August, 2009 Edition

www.stlapda.org
August 2009: Vol. 23, Issue 3
Newsletter of the American Parkinson Disease Association, St. Louis Chapter
Mission
Trust Me, I’m Elated
Our mission is to enhance
the quality of life for people
with Parkinson’s disease, their
families, and caregivers in
our communities throughout
Missouri and southern Illinois,
and to provide funding for
ongoing Parkinson’s disease
research.
In This Issue
Q&A with Dr. Lee Tempel........... 2
PD101…A Tutorial.................... 3
Move It! PEP Meeting................ 4
Movement Challenges............... 5
Parkinson’s Drugs May Trigger
Pathologic Behavior.................. 6
Dance Dance Dance................. 6
Delay the Disease—
Functional Fitness..................... 7
What is Lewy Body Dementia?....... 8
Fashion Show................................ 9
Support Group/Exercise Class
Calendars................................ 10
Tributes & Donations............... 12
2009 Golf Tournament............ 14
Save the Dates........................ 16
Volunteer Opportunities........... 16
NEWSLETTER DISCLAIMER
“The information and reference material contained herein concerning
research being done in the field of
Parkinson’s disease and answers to
readers’ questions are solely for the
information of the reader. It should
not be used for treatment purposes,
rather for discussion with the patient’s own physician.”
Peter Shohl
This is the February 1, 2008, post from “Off &
On,” cartoonist Peter Dunlap-Shohl’s blog about life
with Parkinson’s disease. It is being reprinted in The
LiNK with his permission.
nyone can see some of the damage Parkinson’s disease visits on those who have
it. Tremor and shuffling are painfully
obvious. But there is another set of problems
spawned by what you
don’t see.
With the loss of control
of facial muscles we also
lose a significant chunk
of our ability to communicate. Instead of expressive smiles and frowns, we
present a deadpan, blank
mask that unnerves others.
Much of the sense of
what we all say is not in
the voice or words, but in
the subtle visual cues and
signals the face sends. We
all interpret speech in the
light of what we read in a
person’s expression. People with Parkinson’s can
slowly lose the ability to
enhance communication
this way without even
knowing it.
Think about the problem of misinterpretation of e-mail. The sender
composes a message in which the words seem clear
as the send button is pushed.
The recipient looks at the cold, expressionless
type on their screen, and without the guidance of
the visual and tone cues that we all use to correctly
interpret meaning, assigns meaning that isn’t there.
Often the missing meaning is misread, and the interpretation negative.
A
Then consider the way we get around this problem. We insert little faces that clarify our intent
:-)
This is exactly what those of us with Parkinson’s
Disease are not doing in face-to-face conversation.
We are sending spoken email, without the emoticons :-(
Instead of this :-) , or this :-( , what we send
is this :-| …nothing but
:-|
To complicate things
further, we are often
unaware that we are not
sending the proper cues.
And worse, as people
look for these cues and
cannot find them, they
get frustrated, confused
and eventually angry.
Once while taking
care of some support
group business at a bank
with my friend Lory, I
sensed rising irritation in
our banker. I was at a loss
as to the cause, but then
realized she was interpreting our Parkinsonian
lack of expression as anger. I stopped the rapidly
deteriorating meeting,
and explained our featureless expressions.
The change was immediate and dramatic. She
went from grim to jovial in seconds flat. And Lory
and I, having solved the mysterious problem, we’re
elated :-| .
Peter Dunlap-Shohl, 50, blogs from Anchorage,
AK, where he lives with his wife and son, works as
a cartoonist, and leads the Anchorage Parkinson’s
Disease Support Group. You can enjoy more of his
postings at offandonakpdrag.blogspot.com. n
APDA INFORMATION & REFERRAL CENTER
Deborah Dalin Guyer, M.A., CCC-SLP, Coordinator
guyerd@neuro.wustl.edu
Campus Box 8111 • 660 S. Euclid
St. Louis, MO 63110
314-362-3299 • 314-747-1601 (fax)
Office Hours:
Monday-Friday 7:30 AM–4:00 PM
www.stlapda.org
ST. LOUIS CHAPTER APDA BOARD OF DIRECTORS
Matt LaMartina, President
Tom Mackowiak, 1st Vice President
Don Carlson, 2nd Vice President
Joseph Burcke, 3rd Vice President
Brian Hantsbarger, Treasurer
Rebecca Daming, Secretary
MEMBERS AT LARGE
Bill Billings
Bob Clay
David Dankmyer
Brook Dubman
Kevin Fairlie
Carol Feuerhahn
Bernard Frank
Bob Goldsticker
Mary Hughes
Elaine Lindecke
Joseph Marchbein
Dorothy Reimers
Robert Sanderson
Jack Strosnider
Addie Tompkins
Lynda Wiens
Stan Wilensky
DIRECTOR EMERITUS
Susan B. Levin
EXECUTIVE DIRECTOR
Deborah Dalin Guyer, M.A., CCC-SLP
MEDICAL ADVISORS
Kevin Black, MD
Terri Hosto, MSW, LCSW
William Landau, MD
Joel S. Perlmutter, MD
Brad Racette, MD
Sylvan Sandler, PD, FACA
Samer Tabbal, MD
Lee Tempel, MD
NATIONAL AFFILIATION
APDA • 135 Parkinson Ave.
Staten Island, NY 10305
(800) 223-2732
EDITOR
Deborah D. Guyer
American Parkinson Disease Association
2
St. Louis APDA LiNK
Questions for the Doctor
Lee W. Tempel, M.D.
Please explain the impact of exercise in slowing the progression of PD.
The Dave Iverson PBS special indicated that exercise
reduces cognitive deficits,
reduces depression and motor symptoms which are all
a part of PD…that more
exercise means less PD.
am a big advocate of
various forms of exercise and how these may
help patients with PD (PWP) but we
must be careful in how we use words
to describe that. No exercise of any
type makes any known change in
the progression of PD. That is, exercise does not change the underlying
process of PD in the brain. However,
exercise can make a big difference in
how a person lives with their PD. By
that I mean that the right type of exercise can help lessen: 1) the motor
symptoms of PD, 2) balance issues,
3) speech and swallowing difficulties, 4) associated anxiety and depression symptoms, 5) minimal or mild
cognitive problems, etc. Exercise can
also improve the general health of
the PWP (ability to withstand other
illnesses, lessening falls, improving
bone density, etc.). Unfortunately,
just one type of exercise does not
help all of these different potential
categories of symptom improvement.
Additionally, any one PWP may need
a different type of exercise within a
given category. For instance, we have
different exercises in mind for someone who needs better flexibility and
range of motion than we have for
someone needing more strength or
better fine motor control. We might
also need to start at a more basic level
or a more advanced level for a given
patient. Everyone from the most unfit to the most fit has something to
gain with the correct form of exercise
for them. The majority of patients
would benefit from exercises found
I
in the APDA booklet on exercise (Be
Active!) which I give to every new patient. Often, though, more
individualized instruction
needs to be given. Then, a
physical, occupational or
speech therapist may each
need to be consulted to
get something more tailored for that patient TO
CONTINUE TO DO AT
HOME to get the best improvement for them. General exercises
can improve mood. Special exercises
may be needed for speech, swallowing, balance, cognitive problems, etc.
Finally, it is worth noting that, even
for the most fit, there is such a thing
as “too much” exercise that may increase tiredness, “wear them out” or
otherwise be counterproductive. Exercise should be viewed as ONE of
the number of things patients do to
improve their quality of life with PD
but does NOT replace appropriate
medications, appropriate use of DBS
or other treatments.
When should a patient consider
DBS?
here is no one correct answer – each patient is unique.
Some general principles apply,
though. Deep Brain Stimulation
(DBS) is currently predominantly
considered in moderately advanced
PD (not mild but not “end stage”
either). Also, we consider DBS for
patients with “regular” PD, not one
of the “Parkinson’s-Plus” syndromes.
Patients usually will have been on
at least a dopamine agonist at some
point (and may very likely still be on
one) or not have tolerated a dopamine
agonist. They will be on at least a
moderate dose of Sinemet (usually at
least 600 mg of levodopa or more per
day) and have a history of responding to Sinemet. They most likely will
have been tried on a COMT inhibicontinued on next page
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August 2009
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Questions for the Doctor
continued from previous page
tor as well. Despite some effort to optimize those medications, they will have
significant “off time” and/or dyskinesia.
Patients generally will not have significant cognitive impairment – not have
a dementia (but sometimes may have
some “minimal cognitive impairment”).
There is emerging data that DBS is better than just trying to optimize medications alone. Like most modes of treatment, it is: 1) NOT a cure, 2) not for
everyone, 3) not without some risk that
is usually minimal but, occasionally, is
severe, 4) not like television depicts it
– don’t expect to get out of surgery and
dance down the hall. The most common experience is that “off time” is
substantially reduced but there is still
some “off time” that is usually less severe, that there may be much less dysVolume 23, Issue 3
kinesia (or maybe even none) and that
medications are reduced by ABOUT
one third (but some patients may even
end up on more medication). Getting
a DBS also means needing to see the
neurologist (or a trained nurse) to do
DBS adjustments. To start with, those
may be relatively frequent to approach
“best” settings for that patient (every
couple weeks to a month for several sessions), but then usually the adjustment
sessions are much less frequent and less
lengthy.
Is Hospice available for PWP as the
disease progresses​? It seems like the care
necessary for a PD patient far exceeds
that given to support a cancer patient
wishing to remain in their own home,
and yet my doctor won’t order Hospice.
ospice is more than just about
relatively intensive levels of care
at home. The general philosophy behind hospice is to allow a patient
H
to die in familiar surroundings with a
minimum of discomfort and a maximum of personal dignity. This is typically undertaken when life expectancy
is not greater than six months (VERY
difficult to determine with PD). Also,
there is no longer any attempt to adjust
medications or treatments to get the patient “better” as that relates to their underlying disease. The expectation is that
the patient will not go back to the hospital if there is some serious infection,
complication, etc. (again, not typical
of PD). These basic principles underlie
more specific requirements to engage
hospice care. Usually, at least in typical
PD, it is quite difficult to meet specific
requirements for hospice care – but not
always, such as if there are other disease
processes at work that are terminal. n
St. Louis APDA LiNK
3
American Parkinson Disease
Association of St. Louis
Presents
Move It!
Kevin Lockette, PT
Sunday, August 23, 2009
2:00 pm – 3:30 pm
Kevin Lockette, physical therapist and author of MOVE IT!, an exercise and movement
guide for Parkinson’s disease, will be in the St. Louis area and has graciously accepted our
invitation to speak on Sunday, August 23rd at Congregation Shaare Emeth from 2:00 PM –
3:30 PM. Kevin works at the Ohana Pacific Rehab Services in Hawaii and we are fortunate
to have this opportunity to hear Kevin. Kevin has seen many people with PD as a physical
therapist and has taught classes for PD support groups for years. His book and companion
video share many non-conventional exercises and techniques that he has found helpful from
working with persons with PD over the past 19 years.
Exercise in conjunction with medication is one of the best things you can do to counteract
the negative physical effects of Parkinson’s disease. If you are newly diagnosed or have longstanding PD, Kevin’s suggestions will give you guidelines for how to move more effectively
despite your PD and how to stave off further physical decline.
At the program on August 23rd you will learn mobility techniques that apply both scientific
approaches of physical therapy as well as pragmatic solutions. Kevin will discuss fall prevention strategies but also how to fall and what to do when you are on the floor. He will review
assistive devices for safer walking and adaptive equipment that will help you maintain your
independence. Kevin is anxious to get you started on the journey and is looking forward to
seeing everyone on Sunday, August 23rd at Congregation Shaare Emeth.
Congregation Shaare Emeth
11645 Ladue Road*
*located at the corner of Ballas and Ladue Roads two blocks east of Highway 270. Enter
parking lot off of Ballas Rd. on the north side of the building and follow the signs to the
sanctuary.
For more information, call the APDA at 314-362-3299.
Washington University School of Medicine
American Parkinson Disease Association
Campus Box 8111 • 660 S. Euclid Ave. • St. Louis, MO 63110
4
St. Louis APDA LiNK
August 2009
Movement Challenges:
Strategies & Tips to Keep You Moving
By Kevin Lockette, PT
No More Automatic Pilot
Prior to experiencing any PD symptoms, you did not have to think to
move. You simply got up and walked,
turned, lifted, twisted, ran, etc. You did
not think about it at all. You simply relied upon your “automatic pilot.” Well,
with PD, your automatic pilot does not
function well and may not work at all at
times as you may experience with “freezing episodes.” In this chapter we are going to teach how to move consciously
and present techniques and strategies
that you can have in your bag of tricks
to assist you in moving and in getting
out of trouble when the PD symptoms
start to restrict your ability to move.
We will help you establish a “personal
trick.” Most of you will find the greatest difficulty with movement during the
“wearing off ” periods of your medications. The practical strategies that will
be presented will assist you with your
mobility, keep you out of trouble and
hopefully assist in preventing falls.
Conscious Posture & Purposeful
Movement
The keys to moving more freely with
PD are primarily conscious posture and
purposeful movement. You now have
to think to move. The trick is that you
have to re-train yourself this way. At
first this can be mentally fatiguing because you are not use to thinking about
general movement; however, with practice, you will have the ability to maintain safe, effective mobility and stave off
or delay the physical affects of PD.
Strategies that I have found helpful
are to first visualize the activity whether
it be walking, turning, standing, etc.
Second, mentally plan the sequence of
the activity you wish to achieve in to
defined steps. Third, completely finish
each step of the sequence prior to starting the next step and lastly, complete
the task or activity prior to starting the
Volume 23, Issue 3
next one. This strategy forces purposeful, conscious movement. There are
techniques and cues that will assist you
in keeping your movement “mindful.”
u Visualize
u Plan
u Sequence (one step at a time)
u Complete
Blending Steps of a Sequence
One common feature seen with PD
is the blending of movement sequences.
Blending is defined as starting step 1
but prior to completing step 1 you are
already starting or “blending” in steps 2
& 3. An example is a simple transfer to
a chair from standing. Blending occurs
when you approach a chair, but before
you complete the approach, you reach
for the chair and start to turn and sit
all at the same time. A better approach
is to use the auditory cues presented
above to break down and perform the
sequences one at a time such as talking
to yourself, “Approach chair, turn to
square buttocks over chair, reach back
for chair, and sit.” Again, you can’t rely
on that old automatic pilot. You have to
turn off the faulty automatic pilot, grab
the wheel and drive the plane one step
at a time. With practice, you can actually train yourself to move in this way
and most likely avoid some falls. One
technique that is helpful to avoid blending is to focus on the destination. Walk
up to the desired spot and make contact
with your leg. An example would be
approaching your bed. Focus on a spot
on the bed where you wish to sit. Walk
straight up until your leg makes contact
with the bed. By doing this, you have at
least eliminated premature reaching and
turning before you are close enough to
sit down.
Darn That Gravity/ Forward Posturing
Posture: Due to the physical symp-
toms of PD mentioned above, posture is
nearly always affected and plays a huge
role in how you walk and move in general. Typical posture changes include
standing with your knees and hips bent
with a rounded upper back, rounded
shoulders and a forward head. You will
also typically see the arms tucked into
the side of the body with the elbows
flexed and hand & fingers curled in towards the body.
This stooped posture has a huge impact. You know the drill. You stand up
and gradually or fairly immediately,
gravity gets the best of you and you
find yourself bending forward as if you
are looking for change on the ground.
When your center of gravity is in front
of your base of support (your feet), your
postural muscles are at a disadvantage.
Your hip and back extensors have to
work much harder to hold you up because your skeleton is no longer vertically stacked. Maintaining this flexed
posture leads to fatigue and often back
pain. This posture also leads to the tendency to fall forward with walking or
backward when trying to reach overhead
from standing. When walking with this
stooped posture, you are basically trying
to catch up with your center of gravity
which can cause a rapid uncontrollable
shuffling gait. I have even worked with
a patient who couldn’t control her gait
once she started in the pattern and literally ran into the wall or a stable object
in order to right herself.
Posture also affects your ability to
perform activities of daily living. One
of the first restrictions noticed is loss
in shoulder range of motion (ROM)
which impairs the ability to perform
basic tasks such a dressing yourself and
bathing. Understanding these typical
PD postures is important as your exercise program design will be to directly
continued on next page
St. Louis APDA LiNK
5
Parkinson’s Drugs May Trigger
Pathologic Behavior
SOURCE: Mayo Clinic Proceedings, April 2009
NEW YORK (Reuters Health) About one in five patients taking a
therapeutic dose of a dopamine agonist,
a class of drugs used to treat patients
with Parkinson’s disease, may develop
compulsive gambling or hypersexuality,
according to a study of patients treated
at the Mayo Clinic in Rochester, Minnesota.
By contrast, these behaviors were not
seen in untreated patients, those taking less than a therapeutic dose of a
dopamine agonist, or patients receiving treatment with carbidopa/levodopa
alone.
“Physicians who care for patients taking these drugs should recognize the potential of the drugs to induce pathologic
syndromes that sometimes masquerade
as primary psychiatric disease,” Dr. J.
Michael Bostwick and co-authors caution in the current issue of the Mayo
Clinic Proceedings.
Their study was designed to more
accurately determine the prevalence of
this treatment complication than previous studies have by limiting their study
patients in the seven counties surrounding their clinic. Included were 267 patients treated between 2004 and 2006.
Sixty-six were taking a dopamine
agonist, but only 38 were using doses
in the therapeutic range (pramipexole 2
milligrams per day or more, or ropinirole 6 milligrams per day or more); 178
were taking carbidopa/levodopa without a dopamine agonist, and 23 were
untreated.
Six men and one woman, ages 46 to
80, developed a compulsive syndrome,
in some cases as early as one month after
reaching the maintenance dose of the
dopamine agonist. Five started pathologic gambling and five became hypersexual (both disorders developed in
three of the patients). Other compulsive
behaviors were noted as well.
The behaviors, which often went un6
St. Louis APDA LiNK
abated for years, resolved after dose reduction or treatment discontinuation.
Two patients received extended psychiatric care before the link to their Parkinson’s disease treatment was noted.
The only patients who developed
these syndromes were taking therapeutic
dopamine agonist doses, for an occurrence rate in this group of 18.4 percent.
Bostwick and associates suggest that this
is still likely to be an underestimate because these problems may often not be
reported or recognized.
“The problems can be life-changing
events, with gambling depleting family
finances or hypersexuality threatening
marriage and reputation,” the authors
emphasize. “Physicians treating Parkinson’s disease with dopamine agonists
should obviously warn the patients,
spouses, and families of such risks because they may not recognize the relationship to the drug until disastrous
consequences have occurred.” n
Movement
Challenge
continued from previous page
oppose these postures.
TIP: When you are slumped, your
skeleton is no longer mechanically
stacked, which actually puts your muscles at a mechanical disadvantage—in
other words your muscles have to work
harder to pull you up. Some simple
ways to cue your body is to squeeze
your shoulder blades together while
straightening your knees and squeezing
your buttock muscles. If you are having
difficulty with standing, you can perform the posture correction of squeezing your shoulder blades in sitting as
well. This will force your body to realign itself. Do this throughout the day.
Your “automatic pilot” is not working
so you have to consciously think to do
this. You will over time try to re-engage
your “postural muscles” by conscious
thought and maintain a more advantageous posture. n
This article was adapted from the book
MOVE IT: An Exercise and Movement
Guide for Parkinson’s Disease.
DANCE DANCE DANCE
Dr. Gammon Earhart has received
the unofficial word that her grant for
the dance exercise classes will be
funded (CONGRATUL ATIONS!) and it
will be official
very soon. She
anticipates that
the dance classes
will likely begin in
early September,
given the delay
with the grant. We definitely have
more room for
participants, so please feel free to contact
Dr. Earhart directly at 314-286-1478
or by email earhartg@wusm.wustl.edu
or feel free to call the Center 314-3623299 and we will relay your interest to
Dr. Earhart.
Dance exercise classes will be held at the
Crestwood Court at the
Crestwood Mall (Watson Road) on Mondays
and Thursdays from
3:00 PM – 4:00 PM.
Stay tuned for further
information from Dr.
Earhart on the exact date
when classes will begin.
Brush off those dancing
shoes and be prepared to
have some fun while you
work on improving balance and walking simultaneously! n
August 2009
Delay the Disease – Functional Fitness
David Zid
Rotation
T
he ability to twist or rotate diminishes as you
age, and Parkinson’s disease magnifies this problem. These exercises will help you with turning
and twisting while seated, either at home or in your car.
These should help you with reaching and buckling your
seatbelt, or passing food while seated at dinner.
Good luck and stay flexible. n
Rope Pull
While sitting on a chair, reach up high with both hands, above your head,
and grab an imaginary rope either on your right or left side. Pull it toward
the floor on the opposite side of your body. Start on opposite side and
repeat, 5–10 repetitions.
Seated Side to Side Chops
While sitting on the edge of a chair, hold a weighted ball, dumb bell,
or even a gallon of milk with both hands. While keeping your elbows
bent at 90 degrees and fixed at your sides, move the weight side to
side, rotating at the waist. Repeat this rotation move 5-10 times.
Seated Rotational Stretch
While sitting on the edge of a chair, grab your left knee with your right
hand. Pull with your right hand so that your shoulders, head and body
twist and try to look behind you. You should feel a stretch from your
shoulders down through your hips. Hold for a ten count. Repeat on the
opposite side. You can modify this stretch by crossing your left knee over
the right leg, and performing the stretch as above. This will increase your
stretch and rotation.
Seated Rotational Bands
Wrap a band or tubing around a stationary object, or have your training
partner hold it. While sitting on the edge of a chair, grab the band with
both hands using an overhand grip. Twist to the side as far as you can with
arms straight. Rotate from your core, do not pull with your arms. Keep the
rotation in your torso, avoid bending your arms. Repeat 5–10 times.
Volume 23, Issue 3
St. Louis APDA LiNK
7
What Is Lewy Body Dementia?
James E. Galvin, MD, MPH
Alzheimer Disease Research Center, Departments of Neurology, Psychiatry and Neurobiology
Washington University School of Medicine
L
ewy body dementia (LBD) is a
progressive brain disease and the
second leading cause of degenerative dementia in the elderly. Over 50%
of Parkinson’s disease patients develop
“Parkinson’s disease dementia” (PDD).
Most people with dementia undergo
behavioral changes during the course
of the disease. The unpredictability of
these changes can be stressful for caregivers. Anticipating behavioral changes
and understanding the causes can help
you deal with them more effectively.
Lewy Body Dementia (LBD) is not a
single disorder but rather can be thought
of as a spectrum of disorders involving disturbances of movement, cognition, behavior and autonomic function.
LBD includes Dementia with Lewy
bodies (DLB) and Parkinson disease dementia (PDD). Parkinson disease (PD),
the most common movement disorder,
affects 1 in 100 individuals over the age
of 60 and 4-5% of older adults over age
85 (approximately 1.5 million people
in North America). Original descriptions of PD did not recognize cognitive
problems as an important clinical feature. More recently however, clinicians
have come to realize that PDD occurs
often and is among the most debilitating symptoms associated with disease
progression. It is estimated that up to
14% per year of cases over age 65 will
develop at least mild dementia. In the
past two decades, a related dementing
disorder (DLB) has been described;
characterized by extrapyramidal signs,
fluctuations in cognition and visual
hallucinations. No major clinical differences between DLB and PDD have
been found; instead distinction is made
based on the temporal appearance of
motor vs. cognitive symptoms. If motor
symptoms precede dementia by more
than 12 months, PDD is diagnosed. If
dementia precedes or is concurrent with
parkinsonism, then DLB is diagnosed.
8
St. Louis APDA LiNK
In addition we have found that the revised DLB criteria adequately capture
the features of PDD, and that while
DLB and PDD share many common
traits, both forms of LBD present a different pattern of performance than seen
with Alzheimer’s disease (AD).
How Common Is LBD?
The fact is that we really do not know
how many people have LBD. From
post-mortem studies, up to 40% of
autopsied demented patients have sufficient cortical Lewy bodies to be diagnosed with LBD, although many
cases are clinically diagnosed with AD.
The Lewy Body Dementia Association
(www.LBDA.org) estimates that between 1 and 2 million Americans have
LBD, approximately half the prevalence
rate of AD. The contribution of LBD
from PDD is unknown but we can begin to make estimates.
Recent studies suggest that yearly incidence rates of PDD increase with age
from 3% per year before age 65 to 14%
per year over age 70. There appears to
be a two- to six-fold risk of dementia
compared with control populations.
Independent of motor impairment,
PDD has wide-ranging effects on quality of life, caregiver distress, and nursing
home placement. Older age, longer disease duration and severity, lower education, and male gender are all important
risk factors for PDD.
Clinical Distinction
Between AD and LBD
The clinical diagnosis of dementia of
the Alzheimer type require the presence
of memory impairment with impairment in one or more cognitive domains
(aphasia, apraxia, agnosia, and executive
function) with evidence of insidious
and progressive decline and interference with social or occupational functioning. Secondary causes such as sys-
temic, neurological, psychiatric disease,
and delirium should be excluded. The
National Institute of Neurological and
Communicative Disorders and Stroke
and the Alzheimer Disease and Related Disorders Association (NINCDSADRDA) criteria classify AD into
categories of “probable,” “possible” or
“definite.” A diagnosis of probable AD
requires deficits in at least two areas
of cognition, including memory, that
starts between the ages of 40-90, shows
gradual progression with time and cannot be attributed to secondary causes
such as delirium, systemic, or neurological illness. Supportive features include
evidence of progression in specific cognitive domains (such as language, motor skills, and perception), behavioral
dysfunction or functional impairment
in activities of daily living, as well as
the presence of a positive family history.
Criteria for the diagnosis of possible AD
can be made when there is a dementia
syndrome with atypical onset or clinical course, or in the presence of a second systemic or neurological disorder
that can cause dementia. Patients who
present with a gradually progressive and
severe cognitive decline in a single cognitive domain in the absence of other
conditions also fall under this category.
The diagnosis of definite AD can only
be made by histopathological confirmation from a biopsy or autopsy in addition to the clinical criteria for probable
AD. A recent update to the consensus
criteria has been published. The new
criteria center on the findings of early
impairments of memory, and the need
for an abnormal biomarker suggestive
of AD including atrophy on structural
imaging, PET findings or alterations in
CSF amyloid and tau levels.
The DLB diagnostic criteria are defined by the presence of dementia with
at least two of three core features; flucContinued on next page
August 2009
Focus On Fashion Charity Event—October 12, 2009
O
n Monday, October 12, you will
have the opportunity and real
pleasure of attending the APDA
14th annual celebrity fashion show, luncheon and silent auction being held at
the Sheraton Westport Chalet. Kent Ehrhardt, Channel 4 Chief Meteorologist,
will be returning as our emcee, along
with other TV, radio and sports personalities, and favorite St. Louisans. You will
be entertained by a singer, dancers and
multi-generational models. Our Honorary Chair-Family is Brook & Melissa
Dubman and their beautiful children. This year’s show will feature parent/child
What is LBD?
continued from previous page
tuating attention and concentration, recurrent well formed visual hallucinations,
and spontaneous parkinsonian motor
signs. Suggestive clinical features include
rapid eye movement (REM) sleep behavior disorder and severe neuroleptic sensitivity. In the absence of two core features,
the diagnosis of probably DLB can be
made if at least one suggestive feature is
also present. Supportive clinical features
include repeated falls, syncope, transient
loss of consciousness, severe autonomic
dysfunction, depression, systematized
delusions, or hallucinations in other modalities. While these features may support the clinical diagnosis, they lack diagnostic specificity and can be seen in other
neurodegenerative disorders. These criteria allow for 83% sensitivity and 95%
specificity for the presence of neocortical
Lewy bodies (LBs). However, these criteria are more predictive of cases with pure
or diffuse LB pathology than cases with
concomitant AD pathology and cannot
reliably differentiate between rare forms
of pure DLB (that is, no other pathology
is present) and the more common mixed
forms of DLB and AD (where both pathologies are present). Criteria for PDD
include cognitive and behavioral features.
Cognitive features include impaired attention (with fluctuations), executive
ability (problem-solving), visuospatial
Volume 23, Issue 3
and grandmother/child/grandchild trios,
as well as individual adults and children,
who will adorn the runway in clothing
sure to interest you!
skills and memory. Behavioral features
include apathy (lack of interest and motivation), depression, anxiety, hallucinations, delusions and excessive daytime
sleepiness. It is clear from these criteria
there is much overlap between PDD and
DLB and only a temporal sequence of
when symptoms appear should currently
be used for discrimination.
What Is the Future?
There are currently no radiological or
biological markers that can reliably aid
in the diagnosis of AD or LBD. Despite these current limitations, detection
of disease at the earliest clinical stage (or
perhaps at a presymptomatic stage) has
both prognostic and therapeutic implications. It will enable physicians to recognize a potentially rapidly progressive
syndrome and initiate treatment as soon
as possible. This is further supported by
recent data suggesting that LBD patients
might have better responses to cholinesterase inhibitors than AD patients. In
addition, knowledge of LBD early in the
course will allow physicians to avoid certain medications such as classic neuroleptics (i.e. haloperidol). LBD are very sensitive to neuroleptics and even at very low
doses can have significant side effects. Up
to 57% of LBD patients may exhibit exaggerated extrapyramidal signs, sedation,
immobility, or neuroleptic malignant
syndrome with fever, generalized rigidity and rhabdomyolysis and neuroleptic
Look for your invitation to arrive in
the mail by Labor Day, and if you’ve
never received an invitation to this charitable event, please call the Center and request one! Our auction basket committee promises a return of some of the very
popular gift items, along with our second
annual St. Louis Dinner buffet (gift certificates to famous and new restaurants)
and a new kiosk featuring items with the
red tulip that is the symbol of PD. We
look forward to a fun and memorable day
celebrating our progress toward finding a
cure and supporting those with PD! n
sensitivity is one of the suggestive features
in the diagnosis of LBD. Neuroleptic
malignant syndrome is a life-threatening
condition and the higher prevalence in
LBD suggests that “classic” neuroleptics
such as haloperidol, fluphenazine or thioridazine should be avoided.
Early diagnosis will also allow families
and caregivers the time to plan for the
expected decline. Prophylactic measures
to enhance the safety of the environment
should be taken given the tendency for
recurrent falls and rapid attentional
fluctuations in this particular group of
patients. Families will also have time to
develop a better understanding of their
role in patient care, including assistance
with daily activities and provision of social and cognitive stimulation.
LBD represents both DLB and PDD
and is the second most common cause
of dementia after AD affecting up to two
million Americans. Despite this, there is
a general lack of knowledge about LBD
in the lay public and a general lack of
awareness of the prevalence of LBD in
healthcare providers. Additionally, this
lack of recognition of the high prevalence, consequences and costs of LBD
to patients, caregivers and society has diminished funding opportunities to promote research advances for diagnosis, patient care, and new therapeutics tailored
specifically to address the needs of LBD
patients and families, resulting in a host
of unmet needs. n
St. Louis APDA LiNK
9
Missouri Support Group Calendar
Sponsored by the St. Louis American Parkinson Disease Association
Our Support Groups meet once a month or as noted. Support Group day and time may change periodically. For current updates on support groups and exercise classes, call the APDA Information & Referral Center or the facilitator.
City
County
Meeting Site
Day of Meeting
Time
Cape Girardeau
Cape Girardeau
St. Francis Med. Ctr.
211 St. Francis Dr.
SFMC Cafeteria
4th Monday
6:30 PM
Columbia
Boone
Lenoir Community Center
1 Hourigan Drive
1st Thursday
4:00 PM
Gerry Neely, RN
573-815-3554
Creve Coeur
St. Louis
Shaare Emeth Congregation
11645 Ladue Rd., Library
1st Wednesday
2:30 PM
Lisa Ackerman
314-725-1888
Festus/Crystal City
Jefferson
Disability Resource Association
420 B S. Truman Blvd.
3rd Tuesday
1:00 PM
Nancy Pope
636-931-7696
Florissant
St. Louis
Garden Villas North
4505 Parker Rd.
4th Thursday
11:00 AM
Julie Berthold
Kim Liefer
314-355-6100
Jefferson City
Cole
Capital Regional Medical Center
SW Campus, Cafeteria
3rd Wednesday
3:00 PM
Jennifer Urich, PT
573-632-5440
Joplin
Jasper
St. Johns Regional Medical Ctr.
2931 McClelland
Mondays
1:30 PM
Nancy Dunaway
417-659-6694
Kirkwood
St. Louis
Kirkwood United Methodist
201 W. Adams
1st Monday
7:00 PM
Terri Hosto, MSW,
LCSW
314-286-2418
Kirkwood/Oakland
St. Louis
Bethesda Dillworth
9645 Big Bend
3rd Friday
10:00 AM
Stacy Pepper, BSW
314-446-2184
Ladue
St. Louis
The Gatesworth
1 McKnight Place
2nd Wednesday
1:00 PM
Lake Ozark
Camden
Lake Ozark Christian Church
1560 Bagnell Dam Blvd.
3rd Thursday
5:30 PM
Patsy Dalton
573-964-6534
Rolla
Phelps
Rolla Apartments
1101 McCutchen
4th Thursday
1:30 PM
Mary Harlan
Richard Wagoner
573-364-6820
Sedalia
Pettis
First Christian Church
(Disciples of Christ)
200 South Limit
3rd Monday
4:00 PM
Barbara Schulz
660-826-6039
South St. Louis
St. Louis
Garden Villas South
13457 Tesson Ferry Rd.
2nd Wednesday
10:00 AM
Jack Strosnider
314-846-5919
St. Peters
St. Charles
1st Baptist Church of Harvester
4075 Hwy. 94 S.
1st Tuesday
1:00 PM
Ann Ritter, RN
636-926-3722
Ste. Genevieve
Ste. Genevieve
Riverview at the Park
21997 White Sands Rd.
Solarium
2nd Wednesday
10:00 AM
Jean Grifford
573-543-2162
St. Louis
St. Louis
DBS Patients
Sunrise on Clayton Sr. Living
7920 Clayton Rd.
3rd Thursday
1:00 PM
Steve Balven &
Stan Wilensky
314-249-8812
314-997-5114
Chesterfield
St. Louis
Newly Diagnosed
APDA Satellite Resource Center
1415 Elbridge Payne, Suite 168
1st Tuesday
10:30 AM
Carol Feuerhahn
314-863-4725
St. Louis
Young Onset
Living and Working With PD
Missouri Baptist Medical Center
3015 N. Ballas, Bldg. D, Conf. Rm. 1
3rd Tuesday
6:30 PM
Rich Hofmann
314-369-2624
Creve Coeur
10 St. Louis APDA LiNK
Leader
Phone
Desma Reno, RN, MSN 573-331-5871
Maureen Neusel, BSW 314-372-2369
August 2009
Illinois Support Group Calendar
Sponsored by the St. Louis American Parkinson Disease Association
Our Support Groups meet once a month or as noted. Support Group day and time may change periodically.
For current updates on support groups and exercise classes, call the APDA Information & Referral Center or the facilitator.
City
County
Meeting Site
Day of Meeting
Time
Leader
Phone
Alton
Madison
Eunice C. Smith Home
1251 College - Downstairs Conf. Rm.
2nd Monday
1:00 PM
Sheryl Paradine
618-463-7334
Belleville
St. Clair
Southwestern Illinois College (PSOP)
201 N. Church St., Rm 106
2nd Monday
1:30 PM
Mary Frierdich
& Jodi Gardner
618-234-4410
x7031 or 7033
Carbondale
Jackson
Southern IL Healthcare Headquarters
University Mall
1st Wednesday
1:00 PM
Bob & Charlotte
Kiriakos
618-549-3360
Carmi
White
First Christian Church
504 Bohlever Dr.
3rd Tuesday
1:00 PM
Carolyn Chastain
618-382-4932
Decatur
Macon
St. Paul’s Lutheran Church
352 W. Wood St.
3rd Thursday
1:30 PM
Cathy Watts
217-428-7716
Granite City
Madison
St. Johns United Church of Christ
2901 Nameoki
1st Thursday
1:30 PM
Hilda Few
618-797-0527
Greenville
Bond
Greenville Regional Hospital
200 Healthcare Dr.
Edu. Dept., Edu. Classroom
2nd Monday
1:00 PM
Lisa Ketchem, RN
618-664-0808
ext. 3555
Matoon
Coles
Sarah Busch Hospital
500 Health Center Dr.
Last Tuesday
1:00 PM
Kay McDade
217-258-4040
Mt. Vernon
Jefferson
Greentree of Mt. Vernon
2nd Floor
4th Thursday
6:30 PM
Quincy
Adams
Fellowship Hall of Salem
Evangelical Church of Christ
9th & State
3rd Thursday
12:00 PM
Barb Robertson
217-228-9318
Springfield
Sangamon
Christ the King Parish Ctr.
1930 Brentwood Dr.
3rd Sunday in May,
July, Sept., & Nov.
2:00 PM
Dan Vonberg
217-546-2125
Vandalia
Fayette
Fayette County Hospital
650 West Taylor, Conference Room
Last Tuesday
1:00 PM
Donna & Bill Peacock 618-242-4492
Charlene “Pokie” Pryor 618-283-4633
Exercise Classes
Our Exercise Classes meet once a week or otherwise noted.
City
County
Meeting Site
Day of Meeting
Time
Leader
Phone
Clayton
St. Louis
Barnes Extended Care
401 Corporate Park Dr.
Wednesday
& Friday
1:30 PM
Sue Tucker, OT
& Mike Scheller, OT
314-289-4325
Chesterfield
St. Louis
St. John’s Mercy Rehabilitation Hospital
14561 N. Outer 40
Tuesday
1:00 PM
Deb Luetkemeyer, PT
314-881-4200
Chesterfield
St. Louis
St. Luke’s Hospital
232 S. Woods Mill Rd.
Tuesday
10:30 AM
Patty Seeling, PT
314-205-6934
South St. Louis
County
St. Louis
Garden Villas South
13457 Tesson Ferry Rd.
Monday
11:30 AM
Sue Tucker, OT
& Mike Scheller, OT
314-289-4325
St. Peters
St. Charles
Barnes-Jewish St. Peters Hospital
Ste. 117
Every Tuesday
except 1st Tuesday
11:00 AM
Holly Leigh, PT
636-916-9650
North St. Louis
County
St. Louis
Garden Villas North
4505 Parker Rd.
TBA
TBA
Julie Berthold
Kim Liefer
314-355-6100
Lake Ozark
Camden
Lake Ozark Christian Church
1560 Bagnell Dam Blvd.
Monday
4:00 PM
Alice Hammel, RN
573-964-6534
Volume 23, Issue 3
St. Louis APDA LiNK 11
Tributes & Donations
Tributes are a wonderful way to acknowledge the memory of a beloved person as well as honor those who mean so much to you.
Tribute envelopes can be obtained from the Center 314-362-3299 or made directly on the St. Louis APDA website-www.stlapda.org by
clicking on the Donate link (on the right side of the home page).
HONORING
Richard Batt
Ann Roberts Divine
John (Jack) Boess
Robert & Donna Cohen
40th Wedding Anniversary
Bob & Donna Cohen
Courtney, Chuck, Ty & Avery
Adams
James Dailey
Grace Berding
Harry A. Dalin
Dad/Paw Paw On Father’s Day
2009
Karl, Debbie, Brittany Guyer
Marc & Erin Schreiber
Marriage of Michael & Rebecca
Daming
Debbie Guyer & the APDA
Board of Directors
Special Birthday Robert L. Long Sr.
Mrs. Jeanette Long and Family
Grandpa George Marble
Kevin, Cynthia, Drew, Chris
& Libby O’Toole
57th Wedding Anniversary
Darwin & Edna Meier
Eugene Meffert
50th Wedding Anniversary
Dr. & Mrs. Lester Nathan
Bett Jasper
Goldie Levinson
Sylvan & Ruth Sandler
Stan Towerman
Andre J. Nutis
Alice Nutis
Jim Perrine on Father’s Day 2009
Robert & Pamela Wallis
Winfred Richardson
Ruby Richardson
1st Birthday Brandon Dowdy
Paul Stumpe
Jim Richter on Father’s Day 2009
Margaret Richter Hughes
Kevin Fairlie’s Marriage
Debbie Guyer & the APDA
Board of Directors
Marty Shrader
Judith Ugalde
Speedy Recovery of Everett Gray
Debbie Guyer & the APDA
Fashion Show Committee
Bernhard T. Hartmann
Dad/Grandpa on Father’s Day
2009
Don & Deb Hartmann
Pat & Craig Simon
Kathy Higgins Chesterfield’s Citizen
of the Year
Debbie Guyer & the APDA
Board of Directors
Mother of Nancy Hodel
Nancy Hodel
John & Shirley Hughes’ Marriage
and Mother, Mary Hughes
Jackie Frame
Chuck & Terry Gilmore
Clayton Goss
Walter Hubler
Scott & Liz Hughes
Frank Javech
Katherine Kim
John Moraytis
Earl & Pat O’Rourke
Mark & Jessica Sokol
Andrew & Christina Thau
Larry & June Wagner
Libby Waters
Matt Winefield
Bob Lanfer
Erin Lanfer
50th Wedding Anniversary Mr. and
Mrs. James Lister
Clarence & Carol Penny
12 St. Louis APDA LiNK
Jack Strosnider
Theresa Heckman
Special Birthday of Elaine Varnador
Sharon Holt
Beverly Lee
Bernice Walsh
Danyel Jones
Adam & Erica Weintrop’s Marriage
Mr. & Mrs. Jerry Silverman
Birth of Katherine Naomi Wheeler
Donna Marshall
REMEMBERING
Fredrick W. Ackerson
Frank Biondi
Jim & Marguerite Willett
Harvey Austrin
Cheryl Hughes
Rene Bauwens
Gaynelle Matthis
Marjorie Berg
Stan, Donna, Mark, & Molly
Wilensky
Susan Boeke
Becky & Jeff Harlow
Bill Hays
Thomas & Anita Holtgrave
Steve & Linda Lage
Terry & Bud Lohmeyer
Jane Pope
Peggy Schewe
Don & Sherry Schwaab
William Boker, Sr.
Jeanne & Don Berges
Terrie & Mark Genovese
James J. Crisp
Marilyn Hasselman
Rosemary Kilker
Madeleine McDonough
Rita Reinkemeyer
Cyd Slayton
Richard H. Crosby
Daniel & Karol Burns
James & Joan Crosby
Bob & Jeanne Duke
Ed & Pam McKechnie
Steve & Janice Mamie
Ruth A. Myers
Henry & Mary Rauber
Keith & Marcia Stultz
Ivala Taylor
Jeremy & Krista Taylor, &
Jackson
Jim & Pat Taylor
Jon & Rachael Taylor, Jeff &
Matt
Roy & Helen Taylor, Roger and
Lynn, Joyce and Al
Martha Troutz
Eleanor Cullinan
James & Virginia Wilmes
Thomas F. DeBlaze
Jeffrey Boedges
Ann & Stephen Conway
Cindy & Frank Cyr
Jack & Carolyn Lyons
Suzanne & Bob Pea
Heinz Gros
Gerald & Paula Royce
Marian Hanlen
Rose J. Mani
Jane Hennis
James & Jane Dickenson
Mr. & Mrs. Mark Fraraccio
Elizabeth Rockwell
E. B. Stuart
Betty Hercules
Mary Alice Becker
Bob & Kathy Cushman
Virgil & Margaret
Eikermann
Hercules Nieces & Nephews
Mary Hesskamp
Dan & Tammy Honerkamp
Marlene Meers
Charlie & Janice Morgan
Nick & Kathy Ouchly
Daniel & Dawn Plackemeier
Frank & P.A. Randazzo
Terry & Delpha Randazzo
Mary Ellen Schaefer
Kurt Schmidt
Gilbert & Joy Sudbrock
Bob & Martha Vogt
Chester L. Hill
Virginia Bergheger
Ed & Barbara Lowes
Mr. & Mrs. James Westbrook
Jack Drake
Sara Seymour
James Hintz
Chris, Gail, Alex & Eric Hintz
Judith Eishen
bioMerieux, Inc.
Doreen Matkin
Nancy Robb & Bill Smith
Dorothy Walters
Jan Yahn
Larry F. Holder
Matt & Jackie Holder
Jacqueline Exler
St. Louis Banjo Club
Edith Gad
Bill & Terri Taylor
Louis Gerber
Arline Gerber
John (Jack) Gewinner
Tim & Fran Boyer
Larry & Connie Copley
Donald & Sharon Kimack
Angela Kittner
Russ & Betty Korte
Patricia Laughlin
Tim & Sharon Speak
Pat & Katie Tovo
Mr. & Mrs. Charles Uxa
Honey & Bob Watel
Warren & Glory Ziegler
John Gittemeier
Earl & Catherine Adkison
Sharon Cassady
Bill & Margie Heuckroth
Paul McAlister
Preetam & Cheryl Pagar
Robert Huskey
Teresa Barker
Edward & Mary Dubbs
Harvey & Barbara Dubbs
Victor & Karen Dubbs
Bonnie Hubert
Carolyn Kroie
Samuel & Sharron Mertz
Walter & Wanda Tennison
George & Judy Vogel
Steve & Corinne Vogel
Mike, Jim, Donna, Beth, & Tom
Alice Walker
Michael Jackson
Mary (Jill) Stein
Howard Jaromack
Don & Chris Volz
Lloyd Kaempfe
Greg & Dawn Zuzack
Vernelle Kohne
Jesse & Patricia Reddick
Judith R. Wheeler
Ben & Kay Whitener
Mrs. Bernard Kornblum
Vicki & Norman Litz
Eugene Lapointe
Joseph & Elsie Sedlock
August 2009
Marie Latham
Wilma Childress
Edith Jarrett
Jack E. Lewis
Jerry & Debbie Callahan
Nick Ludwig
Virginia R. Bates
Mike & Joan Burd
Ed Matthews
Eleanor Siewert
Ron & Sue Wrinkle
Joleen Kleekamp
Jean Lamzik
Joyce Mentz
Frankie Miller
Craig & Jill Monzyk
Jim & Mary Obermark
Mark & Linda Probst
Hank & Helen Reiling
Mr. & Mrs. Michael Rohr
Dennis & Pat Sahm
Silgan Plastics Corporation
Scott Vredenburg
Mr. & Mrs. Victor Westhoff
Ziglin Signs
Charles McAninch
Robert & Berneice Donnelly
Edward Kindl
James Lynch
Virginia Woodside
Kelly Nebuloni
Christine Nebuloni
Helen Malzner
Community Bank of Russellville
Gary & Rhonda Fogelbach
Dennis & Vera Forbis
Gertrude Vieth
Millie Peich
Cathryne Loos
Betty Manlin
Ralph & Helen Goldsticker
Harvey & Lee Shapiro
Harold G. Meyer
Dolores Meyer
Nora Miller
Dave & Deanna Deubner
Dennis & Robin Norman
Jack Moehle
Kathy Newbold
Mildred Monzyk
Kay & Robert Alleman
Lloyd & Kathy Baker
Douglas & Maureen Boland
Dan & Sheila Brinker
Judy Cortner
Eunice Elbert
Mr. & Mrs. Thomas Embry
Sonya Enloe
Connie Falvey
Tim & Joette Hellebusch
Joe & Jane Humphreys
Jack & Kathy Kahmann
Bertha Ordner
Carol & Kenny Ziegler
Ruth Powers
Elizabeth Lester
Ben Pummill
Jean Whitlow, Judy and Dick,
Jim, Joe & Cherie and Joey
Lorraine Quarternik
Amos & Kay Burke
Ed & Shirley Hogan
Dorothy Hohenberger
Judy & Steve Litwicki
Leo & ZoAnn Mankovich
Steve Oslica
Mr. & Mrs. Leo Stussie
Jane Weber
Judy Rubin
Milius Families
Carol, Linda, Elaine, Nancy
Roslyn Schulte
Jill Stein
Marnie Schultz
Keith & Claire Fowler
Robert Smegner
Steve & Chyrle Arens
Laclede Gas Company
Sharon Smegner
Walter G. Strosnider
Debbie Guyer
Ray & Ruth Knierim
Joan Stumpe
Paul Stumpe
Samuel Tessler
Bob Braun
Nib Trimborn
Lindhorst family
Melvin J. Wagner
Elizabeth Turner
John & Lucinda Atkinson
Brian & Kelly Boete
Don Uhlenburg
Barbara & Julius Schweich
Jack Unger
Betty J. Unger
Consuelo Valencia
Sandra Kelly
Jim Warsaw
Ronnie & Karen Polishuk
Morris Wilson
Leslie Wilson
David Wolff
Larry & Roberta Trochtenberg
General
Dorothy Barcafer
Willard & Barbara Benz
Bill & Ada Billings
Bruce Metal & Salvage, Inc.
Thomas & Margaret Bruno
John & Chris Carrell
Carlene Cashel
Sharon Chezik
Barbara Crow
Don & Diane Donlon
John Earney
Todd Farber-BFC Enterprises
Don’t forget
Another easy way to contribute to the
APDA during these tough economic
times is to request an eScrip card.
Every time you shop at Schnucks, they will automatically contribute up
to 3% of every dollar you spend to the St. Louis APDA by using this card.
If you do not have an eScrip card, call St. Louis APDA at 314-362-3299
and request a Schnucks eScrip community card. We will enroll you and
mail the card out the same day.
Volume 23, Issue 3
Herbert Fredman
George Frenzel
Donna Gail
Mary Jane Gass
Bernhard & Else Hartmann
William R. Humphrey
George & Nancy Johann
David J. Klasing
Sharna Kohner
James & Ruth Konrad
Kathaleen Lange
Sandra Lasko
Barbara Lenz
Robert Loewenstein
David Marrs
MasterCard Matching Gift
Program
Char Ann Meloney
Kenneth Mihill
Janet Miller
Minerva Women’s Club of
Granite City, IL
Floyd Morgan
Alice Morris
Dayton Mudd
Marcella Mueth
John Murphy
Jack & Linda Neporadny
Richard Nolbert
Dale & Norma Plank
John Polansky
Brun & Jean Puscian
Donna J. Racer
Mr. & Mrs. Ted Rodis
Jack Schecterson
Alfred Schumacher
Vito Scorfina
Martin Shrader
Norman C. Sih
Gretchen Smith
Margie Stanley
Hugh Stephenson, Jr.
Harold W.Thieman
Mark Whitehead
Mark Wilkins
Donald Willoh Sr.
Ziegler family
Richard Zimmerman
Please call the satellite resource center
at 636-537-5455 to make certain we
have a volunteer available to meet you
at the time when you’d like to stop in to
visit our center (1415 Elbridge Payne,
Suite 168, off the Chesterfield Parkway
near Clarkson Rd., behind
PF Changs parking lot)
St. Louis APDA LiNK 13
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Hi ts a
I’m torn between using a hole-in-one
reference (which a golfer did sink at
our tournament and in doing so won
a 3-carat diamond donated by David
Kodner Personal Jeweler) or a baseball
analogy, since we were very fortunate
to have John Mozeliak, GM of the
St. Louis Cardinals as our Honorary
Chairperson this year. Either way, our
11th annual Nat Dubman Memorial
Golf Classic was a “grand slam” and one
of the best tournaments many of these
golfers have ever played in.
This was due in large part to our loyal
sponsors: MASTERS level sponsor–
Community Partnership at Benton
Homebuilders; MAJOR level sponsor–
Carol House Furniture; CHAMPION
level sponsor–HealthLink; GOLF
CART sponsor–The Gatesworth Communities; TOURNAMENT level sponsors–Aspenhomes, The Commerce
Trust Company, and Serta Mattress
Company; DINNER sponsor– Moneta
Group; COCKTAIL RECEPTION–
Merrill Lynch; BEVERAGE CART
sponsors–Catnapper and Pulaski Furniture; DRIVING RANGE sponsors–
A.R.T. Furniture, Zeigler Associates;
14 St. Louis APDA LiNK
PRACTICE GREEN sponsors–Guarantee Electrical, Howard Miller Furniture, and Lea Furniture; and HOLE
SPONSORS–American Drew Furniture, Bauhaus USA, Berkline, Don
Carlson, Continuum, Larry & Sonya
Davis, the Delmar Gardens Family,
Flexsteel Industries, Glideway Sleep
Products, Grey Eagle Distributors,
Keith & Cindi Guller, Hillsdale Fur-
photography by Taka Yanagimoto
niture, Hooker Furniture, Huntleigh
Bus Sales, Lane Home Furnishings,
La-Z-Boy, Nurses & Company, Pulaski Bank, Schnadig International,
Shillington Box Co., and Universal
Furniture International.
CHARITABLE CONTRIBUTIONS arrived
in generous proportions
from the following individual donors: Todd
Farber-BFC Enterprises, Jim & Anita Blair,
Container Marketing,
Debbie & Karl Guyer,
Dave Jaros-Chromcraft
Revington, Ron &
Sharyn Kessler, Marvin & Mimi Klamen,
Thomas & Noreen Laffney, Al Leving, David Link-A.R.T. Furniture,
Harry W. Welford, Jr.-Littler Mendelson Fondation, Brandi Koziatek,
Kristian Madsen-Sitcom Furniture
& Amisco Furniture, Joe Marchbein,
Robert May, Frank Miskit, Marion
Morris, Riverside Furniture Corporation, Rick Short, Bill Sullins, Addie
Tompkins, and Daniel & Sarah Wessel. There were exceptionally charitable
donors raising their paddles during
the FUND-A-NEED portion of our
auction: Brook Dubman funded our
Dance Exercise Classes to premier twice
a week this fall; Jack Strosnider fundAugust 2009
ed the ever popular Dance social to be
held in the fall; Leslie Wilson funded
a ten week summer session of Aquatics
Exercise Class (in loving memory of her
beloved Morris); Dave & Christine Sadler funded a Wellness Course; Terri &
Bill Taylor, Jim Wolfe and Marty Zygmund each funded a month of weekly
exercise classes for persons with PD;
Alan Lemley and Mitch Waks each
funded a month of respite care for a
Parkinson’s family; and Mark Schupp
funded a month of adult day care services for an individual with PD.
AUCTION ITEMS were amassed
from: Autohaus, Bentley Studio, BFC
Enterprises, Bon Vivant Adult Day
Club of Missouri, C.E. Madinger
Wines & Art Harper, Cheeburger
Cheeburger, Bruce Conner & Massage Envy of Sunset Hills, Bob Costas, Creve Coeur Camera, Crowne
Plaza St. Louis-Clayton, Dave &
Busters, Delmar Gardens Homecare, The Elder & Estate Planning
Law Firm, Extended Stay Hotels,
Family Partners Adult Day Services,
Fastsigns of Bridgeton, Flight Safety
International, Garden Villas Retirement Communities, Goedeker’s, Hair
Saloon for Men-West Oak, Harvest,
John Hayes-Golf Professional, Holiday Inn Airport West, Holiday Inn
Express Riverport, Innsbrook Resort,
Jos. A. Bank, Kreis Restaurant, Pamela Kuehling & Citi Smith Barney,
Lester’s, Martha’s Hands, Dale Meier,
Volume 23, Issue 3
Millenium Hotel of St. Louis, John
Mozeliak, Michael Nelson Hair Design, The Pasta House Company, PRP
Wine International & Terry Kimmel,
Bud & Betty Rakestraw, Bill & Shari
Reller, Residence Inn by Marriott-St.
Louis Airport-Earth City, Bob Ross &
Gateway Golf Center, Dave & Christine Sadler, St. Louis Blues, St. Louis
Bread Co, St. Louis Cardinals, St. Louis Cardinals & Kyle Dinges, St. Louis
Rams, Sam’s Steakhouse, Robert V.
Sanderson, Schlafly Beer, Seeger Toyota Scion, Brian Stitch-PGA Golf Pro,
Stoney River, Sunrise Senior Living,
Kathleen A. Toal, Treasured Moments
Photography, Visiting Angels, Waterway Gas & Wash, and Lynda Wiens.
And hats off to these special VENDORS who willingly came out of the
rough and sank the putt through these
in-kind donations: Alphagraphics
(Bob Sanderson) for their wonderful
invitations and program booklets, Paramount Apparel International (Alex
Levinson) for their commemorative
embroidered visors, American National Payments (Lisa & Michael Lineback) for their goodie bags of sweet
and salty snacks for the golfers, Ruth’s
Chris Steakhouse (Karen Johnson)
for their wonderful steak sandwiches
on the course, Garden Villas Retirement Communities (Jeanne Lorne &
Wendy Hampton) for their Cooler of
Fun raffle and shots on the course, long
shot driver David Brinker, Fastsigns
of Bridgeton for their wonderful signs,
banners, window clings and barker Brian Goldman, and our two hole-in-one
sponsors, Autohaus for the 2009 much
coveted 128i BMW convertible, and
David Kodner Personal Jeweler for
the 3-carat diamond hole-in-one. Taka
Yanagimoto (Photography) captured
all those action shots on the course and
is responsible for the pictures both on
our website and in this article.
And, finally, none of this would have
been accomplished without the hard
working 2009 Golf Committee–Brook
Dubman (Chairman), Christine Sadler (Auction Chairperson), Liz Carney, Kevin Fairlie, Brian Goldman,
Debbie Guyer, Brandi Koziatek, Matt
Jaudes, Lisa Lineback, Shari Reller,
Bob Sanderson, Carrie Taylor, Terri
Taylor, Missy West, Lynda Wiens, and
Stan Wilensky.
Thank you to the 116 golfers who
had a terrific day on the beautiful, sunlit greens, bidding on over 30 baskets at
the silent auction, feasting on the prime
rib buffet dinner, enjoying the Q & A
between John Mozeliak and Joe Buck,
and marveling at the ease of Joe Buck,
auctioneer-extraordinaire in securing
great bids for our live auction items and
fund a need. We’ve already reserved
Lake Forest for next year’s memorial
golf classic to be held on Monday, May
17, 2010 with a 10:00 shotgun start!
SAVE THE DATE! n
St. Louis APDA LiNK 15
Washington University School of Medicine
American Parkinson Disease Association
Campus Box 8111
660 S. Euclid Ave.
St. Louis MO 63110
Address Service Requested
Save These Dates!
NON-PROFIT
U.S. POSTAGE
PAID
ST. LOUIS, MO
PERMIT NO. 1032
Aug. 23, 2009 Kevin Lockette, PT “Move It! An Exercise and
Movement Guide for People with Parkinson’s Disease”
2:00 PM at Congregation Shaare Emeth
Oct. 12, 2009 These Are a Few of My Favorite Things…in Fashion
14th Annual Celebrity Fashion Show/Luncheon/Auction
11:00 AM at the Sheraton Westport Chalet
Nov. 15, 2009 Dr. Joel Perlmutter Annual Update on Research and
Findings Relative to PD and Related Diseases
3:00 PM at Congregation Shaare Emeth
VOLUNTEERS to help in the Information & Referral Center office
located at Washington University School of Medicine and VOLUNTEERS
to assist at the Satellite Resource Center. For more information, contact
Debbie at 314-362-3299 or by email: guyerd@neuro.wustl.edu.
Special thanks to our newest volunteer staff at the Information &
Referral Center, Linda Clark. Linda will be helping me at the Center.
Linda joins our other volunteer staff Lynda Wiens & Kay Meyer.