frêle soit-il Denise Linnay Que disent les entomologistes Des milliers de kilomètres Il nous donne l’exemple Par sa constance sa force Il existe un papillon Tout bleu Miraculeux Et d’autres scientifiques De la santé mentale Ont choisi, eux Comme symbole Complementary or Supplimentary Therapy - Hypnotherapy Le papillon Pour ce qu’il dégage Ce qu’il inspire Ce qu’il implique After 20 years of psychotherapy, hospitalizations and medications, I have been blessed recently to meet a hypnotherapist who showed me how to use my mind’s natural ability to heal myself. Grace Joubarne is a Certified Clinical Hypnotherapist living in Ottawa and one of the most empowering women I have ever met. I have been looking for relief from my major phobia of snakes for many, many years. I spent four summers in desensitization therapy with no real success. needs to do their homework. It is very important to check out the credentials of anyone calling themselves a hypnotherapist. You must ensure that the practitioner is fully certified in clinical and medical hypnotism. There are many hypnotists calling themselves hypnotherapists when they are not remotely qualified. Grace has a page on her website called “Choosing Your Hypnotherapist” where she devotes a lot of time explaining what you need to ask for and about. After one consultation and two sessions with Grace, I am snake phobia free! As well, other fear areas in my life have been set free by my own inner healing. My life has been restored. I feel like a new person. I am free at last of so many symptoms that I was told would last me a lifetime (depression, PTSD, anxiety, agoraphobia, fears of most everything). I am starting to decrease my medications (which I was told would be for life), with the assistance of my psychiatrist, and hope to be free of them within a couple of months. My mood is improved, my energy is restored, my interest in things is enhanced; most, if not all, of my triggers have gone. Hypnotherapy is considered a complementary therapy and Grace, in certain situations, will not proceed without your psychiatrist’s written approval. You have a right to pursue other forms of treatment or therapy. It is always for you to choose. I am confident in Grace’s credentials and am passing her website address on to you for further information – www.graceplacewellness.com. Her telephone number is 613-422-7027. It is important to mention that when considering a complementary or alternative therapy one Va papillon ! Envole-toi ! Déploie tes ailes Et affronte la vie Comme elle se présente À toi Avec ses minutes heureuses Ses surprises, ses défis Ses embûches, ses balbutiements Mais surtout Riche de sens Je te fais confiance Pour guider mon chemin Le voyage intérieur Qui nous attend tous Et nous comble De ta pureté De ta lumière Keep well, Carole Baker © Marie-France Dumas CEC • SUMMER 2010 • 5 on Camelia Emotional I’m an emotional chameleon. Can you guess who I am? I change emotional colours according to the minute, the hour or the day. I’m an emotional chameleon. Can you guess who I am? You can always guess my mood according to the way I express myself; may it be black, white, or gray. I’m an emotional chameleon. Can you guess who I am? I can be affected by the weather, my surroundings, one on one Or All of the above. I’m an emotional chameleon. Can you guess who I am? If you guess that I’m just your everyday ordinary person: You just guessed that I’m an emotional chameleon. And that is… Who I am. © Dana Branda It’s not a job, it’s a privilege In August 2006, I was asked if I would take on the role as Chair of the Client Empowerment Council just as we we’re beginning to find an identity. Not knowing what I was getting myself into, I agreed, and what a ride it has been. Little did I know how the “job” would help me with the challenges I was experiencing, and continue to experience as I cope with my bi-polar disorder and addiction to alcohol and illicit drugs. Over the past 4 years, I have had the privilege of meeting some pretty remarkable people and was not surprised to do so. As the CEC grew, I was in a position to meet with each new member and find out who they are as a person, not an illness. I have witnessed our members grow with each experience. We have shared our joys and our sorrows. We have been part of a cultural revolution from its infancy and seen it grow to see new attitudes and new opportunities. We have learned from each other and have taken our new skills into our daily lives outside the walls of the Royal. And we have just begun. It’s now June 2010 and I am handing over the day to day operation and direction of the Client Empowerment Council to Denise Linnay and her team. But my work is not done; I will be taking on a new challenge as Past Chair of the Client Empowerment Council. As Past Chair, I will continue to be a guide and advisor to the CEC as well as to the Royal Ottawa Health Care Group. I will continue to be a visible member at the Royal and I will continue to provide your voice so really, nothing is changing for me (you can’t get rid of me that easily). What will be changing is our progress as a team. With new leadership and enthusiasm, the CEC will continue to be a part of your well-being, advocating for change and advising through membership on committees, task groups, on the units and in the hallways. We are stronger, better supported and better prepared to take on the challenges that lay ahead. I would be remiss if I didn’t take this opportunity to thank each member of the Client Empowerment Council for empowering me to become the best person I can be. People think that I am doing this for others when, in fact, I am a selfish human being who took advantage of every opportunity to live the best life I can live. Thanks to Dave, Collette, Kelysha, Bruce, Richard, Christina, Tony, Ted, Mike, Derek, John, Jean, Ann, Anna, Shawn T, Shawn B, Shawn P, Denise, Charles, Arlen, Carol, Ed, Tereza, Ernie, Patricia, Mike P, Marie-France, Chris, Deborah, Nancy, Andy and Michelle. (I know I missed some, my apologies). And thanks to all those who stopped by the office to ask about the Council and offer their support and assistance. My thanks go to Kathryn Hendricks, Sue Riley, Bruce Swan, Bill Miller, Len Wall, Heather Garnett, Pam Jackson and Dr Raj Bhatla who opened the doors for us at the beginning. Also, to George Weber, Jim Allin, Margaret Tansey, Dr John Bradford, Nicole Loreto, Evelyn Sparks, Karen Poole, Lindsey Webber and the many others who are working to ensure the door stays open. It has been my privilege to serve you. Claude Lurette Past Chair ROMHC Client Empowerment Council CEC • SUMMER 2010 • 6 Open House – May 8, 2010 On Saturday, May 8th, members of the CEC welcomed the public who streamed through the corridors of the hospital during the Royal’s 100th Anniversary Celebration. So many people showed keen interest and support for our work at the Council and were excited by the language we used: we are a voting member, we are a resource, we advocate for clients on systemic issues affecting them, we engage the community, we welcome new members...we are here for you!! Richard C, Shawn T, Ernie S, Jean N, and I talked to people about the work that we do at the Council. They were quite impressed with the professionalism and the content of the Client`s Voice, our newsletter of which Shawn T is the editor. They were also interested in the advocacy work that we do within the hospital and in the community as shown in the memory book holding newspa- per clippings, announcements, and documents highlighting milestones of the CEC. The display of mental health reports, studies, and documents sparked interesting conversations. The hall wall showed a butterfly time line outlining the history of the CEC. Poet, Jean N, was there to tell her story of how she came to write her poetry. Videos of four of our members receiving the Royal`s Inspiration Awards also played. The Open House was a wonderful event to celebrate our enthusiasm for the CEC with members of the public. The fact that the Family Council shared our space was a meaningful message to the public about how clients and families can work together to bring about change and recovery. These are exciting times and the turnout, despite the rain, spoke of the raised level of interest and awareness within the community and the media re- R o y a l O t t aw a O p e n H o u s e An Ambassador’s viewpoint The Royal Ottawa Mental Health Centre hosted an Open House on the 8th of May in celebration of its 100th Anniversary and the clients were part of the celebration. The Open House began with a thunderous rainstorm but the enthusiasm inside was sunny and warm. As the teams gathered to set up, there was nothing but excitement for the day. Slowly, the public arrived. Some to get out of the rain, but others to get a head start on the day’s activities. My role as your Co-Chair was to be an Ambassador of the Royal and assist in any manner I could. It was the best job of the whole party. I had the opportunity to visit with each booth and speak to the representatives of the Program Units and was proud to see that ALL were represented. I also visited with each of our Community Partners who set up their displays in the Winter Garden and this was their opportunity to display the good works that are being done in the community. The day began with a lecture in the auditorium by Dr. Goldbloom, a respected expert in the stigmatization of mental illness. The auditorium was full and the information we received was not only relevant but timely. Tours were provided to all who signed up to have a look behind the scenes of the Royal, including the Sleep Disorder Clinic and the controversial ECT labs. Stigma begins with ignorance and opening the ECT lab gave the Royal the opportunity to dispel some of the misinformation about Electroconvulsive Therapy. The CEC opened its doors as well and I was proud to see the number of people who were interested in learning more about empowerment and our Council. The corridor was full of displays on the work the CEC has done over the course of the past four years, highlighted by a timeline of butterflies indicating key gains made. I have never felt so much pride in others in my whole life. We were pleased to have the ROMHC Family Council by our side so they had the opportunity to speak with members of the public and health care providers on the impact of mental illness on the family and caregivers. garding mental health and the needs of those living with it. The symbol for the Open House was the butterfly and its transformative journey from the chrysalis stage to emerge as a beautiful butterfly. Many of us do indeed go through a transformation in our journey with mental health issues. There are times where we may seem stagnant and unchanging; but, within each of us, lies the hope and the seeds of recovery, and we do indeed emerge from our difficult times with new insights, with new strengths, with a new vision of life`s purpose. We are a living testimony to the resiliency of the human spirit and to the greatness of each one of us. We are strong! We are special!! Denise Linnay The day continued with a ceremonial declaration by Larry O’Brien, Mayor for the City of Ottawa, that May 8, 2010 is Royal Ottawa Day. I had the opportunity to speak with a former mayor and member of the Board of the Royal, Jacqueline Holtzman, and to welcome our neighbour to the south, the Carlington Community Association. Our dear friend and ally, Daniel Alfredsson, visited us with his son, who had just celebrated his birthday. Once again, Alfie showed that he is a true champion by supporting the Royal and including his family in the celebration. The Butterfly Garden was opened with representatives from the community planting flowers. The Butterfly Garden is an area designed as an area of quiet comfort and contemplation. There were several highlights for me as I wandered throughout the Royal. Seeing all the wooden butterflies being worn on just about everyone was such a tremendous thrill, not only because of its popularity but also due to the creator of the butterfly lapel pin, our very own Richard Cottingham. The flow of people throughout the day was another highlight. Despite the weather (or maybe due to it), the building and grounds were always in CEC • SUMMER 2010 • 7 The Aura As you enter this life A beautiful newborn babe Filled with goodness and love A radiant light shines through From the very centre of your being With every colour of the rainbow Vibrant red, glowing orange, Sunshine yellow, the green of nature Soft blue, deep purple, gentle violet The brown of the earth, a halo of gold A prism of brilliant colours Every hue, every shade Unique to the very special you Extending far beyond Touching everyone and everything This energy of colour is you Shining brightly, shining lovingly As you grow and mature These colours shift Some coming forward, some fading, but all remaining Your own individual colours shine forth strongly Telling you your special purpose in life Your talents, your abilities, your gifts All are there Top: Tim Kluke, President ROFMH, George Weber, CEO, ROHCG, Daniel Alfredsson, Captain of the Ottawa Senators and Leader for Mental Health, Honourable Madelaine Meilleur, MPP, Nicole Loreto, Chief Communications Officer, ROHCG, and Claude Lurette, Past Chair Client Empowerment Council, and Paul Dewar, MP. Bottom: CEC display during Open House. In your own special rainbow of light Jean Nolan ©2009 movement as more and more people came to learn about the Royal. With all this interaction, I was very pleased to see our current clients/patients interacting with the visitors and coming to the lunch tent for hot dogs and hamburgers, donated by our good friend, Dave Smith. After the formal presentation, I had the privilege of escorting Dr Rob Cushman, CEO and President of the Champlain Local Health Integration Network on a personal tour of the Royal. Dr Cushman commented that this was the first opportunity to see the inside of the Royal since its opening in October 2006. I had the opportunity to showcase the Royal from a client’s perspective. We learned something from each other that day. All in all, I can’t see how the Open House could have gone any better. There is no telling how many people came through the doors of the Royal Ottawa Mental Health Centre that day, but what is known is that the Royal is less of a mystery and more of a community partner. It was my privilege to be an ambassador of The Royal. Golden Wings, a collection of inspirational and uplifting poetry, can be purchased by contacting Jean at 613-897-1905. CEC • SUMMER 2010 • 8 CEC’s Meet in Brockville The Ottawa CEC Executive visited the Brockville Mental Health Centre on Tuesday June 8, 2010. This was the first opportunity for our Executives to meet. The Brockville CEC’s (BCEC) mandate is the same as the Ottawa CEC’s (OCEC) advisory and advocacy. The BCEC provided a tour of the grounds and some facilities at the Brockville MHC and we had an excellent lunch in their cafeteria. Our two Executives met to discuss common issues and offer support, but the main agenda item was Bill-46 “An Act respecting the care provided by health care organizations”. This Act will change the way we are cared for in Ottawa and Brockville as well as in the community. Bill-46 will change the process for Patient Complaints, changing the Patient Satisfaction Survey, the creation of a Quality Committee and for our main discussion at the meeting, advising on and providing a draft of a “Declaration of Values”, namely a Bill of Rights. L-R (back row) : Doug McCall , Claude Lurette, Jim Allen, Bill Miller, Richard Cottingham. L-R (front row): Evelyn Sparks, Tereza Topp, Marie-Anne, and Denise Linnay. The BCEC will take the lead on this project with assistance and support from the OCEC. We agreed that our two Councils will meet regularly as well as offer opportunities for you, Clients Cool Off Nancy Kohls (left), known as “The Diva of Rosemount” and Outpatient of the Schizophrenia Ward, and Lisa Ferguson, Resident of the Month of Royal Ottawa Place, cool off during the heat wave in early July. Remember to drink plenty of water during all seasons, especially summer. Water is available on the first floor near the cafeteria. the client, to have input. On this note, if you have any comments, questions, suggestions or advice to give us, please contact the editor at clientsvoice@hotmail.com. CEC • SUMMER 2010 • 9 No-fee bank accounts for people living with severe mental illness The no-fee banking-service project is designed specifically for people living with severe mental illness. It’s meant not just to save these clients money on fees but to offer a tool that will help them manage their money better and, perhaps as a result, feel more in control of their lives. It is a partnership between the CMHA and the TD Canada Trust in Ottawa that started with a pilot project four years ago. It seems that a lot of people living with mental illness don’t even have bank accounts. Sometimes they have trouble with the necessary ID, sometimes it’s the fees that put them off, or not feeling welcome in regular banks. So many use services like Money Mart, which not only costs a lot to do, but leaves people vulnerable with cash in their pockets and a lot of days until the end of the month. Twenty-nine people participated in the pilot project, including many who had been patients in the Royal Ottawa. In addition to getting a bank card, many signed onto financialmanagement tools like automatic payment of rent and bills such as hydro and cable. A few also agreed to setting a weekly limit on their withdrawals in an effort to make their money last longer. The evaluation done at the end of the year found that the goals of the project had been met and much more. Participants found that their money did last a little longer. As well the number of people carrying large sums of money in their pocket went down by half. Before, half had reported that they weren’t paying bills on time. Support workers were happy because with financial issues set aside, both they and their clients could concentrate on other recovery goals. Bank staff reported a sense of new comfort at dealing with this client group, and were proud to be part of offering this service. And family members, where they were involved, reported that what had sometimes been a source of stress had been removed, and relations were better now. With the pilot a clear success, the CMHA and TD Canada Trust Ottawa have launched a second phase of this service, in the same operational partnership as in the pilot project. This partnership brings together support workers from The ROMHC, Salus Housing Corp., Carlington Community Health Centre plus CMHA Ottawa. There are also 10 additional bank branches involved, each committed to offering up to 20 no-fee bank accounts to qualified clients. Anyone interested in signing up should speak to their support worker, who will get the necessary documents, help with the ID requirement and to set up an appointment at one of the participating branches. Heather Menzies Accessibility and what it means to a disabled person Accessibility and what it means to a disabled person. First some dates: June 13, 2005 the Accessibility for Ontarians with Disabilities Act (AODA) was passed. January 1, 2010 all public sectors i.e. hospitals and schools, are required to be compliant with the customer service standard. And finally January 1, 2025 the entire Province of Ontario must be totally accessible to all Ontarians. To give you a brief qualification for myself, I am a member at large of the Client Empowerment Council (CEC) and I am currently sitting on the Accessibility Task Force (ATF). I live in a wheelchair because I have multiple sclerosis (MS). There are 5 standards that must be addressed: • Built environment (building and other structures) • • • • Customer service Employment Information and transportation Communication I am going to address the first standard within the Royal Ottawa Mental Health Centre (ROMHC). As you first enter the main doors of the hospital you discover that it is an automatic sliding door and then when you approach the reception area there are 2 levels for the speaker opening and 2 levels for a writing surface. Throughout the hospital there are many automatic door openers and more will be added as the budget allows. The washroom on the main level has such a device and the handicapped cubicle has been modified so that the door swings out and an additional hook has been added at a lower level. The auditorium has several features concerning accessibility. They have removed 4 seats in the top row so that wheelchairs/walkers can be pulled in easily and there is an elevator which allows access to the floor level. This elevator will remain working even if there is a fire alarm to allow speedy removal of wheelchairs/ walkers safely. I will be addressing other standards with respect to the ROMHC in future issues. Nancy Burwash CEC • SUMMER 2010 • 10 New Creative Program Starting in September THE CLIENT’S Voice a newsletter of the Royal Ottawa Mental Health Centre Client Empowerment Council Vision, Mission, Values, and Philosophy PLEO, Parents' Lifelines of Eastern Ontario will launch its new group called “the Creative Buzz". The Buzz will be a program that explores creativity. It is for 16 to 26 year olds living with a mental illness. In 2005 PLEO launched the Source, a young adult recreation and leisure program which runs every Friday night at the McNabb Community Center. Phyllis GrantParker, president of PLEO, explains that after seeing the value of the Source, PLEO wanted to expand the program offering participants an avenue to explore their creative side. "It is clearly understood that Creativity is powerful in one's journey through recovery" In 2005 The City of Ottawa provided the funding of the pilot project for the Source and since then funding has been provided by a number of sources, currently the Community Foundation and Telus. Once again the City is funding this new pilot project Andrew Grant, one of the facilitators of the Source who will also bring that experience to the Buzz, emphasizes that you don't have to feel you are artistic nor do you need experience. "This is going allow all of us as a group to explore creative avenues. You might find something that really connects with you and you want to pursue further or you might just find it a fun night to get together and socialize and meet new people." The Buzz will start mid September and will be an evening program. The date, location and time are still being finalized but PLEO will provide information and registration forms on its website www.pleo.on.ca and also provide a supply of them to be picked up at the CEC office as soon as the details are finalized Andrew invites anyone interested to come out and experience both or either the Source and the Buzz. There is still space available for both. Smoke Free Environment The revised Corporate Smoking Policy will come into effect on September 30, 2010. The Client Empowerment Council has been involved in its design and implementation from the beginning. This policy applies to all inpatients, clients, visitors and family/caregivers and staff. Several attempts to educate and support the clients who smoke at the front entrance asking them to respect the no-smoking signs have not been effective. As a result, a stronger policy, including consistent enforcement has to be implemented to ensure that everyone’s rights are respected, including the right to clean air. We know that a good portion of people living with mental illness smoke as a coping mechanism. In order to assist us, the Royal, (with input from the CEC) has included smoking cessation education and support in the revised policy but we must do our part, that is, respect all the rules and regulations. Smoking outside the designated areas is the same as smoking on the ward, or anywhere inside the building or vehicles. Staff will receive education about the implementation and enforcement of this policy as well the relationship of smoking and mental illness and will help us during the transition to a smoke free lifestyle, so speak to your doctor or nurse about how they can assist you. Our hope is that once discharged, support will continue in the community and our overall health will improve. Quitting or limiting smoking will also have a benefit to our financial situation as the money saved can provide access to community activities that were once unaffordable. Therefore, smoking for all clients will ONLY be allowed in designated outdoor areas on the Vision Mental health and well-being for all Mission To be representative of the voice of the clients of the Royal Ottawa Mental Health Centre Values We believe that clients play a critical role in their care and in the delivery of mental health services Philosophy • We believe in a client-centred approach to care • We believe that patients have the right to voice their concerns • We believe that input from patients should be welcomed, encouraged, and responded to in a timely manner • We believe that patients have the right to be treated with dignity and respect • We believe in advocating for changes in the system • We believe in valuing people and humanizing the system • We believe in open communication between care providers, consumers and their families I am a Psychiatric Survivor and THIS IS MY STORY During my childhood in the UK, I was abused and then humiliated in the courts. After additional incidents of abuse while a teenager, now living in Canada, I made my first suicide attempt. I was hospitalized but that did not result in a diagnosis and my unfamiliarity with mental illness did nothing to lead me towards any appropriate treatment. I tried to give my life direction by joining the Canadian Forces. Even though struggling with my demons, I managed to hide my pain for many years. Something a little more on the positive side: I did a lot of travelling with the Navy, island hopping throughout the Caribbean, I also stopped in at Columbia and Mexico, and found out what real poverty is about, which was an eye opener. We also visited many ports up and down the east coast of North America and quite a few in Western Europe. These trips were most enjoyable. Throughout the years I also became involved in the Boy Scout movement. For 28 years I found this to be a rewarding challenge first as a cub and through the decades as a leader and a program advisor. It wasn’t until a physical illness weakened my resolve that I broke down and exhibited more recognizable symptoms of mental illness. The military doctors were able to diagnose me with Major Depressive Disorder and Anxiety in the late 80’s. continued on page 2… CEC • WINTER 2009 THE CLIENT’S Voice a newsletter of the Royal Ottawa Mental Health Centre Client Empowerment Council Vision, Mission, Values, and Philosophy Vision Mental health and well-being for all Mission To be representative of the voice of the clients of the Royal Ottawa Mental Health Centre Values We believe that clients play a critical role in their care and in the delivery of mental health services Philosophy • We believe in a client-centred approach to care • We believe that patients have the right to voice their concerns • We believe that input from patients should be welcomed, encouraged, and responded to in a timely manner • We believe that patients have the right to be treated with dignity and respect • We believe in advocating for changes in the system • We believe in valuing people and humanizing the system • We believe in open communication between care providers, consumers and their families I am a Psychiatric Survivor and THIS IS MY STORY My mental illness surfaced when I was 17. I began to have serious mood swings and have mild hallucinations. I ended up quitting high school in grade 11 and working two jobs to support myself in a tiny basement apartment. That only lasted a couple of months and I re-enrolled in an alternative education school. It was tough but it catered to people like me who felt they didn’t belong in a traditional high school. Eventually, with the support of my mom and brother, I returned to the old high school. When I graduated from grade 13 I applied to a college in Idaho, USA as I thought a fresh start so far away from Toronto would do me good. Idaho was fun and I met some people I am still in touch with today, but I was very lonely and missed Canada very much. In my second year I had had enough and returned to Toronto. I felt like a failure. That was the first time I attempted suicide. My first hospitalization occurred when I was 20. I was in Mount Sinai hospital in Toronto for 6 months and was diagnosed bi-polar disorder and put on lithium. I never felt that it “worked” for me, but I soldiered on. Two weeks after I was released from Mt. Sinai hospital I met my husband. He was a great support but unfortunately my illness was still very much present and try as he might he couldn’t understand why I continued to have uncontrollable mood swings and thoughts of suicide and hallucinations. I tried very hard to make things work but I couldn’t understand it either. I always worked outside the home and was dedicated to my work, but changed my employers frequently out of boredom. We had two beautiful children who are now 25 and 23. I had several suicide attempts and thoughts of continued on page 2… CEC • SPRING 2010 • 1 For electronic copies of past issues of The Client’s Voice, please contact clientsvoice@hotmail.com grounds of the Royal Ottawa and Brockville Mental Health Centres and Royal Ottawa Place. The designated smoking areas in Ottawa are the smoking hut and tables west of the building as well as the outer portion of the ring road around the building. This means that people are not permitted to smoke anywhere in the front of the Ottawa campus, including the parking lot and walkways. There are also designated smoking areas in some courtyards but some may be smoke free so check with your Unit for policy and smoking times. Please respect the 9 meter line at all the doorways as this complies with the Smoke-Free Ontario Act. If you have any comments/suggestions, contact the CEC at 613-722-6521 ext 6767 or visit our office in room 1106 at the ROMHC. You can also discuss this issue with the Patient Representative by calling extension 6710. CEC • SUMMER 2010 • 11 Times are changing in the Champlain region Dr. Rob Cushman, CEO of the Champlain Local Health Integration Network (LHIN) since its formation in 2005 will be leaving on December 31, 2010. The CEC and the LHINs began at the same time, and together we have shown what community engagement is. Denise and I have had the privilege of working with the LHIN for the past four years and have seen an increase on the number of clients and caregivers who participate at these tables. This is due, in no small part, to Dr Cushman’s role as CEO. On the many occasions that I have met with him, whether in an official capacity or a personal one, he always asks “What do you need?” As mentioned in the article “An Ambassador’s Viewpoint”, I gave Dr Cushman a private tour of The Royal and watched as he engaged each person he met to find out what the LHIN can do to help. He stopped at each of the community tables to learn about the service they provide. We stopped by the CEC’s office, where he saw what community engagement means as the members of the CEC were speaking with our visitors, looked at our Butterfly Wall with the CEC timeline, visited the office (where he signed our guestbook) and listened to how we have become an integral part of The Royal when it comes to our role as advisors and advocates. He was very impressed with the CEC. Claude Lurette, Past Chair, Client Empowerment Council; Dr. Rob Cushman, CEO, Champlain Local Health Integration Network; and Denise Linnay, Chair, Client Empowerment Council. It is with mixed feelings that we say farewell to Dr Cushman. Although the Champlain LHIN still has many challenges ahead, they will be made easier by the foundation that Dr Cushman has built as we continue to ensure the care that every citizen receives is the best care available. Thanks Rob and God Speed. Claude Lurette Past Chair, ROMHC Client Empowerment Council Client Empowerment Council Liaison Report Although summer is generally a quieter time, the CEC has continued at a steady pace. Listening to the client’s voice and speaking with the client’s voice are key roles for the CEC. After some discussion and debate over the article about hypnotherapy as a complementary therapy (page 4), the CEC decided to focus their presentation for the ROMHC Centennial on Complementary therapies from the client perspective. Claude and I will be presenting at the Psychosocial Rehabilitation Conference in Ottawa in September on Client Empowerment and are preparing now for that presentation. The CECs from Ottawa and Brockville are working together over the summer to develop a Client Bill of Rights document for the ROHCG. Finally we had a special meeting to thank Claude Lurette for his services to the Council over the past 4 years. Richard Cottingham made a beautiful wood plaque with a butterfly on it which he presented to Claude. I would like to personally thank Claude for his vision, focus, hard work and the occasional cup of tea when needed. Claude is an inspiration to us all. CEC • SUMMER 2010 • 12 Family Council Open House Family Council members participated in the ROMHC Open House held on May 8th. We received many visitors and were pleased to have the opportunity to showcase the Family Council. We were proud that the banners for the Family Council and the CEC were side by side and we are sure that having them together helped draw attention to our shared table. Thank you to the CEC for welcoming the FC to share their space and supplying us with our new banner. Who We Are We are the voice of families/ caregivers of the Royal Ottawa Mental Health Centre. We are families/ caregivers who both witness and experience the issues surrounding mental health care and its impact on all family members as it relates to the clients of the Royal Ottawa Mental Health Centre. Our Role The Family Council is an independent body consisting of family members and other caregivers associated with both in- and out- patients (clients) of the Royal Ottawa Mental Health Centre. Our role is to advocate changes to policy and practice as they affect clients and families, both in and outside of the Mental Health Centre’s settings, and to act as advisors to management and it s Board of Trustees. Brenda Ranger and Cynthia Clark from the Royal Ottawa Mental Health Centre Family Council. Contact Us We would love to hear what you have to say about The Client’s Voice. Feel free to call, write, or email your questions and comments to: Client Empowerment Council Royal Ottawa Mental Health Centre 1145 Carling Avenue, Room 1106 Ottawa ON K1Z 7K4 613.722.6521, ext. 6767 www.rohcg.on.ca Email: clientsvoice@hotmail.com (Newsletter) cec@rohcg.on.ca (Council) Our Philosophy • Families/ caregivers are an integral part of the care team • Effective treatment is always client centered • We believe in a recovery based system of care • Where families/ caregivers are involved and, with the consent of the client, they should have a voice in the treatment and recovery plan familycounciladvisory@rohcg.on.ca www.rohcg.on.ca 613-722-6521 x6919