EU-WISE Conference Southampton: A. Kennedy

The EU-GENIE Intervention
Anne Kennedy
University of Southampton
EU-GENIE
• What it is and how to ‘do’ it
• UK Case study findings
• How and why does it work?
EU-GENIE Online Intervention
• Map social
network/personal
community in circle
diagram
• Complete on-line
preference
questionnaire
• Link interests to
database and Google
map of local activities
and resources
http://eugenie.rockitdesign.co.uk
Systems of support
GPs
Nurses
Occupational
therapists
Psychiatrists
Podiatrists
Pharmacists
Diabetologists
Rheumatologists
Cardiologists
Neurologists
Physiotherapists
Support groups
Lunch/Tea clubs
Internet-based
discussion groups
Religious groups
Ethnic groups
Sports groups
Other social groups
People with LTCs
Health trainers
Social prescribers
Traditional healers
Faith healers
Herbalists
Social workers
Legal agents
(police, lawyers)
Religious or spiritual
leaders
Supervisors
(bosses, teachers)
Community wardens
Spouse/Partner
Children
Grandchildren
Parents
Siblings
Other relatives
Friends
Pets
Neighbours
Colleagues
Classmates
Acquaintances
If I was struggling, which
one would I talk to? It
would be my daughter, the
first port of call. …..The GP
wouldn’t…to them I’m just
another figure aren’t I?
The Minister comes
around occasionally.
And if I needed help
I think I could get
it from there.
I was told off by
one nurse and
threatened with
injections if I
didn’t pull myself
together
We cut out all
the
processed
food and my
wife does a
lot
you feel that you’re a
burden, there’s a
tendency to snap at your
family, and I find when
we’re going to the group I
switched off from all this
and I’m going and have a
bit of a laugh and fun, and
yesterday we had a chap
coming and singing folk
songs and, your mind’s
taken off
Then any
appointments I’ve
got at the hospital
she checks my
correspondence. She
works in finance so
any forms want filling
in she will do that for
me.
When we go out in a taxi I have to make sure they send if
it’s the minibus the one that’s got 3 steps that go up
because there’s no way I can get up that other one so I
have to explain but I don’t now because they know – I’m
lucky because I only use a certain company and if I’m going
he says is it for you and I say yes and he’ll say OK and he
knows, he said we’ve got you on file for a long time.
I walk the dog, I mean
that’s like 3 miles a day
‘cos I wouldn’t be
walking three miles
without the dog (laughs)
I mean without the dog
the exercise would be
probably drastically cut.
Questions
I am interested in doing creative things
Categories
Activities
I would like to know more about social activities Activities
READING AND CREATIVE WRITING
ARTS AND CRAFTS
DRAMA AND MUSIC
SOCIAL CLUBS
I would like to learn more about my health
Health
HEALTH CONDITIONS
I would like to lose weight
Health
WEIGHT MANAGEMENT
I would like to get fitter
Health
FITNESS AND EXERCISE
SWIMMING
WALKING AND OUTDOOR ACTIVITIES
I would like to learn new skills or complete a
course
I look after someone e.g. a relative
Learning
EDUCATION AND LEARNING
Support
SUPPORT FOR CARERS
I don't see other people very often
Support
SUPPPORT FOR YOU – COUNSELLING
SUPPORT FOR YOU – BEFRIENDING
I would like to know more about things that will Independent
living
help me remain independent
I would like to know more about community
transport
I would like to help other people
Independent
living
Volunteering
HOME SUPPORT
FINANCIAL AND BENEFITS ADVICE
COMMUNITY TRANSPORT
UK Case Study

Case study with 15 participants living with type 2 diabetes

Intervention facilitated in a community setting by non-health care
professionals (Health Trainers, Care Navigators, researcher)

Two training days with Health Trainers, Care Navigators and managers

Video recording of intervention, researcher observation, post-
intervention interview

Follow up: 2 week telephone interview; 6 month face to face
interview; 12 month telephone interview

Intervention video and evaluation interview analysed using
Normalisation Process Theory to establish the acceptability and
relevance of the tool
Findings
•
•
•
•
•
All participants increased their engagement in
local community activities
Raised patient’s awareness of their personal
network (navigation and negotiation)
‘Weaker’ ties are valued and seem to be more
durable overtime
Importance of visual image (of network and
Google map) to enable engagement
Highlighted the importance of collective efficacy
Time 1 and Time 3
Time 1 and Time 3
Time 1 and Time 3
Time 1 and Time 3
Time 1 and Time 3
How EU-GENIE Works
1. Positive disruption of established ways of getting selfmanagement support through seeing and engaging with
network map.
2. Reflection on who is in a network opens up possibilities for
thinking about different ways of getting support.
3. Finding out preferences for enjoyed activities is important in
the process of reconstructing self-management support.
4. Reversing the focus on the self to focus on others in a
network assists with reflection and reviewing options.
5. Facilitation helps the process especially where there is
partnership and reciprocity within the discussion.
6. Access to definitive resources via a reliable database is
needed to connect to and mobilise broader selfmanagement options.
“It’s useful to see that one thing leads
to another. The intervention led to
talking to (health trainer), and then
talking to (health trainer) led to seeing
the poster and that led to the table
tennis and now that’s going to lead on
to Pilates. So there is a general
progression. So yes, I have benefitted
quite a bit……..That has happened and
you can quite easily track it from one to
the other to the other. And here I am
talking to you, looking at charts and
things……I think overall the whole thing
has been a benefit” ID07
GENIE video clip
http://eu-wise.com/resources/