Kilimanjaro Leap of Faith Adventure
Transcription
Kilimanjaro Leap of Faith Adventure
Leap of Faith Adventure DRAFT Backgrounder The ‘Kilimanjaro Leap of Faith Adventure’ Backgrounder Climbing beyond limitations and beyond disease Background On the 23 May 2009, Lori Schneider from Wisconsin, USA became the first person in the world, with Multiple Sclerosis (MS), to summit Mount Everest, as well as to complete the “Seven Summits” (the highest peaks of the seven continents). In 2011, Lori set a new challenge, the Kilimanjaro Leap of Faith Adventure, gathering together a group of 14 adventurous men and women with MS and Parkinson’s disease (PD) on a climb of Mount Kilimanjaro in Tanzania. At 19,340 feet, Mount Kilimanjaro is not only the highest peak in Africa, but also the highest free-standing mountain the world. The mission will aim to raise awareness of MS and PD and showcase how people can move beyond their neurodegenerative disease, realizing that their limitations should not define who they are. Living beyond neurological disease and all hea lth conditions About Lori Schneider Lori Schneider is a mountain climber, teacher, lifelong learner and inspirational speaker. In 1999, at the age of 43, Lori was diagnosed with MS – a serious and unpredictable neurodegenerative disease that could possibly lead to Lori, an avid outdoors person, being wheelchair bound. Following this diagnosis, Lori set out to challenge any limitations associated with her MS. In doing so, Lori became the first person with MS to climb the highest mountain in the world. About the Kilimanjaro Leap of Faith Adventure The Kilimanjaro Leap of Faith Adventure provides Lori with the opportunity to share the lessons she has learned about believing in yourself and following your dreams. It is meant to challenge the body, expand the mind and foster courage in dealing with the diagnosis of a neurodegenerative disease. The Kilimanjaro Leap of Faith Adventure starts on Wednesday, 13 July and the descent will be completed on Tuesday, 19 July, involving nine women and one man with MS, alongside two women and two men with PD and 14 climbing companions, all supporting each other every step of the way. The youngest climber is 24, the oldest is 79 and they mainly come from the USA, with one from Spain. All climbers have come with their own aspirations, but there is an overwhelming sense that by climbing Mount Kilimanjaro as part of this amazing group, they will give people with dreams the courage to set out to accomplish them, no matter what the circumstances. The team was interviewed prior to the climb and will be upon its descent. During the climb there will be daily updates, visuals and podcasts from the MS / PD climbers and their companions. 1 Leap of Faith Adventure DRAFT Backgrounder All this, plus profiles of every team member can be found at: http://www.EmpowermentThroughAdventure.com/Kilimicrosite.htm or www.EmpowermentThroughAdventure.com Communication activities for the Kilimanjaro Leap of Faith Adventure 2011 are kindly supported by Sanofi. About Multiple Sclerosis MS is a complex chronic inflammatory disease of the Central Nervous System (CNS) that affects more than 2 million people worldwide and is one of the most common and debilitating neurodegenerative diseases in young adult patients. Women are twice as likely to be affected. MS is unpredictable because the time at which patients can experience relapses and remissions cannot be estimated. This means that patients with MS have to live one day at a time. Despite major advances in the last 15 years, MS cannot be cured. Current treatment strategies slow down the progression of the disease, treat relapses, and manage symptoms to best preserve patient quality of life. About Parkinso n disease PD is a progressive neurological condition that is estimated to affect 6.3 million people worldwide1 . The age of onset is usually over 60, but it is estimated that one in ten are diagnosed before the age of 50, with slightly more men than women affected1 . People with PD don’t have enough of a chemical called dopamine because some nerve cells in their brain have died. Without dopamine people can find their movements become slower so it takes longer to do things2 . The main symptoms of PD are tremors, rigidness and slowness of movement. It is not easy to diagnose PD and there is currently no cure. Symptoms can be controlled using a combination of drugs, therapies and occasionally surgery to help maintain quality of life for the patient 2 . References: 1. European Parkinson’s Disease Association (EPDA): Prevalence of Parkinson’s Disease (2011), available at URL: http://www.parkinsonsawareness.eu.com/campaign-literature/prevalence-of-parkinsons-disease/. Last viewed 7 July, 2011 2. Parkinson’s UK: What is Parkinson’s (2011), available at URL: http://www.parkinsons.org.uk/about_parkinsons/what_is_parkinsons.aspx. Last viewed 7 July, 2011 2