April 2015 - Dementia Concern

DEMENTIA CONCERN NEWSLETTER
APRIL 2015
VOLUME 5
ORGANISATIONAL UPDATE
Where we are now
After a number of changes to the newsletter, we have now settled on the current shorter format. Of
the people who filled in our recent survey, 30 wanted the newsletter to continue as before. But I have
also taken into account the time and direct costs of producing and printing the newsletter – given that
some of our services have long waiting lists; any savings made can be used to shorten these.
Dementia Concern has just applied for funds from the Better Care Fund for an enhanced Community
Support Service for people with dementia living alone. The aim is to provide extra, co-ordinated
community support to help keep people with dementia out of hospital and long-stay care, while
improving their quality of life at home. We are also looking at the possibility of providing weekday care
at Elm Lodge.
We are seeking funds from and making applications to Ealing Clinical Commissioning Group and the
Health & Social Care Fund and will know the results of all this by the start of July 2015. I am hopeful,
but far from certain, that our funding will continue and that, with your continued support, we may be
able to expand services in the coming years.
TOM SMITH
DIARY OF ON-GOING EVENTS
DEMENTIA CAFÉ 2015
Tom works with
Dementia Concern as a
driver.
He began work as one
of our bank staff in 2004.
Later he was employed
as a permanent driver at
Elm Lodge and he has
been driving for the
Working Age Dementia
Group at the Hobbayne
Centre for several years.
Tom is very keen on fundraising for Dementia
Concern. He has taken part in the British 10K on
two occasions and this July he will be running
with his daughter - Sally. Together with his wife
Maureen he has successfully nominated the
charity for the Let’s Do It Awards jointly run by
Barclays Bank and the Ealing Gazette.
Tuesday 14th July
Wednesday 9th September
At the Liz Cantell Room, Ealing Town Hall
7.00 pm to 9.00 pm
CARERS’ INFORMATION EVENINGS 2015
7.00 pm - 9.00 pm
Wednesday 29th April at Sycamore Lodge
( Demystifying Dementia)
Wednesday 27th May at Elm Lodge
( Diagnosis & Medication)
To reserve your place, please contact Joy at
Dementia Concern on 020 8568 4448
PLEASE NOTE WE PROVIDE TRANSPORT FOR
DEMENTIA CAFÉ ONLY
WEEKDAY INFORMATION SESSIONS
For anyone with an interest in dementia
William Hobbayne Centre
St. Dunstan’s Road, Hanwell W7 2HB
‘At one time my sister-in-law attended the
Elm Lodge day centre so I have personal
experience of the effects of dementia. I aim
to help people with dementia and their
carers to stay motivated and keep going often in difficult circumstances.’
Fortnightly sessions from 1:30 - 3:30
Next dates are: 30th April & 14th May
FORMER CARERS’ GROUP
Carers’ Centre
46 South Ealing Road, Ealing W5 4QA
All meetings are from 10.30 — 12.30
on the third Thursday of each month
CARERS’ VOICE
The Care Act and its implementation in the London Borough of Ealing
Our September 2014 newsletter gave you an overview of the new Care Act. The key points were:

Entitlement to assessment and support for people with care and support needs
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A requirement for local authorities to provide an independent advocate when appropriate
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Ensuring that care and support functions provided by the local authority are integrated with services
provided by NHS and other health-related services
At Ealing Community Network’s Health & Social Care Forum on 29 January, Adenike Tilleray, from the
London Borough of Ealing, gave an updated presentation on the local implementation of the Care Act.
Adenike said that the local authority is working to ensure that social work staff will be aware and trained
on the extensive new duties. The process is taking longer than expected but LBE hope to have clear
documents in place shortly e.g. screening and assessment tools and a contact centre. Information about
personal budgets will also be clearer and will inform service users if they need to make a financial
contribution to their care.
LBE is learning from internal case studies and will be inviting the voluntary sector to participate in some
of these as a way of sharing information and tools across the two sectors.
On 6th March a Carers’ Conference was held at Ealing Town Hall to highlight the ways in which care and
support are changing. The event focussed on the impact of the Care Act on carers. There was a
workshop on the new carers’ assessment form; carers were given an opportunity to give feedback before
the form is finalised.
Ealing Dementia Action Alliance
Ealing Dementia Action Alliance is having a
launch event on 18th May in the Liz Cantell
room at Ealing Town Hall. As there is limited
space, attendance will be by invitation only.
The aims of the alliance are:
- To ensure that the wider community
including businesses and service industries
are dementia-aware
- To work across organisations to improve
the lives of people living with and affected by
dementia
- To create clarity about how services for
people with dementia work in Ealing
Universal Credit Roll Out
Universal Credit, a new benefit for working age
people replacing a number of existing benefits
including housing benefit and tax credits, will be
rolled out to the London Borough of Ealing from
13 July 2015.
Initially this will only apply to new benefit claims by
single jobseekers, and will not apply to those who
care for someone who has a disability.
Your Vote Counts
A timely reminder that there will be a general election on 7th May! Anyone who has registered for a
postal vote needs to make sure that it is received by polling day. If you’re too late to post your ballot
paper back, you can hand it in to your local Electoral Registration Office or bring it to your local polling
station by 10pm on polling day. Contact your local Electoral Registration Office if you spoil or lose your
ballot paper. You can get a replacement up to 5pm on election day.
NHS 111
NHS 111 is the non-emergency medical helpline available 24 hours a day, 365 days a year.
It is free from both landlines and mobile phones. The service offers urgent medical help and
advice for callers whose condition is neither a 999 emergency or life-threatening, typically
where the caller:
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believes they need to attend A&E or another NHS urgent care service
doesn't know who to call or isn’t registered with a GP
needs health information or reassurance about what to do next
For less urgent health needs, their GP or local pharmacist should be contacted in the usual
way. In some cases a health professional will have provided a specific phone number to call
when concerned about a condition; the caller should continue to use that number.
A team of fully trained NHS 111 Health Advisers, supported by experienced Nurses and
Paramedics, will ask questions to assess your symptoms, then give the caller healthcare
advice or direct them immediately to the most appropriate local service, including:

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ambulance – if the NHS 111 Adviser thinks the caller needs an ambulance, they will
arrange for one to be sent, while the caller remains on the phone:
A&E
an out-of-hours doctor
an urgent care centre or a walk-in centre
a community nurse
an emergency dentist
a late-opening chemist
Where possible, the NHS 111 team will book an appointment or transfer the call directly to
the people the caller needs to speak to.
NHS 111 calls are recorded, but all calls and the records created are maintained securely,
and only shared with others directly involved with the caller’s care.
URGENT AND OTHER USEFUL CONTACTS
(020) 8568 4448
Dementia Concern for advice & information
from your named Dementia Adviser (9:00 - 5:00
Monday to Friday)
In an emergency
999
NHS urgent medical help and advice
(non life-threatening)
111
GP weekend opening
111
Pharmacy
111
Ealing Social Services (Office hours and out-of- (020) 8825 8000
hours Emergency Duty Team)
VIRGIN LONDON MARATHON
Donations in Memory
Nine runners will be taking part in the Virgin
London Marathon on Sunday 26th April.
Sadly, one of our runners has had to withdraw
owing to injury, but hopes to be able to
compete for us in 2016.
We have received donations in memory of
the following people
from their families and friends
John Davies
Aubrey Hill
Mabel Morwood
Sylvia Raines
Rodney Smith
We wish them all the very best of luck and
hope that they have a fantastic day.
BIKE RIDE
We are very grateful to Phil Skinner, who has
registered for the Prudential Ride London on
Sunday 2nd August. Phil is an experienced
LONDON
MARATHON
cyclist and
is looking forward
to the challenge
of this 100 mile bike ride.
Update
The following verses were written as a tribute to
the late Aubrey Hill, by his grandchildren.
‘So heaven has received another angel,
The night sky another star,
Your life has become a loving memory,
I know you will never be far.’
If you know anyone who would be interested
in taking part, please speak to Roger or Isabel
on 020 8568 4448.
‘A special smile, a special face,
A special someone I can’t replace,
I love you and always will,
You filled a space that no-one will ever replace.’
BRITISH 10K
We are looking for runners to fill the
remaining places in the British 10K Run on
Sunday 12th July. Thank you to Tom Smith
and his daughter Sally who have already
applied for this event.
Fundraising Update
CHARITY SHOP
CARE CONCERN TEA PARTY
Our shop, located at 432 Greenford Road,
Greenford, raises money for the charity by selling
donated goods. If you have goods to be collected
for the shop, please ring Doreen on 8575 3373
and she will arrange collection.
Thank you to everyone at Care Concern who
raised the amazing sum of £821 at their
Afternoon Tea in February. We are also
grateful to Balcon Court for hosting this event.
Dementia Concern is an independent charity which
has been helping people with dementia and their
carers in the London Borough of Ealing since 1982.
cafés, carers’ information evenings and our workingage dementia service.
You can support our work in the following ways:
We provide assessment, advice, information,

independent advocacy, support and monitoring, home 
respite care, weekend day care centres, dementia

By becoming a member for £10 per year
By making a donation
By remembering us in your Will
Supporting our Organisation:
223 Windmill Road, Ealing, London W5 4DJ
Tel: 020 8568 4448 Fax: 020 8568 1294
Email: enquiries@dementiaconcern.co.uk
www.dementiaconcern.co.uk
Company Limited by Guarantee No. 2748840 Registered Charity No. 1014834
Ealing
Clinical Commissioning Group