2011 - National Parkinson Foundation

Annual Report 2011
Find answers. Change lives. Beat Parkinson’s.
Together we are finding answers, changing lives, and beating Parkinson’s.
About the Foundation
Chairman’s Message
Founded in 1957, the National Parkinson Foundation (NPF) is a leading, national organization
I have had the pleasure of serving as chairman of the NPF
board for the past three and a half years, and I am proud
with an extensive network of Chapters, Support Groups, and Centers of Excellence in the United
to say that our efforts to reorganize the foundation have
States, Canada and internationally. Unique among the national Parkinson’s organizations, NPF is
allowed us to become the leader in improving the quality
the only organization with a singular focus on improving the quality of care in Parkinson’s disease.
of care for people with Parkinson’s disease. On a daily basis,
Since 1982, NPF has funded more than $164 million in research, education and support services.
I am inspired by the hard work of NPF’s extremely dedicated
team of individuals under the leadership of NPF’s President
NPF programs touch more than one million people a year through our 39 U.S. Chapters and
and CEO, Joyce Oberdorf.
900 Support Groups, patient conferences, and our online resource Parkinson.org.
With all of our successes in the past year, I am most proud
of our national outreach efforts to launch Moving Day,
NPF drives breakthrough research by bringing
Dr. Bernard J. Fogel
together the thought leaders at NPF Centers
NPF’s signature walk for Parkinson’s. NPF is thrilled to
have Katie Couric as the honorary national chair of the Moving Day campaign. With this national
of Excellence – 43 leading medical centers
event, we are beginning to change the world for people with Parkinson’s. The slogan of Moving Day
around the globe that deliver care to more than
50,000 Parkinson’s patients. NPF continues
to be a major funder of research programs,
such as our Quality Improvement Initiative,
to change the course of the disease.
In everything we do, NPF promotes our passionate
belief that the best care is a comprehensive
approach that addresses the whole person and
the full range of symptoms, while continuously
searching for the next insight that will help us
The mission of the
National Parkinson
Foundation (NPF) is
to improve the quality
of Parkinson’s care
through research,
education and outreach.
is “People Who Move Change the World” and we are helping people to stand up and declare that
movement is beautiful.
In these pages, you can read about some of the cutting-edge programs we have created to provide
the best treatment and care options for people living with Parkinson’s. NPF truly is creating a new
day for Parkinson’s. Your generosity makes our work possible.
I would like to extend my special thanks to our loyal supporters who help us to bring help and hope
to the millions of people living with Parkinson’s disease and their families every single day. Together,
we will find answers, change lives and beat Parkinson’s.
Warm wishes,
beat Parkinson’s.
Bernard J. Fogel, MD – Chairman of the Board
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Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
NPF’s QUALITY IMPROVEMENT INITIATIVE (QII):
Projected Number of Enrolled Patients
Finding What Works Best
Bringing the same high-quality
Sleep Research Lays
Foundation for Future Progress
10,000
Three-quarters of people with
care to every patient diagnosed
Parkinson’s experience sleep-related
with Parkinson’s — that is the goal
of NPF’s Quality Improvement
problems. In 2011, NPF hosted a
8,000
symposium for specialists in sleep
Initiative (QII). Since it was established
in 2009, the project has expanded
and Parkinson’s, exploring REM sleep
6,000
behavior disorder (RBD). RBD, in
to include more than 4,500 patients
which people act out their dreams
at 19 Centers of Excellence, making
it the largest Parkinson’s outcomes
during the rapid-eye movement
4,000
phase of sleep, is now thought to be
registry in the world. Ultimately,
our goal is to track and monitor
the care of each patient within the
NPF Center of Excellence network.
As this collection of real world data
continues to grow, physicians will be
able to use this resource to evaluate
and improve therapeutic strategies
within the clinical setting. In 2011,
NPF used the data to learn more about
what predicts and prevents falls, what
works best in treating depression, and
how to gauge medication usage in deep
brain stimulation (DBS). Today, over 15
studies like this are under way and will
help us to redefine Parkinson’s care.
NPF is finding answers.
one of the earliest signs of Parkinson’s.
2,000
2010
2011
2012
2013
2014
“ We are amazed by what we are
finding in the Quality Improvement
Initiative (QII) database; these
associations have never been seen
before, and I think it’s the power
of QII that makes this possible. ”
2015
Dr. Carlos Singer and Dr. Aleksandar Videnovic,
NPF grant recipients studying sleep and Parkinson’s
“ By supporting sleep research, the National
Parkinson Foundation is bringing this
issue to the forefront. As we pool together
resources and leverage expertise, we will
make a real impact on the lives of people
with PD and their caregivers. ”
During the two-day conference in
April, researchers designed a clinical
trial with a practical therapeutic
application for treatment of RBD. Furthermore, NPF funded two clinical research
studies on sleep. One will document the
prevalence of sleep disordered breathing
(SDB) in patients with Parkinson’s and test
the effectiveness of a common treatment,
while the other will investigate how a
therapy known as transcranial magnetic
stimulation (TMS) could improve motor
learning, which consolidates during sleep,
and potentially reduce falls. Taken together,
these research studies demonstrate how
Sotirios Parashos, MD, PhD
Aleksandar Videnovic, MD, MSc
Director of Research, Struthers Parkinson’s Center,
NPF Center of Excellence
Parkinson’s Disease and Movement Disorders Center,
Northwestern University, NPF Center of Excellence
NPF can have an effect on understanding
new aspects of Parkinson’s.
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Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
Getting Answers,
Finding Support
Community + Movement =
Good Medicine
One of NPF’s most valuable
People who move change the
resources is our staff of exceptional
world. That is the theme of Moving
Parkinson’s disease information
Day, a national grassroots campaign
specialists. In July 2010, NPF
NPF launched to promote awareness
launched a toll-free Helpline to
of Parkinson’s through local annual
assist people with Parkinson’s,
fundraising walks. Katie Couric, who
caregivers and health professionals
lost her father due to complications
get answers to their many questions.
of the disease, took on a new role as
Since then, NPF’s national Helpline
Honorary National Chair of the
has responded to more than 5,000
campaign. In October 2011, three
telephone and email inquiries. Last
year, when a NPF survey showed
that few Hispanics are aware of
the early signs of Parkinson’s,
we started a program to help the
Hispanic community access the
resources they need. Today, NPF's
information specialists are bilingual,
answering questions, providing referrals
and suggesting community resources in
English and Spanish. One new resource
is: 10 Signos de Alerta Temprana Sobre
la Enfermedad de Parkinson (10 Early
Warning Signs of Parkinson’s Disease).
NPF is changing lives.
The NPF Helpline Staff (clockwise from left): Sharon Metz, Anna Hedges,
Paula Weiner, Joan Gardner. Not pictured: Adolfo Diaz
“ Thank you for all the
information. It has brought
great relief knowing that
there are resources and
support for my family. ”
More Spanish resources, including booklets
Katie Couric filmed a Moving Day public service announcement for NPF
“ I watched in awe as my father bravely
battled Parkinson’s disease, and I
know that he greatly benefited from
high-quality care, which significantly
minimized his symptoms by addressing
all aspects of his well being. ”
held in Pittsburgh, PA; Washington,
D.C.; and Rome, GA. About 2,500
people participated, bringing in more than
half a million dollars to fund Parkinson’s
research and NPF chapter programs.
Because studies indicate that physical
activity plays an important role in managing
the symptoms of the disorder, each event
also featured a “movement pavilion” with
stations demonstrating
beneficial ways to exercise.
The aim is to encourage
people to stay active and
move for better health.
Fourteen Moving Day events
and videos, are available on NPF’s Web site,
www.parkinson.org/espanol.
pilot Moving Day walk events were
Inez, a Spanish-speaking Helpline
caller directed to an Adult Day Care
facility catering to Hispanics
will be held around the
Katie Couric
Honorary National Chair of Moving Day
country throughout 2012.
Learn more at www.npfmovingday.org.
6
Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
A Hands-on Approach
to Better Care
Because about 50 percent of
Parkinson’s care is done by
primary care physicians, it’s
important to design tools to
improve their ability to identify
and treat some 60,000 individuals
diagnosed with Parkinson’s every
The NPF
Parkinson’s Toolkit
mobile app
year, and countless others who go
undiagnosed. Increasingly, doctors
are turning to smartphones and
the web for answers. In 2011,
NPF created the Parkinson’s
Toolkit, a free mobile-enhanced
Web site with a companion smartphone
application. It is the first app reference
tool specifically for Parkinson’s that
is geared to how busy family doctors
NPF is beating Parkinson’s.
Dr. Janis Miyasaki and Dr. John Morgan,
neurologist members of the Parkinson’s Toolkit steering committee
practice.
The Parkinson’s Toolkit features:
Now, clinicians have access to best
practices in Parkinson’s care to promote
• More than 100 topics in Parkinson’s care, including
issues that are often overlooked, such as melanoma
screening and sleep disorders
early intervention, and help close the
gap between what people with Parkinson’s
• Criteria for determining whether a patient requires
a consultation with a specialist
“ An important part of advancing Parkinson’s
care is innovation, finding new ways to
extend our impact on the community. Now,
with the tap of a finger, clinicians can better
understand complex aspects of Parkinson’s
care as they navigate their daily practice. ”
need and what health professionals
actually give them.
• Latest developments in Parkinson’s treatment
• Parkinson’s reference tools and patient resources
Janis Miyasaki, MD, MEd, FRCPC
Toronto Western Hospital, University of Toronto,
NPF Center of Excellence
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Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
Honor
Roll 2011
The National Parkinson Foundation gratefully acknowledges
Estate of Shirley M. Hurd
Dorothy M. Ball
Harryette Campbell
the following individuals, corporations, foundations and
IBM Employee Services Center
Mr. and Mrs. Mark Barker
Mr. and Mrs. Michael Cannizzo
organizations who have contributed $1,000 or more between
Rita A. Lehnert
Estate of Joseph V. Barnett
July 1, 2010 and June 30, 2011. Their giving assists research,
Estate of Donald LeRoy
Clay H. Barr
Cape Cod Chapter, Inc. of the
National Parkinson Foundation
The Louise D. and Morton J.
Macks Family Foundation, Inc.
John E. and Nellie J. Bastien
Memorial Foundation
Edythe and William Marsa
J. Gordon Beckham, Jr.
Carmen Y. Cartaya, Esq.
Gail and Robert Milhous
Claire Beekman
The Five Millers Family
Foundation, Inc.
Beito Foundation
Nicholas Caskey and Susan
Nakamura Charitable Fund
education and outreach initiatives. Thank you for your support.
Gifts of $1,000,000
and above
The Edmond J. Safra
Philanthropic Foundation
Glyn I. and Wanda Snell
Living Trust
Anonymous
Solomon Family Foundation
Southwest Florida Community
Foundation, Inc.
Gifts of $250,000
and above
Estate of Janice L. Pattberg
South Palm Beach County
Chapter of NPF
Ruby Stevens
Estate of Danuta Swiss
Teva Neuroscience, Inc.
Gifts of $100,000
and above
Estate of Daniel D. Cantor
Estate of Norman C. Kizer
Estate of Gladys Nichols
Gifts of $10,000
to $19,999
The Parkinson Council
Advisors Charitable Gift Fund
(Curt and Clara Fund)
Irene and Enrique Sosa
Gifts of $20,000
to $49,999
Andrew B. Albert
Anonymous
Karl Albert
Estate of Sadie J. Black
The Applebaum Foundation,
Inc.
Mace Siegel
St. Jude Medical
Estate of Stanley C. Zybort
Mr. and Mrs. Samuel Belzberg
Doris Benefiel
Moises Berezdivin
Mr. and Mrs. Michael Beriss
Lisa D. Bertani
The David H. Bescherer
Family Charitable Fund
Benjamin C. Bohr
Boehringer Ingelheim
Pharmaceuticals, Inc.
Michael Agin
Estate of Gale J. Borem
Allstate Giving Campaign
Rollin M. Gerstacker
Foundation
Estate of Doris Brown
Allsup
Estate of Germaine C.
Bousquet
W. G. Christianson Foundation
American Hotel and Lodging
Association
Roxanne Brandt
Francis Anania
Nancy and Christian Bremeau
Community Health Charities
of Florida
Kathleen and Harold Anderson
Gary Brooks
H. M. Andries
Harold C. Brown and Co., LLC
Anonymous
Bruce H. Bryant
Ken-Ichi Arai
Ellen Burgoyne, Inc.
Linda and Martin Ardman
David T. Burleson
Donald Burns
Estate of Margaret S. Devinney
Estate of Kathleen C. Ingham
The Diller-von Furstenberg
Family Foundation
Ipsen Pharmaceuticals, Inc.
Beulah-Mae Jones-Mitchell
Community Health Charities
of Texas
Jerry M. Lindzon
The Eleanor M. and Herbert D.
Katz Family Foundation, Inc.
Robert and Joanne Crown
Income Charitable Fund
Medtronic, Inc.
Novartis Pharmaceuticals
Corporation
Estate of Helen A. Pasquini
Estate of Liselotte Redlin
Melvin Clipper
Erwin Aderhold
Linda and Robert P. Fetch
The Don A. Hunziker Memorial
Foundation, Inc.
Kate and Dr. Lynn A.
Christianson
Bohemian Foundation
Dick’s Sporting Goods, Inc.
Braman Family Foundation, Inc.
Choice Hotels Owners Council
Herbert J. Adair
UCB, Inc.
Community Health Charities
of California
Choice Foundation
Estate of Sylvia Cobb
Estate of Edward Sitz
Abbott Neurosciences
Chicago White Sox Charities
ADAH Chapter #25
Trust of Zelda Cushner
Estate of Hazel W. Hill
Paul Chiapparone
Douglas R. Clovis
Parkinson’s Unity Walk
Gifts of $50,000
to $99,999
Lucretia Cavan
Blank Charitable Foundation,
Inc.
Gifts of $1,000 to $9,999
Medtronic Foundation
The Bloomfield Family
Foundation
Gary O. Caris
Big Moose, LLC
Community Health Charities
of the National Capital Area
Trust of Charlotte Baytus
Capitol Cadillac Company
Kimberly and Ken Braud
Community Health Charities
Community Health Charities
of Alabama, Inc.
Community Health Charities
of Georgia
Community Health Charities
of Illinois
Community Health Charities
of Maryland
Community Health Charities
of Minnesota
Community Health Charities
of New England, Inc.
Community Health Charities
of New York
Community Health Charities
of North Carolina
Rita D. Kernen
Dr. and Mrs. Bernard J. Fogel
Isabel Bader
Estate of Carleton C. Kugel
Glenn Greenberg and Linda
Vester Foundation
Jo-Mary Bagwell
Burton Nealey Trust
Estate of Beverly Baker
Cagney Network, Inc.
Community Health Charities
of Ohio
Estate of William B. Grover
Ed Baker
Estate of Jacqueline Hood
James J. Baker
Cambridge Major Laboratories,
Inc.
Community Health Charities
of Oklahoma
The McCamish Family
Charitable Fund
Parkinson Association
of Minnesota
10
Annual
Report 2011
Together we are finding answers, changing lives, and beating Parkinson’s.
Honor
Roll 2011
Joseph E. Edell
Gamco Investors, Inc.
Jack Guthrie
Kathy King
John T. Loftus
Ralph and Barbara Edwards
Family Foundation
Gap Foundation Gift
Match Program
Robert B. Haas
George Lohrer
John H. Hall
Kingdor National Parkinson
Foundation
Mr. and Mrs. Charles M.
Eldridge
Garden of Life LLC
Craig D. Hanela
Wayne F. Klindworth
Helen and Robert Ellington
Robert Gathman
The Stephen P. Hanson
Family Foundation, Inc.
Arnold S. Kling
Epilog Laser
William Gay
Mr. and Mrs. Jack Harter
W.R.L. Konneker
Robert Ettleman
Gladys and Martin J. Gelb
Hawaii Community Foundation
John W. Kozyak, Esq.
Ross S. Evans
Donald A. Gillies
Fred B. Haynes
Mr. and Mrs. Victor Krakower
Patricia A. Costello
Frank E. Evarone
James Gillis
Robert P. Herzog
Harold P. Kravitz, Esq.
Ken Cox
Jean-Marie Eveillard
Patricia M. Ginn
Marilyn and Donald Hibbert
Kathren D. and Steven Khron
Gordon Crawford
Evercore Trust Company
Marian H. Gislason
The Hibbert Family Foundation
Jackie Kropman
Judith Crown Craver
Farnan LLP
Creighton G. Hoffman
John Kupetz
CSRA Parkinson
Suppport Group
Erin Fauber
The Gerald and Deanne
Gitner Charitable Fund
H. Randolph Holder
Barbara C. Kyse
Morris Goldfarb
Robert W. Holmes
Barry and Patricia Goldstein
Honeywell Hometown
Solutions
Estate of Elgin LafayeRodriguez
David Manheim
Anthony La Forgia
James Manning
Community Health Charities
of Tennessee
Community Health Charities
of Virginia
Community Health Charities
of Washington and Idaho
Concord Hospitality
Enterprises Company
James C. Copeland
Susan and John J. Costello
Candace Cummings
John R. Darvish
The Daus Family Foundation
David O. Davis
Joseph Deal
DEARS Foundation, Inc.
DeFreitas Family
Charitable Gift Fund
Fayga and Elliot Press
Advised Fund
Dr. and Mrs. Franklin
Feidelholtz
Dimitra Gardikas
Richard A. Goldstein
Wilson Lowery
Macy’s Foundation
Matthew M. Maguire
William Maguire
Joanne Maio-Spruth
Bernard Malberg
Robert Mandell
Jody Feldman
Nancy Hopkins Reilly
Robert L. Lambert
Jeanne J. Marshall
Vincent Ferraro
Marjorie Richardson Goodall
Jessica and Benjamin C. Hoyer
Edward M. Land
Mike Martin
Jan and Guy Ferris
Stacey Goodman
Hughes Hubbard and Reed LLP
Mr. and Mrs. Alex Martins
Mary Jo Ferris
Veronica M. Goodrich
Industrial Water Technologies,
Inc.
Lawrence Livermore
National Laboratory
Fidelity Charitable Gift Fund
H. Gail Gordon
Fireaway LLC
Evelyn Diament
Janet Fisher-Hughes
May Gossett
Judith Florio
David W. Grainger
Dixie Roofing, Inc.
Rudolph and Hilda U.
Forchheimer Foundation, Inc.
Nancy and Kenneth Granat
Frances R. Granlund
Ron Doggett
Karel and George Foti
James H. Grew
The Foundation for
Maryland’s Future
Grizzard Communications
Group
Ellen and Arthur Fox
and Children
Emily and Peter Gross
Jeffrey and Elizabeth Leake
Katherine and Richard Irving
William R. Leighton
Denise and Barry R. Jackson
Lucille Lerman
Fern I. Jewell
Lettuce Entertain You
Enterprises, Inc.
Donna and David Johnson
Sally Jones
Francis and Gertrude
Levett Foundation
Mr. and Mrs. Stuart J. Mason
Betty Jo May
Joan D. May
Marsha and Robert McCleary
The McCutcheon Foundation
Pollie McFarland
Phyllis Levin
Gustaf Westfeldt McIlhenny
Family Foundation
Shirlee Levin
Tim McKay
Joyce and Sidney Levine
Charles H. McPherson, Sr.
John S. Keister
Edwin and Carolyne Levy
Charitable Foundation, Inc.
Medical Center
Emergency Services
Kevin V. Kelley
Joyce Linde
Susan Kenninger
Gordon Linoff
Members Give
powered by JustGive
Arthur Joseph
Walter Kaplan
Anita Kaufman
Herbert Kay Parkinson Chapter
The Foxboro Foundation, Inc.
The Marion and Louis
Grossman Foundation
Mark Duffy
Estate of Helen Freedman
Max Gruber Foundation
The Kerler Family Gift Fund
Sandra L. Earley
Cynthia E. Fruchtman
Patricia F. Guntle
Estate of Kathryn C. Kernan
The Dow Chemical
Company Foundation
Mr. and Mrs. Hugh Lowenstein
James A. Marino
Charles and Willa Deveny
Barbara Dorsch Foundation
Darlene Lowe
Esther Lam
The Irving and Arline Gordon
Memorial Foundation
Donor Care Center, Inc.
Jane P. Long Fund
Claire Hopkins
Jane Feldman Fields
Lorraine F. Donley-Hartig
Paul D. Long
Arlene and Arnold Goldstein
Family Foundation
Ruth Denenfeld
Fred and Sue Diamond
Foundation
Michael Kolodny
James L. Long
Litchfield Donor Advised
Fund at Yale Law School
Mr. and Mrs. John Mendel
Merriman Family Foundation
12
Annual
Report 2011
Microsoft Giving Campaign
Program
Miller Realty Family
Philanthropic Fund
Leonard Miller
Dr. and Mrs. Christopher Mize
Nurose Mohamed
Money Concepts International,
Inc.
Together we are finding answers, changing lives, and beating Parkinson’s.
Honor
Roll 2011
Willard Noyes
Teresa K. Rogers
Joyce Oberdorf
Martin Tomberg
Mr. and Mrs. Matt Welch
Michael P. Rose
Edward W. Smith Jr.
Foundation
Robert H. Traurig, Esq.
James H. Rosenberg
Mary Smith
Harley and Sherry Tropin Fund
Wells Fargo Insurance
Services of NY, Inc.
Lawrence O’Keefe
Norman Rothman
Paul G. Smith
Julia Trotter
John A. West
Dr. Michael and Leslie Okun
Regina M. Rubenstein
Dr. Robert G. Smith
Trukenbrod Family Foundation
Dr. Robert D. Westfall
Lisa Orberg
The Martha and Max
Rubinstein Family Foundation
Martin H. Snitzer
Trustmark National Bank
Iris Sokol
Jessica and Dr. Christopher
White
M. Jacki and Jim Rupert
The Donald P. Tucker and
Family Charitable Fund
Susan and Douglass White
Ohio Motors, Inc.
Mr. and Mrs. W. James Orovitz
Parkinson Association of
South Dakota
Thomas A. Ryan
Sommers Plastic Products Co,
Inc.
Charles Patterson
Thomas Safran
Southeastern Printing
Pennsylvania Hospital
Lorraine Schapiro
Edward Peterson
Brian Morrison
Barbara & Daniel Montague
Daniel P. Tully
Linda L. Widrich-Weitz
Jason J. Widuch
Southern Audio Visual, Inc.
United Way California
Capital Region
Anthony L. Wilner
W. S. Scharff Family Foundation
Estate of Florence L. Spies
United Way of Atlantic County
Barbara V. Wilson
Edward Petrosky
Susan Schnackenberg
Mr. and Mrs. John Sprague
Mr. and Mrs. Marc D. Wink
Morrison, Brown, Argiz
and Farra, LLP
Lincoln N. Pinsky
Mr. and Mrs. Don Schneider
Sylvia M. Stafford
United Way of Miami-Dade
County
Rene Pittsey
Gail Schroeder
Jerry Standridge
Mt. Vernon Knights of
Columbus Club, Inc.
Robert J. Pilska
Schwab Fund For
Charitable Giving
James and Janice Stanton
Walter Morales
Mr. and Mrs. James E. Morgan,
III
Rick Muenyong
MultiPlan, Inc.
Harold and Nancy Pointus
John D. Pope
University of Miami Miller
School of Medicine
Stearns Weaver Miller Weissler
Alhadeff and Sitterson, PA
University of Miami Miller
School of Medicine,
Department of Neurology
Norman Y. Stein
Venable Foundation, Inc.
Elizabeth Scrivner
Sharon and Bernard Steiner
Nancy Vermeer
Barry K. Schwartz Family
Foundation
Mr. and Mrs. John Murbach
Princeton Area Community
Foundation, Inc.
Arlene Murry
Lawrence Puckett
The Seattle Foundation
Kurtis N. Stemple
MWH Constructors
Thomas P. Vitale
Kenneth L. Rall
Harriet P. Secrest
Valerie A. Stern
Estate of Velma R. Nagel
Marybel Voss
The Neil and Anna
Rasmussen Foundation
Mr. and Mrs. Michael Shannon
John and Audrey Stratman
Barbara and Michael Sherman
Sugar Creek Scrap, Inc.
Milton and Miriam Waldbaum
Family Foundation
S. Irving and Anne Sherr
Jeff Sultan
Elaine and Oscar Wasserman
Richard Shuster
Franklin Surnamer
Diana Wasserman-Rubin
SidsGraphs
Jeffrey R. Sweitzer
C. Miller Sigmon, Jr.
James Syltie
The Wayen Charitable
Foundation
Margaret and Andrew Silton
Hope F. Syverson
Nancy Silverman
Mr. T’s Family Foundation
Virginia Simmons
Catherine and John Taylor
Ronald N. Sinclair
Kimberly A. Taylor
Carl Singmaster
The James and Patricia Tolley
Charitable Gift Fund
National Financial Services
LLC
Robert Neimeth
Raymond James and
Associates, Inc.
S. Victor Nelson
Leonard Redlich
New Century Financial
Services, Inc.
Stephen Reed
NIF Services of New York, Inc.
Mardell Remick
Robert Nolan
Rex Three, Inc.
Ann-Mari Nordgren
Richard Family Foundation, Inc.
Frank M. Norfleet
Richard Riddell
Northeast Kansas
Parkinson Association
Doug Riggen
Northwest Georgia Parkinson
Disease Association
Tony Rodriguez
Marc A. Reich
Estate of George Ritter
J. Shannon Slocum
David F. Smith
Sherryl A. Woods
Phyllis I. Wormwood Fund
Richard and Marilyn
Wurzburger
Hei-pen Yang
Tomoaki Yokobori
Steve Yonker
Estate of Marie M. Zenker
Zissu Family Foundation
Eleanor and Leo Zucker
Family Foundation
Edward L. and Sheila
Rabb Weidenfeld
Jean Weiner
THANK
YOU
14
Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
National Parkinson Foundation
National Parkinson Foundation
Legacy Society
Community Fundraisers
Legacy Society members are a select group of donors who have recognized the National
Every year, thousands of people participate in community fundraisers to increase awareness
Parkinson Foundation in their wills, trusts, estates and other planned gifts. Their generosity
and forethought will help thousands of people with Parkinson’s live better lives in the years
to come. We would like to recognize the following Legacy Society members:
E. Richard and Meme Alhadeff
Eugene M. Bane Charitable Trust
A. Jeffrey Barash
Virginia C. Barrett
Connie Bierlein
of Parkinson’s disease and raise funds for the National Parkinson Foundation. We would like
to extend our sincerest gratitude for their creativity, energy and commitment:
Marian S. and Frederic T. McAuslan
Endowment Fund
Veronica Anderson
Kelly Guliano
Kelly Arney
Adam Hart
James and Marie McCurdy Family
Charitable Trust
Gordon Beckham, III
Lynn Herald
Jill Bitker
Orestes Hernandez
Anna M. Nalbandian
Kimrey D. and Beverly A. Newlin
Beth Bjerke
Boyertown Jr. High East
Chinowth Charitable Lead Trust
The Oreffice Foundation
Kari and Richard W. Clark
Robert A. M. Coppenrath
The Vincent N. and Ruth Orfield
Charitable Fund of the Lutheran
Community Foundation
Deloris T. Crews
Margaret Paul
Catch the Cure
Esther Danielson
Winston and Bobbie Pease
Linda Cibula
Mary Jean Elioff
Eva Pierce
Concurrent Technologies
James A. Enloe, Sr.
Karen A. Moschetto and Janice Raspen
Jerry Cooper
Maurice and Gertrude Finkle
Bernard and Anne Romanello
John Croom, III
Dr. Moses and Beatrice Goodman Fund
Kim and Susan Schrotenboer
Tad Dallas
Ida Hutzler Charitable Trust
Alan M. Slewett
Donate for a Cause
Edward D. Jervey
Nathan Slewett
Seth Dunn
Heinrich Kolbel
Sheila Slewett
Renee Erbes
Marjorie Korach
Miguel Vargas
J. Hanes Lassiter
Sally and Robert Webb
Erna Mayer
Michael L. and Antoinette H. Wilkerson
Freeman A. Wolfe
The Builders Club of the
Kiwanis Club of LaGrange
Morgan Stanley Smith Barney
of Coral Gables, FL
Robin Nagel
Dennis Nichols
Hilton Head/Buffton
Parkinson Support Group
Beth House
Ocean Wave Productions
Parkinson’s Support Group
of Upstate NY, Inc.
Marjorie & Jeffrey Rugg
International Stunt Association
Brian Rummel
Alan Jackowitz
Saddlebrook Education
The Johnson Chamber
of Commerce
Mary Beth Simpson
Kevin Burkart
The Society of Friendly Fellows
Robert Jones
Sole Sistahs
Eric Kaplan
Keenan Antiques
Beverly Komery
Sebastian Solomon
South Shore Healthcare
Tim Storer
Ladies Philoptochos Society
Ryan Strayhorn
Diane Lovitt
Neil and Olga Tetkowski
Anna Finnegan
Jerry Lunden
Wells Fargo
Monica Fowler
Emily Luther
Willard Public Library
Lori Francis
Mary Ann Kelly MacDonald
Thomas Williams
Nick Gimarelli
Alexandra Marsek
Rick Wolter
16
Together we are finding answers, changing lives, and beating Parkinson’s.
Annual
Report 2011
Financial Highlights
Board of Directors
Expenses by Category | 2010-2011
The National Parkinson Foundation is privleged to have an outstanding and dedicated group
of volunteers who generously donate their time and talents by serving on the NPF Board of
As illustrated below, the National Parkinson Foundation directed 74% of its 2010-2011 spending
on mission-related activities and 26% on fundraising and management combined.
Chapter Services
9 % | $ 721,200
Patient Care
Services
46 % | $ 3,508,288
Public Education
21% | $ 1,644,793
Total Operating Expenses
100.0% | $ 10,427,723
Subtotal Mission-Related
73.8% | $ 7,697,621
Fundraising
19.9% | $ 2,078,518
General & Administration
6.3% | $ 651,584
Directors. Without their selfless efforts, the work of the Foundation would not be possible.
Bernard J. Fogel, MD*
Andrew B. Albert
Paul F. Oreffice*
Chairman of the Board
A. Jeffrey Barash, Esq.
W. James Orovitz
E. Richard Alhadeff, Esq.*
J. Gordon Beckham, Jr.
Jo Ann Pepper Oreffice
Vice Chairman
Marshall R. Burack, Esq.
Alan M. Slewett
Carmen Y. Cartaya, Esq.*
Martin L. Solomon*
Edythe Kay-Marsa
Enrique J. Sosa*
Honorable Shelley J. Kravitz
Senator Paul B. Steinberg
Gail Milhous
Robert H. Traurig, Esq.
Harold P. Kravitz, Esq.*
President Emeritus
John W. Kozyak, Esq.*
Secretary
Research
24 % | $ 1,823,340
Bruce Wisnicki*
Daniel Arty, CPA*
* Member of the Executive Committee
Treasurer
Revenues by Category | 2010-2011
Senior Professionals
Interest Income
& Realized Gain
12 % | $ 1,384,754
Total Revenue
$
11,374,833
Special Events
3 % | $ 294,292
Private &
Corporate
54 % | $ 6,191,501
Legacies
& Bequests
31 % | $ 3,504,286
Total Year-End Assets
$
19,687,491
These are the people who work daily to carry out NPF’s mission:
Joyce A. Oberdorf
Robin Boettcher
Peter Schmidt, PhD
President and
Chief Executive Officer
Vice President, Chapter and
Community Partnerships
Vice President, Programs,
Chief Information Officer
Michael S. Okun, MD
Pamela Olmo
Claudia Welsh
National Medical Director
Vice President,
Finance & Administration
Vice President, Development
Ariel Y. Deutch, PhD
Leilani Pearl
Chair, Clinical & Scientific
Advisory Board
Director of Communications
18
Annual Report 2011
1501 N.W. 9th Avenue • Bob Hope Road
Miami, FL 33136-1494
1.800.4PD.INFO (473-4636)
www.parkinson.org
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