under the - Children`s Specialized Hospital

under the
um rella
For the Friends of Children’s Specialized Hospital Foundation
SPRING ISSUE 2015
PAGE 8:
Meet Dylan, a Grateful
Patient Challenging Herself
to Grow Stronger Every Day
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Dear Friends,
Thank goodness for Spring!
After the cold, ice and snow, I
think we are all ready for the
warmth and beauty of Spring.
We are all excited about the
promise of 2015 and the
great things that are planned.
There are opportunities for
continued growth and access to our services, new
fundraising events are being planned, and our research
efforts are continuing to blossom.
In many ways though, this issue of Under the Umbrella
is about all the good that was harvested in 2014. We
are excited that The Leapfrog Group, the leading
healthcare quality organization, has recognized
Children’s Specialized for our clinical excellence and
efforts to improve our children’s lives.
We continue to explore new ways to use technology
to improve patient care, and as a way to improve a
parent’s experience as their child journeys through the
rehabilitative process.
Thanks to the strong volunteer leadership of our
Foundation Board of Trustees and countless Children’s
Miracle Network Hospital’s partners, we had great
success in all of our fundraising events and programs.
PRESIDENT’S MESSAGE
2
Children’s Specialized Hospital Foundation Board Chair
John Crisan, Esq.
Johnson & Johnson
Children’s Specialized Hospital Board Chair
Margaret M. Pego
PSE&G Services Corp.
Under the Umbrella
John Crisan, Esq.
Chairman
Philip Salerno III
President and CDO
Kimberly Armenti
Director of Development
Janice Kelly
Director of Marketing
Janelle LoBello
Managing Editor
The mission of Children’s Specialized Hospital
We enjoyed special visits from Dr. Oz, Eric LeGrand, and
Zak DeOssie of the NY Giants.
is to be the preeminent provider of specialized
We are pleased to share these accomplishments
and so many more with each of you. Your continued
confidence and steadfast support is what makes all this
success possible.
young adults.
Thank you for believing in us.
healthcare services for infants, children and
To learn more about
Children’s Specialized Hospital Foundation
Visit: www.childrens-specialized.org/giving
Email: foundation@childrens-specialized.org
Call:
Philip Salerno III
President and Chief Development Officer
908-301-5561
UNDER THE UMBRELLA | SPRING 2015
3
4
8
COVER STORY
Grateful Patient:
Dylan Klink
Children’s Specialized
Hospital named one of
the nation’s Top Children’s
Hospitals!
6-7
2014: A Year in Review
12
27th Annual
Umbrella Gala
13
Volunteer Profile
14-15
Children’s Miracle Network
Hospitals
Are You Ready to Walk and Roll for the Kids?
Official Walk n’ Roll t-shirts will be awarded to individuals who raise
$25 or more. Participants will enjoy a 5, 2.5 or 1 mile course along
with a free carnival complete with games, fun, food and prizes for all
in attendance.
Walk n’ Roll chairwoman Kim Hanemann, Vice President - Delivery
Projects and Construction of PSE&G and Children’s Specialized
Hospital Foundation trustee, is instrumental in leading the event
committee to yet another record-setting year.
Children’s Specialized Hospital will host their ninth annual
Walk n’ Roll on Saturday, May 16 at Johnson Park in
Piscataway. Along with 2015 Honorary Walk n’ Roll Chairs, 95.5
WPLJ radio personalities, Todd Pettengill and Jayde Donovan,
thousands are expected to walk or roll to support children
living with special healthcare needs.
With this year’s event supporting inpatient programs at PSE&G
Children’s Specialized Hospital, the Walk n’ Roll is expected to
surpass last year’s record, breaking $265,000! This signature
event has grown tremendously over the years from only 400
participants its first year to over 2,100 in 2014.
“Our employees, vendors, and all of the PSE&G community fundraise
for Children’s Specialized throughout the year, and we all look
forward to the Walk n’ Roll,” said Hanemann. “We especially enjoy
meeting the patients and families that will benefit from our efforts.
Their enthusiasm makes our hard work worthwhile. We look forward
to breaking new fundraising records for 2015.”
Want to join in the fun? Join
a team, create your own, and
fundraise by signing up now at
www.childrens-specialized.org/
walknroll or call 908-301-5561.
4
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Children’s Specialized Named
“Top Children’s Hospital”
for Quality and Safety
In December 2014, Children’s Specialized Hospital was honored
to be named the first and only pediatric rehabilitation hospital to
The Leapfrog Group’s annual list of Top Hospitals. An elite
distinction awarded to hospitals nationwide for demonstrating
excellence in hospital safety and quality through the Leapfrog
Hospital Survey. The Leapfrog Top Hospital award is given to less
than seven percent of all eligible hospitals, making it even more
prestigious. Nationwide, 1,200 hospitals were eligible for the
designation and 94 received it, including nine children’s hospitals.
“It is incredibly hard to fit the unique services we provide into
a typical healthcare survey or quality measure. Our team has
worked extremely hard to
distinguish ourselves and share
the exceptional work of our
clinical team in the areas of
quality and safety,” said Amy
B. Mansue, President and CEO,
Children’s Specialized Hospital.
“We are tremendously proud to
be chosen as the first pediatric
rehabilitation hospital to ever
receive this award and we are
grateful for the opportunity
to help people understand
why this recognition is so
important.”
“Leapfrog’s Top Hospital award is widely acknowledged
as one of the most prestigious distinctions any hospital
can achieve in the United States. It recognizes institutions
for their excellence in quality of care and patient safety, as
well as their commitment to transparency. By achieving
Top Hospital status, Children’s Specialized Hospital has
proven it’s a premier institution and deserves to be
recognized for its dedication to the families and patients
in New Jersey and beyond,” said Leah Binder, President and
CEO of The Leapfrog Group.
Out of 60 hospitals in New
Jersey that were evaluated by
The Leapfrog Group in 2014
having been evaluated in their
independent hospital rating Amy B. Mansue, Children’s Specialized Hospital President and CEO;
survey, Children’s Specialized and Christopher Haines, DO, MBA, FAAP, FACEP, Children’s Specialized
received the best possible Hospital Chief Medical Officer, with the prestigious Top Children’s
Hospital Leapfrog award.
rating in the areas of: safety,
preventing medication errors, taking steps to avoid harm, and
managing serious errors.
As the nation’s largest nonprofit pediatric rehabilitation hospital,
Children’s Specialized exceeds standards by partnering with
families of children with special healthcare needs providing the
unsurpassed results for patients. Children’s Specialized Hospital’s
quality scores were almost double the national averages in the
2014 The Leapfrog Group independent hospital rating survey.
The selection is based on
the results of The Leapfrog
Group’s annual hospital survey,
which measures hospitals’
performance on patient safety
and quality, focusing on three
critical areas of hospital care:
how patients fare, resource use
and management structures
established to prevent errors.
Performance across many areas
of hospital care is considered in
establishing the qualifications
for the award, including rates
for high-risk procedures and
a hospital’s ability to prevent
medication errors.
UNDER THE UMBRELLA | SPRING 2015
5
Online Portal Helps Families
Safely Access Patient Information
The My Children’s Specialized
Patient & Family Portal is a new
tool intended to allow families
to easily access their child’s
medical records and pertinent
information. This free web
portal is secure, private,
and convenient, designed
with each patient’s health
information readily available
online. Each family is provided
with a unique patient code
in which they can access the
following useful information:
• Physician and therapy
reports
• Patient medications,
vitals, allergies, and
history
• Monitor upcoming appointments
• Pay bills online
• Access patient records from other
providers in Jersey Health Connect
Simple. Secure.
Useful. Convenient.
“The My Children’s Specialized Patient & Family Portal is one of
the best tools for managing my daughter’s medical care,” says
Carrie Snyder, mother of Children’s Specialized patient, Maddie,
and Family Faculty staff member. “It has become an invaluable
asset to our family. All of my daughter’s current Children’s
Specialized medical records, appointment history, prescription
information and more is right at my fingertips. If I need to see a
list of her prescribed medication or get a copy of medical records
for another physician appointment I can easily print, email or save
it right from the portal. I can just log in to the portal and view not
only my upcoming appointment, but past appointments including
discharge notes and follow up instructions. I can even pay my bill
safely and securely directly through the site. I am so thankful that
Children’s Specialized Hospital consistently exceeds my family’s
needs not only in quality of care but in all that they do!”
Special thanks to our corporate sponsors TriZetto Cares and the
Verizon Foundation for generously funding a portion of the My
Children’s Specialized Patient & Family Portal.
Doug Schoenberger, VP of Corporate Responsibility and Public Affairs
for Verizon NJ presenting a check to Amy B. Mansue, Children’s
Specialized Hospital President and CEO, and Philip Salerno III,
Children’s Specialized Hospital Foundation President and CDO.
6
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
2014
Without your abundant support, it wouldn’t be
possible to serve thousands of children with
special healthcare needs. Here we share some
of our greatest achievements of 2014.
A Year in Review
✰
Opened 13th Site
✰
Served 26,612 Kids
✰
“2014 Top Children’s Hospital”
✰
We have opened our 13th location. The outpatient center,
located in Warren, NJ, the first in Somerset County, offers
physical, occupational and speech therapy as well as
specialty physician services including DevelopmentalBehavioral Pediatrics. Services were also expanded at
New Brunswick and Clifton outpatient sites.
✰
Implemented Transformative Technologies
✰
Exclusive Radio Concerts With Top
New York Stations
With the expansion of our services, and your continued
support, we have treated 26,612 children, a 16.3%
increase from 2013!
The Leapfrog Group has named Children’s Specialized
Hospital as the first and only pediatric rehabilitation
hospital to its annual list of Top Hospitals. An elite
distinction awarded to hospitals nationwide for
demonstrating excellence in hospital safety and quality
through the Leapfrog Hospital Survey, The Leapfrog Top
Hospital Award is given to less than seven percent of all
eligible hospitals.
Significant Increases in Research
The Kessler Foundation and Children’s
Specialized Hospital have started a
collaborative
research
program
for
children living with disabilities. Focusing
on areas of mobility and cognition, our
collaboration with the Kessler Foundation
enables Children’s Specialized Hospital
to reach new horizons in discovering
best practices for care of children with
unique medical challenges. Children’s
Specialized Hospital Research Center’s
Distinguished Lecture Series is our
new research education program free
for healthcare professionals to hear
and meet world-renowned doctors
and research specialists on various topics and
studies affecting the healthcare industry today.
Children’s Specialized Hospital has executed the use of VGo,
a “telepresence healthcare solution.” VGo is a robot that
allows physicians to interact with their patients at any hour
of the day without physically being in the hospital. As the
only pediatric hospital in the state with a Daytona Retinal
Scanner, Children’s Specialized is able to provide advanced
care using this pioneering technology that captures images
of an infant’s retinas in the hospital and sends them to an
off-site specialist for analysis. We are the first pediatric
hospital in the country to acquire the innovative Redcord
apparatus, whose unique system of bungee cords and
a harness builds muscular strength and coordination by
training the brain in new patterns of muscular activation.
For two days, Children’s Specialized Hospital hosted
two of the area’s largest radio stations - 95.5 WPLJ and
94.7 NASH FM. The stations conducted two 14 hour
radiothons, raising money and spirits for the kids in our
inpatient hospital in New Brunswick. The events were
tremendously successful raising over $66,000! Read
more about the events on page 10.
UNDER THE UMBRELLA | SPRING 2015
7
BY THE NUMBERS
Over 40,000 hours
volunteered, valuing
over $1,000,000
Over 8,300 Facebook
fans, a 30% increase from
2013
Time to schedule
DevelopmentalBehavioral Pediatrics
appointments decreased
Increased website traffic
by 54%
Added 22 new doctors and
Advanced Practice Nurses
by 25.59%
✰
Launched Innovative Digital Platforms
2014 marked a year of launching new electronic
communications for families. The My Children’s Specialized
Patient and Family Portal was created to easily and safely
allow families to access patient information online. Our
Mountainside location also implemented electronic Tablet
Based Registration upon check-in helping families to have
a speedier and more efficient registration process. The
Kohl’s Autism Awareness Community Hub was created
and is the only one-stop, virtual hub for pediatric autism
resources. This virtual community contains resources for
children with autism spectrum disorder (ASD), family
members, and other community members. Visit the hub
at www.childrens-specialized.org/kohlsautismawareness.
THANK YOU
for another great year!
✰
Unprecedented Fundraising Results
Children’s Specialized Hospital Foundation celebrated a
momentous year raising nearly $14,000,000 in donations
thanks to our generous donors and supporters! This
amount also includes an extraordinary $6,000,000
anonymous gift from an individual donor.
8
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Grateful Patient
Dylan Klink
“Never, ever lose hope!”
Those are the tried and true words of parents David and
Dana Klink. Their oldest daughter, Dylan, now five-yearsold has benefitted from Children’s Specialized Hospital’s
services since she was 23-months-old. In May 2011, Dylan
was scheduled for an in-and-out surgical procedure.
What was supposed to be something relatively simple,
turned into one of the scariest moments of the Klink’s
lives. Unfortunately, something went terribly wrong
and Dylan experienced a stroke during surgery causing
hemiparesis, or weakness, on the right side of her body.
As a result, Dylan was partially paralyzed and could no
longer walk. At that time, doctors recommended that
Dylan be transferred to PSE&G Children’s Specialized
Hospital for inpatient rehabilitation services in order to
recover. David and Dana were fully aware their little girl
had a tough road ahead, but were certain Dylan had a
determined and unwavering spirit that would help her
through. For four weeks, Dylan worked hard at intensive
rehabilitation including physical therapy, occupational
therapy and speech therapy, with a primary focus on
independent walking and increasing right side awareness
and strength.
After a long month of hard work full of willpower, Dylan
was able to go home. She continued therapy as an
outpatient at one of Children’s Specialized Hospital’s
facilities in her hometown of Toms River. Dylan continues
to receive occupational therapy services today. With her
continued outpatient therapies, Dylan began to walk
again with the help of leg braces and has made incredible
progress.
“Dylan came to us with little to no use of her right upper
extremity,” explains Dylan’s occupational therapist since
August 2011, Danielle McConnell, MS, OTR/L. “Being
as bright as she is, Dylan figured out how to complete
tasks using her left arm and legs as opposed to using
both hands. She was easily frustrated and had limited
compliance, but since then, Dylan has greatly matured
and is engaged in therapy and motivated to use her right
arm. She is able to activate her shoulder and elbow and
is beginning to have active motion in her wrist and hand.
She has even achieved successfully grasping on objects
using Neuromuscular Electrical Stimulation.”
UNDER THE UMBRELLA | SPRING 2015
9
Dylan has also attended Children’s Specialized Hospital’s BECOME
Program; a camp that provides Constraint Induced Movement
Therapy (CIT) for up to six hours a day, five days a week, for three
weeks. CIT involves “constraining” the strong or unaffected arm
using a removable cast. This approach allows the child to only use
their affected or weaker arm during play activities. Dylan is now
able to use her right hand to assist when holding a large object
and she is able to jump and run.
Big sister to 2 ½ year-old twin sisters, Dani and Devin, it’s no secret
Dylan challenges herself to be the best she can be. Her strongwilled personality and desire to do things better and faster has
given her the drive to succeed and improve her motor skills. Dylan
is now “able to incorporate her right upper extremity into play
tasks, including holding the handles of her tricycle or pogo stick,”
says McConnell.
Dylan is doing well in school, especially enjoying art and reading.
She also loves being active outside any chance she gets. Though
with a lot to celebrate, Dylan is greatly looking forward to an
indoor pool party for her upcoming sixth birthday in May!
“I attribute much of Dylan’s success to family involvement in
sessions and carryover at home,” explains McConnell. “It has
been an absolute pleasure to work with Dylan and her family!”
Dylan (far left) and her family at Children's Specialized Hospital’s
2014 Walk n’ Roll.
Last year, Dylan was also named Children’s Specialized Hospital’s
2014 Children’s Miracle Network Hospital’s Champion. Dylan
blossomed during her Champion year attending many events to
share her success story on behalf of Children’s Specialized and
Children’s Miracle Network Hospitals.
Despite going through unimaginable circumstances no parents
want to experience, David and Dana recommend for families
to “embrace the experience of being a part of the Children’s
Specialized Hospital family. No one ever hopes to be in this type
of situation, but if you find yourself there, you can find comfort
that you are being cared for at Children’s Specialized Hospital.”
“
“Dylan's recovery started at Children's
Specialized Hospital and she continually
shows improvement. The therapy she has
received has been instrumental in her positive
growth. Specifically, this past year during her
reign as Champion, she has matured so much
and really come out of her shell!
We are so proud of her! How strong and
resilient children really are.”
David and Dana (Dylan’s parents)
10
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
First Ever Holiday Concerts and
Live Radio Broadcasts!
Logo
Below is the main version/color of the logo.
Color Palette w/ Single Color Versions
Below are the 3 colors in the brand palette. For use in marketing applications.
The holiday season celebrations for our kids are always fun and
festive. In 2014, we surprised everyone by hosting a two day
concert and radiothon with two of the New York metro area’s
largest radio stations - 95.5 WPLJ and 94.7 NASH FM.
For two days, our patients, families, staff, trustees, and volunteers
enjoyed private concerts and a front row view of famous musicians
including American Authors, best known for their hit, “Best Day of
our Lives” and Ryan Cabrera, best known for “On the Way Down.”
In addition to country stars Casey James from American Idol, The
Swon Brothers and RaeLynn from NBC’s The Voice, and John King!
Not only did the kids get to rock out and celebrate the holidays
with some major recording artists, the morning show personalities
from both stations broadcasted live from the auditoriums on
Patients and families were treated to live concerts and broadcasts
from WPLJ and NASH FM.
December 18 and 19 with a listening audience of 1,005,500
million people that learned about Children’s Specialized Hospital,
the services we provide and how they can help. The crew from
“The Todd Show in the Morning” kicked off the festivities on
that Thursday, announced the acts, interviewed patients and
welcomed a surprise act, the Jewish A Capella group Six13!
NOTE: ONE COLOR VERSIONS ARE ONLY APPROPRIATE IN CERTAIN INSTANCES.
Color Palette
Please use the following mixes for brand colors.
BLACK
PMS Black U / PMS Black C / C=0 M=O Y=O K=100
MAGENTA
PMS PROCESS MAGENTA U / PMS PROCESS MAGENTA C / C=0 M=69 Y=95 K=0
CYAN
WPLJ Branding
PMS 299 U / PMS 299 C / C=100 M=14 Y=0 K=0
Logo Standards
THIS GUIDE CONTAINS TOOLS TO HELP YOU IMPLEMENT THE LOGO SYSTEM.
10 / 27 / 14
Blair Garner from NASH FM’s “America’s Morning Show” interacts
with patients between segments.
“We are humbled to have played a small
role in what we know will be a memory
these special kids will never forget and
for hosting the first of what we hope to
be many concerts and radiothons here
at Children’s Specialized. I'll never forget
seeing Gianna Trotter, our patient who
I've seen grow up, and future rock star,
singing with Ryan Cabrera!”
PHILIP SALERNO III
PRESIDENT AND CHIEF DEVELOPMENT OFFICER
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
On Friday, NASH FM brought in “America’s Morning Show” from
Nashville with Blair Garner, Terri Clark and Chuck Wicks. The
show, which is traditionally syndicated nationally, was broadcast
to the NY/NJ area and the on-air personalities flew in to be a part
of this monumental event. NASH continued to broadcast live from
the lobby with Kelly Ford and Jessie Addie, who also interviewed
patients and families.
Not only did we create once in a lifetime experiences for our
patients and families, this was a fundraiser. Over two days,
we raised over $66,000 for the kids at Children’s Specialized
Hospital! Mark Montenero, president of Autoland in Springfield
and foundation trustee, got everyone in the holiday spirit by
generously donating $20,000!
Autoland President, Mark Montenero (center) generously donated
$20,000 over two days to Children’s Specialized!
UNDER THE UMBRELLA | SPRING 2015
It’s a bird,
It’s a plane... It’s Dr. Oz!
11
On October 27, 2014, Dr. Mehmet Oz swapped his usual doctor
scrubs for an exciting super hero costume. Dr. Oz and grimefighting window washers, Julian and Alex, transformed into
Superman, Spiderman, and Batman before they propelled down
the side of PSE&G Children’s Specialized Hospital as special
window washers. The popular super heroes happily surprised
inpatients as some of their favorite super heroes coming for a
visit!
Their mission was quite simple: bring smiles to even the smallest
of heroes recovering from traumatic injuries and illnesses.
After they cleaned and scrubbed the windows, the three
caped crusaders arm wrestled and chatted with patients about
their own super powers, like growing big and strong. Washing
windows aside, Dr. Oz and friends truly bonded with the patients
providing them with an unforgettable experience and memories
to last a lifetime. A nearly 5-minute segment of the visit aired on
Dr. Oz’s November 4th episode with 5 million viewers tuning in!
Dr. Oz bonded with Children’s Specialized Hospital inpatient, Poppy.
Patient Eliana was all smiles for Dr. Oz and friends.
Super heroes and super children showing their muscles.
Patient Liante proudly defeated Dr. Oz in arm wrestling.
12
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Annual Umbrella Gala Guests treated to
a “Culinary Clash”
Children’s Specialized Hospital Foundation hosted its 27th
Umbrella Gala at the New Jersey Expo and Convention Center, in
Edison on October 22, 2014. Guests were wowed by the “Culinary
Clash” themed celebration while they enjoyed and voted for
gourmet meals, prepared by two competing chefs.
Over 275 guests filled the room and helped raise an outstanding
$255,000 net. The money raised will support the Children's
Specialized Hospital research program. The research will focus
on finding ways to advance care, and establish evidence-based
practices, for treating children with a variety of complex medical
conditions.
Led by gala committee chair, Amanda Harrison, the committee
would like to extend special appreciation to the event’s major
sponsors L’Oréal USA, C.R. Bard, Inc., Robert Wood Johnson
Health System, BASF and PSE&G.
The gala committee selected Kohl’s Associates in Action (AIA) as
the 2014 honoree. Kohl’s volunteer program, AIA, has participated
in a number of community activities in the central Jersey area for
families involved with Children’s Specialized; such as sponsoring
activities at a minor league baseball game with the Somerset
Art Esposito; Stella Matteace-Esposito, Children’s Specialized Hospital
Foundation board member; Amanda Harrison, Umbrella Gala Chair; and
Michael Harrison, Children’s Specialized Hospital Foundation board
member.
Gala attendees were also touched by the heartwarming success
story of a family served by Children’s Specialized. Lori Velasco and
her son, Matthew, shared their experience of the quality care they
received while at the hospital after they were involved in a 2007
car accident. Matthew, age seven at the time of the accident, had
sustained a traumatic brain injury.
“After the accident, Matthew was taken to a trauma center,
where we spent 10 to 12 days,” explained Lori. “Our journey with
Children’s Specialized began with six weeks of inpatient rehab
before he was discharged. He received cognitive rehab, physical
and occupational therapy and neurological rehab. He missed all of
second grade.” With the help of the services he received at
Children’s Specialized, Matthew has made a full recovery
and is now thriving.
2014 Umbrella Gala honoree, Kohl’s Associates in Action, including
Lewis Ferrero, Kohl’s district manager (second from right).
Patriots in September 2014. Since 2000, Kohl’s Cares has donated
more than $5.1 million to Children’s Specialized; Kohl’s’ pledge
to Children’s Specialized Hospital Foundation is made possible in
part through the Kohl’s Cares cause merchandise program selling
$5 books and plush toys, with 100 percent of net profit benefiting
children’s health and education programs nationwide, including
hospital partnerships, such as with Children’s Specialized.
Guests at the Umbrella Gala enjoyed the company of chefs,
Devin Forte and Steven Rubin who competed in a cook-off, while
attendees had the opportunity to text and vote on their favorite
dish. There was also a panel of expert judges in attendance:
Executive Chef at Rock Center Café, Anthony Prontelli; cook book
author, Caroline Campion; owner of The Bent Spoon, Gabrielle
Carbone; and Mary Moule, from Miele USA.
From left to right, Culinary Clash judges: Gabrielle Carbone, The
Bent Spoon; Caroline Campion, KEEPERS cookbook author; Anthony
Prontelli Executive Chef, Rock Center Café; Mary A. Moulds, Culinary
Events Manager, Miele USA.
Thank you to the sponsors and attendees who helped
to make this “Culinary Clash” a huge success!
UNDER THE UMBRELLA | SPRING 2015
13
Volunteers Help Make Community
Recreation Programs A Success
For over 10 years, Children’s Specialized Hospital’s community
recreation program, part of the Recreational Therapy/Child Life
Department, provides opportunities for children living with
disabilities and special health needs to participate in recreation
programs that best meet their development and skill level.
The community recreation programs, such as the adaptive
aquatics and martial arts programs, provide a continuum of
rehabilitative services as many children enrolled carry over
therapeutic goals. Such goals may include maintaining range
of motion, improving strength, coordination, and endurance,
as well as practicing social skills in a natural environment.
Specifically, the adaptive aquatics program, offered at the
Mountainside and New Brunswick sites to children ages 3-10,
utilizes Children’s Specialized recreational therapists with
certifications in Water Safety Instruction along with dedicated
volunteers known as “buddies.” These volunteers are integral
Many children with autism spectrum disorders participate in
the program focusing on routine, consistency, and water safety
skills.
The Children’s Specialized Hospital martial arts program offers
instruction from experts in Karate & Jiu Jitsu. Recreational
therapists provide extra support to instructors & participants
while the classes provide instruction on basic martial arts
techniques and listening skills.
Recreational therapists provide
extra support as the classes
provide instruction on basic
martial arts techniques and
listening skills. This program
provides children with an
opportunity for positive peer
interactions and promotes
a sense of independence,
confidence, and belonging.
The programs continue to grow
in order to meet the significant A student benefits from martial
arts instruction as part of the
demand. It is through the recreation therapy program.
generosity of donors that the
programs are made possible. A great thanks is extended to
the Elizabeth PBA #4 and Eddie DeStefanis for funding these
community recreation programs!
Volunteers helping a child during an adaptive aquatics class.
to the long-term success of the program as they form a
special bond with each child and family, help the child grow,
and provide additional supervision and support in each class.
All of the programs utilize Children’s Specialized Hospital
volunteers who donate their time to make the programs
a huge success. For those interested in volunteering for
these programs, please inquire by emailing volunteers@
childrens-specialized.org.
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Join the Children’s Specialized Friends at “A Literary Luncheon”
FRIENDS
The Children’s Specialized Hospital Friends invite everyone to attend “A
Literary Luncheon” on April 30th at the Canoe Brook Country Club in Summit,
NJ beginning at 11 a.m. All are welcome to attend. Consider becoming a
“Star” by sponsoring the program book; sponsorship levels from $50 - $1,000
are available. Please contact Joan Murray at cshfriends.events@gmail.com
with any questions. “A Literary Luncheon” will support Children’s Specialized
Hospital’s Friday Night Fever Program, a monthly social and recreational
program for teens with disabilities providing opportunities for teens to make
friends, socialize, participate in activities, access a variety of community
facilities, and just be a teenager!
14
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Extra Life Gaming Marathon
Last Fall, 742 people pledged
to play games for 24 hours
for Children's Specialized
Hospital as part of Extra
Life, a gaming marathon
and fundraising program
organized through Children’s Miracle Network Hospitals. In
2014, Extra Life gamers raised an incredible
$116,876 for Children’s Specialized Hospital, a
101% increase over 2013!
Some incredible highlights from 2014 included establishing an
Extra Life Guild to connect gamers and boost recruitment for
the marathon, an official resolution passed by the NJ Legislature
recognizing Extra Life participants in NJ, outstanding fundraising,
and a chance to have our highest individual fundraiser, Tym, at the
first-ever Extra Life United tournament in Orlando!
An extra special thank you to our top fundraising teams, Shack
News and PS Nation, and our Guild members for all of their
dedication!
Radiothon
Children's Specialized Hospital Extra Life gamer and highest individual
fundraiser Tym Kaywork (left) competes at Extra Life United in Orlando,
Florida.
Rutgers Sigma Chi Derby Days
Rutgers University's Sigma Chi fraternity and seven sororities
raised $185,000 for charity during their annual Derby Days
last November. The brothers of Sigma Chi at Rutgers hosted a
week of activities including field day games, a Family Feud quiz
night, a brotherhood date auction, and the ever-popular lip sync!
“Shawn and Sue’s Making Miracles Radiothon” raised over Over half of the total raised is presented to Children’s Specialized
$22,000 with the help of many wonderful businesses and Hospital Foundation with the remaining funds benefitting the
community organizations. A special thank you to OceanFirst Bank sororities’ national philanthropies. Congratulations and thank
you to Marcus Dadyan,
and Foundation and Boscov’s of Ocean County Mall for being our
2014 Derby Days Director,
top sponsors and to all of the families who shared their stories!
the brothers of Sigma
Chi, the women of the
participating sororities,
and Fraternity & Sorority
Life at Rutgers for your
passion and commitment.
Past Rutgers Sigma Chi Derby Days
Congratulations to the
Directors and their inspiration, Miracle
Child, Kaitlin Clutter. From left, Chris newly elected Derby Days
Daniele, Sagar Shah, Kaitlin Clutter, Director, Joe Hefner!
Marcus Dadyan, John Daniele.
Hosts Shawn and Sue celebrate with OceanFirst Bank and Foundation’s
Michael O’Brien and Kathy Durante as they present their sponsorship to
Philip Salerno III, Children’s Specialized Hospital Foundation President
and CDO and Nicole Fulmino, Director of CMN Hospitals.
Phi Sigma Sigma performs at the closing Rutgers Sigma Chi Derby
Days event, the lip sync!
UNDER THE UMBRELLA | SPRING 2015
Dance Marathons
This year was a big year for our Dance Marathon programs; we
added two successful collegiate programs at Kean University and
Montclair State University and saw a 249% increase in
fundraising. Thousands of supporters came together at J.P.
Stevens High School, Kean University, Georgian Court University,
The Stand; NYC Dance Marathon, Montclair State University, and
Ramapo College to dance for kids who can’t and raise money
for Children’s Specialized Hospital through Children’s Miracle
Network Hospitals! We look forward to adding another collegiate
program at NJIT in 2015. For more information and to bring Dance
Marathon to your high school or college campus, contact Colette
Forcier at cforcier@childrens-specialized.org or 908-301-5518.
SAVE THE
DATE
April 17, 2015
HighlanderThon, NJIT
www.highlanderthon.com
Kean Dance Marathon
Kean University
www.keandm.kintera.org
Models for Miracles Fashion Show
Montclair State University
www.nj.modelsformiracles.com
May 9, 2015
Dancer Sari Lipschitz takes some time to do crafts with AdvoKID family
member, Abby Elphick, at The Stand, New York City's Dance Marathon.
Look for our famous red and yellow balloon
at retailers below. When you purchase one at
the register, your donation comes directly to
Children’s Specialized Hospital. Help us support
the businesses that support our kids!
March 8-April 26
Rite Aid
April 8-May 6
Sunoco
April 13-30
Ace Hardware
May 1-June 30
Chico’s FAS, Inc.
May 1-31
Costco Wholesale
May 5-June 14
Walmart/Sam’s Club
May 12-June 1Wawa
June 1-July 31
Dairy Queen
11th Annual Playball for Miracles
Softball Tournament
Wariananco Park, Elizabeth, NJ
Johnson Park, Piscataway, NJ
May 16, 2015
9th Annual Walk n’ Roll
www.childrens-specialized.org/walknroll
June 15, 2015
26th Annual Golf Classic
www.childrens-specialized.org/classic
July 21, 2015
23rd Annual Golf Invitational
www.childrens-specialized.org/invitational
July 30, 2015
Miracle Treat Day
Participating Dairy Queen locations
www.miracletreatday.com
September 1-27, 2015
Miracle Marathon
www.miraclemarathon.org
15
16
CHILDREN’S SPECIALIZED HOSPITAL FOUNDATION
Photo Gallery
On September 10, 2014, former collegiate football players Rutgers University’s Eric LeGrand and Penn State University’s Adam Taliaferro, both
having sustained spinal cord injuries on the field, visited Children's Specialized Hospital inpatients like Maya Krutovich (pictured with physical
therapist, Sarah Dubois, and Sr. occupational therapist, Danielle Duddy.)
New York Giants football player, Zak DeOssie, visited inpatients like
Jude Siperstein, on November 18, 2014 and cheered them up with his
super-sized Super Bowl ring!
The Elizabeth PBA organized their annual Jingle Bell 5k in support of
Children’s Specialized Hospital on December 7, 2014. Pictured with
Santa are Philip Salerno III, Children’s Specialized Hospital Foundation
President and CDO; John Boyle, Children’s Specialized Hospital
Foundation trustee, and his wife, Roxanne; Amy B. Mansue, Children’s
Specialized Hospital President and CEO; and Dr. Sharon Burke,
Children’s Specialized Hospital Director of Infant Toddler Rehabilitation
Program.
UNDER THE UMBRELLA | SPRING 2015
Over 700 Johnson & Johnson employees volunteered at Children’s Specialized
Hospital in 2014; including a team who created decorations for the Children’s
Specialized Hospital inpatient Candy Land themed prom!
A SPECIAL
The 2014 NJ Greek Fest held at Holy Trinity Greek Orthodox
Church in Westfield, raised significant funds for Children's
Specialized Hospital. Pictured are Father Peter Delvizis from
Holy Trinity Greek Orthodox Church, Morris Lenczicki, Vice
Chairman Children's Specialized Hospital Foundation, and
Philip Salerno III, Children's Specialized Hospital Foundation
President and Chief Development Officer.
THANK YOU TO OUR DONORS
Children’s Specialized Hospital Foundation gratefully acknowledges the generous support of its donors.
Gifts to Children’s Specialized Hospital ensure that our patients receive the best possible care
from the most skilled doctors and therapists.
We would like to recognize the following major donations
from August 1, 2014 to December 31, 2014:
Humanitarian Society Donors ($50,000 + )
Anonymous (2)
BASF Foundation
Children’s Miracle Network
Hospitals
Costco Wholesale
Estate of Anna M. Airel
Estate of George Stirrup
Kohl’s Department Stores
Louise Washington Charitable
Remainder UniTrust
PSE&G Foundation
Founder Society Donors ($25,000+)
Mr. and Mrs. Nicholas A. Boccella
Mr. and Mrs. Joseph J. Dobosh, Jr.
Mr. and Mrs. Warren E. Moore
Partners Real Estate LLC
RE/MAX of New Jersey
Cornerstone Society Donors ($10,000 + )
Autoland of New Jersey, Inc.
Bonnie Baloga-Altieri, Ph.D. and
Mr. Paul Altieri
Central Jersey Spinal Cord Association
Mr. Charles Chianese
Mr. and Mrs. John T. Crisan, Esq.
Mrs. Leona L. Deliberato
Dr. and Mrs. Michael R. Dribbon
Elizabeth N.J. Firemen’s
Federal Credit Union
Mr. and Mrs. Jeffrey Fischer
Football Coaches Assoc.,
Greater Middlesex Conference
Dr. and Mrs. Alexander R. Giaquinto
17
Mrs. Evemarie C. Gilfillan
Grampy’s Charity
Grand Central Station, LLC
Mr. and Mrs. Michael Harrison, Esq.
Investors Bank
L’Oréal USA
Merck Company Foundation
Merck Employees FCU
Nektar Therapeutics
PSE&G
Robert Wood Johnson University Hospital
Ruth & Peter Metz Family Foundation, Inc.
Mr. and Mrs. James R. Rutherford
Scientific Design
Spicehandler Family Charitable Fund
Standish Foundation
Mr. and Mrs. Frank E. Walsh, Jr.
Starlight Children’s Foundation
NY*NJ*CT Chapter
Summit Area Public Foundation
The Lucy & Eleanor S. Upton
Charitable Foundation
The Marion and Norman Tanzman
Charitable Foundation
The Taub Family Foundation, Inc.
Verizon Wireless
Leave a Legacy for
Generations of
Children to Come
Children’s Specialized Hospital
Heritage Society
When you remember Children’s Specialized Hospital in
your will, you become a member of our Heritage Society
entitling you to special recognition and benefits. Many of
our donors have thoughtfully made provisions for Children’s
Specialized Hospital in their estate planning. By becoming
a member of the Heritage Society, you will ensure that
Children’s Specialized Hospital will continue to bring quality
healthcare to our community. For more information on how
to become a member of the Children’s Specialized Hospital
Foundation Heritage Society, call Kimberly Armenti, Director
of Development, at 908-301-5462 or email at karmenti@
childrens-specialized.org.
If you would like to remember Children’s Specialized Hospital in your will, the proper legal
wording for a bequest is:
“I give and bequeath to Children’s Specialized Hospital Foundation (either the actual amount
or the percentage if it is a residuary gift) for (the purpose of or to fund) OR the most urgent
need as identified by the board of trustees.”
Your Generosity Can be Financially Rewarding
The best gifts have a way of giving back. When you invest in a Children’s Specialized Hospital Charitable Gift Annuity, you
will not only be supporting the good work of Children’s Specialized Hospital and the children we serve, you will also receive
guaranteed income for life!
A Children’s Specialized Hospital Gift Annuity is a great way to contribute to the health and well-being of others while
receiving a guaranteed, fixed return on your investment. Your generous gift can be set up for yourself or for two. And the
secure and steady payments you receive are your reward for helping Children’s Specialized Hospital perform countless
miracles.
To learn more about the tax benefits of Charitable Gift Annuities with Children’s Specialized Hospital, please call Children’s
Specialized Hospital Foundation planned giving office at 908-301-5462.
Charitable Gift Annuity*
Gift Annuity Interest Rates-Single Life
Age
Rate
70
5.1%
75
5.8%
80
6.8%
85
7.8%
90+
9.0%
vs. Average
CD rate
1.1%
*Tax benefits associated with rates
✂
❏ Please include me on your mailing list for your planned giving newsletter
❏ I would like more information:
❏ Charitable Gift Annuities
❏ Real Estate
❏ Will & Estate Planning
❏ Charitable Trusts
❏ Retirement Plan
❏ Charitable IRA
❏ Life Insurance
❏ Securities
Name________________________________________ Address___________________________________________
City_________________________________________ State___________ Zip Code____________________________
Phone_______________________________________ Email_____________________________________________
❏ I would consider including Children’s Specialized Hospital Foundation in my estate plan.
❏ I have included Children’s Specialized Hospital Foundation as part of my estate plan.
Mail to: Planned Giving Office, Children’s Specialized Hospital Foundation • 150 New Providence Road • Mountainside, NJ 07092
The information you request on this form, and all matters regarding your charitable giving interests are treated with the strictest
confidence. If you have any specific questions about Children’s Specialized Hospital Foundation Planned Giving Program, call
Kimberly Armenti, Director of Development, at 908-301-5462 or email karmenti@childrens-specialized.org.
Nonprofit
Organization
US Postage
PAID
Rahway, NJ
Permit No. 608
150 New Providence Road
Mountainside, NJ 07092
www.childrens-specialized.org
A CHILD’S
POEM
The poem below is featured in “Dreams of
Bacon,” a book written by Children’s Specialized
Hospital patient, Matthew Goldsmith.
“Impaired Improvement”
You see me impaired,
But that's not true.
Because I know!
That I improved.
Not fully repaired.
Not all the way through.
But ready to glow.
But from my past I have moved.
Now I'm prepared.
I know what I must do.
Down this perilous river I row.
A test of strength to be proved.
If victory is declared,
A celebration will be due.
Riches will flourish and flow.
But if my soul be removed,
No more dreams can I pursue,
All feelings replaced with misery
and woe,
But shall my trial be approved,
An experience I have gained a new.
Modesty I shall show.
For I have far, far improved.
To learn more about
Children’s Specialized Hospital
Foundation
Visit: www.childrens-specialized.org/giving
Email: foundation@childrens-specialized.org
Call:
908-301-5561
Like Children’s Specialized Hospital on Facebook
Follow us on twitter @ChildrensSpecNJ
Follow us on Instagram @ChildrensSpecNJ
Watch Children’s Specialized Hospital on YouTube
Bayonne • Clifton • Egg Harbor Township • Fanwood • Hamilton • Mountainside • Newark • New Brunswick • Roselle Park • Toms River • Warren
An affiliate member of the Robert Wood Johnson Health System,
and a member of Children’s Miracle Network Hospitals.