Summer 2012
Transcription
Summer 2012
news Issue #3 • Summer 2012 this is Jack as told by mom Sarah Jack with mom and dad H E WAS DIAGNOSED with Spinal Muscular Atrophy. Never heard of it? Neither had I until I was sitting in the emergency room with my 6-week old, Jack, who was having breathing problems. After he was diagnosed, doctors told us he had approximately 3 months to live. Our world fell apart. How could this happen? How could we say goodbye to the baby we fell in love with at first sight? We have never felt so much pain. SMA causes a degeneration of the Doctors told us Jack would eventually need to be on oxygen 24 hours a day; he would need a feeding tube since he would lose the ability to swallow. He would also need a suction machine as well as a machine that would mimic a cough for him. Knowing that Jack’s care would be very demanding, my husband and I moved to Colorado from our home in Arizona to live with my mom. IT ALL SEEMED SO OVERWHELMING. Each day, my world revolved around Jack’s care. I was lucky if I got to shower. I remember the day I got a call from a woman named Adrienne. She explained that she was from an organization called, “There With Care.” She asked me what they could do to help. I will never forget that feeling, like a little bit of weight had been lifted. I felt a little hesitant at first. Like other families may be more in need than us. She assured me that each family has different needs in many different circumstances and that they helped each of them in their own unique way. She asked me to tell her a little bit about our situation. I couldn’t believe how helpful and thoughtful this complete stranger was. She explained that they could deliver food so that we would not have to stress about grocery shopping. It was like a little bit of my world stopped crumbling around me. I could focus on my child, I could focus on his comfort, I could focus on making memories. “It was like a little bit of my world stopped crumbling around me. I could focus on my child, I could focus on his comfort, I could focus on making memories.” motor neurons in the brain stem and spinal cord. The signals from the neurons to the muscles are lost, and muscles can’t function. It is a terminal disease that would hinder his ability to sit up, crawl and walk. Eventually he would be unable to eat, speak, cough, swallow and even breathe. We should be able to watch Jack grow up. We should be able to dream about his future. But instead we were left waiting, waiting for the inevitable. (Continued on page 3) There With Care News • Summer 2012 • therewithcare.org 1 from our executive director BOARD OF DIRECTORS Board Chairperson Peggy Larson Fuller Board Director Michael Barnathan Board Director Pam Bernal Board Director Chris Columbus Board Director Paula DuPre’ Pesmen Board Director William Fuller, MD Board Director Geoffrey Hansen Board Director Michael Lewis Board Director Diane Nelson Board Director Mimi Roberson Board Director Jacqueline van Someren Board Secretary Amy Carpenter ADVISORY BOARD Jane Butcher, Michael Clateman, Esq., Dr. Daphne Haas-Kogan, Dr. Jeffrey Hansen, Anne Hanson, Rose Healion, Wendy Kahn, Tommi McHugh, Marti Sullivan, Patricia Wilson, Dr. Julie Zimbelman STAFF Executive Director Paula DuPre’ Pesmen Development Director Dana Bacardi National Expansion Director Amy Carpenter Program Coordinators Adrienne Ambraziunas, Mary Beth Appel, Isabela Nunez, Kim Richter Volunteer Director Beanie Brady Events Director Shanna Lawless Hospital Coordinator Cate Buck Program and Development Administration Robin Spitz Grants Director Nina Andaloro Programs Associate Tim Ramenofsky Development Coordinator Lora Covington Corporate Relations Kathryn Messman VOLUNTEER STAFF Steering Committee Laura Lee, Pam Bernal, Cindy Davis Creative Director Dan Ragland Website and Social Media Director Brenda Evans Care Ambassador Steve Doane Volunteer Training Director Lori Kashman E-Commerce Coordinator Monica Butler IT Support Sal DeVincenzo Baby Care Program Christina Cook, Susie Regnier, Melanie Patterson Warehouse Coordinator Sarah Housman, Hanna Keefe Patient Gift Program Marsha Ambraziunas Holiday Program Michelle Gallop Soup Station Coordinator Judi Belenski Soup Station Program Deborah Downs Team Chop Coordinator Cheryl Markel Team Bake Corky Wilcox, Karen Leuschel, Barb Senger Events Committee Brenda Evans, Sal DeVincenzo, Steve Doane, Bryan Ellis, Michelle Gallop, Elizabeth Glass, Meghan Hambacher, Kristin Kalush, Lori Kashman, Holly Kennedy, Carol LaBelle, Mary Lee, Remy Lovett, Cheryl Markel, John Digger Pelaez, Tim Ramenofsky, Katie Selvage, Anne Shusterman, Mary Spicer, Carol Steinbrecher, Sarah Vincent Administrative Volunteers Kathy Wight, Lyne Cahn, Beth Botansky Interns Bonnie Drake, Lindsey Frew, Hannah Friedman, Sarah Housman, Hanna Keefe, Katie Leeper, Remy Lovett, Dolly Muziri, Katie Selvage, Blake Wittenberg 2 Dear There With Care Community, Not long ago, as I left the office to deliver a bag of goodies to a patient and his family at the hospital, our coordinator Mary Beth said, “Take this book, he’ll love it.” When I arrived in the hospital room there was a little guy fighting cancer…a guy not too happy to have company. I quietly reached into the bag and pulled out the book and set it on the bed. “Mr. Happy,” I read from the cover and held it up. Justin cracked a smile from ear to ear. I began to read about how Mr. Happy meets Mr. Miserable and is determined to make him happy, too. I continued reading the book and each page brought bigger smiles and soon laughter. Before long Mom was laughing, I was laughing, and most important, Justin was laughing. We pulled out some other treats – Crocs and character Jibbitz, Legos, and occasionally returned to Mr. Happy and soon a few minutes became a Delivering a little care to Justin few hours. As I said good-bye and his family and headed back to the office, my heart was melting for this family. I was able to go home and that wasn’t the case for them. They were facing more tests, more treatments, and many unknowns. Several months later, Mary Beth got a text from Mom saying, “Sit down for this one. The cancer is gone. None, zero, zip…gone! Justin is officially cancer free. We are elated.” As the text quickly got passed around, tears were flowing in our office because we knew what that meant to them. It was the news they were wishing for. We knew in an instant that Justin and his mom and dad and sisters were now the “happy” family, and that it wasn’t a book that brought the smiles this time. Those of us at There With Care, including our many volunteers, donors, advisors, and staff, are humbled to be one small chapter of Justin’s family’s story. With gratitude, Paula DuPre’ Pesmen Executive Director There With Care News • Summer 2012 • therewithcare.org the magic of care Every day the phones ring at There With Care with calls from social workers for families who need our help. Every hour we are reminded how important it is to be able to be there for a family with a critically ill child. In 2012, we will help more than 250 families - more than any other year in our history. We continue to provide this support to each and every family who call on us through the magic of care that you help us provide. Did you know that There With Care is able leverage $1 into $4 worth of products and services for our families? Some of the ways we do this are by working with food banks and other local and national food resources, and by collecting gently used baby items. We also partner with local businesses to provide discounted services such as auto repairs, housecleaning, therapy and hold diaper drives and many other collaborations. This all works thanks to so many inspiring people, like you! Thank you for reaching out into your own communities and engaging your families, your employers, your book clubs, your co-workers, your neighbors, your kids, your friends. So many of you connect the work of There With Care to your communities, wave your wands and help turn every dollar into four. This magic directly impacts the services we provide to families. Amazed. Inspired. Grateful. That's how your generosity makes us feel. Thank you for being There With Care. Cindy Davis and Melissa Koester from Crocs deliver diapers to TWC from the Crocs Cares Diaper Drive Dana Bacardi Development Director this is Jack (Continued from page 1) Our goals were to keep Jack as comfortable as possible and to cherish the moments with him that we were fortunate to have. Chris and I decided we had a choice of how we spent our final weeks or months with our baby boy. We could either spend every day crying, locked in a room, or we could enjoy every single moment, making beautiful memories along the way. We created Jack’s bucket list. It included blowing bubbles, catching raindrops in the palm of his hand, touching the grass with his bare feet, finger-painting, going to the aquarium and the zoo, swinging in a park, and making a snow angel. We were determined to have the short time we had together be filled with love and true living. Over the months, Adrienne became much more than a stranger. She let me know that we could receive meals donated from a local restaurant, 4580. Since Jack had to travel with so much equipment, going out to a restaurant was very difficult. Having a special meal one night a week uplifted our spirits. AS THE HOLIDAYS APPROACHED, Jack was getting worse and was having a lot of trouble breathing and digesting food. Adrienne called our family to ask us if we would like Thanksgiving and Christmas dinner delivered. We hadn’t even thought about the holidays. She explained that they had volunteers who donated presents to families in the There With Care community. Our family decided to celebrate Christmas early. We bought Jack some reindeer pajamas and a few small presents. The next morning we all stayed in our pajamas, opening presents with our baby. Jack took his last breath in my arms at just 6 ½ months old, two days before Christmas. That night, there was a knock at the door. It was one of the There With Care volunteers with our Christmas gifts and dinner. We opened the gifts that were meant for Jack on Christmas Eve. They were so thoughtful to think of him. Jack is the strongest person I know. Not a day goes by that I don’t think of him and the love he gave us. He has touched so many lives in his little time here. Having Jack has taught Chris and me that moments are made to be forever memories and that life is too fragile to not enjoy to the fullest. We love our baby more than we ever thought we could and wish nothing more than to have him with us here today. We are forever grateful for this amazing organization that brought a little sunshine into our world when we needed it most. There With Care News • Summer 2012 • therewithcare.org 3 Honoring Our Volunteers T here With Care supplements the food that is delivered by volunteers to families with the help of Team Chop, Team Bake and so many others in our community. Some of the key ways food quality is improved comes through weekly donations from Door to Door Organics and Growing Gardens. The produce is collected and taken to an industrial kitchen where Team Leader Cheryl Markel and the amazing volunteers of Team Chop prepare, bag and label nutritious meals that can easily be reheated by a Some of Team Chop and Team Bake Volunteers – Baking with Care family after long days in the hospital. The volunteers of Team Bake collect frozen bananas and other delicious foods and regularly bake breads and other items that accompany grocery deliveries. Rudi’s Bakery, Whole Foods, Chipotle and Starbucks donate food so that each family receives breads and baked goods on a weekly basis. Catering by Piyanad prepares and donates a portion towards frozen meals that easily heat up, which are needed by families who are in a critical phase of illness with their children. These fresh and nutritious foods are delivered weekly to families by volunteers who personally shop for them and arrive at their door with groceries, and with care. There With Care programs— support where it’s needed 30%–Transportation (Gas assistance, auto repairs, taxis to treatment) First family served There With Care of the Bay Area I n February, There With Care of the Bay Area opened its doors to serve families treated at Lucile Packard Children’s Hospital in Northern California. The new chapter is growing quickly in volunteers serving families, under the warm and devoted leadership of Michelle Chang, who shares this note from the Director of Social Services at the Lucile Packard Children’s Hospital (LPCH): I simply cannot say enough positive things about this extraordinary organization. There With Care has provided essential support to patients and families at LPCH. They customize the assistance to meet the unique needs of each family and are always creative, enthusiastic, professional, and above all - kind, caring, and compassionate. – Jack Komejan, Director of Social Services – LPCH 4 19%–Home Maintenance (Handicap access, housecleaning for Compromised Immune and more) 24%–Meal Program (Groceries, frozen and hot prepared meals) 13%–Patient/Sibling Support (Items needed for patients and siblings) 7%–Baby Essential Programs (Car seats, cribs, infant clothing, diapers and more) 3%–Professional Services (Therapy, legal assistance) 3%–Soup Station (Soup Served each week at the Neo-natal ICU) 1%–IT Program (Telephone and Internet Assistance) 10% of our expenses go towards organization operation costs. There With Care News • Summer 2012 • therewithcare.org e express our sincere appreciation to the donors who make this work possible for children and families facing critical illness. Because of our generous donors, we are able to answer the needs of our community during a difficult time. We thank the following donors who gave their help through financial and in-kind gifts between April 1, 2011 through June 30, 2012. W INDIVIDUAL DONORS Lois Abbott Richard Adams Jeremy Adamson Elke Brigitta Adler Ellen Adnopoz Ellen Adrian Rebecca Aguilar Olivia Ahnemann Edythe Albano Angel Alexia Aubrea Alford Phyllis Allen William Allingham Alicia Alpenfels Elaine Alper Debbi Alpert Rachel Amaru and Christopher Kapantais Bryce and Adrienne Ambraziunas Ray and Marsha Ambraziunas Daniel Ambruso Kathleen Amenta Nina Andaloro Deborah Andersen Dave and Alli Angulo Francie Anhut Anonymous Paula, Dana and Dr. Greffe from Center for Cancer and Blood Disorders at CHC Barry Ansin Diane Anthony Scot Anthony and Anne-Marie Reader Dr. Theodore and Deborah Appel Mary Beth Appel Vivian Aranda Carolyn and Cam Arvas Nikki Asebedo Tommie Atanasoff Janelle Aune Lara Austefjord Anton and Dana Bacardi Suzi Bach Dan Bacon Jenifer and Thomas Bailey James Baker and Angela Chen Jill Bald Cheryl and James Ballantyne Jim and Suzanne Balog Marianne Balsick Albert Banisch Lisa Barenberg Michael and Charla Barnathan Charles Barnett Paula Barton Gintaras and Pamela Baukus Harold and Emily Baum Mary Bean Adriane Bee Judi Belenski Jeremiah and Susan Bell Chris Bell and Michele Moses Chris Benham Howard Benjamin David Bennett Diane Bennett Jeff and Lisa Bennett Kim Bennett Nancy Bennett Sam and Andy Bennett Hanan and George Bentley Deb Benyik Bernadette Berger Dan and Paulette Bergeron Lana Bergman Amy Beringer and John Grubb Ali Berman Ron and Pam Bernal Mandy Best Trina Bibbero Jason Bice David Bierman Bryan Biesterfeld Daniel and Joanne Biggar Asher and Irene Birnbaum Linda Bjelland Marcy Blacken Terence Blake Randall Blondeau Leah Bluestein Marie and Jim Boeckner Liz Boedecker Richard Boeye Jillian Bogert Barbara Bogner Allison Boice Bret and Cindy Bolin Melissa Bolton Sarah and Chris Bonelli Beth Botansky and Mitch Friedman John Bovey Mike and Kim Boyd Grace Boyle Barb Brabec and Geoffrey Hansen Kay Bradford Stephanie Brady Brian Branchford James and Judy Brantz Kendris Bratrud Abby Brekken Jane Brekken Elizabeth Bridges Amy Britton Christina Brodsly Becky Brooks Tyler Brooks Philippa Brophy Allen Brown Gregory Brown Buddy Brown and Lisa Lund-Brown Lisa Brownlee Marie Bruggeman Joan Bryan Peggy Bryans Cate Buck Karen Buelter Jim Bull Theresa and Mark Bullimore Debbie Bunten Jessica Burkholder Nathan Burns DeeAnn Buschbacher Dan Busse Mark Buswinka Jane Butcher Kenna Butler Monica Butler Glendon Butterfield Conor Byrne Sheila Cage Lyne Cahn Marc Cahn Andrew Call Timothy Callahan Bill Campbell and Alice Fiori Candace and Gary Canales Stephen and Margaret Cann Bridget Carlin Matthew Carman Sophia Carmien Stephanie Caron Megan Carosi Stephen and Amy Carpenter Thomas and Sally Carpenter Mark Carson Cat Caruso Robert and Anna Casey Theresa Casey and Jeff Seldin Colin Casillas Marisa Castaneda Carl Castillo and Kimberly Lord Lydia Cavallo Sue Cavnar Sr. Rose Stephen Cento, CSJ Collis Chandler, III and Anne Norris Chandler Friends of the Chandler Family Russell and Patricia Chaplin Angel Charles and Robert Birdsall Deborah Chavarria Michelle Chessler Ellie Childs Holly and Mabon Childs Tyler Chiocchio Emily Chislett Nicole Cho Curtis Chong Joe Christensen Roger and Marion Christoph Mary Clasen Michele Lee Clements Carl Closset Kristen Coffel David Cohen Eric Cohen Kelli Cole Myles Colligan Rebecca Colligan Jim and Mary Collins Sandra Collins Wanda Collins Ellie Coludro Chris Columbus and Monica Devereux Adolfo and Olga Comas-Bacardi Melissa Conaulty Susan Conley Sandy and David Conner Diane Connolly Angela Cook Ali Cooper Gene and Jo Copeland Meghan Corbet Theresa Corrao and Mathew Leonard Tanja Courtiol Lora Covington Jennifer Coyne There With Care News • Summer 2012 • therewithcare.org Scott and Christine Crase Paula Crawford Michelle Cromer Diana Cruzan Isabela Cubillan Nunez Jennifer Culbertson Adrienne Custode Matt and Lara Cutter Amy Dageenakis James Damron Raj Dani Richard Daubner Michael Davies Stewart Davies Catherine Davis Joel and Cindy Davis Andrew and Brooke Davison Megan Dawson William and Aimee Day Bella DeFrancia Dave and Julie DeGroff Maya DeHart Danielle Depue Louise Deverell Julie DiCarlo Manfred Dienstbier Michael Digiovanni Charles Dignan Josh and Kate Dinar Laura and Jeff Ditges Steve Doane Robin Doerfler Robyn Donahue Sharon Doney Diane Dooley Michael Dooley Melanie Doppelt Matt Dorighi Lenny and Shanda Douglas Preston and Caroline Douglas Linda Drozd and Rick Amenta Andrew Drummond Maria Dryden Becky Dubrow Barron and Elizabeth Boedecker delivering diapers Judith Dufala Julie Dunn Christoph Durkee Susan Dutcher Gina Earles Robert and Kate Eastman Linda Eberle Sissel Eckenhausen Joy Eckstine B and A Edwards 5 Undine Ehrman Delphine Eichorst Kristen Eisenman Willard and Margaret Eldred Christian and Kim Elgart Mike and Michelle Elings Boulder Cotillion collecting toys and gifts Jennifer Elliott Bryan and Hope Ellis Gary Ellis Greg and Brenda Ellis Tracy Emmanuel Matt and Caroline Engelbert Douglas Engle Care Enichen Britta Erickson Matthew Ertl Judy Erwin Cornick Cristina Escobar Jerry Eshbaugh Drew and Timolyn Esson Brenda Evans Christy Evans Elizabeth Evans Jolie Evans Katherine Evans Molly Evans Rebecca Evans Patricia Eversoll Mary Ewing Nancy Ewing Sara Ewing Jon and Jennifer Eyberg Sue Eyler Vaheed Fakoor Sevvom Patti Farouche Deidre Farrell Marta Farrell Jennie Feiger Daniel and Debbie Feiner Deb Felio Michael Fenton Brad Fink and Carole Brandt-Fink Alexandra Fischer Erica Fischer Donna Fisher Regina Fisher Margaret Fitzgibbons Sara Fitzpatrick Tracey Flanagan Duncan Jim and Susan Florsheim Devon and Patrick Flynn Graeme Forbes Peter Ford Chris Ford and Heather McLaughlin Nicholas Foreman, M.D. Jennifer Foskett Amy Foster Jack and Nathalie Fox Pat Frahm M.S. and C.J. Frankel Rick Frankel James Franklin Tamera Franklin Paige Frawley David Fredericks Douglas Freeman 6 Juri Freeman Brian Freer Michael and Marylou Frendo Michele Frendo John and Marcia Frew Alan and Jean Friedberg Michelle Friedrich Nancy and Frank Friedwald Sarah Friend Kent Friesen Lisa Frizell Keoki Fuentes Erik Fuller Jessica and Kris Fuller William Fuller, M.D. Andrew Funk and Peggy Freeh Nicole Furman Carolyn Gaechter Deborah Gaines Kristin Galbreath Sharon Galdieri Kathy Gallion Michelle Gallop Leigh Gannan Kimberly Gannett Tracie Garber David Gardiner Grace Gardiner Lolly Gardiner Avi Gardner Jane Garmyn Stephanie Gatewood Richard Geise Erik Gellerstedt Mike Gelormino Glorianne Gendron Mark Gendron Matt Gendron Caryn Gerber Janet Giambrone Catie Gibson Doug Gier William Gilbert Machal Gillach Peter and Barb Glanville Daryll Glass Elisabeth Glass Kathy Golden Andrew Goldman Alisa Goldschmidt Matthew Goldstein Vicki and Richard Goldstein Doug Golliher P and S.I. Goodman Christi Gordon Stacy and David Gordon Lia Gore Vicki Gowler Linda Graham Douglas and Lisa Granat Gillian Grant India Grayson Joseph Greene Timothy Greenfield Jonathan Greenstein Brian Greffe, M.D. Rich and Robin Gribbon Robert and Patricia Gribbon Luciana Griffin Cathy Groene Joel and Jenny Grosshans Drew and Melissa Grumhaus Shandele and Oliver Gumucio MacLean Guthrie Jan Haas Bryan and Pamela Hagerty Cindy Hagg M and K Hall Samantha Hall Joakim Hallbert and Maria Hopfgarten Jen Hamada Holly Hamann Meghan Hambacher David Hampe Van and Chris Hanover Ron and Bobbi Helart Lynn Hellwig Molly Hemenway Chris Hennig Kelly Collins Henninger Jessica and John Hernandez Ana Maria Hernando Elena Hershey Katy Hess David Heyman Ryan Hiatt Joanne Hilden David and Joan Hill James and Pam Hill Jules Hochman Matt Hoffman Tracy Hollister Suzanne Holmes Dean Holmstrom Jillian Holmstrom Ryan Hoover Merritt Hopper Jennifer Hoppert Confio Software's There With Care Team at St. Baldrick's Event Angela Hansen Christopher Hansen Jack Hansen Mary and Michael Hansen Meg Hansen Scott Hansen Emmie Harris Kevin Hart and Jill McReynolds-Hart Duke and Pam Hartman John Harwood II and Corbin Harwood Ana Hasfura Kellon and Amanda Hassenstab Marcia and Royce Hatch Bernard Hatcher and Stephanie Anagnostou Brad Hattenbach and Linda Pelaez Hattenbach David and Katie Hawk Jackie and Harold Hawkey Brett Hawton Desiree Hayes Susan Riker Hayne Taru Hays Peter and Arlene Heinz Charla Hoppins Dacia and Sofie Horn Melonie Housman Sarah Housman Ann and Kevin Howe Kaye Howe Tami Huberty Tom and Karen Hubner Ralph and Sarah Hubregsen Brian and Tucker Humphrey Stephen Hunger, M.D. and Camille Pane David Hunsicker Laura Hunsinger Jennifer Hunt Patricia Hunter Sue Huntington Christopher Hurt Ed Hut Sonny and Mary Anna Hutchison Brenda Ipock Sandra Ireland Justine and Grant Irland Beverly Irwin Lisa Irwin there with care wish list • Bouncy seats • High chairs • Table booster seats • Bassinets • Mobiles • Pack ‘n Plays • Diapers (sizes newborn to 6) • Baby wipes There With Care News • Summer 2012 • therewithcare.org Mary Beth and Kate Dinar with a generous donation from H Burger John Isaac Kathleen and Mike Jaden Andrea Jaffe Mike and Melody Jamali Nancy and Tom James Curt and Jannet Jamison Carol Janik Kazia Jankowski Maryan Jaross Joel Jensen Scott Jensen Jason and Allison John Emily Johnson Daphne and Mark Jolley Barbara Jones Jonathan and Karen Jones Juliet Jones Scott and Lisa Jones Dave and Nancy Jordan Ginny Jordan Marsha and Michael Joyce Wilson Judd and LaVada Glass-Judd Ginger Juhl Michael Kabjian Peter Kallai Kathleen Kallhoff Mike Kalush Shelly Kandian Michael Kanemoto John and Millicent Kang Karl Kassler Kathryn Kattar Holen Katz Andrew and Helen Keller Colleen Kelley David Kellogg Pamela Kelly Amy Kemp Loren Kennedy Patrick Kennedy Rini Kester Claire Khadakkar Andre Kiburis Igor Kil and Tatiana Vazioulina Anna Kim Nancy Ann King Brooke Kingsley Jessie Kinyon James Kirwan Silvia Kjolseth Julie Klein Roberta Klein Steven Kleinbaum Erin Klitz Barb and John Knapp Wilder Knight Mandi Knox Tina Koebel Marcia Kohler Brian Kolar Robert and Elizabeth Kolar Stephanie Kolar Neil and Debora Kolwey Rachel Konrad Amy Koop Annie Kopelman Helen Kornblum Diana Kotecki Kathryn Kowalczyk Shai Kowitt Marty Koyle Marty Koyle and Ellen Canfield Shannon Kozee D Kramer James and Lisa Krieg Michael and Beth Krissel Beverly Krodel Ronald Krodel Beth Krodel and Bryan Smith Gwen Kubec David Kurtz Enid Kurtz Shelly and Daniel Kurtz Carol LaBelle-Ehrhardt Travis and Christine LaBerge Ellen LaGow Scott and Susan Lancashire David Lane Claire Largesse Lauren Larsen Andrew and Amy Larson Peggy Larson Kimberly Lavold David and Dorothy Lawless Michael and Shanna Lawless Whitney Lawless Stephen and Emilia Lawson Shelley Lawton Molly and Nick Lazzara Shari Leach Richard and Jeanie Leddon Andy and Laura Lee Theresa Lee and Robert Smith Jr Jeffrey and Kim Leeper Geoffrey Lehr Teresa Lerose Kathleen Leroy Payton Lester Carol Levenherz Sarah Levin Beth Levin Kelley Ileene Levine Barbara Levoff Cynthia and Ryan Lewis Danielle Lewis Michael Lewis Rich and Vivian Lewis Deborah Lieberman and Jonathan Friedman Marlys Lietz Kim Lightfoot Cheryl Liguori Sarah Liles Jennifer Lind Jean and John Linderman Catherine Lissendon thank you to the volunteers and donors who have provided the incredible gift of: $1,385,664 donated volunteer and professional service hours $1,261,722 donated in-kind items Helen Lorell Jeffrey Lorell Gloria Lorton Kristen Lovato Laura Love Glen Lovit and Mary Junkersfeld Troy Lowrie Cathy Luchetti Anna Lull Daniel Lynch Stephanie Lytle Casey and David MacKenzie Mr. and Mrs. David MacKenzie Stephen and Maureen MacMackin Sally and Cam MacMillan Margaret Macy John and Jenny Madden Diana Madsen Christoph Magerl Julie Maier Lika Maldutis Michael Malloy Kelly Maloney Armando Manago David and Joanna Mandell Sarah Mansell Steve Manuel Maurie Marcil Cheryl and Robert Markel Sara Markey, M.D. Sheri Marks Jen Markus C Marshall Christina Martin Jenifer and Lawrence Marx Jami Maselli James and Barbara Mason Patti and Gordon Mason Wesley and Kelsey Mason Jai Massari Shannon and Anne Matheny Colleen and William Martchenke Steven Mathias Jody Mathie, MD and John Hoffman Susan Matos Bill and Susan Maxfield Webroot's There With Care Team at St. Baldrick's Event Beverly Littlejohn Robbie Lockard Dave and Elisa Locke Ann Lockyer Bretta Loeffler Jennifer Long William Lopatin JoAnn Lopez Donna Mazzitelli Kevin McCabe Karen McCarthy Darla McCartney Jenny McCarty Kevin McCarty Megan McConnell Margaret McCormick Kelly McCrann There With Care News • Summer 2012 • therewithcare.org Patrick and Jennifer McCroskey Stacy McElvaney John McElveen Andy McEwen Todd McFadden Elizabeth McGarr Andrea McGill Shaun McGovern Kim McKeen Sarah McKenzie Katie McLaughlin Susan McMaster and James McMaster III Renee McMichael Mary McNaughton Gerald and Bonnie McNellan Michael McNellan Jeanette McQueen Susan McVicker Karen McVoy Donna Mecca Tania Medel Linda Medina Deb Meile Leslie Merrill Constance Merritt Lawrence Merritt Patti Ann Merritt Alice Messinger Paul and Jesse Meyer Lindsey Micel Kelsey Michl Bryce Miller Janey Decker Miller Kelly Miller Heather Mills Jay Mills Mary Mindham Richard and Linda Mintzer Todd Miranowski Doyen Mitchell Holly Mitchell Kelsey and Josh Mitchell Geri Mitchell-Brown Heather Mock Michele Moffett Christi Mollohan Jessica Moment Roger Moment Holly Monahan Timothy Monarski Connie Monsees Barbara Monseu Suzanne Moore Erin Moran Trace Moriarty Masahiro Morimoto Dom and Wendy Morone Betsy Morreale David and Virginia Mortell Ben Moss Rob and Gwen Mossman Brooke Moulton Joy Mulder Nancy Mulligan Katherine Murphy Michelle Murphy James Murray Robert Myers Ashok Nagaraj Tara Naitaqi 7 family support by the numbers 86% – families we serve who live below poverty guidelines 111 – average number of days a family receives support $2,317 – average cost to serve a family through crisis 224 – total families served in 2011 Glenn and Robbin Neher Edward and Wendy Nekritz Elizabeth Nelson Kelly Nelson Farley Neuman and Sheila Brown Jeanne Newman Paul and Kathleen Newman Preston Niesen Paul Nicholas Zobi Nieto-Handerhan Timothy Nikander and Maryann McCullough Vadim Nikitin Sandra Nolan Bill Norris Chris Nugent Edward Nunn Melissa Nunn Steve and Holly O’Keefe Mary O’Malley Katherine O’Neill James Oatman Noelle Oberg Bruce and Christy Ochs Jill Ogborn Christian Ogden Alexandra Oleary Michael and Sally Oliver Peggy and Burton Olmsted Dan Olson Doug Olson Russ Olson Stirling Olson Larissa Ortega CL Orzak and KJ Simpson Barbara and Ray Osborn Carol Osborne Todd Osborne Scott Ostrin Janet Oswald John Otto Joshua Owen Dimitra Palmos Clinton Paquette Lise Parent Lauren Park Lizbeth Parker Nancy Parker Todd Patrick Pegi Patwardhan Judith Paul Ioannis Pavlidis and Beanie Brady Juli Pearce Bill Pearlman Penni Pearson Jill Pechacek Susan Peck Michelle Peebles Alfred and Bridget Pelaez Mara Pelaez Angela Peltz Kathryn Penzkover Laura Perdew Julie Perkins Dawn Perteet Sandra Pesmen Curt Pesmen and Paula DuPre' Pesmen Julie Petcher and Ronald Petcher, M.D. Brooke Peters Kenneth Peters 8 Elisha Peterson Inga Peterson Sasha Peterson Eric Pierce Caroline Pirritt Jamison Plavec and Ellen Lenya Shore Plavec Christine Poggioli Chris and Rhonda Pohlman Darlene Polidoro Bruce Porcelli Christopher and Renee Porter Elizabeth Pounder Colleen Powers Tara Powers Manoj Prasad Beth and Howard Preis Kathy Prescott Frank Price Janet and Mark Price Lauren Price Eileen Prichep Jennifer Pringle Yuri and Alexandra Prizemin Nadine Pyter Bryce Quayle John Quinn Barbara Quintana Daniel Radcliffe Gail and Leonard Rago Michele Raidy Naveen Rajan Jenna Ralston Sri Ram Tim Ramenofsky Kathleen Ramirez Aaron and Lara Ramsey Nancy Rao and Cory Sperry Timothy Rastello and Marion Taylor Raquel Ray Mary Rea John Reading Emily Redfield William and Kathy Reece Mary Jane Regan Ann Reid Emily Reis Valerie Renkert Marina Revzina David Rheingold Adam Rhum Nicolas Richardson Ryan Richardson Kim Richter John Ricotta Lynne Rienner Barbara Rinehart Carol and Richard Rinehart Debra Roads AnnaSophia Robb Richard Robbins Nicholas Roberts Michael Robson and Wendy Kahn Rodehaver Family Arturo Rodriguez Guillermo and Rebeca Rodriguez Ashley Rogers Jonathan Rogin Mary Rollins Rebecca Rose Steve Rosen Joey Roth Judy and Rolf Roth Bess Rubinstein Helene Rubinstein Sergey Rudenko and Vera Balaeva Pesha Rudnick Stephanie Rudy Ashleigh Ruehrdanz Anna and Robert Ruple Emiliano Ruscitti Newman and Gloria Rutherford Lynn Ryan Bob and Dee Sachs Jonathan Sachs Jennifer Salstrom Tara Salz Eileen Sammells Jasvir and Narinder Sandhu Kipling and Bailey Sandoval Tina Scala Janna Scarborough David Scarola Amy Scheff Loretta Schink Schmelzer Family Taylor Schmidt Kevin Schoedinger Jonathon Schoenbery Natasha Scholze Earl and Joyce Schrammel Kurt Schrammel Amy Schwartz Jeffrey Schwartz Cynthia Rixey Scott Laura Scott Peter Scott Castle and Roxi Searcy Allison Sedey Sarah Seifert Jeanice Selko Katie Selvage Barbara Senger Leonard and Sheila Servetar Amanda Sevvom Emily Sewell Joyce and William Skaggs Blake and Patricia Skinner John Skram Gail Sloat Arthur Smith Dyane and Clif Smith Glenda Smith Jan and Eric Smith John Smith Ryan Smith Sally Smith Susan Smith Terri Smith Olivia Smyth Laura Snider Nina and Min Sohn Madeline Solano Martha Solis-Turner Ariel and Kristen Solomon Mark and Amy Soltes Nicole Som Craig Sommers Nurjehan Spahn Jodee and Michael Spalding Peggy Spiro David Spitz Robin Spitz Stuart and Murial Spitz Daniel Springer Laura and Stephen Staats Elizabeth Stands Molly Stauffer Carol Steenburgh Annie Stein Michael Steinberg Elizabeth Steiner Jenel Stelton-Holtmeier M and J Stemper Daniel, Sharon and Ari Stern Ralph and Fran Stern Sunday Stevens JoAnn Stibrich Stefanie Stibrich Tom Stockebrand Michael Stone Gina Strano Twig Salon donating their time for Give Hair With Care Event Susan Sgambati Katherine and Geoff Shaffer Nancy Shanahan Dave Shapiro Dave Sharpe Roie and Mike Shields Cathleen Shoenfeld Nick Shortle Anne Shusterman Tracy Sickels Barbara Sieckman Kenton Sieckman Sinead Siems Christopher Silliman Will Silverstein Stephen and Joan Simmons Thomas and Karen Simmons William Simmons Lesley Simonson Ryan Simpson Ron and Michelle Singh Josephine Sjelhoj There With Care News • Summer 2012 • therewithcare.org Ali Strawford and Adrian Sussmann Emilio Suarez Chris and Jere Sullivan Linda Sundbye Ron and Jann Swanson Kathy Swindell Corrie Symons James Szabo Marge Szoke Betsy Tarpley Robert and Shirley Tatem Laura Taylor Mandy Taylor Stephanie Teller Jeff and Nancy Tellock Scott and Danielle Tennant David Tenzer and Ana Lazo Tenzer Michelle Teo Cindy Terowsky Bryan Tervo Ann Marie and Brian Tewey Alrick Thedwall Cameron Thiel Elizabeth Thompson Jeff and Kristy Thompson Sadie Tilman Kelly Titterington Dana with Iva from Big Red F Restaurants, one of our Signature Event sponsors Stephanie Titus Tara Todd Michelle Tomasko Ronald and Lisa Tomaszewski Marina Totalca Shawn Townsend Tonya Trapp Stacey Travis and Michael Travis, DDS Janet Triller Peter and Sue Troller Barbara Truan Joel Tucker Stacy Tucker Nancy Turner Richard Turner and Britta Erickson Sarah van der Hoop Nicko and Jackie van Someren Holly Vance Carolin vanderLaan Jody Vann Kathryn Vertigan Cyril and Stephanie Vidergar Karin Viggio Sarah Vincent Maria Vitale Kathy Voight Jessica Vom Steeg Andrew Vu Burt, Jean and Zoe Wagner Arthur Wainwright Jack Walker Matthew Walker Ryan Walker Patrick and Hilary Wallace Scott and Kjirsten Wallace Mike and Ingrid Walsh Lori Walter Mike Walters Jason Wange Joanne Warner Peter Waters David Waugh Kathy Webber Brad Weeks Mark Wehde Sofia Weidknecht Jeffrey Weinman David and Kathryn Weinstein Elizabeth Weinstein Matt Weinstein Sara Weinstein Taylor Weinstein Penny and Ernie Weis Robert Weiss Jennifer Wert William West Hugh Westermeyer Candice Westphal Craig Whetstone Michael Whisman Patricia Whitaker Jeffrey and Renee White Kimberly and Jonathan White Carolyn and Adam Whitehead Margaret Whitehead Jon and Gin Whitney Amy Wiley Dick Williams Frankie Williams Lois Williams Melanie Williams Amanda Berg Wilson Jennifer Wilson Amy Wimmer Brian and Brooke Winter Eric and Rachel Winter Gary and Marjorie Winter Clare Wise Blake Wittenberg Kristen Wolf Todd and Eliza Woloson Christie Wood Curtis and Kathlyn Woodard Auto Repair Place Autotailor, Inc. Avid For Adventure Avnet Technology Solutions Awakening Through the Body B&C Steel Bacaro Balfour Senior Living Barbara and Company Becoming Mothers Berg Hill Greenleaf & Ruscitti LLP Berg’s Small Moves, LLC Bhakti Chai Big Red F Restaurant Group Bluestone Marketing Body In Progress Bogey’s Bookies Boom Yogurt Bars BottleHood Inc Boulder Ballet Boulder Creek Events Boulder Cycle Sports Coburn Development, Inc. Coldwater Creek Collectors Care Confio Software Costco Covidien Crocs Inc. Dan Ragland Design Delta Dental of Colorado Denver Zoological Foundation, Inc. Deyo Designs Dining Delights, LLC Dish Gourmet Dog Daze Photo Doggie Depot Day Care Door to Door Organics Earl’s Denver Glenarm Eco Products Elder Auto Eldorado Water Elevation Reps of the Rockies, Inc. Elway’s EnCana Oil & Gas (USA) Inc. with thanks There With Care is grateful to those of you who have donated your gently used baby items. Your strollers, cribs, bouncy seats, books, clothing and more have helped hundreds of families in the NICU at the hospital. A huge Thank You to you all! Brad Woods Carly Woods Charlie and Kirsten Wright Laura Wright Adrine Writer Diane Writer Sarah Wu Kelly Wyatt Cindi Yalkich Melissa Yerke Ed Yoblonski Mary Lee York and Eric Smith Susie Youn and James Booth Emily Yu Jessie Zettlemoyer Rich and Marilyn Zeigler Andrew and Kerry Ziller Scott and Julie Zimbelman Aaron and Kathy Zimmer Diane Zoltowski CORPORATE DONORS 1313 Salon 29th Street Theatre 3rd and Vine 8Z Mortgage A Custom Look Photography Academy Park Pediatrics, P.C. Adde’s Catering Kitchen Adobe Systems Incorporated Affinity Videonet, Inc. Affordable PC Medic Air-O-Pure Portables Alison Blair Studio Alivan’s Master Wandmakers All American Merchant Financial Services, Inc. Anglogold Ashanti North America, Inc. Applejack Liquor Arbonne International Art and Soul Artisan Center Aspen Family Care Aspen Medical Aesthetics ATEK Heating & Air Boulder Indoor Soccer Boulder Internationl Film Festival - BIFF Boulder Performing Arts Boulder Universal Boulder Wine Merchant Brasserie Ten Ten Breckenridge Brewery and Pub Broadway in Boulder Brown Palace Hotel Buell Center for the Performing Arts Buffalo Lock and Key Buffalo Wild Wings Bull Publishing Company Butterfly Pavilion Caboodle Unique and Handmade Gifts California Pizza Kitchen Catering by Piyanad Celestial Seasonings Cherry Creek Grill Chess House Childish Things Children's Hospital Colorado Enter the Earth, Inc. Europa Creative Fast Frame of Boulder Fastball Technologies, Inc. Fine Arts Mannequins Finger & Toes, Inc First Bank Fish Flatirons Bank Frasca Full Cycle Futuristic Films Fuzziwig's Candy Factory G.E.T. Enterprises, Inc. Garney Construction Ghost Plate and Tap Gigi’s Cupcakes Glacier Homemade Ice Cream Google Graham & Company, P.C. Grapevine Liquors on Monaco Great Clips Monaco Parkway Love for Lily Shares the Love at There With Care Children's Hospital Colorado Center for Cancer and Blood Disorders Chipotle Chocolove Christy Sports Cinzetti’s Northglenn Classic Cabinets and Design Clementine Studios There With Care News • Summer 2012 • therewithcare.org Great Harvest Bread Company Green Mountain Coffee Roasters Growing Gardens H Burger Co Hacienda Colorado Happy Madison Productions Happy Noodle House Hardy Klahold Photography 9 Hawk Quest Hestra House Clean Services LLC Housman Family Corporation IBM Employee Services Ignite Marketing Impact Wealth Advisors, Ltd. In The Telling Press In-Sink-Erator Innovation Group Insight Designs Web Solutions, LLC Integrity Cleaning & Restoration Services Dana with volunteers from Larry H. Miller Toyota InTune String Ensemble Islands IV Seasons Skin Care Izze James Nursery Jax Fish House Jay’s Valet Jet Hotel Jill’s Restaurant Jim McCormick Sales John Atencio John’s Cleaners Johnson and Pike Justin’s K/O Paper Products Kaiter Enterprises Inc kasina King Soopers #35 L’Atelier LaBelle Nails Lake’s Mountain Organics Larkburger Larry H. Miller Toyota Boulder Laser Quest Denver Laughing Goat Lesson Studio Liberty Street Securities, LLC Link Design Lab Little Me’s Lucky's Market Lululemon Athletica Lynch and Associates M&D Construction MacMillan Investments, Inc. Madison House, Inc. Mariel’s Boutique on Larimer Square Martin Auctioneering Marv’s Towing McDonald’s MDS Counseling Center Mentor Graphics Foundation Mijo’s Inc Mike’s Camera Miller Coors Miss Magoo Momentum Monkey Toes Morphology Games Mountain Kids Mountain Sales Mountain Sun My Handle Bar My Sweet Bakery Natural Radiance NDP, LLC Neve Designs Nite Ize North Boulder Little League Nutra-physique Oh My Bag Old Chicago Broomfield Open Arts Painted Primrose Papou Pizzeria Parascript, LLC. Pasta Jay’s Paysage International Peaceful Mountain Labs Phase 5 Inc., Propaganda Labs Picture Perfect Treats Pizzeria Basta Pizzeria Locale Plato’s Closet Polycom, Inc Prana Quanta Power Generation Racines Restaurant Denver Radda Rags to Riches Rally Sport RC Special Events Real D Red Robin Restaurant 4580 Richard’s on 3rd Rightmynd Creations Rio Grande Mexican Restaurant Rives Construction Rocky Mountain Hospital for Children at P/SL Rolfing Structural Integration Kim and Brianna with Rocky Mountain Children's Health Foundation Row 14 Rudi’s Organic Bakery Rumbi Island Grill Rush Salt Bistro Salvaggios Sam’s No. 3 San Francisco Soup Company SAP Serendipity Spa Seth Ellis Chocolatier Shamane’s Bake Shoppe Sill-TerHar Motors, Inc Spicer’s Events St Julien Hotel Company, LLC Starbucks Starr’s Clothing Steam Pro Carpet Cleaning Sterling Rice Group Strings Restaurant Style Solutions, LLC Subway Sun and Skin Research Sunbelt Rentals Susan Caso, MA, LPC Sushi Tora Sweet Bird Studios, Inc Sweetwood Cattle Company Tasterie Truck Tattered Cover Book Store Tebo Development ten20 Texas Roadhouse The Alternative Board The Bitter Bar The Carpet Studio The Cleaning Fairies The Cup The Enchanted Room The Kitchen The Med Restaurant The Organic Dish The Redstone Group The Ritz The Spa at St Julien The Sunderland Group, Inc The Wizard’s Chest Timbuk Toys Timolyn Esson Fine Art and Photography Tom Redditt Sales Tower Electric Toyota Dealer Match Program TRC Marketing Tres Pupusas Trident Telephone and Electronics, Inc. Tundra Specialities Tutor Doctor Twig Salon Uncommon Nest Interiors Unite Hair Unity Colorworks, LLC Upslope Brewery Uptown Tavern Vanity Fur Vectra Bank Village Inn Pizza Walnut Cafe Warner Bros. Entertainment Waycrosse, Inc. Webroot Software, Inc. Wells Fargo Advisors, LLC Wells Fargo Bank Whiting Oil & Gas Corporation Wildflower School of Voice Will Day Art Winco/DWL Industries Wizard Within Wands Wolf’s Foreign Car Care Inc. Woody Creek Bakery & Cafe Wynkoop Brewing Company You Shoes By Crocs Young Dentistry for Children Zugkraft Automotive, LLC FOUNDATION DONORS Bender Family Foundation Cargill MacMillan III Family 1974 Trust Foundation City of Thornton Foundation Community First Foundation Cousin Living Trust Foundation David C. Wilson Donor Advised Fund EZCORP Foundation Gilkison Foundation Invest in Others Charitable Foundation James H. Woods Foundation Jared Polis Foundation JJJ Foundation Inc John Duncan Charitable Trust L&N Andreas Foundation Mark Vann Foundation Michael and Nancy Burgermeister Family Fund Milton Shoong Foundation Nathan B. and Florence R. Burt Foundation Papa Marv Fund Raymond Wentz Foundation Rocky Mountain Children’s Health Foundation Rose Community Foundation Russell Maguire Foundation Sander Family Foundation Shannon Family Foundation Silicon Valley Community Foundation Smith Family Giving Fund Sorenson Family Foundation Special Ties Foundation The Anschutz Foundation The Boedecker Foundation The Miranowski Family Charitable Fund The Nan and Paul Faust Family Charitable Fund The Oak Foundation The Schramm Foundation The Sprout Foundation The Telluray Foundation Theodore Cross Family Charitable Foundation Toney Family Foundation Twisted Foundation Xilinx Community Fund Zonta Foothills Foundation COMMUNITY ORGANIZATIONS Alpha Phi Omega, Epsilon Xi/CSU Bead for Life Boulder Valley Unitarian Universalist Fellowship Cakes 4 Cancer Cancer League of Colorado, Inc Colorado Department of Law Community Food Share Dawson School-Community Service Club Douglas Elementary School Feed The Children Flyin' Wheels Girl Scout Troop 71028 Harmony Preschool Hike4Cancer, LLC Hope Is Here, Inc. Jon D. Williams Cotillions Love for Lily Rocky Mountain Hospital for Children at P/SL The Americas Association for the Care of Children Trinity Lutheran Church EVENTS We would like to thank our sponsors, supporters and attendees who made our events a big success. To see our sponsors go to therewithcare.org. If you have made a contribution and do not see your name listed, please contact us at info@therewithcare.org so we can make sure you are acknowledged in our next newsletter. shop with care Please visit our online store at therewithcare.org and browse our thoughtful shop filled with many new caring and helpful items for loved ones facing medical issues. While supporting those in your life – you are also supporting the families served by There With Care. Spread the word about these helpful items. 10 There With Care News • Summer 2012 • therewithcare.org kids care too! In Tune Ensemble collects baby items for Baby Care Bags Liv sending a truckload of donations and care she collected for families Colton, Bennett and Kaden shave heads for Team TWC at 2012 St. Baldrick's Event 2012 Cotillion Drive benefitting There With Care Mom and daughter at the 2012 Give Hair With Care event Anna donating her hair at Give Hair With Care event Proud mom with Jack from Team TWC at the 2012 St. Baldrick's Event Kids of Larry H. Miller Toyota staff join their folks volunteering at TWC Boulder Country Day Students delivering Care Bags Ellie sharing her childhood things with There With Care Families Making a Difference with the TWC Team at St. Baldrick's Students from Alexander Dawson School volunteering Anna and family bringing donations from Mountain Kids Bella donating gift cards Troop 4373 bring in cookies for our pantry "Thank you so much for the gas card. Your generous gift will help our family take our daughter back and forth to her treatments. During this difficult time, its nice to know that there are groups of people who care and are willing to give a helping hand." – Parent, Oncology Patient There With Care News • Summer 2012 • therewithcare.org 11 2825 Wilderness Place, Suite 100 Boulder, CO 80301 “Thank you for taking the time to truly listen. It's hard to ask for help - but I didn't even have to ask, you guys gave before I had to. I hope everyone can experience the kind of love you show." – Parent, Oncology Patient Events THANK YOU 8th Annual Stone Haus Charity Golf Tournament To Benefit There With Care Thursday, September 13, 2012 OCTOBER A Red Carpet Adventure Thank you to our sponsors for support in printing this newsletter and bringing you There With Care News. PRINTING Saturday, October 13, 2012 – Denver Sunday, October 14, 2012 – Boulder Tickets on sale NOW at therewithcare.org For group tickets and sponsorship opportunities please contact: dana@therewithcare.org 12 There With Care News • Summer 2012 • therewithcare.org