Resources for Grieving Families - Central New York Perinatal and

Resources for Grieving Families
There are many sources of support available to you. These are just some of the books, organizations
and Web sites that have been recommended to us by bereaved families.
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PARENTS AND FAMILIES
A SILENT SORROW Ingrid Kohn, MSW and Patty-Lynn Moffitt. An easy to read book about every
aspect of pregnancy loss. Offers information for family, friends and children.
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EMPTY CRADLE, BROKEN HEART Deborah Davis. A sensitive publication dealing with the grief
and healing process for families after miscarriage, stillbirth and infant death.
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THE ANGUISH OF LOSS Julie Fritch with Sherokee Isle. A collection of photographed sculptures
and prose as seen through the eyes of the authors.
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EMPTY ARMS Sherokee Isle. This book helps the parents understand the grief of the loss of
their infant. She also includes other related topics: adoption, termination and SIDS.
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‘AFTER THE LOSS OF YOUR BABY – FOR TEEN MOTHERS’ Connie Nykiel. This is a nonjudgmental
book filled with wisdom and good solid advice as well as medical terms that may be new to a
teen.
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‘MISSCARRIAGE; WOMEN SHARING FROM THE HEART’ Shelly Marks, Marie Allen. Interviews of
women who have experienced miscarriage.
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‘A PIECE OF MY HEART; LIVING THROUGH THE GRIEF OF STILLBIRTH,MISSCARRIAGE AND INFANT
DEATH ‘by Molly Fumia.
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Stars in the Deepest Night After the Death of a Child by Genesse Bourdeau Gentry. This is not
specifically geared to infant death but it contains beautiful poems written about the grief
associated with the loss of a child from a parent's perspective no matter what the age or
circumstance
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Treasured In Our Hearts is a beautiful baby memory book by Rebecca A. Niestrath, Speranza
Publishing and available at Amazon.com-Borders Bookstore. This is a memory book and journal
created for a baby lost in miscarriage, stillborn, or infant death. It's created in a way for
parents to write about special moments shared with their child and the time they bonded
together throughout pregnancy and possibly once born.
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"DEAR CHEYENNE" by Joanne Cacciatore is on grief that is totally absorbed into a parent's
understanding because it is written from a bereaved parent's perspective. It was about the loss
of her infant daughter. Available through missfoundation.org.
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"PASSAGES" is a memorial book featuring angels on each page and honoring the children who
have died before their time. Available through missfoundation.org.
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"I’LL HOLD YOU IN HEAVEN" by Jack Hayford. Healing and hope fro the parent who has lost a
child through miscarriage, stillbirth, abortion or early infant death. Available through
aplacetoremember.com
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"ANGELIC PRESENCE" is by Cathi Lammert and Sue Friedeck who compiled a collection of
heart-warming stories from mothers, fathers, and grandparents of children who have died.
Available through aplacetoremember.com
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"COMFORT US LORD,OUR BABY DIED" by Norman Hagley is a book of prayers for families who
have lost an infant to stillbirth or early infant death. Available through www.centering.org.
(Centering Corporation) and aplacetoremember.com.
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"MOMMY PLEASE DON’T CRY: THERE ARE NO TEARS IN HEAVEN”. by Linda DeYmaz is written for
mothers experiencing the deep sorrow of losing a child. Available through
aplacetoremember.com.
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”STARS IN THE DEEPEST NIGHTAFTER THE DEATH OF A CHILD’
by Genesse Bourdeau Gentry. This is not specifically geared to infant death but it contains
beautiful poems written about the grief associated with the loss of a child from a parent's
perspective no matter what the age or circumstance.

HELP YOUR MARRIAGE SURVIVE THE DEATH OF A CHILD by Paul C. Rosenblatt, Temple
University Press, Philadelphia.

WHEN DINOSAURS DIE: A GUIDE TO UNDERSTANDING DEATH
by Laurie Krasny Brown and Marc Brown, 1996 Little Brown and
Company distributed by Compassion books.
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STRONG AND TENDER: A GUIDE FOR THE FATHER WHOSE BABY HAS DIED. by Pat Schwiebert,
RN, 2003 Perinatal Loss, Portland, OR
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A GRANDPARENT’S SORROW by Pat Schwiebert, RN 2003 Perinatal Loss, Portland, OR
CHILDREN
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THUMPHY’S STORY Nancy Dodge and Sr. Jane Marie Lamb. A story of a rabbit, Thumphy, whose
little sister, Run, unexpectedly dies (3-7).
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OUR BABY DIED, WHY? Susan and Jake Erling. A booklet written and illustrated by children that
share a brother’s feelings, questions and fears about his newborn siblings’ death.
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NO NEW BABY Marilyn Gryte. A grandmother tells children that they are not to blame for their
expected siblings’ death, and that it’s okay to ask questions, even if adults don’t have all the
answers.
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HOW DO WE TELL THE CHILDREN? Dan Schaefer and C. Lyons. A book for parents that offers
guidance and information to help families communicate about death.
SUBSEQUENT PREGNANCY
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STILL TO BE BORN Pat Schweibert and Dr. Paul Kirk. An easy to read book for bereaved parents
making decisions about their future pregnancy with the help of personal stories.
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PREGNANCY AFTER A LOSS Abbott Northwestern Hospital. A booklet written by a group of
families who have experienced a pregnancy after loss. It offers suggestions on coping with the
anxieties and fears of each new pregnancy while acknowledging these are normal feelings.
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TRYING AGAIN: A GUIDE TO PEGNANCY AFTER MISSCARRIAGE, STILLBIRTH, AND INFANT LOSS
Ann Douglas written for parents considering a pregnancy after a loss.

THE ADOPTION RESOURCE BOOK Louis Gilman
On-line RESOURCES
These organizations offer a variety of supportive items: newsletters, articles, information. This is a
partial list of resources that we hope you will find helpful during this difficult time.
A Heartbreaking Choice
who have interrupted their pregnancy
due to a poor prenatal diagnosis.
www.aheartbreakingchoice.com
907-222-5321
A Place to Remember
(www.aplacetoremember.com)
1885 University Ave.,Suite 110
Saint Paul, MD, 55104
1-800-631-0973
Centering Corporation and Grief Digest
PO Box 4600,Omaha, NE 68104
(402) 553-1200
e-mail: Centering Corp@aol.com
www. centering.org
CompassioNet
Lending library and referral sources in the
greater Utica area.
12 Rhoads Drive
Utica, New York, 13502
Phone: 315-731-9639 or 1-877-515-8490
Fax: 315-792-9734
Email: Jody.Joslin@lifetimehealth.org
Central New York Perinatal Infant
Bereavement Network (CNY-PIBN)
www.CNYPIBN.org
CNY-PIBN is a Central New York, Syracuse
based, community organization made up of
parents and grief workers. This group sponsors
annual events, a resource list, a website, a
Facebook page and support for bereaved
parents. Donated books available through the
Onondaga County library system for families. EMail:JanetPress@Crouse.org
Cherokee Child Casket Company
www.cherokeechildcaskets.com
michaelmims@bellsouth.net
1-800-535-8667
Provide vast assortment of caskets for children
to funeral homes.
C.L.I.M.B.
Center for Loss in Multiple Birth
www.climb-support.org climb@poboxalaska.net
Parents started this site in 1987 and continue
to run it to provide mutual support for those
who have lost a twin or higher multiple at any
time from conception through birth, infancy
and childhood.
PO Box 91377
Anchorage, Ak 99509
EriChad Grief Support
‘Loving support for bereaved parents’.
Information, links to other sites, good
information.
(www.erichad.com/abc)
http://www.fathersgrievinginfantloss.blogspot.
com/
First Candle
www.firstcandle.org
This site offers English and Spanish crisis
counseling, 24/7, for those who have
experienced the death of an infant from
sudden infant death syndrome (SIDS) or another
cause.
Honored Babies
www.honoredbabies.org
Families who have suffered a miscarriage,
ectopic or terminated pregnancy, stillbirth, or
neonatal or infant death will find support and
information on the Honored Babies website.
Hygeia Institute for Perinatal Loss &
Bereavement
www.hygeia.com
Hygeia is a nonprofit organization that provides
compassionate and supportive programs and
counsel to families who have experienced
perinatal or neonatal loss.
March of Dimes: Pregnancy and Newborn:
Health Education Center
www.marchofdimes.com/pnhec/572.asp
This website of this well-known organization
promotes healthy pregnancies and answers
commonly asked questions about dealing with
grief, helping siblings, coping with loss of a
multiple, and recognizing differences in
grieving between men and women. It also
provides other grief resources.
Missing Grace Foundation
www.misinggrace.org
This group provides help for families who have
gone through pregnancy or infant loss,
infertility, or adoption and advocates for
comprehensive, patient-focused prenatal care.
Resources include support groups and a gift
shop as well as information on stillbirth
prevention and awareness projects.
Memory Book:
http://www.foreverheart.ca/
This is a parent baby book written by a mom at
my hospital whose son died of HLHS- she
struggled as she did not have a baby book for
him like her daughters. It has sleeves for
mementos, pages that can be removed if they
don't apply, and lots more.
M.E.N.D. (Mommies Enduring Neonatal Death)
www.mend.org
Christian resource for miscarriage or early
infant death, offering a way to share
experiences and information.
PO Box 1007
Coppell, TX. 75019
972-506-9000
St. Charles, MO 63301
(314) 947-6164
This group provides two gateways of support,
one for parents and one for professionals. Its
website offers information packets, a chat
room, a newsletter, and counselor training
materials.
M.I.S.S. Foundation
PO Box 5333
Peoria, Arizona
85385-5333
E-Mail info@missfoundation.org
Extensive site ;leader in work on legislation to
recognize babies born still.
Subsequent Pregnancy and Infant Loss
Support (SPALS) www.spals.com
SPALS hosts an e-mail based active supportive
discussion group that is composed of parents
who have experienced the loss of a child
through miscarriage, selective termination,
stillbirth, neonatal death, SIDS, or an accident.
Members provide mutual support and
information regarding subsequent pregnancies.
National Sudden and Unexpected Infant/Child
Death & Pregnancy Loss Resource Center
www.sidscenter.org
From Georgetown University’s National Center
for Education Maternal and Child Health, this
site is a gateway to information on SIDAS and
other perinatal loss topics. It contains links to
bereavement support organizations
bibliographies, statistics, a journal alert service
and more .Offering English and Spanish
content, its intended audience is parents and
professionals.
The Compassionate Friends, Inc.
www.compassionatefriends.org
This national organization provides grief
support after the death of a child at any age,
for any reason. It offers live chat, videos, a
local chapter locator, and downloadable
brochures.
National Headquarters PO Box 3696
Oak Brook, IL 60522-3696
(708) 990-0010
P.L.I.D.A.
www.PLIDA.org
Pregnancy Loss and Infant Death Alliance;
National membership organization, Biannual
Conference for parents and professionals;
excellent Resource Listing
RTS (Resolve through Sharing) Bereavement
Services
www.bereavementservices.org
Trainings, resource materials available.
Lacrosse Lutheran Hospital
1910 South Avenue
Lacrosse, WI 54601
(608) 791-4747
SHARE
www.nationalshare.org
Pregnancy and Infant Support, Inc.
St. Joseph’s Health Center
300 First Capital Drive
The Ectopic Pregnancy Trust
This is a medically oriented site with extensive
information about ectopic pregnancy.
www.ectopic.org
Treasure Beans
www.treasurebeans.com
Take a look at these- this mom has taken her
grief over her stillborn daughter and made
beautiful little mementos of worn stone (kind
of like a worry stone) and magnets as well.
Other Websites:
www.trisomy18support.org
Information on Trisomy 18, other families’
stories, expectant parents’ guide, store
www.rowantreefoundation.org
Parent Support, resources,
http://www.txmomsoftinyangels.org/index2.ht
m
Resources listed on line
General Info/Jenny Coffey
jennycoffey@txmomsoftinyangels.org
There are many generous volunteers who provide items to support grieving families.
Listed are the current providers of support to the Bereavement Program at Crouse
Hospital.
Kaitlin’s Angels
Kaitlinsangels.blogspot.com
Clothing and items of support and
remembrance are provided.
Threads of Love
2 local chapters provide clothing,
blankets, cloth envelopes and items as
requested.
There are two local Threads of Love
Chapters in our area that donate to
C.N.Y families. FYI-Both are always
looking for more skilled sewers,
knitters and crocheters. If you are
interested in donating time, fabric,
other supplies or skills, please contact:
The Fayetteville Chapter: Peggy
GoodellChihuahuaMom@twcny.rr.com
Liverpool, UCC Bayberry Threads of
Love: Carolyn Vickery:
Carvick60@gmail.com
Memory Block
In memory of their daughter Audrey
Anne, a family set up a fund to provide
you with a memory block.
If you are interested in a personalized
block, simply call the RTS Perinatal
Bereavement Services office at: 315470-2768 or 315-470-7372 or visit
http://www.crouse.org/services/maternity/pe
rinatal/memoryblocks/
ToleNet
Memory Boxes are done by a group of
tole painting artists through an
organization called ToleNet.
www.memoryboxes.org
Other items to consider:
Peace Bear
In memory of their daughter, Peace,
Cyle and Patty Young provide Teddy
Bears for grieving families.
Peace_bears@yahoo.com or
www.peacebears.org
Ashes in Glass
A local artisan, Don Burke, will put
ashes into glass .He has a number of
colors and items to choose from he is
very reasonable ($35.00) and is at
TheGlassshed.com or 315-299-8036